Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes

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     April 23, 2014 Volume 20, Number 16 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Living With Diabetes
Photo  

Hi. My name is Jaida and I am six years old. In late September 2010, I found out I had type 1 diabetes.

My parents noticed that I was thirsty all the time and using the bathroom a lot more than I used to. They also noticed that I looked like I had lost weight. When they took me to see the doctor, she made me take a blood test. I did not want to and cried some. When we left the doctor, they called my parents on the way home and told them to take me to the emergency room because my blood sugar was 511 and there was glucose in my urine.

I was in the hospital two nights. When I came home I was afraid to eat because I thought I might get sick. Now I'm not afraid to eat anymore and I check my own sugar and do my own shots. If you just found out you have diabetes, don't be afraid because you will feel better.

-- Visit Jaida's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life: Orlando 2014   Friends for Life: Orlando 2014
July 1 - 6, 2014
Marriott World Center Resort
Orlando, Florida

Friends for Life UK: Old Windsor 2014   Friends for Life UK: Old Windsor 2014
15 - 17 August 2014
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England
This Conference is Sold Out

Anaheim2014   CWD Focus on Technology
October 24-26, 2014
Disneyland Hotel
Anaheim, California

Reports from recent CWD conferences & events:
-- Cincinnati, Orlando, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines
We report on CWD's Focus on Technology conference

We report on CWD's Friends for Life 2013 conference.

We report on CWD's Friends for Life UK 2013 conference.

We report on CWD's Friends for Life Canada: Toronto 2013 conference.



CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

Reversal of type 1 diabetes via islet beta cell regeneration following immune modulation by cord blood-derived multipotent stem cells. Free full text available in PDF format. See also Novel Stem Cell Treatment May Hold Promise for Type 1 Diabetes and Type 1 Diabetes Reversed With Stem Cells From Cord Blood.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Author Dan Hurley answers, What Do We Really Know About Why Type 1 Is Rising?

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,500 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 750 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.


Diabetes Humor
On top of the cookies in the cookie jar is a paper with 6c. (6 Carbohydrates) each written on it. Upon returning from getting a cookie, my non-diabetic nephew says, "I don't have 6 cents to pay for each one of these cookies." My 5 year old diabetic son said, "It's carbs, not cents!"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your son opens the car door at church and laughs because there's a test strip on the parking lot - and of course it's the type you use!
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Type 1 Diabetes and Babysitting by Stacey Smith-Bradfield and Dayna Frei. Published by Science Horse Productions, 2013. Paperback, 72 pages. $15.00 ISBN 0615863450.

Book Cover

After coming to terms with a child's diagnosis, parents are faced with many other challenges, including how to find and train a babysitter to take care of their child with diabetes. This is no easy task. In Type 1 Diabetes and Babysitting, authors Stacey Smith-Bradfield and Dayna Frei have prepared an easy-to-use guidebook to help parents teach their child's babysitter about the most important diabetes care tasks, including dealing with lows and highs, where to give injections, and what to take when outside the home, just to name a few. This is an excellent book for every parent who has a child young enough to need a babysitter, and for any teen who babysits kids with type 1 diabetes. Highly Recommended.

 
Order from Amazon.com Order Type 1 Diabetes and Babysitting from Amazon.com
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
How does one discipline a child with type 1 who also has ADHD? (14 Apr 2014)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

A clinical study for a new needle-free glucagon for treatment of severe hypoglycemia in children is being conducted at several centers in the US. If you are interested in learning more about this study, please visit clinicaltrials.gov.

The TrialNet Pathway to Prevention Study offers screening at no charge to relatives of people with type 1 diabetes. The screening can identify risk for type 1 diabetes years before symptoms appear. Those at increased risk may be able to join research studies testing ways to prevent the disease. Others can continue to be monitored for the earliest signs of type 1 diabetes, which can prevent serious symptoms. To find a TrialNet location, request a test kit, or learn more, visit DiabetesTrialNet.org.

Parents of Children and Teenagers Between Ages 8-16 with Type 1 Diabetes for at least six months are needed to Participate in a Study on the relationship between any parental stress in caring for a child with Type 1 Diabetes.

-- Other Studies



 
Poll

Current Poll

 

How often do you or your child get a retinal photograph as part of your diabetes eye care?

 
   

Yearly

 
   

Every other year

 
   

Less than every other year

 
   

Rarely

 
   

I wasn't aware that a retinal photograph was part of diabetes eye care

 
   

I don't know what a retinal photograph is

 



Poll Results

 

How often do you or your child get a retinal photograph as part of your diabetes eye care?

 
     

Yearly

 
 

40%

 

 
     

Every other year

 
 

13%

 

 
     

Less than every other year

 
 

13%

 

 
     

Rarely

 
 

6%

 

 
     

I wasn't aware that a retinal photograph was part of diabetes eye care

 
 

20%

 

 
     

I don't know what a retinal photograph is

 
 

6%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 23-Apr-2014 17:23:28 UTC
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