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Chat with Clare Rosenfeld

photo About Clare Rosenfeld
Clare Rosenfeld, now 15 years old, is the Former National Youth Advocate for the American Diabetes Association (2000-01). She lives in Oregon with her parents and sister, and is a sophomore in high school. Since her diagnosis with Type 1 diabetes at age seven, Clare has given countless speeches, organized and participated in hundreds of American Diabetes Association events and fundraisers, and raised tens of thousands of dollars for diabetes cure research. Clare also helps fight discrimination; at age 12 she became the youngest certified SCUBA diver with diabetes.

Clare traveled (80,000 miles) to diabetes camps throughout the country inspiring over 1,800 kids to get involved in advocacy. Although science is Clare's favorite subject, she's interested in politics as well. She has met with many elected officials, lobbied congress for increased diabetes research funding, testified before the Food & Drug Administration, and developed a grass roots effort to successfully pass insurance reform in Oregon to assure people with diabetes would have needed diabetes supplies and education.

"Young people have a tremendous amount of power", says Clare. "I believe that one person can make a difference and together we can change the world. My hope is that all young people with diabetes work together, because together we will find a cure for diabetes!"

There are many organizations you can contact to volunteer or to raise awareness about diabetes.

Chat Room Administrator Wed Mar 6 2002 20:15:00 Eastern US
The 'LifeScan Chat' chat room is now open.


Wed Mar 6 2002 20:55:42 Eastern US
jamie from 152.163.197.61
hi

Wed Mar 6 2002 20:56:43 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
Hi Jamie. I think we're a few minutes early yet. Anyone else here?

Wed Mar 6 2002 20:56:58 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
hi

Wed Mar 6 2002 20:59:12 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
:-) I'm a friend of Clare's. we go to camp together. I'm so proud of her.

Wed Mar 6 2002 20:59:25 Eastern US
Colleen (Chat Moderator) from 208.153.11.101
Good evening and welcome to today’s chat, Get Involved: How to be a diabetes champion, sponsored by LifeScan ONE TOUCH Meters. I’m pleased to introduce tonight’s guest, Clare Rosenfeld, joining us from Oregon. Clare is very outspoken – and inspiring -- when it comes to diabetes advocacy. So let’s get started… Welcome Clare!

Wed Mar 6 2002 20:59:34 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Hi Everyone! It's good to be here and welcome to the chat.

Wed Mar 6 2002 20:59:54 Eastern US
Dave (Registered nurse and student) from 65.29.119.234
Hello everyone. My name is Dave. I am a nurse and a student. I am here to learn more about how parents and children deal with diabetes. I mostly take care of elderly people with diabetes. I know it is much different for children. Any thoughts?

Wed Mar 6 2002 20:59:57 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Thanks Allison. Glad you are here!

Wed Mar 6 2002 21:00:05 Eastern US
Laura (am 19 yrs old dx'd in 95 .. .. .. .. Pumping ) from 12.87.142.158
Hi All

Wed Mar 6 2002 21:00:27 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
you're welcome, Clare. Glad I could make it.

Wed Mar 6 2002 21:00:46 Eastern US
Sam B. (7th grade, dx'd 8/98) from 65.234.145.41
Hi Clare

Wed Mar 6 2002 21:01:09 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
Hey Clare - Our whole family is here. Sam and I are both online (different computers) and Carolyn keeps popping in to see what you're up to. So glad you are doing this chat! :)

Wed Mar 6 2002 21:01:35 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Dave, Kids face different issues than adults with diabetes. We are not talking so much about how adults deal with diabetes, but how kids do. All people with diabetes need to help raise awareness about diabetes.

Wed Mar 6 2002 21:01:45 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
Hi dave I think having a child with Diabetes is so much more in-depth than a elderly person with D

Wed Mar 6 2002 21:01:49 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
Clare, when was the very first time that you realized you needed to speak up and be an advocate? How old were you and what was the situation?

Wed Mar 6 2002 21:02:15 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Billetdeaux Family, thanks for being here. It's great to hear from you guys. Any questions tonight?

Wed Mar 6 2002 21:02:38 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
My child being dx at 12 is having a "crash course" of adversity in society

Wed Mar 6 2002 21:03:15 Eastern US
jamie from 152.163.197.61
hi

Wed Mar 6 2002 21:03:40 Eastern US
Dave (Registered nurse and student) from 65.29.119.234
Hi Me-in Maine. HOw did you handle the diagnosis when it was first made for your child?

Wed Mar 6 2002 21:03:43 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Billetdeaux, shortly after I was diagnosed I faced issues of lack of education in my school. I was seven years old and was required to test my BG in a broom closet so as not to upset the other kids. That was my toughest issue.

Wed Mar 6 2002 21:04:20 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
my child handled it much better than me...He is my HERO!!

Wed Mar 6 2002 21:04:25 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Hi Jamie.

Wed Mar 6 2002 21:04:55 Eastern US
Dave (Registered nurse and student) from 65.29.119.234
I know kids are amazing, aren't they.

Wed Mar 6 2002 21:05:10 Eastern US
jamie from 152.163.197.61
are pumps any good i am thinking about getting one

Wed Mar 6 2002 21:05:27 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
I myself will readily admit that I feel to pieces

Wed Mar 6 2002 21:05:32 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Me_in_Maine, It is amazing how youth with diabetes can handle life and difficult situations at such an early age. Every kid with diabetes has been an inspiration to me.

Wed Mar 6 2002 21:05:35 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
Jamie, I have a MiniMed and I love it. You should definitely look into getting a pump- they are very good.

Wed Mar 6 2002 21:05:43 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
fell to pieces..sorry!!

Wed Mar 6 2002 21:06:14 Eastern US
jamie from 152.163.197.61
are there any bad thing about the pump that i should knwo about

Wed Mar 6 2002 21:06:37 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
my child handled Type 1 D better than my hubby who was dx with Type 1 at 31

Wed Mar 6 2002 21:06:39 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Jamie, I have been on a pump for 2 years now and love it. It allows me a lot more freedom when used in conjunction with BG monitoring. The pump isn't for everyone, but it sure works for me.

Wed Mar 6 2002 21:06:48 Eastern US
Sam B. (7th grade, dx'd 8/98) from 65.234.145.41
Clare, i know you give a lot of speeches. How do you keep your BG in range before a speech?

Wed Mar 6 2002 21:07:03 Eastern US
Dave (Registered nurse and student) from 65.29.119.234
I understand it must be a very tough thing for a parent to accept.

Wed Mar 6 2002 21:07:21 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Jamie, The only problem I have with the pump is when I roll over on it during sleep!

Wed Mar 6 2002 21:07:30 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
No way! A broom closet? So, how did you go about collecting the information that you needed to give to the school - where did you start - and what suggestions would you give kids today who might be the "first in their school systems" with type 1 diabetes? (we were, and luckily it wasn't too much of a struggle because we used CWD materials, but I know those haven't always been around)

Wed Mar 6 2002 21:07:36 Eastern US
Steve from 148.177.1.212
Clare, how do you raise awareness about diabetes in school?

Wed Mar 6 2002 21:08:24 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Good question Sam! It isn't always easy! I test an hour before, 30 min. before and then right before, then right after. I usually go sky high with adrenelin, then drop down. I have to plan for that.

Wed Mar 6 2002 21:09:04 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
I have never seen an elderly person take test their bs as often as a child is required to do

Wed Mar 6 2002 21:09:05 Eastern US
Jay (Diabetic) from 151.197.36.99
My name is Jay Lobley and I am writing for a reason. I turned 30 back in January and I've been a Diabetic for 28 years. I read about Clare about three years ago. I contacted her and we've been talking ever since. Clare is a real inspiration. Because of her I've been writing to celebrities in hopes of getting their support in spreading the word about Diabetes. Clare is a real class act with a huge heart and wonderful personality. I love you pal! You'll always be family to me.
-Jay

Wed Mar 6 2002 21:09:36 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
800 test strip every three months we go through for my son

Wed Mar 6 2002 21:09:42 Eastern US
AusKaren (Mum of Caitlin, 9, dx'd 12,01) from 63.12.136.183
Hi I need help with a lot. Where do I start?

Wed Mar 6 2002 21:09:55 Eastern US
Dave (Registered nurse and student) from 65.29.119.234
Clare, from what I have been reading in these rooms and message boards, many kids in countries other than the US still have a very large problem with education of others in the school setting for diabetic control. Is it still a problem here in the US?

Wed Mar 6 2002 21:10:54 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Billetdeaux and Steve. Web sites
www.childrenwithdiabetes.com
www.diabetes.org
www.jdrf.com These are some good sites to look at for information for schools. I have a lot more to say here... hold on please.

Wed Mar 6 2002 21:11:21 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
Hi Jay - We're friends of Clare's as well, and she has definitely been an inspiration to our family. Sam has just begun giving some diabetes-related speeches, and he turns to Clare for advice and a little extra courage to get up in front of that audience. It's scary. And, as he mentioned, those bg's do go sky high with the adrenaline rush.

Wed Mar 6 2002 21:11:25 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Hi everyone

Wed Mar 6 2002 21:11:54 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Wow Jay, THANKS, you are awesome! To everyone else out there, Jay has written close to 2,000 letters to celebrities asking them to raise awareness about diabetes. He is an awesome advocate!

Wed Mar 6 2002 21:12:47 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
I find I am proud of my 13 year old son does not use his Diabetes as a crutch...just a reason to try harder than other kids

Wed Mar 6 2002 21:12:55 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
While Clare is typing, I have a suggestion (putting on the CWD hat right now)... she has a ton of information to share. How about if we take side-conversations to side chat rooms? (i.e., about pumping, etc., unless it's directly related to Clare?) Thank you!

Wed Mar 6 2002 21:12:58 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Dave, great question. Yes, discrimination and education are a big problem in the schools. It is so important for every kid to have an advocate (parent?) to help them.

Wed Mar 6 2002 21:13:15 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
hey Jay, I'd love to do feature you as a Super Advocate for my diabetes webzine, you can e-mail me at Curenow03@aol.com.

Wed Mar 6 2002 21:14:09 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Everyone: In school, the best way to educate people about diabetes is to share your story, instead of statistics. Your personal story is the most persuasive in terms of increasing awareness so other people understand diabetes on a human level. Then we can go from a basis of understanding, and how we as a community are affected by it, using that as a springboard towards all kinds of advocacy.
· Go to schools
· Go to churches
· Go to local organizations
· Radio/TV/Newspapers
Putting it on that personal level opens up the door. Introduces people with diabetes into the advocate world. Use your imagination.

Wed Mar 6 2002 21:14:44 Eastern US
Steve from 148.177.1.212
Clare,

some of the kids in my class give me a hard time about my diabetes. What can I do?

Wed Mar 6 2002 21:15:15 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174

My daughter is struggling with teachers not understanding the chronic nature of diabetes. Sarah has been very ill this winter, missed a lot of school with infections, etc.

Wed Mar 6 2002 21:15:37 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Mom of Ricky, sounds like Ricky is on the right track. His Mom must be a hero too!

Wed Mar 6 2002 21:15:58 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Guidance counselor got into it with the teacher yesterday, screeched at her, "Would you rather Sarah had cancer, having chemo, and had lost all her hair, would you believe she is ill then?"

Wed Mar 6 2002 21:16:13 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
Steve, are you the only kid in school with diabetes? Clare, were there situations in which you were the only one? Sam started as the only child in his middle school. Now I think there are 4 in our system... but it's a whole lot of educating to do. Luckily, our school system has open minds. But I know others don't.

Wed Mar 6 2002 21:16:26 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Teacher wants to make no accomodations for Sarah, 504 plan or not.

Wed Mar 6 2002 21:17:37 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
We live in a very small community, only 3 kids in the whole high school with diabetes

Wed Mar 6 2002 21:17:44 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
awwww shucks Clare....I am helping my child be a strong, self sufficent person...that is the 1 gift I pray I can give him!! Hero, me?? dont make me cry!!lol

Wed Mar 6 2002 21:17:55 Eastern US
Laura (am 19 yrs old dx'd in 95 .. .. .. .. Pumping ) from 12.87.142.158
Kelly. I Have had some Ignorant Teachers Like that when I was in HS. Some said I was " Faking " Diabetes

Wed Mar 6 2002 21:18:08 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Steve, the best way to help end this is to help educate them. Try asking your teacher to do a talk and explain what diabetes is about. I had this problem and it really helped to share my personal story with them.

Wed Mar 6 2002 21:18:23 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
Clare, would you say a word or two about discrimination. Testing in a broom closet - like you experienced - is discrimination. What resources can you suggest for those who are clearly being discriminated against in their school systems (or other public places)?

Wed Mar 6 2002 21:18:24 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Exactly Laura

Wed Mar 6 2002 21:19:08 Eastern US
Wendy from 12.78.67.158
Hi Everyone

Wed Mar 6 2002 21:19:37 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Kelly, there are so many cases of this stuff going on around the country. That is why it is so important to educate people. The CWD offers a lot of info on the web site that can help. Maybe we should do a specific talk about this with the kids at one of the CWD conferences!

Wed Mar 6 2002 21:19:40 Eastern US
Judy from NY (Elissa..college junior..diabetes X 19 yrs..Lantus) from 66.66.252.43
Hi everyone. My Elissa IS a strong, self-sufficient person and I am very proud of her!

Wed Mar 6 2002 21:19:41 Eastern US
Cassy (Nathan, 22 months, dx'd@ 14.5 months) from 216.144.9.83
Hello:-)

Wed Mar 6 2002 21:20:22 Eastern US
Laura (am 19 yrs old dx'd in 95 .. .. .. .. Pumping ) from 12.87.142.158
Hi Cassy, Judy and Wendy

Wed Mar 6 2002 21:20:34 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Everyone, I will be leading a How To Be A Teen Advocate session at this years conference. Sounds like we will have a lot to talk about!

Wed Mar 6 2002 21:21:01 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
Ok, Clare. Noting it down. Discrimination issues...kids/teens... you're on for the 2003 conference.

Wed Mar 6 2002 21:21:04 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Sarah is really struggling. If anyone has even sneezed within 10 feet of her this winter, she's gotten sick. Just in hospital again fri and sat. she's so behind at school, feeling so overwhelmed.

Wed Mar 6 2002 21:21:17 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
And teachers just don't get it, cause you can't see Diabetes

Wed Mar 6 2002 21:21:30 Eastern US
AusKaren (Mum of Caitlin, 9, dx'd 12,01) from 63.12.136.183
My daughter is one of two people with diabetes in her school of about 700 kids

Wed Mar 6 2002 21:21:38 Eastern US
Wendy from 12.78.67.158
Actually Diabetes Education is part of the reason i decided that alone with the 9 kid Bears from our girl scout troop there will be a leader bear traveling along who has Diabetes and an Insulin Pump.....I am telling the Girl Scout leaders this before hand so that they may use the bear in education.

Wed Mar 6 2002 21:22:38 Eastern US
LilBballin7Chica from 172.141.225.201
Hi my Name is and I live in Florida

Wed Mar 6 2002 21:22:46 Eastern US
Red from 203.220.202.55
Taylor has just started preschool this year and is the only diabetic in her school, it has not been easy, but after about 5 weeks, we seem to be getting somewhere.

Wed Mar 6 2002 21:22:49 Eastern US
LilBballin7Chica from 172.141.225.201
Name is Sara

Wed Mar 6 2002 21:22:50 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
Clare, lots of kids with type 1 diabetes have siblings who are not diabetic. And the siblings want to help. Advocacy is not just for the child with type 1 diabetes - or for the parent. I know you have some thoughts on how siblings can help... would you share them?

Wed Mar 6 2002 21:23:18 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Kids with diabetes have a very powerful message to share: how we live with diabetes. There are lots of misconceptions about diabetes like "it's contagious" or "it's totally curable". It's up to us to help set the record straight. By telling our personal stories, we raise awareness about diabetes. When we raise awareness, people who can make a difference will hear us.

Wed Mar 6 2002 21:23:32 Eastern US
Laura (am 19 yrs old dx'd in 95 .. .. .. .. Pumping ) from 12.87.142.158
Kelly you are right about teachers not getting it about Diabetes. I started trying to get my teachers attention by giving them papers about Diabetes the First Day of Class and Being More Open to Talking to others about Diabetes

Wed Mar 6 2002 21:23:33 Eastern US
gary (...visit the 'Diabetes Poetry Room' at geocities.com/gmhco) from 67.25.81.68
Hello, I'm just watching your discussion...:-)

Wed Mar 6 2002 21:23:41 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
I've been really blessed with having a staff that has dealt with diabetics before me, and I've noticed that if you supply them with the equipment (juice, insulin, syringes, etc.) and then leave them in a place in the office that is out of the way and just tell them what to expect, it really helps to keep things easy on the staff.

Wed Mar 6 2002 21:24:01 Eastern US
Vancouver WA Pumper (43 year old guy, 20 years with type 1) from 192.216.199.42
Clare, I understand you have quite a walking team. What advise would you give to youth wanting to extend their circle of influence in raising money to fight diabetes?

Wed Mar 6 2002 21:24:35 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
If my son is not feeling well his sister who is 5 tries to be his"personal nurse"

Wed Mar 6 2002 21:24:39 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Kelly, Sounds like you guys have had a really tough time. If some of the education techniques listed here or on the resource web sites don't help, then you can email me and I can direct you to some legal departments within various organizations. We are covered under law!

Wed Mar 6 2002 21:24:46 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Laura, I'd love to hook you up with Sarah. She is almost 18, still so new at this, and seriousy considering the pump now, 1 1/2 yrs after diagnosis.

Wed Mar 6 2002 21:25:01 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
She needs a peer that understands what she is going through.

Wed Mar 6 2002 21:25:05 Eastern US
AusKaren (Mum of Caitlin, 9, dx'd 12,01) from 63.12.136.183
Caitlin's teacher is generally understanding. She lets her eat about 9.30 in classroom. That's the time she goes low EVERY day!!

Wed Mar 6 2002 21:25:34 Eastern US
Gordo (17 with diabetes) from 158.252.214.121
My fingers get real sore from testing, do you have any experience with alternate site testing?

Wed Mar 6 2002 21:25:45 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Laura, I started speaking to my classmates at the beginning of the year aabout diabetes to clear up all misconceptions. It makes the year go a lot smoother. Also, don't try to hide your diabetes!

Wed Mar 6 2002 21:25:48 Eastern US
LilBballin7Chica from 172.141.225.201
Clare has encouraged me to do school projects on type one diabetes and help out on the walka thon for the walk for diabetes

Wed Mar 6 2002 21:25:50 Eastern US
Marissa (14 yrs, dx'd 2 ) from 216.68.227.65
hey claire!!

Wed Mar 6 2002 21:25:54 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
when I feel overwhelmed about my day I look to my son and see him testing his blood for the umteenth time and realize I have it easy

Wed Mar 6 2002 21:25:54 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
The two other students at the high school are both boys, diagnosed as toddlers, and pumping. She doesn't feel like she has much in common with them.

Wed Mar 6 2002 21:26:07 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Exactly Me!

Wed Mar 6 2002 21:26:12 Eastern US
Marissa (14 yrs, dx'd 2 ) from 216.68.227.65
*clare

Wed Mar 6 2002 21:26:22 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
AusKaren, Poor Caitlin! Glad she has a teacher with a brain!

Wed Mar 6 2002 21:26:37 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
We all have our sad stories. And when I need to put it in perspective, I always remind myself that there is always someone out there that has it a little bit worse than we do, than Sarah does. We are fortunate.

Wed Mar 6 2002 21:26:52 Eastern US
Marissa (14 yrs, dx'd 2 ) from 216.68.227.65
Are you going to Pasadena this summer?

Wed Mar 6 2002 21:27:06 Eastern US
Ellen from 64.12.105.151
LilB, where in FL?

Wed Mar 6 2002 21:27:11 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Gordo, yes, I use alternate site testing. Having the freedom of choice about where to test is really nice. It also doesn't hurt as much.

Wed Mar 6 2002 21:27:13 Eastern US
AusKaren (Mum of Caitlin, 9, dx'd 12,01) from 63.12.136.183
ex nurse - i think! She tries to tell me what to do though. It is hard when you get advice from every direction

Wed Mar 6 2002 21:27:23 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Hi Marrissa.

Wed Mar 6 2002 21:27:29 Eastern US
LilBballin7Chica from 172.141.225.201
Tampa

Wed Mar 6 2002 21:27:41 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
I see many kids here and I wanted to say that all of you are special people!!:+)

Wed Mar 6 2002 21:28:01 Eastern US
LilBballin7Chica from 172.141.225.201
what about you

Wed Mar 6 2002 21:28:19 Eastern US
AusKaren (Mum of Caitlin, 9, dx'd 12,01) from 63.12.136.183
That is so true Kelly. When Cait was dx'd we were in cancer ward. Makes you very thankful we only have D

Wed Mar 6 2002 21:28:22 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Vancouver, make up a team theme, song and costumes. Invite everyone and get the media involved. It really helps to pump up the spirit!

Wed Mar 6 2002 21:28:45 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Marrissa, I WILL be in Pasedena, can't wait to see you and everyone.

Wed Mar 6 2002 21:28:54 Eastern US
Gordo (17 with diabetes) from 158.252.214.121
I'm gonna try it...thanks Clare!

Wed Mar 6 2002 21:29:09 Eastern US
Marissa (14 yrs, dx'd 2) from 216.68.227.65
Yeah, I can't wait either!

Wed Mar 6 2002 21:29:37 Eastern US
Red from 203.220.202.55
Taylor has a plan set up that the teachers tell her it is 9.30, she tests and has a snack then, snacks again at 11 with all the kids...I wrote the plan how I wanted it followed and so far, they are doing that, but I had to go supervise for the first few weeks while they all settled in. Taylor does all her testing in front of the other kids, with no problems from the other mums.

Wed Mar 6 2002 21:29:40 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
It infuriates me that Sarah's one teacher would obviously be more sympathetic to her if she had cancer or something. People are so stupid.

Wed Mar 6 2002 21:29:52 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
About siblings, my sister has been incredibly supportive of me. I know she takes the back seat a lot when I have highs or lows. She is awesome! It's also great at conferences where she can connect with other sibs. They need that and we appreciate their support.

Wed Mar 6 2002 21:29:59 Eastern US
Laura (am 19 yrs old dx'd in 95 .. .. .. .. Pumping ) from 12.87.142.158
Kelly I would like to Correspond with Sarah

Wed Mar 6 2002 21:29:59 Eastern US
Ellen from 64.12.105.151
Boca Raton.

Wed Mar 6 2002 21:30:13 Eastern US
Ellen from 64.12.105.151
Is this a kids chat? If so, I'm in the wrong room :-)

Wed Mar 6 2002 21:30:17 Eastern US
Marissa (14 yrs, dx'd 2) from 216.68.227.65
I have to go to bed, see you this summer Clare, nice talking to you again!

Wed Mar 6 2002 21:30:25 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Laura, that would be wonderful.

Wed Mar 6 2002 21:30:34 Eastern US
AusKaren (Mum of Caitlin, 9, dx'd 12,01) from 63.12.136.183
I did similiar thing Red

Wed Mar 6 2002 21:30:51 Eastern US
Leslie (15, dx'd 2 months ago) from 205.188.199.151
hello everyone

Wed Mar 6 2002 21:30:53 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Kelly, because diabetes is invisible as you said, it's hard for some people to understand. The best we can do is to join hands as an unstoppable force of goodwill and advocacy.

Wed Mar 6 2002 21:31:06 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Hi Leslie.

Wed Mar 6 2002 21:31:10 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Exactly Clare

Wed Mar 6 2002 21:31:30 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Laura, you don't happen to be on aol, do you?

Wed Mar 6 2002 21:32:08 Eastern US
Laura (am 19 yrs old dx'd in 95 .. .. .. .. Pumping ) from 12.87.142.158
I am on AIM. Hi Leslie

Wed Mar 6 2002 21:32:18 Eastern US
Colleen (Chat Moderator) from 208.153.11.101
Ellen: This chat is with Diabets Advocate Clare Rosenfeld.

Wed Mar 6 2002 21:32:20 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
I think you nailed it with the "goodwill and advocacy." It doesn't usually work well to be an angry advocate. Good will buys a lot of ground toward making advocacy work. You are clearly an example of that (your family, too).

Wed Mar 6 2002 21:32:25 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
KellyLOsb is my aol name

Wed Mar 6 2002 21:32:39 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
I agree Bille

Wed Mar 6 2002 21:32:40 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
Clare...how do you treat your Diabetes...pump,Lantus,Humalog,NPH?

Wed Mar 6 2002 21:32:41 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Red. My Mom sat in for the first couple weeks with me too when I was younger. Your story is an inspiration to other parents, having them involved helps everyone recognize the importance of the situation.

Wed Mar 6 2002 21:32:59 Eastern US
Ellen from 64.12.105.151
I didn't know if it was geared to youth. I met Clare and her mom last year at the CWD conference...it was a pleasure :-).

Wed Mar 6 2002 21:33:17 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
I tend to get so upset though, that i cry, makes me so mad. It's funny, in real life I let people walk all over me, avoid confrontation at all cost when it comes to me. But when someone screws with one of my kids, watch out.

Wed Mar 6 2002 21:33:21 Eastern US
Sara Asher from 172.141.225.201
Hi Clare

Wed Mar 6 2002 21:33:51 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Me_ I'm using Humalog and it works well in my pump. I test 8-10 times a day...and it really helps me keep my numbers in control especially during tests!

Wed Mar 6 2002 21:34:29 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
wow, 8-10? I feel like such a slacker....

Wed Mar 6 2002 21:34:36 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Hi Sara!

Wed Mar 6 2002 21:35:00 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
I've seen you test 8-10 times in an afternoon when you're excited about speaking. :)

Wed Mar 6 2002 21:35:09 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Allison, it's OK, we all need to work on it. We are teenagers after all.

Wed Mar 6 2002 21:35:10 Eastern US
Ellen from 64.12.105.151
I plan to make a quilt square for the upcoming Pasadena conference. I think everyone who is making one can call their local newspaper and or local tv stations to use it as a story about the quilt project and to advocate for diabetes and cure awareness

Wed Mar 6 2002 21:35:11 Eastern US
Colleen (Chat Moderator) from 208.153.11.101
Ellen:
We're trying to keep side conversations to a minimum so we can spend the most time with Clare, But of course this chat is geared for youth. Do you have a specific queston for Clare?

Wed Mar 6 2002 21:35:51 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
hey, Clare, I got a question. What kinds of advocacy projects are you working on now?

Wed Mar 6 2002 21:35:53 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
I am happy that you have something that works well for you. Ricky uses Humalog and lantus is really working well but wants to be like the other kids he met at camp last summer who had the pump. I guess he thinks it is "cool"lol

Wed Mar 6 2002 21:35:57 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Clare, at what age were you diagnosed?

Wed Mar 6 2002 21:36:36 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
Clare, can you tell us about your scuba experience? That's incredible that 1) you were the youngest with type 1 diabetes to become certified, and 2) that you took it upon yourself to learn to do this in spite of some of the negative things that are printed about diving with type 1 diabetes.

Wed Mar 6 2002 21:37:26 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Billeteaux, pre speech adrenelin. It's hard for those kids who don't like to speak in front of groups.That's OK too. Those people can write a letter.

Wed Mar 6 2002 21:37:35 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
Oops, hit the send button too soon. I wanted to add that, to me, this is a great example that a person with type 1 can do ANYthing. Diabetes does not have to be such a limiting disease. Do you dive often?

Wed Mar 6 2002 21:38:03 Eastern US
Leslie (15, dx'd 2 months ago) from 205.188.199.151
for those of you who have gone to a D camp or have sent your kid(s) to camp..would you recomend it?

Wed Mar 6 2002 21:38:08 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Allison, I'm currently working on a plan to unite kids on a bigger level. It's a secret but you will hear before too long.

Wed Mar 6 2002 21:38:21 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Kelly, I was diagnosed when I was seven.

Wed Mar 6 2002 21:38:30 Eastern US
*~Sara~Asher~* from 172.141.225.201
I have done lots of school projects on type 1 diabetes were i would test my blood sugar about 7 times a day and compare it to a diabetic and have written papers on it, did some advocacy, and walk in the walk for diabetes

Wed Mar 6 2002 21:39:10 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Ellen, GREAT idea about the quilt. I plan to make on with my mom too...call to action to everyone else.

Wed Mar 6 2002 21:39:36 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 208.153.11.101
Billetdeaux: My parents are divers, and I wanted to dive too. I was told I couldn't because I have diabetes. It took me two years of maintaining excellent blood sugar control, to convince my doctor that I could dive safely with diabetes. You’d think that even they would know I was capable. You have to be able to prove that you can control and plan for situations with diabetes, otherwise no doctor would sign a medical release. My Dad (my buddy) and I developed hand signals to use under water to indicate if I was having a problem. I passed the written test and swimming pool test here in Eugene and the open water course on the island of Maui, Hawaii. It was AWESOME!

Wed Mar 6 2002 21:40:18 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
Leslie...you will probably love it! My son told me on the way to camp he was going to runaway and hitchhike home but when I pickled him up on the last day he was too busy with his new friends to be found!!lol All the way home all he could talk about was "I cant wait to go again next year Mom"

Wed Mar 6 2002 21:40:50 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Everyone, a good way to do advocacy is to get your local media involved. We reach so many people that way. Contact them and tell them your personal story and mentiont the quilt. This would be a great way to raise awareness. The media is always looking for stories of human interest. We with diabetes ARE interesting and need to let them know.

Wed Mar 6 2002 21:40:53 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
I guess not knowing anything about diving I haven't understood what the whole diving/diabetes issue has been about.

Wed Mar 6 2002 21:41:07 Eastern US
Leslie (15, dx'd 2 months ago) from 205.188.199.151
How old is your son Me_in_Maine?

Wed Mar 6 2002 21:41:18 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
I met Clare at diabetes camp almost 8 years ago- so I would definitely recommend it.

Wed Mar 6 2002 21:41:29 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Considered too dangerous for diabetics? The depths? I'm out of the loop. lol

Wed Mar 6 2002 21:41:32 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 208.153.11.101
Billetdeuax: I haven’t gone low while diving. But if I did I’d take glucose gel. I keep it in my buoyancy control vest. It sounds funny, and was for other people watching, but to find what worked my dad and I practiced in the pool with whip cream in a toothpaste tube. The plan is that if I feel myself going low and I’m too far down to surface, I signal my dad (it looks like a flat hand with an “L” that wiggles-- it looks funny but gets the point across), then I pull out the glucose gel, pop the top, take out my regulator, eat the glucose gel, and replace the regulator.

Wed Mar 6 2002 21:41:49 Eastern US
Billetdeaux (Sam's mom) from 65.234.145.124
Since becoming certified, have you had any problems (relating to diabetes) while diving? And would you only have your dad as a dive buddy since he knows your diabetes so well and you share the hand signals? Curious - it was a hot topic of conversation the other day. Some saying it was absolutely safe for kids to dive, and others being quite a bit more cautious.

Wed Mar 6 2002 21:41:52 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
13 and he goes to Camp Carefree in New Hampshire..we live in Maine

Wed Mar 6 2002 21:42:02 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Good for you on maintaining such excellent control Clare, that's awesome!

Wed Mar 6 2002 21:42:06 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Sara, it's great that you have beendoing so many projects for school. Thank you for raising awareness about diabetes. You are really helping all of us out here!

Wed Mar 6 2002 21:42:31 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Me_ I have been to Camp Carefree, Wonderful camp!

Wed Mar 6 2002 21:42:39 Eastern US
jamie from 152.163.197.184
hi

Wed Mar 6 2002 21:43:16 Eastern US
*~Sara~Asher~* from 172.141.225.201
Yeah no problem

Wed Mar 6 2002 21:43:38 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
I dive as often as possible. It's been hard to do a lot lately because of all the advocacy work I have been doing. Last time I went I dove with sharks in the Bermuda Triangle. It's my favorite place so far...and sharks aren't as mean as everyone thinks.

Wed Mar 6 2002 21:43:39 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
best thing Ricky ever did to help him accept his D...I could not keep him away from that camp!

Wed Mar 6 2002 21:43:43 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Sarah is still relatively new to this, and has struggled with denial/anger. Her last A1C was 14.2.

Wed Mar 6 2002 21:43:55 Eastern US
Laura (am 19 yrs old dx'd in 95 .. .. .. .. Pumping ) from 12.87.142.158
I am a Webpage Junkie and Made MAny Diabetes Pages. I even have my own Diabetes Club/Page on MSN Called Diabetes Fact

Wed Mar 6 2002 21:43:56 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Hoping we are on the right path now though, knock on wood.

Wed Mar 6 2002 21:44:21 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
I would only dive with my Dad, or someone who understands diabetes VERY well and my emergency language.

Wed Mar 6 2002 21:44:23 Eastern US
Leslie (15, dx'd 2 months ago) from 205.188.199.151
Me_in_maine...I have been throwing the idea around of going, but i think for this year it's a little too late to get into one. But my mom wants me to go since I don't know anyone with D

Wed Mar 6 2002 21:45:03 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Leslie, my daughter was also diagnosed at age 15, in August of 2000.

Wed Mar 6 2002 21:45:18 Eastern US
*~Sara~Asher~* from 172.141.225.201
How for away are we fro mhaving a cure?

Wed Mar 6 2002 21:45:29 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
15 is a difficult age, even under the best of circumstances, lol. Adding diabetes into the mix has been interesting.

Wed Mar 6 2002 21:45:40 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
About Camps. Camp is the best place in the world! I love it.

Wed Mar 6 2002 21:45:54 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
no Laura it is not!! Find a camp and request a application!! Ricky has not received this application yet but he is going as I have requested the application

Wed Mar 6 2002 21:46:13 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
sorry I mean leslie

Wed Mar 6 2002 21:46:43 Eastern US
Leslie (15, dx'd 2 months ago) from 205.188.199.151
Kelly, does she ever get on and talk?

Wed Mar 6 2002 21:46:55 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
Leslie, you should definitely look into going to camp. It is awesome. you will meet so many people and have a great time.

Wed Mar 6 2002 21:47:38 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Good question Sara. There is a lot of research taking place, and while we don't have a date for our cure yet, we are getting closer. It's up to us to make it happen! We need to raise money, and convince the government to help. Lots of the research is already having success. More is needed!

Wed Mar 6 2002 21:47:39 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Leslie, she's not really into the computer, but occasionally gets on to check email. We are on aol, I can give you her screen name if you do aol or aim.

Wed Mar 6 2002 21:48:13 Eastern US
Leslie (15, dx'd 2 months ago) from 205.188.199.151
My mom is looking in to sending my to a camp in NY...I'll have to remind her to get the app.

Wed Mar 6 2002 21:48:29 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
Ricky found at camp that pretty much everybody had Diabetes!! It was a bit overwhelming for him as he was used to being one of a few Diabetics but there is 130 kids that go to Camp Carefree and all the counselors are Diabetic as well...It was a learning experience for him to see how everyone treats their Diabetes differently

Wed Mar 6 2002 21:48:31 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
I firmly believe that we are 10 years or less from a cure.

Wed Mar 6 2002 21:48:40 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
With islet cell transplants.

Wed Mar 6 2002 21:48:57 Eastern US
Leslie (15, dx'd 2 months ago) from 205.188.199.151
laura just gave it to me once she saw that you were going to give it to me...thanks!

Wed Mar 6 2002 21:49:14 Eastern US
*~Sara~Asher~* from 172.141.225.201
yeah

Wed Mar 6 2002 21:49:20 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
a cure is definitely getting close, and as Clare said, we need more funding for research.

Wed Mar 6 2002 21:49:30 Eastern US
Colleen (Chat Moderator) from 208.153.11.101
We're focusing on Diabets Advocacy tonight, but if you're interested in diabetes camps, LifeScan's diabetes camp scholarship program starts on LifeScan.com on Tuesday (giving away twenty-five $500 scholarships, 2000 ONE TOUCH Ultra Meters and "Marissa" bears). And Gold Medal Swimmer Gary Hall Jr. will be back on April 03 to talk about camps...

Wed Mar 6 2002 21:49:34 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
One thing I would like to bring up is the importance of mentoring other newly diagnosed kids and families. Being a mentor of a newly diagnosed kid with diabetes is one of the most rewarding experiences I have had. I remember being in the hospital when another girl with diabetes came to visit me. She was so reassuring and told me everything would be OK. It makes me feel good to be able to help others in that same situation. Good ways to be a mentor are to contact your local hospital’s Diabetes Education Department and tell them you (and your family) are willing to be a mentor. Other options would be to contact your local offices of the ADA and JDRF ask if they have a mentor program you can join. Another easy way to be a mentor is to join the chat rooms with kids on this Web site!

Wed Mar 6 2002 21:49:36 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
shop around for a camp on the CWD wesite...click on camps and try to find one that will work for you....If money is an issue there are scholarships!!

Wed Mar 6 2002 21:49:44 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
if anyone is interested in getting more information on research and news, you can go to my website, CureNow, curenow.iwarp.com.

Wed Mar 6 2002 21:49:52 Eastern US
Sam Billetdeaux (7th grade, dx'd 8/98) from 65.234.145.41
Clare, what sports do you play and do you have troubles managing your blood sugars while you're playing?

Wed Mar 6 2002 21:50:08 Eastern US
Gordo (17 with diabetes) from 158.252.214.121
I love the lifescan web site!

Wed Mar 6 2002 21:50:12 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
ok I will stop Colleen!!

Wed Mar 6 2002 21:50:51 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Sam, Aside from SCUBA I love swimming and right now I'm in weight lifting. I hope to take up fencing.

Wed Mar 6 2002 21:51:08 Eastern US
Leslie (15, dx'd 2 months ago) from 205.188.199.151
Me_..the only thing I'm having trouble with is finding a camp that is for kids my age and somewhat near me

Wed Mar 6 2002 21:51:27 Eastern US
Allison (diabetes for 8 years, editor of CureNow: a diabetes webzine) from 207.202.225.168
Clare, what's been your favorite diabetes advocacy event that you've done?

Wed Mar 6 2002 21:51:41 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
We have the same problem Leslie, living in MOntana.

Wed Mar 6 2002 21:51:52 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
We might as well live on Mars. lol

Wed Mar 6 2002 21:52:28 Eastern US
*~Sara~Asher~* from 172.141.225.201
Do more people die from diabetes or breast cancer and which one is more serious?

Wed Mar 6 2002 21:52:37 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Allison, Walk, and the CWD conference. At both of them the positive energy is so high. I love it.

Wed Mar 6 2002 21:53:10 Eastern US
Billetdeaux (Sam's mom) from 67.192.62.33
Can we please keep the conversation on Clare and advocacy? (CWD hat on again)

Wed Mar 6 2002 21:53:15 Eastern US
Allison (16, dx'd 8 years ago, editor of CureNow: a diabetes webzine) from 207.202.225.168
Sara, I do believe it is diabetes. and that is from diabetes-related complications, like heart disease.

Wed Mar 6 2002 21:53:18 Eastern US
Leslie (15, dx'd 2 months ago) from 205.188.199.151
lol Kelly...I feel the same way, living in Ohio

Wed Mar 6 2002 21:53:38 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
Clare and everyone else I must go get ready for work...it has been nice chatting with all of you!!Have a good night all and happy chatting!!

Wed Mar 6 2002 21:53:52 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Sara, unfortunately diabetes. We can change that if we work together!

Wed Mar 6 2002 21:54:04 Eastern US
Allison (16, dx'd 8 years ago, editor of CureNow: a diabetes webzine) from 207.202.225.168
Good night, mom of Ricky!

Wed Mar 6 2002 21:54:11 Eastern US
*~Sara~Asher~* from 172.141.225.201
oh ok thanks allison

Wed Mar 6 2002 21:54:14 Eastern US
Leslie (15, dx'd 2 months ago) from 205.188.199.151
goodnight Me_

Wed Mar 6 2002 21:54:23 Eastern US
*~Sara~Asher~* from 172.141.225.201
yeah we can

Wed Mar 6 2002 21:54:27 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Bye Me_ and thanks for joining in.

Wed Mar 6 2002 21:54:41 Eastern US
Billetdeaux (Sam's mom) from 67.192.62.33
Clare, I think the "visual image" you present to young people is incredible. You are well-spoken, you exercise, you test frequently, and you obviously take great care of yourself. I'm not sure about the fencing thing, though.
I know your mom is sitting right next to you. Give her a hug and tell her she's done a great job!

Wed Mar 6 2002 21:55:17 Eastern US
*~Sara~Asher~* from 172.141.225.201
We all need to work together on getting funding money we are so close to a cure!!! we jsut need government to pass a law

Wed Mar 6 2002 21:55:25 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Thank you Laura! We love you!

Wed Mar 6 2002 21:56:09 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Have I missed any questions? This moves really fast!

Wed Mar 6 2002 21:56:39 Eastern US
Me_in_Maine (mom of Ricky dx 10/00) from 66.186.165.88
my sons e-mail address is Ridged_2000@hotmail.com if you would like to write to him!! He always enjoy hearing from other kids with Diabetes

Wed Mar 6 2002 21:56:42 Eastern US
Allison (16, dx'd 8 years ago, editor of CureNow: a diabetes webzine) from 207.202.225.168
Clare, have you thought about going into politics because of everything you've done?

Wed Mar 6 2002 21:56:42 Eastern US
Colleen (Chat Moderator) from 208.153.11.101
We have about 5 minutes left in tonight’s chat. Any other questions before Clare signs off?

Wed Mar 6 2002 21:57:23 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
For anyone who would like to contact me personally my email address is: curequest@msn.com

Wed Mar 6 2002 21:57:38 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Clare, can I give you Sarah's email address?

Wed Mar 6 2002 21:57:42 Eastern US
Jay (Diabetic) from 151.197.36.99
It is young people like Clare who can help make a difference in showing everyone who is a diabetic and who isn't what it's like to live with diabetes and help open minds to new avenues

Wed Mar 6 2002 21:57:49 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Some words of encouragement might help.

Wed Mar 6 2002 21:57:58 Eastern US
Allison (16, dx'd 8 years ago, editor of CureNow: a diabetes webzine) from 207.202.225.168
Clare, have you thought about going into politics because of everything you've done?

Wed Mar 6 2002 21:58:01 Eastern US
Cassy (Nathan, 22 months, dx'd@ 14.5 months) from 216.144.9.83
Clare, Thank you for all you do for our children:-)

Wed Mar 6 2002 21:58:07 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Laura, don't give Mom any more heebie jeebies about fencing!

Wed Mar 6 2002 21:58:12 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
She's struggling right now, breaks my heart in half.

Wed Mar 6 2002 21:58:39 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Thank you Cassy, I'm glad my health allows me to do this.

Wed Mar 6 2002 21:59:03 Eastern US
red from 203.220.202.55
I have to go, thank you very much for you time Clare, I really appreciated it.

Wed Mar 6 2002 21:59:06 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Allison, I'm already in politics, for better or for worse. :-)

Wed Mar 6 2002 21:59:12 Eastern US
Billetdeaux (Sam's mom) from 67.192.62.33
That's all right. Give your mom some cucumber slices and tell her to relax. You've done a great job with the chat tonight. It's hard to juggle the various threads of conversation. Look forward to having you back on CWD. Thanks, Colleen and LifeScan, for bringing Clare to us!

Wed Mar 6 2002 21:59:24 Eastern US
Allison (16, dx'd 8 years ago, editor of CureNow: a diabetes webzine) from 207.202.225.168
lol, nice answer, sweetie.

Wed Mar 6 2002 21:59:33 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Thank you Red. I appreciate your questions. Let me know if I can help in the future.

Wed Mar 6 2002 21:59:49 Eastern US
Cassy (Nathan, 22 months, dx'd@ 14.5 months) from 216.144.9.83
I'm sure you already answered this a few times, but at what age were you dx'd?

Wed Mar 6 2002 21:59:49 Eastern US
*~Sara~Asher~* from 172.141.225.201
Hey Clare I will talk to you later luv yaz buh bye see you soon

Wed Mar 6 2002 21:59:51 Eastern US
Kelly ("Mom of Sarah, 17, dx'd 8-00") from 198.81.16.174
Well, West Wing is on, it's Mom/Sarah bonding time. take care everyone!

Wed Mar 6 2002 22:00:25 Eastern US
jamie from 205.188.193.32
clare are u still here

Wed Mar 6 2002 22:00:34 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Kelly good luck, let me know how things go.

Wed Mar 6 2002 22:01:22 Eastern US
Laura (am 19 yrs old dx'd in 95 .. .. .. .. Pumping ) from 12.87.142.158
Clare you do a Fine Job:-) and you to Allison:-). Bye Kelly and Good Luck

Wed Mar 6 2002 22:01:32 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
In closing, the best way to be a Diabetes Champion is to take good care of yourself! Don't be afraid to follow your dreams. My biggest dream is to become an Astro Marine Biologist…it hasn't been invented yet, but hey, neither had the National Youth Advocate position. Some day I want to SCUBA dive on Europa, one of the moons of Jupiter. You can bet I won't let my diabetes stop me!

Wed Mar 6 2002 22:01:36 Eastern US
Allison (16, dx'd 8 years ago, editor of CureNow: a diabetes webzine) from 207.202.225.168
bye Laura, ttyl.

Wed Mar 6 2002 22:01:55 Eastern US
jamie from 205.188.193.32
hey all

Wed Mar 6 2002 22:02:22 Eastern US
Colleen (Chat Moderator) from 208.153.11.101
That ends tonight’s chat. Many thanks to Clare Rosenfeld for talking with us tonight. And thanks to our “listeners” and the Children with DIABETES Web site for the opportunity to share advocacy information. Good night!

Wed Mar 6 2002 22:02:28 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Bye Allison, talk soon.

Wed Mar 6 2002 22:02:49 Eastern US
Allison (16, dx'd 8 years ago, editor of CureNow: a diabetes webzine) from 207.202.225.168
bye sweetie

Wed Mar 6 2002 22:03:08 Eastern US
jamie from 205.188.193.32
clare are u staying longer

Wed Mar 6 2002 22:03:37 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Great talking to everyone, take care.

Wed Mar 6 2002 22:04:08 Eastern US
jamie from 205.188.193.32
clare can u stay longer

Wed Mar 6 2002 22:04:49 Eastern US
Clare Rosenfeld (Diabetes Advocate) from 63.14.220.235
Jamie, I have to go now, HOMEWORK...but you can email me. curequest@msn.com



                 
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Last Updated: Tuesday October 07, 2008 16:18:22
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