Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes
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     June 12, 2013 Volume 19, Number 23 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Living With Diabetes
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Hi, my name is Lauren. I am 14 years old and was diagnosed of type 1 diabetes at 14 months old. As a baby, my mom noticed I was losing weight really fast. She also noticed I was always cranky and hungry, which was weird since I was always a happy baby. Around September 1999, my mom walked in the room I was in and screamed. I was lying on the floor, my eyes rolled into my head, and my whole body shaking like crazy. She knew that I could be dying. My dad was at work with the only car, so my mom called him to leave work for me. He couldn't, so my mom held me, waiting for my dad for hours before we could go to the hospital.

Right when he pulled up, my mom raced out of the house with me in her arms and they raced off to the hospital. When we got there, I was rushed to the emergency room, where the doctors found out my blood sugar was over 1,000! They lowered my blood sugar and came out with me to tell my parents the news. They were shocked, as any parents would be.

-- Visit Lauren's page
-- More children with diabetes


Upcoming CWD Conferences and Events
Friends for Life: Orlando 2013   Friends for Life: Orlando 2013
July 9 - 14, 2013
Disney's Coronado Springs Resort
Lake Buena Vista, Florida

Reports from recent CWD conferences & events:
-- UK, Toronto, DC, UK, Sugar Land, Vancouver, Orlando, Philadelphia
-- More Reports & Upcoming CWD Conferences and Events


Headlines
We report on CWD's Friends for Life UK 2013 conference.

We report on CWD's Friends for Life Canada: Toronto 2013 conference.

We report on CWD's Focus on Technology: DC 2013 conference.

CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

Reversal of type 1 diabetes via islet beta cell regeneration following immune modulation by cord blood-derived multipotent stem cells. Free full text available in PDF format. See also Novel Stem Cell Treatment May Hold Promise for Type 1 Diabetes and Type 1 Diabetes Reversed With Stem Cells From Cord Blood.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Author Dan Hurley answers, What Do We Really Know About Why Type 1 Is Rising?

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,400 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 741 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


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-- Sign up for our weekly What's New e-mail newsletter
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-- Share recipes
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--  Mailing lists for readers from:
Australia New Zealand UK Scotland Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.


Diabetes Humor
My ten year old frequently gets nosebleeds during the winter season. She got one while driving home from the doctor's office last week. Before grabbing a Kleenex, she grabbed a test strip. She saw me watching from the rearview mirror as she placed the test strip in her nose. Her reply to my look of confusion: "Since my nose is freely giving up the blood, I thought I could save myself a finger prick!"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your 10-year-old daughter looks at a beautiful, pinkish-purple sunset and declares, "That is so pretty! It looks like an infected site!"
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Cheating Destiny by James S. Hirsch. Published by Houghton Mifflin, 2006. Hardcover, 307 pages. $25.00 ISBN 0-618-51461-9. Paperback (2007) ISBN 061891899X, $14.95.

Book Cover   "My son is thirsty." So begins Cheating Destiny, Jim Hirsch's amazing book about living with type 1 diabetes, being the parent of a child with diabetes, the diabetes industry today, the cost to the US of type 1 and type 2 diabetes, islet cell transplantation, stem cell research, the maddening nature of US healthcare, and so much more. Hirsch is a captivating writer, and as the parent of a child with diabetes, I feel a special kinship to him -- he too has a child with diabetes. He has also lived most of his life with type 1 diabetes. His book is a must read for everyone whose life includes diabetes. You'll learn more than you could have imagined. And if you, like Jim and I, have a child with diabetes, be prepared for a deeply emotional experience. Highly Recommended.
-- JSH      
Order from Amazon.com Order Cheating Destiny in hardcover from Amazon.com
Order Cheating Destiny in softcover from Amazon.com
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
My teenaged daughter's A1c is its highest. She often forgets to bolus and grazes a lot. Do all teens rebel against diabetes? How can I help her understand the importance of bolusing and a proper diet? (18 Jun 2013)
-- Answers to over 19,290 questions
-- What's your question?


From the Diabetes Dictionary
C-Peptide
A substance that the pancreas releases into the bloodstream in equal amounts to insulin. A test of C-peptide levels will show how much insulin the body is making. See also Proinsulin.
-- More definitions


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

Women between 12 and 20 who use an insulin pump are needed for a study to understand the experiences of female adolescents with type 1 diabetes being treated with an insulin pump and assess any commonalities between them.

Kids between the ages of 12 and 17 with type 1 diabetes are needed for studies on the artificial pancreas project.

Researchers from Palo Alto University are conducting a study to learn about the impact of various forms of support on quality of life for parents and siblings of children and adolescents with diabetes as well as the psychosocial effect felt by the siblings.

-- Other Studies



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Current Poll
  Which of the following statements best describes you?  
    I am the parent of a child with type 1 diabetes  
    I am the parent of a child with type 2 diabetes  
    I have diabetes and I have a child with type 1 diabetes  
    I have diabetes and I have a child with type 2 diabetes  
    I am an adult with type 1 diabetes  
    I am an adult with type 2 diabetes  
    I am a teenager (13-19) with type 1 diabetes  
    I am a teenager (13-19) with type 2 diabetes  
    I am under 13 and I have type 1 diabetes  
    I am under 13 and I have type 2 diabetes  
    I am a healthcare professional and I care for people with diabetes  
    Other  


-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 12-Jun-2013 17:02:47 Eastern Daylight Time
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