Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes
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     June 19, 2013 Volume 19, Number 24 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Living With Diabetes
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Hey! my name is Ellie. I'm 14, I was diagnosed with diabetes in June 2009, 2 years ago - just before my 12th birthday. I was feeling really ill for months before my diagnosis, and was drinking and going to the toilet a lot, so, my mum brought be a blood sugar tester, just to see what my sugars were. I used that for a few days, then I went to the doctor. The blood test said I had diabetes. But my doctor didn't send me to A & E , he said to see how it goes ... this was on a Friday, then on Sunday I did the Race for Life, and got McDonald's afterwards, thats when it all went wrong. I tested my sugars with the tester I had, and it said HI, so I went to A & E with my mum, dad and sister, and I got told I had diabetes. I stayed in Hospital for three days, my blood sugar was 45 mmol/l (810 mg/dl).

I had to learn how to give injections. I was on five injections a day. Then on June 14th 2011, I got an insulin pump. I love it! It's purple :) My sugars are so much better now, and I'm getting on fine with my diabetes :) It doesn't stop me from doing anything I want to do. :D I also hope to do the JDRF walk in September this year so I can raise money to help find a cure :D

-- Visit Ellie's page
-- More children with diabetes


Upcoming CWD Conferences and Events
Friends for Life: Orlando 2013   Friends for Life: Orlando 2013
July 9 - 14, 2013
Disney's Coronado Springs Resort
Lake Buena Vista, Florida

Reports from recent CWD conferences & events:
-- UK, Toronto, DC, UK, Sugar Land, Vancouver, Orlando, Philadelphia
-- More Reports & Upcoming CWD Conferences and Events


Headlines

Partnering for Diabetes Change event at FFL 2013
Coming to FFL? Join us on Wednesday, July 10 from 9:00-10:30 am for Social Media & The Monster Under the Bed: The Latest Thinking on Fearing vs. Embracing Social Media. Click for a larger image.

We report on CWD's Friends for Life UK 2013 conference.

We report on CWD's Friends for Life Canada: Toronto 2013 conference.

We report on CWD's Focus on Technology: DC 2013 conference.

CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

Reversal of type 1 diabetes via islet beta cell regeneration following immune modulation by cord blood-derived multipotent stem cells. Free full text available in PDF format. See also Novel Stem Cell Treatment May Hold Promise for Type 1 Diabetes and Type 1 Diabetes Reversed With Stem Cells From Cord Blood.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Author Dan Hurley answers, What Do We Really Know About Why Type 1 Is Rising?

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,400 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 741 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


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-- Sign up for our weekly What's New e-mail newsletter
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-- Share recipes
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-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Scotland Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.


Diabetes Humor
We were walking along with some friends. My daughter Corie, age 12, dx at age 2, was wearing her insulin pump on her hip. I was holding hands with a younger child in the group (Cole age 6) who has a little thing for Corie. He saw the pump site. I asked him if he knew what it was. He replied, "Yes, that is where you plug her in for her energy."
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your non-D child refers to all numbers as carbs - "I'm 3 carbs old!"
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Type 1 Diabetes in Children, Adolescents and Young Adults by Ragnar Hanas, M.D. Published by Class Publishing, London, 2011. ISBN 1859593372. US$39.99.

Book cover   In the fourth US edition of his excellent diabetes text book, Dr. Ragnar Hanas offers the most comprehensive book about type 1 diabetes, and one of the best. This book is updated to include pump therapy, continuous sensing, extensive coverage of social issues, and the latest in research. Each topic is presented in an easy-to-read style, with excellent and helpful drawings and charts. Even if you own one of the first three editions, Type 1 Diabetes in Children, Adolescents and Young Adults will make an excellent addition to your diabetes management library. Highly recommended.

Order from Amazon.com Order Type 1 Diabetes in Children, Adolescents and Young Adults from Amazon.com
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
My teenaged daughter's A1c is its highest. She often forgets to bolus and grazes a lot. Do all teens rebel against diabetes? How can I help her understand the importance of bolusing and a proper diet? (18 Jun 2013)
-- Answers to over 19,290 questions
-- What's your question?


From the Diabetes Dictionary
C-Peptide
A substance that the pancreas releases into the bloodstream in equal amounts to insulin. A test of C-peptide levels will show how much insulin the body is making. See also Proinsulin.
-- More definitions


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

Women between 12 and 20 who use an insulin pump are needed for a study to understand the experiences of female adolescents with type 1 diabetes being treated with an insulin pump and assess any commonalities between them.

Kids between the ages of 12 and 17 with type 1 diabetes are needed for studies on the artificial pancreas project.

Researchers from Palo Alto University are conducting a study to learn about the impact of various forms of support on quality of life for parents and siblings of children and adolescents with diabetes as well as the psychosocial effect felt by the siblings.

-- Other Studies



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Current Poll
  Do you have your most recent basal rates, insulin-to-carb ratios, and correction factors written down?  
    Yes, I keep them current whenever I make a change  
    No, but I have old rates written down  
    I didn't know that I should have these written down  
    I don't know what these are  
    Other  


-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


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Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 19-Jun-2013 14:45:06 Eastern Daylight Time
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