Children with Diabetes
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Children with Diabetes

The online community for kids, families and adults with diabetes

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        June 28, 2017 Volume 23, Number 26 First Published in June 1995     
Donate Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
What's New
About CWD
Our Board
Privacy Policy
People
Family Support Network
Adults with Diabetes
Care Photos
Chat Rooms
CWD Conferences
-- Kids with Diabetes
Parents
Parent Humor
Scholarships and Financial Aid
Grandparents
Humorous Tidbits
CWD Forums
Poetry and Art
Videos
Polls
Quilt for Life
Surveys
Rufus
Blogs & Social Media
Clinic
Ask the Diabetes Team
Alternate Site Testing
Alternative Treatments
-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
Diabetes at School
504 Plans
Diabetes Camps
Diabetes Dictionary
Insulin Pumps
Food and Nutrition
Presentations
Products
Sports
Studies
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Sources
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History of CWD

Making a Difference

Conference and College Scholarships for
Kids with Diabetes
Diabetes Scholars Foundation

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
Photo  

Hi. My name is Mikayla. I am 7 years old and I live in northern Pennsylvania. I got diagnosed with type 1 diabetes on January 17, 2011. My mom and dad noticed that I was drinking a lot, going to the bathroom a lot, and had a tummy ache, so they took me to the doctors office. My blood sugars were very high in the 500s and I was a little tired. I was transferred to a larger hospital to meet with a pediatric endocrinologist. I was in the hospital for a couple days and had some blood tests. I also got lots of gifts! My mommy is a nurse and my daddy is my hero. I feel safe when I'm with them.

-- Visit Mikayla's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Orlando 2017   Friends for Life Orlando 2017
July 4 - 9, 2017
Disney's Coronado Springs Resort
Orlando, Florida

Friends for Life Falls Church 2017   Friends for Life Falls Church 2017
October 6-8, 2017
Fairview Park Marriott
Falls Church, Virginia

Reports from recent CWD conferences & events:

-- Anaheim, Orlando, Falls Church, UK, Canada
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 756 panels. The latest quilt is from Katrina.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
The other day my mom texted me this: "2 100's today". She watches my son Cole while I attend college full time. I texted back, "good, I changed his basal the other day". She texted back, "No, I was talking about his school work -- two 100% on his school work." We both laughed really hard -- this would only happen if you had a child with diabetes.
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your laundry smells good because you accidentally washed the glucose tabs again.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Typecast: Amazing People Overcoming the Chronic Disease of Type 1 Diabetes by Andrew Deutscher. Published by Humbition Entertainment, 2014. ISBN 0578123118. US$18.95.

Book Cover  

Typecast is a book about people in the type 1 diabetes community -- Phil Southerland and Tom Karlya, for example. I'm in there too. But it's so much more than that. Andrew Deutscher's journey in the world of type 1 began when his young son was diagnosed. Andrew sought to understand what that meant for his son and his family, so he began to reach out to others to learn their stories. Those stories are what makes Typecast so unique, and so uplifting. This is a book about thriving with type 1 diabetes, and it is empowering. Highly recommended.

-- JH

Order from Amazon.com Order Typecast from Amazon.com
-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
My daughter has developed hives at her pump sites. Neither the allergist nor the endocrinologist has any advice. What do you suggest? (17 May 2017)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

How much of a financial burden does paying for all of your diabetes supplies place on your family?

 
   

Extremely high burden - we can't afford some needed diabetes supplies

 
   

Very high burden - we struggle to make ends meet because of diabetes

 
   

High burden - we do without many things because of diabetes

 
   

Modest burden - we do without some things because of diabetes

 
   

Minor burden - we chose less expensive things because of diabetes

 
   

No burden at all

 



Poll Results

 

How much of a financial burden does paying for all of your diabetes supplies place on your family?

 
     

Extremely high burden - we can't afford some needed diabetes supplies

 
 

19%

 

 
     

Very high burden - we struggle to make ends meet because of diabetes

 
 

23%

 

 
     

High burden - we do without many things because of diabetes

 
 

3%

 

 
     

Modest burden - we do without some things because of diabetes

 
 

23%

 

 
     

Minor burden - we chose less expensive things because of diabetes

 
 

23%

 

 
     

No burden at all

 
 

7%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 28-Jun-2017 15:31:11 UTC
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.

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