James Gjertsen - Quilt 600
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James on his quilt
Diagnosed April 26, 2007
Only three children a year in the U.S. are born with diabetes. "Sweet Baby James" was one of them. He was delivered five weeks early because he was not growing in the womb, and he was subsequently diagnosed with diabetes mellitus, diabetes insipidus, holoprosencephaly (partially fused lobes of the brain), a non functioning pituitary gland, and severe pancreatic insufficiency (affecting both insulin and digestive enzymes). He also has hearing problems.
James spent four and a half months in the Winnie Palmer NICU, mainly because his blood sugars were very hard to control. It was common for him to shoot from 30 to 450 after one feeding; he also struggled with hypoglycemia because even the smallest doses of insulin would overwhelm his body. He registered the upper and lower limits of the glucometer many times.
While there, he was comforted by his first favorite toy, Mr. Bee. His parents were comforted by James' life verse, Romans 8:28: "And we know that God works all things for the good of those who love Him and who are called according to his purpose." You can see photos and read more about James' life on our blog, sweetbabyjames.info.
By the grace of God and with the help of many medical professionals, James is now home and doing quite well. His parents are looking forward to getting his first insulin pump when he is about 9 months old. His grandmother, Lamons Warren, lovingly made this quilt to tell his story.
James got his pump when he was almost 10 months old. He and his family participated in the JDRF Walk for the Cure in Orlando in March 2008.
On August 20, 2008, Sweet Baby James died unexpectedly in his sleep, probably as a result of his neurological problems. His joyful life was a testimony to the grace and power of God in the lives of the weak. Many people gave contributions to JDRF in his honor. Now he is in heaven with Jesus, where he can no longer say "I am ill" (Isaiah 33:24), he can feast on rich food (Isaiah 25:6), and will have everlasting joy (Isaiah 35:10).
Quilt lovingly made by Grandmother Lamons Warren
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Last Updated: Tuesday December 22, 2009 11:19:20
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