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  Back to Chat Transcripts Processing the Most Difficult with Joe Solowiejczyk

Registered User Moderator   (server) Tue Apr 06 01:00:23 PM EDT 2010
Our special chat with Joe Solowiejczyk about Processing the Most Difficult starts at 2pm Eastern.

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 01:27:20 PM EDT 2010
Hi All
Thought I would let you know I was here. I suspect we will be very British and reserved, so thought I would go out on the dance floor first and begin bopping round my handbag - lol

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 01:28:27 PM EDT 2010
I'm here too jacqui: defintely no handbag !

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:28:53 PM EDT 2010
Hi Jacqui & Liz, I am here now too  Grin 

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:30:23 PM EDT 2010
lol, lets try not to be too British & reserved tonight!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:31:11 PM EDT 2010
I am here too, but may pop in and out until 7pm. Didn't think I would get here, but hurrah! Lacking handbag :( Frown  Frown 

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:31:58 PM EDT 2010
That reminds me of a flight, when something happened, I won't elaborate now as totally the wrong time, but everyone was very reserved about it and hardly blinked ... sums us up very well!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:32:11 PM EDT 2010
Hi Angie

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:33:07 PM EDT 2010
I am here popping in and out as hubby not back.... hi all!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:33:13 PM EDT 2010
Hi Aileen.

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 01:33:18 PM EDT 2010
Tom has just shouted 'Mum, I'm on 5.5 and its Come Dine with Me.' He knows me so well!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:33:27 PM EDT 2010
Joe emailed to say he's settled in the Delta lounge and just getting his internet connection going... hopefully there won't be a hitch!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:33:40 PM EDT 2010
Will Laura be here to patrol this chat like she did the last one, or will someone else be taking the reins?

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:34:46 PM EDT 2010
Laura is at Trent's funeral today  Cry 

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:35:46 PM EDT 2010
ah - OK  Frown 

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:35:49 PM EDT 2010
In her absence Jackie and I will try our best and I think Jeff if coming in to introduce Joe

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:36:18 PM EDT 2010
sounds good.

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 01:36:31 PM EDT 2010
Unusually my 3 children have found a film they all want to watch! only the dog is trying to attract my attention!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:36:44 PM EDT 2010
lol, lets hope so!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:37:09 PM EDT 2010
What are they watching Liz?

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 01:37:36 PM EDT 2010
Cool running

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:38:13 PM EDT 2010
that is soooo funny!! Cool runnings!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:38:17 PM EDT 2010
Ah - good film - hopefully that will keep them out the way for an hour  Cool 

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:39:07 PM EDT 2010
Alice has just plugged in the wii and is creating *yet more* mii's

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:39:39 PM EDT 2010
hubby just arrived hooray!!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:39:53 PM EDT 2010
Hi Debra

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 01:39:55 PM EDT 2010
Joe has been animating all afternoon and is still at it. Tom is watching Come Dine with Me and Olly is cooking chilli which I will probably have to eat half way through. We are going for a walk along the beach with the kids this evening as it is Easter Holidays. That will cheer me back up, I am sure. Oh, and the white wine I have chilling!

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 01:41:13 PM EDT 2010
is Joe doing computer animation Jacqui?

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:41:20 PM EDT 2010
Sounds great Jacqui ... wish I was with you!

Registered User suek mum of sam 12 (type1) London  (90.214.151.98) Tue Apr 06 01:42:07 PM EDT 2010
hi all. 3 nights in a row in here it's becoming a bit of a habit Smile 

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 01:42:09 PM EDT 2010
Yes, with a little plasticine man and a lego robot. Can just imagine him and george doing that together for hours! lol

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 01:42:10 PM EDT 2010
I suspect Julian will walk thru door shortly and wonder why I am on computer and his tea is not ready!

Registered User Paula Mum of Jess, 3, Type 1 (Lancashire, UK)  (82.33.169.57) Tue Apr 06 01:42:23 PM EDT 2010
howdy doody people. hope we're all well.  Grin 

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 01:43:09 PM EDT 2010
That would be just George's cup of tea: we really must get together!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:43:22 PM EDT 2010
Alice animates too - keeps her busy for hours!

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 01:43:26 PM EDT 2010
All well here thanks Paula

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:43:52 PM EDT 2010
Marc's another animator!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:43:53 PM EDT 2010
Hi Sue and Paula

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 01:45:03 PM EDT 2010
Hey, Joe would love to share some animations with the others. That would be a nice way to chat with other D kids. On off-topic maybe?

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:45:11 PM EDT 2010
Hiya Sue & Paula

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:45:25 PM EDT 2010
A couple of Alice's animations are on you tube - search for thejewellhouse if you are interested - Dinosaur! is quite good  Grin 

Registered User Paula Mum of Jess, 3, Type 1 (Lancashire, UK)  (82.33.169.57) Tue Apr 06 01:45:58 PM EDT 2010
anyone else feeling a bit like this is the calm before the storm. like before a game of bingo, then once it all kicks off its a bit mad!  Wink 

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:46:12 PM EDT 2010
Aileen abit of housekeeping here, do we have to say who we are talking replying to ? how does it work or just do as we are now? thanks

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:46:45 PM EDT 2010
Oh I'll look later, thanks Angie. Don't want to open any more pages just now or I will get more confused!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:46:49 PM EDT 2010
@debra - this is one way to do it  Smile 

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 01:47:22 PM EDT 2010
Oh I never think of things like You tube. I am so technically out of things!Will look and get Joe to post some of his on there too. he is a total perfectionist though, and won't put anything up that he is not happy with. So may not happen for years!

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 01:47:25 PM EDT 2010
Hi all

Registered User Kate Mum to 7 year old with type 1  (81.153.237.149) Tue Apr 06 01:47:28 PM EDT 2010
Hi Everyone

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:47:38 PM EDT 2010
@angie - ta

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:47:42 PM EDT 2010
If you are aiming a reply or question to someone I would put there name first... also please ask again if we miss anything...

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 01:47:46 PM EDT 2010
@Angiej it just took me ages to find the @ button! lol

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:48:00 PM EDT 2010
lol!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:48:10 PM EDT 2010
Hi Jackie

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:48:19 PM EDT 2010
@JD -  Cool 

Registered User alexmum mum of 10 yr old  (86.18.86.146) Tue Apr 06 01:48:19 PM EDT 2010
Hi all, Bev here! Not sure if i will stay - might get to o
heavy and not sure what to expect? Bev

Registered User april mum of 15year old type 1  (90.194.134.57) Tue Apr 06 01:48:22 PM EDT 2010
hi all im ready.

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 01:48:55 PM EDT 2010
Hi Guys! just checking in a wee bit early to make sure  Grin 

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 01:48:57 PM EDT 2010
Hi Aileen

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 01:49:12 PM EDT 2010
Hi Joe

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:49:21 PM EDT 2010
Hi Bev and April

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:49:23 PM EDT 2010
well - this is cosy - maybe we should just hang out here every now and then for a natter!

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:49:32 PM EDT 2010
@aileen - great thanks and Hi Joe!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:49:37 PM EDT 2010
Hi Joe

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:49:43 PM EDT 2010
Hi Joe! I nearly missed you there!

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 01:49:46 PM EDT 2010
we do already Smile 

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 01:50:01 PM EDT 2010
hi there!

Registered User alexmum mum of 10 yr old  (86.18.86.146) Tue Apr 06 01:50:07 PM EDT 2010
Hi Joe

Registered User april mum of 15year old type 1  (90.194.134.57) Tue Apr 06 01:50:13 PM EDT 2010
dont no if will beable to keep up but will try.

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 01:50:22 PM EDT 2010
Aileen are you on a big screen?

Registered User Moderator   (server) Tue Apr 06 01:50:23 PM EDT 2010
Our special chat with Joe Solowiejczyk about Processing the Most Difficult starts in 10 min in the 'Joe S' room.

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:50:53 PM EDT 2010
@ April - maybe change the update to 15 secs does help abit

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:50:57 PM EDT 2010
We have been doing Angie, it went in to the wee hours last night! Marisa was here, but refrained from here wine  Wink 

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:51:13 PM EDT 2010
@JJ are we now getting competitive about screen size?! lol!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 01:51:19 PM EDT 2010
Geez! If I can anyone can _and everyone is welcome to reach me by e-mail later on at jsolowie@its.jnj.com Grin 

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:51:24 PM EDT 2010
No, a laptop... is that my problem?

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:51:48 PM EDT 2010
@ joe - thats super thanks

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:51:57 PM EDT 2010
Funny - I hang out on the US forums, and very rarely se anyone in the chat rooms - must be looking at the wrong times! Confused 

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 01:52:11 PM EDT 2010
My pleasure!

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 01:53:18 PM EDT 2010
Hi angie I was wondering if Ailee was having problems cos of a small screen size when it is easy to lose track

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:53:26 PM EDT 2010
@ Angie Who are you there? I am Alba37 (I think?)

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 01:53:44 PM EDT 2010
Hi - first time on a chat room - is anybody there? Jacqui

Registered User Paula Mum of Jess, 3, Type 1 (Lancashire, UK)  (82.33.169.57) Tue Apr 06 01:54:10 PM EDT 2010
hi jacqui

Registered User helvelyn Mum to Emma type 1 dx 2003 now aged 6 years  (86.133.1.72) Tue Apr 06 01:54:15 PM EDT 2010
yep..I'm in too but just trying to put someone to bed aswell

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 01:54:24 PM EDT 2010
well Aileen and I have been looking in most evenings even if its for a short time between replying to the 100s of emails on the UK list Smile 

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:54:24 PM EDT 2010
Yes! Hi Jacqui ! good to see you here !  Grin 

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:54:29 PM EDT 2010
@Aileen - I am angiej on the US boards

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 01:54:47 PM EDT 2010
hi Jacqui E

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 01:54:52 PM EDT 2010
Wow - this is great Hi

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:54:56 PM EDT 2010
Yah! Hi helen!!  Grin 

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:56:16 PM EDT 2010
Hi Guys, just getting a coffee before we get going!

Registered User april mum of 15year old type 1  (90.194.134.57) Tue Apr 06 01:56:17 PM EDT 2010
better on 15secs

Registered User Paula Mum of Jess, 3, Type 1 (Lancashire, UK)  (82.33.169.57) Tue Apr 06 01:56:40 PM EDT 2010
is danni not here? she's been one of the practice posse.  Wink 

Registered User april mum of 15year old type 1  (90.194.134.57) Tue Apr 06 01:56:49 PM EDT 2010
good idea aileen me 2.

Registered User helvelyn Mum to Emma type 1 dx 2003 now aged 6 years  (86.133.1.72) Tue Apr 06 01:56:50 PM EDT 2010
Hello everyone..also having a skype convesation too...how tecchie am I...not very is the answer

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 01:57:15 PM EDT 2010
have I got time to get a glass of wine before the chat starts?

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 01:57:19 PM EDT 2010
Husband's tea sorted, dog banished and cup of tea to hand: I'm ready!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:57:58 PM EDT 2010
I'm ready now too!  Razz 

Registered User Adrienne Mum to 10 yr old girl  (87.112.93.88) Tue Apr 06 01:58:01 PM EDT 2010
I'm here, thanks Bev for reminding me, not done this before

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:58:12 PM EDT 2010
Yes go Jacqui!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:58:30 PM EDT 2010
Hi Adrienne  Grin 

Registered User Paula Mum of Jess, 3, Type 1 (Lancashire, UK)  (82.33.169.57) Tue Apr 06 01:58:41 PM EDT 2010
hi adrienne

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 01:58:47 PM EDT 2010
Hi Adrienne. I think this is new to most of us!

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:58:51 PM EDT 2010
Hi Adrienne!

Registered User alexmum mum of 10 yr old  (86.18.86.146) Tue Apr 06 01:58:51 PM EDT 2010
@Adrienne, glad your here - i feel nervous!

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 01:58:58 PM EDT 2010
Hi Adrienne

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:59:06 PM EDT 2010
I don't know where Danni is...

Registered User helvelyn Mum to Emma type 1 dx 2003 now aged 6 years  (86.133.1.72) Tue Apr 06 01:59:07 PM EDT 2010
ah the wine...where would we be without it?

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 01:59:15 PM EDT 2010
Thanks for the drink reminder - hot sweet chai now made. I'm ready! Razz 

Registered User Adrienne Mum to 10 yr old girl  (87.112.93.88) Tue Apr 06 01:59:16 PM EDT 2010
Got coffee (wish it was wine but that hurts - jacqui have one for me)

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 01:59:27 PM EDT 2010
@aileen- just sent post on CWD

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 01:59:59 PM EDT 2010
Thanks Debra

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 02:00:04 PM EDT 2010
I will take you at your word, Adrienne! lol

Registered User Adrienne Mum to 10 yr old girl  (87.112.93.88) Tue Apr 06 02:00:27 PM EDT 2010
have text danni

Registered User Becca Mum to type 1 (Essex)  (86.22.68.137) Tue Apr 06 02:00:37 PM EDT 2010
Hey guys

Registered User Paula Mum of Jess, 3, Type 1 (Lancashire, UK)  (82.33.169.57) Tue Apr 06 02:00:46 PM EDT 2010
hi becca

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:00:52 PM EDT 2010
hi Becca!

Registered User JulieL Parent of teen  (86.146.207.66) Tue Apr 06 02:00:53 PM EDT 2010
Hi all, will just listen in for a while . Never chatted before

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 02:00:54 PM EDT 2010
Will do - feel a bit bad when you are all being good with the tea and coffee.

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:01:00 PM EDT 2010
Let's start with some parameters, as a way of putting the recent events into context, without judging anybody, but in order to make sense of something so difficult: Most kids and people with diabetes have incredibly vibrant, full lives. usually, unless someone is not taking care of themselves, or there are really extenuating circumstances, people rarely die from diabetes while they're managing it and living with it. And hypos have to be really, really really bad for that to happen. usually, dying from a hypo has to do with poor management, or mismanagement. I've been living with it for 49 years now and NONE of my friends have died from hypos. It happens sometimes, but rarely. And when it happens, it's tough-for all of us left standing, realizing how serious this disease really is. But we all forge on, accepting the realities and counting the blessings of being able to have full lives.

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:01:00 PM EDT 2010
HI Becca  Grin 

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 02:01:06 PM EDT 2010
Hey Becca Grin 

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:01:44 PM EDT 2010
Aileen, will you get us started?

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:03:14 PM EDT 2010
Does anyone want to ask joe a particular question?

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:03:21 PM EDT 2010
Great, Joe. thanks for doing this for us

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:03:39 PM EDT 2010
ready when you guys are

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:03:44 PM EDT 2010
Or we have some of the questions written down Aileen can post one of these

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:03:57 PM EDT 2010
So the fisrt question we have

Lisa, can?t make it tonight as she is working, she has a 9 year old son Harry dx April 2009 and would like to ask:
In the case of a 9yr old how would you explain a diabetes related death to them?

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:04:05 PM EDT 2010
sounds good

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:04:16 PM EDT 2010
that sounds like a plan Jackie

Registered User alexmum mum of 10 yr old  (86.18.86.146) Tue Apr 06 02:04:34 PM EDT 2010
I havent told my son about the recent deaths - should i?

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:04:35 PM EDT 2010
I?m not sure that I would use the word ?death? for a 9 year old, unless of course he/she had already heard someone talk about it. I would say that it?s important to be responsible, and sometimes, when people don?t take care of themselves they can get into a real mess. If they have already heard that someone has died, then i would say that usually, most people if they?re taking care of themselves, don?t die. That?s extremely unusual!!! I would emphasize that if you are responsible and take care of yourself together with the fact that we (your parents) are so on top of taking care of you and watching out that nothing happens, that you?re pretty safe! We promise

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 02:05:12 PM EDT 2010
I don't want to worry my teen unnecessarily, but I don't want to hide these things from her either. Do I wait for a right moment or just go for it?

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:05:35 PM EDT 2010
thanks Joe that is what I needed to hear as well

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:05:59 PM EDT 2010
Alice has asked me directly whether she can die from a hypo. She is not aware of the recent cases. What are your thoughts on how to respond to this?

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:06:12 PM EDT 2010
no, I wouldn't-what would be the point. the message u want to convey is that it will be hard but you can do it!

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:06:17 PM EDT 2010
A question asked by Jacqui D
How do I handle having kids of different ages with type 1 who may need different answers to the same question. I am very reassuring and yet honest with them both, but I have a very anxious younger son and don't want to be creating divides, making one aware of something they shouldn't mention to the other. Any ideas?

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:06:26 PM EDT 2010
I think for me its about what is the right age.... is there a right age?

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:06:57 PM EDT 2010
The answer is: Not really, you don't have to be so honest in detail-paint genral scenarios for the kids, in a positive vein

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 02:07:12 PM EDT 2010
Hi Jo - trouble is Jo - we may not want to worry them but the internet does a good job of that there is so much mis-information on it.

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:07:23 PM EDT 2010
The same way that you treat all other growth and developmental issues-you don?t treat both of them the same when it comes to chores, school work, life issues. The older one cognitively and emotionally can handle more complexity and ambiguity than the younger one. Why would you treat them the same in diabetes if you don?t in life in general? Each according to his maturity and capacity for understanding.

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:07:31 PM EDT 2010
yes good point Jacqui

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:07:49 PM EDT 2010
As Laura said you have to go on living you cant be paralysed by fear

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:08:04 PM EDT 2010
Well-then really give them a good dose of insulation!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:08:11 PM EDT 2010
I think the more positive the better! You don?t go around at home talking about the fact that all life ends in death, say, as the topic for conversation at breakfast because you want to tell your kids about the truth and that they should know that this whole thing called life just ends in death!!!!!
Same here ? be as positive as possible, encouraging, promoting them to really unfold into their lives and at the same time being realistic. As we who have gotten older know too well-we?ll figure out what it?s all about when we get older. Really no need to burden the kids with our existential concerns and dilemnas-be very careful about who the message is intended for ? you or them!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:09:02 PM EDT 2010
You should acknowledge the fear but not be organized by it.

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:09:29 PM EDT 2010
Thats so true, we probably worry more that our children about the things which "might" happen

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:09:41 PM EDT 2010
Just to clarify - Should we acknowlegde our fear, or their fear

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:09:53 PM EDT 2010
Our kids with diabetes and their brothers and sisters grow up faster than their peers. They're like old souls, they know stuff, but we need to be there to help them figure stuff out gently, over time

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:10:24 PM EDT 2010
Jacqui D Mum to Tom, dx 18 months old now 10, and Joe, dx 8 years old now 13; both pumping Medtronic 722 using Sils and full time sensors:would also like to know..

I also want to ask at what point does privacy overtake the need to hear sensor alarms for a teen with no hypo awareness at night. I want to use a baby alarm in his room to hear the too quiet alarms but feel worried this is a bad move for a 13 year old but he is keen to have a sentry device when they come out as he likes the reassurance of me being able to monitor his sensor overnight. Any thoughts?

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:10:38 PM EDT 2010
Acknowledge everybody's, AND move forward. fear is healthy, but indulging it is not, I think

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:11:14 PM EDT 2010
I also think if kids see adults dealing with life and fear and the whole journey it sets an example about life going on and making the best of it. No one knows what the future holds

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:12:11 PM EDT 2010
I think the privacy thing is important, to go with each person's sense about it. Check in with the kids first about how they'd like to do it, then accommodate as much as you can, try it and seew how it goes

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:13:13 PM EDT 2010
I think it's a hard one, I would feel better if I had a monitor, but Marc wouldn't have it

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:13:13 PM EDT 2010
Yep I'm with Jacqui on that question. I am still using a baby monitor due 10 years down the line and am waiting for the sentry device. Thanks for the answer, this is what I thought

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:13:22 PM EDT 2010
Absolutely! And, as as lwarence sadid in lawrence of Arabi, A man writes his own destiny! we have all thje tools and the oppourtunities

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:14:29 PM EDT 2010
I have noticed that adults who live with type 1 diabetes frequently indicate that the think that parents make too much fuss.... I wonder if we, as parents , live in fear far more than the children or the adults they grow up to be.

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:14:45 PM EDT 2010
The important thing is to recognize what's your stuff, as the parent, and what's theirs. They will foloow your lead. Some things need to be kept at adult level, not a discusiion with the kids. if they bring it up, be as spositve as possible and real, not scarey Blush 

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:14:49 PM EDT 2010
I think we do!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:15:23 PM EDT 2010
I think it's much more dicfficult for the parents-these are your children and you're responsible for them.

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:16:03 PM EDT 2010
Yes I think we do as well, especially with all the information that we know today

Registered User Marisa (Scotland) Cameron, 13 dx aged 9  (93.97.131.117) Tue Apr 06 02:16:05 PM EDT 2010
Yep - children also think they are immortla - whereas we are probably a bit more aware of what can go wrong  Confused 

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 02:16:08 PM EDT 2010
I think thats so true JJ - I get told to chill out all the time !

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:16:09 PM EDT 2010
very true - yet at some point in the teens we need to hand over to them gradually. This is never going to be an easy ride  Smile 

Registered User suek mum of sam 12 (type1) London  (90.214.151.98) Tue Apr 06 02:16:15 PM EDT 2010
I am sure thats true Jackie. it's very hard to seperate our feelings from what our children are feeling.

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:16:20 PM EDT 2010
As a parent you have to come to terms with the experience of powerlessness-to prevent the disease and to make it go away. that is a deep existential issue, resolved slowly over time with knowledge and expeirence

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:16:58 PM EDT 2010
we are the way we are because we are dealing with it for them as young children they are totally dependent on us... and sometimes I feel so exhausted by it and then someone on the outside says you fuss too much!!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:17:17 PM EDT 2010
That's what's hard, coming to terms with powelessness

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:17:34 PM EDT 2010
if you're not feeling exahusted you';re not doing it :-)

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:17:57 PM EDT 2010
hahahaha Joe, so true

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:17:59 PM EDT 2010
... and any death in the CWD community simply highlights that powerlessness

Registered User Marisa (Scotland) Cameron, 13 dx aged 9  (93.97.131.117) Tue Apr 06 02:18:14 PM EDT 2010
The older you get the more powerless you are aware you are anyway! Middle age sucks!

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:18:19 PM EDT 2010
thanks Joe from you that feels good to hear!!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:18:26 PM EDT 2010
(that we have over D)

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:18:28 PM EDT 2010
I say the serenity prayer for myself and my diabetes 5 times/day! it works. it's normal to be depressed from time to time, it's normal to breakdown and cry. It's not normal to hold it all in.

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:18:46 PM EDT 2010
lol Marisa!

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:19:02 PM EDT 2010
@Joe - yes

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:19:12 PM EDT 2010
what is the serenity prayer - I have heard it referred to before?

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:19:15 PM EDT 2010
People who don't live with this don't understand how much work it takes just to step out the door in the morning!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:19:28 PM EDT 2010
Yeah, I loved your accounts of your "Diabetes days" Joe

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:20:07 PM EDT 2010
@Angie, have a search on google, it's lovely

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:20:08 PM EDT 2010
God grant me the serenity to accept the things I cannot chnge, the courage to chnge the things i can and the wisdom to know the difference!

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:20:30 PM EDT 2010
thanks

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:20:37 PM EDT 2010
thanks

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 02:20:40 PM EDT 2010
I used to agonise over whther my parenting was good enough before Tom was diagnosed. With Diabetes it gives you something very tangible to beat yourself up over. I regard it as part of my job - and definietly my partners - to make sure I don't do that to myself very often.

Registered User Paula Mum of Jess, 3, Type 1 (Lancashire, UK)  (82.33.169.57) Tue Apr 06 02:20:46 PM EDT 2010
i love that. so meaningful. i always remember it being on a plaque above my grandma's fireplace when i was little.

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:21:10 PM EDT 2010
yes it is very pertinent and fits in with our lives...

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:21:35 PM EDT 2010
Sue, who is here, Mum to Sam, 12, dx 04/06, Injecting Novorapid and Levemir, Also mum to Tom 20 and Josh 14, would like to ask :
'how is the best way to react when some idiot, takes great pleasure in relating a tale (in front of your child) along the lines of how they knew a teenager who died because they went hypo, whilst out clubbing and everyone thought they were just drunk '
We have had similar happen (usually from strangers/casual acquaintances) on a few occasions. I just feel myself getting all angry and emotional would be nice to have a reply to hand that would reassure the child and shut the idiot up.

Registered User alexmum mum of 10 yr old  (86.18.86.146) Tue Apr 06 02:21:41 PM EDT 2010
When I eventually hand over the reigns to my son - do you think he will re-live all the shock of it all over again? I means when is he 16 or older.

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:21:55 PM EDT 2010
We as adults, must provide as positive an attitude as possible for the kids to get the message that it's difficult AND doaanle. There are those guys that have climbed mount everest! I think Sebastain Saseville's mother camped out at the summit camp to make sure that he didn't go low :-)

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:22:21 PM EDT 2010
You tell that idiot thank you for confirming for you already knew-that there is no shortage of stupid. Clearly these kind of people are a a combination of stupid and sadistic at times, and I would protect my child as if someone were abusing them. Call them as many names as make you feel better and have your kids start screaming at them as well. They?re, as they say in the States, Knuckleheads!

Registered User suek mum of sam 12 (type1) London  (90.214.151.98) Tue Apr 06 02:22:51 PM EDT 2010
love it Grin  thanks

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:23:03 PM EDT 2010
lol! Brilliant!

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 02:23:19 PM EDT 2010
Brilliant. My kids love being allowed to swear! lol

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:23:34 PM EDT 2010
love that one Joe - we shall carry on screaming then Smile 

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:23:37 PM EDT 2010
my pleasure! Geez, some people are so stupid. remind me to tell you of an incident aboard a flight. I had the stupidest flight attendant on the planet

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:23:39 PM EDT 2010
It's good to know that our first reaction is the right one!!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:24:14 PM EDT 2010
Joe? Can you tell us now...

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:24:16 PM EDT 2010
Totally! Always trust your gut. The brain filters too much ;-)

Registered User Paula Mum of Jess, 3, Type 1 (Lancashire, UK)  (82.33.169.57) Tue Apr 06 02:24:19 PM EDT 2010

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:24:30 PM EDT 2010
Another question springs to mind is not HOW do we tell the kids but do we? My 10 year old doesn't know about the recent happenings in the USA but she does know about the young girl over here as we knew her. Should I tell her about the others or not? She may find out as she goes on my computer but she may not. To tell or not too tell, that is the question?

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:25:17 PM EDT 2010
It's so long, but I was having a low and for the life of me couldn't get them to get me some juice. The flught attendant askjed me that if i had diabetes why did I want juice! I really almost strangled her

Registered User Marisa (Scotland) Cameron, 13 dx aged 9  (93.97.131.117) Tue Apr 06 02:25:28 PM EDT 2010
Yes - thats a good question. I know Cam saw my facebook profile - but he hasn't said anything. I'm waiting for him - or should I be more proactive

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:25:59 PM EDT 2010
Oh no! I hope she got it quick after that?

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 02:26:00 PM EDT 2010
Also Jo - if siblings ask - don't want to burden them with something to worry about that god willing will never happen.

Registered User Fi has 2 children with T1  (82.23.244.215) Tue Apr 06 02:26:30 PM EDT 2010
sorry i am joining late - had a phone call!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:26:40 PM EDT 2010
Have a discussion based on the points that we've already discussed. Your kids hear about alot of things form a variety of incoming sources that are NOT you and you manaage to make that balance between positive yet real, not macabre!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:26:56 PM EDT 2010
No problem, Hi Fi. Better late than never!

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:27:30 PM EDT 2010
Ok thanks Joe

Registered User suek mum of sam 12 (type1) London  (90.214.151.98) Tue Apr 06 02:27:54 PM EDT 2010
Good point our kids may well be hearing things at school etc, that we are unaware of

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:28:02 PM EDT 2010
Real AND positive, How do you deal with questions about life and death with your kids? You don't sit down and read them sartre or Kierkegard when they're young, do you?

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 02:28:03 PM EDT 2010
Lizzie had a bad hypo last night on an easy jet flight they were brilliant and knew exactly what to do - cheap airline but good with hypos! Sorry off topic

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:28:51 PM EDT 2010
One thing that worries me is how to encourage self management - my daughter is only 4 but she is a girl and already head strong... cos we are proactive now does this necessarily be instilled in her later on ?? if you get my drift...

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:28:58 PM EDT 2010
@Jacqui E: Hello there, from the button factory!!!!!!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:29:03 PM EDT 2010
But should we actively bring this subject up in order that we can manage the situation? For example I am not sure Alice is aware of the UK death (within this community) yet each year we visit a place that has her memorial tree - should we bring it up or wait to be asked?

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:29:47 PM EDT 2010
the way to encourage self-managementis the way you "encourage" them to do their homework!!!! If you don't do it, no iPod :-)

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:30:07 PM EDT 2010
I wouldnt bring the subject up unless I was asked

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:30:12 PM EDT 2010
that made me laugh out loud !!!

Registered User Paula Mum of Jess, 3, Type 1 (Lancashire, UK)  (82.33.169.57) Tue Apr 06 02:30:18 PM EDT 2010
i'm same as you debra. jess is only 3 so fear hasn't even entered her head yet. not about D anyway. i guess i just try to drip feed the importance of good care. same as we drip feed about crossing the road each time we do it

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:30:34 PM EDT 2010
Do you guys negotiate with your kids about how many days a week they will go to school?

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:30:51 PM EDT 2010
very true Paula

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 02:30:55 PM EDT 2010
Hope the button making is still going well!!

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:31:06 PM EDT 2010
@joe - you right and some - thanks  Blush 

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:31:16 PM EDT 2010
Joe How can you manage that with older kids? I couldn't get his ipod off him if I tried!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:31:32 PM EDT 2010
@angiej: I woulod wait for it to come up, or gently ask her if she has any thoughts about the place.

Registered User Danni T1 mum  (195.93.21.102) Tue Apr 06 02:31:50 PM EDT 2010
Re self management..should we discipline then for not looking after themselves?

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:32:11 PM EDT 2010
Deb I would tell your daughter that diabetes is one of the medical conditions where you get a say in how things turn out... with a lot of medical conditions there is no chance to change the outcome

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:32:18 PM EDT 2010
good question Danni (and hi by the way)

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:32:26 PM EDT 2010
thanks - I will give it some further thought  Smile 

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:32:43 PM EDT 2010
@JacquiE; apologies for not getting back to you sooner-more than swamped at the button factory-am coming to uk in may-will send you the dates so we can get together and you can meet my girlfriend! we work in the factory together

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:33:19 PM EDT 2010
@ JJ - yes very very good thing to say especially at her age and sisters....

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 02:33:30 PM EDT 2010
cool Jacqui

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:33:39 PM EDT 2010
Please-feel free to e-mail me at jsolowie@its.jnj.com if you need to pursue any of the points discyussed.

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:34:20 PM EDT 2010
Any other questions? Thoughts? Difficulties?

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:34:30 PM EDT 2010
HI Danni and good question.

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:34:49 PM EDT 2010
Yes, I have another couple here... 2 secs

Registered User helvelyn Mum to Emma type 1 dx 2003 now aged 6 years  (86.133.1.72) Tue Apr 06 02:34:50 PM EDT 2010
I currently tell Emma certain things are not negotiable but I do try and let her have a choice when I can, just hope it lays off but then other people say I give in to her too much, but my logic isat least 5 times a day we are not going to negotiate so if I give in over something little does it really matter....maybe when she is a teen I might have a different view

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:35:06 PM EDT 2010
Only the one that danni asked, same question for me to

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:35:27 PM EDT 2010
Yes-you should discipline them for not looking aftrer themselves. You're not disciplining them for having diabetes-you're discplini ng them for misbehaving. God gave them diabetes.

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:35:46 PM EDT 2010
@helvelyn I choose my 'battles' as well

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:36:04 PM EDT 2010
2 from Julie, the first one, Julie, (Mum to Louis dx 2003, now 15 years old):

Is it possible for children to think about things in relative terms or is some information simply too much for them to cope with e.g. the recent tragedies, complications.

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 02:36:24 PM EDT 2010
I have a bottom line they cannot negotiate. They know it and I know it. They still jump when I start counting down from ten though, so not sure if that will keep working as they get older!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:36:37 PM EDT 2010
When your kids mismanage, mostly the teens, they are actually asking for help. the more you treat mismanagement and irrespoonsibilty about the diabetes the more they will get the message that they have to do it and it's non-negotiable

Registered User Fi has 2 children with T1  (82.23.244.215) Tue Apr 06 02:36:41 PM EDT 2010
Can't remember what we were not to discuss lol! We have had a lot of difficulty with Daniel's fear of hypos at night which we have discussed with him as well as the diabetic team but seems to make no difference he still has the fear....in fact its getting catchy because Kirsty now has the same fear!! Fred and I also feeling the fear because it has gone on for three years now!

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:36:59 PM EDT 2010
Really? Wow. My daughter, after 10 years, still has no inclination of wanting to look after herself. She will do her bolus' or other medicine but only when prompted, she never ever remembers. She doesn' even hear the alarms on her sensor?

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:37:22 PM EDT 2010
As they get older you can think about taking pirvilieges away! It really works, so well, it's unbeliveable

Registered User Marisa (Scotland) Cameron, 14 dx aged 9  (93.97.131.117) Tue Apr 06 02:37:56 PM EDT 2010
Jacqui - you are a good and pateint mother - lol. i count down form five  LOL 

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:38:00 PM EDT 2010
We just hope it does Jacqui, I always wonder what I will do if Marc just says NO!

Registered User Fi has 2 children with T1  (82.23.244.215) Tue Apr 06 02:38:08 PM EDT 2010
Daniel is very good for a teenager....very routine with checking, injecting, eating etc....just the fear we can't seem to manage

Registered User Paula Mum of Jess, 3, Type 1 (Lancashire, UK)  (82.33.169.57) Tue Apr 06 02:38:22 PM EDT 2010
mine only get 3  Blush ...no wonder they never make it on time

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 02:38:34 PM EDT 2010
Jaqui and Marisa -we count to 3 lol !

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:38:48 PM EDT 2010
@FI: The best thing is for him to have a sleep over with all of us from CWD in October-we'll fix him  Grin  promise

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:39:04 PM EDT 2010
... we have 10...

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:39:14 PM EDT 2010
I think I would say to older teens that diabetes has taken away your insulin production but has not taken your life. You can have a big effect on how your life turns out

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:39:14 PM EDT 2010
That's an offer you can't refuse Fiona!

Registered User Fi has 2 children with T1  (82.23.244.215) Tue Apr 06 02:39:33 PM EDT 2010
Sounds good....but he did that last year and still the fear? CWD will have to think of something really good to overcome this fear...

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 02:39:44 PM EDT 2010
I wonder if sometimes as I feel so sorry for Lizzie I make too many allowances and she is a right pain to her brothers at times but I guess she would have been like this without diabetes and it is simply normal life and nothing to do with diabetes.

Registered User helvelyn Mum to Emma type 1 dx 2003 now aged 6 years  (86.133.1.72) Tue Apr 06 02:39:44 PM EDT 2010
sleepover sounds a great idea for the bigger ones

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:39:57 PM EDT 2010
There's omething so healing about being with other kids who have it-just being together for a few days really sets things right

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:40:01 PM EDT 2010
Fiona Do you leave drinks next to Daniels bed etc?

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:40:16 PM EDT 2010
and the meter etc?

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:40:35 PM EDT 2010
Yes I agree Joe

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:40:49 PM EDT 2010
I think we missed Julie's question...

Is it possible for children to think about things in relative terms or is some information simply too much for them to cope with e.g. the recent tragedies, complications.

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:40:56 PM EDT 2010
kid being together makes such a difference

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:40:59 PM EDT 2010
@JacquiE: yeah-but Lizzie is so smart and sensitive-she's probably working you pretty well! tell her I said TOUCHE!

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 02:41:05 PM EDT 2010
When both your kids have D it takes D out of the equasion and gives back the level playing field. We had 5 years with only one with D and the balance returned naturally when Joe was then diagnosed. Interesting isn't it?

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:41:09 PM EDT 2010
repeat the question again

Registered User Fi has 2 children with T1  (82.23.244.215) Tue Apr 06 02:41:11 PM EDT 2010
slightly off topic the new hamster we bought on the weekend died overnight...Daniel and Kirsty both worried that they went to bed fine and didn't wake up

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:41:44 PM EDT 2010
Like for the kids Joe, it is great for the parents to be together as well as we all understand each others emotions. We have a holiday coming up where a big group of us stay in a place together and its as much for the parents as the children. Its not like FFL nothing organised, just lots of fun and swapping of ideas.

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:41:47 PM EDT 2010
You tell that idiot thank you for confirming for you already knew-that there is no shortage of stupid. Clearly these kind of people are a a combination of stupid and sadistic at times, and I would protect my child as if someone were abusing them. Call them as many names as make you feel better and have your kids start screaming at them as well. They?re, as they say in the States, Knuckleheads!

Registered User Fi has 2 children with T1  (82.23.244.215) Tue Apr 06 02:42:03 PM EDT 2010
yes Daniel goes to bed with everything next to him...drinks, caprisun for hypos, equipment the lot...sometimes find it under his pillow in the morning!

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:42:19 PM EDT 2010
LOL

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:42:30 PM EDT 2010
Some information is too much for them, absolutely! Most kids, in their own ways, already know this stuff-don?t ask me how they know, but on their own, in their own intuitive ways, know how serious this whole thing is. I don?t think rasing the spectre of impending doom and death serves any purpose EXCEPT maybe as a relief for the parents. Meaning, be careful who the message is intended for and is it ylour stuff or their stuff that you?re talking about-important not to dump in order for you to feel better!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:42:48 PM EDT 2010
I meant to send that one, not the one I just sent before-SORRY!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:43:08 PM EDT 2010
No problem!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:44:01 PM EDT 2010
I think I need to think more about what is about me or Marc!

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 02:44:20 PM EDT 2010
I think that is true of both my two , Joe. They know and don't actualy want me to say it out loud. tom came so close to dying at diagnosis they ceratinly don't need any lessons on how close this D can get.

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:44:31 PM EDT 2010
Kids must know a lot more than we sometimes realise. They must know that they dont go to the hospital and have eye checks for no reason. Sasha knows that we go to prevent and treat any problems that arise

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:44:43 PM EDT 2010
@AI;leen: That is so important a question to probe, honestly, for yourself and for the sanity of your child!

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:45:27 PM EDT 2010
Jessica knows at 10 but not sure she understands, I think there is a difference.

Registered User Marisa (Scotland) Cameron, 14 dx aged 9  (93.97.131.117) Tue Apr 06 02:45:32 PM EDT 2010
When Cam has brought up the subject a couple of times in the past I have said - yes - it can happen but its NOT going to happen to you. He hasn't questioned that yet. I son't know how I would answer if he asked me how I could be so sure...

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:45:34 PM EDT 2010
Thanks Joe, and one I really have to think about!

"Is there a right age to talk about the dangers associated with type 1 diabetes"

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:45:50 PM EDT 2010
Scaring the kids will definitely NOT make them be more resposnible, I can promise you that!

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 02:45:56 PM EDT 2010
However, the fears that arose for Tom knowing this stuff at such an early age - and he did know it even as a toddler when as an adult I didn't know he could - it has taken technology, the right tools, which for us was cgms and the pump, to get him over it. We had to work at it purposefully.

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:46:08 PM EDT 2010
Sorry, that question below is from Debra is asking,(mum to Bella dx age 2 now age 4 pumping since March 09 using medtronic/sils and some sensors funded part time use and Phoebe Non D age 6)

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:46:29 PM EDT 2010
I ask again ... "Is there a right age to talk about the dangers associated with type 1 diabetes"

Registered User Fi has 2 children with T1  (82.23.244.215) Tue Apr 06 02:46:32 PM EDT 2010
Jacqui, just wondering if the balance comes when the whole family has D? Then we would all be worrying about the same thing? I remember Daniel saying now he feels part of the diabetes family when he was diagnosed...

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:46:39 PM EDT 2010
Yes-at every age is the right age-however, age appropriately, as you would discuss any other serious life issue with them.

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 02:46:43 PM EDT 2010
I think they just want to get on with their lives as normally as possible and I guess if they want answers to any questions diabtetes related or not we just have to be ready with them.

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:48:01 PM EDT 2010
Yup. Our joib is to carry the burden of fear, worry, anxiety and caring and make sure that they are as protected as possible-they'll learn what we know about life soon enough-why rush the process

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:48:04 PM EDT 2010
@ Joe when you say scaring the children can you elaborate? thanks

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:48:43 PM EDT 2010
my take on this is that you do pass on the information as you go along. Sometimes a situation presents itself and you need to explain. Before Sasha had her first eye screening tests I had to explain that having diabtes can effect the eyes so it was important to see if there were any problems to treat them early and to keep as good control as possible but avoiding serious hypos

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:48:45 PM EDT 2010
That's what parents are for: to worry and nag, so let's get to it with a passion Grin 

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:49:07 PM EDT 2010
lol!  Grin  I think we do!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:49:25 PM EDT 2010
Yes-talking to them aboiut the deatils of complications,is totally not the way to go. That's what i mean

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 02:49:32 PM EDT 2010
Now this I am good at  LOL 

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:50:12 PM EDT 2010
Like, if you don't take care of yourself, your legs will fall off-NOT THE WAY TO DO IT!

Registered User Danni T1 mum  (195.93.21.102) Tue Apr 06 02:50:20 PM EDT 2010
Joe...How do you encourage an 11 year old boy to take more responsibility when his principle coping strategy is denial?

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:50:28 PM EDT 2010
lol!

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:50:34 PM EDT 2010
I dont talk to Sasha about complications but she is aware that they cant happen

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 02:50:37 PM EDT 2010
I shall tell Elli I Joe's permission to nag with a passion

Registered User suek mum of sam 12 (type1) London  (90.214.151.98) Tue Apr 06 02:50:43 PM EDT 2010
I felt I had to tell Sam about the long term complications when DUK had their hard hitting campaign. Would rather I told him than he see it on a poster

Registered User Fi has 2 children with T1  (82.23.244.215) Tue Apr 06 02:51:02 PM EDT 2010
can or can't happen JJ?

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:51:07 PM EDT 2010
yep get it!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 02:51:19 PM EDT 2010
good question Danni

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:51:19 PM EDT 2010
Good, nagging, pestering, reminding, haraneing, annoying-all these things are in your parent job descriptions!

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:51:34 PM EDT 2010
CAN I meant Blush 

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:51:37 PM EDT 2010
Julie has a second question (Mum to Louis dx 2003, now 15 years old)

If we give our children too much information is it possible that instead of encouraging them to look after themselves they become almost fatalistic and overwhelmed by fear.

I guess the answer is just to find the balance so not to become overwhelmed with fear?

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:51:53 PM EDT 2010
I am always doing that missing of the T

Registered User Fi has 2 children with T1  (82.23.244.215) Tue Apr 06 02:52:04 PM EDT 2010
i nag day in and day out....its very tiring Confused 

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 02:52:10 PM EDT 2010
I'm afraid I often say 'DUK are talking about undiagnosed Type 2' when we see their posters.

Registered User Paula Mum of Jess, 3, Type 1 (Lancashire, UK)  (82.33.169.57) Tue Apr 06 02:52:20 PM EDT 2010
eek, think Danny would say I've let those cross the boundary into the wife job descriptions too!  Wink 

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:52:25 PM EDT 2010
To Danni: How do you get him to clean up his room? Do his homework? be nice to siblings? be respectful to adults? Use the same techniques and strategies that work in every other area of your life.

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 02:52:34 PM EDT 2010
Yippee - I can do all those things - at last a job I am 100% qualified for!

Registered User Marisa (Scotland) Cameron, 14 dx aged 9  (93.97.131.117) Tue Apr 06 02:52:40 PM EDT 2010
ok - so what I'm getting form this is that we should be ready to discuss stuff with them when they wasnt to discuss it, be reassuring but not scare them too much, and be uncompromising in getting them to do the self care

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:53:08 PM EDT 2010
Some information is too much for them, absolutely! Most kids, in their own ways, already know this stuff-don?t ask me how they know, but on their own, in their own intuitive ways, know how serious this whole thing is. I don?t think rasing the spectre of impending doom and death serves any purpose EXCEPT maybe as a relief for the parents. Meaning, be careful who the message is intended for and is it ylour stuff or their stuff that you?re talking about-important not to dump in order for you to feel better!

Registered User Marisa (Scotland) Cameron, 14 dx aged 9  (93.97.131.117) Tue Apr 06 02:53:12 PM EDT 2010
want to discuss it even - fingers faster than the old brain... Rolling Eyes 

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:53:15 PM EDT 2010
I think that being positive and praising kids for lots of things in life, not just diabetes related can help give them confidence

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:53:32 PM EDT 2010
Yes marissa! exactly!

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 02:53:39 PM EDT 2010
JD - our optician told me that most eye problems she sees are from undiagnosed type 2's so thats what I told Lizzie.

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:54:00 PM EDT 2010
Agree JJ and Marisa as wel

Registered User Danni T1 mum  (195.93.21.102) Tue Apr 06 02:54:15 PM EDT 2010
thanks Joe Smile 

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:54:26 PM EDT 2010
Most problems are from people that DON'T TAKE CARE OF THEMSELVES!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:54:31 PM EDT 2010
I think you have maybe answered my questions in response to others (I need to read back and take it all in... my questions are.. I don?t know what the balance is between being real and not over-frightening Marc. Is it enough to tell teens of his age once about possible complications or the recent deaths or should you remind them every so often? Being a typical teen he doesn?t appear to take much in!

Registered User Marisa (Scotland) Cameron, 14 dx aged 9  (93.97.131.117) Tue Apr 06 02:55:32 PM EDT 2010
I think the not taking things in is a teenage self defebce mechanism sometimes  Rolling Eyes 

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:55:53 PM EDT 2010
and selective hearing!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:56:13 PM EDT 2010
I don't think that's the way to go with teens or any kids for that matter. I think you have to let them know that taking care of themselves is non-negotiable and that you are happy to tralk with them about any and all of this stuff at their level of maturity.

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:56:18 PM EDT 2010
they act daft when it suits them!  Razz 

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:56:35 PM EDT 2010
@marissa and part of the growing up and trying to be excepted? what happens when they feel they are so different from their peers?

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:56:39 PM EDT 2010
My other concern is he believes his management is much better than many others he knows. (and from what he says it is) I think he does very well and don?t have concerns, but I do worry that one day he may think he?s doing well just because he is doing better than kids who hardly ever test or take insulin when they should.

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:56:59 PM EDT 2010
Yes teens think that they are invincible whether it comes to driving fast cars or looking after themselves. I have a 21 year old (non D) who changed overnight from a selfish teen into a wonderful young lady

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:56:59 PM EDT 2010
It's not a self defense machanism-teens are just brain dead from age 12-17 :-)

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:56:59 PM EDT 2010
I say that to Jessica often 'we have no choice in this, we have to look after the diabetes'

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 02:57:05 PM EDT 2010
Yes, I think teens hear things. They just don't 'show' you that they hear. I think thats why some parents feel the need to crank up the fear level and it is never useful. Same goes for school too.

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:57:32 PM EDT 2010
Two more kids to go........

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 02:57:40 PM EDT 2010
Look, you can belive what ever you want-the numbers don't lie and they are your compass in the land of management!

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 02:57:56 PM EDT 2010
@ JJ apparantly that happened to me too !!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:57:58 PM EDT 2010
And, we're all entitled to our delusions, aren't we? :-)

Registered User Marisa (Scotland) Cameron, 14 dx aged 9  (93.97.131.117) Tue Apr 06 02:58:02 PM EDT 2010
12-17? Oh good - one year to go with my older son then - lol

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 02:58:23 PM EDT 2010
Yep what a great analogy, a compass, will remember that one.

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 02:58:38 PM EDT 2010
joe said "teens are just brain dead from age 12-17" I have notice that too sometimes  Smile  Grin 

Registered User helen i have a child who is 12years old,diagnosed withtype 1 a year ago  (195.93.21.102) Tue Apr 06 02:58:43 PM EDT 2010
my son is still not accepting of the fact that he has diabetes

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 02:58:44 PM EDT 2010
I say the same thing - it has to be done so lets just do it and then we can do some fun stuff, no point in moaning - we don't moan about brushing our teeth every day but that has to be done too - I sound awful now sorry but this what I say!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:58:47 PM EDT 2010
Make sure he wants to leave home-so start stopping with doiung his laundry right now or he'll never leave :-)

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 02:59:06 PM EDT 2010
So it's just a case of saying this is how I believe it should be done and make sure he follows through... I only have one more year phew! Maybe I can relax more when he's 18!!

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 02:59:30 PM EDT 2010
I like to moan as i do it, JacquiE-chacun a son gout :-)

Registered User helen i have a child who is 12years old,diagnosed withtype 1 a year ago  (195.93.21.102) Tue Apr 06 02:59:35 PM EDT 2010
he refuses to do his own injections which makes life difficult because im on my own with him

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 03:00:20 PM EDT 2010
helen, let's talk off line about that e-mail at jsolowie@its.jnj.com

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 03:00:43 PM EDT 2010
Other kids with D encourage injections etc. My youngest started injecting when his brother was diagnosed. healthy competition!

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 03:00:44 PM EDT 2010
@Jacqui I have seen Elli do this, which suprised me as she used to be very responsive to anything we said to her. I have caught myself getting more cross as she seemed to be oblivious to what I was trying to get accross. But when I tried the say-it-once-calmly-and-then-leave-it-approach she went away and the next day came up with a great solution.

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 03:00:47 PM EDT 2010
HI Joe I just wanted to say thank you for sparing time to come and talk to us all in the UK

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 03:00:54 PM EDT 2010
Goodness, that's time up, that went fast! Joe has a plane to catch...

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 03:00:55 PM EDT 2010
@ Helen, give him time he'll get there. A year is not long, he was ok for 11 of them and diabetic for one. He'll get there. Sounds like he needs a pump. Take Joe up on his offer and chat with him about it.

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.100) Tue Apr 06 03:01:08 PM EDT 2010
Guys-I gotta go and catch a plane. Big hugs to you all, or y'all, and hoping to see al of you in October :-) thank you for being so open and wonderful

Registered User Marisa (Scotland) Cameron, 14 dx aged 9  (93.97.131.117) Tue Apr 06 03:01:19 PM EDT 2010
Thank you Joe!

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 03:01:20 PM EDT 2010
Thanks Joe

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 03:01:22 PM EDT 2010
I am sure that you have given us quite a lot to think about and discuss further

Registered User Joe chat discussion leader,diabetes nurse, famiuly therapist, type 1 49 years  (148.177.0.101) Tue Apr 06 03:01:32 PM EDT 2010
Bye Bye everybody!

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 03:01:32 PM EDT 2010
Yes, Joe, thanks so much, We got lots of advice and it's really appreciated

Registered User Paula Mum of Jess, 3, Type 1 (Lancashire, UK)  (82.33.169.57) Tue Apr 06 03:01:34 PM EDT 2010
thanks joe!

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 03:01:42 PM EDT 2010
Thanks for you time Joe. Much appreciated  Smile 

Registered User Danni T1 mum  (195.93.21.102) Tue Apr 06 03:01:45 PM EDT 2010
Bye Joe thank you  Wink 

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 03:01:48 PM EDT 2010
thanks Joe really enjoyed and got a lot out of it wish I was at fFi... have a lovely flight!!

Registered User alexmum mum of 10 yr old  (86.18.86.146) Tue Apr 06 03:01:52 PM EDT 2010
Thanks Joe

Registered User Fi has 2 children with T1  (82.23.244.215) Tue Apr 06 03:01:56 PM EDT 2010
bye Joe!

Registered User helvelyn Mum to Emma type 1 dx 2003 now aged 6 years  (86.133.1.72) Tue Apr 06 03:01:56 PM EDT 2010
bye have a safe trip

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 03:01:57 PM EDT 2010
Thanks Joe! I'm off to the beach. See you all soon.

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 03:02:07 PM EDT 2010
Have a pleasant journey Joe, take care

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 03:02:11 PM EDT 2010
Have a good flight and well see you in October thanks again

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 03:02:14 PM EDT 2010
thanks Joe, safe travelling

Registered User Kate Mum to 7 year old with type 1  (81.153.237.149) Tue Apr 06 03:02:20 PM EDT 2010
Thanks Joe

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 03:02:30 PM EDT 2010
have a great flight Joe. Thanks for this great chat. Jacqui

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 03:02:32 PM EDT 2010
@JD -  Cool 

Registered User suek mum of sam 12 (type1) London  (90.214.151.98) Tue Apr 06 03:02:34 PM EDT 2010
thanks joe

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 03:02:36 PM EDT 2010
beach? Its cold and dark?

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 03:02:56 PM EDT 2010
I am off to kiss daughter and feed husband - will someone be able to post the transcript of this on the list in the next day or so please?

Registered User Marisa (Scotland) Cameron, 14 dx aged 9  (93.97.131.117) Tue Apr 06 03:03:09 PM EDT 2010
Yes - I was wondering about the beach???

Registered User Jacqui D mum of Tom dx 2000, aged 18 months and Joe, dx 2005, aged 8 years; both pumping medtronic with cgms  (82.71.33.204) Tue Apr 06 03:03:16 PM EDT 2010
There's a pub on the beach and the sun is setting. Glass half full time Jackie!!! lol

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 03:03:26 PM EDT 2010
@Aileen - that was really interesting...thanks for getting this organised  Grin 

Registered User helvelyn Mum to Emma type 1 dx 2003 now aged 6 years  (86.133.1.72) Tue Apr 06 03:03:48 PM EDT 2010
more alcohol?

Registered User Fi has 2 children with T1  (82.23.244.215) Tue Apr 06 03:03:55 PM EDT 2010
taken me this long to realise why i didn't know what was happening..it is just showing the last 20 messages!! so didn't see start of thread lol!

Registered User Marisa (Scotland) Cameron, 14 dx aged 9  (93.97.131.117) Tue Apr 06 03:03:58 PM EDT 2010
Ah - a pbu! Er - what sun - it certainly isn't out up here!

Registered User Becca Mum to Rose, aged 7, dx @ 3 (Essex)  (86.22.68.137) Tue Apr 06 03:04:01 PM EDT 2010
Thanks Aileen Grin 

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 03:04:06 PM EDT 2010
it pitch black here and wet. Pub on the beach setting sun..........have a drink on me

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 03:04:34 PM EDT 2010
Enjoy Jacqui x

Registered User Becca Mum to Rose, aged 7, dx @ 3 (Essex)  (86.22.68.137) Tue Apr 06 03:04:35 PM EDT 2010
that sounds wonderful Jacqui

Registered User helen i have a child who is 12years old,diagnosed withtype 1 a year ago  (195.93.21.102) Tue Apr 06 03:04:38 PM EDT 2010
what was joes email address i didnt get it

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 03:04:39 PM EDT 2010
Yep thanks Aileen, see you can move mountains woman, Scotland is nothing compared to what you can do xx

Registered User debrayoyo mother to type 1 daughter  (91.104.171.67) Tue Apr 06 03:04:41 PM EDT 2010
Night all must see hubby and kids...if you discuss more let me know !!! like my new mantra: "numbers are a compass in the land of management" lol x

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 03:04:47 PM EDT 2010
Thanks Aileen and Jackie. Seemed really helpful.

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 03:04:54 PM EDT 2010
I only helped Jackie  Blush 

Registered User angiej UK Mum to Alice 7, dx age 2, pumping age 5  (82.71.55.42) Tue Apr 06 03:05:02 PM EDT 2010
jsolowie@its.jnj.com

Registered User Becca Mum to Rose, aged 7, dx @ 3 (Essex)  (86.22.68.137) Tue Apr 06 03:05:26 PM EDT 2010
Thanks Jackie  Smile  Grin 

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 03:05:37 PM EDT 2010
Well you can read the transcripts later and see all my spelling errors Smile 

Registered User Marisa (Scotland) Cameron, 14 dx aged 9  (93.97.131.117) Tue Apr 06 03:05:38 PM EDT 2010
Yes - thank you Jackie and Aileen. I missed the beginning - but the end was really useful.

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 03:05:40 PM EDT 2010
do you wan to move to the parents room?

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 03:05:43 PM EDT 2010
Thanks Jackie

Registered User helen i have a child who is 12years old,diagnosed withtype 1 a year ago  (195.93.21.102) Tue Apr 06 03:06:05 PM EDT 2010
thanks angie

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 03:06:05 PM EDT 2010
Aileen - thanks for this - Jo is so great - such sensible advice and being type 1 himself he knows what he is talking about. Must dash arsenal just scored against barcelona house is in uproar never heard so much screaming!

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 03:06:21 PM EDT 2010
Thanks to Aileen for compliling the questions etc while I recovered from my Man Flu

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 03:06:38 PM EDT 2010
Which I still have by the way LOL

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 03:07:02 PM EDT 2010
must go for a cuppa now

Registered User Fi has 2 children with T1  (82.23.244.215) Tue Apr 06 03:07:09 PM EDT 2010
Yes thanks ladies! See you in the UK next?

Registered User JJ Mum of Sasha 15 UK England  (80.177.15.64) Tue Apr 06 03:07:10 PM EDT 2010
see some of you later

Registered User Jacqui E Mum to Lizzie age 11 dx 9/08 also coeliac, James 9 and Matthew 6 husband Cliff  (90.193.172.57) Tue Apr 06 03:07:34 PM EDT 2010
get well soon Jackie

Registered User helvelyn Mum to Emma type 1 dx 2003 now aged 6 years  (86.133.1.72) Tue Apr 06 03:07:43 PM EDT 2010
Poor JJ and your man flu, look after yourself

Registered User Liz Mum to Elli aged 14 dx 11/2002 using Veo and sensors  (86.7.28.156) Tue Apr 06 03:07:52 PM EDT 2010
Hope yoiu are feeling better soon JAckie. Going for tea now!

Registered User helvelyn Mum to Emma type 1 dx 2003 now aged 6 years  (86.133.1.72) Tue Apr 06 03:08:12 PM EDT 2010
a cuppa though, we don't do cuppas on here...alcohol or nothing

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 03:10:44 PM EDT 2010
Why are there still 22 users. Are you all doing what I am and hanging on in just in case.......

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 03:10:46 PM EDT 2010
I think there is lots to take in and digest! We got through a lot, but never enough time

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 03:10:58 PM EDT 2010
Ah now 16, ok I'm off now as well........

Registered User Adrienne Mum to 10 yr old girl, pancreas removed at birth, pumping  (87.112.93.88) Tue Apr 06 03:11:17 PM EDT 2010
Oooo up to 17, someone can't decide. x

Registered User Aileen (Scotland) Mum to Marc, 17 years old  (81.131.110.103) Tue Apr 06 03:11:40 PM EDT 2010
lol, no one is in the parents room... come to it

Registered User Danni T1 mum  (195.93.21.102) Tue Apr 06 03:21:34 PM EDT 2010
i'm still her but not here!

Registered User Danni T1 mum  (195.93.21.102) Tue Apr 06 03:22:05 PM EDT 2010
u all going!? lol Bye then  LOL 

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