Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes

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     October 29, 2014 Volume 20, Number 48 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
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Living With Diabetes
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Hi everybody. I am Mattia. I live in Italy. I am almost 11 and I found out to be diabetic when I was 8.

Almost one year ago I learned to take shots by myself, but I am a little tired of it.

I would like to get a pump and a CGM, but I want to share feelings with children who have got diabetes type 1 like me.

-- Visit Mattia's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life: Orlando 2015   Friends for Life: Orlando 2015
July 6-12, 2015
Disney's Coronado Springs Resort
Lake Buena Vista, Florida

Reports from recent CWD conferences & events:
-- UK 2014, Orlando 2014, Cincinnati, Orlando 2013, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines


CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 751 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums

See our CWD UK Information Section with links to UK-specific information.


Diabetes Humor
When Marissa was home over the weekend, I got up to test her around 4 a.m. (she was staying up until 1:30 or 2:30 doing whatever in her room). Anyway, the one night, I picked up the strips, looked at the code on the meter saying 26 and said to myself, "Guess I'd better change the code since the vial says 50." In that split second, it dawned on me that the "50" I saw on the vial was the NUMBER of strips in the vial. Code 26 was written on the vial, too. It helps to be COMPLETELY conscious when testing our kids.
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... instead of whispering "sweet nothings" to each other in the middle of the night, you and your spouse are talking about blood sugar numbers.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Taking Control of Your Diabetes, 4th Edition by Steven V. Edelman, MD. Professional Communications Inc., 2013. 544 pages. Softcover. US$ 16.95. ISBN 978-1-932610-87-1.

Book Cover  

Dr. Steve Edelman developed type 1 diabetes when he was 15 years old. Taking Control of Your Diabetes embodies his philosophy of patient empowerment in the care of their diabetes. Now in its fourth edition, Taking Control of Your Diabetes is thoroughly updated for 2013, including an excellent section on continuous glucose sensors and how to get the most out of this important technology. Dr. Edelman's core message is that patients can take charge, regardless of how long they've had diabetes, and even if they have complications. This book is thorough, very well-written, and easy to read. The medical information covers everything one might need to know about taking charge, for people with both type 1 and type 2 diabetes. Dr. Edelman covers potential complications as well as daily care, with excellent advice on today's best practices. With contributions from a veritable who's-who in the diabetes world, TCOYD is an excellent addition to the library of everyone living with diabetes -- type 1 or type 2.

Order from Amazon.com Order Taking Control of Your Diabetes from Amazon.com

-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
Diagnosed at 11 months, should my son have testing for the Kir6.2 mutation? What type of insulin should he be getting? Should we consider a pump or stick with injections? How can I continue to breastfeed him? (17 Sep 2014)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

A clinical study for a new needle-free glucagon for treatment of severe hypoglycemia in children is being conducted at several centers in the US. If you are interested in learning more about this study, please visit clinicaltrials.gov.

The TrialNet Pathway to Prevention Study offers screening at no charge to relatives of people with type 1 diabetes. The screening can identify risk for type 1 diabetes years before symptoms appear. Those at increased risk may be able to join research studies testing ways to prevent the disease. Others can continue to be monitored for the earliest signs of type 1 diabetes, which can prevent serious symptoms. To find a TrialNet location, request a test kit, or learn more, visit DiabetesTrialNet.org.

Parents of Children and Teenagers Between Ages 8-16 with Type 1 Diabetes for at least six months are needed to Participate in a Study on the relationship between any parental stress in caring for a child with Type 1 Diabetes.

-- Other Studies



 
Poll

Current Poll

 

At what time of day are you most worried about hypoglycemia?

 
   

Overnight

 
   

Morning

 
   

Lunchtime

 
   

Afternoon

 
   

Dinnertime

 
   

Evening

 
   

Other

 



Poll Results

 

At what time of day are you most worried about hypoglycemia?

 
     

Overnight

 
 

85%

 

 
     

Morning

 
 

8%

 

 
     

Lunchtime

 
 

2%

 

 
     

Afternoon

 
 

0%

     
     

Dinnertime

 
 

0%

     
     

Evening

 
 

2%

 

 
     

Other

 
 

0%

     
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Tuesday, 28-Oct-2014 20:20:03 UTC
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