Children with Diabetes
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Children with Diabetes

The online community for kids, families and adults with diabetes

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        April 26, 2017 Volume 23, Number 17 First Published in June 1995     
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Getting Around
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-- Kids with Diabetes
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The IDF Life for a Child Campaign

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Living With Diabetes
Photo  

Hi. My name is Julia. I was diagnosed with type 1 when I was just turning four. Now I'm seven years old. I was drinking a lot and had to go to the bathroom a lot. My mom thought I had a bladder infection. I went to the doctor's and they said I had diabetes. It was the week before Halloween! I was in the hospital for about a week.

I have a dog and two brothers. I like to play with my friends and play soccer. I don't let diabetes stop me from doing what I love. God helps me through the tough times. My mentors are Brenna and Grace. They have type 1 diabetes, too. I take piano. I love it!

Diabetes can be tough but don't let it stop you from doing what you love.

-- Visit Julia's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Anaheim 2017   Friends for Life Anaheim 2017
May 5-7, 2017
Disneyland® Hotel
Anaheim, California
DSF Family Scholarships

Friends for Life Orlando 2017   Friends for Life Orlando 2017
July 4 - 9, 2017
Disney's Coronado Springs Resort
Orlando, Florida
DSF Family and Individual Scholarships

Reports from recent CWD conferences & events:

-- Anaheim, Orlando, Falls Church, UK, Canada
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 756 panels. The latest quilt is from Katrina.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
My granddaughter Paige, who is three, was recently in the emergency room because of a low blood sugar. The nurse was checking her blood sugars to make sure they were coming up. When her blood sugar got to 90, the nurse told the doctor, "She's 90." Paige hollered, "I'm not 90, I'm only 3."
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your daughter wakes you up in the middle of the night and says, "Mommy, I'm beeping."
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Help With The Hard Stuff by Lauren W. Tolle, PhD, and William T. O'Donohue, PhD. Pubished by Health Press NA Inc., Albuquerque, NM, 2010. Paperback, 210 pages. $19.95. ISBN 978-0-929173-55-9.

Book Cover  

Help With The Hard Stuff is really about its subtitle: Workbooks for Teens With Type 1 Diabetes and their Parents. Unlike many of our recommended books, Help With The Hard Stuff demands involvement of the parents and the teen. The book is divided into two main sections -- the first for parents, the second for teens. Chapters typically begin with a page of true/false questions that set the stage for a discussion on a topic that is often a source of contention -- for example, glucose monitoring. After exploring strategies for success, the authors present an exercise that helps both parents and teens to make progress. Help With The Hard Stuff can help teens and their families who are struggling to understand better why diabetes care is so important and to appreciate the perspective of the other side -- a critical step toward becoming a team. Highly Recommended.

Order from Amazon.com Order Help With The Hard Stuff from Amazon.com
-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
Should we be dosing for the antibiotic our daughter is taking for a sinus infection? Her blood sugar has been elevated despite adjusting her insulin to carbohydrate ratio. (26 Mar 2017)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- Teens with Type 1 Diabetes and their Parents are needed for a shared decision making study about the use of insulin pumps and continuous glucose monitoring systems.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Parents, how soon after your child's diagnosis did you begin going out again with just your spouse?

 
   

Within one month

 
   

Within three months

 
   

Within six months

 
   

Within a year

 
   

More than a year

 
   

We haven't gone out alone and don't plan to

 
   

We want to go out alone but haven't found the right babysitter yet

 
   

We didn't go out when our child was younger, but now that they are older and we don't need a sitter, we do go out

 
   

Parents go out alone?

 



Poll Results

 

Parents, how soon after your child's diagnosis did you begin going out again with just your spouse?

 
     

Within one month

 
 

9%

 

 
     

Within three months

 
 

12%

 

 
     

Within six months

 
 

6%

 

 
     

Within a year

 
 

12%

 

 
     

More than a year

 
 

34%

 

 
     

We haven't gone out alone and don't plan to

 
 

6%

 

 
     

We want to go out alone but haven't found the right babysitter yet

 
 

3%

 

 
     

We didn't go out when our child was younger, but now that they are older and we don't need a sitter, we do go out

 
 

12%

 

 
     

Parents go out alone?

 
 

3%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Tuesday, 25-Apr-2017 18:01:30 UTC
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