Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes

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     September 17, 2014 Volume 20, Number 43 First Published in June 1995     
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Living With Diabetes
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Hi. My name is Divy, I learned, that I had diabetes in the November of 2006. I had to constantly go to the bathroom, and I was always hungry, so my grandpa, who had diabetes type 2, suggested that I test my blood sugar. It was in the 400s, so my parents took me to the doctor. The doctor told me I had diabetes, and that I had to test my blood sugar and take shots. In October, 2010, I started my pump. It was way better then shots. I didn't let my diabetes get to me, I stayed on top of it!

-- Visit Divy's page
-- More children with diabetes


CWD Conferences and Events
Anaheim2014   CWD Focus on Technology
October 24-26, 2014
Disneyland Hotel
Anaheim, California

Friends for Life: Orlando 2015   Friends for Life: Orlando 2015
July 6-12, 2015
Disney's Coronado Springs Resort
Lake Buena Vista, Florida

Reports from recent CWD conferences & events:
-- UK 2014, Orlando 2014, Cincinnati, Orlando 2013, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines


CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 751 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums

See our CWD UK Information Section with links to UK-specific information.


Diabetes Humor
When my 5-year-old daughter, Danielle, was diagnosed with diabetes we explained it to her and her 3-year-old brother, Ben, that her blood sugar could be high, low or in the middle and we were trying to keep her in the middle by giving her insulin shots. A few weeks later we took both of them to get their flu shots and Ben started screaming as loud as he could to anyone who would listen, "I am in the middle! I am in the middle!"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... everyone in the family says they are "low" instead of hungry!
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] The ABCs of Loving Yourself with Diabetes by Riva Greenberg. Published by SPI Management LLC, 2007. ISBN 0615170943. Paperback, 64 pages. $19.95.

Book Cover

Riva Greenberg was diagnosed with type 1 when she was 18. She's lived with diabetes for over 39 years. In The ABCs of Loving Yourself with Diabetes, Riva offers 26 delightful, emotional, wonderful pages of advice for her "fellow travelers." One sentence sums up well her perspective: "I hope in your journey with diabetes you will arrive at that place, if you haven't already, where diabetes is a 'comma' in your life, as in ... 'I love my life, and I have diabetes.'" We should all be so lucky. Highly recommended.

Order from Amazon.com Order The ABCs of Loving Yourself with Diabetes from Amazon.com

-- Other books for kids and teens with diabetes
-- Recently Featured Books


Ask the Diabetes Team
Diagnosed at 11 months, should my son have testing for the Kir6.2 mutation? What type of insulin should he be getting? Should we consider a pump or stick with injections? How can I continue to breastfeed him? (17 Sep 2014)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

A clinical study for a new needle-free glucagon for treatment of severe hypoglycemia in children is being conducted at several centers in the US. If you are interested in learning more about this study, please visit clinicaltrials.gov.

The TrialNet Pathway to Prevention Study offers screening at no charge to relatives of people with type 1 diabetes. The screening can identify risk for type 1 diabetes years before symptoms appear. Those at increased risk may be able to join research studies testing ways to prevent the disease. Others can continue to be monitored for the earliest signs of type 1 diabetes, which can prevent serious symptoms. To find a TrialNet location, request a test kit, or learn more, visit DiabetesTrialNet.org.

Parents of Children and Teenagers Between Ages 8-16 with Type 1 Diabetes for at least six months are needed to Participate in a Study on the relationship between any parental stress in caring for a child with Type 1 Diabetes.

-- Other Studies



 
Poll

Current Poll

 

What insulin regimen do you or your child use most often?

 
 

Insulin Pump Therapy

 
   

Pump - NovoLog

 
   

Pump - Apidra

 
   

Pump - Humalog

 
   

Pump - Regular

 
 

Lantus Basal-Bolus

 
   

Lantus & NovoLog

 
   

Lantus & Apidra

 
   

Lantus & Humalog

 
   

Lantus & Regular

 
 

Levemir Basal-Bolus

 
   

Levemir & NovoLog

 
   

Levemir & Apidra

 
   

Levemir & Humalog

 
   

Levemir & Regular

 
 

NPH-based Therapy

 
   

NPH & NovoLog, Humalog or Apidra

 
   

NPH & Regular

 
 

Other

 
   

Pre-mixed insulin

 
   

Other insulin regimen

 



Poll Results

 

What insulin regimen do you or your child use most often?

 
 

Insulin Pump Therapy

 
     

Pump - NovoLog

 
 

31%

 

 
     

Pump - Apidra

 
 

0%

     
     

Pump - Humalog

 
 

37%

 

 
     

Pump - Regular

 
 

0%

     
 

Lantus Basal-Bolus

 
     

Lantus & NovoLog

 
 

6%

 

 
     

Lantus & Apidra

 
 

3%

 

 
     

Lantus & Humalog

 
 

12%

 

 
     

Lantus & Regular

 
 

0%

     
 

Levemir Basal-Bolus

 
     

Levemir & NovoLog

 
 

6%

 

 
     

Levemir & Apidra

 
 

0%

     
     

Levemir & Humalog

 
 

3%

 

 
     

Levemir & Regular

 
 

0%

     
 

NPH-based Therapy

 
     

NPH & NovoLog, Humalog or Apidra

 
 

0%

     
     

NPH & Regular

 
 

0%

     
 

Other

 
     

Pre-mixed insulin

 
 

0%

     
     

Other insulin regimen

 
 

0%

     
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 17-Sep-2014 17:04:00 UTC
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