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  Back to Friends for Life UK 2015 Friends for Life UK 2015 Faculty
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Professor Katharine Barnard, PhD, CPsychol, AFBPsS, is a Chartered Health Psychologist, Associate Professor of Health Psychology and internationally renowned expert on the psychosocial aspects of diabetes. Prof Barnard has extensive experience in developing the evidence base and theory behind psychological interventions, in clinical trials design, management, analysis, reporting, dissemination and exploitation of project outcomes. Her research portfolio spans psychosocial aspects of diabetes management, health technology assessment, translational medicine and impact of technologies on the lives of people with diabetes. Leading the psychosocial investigation on several clinical trials including the impact of artificial pancreas devices, the impact of a lifestyle intervention for adults with schizophrenia at risk of T2D, longitudinal comparison of CSII versus MDI, web-based interventions for depression and diabetes, minimizing the impact of risk taking behaviours for young adults with T1D, and improving communication between healthcare professionals and people with diabetes. She is an Expert Adviser to NICE and the All Party Parliamentary Group on Diabetes, recent Chair of the Diabetes UK Annual Professional Conference Organising Committee, Member of the British Psychological Society, Registered Practitioner Health Psychologist and a member of the Psychosocial Aspects of Diabetes Study Group of the European Association for the Study of Diabetes. Professor Barnard is an expert member of several global advisory boards and is an editorial board member of three international diabetes medical journals, whilst providing professional peer review on additional twelve medical journals. She has published over 70 scientific articles, book and several book chapters on psychology and diabetes. Professor Barnard's goal is to minimize the burden of diabetes and improve the quality of life for people living with diabetes.


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Adrienne Burton is a legal secretary working for the family business for the past 28 years. Her daughter was born with Congenital Hyperinsulinism (CHI), a rare genetic condition, discovered at birth, necessitating the removal of her pancreas at 7 weeks old. She had her first insulin injection a week later and has moved through many type 1 treatment regimens over the years. She now wears an insulin pump and CGM. Adrienne, entering the world of diabetes and CHI advocacy, discovered CWD UK 12 years ago. She wanted to meet others, so she arranged a relaxing weekend away, which has now been running for 9 years. It's fondly referred to as the Hoburne Weekend, and several hundred people from the CWD UK group attend. Adrienne serves as the Vice Chair for the FWD NN, attending network meetings and representing a parent's insight and views. Adrienne also started and manages The Children's Hyperinsulinism Fund and support group. She has attended all the FFL conferences in the UK; it is where she and her daughter both feel they 'at home.'

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Dr Fiona Campbell is a consultant paediatrician and diabetologist at St James's University Hospital, Leeds. Her research interests are in paediatric diabetes with a particular interest in the use of insulin pumps. She started the paediatric pump programme in Leeds in October 2002 and 90 children currently attending the paediatric diabetes service use a pump to control their blood glucose levels. Dr Campbell has been involved in many local, national and international diabetes research studies and has recently been awarded a grant from Diabetes UK for a multi-centre, randomised, controlled trial to look at the incidence of hypoglycaemia in children using continuous glucose monitoring on pumps versus multiple daily injections. She is an Insulin Pump Association steering group member and has been on the DoH Insulin Pump Working Group which published its report in 2007. She was also the Diabetes UK nominated clinical expert at the TA 57 NICE guidelines review of pump therapy.


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Vincent Crabtree, PhD, joined JDRF in January 2015 and is currently a Director in Research Business Development, where he identifies and manages industrial initiatives related to the Artificial Pancreas program. Dr. Crabtree has over 12 years' experience developing complex medical devices, and has led the development of several products which are currently regulatory cleared, including co-founding a company which developed a product based on research Dr. Crabtree performed as part of his PhD. Prior to joining JDRF, he worked as a consultant at a well-known medical device consultancy group in Western Canada, and is the inventor on dozens of granted patents worldwide. Dr. Crabtree is a Yorkshireman from a mining village near Sheffield, England. He received his undergraduate degree in electrical Engineering from Bradford University in West Yorkshire, and his doctorate in biomedical optical sensing from Loughborough University in the UK's Midlands, where he worked for 5 years as a postdoctoral research fellow on several healthcare related optical sensing projects.

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Ashley Head is a CWD dad on both sides of the Atlantic – at Friends for Life Orlando and Friends for Life UK! Ash has been a Trade Show Professional for the last 30+ years, specializing in international event logistics; he has coordinated shows all over the world. Ash also serves on the Challenge Events Committee for the JDRF UK. He is married to Shayne, and dad to 20-year-old Phoebe, who was diagnosed with type 1 diabetes in 2001. He is also dad to Jake, age 26.

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Peter Hindmarsh is Professor of Paediatric Endocrinology at University College London and Consultant in Paediatric Endocrinology and Diabetes at University College London Hospitals and Great Ormond Street Hospital for Children. He has worked closely with the UK Department of Health to assess Paediatric Diabetes Care and practices diabetes within an inter-disciplinary team based on a flat system model. His research interests are in long term complication in diabetes and the mathematical modelling of data sets.

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Jeff Hitchcock is the creator, editor, webmaster and president of Children with Diabetes. After earning a degree in computational mathematics in 1981, Jeff worked in high tech and traveled the world, meeting Brenda, who would become his wife, in Africa. He worked in defense related industries until 1995, when he started a small Internet company and launched Children with Diabetes. He subsequently worked at LEXIS-NEXIS and Pearson plc on Internet initiatives, and now works full time bringing Children with Diabetes to you.

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Jackie Jacombs became involved in the CWD parents mailing list in the USA shortly after her daughter Sasha was diagnosed with diabetes in 1999. There were no equivalent support mailing lists or websites in the UK, so Jackie asked CWD Founder Jeff Hitchcock if he would set up a mailing list for UK families. This was the start of a strong on-line community of families in the UK. The UK CWD Advocacy Group, which was formed in 2007, is still asked to be involved with various campaigns by JDRF and Diabetes UK. There are annual family meetings, and parents who live near each other arrange to meet up with their children in the holidays. Jackie's groups also support the work of INPUT whenever possible. Jackie's daughter, Sasha, is now 21 years old. Her identical twin does not have type 1, but both have celiac. Jackie has been on the faculty of every Friends for Life UK conference.

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Lesley Jordan was 18 months old when she was diagnosed with type 1 diabetes. She started using a pump in 2002 and saw the benefit immediately. Disappointed to hear how difficult it is for some people to get a pump, she started volunteering with INPUT (a patient-led group) in 2005, and when John Davis MBE retired in 2011 she took over as Chairman. She is a passionate advocate for access to all diabetes-related technology, and loves using technology in her work, too - maintaining INPUT's website, Facebook page and Twitter account. She is "mum" to two cats and a husband!

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Scott Kyllo lives in British Columbia, Canada. He has two children, Alyssa (23) and Chad (21). Their path along the diabetes road started in 1996 when his son, Chad, then age 2 was diagnosed with type 1 diabetes when they were residing in Bahrain in the Middle East. The World Wide Web had just arrived in Bahrain and it brought to the Kyllo's the safety of the CWD family. Two years later, when life was becoming somewhat comfortable and routine, Alyssa, then age 7, was also diagnosed with type 1 diabetes. Chad was also diagnosed with celiac disease in 2001. The family attended their first Friends For Life conference in 2002. Getting to meet the CWDers in person was like Christmas in July! Scott is a Chief Information Officer by day and an Aircraft Engineer by night maintaining a Piper Cherokee and a Mooney. These skills and his "Macgyver" qualities keep him running at the CWD conferences as our Information Technology and Audio Visual support person. He is a strong advocate of CWD conferences and believes anyone with a connection to diabetes should attend at least one ... although warns that the conferences are much like potato chips ... it's hard to stop at just one!

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Harold Sanco, CPT, is a former National Aerobic Champion and two time bronze medalist at the National Step Challenge Competition. He has been voted Washington, DC’s “Best Instructor” by Washingtonian Magazine and the Washington Post. With more than 20 years of experience in youth physical education and coaching, he is an internationally acclaimed instructor and trainer who teaches across the United States, Canada and 15 countries for some of the top fitness conferences in the world. His popular “Urban Funk” class has been featured in People, Allure and W magazines. He is AFAA certified and a Master Trainer for Lebert Training Systems. Currently he serves as the Director of Group Fitness for the award-winning Results Gym in Washington, DC and the Director of Fitness for two National Youth groups “Children with Diabetes” and “Workout4Kids.”

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Gary Scheiner, MS, CDE, is owner and Clinical Director of Integrated Diabetes Services, a practice located just outside of Philadelphia specializing in intensive insulin therapy and advanced education for children and adults. He and his staff provide consultations throughout the world via phone and the internet. Gary is a Masters-level exercise physiologist. He has been a Certified Diabetes Educator for 19 years, and served as the 2014 Diabetes Educator of the Year. He has had type 1 diabetes for 30 years and makes personal use of insulin pump therapy and CGM. Gary has written dozens of articles for diabetes trade publications and six books, including the popular Think Like A Pancreas - A Practical Guide to Managing Diabetes With Insulin. He lectures nationally and internationally for people with diabetes as well as professionals in the healthcare industry. In addition to serving on the faculty of Children With Diabetes and the Board of Directors for JDRF, Gary volunteers for the American Diabetes Association, Diabetes Sisters, and Setebaid Diabetes Camps. Gary has been happily married for 25 years and has four wonderful kids. A fitness fanatic, he enjoys playing basketball, running, cycling and cheering on his Philadelphia sports teams.

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Joe Solowiejczyk, RN, MSW, CDE is a diabetes nurse educator and family therapist who has has been working as a clinician in the diabetes field for over 35 years. In addition, he's a "person living with diabetes, type 1" for over 50 years. He is author of the recently released book "A Type 1 Diabetes Guide to the Universe" and is president and founder of A Mile In My Shoes, a consulting company that provides counseling and education to patients and their families as well as training and supervision for healthcare professionals. He is a nationally and internationally well-known public speaker and trainer, integrating his personal experiences of living with diabetes into unique and creative treatment strategies for adults and families. As a Diabetes Educator and Family Therapist he specializes in making the link between how families communicate and support each other to how children manage and take care of their diabetes, helping both children and families cope more effectively with the daily challenges of living with diabetes. He has a particular expertise in working with teens who are having difficulty with their diabetes, helping them and their families adopt more effective coping strategies.


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Rebecca Thompson RSCN BSc MSc is a Nurse Consultant for paediatric and adolescent diabetes at University College London Hospital. She has been supporting children and adolescents and their families living with diabetes since 1997, with the service now supporting 450 children and young people with diabetes (using MDI and pumps). The service won awards in 2011, for quality and efficiency and 2014 for initiatives to support self-care. Rebecca is involved in a number of national groups looking at the education and competencies of health care professionals within diabetes and Insulin Pump therapy.

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Jill Weissberg-Benchell, PhD, CDE, Pediatric Psychologist, Associate professor of Psychiatry, Northwestern's Feinberg School of Medicine, Chicago, Illinois. She has been a certified diabetes educator for over 20 years and is an author of numerous research articles, and a co-author of a book on transitioning from pediatric to adult care. Dr. Weissberg-Benchell works with children, teenagers and their families to facilitate adaptation and coping with diabetes and other chronic conditions.


CWD Staff

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Jeff Hitchcock is the creator, editor, webmaster and president of Children with Diabetes. After earning a degree in computational mathematics in 1981, Jeff worked in high tech and traveled the world, meeting Brenda, who would become his wife, in Africa. He worked in defense related industries until 1995, when he started a small Internet company and launched Children with Diabetes. He subsequently worked at LEXIS-NEXIS and Pearson plc on Internet initiatives, and now works full time bringing Children with Diabetes to you.

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A finicky connoisseur of hotel meeting space, cappuccino, and kid-friendly cheese and fruit platters, Laura Billetdeaux is CWD's VP of Education and Programs. Since 2000, Laura has organized every single CWD conference, always keeping in mind the true purpose of CWD - education and support of families with type 1, and always keeping in mind why it all works – the efforts of so many dedicated individuals. Laura lives in Manchester, Michigan with husband Neal, who graciously and energetically assists with the conference teen programs. They are parents of Sam and Carolyn who both serve as youth faculty at CWD conferences as time allows.

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Jim Vail was diagnosed with type 1 diabetes in 1986 at age 19 while he was a sophomore at the State University of New York at Fredonia. Jim graduated with a degree in Media Communications and was a producer for CNBC Business news in Washington, D.C., for 9 years all the while wrestling with the unpredictability of short and intermediate acting insulin. After finally going on a pump in October of 2001 and 'getting his life back,' Jim began volunteering at CWD in the teen program where he quickly became one of the Program Coordinators. He's worn, tested or personally used virtually every product represented in the Exhibit Hall. Jim serves as the Director of Development and Communications for CWD.

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Liz Gillum is mum to Chloe, who is now 22 and was diagnosed at age 9 with type 1 diabetes, and also mum to Jack, age 19. Liz spends time promoting the work of JDRF and educating others on living with type 1 diabetes. She is a great supporter of all things CWD and loves attending FFL where her entire family has made many "Friends for Life."


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Ashley Head is a CWD dad on both sides of the Atlantic – at Friends for Life Orlando and Friends for Life UK! Ash has been a Trade Show Professional for the last 30+ years, specializing in international event logistics; he has coordinated shows all over the world. Ash also serves on the Challenge Events Committee for the JDRF UK. He is married to Shayne, and dad to 20-year-old Phoebe, who was diagnosed with type 1 diabetes in 2001. He is also dad to Jake, age 26.

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Terry Jacombs has attended the three Friends for Life UK conferences held in Old Windsor. He is partner to Jackie, Dad to Sasha who has had type 1 for 15 years and before she went off to university helped out doing a lot of the diabetes chores, keeping a note of set change days, making sure we didn't run out of insulin and infusion sets and gluten free food. This gave Jackie more time to spent on the email list. Now that Sasha has become more independent this has changed to being there in the background to help if needed. In a former life, Terry worked as an IT Director for a large UK financial institution and still enjoys dabbling in IT in a very amateur way these days. Terry also enjoys sports and tries to remain active by walking and cycling. He is looking forward to helping out with anything he is asked to do at this year's conference.

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Scott Kyllo lives in British Columbia, Canada. He has two children, Alyssa (23) and Chad (21). Their path along the diabetes road started in 1996 when his son, Chad, then age 2 was diagnosed with type 1 diabetes when they were residing in Bahrain in the Middle East. The World Wide Web had just arrived in Bahrain and it brought to the Kyllo's the safety of the CWD family. Two years later, when life was becoming somewhat comfortable and routine, Alyssa, then age 7, was also diagnosed with type 1 diabetes. Chad was also diagnosed with celiac disease in 2001. The family attended their first Friends For Life conference in 2002. Getting to meet the CWDers in person was like Christmas in July! Scott is a Chief Information Officer by day and an Aircraft Engineer by night maintaining a Piper Cherokee and a Mooney. These skills and his "Macgyver" qualities keep him running at the CWD conferences as our Information Technology and Audio Visual support person. He is a strong advocate of CWD conferences and believes anyone with a connection to diabetes should attend at least one ... although warns that the conferences are much like potato chips ... it's hard to stop at just one!

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Julia Mattingly is mom to 20 year old Hannah and 18 year old Ethan, who was diagnosed with type 1 diabetes at age 10 months and started pumping when he was 3. Julia, Ed, and the kids have been to every Friends for Life conference and most of the regionals as well. Julia coordinates registration at each conference, and you can always find her when you need a smile and a "Hi Y'All!" Julia loves coordinating registration and being able to meet and talk to everyone who walks in the door. Her best CWD memory is from 2000 when she met all of her CWD email moms in Orlando for the first time. She also loves to see the smiles on her children's faces when they re-connect with their CWD friends each summer.

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Kristen Seiz, MS, RD, CLC, was diagnosed with type 1 diabetes at the age of 9. Inspired at a young age by her diabetes, she pursued a career to become a dietitian and studied for her Masters degree at D'Youville College in Buffalo, NY. She lives and works in Buffalo as a Nutritionist at a Catholic Charities WIC Office. Upon attending her first CWD Conference in 2011, she fell in love with the people and relationships she formed and was determined to become a part of it. This is the first year Kristen will be a part of the CWD staff and she is looking forward to working with the kids, seeing old friends and meeting many more!

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Joanne Stroud, MHA, FACHE, is first and foremost a CWD Mom. Her son Ben was diagnosed in 1998 at the age of ten and CWD quickly became their lifeline. She attended her first conference in 2003 and instantly became hooked, telling Laura she'd do anything (within reason of course!) she could to assist CWD. Both Ben and his brother James are now 'giving back' as CWD volunteers. When not hanging with her FFLs, Joanne is an administrator for a home health agency. She and Jim, a CRNA, have one other son, Kyle who lives in Portland, OR with his fiancée Sarah.

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David Sutherland is Dad to Rebekah (20) who was diagnosed with type 1 diabetes when she was newly three. He is also dad to Jamie, Gemma and Sarah and married to Gwen. David is on the CWD Staff in both Orlando and UK, which he finds very rewarding. David is a criminal defence lawyer in Aberdeen and when not in court he enjoys cycling, trying to play golf and watching sport.

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Gwen Sutherland is mum to Jamie (30), Gemma (29), Sarah (27) and Rebekah (20) who was dx'd on 10 August 1998. She attended her first Friends for Life UK conference in 2010 with husband David and Rebekah and has not missed one since. Gwen and Rebekah attended FFL Orlando in July 2013 which was THE most amazing experience. They were joined the following year by David and now all volunteer on both sides of the Pond. Gwen is an avid supporter of JDRF, organising several fund raising events along with Rebekah, and has been a member of the Ball Committee in Aberdeen since 2006 which has raised over £1million since the first Ball in 2004!

  Friends for Life UK 2015 Conference and Expo  
  Introduction - Registration - Faculty - Youth Faculty - Nightscout Faculty  
  Schedule - Youth Schedule - Nightscout Parts List  
  FFL UK Reports from 2014 - 2013 - 2012 - 2011 - 2010 - 2009  



                 
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Last Updated: Thursday August 17, 2017 14:50:48
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