Children with Diabetes
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Children with Diabetes

The online community for kids, families and adults with diabetes

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        April 25, 2018 Volume 24, Number 17 First Published in June 1995     
Donate Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
What's New
About CWD
Our Board
Privacy Policy
People
Family Support Network
Adults with Diabetes
Care Photos
Chat Rooms
CWD Conferences
-- Kids with Diabetes
Parents
Parent Humor
Scholarships and Financial Aid
Grandparents
Humorous Tidbits
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Polls
Quilt for Life
Surveys
Rufus
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Clinic
Ask the Diabetes Team
Alternate Site Testing
Alternative Treatments
-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
Diabetes at School
504 Plans
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Food and Nutrition
Presentations
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Studies
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Making a Difference

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Kids with Diabetes
Diabetes Scholars Foundation

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
Photo  

My name is Charlie and I am three years old and live in Houston, Texas. I was diagnosed with diabetes when I was ten months old. I felt kind of bad one day and went to bed early. When I got up I felt really, really bad and had trouble breathing. My mommy took me to Texas Children's Hospital where they gave me insulin and made me feel better.

When I turned one, I got my insulin pump. It is an Animas Ping and you can see it in the picture of me in the wedding. It sits in a black belt that is tied around my waist. My mommy and daddy and all four of my grandparents know how to work the pump to make it give me insulin. When I was two, I got my continuous glucose meter. His name is "Dex." Dex tells me what my blood glucose is and whether it is dropping or getting higher. It even tells me how fast it is dropping.

-- Visit Charlie's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Orlando 2018   Friends for Life Anaheim 2018
May 4-6, 2018
Disneyland Hotel
Anaheim, California
Family and Individual Scholarships

Friends for Life Orlando 2018   Friends for Life Orlando 2018
July 10-15, 2018
Disney's Coronado Springs Resort
Orlando, Florida
Family and Individual Scholarships

Friends for Life UK 2018   Friends for Life UK 2018
October 26-28, 2018
Crieff Hydro Hotel
Strathearn House, Crieff

Friends for Life Canada 2018   Friends for Life Canada 2018
November 2-4, 2018
Marriott on the Falls
Niagara Falls, Ontario

Reports from recent CWD conferences & events:

-- UK 2017, Falls Church 2017, Orlando 2017, Anaheim 2017
-- More Reports & Upcoming CWD Conferences and Events


Headlines
Newsflash
FDA Authorizes Marketing of the New Dexcom G6® CGM Eliminating Need for Fingerstick Blood Testing for People with Diabetes. See also FDA authorizes first fully interoperable continuous glucose monitoring system, streamlines review pathway for similar devices and FDA Clears Dexcom G6 CGM with No Fingersticks! Launch Later this Year. To learn more, see Dexcom G6 Continuous Glucose Monitoring (CGM) System. CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 759 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
It was shortly before noon and my 6 year old told me that she felt low, so she grabbed her monitor and tested her blood sugar. She announced that her blood sugar was 33 so I panicked and grabbed a glucose tablet and juice box. After I juiced her up, I tested her again to see if her blood sugar had come up and the monitor now read "HI". I checked her previous reading and the monitor read "303". I guess in her little mind's eye it read 30 3. This will be a family favorite for years to come.
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your non-D child refers to all numbers as carbs - "I'm 3 carbs old!"
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Cheating Destiny by James S. Hirsch. Published by Houghton Mifflin, 2006. Hardcover, 307 pages. $25.00 ISBN 0-618-51461-9. Paperback (2007) ISBN 061891899X, $14.95.

Book Cover   "My son is thirsty." So begins Cheating Destiny, Jim Hirsch's amazing book about living with type 1 diabetes, being the parent of a child with diabetes, the diabetes industry today, the cost to the US of type 1 and type 2 diabetes, islet cell transplantation, stem cell research, the maddening nature of US healthcare, and so much more. Hirsch is a captivating writer, and as the parent of a child with diabetes, I feel a special kinship to him -- he too has a child with diabetes. He has also lived most of his life with type 1 diabetes. His book is a must read for everyone whose life includes diabetes. You'll learn more than you could have imagined. And if you, like Jim and I, have a child with diabetes, be prepared for a deeply emotional experience. Highly Recommended.
-- JSH      
Order from Amazon.com Order Cheating Destiny in hardcover from Amazon.com
Order Cheating Destiny in softcover from Amazon.com
-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
My young teen daughter's eyebrows are thinning. How can we help them grow? Is this because of her diabetes? (13 Mar 2018)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Parents, how soon after your child's diagnosis did you begin going out again with just your spouse?

 
   

Within one month

 
   

Within three months

 
   

Within six months

 
   

Within a year

 
   

More than a year

 
   

We haven't gone out alone and don't plan to

 
   

We want to go out alone but haven't found the right babysitter yet

 
   

We didn't go out when our child was younger, but now that they are older and we don't need a sitter, we do go out

 
   

Parents go out alone?

 



Poll Results

 

Parents, how soon after your child's diagnosis did you begin going out again with just your spouse?

 
     

Within one month

 
 

10%

 

 
     

Within three months

 
 

30%

 

 
     

Within six months

 
 

0%

     
     

Within a year

 
 

10%

 

 
     

More than a year

 
 

40%

 

 
     

We haven't gone out alone and don't plan to

 
 

0%

     
     

We want to go out alone but haven't found the right babysitter yet

 
 

0%

     
     

We didn't go out when our child was younger, but now that they are older and we don't need a sitter, we do go out

 
 

0%

     
     

Parents go out alone?

 
 

10%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 25-Apr-2018 17:02:52 UTC
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