advertisement
 

  Back to Chat 504 Plans

On Thursday, August 21, 2003, Diabetes Nurse Specialist Steph Schwartz led a chat about 504 plans. The following links were either mentioned during the chat or provide additional information about 504 plans:

Moderator   (server) Thu Aug 21 08:00:00 PM EDT 2003
Our chat about 504 Plans with Steph Schwartz starts at 9pm Eastern.


ketonekiller89   (67.162.234.134) Thu Aug 21 08:31:13 PM EDT 2003
hiya

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 08:49:51 PM EDT 2003
Is this the 504 chat room?

bebe   (67.33.195.69) Thu Aug 21 08:51:03 PM EDT 2003
hi everyone!

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 08:52:18 PM EDT 2003
hi bebe

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 08:53:07 PM EDT 2003
Hiya!

Allison Sevaun, 5 dx'd @ 3; daughter to Jean, dx'd 1949  (207.213.88.135) Thu Aug 21 08:53:53 PM EDT 2003
Hi, all

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 08:55:03 PM EDT 2003
Hi Everyone

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 08:55:27 PM EDT 2003
Do you guys want to start?

karen mom of joe, 11  (68.193.206.144) Thu Aug 21 08:56:44 PM EDT 2003
hi

Allison Sevaun, 5 dx'd @ 3; daughter to Jean, dx'd 1949  (207.213.88.135) Thu Aug 21 08:57:09 PM EDT 2003
I'm just lurking to get tips on dealing with school personnel because we don't have a 504 because Sevaun goes to private school. Smile 

Mike Stoker (OH) CWD Staff  (216.196.249.134) Thu Aug 21 08:57:12 PM EDT 2003
Hi Steph

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 08:57:34 PM EDT 2003
Hi Karen and welcome

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 08:57:36 PM EDT 2003
ok - what parameters do you recommend for a 504?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 08:57:51 PM EDT 2003
Welcome everyone to the school chat!

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 08:58:04 PM EDT 2003
Does anyone have an burning issues?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 08:58:46 PM EDT 2003
Meadow every child is different
I'm nor sure I know what you mean by parameters

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 08:59:12 PM EDT 2003
Hi Steph,
How do you know when to push for in-classroom testing?

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 08:59:37 PM EDT 2003
blood glucose testing, that is! :-)

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 08:59:39 PM EDT 2003
Are all kids with type 1 eligible for 504 plans? I was told by a schoo official that my son would have to fall behind in learning to be eligible.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:00:31 PM EDT 2003
I'd feel out the comfort level of the school

Ellen (FL) Zack 15, dx'd Feb. 1989  (152.163.252.2) Thu Aug 21 09:01:12 PM EDT 2003
Meadow, my feeling is my child should not miss one minute of classroom instruction. The bg test takes less than 15 seconds.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:01:23 PM EDT 2003
All kids with diabetes are eligible because it intereferes with activities of daily living

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:02:25 PM EDT 2003
Ellen, thats what I think. Zack carries his meter and tests when he needs to?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:02:41 PM EDT 2003
Ellen, I agree, BUT if the school is adament about not doing it in class would you want to create animosity?

Katie mom of tom, 9, dx'd 4 weeks ago  (67.75.111.55) Thu Aug 21 09:03:13 PM EDT 2003
hello,

Ellen (FL) Zack 15, dx'd Feb. 1989  (152.163.252.2) Thu Aug 21 09:04:47 PM EDT 2003
Yes I would Steph, because no child should be left behind, and missing valuable classroom instruction is WRONG. It's vital to educate the school about how necessary it is for the child to be able to check bg wherever the child is...there's simply no time to move to a nurse's office if the child suspects he/she is low either.

Katie mom of tom, 9, dx'd 4 weeks ago  (67.75.111.55) Thu Aug 21 09:04:47 PM EDT 2003
what kind of information do I need to bring with me for a 504 meeting?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:04:57 PM EDT 2003
Hi Katie and welcdome!

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 09:05:16 PM EDT 2003
I've heard that once a 504 plan is signed off on, it can't be changed until the following school year. Is this true?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:05:33 PM EDT 2003
Who has a child who is allowed to test in the classroom?

Linda/UT Kim 15, Alla 15  (216.126.204.32) Thu Aug 21 09:05:45 PM EDT 2003
Hi

Katie mom of tom, 9, dx'd 4 weeks ago  (67.75.111.55) Thu Aug 21 09:05:49 PM EDT 2003
also how soon do I have the right to schedule a meeting
?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:05:54 PM EDT 2003
No Jill -- it can be ammended at any time

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:06:18 PM EDT 2003
How soon? ASAP

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:06:29 PM EDT 2003
We have approval this year -- only because the health dept intervened on our behalf.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:07:31 PM EDT 2003
Meadow would you tell us how you accomplished that?

Linda/UT Kim 15, Alla 15  (216.126.204.32) Thu Aug 21 09:08:56 PM EDT 2003
Luckily in our district my children can test anywhere they want to. I'd be adamant about my child testing in the classroom because these kids feel different enough why should they have to get up leave the classroom test and come back. Boy, they could be gone 15 minutes when they could just test indiscreetly in just a few seconds. Most of the time our girls have tested in class the teacher hasn't even been aware. I think the main reason schools are hesitant to have children test in the classroom is because of the whole blood issue...and we all know that a child picking a scab etc can cause much more blood. Many schools just need to be taught what is going on.

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 09:09:00 PM EDT 2003
Our school has agreed to test my son in the classroom. We are very fortunate because they have hired an aide to assist another child with disabilities who will also be available to help my son. He is only 5 and still just learning how to test himself.

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:10:26 PM EDT 2003
I started with county health dept -- they administer the school nursing program where I live (AA CO/MD). I was fortunate to find an advocate in the regional supervisor. THEN I broached the school administration. When they resisted, I was able to say with confidence that the health dept was OK with the idea.

Ellen Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:10:34 PM EDT 2003
My son's been checking in class since he was old enough to do so and understand the numbers on the meter.

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:11:04 PM EDT 2003
Good for you Meadow.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:11:47 PM EDT 2003
I agree -- The ADA website has a wonderful powerpoint presentation for use in training schools. Many of us participated in reviewing and editing the materials. Its downloadable and free

Linda/UT Kim 15, Alla 15  (216.126.204.32) Thu Aug 21 09:12:09 PM EDT 2003
I think that not letting children test where ever is just something out of the dark ages

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:13:43 PM EDT 2003
Also there's a free manual available from NIDDK -- written with the input of MANY organizations INCLUDING the School Nurses' Association -- the link is on our Homepage

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:14:06 PM EDT 2003
Linda, I heard the blood excuse. Puh-lease, my younger son gets nosebleeds that exceed a decade of finger pricks!

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 09:15:09 PM EDT 2003
What about IEP's. My son has an IEP for speech, but I was told that his diabetes care plan is not a part of that document.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:15:25 PM EDT 2003
The recommendation in that manual is in-classroom testing
you can download the page and bring it to your meetings

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 09:15:41 PM EDT 2003
Can he have both an IEP (for speech) and a 504 for diabetes?

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:16:21 PM EDT 2003
Has anyone had to refer back to thier 504 plan to have a test discounted or anything?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:16:28 PM EDT 2003
The IEP is for a LEARNING problem; the 504 is different and lists accomodations needed for diabetes management at school

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:17:00 PM EDT 2003
the answer is Yes Jill

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:17:52 PM EDT 2003
My son has never used that Meadow, even though he's had some lows during tests. I'm hoping my son will check bg at least an hour or so before any major test now that he's in high school.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:19:07 PM EDT 2003
Great idea Ellen

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 09:20:11 PM EDT 2003
Speaking of all this blood and concerns about blood borne pathogens, it seems to me our children are more at risk than anyone else in the classroom because they are the ones getting pricked. Do you have any comments on how to protect our kids from other kids' blood?

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:21:13 PM EDT 2003
I didn't think about testing an hour before so things could be corrected and on-track by test time -- why do the obvious things elude us???

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:21:35 PM EDT 2003
The same way you'd protect any other child. Good hygeine on particular

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:22:11 PM EDT 2003
Meadow, just because we think of it, doesn't necessarily mean our child will  Rolling Eyes  Razz 

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:24:27 PM EDT 2003
Steph, do you think it's dangerous for a child to take a shot of Humalog in the nurse's office and then walk to the cafeteria for lunch? What if there's a fire drill...or some other delay en route?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:24:52 PM EDT 2003
How about injections? How many of your kids need to inject at school?

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:25:37 PM EDT 2003
Ellen, when Tommy was using injections, we had an agreement with the school nurse that he could have his injection if his BG was over 140 but otherwise he stopped by after lunch and got his injection. Lots of visits to the nurses office...

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 09:26:19 PM EDT 2003
Good Evening... just joined in.

Judith David, 17, diagnosed at age 2 months  (65.171.1.205) Thu Aug 21 09:26:48 PM EDT 2003
Hello...
Speaking of fire drills, should put something in the 504 re: management during disaster situations. Need to be sure there is alwaya a carb source, at the very least. My boys were stranded outside for several hours (oer lunch time) during a fire at their school. Luckily, one teacher let Vanya use his cell phone to call me, and I brought juice and crackers. There were other kids with d scattered around on various buses, with no carb. School health aid had no idea where they were.

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:26:58 PM EDT 2003
Hi Rick

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:27:30 PM EDT 2003
Hi ya Rick! Grant is 6?

Judith David, 17, diagnosed at age 2 months  (65.171.1.205) Thu Aug 21 09:27:43 PM EDT 2003
I had enough snack stuff for all the kids, but could not find them.  Frown 

Linda/UT Kim 15, Alla 15  (216.126.204.32) Thu Aug 21 09:27:47 PM EDT 2003
I think that we also need to make sure that our kids always have back up stuff with them...easier said than done

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:28:16 PM EDT 2003
Should kids be allowed to carry a cell phone with them and have that written into their 504 as long as they keep it off and only use it for emergencies?

Cyndee (FL) Chandler 9 (dx'd 6/01), pumping  (65.40.55.174) Thu Aug 21 09:28:16 PM EDT 2003
Usually the school know when there is a fire drill, and hopefully they would not give them Humalog right before one. Last year however, my son (Sean 14, dx'd 6/00) had a actual bomb threat at his middle school right after he had his humalog. He was panicing, explaining that he needed to eat so they scrounged up foom from other kids (they were off site by then). He said it did prompt them to look at that kind of situation tho, and that they were planning to put together some sort of emergency food box. Maybe you could ask for something like that, the nurse or clinic assistant could grab it on their way out.

Judith David, 17, diagnosed at age 2 months  (65.171.1.205) Thu Aug 21 09:28:27 PM EDT 2003
Exactly, Linda

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:28:46 PM EDT 2003
Speaking of cell phones, the school also agree to allow Tommy to carry a cell phone provided that he keeps it turned off unless he is making a call to us.

Judith David, 17, diagnosed at age 2 months  (65.171.1.205) Thu Aug 21 09:29:34 PM EDT 2003
Interestingly, this health aide pushed a wheelchair containing a box with all the medical records.....but took no medicines, food, etc. There were about 6 or 7 kids with d.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:29:58 PM EDT 2003
Great idea Cyndi

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:30:01 PM EDT 2003
So now he'll be wearing a pump, carrying a meter and cell phone. Good thing cargo pants are still in style!!!

Judith David, 17, diagnosed at age 2 months  (65.171.1.205) Thu Aug 21 09:30:08 PM EDT 2003
The principal may know ahead of time re: drills, but nurse, aide, etc may not.

Linda/UT Kim 15, Alla 15  (216.126.204.32) Thu Aug 21 09:31:27 PM EDT 2003
And, in case of a real emergency, the kids won't have time to go back to their lockers and could really have problems...sheesh! I hadn't even thought of all that

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:32:04 PM EDT 2003
Meadw I hope he had glucose tabs tpp  Eek 

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:32:50 PM EDT 2003
Where in FL Cyndee? Yikes re the bomb threat

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:33:30 PM EDT 2003
Hates 'em, but he carries fruit roll-ups for emergencies. And I didn't mention the test strips and lancet!!

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 09:33:46 PM EDT 2003
Yes, grant is 6. Started 1st grade on wednesday of this week

Cyndee (FL) Chandler 9 (dx'd 6/01), pumping  (65.40.55.174) Thu Aug 21 09:33:49 PM EDT 2003
I am going to put into Chandler's 504 plan that if I am not able to accompany her on a field trip, that she be allowed to bring her cell phone. I ran it by the nurse and she thought I should put it in. I live in Cape Coral, by Fort Myers.

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:34:00 PM EDT 2003
My son carries individually wrapped life savers in his pocket. He eats them all day long even if his bg isn't low though.

Andy 17, dx 7/03  (24.50.149.22) Thu Aug 21 09:34:34 PM EDT 2003
Hello, I hope I didn't miss much

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:34:48 PM EDT 2003
Sounds good Cyndee

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:34:58 PM EDT 2003
We went thru a life savers phase, but Tommy kept giving them away to his friends!

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:34:59 PM EDT 2003
btw , the Deltec Cozmo manual says something about not keeping a cell phone near the pump...so you may want to suggest that your child keep it in a different pocket

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:35:03 PM EDT 2003
Hiya Andy

Linda/UT Kim 15, Alla 15  (216.126.204.32) Thu Aug 21 09:35:05 PM EDT 2003
Only problem with cellphones around here is that when you get up in the hills and mountains they don't always work so need to be careful with that...

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:36:26 PM EDT 2003
Yes some pumps have problems with an electrostsatic field from a cell phone

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:37:46 PM EDT 2003
hmmm all summer long we kept the phone and pump in the same pocket when we were at the pool. I will definitely NOT do that again!

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:38:16 PM EDT 2003
the same pocket in the cooler, that is! :)

chanie shifra, 5, pump, dx'd at 12 mos old  (192.114.47.54) Thu Aug 21 09:40:07 PM EDT 2003
hi all!!

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:40:27 PM EDT 2003
Questions. issues anyone?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:40:40 PM EDT 2003
Hi chanie

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:41:39 PM EDT 2003
Hi Chanie! Still on East coast time?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:42:14 PM EDT 2003
I general, does the school you child attends do well with diabetes management?

Linda/UT Kim 15, Alla 15  (216.126.204.32) Thu Aug 21 09:42:25 PM EDT 2003
Steph, now that we know ways to help the school be more responsible...do you want to address ways to get teens to be more responsible? LOL

chanie shifra, 5, pump, dx'd at 12 mos old  (192.114.47.54) Thu Aug 21 09:43:07 PM EDT 2003
i'm in israel, but woke up jet lagged. got back here yesterday

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:43:12 PM EDT 2003
Can a 504 include standardized testing accomodations, or does that have to be done through another organization?

chanie shifra, 5, pump, dx'd at 12 mos old  (192.114.47.54) Thu Aug 21 09:43:23 PM EDT 2003
(why do i keep being kicked out of the room? says it has closed?)

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:43:23 PM EDT 2003
wait ti they grow up??  LOL 

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 09:43:56 PM EDT 2003
we were pretty happy with the way last year went, though we went in totally blind. We had a few hiccups with sub teachers and other issues, but learned from those. We have a full time LPN on staff too that makes it much easier.

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:44:27 PM EDT 2003
I'm had that problem too Chanie...then I exited and logged back into the chat and it's ok.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:44:42 PM EDT 2003
Standardized testing accomodations need to be addressed through the agency administering the test

chanie shifra, 5, pump, dx'd at 12 mos old  (192.114.47.54) Thu Aug 21 09:44:49 PM EDT 2003
kicked out again Confused 

chanie shifra, 5, pump, dx'd at 12 mos old  (192.114.47.54) Thu Aug 21 09:45:09 PM EDT 2003
i'll try it ellen, ive got a school issuetoo, really Wink 

Cyndee (FL) Chandler 9 (dx'd 6/01), pumping  (65.40.55.174) Thu Aug 21 09:45:35 PM EDT 2003
My daughter's school is being very cooperative this year. The past two years I didn't ask to test in the classrom or before tests, but this year I did from day one and they were fine with it. I have just finished her 504 plan today because she just went on the pump Tuesday and I want to wait until she was pumping. The nurse know I am doing one, but who at the school do I approach to get it implemented? The principal?

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 09:45:47 PM EDT 2003
Last year we used the schools standard "fill in the blanks" 1-page form. This year they pulled it out and I slapped them with my own 12 page plan with attachments Razz 

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 09:46:03 PM EDT 2003
What do you think are reasonable parameters for dealing with lows at test time (class tests, I mean) Say, no testing within 1 hour of the occurence of a low under 80. Since my son is in kindergarten, we have no experience with how he will perform on a test after having been low. Do you think this would even be appropriate to put in the 504 plan of a kindergartener?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:47:07 PM EDT 2003
80 is a NORMAL BS

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:47:17 PM EDT 2003
Rick, 12 pages of 504 accomodations?? Holy cow! :-)

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 09:48:05 PM EDT 2003
I don't think grant actually had a test last year in kindergarten.

it's more of a thesis on Grant's diabetes Razz 

Andy 17, dx 7/03  (24.50.149.22) Thu Aug 21 09:48:27 PM EDT 2003
Rick.. last night you said 8 pages Razz  LOL 

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 09:49:23 PM EDT 2003
I added some things and three attachements, a bg/lunch form, a sub teacher folder summary, and pump instructions.

Andy 17, dx 7/03  (24.50.149.22) Thu Aug 21 09:49:29 PM EDT 2003
Steph, how is 80 normal? I start to feel odd around 80, and it usually means I'm going lower anyway so I eat

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:49:53 PM EDT 2003
Steph, we consider 80 bordering on low... Our pumping target is 120.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:50:00 PM EDT 2003
did Chanie get back in?

Linda/UT Kim 15, Alla 15  (216.126.204.32) Thu Aug 21 09:50:17 PM EDT 2003
Rick you remind me of a friend who sent her daughter to d camp with 3 pages single spaced and typed. Then she got a hotel 3 blocks away for the entire week. But as a friend once told me when I was really nervous about sending my kids to camp...don't worry, they won't let them die...too much paper work! LOL  (I really do think it's a good idea to educate the people who will be working with your son...)

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:50:57 PM EDT 2003
I know your traget is 120 but I don't think it's reasonable to ask nor to test at that level

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 09:51:42 PM EDT 2003
hi, i keep getting kicked out... i've tried several things

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 09:52:00 PM EDT 2003
hopefully i'l be able to stay this time. if not i'll email you steph Wink 

Andy 17, dx 7/03  (24.50.149.22) Thu Aug 21 09:52:45 PM EDT 2003
Rick, I'm curious what's in your 504. Mine fits nicely on a single sheet. If you don't mind.... geekguyandy@cwdmail.com

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:52:45 PM EDT 2003
I agree - we have a range in place from 80-240 as reasonable for taking a test. He's rarely out of this range.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 09:52:49 PM EDT 2003
shifra is starting kindergarten ths year. we will (hopefully) have a medical aide in the classroom, but everything else is up in the air - ie - location of school and teacher.

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 09:53:04 PM EDT 2003
That was my thinking around this plan. It will be read once and filed for reference. But I wanted to educate his teachers. Grant still does everything under the nurse's supervision and we have made 1-page reference sheets for pump instructions, sub folders, and hi-low protocols.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:53:06 PM EDT 2003
KK No problem

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:53:09 PM EDT 2003
Welcome back Chanie

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 09:53:20 PM EDT 2003
(hey, i just set that msg even though it said room was closed, and it went through)

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 09:53:23 PM EDT 2003
I realize 80 is normal, but I thought it was the bottom of normal. Is that not true? Plus I've been told meters can be up to 20% inaccurate so even with an 80 reading he could be as low as 64? True? Anyway, since my son frequently suffers from hypoglycemic unawareness I have no idea how low he would have to be before it really begins to impair brain functioning.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 09:53:32 PM EDT 2003
hope so ellen!  Grin 

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:53:49 PM EDT 2003
That sounds reasonable to me Meadow

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:54:50 PM EDT 2003
A 5 yo can function normally with BS over about 50

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 09:54:54 PM EDT 2003
andy, I will send it to you tonight when I get logged onto my work computer.

Linda/UT Kim 15, Alla 15  (216.126.204.32) Thu Aug 21 09:55:10 PM EDT 2003
the only problems we've had have been with substitute teachers who don't understand that their teachers have told the girls to just deal with their d...if they're low to go get something to eat, to go to the bathroom...whatever. The subs don't like it when the girls get up and leave...but I've told the girls to go do whatever and I'll deal with the school.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 09:55:11 PM EDT 2003
so i'm not sure what to do about her kindergarten. we've been within close walking distance to her preschools, and there are places here i could send her that are, but dont knoe the teacher. there is a place where the teacher i had originally spoken to is moving to, but i would have to drive and may not be able to get tehre as quickly. what do you think is a reasonable distance in terms of emergencies?

Andy 17, dx 7/03  (24.50.149.22) Thu Aug 21 09:55:31 PM EDT 2003
Steph... many people tell me each day "YMMV" (your milage/diabetes may vary)

Andy 17, dx 7/03  (24.50.149.22) Thu Aug 21 09:55:44 PM EDT 2003
Thanks Rick Smile 

Judith David, 17, diagnosed at age 2 months  (65.171.1.205) Thu Aug 21 09:55:45 PM EDT 2003
Rick, the reality is that your treatise is probably not going to be read in its entirety.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 09:55:56 PM EDT 2003
theoretically, steph. we've had pretty symptomatic lows at higher than that, and also times when she behaves normally at lower.

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:57:01 PM EDT 2003
Rick, maybe you need to add en Executive Summary? lol

Judith David, 17, diagnosed at age 2 months  (65.171.1.205) Thu Aug 21 09:57:05 PM EDT 2003
I've had best luck with a 1-2 page handout (with picture) that covers the basics of diabetes (mainly how to recognize and treat lows) and Dave's particular diabetes.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 09:57:32 PM EDT 2003
i'm wary of sending her to a class where i havent yet had a chance to speak to the teacher, i'm also wary of being too far away from the facility. (kindergarten here is in seperate facilities from school. usually building stands alone)

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 09:58:14 PM EDT 2003
I can understand wanting to be close by Chanie!

Judith David, 17, diagnosed at age 2 months  (65.171.1.205) Thu Aug 21 09:58:21 PM EDT 2003
I also have had face-to-face meetings with teachers (individually, or - in middle school - in groups) to discuss diabetes. Got very favorable feedback from the meetings. Several teachers said "We've been told WHAT to do for kids with diabetes, but never before WHY".

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:58:53 PM EDT 2003
the actual number sometime does not matter. If the BS falls RAPIDLY, you can have symptoms of a hypo

Cyndee (FL) Chandler 9 (dx'd 6/01), pumping  (65.40.55.174) Thu Aug 21 09:58:54 PM EDT 2003
I would thing that a 504 plan would be more involved for a younger child, than and older child who can do more of their diabetes management themselves. Mine is six pages, but I do like Rick's idea of a page for sub folders ( I am a sub

The teacher or school should let the sub know what is going on. I am a sub, and I would be upset if a child just got up and left if I didn't know the reason.

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 09:59:04 PM EDT 2003
Chanie, sending a child to kindergarten is hard WITHOUT diabetes, so I'm sure your worries are compounded.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 09:59:12 PM EDT 2003
i know ellen! i'm not sure what my comfort zone should be. (or is)

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 09:59:12 PM EDT 2003
it may not be read, but each section will be covered with each teacher next week and I will have everything in writing and signed. Each teacher will get a 1 page summary.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:59:23 PM EDT 2003
KUDPS tp JUdith! Cool 

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 09:59:34 PM EDT 2003
KUDOS

Cyndee (FL) Chandler 9 (dx'd 6/01), pumping  (65.40.55.174) Thu Aug 21 09:59:52 PM EDT 2003
Sorry, something weird happend to that post Eek 

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:00:14 PM EDT 2003
i'm also a bit upset because i do not want D to make the decision for me - ie - i want to be able to send my child to a good kindergarten with a good teacher - and not have D play a major role in my decision.

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:00:31 PM EDT 2003
I usually start out te meetings showing a spare pump and say "This is Zack's $6000 life sustaining device"....(gets their attention). I always thank the teachers for helping Zack stay healthy and that they make a difference in his life...

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:00:56 PM EDT 2003
I'm not quite sure what you're asking

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:01:02 PM EDT 2003
i've also met with people - but this year, the teacher i met is moving to a different facility - and i havent been able to get in touch with the teachers who will be in places closer by.

Linda Mom of Andrew, 11, dxd at 8, pumping  (24.76.53.46) Thu Aug 21 10:01:29 PM EDT 2003
Judith, Diana is back in parents room.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:01:30 PM EDT 2003
it cost less here, ellen (about 3,000)

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:01:39 PM EDT 2003
me, steph?

Judith David, 17, diagnosed at age 2 months  (65.171.1.205) Thu Aug 21 10:02:02 PM EDT 2003
Ok, Linda...

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:02:17 PM EDT 2003
we always "reward" our teachers and nurse for taking good care of Grant, too.

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:02:24 PM EDT 2003
Chanie, how far away by car would the better kindergarten be?

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:02:46 PM EDT 2003
So let's we tell the teacher to delay a test if his BG is below 50. Would that be just until back in target range or for a period of time thereafter. It seems like sometimes it takes an hour or so to recover from a very low hypo and other times its quick.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:03:26 PM EDT 2003
Jiill I'd use 70 not 50

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:03:33 PM EDT 2003
(still keeps saying room has been closed. strange.)

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:03:50 PM EDT 2003
We meet with the 504 coordinator and all of Zack's teachers together to make sure everyone understands what's expected. Some teachers are suspicious that he'll use diabetes as an excuse...but he never does.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:03:58 PM EDT 2003
not sure ellen. need to drive it tommorrow a.m.

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 10:04:33 PM EDT 2003
Jill, its seems to me that if Joe's BG is 50 he should be escorted by the teacher to the school nurse for treatment. 50 is not safe, and you certainly don't want him to pass out in class. mho

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:04:49 PM EDT 2003
If a child has a low during a test, he/she should not be required to take it until the next day at the earliest

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:05:06 PM EDT 2003
and, usually my husband takes the car. a little frustrated earlier when i mentioned that i may need it to get her to school. but that's a whole story in and of itself...

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:05:35 PM EDT 2003
also, the kindergardens that are closer MAY wind up being good, it is just that i dont know anything about the teachers.

Andy 17, dx 7/03  (24.50.149.22) Thu Aug 21 10:05:40 PM EDT 2003
What happens if the coordinator/admin think the 504 is unreasonable?

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:06:24 PM EDT 2003
Are you always home when she's in school? Maybe you'd like to work in her school while she's attending?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:06:41 PM EDT 2003
unreasonable how?

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 10:07:25 PM EDT 2003
Andy, you have a legal right to a 504.

Andy 17, dx 7/03  (24.50.149.22) Thu Aug 21 10:07:40 PM EDT 2003
Like if it says I can test anywhere, and they disagree. Can they turned down parts?

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:07:46 PM EDT 2003
Thanks Meadow, but if we did that some weeks he'd never been in class. Lowest number I've seen on a meter is 17 and he was still concious. He's only passed out once in three years of being D.

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:08:55 PM EDT 2003
Jill, if he's running low that often, he definitely needs adjustment to his insulin plan

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:09:43 PM EDT 2003
ellen - it isnt really a school. the kindergartens are seperate. which would pretty much mean me being in her classroom.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:10:04 PM EDT 2003
both parties need tosign off -- if there's a dispute, you need to go to the school board

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:10:44 PM EDT 2003
We adjust weekly on average. He's very insulin sensitive. The smallest adjustments make a BIG difference.

Stacy (IL) Noah 6, dx'd 9/5/02  (24.171.11.70) Thu Aug 21 10:11:34 PM EDT 2003
Hi everyone, sorry I'm in late, can a 504 plan be turned down???? I have a meeting on the 26th with the 504 coordinator and she said that he may not be able to get an aide like last year due to cut backs.

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:11:53 PM EDT 2003
Scratch that Chanie.

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 10:12:09 PM EDT 2003
Jill, have you considered an insulin pump? Pumps can deliver insulin precisely at very low levels, like 0.05 units. Try THAT with a syringe or pen! lol

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:12:37 PM EDT 2003
I highly recommend that everyone have their doctor write orders for the accomodations that need to be made. My son's ped endo writes them on county school health forms.

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 10:13:18 PM EDT 2003
Ellen - we are in sync. I had dr orders wrapped up before I approached health dept before I approach school!

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:13:52 PM EDT 2003
Cozmo since March. WE LOVE IT. Only problem his ratios don't fit in their parameters. He does ratios of like 1/80.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:14:12 PM EDT 2003
(is anyone else having trouble with the room - keeps saying it is closed and kicking me out)

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:14:42 PM EDT 2003
wow jill, what is joe's average TDD

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 10:14:52 PM EDT 2003
1/80 holy cow

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:15:28 PM EDT 2003
That's fabulous Ellen. Wish I had been that organized.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:15:32 PM EDT 2003
You can change the parameter on Cozmo

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:16:13 PM EDT 2003
Around 9 I think. I don't add it all up very often.

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:16:27 PM EDT 2003
It was my son's endo who does it routinely Jill.

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:16:34 PM EDT 2003
Steph, really????! How?

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:17:06 PM EDT 2003
i think i might intimidate people if i went in there with doctor's orders. in the past, it has all been pretty much verbal

Stacy (IL) Noah 6, dx'd 9/5/02  (24.171.11.70) Thu Aug 21 10:17:09 PM EDT 2003
Would his regular doctors note do? I wont see the endo before my meeting.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:17:30 PM EDT 2003
ellen - dont make me want to move to FL and join your endo Wink 

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:17:41 PM EDT 2003
Our school has a "504" form they require signed by the physician. Our ped endo asked us if we were comfortable writing our physician's protocol. We were, so she signed it and let us fill it out. works out nice. Grant is like joe I imagine. If he is 65 before lunch and you treat him with a carb. he could jump up to 180-200 from that one carb

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 10:18:23 PM EDT 2003
Rick may be interested in this... our medical orders are nine pages long, signed by ped end. Our 504 is one page that references medical orders.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:18:31 PM EDT 2003
I'd call his endo's office and ask him/her to fax orders for school

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:19:49 PM EDT 2003
Chanie, she's not accepting new patients, but I KNOW I can get Shifra in on Monday morning LOL LOL 

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:19:49 PM EDT 2003
 LOL  our's is the opposite Meadow! Doc's is one, mine is a book!

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:19:55 PM EDT 2003
the doctor's orders should be specific. I'd write them out and ask the doctor to sign

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:20:06 PM EDT 2003
we have a written medical letter explaining why she needs BG tests, insulin, etc. but we do the details ourselves

Stacy (IL) Noah 6, dx'd 9/5/02  (24.171.11.70) Thu Aug 21 10:20:56 PM EDT 2003
I'll call in the morning, I think I am going to have a battle with the school, they have made alot of cuts this year, starting with our nurse

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:21:07 PM EDT 2003
 LOL  ellen. with everything else that is going on, i may take you up on that!! (even though i am sitting here surrounded by boxes that the movers brought this morning!)

Cyndee (FL) Chandler 9 (dx'd 6/01), pumping  (65.40.55.174) Thu Aug 21 10:21:35 PM EDT 2003
Ellen, where do you live in Florida, Who is your endo?

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:21:36 PM EDT 2003
that's frustrating stacy. have they said how they will accomidate you without the nurse?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:21:40 PM EDT 2003
it's still better if the specifics are signed by the physician

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:22:05 PM EDT 2003
just to take a poll - for those with young kids, how far are you from your school?

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:22:21 PM EDT 2003
The people at Deltec told me the pump would only do ratios from 1/1 to 1/50

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:22:27 PM EDT 2003
sounds like a good idea steph

Stacy (IL) Noah 6, dx'd 9/5/02  (24.171.11.70) Thu Aug 21 10:23:48 PM EDT 2003
the principal has already been trained and his new teacher is Type 2, we are going to train 3 other people in the school, I am 6 blocks away, , my fear is someone needing to give him a Glucogon shot and not knowing how.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:23:50 PM EDT 2003
then what I would do is set it at 1/40 and enter 1/2 the grams of carb

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:23:56 PM EDT 2003
That is true Jill. The highest is 1:50

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:24:12 PM EDT 2003
Dr. Robin Nemery in Hollywood, FL. (BTW, Chanie, they have an eruv in Hollywood FL)

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:24:54 PM EDT 2003
Stacy, make sure the new teacher with type 2 doesn't think he knws it all about type 1!!!

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 10:25:02 PM EDT 2003
Stacy, how rural is the area where you live? Worst case, 9-1-1 is always an option.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:25:31 PM EDT 2003
I know you are fearful Tsacey, but remember the chances of needing Glucagpn at school are slim

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:26:29 PM EDT 2003
The person to contact re Glucagon in schools is Crystal Jackson at the ADA cjackson@diabetes.org. She and some friends got the school system in VA to agree to train lay persons to administer Glucagon.

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:26:43 PM EDT 2003
Good luck with that, Stacey, I think we all worry about the glucagon. Chanie we live about 5 min from school, but it's a public school.

Stacy (IL) Noah 6, dx'd 9/5/02  (24.171.11.70) Thu Aug 21 10:26:50 PM EDT 2003
no, we met with her last spring, her brother is type 1 since childhood, I think she will be great, it is a large class though, we are rural!! nearest hospital is 15 minutes away

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:27:01 PM EDT 2003
Can a school refuse to administer a Glucagon? Just opting out to call 911.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:27:16 PM EDT 2003
we have the whole scenario posted on line if you search for it
LOUDEN COunty

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:27:53 PM EDT 2003
jill - 5 min. walking or driving? and what do you mean 'but it is a public school"?

Judith   (65.171.1.205) Thu Aug 21 10:27:56 PM EDT 2003
Jill is correct re: bolus ratios of 1:50 max on the Cozmo. Could put in less carb, as Steph suggested, but would be a bit tricky getting the right ratio. WOuld take some math beforehand....

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:27:59 PM EDT 2003
I don't think so

Stacy (IL) Noah 6, dx'd 9/5/02  (24.171.11.70) Thu Aug 21 10:28:16 PM EDT 2003
I dont think they will refuse, I just worry they will freeze up and not remember how.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:28:22 PM EDT 2003
how large a class, stacy?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:28:26 PM EDT 2003
Unless there's a state law forbidding them from doing it

Stacy (IL) Noah 6, dx'd 9/5/02  (24.171.11.70) Thu Aug 21 10:28:32 PM EDT 2003
30

Judith   (65.171.1.205) Thu Aug 21 10:29:21 PM EDT 2003
Our schools absolutely refuse to administer ANY injections, other than epinephrine via EpiPen. BUT the school nurse wlll give insulin sometimes if ordered at lunch!! ????

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:29:28 PM EDT 2003
Jill, I am not sure how you treat lows, but a problem we had last year was that our physicians protocol was too basic. They were treating under 70 with a carb, anytime of day. If grant was 65 prior to lunch (he was on nph at the time so it happened more than we would have liked), they would treat it and he would come home 300+

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:29:43 PM EDT 2003
Can you put in all the carbs and just direct the pump to give half the bolus?

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:30:07 PM EDT 2003
Chanie, driving. What I meant was, I didn't get to choose the school. He'll go there K-4th.

Judith   (65.171.1.205) Thu Aug 21 10:30:39 PM EDT 2003
It's system "policy" here to give no injections, but I know individual nurses (including one who has d) have done insulin injections. We had 4 nurses for 11,000 kids in 12 schools. However, 2 (inc the one with d) just retired, and only 1 was replaced.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:31:04 PM EDT 2003
Ellen NO

Judith   (65.171.1.205) Thu Aug 21 10:31:31 PM EDT 2003
That would not work, Ellen.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:31:39 PM EDT 2003
If she she sets the pump on a ratio of 1/40 and enters 1/2 the amount of carb -- it will work fine

Judith   (65.171.1.205) Thu Aug 21 10:31:56 PM EDT 2003
Can always over-ride the pump's suggested bolus, but then there's no point in using the auto feature.

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:31:57 PM EDT 2003
our school didn't want anything to do with the glucagon either. they said if there was a circumstance that serious, they were more comfortable calling 911.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:32:15 PM EDT 2003
Judith they can't do that

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:32:48 PM EDT 2003
I agree Judith

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:33:15 PM EDT 2003
Too bad Deltec can't program her pump to have a higher ratio.

Judith   (65.171.1.205) Thu Aug 21 10:33:36 PM EDT 2003
Be certain you know what happens when 911 is called. At least in Indiana, an ambulance with EMT will respond (in 10 min or so). EMT's can ONLY give juice. An advanced EMT can start an IV, but only give 5% glucose (worthless in treating a low) Only a paramedic (on the Advanced Life Support ambulances) can give the concentrated glucose IV

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:33:57 PM EDT 2003
If a doctor writes an order for a school nurse to give insulin she must (by law) follow that order

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 10:34:22 PM EDT 2003
wow, Judith, thats not good news!

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:34:28 PM EDT 2003
The EMTs don't have meters either

Linda/UT Kim 15, Alla 15  (216.126.204.23) Thu Aug 21 10:34:38 PM EDT 2003
Ok, you've all talked me into it...D is just too scary. We're going to give it up and not have D anymore

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:34:39 PM EDT 2003
there are usually 35 kids in a kindergarten class here

Judith   (65.171.1.205) Thu Aug 21 10:34:41 PM EDT 2003
I have told the school nurses that their policy is in violation of federal laws. They were sympathetic, but had no power to change things. The 2 that were most helpful just retired.

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:34:54 PM EDT 2003
You're right, Steph, thanks. Ellen, I've asked Deltec about that and at one point they said they might be coming out with new software in the fall, but haven't heard anything about it since March.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:34:56 PM EDT 2003
agreed linda!!! Eek 

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:35:40 PM EDT 2003
if they can have a basal as low as .05/hr, a 1:80 ratio would be nothing more than a program change.

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:35:43 PM EDT 2003
Don't we all wish, Linda Grin 

Judith   (65.171.1.205) Thu Aug 21 10:35:44 PM EDT 2003
I specified in Dave's 504 that an Advanced Life Support ambulance be called if needed. (BTW he's allergic to glucagon, so that's a non-issue for him.) ONly one of those ambulances in our county.....

Stacy (IL) Noah 6, dx'd 9/5/02  (24.171.11.70) Thu Aug 21 10:35:45 PM EDT 2003
If only........................ Frown 

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:35:57 PM EDT 2003
i'm with you linda LOL  we quit too!

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:37:00 PM EDT 2003
stacy, was it hotter than sin in STL today?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:37:05 PM EDT 2003
How can he be allergic to glucagon?

Judith   (65.171.1.205) Thu Aug 21 10:37:19 PM EDT 2003
I'm ready to make lots of waves, but may wait until Dave has his diploma in hand!! He's the last of my kids to go through this system. Have had kids here continuously since 1971!!!!!

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:37:30 PM EDT 2003
Hello

Stacy (IL) Noah 6, dx'd 9/5/02  (24.171.11.70) Thu Aug 21 10:37:45 PM EDT 2003
YES, IT WAS HORRIBLE BY 10:00, I AM READY FOIR FALL, HOW ABOUT KANSAS CITY?

Judith   (65.171.1.205) Thu Aug 21 10:38:04 PM EDT 2003
Glucagon is a protein...... His reaction was back in the days of animal source glucagon; have not tried recombinant version....but might still be allergic.

chanie shifra, 5, pump  (192.114.47.54) Thu Aug 21 10:38:04 PM EDT 2003
ellen - btw, re the eruv, i think there probably is one in boca too

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:38:12 PM EDT 2003
Jill I'm on the Deltec advisory board e-mail me and I'll talk to them tomorrow

chanie shifra, 5, pump, dx'd at 12 mos old  (192.114.47.54) Thu Aug 21 10:38:29 PM EDT 2003
hi doris

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:38:39 PM EDT 2003
we still keep a glucagon there, just in case. we live 6 blocks away and usually my wife or I are home or nearby.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:38:53 PM EDT 2003
Judith glucaogn os a hormone just like insulin

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:39:13 PM EDT 2003
Hi Chanie

Judith   (65.171.1.205) Thu Aug 21 10:39:14 PM EDT 2003
Also, some school personnel seem to think that if/when they call 911 they have no further responsibility. Need to be sure care is given until the trained responders arrive.

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:39:16 PM EDT 2003
What about places that have no RN in the school. Can the doctor give an order for say an administrator to give an injection at school.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:39:23 PM EDT 2003
Everyone has glucagon in their body

Judith   (65.171.1.205) Thu Aug 21 10:39:31 PM EDT 2003
Hormones are proteins....

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:39:35 PM EDT 2003
we hit 108 today. miserable.

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:40:14 PM EDT 2003
I had a very stressful day today Our friends had a house fire last night.... The cars caught fire in the garage... We now have them staying with us here

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:40:14 PM EDT 2003
Jill yes -- then the school must designate someone to be trained to do it if it needed. They cannot waive responsiblity

Stacy (IL) Noah 6, dx'd 9/5/02  (24.171.11.70) Thu Aug 21 10:40:14 PM EDT 2003
my brother lives in St. Joe, said it is awful there.

Judith   (65.171.1.205) Thu Aug 21 10:40:25 PM EDT 2003
But people don't have beef or pork glucagon...and there may have been impurities. We checked with 3 ped endos, a ped allergist, and Lilly. All said it was rare but possible, and to avoid glucagon in the future - so we have.

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:40:39 PM EDT 2003
judith, thanks for the info... I will check and see what type of personnel are staffed in ambulances here.

Linda/UT Kim 15, Alla 15  (216.126.204.23) Thu Aug 21 10:40:45 PM EDT 2003
we know how you feel Rick. We've even had some humidity  Rolling Eyes  We're a couple of hours away from Las Vegas

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:40:55 PM EDT 2003
Are there any other school issues?

Judith   (65.171.1.205) Thu Aug 21 10:41:24 PM EDT 2003
Our teachers' contracts say they can refuse to do anything medical, and some exercise that right. However, that does not relieve the school of the responsibility to provide SOMEONE to do it.

Meadow Tommy, 11, dxd last year, pumping  (68.52.171.166) Thu Aug 21 10:41:29 PM EDT 2003
thanks for your time Steph!

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:41:29 PM EDT 2003
I got it Judith

Ellen (Florida) Zack 15, dx'd @ 1 yr, pump 8 yrs  (152.163.252.2) Thu Aug 21 10:41:33 PM EDT 2003
Thank you very much for the chat Steph.

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:41:40 PM EDT 2003
Thanks, Steph. How can I get your e-mail address?

Judith   (65.171.1.205) Thu Aug 21 10:41:54 PM EDT 2003
Oh my, Doris!

chanie shifra, 5, pump, dx'd at 12 mos old  (192.114.47.54) Thu Aug 21 10:41:57 PM EDT 2003
btw, i noticed that glucagon needs to be stored below 25 degees celsius. if i've been keeping it in my bag all summer, should i replace it?

Linda/UT Kim 15, Alla 15  (216.126.204.23) Thu Aug 21 10:42:05 PM EDT 2003
One of the teachers at Alla's school is a Paramedic and One of the teachers at Kim's school has a wife with D and very involved with her care.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:42:13 PM EDT 2003
No Judith it does not

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:42:23 PM EDT 2003
When Christian starts schoo He will have a nurse travel with him and a full time nurse at school

Linda/UT Kim 15, Alla 15  (216.126.204.23) Thu Aug 21 10:43:16 PM EDT 2003
Why is that Doris?

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:43:45 PM EDT 2003
Thank you Steph! Take care.

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:44:02 PM EDT 2003
So that he is safe with his DI He cannot tell us that if he starts to feel unwell

chanie shifra, 5, pump, dx'd at 12 mos old  (192.114.47.54) Thu Aug 21 10:44:07 PM EDT 2003
thanks for your time, steph!

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:44:27 PM EDT 2003
Christian is blind deaf and also very delayed

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:44:53 PM EDT 2003
Love to Grant Rick -- does he remember me?

Linda/UT Kim 15, Alla 15  (216.126.204.23) Thu Aug 21 10:45:05 PM EDT 2003
Oh my Doris...you have a lot to deal with!

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:45:22 PM EDT 2003
He is 8 months and still wearing 0-3 month size cloths He is only 11pounds or 5.05 k

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:45:31 PM EDT 2003
no... should he?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:45:55 PM EDT 2003
Yup I think I was in KC when he was diagnosed

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:46:17 PM EDT 2003
at childrens mercy?

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:46:42 PM EDT 2003
My heart goes out to you and your family, Doris. May God give you strength for your tasks....

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:47:06 PM EDT 2003
yup

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:47:18 PM EDT 2003
he was about a year old?

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:47:21 PM EDT 2003
Thanks Jill but we are doing good We just take one day at a time and some times minute by minute

chanie shifra, 5, pump, dx'd at 12 mos old  (192.114.47.54) Thu Aug 21 10:48:03 PM EDT 2003
wow doris. that must be difficult (bbl, shifra just woke up)

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:48:26 PM EDT 2003
wrong grant. he was dx'd 6.22.02 at age 5. when did you leave CMH

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:49:17 PM EDT 2003
I dont realy know yet how difficult it is going to be He is not home from hospital He has been in children hospital since birth

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:49:21 PM EDT 2003
hmmmmmmmm 1999 I think

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:51:05 PM EDT 2003
lot's of changes since then. Dr. Howard left. Our doc is Popovic. We like her alot. Jennifer M. is our pump nurse.

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:51:13 PM EDT 2003
Do any of you know if there other parents of children with DI

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:51:41 PM EDT 2003
and beth is our favorite. she makes us laugh.

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:51:54 PM EDT 2003
there's a room I think here where they meet Doris

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:52:09 PM EDT 2003
This is a school chat

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:52:18 PM EDT 2003
Some days it is hard to laugh but it is so health to laught

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:52:50 PM EDT 2003
Don't know the doc but I know the nirses say Hi for me!

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:52:53 PM EDT 2003
Realy how do I get connect with them

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:52:57 PM EDT 2003
nurses

Jennifer(MA) Mom of Allyson age 8 dx 3-24-03  (4.64.207.221) Thu Aug 21 10:53:12 PM EDT 2003
hi

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:53:13 PM EDT 2003
Sorry am I suppose to onle chat about school

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:53:18 PM EDT 2003
Doris post something on the message board

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:53:55 PM EDT 2003
ok

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:54:12 PM EDT 2003
Well, got to get the kids in bed. Thanks everyone. Thank you so much, Steph. You've been VERY helpful. Cool 

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:54:27 PM EDT 2003
also if you search google -- there are websites SPECIFICALLY for aprents of kids with DI. Or search the D-team questions. We've mentioned the sites

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:54:47 PM EDT 2003
But is this chat only to be about school If so I will leave since my son is to young for school and pop in an other night

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:54:54 PM EDT 2003
Hope so Jill -- e-mail me ok?

Rick (MO) Grant's Dad, 6, pumping  (68.86.157.250) Thu Aug 21 10:54:54 PM EDT 2003
I will. We talk to jennifer a couple of times a week. Take care everybody! thanks for the info and goodnight!

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:55:14 PM EDT 2003
D-team???

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:55:36 PM EDT 2003
This is a back to schoolchat for parenst of kids with Diabetes MELLITUS

Jennifer(MA) Mom of Allyson age 8 dx 3-24-03  (4.64.207.221) Thu Aug 21 10:55:58 PM EDT 2003
there is parents chat room here doris. just put opn parents where it says rooms

Jill Mom of Joe, 5, dxd at 2  (67.195.200.4) Thu Aug 21 10:56:04 PM EDT 2003
Will do. Where can I get your address?

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:56:11 PM EDT 2003
"Ask the Diabetes Ream" -- lots of info there for you if you for DI in the index

Jennifer(MA) Mom of Allyson age 8 dx 3-24-03  (4.64.207.221) Thu Aug 21 10:56:20 PM EDT 2003
my daughter will be going back to school in sept

Doris Mother of 8 month old son with DI  (24.157.78.168) Thu Aug 21 10:56:20 PM EDT 2003
Ok I will leave then sorry I didnt mean to be a bother good night

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:56:26 PM EDT 2003
Team -- BAD typing!

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 10:56:47 PM EDT 2003
You are not a Bother at all -- hope we can help

Jennifer(MA) Mom of Allyson age 8 dx 3-24-03  (4.64.207.221) Thu Aug 21 10:56:57 PM EDT 2003
she had a 504 last year too

Judith   (65.171.1.205) Thu Aug 21 10:58:54 PM EDT 2003
Doris:
Diabetes Insipidus and Related Disorders Network (DIARD)
1622 185 Street
Creston, Iowa 50801-8172
(515) 782-7838
Website: http://members.aol.com/ruudh/dipage1.htm
This organization's mission is to maintain a support network for patients and their families dealing with diabetes insipidus (DI) of any form, provide emotional and informational support to those families, educate and promote education related to diabetes insipidus, and promote scientific research in diabetes insipidus (seeking to develop better means of treatment, and ultimately, seeking to develop a scientific prevention and cure of DI).

Steph, RN, MPH, CDE Moderator  (24.225.165.216) Thu Aug 21 11:00:35 PM EDT 2003
Good night all

Judith   (65.171.1.205) Thu Aug 21 11:00:57 PM EDT 2003
That website doesn't seem to be available, however....

Judith   (65.171.1.205) Thu Aug 21 11:01:05 PM EDT 2003
Night, Steph

Swimmer   (65.129.84.191) Thu Aug 21 11:06:44 PM EDT 2003
hi

Swimmer   (65.129.84.191) Thu Aug 21 11:06:54 PM EDT 2003
anyone here?

Swimmer   (65.129.84.191) Thu Aug 21 11:07:28 PM EDT 2003
HELLOOOOOOOOOOOOOOOOOO Cry 

Judith   (65.171.1.205) Thu Aug 21 11:08:01 PM EDT 2003
Diabetes Insipidus Foundationhttp://www.diabetesinsipidus.org/:

southgrl girlfriend of paul  (64.12.96.46) Thu Aug 21 11:20:26 PM EDT 2003
my boyfriend is diabetic, and if for chance his counts are low..what is the quickest and best way to raise his suger?

Moderator   (server) Thu Aug 21 11:25:00 PM EDT 2003
This room will close in five minutes. Please move to a new room.



                 
  Home Return to Top

Last Updated: Friday August 22, 2003 14:30:58
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.

This site is published by T-1 Today, Inc. (d/b/a Children with Diabetes), a 501c3 not-for-profit organization, which is responsible for its contents.
By using this site, you agree to our Terms of Use, Legal Notice, and Privacy Policy.
© Children with Diabetes, Inc. 1995-2015. Comments and Feedback.