Children with Diabetes
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The online community for kids, families and adults with diabetes

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        August 15, 2018 Volume 24, Number 33 First Published in June 1995     
Donate Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
What's New
About CWD
Our Board
Privacy Policy
People
Family Support Network
Adults with Diabetes
Care Photos
Chat Rooms
CWD Conferences
-- Kids with Diabetes
Parents
Parent Humor
Scholarships and Financial Aid
Grandparents
Humorous Tidbits
CWD Forums
Poetry and Art
Videos
Polls
Quilt for Life
Surveys
Rufus
Blogs & Social Media
Clinic
Ask the Diabetes Team
Alternate Site Testing
Alternative Treatments
-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
Diabetes at School
504 Plans
Diabetes Camps
Diabetes Dictionary
Insulin Pumps
Food and Nutrition
Presentations
Products
Sports
Studies
Warning Signs
Sources
News and Information
Diabetes Advocacy
Links to Other Web Sites
Press Releases
Blogs about Diabetes
Regional Information
Diabetes Events
Services
Support Groups
Feedback
About CWD
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Awards
Contribute Your Experiences
Disclaimer
Letters to the Editor
Logos and Linking
-- Share our Brochures
History of CWD

Making a Difference

Conference and College Scholarships for
Kids with Diabetes
Diabetes Scholars Foundation

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
Photo  

My name is Isabella-Rose. I was diagnosed with type 1 diabetes on 8 April 2010. I was 9 years old then - but I turned 10 in May.

I had been feeling a bit bad for a while but I thought that I was just tired or feeling stressed - and that's what my Mum thought too. I was drinking a lot and going to the bathroom a lot - sometimes wetting the bed at night which was really embarrassing and my Mum would get upset with me because she thought I was not going to the bathroom before I went to bed, or I was drinking too much during the night. My Mum says that I was really really grumpy too and I cried a lot and kept getting really upset with my friends at school.

Then at Easter time this year we had school holidays and my Mum said she thought I was getting a big skinny. She weighed me and I had lost about 4kg since the last time I was weighed about 6 weeks before - but I had also grown about 2cm taller. My Mum said that that was when she realised that something was not right. The next day we went to the Royal Easter Show in Sydney and because it was so busy there and there were so many people my Mum had to come to the bathroom with me - and I went to the bathroom about every 10 minutes. My Mum knew how much I was drinking but said that I should not be going to the bathroom that much. The next morning my Mum rang the doctor's office and told them she thought I might be diabetic. My Mum's sister was diagnosed with adult onset Type 1 Diabetes only a year ago so she knew a bit about it.

-- Visit Isabella-Rose's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Falls Church 2018   Friends for Life Falls Church 2018
October 19-21, 2018
Fairview Park Marriott
Falls Church, Virginia

Friends for Life UK 2018   Friends for Life UK 2018
October 26-28, 2018
Crieff Hydro Hotel
Strathearn House, Crieff

Friends for Life Canada 2018   Friends for Life Canada 2018
November 2-4, 2018
Marriott on the Falls
Niagara Falls, Ontario

Reports from recent CWD conferences & events:

-- Orlando 2018 , Anaheim 2018, UK 2017, Falls Church 2017
-- More Reports & Upcoming CWD Conferences and Events


Headlines
Assistance with Access to Insulin.

CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 759 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
My son was diagnosed at 21 months. At age three his ID bracelet broke. He handed me the remains, raised his little arm, and said, "Look mom I'm not diabetic anymore." It was hard to explain that it didn't work that way.
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... you find your five-year-old daughter testing the finger of her baby doll and saying "Uh-Oh, what did you eat?"
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Bright Spots and Landmines: The Diabetes Guide I Wish Someone Had Handed Me by Adam Brown. The diaTribe Foundation, 2017. ISBN 10 0692875174. Softcover, 236 pages.

Book Cover  

Bright Spots & Landmines is just what the doctor ordered: easy-to-understand, actionable advice to help people with diabetes live well. Adam will guide you through food choices that make blood glucose management easier, strategies for making exercise an integral part of even your busiest day, and tips for adopting a positive mindset. Whether you live with type 1 diabetes, type 2 diabetes, or have been told that you have prediabetes, this book will help you in your journey to a life well lived. Note: This is a book more for people living with diabetes more so than a book for parents of children with type 1 diabetes. Highly Recommended.

--JSH

Order from Amazon.com Order Bright Spots and Landmines from Amazon.com
-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
For my teen son, meal boluses via his pump lead to high blood sugars, which do not occur if he injects insulin using a flex pen. Why is there such a difference? (8 Aug 2018)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Have you ever been forced to change the insulin you use by your insurance company?

 
   

Yes, more than once

 
   

Yes, once

 
   

No

 



Poll Results

 

Have you ever been forced to change the insulin you use by your insurance company?

 
     

Yes, more than once

 
 

50%

 

 
     

Yes, once

 
 

25%

 

 
     

No

 
 

25%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 15-Aug-2018 13:51:02 UTC
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