Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes
     September 1, 2010 Volume 16, Number 34 First Published in June 1995     
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Top E-mailed Pages
1. Information for Teachers and Child-Care Providers
2. Sample 504 and IEP Plans
3. Acute Emergencies of Diabetes
4. One-Page Instruction Sheet for Teachers
5. Readers' Favorite Recipes
6. Continuous Glucose Sensors
7. Type 2 Diabetes in Children
8. What Do We Really Know About Why Type 1 Is Rising?
9. Information for Parents and Guardians
10. Actions for the Principal
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Top Rated Pages
1.   Type 2 Diabetes in Children
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Scholarships for
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Research to Find a Cure
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Insulin & Supplies
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Living With Diabetes
Photo  

Hey! My name is Katie. I'm from Indiana. I love playing tennis and swimming. I have an 18 year old brother and an 8 year old brother. I'm going to be a junior in high school in the fall 2010. I am 16 years old and I was diagnosed with type 1 diabetes when I was 15 on January 19, 2010. I have had it for about 5 months.

During the winter of 2010, I was not feeling well. It wasn't like I had the flu, I just was exhausted, and it had been going on for weeks. I was going to the bathroom often, drinking water nonstop, and getting leg cramps during exercise. I was crying a lot and I was very emotional. Also, my vision got increasingly worse. My eye doctor recommended that I see a doctor.

I went to the pediatrician and she checked my blood sugar. It was in the 400's.

-- Visit Katie's page
-- More children with diabetes


Upcoming CWD Conferences and Events
Houston 2010   CWD Focus on Technology
September 3-5, 2010
Renaissance Charlotte Suites Hotel
Charlotte, North Carolina

Friends for Life UK 2010   Friends for Life UK: Old Windsor 2010
October 29-31, 2010
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England

Family Support Weekend 2010   Family Support Weekend 2011
December 30, 2010 – January 2, 2011
Marco Island Marriott Resort, Golf Club & Spa
Marco Island, Florida

Friends for Life: Orlando 2011   Friends for Life: Orlando 2011
July 5-10, 2011
Disney's Coronado Springs Resort
Lake Buena Vista, Florida

Reports from recent CWD conferences & events:
-- Orlando, Houston, Marco Island, Seattle, La Jolla, UK, Orlando, Chicago, Toronto
-- More Reports & Upcoming CWD Conferences and Events


Headlines
We report on Friends for Life Canada: Vancouver 2010.

We report on Friends for Life: Orlando 2010.

See videos from Friends for Life 2010 at theBetesNOW.

Adult Type 1 Conference.

Where do CWD go when they grow up?

JDRF is Now Accepting Applications for Children's Congress 2011.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring — Coming of Age, also available in PDF format.

Author Dan Hurley answers, What Do We Really Know About Why Type 1 Is Rising?

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Variation of Interstitial Glucose Measurements Assessed by Continuous Glucose Monitors in Healthy, Non-obese, Non-diabetic Individuals.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.

Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.



The Family Support Network now includes over 4,600 families from 50 states and 84 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 722 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Chats
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Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Scotland Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.


Diabetes Humor
Living in Wisconsin, one really needs to make sure you have insulation in your house. I had some contractors come to give me an estimate of how much insulation I would need to have blown in. I asked the contractor, "So, how many bags of insulin will I need to make sure I have the proper amount of insulin in my house?" The contractor looked at me and said, "I think you mean insulation, not INSULIN."
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... you end up with a drop of blood on the antenna of your cell phone during a 1 am blood glucose check.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Taking Diabetes to School by Kim Gosselin. Illustrated by Moss Freedman. Published by JayJo Books, 1994. ISBN 1-891383-00-0. JayJo Books, 1-800-99-YOUTH.

Book Cover   This 20 page, colorfully illustrated book belongs in your child's elementrary school library. Jayson (the author's son) talks about his diabetes and what he needs to do to stay healthy, including taking insulin injections, performing blood tests, and eating snacks. It's an excellent child-focussed book and will help your child explain diabetes to his or her classmates. Now in its second edition, Taking Diabetes to School now includes Ten Tips for Teachers and Kids Quiz. Highly recommended. Price is US$11.95 (shipping and handling is included). Quantity discounts are available.

JayJo books also publishes two book about children with asthma entitled Taking Asthma to School (ISBN 0-9639449-1-6) and Taking Asthma to Camp (ISBN 0-9639449-2-4). Pricing is the same.

Order from Amazon.com Order Taking Diabetes to School from Amazon.com
-- Other books for kids with diabetes
-- Recently Featured Books


Ask the Diabetes Team
My son's diabetes team is not supporting my desire to put my son on an insulin pump, but I think he would have better control with one. Should I push the doctors to change him to pump therapy? (25 Aug 2010)
-- Answers to over 19,000 questions
-- What's your question?


From the Diabetes Dictionary
Endocrine pancreas
The part of the pancreas that produces hormones that govern sugar metabolism. Compare with the exocrine pancreas.
-- More definitions


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- DiaPrevent is a type 1 diabetes research study for people newly diagnosed between the ages of 10 to 20.

-- DEFEND is a global study seeking newly diagnosed patients aged 12 to 45 to test an islet preserving medication.

2nd-phase type 1 diabetes study at MGH to test the Boston University artificial endocrine pancreas.

Researchers at the Medical University of South Carolina are looking for teenage drivers with type 1 diabetes between the ages of 16-19 and their parents to participate in an online study about how diabetes affects driving in teens. The survey is anonymous, which means that no one will know your answers but YOU. For more information and to complete the survey, please choose the appropriate survey:
  1. Survey for teens
  2. Survey for parents
Randomized Trial to Assess Efficacy and Safety of Continuous Glucose Monitoring in Children 4-<8 Years With T1DM

Researchers at Northwestern University are seeking participants in a study called Prevent Risks by Early interVEntion at Nighttime in Type 1 diabetes for Kidney Disease (PREVENTKD).

The University of Florida is studying Neulasta in patients with new onset type 1 diabetes.

Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.

NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.

Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.

The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.

-- Other Studies

 

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View the Online Quilt Gallery
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View the Online Quilt Gallery

Current Poll
  How many times have you or your child needed a glucagon injection?  
    Never  
    1 time  
    2 times  
    3 to 4 times  
    5 or more times  


 
Poll Results
  How many times have you or your child needed a glucagon injection?  
      Never  
  73%     127  
      1 time  
  14%     24  
      2 times  
  3%     6  
      3 to 4 times  
  2%     4  
      5 or more times  
  7%     13  

Total votes: 174
-- View Results & More Polls

Featured Recipe
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Almond Buttons
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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com

Book cover
The Adventure of A Lifetime
Buy at The Diabetes Mall


Book Cover
NFL Veteran Jay Leeuwenberg Tackles Diabetes and Wins.
You can too!
Buy From The Publisher




Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 01-Sep-2010 15:34:45 Eastern Daylight Time
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