Children with Diabetes
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The online community for kids, families and adults with diabetes

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        February 10, 2016 Volume 22, Number 6 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
What's New
About CWD
Our Board
Privacy Policy
People
Family Support Network
Adults with Diabetes
Care Photos
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CWD Conferences
-- Kids with Diabetes
Parents
Parent Humor
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Grandparents
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Quilt for Life
Surveys
Rufus
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Clinic
Ask the Diabetes Team
Alternate Site Testing
Alternative Treatments
-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
Diabetes at School
504 Plans
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Insulin Pumps
Food and Nutrition
Presentations
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Sports
Studies
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Sources
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Making a Difference

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Kids with Diabetes
Diabetes Scholars Foundation

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
Photo  

Hi. My name is Divy, I learned, that I had diabetes in the November of 2006. I had to constantly go to the bathroom, and I was always hungry, so my grandpa, who had diabetes type 2, suggested that I test my blood sugar. It was in the 400s, so my parents took me to the doctor. The doctor told me I had diabetes, and that I had to test my blood sugar and take shots. In October, 2010, I started my pump. It was way better then shots. I didn't let my diabetes get to me, I stayed on top of it!

-- Visit Divy's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Falls Church 2016   Friends for Life Falls Church 2016
April 8-10, 2016
Fairview Park Marriott
Falls Church, Virgnina

Friends for Life Orlando 2016   Friends for Life Orlando 2016
July 5-10, 2016
Orlando World Center Marriott
Orlando, Florida
DSF Family and Individual Scholarships

Friends for Life Falls Church 2016   Friends for Life Anaheim 2016
September 16-18, 2016, 2016
Disneyland Hotel
Anaheim, California

Reports from recent CWD conferences & events:
-- UK 2015, Canada 2015, Anaheim 2015, Orlando 2015
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 755 panels. The latest quilt is from Brianna.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
Our son, Bryce is 2 1/2 and was diagnosed at 9 months. Bryce has three friends in the neighborhood that all get together and play throughout the week. When Bryce needs a check, I go to him with the kit and he stops for a minute while we do our business. One day while waiting for the meter reading, I glanced up and his three friend were all standing their with their fingers out to be checked too! Talk about moral support!
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your 10-year-old daughter looks at a beautiful, pinkish-purple sunset and declares, "That is so pretty! It looks like an infected site!"
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Taking Control of Your Diabetes, 4th Edition by Steven V. Edelman, MD. Professional Communications Inc., 2013. 544 pages. Softcover. US$ 16.95. ISBN 978-1-932610-87-1.

Book Cover  

Dr. Steve Edelman developed type 1 diabetes when he was 15 years old. Taking Control of Your Diabetes embodies his philosophy of patient empowerment in the care of their diabetes. Now in its fourth edition, Taking Control of Your Diabetes is thoroughly updated for 2013, including an excellent section on continuous glucose sensors and how to get the most out of this important technology. Dr. Edelman's core message is that patients can take charge, regardless of how long they've had diabetes, and even if they have complications. This book is thorough, very well-written, and easy to read. The medical information covers everything one might need to know about taking charge, for people with both type 1 and type 2 diabetes. Dr. Edelman covers potential complications as well as daily care, with excellent advice on today's best practices. With contributions from a veritable who's-who in the diabetes world, TCOYD is an excellent addition to the library of everyone living with diabetes -- type 1 or type 2.

Order from Amazon.com Order Taking Control of Your Diabetes from Amazon.com

-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
For a month, my toddler has been urinating only once a day, or less. Her breath smells like ketones. Could she have diabetes? What do you advise? (24 Jan 2016)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- Parents of very young children with type 1 diabetes are needed to help design and build a great website for other parents like you. If you are a parent (or legal caregiver) of a child with type 1 diabetes diagnosed before age 6, and your child is not yet 10 years old, just follow this link to learn more: https://apps.nemoursresearch.org/redcap/surveys/?s=L3HKPK33J4

-- Teens with Type 1 Diabetes and their Parents are needed for a shared decision making study about the use of insulin pumps and continuous glucose monitoring systems.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

For insulin pump users, how often do you usually change your infusion set?

 
   

Every day

 
   

Every two days

 
   

Every three days

 
   

Every four days

 
   

Every five days or more

 



Poll Results

 

For insulin pump users, how often do you usually change your infusion set?

 
     

Every day

 
 

0%

     
     

Every two days

 
 

25%

 

 
     

Every three days

 
 

62%

 

 
     

Every four days

 
 

12%

 

 
     

Every five days or more

 
 

0%

     
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 10-Feb-2016 16:36:30 UTC
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