Children with Diabetes
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Children with Diabetes

The online community for kids, families and adults with diabetes

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        January 16, 2019 Volume 25, Number 3 First Published in June 1995     
Donate Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
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About CWD
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People
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-- Kids with Diabetes
Parents
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-- Care Suggestions
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Making a Difference

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The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
Photo  

Hey, I'm Sabrina and I am currently 12 going on 13. I live in Australia. Anyway, when I first got diabetes I was in America, more detailed, New York. My family and I were traveling around USA!

My parents kept saying they were going to get me checked by the doctor, my mum had had gestational diabetes with both my sister and I, and they were noticing that I was drinking tons of water and going to the toilet every 5 minutes(it felt like) or so.

So in NY one night, the second night I was there, I had terrible stomach cramps. In the morning my mum took me to the pharmacy but they had no idea what was wrong with me, so we went to the doctors and they told us they could only take kids 16 and over. So we went to the hospital and I was lying on the bed with a drip for hours and hours. When they told me it was true I had diabetes, everyone was devastated. They kind of expected it but it was still a very traumatic day. At the time my mum was with me and when she called my dad and my sister they came straight away.

-- Visit Sabrina's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Orlando 2019   Friends for Life Seattle 2019
March 29-31, 2019
Renaissance Seattle Hotel
Seattle Washington

Friends for Life Orlando 2019   Friends for Life Orlando 2019
July 16-21, 2019
Disney's Coronado Springs Resort
Orlando, Florida
Scholarships

Reports from recent CWD conferences & events:

-- Canada 2018, UK 2018, Falls Church 2018, Orlando 2018, Anaheim 2018
-- More Reports & Upcoming CWD Conferences and Events


Headlines
Assistance with Access to Insulin.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 759 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
My son was at the endo yesterday and the nurse was commenting on his high readings lately. The nurse commented, "It looks like the honeymoon is over." Robbie (age 6) replied, "It can't be, I don't even have a wife yet!"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... you clean the lint trap of your clothes dryer and find a bunch of test strips.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Type 1 Teens: A Guide to Managing Your Life With Diabetes by Korey Hood, PhD. Illustrated by Bruan Ische. Magination Press, 2010. ISBN 1-4338-0788-2. 146 pages, paperback. $14.95.

Book Cover

Being a teenager is challenging. Add type 1 diabetes and it can get -- well -- very challenging. In Type 1 Teens: A Guide to Managing Your Life With Diabetes, Dr. Korey Hood offers teens a straight talking, no-nonsense guide that can help teens with type 1 not just survive, but thrive. Dr. Hood covers all the usual topics -- school, dating, alcohol -- but also emphasizes the importance of avoiding burnout, a topic not often explored with teens. Dr. Hood is a pediatric psychologist who works with kids and teens living with diabetes, but he also has type 1 and can empathize with the difficulty of living up to expectations that teens face. This isn't a book of "do this" or "do that." It's more of a strategy guide to help teens find their own way to success. There are so few resources to help teens, and thus this book helps to fill a void. Highly Recommended.

Order from Amazon.com Order Type 1 Teens: A Guide to Managing Your Life With Diabetes from Amazon.com

-- Other books for kids and teens with diabetes
-- Recently Featured Books


Ask the Diabetes Team
The school wants me to get a watch with alarms for my daughter, to remind her when to check her blood sugar. I feel this is too much responsibility for an eight-year-old. What do other schools do? (14 Dec 2018)
-- Answers to over 19,450 questions
-- What's your question?


Studies and Surveys
-- -- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Has diabetes changed how well you sleep?

 
 

Parents or caregivers

 
   

Yes, I don't sleep as well as I did before diabetes

 
   

No, I sleep as well as I did before diabetes

 
   

I'm not sure

 
 

People with diabetes

 
   

Yes, I don't sleep as well as I did before diabetes

 
   

No, I sleep as well as I did before diabetes

 
   

I'm not sure

 



Poll Results

 

Has diabetes changed how well you sleep?

 
 

Parents or caregivers

 
     

Yes, I don't sleep as well as I did before diabetes

 
 

60%

 

 
     

No, I sleep as well as I did before diabetes

 
 

0%

     
     

I'm not sure

 
 

0%

     
 

People with diabetes

 
     

Yes, I don't sleep as well as I did before diabetes

 
 

40%

 

 
     

No, I sleep as well as I did before diabetes

 
 

0%

     
     

I'm not sure

 
 

0%

     
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Thursday, 17-Jan-2019 00:34:14 UTC
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