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CWD Conferences Chat - May 23, 2007
Moderator (server) Wed May 23 08:00:00 PM EDT 2007
Our chat about upcoming CWD conferences starts at 9pm Eastern.
no. it is starting NOW!
Greetings and welcome everyone. so happy to see you all!!
last one out turn out the lights please, seeya next year!
Good evening, FFL'ersI am here a few minutes early if anyone would like to chat. Please say hi when you've joined us!
hi - Margie Plasmier here --- from Delaware. Will be our first conference, and thanks for the quick registration number
Hey, Laura. Hope we aren't the only ones here tonight.
Hi Maggie. Do you have any other children coming to the Conf?
Yes...Shane - 15 and Mary - 7. How about you?
Hey Maggie - Do you go by Margie or Maggie?
We have Kathryn, who will turn 17 on July 10, and Tim, 13.
Margie is what I go by.......Just used Maggie for now. No problem with the clinic. Looking forward to everything.
Hi all
Brenda, wow 3 teenagers!
Hi Lisa
Well, technically Marissa will no longer be a teenager by Sept. and Tim just turned 13 on May 5th.
Hi there, Laura here from Md. We are newbies
doing fine. I'm acutally talking to my niece too on the phone about disney... she was just there in March
... which means that you have 3 teenagers in July!
Hi Laura from MD. Laura B. and I are both originally from MD--me from the Baltimore area and Laura from Silver Spring.
Any pointers for first timers at the conference anyone? I don't have flight reservations yet.....any good websites where I can access flight info?
Hey Laura! Great name.
Margie, I think it might depend on where you depart from. AirTran has pretty good rates.
Hello everyone!!
Maggie - Does Southwest operate from your area? They've had some awesome deals (and some stinky ones, too - just keep watching). Pointers for newbies? Definitely come a day early if you can, and definitely come to the first-timers session on Weds. btw, you will be 'marked' at the conference. First-timers get to wear a ribbon on their name badges - that identifies you as a first-timer, so that when you stand in the middle of the conference center looking totally lost, we'll help you!
I wil try AirTran. We are going out of Philly
Margie and others--if you can, bring an empty duffel bag or such to carry home all the Conf. goodies! Although I always tell people to carry double the usual D. supplies, this is one time when you can usually find someone to help you out if you forget something or run out.
Great news for first timers, Lauraa. thanks. We are trying to come a few days early to hit Universal and Islands of Adventure - dont' know if that will work out for us or not. I will look into Southwest.
Out of Philly? That's where Southwest had their $49 each way deal a few weeks ago. You should go online and see if you can get that still!
There are several sponsors who are giving out backpacks this year... so, if you bring a duffel, you can fill that, AND fill the backpacks that you are going to get. There are some very neat giveaways this year. I'm not allowed to spill the beans, but I'm impressed by what the exhibit hall folks are bringing!
Hi All
Laura B., are you going to use colored bracelets to identify people? Green for people with diabetes, yellow for those with celiac, etc.
Heard about the $49 deal and didn't grab it.....ugh! I think it's gone now. I thought we were driving again as that's what we did twice before to Disney, but apparently the family has voted to fly this time.
hi connie
All the kids will be getting plastic mugs that are refillable at the Pepper Market at the Coronado so don't buy any for the kids if you get there early.
Thanks for the tip - I would have bought those mugs if you didn't tell me. Thanks.
If you haven't been to the Disney resorts, you can take Disney buses from the different resorts to the different Disney theme parks and downtown Disney. So, you can save on gas.
Yes... I do need to send out a reminder email about that so we don't take people by surprise. At the conference, we put Tyvek bracelets on the kids (and adults who would like them). Green if you have type 1, orange if you do not, and yellow if you require gluten free food. This identification system helps us 1) see immediately if a child belongs to our conference and 2) if they have diabetes and we need to get them help. Also - we'll only be taking up about a third of the rooms at the resort - there will be lots of other families who don't belong in our conference area. The food is just for us!
And, according to Laura, you can take the Disney Magical Express from the Orl. airport to the hotel. Can you confirm this, Laura B.?
I missed out on the airfare too , Maggie. I will also be flying out of Philadelphia.
Yes, the Disney Magical Express runs from the Orlando International Airport to the hotel... but you need to register in advance. You can't just show up. The link is on the conference website... it's a great system, and it is free!
Renee: are you from Philly or just flying out of there?
Does Mears Transportation still have a shuttle from the airport?
ust right outside of philly, bucks county.
I just did a quick Expedia search from PHL to MCO - cheapest is $173 roundtrip (Tuesday to Sunday). That doesn't seem so bad.
Hi Renee! funny meeting you here
Renee: REally?!?!? We are from Far Northeast Philly........
good evening
Yes, Mears still runs a shuttle, but it's not free. You can purchase tickets right there in the baggage claim area. There are signs for MEARS transportation, and then kiosks where they sell tickets.
hi, this will be our first time. anything i should know or do first...
Hi Stacey!
dmcnlly - sleep before you come
There are a LOT of families from PA coming to the conference. 35 right now.
hi
Hey DyLee
laura- jesse wants to know if jennie and max klein have registerd yet?
Hi all. Brenda,I survived Charlie's wedding this past weekend. Now I am ready for FFL in July.
Hello Lisa, You are not far from me Maggie
Laura: What airlines is that fare, do you know? That's the cheapest I have heard of
Maggie - I'm still looking at it - US Air. Air Trans is $203.
Hi Janace. Maybe by the Conf. 2008 you will be a grandma?
Janace - You may need the caffeinated diet coke after all!
Thanks - I will get right on it....thanks again.
Stacey - Tell Jessie that I have not yet heard from the Kleins. Are they planning to come?
Great to see some additional female VIP guests, Laura. I want Brooke to chat to Missy Foy - Brooke just ran her 2nd 5K this past weekend.
hello laura, we are coming in on July 11 around 11:30 am
Lisa: I just noticed that your child seems to be on the pump and was just diagnosed in October. How did you get to do that? We were diagnosed in November, and we were told a year.
Not sure- Max doesnt answer his emails...
Laura, I don't want the funny heart beats, especially since my diabetes drug is under investigation (Avandia). They better not have babies too soon, Brenda, Charlie is talking career change with more school. I am ready to go play in July.
Good Evening everyone
So - who is arriving early and what are you doing for your early fun days?
Connie - Yay, Brooke! Tell her we are so proud of her... and one day she can be on the sports panel!
We are trying to come Saturday...what should we do? All the water parks?
Hi Everyone...we're arriving on the 10th
we are coming Saturday the 7th. The Doyle's will meet us and we will do parks Sunday, Monday and Tuesday.
Children's Mercy and the insurance really helped. the insurance actually pushed for us to get it before the new year. But out here they are acutally trying to get the kids on sooner for better control
We are arriving on Sat. and plan on hitting Magic Kingdom, Epcot, MGM, and Animal Kingdom before the conference. We just went in June but my 23 year old niece is coming with us and has never been before.
I like the water parks the best... especially when its in the 90's and humid
Maggie - Literally all of the pump companies will be at the conference. And they allow you to do something called a pump trial. If you go to the conference website, you'll see a whole section on it. You - as mom - can wear any of the pumps for a day. I would recommend trying as many as you can. They are all subtly different, and something will strike you as 'a good fit.' You do need a prescription from your dr - doesn't need to be an endo (can be your pediatrician) that says 'saline pump trial.'
Renee: Where in Bucks County?
Kids love the water parks, but if they haven't ever been to Orlando, there is Universal Studios, too. Just be prepared for heat and humidity.
Thanks, Laura. - We are arriving on the 4th in Daytona and Lee & Brett will be taking in the a Nascar race before we head over to Disney on Sunday
Also, Patrick can try the pumps. Didn't mean to infer that it was just a parent who could do this.
We plan on arriving on the 6th and most likely do water parks.
I am in Newportville. Just a hop from Bensalem.
Hello
Also - don't overlook Epcot on those really hot days. Most of the Epcot attractions are indoors - air conditioned!
Oh - OK! We have actually moved to Delaware, but we lived in the Far Northeast forever and were always in Bucks County - the water parks sound refreshing!
Laura (Nicholas' mom) we are also bringing my niece who is 14 - she is from Indiana and has never seen the ocean or Disney -
I noticed earlier you were all chatting about airline tix.
Try downloading "Ding" from Southwest. I bought three non-stop flights, roundtrip from Providence to Orlando for $98 each.
Laura, have you hit 3000 yet?
Connie - You should suggest to Disney that they should build their next theme park around an 'ocean' theme... then you could have the ocean AND Disney in one place...
My niece is really excited, not only about Disney but learning all she can about diabetes.
Nope, but we will. There are nearly 4,000 room nights reserved right now. Incredible. Last year, for the entire conference, we utilized 2,000 room nights. For those of you interested in such things, a room night equals one room for one night, and it's how one contracts for an event like ours. Usually, our total room nights is very close to our total participants... but I think we'll hold steady at around 3,000. People are staying longer this year.
Are you guys all signed up for focus groups? There were several really good ones added this week!
I signed up for 2. I'm really looking forward to them.
We are going to the Pelikan focus group - digital lancing device sounds interesting. There is someone on our local listserv who is using it and will be at the booth during the conference
Laura, do you have another family from Lake Tahoe registered yet? A friend of Donnie's said they were coming.
I need to remind the children's program staff to sign up for these (still on, Stacey?) - since they work all day Thurs and Fri, the focus groups on Weds are a great opportunity...
Hey Debbie
Animas/LifeScan added one just for teens at 1:00 on Weds. Natalie and Dr. Bob are facilitating it. With those two, it should be great. No parents allowed.
Did you ever get the feeling that you were talking to yourself?
I'm here
are there any older young adults--25-35?
all the time Laura, all the time...
laura, what do you mean by have we sign up for the focus group? what is that. sorry, just trying to get all the info i can, so i dont miss out on anything since its our first time.
We came across someone last night who wasnted to register. We told her to do it asap!
Focus group info: http://www.childrenwithdiabetes.com/activities/Orlando2007/focusgroups.htm
Laura - under the Program Overview from 6 - 9 PM on Wed. families have a chance to meet the childcare staff - what age group staff is this for?
besides the surprise entertainment, what will happen Thursday night at the dinner? Will there be country music?
Hi Everyone
howdy folks
Hi Paige's Dad
Focus groups are the only things you need to pre-register for. They are 'mini-groups' (the largest group is 40 people) on specific topics, selected by the sponsors of the conference. Not everyone participates in focus groups, but if you'd like an extra day of education on a wonderful variety of topics, it's worth it. There is no childcare that day, though, so you'd need to make arrangements. I can put parents in touch with babysitters (teens from our group).
Laura...just an FYI..if you still need helpers all day with the children's group...I would be willing to volunteer for either day or bothh
and Wendy!
Nicholas was dx'd 2 days before Christmas this past year. We are looking into the pump and are down to Animas and Medtronics. Does anyone have a preference? Will it be easier if we wait until after Disney to adjust?
Meet the childcare staff is for childcare.
They told me they (Jones or Dennis family)were coming when we were at a support group meeting with a great guy from Lifescan, last week. Kudos to Charles Renthro (sp.?) for hireing Jeremy Greenberg, excellent with the teens and I understand he will be at the conference
Laura, I'd look at all the pump options in Orlando. I may help you make a decision or it could make you more confused!
Makes perfect sense to me, thanks!
Hey Wendy
I think Brenda has the right idea on the pump options...too look at all and try them all
Thanks Brenda.
No problem Laura....i can also be available if you say you need a sub if you don't get to the numbers...i am very flexible
Laura we are supposed to meet sometime on Tuesday afternoon? Is that correct?
Are the DexCom people going to be at the Conf.?
How many new vendors this year compared to last? There appear to be a lot of 'new' names on the list.
Mike - Not sure what you mean?
First she complained no one was talking to her, now Laura B. is not talking to US.
actually am doing the happy jig here...think i found one of our hotel cards with one more day at Disney left on it
the volunteers?
Yes, DexCom is at the conference. LOTS more vendors than in prior years. In fact, the exhibit hall is entirely sold out. We even needed to add an extra tier of booths - we're busting at the seams. Good problem to have.
great about the exhibitors Laura....
Mike, I think the volunteers meet at the reception at 7 on Tues. in the Monterrey room. That's what the schedule says.
bring her a peanut m and m pie...
Ahhh. yes. Tuesday evening. The volunteers reception. All volunteers and their families are meeting from 7-8:30. It's not really a 'meeting' - it's a social event. It's in Monterrey 1-3, plus the outdoor patio. Here is the link to the schedule-at-a-glance: http://www.childrenwithdiabetes.com/activities/Orlando2007/program.htm
No NUTS Stacey.
PIE? MMMMMM. Blueberry.
Very exciting to have the opportunity to see & touch new products and be able to talk to experts about various products
how's laura going to survive??
ok Brenda, that's what I thought, I guess we'll have to put a schedule together so we know where we are supposed to be at what time
don't have those Stacey....sorry...choices are very berry, apple, cherry, blueberry, peach, and pecan i believe...
Yes, we all have to keep reminding people about 'no nuts.' We have some very allergic kiddos.
Laura actually prefers a BOX cake (gasp here from a bake from scratch person)--yellow with CANNED choc. frosting. I made her one once since Sam was at our house. He took it back to his mom.
Wow - is someone taking pie orders?
wendy is...
Okay Laura..I will note the blueberry....shhh connie..yep
Wendy, does your family make pies to sell or are you just offering from the fruits you grow on the farm?
chocolate works too Wendy
gotta run ... again..
see you at FFl
Brenda..i am in Laura's camp..actually like box cake mix also....
There is a volunteer schedule, and you will be receiving an email from me a few weeks prior to the conference if you've volunteered and I've replied 'the job is yours.' If you've received a scholarship for the conference, Julia Mattingly will be in touch to let you know what the volunteer placements are. And then - finally - at the Volunteers Reception on Tuesday night, you will get an envelope with all the details (again), plus your very very cool volunteer shirts!
bye Stacey..take Care..we bake them Brenda...we don't make them but they are good....
OH NO that's where the pink ones are
Jesse loves the pumpkin pie...I have never tried it
kewl...
Ok. I'm hungry now. Who has pie?
in a few weeks you will Laura....
White with purple, Mike... except yours. It will be pink.
Apple and pumpkin are about the only pies my family eats. Laura, I need to call you soon to find out how to get a bday cake for Kathryn. Have to ask her when she'd like to have it.
Wendy, I tend to agree with my late uncles philosophy on the pies, he said he liked two kinds, open face and closed face
Well - that's one thing we do very well at the conferences - we eat good food, right?
I KNEW IT
Jeff and I were just discussing the shirt color a few hrs ago. He said, "No pink, No salmon/peach, No baby blue."
yep we do...you would never starve at the conferance
Brenda, I'd suggest doing a bakery cake, not a Disney cake... Mike Schurig can point us in the right direction (I'll bet Gayle would order it for you).
good one Laura... I'll get a kick out of seeing my hubbie in pink
Oh, SALMON! Next year....
is it Kathryn's birthday Brenda?
July 10. She will be 17.
about as much a chance of seeing that as there is the kilt like the girls were suggesting last night
Kathryn always has her birthday during our conference... does she move it around?
that will be during my birthday then Laura
Yes, right before Brooke's birthday next year.
darn, I'll actually have to plan for a party or whatever ten.
then, not ten
Oh good. A pink cake.
that's fine, cake's cake, I don't care what color it is
That's right. 3,000 of your very best friends.
And we actually do have cake at some of our FFL meals. I love cake. Plain old sheet cake (from a box) with canned frosting. Vanilla AND chocolate. Gotta love it.
OK... so while the kiddos are doing their activities, the mom's and dad's just cruise the exhibit hall?
Well, if I can have a cake delivered, the best place in Orlando is probably Annie Pie's Bakery. Saw this place on the Food Network a few years ago. See http://www.anniepiesbakery.com/html/home1.asp
Now I really AM hungry...
I can't remember...do all of the rooms at Coronado have mini fridges?
All day Thurs and Fri, the parents are on the same schedule as the kids. They have sessions; you have sessions. Except you have a choice of 4-6 for each hour. Have you looked at the schedule? Mike - point her in the right direction...
Perhaps you need to take a site visit to check it out, Brenda
Lisa, on Wed. night there's food and the Exhibit Hall opens. You cruise around with your kids unless they are old enough to go off on their own. You can re-visit the Hall during the sessions on Th. and Fri. unless you are in a session.
Yes, all rooms have mini-refrigerators. And they all have high-speed internet now! ($10/day)
OK.. I've got so much going on I'm trying to wrap my head around it all
Wait - I can help you out with sampling them
Lisa, when you pick up your registration packet, it will include a big program guide to help you figure out who needs to be where when, etc.
Hi all...sorry i missed it again...i need a stick note attached to my head
Parents info - http://www.childrenwithdiabetes.com/activities/Orlando2007/ParentsSchedule.htm
I have to warn everyone that we are all going to be spread out around the lake, room-wise. Not everyone can be in 'the building next-door' to the Convention Center. I am trying very hard to designate only people who really need to be that close...people with physical disabilities, staff who need to carry a lot of stuff back and forth, older folks, etc. The hotel runs golf carts very frequently all around the lake, so you can hitch a ride... just allow time for it.
OK, thanks Brenda, that's what I was kinda stressing about.... in other words, it's a no brainer?
Youth info - http://www.childrenwithdiabetes.com/activities/Orlando2007/YouthSchedule.htm
Hi Julia
Hi Julia
Hi Julia
It's a good idea to look at the schedule at least a few days ahead of time so that you have an idea of what the sessions are and what your choices might be. If you just step in on Weds and have not prepared yourself, you WILL be overwhelmed, and I don't think it will be a great experience. Joining these chats is a good thing, too... because you're already starting with friends!
Hi Debbie and Connie...i will be watching for a photo
Do we qualify as older folks yet? Jeff keeps reminding me that I'm almost 50, yet he's not much past 45. I'll be 49 this year, yet he will be 48 a month later.
I have alot now...i am going to get boards to get started
Julia, my photos are in the envelope and ready to go tomorrow. I have about 10 boxes to ship.
No, but you do qualify as 'one who carries a lot!'
Ok Brenda i will be watching for it.
Last day of school today...hoping to catch my breath now
You're shipping 10 boxes of photos to Julia!
Sam's last day of school is Friday... and then he will be a GRADUATE! My baby boy. How did this happen so quickly?
No, I'm shipping other stuff--one box to you, as a matter of fact. More brochures and stuff for Neal.
half day left for me tomorrow, Julia... yeah!
I know...will the Coronado have enough easels...that is not spelled right
How exciting, Laura!
Julia, I will be happy to help you set things up and add last minute photos.
Gotta go pick up Hannah she has been gone all day. Can't wait to see you all in Orlando
Stuff for Neal? What does he need?
Yep - Sam is pretty excited. Tomorrow is 'Senior Skip Day' which I'm not so sure I agree with... so I've allowed Sam to do a 'half senior skip day' - he has to go to physics (presentation due) and Spanish(ditto).
wow you guses get out so early got 4 weeks left
Thanks Debbie...there is always last minute photos
I spent several hours a few weeks ago organizing prev. Conf. photos in a couple of albums and I plan to bring them. Julia, can we sit them out at the registration desk? Hope so. Now, Jeff wants me to go through and print copies of the on-line photos and add them. Maybe by the 2008 Conf. That's a winter job. Too many things to do outdoors these days--mowing, painting, etc.
Julia - Disney has thousands of easels. No problem.
Julia there's surely a lumberyard around Orlando, we can build you more
Lisa...gotta love those half days
I may need more at that rate
Chelsea, my nieces are in PA and they don't get out until June 15th I think... don't feel bad
I don't think those will fit at the registration counter - we need to keep that clear for registration. It will be swamped. Perhaps a table by the easels - as long as someone can staff it. I wouldn't want to leave them out where someone could walk away with them.
ok thank june 28 here
Sam graduating ::grin:
I think there are only TWO albums. Now, once I add those other 1,000 pics....
Brenda, if Lisa and Paige ever get her quilt done, do we need to send it to you or bring it with us?
Oops! I just looked at the clock! I need to officially close the Friends for Life chat... although the room will stay open for a bit, and I'll stay online until 10:30. Thanks for chatting, everyone! See you in July! How many weeks is that?
Maybe a table with or close to the quilt square we sign
July always has 4 weeks and three days in it
hey now, I'm just finishing up school and camp starts next week for me... gimme a break
We would rather have the quilt sent to us so we can "catalog" it. Deadline is June 15. BUT, if it not's done in time, bring it along. Just remind us NOT to pack it up with the other quilts or it will end up in Wisconsin where Jeff's dad stores the quilts.
That's a good idea, Julia. That way, the same person can keep half an eye on it.
Good Night all - can't wait to see everyone - enjoy Sam's graduation, Laura!
Thanks for chatting, Connie - and for the good wishes. We'll have a house-ful!
Lisa, don't feel bad. For each of our kids, I make a cross-stitch thing with their name and birthdate. Marissa's was done shortly after her birth. Kathryn's was done by her 5th bday or so. Tim's STILL isn't done and he just turned 13!
ya night to got to go study for a test
OK.. good nite all... see you in July
Well I got the priviledge of being one of the packer uppers, so I guess if that happens, I can remember
Good night, Chelsea - thanks for joining us! G'night Lisa!
Last year, we had to call Jeff's dad and describe the quilts as he looked through boxes. He just didn't know the "system," which you will learn. The quilts are all numbered and get folded a boxed a very specific way, per Jeff.
I'm signing off, too. Got a few things to do before bed. There are way too few hours in the day this month! See you all.
Many of the Quilt setter-uppers are going to be with the teens at MGM on Friday when we take it down. We'll have a crew of about 10 to take it down; several people are new, though, and need the Jeff Instructions!
Brenda, you have to have them by the 15th?
'night, Brenda. Talk to you tomorrow. Good luck at the post office! It's supposed to be 90 here tomorrow - how about you?
Yes, Laura, so we can photograph them, attach a number and get them boxed for shipping.
Cool, ours should be finished soon. I have a friend that is putting a lot of work into it.
Good Night everyone, time for dinner here. Laura, enjoy Sam's Graduation, congradulations to your "College Boy"
sweet dreams Brenda and Debbie
85ish. Mowed today before it hit 88. Not too humid--we really could use some rain.
G'night, Debbie - Talk to you soon!
we don't need anymore of that, but there are severe storms moving our way again
Ok... well, I guess I'll sign off, too. We'll chat once more in June... in the meantime, feel free to email me with questions!
Mike - stay safe. I hope the storms bypass you.
I wouldn't do that to you Laura
sweet dreams
Thanks for everything, Laura. Good Night
we are going to get them, but just for thunderstorms this time, Greensburg is still recovering, but they are getting lots of help from all over the state
anyone with a pump know about going on 6 flags rides?
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Last Updated: Sunday May 27, 2007 11:01:40
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