Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes
     March 10, 2010 Volume 16, Number 10 First Published in June 1995     
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1. The Law, Schools, and Your Child with Diabetes
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4. Sample 504 and IEP Plans
5. Friends for Life UK 2010
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7. McKayla
8. Nick Jonas Reveals He Has Diabetes
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Living With Diabetes
Photo  

Hey, I'm Sabrina and I am currently 12 going on 13. I live in Australia. Anyway, when I first got diabetes I was in America, more detailed, New York. My parents kept saying they were going to get me checked by the doctor, my mum had had gestational diabetes with both my sister and I, and they were noticing that I was drinking tons of water and going to the toilet every 5 minutes(it felt like) or so. So in NY one night, the second night I was there, I had terrible stomach cramps. In the morning my mum took me to the pharmacy but they had no idea what was wrong with me, so we went to the doctors and they told us they could only take kids 16 and over. So we went to the hospital and I was lying on the bed with a drip for hours and hours. When they told me it was true I had diabetes, everyone was devastated.

-- Visit Sabrina's page
-- More children with diabetes


Upcoming CWD Conferences and Events
Friends for Life: Orlando 2010   Friends for Life: Orlando 2010
June 29 – July 4, 2010
Orlando World Center Marriott
Orlando, Florida
Family Scholarships from
Diabetes Scholars Foundation

Friends for Life Canada: Vancouver 2010   Friends for Life Canada: Vancouver 2010
August 27-29, 2010
Renaissance Vancouver Hotel Harbourside
Vancouver, BC, Canada

Houston 2010   CWD Focus on Technology
September 3-5, 2010
Renaissance Charlotte Suites Hotel
Charlotte, North Carolina
Family Scholarships from
Diabetes Scholars Foundation

Friends for Life UK 2010   Friends for Life UK: Old Windsor 2010
October 29-31, 2010
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England
Family Scholarships from
Diabetes Scholars Foundation

Reports from recent CWD conferences & events:
-- Houston, Marco Island, Seattle, La Jolla, UK, Orlando, Chicago, Toronto
-- More Reports & Upcoming CWD Conferences and Events


Headlines
Diabetes Scholars Foundation Applications for the $5,000 2010-2011 Diabetes Scholars Foundation College Scholarships are due by April 15, 2010.



Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Variation of Interstitial Glucose Measurements Assessed by Continuous Glucose Monitors in Healthy, Non-obese, Non-diabetic Individuals.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.

Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.



The Family Support Network now includes over 4,450 families from 50 states and 84 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 713 panels.

-- Other news and information


Clinic
Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.


Chats
Join CWD's Laura Billetdeaux for a special chat about the Friends for Life: Orlando 2010 conference on Friday, March 12 at 9 pm Eastern in the Friends for Life chat room.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Scotland Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.

Parents report that over 3,000 schools across the US support in-classroom blood glucose monitoring. Does your child's school? Check the Schools database and add information about your child's school.
-- Other information about diabetes and school


Diabetes Humor
After explaining diabetes to my newly diagnosed two-year-old daughter, she said, "Mommy, can you buy me a new pancreas?"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your d-daughter knows the Girl Scout cookies with the fewest carbs per cookie and uses that in her sales pitch to everyone---diabetic or not!
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] The Everything Parent's Guide to Children with Juvenile Diabetes by Moira McCarthy with Technical Review by Jake Kushner, M.D. Published by Adams Media, 2007. ISBN 1-59869-246-1. 287 pages. $14.95

Book Cover  

The Everything Parent's Guide to Children with Juvenile Diabetes is a must read for parents of children newly or recently diagnosed with type 1 diabetes. Writer Moira McCarthy, mother of a teen daughter with type 1, uses her years of experience to help others learn what to do in many real-world situations, like sleepovers and after school sports. She touches on almost every possible subject, using terminology that is easy to understand -- even for beginners. There's something for every parent in here. Highly Recommended.

Order from Amazon.com Order The Everything Parent's Guide to Children with Juvenile Diabetes from Amazon.com

-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
Do most endocrinologists have their patients learn a carbohydrate counting/ratio system before transitioning them to a pump? Can diluted fast-acting insulin help obtain better dosing accuracy? (8 Mar 2010)
-- Answers to over 18,950 questions
-- What's your question?


From the Diabetes Dictionary
Injection Site Rotation
Changing the places on the body where a person injects insulin. Changing the injection site keeps lumps or small dents from forming in the skin. These lumps or dents are called lipodystrophies. However, people should try to use the same body area for injections that are given at the same time each day-for example, always using the stomach for the morning injection or an arm for the evening injection. Using the same body area for these routine injections lessens the possibility of changes in the timing and action of insulin.
-- More definitions


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- DiaPrevent is a type 1 diabetes research study for people newly diagnosed between the ages of 10 to 20.

-- DEFEND is a global study seeking newly diagnosed patients aged 12 to 45 to test an islet preserving medication.

Researchers at the Medical University of South Carolina are looking for teenage drivers with type 1 diabetes between the ages of 16-19 and their parents to participate in an online study about how diabetes affects driving in teens. The survey is anonymous, which means that no one will know your answers but YOU. For more information and to complete the survey, please choose the appropriate survey:
  1. Survey for teens
  2. Survey for parents
Randomized Trial to Assess Efficacy and Safety of Continuous Glucose Monitoring in Children 4-<8 Years With T1DM

Researchers at Northwestern University are seeking participants in a study called Prevent Risks by Early interVEntion at Nighttime in Type 1 diabetes for Kidney Disease (PREVENTKD).

The University of Florida is studying Neulasta in patients with new onset type 1 diabetes.

Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.

NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.

Behavioral specialists at the Joslin Diabetes Center and the University of Virginia seek help from parents who have children with diabetes from ages 6 to 11.

The University of California at Irvine has a new Exercise in Teens with Type 1 study.

Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.

The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.

-- Other Studies

 

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View the Online Quilt Gallery
View Stephen's Quilt
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Current Poll
  How many different basal rates do you use in your insulin pump for your main basal profile?  
    One  
    Two  
    Three  
    Four  
    Five  
    Six  
    Seven or more  
    I don't use a pump  


 
Poll Results
  How many different basal rates do you use in your insulin pump for your main basal profile?  
      One  
  6%     2  
      Two  
  3%     1  
      Three  
  22%     8  
      Four  
  22%     8  
      Five  
  14%     5  
      Six  
  19%     7  
      Seven or more  
  8%     3  
      I don't use a pump  
  6%     2  

Total votes: 36
-- View Results & More Polls

Featured Recipe
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Almond Buttons
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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com

Book cover
The Adventure of A Lifetime
Buy at The Diabetes Mall


Book Cover
NFL Veteran Jay Leeuwenberg Tackles Diabetes and Wins.
You can too!
Buy From The Publisher




Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 10-Mar-2010 13:50:06 Eastern Standard Time
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