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  Back to Chat CWD Friends for Life 2009 Conference Chat

CWD Friends for Life 2009 Conference Chat - May 29, 2009

Registered User Moderator   (server) Fri May 29 08:00:00 PM EDT 2009
Our chat about CWD's Friends for Life 2009 conference starts at 9pm Eastern.

Registered User Moderator   (server) Fri May 29 08:50:00 PM EDT 2009
Our chat about CWD's Friends for Life 2009 conference starts in 10 min in the 'Friends for Life' room.

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 08:57:17 PM EDT 2009
anyone here yet?

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 08:58:01 PM EDT 2009
Hi Michelle  Smile 

I was just about to send out a welcome to the Friends for Life chat. How are you tonight?

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:00:22 PM EDT 2009
I'm here! Smile 

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:00:51 PM EDT 2009
I'm good! how are you?? with just over a month

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:01:08 PM EDT 2009
Hiya Carol!

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:01:11 PM EDT 2009
Michelle, are you making family cards?

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:01:31 PM EDT 2009
Hey Carol - How are you!  Smile 

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:01:32 PM EDT 2009
Am I the only one not making a quilt? Frown 

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:01:45 PM EDT 2009
Hi Laura!

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:01:58 PM EDT 2009
Who is on with us? Please say hello!

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:02:11 PM EDT 2009
good evening

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:02:16 PM EDT 2009
Carol...no to cards...yes to quilt - I just have to do it.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:02:24 PM EDT 2009
I made it!

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:02:25 PM EDT 2009
There's still time - Jeff has blank quilt squares at his house.

Registered User sora diabetic 10 years  (98.20.17.29) Fri May 29 09:02:33 PM EDT 2009
hello

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:02:40 PM EDT 2009
Hey Rhon - Did you like my 15 minute warning? Grin 

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:03:12 PM EDT 2009
I did.  Grin  Thank you very much.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:03:34 PM EDT 2009
I wonder if he has white ones. I contacted his mom a while back and she only had pink.

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:03:53 PM EDT 2009
I just have to make ours. it will only take a day or two - I'm a quick quilter. I just have to do it. 3+ years and I can't do it.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:03:55 PM EDT 2009
So - we're about 5 weeks away from the conference... everyone's kids are excited?

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:04:07 PM EDT 2009
the quilt is my one diabetes stumbling block.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:04:12 PM EDT 2009
I have a white one.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:04:14 PM EDT 2009
Michelle, you can tell me how to sew a simple white quilt? Grin 

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:04:18 PM EDT 2009
my kids are nuts about it!

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:04:52 PM EDT 2009
Michelle - Why? Emotional?

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:05:34 PM EDT 2009
The Quilt is so amazing when it is all up at once. I was just reviewing photos from the last couple of times we showed it in Washington, D.C. - very powerful.

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:05:34 PM EDT 2009
I think so Laura. I'm not really sure - I'm good with diabetes - I really am - but the quilt...gets to me.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:05:35 PM EDT 2009
We've already printed out the schedules & highlighted it.

Registered User sora diabetic 10 years  (98.20.17.29) Fri May 29 09:05:45 PM EDT 2009
 Cry hello Cry 

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:06:06 PM EDT 2009
why the tears Sora?

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 09:06:33 PM EDT 2009
Hi

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:06:42 PM EDT 2009
hard to believe only 5 weeks away
Laura, may I add a friend to registration when he knows he can get off from work? Sors r u ok?

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:06:43 PM EDT 2009
Carol, I have an extra white quilt square from Jeff.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:07:02 PM EDT 2009
I can understand that. And you are trying to portray your daughter - and the things that are important to you - in a 3x3 square. That's challenging.

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:07:08 PM EDT 2009
hi ellen

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:07:08 PM EDT 2009
hey Ellen.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:07:14 PM EDT 2009
Laura, If I signed up my husband and I for the first focus group and he may have to watch the kids. Do I just tell them when we get there that he will not attend that one? It is one that is full too.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:07:40 PM EDT 2009
Hi Sora, Hi Ellen  Smile 
Yes, fine to add an extra person to your registration when you know.

Registered User KellieK Mom of Hayden, age 3, dx 9/07  (76.2.184.7) Fri May 29 09:08:07 PM EDT 2009
Hello, first timers. We're really excited. Hard to find other kids Hayden's age with T1D here in rural Missouri.

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:08:20 PM EDT 2009
thanks

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 09:08:29 PM EDT 2009
The quilts all together certainly make a powerful statement. What's wonderful is that you can make it as detailed or simple as you like. It reflects who your child is, of course, not just a child with diabetes.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:08:31 PM EDT 2009
R, Jeff had white squares? Hmmm, how much are they and how do I get one. I have a Pfaff sewing machine, you would think I could sew one. Confused 

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:08:44 PM EDT 2009
Carol - Please email me with that info when you know for sure. It will open a spot for someone else. The focus groups do tend to get full. However, there are always no-shows, so if there is a group that you really want to attend, and it says 'full,' go to the door at the beginning anyway and see if there is a spot for you.

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 09:08:47 PM EDT 2009
Paula are you going to be at FFL? Razz 

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:08:49 PM EDT 2009
kellie k you will enjoy it

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:09:18 PM EDT 2009
Yep Ellen :)
I've missed chatting this year

Registered User Kim mom of Karlie 6 dx 3/07  (68.231.61.107) Fri May 29 09:09:19 PM EDT 2009
Hello all  Grin 

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:09:37 PM EDT 2009
Carol, you can e mail me your mailing address & I will just mail it to you. I've had it for a while.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:10:33 PM EDT 2009
While I can't say that there are hundreds of people from Missouri attending, I CAN say that there are hundreds of first-timers... and hundreds of teens, and hundreds of tweens, and hundreds of elementary, and hundreds of husbands... even hundreds of grandparents this year!

Registered User KellieK Mom of Hayden, age 3, dx 9/07  (76.2.184.7) Fri May 29 09:10:43 PM EDT 2009
How do you handle all the swimming while pumping? We're Minimed, thinking about doing Lantus and only bolusing w/pump for meals because he'll be in the pool so much.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:10:59 PM EDT 2009
Hi Kim - How are you tonight?  Smile 

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:11:23 PM EDT 2009
That's so awesome Laura! What's the total so far?

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:11:28 PM EDT 2009
Yes, Laura.......my mom is coming a 77 year old grandma :)

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:11:50 PM EDT 2009
Hi Kim

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:12:11 PM EDT 2009
Kellie, you will see lots and lots of pumpers in the pool at Disney, and you'll hear lots of tips. I remember our very first FFL, I actually had to wrap Sam's belly in duct tape to keep his infusion set in. That was 10 years ago. We don't do duct tape anymore!  Rolling Eyes 

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:12:15 PM EDT 2009
There are plenty of grandparent sessions, too. :)

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:12:38 PM EDT 2009
Paula - That is GREAT! I love that the grandparents are getting so involved. She will have such a good time and learn so much. And make so many friends.

Registered User Kim mom to Karlie age 6 dx 3-07  (68.231.61.107) Fri May 29 09:12:51 PM EDT 2009
this will be our first FFL very excited to come!

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:13:11 PM EDT 2009
R, How do I email you? I can PM it to you if I knew your sign on name

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:13:15 PM EDT 2009
We will definitely hit the 3,000 person mark this year. We're about 10% ahead of last year, but I think it will slow down a bit in the next couple of weeks.

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:13:30 PM EDT 2009
Yes R, my mom is excited
That's funny Laura

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:13:44 PM EDT 2009
What day is everyone arriving?

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:13:45 PM EDT 2009
bobrhond@yahoo.com

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:14:10 PM EDT 2009
Kim everyone is helpful and friendly

Registered User Kim mom to Karlie age 6 dx 3-07  (68.231.61.107) Fri May 29 09:15:01 PM EDT 2009
that is great to hear...my daughter has never been around other kids with T1 and is so looking forward to making new friends

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:15:01 PM EDT 2009
we don't arrive till early wed morning.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:15:25 PM EDT 2009
Lots of volunteers this year, too. Almost all the slots are full. Still have some space for room helpers if anyone wants to do that.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:15:38 PM EDT 2009
We are getting there Tuesday.

Registered User Stacey mom to Jesse -16.5 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:16:00 PM EDT 2009
 Grin  Hello all...

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:16:01 PM EDT 2009
Bob is just now allowed to put in for leave or TDY, so I'm not sure the exact time, but it should be Tuesday.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:16:14 PM EDT 2009
of the 3000 people, do you know how many are type 1 kids?

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 09:16:17 PM EDT 2009
I will get our registration form in! Thankfully the hotel is booked.  Razz 

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:16:24 PM EDT 2009
We're coming in on the 7th
Laura refresh my memory do we have to buy the tickets for family day separately? for teen day separately? Hi Stacey

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:16:36 PM EDT 2009
Kim, I think that is one of the best things... being surrounded by all of these other wonderful families who have type 1. Parents, grandparents, brothers and sisters, kids with type 1 of all ages - and some absolutely great role models (including the college age kids with type 1 who are now staff).

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:17:14 PM EDT 2009
Carol - will probably be about 800 or so with type 1. And another couple hundred with type 2.

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:17:23 PM EDT 2009
Hello Laura and everyone. Greetings from CA. How is everyone doing. We are arriving on 7/03 @ 6am. Cool 

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:17:23 PM EDT 2009
Hi Paula

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:17:28 PM EDT 2009
The 1 of the great things I enjoy seeing, the kids who are now "grown" & still come.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:17:43 PM EDT 2009
Hey Stacey

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 09:17:55 PM EDT 2009
My daughter is a sibling and has THE BEST time there. She has even brought a friend who wants to be a nurse and now they both have friends with diabetes thanks to FFL.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:18:03 PM EDT 2009
Betty, you could see Disney 4th of July fireworks. Cool!

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:18:15 PM EDT 2009
Park tickets for Saturday, yes you need to buy them. The tickets that are on the registration form are for the character breakfast at the hotel on SAturday morning (and include a chartered bus over to MK, but not the park tickets themselves). The teen day park tickets are covered. Lunch is covered as well. Teens just need pocket money.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:18:17 PM EDT 2009
Wow 800!

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:18:52 PM EDT 2009
Hey Miss Betty! Hey Momma Bagel!

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:19:01 PM EDT 2009
Hi Rhonda, yes it will also be Diamonds dx'd date, right?

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:19:11 PM EDT 2009
Yes... and many, many families who have 2+ people with type 1.

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:19:32 PM EDT 2009
hi carol s
 Eek hi everyone else I missed

Registered User KellieK Mom of Hayden, age 3, dx 9/07  (76.2.184.7) Fri May 29 09:19:45 PM EDT 2009
What is the best way to hook up with mom's of a similar age group?

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:19:53 PM EDT 2009
Almost. Dx was 7/5. July is a very popular month in our house.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:20:26 PM EDT 2009
Laura, do you have me getting a D bracelet?

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:20:44 PM EDT 2009
Could I ask anyone with expired glucagons to bring it to FFl so I can have it to train the school?

Registered User Dana Type 1 since 1972, daughter Type 1 since 2008  (216.8.172.144) Fri May 29 09:20:50 PM EDT 2009
Hi everyone.  Smile 

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:21:00 PM EDT 2009
Laura - mirrors are taken care of . Scott has 3 at the store... and another company should be sending 9... I'll email you ..

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:21:00 PM EDT 2009
The e mail list.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:21:11 PM EDT 2009
The best way to hook up is to send a note to the Orlando2009@childrenwithdiabetes mailing list, and say "I'm a mom of a _______ and would like to meet other moms by the pool at 1:00 on Tuesday" (or whatever). Please email me if you want to get together.
That's what the list is for, but Momma Bagel and I are the only ones who use it. LOL 

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:21:15 PM EDT 2009
Hello everyone too Smile 

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:21:19 PM EDT 2009
hi dana

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:21:40 PM EDT 2009
Rhon, too. I stand corrected.  Grin 

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:21:45 PM EDT 2009
Carol S, they usually give out glucagon training kits n the exhibit hall, I think its the ADA who has them.

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:22:01 PM EDT 2009
How come everyone has a first name... and I'm always mommabagel???  Smile 

Registered User Dana Type 1 since 1972, daughter Type 1 since 2008  (216.8.172.144) Fri May 29 09:22:02 PM EDT 2009
Hi. I guess my daughter and I are one of the families with 2 type 1's!

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:22:09 PM EDT 2009
I LOVE to communicate. Grin 

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:22:46 PM EDT 2009
carol, I have a ton - I'll pm you.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:22:51 PM EDT 2009
Thanks Betty!, What is in the training kit? A dummy syringe and instructions?

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:22:54 PM EDT 2009
Because you ARE MommaBagel. And I love it! That's how I refer to you here (yes we talk about you).

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:22:59 PM EDT 2009
except in return...you know what I want LOL.

Registered User Dana Type 1 since 1972, daughter Type 1 since 2008  (216.8.172.144) Fri May 29 09:23:12 PM EDT 2009
What does everyone do with their pumps when they go to the disney waterparks?

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:23:19 PM EDT 2009
I sent an email to the list.. Check you airline flight prices.. The prices have come down a great deal since the end of March... Most airlines will give a credit for the differnce.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:23:23 PM EDT 2009
Stacey - That is GREAT! Give Scott a smooch from me and say thank you.
What this means is that the teenage girls will have a makeup session together prior to the dance on Friday. Stacey's family is donating mirrors, the girls will bring their makeup, Anna Hewitt (Jay Hewitt's wife, former Miss South Carolina) will be on hand for makeup tips... very fun.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:23:27 PM EDT 2009
Thanks, Michelle!

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:23:52 PM EDT 2009
to anyone who has bought tickets before whats the best way to do it if you dont want to carry a 2nd mortgage on your house?

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:24:12 PM EDT 2009
Oh wow Laura. She's really pretty, too.

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:24:17 PM EDT 2009
cool Laura and Stacey! my teen will be all over that...

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:24:32 PM EDT 2009
Paula, can you get military tix?? those are the cheapest.

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:25:07 PM EDT 2009
Glucagon dummy kit, CD & Handbook for School personnel, or you can download Handbook at ADA website. We use it every time. We have a 504 Plan meeting next week.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:25:47 PM EDT 2009
It will be fun for the teens. They love to do makeup anyway - this gives them some common space, time, and a 'professional' to help them do it. I'll send a note to the email list as soon as I nail down a room for it. Monday.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:26:23 PM EDT 2009
Sounds nice Betty, We don't have a 504 , we are at a private school.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:26:52 PM EDT 2009
Paula - If you are just going for Saturday, there aren't a lot of discounts. The more days you buy, the less expensive it is per day - but it's overall very expensive (does that make sense?). There is a link on the conference website that offers discounted tickets, but only if you are going for more than one day.

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:27:05 PM EDT 2009
gee, can grown ups get a overhaul too? LOL 

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:27:09 PM EDT 2009
i have to log off...see you all ...in a month or so.....

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:27:25 PM EDT 2009
If anyone has a child who will be in childcare, please make sure to fill out the medical information sheet. Jeff just posted that online today.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:27:26 PM EDT 2009
Not sure if Diamond will dig it or not. I'll ask her. We don't let her wear make up yet, except for special occassions. I think this would qualify.

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:27:46 PM EDT 2009
Hey Laura, I'm sorry I have to ask again, what color are the shirts this year? I have to coordinate my wardrobe LOL  Are there going to be "insulin is Not a Cure" shirts for sale? Bye Michelle.

Registered User Michelle mom of Ian, age 8, dx 9/05  (68.239.21.183) Fri May 29 09:28:00 PM EDT 2009
R - same here with my daughter...she will be so excited.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:28:07 PM EDT 2009
We grownups can descend upon the room when the teens are done... but gee, do you think it will help? I have some 20 year old wrinkles...

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:28:09 PM EDT 2009
Nite Michelle.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:28:31 PM EDT 2009
bye Michelle

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:28:43 PM EDT 2009
Thanks Laura Richard and his buddy wanted to go to Animal Kingdom on Wed trying to figure out the cheapest way to do all this night michelle

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:29:24 PM EDT 2009
The shirts are sort of a peach/cantaloupe orange color with white print. Not bright bright lollipop orange. We may have a few Insulin Is Not A Cure shirts, but not a lot like in previous years. Just what is in stock. We WILL have - drum roll please - CWD ponchos! So we can recognize each other in the downpours in the park!

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:29:56 PM EDT 2009
YEA PONCHOS!

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:30:04 PM EDT 2009
We found that when we buy tickets for three days it was cheaper than just for two.

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:30:06 PM EDT 2009
are the poncho's PURPLE???????

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:30:23 PM EDT 2009
Sorry for being late. I'm sure I missed a lot.

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:30:34 PM EDT 2009
fun ponchos great idea

Registered User KellieK Mom of Hayden, age 3, dx 9/07  (76.2.184.7) Fri May 29 09:30:43 PM EDT 2009
Where will the ponchos be sold and how much?

Registered User Dana Type 1 since 1972, daughter Type 1 since 2008  (216.8.172.144) Fri May 29 09:30:47 PM EDT 2009
Does it normally "downpour" in Orlando in July?

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:30:49 PM EDT 2009
hi brenda

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:30:57 PM EDT 2009
hi brenda  LOL 

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:30:57 PM EDT 2009
Yeah Ponchos. I always forget to bring them, and now I can get new ones Cool Hello Miss Brenda.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:31:14 PM EDT 2009
Like someone else said. Our husbands will look sassy in those shirts Grin 

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:31:18 PM EDT 2009
Dana, you can count on it almost every day.

Registered User Dana Type 1 since 1972, daughter Type 1 since 2008  (216.8.172.144) Fri May 29 09:31:39 PM EDT 2009
Yuk!

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 09:31:42 PM EDT 2009
CWD Ponchos - a new fashion statement Grin 

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:32:02 PM EDT 2009
Just remember to leave LOTS of room in your luggage for the ponchos and other goodies OR bring an empty tote bag or such.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:32:35 PM EDT 2009
Yes, a little rain everyday to make it humid. Bring your flat irons.  Grin 

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:32:40 PM EDT 2009
FL has brief "showers", but sometimes they are painful downpours. It's not often or a lot, but there's no notice.

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:32:42 PM EDT 2009
Dana, my favorite thing is to be in the cold a.c., then step out into the humidity. My glasses steam up every time. LOL 

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:33:01 PM EDT 2009
Ponchos are sort of a see-through dark blue with white CWD logo and smileys. $5 each (just covers our cost).  Grin 

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:33:27 PM EDT 2009
where will you be selling them??

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:33:28 PM EDT 2009
Just a reminder to wear your CWD pins from all the years, are we selling pins this year Brenda?

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:33:41 PM EDT 2009
We got DRENCHED coming from the pool to the main building with the tweens year before last & out of all the adults, ONE had a poncho.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:33:54 PM EDT 2009
Personally, I think each room should come with a clothes dryer instead of a fridge...

Registered User Dana Type 1 since 1972, daughter Type 1 since 2008  (216.8.172.144) Fri May 29 09:34:01 PM EDT 2009
Anything else we should bring that I might not have thought of?

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:34:05 PM EDT 2009
I missed out on the pins last year

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:34:08 PM EDT 2009
I only know about pins from previous years because they are stored here. I assume there will be new ones.

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:34:33 PM EDT 2009
Old pins will be at registration.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:34:42 PM EDT 2009
Yea. I lost 1 of mine last year & will have to replace it.  Frown 

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:34:49 PM EDT 2009
that design sounds groooooooovey

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:35:04 PM EDT 2009
Rhon - I remember that. It's why we aren't doing pool time anymore. Those storms come up so quickly. It was a little dangerous getting everyone out of the water and under shelter (or not) in such a short amount of time. We'll skip that part this year.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:35:18 PM EDT 2009
We're a groovy bunch.  LOL 

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:35:43 PM EDT 2009
Yes, there are new pins this year. Please remind Jeff to check on them?

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:35:54 PM EDT 2009
That doesn't hurt my fee any. The kids will get pool time with their parents.

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:35:56 PM EDT 2009
I agree Laura. And don't go directly from the pool to the restaurants or you will freeze your fannies off LOL 

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:36:08 PM EDT 2009
I thought there was one part on the schedule for kids that they are going to the pool during our session? Is that not on the schedule anymore?

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:36:10 PM EDT 2009
*my feelings*

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:36:33 PM EDT 2009
Well, just remember that if you forget anything diabetes-wise, someone else has extra. And if you forget something like toiletries or clothing, you are in the middle of Orlando civilization and you can buy anything.

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:36:37 PM EDT 2009
Don't try wearing EVERY pin like this:

http://www.childrenwithdiabetes.com/activities/Orlando2007/i/20070712_0396MR_BrendaBadge_800.jpg

Way too heavy and that was 2007!

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:37:03 PM EDT 2009
That is fine with me too. We'll be at the pool with the anyway.

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:37:24 PM EDT 2009
i wear all my pins.. but inside the plastic...

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:37:30 PM EDT 2009
Nope - no pool time at FFL. Make sure you are looking at the 2009 schedule. Some people have sent me questions and they were clearly looking at 2007 and 2008 schedules. Brenda - would you please link to the 2009 schedule for the kids?

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:37:49 PM EDT 2009
Brenda, that's not even all of them, is it?

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 09:38:06 PM EDT 2009
I wear them all too - and some others give me as well as DRI pins - I don't even get the new admission tag because I don't want to take the tags out.

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:38:28 PM EDT 2009
at the pool there should be two sections those with cellulite and those without.....I know where i'll be Blush 

Registered User Dana Type 1 since 1972, daughter Type 1 since 2008  (216.8.172.144) Fri May 29 09:38:44 PM EDT 2009
Do I need to pay for loaner back up pumps for my daughter and I then? Or if one of ours breaks will there be plenty on hand?

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:38:45 PM EDT 2009
Brenda - Do you know if there are leftover sibling pins from last year?

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:39:25 PM EDT 2009
You pump company should have loaner pumps. Animas is free.

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:39:28 PM EDT 2009
jesse's siblings really liked those

Registered User Cathy Mom  (67.162.88.168) Fri May 29 09:39:42 PM EDT 2009
Laura... can we still get tickets for the family banquet dinner thursday night??

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:39:48 PM EDT 2009
I'm assuming we have leftover sibling pins.

http://www.childrenwithdiabetes.com/activities/orlando2009/YouthSchedule.htm

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:39:52 PM EDT 2009
All of the pump companies will be there, so if your pump breaks, they will be able to connect you with a clinical person who can arrange whatever needs to happen. The pump companies don't general come with a bin full of loaners 'just in case' - but they have been very helpful in past years to people who need backups. (and I know from personal experience!)

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:39:56 PM EDT 2009
Dana, what brand of pump do you have?

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:40:01 PM EDT 2009
Sibling pins were so cool. I have a great picture of Jeremy getting his pin from Tom Karlya Cool 

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:40:16 PM EDT 2009
I will run to the upstairs "office" and check. BRB

Registered User Dana Type 1 since 1972, daughter Type 1 since 2008  (216.8.172.144) Fri May 29 09:40:22 PM EDT 2009
Both of us use minimed. $50 each loaner for the week

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:40:24 PM EDT 2009
Yes, you can still get tickets. Email me. YOu will not be able to get them on site.

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:40:29 PM EDT 2009
good question cathy, i need to get one for richard's friend

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:40:49 PM EDT 2009
Dana, Yikes, ours was free.

Registered User Cathy Mom  (67.162.88.168) Fri May 29 09:40:57 PM EDT 2009
thanks

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:41:14 PM EDT 2009
Minimed charges for a loaner?? thats weird..

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:41:50 PM EDT 2009
boy i didnt even know there were loaner pumps great idea

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:41:52 PM EDT 2009
Cozmo used to be free then they started charging, now they don't even do vacation loaners

Registered User Dana Type 1 since 1972, daughter Type 1 since 2008  (216.8.172.144) Fri May 29 09:42:13 PM EDT 2009
Perhaps that cuz we are in Canada?!?!?

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:42:13 PM EDT 2009
Reminder about Weds - the grand opening reception is at 6 and there is a lot of food. Don't eat dinner first.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:42:18 PM EDT 2009
It's hard to keep on here sometimes. Laura, if you responded already, sorry, I missed it. But do you have me down for a D bracelet?

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 09:42:23 PM EDT 2009
There are a lot of talented people who attend FFL - is it possible to get some to write songs - like camp songs, or theme songs - we can sing each together?

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:42:56 PM EDT 2009
I'm sure George can.

Registered User Dana Type 1 since 1972, daughter Type 1 since 2008  (216.8.172.144) Fri May 29 09:43:06 PM EDT 2009
What's a D bracelet (sorry I am a first timer!)

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:43:50 PM EDT 2009
Oh, when you register, everybody wears a different colored bracelet. 1 for Diabetes, 1 for celiac, 1 for sibling

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:44:19 PM EDT 2009
So somebody with diabetes can be recognized if need be.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:44:20 PM EDT 2009
Hi Rhon - I don't keep a list of who gets a green bracelet and orange one. If you have Diabetes (or something like hypoglycemia), you get a green bracelet. If you need gluten free food, you get a yellow bracelet (and your own special uncontaminated buffet!). All other folks get orange bracelets so that we know you are with our group and we let you eat at the CWD buffets!

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:44:31 PM EDT 2009
Green if you have diabetes, orange for siblings, yellow for celiac.

I have at least 30 sibling pins here.

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:44:35 PM EDT 2009
Dana ask away I wore Laura out with questions

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:45:15 PM EDT 2009
OK, thanks!  Grin 

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:45:23 PM EDT 2009
has Mike ordered the desserts yet?? specifically CHOCOLATE???

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:45:38 PM EDT 2009
That's why we have these chat sessions.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:45:39 PM EDT 2009
George is going to be busy flying his plane across Canada raising money for diabetes research. I think he gets back a day or two before flying to Orlando for FFL.

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:46:01 PM EDT 2009
My son is peanut allergic. I know the conference is peanut free but do I need to talk to anyone before we go?

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:46:23 PM EDT 2009
Hopefully I don't become the nut police again like last year. I felt awful.

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:46:26 PM EDT 2009
Oooh, I made some chocolate covered strawberries the other day. They were goo, but nearly as pretty as the FFL ones Laura always gets.

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:47:10 PM EDT 2009
er, good, not goo

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:47:14 PM EDT 2009
These are tyvek bracelets, and everyone in our group - adults too - wears one. This is how we keep track of who belongs with us. Disney's Coronado Springs has about 2,000 or so rooms. We have half of them. So that means that the other half of the people at the Resort are not part of Friends for Life. We need to know who is part of us - so everyone gets a tyvek bracelet. :) If it gets icky or worn out, come back to the registration desk and get another.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:47:22 PM EDT 2009
Carol, Mike the food dude, takes care of all that.

Registered User Dana Type 1 since 1972, daughter Type 1 since 2008  (216.8.172.144) Fri May 29 09:47:47 PM EDT 2009
Oh oh My husband asked me to marry him with chocolate covered strawberries!! Watch out everyone! i love them and so do my kids! Eek 

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:47:53 PM EDT 2009
Remember the FFL ones have a lot of carbs! We questioned the carb count until we found out that before they dip them in chocolate, they dip them in sugar!

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:47:59 PM EDT 2009
When do I need to talk to Mike?

Registered User Teresa Mom to Katey, dx'd 9/05, pumping and using CGM  (70.57.173.252) Fri May 29 09:48:15 PM EDT 2009
Hi Laura, hi Brenda, hi Rhon...better late than never!

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:48:17 PM EDT 2009
Every time we get on this chat someone brings up chocolate, NOW I WANT CHOCOLATE LOL 

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 09:48:28 PM EDT 2009
 Eek 

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 09:48:55 PM EDT 2009
Now I am hungry too. Have to go have a snack.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:49:02 PM EDT 2009
Carol - Mike is very aware of the peanut allergies. The entire conference is nut free. There are a lot of people with nut allergies, kids and adults alike. Now - having just told you that there are 1000 rooms with other people in them - those folks might have nuts. So, be vigilant and have whatever treatment you use to treat the allergic reaction handy with you all the time. Just like you would glucagon.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:49:11 PM EDT 2009
Mike spends most of the year preparing the food plans for the conference. He does a great job! He knows no nuts & he has them separate the gluten free already.

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:49:20 PM EDT 2009
hi teresa

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:49:32 PM EDT 2009
Hi Teresa!

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:49:54 PM EDT 2009
GASP! I was on the phone calling in some refills. My statin is fine, but Marissa's NovoLog Rx expired a month ago. She's going to the dr. tomorrow so I guess we're lucky that she'll be able to take care of this.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:50:01 PM EDT 2009
I'm gonna have a sf chocolate klondike in a sec!  Grin 

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:50:08 PM EDT 2009
Those bracelets don' wear out very quick! My kids will wear theirs until after we get home as long as 3 weeks until I threaten to take them off Razz 

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:50:14 PM EDT 2009
ellen do you remember us talking about having a time for chatters to meet at the conference?

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:51:00 PM EDT 2009
Anyone can email Mike with dietary questions. mike@childrenwithdiabetes.com Just don't email him until after Tuesday... his daughter graduates high school this weekend and they have family in town. You'll get his full attention on Weds.  Smile 

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:51:05 PM EDT 2009
Brenda, what Dr works on Saturday??

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:51:12 PM EDT 2009
Same here Betty

Registered User Teresa Mom to Katey, dx'd 9/05, pumping and using CGM  (70.57.173.252) Fri May 29 09:51:14 PM EDT 2009
Goodness Brenda. It's good that you checked!
Hi Paula. :)

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:51:42 PM EDT 2009
I wear mine for a few days after getting home, too, Betty! But eventually it gets so disgusting that I have to take it off. Blech.

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:52:29 PM EDT 2009
Marissa sees a Dr. Mike Heile (see http://www.childrenwithdiabetes.com/activities/orlando2009/faculty.htm). He's coming to FFL this year. He's had D. for several years and is not an endo.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:52:53 PM EDT 2009
Paula, all at once last year, 1/2 the chatters that were at FFL found me. LOL Somebody even took a pic. It was nice to have the faces for the names.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:53:21 PM EDT 2009
Once in a blue moon, the hotel will mess up and send out something like granola bars that have nuts. If that happens and you see it, please get Mike, Jeff, or me right away and we'll take care of it. Dietary staff work very very hard to make sure all of our kids are safe, but occasionally stuff does get through. That's why we have to watch.

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:53:44 PM EDT 2009
Tim tried to keep his own for many days a couple of years ago and his darling sister (not mentioning which one, but she's about to graduate from college  LOL ) ripped it off his arm, thought she was being funny. Gotta love siblings.

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 09:53:56 PM EDT 2009
Paula, more than a year ago?

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:54:04 PM EDT 2009
Why don't you chatters set up a time to meet poolside on Weds morning? Or Weds after the first timers reception and before the grand opening?

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:55:11 PM EDT 2009
thats a good idea laura thanks

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:55:17 PM EDT 2009
Or for lunch on Weds? At Pepper Market!

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:55:26 PM EDT 2009
I had to go to the kitchen to get my cookies,someone made me want chocolate.

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:55:30 PM EDT 2009
Morning poolside is better since you may get those storms in the afternoon.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:55:31 PM EDT 2009
They tried to last year & the military families were going to meet ahead of time, too, but it didn't work out.

Registered User Teresa Mom to Katey, dx'd 9/05, pumping and using CGM  (70.57.173.252) Fri May 29 09:55:39 PM EDT 2009
After would be better if you plan to attend focus groups.

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:56:10 PM EDT 2009
Marissa is graduating already? I can't believe it. I am so happy for her!

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:56:31 PM EDT 2009
Don't forget to get your steps pedometer right away, so you can start counting!

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 09:56:47 PM EDT 2009
Where will the bulletin board be if we want to post something about chatter's chat?

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:57:03 PM EDT 2009
Actually, Pepper Market in the afternoon is pretty 'down time' for them. Grab a cappuccino, a goodie (something chocolate) and sit and talk. And then you're out of the potential rain.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:57:46 PM EDT 2009
There will be a bulletin board right by registration. Although, I suggest you set up a time now and send it to the FFL mailing list. Or set up a couple times.

Registered User Teresa Mom to Katey, dx'd 9/05, pumping and using CGM  (70.57.173.252) Fri May 29 09:57:54 PM EDT 2009
Last year it was up by registration.

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:57:58 PM EDT 2009
Ellen, I don't know how Laura feels about that for this year. Last year, one or two people wrote legit things. Mostly kids left goofy notes.

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 09:58:02 PM EDT 2009
Or we could meet at one of the laundry buildings towards the end of the conference - you can usually find me there

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:58:40 PM EDT 2009
Also - there is a new outdoor bar - like a margarita bar - just outside the main building by the lake. If you want to have a gathering one evening, that is a perfect place as well. The exhibit hall closes at 9.

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:58:43 PM EDT 2009
That's my fav. thing about the Coronado. Just need to pack quarters and singles.

Registered User Teresa Mom to Katey, dx'd 9/05, pumping and using CGM  (70.57.173.252) Fri May 29 09:58:48 PM EDT 2009
I hope we don't have to use the bulletin board this year for a lost cell phone! Grrrr....

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 09:58:52 PM EDT 2009
Hey Laura, is there going to be a get together for those who are musicians, like we did last year after the pool with Nikki Lang?

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 09:59:16 PM EDT 2009
That's a great idea Laura

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 09:59:21 PM EDT 2009
I'll bring the oxy clean :)

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 09:59:28 PM EDT 2009
I know times almost up, but I just remembered. Don't forget your cards with your name & e mail & stuff to hand out to new friends.

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 09:59:32 PM EDT 2009
We'll have a message board, but we really only want legit messages there. If that doesn't happen, we'll just put it away.

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 09:59:52 PM EDT 2009
Teresa, our son lost his phone on the Incredible Hulk ride at Universal on Fri. Gluing it to him this time.

Registered User Stacey mom to Jesse -17 dx.12/01. pumping Cozmo 4/03, Navigating 7/08  (64.12.117.16) Fri May 29 10:00:27 PM EDT 2009
jesse broke his cell 2 years ago... scott had to run out and get a new one..

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 10:00:28 PM EDT 2009
ha ha brenda

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 10:00:29 PM EDT 2009
Betty - you remember Anton from Russia? He is coming back - likely with his guitar - and a group from Lithuania. That musical gathering was impromptu and wonderful - I don't think you can plan a thing like that. It happens magically. We'll see!

Registered User Carol S. Mom of Eric and Ethan 2 type 1s  (74.190.143.177) Fri May 29 10:00:31 PM EDT 2009
bye

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 10:00:41 PM EDT 2009
Brenda - I have some duct tape you can borrow... Grin 

Registered User Cathy Mom  (67.162.88.168) Fri May 29 10:00:43 PM EDT 2009
bye

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 10:00:52 PM EDT 2009
let me know which brand of glue you use will ya

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 10:01:03 PM EDT 2009
Bye Carol.
Good idea Laura.  LOL 

Registered User Dana Type 1 since 1972, daughter Type 1 since 2008  (216.8.172.144) Fri May 29 10:01:12 PM EDT 2009
Looking forward to meeting you all! bye

Registered User Teresa Mom to Katey, dx'd 9/05, pumping and using CGM  (70.57.173.252) Fri May 29 10:01:17 PM EDT 2009
We never found Katey's phone last year. I'm gonna glue it to her fanny this year.  Grin 

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 10:01:24 PM EDT 2009
Pam L. making a signature quilt???

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 10:01:29 PM EDT 2009
Wow - 10 already! Thanks for chatting everyone! We'll have one more towards the end of June. G'night!  Smile 

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 10:01:41 PM EDT 2009
bye cathy

Registered User Paula Richard's mom R 15 dx'd 3/07 cozmo pump  (66.32.182.170) Fri May 29 10:02:00 PM EDT 2009
bye everyone thanks laura

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 10:02:02 PM EDT 2009
How old is Katey? Our phone loser is now 15.

Registered User Teresa Mom to Katey, dx'd 9/05, pumping and using CGM  (70.57.173.252) Fri May 29 10:02:21 PM EDT 2009
Goodnight Laura and everyone.

Registered User R NC, Diamond's Mama, 14, dx'd 2003  (98.121.134.126) Fri May 29 10:02:37 PM EDT 2009
Nite everybody. It's Klondike time!

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 10:02:40 PM EDT 2009
Thanks Laura. I remember Anton. Shelby wants to bring her guitar, but all the way from CA with all the other stuff, i just don't know. She is playing so well and performed a duet at the talent show at school.

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 10:02:49 PM EDT 2009
Can't wait. Paula, we have to MEET and chat. How's Richard doing?

Registered User Ellen (FL) Mom of Zack, 21, quilt 271  (64.12.117.16) Fri May 29 10:04:03 PM EDT 2009
What would you do for a Klondike bar? LOL 

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 10:04:42 PM EDT 2009
CWD FFL Rocks! I am getting goosebumps just remembering all the good times and looking forward to making new memories. This support is wonderful! Smile 

Registered User Billetdeaux CWD Events  (76.226.122.244) Fri May 29 10:05:32 PM EDT 2009
Thanks, Betty. Looking forward to seeing you. Soon!

Registered User Brenda mom of Marissa, 21, dx'd 9/89  (216.68.227.239) Fri May 29 10:05:50 PM EDT 2009
Talk to you all next month or in Orlando!

Registered User BettyS,CA Mom to Shelby,12dx'd 4-18-03,Animas Ping9/08  (24.4.154.55) Fri May 29 10:07:07 PM EDT 2009
Night Laura and Brenda and All. We will talk and See you all soon! Smile 

Registered User Pam L. mom to Sarah, 16, dx 6/19/02  (24.130.15.195) Fri May 29 10:20:34 PM EDT 2009
Sorry I missed the chat! Too much going on right now.

Registered User Pam L. mom to Sarah, 16, dx 6/19/02  (24.130.15.195) Fri May 29 10:21:09 PM EDT 2009
Looking forward to seeing everyone in FL. Can't wait!!!!

Registered User Pam L. mom to Sarah, 16, dx 6/19/02  (24.130.15.195) Fri May 29 10:21:29 PM EDT 2009
yes I am making the quilt!

Registered User Moderator   (server) Fri May 29 11:25:00 PM EDT 2009
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