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  Back to Chat CWD Friends for Life 2008 Grandparents Chat

CWD Friends for Life 2008 Grandparents Chat - June 12, 2008

Registered User Moderator   (server) Thu Jun 12 08:00:01 PM EDT 2008
Our chat for grandparents attending CWD's Friends for Life 2008 conference starts at 9pm Eastern.

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 08:33:33 PM EDT 2008
grandfather has a serious needle phobia and sweats and almost passes out when he his his blood work done. what to do when Jack comes to visit and he might be the only one around?

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 08:36:46 PM EDT 2008
Jack lives in NC and we live in GA. He is coming to visit in July and I know what to do but grandfather is scared to death.

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 08:39:03 PM EDT 2008
is anyone there Confused 

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 08:47:28 PM EDT 2008
Hi Mamadx2 - we're a bit early. IS grandad's problem with injections, fingersticks or both?

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 08:49:54 PM EDT 2008
Jack does his own finger sticks and grandfather can hardly watch that much less think about injecting someone himself.

Registered User Moderator   (server) Thu Jun 12 08:50:00 PM EDT 2008
Our chat for grandparents attending CWD's Friends for Life 2008 conference starts in 10 min in the 'Grandparents' room.

Registered User Laura B CWD Programs, Sam's mom, dx'd 8/98  (76.226.142.199) Thu Jun 12 08:50:10 PM EDT 2008
Good evening.  Smile 

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 08:51:04 PM EDT 2008
Do you know what the Injectease is?

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 08:51:08 PM EDT 2008
Hi, good evening to all

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 08:51:29 PM EDT 2008
Hi Laura!

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 08:52:12 PM EDT 2008
Hi, Bruce and Rachele - glad you could make it!

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 08:52:15 PM EDT 2008
We are new to this and I am not sure how to answer your question

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 08:53:11 PM EDT 2008
We are happy to be able to participate tonight. Got power back at 5:30 a.m. this morning.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 08:53:14 PM EDT 2008
Mamadx2 - does Jack use a pen or syringe to give insulin?

Registered User bammamans   (75.50.116.169) Thu Jun 12 08:53:42 PM EDT 2008
Hello to you all. This is my first time in any chat room. Looking forward to listening to all of you!

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 08:54:12 PM EDT 2008
he uses syringe

Registered User Laura B CWD Programs, Sam's mom, dx'd 8/98  (76.226.142.199) Thu Jun 12 08:54:22 PM EDT 2008
Betty, Bruce, and Rachele - As moderator, I am simply going to take a back seat to the conversation unless there is a direct queston about the conference that I can help with. Ok?

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 08:54:22 PM EDT 2008
Welcome bammamans, glad you could join.

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 08:54:46 PM EDT 2008
Laura, ok with us.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 08:54:58 PM EDT 2008
OK, Laura

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 08:56:51 PM EDT 2008
Mamadx2 has a problem that grandson Jack is coming to visit but grandpa is very spooked by needles and blood - I'm wondering if an Injectease might help (hides the needle and pushes the needle through the skin) other ideas?

Registered User Mike type 1  (24.91.203.222) Thu Jun 12 08:57:31 PM EDT 2008
Hi, just looking in.

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 08:58:08 PM EDT 2008
We personally have not run into this situation, so we don't have any suggestions.

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 08:58:24 PM EDT 2008
Hi Mike, glad you could join.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 08:59:22 PM EDT 2008
hiding the needle and not having to push through the skin seems to help some folk - you can get a look at the Inject-ease at http://www.palcolabs.com/section_products/injectease.html

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 08:59:54 PM EDT 2008
being, just the grandparents, we/he need to be able to use whatever parents are using/comfortable with

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:00:34 PM EDT 2008
But probably the most helpful thing is experience - is he wanting to do this on this visit?

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:02:11 PM EDT 2008
We all keep telling him experience is only way to learn but he is too afraid.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:02:18 PM EDT 2008
definitely need to follow their lead - but sometimes things can be modified a bit to make things easier - until you and G'Pa have some experience

Registered User bammamans   (75.50.116.169) Thu Jun 12 09:03:23 PM EDT 2008
Has he seen Jack since he was diagnosed? It is truly amazing what we will do for our grandkids that we never dreamed we could. I didn't become a nursed because I hated shots, but now I give my give my grandson shots

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:03:42 PM EDT 2008
most of the grandparents I have communicated with live in the same area as child and are around for experience. Anyone else have the miles between them?

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:05:27 PM EDT 2008
we spent wk with jack few wks ago & grandfather was too afraid to participate; what if there is emergency?

Registered User Ginger   (74.76.65.180) Thu Jun 12 09:06:16 PM EDT 2008
I have 170 miles between myself and my granddaughter - I don't get there very often. However, I took her to diabetes camp this spring, and learned a lot. I know feel like I'm ready to take care of her. She is 5 and now on a pump.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:06:57 PM EDT 2008
What kind of emergency are you worried about Mamadx2?

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:07:14 PM EDT 2008
My grand daughter Ally has been on the pump one year now

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:07:45 PM EDT 2008
we are 8-10 hours apart

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:08:35 PM EDT 2008
Our grandson has also been on pump for a year.

Registered User Ginger   (74.76.65.180) Thu Jun 12 09:09:01 PM EDT 2008
The pump is so much easier - I never learned to give shots. The hardest thing about the pump is changing the parts, every couple of days. That I have not done.

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:09:19 PM EDT 2008
emergency, as in gama gun needed and grand paw can't do the easy insulin

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:09:41 PM EDT 2008
Fortunately for us, all our grandchildren live within 15 minutes. We agree with Ginger, the pump is much easier and more consistent.

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:10:21 PM EDT 2008
Ally had a problem with the pump a couple months ago it had a crack in it so they had to overnight a part from UPS

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:10:49 PM EDT 2008
parents do not seem to think pump is option at this time

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:11:05 PM EDT 2008
Yep - that's an emergency and that's why until grandad gets more comfortable and capable, he really can't be the only adult with Jack for longer periods - maybe he needs a backup with him but if folks are reasonably nearby, cell phones are certainly helpful - call in help, get instructions

Registered User June Nana, Grandma of Christian  (68.255.108.234) Thu Jun 12 09:11:24 PM EDT 2008
Hi, I see some of your grandkids have pumps. Are those pumps that guage how much insulin is needed? Or pumps which you control after you see the blood sugar levels? (First time at the GrandParents Chat Room).

Registered User bammamans   (75.50.116.169) Thu Jun 12 09:11:41 PM EDT 2008
has gpa practice on a rubber ball with a syringe?

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:12:01 PM EDT 2008
Admittedly it wasn't easy at first to watch our grandson prick his finger to test and then see him take his insulin shots. But with repeated exposure and loads of love, it has become second nature to us.

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:12:20 PM EDT 2008
Hi room. I have a 3 year old granddaughter using a mimimed pump and a cgms

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:12:46 PM EDT 2008
ironically we were at a diabetes fair in Boston and Ally kept getting sick, then she did in school one day, and that's when they found out it was a crack in the pump, no problems since

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:14:01 PM EDT 2008
we took class for caregivers at childrens health care of Atlanta and he put needle in my arm and panicked

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:14:14 PM EDT 2008
One of the things we'll talk about in the Friday FFL session on "Reclaiming Sleepovers and Getaways" is how to build skills whne you live far away. Brief visits make it more challenging for sure.

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:14:22 PM EDT 2008
Our grandson's pump also went bad and his Mom called the company at 3:00 a.m. and they overnighted a new pump to her so she had it in less than 24 hours.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:14:28 PM EDT 2008
Hey,Emmas PAPa - welcome!

Registered User Ginger   (74.76.65.180) Thu Jun 12 09:14:48 PM EDT 2008
My daughter and granddaughter were at a diabetes fair in Boston, and was so excited when she saw other children with the same pump as hers. there are no other children in her school with diabetes.

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:14:57 PM EDT 2008
Hi BettyB

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:15:09 PM EDT 2008
Hi EmmasPapa

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:15:50 PM EDT 2008
Hi to all - nice to see so many people

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:15:53 PM EDT 2008
Wonder if he could put the needle in his own arm? that might show him that the discomfort is much less he's imagining.

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:16:41 PM EDT 2008
Hi Ginger, it's difficult for kids to feel different. Our grandson tells his peers when they ask about the pump, that it gives him 'super powers'. The kids don't ask him again! We thought that was very clever of him!

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:17:02 PM EDT 2008
Ginger - you ought to buy a lottery ticket! pump failures like that are so rare, thank god

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:17:38 PM EDT 2008
Sure is my grand daughter didn't want her peers to know or anyone really

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:17:49 PM EDT 2008
how to build skills when you live far away sounds like just what we need. I gave GP injection at our class and he was amazed that it did not hurt.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:18:00 PM EDT 2008
oops - not Ginger - Steph

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:18:45 PM EDT 2008
that's okay LOL 

Registered User bammamans   (75.50.116.169) Thu Jun 12 09:18:54 PM EDT 2008
When our grandson was first diagnosed, they gave us a bottle of saline and let our grandson give us a shot before we could give him one!! Gpa might be able to be brave for that and break him in gently!!

Registered User Ginger   (74.76.65.180) Thu Jun 12 09:19:10 PM EDT 2008
Super powers - that is great - I'll have to mention that to Kaileigh. It doesn't bother her about the pump - she tells everyone about her sugar going higghhhh. I am looking forward to the friday session on Reclaiming sleepovers - then when I go visit, my granddaughter may be able to sleep over in hotel with me.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:19:12 PM EDT 2008
but he's still scared after getting the shot and knowing it doesn't hurt - he's really spooked - so maybe the Injectease would be helpful - he couldn't see the needle as it goes in

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:19:35 PM EDT 2008
Ally is still up and down with her sugar a lot but I think it is better than before the pump

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:21:01 PM EDT 2008
Up and down is pretty darn common - anybody out there have a child or grandchild with very smooth blood sugars?

Registered User bammamans   (75.50.116.169) Thu Jun 12 09:21:04 PM EDT 2008
My husband says I have to quit asking if our grandson is high...He's 15 and people might get the wrong impression!!!! LOL 

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:21:13 PM EDT 2008
Steph, Kyle was/is too, but the pump has helped the lows not to be to low and the highs not to be too high... the gap between has lessened.

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:21:59 PM EDT 2008
BettyB - I can only wish

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:22:04 PM EDT 2008
 LOL 

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:22:50 PM EDT 2008
Laughing about the high grnadson - not the crazy sugars, fols!

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:22:52 PM EDT 2008
That's funny bammamans! Ally is now a teen so it adds stuff too like when her mom tells her to do a test she yells back at her sometimes

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:23:22 PM EDT 2008
For all... we know of some great reading material that will be available at the FFL in Orlando. It will definitely help with some of these concerns regarding overnight stays and Grands'. BettyB feel free to comment about this if you wish.

Registered User Ginger   (74.76.65.180) Thu Jun 12 09:24:07 PM EDT 2008
Not smooth at all - always way up and way down!!! The other day she (for the first time) told her mother that she was hungry, and that her mother needed to test her. And yes, she was low!!

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:24:11 PM EDT 2008
Tools are getting better all the time but none of them works like a real pancreas! Highs and lows are just part of the territory with T1 -

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:25:08 PM EDT 2008
yes - I have just finished a book for Grandparents and other family members to help them be more involved - we'll take it out for a test drive in Orlando!

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:25:12 PM EDT 2008
Jack is only 7 and we are already dreading the teenage rebellion Mad 

Registered User Kathleen Grandmother of Sarah  (70.138.108.55) Thu Jun 12 09:25:14 PM EDT 2008
Does anyone have a grand babybaby less than two years old?

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:25:25 PM EDT 2008
Steph and Bammamans, OMGosh... teens and yelling... that is the FIRST thing we learned at last year's FFL! They ALL do the very same thing especially when asked if they tested. Actually it became funny... because everyone is really alike! It was really a relief to learn as we were starting to think our grandson was being very sassy with his Mom....

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:25:34 PM EDT 2008
My daughter and family are going to the conference in July they got scholarships otherwise they would never have been able to go they are struggling financially so I am so happy about that

Registered User June Nana, Grandma of Christian dx 12/07 age 10 now  (68.255.108.234) Thu Jun 12 09:25:46 PM EDT 2008
When your grandkids come over, do you have the menus all planned? Or do you let them partipate ? Any stories and/or advice on that ?

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:26:20 PM EDT 2008
Kathleen - my granddaughter was dxd at 9 months

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:26:41 PM EDT 2008
The same hormones tha make her yell also tweak her blood sugar, Steph. I wouldn't be 13 again for a million $$$$!

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:27:34 PM EDT 2008
we had grandparents of 2 yr old in our caregiver class and felt really sorry for them, he was fighting everything

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:27:40 PM EDT 2008
Mine come over mainly after church on Sunday and Ally knows what she can eat she'll get her own but in the past she snuck a couple of things like we've found franco american empty cans hidden someplace

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:28:15 PM EDT 2008
Steph, that is wonderful news about the scholarships. They are really going to LOVE the conference, not just for the learning experience but for the all the wonderful 'friendships for life' that are formed.

Registered User June Nana, Grandma of Christian dx 12/07 age 10 now  (68.255.108.234) Thu Jun 12 09:29:18 PM EDT 2008
Steph, that's pretty funny about the frano american. How'd the adults handle that one ?

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:29:38 PM EDT 2008
Steph, is Ally on a set meal plan or counting carbs and adjusting insulin

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:29:46 PM EDT 2008
Oh that's great at first it was going to be my daughter, Ally and her 2 younger siblings and someone cancelled so now her 16 year old daughter and husband can go!

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:29:50 PM EDT 2008
we usually have 3 other grandchildren here with jack and they are not diabetic

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:30:45 PM EDT 2008
Ally counts carbs I believe and adjusts something on the pump

Registered User bammamans   (75.50.116.169) Thu Jun 12 09:30:49 PM EDT 2008
My grandson also has celiac, so he can't eat anything with wheat, rye or barley, but as far as menus for the diabetes...As long as they have a shot for the carbs, can't they have whatever they want (within reason...same as any other grandkids)?

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:32:21 PM EDT 2008
The whole family - that's awesome - but if I understand right, you're not coming, Steph? If that's right, ask them to come find me and I'll give them one of the
grandparents" books for you and G'pa

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:32:50 PM EDT 2008
Our grandson also has food allergies (especially nuts)so the family has always accounted for this even before he was dx'd. Kyle eats pretty much anything he wants within reason and he programs his pump for whatever he has eaten.

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:33:55 PM EDT 2008
And Steph, if your family can't find BettyB, which I can't imagine, tell them to look for us. We will get them Betty's book and/or get them to Betty.

Registered User Kathleen Grandmother of Sarah  (70.138.108.55) Thu Jun 12 09:34:12 PM EDT 2008
Emmas Papa-my granddaughter was dx'd at 11 mo. She does not have a pump yet. Should she get one at this age? We are going to the confrence in Orlando this summer.

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:34:25 PM EDT 2008
Jack also eats mostly whatever within reason and counts tell us how to adjust

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:34:36 PM EDT 2008
My other daughter lives with me she is single with 2 children and she was usually the one that found the empty can or whatever, once I found one in the vanity cabinet underneath my bathroom sink, it started to mold

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:34:57 PM EDT 2008
Cool that's she's counting carbs and adjusting the meal insulin for what she eats - then I say the next time she comes over you get out the franco American and start counting! as long as Mom and Dad are OK with that

Registered User June Nana, Grandma of Christian dx 12/07 age 10 now  (68.255.108.234) Thu Jun 12 09:34:57 PM EDT 2008
Ya, I got lucky there. Christian has a twin sister, who's usually very happy to eat what he' eating -- things have changed so much in the months since Diagnosis. He's gone from a very strict regimen to now adjusting for carbs and goals and boy, does that make it easier -- you probably all knew that already, but it's still fairly new to me.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:35:14 PM EDT 2008
Little dumpy woman with snow white hair - hard to miss!

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:36:04 PM EDT 2008
just dont tell mom and dad about the franko

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:36:25 PM EDT 2008
We have had the wonderful opportunity to proofread Betty's new book, and we can't say enough good things about it. If you can't personally attend FFL, please do yourself and your Grand a favor and get a copy of this book when it is published.

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:36:41 PM EDT 2008
Thank you BettyB I would love to have the reading material

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:36:41 PM EDT 2008
Kathleen - Emma started pumping at 18 months after a long fight with the endos. It was the exact right thing to do for Emma. She also was one of the first children to use a CGMs - also the right thing for her.

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:36:52 PM EDT 2008
Oh, and Bruce is bald and I'm short and gray haired. Can't miss us!

Registered User June Nana, Grandma of Christian dx 12/07 age 10 now  (68.255.108.234) Thu Jun 12 09:37:16 PM EDT 2008
Mamadx2 -- I like the way you think ! :)

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:37:52 PM EDT 2008
"Little dumpy woman with snow white hair"????????
Don't let her her fool you with her modesty---there are few in the world like Betty B. She defines class!

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:38:06 PM EDT 2008
I also proofed BettyB's book and think it is great. It should be a big help to grandparents.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:38:13 PM EDT 2008
If she's hiding food/evidence of eating it, somehow she's gotten the message that there are thnigs she can't have - the more strict that is enforced - the more likely that sneaking of food will follow. Highly recommend books by Ellyn Satter (HOw to Get Your Kid to Eat... But Not Too Much" and "Child of Mine") Great for getting rid of food craziness in the house

Registered User June Nana, Grandma of Christian dx 12/07 age 10 now  (68.255.108.234) Thu Jun 12 09:38:14 PM EDT 2008
What's a CGM please ?

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:38:16 PM EDT 2008
Right on Diabetes Dad!!

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:38:58 PM EDT 2008
 LOL  Thanks - but it is snow white!!

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:39:23 PM EDT 2008
I'm not a grand parent (shhhh)I 'snuck in.

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:39:32 PM EDT 2008
CGM is a Continuous Glucose Monitor. It reads the BG every few minutes and sends that reading to the pump.

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:39:42 PM EDT 2008
Continous glucose monitor

Registered User June Nana, Grandma of Christian dx 12/07 age 10 now  (68.255.108.234) Thu Jun 12 09:40:16 PM EDT 2008
ooOOooh. Thanks EmmasPapa!

Registered User connie Grandma of 2 diabetics  (64.246.248.223) Thu Jun 12 09:40:40 PM EDT 2008
I have a gr.dau. 17 d/x at 4 and gr.son 8 d/x at 2
siblings . Their lives are better with pumps and sensors

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:40:40 PM EDT 2008
And in some cases it is used just to continually read the blood glucose. the data can be downloaded and evaluated

Registered User Ginger   (74.76.65.180) Thu Jun 12 09:40:53 PM EDT 2008
Will insurance pay for a CGM yet?

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:41:25 PM EDT 2008
Diabetes Dad - you are way to young to be in here LOL  Wink 

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:41:30 PM EDT 2008
My daughter is a real trooper she has her times when she gets real down about this condition Ally has but she started a family diabetes type 1 group in our area at a hospital, I attended the first 2 meetings

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:41:39 PM EDT 2008
Snow white was a princess you know----that fits!

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:42:06 PM EDT 2008
Ginger - My son's insurance did after he put together a spreadsheet making the case.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:42:12 PM EDT 2008
So glad you're here, Diabetes Dad - and not just because you said nice things about me either! One of the biggest problams is getting parents and grandparents on the same team - can anyone speak about problems, needs, or good ideas they've come up with that help working together?

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:42:28 PM EDT 2008
We are unaware of any other diabetics on either side of family. Doc said rare, but does occur

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:42:46 PM EDT 2008
I know ---I'll leave---just wanted to see what was up with what I call the best and most foirgotten in the diabetes world---the grand parents.

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:43:21 PM EDT 2008
I have lectured on this so many times about the incredible partnerships grand parents can play.

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:43:22 PM EDT 2008
DD - Don't leave - we need parents perspective

Registered User Ginger   (74.76.65.180) Thu Jun 12 09:43:44 PM EDT 2008
Thanks for the info EmmasPapa - I'll look into it.

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:44:09 PM EDT 2008
Diabetes Dad, please stay, everyone's input is important.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:44:16 PM EDT 2008
it's so beautiful when it works and so difficult when it doesn't - that partnership

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:44:38 PM EDT 2008
Kids seem to believe that their parents are too frail or too old to deal with diabetes---we forget that you are so much stronger than we ever know.

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:44:58 PM EDT 2008
Back in December my doctor told me I am type 2 so I have to diet and exercise I'm trying but its slow, then my brother just found out he is too he's 60

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:45:05 PM EDT 2008
It breaks my heart when I read posts by parents on the forum who get no help from family

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:45:17 PM EDT 2008
yes,dd dad, help us out here. I hear about pumps and stuff and parents only hear other stuff

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:46:06 PM EDT 2008
I always suggest to grand parents ---observe for as long as you can and ask to do little things first. Parents have to 'get it' before they will trust others---even as stubborn as we are....we will start to let go---it will be slow at first but we will.

Registered User Laura B CWD Programs, Sam's mom, dx'd 8/98  (76.226.142.199) Thu Jun 12 09:46:25 PM EDT 2008
I'll chime in, too. Neither set of Sam's grandparents (and great grandparents) was interested in learning anything at all about diabetes. He was dx'd when he was 8. G-parents lived far away... he never spent another weekend with them (without us there). I consider that a missing piece of Sam's growing up, and it makes me sad sometimes (my parents have both passed away in the last few years). I wish it had been different - and I am so glad that all of you are up to learning how to take care of your grandkids!

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:46:36 PM EDT 2008
My son & Daughter-in-law keep us in the loop on everything.

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:46:43 PM EDT 2008
Wow Steph - you have got a LOT going on.

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:47:43 PM EDT 2008
Depending on how involved you are in the process---allowing mom and dad to even go for a walk (to start) while you stay with the child is 'a start'.

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:48:05 PM EDT 2008
Yes you got that right lol I also help my younger daughter watch her 2 daughters who live with us they are age 7 and 4 1/2 its stressful at times

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:48:47 PM EDT 2008
DD, that's what we did... short visits at first. And Mom always only a cell phone call away.

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:49:17 PM EDT 2008
how long did it take for you to let go, steph?

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:49:50 PM EDT 2008
My mother-in-law was not adverse to giving Kaitlyn her shot---this is a woman who buried her husband on a wednesday in 1999 and 4 days later she walked in a fund raiser and would not hear of 'not going'---she taught me so much. I admit---my children have a gem for a grand mother---we are truly fortunate.

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:49:54 PM EDT 2008
Let go?

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:49:58 PM EDT 2008
That difficulty of parents beginning to let go of bits at a time is at the heart - fears are REAL and valid - and by taking small steps, both parents and grandparents can feel comfortable enough to move things along - take patience and a hell of a lot of persistence, Love that idea of just letting them go for a walk first!

Registered User gramma dee grandma of norm dx'd at 4  (24.2.118.24) Thu Jun 12 09:51:23 PM EDT 2008
I guess we have been very fortunate as grandparents my grandson was dx'd at age 4, at the time I was babysitting him full time and I began to notice his symptoms and alerted my daughter in law. Diabetes is what I expected but prayed it was something else but they have been great and I've learned right along with them.

Registered User June Nana, Grandma of Christian dx 12/07 age 10 now  (68.255.108.234) Thu Jun 12 09:51:25 PM EDT 2008
Partnership? In my limited experiene, I've learned that no matter how nervous I am, I don't let my daughter or son-in-law see that. They think I'm calm and that helps us all, I think. I went to lots of trainng with them, and now Christian and his twin sister are with me 2-3 days a week during summer vacation. But either Mom or Dad sleep over.....they don't want me to break my sleep cycle to test him during the night. But that cell phone; that's a real blessing, 'cause I'm always checking with them yet at this point. Ya, any other tips ?

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:51:57 PM EDT 2008
I'm now talking about my other daughter who lives with us with her 2 daughters, I only take care of them when she works the rest of the time its her responsibility

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:52:36 PM EDT 2008
Knowledge is a powerful ally... reading and learning as much as you can, so you can ask questions, no matter how foolish you may think they are.

Registered User gramma dee grandma of norm dx'd at 4  (24.2.118.24) Thu Jun 12 09:53:09 PM EDT 2008
I was determined that I wasn't going to let it effect our relationship-he still spends days at a time with us. It was hard for her the first few times he stayed there were alot of phone calls but it is now just a new normal for us with testing and insulin.

Registered User June Nana, Grandma of Christian dx 12/07 age 10 now  (68.255.108.234) Thu Jun 12 09:54:09 PM EDT 2008
Gramma dee -- I can't wait till we're at the point where you are now!

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:54:10 PM EDT 2008
Always remember that friction and friction will always get you heat. You may actually know more about a particular situation but we dummy kids (and sometimes I was a beaut I have to admit) need to realize that ALL OF US ARE LEARNING THIS TOGETHER and someitmes it means taking that breathe before we suggest something. The roles are not and were not for us---instantly defined. But the roles will start take shape. Some slower than others but if the first step is taken---wanting to play an active role----it will evolve

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:54:18 PM EDT 2008
Way to go Gramma Dee

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:54:29 PM EDT 2008
Good for you gramma Dee - that's the way it's done! Grin 

Registered User gramma dee grandma of norm dx'd at 4  (24.2.118.24) Thu Jun 12 09:55:17 PM EDT 2008
You are right about reading and there are so many good books out there. I also tagged along to the first few doctors appointments and tried to take in as much as I could. I still get nervous and panicked at times but you are right June we can'let our kids see that-after all we are their parents they look up to us for support.

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:55:49 PM EDT 2008
Gramm Dee---she is 18 now---can I send her to you for a week---you sound ike a gem  Wink 

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:56:16 PM EDT 2008
DD - how did you drive that learning process - just time and experience or did you actually talk about what you wnated to do/change

Registered User gramma dee grandma of norm dx'd at 4  (24.2.118.24) Thu Jun 12 09:56:46 PM EDT 2008
Sure I have an 18 year old son and a 20 year old daughter still at home, I'm sure we can manage........lol

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:57:19 PM EDT 2008
Laura - is the chat set for an hour?

Registered User Mamadx2 grandmother of Jack, age 7, diagnoised 4/2008  (98.18.0.170) Thu Jun 12 09:57:37 PM EDT 2008
gotta go; this was great for us newbies;  Wink 

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:57:47 PM EDT 2008
I was wondering how long it was too

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 09:58:05 PM EDT 2008
Is it every week or a one time thing

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 09:58:18 PM EDT 2008
Hope to see you back for the next chat Mamadx2

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:58:59 PM EDT 2008
Actually---as I tell parents, specifically Dads (who I lecture to most)--I needed to learn to shut my mouth and LISTEN. When I started listening to HOW my mother in law wanted to be involved---I was surprise onhow much smarter she got (tee hee)

Registered User Laura B CWD Programs, Sam's mom, dx'd 8/98  (76.226.142.199) Thu Jun 12 09:59:00 PM EDT 2008
Yes - it is. I think you all could talk for hours and hours, though.
Time to bring the chat to a close. We will definitely do this again soon. Thanks for chatting, everyone! And many thanks to Betty, Rachele, and Bruce for leading the discussion tonight. G'night!  Smile 

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 09:59:11 PM EDT 2008
Great discussion!! If it's an hour, I'd like to ask if there are specific topics you'd like to see on coming Grandparent Chats - are is this free-wheeling format your preference?

Registered User EmmasPapa Father and Grandfather to T1s  (75.110.206.215) Thu Jun 12 09:59:48 PM EDT 2008
I am going to sign off now but if any grandparents want to talk to me I am EmmasPapa on the Parents of Children Forum. You can email or IM me there.

Good Night

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 09:59:55 PM EDT 2008
I do feel funny about beining here--I'll see you in Orlando---I truly should move on ---see you all soon

Registered User kaylan female, loves her parents, 60 chickens, and 4 dogs, i like bailey 1 of my dogs  (69.19.14.19) Thu Jun 12 09:59:56 PM EDT 2008
hello

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 10:00:02 PM EDT 2008
DD - you rock!

Registered User kaylan female, loves her parents, 60 chickens, and 4 dogs, i like bailey 1 of my dogs  (69.19.14.19) Thu Jun 12 10:00:08 PM EDT 2008
by

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 10:00:15 PM EDT 2008
good night EmmasPapa

Registered User Steph Gramma to Ally, 13, dx'd at 8 yrs  (68.160.49.153) Thu Jun 12 10:00:18 PM EDT 2008
Thank you everyone this was helpful can't wait till the next one!

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 10:00:20 PM EDT 2008
Thanks, EmmasPapa -

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 10:00:36 PM EDT 2008
Hi Kaylan, chat is just ending, started at 9

Registered User gramma dee grandma of norm dx'd at 4  (24.2.118.24) Thu Jun 12 10:00:44 PM EDT 2008
Like I said Norm was 4 when he was diagnosed, he turned 5 in September 1st and started school on the 4th. There has been alot of stress on his mother and I while he is at school and they put an aide with him-she is responsible for testing him and watching him for highs and lows. He was young for school almost a year younger than most of the kids in his class, he will be repeating KG this fall, I can't help but think it didn't help that he was pulled from class and tested and had the constant attention of the aide Can anyone share next week how they handled when their children went to school?

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 10:01:18 PM EDT 2008
Talk to all of you soon-----hugs to you BettyB---hug hug hug

Registered User Paige's Dad (KS) Dad of Paige, 10, Dx'd October 10th, 2006, Pumping, CGMS  (99.10.36.105) Thu Jun 12 10:01:33 PM EDT 2008
hi folks, I've been watching for a bit, if you want to keep chatting, you could move to the side room when this one closes and continue  Cool 

Registered User gramma dee grandma of norm dx'd at 4  (24.2.118.24) Thu Jun 12 10:01:38 PM EDT 2008
It was great talking with you all and I look forward to the next time we can get together. You all have a super weekend!! Cool 

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 10:01:39 PM EDT 2008
Hope to see you all soon.

Registered User Diabetes Dad to Kaitlyn dx at age 2 in 1992  (24.189.231.3) Thu Jun 12 10:01:41 PM EDT 2008
G'night all!

Registered User Bruce & Rachele Grandparents of Kyle, dx'd at 7  (98.15.248.199) Thu Jun 12 10:02:15 PM EDT 2008
Good night everyone

Registered User BettyB Diabetes Educator  (68.106.17.198) Thu Jun 12 10:02:40 PM EDT 2008
OK GrammaDee - not sure if the plan is for weekly chats - but it will be announced and posted - we'll start with school stuff the next time around. So I guess we're done - thanks everyone for coming!

Registered User gramma dee grandma of norm dx'd at 4  (24.2.118.24) Thu Jun 12 10:03:43 PM EDT 2008
Thanks a million you know we just always feel like no one can take care of our kids like mom and grandma. (And dad's and grandpaps too)-don't want to leave them out they are just as important!

Registered User met mom of tommy, almost 7, pump  (69.250.35.87) Thu Jun 12 10:06:00 PM EDT 2008
hello all

Registered User Ellen (FL) Mom of Zack, 20, quilt 271  (64.12.116.79) Thu Jun 12 10:20:33 PM EDT 2008
For any grandparents who are still here in the chat - THANK YOU for making sure you have a magnificent relationship with your precious grandchildren. May you grow from strength to strength.

Registered User Moderator   (server) Thu Jun 12 11:25:00 PM EDT 2008
This room will close in five minutes. Please move to a new room.



                 
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