Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes
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     November 18, 2009 Volume 15, Number 46 First Published in June 1995     
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Living With Diabetes
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My name is Sailor and I am almost 11 years old. I was diagnosed two months before my third birthday, on December 10, 2001. At first is was hard for my family to get used to the changes in our lives – because diabetes affects everyone in the family. I used to have to have 6 shots a day but now I am on the Animas 2020 pump and that has helped me to manage my diabetes better. I have tried not to let diabetes be who I am. Once, when I was little, I heard some adults call me a diabetic. I immediately corrected them by saying "I'm not a diabetic, I'm a little girl."

I live in southern California. Some of the things I like to do are play with my friends, play the piano, sing and dance. I also love to do any kind of crafts. I have an older sister, Sierra, who is 16.

My whole family, including my Aunt Libby, is involved in Children with Diabetes. We have been going to CWD conferences since 2002. What I like best about the conferences is getting to see my friends that I've made there and making new ones.

-- Visit Sailor's page
-- More children with diabetes


Upcoming CWD Conferences and Events
Seattle 2009   CWD Focus on Technology
November 20-22, 2009
Renaissance Seattle
Seattle, Washington

Marco Island 2010   CWD Family Support Weekend
December 31, 2009 - January 3, 2010
Marriott Marco Island Resort
Marco Island, Florida

Houston 2010   CWD Focus on Technology
February 19-21, 2010
JW Marriott
Houston, Texas
Family Scholarships from
Diabetes Scholars Foundation

Houston 2010   CWD Focus on Technology
April 16-18, 2010
Renaissance Charlotte Suites Hotel
Charlotte, North Carolina
Family Scholarships from
Diabetes Scholars Foundation

Friends for Life: Orlando 2010   Friends for Life: Orlando 2010
June 29 – July 4, 2010
Orlando World Center Marriott
Orlando, Florida

Friends for Life Canada: Vancouver 2010   Friends for Life Canada: Vancouver 2010
August 27-29, 2010
Renaissance Vancouver Hotel Harbourside
Vancouver, BC, Canada

Reports from recent CWD conferences & events:
-- La Jolla, UK, Orlando, Chicago, Toronto, Marco Island, Bethesda, Quilt D.C. 2008
-- More Reports & Upcoming CWD Conferences and Events


Headlines
With the help of diaTribe, we have an explanation of the various stages of clinical trials, beginning with Part I - Introduction and the Beginning of the Process.

Confirmation of Hypoglycemia in the 'Dead-in-Bed' Syndrome as Captured by a Retrospective Continuous Glucose Monitoring System.

Modern-Day Clinical Course of Type 1 Diabetes Mellitus After 30 Years' Duration. See also Clinical Course of Type 1 Diabetes Called Much Improved.



Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.

Prediction of Severe Hypoglycemia.

Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.



The Family Support Network now includes over 4,400 families from 50 states and 84 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 711 panels.

-- Other news and information


Clinic
Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn about the work of Dr. Denise Faustman.


Chats
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Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.

Parents report that over 3,000 schools across the US support in-classroom blood glucose monitoring. Does your child's school? Check the Schools database and add information about your child's school.
-- Other information about diabetes and school


Diabetes Humor
Our daughter Lauren has always been very open about her diabetes and in school, all her schoolmates are well informed about diabetes and what it means. But sometimes, the other students want in on the "diabetes action." Recently, a girl in Lauren's class raised her hand and asked to go to the nurse. When the teacher asked what was wrong, the little girl explained, "My pancreas is bothering me!"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... you don't bat an eye when your teen says, "I have alcohol in my room."
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] The Discovery of Insulin by Michael Bliss. Published by University of Chicago Press, 1982. ISBN 0-226-05898-0. US$18.00.

Book cover   Telling the story of the discovery of insulin and its first use in human patients, The Discovery of Insulin is a worthy addition to anyone's library. It's especially poignant for parents of children with diabetes. The detail is extraordinary, with notes from Dr. Banting and others involved in the discovery and first use of insulin. Be prepared for a level of emotional involvement unlike any you have experienced before with a book. Note that the photographs of children taken prior to the availability of insulin may be difficult for younger kids to view.

Order from Amazon.com Order The Discovery of Insulin from Amazon.com

-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
I have type 2, am very distressed and discouraged. I am a burden to my parents. Here in India, I can't get married when I become of age because of my diabetes. How can I manage my life with diabetes? (16 Nov 2009)
-- Answers to over 18,860 questions
-- What's your question?


From the Diabetes Dictionary
Unit of Insulin
The basic measure of insulin. U-100 insulin means 100 units of insulin per milliliter (mL) or cubic centimeter (cc) of solution. Most insulin made today in the United States is U-100.
-- More definitions


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- DEFEND is a global study seeking newly diagnosed patients aged 12 to 45 to test an islet preserving medication.

Randomized Trial to Assess Efficacy and Safety of Continuous Glucose Monitoring in Children 4-<8 Years With T1DM

Researchers at Northwestern University are seeking participants in a study called Prevent Risks by Early interVEntion at Nighttime in Type 1 diabetes for Kidney Disease (PREVENTKD).

The University of Florida is studying Neulasta in patients with new onset type 1 diabetes.

Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.

NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.

Behavioral specialists at the Joslin Diabetes Center and the University of Virginia seek help from parents who have children with diabetes from ages 6 to 11.

The University of California at Irvine has a new Exercise in Teens with Type 1 study.

Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.

The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.

-- Other Studies

 

Become part of the CWD Quilt for Life
View the Online Quilt Gallery
View Chase's Quilt
View the Online Quilt Gallery

Current Poll

  On an average day, how many times do you or your child do a fingerstick blood glucose check?  
 

If you also use a continuous sensor, please report only the number of fingerstick checks

 
   

10 or more times

 
   

9 times

 
   

8 times

 
   

7 times

 
   

6 times

 
   

5 times

 
   

4 times

 
   

3 times

 
   

2 times

 
   

1 time

 
   

Less than 1 time

 


 

Poll Results

 

On an average day, how many times do you or your child do a fingerstick blood glucose check?

 
 

If you also use a continuous sensor, please report only the number of fingerstick checks

 
     

10 or more times

 
 

24%

 

 
     

9 times

 
 

4%

 

 
     

8 times

 
 

15%

 

 
     

7 times

 
 

10%

 

 
     

6 times

 
 

17%

 

 
     

5 times

 
 

12%

 

 
     

4 times

 
 

8%

 

 
     

3 times

 
 

2%

 

 
     

2 times

 
 

2%

 

 
     

1 time

 
 

0%

 

 

 
     

Less than 1 time

 
 

1%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com

Book cover
The Adventure of A Lifetime
Buy at The Diabetes Mall


Book Cover
NFL Veteran Jay Leeuwenberg Tackles Diabetes and Wins.
You can too!
Buy From The Publisher




Always remember that kids with diabetes are still kids
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Last Updated: Wed Nov 18 13:41:35 2009
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