Children with Diabetes
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The online community for kids, families and adults with diabetes

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        July 27, 2016 Volume 22, Number 30 First Published in June 1995     
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Getting Around
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People
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-- Kids with Diabetes
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Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
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Living With Diabetes
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My name is Austin. I am five years old and have diabetes. I was just diagnosed on December 3, 2010 (which was also my birthday!) My mom had a harder time with me being in the hospital than I did because I just played with toys while she cried! I am very brave (that's what my mom says). I test my own blood and don't cry. I don't know what the numbers mean but I tell my mom what I am, and then ask if I am perfect. Of course, she always says yes! I don't love the shots, but my mom and dad are going to a pump class so I guess I will be getting one of those soon. I am a busy boy and love to play with toys, ride my bike, and play the WII. I am going to play T-ball this year. I can't wait.

My name is Lisa, Austin's mom. What a long two months it has been -- but we have learned so much and, most importantly, how to take care of our son. There is a lot to learn, and I am sure more and more each day, but we are getting more comfortable as time goes on. It felt like taking a new baby home when we left the hospital -- a lot of fear, anxiety, sadness -- but it is what it is, and I am a firm believer that things happen for a reason, and that Austin is a very special boy to be given this challenge. We are just hoping for a cure like everyone else, but, in the meantime, we are so glad that it can be managed. All I can say is this takes organized to a whole new level!

-- Visit Austin's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Falls Church 2016   Friends for Life Anaheim 2016
September 16-18, 2016
Disneyland Hotel
Anaheim, California

Reports from recent CWD conferences & events:
-- Falls Church, UK, Canada, Anaheim, Orlando
-- More Reports & Upcoming CWD Conferences and Events


Headlines
#DiabetesAccessMatters: an open letter to Mr. Stephen Hemsley, Chief Executive Officer of UnitedHealth Group.

CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 756 panels. The latest quilt is from Katrina.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
On top of the cookies in the cookie jar is a paper with 6c. (6 Carbohydrates) each written on it. Upon returning from getting a cookie, my non-diabetic nephew says, "I don't have 6 cents to pay for each one of these cookies." My 5 year old diabetic son said, "It's carbs, not cents!"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your kid has one extra dance recital ticket and of all the people in the world to invite, she invites the school nurse.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] The Ultimate Guide to Accurate Carb Counting by Gary Scheiner, MS, CDE. Published by Marlowe & Company, 2006. ISBN 1569242747. 240 pages. Softcover. $9.95.

Book Cover When it comes to understanding carbohydrate counting, Gary Scheiner's The Ultimate Guide To Accurate Carb Counting is a great resource. In addition to easy to understand explanations of how to count sugar, sugar alcohols and fiber, Mr. Scheiner provides extensive tables of Exchange Lists, Carbohydrate Factors, Glycemic Index Values, and Carbohydrate and Fiber Listings for Popular Foods. You'll find pages of simple exercises to help you learn how to carb count, including many photos to help you make sense of portion sizes. And for $9.95, it's a bargain. Highly Recommended.

Amazon Books Order The Ultimate Guide to Accurate Carb Counting from Amazon.com
-- Other books for kids and teens with diabetes
-- Recently Featured Books


Ask the Diabetes Team
My daughter had elevated blood sugars when at the ER three times for kidney infections, but testing was negative. Could she be in the early stages of type 1? (18 Jul 2016)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- Teens with Type 1 Diabetes and their Parents are needed for a shared decision making study about the use of insulin pumps and continuous glucose monitoring systems.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Do you or your child reuse lancets, syringes/pen needles, pump supplies, or continuous sensors?

 
 

Please vote in each section. You'll need to submit multiple votes.

 
 

Lancets

 
   

I reuse lancets

 
   

I do not reuse lancets

 
 

Syringes or pen needles

 
   

I reuse syringes or pen needles

 
   

I do not reuse syringes or pen needles

 
 

Pump supplies

 
   

I reuse pump supplies

 
   

I do not reuse pump supplies

 
   

I don't use an insulin pump

 
 

Continuous Sensors (if you use one)

 
   

I reuse sensors (beyond recommended time limit)

 
   

I do not reuse sensors (beyond recommended time limit)

 



Poll Results

 

Do you or your child reuse lancets, syringes/pen needles, pump supplies, or continuous sensors?

 
 

Please vote in each section. You'll need to submit multiple votes.

 
 

Lancets

 
     

I reuse lancets

 
 

17%

 

 
     

I do not reuse lancets

 
 

12%

 

 
 

Syringes or pen needles

 
     

I reuse syringes or pen needles

 
 

5%

 

 
     

I do not reuse syringes or pen needles

 
 

10%

 

 
 

Pump supplies

 
     

I reuse pump supplies

 
 

0%

     
     

I do not reuse pump supplies

 
 

10%

 

 
     

I don't use an insulin pump

 
 

10%

 

 
 

Continuous Sensors (if you use one)

 
     

I reuse sensors (beyond recommended time limit)

 
 

17%

 

 
     

I do not reuse sensors (beyond recommended time limit)

 
 

15%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 27-Jul-2016 17:59:34 UTC
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