Children with Diabetes
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Children with Diabetes

The online community for kids, families and adults with diabetes

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        December 12, 2018 Volume 24, Number 50 First Published in June 1995     
Donate Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
What's New
About CWD
Our Board
Privacy Policy
People
Family Support Network
Adults with Diabetes
Care Photos
Chat Rooms
CWD Conferences
-- Kids with Diabetes
Parents
Parent Humor
Scholarships and Financial Aid
Grandparents
Humorous Tidbits
CWD Forums
Poetry and Art
Videos
Polls
Quilt for Life
Surveys
Rufus
Blogs & Social Media
Clinic
Ask the Diabetes Team
Alternate Site Testing
Alternative Treatments
-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
Diabetes at School
504 Plans
Diabetes Camps
Diabetes Dictionary
Insulin Pumps
Food and Nutrition
Presentations
Products
Sports
Studies
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Sources
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History of CWD

Making a Difference

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
Photo  

Hi, My name is Briar. I went to the doctor's office for a check up and they sent me to a big hospital right away. They said I have juvenile diabetes type 1. My family all came down with me. We had to stay there for three days learning about my diabetes. I have to have shots before every meal and also I have to have one at night time. I test my own blood glucose, but my family reads the insulin road map for me. I will have to learn this as well.

It's nice to know that I'm not alone and that other kids my age also have this and know what it feels like. I like to snowboard and am very good at it. I also like playing Wii games with my Bumpa. He is my grandfather. If anyone wants to talk, just send my Nokie an email, she is my grandmother.

I wish they had better free foods for us to eat. Maybe someone will invent that.

-- Visit Briar's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Orlando 2019   Friends for Life Seattle 2019
March 29-31, 2019
Renaissance Seattle Hotel
Seattle Washington

Friends for Life Orlando 2019   Friends for Life Orlando 2019
July 16-21, 2019
Disney's Coronado Springs Resort
Orlando, Florida

Reports from recent CWD conferences & events:

-- Orlando 2018, Anaheim 2018, UK 2017, Falls Church 2017
-- More Reports & Upcoming CWD Conferences and Events


Headlines
Assistance with Access to Insulin.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 759 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
My 5 year old daughter woke one morning low, so I gave her a couple of glucose tabs to suck on while I prepared breakfast. She decided to go upstairs to wake her aunt who was visiting for the weekend. She woke her aunt and showed her the glucose tabs in her mouth. Her aunt asked her jokingly if she had candy for breakfast every morning to which my daughter replied, "Only on the mornings mummy says 'Jesus Christ.'"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... while driving in the car with your diabetic child, a radio show asks listeners to call in with the answer to the question, "What do parents most often say at their kids?" and your daughter answers, "Did you bolus?"
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Typecast: Amazing People Overcoming the Chronic Disease of Type 1 Diabetes by Andrew Deutscher. Published by Humbition Entertainment, 2014. ISBN 0578123118. US$18.95.

Book Cover  

Typecast is a book about people in the type 1 diabetes community -- Phil Southerland and Tom Karlya, for example. I'm in there too. But it's so much more than that. Andrew Deutscher's journey in the world of type 1 began when his young son was diagnosed. Andrew sought to understand what that meant for his son and his family, so he began to reach out to others to learn their stories. Those stories are what makes Typecast so unique, and so uplifting. This is a book about thriving with type 1 diabetes, and it is empowering. Highly recommended.

-- JH

Order from Amazon.com Order Typecast from Amazon.com
-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
The school wants me to get a watch with alarms for my daughter, to remind her when to check her blood sugar. I feel this is too much responsibility for an eight-year-old. What do other schools do? (14 Dec 2018)
-- Answers to over 19,450 questions
-- What's your question?


Studies and Surveys
-- -- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Are you interested in using a do-it-yourself, closed loop, artificial pancreas system?

 
   

Yes, I use OpenAPS

 
   

Yes, I use Loop

 
   

Yes, I use AndroidAPS

 
   

Yes, but I haven't done it yet

 
   

Yes, but I'm waiting to use a more modern insulin pump

 
   

No, I'm waiting for a commercial system

 
   

No, I can't find or afford the hardware

 
   

No, for some other reason

 
   

I don't know what this is

 



Poll Results

 

Are you interested in using a do-it-yourself, closed loop, artificial pancreas system?

 
     

Yes, I use OpenAPS

 
 

0%

     
     

Yes, I use Loop

 
 

18%

 

 
     

Yes, I use AndroidAPS

 
 

0%

     
     

Yes, but I haven't done it yet

 
 

9%

 

 
     

Yes, but I'm waiting to use a more modern insulin pump

 
 

9%

 

 
     

No, I'm waiting for a commercial system

 
 

27%

 

 
     

No, I can't find or afford the hardware

 
 

0%

     
     

No, for some other reason

 
 

18%

 

 
     

I don't know what this is

 
 

18%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 12-Dec-2018 17:02:55 UTC
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