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Crystal Jackson is Associate Director of Legal Advocacy at the American Diabetes Association (ADA)'s National Office in Alexandria, Virginia. Her primary responsibility is managing the Association's Safe at School Campaign. Crystal is considered a national authority on the rights of students with diabetes and has spoken at conferences and forums throughout the United States and internationally on how to effectively advocate on behalf of students with diabetes, training hundreds of parent advocates, attorneys, and health care professionals. A parent of a child with diabetes, Crystal began her advocacy as a volunteer for ADA when she and another parent advocate teamed up to pass the first state diabetes school legislation in the country which provides comprehensive coverage for students with diabetes in Virginia. Simultaneously she pursued a complaint with the Office of Civil Rights of the Department of Education resulting in a settlement that is a model for safe and effective diabetes care. Crystal is a former litigation paralegal with the Philadelphia law firm of Fox, Rothschild, O'Brien & Frankel. She is a contributor to many diabetes publications including the U.S. Department of Health and Human Services National Diabetes Education Program's school guide entitled "Helping the Student with Diabetes Succeed: A Guide for School Personnel" and the ADA's treatise on school issues: "Legal Rights of Students with Diabetes." Crystal is a member of the Virginia Diabetes Council, serves on a number of other diabetes and youth advisory boards, and was most recently appointed to Novo Nordisk's U. S. DAWN Youth Study Advisory Board. She resides in Loudoun County, VA with her family.
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Nicole Johnson, MA, MPH, Miss America 1999 works on diabetes advocacy and education worldwide. She has spoken in 49 states and 15 countries over the last 11 years about the importance of diabetes education. Nicole was diagnosed with type 1 diabetes at 19 while a sophomore at the University of South Florida. Since that time, Nicole has formed a consulting company and foundation that focuses on diabetes education and the public health impact of the disease. Her passions include diabetes research participation and pregnancy and diabetes. Nicole and her daughter Ava are active participants in TrialNet and TRIGR to try to learn about genetics and the family impact of diabetes. Presently, Ava has no antibodies that signal diabetes! Nicole is currently the Director of Communication and Education at the University of South Florida Diabetes Center and through the University is helping design what the next generation of diabetes centers will look and feel like. Nicole is working with Dr. Steve Klasko, CEO of USF Health and an Obstetrician, to finally write a book on diabetes and pregnancy. (The book will be finished in late fall 2009.) The book will compliment Nicole's work on preconception care with the University of Pittsburgh. A DVD on the topic will also be published soon. You can see Nicole each week as she hosts dLifeTV on CNBC, or you can find her columns on Diabetes Reality on the internet monthly at www.mycareteam.com and www.dlife.com. She has been attending CWD conferences since 2000.
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Tom Karlya, Vice President of the Diabetes Research Institute Foundation, is commonly known throughout the diabetes community as Diabetes Dad, his pen name used virtually everywhere, including his monthly column which appears at www.dLife.com/diabetesdad. He has been active in diabetes causes since his daughter, Kaitlyn, was diagnosed in 1992 at the age of 2. Tom has been introduced to the New York State Capitol, testified in Washington, D.C., appeared at diabetes-related events at the United Nations and has lectured, taught, and chaired many conferences, panels and keynotes about being a Diabetes Dad. He also received numerous commendations for his work in the Katrina efforts where he was instrumental in organizing relief efforts to over 10,000 people with diabetes. Tom was awarded The Jeff Hitchcock Distinguished Service Award from The Children with Diabetes in 2008. For 12 years as an actor, he starred in the New York City Production of Tony 'N Tina's Wedding, working with the original NY Company and also at The Kennedy Center for the Performing Arts, Washington, D.C., in Summer of the 17th Doll. His film, lbs., was seen at the Sundance Film Festival, and he appeared in Unsolved Mysteries, Spin City, The Cosby Show, NYPD Blue, Law and Order, America's Most Wanted, Entertainment Tonight, Access Hollywood, and other shows as well as numerous commercials. If you ask Tom he will tell you that above everything else, he's just a CWD Dad.
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Stefan Rubin was diagnosed type 1 in 1979, at the age of seven and began insulin pump therapy three years later. He considers his experience an invaluable exercise and education that continue to prepare him for any hurdles that diabetes-and-life place in his path. Long a source of inspiration for his father, Dr. Richard R. Rubin, Stefan is co-author of two books, including 101 Tips for Coping with Diabetes, published in 2003 by the American Diabetes Association. Stefan also speaks locally and nationally in an ongoing attempt to share his outlook on living well with diabetes. Stefan and his wife Christine, live, work and play with their son Brooks and daughter Maisie in Baltimore, Maryland.
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John Walsh, PA, CDE is a Physician Assistant and Diabetes Clinical Specialist who has provided clinical care for patients with diabetes for 25 years. He specializes in diabetes care for people on pumps. He is co-author of Pumping Insulin, now in its fourth edition, Using Insulin, STOP the Rollercoaster, and The Pocket Pancreas. President of Diabetes Mall, he is also webmaster of diabetesnet.com, a highly trafficked source of diabetes information and technology visited by 6,000 people a day. John is a consultant for medical corporations and a frequent speaker on pump therapy, diabetes therapy, intensive diabetes management, and the future of smart pumps, meters and continuous monitors. John has worn a wide variety of insulin pumps for the last 23 years.
Friends for Life 2009 Conference and Expo Introduction - Partners & Sponsors - Exhibitors - Convention Center Map Faculty - Youth Faculty - Grandparent Faculty - CWD Staff - Special Guests Registration - FAQs - Kids' Voices Schedule: Parents & Adults - Youth - Young Adults - Focus Groups FFL Reports from 2008 - 2007 - 2006 - 2005 - 2004 - 2003 - 2002 - 2001
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Last Updated: Monday December 07, 2009 12:08:21
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