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CWD Friends for Life 2009 Conference Chat - February 18, 2009
Moderator (server) Wed Feb 18 08:00:00 PM EST 2009
Our chat about CWD's Friends for Life: Orlando 2009 Conference starts at 9pm Eastern.
Good evening! Please say hello when you join the chat so that I know you are here!
hello goodevening to you to
Hey Chelsea
Brenda's here
i am good tonight you
hi brenda
Jeff here ... I fixed Brenda's profile to show Marissa, 21 ...
hi jeff
I thought Marissa was lovely when she was 16. Of course, she's lovely at 21 as well.
Chelsea, are you definitely joining us this summer in Orlando?
Hi everyone!
i not to sure i do not think this summer mybe next
It's difficult to manage each year. Orlando is not inexpensive.
Hey Anne Marie - How are you?
Hi! Finally made it to a chat. No school this week and several post it notes to remind me!!!
HI Pam, Laura, Brenda, and Anne Marie
i would like to go this year but my dad still paying off the trip
No school this week? Winter break? Sam just finished midterms today. I can't believe he is nearly done with his 2nd year of college.
luckey no school i whish i had no school i taking friday of got to pack for hcokey turment
Hello to everyone...my husband and I are excited for the event this summer. We're new to the T1 D world and are glad to have found this resource.
Hi Jill
Sarah and friends are already counting the days. I don't have to keep track. She missed it so much last year. Hard to be two places at once.
Laura, you did get my registration for FFL didn't you?
st want to make sure it at least made it there...
Hi all. Just back from the grocery store.
On a conference-related note, there are lots and lots of college students emailing me asking about the Young Adults program this year. I think it is going to be a big success! Great energy in these 'kids.'
Hi Everyone!
Hello everyone
Laura...that is because Kerri posted it on her blog yesterday
Hi Michelle and Cami
Hi everyone
Hi Jill! So - you will be a First-Timer! Make sure that you come to the First Timers Reception on Weds afternoon. If our group is like last year's, there will be at least 500 other first timers right there with you!
Hi Julie
Thank you for reminding me Michelle!
hi everyone!!
Are there still plenty of rooms available. Had someone ask recently.
Hi Cami. :)
Wendy - yes, I did. Didn't you get your confirmation back? I'll send you an email with it attached (if I don't remember, remind me)
Good to know! My daughter gave me questions to ask in the chat tonight...one of which is "How many other kids my age can i meet?" We're in that stage where we are needing to make contact with others that live with this condition. Feeling a bit isolated!!
Laura,..our post office is so slow it is probably there....I just got a little worried...also my father is notorious for throwing things out...
Jill, your daughter will obviously be with my son. :) so there's 1.
mom2tinks - is that you Carie?
Jill...i would say if she wants kids 8 only....probably 50 or so..quesstimating there
I saw that Kerri posted it on her blog. Very cool! There will be a young adult outing to one of the water parks on Tuesday... our own Marissa Hitchcock is behind that one! Should be fun. In the late afternoon, the young adults have a reception (so if you can't make it in the morning to the water park, come to the reception later)
Jill and Michelle, I think Aidan will be with your children he just turned 9.
yes it's me Michelle!
My guess is there will be at least 300 children in each age group. Very similar to last year.
Laura - is it 8/9 for the age group?
Hi Jill! Once you get to the conference you won't feel isolated at all. You are truly going to make friends for life. It is an unbelievable experience!
I have questions from my son as well! Laura, will sports central be back? and will Chris Dudley do his basketball camp again? Austin is old enough this time.
Michelle, woo hoo! Is he in 2nd grade?
Katherine will make the age 9 group with Ian
Remember that this year we will subdivide the elementary group into 6/7 year old children and 8/9 year old children. There are some things they will do together (like the afternoon session with DJ Miles and the Scavenger Hunt) - but other activities will be done in the much smaller groups.
Jeff once penned Marissa "Julie the Cruise Director." Of course, if you're not 35 or older, you have no clue what I'm talking about!
No bball camp.
I have to 2nd or probably 3rd exactly what Pam said....
Anyone else on here with a soon to be 7 year old?
Jill - Ian's in 3rd grade - so by the summer he'll be almost 9 going into 4th. But that hard matters. Can mom2tinks non-d daughter will be in that group too. And Cami's son. I think there will be a lot of us, first timers, with kids that age.
i staed with my parents most of the tiem afet the fist day with the teams i did liek it wil my brother woudl go his why and i was bye my self
thats cool about the young adults going to theme park, now would we need to get tickets before that date?
Sports Central will be open Tuesday through Friday. Tues and Weds are 'open gym' (watched over by the Sports Central staff, led by Rick Philbin). Thurs/Fri there will be scheduled sessions with the Sports Central athletes during the day; each of the kids' groups will meet the athletes and get to have some SC time.
Chris Dudley will not have a bball clinic at FFL this year.
Laura, At some point is there a scheduleposted for the kids? My boys are excited, but they keep asking what they will be doing while Mommy, Daddy and Nonnie are in "school"?
For the Young Adults Water Park day - you can buy tickets at the hotel or at the water park. No need to do so in advance... wait and see if the weather cooperates!
great, now I have the boat song stuck in my head Brenda.
I am humming it here too!
What time/day does on site registration sign in begin?
There will be a schedule posted for the kids. Probably in the next month or so. We wait to get a better idea of 'how many kids in each group' and 'which faculty person has which great idea that they want to do with which age group.' If I post it way ahead of time and then change things, it messes everyone up!
Hi Laura, How many Kindergarten age kids do we have this year?
Ok I'm singing it now as well. Thanks!!
Registration will begin on Tuesday at 9 a.m.
oops typed that too soon!
i'm sure that Everly will be thrilled to meet them! Her eyes will pop out of her head when I tell her how many kids :-)
So registration can be at any time during the day until like around 4p or so? Just trying to "plan" the day
I'll have to check, Pam. We have about 1,000 people registered already, which is well ahead of last year's registration. So, count on about the same size group plus maybe a few more. In May or early June, I'll do a real count to get us better actual numbers.
Jill, have you been on the CWD message boards? There are so many people - you'll instantly not feel alone anymore.
"...Love Boat soon will be making another run. The Love Boat promises something for everyone. Set a course for adventure, Your mind on a new romance. etc."
Ack, don't recall seeing that show in reruns. Don't think I'd watch it anyway.
Back to business.
~~~ visions of charro now~~~~~
I always wanted to be Julie the Cruise Director, too. What an aspiration.
I think you sort of are.....
Wow! Sounds like a fun time in Orlando!!!!
The hoochie coochie girl!
I was going to say aren't you Laura..the cruise director?
mom2tinks, you mean time to register or time to pick up your reg. packet?
If you've already pre-registered for the conference, just stop by registration on Tuesday and pick up your stuff - name badges, shirts, programs, etc. It's good to do that early. You are going to be very busy on Weds with focus groups and other things. Plus - once you start wearing your name badge around the hotel, everyone knows you are one of The Very Cool People.
Oh my gosh! I am having visions now of the crew. I need to start singing a Disney song! lol
time to pick up the registration packet
OOh, Laura needs a navy blazer with the CWD logo on it.
it's ok Laura...if we're not getting there till wed morning, right??
I tried to get another song in my head and NO it won't work!
On the forums we joke a lot about how it would be kind of cool if we all lived close and all of our kids could hang out together, it will be sort of like that....if only for a week.
Brenda - don't forget the bowl wig
When are you all planning to arrive?
Michelle - yes, it is fine to get there on Weds morning!
LOL at Pam
Then Laura has already answered. I didn't want you to be confused (like I am much of the time).
No I haven't...I do belong to a yahoo group that is very active here in Northern Va, and that has helped a LOT since diagnosis. Especially when I was just trying to absorb all the info about this complicated condition, it helped even to be a fly on the wall. I feel like I learned a new language these past 6 months! But I will check those messg boards out. My daughter wants to make a quilt (we watched the FFL video), are the instructions posted under the conference on the site? thought I saw a link...
LOVED the Love Boat, and Fantasy Island...trusty Sat night line up.
Zippity doo-dah, zippity-ay....
OMG - there are tons of NOVa families on the message board. YOu'd feel right at home.
There we go. I am going to get Sarah to start singing something from one of the movies for me.
We are arriving on Thursday before, but are checking in at the Coronado on Sunday, so we will be there plenty early
New song NOT working! LOL!!!
We USED to be NOVA family. Lived in Herndon May 1991-May 1994.
http://www.childrenwithdiabetes.com/activities/quilt/
quilt for life link
My girls are wondering why I'm laughing so hard....
Michelle, have you made a quilt for Ian?
Laura, just and FYI...i will do the adults collage again this year....I had fun doing that last year...i may just bring the pictures and assemble it on Tuesday
Forgot to mention - IMPORTANT - childcare registration forms are online now. I'll send a message to the FFL email list reminding you. If you have a child younger than age 6, please sign up for childcare asap. Childcare is divided into 3 groups: K age (led by Pam L on this chat right now), PreK, and toddler/younger. We have CDEs right in the childcare rooms. Everyone does a really great job.
OK good!
We are arriving Sunday and hoping to do some parks MOn and Tues...
Brenda, we're in South Riding (Loudoun county near Dulles)Where did you move to? We'd love to get out of the rat race :-)
We do have about 20 blank quilt squares, $25 each, if anyone is interested. I ship them to you, you return them by June 10 or so in order to photograph them and pack them with the rest of the quilts for shipping to Orlando.
That's great, Wendy. Can you please send me an email about that and I'll send it to the group?
FFL inspired - I want to be ..where the people are...I want to see, what to see them pumping....(little mermaid )
Very excited about working with the kids again this summer. Been thinking of activities and themes to interests those darlings!
good evening everyone =)
Speaking of childcare, has anyone used the Disney childrcare? I'd love a night out with my husband.
Last year we were early - no one was checked in yet but there were a lot of kids at the pool that we presumed were for FFL. Most were, except the one boy my son befriended! After we got our wristbands it was easier to get the FFL kids together. (BTW, this boy was BEGGING his parents to come to FFL next year!)
We are just north of Cincinnati, OH, a little too far to commute to the D.C. area if that's where you and/or spouse work.
I used to live in Silver Spring, MD. Moved to MI and now I live down two dirt roads in the middle of nowhere...
Cari - no quilt for Ian yet. I've been saying that for 3 years now.
I will Laura...I just figured would give Julia a bit of time first...but will find the e-mail from last year. I think we may ask them to tell us number of years they have had D....to put it on the picture but not sure
Brenda....I'm interested....more info?
Laura I have a question - do the kids (the D kids) carry their own supplies while in the elementary groups? How's that all work? are they reminded to test etc??
I need to do Brandon's square. I keep saying I need to do it but never find the time.
Hi Brandy...
Helloo dear FFL. How is everyone? Shelby is enjoying her Animas Ping Pump.
Michelle, I'm going to make a serious attempt at finishing one for Isabella this year
Maria, you can post a question to the FFL 2009 mailing list and see if anyone's teen daughter would be willing to sit. Our daughter's are going to be hanging out socializing with their FFLers, but one may be willing to sit. Keep it in the family.
Hello
Good question Michelle
okay gonna run downstairs to wash some pants for tommorow....Hi Colleen
Hi everybody
Re: childcare... if you are looking for a 'regular' babysitter to watch your kids in the evening or afternoon, why not send a note to the FFL email list (the one I send you notes on - it's for everyone, not just me)... I'm sure there are teens/college students who would like to earn a little extra $$.
how are you Wendy? Thanks for my facebook message btw =) kids are doing better, they were back in school today
HI Brandy! Kids feeling better?
do you need any more help/volunteers
Sorry, wrong room....bye all
Brenda thanks I hadn't thought of older FFL's. We're very excited about the whole she bang!
Good evening everyone
Hey Brandy! Good to see you on the chat! Hey Betty! Wow - big group tonight!
yes Pam... Thank God... I started my two week job today and the last thing I needed was to have two kids home sick =)
OK I am a reasonably crafty person but no magical seamstress...is this way to complicated?!!
Also...this will be our first major vacation since diagnosis...will her Novopen stand up to the Orlando heat or do we need to carry it around in a cooler? any suggestions from you old-timers?
Laura, maybe the question got lost but Michelle and I were wondering about the elementary kids and do they need to bring their own D supplies
Rachele and Bruce! What is new on the Grandparents front? The grandparents program looks so exciting. I love the changes that you and Betty have made... and involving Richard Rubin is going to be great as well!
Are any of you (on the chat) bringing your parents?
hi Laura,
I put it on the correct night this time =)
Hi Laura & Brenda. I had to buy a new computer since the chat room doesnt work with Macs
parents coming on my end. The looked over the schedule and they think it looks great. :)
Jill, we love the frio!
Brenda...I am interested in the quilt square can you email me info on how to get them?
Anne Marie...come again? What is a frio :-)
Re: volunteers - I will send out a Call for Volunteers in May, listing the helpers and schedule needed. Then you can send me a note and let me know if you'd like to do any of those. The 'all day, all conference' positions are filled.
Betty S, I am a MAC and I am proud of it!!
Jill- I found the disney with diabetes website great and I have checked out the disney guide book '09 from the library. Its a tomb but very insightful
I am bringing my mom!!! She may be here lurking right now....
I would love if grandparents would come but unfortunately no.
Laura - can you answer about how the elementary kids are handled...:) re: supplies, testing etc..
Maria, thanks! I am an avid reader and would find that very useful.
Anyone following the CA Amgen Tour? I am taking the kids to see the race to see Team Type 1 on Friday. It will be 20miles from our house. so exciting
Anyone who wants a square should send a $25 check to us at
Children with Diabetes, Inc.
8216 Princeton-Glendale Road, PMB 200
West Chester, OH 45069-1675
You can put in a note requesting a color, but I cannot guarantee that I will have the color you want. All the squares are pastels, usu. a small print on one side, plain on the other. My m-in-law made them.
The frio packs work great. Sarah used hers in Israel last summer. 5 weeks and the insulin stayed cool the whole time. The frio packs are these water activated evaporated cooling packs that keep insulin cool in warm climates. Just like Orlando in July. Sarah leaves for Israel a few days after FFL and will be using them again.
Re: bringing supplies... we do not encourage the elementary kids to bring all of their supplies - 300 test kits that all look the same would be an absolute nightmare. Now, if your child wants to bring an easily identifiable backpack to leave on the table by the door, that is ok. Note, however, that you will be with your child every 75 minutes, testing bg, having snack, getting a potty break... so you will be in charge of diabetes mgmt. If your child does not feel well or doesn't look well, we check bg immediately and will come get you.
alright thanks for the info about the volunteers
More quilt questions, write me. brenda@castleweb.com
Frios are these little pouches with gel beads in them and after you soak them in water the gel swells. Then over the course of the next 72 hours as the water evaporates it keeps the contents of the pouch at a comfy temp of about 50 to 60 degress. It keeps insulin or pens or pumps cool!
The pen pack is what Sarah carries for emergencies in her purse or backpack. Works great.
Thanks Laura! That's good to know about the bg checks
Also, there are glucose tabs everywhere you look - in all age groups, at registration, at the pool...
Pam, Rhiannon will be 10 this year. She cried when she realized she won't be with you.
Laura, will we have the CWD bus. cards on which you write your child's name/parents' cell no. to put in everyone's meter? This is to avoid having a big Lost and Found box at registration filled with meters.
Isabella absolutely will not take a glucose tab!
will i got to go to hockey nice talking
gotcha Laura. So if I were to keep Ian's stuff with me, you guys have something in the room to treat/test if necessary? or do you just test and then come find us?
and from experience pumpers... make sure you bring more than 10 syringes... just in case of pump failure.
We often have liquid glucose and glucose gel as well as tablets.
Brandy, you tell my BFF that we will do something together. I PROMISE! And I always keep my promises!
Everyone at FFL wears a wristband. People with type 1 wear a green wristband; people without type 1 wear an orange wristband. People with celiac wear a yellow wristband. That helps us identify 1) who is with our group 2) who has type 1, especially if they are acting oddly and may need help, and 3) who is allowed to be at the gluten free buffets!
All the rooms have a supply of gles/tablets/etc. for treating lows.
I use a silver pen and write name and cell number into all meter pouches.
She prefers Skittles or Smartees
Brandy...i remember that year....
Supplies at Disney - are the health rooms in the parks overrun with FFL asking them to store the insulin?
I will =) she was excited that Sarah is going to be there this year.
Yes! Cards in meters. and also parents schedules and cell phone numbers written on the back of the child's name tag. YES, we treat lows immediately - we have a CDE in each room who helps with lows. One of the staff will come get you. Same with highs, btw. We won't give insulin, but we'll come get you so you can make a decision what to do.
Wendy... I don't think I will ever forget that year =)
Not recommended to store your supplies in First Aid in the park.
On a different note, our 4 year old has a severe peanut/tree nut allergy...anyone have experience with food alleriges at this conference? He will wear a medic alert bracelet and will fit right in!
I think you'd really want to carry your own insulin in a frio - major pain to get from back of parks to first aid when a mickey bar is calling your name.
I think that if your child has only one thing he/she will consume for lows, you should tell the appropriate staff, maybe provide that item. Laura?
G'night Chelsea - have fun at hockey!
I am excited as well. It was strange being there without her last year. A little honeymoon for Ben and I, but so weird to not have her with me. It was good for me to be so distracted with her far away. You all kept me sane!
Kyle has multiple food allergies and has never had a problem with food at ffl
can you tell - it's getting closer - mom is worrying about silly stuff now.
We are a nut-free conference. Except for the people kind.
Jill... Mike will be able to tell you everything that has peanut/tree nuts in it so that they can be avoided.
Hey speak for yourself, Laura!
OK great thanks.
Hi Pam! Are you bringing the flat iron to do Kate's hair?
If your child will only take one thing for lows, yes, definitely tell the coordinator of that age group. And provide whatever it is.
Does anyone know if there is a refridge. in the rooms at the hotel?
Laura...that's what I always say about our house!! Nut free except for the humans nad the dog...
Nothing will have peanuts or tree nuts. We have too many with allergies this year. Actually, we've moved that direction with all of our conferences, just to be on the safe side.
Yes on the fridge under the TV
Yes I am. I have really gotten (sort of) good at the task. Sarah still lets me do her hair.
I believe the rooms have all been renovated and have fridge units... I will doublecheck and send a note.
that is great Laura... thanks =)
Yes on the fridge, but also I heard they just replaced all the beds - they have 2 queens now!
What color are the shirts this year Laura? Pink for Mike, right?
Newly renovated rooms are very nice. We got to tour one in early Jan.
Laura...that makes me a very happy woman! Its just one less thing to be extra vigilant about, you know!! At this point in our children's young lives, birthday parties give me the creeps
Thanks, Julie. I like the new renovations. The rooms aren't bigger, but they sure seem bigger. Just the flat screen tvs free up a ton of space! And the double doubles are now queen queens... which is so much easier to sleep on!
howdy folks
Shirts are something like melon. I never remember what Laura calls it.
Actually, maybe we have to check about the fridges because I read they got rid of the bulky furniture in changing to queens.
They are more like a cantaloupe color
Is melon a pale cantaloupe color?
i am too slow at typing
Well, I'd still watch out for nuts because we aren't the only people in the resort... but the menus that we serve at our functions will not have nuts. If by chance you see one (i.e., one year we ran out of granola bars and one of the staff thought they would be helpful so they ran in back and got more... with nuts!), let Mike or me know immediately so we can take care of it!
Jill have you tried the gourmet cupcake maker?? The cupcakes are delicious.. quick and easy?
i think so Pam
Melon... cantaloupy, orangy, tangeriny... melon. (she says in her best Cruise Director voice...)
Brandy..you know they were onsale at Sam's club after christmas...
according to the Dis the rooms have fridges:
http://disboards.com/showthread.php?t=2038865
I will keep an eye out for nuts! Got it!! By the way, I am a licensed mental health professional, so I am far more qualified than you realize
Hi All - finally made into the chat!
Hi Connie
Hi Connie...is that you?
Hi Connie!
Hey Laura, how about we put you on & everyone on web-cast and the we can here your cruise director voice
Connie! I just sent Jeff a note saying that you couldn't log in. Good to see you here.
Jill, I wouldn't advertise that too loudly. You'll have a line of people at your door seeking advice.
Hi Jill...it's me! Glad to see you made it to the chat!
I take that back - business rooms have fridges, I can't find if the regular rooms do.
Brandy...gourmet cupcake maker? No...please do tell. My little peanut allergy boy is also a huge fan of sweets!
Hi there, Pam!
Did folks with pumps find that they needed to change cartridges more often because of the heat or is it only an issue on the "outdoor" days. I imagine most of the time we will be in a/c?
I think we have mentioned this before but I can't really remember....clothing? Will we need to get dressed up at all?
Laura - think it was Yahoo related. Thanks.
Rhiannon got one for Christmas and loves it!! She has made Brandon cupcakes 3 or 4 times now so he could have one while everyone else is having cake.
Betty.... ummm... I think not.
Ok everyone, what is the update on who is wearing what to the tween social and the teen dance?
That is good news Kelli! Sarah's hair is so curly that it takes me forever to straighten her hair.
I found a page that says "In-room refrigerators available at no charge." Not sure what that means. The same page says the rooms are double doubles. Hmmm.
how nice of Rhiannon
I think we can ask for fridges...
is it longer after you straighten it
Fridges - I'm pretty sure they all do. I'll check and let everyone know. I have a call with my Disney friends tomorrow.
we never did before Michelle....
Gourmet cupcake maker? Sounds intriguing (sp?). Sarah is big into decorating cupcakes that look like animals. So cute. But after she decorates them no one can eat them. Good for a diet.
Casual clothing, i.e., shorts and t-shirts, but have a light sweater or sweatshirt for the sessions because it can be cold inside. Teens/young adults need a nice outfit for Fri. evening.
Thanks all I've got to go. See you on the boards
Sarah's hair is about 6 to 8 inches longer than when curly.
yeah, but after the rooms have been updated, like Laura said, they did it so the rooms seem bigger...so they removed tables in favor of desks etc....
it is a cupcake maker by GirlGourmet. It takes 30 seconds to make a cupcake and the ingredients list are amazing. The majority of the mixes are gluten free. They contain milk, egg and soy but are tree/nut free if I am not mistaken.
they sell them at walmart for $20 and the refills are kind of expensive but worth it for the kids to enjoy parties.
Some people dress a little more nicely for the Th. banquet, but it isn't required.
Bye Maria.
Pam..very funny! That sounds like my daughter. Her creations are so precious to her. Wow I have to check into this thing...Walmart is calling my name!
I think the fridge was kind of freestanding so maybe they aren't part of the new decor, but I think Disney will make them available. For FFL fridges are a no brainer.
Remember Pam, you sent me pictures of Sarah's straight hair after you ironed it - you did a wonderful job!!! That's why I'm teasing you about doing Kate's.....
Someone wants to know if the Jonas Bros will be there this year for the banquet?
sorry
No. Jonas' not going to be there.
Brenda- when you say they dress a little more nicely - do you mean dresses or do you mean dressy capris and heels etc??
The rule of thumb is 'comfortable.' I find the convention area pretty cold with the AC... so I wear capris and conference shirts the entire time. For the banquet, I do wear a sundress - you might want to dress up a little. It's a fun evening - dinner, dancing, some great entertainment. Family-friendly. The teen dinner dance, tween social, and Young Adult Dinner and Salsa Dancing are definitely fancier.
I think if the Jonas Brothers showed up then all the pre 13 age group girls would faint!
Nope, the Jonas Brothers won't be at FFL.
It's actually probably sad for them just as much as for us....
Laura, how did Sam's first DJ gig go? Do you have pictures yet?
we're lucky - we have the opportunity to meet other parents and have our kids hang out with other kids... they don't.
Or are they and no one is telling
Your choice Michelle. Like Laura said, capris and a top or a sundress. Comfortable shoes for dancing!
Laura, sorry if you already mentioned this but can you tell me what color the shirts will be?
Right with you Michelle.
I remember my first conference i ended up buying a sweatshirt it was so cold in the conference area
The shirts are a melon color
Ahh...the Jonas Bros...Do you know that the first time we saw that Disney channel ad where Nick (I htink its nick, right) revelas his t1D status, it was 1am and we were in Children's Hospital...just diagnosed that day. What a concidence...and that's the only time my daughter perked up during that whole experience. It made her feel normal again, and I could have kissed that JOnas kid. She wrote him a letter a couple of months ago (so cute) but we have heard nothing back.
Thanks - mom2tinks!
Its always good to have an excuse to buy a Mickey sweatshirt!
Hi All--Betty S. are you going to view the Amgen in Solvang?
I think the Bros. are so popular now, they can demand, and get. big $$ for a performance. CWD and its sponsors don't have that kind of money. I'm talking probably at least $500,000 a night.
Sam's 'not telling' about the DJ gig. He loves music, loves crowds, and loves DJ'ing! Ach. All grown up.
Actually it would be a great publicity stunt for them to show up for free!
Laura will arrange a nice event w/o the Jonas'.
is he going to DJ at the conference for fun with the kids?
It definetly has made a difference in Kate's life too, that Nick J. was dx and is public about it. It helps her alot I think dealing with other kids.
It's more a matter of contracts. At any rate, we have wonderful entertainment for the Banquet evening, and we are all going to have a BLAST! DJ Miles is my very favorite - he keeps everyone, every age, dancing and having fun!
Sounds like Sam is in his element. Nothing to tell.
Yes, Hi Shelley, I am taking kids out of school part day to go. I go permission from teachers today. Are you and Parker going?
Kellli, have flat iron will use it if you want! Or you can do it for her.
We love DJ Miles
We are going to have a Fun Run around the lake again this year. Thurs morning. Not raising money for anything; just doing the fun run because it's a cool thing to do. Harold will, of course, warm us up!
Will Chris Dudley or Jay Leeuwenburg be there this year?
And exactly how far is it around the lake? I should start training NOW!
Betty--I don't think we are taking Parker--he has been sick and missed too much school--so will probably skip it.
The post-banquet dance evening is for everyone, yes? Not just banquet attendees?
I love the fun run with Harold and Miles at the banquet so awesome. Anyone following Team Type 1 Amgen Tour?
I will walk...I can't run.
Cool thing to do? In Florida in July? I remember the last one around the lake
Jill, it's not that far. I don't recall the distance, but no more than a mile, I'd guess.
the kids were excited about PJ
Oh thank goodness. How can I chase kids all day and still be out of shape?
Oh Pam, I think WWIII would break out if I tried to do it. That, or I'd set off the sprinklers.....
Trust me at 7am its far
I've not heard whether Chris or Jay will be with us. I know that we are not having a bball clinic; rather, we'll have Sports Central open all week from Tues to Friday; kids and adults who want to play b-ball or v-ball will have plenty of air-conditioned opportunity! We tend to hear a bit closer to the actual conference dates who the VIPs will be. The companies bring them.
I don't get it here but have been following the updates on the parents list Betty.
I walk Michelle. It is the vibe of the group that makes it so much fun, walking or running.
Michelle...we'll walk with you...of course Aidan will run, because he doesn't WALK anyplace!!
Your body gets used to the amount of daily exercise you get, so anything above and beyond that puts you out of breath
it was fun, I'll give you that
PJ the Service Dog with Type 1 Diabetes is going to be an awesome special guest.
Catch me early Kelli and we will go for it!
I can't wait to see that dog! That's cool. I think the kids will love that, too!
that is so cool
Gee Betty, should've had you come with me and Team CWD when we did the Disney Marthon in Jan. I walked the half, 13.2 miles. Yes, I did train, for many months. I didn't really mind the distance, but I didn't like getting up at 3 a.m. to catch the 4 a.m. bus to Epcot for the 6 a.m. start. Way too early.
I will do wake-up calls at 6 a.m. Tell me your room number...
oh I know - inquiring minds want to know - the Character breakfast - do we know which characters might appear???
Is Nala (chiahuahua) coming to keep PJ company?
Laura, since we are 4mos pumping, can you send out TSA info on what to do and not do at the airport? Pretty please!!!!
Can't wait to meet you Pam!
Nothing special Betty. Marissa always wears her pump and DexCom through the scan. Beats removing it and running through the Xray machine.
Oh my ...the airport...yikes. I am tempted to drive just to avoid that hassle. Is it as bad as i think? We haven't flown with all that mess yet!
Laura, do you expect companies to do as many give-aways this year?
Character breakfast - I always request the princes and princesses, but since Disney doesn't guarantee the ones you request are the ones you'll actually get, I don't announce them. I don't want any disappointed kiddos! On Thurs at the Banquet, Minnie and Mickey will pay a visit. Probably another set of characters as well. again, I'm not sure which.
I am very proud of you Brenda and I remember seeing pictures on an email Jeff sent out. I used to be a runner, but after a bad car accident, not more
The flying is painless, I promise
Good for you Brenda! I'd have to have coffee in my hand. Maybe 2.
Brenda... can you please send out the TSA info re: traveling with type 1 and pumping... to the FFL email group?
The airport isn't a problem. We just tell them that Sarah is wearing a pump and they wand her.
Jill, we've never had any issue. I usually just keep all D stuff in one carryon and alert the scanner that we have d supplies. I've even taken plenty of low items like drinkable yogurt in a freezer bag..
Oh yes, the companies will be there in a big way! They are always there for our kids!
ALL diabetes supplies should be in hand carried luggage and you can travel with water or juice. It's in the TSA rules, which you should print and have with you in case.
I'm on my daughter's lap top but I think I have all the links if Laura doesn't. It's really not a problem. In fact they mau be lifting the liquid ban since most airports can now screen dangerous liquids from regular.
I will look up the info and send it out to the mailing list tomorrow or so.
We also put all of our D supplies into one carry on with everything marked or in the original packaging. let them know ahead of time and it's not a problem, I promise
Thanks Laura - re characters. can't wait. :)
We have been stopped twice going through airport security with the pump. He had to be searched and wiped for bomb residue. Security told us to remove it next time and place in bucket before going through
They ALWAYS single me out at airports, and wand everything and I'm not diabetic!
don't do that Julie
you don't have to remove your pump. Ever.
NO, don't put the pump in the bucket!
OK the panic is subsiding...
Betty you must be special
I set off the alarms with my metal plate so I always get wanded =)
x rays could ruin Kyle's pump
They can not make you remove the pump. I wouldn't do that.
http://www.tsa.gov/travelers/airtravel/specialneeds/editorial_1374.shtm
They can't make you remove it for any reason
so do I Brandy
The characters are really fun. What I like best is that they are OURS - CWD's - there for our kids. We don't have to fight the crowds to take photos or get autographs. It's pretty special for the kids (and, ok, for the moms and dads, too).
http://www.tsa.gov/travelers/airtravel/specialneeds/index.shtm
See our page at Flying with Diabetes at
http://www.childrenwithdiabetes.com/d_0j_211.htm
there is a whole section on that link that explain what to do wtih insulin pumps.
We haven't put the pump in the bucket yet.
when we first got we went to Hawaiiand the tsa person on Kauii grabbed it because she didn't listen to me say it was an insulin pump. Sarah and I both got hauled off and wanded. They did apologize very nicely
We had the bomb residue thing happen one time. Turns out that Sam's sunscreen (a special kind that he wore playing golf) had glycerin in it... and glycerin can be used for explosives. Needless to say, now we check for glycerin in products!
Shelby wants everyone to know she is a pumper now since Sept.
The trick to security screening with pumps is to take off any metal clips. Use plastic ones. Push the pump to the center of your belly as far away from the walls of the screening portal as possible. Practice what might happen with the little ones so they know what to expect. Make it a game. Show them what it's like to be wanded. The screeners are very friendly with the little kids but parents need to remember not to interfere. Stand back and let them do their jobs.
Hey y'all
Ok, guys, so we are nearing the 10:00 mark... 4 1/2 months and we'll be in Orlando in JULY in 95 degree heat! Anyone have any last minute questions?
Hi Melissa
that's a very good point Mary Catherine. You cannot assist in any way.
can you make it happen sooner?
Mary we tried the pump in the middle of the belly and it still set the alarm off.
Hey Shelby - We are proud of you!
question - can we just go tomorrow??
Shelby is going to have to speak with my daughter! Everly wants nothing to do with a pump, she is afraid of them. An older cousin of ours has one and she thought that it was permanently attached to him, which totally freaked her out (that was prediagnosis!!)
hi laura its me parker. cant wait tosee you in Florida
Hey Melissa.
lol..
So glad I made it to the chat! I can't wait to see everyone in July!
congratulations Shelby
Woot Shelby! Kate will be 12 at FFL. Maybe they will meet each other!
Wish we could afford to make it down there
Most TSA agents are extremely nice and helpful. There will always be one that can be, well, you know
What... 10:00 or 95 degree heat?
Melissa - there are family scholarships available - check out www.diabetesscholars.org
Talk to you guys later on
no i just want to go tomorrow. :)
Thanks everyone for the great info! Can't wait to meet you all
Night Carie.
Melissa, have you looked at the Diabetes Scholars web site? They offer scholarships to FFL.
http://www.diabetesscholars.org/
we just want the whole event to be sooner...everything =)
Laura - will the chat be posted in the transcripts?
Michelle I'll meet you there 9am!
Michelle, if you go tomorrow let me know, I'll meet ya there!
I'm going to sign off, too. Good night everyone - thank you so much for joining the chat!
Night Laura
Yes - transcript will be posted tomorrow.
can't wait to meet all you that i haven't met before and I will see all my old friends again soon *hugs*
Yeah... I looked. I just don't think we could swing it, even then. There're so many people in chat tonight! That's AWESOME!
Jill, Shelby tried 3 yrs a trial pump wasnt ready, but she is now. She will talk to who wants to listen
night everyone.
night all
If it were tomorrow, Laura would not have time to chat tonight and she'd be a bit frantic.
Night Laura, thanks! Bye everyone.
Good night. See you in the summer!
Hi Parker, from Shelby
I need to go do some chores. Talk to you all next time. Again, e-mail me if you have a quilt question.
brend@castleweb.com
Yikes, can't spell. brenda@castelweb.com
just one more reason to get the CWD community up and running... we would see each other everyday
Bye everyone....
parker says Hi to Shelby.
have a great evening Brenda
Hi Melissa - can you email me your contact information? connieva08@yahoo.com?
how about brenda@castleweb.com?
Betty did you get an email invitation to a diabetes get together at the aquatic center in March? I will see if I have your email address and send it to you.
Laura or Brenda, could you please forward my email address to Parker & Shelley & Ed
I was doing to sign off and sign another typo in my e-mail. brenda@castleweb.com
No we didnt get one. Would love to go though. Swimming in cold
So glad I know the color of the shirts. Just heard from Jeff about the signature panel. I have to color coordinate you know!
I'm losing my mind......TTFN
Brenda TTYL
it's indoors at the aquatic center--its a new group from santa barbara that is starting out
Shelby is very interested. We may have 2 other diabetics that might be interested. Can they go?
yes, they are looking for new type 1 families--I will call you with info--I couldn't find your email address
Can we put a PSA out on local tv stations or not ready to go that big yet? If you dont have phone call Dr Smiths office in Santa Maria with info. they will get to me.
What pump is Parker on now? Shelby is asking?
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Last Updated: Tuesday December 08, 2009 11:34:19
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