Children with Diabetes
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Children with Diabetes
The online community for kids, families and adults with diabetes

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     April 29, 2015 Volume 21, Number 16 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
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Diabetes-Kids.de
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Living With Diabetes
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Hey! My name is Katie. I'm from Indiana. I love playing tennis and swimming. I have an 18 year old brother and an 8 year old brother. I am 16 years old and I was diagnosed with type 1 diabetes when I was 15 on January 19, 2010. I have had it for about 5 months.

During the winter of 2010, I was not feeling well. It wasn't like I had the flu, I just was exhausted, and it had been going on for weeks. I was going to the bathroom often, drinking water nonstop, and getting leg cramps during exercise. I was crying a lot and I was very emotional. Also, my vision got increasingly worse. My eye doctor recommended that I see a doctor.

I went to the pediatrician and she checked my blood sugar. It was in the 400's. Then I was driven to Riley Hospital, and they told me I had type 1 diabetes. I stayed there for 3 days. I learned all about it and all the things I would need to do to take care of myself.

-- Visit Katie's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life: Orlando 2015   Friends for Life: Orlando 2015
July 6-12, 2015
Disney's Coronado Springs Resort
Lake Buena Vista, Florida
Family and Individual Scholarships

Anaheim 2015   CWD Focus on Technology
September 18 - 20, 2015
Disneyland Hotel
Anaheim, California

Friends for Life Canada 2015   Friends for Life Canada 2015
October 23-25, 2015
Marriott Gateway on the Falls
Niagara Falls, Ontario, Canada
This Conference is Sold Out

Friends for Life UK: Old Windsor 2015   Friends for Life UK: Old Windsor 2015
30 October - 1 November, 2015
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England
This Conference is Sold Out

Reports from recent CWD conferences & events:
-- Anaheim, UK 2014, Orlando 2014, Cincinnati, Orlando 2013, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 751 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
The other day my mom texted me this: "2 100's today". She watches my son Cole while I attend college full time. I texted back, "good, I changed his basal the other day". She texted back, "No, I was talking about his school work -- two 100% on his school work." We both laughed really hard -- this would only happen if you had a child with diabetes.
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... you clean the lint trap of your clothes dryer and find a bunch of test strips.
--More Parent Humor


Featured Book of the Week

Gluten Freedom by Alessio Fasano, MD. Published by Wiley, 2014. ISBN 1118423100. 327 pages. Hardcover.

Book Cover With celiac disease much more common among people with type 1 diabetes (about 10%) than the general population (about 1%), Gluten Freedom by Dr. Alessio Fasano, one of the world's leading experts on celiac, is the must-have book about celiac and the gut. With so much written today about gluten-free diets, it's a relief to have a scientifically based exploration of wheat, gluten, and its impact on the human body available. Throughout this comprehensive yet easy-to-read book, Dr. Fasano guides us through the origins of celiac, its discovery, its treatment today and potential therapies beyond a gluten-free diet in the future. He also includes many recipes to help you eat well on a gluten free diet. You'll also learn exactly what happens in the gut in people with and without celiac, and will develop a deeper respect for an often overlooked part of each of us. Highly Recommended for everyone, even if you do not have celiac.
Amazon Books Order Gluten Freedom from Amazon.com
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
After seven years with diabetes, my nephew has been burping often for six months. Does this indicate he has gastroparesis? (8 Apr 2015)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Parents, how soon after your child's diagnosis did you begin going out again with just your spouse?

 
   

Within one month

 
   

Within three months

 
   

Within six months

 
   

Within a year

 
   

More than a year

 
   

We haven't gone out alone and don't plan to

 
   

We want to go out alone but haven't found the right babysitter yet

 
   

We didn't go out when our child was younger, but now that they are older and we don't need a sitter, we do go out

 
   

Parents go out alone?

 



Poll Results

 

Parents, how soon after your child's diagnosis did you begin going out again with just your spouse?

 
     

Within one month

 
 

12%

 

 
     

Within three months

 
 

12%

 

 
     

Within six months

 
 

7%

 

 
     

Within a year

 
 

19%

 

 
     

More than a year

 
 

17%

 

 
     

We haven't gone out alone and don't plan to

 
 

2%

 

 
     

We want to go out alone but haven't found the right babysitter yet

 
 

12%

 

 
     

We didn't go out when our child was younger, but now that they are older and we don't need a sitter, we do go out

 
 

7%

 

 
     

Parents go out alone?

 
 

9%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 29-Apr-2015 11:49:54 UTC
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