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Children with Diabetes
The online community for kids, families and adults with diabetes

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        July 29, 2015 Volume 21, Number 29 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
What's New
About CWD
Privacy Policy
Search CWD
People
Family Support Network
Adults with Diabetes
Care Photos
Chat Rooms
CWD Conferences
-- Kids with Diabetes
Parents
Parent Humor
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Rufus
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Ask the Diabetes Team
Alternate Site Testing
Alternative Treatments
-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
Diabetes at School
504 Plans
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Insulin Pumps
Food and Nutrition
Presentations
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Sources
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Making a Difference

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Kids with Diabetes
Diabetes Scholars Foundation

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de




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Living With Diabetes
Photo  

My name is Charlie and I am three years old and live in Houston, Texas. I was diagnosed with diabetes when I was ten months old. I felt kind of bad one day and went to bed early. When I got up I felt really, really bad and had trouble breathing. My mommy took me to Texas Children's Hospital where they gave me insulin and made me feel better.

When I turned one, I got my insulin pump. It is an Animas Ping and you can see it in the picture of me in the wedding. It sits in a black belt that is tied around my waist. My mommy and daddy and all four of my grandparents know how to work the pump to make it give me insulin. When I was two, I got my continuous glucose meter. His name is "Dex." Dex tells me what my blood glucose is and whether it is dropping or getting higher. It even tells me how fast it is dropping.

-- Visit Charlie's page
-- More children with diabetes


CWD Conferences and Events
Anaheim 2015   CWD Focus on Technology
September 18 - 20, 2015
Disneyland Hotel
Anaheim, California

Friends for Life Canada 2015   Friends for Life Canada 2015
October 23-25, 2015
Marriott Gateway on the Falls
Niagara Falls, Ontario, Canada
This Conference is Sold Out

Friends for Life UK: Old Windsor 2015   Friends for Life UK: Old Windsor 2015
30 October - 1 November, 2015
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England
This Conference is Sold Out

Reports from recent CWD conferences & events:
-- Anaheim, UK 2014, Orlando 2014, Cincinnati, Orlando 2013, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 754 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
My six year old son was diagnosed with Type 1 on April 1 (of all days!). He is an avid Pokemon fan. We were teaching him how to read the nutrition labels and find out how many carbs are in various foods. One day he picked up a can of light lemonade and said "Mom, this does 2 points damage, can I drink this?" So now we track our carbs by how many "hit points" or how much "damage" a food will do.
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your son gets a bloody nose and you reach for the glucose meter to check his blood sugar.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Diabetes Care at School: Bridging the Gap by Salus Education, LLC. Workbook and CD course. $95.

Cover  

Diabetes Care at School: Bridging the Gap is an excellent Continuing Nursing Education (CNE) program that can also be used by parents to help educate their child's school staff about delivering the best diabetes care at school. The CNE program comes with two CDs and a workbook. The first CD contains the CNE material, and the second CD contains learning activities for school staff members. Content is up to date, with sections devoted to insulin pump therapy and disaster preparedness, for example. The content of each chapter is concise, easy-to-read, and well written. School nurses seeking to learn more about caring for children with diabetes will find this program to be very helpful. Parents may wish to encourage their schools to obtain a copy. The program can be ordered online. Highly recommended.

-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
In 2009, my daughter, who has two siblings with type 1, tested negative for antibodies, but recently had a random high blood sugar and has tested positive for GAD-65. Will she definitely develop diabetes? (23 Jul 2015)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Do you or your child reuse lancets, syringes/pen needles, pump supplies, or continuous sensors?

 
 

Please vote in each section. You'll need to submit multiple votes.

 
 

Lancets

 
   

I reuse lancets

 
   

I do not reuse lancets

 
 

Syringes or pen needles

 
   

I reuse syringes or pen needles

 
   

I do not reuse syringes or pen needles

 
 

Pump supplies

 
   

I reuse pump supplies

 
   

I do not reuse pump supplies

 
   

I don't use an insulin pump

 
 

Continuous Sensors (if you use one)

 
   

I reuse sensors (beyond recommended time limit)

 
   

I do not reuse sensors (beyond recommended time limit)

 



Poll Results

 

Do you or your child reuse lancets, syringes/pen needles, pump supplies, or continuous sensors?

 
 

Please vote in each section. You'll need to submit multiple votes.

 
 

Lancets

 
     

I reuse lancets

 
 

20%

 

 
     

I do not reuse lancets

 
 

2%

 

 
 

Syringes or pen needles

 
     

I reuse syringes or pen needles

 
 

4%

 

 
     

I do not reuse syringes or pen needles

 
 

11%

 

 
 

Pump supplies

 
     

I reuse pump supplies

 
 

4%

 

 
     

I do not reuse pump supplies

 
 

10%

 

 
     

I don't use an insulin pump

 
 

4%

 

 
 

Continuous Sensors (if you use one)

 
     

I reuse sensors (beyond recommended time limit)

 
 

17%

 

 
     

I do not reuse sensors (beyond recommended time limit)

 
 

22%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 29-Jul-2015 15:13:00 UTC
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