Children with Diabetes
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Children with Diabetes
The online community for kids, families and adults with diabetes

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     December 17, 2014 Volume 20, Number 51 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
What's New
About CWD
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-- Kids with Diabetes
Parents
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Diabetes Scholars Foundation

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The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de




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Living With Diabetes
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I am Lucy I am 9 years old from England and I found out I have diabetes a few weeks ago. My parents took me for a blood test as I wasn't putting on any weight and I was getting up in the night to go a toilet a lot. I am coping ok, I had a few blood tests in the hospital when I first found out and am due for another one in a couple of months but am scared to have it done (yikes).

I have an allergy to kittens and cats but I still care for them, dogs are my favourite animals, I am hoping to get a dog one day.

My school has been very supportive I was scared to go back but found I had nothing to worry about.

-- Visit Lucy's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life: Orlando 2015   Friends for Life: Orlando 2015
July 6-12, 2015
Disney's Coronado Springs Resort
Lake Buena Vista, Florida
Family and Individual Scholarships

Friends for Life Canada 2015   Friends for Life Canada 2015
October 23-25, 2015
Marriott Gateway on the Falls
Niagara Falls, Ontario, Canada

Friends for Life UK: Old Windsor 2015   Friends for Life UK: Old Windsor 2015
30 October - 1 November, 2015
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England

Reports from recent CWD conferences & events:
-- Anaheim, UK 2014, Orlando 2014, Cincinnati, Orlando 2013, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines


CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 751 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums

See our CWD UK Information Section with links to UK-specific information.


Diabetes Humor
We just put an in-ground pool in our backyard this summer. One day, I was testing the pool for chlorine and ph balance. My 9 year old daughter saw me put the testing strip in and compare it to the colours on the bottle. She then asked, "Does the pool have ketones?"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your laundry smells good because you accidentally washed the glucose tabs again.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] The Smart Woman's Guide to Diabetes by Amy Stockwell Mercer. Published by Demos Health, 2012. Paperback, 236 pages. $16.95 ISBN 1936303132.

Book Cover There's nothing quite like an authoritative author for a topic like diabetes. Amy Stockwell Mercer sums up her credentials in her introduction: "It's been 25 years since I was diagnosed, and I am now the mother to three healthy boys." Diagnosed at age 14, about six months after her younger sister, Stockwell Mercer enlists the wisdom and experiences of many other women living with diabetes to offer guidance and encouragement for women with diabetes who might feel alone or isolated or just not understood. You'll learn from women diagnosed as kids and diagnosed as adults who have found ways to live well with diabetes. The Smart Woman's Guide to Diabetes isn't a medical guide to caring for diabetes. It's more of an emotional guide. One chapter heading sums it up best: Building the Confidence to Live Well. Highly Recommended for every woman with diabetes.

Order from Amazon.com Order The Smart Woman's Guide to Diabetes from Amazon.com

-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
After a bout with strep a few weeks ago, my teen daughter has been having recurrent lows, despite decreasing her insulin. Various tests have been normal. What else could be causing the lows? (11 Dec 2014)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

A clinical study for a new needle-free glucagon for treatment of severe hypoglycemia in children is being conducted at several centers in the US. If you are interested in learning more about this study, please visit clinicaltrials.gov.

The TrialNet Pathway to Prevention Study offers screening at no charge to relatives of people with type 1 diabetes. The screening can identify risk for type 1 diabetes years before symptoms appear. Those at increased risk may be able to join research studies testing ways to prevent the disease. Others can continue to be monitored for the earliest signs of type 1 diabetes, which can prevent serious symptoms. To find a TrialNet location, request a test kit, or learn more, visit DiabetesTrialNet.org.

Parents of Children and Teenagers Between Ages 8-16 with Type 1 Diabetes for at least six months are needed to Participate in a Study on the relationship between any parental stress in caring for a child with Type 1 Diabetes.

-- Other Studies



 
Poll

Current Poll

 

How concerned are you about your child's ability to pay for their diabetes care when they are an adult?

 
   

I'm extremely concerned

 
   

I'm very concerned

 
   

I'm somewhat concerned

 
   

I'm not concerned

 
   

I haven't given it much thought

 



Poll Results

 

How concerned are you about your child's ability to pay for their diabetes care when they are an adult?

 
     

I'm extremely concerned

 
 

78%

 

 
     

I'm very concerned

 
 

12%

 

 
     

I'm somewhat concerned

 
 

7%

 

 
     

I'm not concerned

 
 

2%

 

 
     

I haven't given it much thought

 
 

0%

     
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 17-Dec-2014 14:29:27 UTC
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