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  Back to Chat Transcripts Grandparents Chat - Reclaiming Sleepovers

Registered User Moderator   (server) Thu Mar 18 08:00:00 PM EDT 2010
Our Grandparents chat about Reclaiming Sleepovers starts at 9pm Eastern.

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 08:55:56 PM EDT 2010
Good Evening...who is on-line?

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 08:56:41 PM EDT 2010
Hello...Heather here in the Grandparents Chat Room

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 08:57:07 PM EDT 2010
Hi Heather

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 08:57:34 PM EDT 2010
Rachele isn't here tonight...she's is at daughter's house

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 08:57:43 PM EDT 2010
Hi Bruce and Rachele

Registered User Patti Grandma to CeCe dx 21months old  (69.204.71.25) Thu Mar 18 08:57:55 PM EDT 2010
Hello Patti, grandma to Cece dx 1/31/09

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 08:58:14 PM EDT 2010
Hope all is well...

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 08:58:24 PM EDT 2010
Hi Patti

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 08:58:34 PM EDT 2010
Welcome

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 08:58:59 PM EDT 2010
Hi Patti, good to see you here.

Registered User Patti Grandma to CeCe dx 21months old  (69.204.71.25) Thu Mar 18 08:59:20 PM EDT 2010
new to this so I guess I will say hello everyone

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:00:50 PM EDT 2010
We're here to talk about reclaiming sleepovers after your grandchild has been diagnosed with diabetes.

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 09:00:54 PM EDT 2010
Patti, you'll do just fine...sometimes the delay can make it confusing as to who is saying what to whom,,,!

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:02:26 PM EDT 2010
How old is CeCe now?

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 09:02:34 PM EDT 2010
We had several grandparents email us today saying they couldn't be here tonight and were very disappointed they would miss this session

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:02:39 PM EDT 2010
I watch Cece during the week for her Mom works but still have not had her overnight since her DX, sort of a scary thing

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:03:04 PM EDT 2010
Cece is going to turn 3 in April

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:04:52 PM EDT 2010
Patti, congratulations on taking care of Cece during the week. You are a super grandma!

Registered User Ellen Zach age 4  (98.229.166.108) Thu Mar 18 09:05:17 PM EDT 2010
I am joining you now.

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 09:05:42 PM EDT 2010
Hi Ellen...welcome

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:05:47 PM EDT 2010
Hi Ellen...welcome

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:06:12 PM EDT 2010
Thanks I would not have it any other way. She is on the pump now which has made thing so much better, but she still has lows which scary to me

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:06:26 PM EDT 2010
Hi Ellen

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:06:48 PM EDT 2010
Rachele & Bruce did you get to take your grandson Kyle overnight soon after his diagnosis?

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 09:08:41 PM EDT 2010
No unfortunately...his Mom was extremely worried...and I must admit, so were we. He wasn't on pump until several years ago, which we would have been far more comfortable if he was.

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 09:09:12 PM EDT 2010
Now that he is almost 16, we can never find him...he discovered girls!

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:09:16 PM EDT 2010
Patti, lows are scary for everyone.

Registered User Ellen Zach age 4  (98.229.166.108) Thu Mar 18 09:09:53 PM EDT 2010
We took Zach with a couple of months of diagnosis and it was a complete nightmare. I was on the phone with Childrens all night long. He is on the pump now which is much better, except when it doesn't work properly....

Registered User Jen(AZ) Allyson- age 15 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (66.182.114.251) Thu Mar 18 09:11:30 PM EDT 2010
HI ALL

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:12:02 PM EDT 2010
Hi Jen

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 09:12:04 PM EDT 2010
Hi Jen and welcome!

Registered User Jen(AZ) Allyson- age 15 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (66.182.114.251) Thu Mar 18 09:12:45 PM EDT 2010
how is everyone tonight

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:13:08 PM EDT 2010
Great thanks

Registered User Jen(AZ) Allyson- age 15 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (66.182.114.251) Thu Mar 18 09:13:37 PM EDT 2010
im a mom not a grandma but the other room is not ACTIVE right now

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 09:13:47 PM EDT 2010
We're just fine now that Spring seems to have arrived here in the Hudson Valley of NY

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:13:48 PM EDT 2010
Hello Jen...welcome to our chat

Registered User Jen(AZ) Allyson- age 15 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (66.182.114.251) Thu Mar 18 09:14:32 PM EDT 2010
ally is 15

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:14:52 PM EDT 2010
We have several grandparents here. I'm a parent and a CDE filling in for Betty Brackenridge tonight.

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 09:16:12 PM EDT 2010
Jen, moms are always welcome here

Registered User Jen(AZ) Allyson- age 15 dx 3-24-03 at age 8 Now pumping with Pink Animas PING  (66.182.114.251) Thu Mar 18 09:16:24 PM EDT 2010
it was hard when ally was younger to leave her with people cause of diabetes

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:16:30 PM EDT 2010
My daughter was 3 years old when she got diabetes and now she's 23 years old. We've had a lot of sleepover and slumber party experience.

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:18:20 PM EDT 2010
Our family is very big and we educated everyone we met about diabetes. Like Patti said earlier...lows are scary.

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:20:46 PM EDT 2010
Ideally it's good to get some diabetes care experience for short visits.

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:20:57 PM EDT 2010
Even though I watch her every day I am still scared to have her overnight, think I would be sitting watching her sleep?? Guess thats normal but does that feeling go away?

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:23:43 PM EDT 2010
Patti, your feelings are totally normal. It's a lot like when they were babies and we looked in on them every few minutes.

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:25:30 PM EDT 2010
I just know that she can drop from 271 to 61 in a matter of 40 minutes I guess I would be checking her all night long

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:29:06 PM EDT 2010
We can prevent lows in the night by testing before bedtime and making sure blood sugar is above 130mg/dl. A recent study show a huge reduction in lows at night when you made sure kids had a snack and blood sugar was over 130 mg/dl

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:30:26 PM EDT 2010
Also good to know what the blood sugars at bedtime and breakfast have been the week before you have a sleepover. Of course you can always do a 2am blood sugar.

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:31:05 PM EDT 2010
Thanks for that information Heather

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:35:33 PM EDT 2010
Had CeCe had lows at night at home?

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:36:39 PM EDT 2010
Yes and my daughter is very attentive and checks her ofter during the night

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:41:34 PM EDT 2010
Kudos to you all for taking such good care of Cece. If she has one or more low a week a night you could call her doctor to get an insulin dose adjustment.

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:43:20 PM EDT 2010
It just seems like when my daughter gets her pump adjusted to where she has good control she gets sick and it throws everything off so that might be part of it.

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:46:27 PM EDT 2010
For children under 5 years old the recommended blood sugar goals are 80 to 200 mg/dl. About half the values at each time of day should be in that range. Getting sick does make it difficult and most often makes blood sugar go up.

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:50:50 PM EDT 2010
We want a happy balance of food and exercise and then adjust the insulin so that blood sugars are in the goal range...and everyone gets their sleep and has fun too. I often say diabetes is hard because we are constantly worrying.

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:53:51 PM EDT 2010
And yes I know what you mean about getting the insulin pump doses adjusted and then what do you know the kid grows or gets sick or something like that! Sometimes the most consistent thing about diabetes is the inconsistency.

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:55:12 PM EDT 2010
I agree with you there, no one knows what these poor parents go through day after day and I give them all the credit in the world.

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 09:56:50 PM EDT 2010
Heather I feel like I have taken up the majority of this chat, have not heard from anyone else??

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:58:05 PM EDT 2010
It is such a comfort to have a loving grandparent that will take on any amount of diabetes care. Sleepovers are scary because we worry about low blood sugar. We can do the right things to prevent low blood sugar. Plan to do a midnight blood sugar and know that it will be ok.

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 09:58:38 PM EDT 2010
Patti, your comments and were excellent...thank you

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 09:59:12 PM EDT 2010
I meant to say "...comments and questions..."

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 09:59:26 PM EDT 2010
As long as we help each other one at a time it's all worthwhile.

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 10:00:44 PM EDT 2010
Patti, will you be able to join us in Orlando for the FFL conference with your family?

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 10:01:30 PM EDT 2010
I am still new to this but made a vow to myself that I would learn how to take care of her (got the day part down) so at least be able to give my daughter and son-in-law that well deserved break they both deserve

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 10:01:57 PM EDT 2010
Well folks, the hour is up already, so the chat is officially closed, but feel free to remain here and chat. The next Grandparents' Chat will be May 20 on "Dealing with Emotions"...please join us here.

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 10:02:31 PM EDT 2010
Goodnight to all...

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 10:02:35 PM EDT 2010
I don't think so when is it?

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 10:02:58 PM EDT 2010
Good Night Bruce and Rachele thank you!

Registered User Bruce & Rachele grandparents to Kyle, 15, dx'd at 7  (98.15.211.41) Thu Mar 18 10:03:26 PM EDT 2010
You are most welcome, Patti

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 10:04:09 PM EDT 2010
FFL is June 30 thru July 4th...there will be 3,000 of us there to share.

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 10:05:08 PM EDT 2010
Thanks Patti for your heartfelt vow to Cece and her parents. You will know when your ready to take on a sleepover. Thanks for joining us tonight.

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 10:05:48 PM EDT 2010
Goodnight Bruce and Rachele!

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 10:05:57 PM EDT 2010
I will check but I think the JDRF walk might be during that time. Can't miss that we had a ball last year. Thanks for all you patience and guidance you gave me tonight hope to chat again.

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 10:07:29 PM EDT 2010
Maybe you can find some other grandparents at your JDRF Walk. It's good to have support.

Registered User Patti Grandma to CeCe dx 1/31/09@ 21months  (69.204.71.25) Thu Mar 18 10:08:27 PM EDT 2010
Good Night to all

Registered User Heather CDE and mom of Stephanie dx 5/1990  (68.4.0.19) Thu Mar 18 10:08:39 PM EDT 2010
Good night Patti...you're a gem.

Registered User Moderator   (server) Thu Mar 18 11:25:00 PM EDT 2010
This room will close in five minutes. Please move to a new room.



                 
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