Children with Diabetes
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Children with Diabetes
The online community for kids, families and adults with diabetes

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     November 26, 2014 Volume 20, Number 48 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
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About CWD
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Family Support Network
Adults with Diabetes
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-- Kids with Diabetes
Parents
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-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
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Diabetes Scholars Foundation

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The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de




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Living With Diabetes
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My name is Amy Yang. I am 8 years old and I will be in Grade 3 this fall. I live in Zhengzhou, Henan, P.R. China. I was diagnosed with Type 1 diabetes in October 2000, when I was just one year old. At that time I had two insulin shots everyday and my parents did the injections and blood glucose monitoring for me.

I have been on a pump since spring 2006. I love the pump very much because I can get my insulin injected by just simply pressing several buttons and my mom needn't rush home to do the injections for me everyday after she gets off from work.

Since spring 2006, I have also done the blood glucose monitoring all by myself. My parents felt so proud when I finished my blood glucose monitoring for the first time by myself, and my mom have hugged me for a long time. I love my mom and dad.

-- Visit Amy's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life: Orlando 2015   Friends for Life: Orlando 2015
July 6-12, 2015
Disney's Coronado Springs Resort
Lake Buena Vista, Florida

Friends for Life UK: Old Windsor 2015   Friends for Life UK: Old Windsor 2015
30 October - 1 November, 2015
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England

Reports from recent CWD conferences & events:
-- Anaheim, UK 2014, Orlando 2014, Cincinnati, Orlando 2013, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines


CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 751 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums

See our CWD UK Information Section with links to UK-specific information.


Diabetes Humor
Every night at the dinner table our family asks what each of our "highs" and "lows" are (meaning best and worst part of each of our day). Going around the table we each tell of a typical thing, until we get to our 8 year old who was diagnosed 5 weeks prior. She starts laughing and states that her high was 554 and her low was 75 (her overall highs and lows during her 5 weeks of the diabetic world). Only a family with type 1 would understand.
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... the stray dog who has parked himself on your deck has only been there 10 minutes and already has a test strip attached to his fur!
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin by Caroline Cox. Published by Kaplan Publishing, 2009. ISBN 1607145510. 254 pages, hardcover US$26.95.

Book cover

The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin is the very personal story of Elizabeth Evans Hughes, daughter of Charles Evans Hughes, who served as Governor of New York, US Secretary of State, Associate Justice of the Supreme Court, and Chief Justice of the Supreme Court. Elizabeth was diagnosed with type 1 diabetes in 1919 when she was 11 years old. The only treatment was a brutal starvation diet, which prolonged life -- and in her case, prolonged it enough for her to become one of the first people in the world to receive insulin. Author Caroline Cox takes us back to Elizabeth's life and helps us understand the inner courage of one young girl. If you're interested in learning about the history of diabetes and insulin, The Fight to Survive is for you. Recommended.

Amazon Books Order The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin from Amazon.com

-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
Diagnosed with type 1 in July, our teen daughter is experiencing recurring headaches. We moved recently and she changed schools, but we do not think she is that stressed. What are we missing? (12 Nov 2014)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

A clinical study for a new needle-free glucagon for treatment of severe hypoglycemia in children is being conducted at several centers in the US. If you are interested in learning more about this study, please visit clinicaltrials.gov.

The TrialNet Pathway to Prevention Study offers screening at no charge to relatives of people with type 1 diabetes. The screening can identify risk for type 1 diabetes years before symptoms appear. Those at increased risk may be able to join research studies testing ways to prevent the disease. Others can continue to be monitored for the earliest signs of type 1 diabetes, which can prevent serious symptoms. To find a TrialNet location, request a test kit, or learn more, visit DiabetesTrialNet.org.

Parents of Children and Teenagers Between Ages 8-16 with Type 1 Diabetes for at least six months are needed to Participate in a Study on the relationship between any parental stress in caring for a child with Type 1 Diabetes.

-- Other Studies



 
Poll

Current Poll

 

When do you think that type 1 diabetes will be cured?

 
 

The word 'cure' means different things to different people, but think about what it means to you when you answer

 
   

Within the next 5 years

 
   

Within the next 10 years

 
   

Within the next 20 years

 
   

More than 20 years from now

 
   

Never

 
   

I don't know

 



Poll Results

 

When do you think that type 1 diabetes will be cured?

 
 

The word 'cure' means different things to different people, but think about what it means to you when you answer

 
     

Within the next 5 years

 
 

11%

 

 
     

Within the next 10 years

 
 

11%

 

 
     

Within the next 20 years

 
 

41%

 

 
     

More than 20 years from now

 
 

5%

 

 
     

Never

 
 

23%

 

 
     

I don't know

 
 

5%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 26-Nov-2014 14:42:57 UTC
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