Children with Diabetes
Education. Support. Community.

Children with Diabetes
The online community for kids, families and adults with diabetes

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        April 27, 2016 Volume 22, Number 17 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
What's New
About CWD
Our Board
Privacy Policy
People
Family Support Network
Adults with Diabetes
Care Photos
Chat Rooms
CWD Conferences
-- Kids with Diabetes
Parents
Parent Humor
Scholarships and Financial Aid
Grandparents
Humorous Tidbits
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Poetry and Art
Videos
Polls
Quilt for Life
Surveys
Rufus
Blogs
Clinic
Ask the Diabetes Team
Alternate Site Testing
Alternative Treatments
-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
Diabetes at School
504 Plans
Diabetes Camps
Diabetes Dictionary
Insulin Pumps
Food and Nutrition
Presentations
Products
Sports
Studies
Warning Signs
Sources
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Diabetes Advocacy
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Logos and Linking
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History of CWD

Making a Difference

Conference and College Scholarships for
Kids with Diabetes
Diabetes Scholars Foundation

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
Photo  

Hey, I'm Sabrina and I am currently 12 going on 13. I live in Australia. Anyway, when I first got diabetes I was in America, more detailed, New York. My family and I were traveling around USA!

My parents kept saying they were going to get me checked by the doctor, my mum had had gestational diabetes with both my sister and I, and they were noticing that I was drinking tons of water and going to the toilet every 5 minutes(it felt like) or so.

So in NY one night, the second night I was there, I had terrible stomach cramps. In the morning my mum took me to the pharmacy but they had no idea what was wrong with me, so we went to the doctors and they told us they could only take kids 16 and over. So we went to the hospital and I was lying on the bed with a drip for hours and hours. When they told me it was true I had diabetes, everyone was devastated. They kind of expected it but it was still a very traumatic day. At the time my mum was with me and when she called my dad and my sister they came straight away.

-- Visit Sabrina's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Orlando 2016   Friends for Life Orlando 2016
July 5-10, 2016
Orlando World Center Marriott
Orlando, Florida
Fourth of July with CWD Fundraiser
Docu-Diabetes II Call for Movies
DSF Family and Individual Scholarships

Friends for Life Falls Church 2016   Friends for Life Anaheim 2016
September 16-18, 2016
Disneyland Hotel
Anaheim, California

Reports from recent CWD conferences & events:
-- UK 2015, Canada 2015, Anaheim 2015, Orlando 2015
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 755 panels. The latest quilt is from Brianna.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
While putting on my makeup, my 8-year-old diabetic daughter was looking at a lipstick case with several different colors in it. She said, "Hey, this looks like my ketone strip -- this shade is high and this one is trace."
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... you get an advertisement online saying that they have the perfect pump and you wonder, "Animas or Tandem?", only to find out it is a shoe store advertisement.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] The Little Red Sports Car by Eleanor Troutt, illustrated by J. Chris Price. Published by the author and available through Lulu.com. ISBN 9780615132815. $12.95.
Book cover  

The subtitle of The Little Red Sports Car is "A Modern Fable About Diabetes." The story is about a car with an automatic transmission (e.g., the pancreas) that breaks. The car has to be changed to a manual transmission and needed a special additive to run again (e.g., insulin injections).

For parents of young kids with diabetes, The Little Red Sports Car offers a gentle explanation for what has happened to their body. It's a very easy read and is colorfully illustrated.

Order from Amazon.com Order The Little Red Sports Car from Amazon.com
-- Other books for kids and teens with diabetes
-- Recently Featured Books


Ask the Diabetes Team
My daughter's C-peptide has gone up since diagnosis and she was negative for antibodies. Could she have type 2 or MODY? (19 Apr 2016)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- Teens with Type 1 Diabetes and their Parents are needed for a shared decision making study about the use of insulin pumps and continuous glucose monitoring systems.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Parents, how soon after your child's diagnosis did you begin going out again with just your spouse?

 
   

Within one month

 
   

Within three months

 
   

Within six months

 
   

Within a year

 
   

More than a year

 
   

We haven't gone out alone and don't plan to

 
   

We want to go out alone but haven't found the right babysitter yet

 
   

We didn't go out when our child was younger, but now that they are older and we don't need a sitter, we do go out

 
   

Parents go out alone?

 



Poll Results

 

Parents, how soon after your child's diagnosis did you begin going out again with just your spouse?

 
     

Within one month

 
 

5%

 

 
     

Within three months

 
 

15%

 

 
     

Within six months

 
 

0%

     
     

Within a year

 
 

0%

     
     

More than a year

 
 

21%

 

 
     

We haven't gone out alone and don't plan to

 
 

5%

 

 
     

We want to go out alone but haven't found the right babysitter yet

 
 

0%

     
     

We didn't go out when our child was younger, but now that they are older and we don't need a sitter, we do go out

 
 

21%

 

 
     

Parents go out alone?

 
 

31%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 27-Apr-2016 20:20:13 UTC
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