Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes

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     July 30, 2014 Volume 20, Number 36 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
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Living With Diabetes
Photo  

Hi, My name is Briar. I went to the doctor's office for a check up and they sent me to a big hospital right away. They said I have juvenile diabetes type 1. My family all came down with me. We had to stay there for three days learning about my diabetes. I have to have shots before every meal and also I have to have one at night time. I test my own blood glucose, but my family reads the insulin road map for me. I will have to learn this as well.

It's nice to know that I'm not alone and that other kids my age also have this and know what it feels like. I like to snowboard and am very good at it. I also like playing Wii games with my Bumpa. He is my grandfather. If anyone wants to talk, just send my Nokie an email, she is my grandmother.

I wish they had better free foods for us to eat. Maybe someone will invent that.

-- Visit Briar's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life UK: Old Windsor 2014   Friends for Life UK: Old Windsor 2014
15 - 17 August 2014
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England
This Conference is Sold Out

Anaheim2014   CWD Focus on Technology
October 24-26, 2014
Disneyland Hotel
Anaheim, California

Reports from recent CWD conferences & events:
-- Orlando 2014, Cincinnati, Orlando 2013, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines


CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 751 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums

See our CWD UK Information Section with links to UK-specific information.


Diabetes Humor
On his first appointment after being diagnosed, the nurse was discussing injection sites with our son. "Where do you get your shots?" she asked, meaning, arm, hip, etc. "It all depends," our then 5-year-old explained. "Sometimes in the kitchen, sometimes in the bathroom!"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your husband comes in and asks your child what they are up to and they respond "176" instead of "playing."
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Diabetes Care at School: Bridging the Gap by Salus Education, LLC. Workbook and CD course. $95.

Cover  

Diabetes Care at School: Bridging the Gap is an excellent Continuing Nursing Education (CNE) program that can also be used by parents to help educate their child's school staff about delivering the best diabetes care at school. The CNE program comes with two CDs and a workbook. The first CD contains the CNE material, and the second CD contains learning activities for school staff members. Content is up to date, with sections devoted to insulin pump therapy and disaster preparedness, for example. The content of each chapter is concise, easy-to-read, and well written. School nurses seeking to learn more about caring for children with diabetes will find this program to be very helpful. Parents may wish to encourage their schools to obtain a copy. The program can be ordered online. Highly recommended.

-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
I recently had a complete metabolic panel that anemia and low kidney function numbers. If my levels start to rise as the anemia gets corrected, is there a risk that the rising levels will show further kidney damage? (15 Jul 2014)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

A clinical study for a new needle-free glucagon for treatment of severe hypoglycemia in children is being conducted at several centers in the US. If you are interested in learning more about this study, please visit clinicaltrials.gov.

The TrialNet Pathway to Prevention Study offers screening at no charge to relatives of people with type 1 diabetes. The screening can identify risk for type 1 diabetes years before symptoms appear. Those at increased risk may be able to join research studies testing ways to prevent the disease. Others can continue to be monitored for the earliest signs of type 1 diabetes, which can prevent serious symptoms. To find a TrialNet location, request a test kit, or learn more, visit DiabetesTrialNet.org.

Parents of Children and Teenagers Between Ages 8-16 with Type 1 Diabetes for at least six months are needed to Participate in a Study on the relationship between any parental stress in caring for a child with Type 1 Diabetes.

-- Other Studies



 
Poll

Current Poll

 

How do you get your HbA1c measured?

 
   

Venous blood draw at a hospital lab

 
   

Venous blood draw at the doctor's office

 
   

Venous blood draw at another location

 
   

Finger stick test at the doctor's office

 
   

Finger stick test at home with immediate results

 
   

Finger stick test at home that I mail to a lab

 
   

More than one of the above

 
   

I don't get HbA1c tests done

 
   

Other

 



Poll Results

 

How do you get your HbA1c measured?

 
     

Venous blood draw at a hospital lab

 
 

22%

 

 
     

Venous blood draw at the doctor's office

 
 

13%

 

 
     

Venous blood draw at another location

 
 

4%

 

 
     

Finger stick test at the doctor's office

 
 

54%

 

 
     

Finger stick test at home with immediate results

 
 

4%

 

 
     

Finger stick test at home that I mail to a lab

 
 

0%

     
     

More than one of the above

 
 

0%

     
     

I don't get HbA1c tests done

 
 

0%

     
     

Other

 
 

0%

     
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 30-Jul-2014 14:29:24 UTC
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