Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes

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     August 27, 2014 Volume 20, Number 40 First Published in June 1995     
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Getting Around
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Living With Diabetes
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My name is Marissa and I have had diabetes for 25 years. I was diagnosed when I was 2, got a pump when I was 11, got a sensor when I was 20, and they both make my life much easier!

I work as a diabetes nurse educator, am married to Adam, and have a wonderful son. At CWD conferences, I am one of the teen group leaders and Adam is one of the tween group leaders.

I also love to travel, practice my Spanish, salsa dance, and play with our dog, Baxter.

-- Visit Marissa's page
-- More children with diabetes


CWD Conferences and Events
Anaheim2014   CWD Focus on Technology
October 24-26, 2014
Disneyland Hotel
Anaheim, California

Reports from recent CWD conferences & events:
-- UK 2014, Orlando 2014, Cincinnati, Orlando 2013, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines


CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 751 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums

See our CWD UK Information Section with links to UK-specific information.


Diabetes Humor
One evening during the dinner rush, I asked my diabetic 4-year-old Emma to get the twins some Cheerios so they would stop crying. The crying didn't stop right away, and when I looked over at the twins in their high chairs, they were really frustrated and mad. Emma was sitting just out of their reach, meticulously measuring out their Cheerios into bowls with a tablespoon. She wanted to make sure they "weren't eating too many carbs, Mommy!"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your non-diabetic children run around with used infusion sets hanging out of the waist of their pants telling their diabetic sister that they just changed their sites.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] A First Book for Understanding Diabetes (companion to the 13th Edition of "Understanding Diabetes") by H. Peter Chase, MD and David M. Maahs, MD, PhD. Published by the Children's Diabetes Foundation at Denver, 2014. ISBN 978-098326504-7. $13.

Book Cover If you're new to diabetes and are not quite ready for the famous Understanding Diabetes book, then A First Book for Understanding Diabetes is the perfect book for you. Also written by Dr. Peter Chase, along with Dr. David Maahs, A First Book for Understanding Diabetes is a synopsis of the larger book and contains everything you need to help you through the challenges of being newly diagnosed and up to speed on your own diabetes care. The 2014 edition includes material on insulin pumps, continuous glucose monitors, the latest researching including the artificial pancreas, diabetes in school, and tips for grandparents and sitters. The text is exceptionally easy to understand, the diagrams and drawings help explain things, and at $13 it's so inexpensive that everyone should have a copy.
Children's Diabetes Foundation at Denver
4380 South Syracuse Street
Suite 430
Denver, CO 80237
303-863-1200
303-863-1122 fax

-- Other books for kids and teens with diabetes
-- Recently Featured Books


Ask the Diabetes Team
At times, my son feels lethargic and vomits. His blood sugar goes up some if he is able to eat. When it drops, he also gets sick. Does he have diabetic tendencies? Should I have him seen by an endocrinologist? (27 Aug 2014)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

A clinical study for a new needle-free glucagon for treatment of severe hypoglycemia in children is being conducted at several centers in the US. If you are interested in learning more about this study, please visit clinicaltrials.gov.

The TrialNet Pathway to Prevention Study offers screening at no charge to relatives of people with type 1 diabetes. The screening can identify risk for type 1 diabetes years before symptoms appear. Those at increased risk may be able to join research studies testing ways to prevent the disease. Others can continue to be monitored for the earliest signs of type 1 diabetes, which can prevent serious symptoms. To find a TrialNet location, request a test kit, or learn more, visit DiabetesTrialNet.org.

Parents of Children and Teenagers Between Ages 8-16 with Type 1 Diabetes for at least six months are needed to Participate in a Study on the relationship between any parental stress in caring for a child with Type 1 Diabetes.

-- Other Studies



 
Poll

Current Poll

 

Does your child have a 504 plan for diabetes care at school?

 
   

Yes, we've done a 504 every year

 
   

Yes, this is the first year we've done one

 
   

Yes, but we haven't done one every year

 
   

No, not this year, but we have in the past

 
   

No, we've never done a 504

 
   

My child is in college or out of school

 
   

I don't know what a 504 is

 
   

Other

 



Poll Results

 

Does your child have a 504 plan for diabetes care at school?

 
     

Yes, we've done a 504 every year

 
 

52%

 

 
     

Yes, this is the first year we've done one

 
 

5%

 

 
     

Yes, but we haven't done one every year

 
 

0%

     
     

No, not this year, but we have in the past

 
 

5%

 

 
     

No, we've never done a 504

 
 

11%

 

 
     

My child is in college or out of school

 
 

11%

 

 
     

I don't know what a 504 is

 
 

0%

     
     

Other

 
 

11%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 27-Aug-2014 16:06:03 UTC
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