Children with Diabetes
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The online community for kids, families and adults with diabetes

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        February 3, 2016 Volume 22, Number 5 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
What's New
About CWD
Our Board
Privacy Policy
People
Family Support Network
Adults with Diabetes
Care Photos
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CWD Conferences
-- Kids with Diabetes
Parents
Parent Humor
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Rufus
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Clinic
Ask the Diabetes Team
Alternate Site Testing
Alternative Treatments
-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
Diabetes at School
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Presentations
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Making a Difference

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Kids with Diabetes
Diabetes Scholars Foundation

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
Photo  

Hi. My name is Jaida and I am six years old. In late September 2010, I found out I had type 1 diabetes.

My parents noticed that I was thirsty all the time and using the bathroom a lot more than I used to. They also noticed that I looked like I had lost weight. When they took me to see the doctor, she made me take a blood test. I did not want to and cried some. When we left the doctor, they called my parents on the way home and told them to take me to the emergency room because my blood sugar was 511 and there was glucose in my urine.

I was in the hospital two nights. When I came home I was afraid to eat because I thought I might get sick. Now I'm not afraid to eat anymore and I check my own sugar and do my own shots. If you just found out you have diabetes, don't be afraid because you will feel better.

-- Visit Jaida's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Falls Church 2016   Friends for Life Falls Church 2016
April 8-10, 2016
Fairview Park Marriott
Falls Church, Virgnina

Friends for Life Orlando 2016   Friends for Life Orlando 2016
July 5-10, 2016
Orlando World Center Marriott
Orlando, Florida
DSF Family and Individual Scholarships

Reports from recent CWD conferences & events:
-- UK 2015, Canada 2015, Anaheim 2015, Orlando 2015
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 755 panels. The latest quilt is from Brianna.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
After dinner one night, I sent my 9-year-old son to wash his face. I had noticed a large dot of ink on his forehead and told him to be sure to wipe it off as he washed up. At 8:00, my husband sent the kids up to get into their pajamas and told Jimmy to wash the dot off his forehead. Jimmy came back downstairs for his nightly Lantus shot. He was in his pajamas, but still had the dot. I had the syringe in one hand and the alcohol pad in the other. Deciding he was never going to clean that dot off his forehead, I proceed to rub at it with the alcohol pad. His eyes widened in horror as he shouted, "MOM! WHAT ARE YOU DOING?" I explained about the dot. "Oh", he said with relief, "I thought you were going to give me the shot there! I know it has two cheeks, but that's my face." Guess where he gets his evening shot?
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your child is playing a video game and when the "life force" level starts running out she says "Oh no! I'm low" and then starts laughing hysterically and says "I need glucose tablets!"
--More Parent Humor


Featured Book of the Week

Gluten Freedom by Alessio Fasano, MD. Published by Wiley, 2014. ISBN 1118423100. 327 pages. Hardcover.

Book Cover With celiac disease much more common among people with type 1 diabetes (about 10%) than the general population (about 1%), Gluten Freedom by Dr. Alessio Fasano, one of the world's leading experts on celiac, is the must-have book about celiac and the gut. With so much written today about gluten-free diets, it's a relief to have a scientifically based exploration of wheat, gluten, and its impact on the human body available. Throughout this comprehensive yet easy-to-read book, Dr. Fasano guides us through the origins of celiac, its discovery, its treatment today and potential therapies beyond a gluten-free diet in the future. He also includes many recipes to help you eat well on a gluten free diet. You'll also learn exactly what happens in the gut in people with and without celiac, and will develop a deeper respect for an often overlooked part of each of us. Highly Recommended for everyone, even if you do not have celiac.
Amazon Books Order Gluten Freedom from Amazon.com
-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
For a month, my toddler has been urinating only once a day, or less. Her breath smells like ketones. Could she have diabetes? What do you advise? (24 Jan 2016)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- Parents of very young children with type 1 diabetes are needed to help design and build a great website for other parents like you. If you are a parent (or legal caregiver) of a child with type 1 diabetes diagnosed before age 6, and your child is not yet 10 years old, just follow this link to learn more: https://apps.nemoursresearch.org/redcap/surveys/?s=L3HKPK33J4

-- Teens with Type 1 Diabetes and their Parents are needed for a shared decision making study about the use of insulin pumps and continuous glucose monitoring systems.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

What brand of insulin pump do you or your child use?

 
   

ACCU-CHEK (Roche)

 
   

Animas

 
   

Medtronic

 
   

OmniPod

 
   

Tandem

 
   

I use a pump not listed here

 
   

I don't use a pump but I want to

 
   

I don't use a pump and I do not want to

 



Poll Results

 

What brand of insulin pump do you or your child use?

 
     

ACCU-CHEK (Roche)

 
 

12%

 

 
     

Animas

 
 

20%

 

 
     

Medtronic

 
 

22%

 

 
     

OmniPod

 
 

14%

 

 
     

Tandem

 
 

14%

 

 
     

I use a pump not listed here

 
 

0%

     
     

I don't use a pump but I want to

 
 

8%

 

 
     

I don't use a pump and I do not want to

 
 

10%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 03-Feb-2016 20:09:46 UTC
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