Children with Diabetes
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Children with Diabetes

The online community for kids, families and adults with diabetes

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        October 24, 2018 Volume 24, Number 43 First Published in June 1995     
Donate Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
What's New
About CWD
Our Board
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People
Family Support Network
Adults with Diabetes
Care Photos
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CWD Conferences
-- Kids with Diabetes
Parents
Parent Humor
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Rufus
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Ask the Diabetes Team
Alternate Site Testing
Alternative Treatments
-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
Diabetes at School
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Making a Difference

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For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
Photo  

My name is Haylee. I am 8 but I am turning 9 this June. I live in Tasmania, Australia. I have a brother and his name is Franklin. I also have a Dad, Mum, dog, chickens, and a cat. I was diagnosed at the age of 4. It was only about 3 days after my 4th birthday. I stayed in the Burnie hospital for almost a week. I have a Medtronic insulin pump. I got it last year on January the 30th.

I also have a Ruby Bear who is very scruffy and I spend a lot of time with her. Last week I got glasses. A black & pink pair, and a blue pair with orange spots on the sides. When I grow up I want to live with orangutans in the Amazon rainforest. My auntie Sarah has type 1 diabetes too. I have a friend whose brother is diabetic too.

We went to Melbourne for Christmas. If you don’t know where Melbourne is, it’s a VERY big city in Victoria, Australia. My number one favorite food is probably got to be sushi. I LOVE Just Dance. Just Dance is a game were you hold a motion controller and you copy the dancer on the screen. At the end it scores you in stars. I think it’s the best game ever. I have Just dance 2018.

My signs of diabetes were thirst, hunger, tiredness, going to the toilet a lot and weight loss. We went to the doctor and I’m not sure what happened after that but I have seen images of me in hospital.

I’m done now, bye!

-- Visit Haylee's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life UK 2018   Friends for Life UK 2018
October 26-28, 2018
Crieff Hydro Hotel
Strathearn House, Crieff

Friends for Life Canada 2018   Friends for Life Canada 2018
November 2-4, 2018
Marriott on the Falls
Niagara Falls, Ontario

Friends for Life Orlando 2019   Friends for Life Seattle 2019
March 29-31, 2019
Renaissance Seattle Hotel
Seattle Washington

Friends for Life Orlando 2019   Friends for Life Orlando 2019
July 16-21, 2019
Disney's Coronado Springs Resort
Orlando, Florida

Reports from recent CWD conferences & events:

-- Orlando 2018, Anaheim 2018, UK 2017, Falls Church 2017
-- More Reports & Upcoming CWD Conferences and Events


Headlines
Assistance with Access to Insulin.

CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 759 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
On his first appointment after being diagnosed, the nurse was discussing injection sites with our son. "Where do you get your shots?" she asked, meaning, arm, hip, etc. "It all depends," our then 5-year-old explained. "Sometimes in the kitchen, sometimes in the bathroom!"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your kid has one extra dance recital ticket and of all the people in the world to invite, she invites the school nurse.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] The Discovery of Insulin by Michael Bliss. Published by University of Chicago Press, 1982. ISBN 0-226-05898-0. US$18.00.

Book cover   Telling the story of the discovery of insulin and its first use in human patients, The Discovery of Insulin is a worthy addition to anyone's library. It's especially poignant for parents of children with diabetes. The detail is extraordinary, with notes from Dr. Banting and others involved in the discovery and first use of insulin. Be prepared for a level of emotional involvement unlike any you have experienced before with a book. Note that the photographs of children taken prior to the availability of insulin may be difficult for younger kids to view.

Order from Amazon.com Order The Discovery of Insulin from Amazon.com

-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
My daughter had an elevated blood sugar that was determined to be caused by a bladder infection. But, we were given a meter to check her any way. At home, she has had both highs and lows, but is asymptomatic for diabetes. What is your opinion? (11 Oct 2018)
-- Answers to over 19,450 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

What are your kids' plans for Halloween?

 
   

They collect candy and eat it, integrating the carbs into their meal plan

 
   

They collect candy and give it away

 
   

They collect candy and we pay or trade other treats for it

 
   

We're too stressed to collect candy this year

 
   

Our kids are older and don't collect candy

 
   

We don't participate in Halloween for other reasons

 
   

Other or unsure at this time

 



Poll Results

 

What are your kids' plans for Halloween?

 
     

They collect candy and eat it, integrating the carbs into their meal plan

 
 

80%

 

 
     

They collect candy and give it away

 
 

6%

 

 
     

They collect candy and we pay or trade other treats for it

 
 

6%

 

 
     

We're too stressed to collect candy this year

 
 

6%

 

 
     

Our kids are older and don't collect candy

 
 

0%

     
     

We don't participate in Halloween for other reasons

 
 

0%

     
     

Other or unsure at this time

 
 

0%

     
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Tuesday, 23-Oct-2018 14:33:50 UTC
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