Children with Diabetes
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Children with Diabetes

The online community for kids, families and adults with diabetes

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View the Online Quilt Gallery

        October 18, 2017 Volume 23, Number 42 First Published in June 1995     
Donate Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
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Insulin for Life USA
The IDF Life for a Child Campaign

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Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
Photo  

Hey, I'm Sabrina and I am currently 12 going on 13. I live in Australia. Anyway, when I first got diabetes I was in America, more detailed, New York. My family and I were traveling around USA!

My parents kept saying they were going to get me checked by the doctor, my mum had had gestational diabetes with both my sister and I, and they were noticing that I was drinking tons of water and going to the toilet every 5 minutes(it felt like) or so.

So in NY one night, the second night I was there, I had terrible stomach cramps. In the morning my mum took me to the pharmacy but they had no idea what was wrong with me, so we went to the doctors and they told us they could only take kids 16 and over. So we went to the hospital and I was lying on the bed with a drip for hours and hours. When they told me it was true I had diabetes, everyone was devastated. They kind of expected it but it was still a very traumatic day. At the time my mum was with me and when she called my dad and my sister they came straight away.

-- Visit Sabrina's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life UK 2017   Friends for Life UK 2017
October 27-29, 2017
Beaumont House
Windsor, United Kingdom

Friends for Life Orlando 2018   Friends for Life Orlando 2018
July 10-15, 2018
Disney's Coronado Springs Resort
Orlando, Florida

Reports from recent CWD conferences & events:

-- Orlando 2017, Anaheim 2017, Anaheim 2016, Orlando 2016, Falls Church 2016,
-- More Reports & Upcoming CWD Conferences and Events


Headlines
Newsflash
Animas Corporation intends to exit the insulin pump business and discontinue the manufacturing and sale of Animas® Vibe® and OneTouch Ping® insulin pumps and direct its customers to Medtronic. In response, Insulet and Tandem have set up programs to help Animas pump users.

CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 756 panels. The latest quilt is from Katrina.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
My six-year-old son who was diagnosed at 23 months was asking me about DKA. I explained to him that DKA happens when you don't get enough insulin. I also told him that the only time he'd ever been in DKA was when he was first diagnosed because he wasn't getting any insulin at all since we didn't know he had diabetes. He looked at me sternly and said, "Mom! You should have looked at my i.d. bracelet!"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... you purchase a new baby monitor for your D 8-year-old's room.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] My Sister Has Diabetes and How That Makes Me Feel by Grace Rooney, Illustrated by Michele Pensa. CreateSpace Independent Publishing Platform, 2015. ISBN 9781515344520. $7.99.

Book Cover  

In the 26 years that our family has been involved in the type 1 diabetes community, I have never encountered a resource for siblings with the depth of insight I found in My Sister Has Diabetes and How That Makes Me Feel. With just 32 pages -- 16 illustrations and 16 pages of powerful words -- Grace Rooney shares the incredible range of feelings all siblings experience in a way that is both empowering and liberating. Parents should add this book to their diabetes library. Health care professionals should not only read this book, they should give a copy to every family they serve to help validate the complex emotions siblings experience and help them realize that, like their brothers and sisters with type 1 diabetes, they are not alone. Highly recommended.

-- Jeff Hitchcock

Order from Amazon.com Order My Sister Has Diabetes and How That Makes Me Feel from Amazon.com
-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
Both my dad and I have type 1. Though asymptomatic, my toddler daughter seems to have blood sugar spikes with certain foods, such as grapes. She is overweight. Is her weight causing the spikes? Should I be concerned that she is showing signs of type 1? What should I do? (24 Aug 2017)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

What are your kids' plans for Halloween?

 
   

They collect candy and eat it, integrating the carbs into their meal plan

 
   

They collect candy and give it away

 
   

They collect candy and we pay or trade other treats for it

 
   

We're too stressed to collect candy this year

 
   

Our kids are older and don't collect candy

 
   

We don't participate in Halloween for other reasons

 
   

Other or unsure at this time

 



Poll Results

 

What are your kids' plans for Halloween?

 
     

They collect candy and eat it, integrating the carbs into their meal plan

 
 

73%

 

 
     

They collect candy and give it away

 
 

0%

     
     

They collect candy and we pay or trade other treats for it

 
 

0%

     
     

We're too stressed to collect candy this year

 
 

0%

     
     

Our kids are older and don't collect candy

 
 

0%

     
     

We don't participate in Halloween for other reasons

 
 

20%

 

 
     

Other or unsure at this time

 
 

6%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Thursday, 19-Oct-2017 11:48:05 UTC
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