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  Back to Chat 2009 Back to School Chat

Back to School Chat with Crystal Jackson - September 1, 2009

Registered User Moderator   (server) Tue Sep 01 08:00:00 PM EDT 2009
Our Back to School chat with Crystal Jackson starts at 9pm Eastern.

Registered User Ellen (FL) Zack, 21  (98.64.243.244) Tue Sep 01 08:59:06 PM EDT 2009
I know a lot of people are looking forward to this and are VERY grateful to have the opportunity to get suggestions and advice. It can be emotional sending kids back to school each year.

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:00:27 PM EDT 2009
Very. Smile  I almost never cry - start of school I always stress out till I weep Rolling Eyes 

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:00:54 PM EDT 2009
And this is in a supportive school system...

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:03:31 PM EDT 2009
Hi Everyone! Are your kids back at school? Most Virginia students don't return until next week.

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:03:48 PM EDT 2009
What grade is Maddie in this year?

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:04:05 PM EDT 2009
School started here last Wed.

Registered User Shan mom of Blake (7) dx'd 11/07, Omnipod  (24.238.82.22) Tue Sep 01 09:04:08 PM EDT 2009
hi!

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:04:12 PM EDT 2009
Sarah, both of my kids are in college (including my kid with diabetes) and I can't stop crying. It's all good though.

Registered User ScottHerring Dad to Ryan dx 5/08  (70.15.192.71) Tue Sep 01 09:04:21 PM EDT 2009
Ours are back, and the fun has begun already.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:04:35 PM EDT 2009
Are there any particular school challenges that anyone wants to discuss?

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:04:45 PM EDT 2009
Connor started August 13th.

Registered User Shan mom of Blake (7) dx'd 11/07, Omnipod  (24.238.82.22) Tue Sep 01 09:05:03 PM EDT 2009
Blake started yesterday

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:05:21 PM EDT 2009
Everyone have medical orders or health care plan in place?

Registered User ScottHerring Dad to Ryan dx 5/08  (70.15.192.71) Tue Sep 01 09:05:49 PM EDT 2009
Hi Crystal, can we discuss the problems that can be encountered when working with school nurses?

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:05:58 PM EDT 2009
And a 504 Plan or IEP stemming from your child's health care plan? Is everyone familiar with these documents?

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:06:26 PM EDT 2009
504 Plan, DIHP, faxed medical orders etc. - many thanks to ADA

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:06:34 PM EDT 2009
School nurses. Scott, do you have a particular issue you want to discuss?

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:06:47 PM EDT 2009
Article in the local paper today about additional stress school nurses will have this fall with the H1N1 virus, too.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:07:08 PM EDT 2009
Hi Amy! It is good to finally "meet" you. I've heard so much about you and Connor from Victoria. Glad that all is going well.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:07:41 PM EDT 2009
H1N1 is front and center for school nurses.

Registered User Melissa mom to Madison, 3, dx 2/09, ping 8/09, Dexcom 8/09  (72.75.44.80) Tue Sep 01 09:07:45 PM EDT 2009
Can we also talk about what if the school is not a public school..

Registered User ScottHerring Dad to Ryan dx 5/08  (70.15.192.71) Tue Sep 01 09:08:19 PM EDT 2009
We've gone from the perfect situation to the worst (as far as we are concerned) last year our school nurse was a T1D and it was my son's first year. Now she has been transferred and we have a new nurse who has already started off trying to dictate how we WILL care for him during school.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:08:21 PM EDT 2009
Has anyone written a provision in your child's 504 plan or IEP that addresses what happens if swine flu epidemic hits your child's school?

Registered User Shan mom of Blake (7) dx'd 11/07, Omnipod  (24.238.82.22) Tue Sep 01 09:08:35 PM EDT 2009
Can we also discuss making allowances for extended absences in a 504 during flu outbreaks?

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:08:52 PM EDT 2009
Melissa, is it a private shool or a private religious schooL? Does it receive any federal funding.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:09:06 PM EDT 2009
I recommend that you incorporate language that enables you to keep your child home - without penalty - if there's an outbreak at school. It's consistent with CDC's recommendation for people with diabetes.

Registered User Shan mom of Blake (7) dx'd 11/07, Omnipod  (24.238.82.22) Tue Sep 01 09:09:14 PM EDT 2009
I'm trying to write that up now...meeting tomorrow morning to update 504

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:09:21 PM EDT 2009
Hi sorry - difficult hair shampoo issue
 LOL 

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:09:41 PM EDT 2009
Nice to "meet" you too! We are having a great year so far, which is a very nice change from years past.

Registered User ScottHerring Dad to Ryan dx 5/08  (70.15.192.71) Tue Sep 01 09:09:43 PM EDT 2009
Shan, don't you have a statement in the plan that mentions the child will not be penalized for excessive absences?

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:09:43 PM EDT 2009
Melissa, we need to know what kind of private school and whether or not the school receives federal funding.

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:09:44 PM EDT 2009
Maddie's hair, not mine

Registered User Shan mom of Blake (7) dx'd 11/07, Omnipod  (24.238.82.22) Tue Sep 01 09:09:49 PM EDT 2009
Hi sarah  Razz 

Registered User Shan mom of Blake (7) dx'd 11/07, Omnipod  (24.238.82.22) Tue Sep 01 09:10:26 PM EDT 2009
I don't have that in place...I am writing it up now to include seasonal and H1N1 flu outbreaks, any suggestions?

Registered User Melissa mom to Madison, 3, dx 2/09, ping 8/09, Dexcom 8/09  (72.75.44.80) Tue Sep 01 09:10:58 PM EDT 2009
It's a small preschool that doesn't get fed funding...

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:11:20 PM EDT 2009
Private schools that are not religious operated schools are considered places of public accommodation and must provide accommodations under the Americans with Disabilities Act. If the private school gets federal funding then it must also meet its legal obligations under Section 504 of the Rehabilitation Act of 1973.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:11:39 PM EDT 2009
Melissa, is the pre-school operated by a religious entity?

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:12:33 PM EDT 2009
I don't have anything in his 504 Plan about H1N1, but I do know that we received a letter from the State Department of Health that says: The sick person should stay home, unless medical care is needed, for at least 7 calendar days or until fully recovered for at least 24 hours, whichever is longer. No test for influenza or doctor's note is necessary to justify the absence." Is this standard across the country?

Registered User Melissa mom to Madison, 3, dx 2/09, ping 8/09, Dexcom 8/09  (72.75.44.80) Tue Sep 01 09:12:43 PM EDT 2009
no, it's parent run, co-op... in Alex, VA

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:12:55 PM EDT 2009
Shan, et al - include specific language that states your child will not be penalized for absences if kept home due to outbreak and will be given an opportunity to make up missed work and take exams within a reasonable time period without penalty.

Registered User Shan mom of Blake (7) dx'd 11/07, Omnipod  (24.238.82.22) Tue Sep 01 09:13:38 PM EDT 2009
ok, adding that in, forgot about the taking of exams

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:13:58 PM EDT 2009
That's a good point - a specific provision for H1N1....

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:14:04 PM EDT 2009
Melissa, pre-school obligated to provide services under ADAct, but not as strong as protections afforded under Section 504. For example, the school does not have to provide services that pose an undue burden upon the school. For example, they don't have to hire a nurse.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:15:06 PM EDT 2009
Amy, CDC is recommending that kids who are at high risk be kept home if there is H1N1 outbreak at school so it is a reasonable accommodation.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:15:45 PM EDT 2009
Scott, did you have a specific concern about school nurses?

Registered User Melissa mom to Madison, 3, dx 2/09, ping 8/09, Dexcom 8/09  (72.75.44.80) Tue Sep 01 09:16:04 PM EDT 2009
thanks this is good info... so if I don't need a 504... what kind of forms should i get filled out at the endo... the school left it up to me!?! They told they will do what ever i need them to do...

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:16:06 PM EDT 2009
I"m looking for a diagram - a venn diagram that shows the relative authority of IHP and 504 - anyone know this doc- and a link?

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:16:21 PM EDT 2009
Good point. I'll bring it up with the school. Thanks!

Registered User ScottHerring Dad to Ryan dx 5/08  (70.15.192.71) Tue Sep 01 09:16:56 PM EDT 2009
Is it acceptable to require that a nurse receive "formal" training on pump operations and diabetes care?

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:16:58 PM EDT 2009
But, I thought I'd read that many kids with the "flu" were not getting tested for the specific H1N1 virus (cost issue) so how does a school know if they have an outbreak of the H1N1 virus or not?

Registered User Type1Girl I wear a medtronic pump and a CGMS  (97.112.156.247) Tue Sep 01 09:17:15 PM EDT 2009
my sister is coming down with a cold, and my mom said to ya know, wash hands, don't share food, all that? and she got angry but you know, with diabetics, a small cold can put you in the hospital. 2 weeks after I was diagnosed I got a small stomach bug and I was sooo close to going into the hospital.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:17:18 PM EDT 2009
Sarah, do you mean IEP vs. 504? What is your specific question?

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:17:41 PM EDT 2009
Yes, sorry

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:18:39 PM EDT 2009
Scott, the school nurse and other trained personnel should have formal training on pump operation. Recommend that you help coordinate a training with your child's pump company. My experience is that all of the pump companies are happy to do training.

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:19:01 PM EDT 2009
Scott:see http://www.diabetes.org/advocacy-and-legalresources/discrimination/school/schooltraining.jsp You might want to look at the pump information and print it for the nurse (I admit that I have not looked at it).

Registered User Shan mom of Blake (7) dx'd 11/07, Omnipod  (24.238.82.22) Tue Sep 01 09:19:42 PM EDT 2009
I am putting in my 504 (as I'm typing it right now) provisions for BOTH seasonal and H1N1 flu outbreaks.

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:19:52 PM EDT 2009
Second confession: I don't know anything about documents that are in PowerPoint. Blush 

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:20:12 PM EDT 2009
IEP (Individualized Education Program) is developed for kids eligible for services under the Individuals with Disabilities Education Act (some kids with diabetes will qualify). All kids with diabetes are protected by Section 504 and these protections have been greatly strengthened and clarified by the recent passage of the Americans with Disabilities Amendments Act.

Registered User ScottHerring Dad to Ryan dx 5/08  (70.15.192.71) Tue Sep 01 09:20:40 PM EDT 2009
Thanks Brenda.
My wife's concern is that this new nurse "strong willed" will try to take care of things on her own and mess it up. Then we have to deal with it at home after school.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:21:25 PM EDT 2009
Yes, ADA has a pump training module that is very basic and intended for the lay audience. I would engage a pump company to train the school nurse. ADA's modules are intended for use by the school nurse or a CDE to train school personnel.

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:21:31 PM EDT 2009
Got that - this was a very clear graphic that I wanted to have on file - It was a long shot that you'd know it off hand - just thought it might have come out of your office Wink 

Registered User ConnieVA Mom of Brett (16)  (68.100.43.48) Tue Sep 01 09:21:34 PM EDT 2009
Hello - I need help getting logged on.

Registered User Shan mom of Blake (7) dx'd 11/07, Omnipod  (24.238.82.22) Tue Sep 01 09:22:06 PM EDT 2009
CGMS is alarming low...gotta run Eek 

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:22:13 PM EDT 2009
Very anxious about transitioning to middle school

Registered User Shan mom of Blake (7) dx'd 11/07, Omnipod  (24.238.82.22) Tue Sep 01 09:22:31 PM EDT 2009
Thanks for your help and your time Crystal, goodnight everyone!

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:22:36 PM EDT 2009
9 classes, lockers, no time between classes

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:22:36 PM EDT 2009
Scott, the school nurse needs to be trained. You might check www.nasn.org to see if the H.A.N.D.S. school nurse diabetes training is being offered in your area and then work with PTA to fund sending your school nurse. It's a very comprehensive all day training.

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:22:50 PM EDT 2009
It's going to be a real test of her self care

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:23:39 PM EDT 2009
I have a Venn diagram from our county's 504 manual with Studen Population as the heading. But - I hesitate to share since much of it is misinformation. The county's is wrong, but the state's manual is correct.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:23:41 PM EDT 2009
Sarah, does your child provide her own care? If so she should be able to do it anywhere, anytime which is a huge help in middle and high school. She can check bg and bolus wherever she happens to be.

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:24:03 PM EDT 2009
Sorry, for the typo. Student Population as heading.

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:24:18 PM EDT 2009
Yes, she has for the past 3 years
but one classroom rather than a hallway

Registered User ScottHerring Dad to Ryan dx 5/08  (70.15.192.71) Tue Sep 01 09:24:29 PM EDT 2009
That works well, considering my wife is the secretary of the PTA!

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:24:38 PM EDT 2009
she'll have to be far more assertive

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:24:54 PM EDT 2009
and anticipate her own needs far more

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:25:17 PM EDT 2009
Sarah, kids adapt. I promise. She will get down a routine of where and when to test and bolus. Important to write into her 504 plan that she be allowed to test and treat anywhere at anytime.

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:25:47 PM EDT 2009
Yes, I know that it will be ok
 Wink 

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:25:58 PM EDT 2009
Is there a question about IEP vs. 504?

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:26:00 PM EDT 2009
but still I fret Smile 

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:26:22 PM EDT 2009
And communication hasn't been as good as with the last school

Registered User Ellen (FL) Zack, 21  (98.64.243.244) Tue Sep 01 09:26:37 PM EDT 2009
Also extra bathroom privileges (at least in our schools they are notorious for trying to control that)

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:26:38 PM EDT 2009
No, it's a 504 Grin 

Registered User Sarah Mom of Maddie,11 dx 4, Pump @6  (67.86.127.139) Tue Sep 01 09:27:31 PM EDT 2009
Oh - situation here
sorry but must go Smile 

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:27:39 PM EDT 2009
Kids with diabetes may be eligible for an IEP if their diabetes or another disability adversely impacts academic progression - a need for "special education" must be demonstrated Not the case with Section 504. All that need be shown under 504 is that diabetes substantially limits a major life activity or bodily function such as the endocrine system. Pretty straight forward with the passage of ADAct last fall.

Registered User Melissa mom to Madison, 3, dx 2/09, ping 8/09, Dexcom 8/09  (72.75.44.80) Tue Sep 01 09:27:53 PM EDT 2009
yes, crystal... can you explain 504 v IEP?

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:28:58 PM EDT 2009
We don't hear of many folks have problems with bathroom access. Most problems revolve around the little ones getting their insulin when a school nurse isn't around. Anyone encountering this problem?

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:30:14 PM EDT 2009
504 Plan and IEP both should contain diabetes provisions.Don't need both. If you have an IEP there is no need for a 504 plan.

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:30:16 PM EDT 2009
How about a child with an existing IEP for gifted program. Parent wants to add 504 accommodations to IEP. How does that work?

Registered User ScottHerring Dad to Ryan dx 5/08  (70.15.192.71) Tue Sep 01 09:30:47 PM EDT 2009
Along the same lines diabetes care in the classroom during a lockdown situation has been a concern also.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:31:23 PM EDT 2009
All kids with diabetes should be eligible under 504 and a subset of kids eligible for services under IDEA. IDEA is a higher threshold, but provides greater protections and remedies, but my experience is that most kids with diabetes do not qualify.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:31:48 PM EDT 2009
Amy, just incorporate diabetes provisions into the IEP.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:33:00 PM EDT 2009
Scott, lockdowns, evacuations need to be addressed in 504 and emergency care plans. This is why it is important for other school personnel to receive training. If there's a lockdown situation your child is not going to be able to access the school nurse (that is, if your child's school even has a school nurse).

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:33:13 PM EDT 2009
That's what I thought too. Thanks.

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:34:25 PM EDT 2009
Any school districts trying to qualify kids incorrectly for IDEA/IEPs to get funding for things that should be covered by 504 Plan?

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:34:42 PM EDT 2009
Who provides care at your child's school? Do you have a school nurse? Have others been trained to provide care?

Registered User erin im 11 had diabetes since july 2009 and want to meet more diabetics and im a type 1  (96.42.248.90) Tue Sep 01 09:35:02 PM EDT 2009
hello?

Registered User erin im 11 had diabetes since july 2009 and want to meet more diabetics and im a type 1  (96.42.248.90) Tue Sep 01 09:35:40 PM EDT 2009
anyone there?

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:36:04 PM EDT 2009
Amy, most school districts will first see if the child qualifies for services under IDEA, but that's a harder standard to reach. IDEA actually provides stronger protections so if your child qualifies it is a good thing.

Registered User erin im 11 had diabetes since july 2009 and want to meet more diabetics and im a type 1  (96.42.248.90) Tue Sep 01 09:36:27 PM EDT 2009
anyone there hello?

Registered User ScottHerring Dad to Ryan dx 5/08  (70.15.192.71) Tue Sep 01 09:36:53 PM EDT 2009
hi erin

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:37:32 PM EDT 2009
Other concerns? Questions?

Registered User erin im 11 had diabetes since july 2009 and want to meet more diabetics and im a type 1  (96.42.248.90) Tue Sep 01 09:37:35 PM EDT 2009
hi

Registered User erin im 11 had diabetes since july 2009 and want to meet more diabetics and im a type 1  (96.42.248.90) Tue Sep 01 09:38:17 PM EDT 2009
can i chat in this room no one else is on in any of the rooms please?

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:38:35 PM EDT 2009
This chat is about issues at school.

Registered User ScottHerring Dad to Ryan dx 5/08  (70.15.192.71) Tue Sep 01 09:38:41 PM EDT 2009
I'm good Crystal. Thanks for the links.

Registered User erin im 11 had diabetes since july 2009 and want to meet more diabetics and im a type 1  (96.42.248.90) Tue Sep 01 09:38:42 PM EDT 2009
:(

Registered User erin im 11 had diabetes since july 2009 and want to meet more diabetics and im a type 1  (96.42.248.90) Tue Sep 01 09:38:45 PM EDT 2009
 Cry 

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:38:53 PM EDT 2009
ADA has a wealth of resources that you can read at www.diabetes.org/schooldiscrimination. You can also call 1-800-DIABETES and ask for ADA's free school packet and ask to speak to one of our expert legal advocates to discuss a particular concern. Just want to make sure everyone is aware of this resource.

Registered User erin im 11 had diabetes since july 2009 and want to meet more diabetics and im a type 1  (96.42.248.90) Tue Sep 01 09:39:24 PM EDT 2009
plz? Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry 

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:40:35 PM EDT 2009
plz? Cry  Cry  Cry  Cry  Cry  Cry 

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:40:59 PM EDT 2009
Sorry, Erin, just aren't many people chatting in the other rooms tonight. Do you have any problems with your diabetes at school? Do you test in the class or at the clinic, office?

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:41:07 PM EDT 2009
anyone ther plz hello?

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:41:38 PM EDT 2009
no this is my first year why?

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:42:39 PM EDT 2009
How often is 504 Plan supposed to be reviewed? Does the whole team have to be there if I just want to add the H1NI coverage?

Registered User Paige's Dad (KS) Dad of Paige, 11, Dx'd October 10th, 2006, Pumping, CGMS  (68.95.118.203) Tue Sep 01 09:42:42 PM EDT 2009
howdy folks

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:42:45 PM EDT 2009
Some kids with diabetes have issues not being allowed to test their blood sugar in their classroom, not being allowed to use the water fountain when they are high, not allowed to use the bathroom, and such.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:42:50 PM EDT 2009
What plans do you have in place for field trips and extracurricular activities?

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:43:18 PM EDT 2009
Erin, did your parents meet with your school nurse and/or teachers to teach them how to take care of your diabetes?

Registered User Melissa mom to Madison, 3, dx 2/09, ping 8/09, Dexcom 8/09  (72.75.44.80) Tue Sep 01 09:43:19 PM EDT 2009
Cystal, I have one last question for you since you know the NOVA system pretty well...

Registered User Paige's Dad (KS) Dad of Paige, 11, Dx'd October 10th, 2006, Pumping, CGMS  (68.95.118.203) Tue Sep 01 09:43:51 PM EDT 2009
our 504 plan says that if a parent doesn't accompany Paige on a field trip then one of the school nurses has to

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:43:56 PM EDT 2009
can i plz talk to someone plz i am cry really!  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry  Cry 

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:44:04 PM EDT 2009
Amy, recommendation is that 504 plan be updated when needed and usually on an annual basis. I recommend that you talk with your school nurse or 504 coordinator to have the H1N1 provision written in. I don't think there will any objections.

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:44:19 PM EDT 2009
I'm having a hard time following the conversation.

Registered User Melissa mom to Madison, 3, dx 2/09, ping 8/09, Dexcom 8/09  (72.75.44.80) Tue Sep 01 09:44:30 PM EDT 2009
In VA you can go to public preschool for low income or have other issues like spesch delay... do you know if I could get my DD into a public preschool program bc for her D

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:45:06 PM EDT 2009
I'll try that first. Thanks.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:45:15 PM EDT 2009
Great if a school nurse can accompany on field trips, but not what happens in most school districts. Usually a teacher or other staff member is trained to provide care on a field trip.

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:45:22 PM EDT 2009
me crying plz someone talk for a while plz? Cry  Cry  Cry  Cry  Cry  Cry  Cry 

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:46:03 PM EDT 2009
Melissa, I see no reason why your child wouldn't be eligible for the pre-school program - just like other kids.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:46:41 PM EDT 2009
Erin, is there something you want to share about school? This is a chat about school issues.

Registered User Paige's Dad (KS) Dad of Paige, 11, Dx'd October 10th, 2006, Pumping, CGMS  (68.95.118.203) Tue Sep 01 09:47:20 PM EDT 2009
well we do have exceptional nurses in our school and I know that our school is a lot better with our 504 plan than the norm, I have helped quite a few people with their fight for a 504 plan and have actually directed a few to you for assistance Crystal

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:47:43 PM EDT 2009
um yeah i have a question?

Registered User Paige's Dad (KS) Dad of Paige, 11, Dx'd October 10th, 2006, Pumping, CGMS  (68.95.118.203) Tue Sep 01 09:48:18 PM EDT 2009
In fact I have a friend that I have been texting trying to get her here tonight so that she can ask you questions about a 504, doesn't look like she's gonna make it

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:48:52 PM EDT 2009
crystal i have a question?

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:48:59 PM EDT 2009
Great. Any child who has a school nurse is very lucky. But there must always be back-up care because the school nurse cannot be in all places at all times.

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:50:05 PM EDT 2009
um wut do u do if you get a insulin reation or take the wrong one for giving shots?

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:50:09 PM EDT 2009
Yes, we have that at our school. We are very lucky. Connor's teacher is one of the ones who is trained, so he tests in the classroom. :)

Registered User Paige's Dad (KS) Dad of Paige, 11, Dx'd October 10th, 2006, Pumping, CGMS  (68.95.118.203) Tue Sep 01 09:50:17 PM EDT 2009
I agree, we have one card in the deck that is available to us too that is pretty good, one of Paige's teachers is also a parent of a cwd

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 09:51:05 PM EDT 2009
hey Smile 

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:51:21 PM EDT 2009
Nice!

Registered User Paige's Dad (KS) Dad of Paige, 11, Dx'd October 10th, 2006, Pumping, CGMS  (68.95.118.203) Tue Sep 01 09:51:33 PM EDT 2009
hi there Stacey

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:51:49 PM EDT 2009
crystal what do u do if you have a insulin reation or take the wrong insulin for giving shots?

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:51:52 PM EDT 2009
 Confused 

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:52:04 PM EDT 2009
Erin, what do you mean "take the wrong one for giving shots?"

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:52:13 PM EDT 2009
How many trained backup TDMP's do you recommend?

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:52:24 PM EDT 2009
Erin, your parents need to work with your school nurse, principal, and teachers to make sure that you are properly cared for at school. If you are feeling "low" there needs to be someone available who knows to get you juice or glucose tab and help you out. You should always carry a fast-acting source of glucose with you.

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:53:06 PM EDT 2009
For an insulin reaction, that is a low blood sugar, you need to consume a gorm of sugar, such as juice, glucose tablets, honey. This is something your diabetes team should have explained to you/your parents.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:53:22 PM EDT 2009
In addition to the school nurse, I recommend that there be a minimum of 2 trained school personnel to ensure coverage at all times. In my school district, there's a minimum of 3 trained personnel at each school.

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 09:53:44 PM EDT 2009
crystal- is anything happening in NY - with the glucagon issue?? of teaching non nurses??

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:53:59 PM EDT 2009
like instaead of a pump u give a shot u take a day shot 3 times a day and night once at night wut if i give nph instead of reagular at school?

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 09:54:05 PM EDT 2009
Hi everybody Smile 

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 09:54:33 PM EDT 2009
erin- when are you supposed to take your NPH?

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:54:41 PM EDT 2009
Stacey, do you mean NYC or NY State?

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 09:54:42 PM EDT 2009
Crystal how do we get other staff to train if they simply refuse to?

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:54:52 PM EDT 2009
at night why?

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:55:24 PM EDT 2009
NY State has had a glucagon training program in place for years. NYC is very resistant to training lay people, but ADA is working feverishly to change that policy.

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:55:37 PM EDT 2009
i am saying i have 2 insulins ok

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:56:06 PM EDT 2009
Becky, why are they refusing? Are they being told by their union not to be trained? We rarely hear of teachers who refuse unless they are being pressured by their union.

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 09:56:09 PM EDT 2009
NYC ... I know there was a mandate by the state to train non nurses... but the NYC dept of health - who are in charge of the nurses have told them not to follow it... I personally have trained a few teachers and Jesse's friends... without the nurses knowledge

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:56:27 PM EDT 2009
Erin, you should never have your NPH at school. Most people take Humalog or NovoLog for meals. Is that what you take for lunch?

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 09:56:55 PM EDT 2009
i think they are scared, of liability perhaps or just dont want to, so far we have the nurse there at all times or a sub

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 09:57:27 PM EDT 2009
i do not know what there names are ok ? cry cry cry cry cry cry cry

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 09:57:30 PM EDT 2009
but there have been a couple of instances where a sub could not be found and the staff is being very resistant to being trained

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 09:57:37 PM EDT 2009
crystal- if you need help- let me know...

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:57:47 PM EDT 2009
The problem in NYC is that the teachers union is telling its members to refuse training.

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 09:58:34 PM EDT 2009
Erin, we are not trying to upset you.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:58:44 PM EDT 2009
ADA plans to conduct Safe at School parent workshops in NYC in early December. If more parents demand change, it will happen. Need to turn up the heat on NYC Depts. of Education and Health.

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 09:58:56 PM EDT 2009
thats not what the teachers have told me, there are many who are willing.. I spoke to the head of nursing last year. She's the one that told the nurses not to train the teachers...

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 09:59:24 PM EDT 2009
can they do that Crystal? refuse to train on glucagon? why would they? what do they fear?

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 09:59:26 PM EDT 2009
Is there a Good Samaritan law that would cover glucagon injections? Someone who acted in good faith, to the best of their ability to administer glucagon would not be sued if it was done incorrectly? As a parent, I'd much rather an attempt was made than staff to just stand around and wait for help. I'd be willing to sign a waiver.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 09:59:46 PM EDT 2009
Becky, it is the school's legal responsibility to make sure appropriately trained personnel - whether it be the school nurse or a teacher - be available to provide care at all times. Write this into your child's 504 plan.

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 10:00:07 PM EDT 2009
cry
brenda u guys mad at me?

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:00:12 PM EDT 2009
thats the way i feel Amy and ive expressed that to the school

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:00:43 PM EDT 2009
Most states have Good Samaritan laws. The reality is that anyone can sue anybody over anything, but if a lay person is rendering care in good faith then very unlikely that a lawsuit would be successful.

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:01:04 PM EDT 2009
it is written in Stevens 504 but people are dragging their heels no one wants to volunteer to be trained ive offered to do trainings myself

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 10:01:07 PM EDT 2009
Right. So what's the issue?

Registered User erin need somone to talk to plz  (96.42.248.90) Tue Sep 01 10:01:14 PM EDT 2009
anyone mad at me?

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:01:45 PM EDT 2009
we probably wouldnt have a glucagon problem if it was pre-mixed like an epi pen...

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:01:50 PM EDT 2009
No, Erin, not at all. We are just trying to discuss a specific subject in this chat. Why don't you try the chat again tomorrow after school or in the evening? You might have better luck finding kids your age.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:02:07 PM EDT 2009
Laws vary from state to state. Important to know what state laws impact diabetes care. For example, some states have nurse practice acts that may limit what a lay person can do.

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:02:15 PM EDT 2009
i think thats what worrys people that they have to mix it

Registered User  MODERATOR  (98.64.243.244) Tue Sep 01 10:02:16 PM EDT 2009
erin, this is a special chat tonight for back to school. Please chat in a different room. Thanks for understanding.

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 10:02:45 PM EDT 2009
I don't understand how teachers could watch a child go into a seizure or become unconscious in their arms without wanting to help. It's unfathonable to me.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:02:53 PM EDT 2009
Hopefully, glucagon technology will progress so that it's not as much of an issue.

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:03:05 PM EDT 2009
Is it more about schools trying to cover their you know what's by limiting those they want to allow to administer glucagon.

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 10:03:18 PM EDT 2009
Not just teachers - other staff there too...

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:03:29 PM EDT 2009
I know Amy thats the way i feel

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:03:36 PM EDT 2009
Amy, I agree. I am not aware of any teachers who have refused to step up to the plate. I think it's all in the "ask."

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 10:04:11 PM EDT 2009
That's important, actually. Anyone can be trained - doesn't have to be a teacher. I'd trust anyone who was willing to be trained.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:04:16 PM EDT 2009
Ignorance and fear of the unknown are our greatest challenges.

Registered User Chris Dad of Danielle 10 (dx 8/17/07)  (71.194.234.165) Tue Sep 01 10:04:22 PM EDT 2009
Hi all, just wanted to chime in that there is a company working on a glucagon pen type device that is similar in function to an Epipen....

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:04:41 PM EDT 2009
It definitely is Crystal... When Jesse went to Greece, I trained 3 teachers.. but didnt mention it to the nurse at all....

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:04:42 PM EDT 2009
Once school folks understand glucagon and that it can't hurt a child they embrace it.

Registered User Chris Dad of Danielle 10 (dx 8/17/07)  (71.194.234.165) Tue Sep 01 10:04:48 PM EDT 2009
If developed it would make administering glucagon easier...

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:05:06 PM EDT 2009
Chris, my husband just told me that same information! Smile 

Registered User Jen(AZ) Allyson- age 14 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (130.13.45.255) Tue Sep 01 10:05:16 PM EDT 2009
hi all

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:05:39 PM EDT 2009
so, Brends- ask Jeff when??? lol...

Registered User Chris Dad of Danielle 10 (dx 8/17/07)  (71.194.234.165) Tue Sep 01 10:05:42 PM EDT 2009
See Brenda, husbands are good for somethings... Wink 

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:06:08 PM EDT 2009
It doesn't make sense that schools make such a big deal out of glucagon when we parents learn how to do it and most of are NOT medical professionals!

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 10:06:29 PM EDT 2009
Well, watching a child go limp in your arms with no way to help them would arise more of a panic in me than worrying about how exactly to administer the glucagon (or any lifesaving device).

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:07:40 PM EDT 2009
Hmm, been here over an hour and just realized this thing says Marissa is 21. As of yesterday, she's 22. Geez I feel old.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:07:54 PM EDT 2009
Glucagon is not nearly as much of an issue as it was a couple years ago. By that I mean, most school districts willingly train folks to do glucagon. Insulin adminstration by lay people is a key burning concern right now in a number of states.

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 10:07:56 PM EDT 2009
Is the way it's delivered (with a shot) the issue? Or is it that it's a lifesaving device?

Registered User Ellen (FL) Zack, 21  (98.64.243.244) Tue Sep 01 10:08:06 PM EDT 2009
Happy Birthday Marissa.

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:08:11 PM EDT 2009
aww happy birthday to Marissa Smile 

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:08:24 PM EDT 2009
How many in this chat have actually had to administer glucagon to their child? Knock on wood, but we haven't.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:08:24 PM EDT 2009
Happy belated birthday Marissa!

Registered User Chris Dad of Danielle 10 (dx 8/17/07)  (71.194.234.165) Tue Sep 01 10:08:30 PM EDT 2009
need to go get Danielle into bed..bbiab...Crystal, if you are gone before I get back, thank you for all that you do... Smile 

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:08:31 PM EDT 2009
I personally think its the mixing thats the issue/fear...

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:08:46 PM EDT 2009
i think cause its different then epipen you dont just poke em with it but have to mix it first

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:09:02 PM EDT 2009
teachers are taught how to use epipens

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:09:44 PM EDT 2009
I've administered glucagon twice. I think there is a certain panic that sets in as it does with any emergency. But the truth is your follow the steps and save a life. It's not difficult.

Registered User Melissa mom to Madison, 3, dx 2/09, ping 8/09, Dexcom 8/09  (72.75.44.80) Tue Sep 01 10:09:52 PM EDT 2009
not that I have this issue... but does anyone have in their 504 that the child can have and use a cell phone?

Registered User Jen(AZ) Allyson- age 14 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (130.13.45.255) Tue Sep 01 10:10:35 PM EDT 2009
yes we ahve that in allys 504 plan

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:10:41 PM EDT 2009
Jesse's 504 has it..

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:10:51 PM EDT 2009
"Mixing" as a concern is just an excuse for not wanting to have another tasks added to a teacher's list. Key is training. Doesn't matter if it's a one step process or 10 step process.

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:11:19 PM EDT 2009
ive had to use the mini dose glucagon when STeven was ill thats not quite so bad used a reg syringe

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:11:24 PM EDT 2009
Crystal, are you okay staying around maybe 15 more minutes? We'd appreciate it.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:11:26 PM EDT 2009
It is common to include cell phone access in 504 plans where the child is able to provide self-care.

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 10:11:47 PM EDT 2009
I haven't used it (knock on wood), but I've drawn it up thinking I was about to use it on my husband. Luckily, Zofran kicked in and nausea stopped. Practiced with expired kits many times. Gets easier with every practice.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:11:51 PM EDT 2009
Brenda, I can stay on until 10:20.

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:12:15 PM EDT 2009
thats true Crystal, i think some of it is not wanting another responsibility they would be the d emergency person then

Registered User Jen(AZ) Allyson- age 14 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (130.13.45.255) Tue Sep 01 10:12:51 PM EDT 2009
things ar e going ok for us so far at the high s chool we ahd a rough time with the nurses aid last yr she said im too busy to call even though it wa s in the plan

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:12:51 PM EDT 2009
almost had to use it the other morning.. out of nowhere Jesse was 30?? but he drank juice... BUT- I did have it mixed, ready to go...

Registered User Paige's Dad (KS) Dad of Paige, 11, Dx'd October 10th, 2006, Pumping, CGMS  (68.95.118.203) Tue Sep 01 10:12:59 PM EDT 2009
only 9:10 here in the midwest Crystal, so you can stay for another hour and change  LOL 

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:13:28 PM EDT 2009
Is it common to ask for a trained person to accompany kids on field trips? I've heard of cases where schools tell the parent the child must skip the trip.

Registered User Jen(AZ) Allyson- age 14 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (130.13.45.255) Tue Sep 01 10:13:35 PM EDT 2009
itsd only 715 here

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:13:47 PM EDT 2009
Jesse is a senior this year, so soon I'll have to worry about glucagon in college?? How does that one work??

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:13:52 PM EDT 2009
There are a number of very good glucagon training curriculums that can be easily accessed. ADA has a module at www.diabetes.org/schooltraining. Some of the state diabetes prevention and control programs (NY and CA in particular) have excellent training materials.

Registered User Jen(AZ) Allyson- age 14 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (130.13.45.255) Tue Sep 01 10:14:02 PM EDT 2009
yeah they mad e my d aughter skip a feild trip in junior high cause of ehr diabetes

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:14:27 PM EDT 2009
we are lucky that my husband or i can go on field trips but what if people have to work?

Registered User Jen(AZ) Allyson- age 14 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (130.13.45.255) Tue Sep 01 10:15:05 PM EDT 2009
yeah i w ork in a child care center so its hard to get time off

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:15:09 PM EDT 2009
they did Jen? thats cruel! and discriminatory

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:15:09 PM EDT 2009
when Jesse was in middle school, I couldnt make it to one trip, so they sent a nurse.. Jesse was so embarrased by her.. She followed him like glue. I promised himI'd never let that happen again...

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:15:28 PM EDT 2009
Field trips - a parent cannot be required to go on a field trip in order for the child to participate. Absolutely violation of Section 504. School nurse or another trained person needs to accompany. High school kids may only need someone who can do glucagon (suggest training the bus driver). Our little guys will someone who has been trained to perform all care tasks.

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:15:55 PM EDT 2009
by 7th grade, I trained his homeroom teacher to give glucagon... and he went unattended..

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:16:16 PM EDT 2009
he didnt want me either at that point

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 10:16:28 PM EDT 2009
Having a child with diabetes really makes you more empathetic towards families with children with other chronic diseases. I think that epilepsy emergencies involve a dosage of medication via rectal syringe.

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:16:29 PM EDT 2009
Although I don't know much about it, I know there's GlucoMon that somehow can send your child's BG to you remotely. Assuming this is still around, see www.glucomon.com

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:16:29 PM EDT 2009
In my school district, the bus drivers are all glucagon trained.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:16:57 PM EDT 2009
What about athletics? Are your coaches and/or trainers glucagon trained? Highly recommend it.

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 10:17:02 PM EDT 2009
Sorry, I see you've moved on to field trips..

Registered User Jen(AZ) Allyson- age 14 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (130.13.45.255) Tue Sep 01 10:17:19 PM EDT 2009
thast good i dont care for the district w e ar e in they bartely efven ahve nurses mostly nurses aides who like to violate 504 plans

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:19:08 PM EDT 2009
Any other concerns or questions this evening before I say good-night?

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:19:48 PM EDT 2009
just a big thanks to you Crystal...

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:20:01 PM EDT 2009
Crystal, on behalf of CWD, thanks so much for sharing your time with us this evening.

Registered User Jen(AZ) Allyson- age 14 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (130.13.45.255) Tue Sep 01 10:20:11 PM EDT 2009
the aides ar e horrible and they moved the horrible aide up to the hgih s chool w ith allyson lol

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 10:20:21 PM EDT 2009
None from me. Thank you!

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:20:28 PM EDT 2009
Brenda- change that 21 already !!

Registered User Paige's Dad (KS) Dad of Paige, 11, Dx'd October 10th, 2006, Pumping, CGMS  (68.95.118.203) Tue Sep 01 10:20:37 PM EDT 2009
thank you Crystal and to the CWD staff for setting this up

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:20:40 PM EDT 2009
Please call ADA at 1-800-DIABETES if you need information or want to discuss a particular school problem. The best thing you can do for your child is to get his or her 504 plan coordinated and be a resource for your school nurse.

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:20:56 PM EDT 2009
You are very welcome. Hope it helped.

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:21:02 PM EDT 2009
Geez, Stacey, I am tchnologically challenged and tired. I'll figure out tomorrow. Rolling Eyes 

Registered User Jen(AZ) Allyson- age 14 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (130.13.45.255) Tue Sep 01 10:21:06 PM EDT 2009
thanks crystal

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:21:07 PM EDT 2009
Crystal- is there any kind of plan for colleges??

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:21:15 PM EDT 2009
See, I can't even type. Smile 

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:21:29 PM EDT 2009
Hope to see you in La Jolla next month.

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:21:30 PM EDT 2009
thanks for your time Crystal

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:22:31 PM EDT 2009
Stacey, not to my knowledge.

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 10:22:42 PM EDT 2009
Fish tacos at George's in La Jolla - yum!

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:23:05 PM EDT 2009
Post-secondary schools are required to accommodate under 504 and ADAct, but have different legal obligations. Also, there's a real shift from parent advocacy to student advocacy. There's no child find requirement. Stay tuned for more ADA resources on this topic.

Registered User Amy Mom of Connor, 7, dx age 5, MDI  (74.181.114.64) Tue Sep 01 10:23:13 PM EDT 2009
Really not on topic with that one. Thanks again!

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:23:15 PM EDT 2009
good night everyone.... Smile 

Registered User Crystal J. ADA Safe at School Director and Mom to Devin, age 19, dx'd 10/11/91  (75.75.35.120) Tue Sep 01 10:23:29 PM EDT 2009
Good night all!:)

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (72.89.95.48) Tue Sep 01 10:23:33 PM EDT 2009
thanks crystal.

Registered User Brenda mom of Marissa, 22, dx'd 9/89  (216.68.227.239) Tue Sep 01 10:23:48 PM EDT 2009
Bye all.

Registered User Jen(AZ) Allyson- age 14 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (130.13.45.255) Tue Sep 01 10:23:55 PM EDT 2009
bye

Registered User Becky (CT) Mom of a coupla boys, Steven 8 dxd 7/08/04 MDI, Harry 11 non-d  (68.118.199.160) Tue Sep 01 10:24:16 PM EDT 2009
night everybody Smile 



                 
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