advertisement
 

  Back to Chat Social Support

Social Support

On Wednesday, January 17, 2007, Dr. Wendy Rapaport joined us for a special chat about social support.

Registered User Moderator   (server) Wed Jan 17 08:00:00 PM EST 2007
Our chat about Social Support with Dr. Wendy Rapaport starts at 9pm Eastern.

Registered User valerie matts mom dx'x sunday afternoon  (69.130.166.163) Wed Jan 17 08:01:55 PM EST 2007
my secret fear is the teen years and when he becomes defiant and we dont have the control.... not like its not a struggle with him now. But he is small  LOL 

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 08:11:29 PM EST 2007
Valerie, how old is your son?

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 08:16:34 PM EST 2007
It is very difficult to predict how your child will behave as a teen. From the diabetes perspective, our daughter has done all that we have ever expected, maybe more. Sure, we had the early teen years when she'd forget to bolus (she was then and now on a pump) for breakfast, but she eventually started doing it and has done very well. My greatest fear was when she moved to college in Sep. 2005. She almost always checks her BG during the night (of course, at her age, bedtime is often 2 a.m. Rolling Eyes ). I do still have to ask repeatedly if she needs supplies at school. Once, last spring, I had to drive test strips to her in the middle of the week. It's not far, but she had been home and just "forgot."
I will check back in 30 min. to see if anyone else is here.

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 08:17:58 PM EST 2007
I have heard of teens who just don't want to take care and their parents are desperate. It's impossible to say what your child will do.

Registered User Hot stuff Love sports  (75.162.225.117) Wed Jan 17 08:36:47 PM EST 2007
Wona chat

Registered User Moderator   (server) Wed Jan 17 08:50:00 PM EST 2007
Our chat about Social Support with Dr. Wendy Rapaport starts in 10 min in the 'Social Support' room.

Registered User Billetdeaux CWD Events  (69.213.80.59) Wed Jan 17 08:56:06 PM EST 2007
Hey Brenda - I see the chat room is up and working. No need for side room 2 tonight! Smile 

Registered User Paige's Dad (KS) Dad of Paige, 8, Diagnosed October 10th, 2006, Pumping  (70.252.172.18) Wed Jan 17 08:58:05 PM EST 2007
good evening Laura and Brenda

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 08:58:05 PM EST 2007
Good evening. I see people are worrying in advance!!! about their children growing up!

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 08:58:43 PM EST 2007
Hot stuff isn't worrying LOL 

Registered User Billetdeaux CWD Events  (69.213.80.59) Wed Jan 17 08:58:58 PM EST 2007
Hey Mike - Hi Wendy. Ellen! Grin 

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 08:59:16 PM EST 2007
You mean ellen that you have stopped worrying as much! because it is actually here!

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 08:59:52 PM EST 2007
I mean the kid below who claimed to be "hot stuff" isn't worrying about anything

Registered User Paige's Dad (KS) Dad of Paige, 8, Diagnosed October 10th, 2006, Pumping  (70.252.172.18) Wed Jan 17 09:00:09 PM EST 2007
Maybe I look at it wrong, I quit worrying a long time ago, just take things as they come and try to solve them

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:00:27 PM EST 2007
Ellen has been a specialist in positive reinforcement for what your kids actually do

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:00:56 PM EST 2007
well your child isn't worrying"APPARENTLY" TO you

Registered User green day green day rocks  (172.130.251.89) Wed Jan 17 09:01:37 PM EST 2007
can kids come in here

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:01:54 PM EST 2007
I think KS that you have a great attitude..worrying is a "defense" that isn't productive. Tho a "little bit of worry is sometimes an impetus to problem solving

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:02:04 PM EST 2007
only if those kids want to participate in a meaningful chat Smile 

Registered User green day green day rocks  (172.130.251.89) Wed Jan 17 09:02:14 PM EST 2007
 Confused 

Registered User Billetdeaux CWD Events  (69.213.80.59) Wed Jan 17 09:02:25 PM EST 2007
HI Green Day - This isn't a kids chat room, but you are welcome to stay and talk with Dr. Wendy and whomever else joins us Smile 

Registered User green day green day rocks  (172.130.251.89) Wed Jan 17 09:02:31 PM EST 2007
ok

Registered User green day green day rocks  (172.130.251.89) Wed Jan 17 09:02:53 PM EST 2007
kool

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:02:53 PM EST 2007
Paige's dad: is Paige an only child? Just curious because I find it hard not to worry about all three of our kids!

Registered User Billetdeaux CWD Events  (69.213.80.59) Wed Jan 17 09:03:02 PM EST 2007
How about pre-emptive worrying? Sam is going to college next year... Eek 

Registered User green day green day rocks  (172.130.251.89) Wed Jan 17 09:03:07 PM EST 2007
oh will im soory

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:03:16 PM EST 2007
green day what is on your mind?

Registered User ms   (205.188.116.12) Wed Jan 17 09:03:36 PM EST 2007
Hi. It has been a while since I have been in, but... Ellen lured me  Wink 

Registered User green day green day rocks  (172.130.251.89) Wed Jan 17 09:03:41 PM EST 2007
i willhave to talk 2 u tomorow

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:03:51 PM EST 2007
I think worrying that triggers planning and anticipation is good

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:03:55 PM EST 2007
Hello....
Wendy, how can parents find other psychologists or counselors who know something about diabetes? Even our local university ped endo practice didn't have much to offer in the way of referrals....

Registered User JewlB Mother of 15 year old pumper Brendan  (142.167.72.252) Wed Jan 17 09:04:00 PM EST 2007
Hi, Wendy. It's me, Julia from New Brunswick Canada. Ellen just told me you were visiting the chat room so even though I haven't been here in years, I thought I would return for the evening.

Registered User green day green day rocks  (172.130.251.89) Wed Jan 17 09:04:02 PM EST 2007
its my bed time

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:04:21 PM EST 2007
ms where have you been? needing to be lured in

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 09:04:37 PM EST 2007
I was pretty surprised to find out there's NO support group for students with type 1 on my son's campus. Tonight he told me he wished he knew another student with diabetes there.

Welcome MS.

Registered User green day green day rocks  (172.130.251.89) Wed Jan 17 09:04:58 PM EST 2007
good night every body

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:05:00 PM EST 2007
We've dealt with several who obviously did NOT understand, and it was a real problem (eg, the guy who insisted that Dave should be allowed to drive even if he wouldn't test his blood sugar.)

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:05:05 PM EST 2007
Oh hello JewlB..how nice to "hear" from you

Registered User Paige's Dad (KS) Dad of Paige, 8, Diagnosed October 10th, 2006, Pumping  (70.252.172.18) Wed Jan 17 09:05:09 PM EST 2007
Maybe I do worry, just don't let it dictate me I guess, in this instance, I've just made up my mind that we have to take things as they come and do what is necessary, i.e., we have a high sugar, we do a correction, we have a pattern of highs, we change bolus rate, that's what I meant

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:05:09 PM EST 2007
Hi MS Smile 

Registered User green day green day rocks  (172.130.251.89) Wed Jan 17 09:05:25 PM EST 2007
 Wink 

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:05:54 PM EST 2007
I don't think Marissa has investigated type 1's on campus, but she thinks there are a few others in the nursing program.

Registered User ms   (205.188.116.12) Wed Jan 17 09:06:00 PM EST 2007
ellen, I think that the college age, 20's and 30's group is often the more overlooked group!

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:06:20 PM EST 2007
Judith I agree with you that it is hard to find people..but it is interesting that you became aware of the incorrect "advice"..how did you find that out? did your child tell you or did you hear it in the therapist office

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:06:54 PM EST 2007
By the way,,,I am always happy to "consult" with therapists on the details of diabetes...

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:07:57 PM EST 2007
ms I agree with the overlooked group in the 20's...until you get your child having another peer or spouse partner interested as you are! in your child...there is no one "supervising" unless parents figure out a way to stay "collaborative" with their child

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:08:32 PM EST 2007
Hi, There are 10 type 1's on Reann's college campus (around 600 students) She knows several of them. But they don't really have a support group either.

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:08:53 PM EST 2007
It is complicated to find other type 1's on campus or anywhere! because of the "false" Hippa laws of privacy

Registered User Jane Rachel, 5, pumping  (210.86.32.170) Wed Jan 17 09:08:55 PM EST 2007
Hi  Smile 

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:09:10 PM EST 2007
Paige's Dad--I just noticed that you have not been dealing with this as long as most of us here tonight. Puberty can make diabetes a bit more challenging, then there are the usual teen issues (peer pressure, dating, jobs, school, etc).

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:09:29 PM EST 2007
Hi Jane

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:09:43 PM EST 2007
Beth you might call the counseling dept on campus and get a grad student to do an outreach "group"

Registered User ms   (205.188.116.12) Wed Jan 17 09:10:02 PM EST 2007
I think in the college age, "students" are so focused on other things that they are not actively going to reach out and attend the support groups that may be in communities... and when they do... they are the youngest there - which for some may feel awkward

Registered User Judith   (64.184.81.154) Wed Jan 17 09:10:32 PM EST 2007
The counselor told me, in Dave's presence, that I was being over-protective not to allow him to drive whether he was testing or not! I tried to explain to the guy that it was like condoning DUI, but he "didn't get it"

Registered User ms   (205.188.116.12) Wed Jan 17 09:10:42 PM EST 2007
I went to my first "support group" when I was a junior in college - by far the youngest there

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:10:55 PM EST 2007
I don't think Reann would attend at this point anyway.

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:11:10 PM EST 2007
Yes and Brenda and paige's dad..I think puberty is the time that blood sugars are harder to control..and then there is shame or aggravation and frustration that you lost your "competency" at dealing with control vs that it is really just harder

Registered User Paige's Dad (KS) Dad of Paige, 8, Diagnosed October 10th, 2006, Pumping  (70.252.172.18) Wed Jan 17 09:11:39 PM EST 2007
Brenda, I just have a different attitude I think, when we get to those points I will handle them then, I see no point in letting it control me now, after spending a couple of weeks last January fighting for my life, I know that one of us may not be here then, so I just live in the present and not so much in the future

Registered User Jane Rachel, 5, pumping  (210.86.32.170) Wed Jan 17 09:12:03 PM EST 2007
We don't have any social support here  Frown  I'd love to have something for when rachel is older - where to start??

Registered User ms   (205.188.116.12) Wed Jan 17 09:12:28 PM EST 2007
i think many college students have other things on their minds... that a group often does not take precedence over other things

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:12:38 PM EST 2007
KS what happened!!!

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:13:09 PM EST 2007
I agree ms

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:13:20 PM EST 2007
Jane grab yourself some other mom's ...thru your doctor...and find a therapist or nurse who is willing to help run a group

Registered User Judith   (64.184.81.154) Wed Jan 17 09:13:57 PM EST 2007
Maybe find some sheep with d, Jane? Grin 

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:14:19 PM EST 2007
I know the group doesn't take precedence...but I think we still have some influence over our kids in college...like paying for their tuition!!!! flying them home...they can get freedom and still follow some of your suggestions

Registered User Judith   (64.184.81.154) Wed Jan 17 09:14:29 PM EST 2007
I think the whole subject of diabetes is generally pretty far down the list of things college age kids think about!

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 09:15:06 PM EST 2007
Or do you think because people in that phase of early adulthood are so happy not to have anyone "in their face" about the diabetes, they don't seek the support - but may really benefit from it without having a parent around?

Registered User Paige's Dad (KS) Dad of Paige, 8, Diagnosed October 10th, 2006, Pumping  (70.252.172.18) Wed Jan 17 09:15:07 PM EST 2007
Long story short Wendy, I had gall bladder removed, then they did an endoscopy and caused me to get pancreatitis, spent two weeks in severe pain and fighting for my life to get out, my little girl would come and see me everyday and couldn't understand why I couldn't come home, made me understand how our lives can change in a heartbeat, or end that fast as well

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:15:31 PM EST 2007
That would be a problem for me Wendy as Reann is paying for everything herself and still helping me financially a bit.

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 09:15:31 PM EST 2007
Can't it be lonely dealing with a chronic illness like diabetes on your own?

Registered User JewlB Mother of 15 year old pumper Brendan  (142.167.72.252) Wed Jan 17 09:15:40 PM EST 2007
In Canada (where I worked as a Counsellor in a University)students who identified with any chronic health issues were always told they should seek services at the medical centre. They didn't like being 'medicalized' and so often retreated altogether. Even if they had of gone to the med center, there were no support groups for them. I recommended one student ask to use the counselling centre resouces and post and invite for any students with D to join him. He loved the idea but the university told him he was not allowed - only 'professionals' can use the facility.

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:15:53 PM EST 2007
Judith i think that you should not give up challenging the incorrectness of the therapists voice..(I would be happy to be helpful with that

Registered User Jane Rachel, 5, pumping  (210.86.32.170) Wed Jan 17 09:16:21 PM EST 2007
I am running a stall tomorrow to raise money for our youth group. I have contacted all our group and heard back from NONE! I don't know if sheep get D Judith?? Blush 

Registered User ms   (205.188.116.12) Wed Jan 17 09:16:26 PM EST 2007
Ironically, during my college years was time that I believe I was most focused on diabetes - but I am funny like that

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:16:42 PM EST 2007
Beth you should be impressed with Reann!..and still not too guilty to insist or at least not give up prematurely on adding diabetes to the list she does well

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:16:46 PM EST 2007
Ellen, I know in the past Reann and one of the girls used to get stuff to treat lows from each other (they were jon mates) and also to borrow new needles or strips at times.

Registered User ms   (205.188.116.12) Wed Jan 17 09:16:50 PM EST 2007
and definitely not in my first year - that was a lot of change and adjustment!

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:17:54 PM EST 2007
By the way..I think it is still good for your kids in college to continue their appointments on all their breaks with their "old" health care team before they transition onto their "adult providers

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:18:12 PM EST 2007
She has been doing great this year. Her fiance really keeps an eye on her/

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:18:40 PM EST 2007
By the way Ms..maybe 20% of freshman kids have "subclinical" depression adjusting to college (and that's those who don't ave diabetes)..so counseling is such an important thing

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:19:32 PM EST 2007
As Beth says...finace's or best friends can begin to helpin the transition of your "parenting"

Registered User Paige's Dad (KS) Dad of Paige, 8, Diagnosed October 10th, 2006, Pumping  (70.252.172.18) Wed Jan 17 09:19:42 PM EST 2007
Plus I have to "know" in my mind that they will find a cure by the time my daughter is a teen Grin 

Registered User ms   (205.188.116.12) Wed Jan 17 09:19:50 PM EST 2007
guess i the boat on receiving counseling - may have done me some good Wink 

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 09:20:12 PM EST 2007
Interesting about keeping appointments with the ped endos...can you explain more about that Dr Wendy?

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:20:34 PM EST 2007
I agree with ellen that chronic illness is lonely if you are not feeling understood by people around you..and your health careteam..

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:21:18 PM EST 2007
Her college friends were great about the D. Got her to the hospital a couple of years ago and stayed with her till they were able to reach me and I got there. Still were there several hours a day.

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:22:03 PM EST 2007
Ellen what part oare you meaning..I do call the endos to be a team member with them..so they can feel more competent in dealing with "passive" or angry patients..and I "chase" parents sometimes to bring their kids in! because parents burnout too

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:23:07 PM EST 2007
Dr. Wendy, I think Ellen is asking why you recommend we stick with peds endos thru college.

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:23:54 PM EST 2007
KS of course the cure is important..but so is the quality of your life and your child's life..while we are "waiting"...we can't make promises and it is difficult for parents not to have that powr to protect

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 09:23:54 PM EST 2007
Zack now sees an adult endo on his college campus. I thought that meant he wouldn't necessarily see his pediatric endocrinologist as his doctor. Of course she's a goddess and I'd love for him to see her. I don't know if under managed care a) if he can see her at this age of 19 and b) if he's allowed to have the care of two different specialists

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:24:16 PM EST 2007
Marissa still sees her peds endo, but we are considering switching soon. We wanted Marissa to try Symlin and it took the peds endo a couple of months to research it before he'd agree to it. It's not approved for peds so he didn't know that much about it.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:24:27 PM EST 2007
Despite (because of?) my urgings, Dave didn't register with the university disability office. When he missed lots of school due to diabetes-related hospitalizations and flunked out, he had no real recourse.

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:24:48 PM EST 2007
I think sticking with ped endos while college starts is to give that security and familiarity to our children

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:25:33 PM EST 2007
We are VERY lucky: our endo keeps his "kids" when they grow up. Not sure how many more years until he'll retire, but until then, Dave's willing to drive 160 miles each way to see him.

Registered User Paige's Dad (KS) Dad of Paige, 8, Diagnosed October 10th, 2006, Pumping  (70.252.172.18) Wed Jan 17 09:25:36 PM EST 2007
I understand that, but it also goes back to my living in the present, the teen years are so far ahead of us, why worry that far out, there may not be anything to worry about by that time

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:26:05 PM EST 2007
Yes I think kids (adults) too are okay with "avoiding" difficult things

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 09:26:34 PM EST 2007
I do see where the ped endo is far more nurturing even though the adult endo is bright

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:26:36 PM EST 2007
But, Ellen, isn't Zack about 3 hours from home? I think might make a difference. Marissa is only 40 min. from here and she's actually 5 min. or so from the peds. endo. I have not accompanied her to her last three visits. I think its time for me to let her learn to deal with this on her own.

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:26:40 PM EST 2007
Brenda you wanted the symlin tried for which reasons

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:27:17 PM EST 2007
Reann saw an adult endo last summer for the first time. Her ped endos had a long waiting list and there aren't many in the area. They asked her to switch to an adult endo, so they could take a child as a patient.

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:27:34 PM EST 2007
You know Brenda..you can "phase" out very very slowly..you stay interested and have conversations regularly

Registered User ms   (205.188.116.12) Wed Jan 17 09:28:17 PM EST 2007
Dr. Rapaport, out of curiosity, what area are you in?

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:28:36 PM EST 2007
Maybe the peds people are somwhat inhibited about the kids growing..they could see your child and the new "kid" together..would be a nice pairing Beth!

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:29:12 PM EST 2007
Marissa wanted to try to prevent post-breakfast BG spikes. She took it about 6 times and got sick (vomiting) the last time she tried it. That was about a month ago. She is interested in trying it again. Although her A1c is considered quite acceptable, she wants to lower it and sees lowering the post-breakfast spikes as one way to do it.

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:29:20 PM EST 2007
I wouldn't want to have your kids "give up" the doctors they have good relationships with until they have connected in nice ways to the new "team" ..some overlap makes sense

Registered User ms   (205.188.116.12) Wed Jan 17 09:29:48 PM EST 2007
I think most important is for the "child" to know that you are there for them as they transition, and that you are there if they need a break from carrying the extra load

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:30:03 PM EST 2007
ms i am in boca raton from nov to May and rockland Maine the rest of the year

Registered User ms   (205.188.116.12) Wed Jan 17 09:30:46 PM EST 2007
ah...

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:30:52 PM EST 2007
Yes, it would have been great--for the child and for Reann. We have to drive at least 2 hours no matter where she goes. Went to the ped endo in Omaha, NE. Now she sees an adult endo in Sioux Falls, SD. This is closer for her go get to from school, so I guess it is okay.

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:30:58 PM EST 2007
I think all people with diabetes..no matter what age need "buddies" /collaborators (not bosses)

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:32:19 PM EST 2007
I have to say that I was extremely worried when Marissa was planning to live at school. I had kept extensive BG records from Sep 1989 thru March 2005, I think. I only stopped keeping them when I broke my wrist and could not write. It actually gave me the opportunity to become less obsessive about the record keeping, which served as the first step to letting Marissa go off to college. That was about the ONLY positive thing that came from the broken wrist. LOL 

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:32:45 PM EST 2007
I don't really think kids or grown ups need to deal "alone"..I think good conversations (where you mostly don't talk and just listen.. or ask "How did youfeel about that..

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:32:54 PM EST 2007
Sounds like a great schedule!  Grin  FL in winter, ME in summer....

Registered User XoXo Im 12 i live in Pen-city and im on a pump and im a Girl  (24.70.116.50) Wed Jan 17 09:33:07 PM EST 2007
I need Help

Registered User XoXo Im 12 i live in Pen-city and im on a pump and im a Girl  (24.70.116.50) Wed Jan 17 09:33:40 PM EST 2007
how do i get my blood Sugars under control

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:33:47 PM EST 2007
XoXo, what kind of help?

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:34:11 PM EST 2007
XOXO what kind of help do you need

Registered User Dr. Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:34:52 PM EST 2007
well it is good XOXO that you WANT TO!!! for starters

Registered User XoXo Im 12 i live in Pen-city and im on a pump and im a Girl  (24.70.116.50) Wed Jan 17 09:34:53 PM EST 2007
I need advisce to get my bgs under control

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:35:08 PM EST 2007
I have type 2 and Reann and I do discuss our D quite a bit when she is home. We both know it is very different from the others, but she is as concerned about me as I am about her.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:36:02 PM EST 2007
We went through a rough couple years, but I think/hope the worst is over. Dave will now call me if he's sick, or to ask for specific advice. On his own initiative, made and kept an appt with his endo, only 3 mons after the previous one. That's real progress.

Registered User Paige's Dad (KS) Dad of Paige, 8, Diagnosed October 10th, 2006, Pumping  (70.252.172.18) Wed Jan 17 09:37:11 PM EST 2007
Beth I think there are lots of people concerned about your health as well as your daughters Smile 

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:39:34 PM EST 2007
Thanks PD

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 09:40:43 PM EST 2007
Why is it so hard to let go and trust our children really can be competent with the diabetes care? And how does a parent find a new identity after being the "primary caregiver" for many years?

Registered User Paige's Dad (KS) Dad of Paige, 8, Diagnosed October 10th, 2006, Pumping  (70.252.172.18) Wed Jan 17 09:40:53 PM EST 2007
I think that is the main reason for a website like this one and these chat rooms, for people that actually care and want to help others

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:42:14 PM EST 2007
Ellen, I think it is different for those of us whose children were dx'd at an older age. Reann was 13 and she did most of her care from day 1. Always knowing tho, that I was there to help and support in any way I could or that she needed.

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:42:17 PM EST 2007
I think it is hard to let go and trust our children if we don't cut back on the micromanaging in time to see how they handle it (WITH their team)

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:42:22 PM EST 2007
XoXo, you need to talk with your parents and your diabetes team to get specific advice. In general, you need to check your blood sugars frequently (treat lows and highs appropriately), take insulin as needed, eat healthy foods and exercise.

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:43:43 PM EST 2007
Well Ellen..it is a point about making sure as a parent you have other things in your life "competing" with diabetes..so that when you "let go" BUT NOT COMPLETELY you can handle the "grief" about the transitioon...as youwsay ellen, it is the parent's transition and "loss" too

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:43:55 PM EST 2007
Those of us whose children were very young at dx "had" the diabetes. Quite a shock to no longer have it, and to trust the kid to take as good care as we did all those years.

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:43:59 PM EST 2007
But, aren't there some older teens with type 1 who do not behave responsibly so the parents need to maintain control? Maybe until the teen is out of college?

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:44:19 PM EST 2007
I think we have to stay involved even if the kids are "doing it"..

Registered User XoXo Im 12 i live in Pen-city and im on a pump and im a Girl  (24.70.116.50) Wed Jan 17 09:44:22 PM EST 2007
So whats the trick to get my A1c down

Registered User XoXo Im 12 i live in Pen-city and im on a pump and im a Girl  (24.70.116.50) Wed Jan 17 09:44:28 PM EST 2007
too 7

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:44:34 PM EST 2007
XOXO what are you doing well now for taking care of yourself

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:45:11 PM EST 2007
Brenda, I don't know how a parent can "maintain control" of an older teen, unless the kid is under lock and key. Confused 

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:45:26 PM EST 2007
No "trick" but lots of hard work ingetting blood sugars down..and hopefully alot of personal satisfaction in your EFFORT even if the outcome isn't where you want it

Registered User XoXo Im 12 i live in Pen-city and im on a pump and im a Girl  (24.70.116.50) Wed Jan 17 09:45:53 PM EST 2007
Im trying to get my bloosd sugars down by putting more insulin in but it wont work

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:46:08 PM EST 2007
Yes, Brenda, there are some of those. I used to have to nag Reann, then I got so that instead of nagging, would just ask how she was doing. When she went to college, I asked everytime she came home what supplies she needed and I would gather them for her--still do that as all her supplies are shipped here.

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:46:50 PM EST 2007
Judith..you have to realize you are "powerful" in yourkids life..they "earn" the freedoms and pleasures you allow them by making their beds, going to school, maintaining grades, and also add on the diabetes efforts (different than outcome)

Registered User XoXo Im 12 i live in Pen-city and im on a pump and im a Girl  (24.70.116.50) Wed Jan 17 09:47:35 PM EST 2007
CAN U PLEASE HELP ME HERE Evil Grin 

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:47:36 PM EST 2007
One job she hated and still does, is filling the reservoirs for her pump, so I always did that for her when she was home.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:47:40 PM EST 2007
But once the kids are out of the house, those powers are gone....

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:48:00 PM EST 2007
I could take away the car I provide - but then he'd ride a motorcycle.

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:48:07 PM EST 2007
XOXO it is not working YET..IT WILL ..you are growing and ou may require more insulin...find a doctor you feel good about working with

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:49:04 PM EST 2007
I think kids are still looking for something from us..even after out of the house..interest, approval

Registered User XoXo Im 12 i live in Pen-city and im on a pump and im a Girl  (24.70.116.50) Wed Jan 17 09:49:13 PM EST 2007
I hate my docter tho

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:49:32 PM EST 2007
I like the way you all help each other and ask good questions

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 09:49:48 PM EST 2007
XoXo, you could bring down your blood sugars by exercising, eating fewer carbohydrates, etc. You need to discuss this with your parents and diabetes team.

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:50:27 PM EST 2007
Many of us are very good friends, Wendy.

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:50:53 PM EST 2007
It is important not to be too hard on your self as parents..you can really be a good parent and not get the outcomes you hopefor..just add "partners" onto the team..other kids with diabrtes, other parents who understand...and therapists!!!

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:51:13 PM EST 2007
XoXo, we can't give you a magic one step way to bring down your blood sugars. It will take team effort.

Registered User XoXo Im 12 i live in Pen-city and im on a pump and im a Girl  (24.70.116.50) Wed Jan 17 09:51:26 PM EST 2007
Ok

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:52:04 PM EST 2007
watch out for parent burnout! it happens to the best of you! find things that refresh you..ask your spouses to "share" the load and let them do it less well than you!!!!!

Registered User Marcia mom of Abbey,9,dx'd december 2006  (71.255.41.178) Wed Jan 17 09:52:12 PM EST 2007
Wow! I'm new to all of this. How do you talk about diabetes with your child, and still keep things so her whole life is not about diabetes? She is really overwhelmed

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:52:25 PM EST 2007
Have to put in a plug for diabetes camp: the friends my son made there over the years helped him through the rough teen spots, even though none live close.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 09:53:00 PM EST 2007
Welcome, Marcia. It WILL get better, a mostly routine part of life. May be hard to believe now, but it will.

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:53:15 PM EST 2007
Hi Marcia,

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:53:34 PM EST 2007
Parents need good self esteem about their parenting..backing down from perfection and so do yourkids need good "diabetes selfesteem"..feeling "good ENOUGH" NOT PERFECT

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:53:44 PM EST 2007
XoXo, why don't you like your doctor.

Registered User knik747 T1 for 34yrs dx at the age of 5-MiniMed Paradigm 712 Pump  (67.49.201.81) Wed Jan 17 09:54:09 PM EST 2007
Hi evryone

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 09:54:43 PM EST 2007
How many moms don't let the spouse do it less well, and just feel as if they are martyrs?

Registered User XoXo Im 12 i live in Pen-city and im on a pump and im a Girl  (24.70.116.50) Wed Jan 17 09:54:47 PM EST 2007
SO if i eat prtoperly and pump in thje right amount of insullin ill get my blood sugars down???

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:55:12 PM EST 2007
i AGREE WITH diabetes camps and I also like to recommend "getaways" to diabetes meetings and intensive educational seminars (you meet people and get new ideas and hear old ideas

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:55:44 PM EST 2007
Marcia, yes..it is you and your chld who ar both overwhelmed? (part of grieving)

Registered User Q-T 12/f/pumper  (71.247.49.193) Wed Jan 17 09:55:55 PM EST 2007
hi

Registered User Marcia...WA Stephanie-23--dx'd @ 2 1/2  (70.96.165.75) Wed Jan 17 09:56:09 PM EST 2007
hello-- another "old timer" here..this young adulthood thing is tough!! especially when they move back home and you see up close what they are (or aren't) doing.. Rolling Eyes 

Registered User Paige's Dad (KS) Dad of Paige, 8, Diagnosed October 10th, 2006, Pumping  (70.252.172.18) Wed Jan 17 09:56:14 PM EST 2007
Paige kind of took over and LETS us watch her take care of herself

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:56:26 PM EST 2007
I think there are a lot of them, ellen. Pat never wanted to help much and that was okay. I never really felt like a martyr because Reann did so much of her own care. did get upset sometimes when I was really tired and had to get up and check during the night.

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:56:51 PM EST 2007
Hey Maracia WA

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:57:26 PM EST 2007
sometimes if you are a martyr about doing it all! (not letting spouses or aunts and uncles grandparents do it) you have to ask yourself why you are doing that? fear of their not doing it as well as you? of course they won't..but then you won't burn out and you will have less anger to everyone

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:57:55 PM EST 2007
But if your spouse is "afraid" of helping..TALKTALK TALK...

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:58:18 PM EST 2007
remember KS..kids need different things at different times

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 09:59:23 PM EST 2007
I train doctors and nurse and I say when your patient calls..don't tell them what to do or you will make them dependent and frightened and inhibited...ask them what they were thinking they should do..same for parents and kids..so we all can feel MASTERY

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 09:59:53 PM EST 2007
I think it is okay to let the kids take over as much as they want and are capable of, with proper supervision. But also to let them know if they want a break from it all, we will be there to do it for them.

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 10:00:24 PM EST 2007
I think the issue is not that we don't ask for and get help, it's that the others are afraid to help, esp. with a younger child. We had essentially no one willing to help with Marissa's diabetes care until she was about 10 years old and able to check her own BGs and such. When she was a toddler, my parents would watch Marissa for an hour or two, if we were close by. Once, we were at a wedding, 15 min. from our house.

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 10:01:03 PM EST 2007
i AGREE beth..sometimes kids need "vacations" from their diabetes.. I know adults who ask their spouses to take over for a while

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 10:01:49 PM EST 2007
These days, I hear more and more than grandparents are great diabetes caregivers. Maybe it's that those grandparents are 10 to 20 years younger than my parent's generation.

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:02:26 PM EST 2007
My parents NEVER helped

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 10:02:46 PM EST 2007
I think it can be worthwhile to ask lovedones (grandparents) to go with you to the clinic to get "trained" and practice with you watching and being appreciative and okay with decisions they made (even if the first time you get home when they babysat, blood sugars are high..hey it is important that relatives don't "stay" afraid of diabetes

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:03:50 PM EST 2007
Someone needs to write the book "Fear the fear and give the kid the shot anyway" for grandparents

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 10:04:13 PM EST 2007
When she comes home, I check Marissa's BGs during the night so she can sleep. I know she wakes up at night to check, so I try to give her a break. Often, I end up waking her up, but it's not intentional. And, I sometimes don't bother checking since I check the meter and see she'd just tested an hour earlier. Of course, at 19, she can stay up until 2 a.m. I struggle to stay awake until midnight! Rolling Eyes 

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:04:24 PM EST 2007
In your spare time, Ellen... Smile 

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 10:04:26 PM EST 2007
Go ahead Ellen, I know YOU can do it.

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 10:04:29 PM EST 2007
ellen that would be your next book

Registered User Paige's Dad (KS) Dad of Paige, 8, Diagnosed October 10th, 2006, Pumping  (70.252.172.18) Wed Jan 17 10:05:00 PM EST 2007
Wendy I totally agree with giving them a break, she WANTS to do it and wants to sit here with me and research all sorts of facts about diabetes, never seen a child so interested in research, she gets breaks too, for instance, at the end of the month, we are going to a Cerner open house and having supper with the KC Cheifs cheerleaders and one of the players that raises money for JDRF

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 10:05:00 PM EST 2007
and the subtitle is to the mother..fear the fear and let the grandparent fear the fear and give the shot anyway

Registered User JewlB Mother of 15 year old pumper Brendan  (142.167.72.252) Wed Jan 17 10:05:09 PM EST 2007
My father has never spent an hour alone with my son because of his discomfort. It is very sad.

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:05:30 PM EST 2007
No I'm out of the empowering the grandparents phase (and I wasn't able to get them on our side)

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:05:45 PM EST 2007
touche Dr. Wendy

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 10:05:48 PM EST 2007
ellen is now going to caretake even more of the world since zack is away! grad school

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 10:07:38 PM EST 2007
and Ks that is anice opportunity to share with Paige..and talk about what the facts mean to her

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 10:07:45 PM EST 2007
One of the things Betty Brackenridge did at the Friends for Life Conf. last year was have the grandparents (yes, there are now about 20 or so attending the conferences) play with expired glucagon kits. They got to learn how (and I presume when) to use them.

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:08:24 PM EST 2007
JewlB did you ever discuss your sadness with your father about it?

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 10:09:12 PM EST 2007
just when you are already exhausted as the mother taking care of diabetes..you can't give up getting those around you to step up..get professional help..I am biased because I am a psychologist..

Registered User JewlB Mother of 15 year old pumper Brendan  (142.167.72.252) Wed Jan 17 10:09:55 PM EST 2007
Good question, Ellen. No, I didn't. I think its because I didn't want him to feel bad about his fear and discomfort. Parents - the sandwiched generation.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:10:27 PM EST 2007
How did you decide to specialize in diabetes? Personal or family connection?

Registered User Brenda H. mom of Marissa, 19, dx'd 9/89  (216.68.227.252) Wed Jan 17 10:10:29 PM EST 2007
Since it's after 10, I want to extend an official thanks to Dr. Rapaport for being available to chat with us tonight. I think this room will remain open until 11.

Registered User Dr Wendy Rapaport Psychologist specializing in diabetes  (69.172.148.87) Wed Jan 17 10:10:40 PM EST 2007
actually Brenda a piece of research I did25 years ago! was asking the parents to simulate having diabetes ( the secret was to make sure both parents knew how to care fo the diabetes) and also to add Empathy..since it is so easy to be angry with teen kids

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:12:01 PM EST 2007
How well did the parents do with their tasks Dr Wendy? Did they follow through ?

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:13:01 PM EST 2007
I just discovered this sorry I am late. I have a qx for the doc

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:14:12 PM EST 2007
Hi Miniver welcome

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:14:44 PM EST 2007
How is best to deal with well-meaning(???) insensitive comments particularly in front of the young child? I get so tired of chewing my tongue in half to avoid back.

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:15:13 PM EST 2007
smarting back that is Cool 

Registered User wendhy rapaport pschologist  (69.172.148.87) Wed Jan 17 10:15:14 PM EST 2007
I was just disconnected by my computer..giving yu my website diabetespsyche-drwendy.com...and thanks for having me

Registered User Ev Mom of Joy,12, dx.d 12/8, pumping  (71.247.49.193) Wed Jan 17 10:15:57 PM EST 2007
Hi everyone. My daughter is recently diagnosed and has immersed herself in diabetes care. She calibrates her pump and has kept records of diet, bg's, etc. Her extreme independence and interest has made me feel supported and able to cope. She plans a career in endocrinology. We've decided that we have a new hobby - diabetes.

Registered User wendhy rapaport pschologist  (69.172.148.87) Wed Jan 17 10:16:32 PM EST 2007
Miniver..I think you can say just that.."I think you mean well..but I must cut you off..My doctors tell me not to hear any info from anyone but him...smile and laugh

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:17:11 PM EST 2007
Ev, don't be surprised if she wants to give up the hobby before long...

Registered User wendhy rapaport pschologist  (69.172.148.87) Wed Jan 17 10:17:27 PM EST 2007
Ev nice way of looking at it. There is a high % of patients with diabetes who go into the helping and health professions!

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:18:00 PM EST 2007
thanks lol

Registered User wendhy rapaport pschologist  (69.172.148.87) Wed Jan 17 10:18:40 PM EST 2007
yes what Judith is reminding us all..is to be cognizant that our chldren need different things at different times..and can "burnout" from their intensity...(so then they have to be nurtured and turned on again..sometimes with positive consequences

Registered User wendhy rapaport pschologist  (69.172.148.87) Wed Jan 17 10:19:25 PM EST 2007
Good night from me for now..and feel free to come chat with me once a month! and certainly enjoy all the warmth and gretat thoughts you give each other..wendy

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:20:07 PM EST 2007
Thank you so much Dr. Wendy....for 18 years of fabulous support and for being available for us here tonight.

Registered User Paige's Dad (KS) Dad of Paige, 8, Diagnosed October 10th, 2006, Pumping  (70.252.172.18) Wed Jan 17 10:20:14 PM EST 2007
thank you Wendy

Registered User Ev Mom of Joy,12, dx.d 12/8, pumping  (71.247.49.193) Wed Jan 17 10:20:41 PM EST 2007
She found meaning for her life. I'm fearful that she will "burn out" and not take as good care of herself. Great to follow the thread tonight

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:21:30 PM EST 2007
Thanks, Dr Wendy

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 10:21:35 PM EST 2007
Thanks so much Dr Wendy.

Registered User fhsdjkdfssd Im 12 i live in Pen-city and im on a pump and im a Girl  (24.70.116.50) Wed Jan 17 10:21:40 PM EST 2007
Wholey FUck

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:22:03 PM EST 2007
Miniver, how have you handled them so far? Sometimes I'm so flabbergasted by the comments, I'm left speechless (and people that know me are shocked I can't find the right thing to say). I do think it's good to sometimes take people aside and let them know how important it is they think before they speak in front of a child about something as serious as what they said and then I would correct their misinformation.

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:22:31 PM EST 2007
hi

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:22:46 PM EST 2007
Ev, diabetes is still VERY new at your house. At about 6 weeks after diagnosis, the reality that this is forever (until a cure) may hit, with resultant depression, anger, etc.

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:23:25 PM EST 2007
Ev, my son appreciated us ordering supplies, and offering to insert infusion sets, and prefilling cartridges for the pump ...taking insulin out to get it to room temperature ....whatever we could do so he felt he had a team at home.

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:23:57 PM EST 2007
I'm not so much talking about the "will he ever outgrow it?" comments. I can pretty much sluff them off.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:24:19 PM EST 2007
At 12, very few kids are thinking about a meaning for their lives. I would not be too surprised if she has another passion in a few months, and finds diabetes just a nuisance and bother (which would seem much more typical).

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 10:24:43 PM EST 2007
Ev did your dau start on the pump right at diagnosis. Was she ever on injections?

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:25:32 PM EST 2007
Miniver, my son went to a podiatrist at age 17...he had had diabetes for 16 years and really continues to do a great job taking care of his diabetes. The first thing the podiatrist said to my son was "my grandfather lost both legs to diabetes." I was so flippin' shocked, I was speechless. I never in a million years expected that to come out of the mouth of a so called "professional"

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:25:54 PM EST 2007
It's more the "but he looks so healthy!!!" stuff (and worse) when he is right there. The avoidance of acknowledging he is even in the room drives me nuts too. He's a human being for crying out loud, not a coma patient.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:26:25 PM EST 2007
Ah... Even those in a coma can often hear, and should be assumed to do so.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:26:53 PM EST 2007
(See, now you've pushed my button Grin )

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:27:08 PM EST 2007
Yeah sorry didn't mean to be insensitive to the coma pt.

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:27:23 PM EST 2007
How would you feel about responding "He looks so healthy because he IS healthy"?

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:28:32 PM EST 2007
That is one positive (gotta find the positives) I have learned from our experiences; that I try to be much more careful in what I say to others' conditions

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:29:40 PM EST 2007
Exactly, Miniver. Great that you've discovered that. Most of us don't see things like that until we've "walked the walk"

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:31:01 PM EST 2007
hi

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:31:24 PM EST 2007
People do say things - sometimes well intentioned, but often blatantly ignorant. Do you think it's important to mention you appreciate their intention, but they may not know about the latest research. Our children do not have our grandparents diabetes. Diabetes care has come a long way.

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:31:29 PM EST 2007
can i talk 2 u guys

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:31:45 PM EST 2007
i am 10 years old

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:32:13 PM EST 2007
this 30 second refresh is kind of odd

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:32:17 PM EST 2007
SpyderGurl do you have diabetes?

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:32:23 PM EST 2007
ellen i live in florida

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:32:38 PM EST 2007
yes

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:32:49 PM EST 2007
type 1

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:33:12 PM EST 2007
for 2 years now

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:33:22 PM EST 2007
Where in FL are you ? We have a pump support group meeting tomorrow night with Dr. Wendy in Boca Raton

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:33:47 PM EST 2007
and i got an awsome new pump

Registered User wertyou Im 12 i live in Pen-city and im on a pump and im a Girl  (24.70.116.50) Wed Jan 17 10:33:54 PM EST 2007
hhhjjh

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:34:22 PM EST 2007
Yeah I gotta remember that 3 and a half years ago I was just as ignorant and try to be charitable. I just hate the pain it causes him when he hears and begins to process them as he becomes aware.

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:34:33 PM EST 2007
i dont think i should tell u were i live

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:35:15 PM EST 2007
but i live in oviedo

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:35:18 PM EST 2007
Miniver, have you talked with him about it, told him that most people don't know much about diabetes? Especially not about the kind he has?

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:35:38 PM EST 2007
Miniver, the first thing I asked the ped endo in the ER was "will he grow out of it?" So I'm exremely tolerant of that question.

You're right Spydergurl...I meant generally southeast, northeast...if you're near Boca Raton you're welcome to come to our pump group.

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 10:35:39 PM EST 2007
Good thinking SpyderGurl, altho I know Ellen was just asking to see if you could attend the support group meeting.

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:35:55 PM EST 2007
that is all i will tell u about were i live

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:35:57 PM EST 2007
Good plan spydergirl. You should never give out personal info esp at your age.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:36:08 PM EST 2007
Most people, when they think of diabetes, are thinking of type 2 in an older person. That's not the same disorder.

Registered User ric diabetes since 9  (65.10.3.149) Wed Jan 17 10:36:46 PM EST 2007
hello

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:37:26 PM EST 2007
Has CFRD but we just tell everyone he has Type 1 b/c it is easier that way

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:37:47 PM EST 2007
is the support group here tommorow

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:38:18 PM EST 2007
NO I have not set him down yet to explain things. I am praying for the wisdom and timing. But I don't want to wait too long either.

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:38:25 PM EST 2007
I really didn't mean to ask where you are and I apologize.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:38:39 PM EST 2007
You have a heavy load to bear, Miniver....

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:38:40 PM EST 2007
How's he doing with the CF?

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:39:01 PM EST 2007
that is ok

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:39:16 PM EST 2007
Might help "immunize" him to the ignorant comments if you can explain that people don't understand.

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:39:20 PM EST 2007
For some reason my typing keeps getting clipped Frown 

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:39:24 PM EST 2007
is the support group here tommorow

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:39:41 PM EST 2007
after 3:00

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:40:21 PM EST 2007
because i have school at 6:30-3:00

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:40:33 PM EST 2007
He actually accepts it much better than the diabetes (no he won't grow out of CF either thanks for not asking Razz )

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:41:39 PM EST 2007
Is this an ignorant comment? My neighbor's son has CF and he's doing GREAT. He's in his 20s, thriving, opened a business of his own, quite independent and very happy.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:42:41 PM EST 2007
Miniver, may want to consider diabetes camp for him, if his CF care is not too involved at this point.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:42:57 PM EST 2007
Most d camps can handle other conditions too.

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:43:03 PM EST 2007
No Ellen, and I love to hear of positive stories. It gives me hope.

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:43:18 PM EST 2007
what is cf

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:43:29 PM EST 2007
We've had LOTS of kids with asthma, ADD, etc. For some, diabetes is the least of their problems.

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:44:24 PM EST 2007
That is a good suggestion Judith. Thanks. They did awy with the CF camps about the time our son was born.

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:44:56 PM EST 2007
CF = cystic fibrosis
www.cff.org

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:44:56 PM EST 2007
i have diabetes asthma and adhd

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:45:08 PM EST 2007
Where are you located, Miniver?

Registered User Beth (IA) Reann 21, dx'd @13, pumping,quilt 518  (66.172.252.252) Wed Jan 17 10:45:32 PM EST 2007
Cystic Fibrosis

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:45:52 PM EST 2007
near Dayton Ohio

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:47:57 PM EST 2007
hey guys i need to go but i realy injuyed talking to u guys and i hope 2 talk 2 guys tomorow

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:48:26 PM EST 2007
Miniver, what do you have to do for the CF on a day to day basis?

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:48:36 PM EST 2007
good night every budy have sweet dreams Wink 

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:49:08 PM EST 2007
Oh, good camps in OH....

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:49:12 PM EST 2007
GN SG

Registered User SpyderGurl1017 A.K.A: The Koolest  (172.161.234.2) Wed Jan 17 10:49:32 PM EST 2007
thank u

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:49:51 PM EST 2007
2 of my daughters went to school at Earlham....so I've been up that way often. I live in southern IN

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:50:14 PM EST 2007
www.diabetescamps.org for info

Registered User ric diabetes since 9  (65.10.3.149) Wed Jan 17 10:50:28 PM EST 2007
anyone from miami

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:50:31 PM EST 2007
He does aer. albuterol 2x pulmozyme x1 and chest PT 2x a day. About 40 minutes twice a day. Plus other aerosols as needed. 25 pills a day.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:51:16 PM EST 2007
Also here, though the info may not be up to date:
http://www.childrenwithdiabetes.com/camps/d_07_1oh.htm

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:51:23 PM EST 2007
Yeah we are not far from Richmond

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:51:56 PM EST 2007
Sounds like something the camps could handle, after you showed them his chest PT routine.

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:52:23 PM EST 2007
Are you from Miami Ric? Who's your endocrinologist?

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:52:37 PM EST 2007
I know some of the good folks from a couple of those OH camps.

Registered User ric diabetes since 9  (65.10.3.149) Wed Jan 17 10:53:19 PM EST 2007
minigeni

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:53:25 PM EST 2007
Are there day camps too?

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:53:41 PM EST 2007
How often do you actually see him Ric?

Registered User ric diabetes since 9  (65.10.3.149) Wed Jan 17 10:54:52 PM EST 2007
ellen,not very often. I see allison often

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:55:13 PM EST 2007
Miniver, I'm reading that with CF, one needs a high fat diet. do you use a lot of the features on the pump - square wave or dual wave type boluses? Or does the CF make it so the high fat doesn't take as long for the bg to rise like it does with a person without CF? I really know nothing about it but would like to understand

Registered User Mary(MA)   (24.91.155.98) Wed Jan 17 10:55:52 PM EST 2007
Hello

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:55:53 PM EST 2007
Yes, some offer day camps.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:56:08 PM EST 2007
Hi Mary! LONG time since we saw you! How are things?

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:56:09 PM EST 2007
That's what I hear about his patients Ric...he's overbooked. It's a shame because I think he's a nice person and a bright doc. Are you involved with the DRIF Ric? Our family has been involved for a lot of years

Registered User Mary(MA)   (24.91.155.98) Wed Jan 17 10:57:09 PM EST 2007
JUDITH!!!
Things are good..how 'bout you?

Registered User ric diabetes since 9  (65.10.3.149) Wed Jan 17 10:57:17 PM EST 2007
somewhat, will you be attending the meeting in boca

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:57:39 PM EST 2007
Hey if this room closes in 3 minutes - move to parents

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:57:52 PM EST 2007
My wife runs the pump (animus). She doesn't use hardly any of the features and the Insulin on Board function is turned off.

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:57:57 PM EST 2007
The pump support meeting Ric tomorrow night?

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:58:14 PM EST 2007
Ok here, Mary. Rough times in the past....but things are better now.

Registered User ric diabetes since 9  (65.10.3.149) Wed Jan 17 10:58:43 PM EST 2007
yes

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:58:47 PM EST 2007
Yes, this room may disappear, and we may land in Parents!  Grin 

Registered User Mary(MA)mom to Chris 16 and Angela 17   (24.91.155.98) Wed Jan 17 10:58:55 PM EST 2007
good to hear things are better for you

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 10:58:58 PM EST 2007
good qx about the high fat Ellen. I will ask the nutritionist on our next visit.

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 10:59:18 PM EST 2007
Great - I'll see you there. You're driving up from Miami to go to he group? :-)

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 10:59:30 PM EST 2007
My goodness! How did all these kids get SO OLD???

Registered User ric diabetes since 9  (65.10.3.149) Wed Jan 17 10:59:52 PM EST 2007
yes ,its the only one i know of

Registered User Mary(MA)mom to Chris 16 and Angela 17   (24.91.155.98) Wed Jan 17 11:00:21 PM EST 2007
JUdith..I have no idea because I'm STILL 29!!LOL

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 11:00:26 PM EST 2007
Ellen, I think the diet has to be high fat in order to get the maximum calories in the smallest volume of food....

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 11:00:35 PM EST 2007
Mary hasn't aged a bit though LOL 

Registered User Jen(MA) Allyson age 12 dx 3-24-03 (Pumping as of 10-2-06)  (151.199.63.89) Wed Jan 17 11:00:45 PM EST 2007
Hi everyone

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 11:00:47 PM EST 2007
 LOL  What a coincidence, Mary! I'm only 34!! Razz 

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 11:01:07 PM EST 2007
Right Judith, I just wondered if with the enzymes they take, if the patients with CFRD see the same delayed rise in bg as kids without it

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 11:01:08 PM EST 2007
Hi Jen

Registered User Jen(MA) Allyson age 12 dx 3-24-03 (Pumping as of 10-2-06)  (151.199.63.89) Wed Jan 17 11:01:27 PM EST 2007
how is everyone tonight

Registered User Mary(MA)mom to Chris 16 and Angela 17   (24.91.155.98) Wed Jan 17 11:01:51 PM EST 2007
OH Ellen..you're too kind

Registered User Mary(MA)mom to Chris 16 and Angela 17   (24.91.155.98) Wed Jan 17 11:02:02 PM EST 2007
hi jen!

Registered User Jen(MA) Allyson age 12 dx 3-24-03 (Pumping as of 10-2-06)  (151.199.63.89) Wed Jan 17 11:02:09 PM EST 2007
are you from mass mary i am too

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 11:02:37 PM EST 2007
We have never analyzed his intake too much. We just try to get him to finish his food LOL. He is doing better as he gets older.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 11:02:38 PM EST 2007
Ellen is always kind. Smile 

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 11:03:11 PM EST 2007
CFRD is generally less "brittle" than type 1, from what I've read.

Registered User Mary(MA)mom to Chris 16 and Angela 17   (24.91.155.98) Wed Jan 17 11:03:12 PM EST 2007
yep, Jen...we're from mass too

Registered User Jen(MA) Allyson age 12 dx 3-24-03 (Pumping as of 10-2-06)  (151.199.63.89) Wed Jan 17 11:03:23 PM EST 2007
i live on the south shore mary

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 11:03:51 PM EST 2007
No I'm not. My daughter thinks I'm bipolar...she can trigger me into an upset state in record time  Cool 

Registered User Jen(MA) Allyson age 12 dx 3-24-03 (Pumping as of 10-2-06)  (151.199.63.89) Wed Jan 17 11:04:41 PM EST 2007
lol thats funny ellen. my oldest has a way of doing that especially with hubby lol. boy does she bring the mood swings out in him lol she turned 15 today!

Registered User Mary(MA)mom to Chris 16 and Angela 17   (24.91.155.98) Wed Jan 17 11:05:00 PM EST 2007
really? we live in southcoast...near new bedford/fall river area..we're practically neighbors!

Registered User Jen(MA) Allyson age 12 dx 3-24-03 (Pumping as of 10-2-06)  (151.199.63.89) Wed Jan 17 11:05:16 PM EST 2007
im in rockland mary its on the ssshore

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 11:05:35 PM EST 2007
That hasn't really been our experience Judith. He is in much better control with the pump and good a1c's but he is still all over the map it seems like.

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 11:06:02 PM EST 2007
or maybe all over the map is normal???

Registered User Mary(MA)mom to Chris 16 and Angela 17   (24.91.155.98) Wed Jan 17 11:06:07 PM EST 2007
ellen..not sure I could picture you as bipolar...

Registered User Miniver Dad of 7 y/o T1 pumper  (67.72.98.45) Wed Jan 17 11:09:20 PM EST 2007
Well good night. Thanks for the good info and support.

Registered User Judith David, 21, diagnosed at age 8 weeks  (64.184.81.154) Wed Jan 17 11:11:45 PM EST 2007
Night, Miniver. Hope to see you in the Parent room some day.

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 11:13:03 PM EST 2007
It's not my dx....it's my daughters LOL 

Registered User Jen(MA) Allyson age 12 dx 3-24-03 (Pumping as of 10-2-06)  (151.199.63.89) Wed Jan 17 11:13:36 PM EST 2007
well im gonna go to parents room bye

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 11:14:07 PM EST 2007
I'm reading the rest of my syllabus for a diversity class tomorrow and realize I didn't do part of the assignment....

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 11:15:24 PM EST 2007
Ric, have you been to our support group before?

Registered User Aaron (WA) Johnathan 8 dx nov 04 lantus  (147.154.235.53) Wed Jan 17 11:17:56 PM EST 2007
hi all

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 11:20:24 PM EST 2007
Hi Aaron

Registered User Moderator   (server) Wed Jan 17 11:25:00 PM EST 2007
This room will close in five minutes. Please move to a new room.

Registered User Ellen (FL) Mom of Zack, 19, quilt 271  (205.188.116.73) Wed Jan 17 11:25:58 PM EST 2007
See you in the parents room Grin 



                 
  Home Return to Top

Last Updated: Saturday January 20, 2007 18:49:48
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.

This site is published by T-1 Today, Inc. (d/b/a Children with Diabetes), a 501c3 not-for-profit organization, which is responsible for its contents.
By using this site, you agree to our Terms of Use, Legal Notice, and Privacy Policy.
© Children with Diabetes, Inc. 1995-2015. Comments and Feedback.