Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes
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     April 10, 2013 Volume 19, Number 15 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Living With Diabetes
Photo  

My name is Vanessa and I live in Ontario, Canada. I was diagnosed February 12, 2012 at the age of 7.

It came as quite a shock to my family. I was tired, thirsty, hungry and crabby all the time and lost a lot of weight. My mom thought I was depressed because she was working a lot but realized something was very wrong after my favorite activities didn’t make me feel better.

I am still learning about diabetes and all the things that go along with it. So are my friends and family, who have been very supportive of me.

I am looking forward to going to Diabetes Camp this year and am also curious about insulin pumps and if they’re right for me.

I have a great diabetic team at the hospital who have been fantastic, and even though the clinic visits are long, we learn a lot every time and I continue to feel better every day!

-- Visit Vanessa's page
-- More children with diabetes


Upcoming CWD Conferences and Events
Friends for Life: Orlando 2013   Friends for Life: Orlando 2013
July 9 - 14, 2013
Disney's Coronado Springs Resort
Lake Buena Vista, Florida
Family Scholarships
Adult / LADA Family Scholarships
Young Adult Scholarships

Reports from recent CWD conferences & events:
-- UK, Toronto, DC, UK, Sugar Land, Vancouver, Orlando, Philadelphia
-- More Reports & Upcoming CWD Conferences and Events


Headlines
Applications for the 2013 Diabetes Scholars Foundation College Scholarships are now online. Applications must be received by May 15, 2013.

We report on CWD's Friends for Life UK 2013 conference.

We report on CWD's Friends for Life Canada: Toronto 2013 conference.

We report on CWD's Focus on Technology: DC 2013 conference.

CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

Reversal of type 1 diabetes via islet beta cell regeneration following immune modulation by cord blood-derived multipotent stem cells. Free full text available in PDF format. See also Novel Stem Cell Treatment May Hold Promise for Type 1 Diabetes and Type 1 Diabetes Reversed With Stem Cells From Cord Blood.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Author Dan Hurley answers, What Do We Really Know About Why Type 1 Is Rising?

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,400 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 741 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


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Australia New Zealand UK Scotland Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.


Diabetes Humor
After recently buying "Mary Poppins" on DVD, our 6 kids went around singing all the songs. Well, John, our pumping 5 year old son had to put his own twist on "A Spoonful of Sugar." His version goes:
Just a bolus full of insulin makes my sugars come down,
sugars come down,
sugars come down.
In the most painless way!

-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... in conversation, your husband describes his personality as Type 1 instead of Type A.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Diabetes Through the Looking Glass: Seeing diabetes from your child's perspective by Dr Rachel Besser. Published by Class Publishing Ltd, London, 2009. ISBN 1859592090. 287 pages, paperback. £20.99 or $32.99.

Book cover   For parents of kids with type 1 diabetes, there are many excellent books to help them learn everything from the basics to making the best use of advanced insulin pump features. But Diabetes Through the Looking Glass is different. Dr. Rachel Besser not only offers excellent diabetes care advice, but she brings a very unique perspective -- she brings voice to people living with type 1 diabetes. How many of us have wished we could understand what our kids were thinking as we poked and stuck them, especially if they are very young? Well, now you can find out. Real people living with type 1, from kids to adults, provide insight into the mind of our kids, and help us, as parents, to provide better care with less worry (really). And it helps that Dr. Besser, who is a paediatrition specializing in childhood diabetes, was herself diagnosed with type 1 when she was nine years old. Highly Recommended.

Order from Amazon.com Order Diabetes Through the Looking Glass from Amazon.com

-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
Despite having had it for over 30 years, I have never taken care of my type 1 diabetes. Is it too late to start taking responsibility for it? (9 Apr 2013)
-- Answers to over 19,290 questions
-- What's your question?


From the Diabetes Dictionary
Basal/Bolus Insulin Administration (Poor Man's Pump)
Using several daily injections of fast-acting insulin (e.g., NovoLog, Humalog, or Apidra), at mealtimes -- the bolus doses -- together with one or more daily injections of long acting insulin (e.g., Lantus or Levemir) -- the basal doses -- to achieve blood sugar control in a manner similar to that used by people who use insulin pumps.
-- More definitions


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

Women between 12 and 20 who use an insulin pump are needed for a study to understand the experiences of female adolescents with type 1 diabetes being treated with an insulin pump and assess any commonalities between them.

Kids between the ages of 12 and 17 with type 1 diabetes are needed for studies on the artificial pancreas project.

Researchers from Palo Alto University are conducting a study to learn about the impact of various forms of support on quality of life for parents and siblings of children and adolescents with diabetes as well as the psychosocial effect felt by the siblings.

-- Other Studies



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View the Online Quilt Gallery
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Current Poll
  What do you think is the hardest part of diabetes?  
    Meal planning and diet  
    Blood sugar monitoring  
    Insulin injections or using the pump  
    Exercise and sports  
    Social interaction (acceptance by friends, family, school, isolation)  
    Hypoglycemia and the fear of going low  
    Complications  
    Financial costs or insurance issues  
    Other  


 
Poll Results
  What do you think is the hardest part of diabetes?  
      Meal planning and diet  
  0%      0  
      Blood sugar monitoring  
  13%     2  
      Insulin injections or using the pump  
  0%      0  
      Exercise and sports  
  7%     1  
      Social interaction (acceptance by friends, family, school, isolation)  
  7%     1  
      Hypoglycemia and the fear of going low  
  67%     10  
      Complications  
  0%      0  
      Financial costs or insurance issues  
  7%     1  
      Other  
  0%      0  

Total votes: 15
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 10-Apr-2013 15:39:42 Eastern Daylight Time
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