Children with Diabetes
Now accepting donations.
Education. Support. Community.

Children with Diabetes
The online community for kids, families and adults with diabetes

Become part of the CWD Quilt for Life
View the Online Quilt Gallery
View Isabella's Quilt
View the Online Quilt Gallery

     November 19, 2014 Volume 20, Number 47 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

advertisement
Getting Around
What's New
About CWD
Privacy Policy
Search CWD
People
Family Support Network
Adults with Diabetes
Care Photos
Chat Rooms
CWD Conferences
-- Kids with Diabetes
Parents
Parent Humor
Scholarships and Financial Aid
Grandparents
Humorous Tidbits
CWD Forums
Poetry and Art
Videos
Polls
Quilt for Life
Surveys
Rufus
Blogs
Clinic
Ask the Diabetes Team
Alternate Site Testing
Alternative Treatments
-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
Diabetes at School
504 Plans
Diabetes Camps
Diabetes Dictionary
Insulin Pumps
Food and Nutrition
Presentations
Products
Sports
Studies
Warning Signs
Sources
News and Information
Diabetes Advocacy
Links to Other Web Sites
Press Releases
Blogs about Diabetes
Regional Information
Diabetes Events
Services
Support Groups
Feedback
About CWD
Advertise
Awards
Contribute Your Experiences
Disclaimer
Letters to the Editor
Logos and Linking
-- Share our Brochures
History of CWD

Making a Difference

Conference and College Scholarships for
Kids with Diabetes
Diabetes Scholars Foundation

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de




Diabetes requires professional care. Be sure to read our disclaimer.

Your privacy is important to us. Read our privacy statement.

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information:
verify here.



 

advertisement


Living With Diabetes
Photo  

My name is Charlie and I am three years old and live in Houston, Texas. I was diagnosed with diabetes when I was ten months old. I felt kind of bad one day and went to bed early. When I got up I felt really, really bad and had trouble breathing. My mommy took me to Texas Children’s Hospital where they gave me insulin and made me feel better.

When I turned one, I got my insulin pump. It is an Animas Ping and you can see it in the picture of me in the wedding. It sits in a black belt that is tied around my waist. My mommy and daddy and all four of my grandparents know how to work the pump to make it give me insulin. When I was two, I got my continuous glucose meter. His name is "Dex." Dex tells me what my blood glucose is and whether it is dropping or getting higher. It even tells me how fast it is dropping.

-- Visit Charlie's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life: Orlando 2015   Friends for Life: Orlando 2015
July 6-12, 2015
Disney's Coronado Springs Resort
Lake Buena Vista, Florida

Friends for Life UK: Old Windsor 2015   Friends for Life UK: Old Windsor 2015
30 October - 1 November, 2015
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England

Reports from recent CWD conferences & events:
-- Anaheim, UK 2014, Orlando 2014, Cincinnati, Orlando 2013, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines


CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 751 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums

See our CWD UK Information Section with links to UK-specific information.


Diabetes Humor
My son was chosen to be line leader for his class at school. Prior to lunch he always goes down to the nurses office to have his blood sugar checked. When it was time to line up and go to lunch, my son went to the nurses office as usual, only on this day the whole class ended up there too. They all got a good laugh over it.
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... you are watching a football game and report that your team is behind by 4 units and nobody thinks a thing of it.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Breakthrough: Elizabeth Hughes, the Discovery of Insulin, and the Making of a Medical Miracle by Thea Cooper and Arthur Ainsberg. Published by St. Martin's Press, 2010. ISBN 978-0-312-64870-1. Hardcover, 306 pages. US$24.99.

Book Cover  

As the parent of a child (now adult) with type 1 diabetes, there is no greater story to be told than that of the discovery of insulin. Breakthrough offers a new, richly detailed and deeply personal perspective of one young girl -- Elizabeth Hughes -- and her family's struggle to keep her alive on a starvation diet so that she might one day enjoy a miracle -- the discovery of insulin. I cannot help but feel our family in place of the Hughes family, sharing their emotions as they watch their daughter waste away, learn about the "Miracle in Toronto," and do whatever it takes to get Elizbeth insulin so that she might be saved. Breakthrough brings a new emotional depth to what for many of us is truly the greatest story ever told. For pure historians, the authors have taken some liberties with some specifics in the interest of the story, but this is no work of fiction. Breakthrough is a must have addition to the library of everyone living with type 1 diabetes. Highly Recommended.

--JSH

Order from Amazon.com Order Breakthrough: Elizabeth Hughes, the Discovery of Insulin, and the Making of a Medical Miracle from Amazon.com
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
Diagnosed with type 1 in July, our teen daughter is experiencing recurring headaches. We moved recently and she changed schools, but we do not think she is that stressed. What are we missing? (12 Nov 2014)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

A clinical study for a new needle-free glucagon for treatment of severe hypoglycemia in children is being conducted at several centers in the US. If you are interested in learning more about this study, please visit clinicaltrials.gov.

The TrialNet Pathway to Prevention Study offers screening at no charge to relatives of people with type 1 diabetes. The screening can identify risk for type 1 diabetes years before symptoms appear. Those at increased risk may be able to join research studies testing ways to prevent the disease. Others can continue to be monitored for the earliest signs of type 1 diabetes, which can prevent serious symptoms. To find a TrialNet location, request a test kit, or learn more, visit DiabetesTrialNet.org.

Parents of Children and Teenagers Between Ages 8-16 with Type 1 Diabetes for at least six months are needed to Participate in a Study on the relationship between any parental stress in caring for a child with Type 1 Diabetes.

-- Other Studies



 
Poll

Current Poll

 

What do you use to record blood glucose values for yourself or your child?

 
   

A paper log, recording most or all readings

 
   

A paper log, recording some readings

 
   

A paper log, recording readings only before a clinic visit

 
   

The meter's memory, which is downloaded at the clinic

 
   

The meter's memory, which I download to my computer

 
   

The meter's memory, which I upload to a web-based diabetes management program

 
   

A computer program, but I have to type in the readings

 
   

An app on a mobile device (iPhone, etc.)

 
   

I don't record blood glucose values

 
   

Other

 



Poll Results

 

What do you use to record blood glucose values for yourself or your child?

 
     

A paper log, recording most or all readings

 
 

26%

 

 
     

A paper log, recording some readings

 
 

0%

     
     

A paper log, recording readings only before a clinic visit

 
 

0%

     
     

The meter's memory, which is downloaded at the clinic

 
 

26%

 

 
     

The meter's memory, which I download to my computer

 
 

18%

 

 
     

The meter's memory, which I upload to a web-based diabetes management program

 
 

18%

 

 
     

A computer program, but I have to type in the readings

 
 

2%

 

 
     

An app on a mobile device (iPhone, etc.)

 
 

2%

 

 
     

I don't record blood glucose values

 
 

2%

 

 
     

Other

 
 

2%

 

 
-- View Results & More Polls

advertisement

Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
Spacer

Last Updated: Wednesday, 19-Nov-2014 17:50:19 UTC
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.

This site is published by T-1 Today, Inc. (d/b/a Children with Diabetes), a 501c3 not-for-profit organization, which is responsible for its contents.

By using this site, you agree to our Terms of Use, Legal Notice, and Privacy Policy.
© Children with Diabetes, Inc. 1995-2014. Comments and Feedback.