Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes

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     October 15, 2014 Volume 20, Number 47 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
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Living With Diabetes
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Hey, I'm Sabrina and I am currently 12 going on 13. I live in Australia. Anyway, when I first got diabetes I was in America, more detailed, New York. My family and I were traveling around USA!

My parents kept saying they were going to get me checked by the doctor, my mum had had gestational diabetes with both my sister and I, and they were noticing that I was drinking tons of water and going to the toilet every 5 minutes(it felt like) or so.

So in NY one night, the second night I was there, I had terrible stomach cramps. In the morning my mum took me to the pharmacy but they had no idea what was wrong with me, so we went to the doctors and they told us they could only take kids 16 and over. So we went to the hospital and I was lying on the bed with a drip for hours and hours. When they told me it was true I had diabetes, everyone was devastated. They kind of expected it but it was still a very traumatic day. At the time my mum was with me and when she called my dad and my sister they came straight away.

-- Visit Sabrina's page
-- More children with diabetes


CWD Conferences and Events
Anaheim2014   CWD Focus on Technology
October 24-26, 2014
Disneyland Hotel
Anaheim, California

Friends for Life: Orlando 2015   Friends for Life: Orlando 2015
July 6-12, 2015
Disney's Coronado Springs Resort
Lake Buena Vista, Florida

Reports from recent CWD conferences & events:
-- UK 2014, Orlando 2014, Cincinnati, Orlando 2013, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines


CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 751 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums

See our CWD UK Information Section with links to UK-specific information.


Diabetes Humor
One evening, after dinner, our daughter who has diabetes asked me to get her some Hershey's Kisses to eat. I grabbed the bag as her siblings also asked for some. I gave two to her sister, then I gave my daughter two. She said, "Please give me another one; I bolused for three." Her non-diabetic sister quickly chimed it, "Well, I bolused for five."
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your husband names his internet gaming character "Lancet."
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] The Ultimate Guide to Accurate Carb Counting by Gary Scheiner, MS, CDE. Published by Marlowe & Company, 2006. ISBN 1569242747. 240 pages. Softcover. $9.95.

Book Cover When it comes to understanding carbohydrate counting, Gary Scheiner's The Ultimate Guide To Accurate Carb Counting is a great resource. In addition to easy to understand explanations of how to count sugar, sugar alcohols and fiber, Mr. Scheiner provides extensive tables of Exchange Lists, Carbohydrate Factors, Glycemic Index Values, and Carbohydrate and Fiber Listings for Popular Foods. You'll find pages of simple exercises to help you learn how to carb count, including many photos to help you make sense of portion sizes. And for $9.95, it's a bargain. Highly Recommended.

Amazon Books Order The Ultimate Guide to Accurate Carb Counting from Amazon.com
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
Diagnosed at 11 months, should my son have testing for the Kir6.2 mutation? What type of insulin should he be getting? Should we consider a pump or stick with injections? How can I continue to breastfeed him? (17 Sep 2014)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

A clinical study for a new needle-free glucagon for treatment of severe hypoglycemia in children is being conducted at several centers in the US. If you are interested in learning more about this study, please visit clinicaltrials.gov.

The TrialNet Pathway to Prevention Study offers screening at no charge to relatives of people with type 1 diabetes. The screening can identify risk for type 1 diabetes years before symptoms appear. Those at increased risk may be able to join research studies testing ways to prevent the disease. Others can continue to be monitored for the earliest signs of type 1 diabetes, which can prevent serious symptoms. To find a TrialNet location, request a test kit, or learn more, visit DiabetesTrialNet.org.

Parents of Children and Teenagers Between Ages 8-16 with Type 1 Diabetes for at least six months are needed to Participate in a Study on the relationship between any parental stress in caring for a child with Type 1 Diabetes.

-- Other Studies



 
Poll

Current Poll

 

Does your diabetes team let you choose which diabetes care products, such as insulin pumps, CGM systems, and meters, to use?

 
   

Yes, I can choose what I prefer

 
   

Yes, but my diabetes team has strong preferences

 
   

No, my diabetes team only supports certain products

 
   

I didn't know there were other options

 
   

I don't know

 
   

Other

 



Poll Results

 

Does your diabetes team let you choose which diabetes care products, such as insulin pumps, CGM systems, and meters, to use?

 
     

Yes, I can choose what I prefer

 
 

73%

 

 
     

Yes, but my diabetes team has strong preferences

 
 

17%

 

 
     

No, my diabetes team only supports certain products

 
 

4%

 

 
     

I didn't know there were other options

 
 

0%

     
     

I don't know

 
 

0%

     
     

Other

 
 

4%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 15-Oct-2014 17:29:12 UTC
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