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CWD Conferences and CWD Adventures Chat - February 16, 2006
Moderator (server) Thu Feb 16 08:00:00 PM EST 2006
Our chat about CWD Conferences and Adventures starts at 9pm Eastern.
Adventures? I could go for a trip to Mars!
round trip that is.
HI Mike
Our chat about CWD Conferences and Adventures starts in 10 min in the 'Events' room.
hi
Hi Meghan - Glad you are home safe and sound!
Hi LB
It's nice and quiet around here. Sam and Neal are at hockey.
Hi Chelsea - Are you still on?
That sounds like fun! Are the dogs being good?
Define good.
Okay...they are dogs...are they being good for them?
Hi Laura and Meghan. I'm here, too. Maybe it will be a quiet night.
hi
HI Brenda!
Yes, they are upstairs watching the Olympics. They like the men's long skating program.
Hi Mike, Hi Brenda
havent seem as many scheduled chats as you used to have
Hannah Teter is going on Letterman tonight. my girlfriend is her aunt!
It's slow this time of year for chats. We hope to have lots more, though. These conference chats do occur monthly. Their purpose is to discuss upcoming CWD events, answer people's questions about them, make buddies prior to the conferences, etc. We have some new programs in 2006, including a soccer camp, a teen adventure in Colorado, and a young adult weekend in San Francisco.
Hello everyone... you can stop talking about me now..
Hey Meghan- you forgot to remind me about the chat...
cwd ever going to have a conference in the new england area>?
Stacey, you aren't on my buddy list....
Boy - it is really blowing outside tonight. Wind gusts to 50 mph. Brenda - if I lose power or internet, would you please carry on with the chat?
Hey MommaBagel
Mike, we have a conference next month in Philly, which is probably as close as we'll get to New England. All of our events are listed online: http://www.childrenwithdiabetes.com/activities/
Yep, I had to go make popcorn (throw a bag in the microwave--hard mom work) for Tim. He's finally over his stomach bug and needs to regain the 4 pounds he lost.
I can't make popcorn, Brenda...it burns.
we'll have to get Laura to teach u....
Glad he's feeling better. Feed that child! So - he's going to be a tweener this summer. Look out Melissa!
I'm afraid popcorn is one thing I just don't do well. Unless it's microwave. Neal is a great popcorn maker.
So - on to business... Welcome to the Conferences/Events Chat! Anything relating to CWD events is fair game for discussion...
Hi
Well, we got a new microwave in Dec. and it makes great popcorn. This thing has so many features, I don't think I'll ever use them all. Kathryn prefers the
"soften" button for ice cream. I like to use it to soften cream cheese. You push Soften, then 1 for cream cheese, 2 for whatever and 3 for ice cream. Way too complicated for me.
www.adultswhonevergrowupwithdiabetes.com
competition fo rcwd.
Some good news to start with. For those folks coming to Philadelphia next month... we have sold out our room block three times. I keep extending it, and the rooms keep getting reserved... this will be our biggest regional conference yet. And - wonderfully - half the participants are brand new to CWD! That makes me very happy because they will get to meet the other half of you who have been around CWD for a long time and can be so helpful and supportive!
Laura, are there conf T's for the philly conf??
I got a new microwave Tuesday. bought the cheapest one on sale works fine and very simple like the old one
Mike, does this mean you survived the blizzard? Have to have a Conference in N.E. in the summer.
how many teens are expected for philadelphia??
Yes, there are. Navy and white, if you want to plan your outfits. You can wear your STAFF shirt, though, if you'd prefer, since you'll be working with the elementary group.
Over 40 teens for Philly right now. Big group. Again, half are new.
Hi all.
can't wait for the conference. Finally made a chat, even for a few minutes
are there many in Jesse's age group 13-14ish??
Looks like Marissa will be done finals in time to go to Philly. Last exam is that Fri. a.m. School is on quarters so she's then on Spring Break.
For anyone interested, CWD will likely hold a young adults weekend in New York City next year. I have a proposal in hand... and emails from lots of young adults (college age, 18-25 or so) who would like to participate. So, I'm trying to make it happen. Stay tuned.
Hi pam.. hows sarah?? sent u the strips today...
Yes, lots in Jesse's age group. Lots of girls.
Hey Pam - Good to see you!
ooooooooooooooo
he'll be very happy... except that one special girl wont be there...
So Marissa will be in Philly, Brenda?
Mike, maybe you could volunteer to be a chaperone? I don't mean to be rude, but how old are you these days? I don't think you're young enough for the 18-25 group.
Yes, but lots of new friends will be there - he'll have a blast. I know Jesse - that boy will not sit in a corner.
Still feeling the same. temp 99 and she is kind of moody
finally called the dr. lots of the same going around. wants to see her if any worse
Assuming Jeff can get flights arranged, Marissa will be there.
who is that special girl?
Im having a one man pajama party here. good night. work tomorrow and Bluegrass festival in Framingham all weekend.
HI Laura
wish we were going to Philadelphia
YAY, Brenda!
Pam.... do you have to ask???
Is that festival indoors? We mid-westerners are sending lots of rain to the east coast over the weekend.
chaperone 18-25 yr olds>>? are you nuts?
Guess you remember what YOU were like at that age.
So - here's some hot news (if you're a teen). I've had quite a few emails from the teens asking if the Teen Dinner Dance on Friday (from 8- midnight) could be 'semi-formal' (i.e., wear a nice party dress if you'd like, but you don't have to). I'm leaning toward 'yes' - what do you all think? As long as it's not mandatory? The teens really do like to dress up.
Just making sure that you are still saving him
indoors, www.bbu.org the Joe Val festival/ gonna be a lot of ppickin and grinnin
Laura- Jess wants to know if Ashley and Michelle will be there?
I'm glad Marissa will be coming to Philly. It's nice she'll be on break. Carolyn will be there also. She's on spring break.
I'll chaperone that group, Brenda, as long as there is no coating of the staff in gooey stuff...we used to have to do that at diabetes camp
Sarah would go for dressing up. Loves to buy new clothes. I am sure that nothing will fit
Hi Everyone..Laura..I just saw Wicked...
Well, Mike, make sure you have all your testing supplies and don't dance yourself low.
Laura- Jesse said no.... about getting dressed up...but he's a guy...
18 - 25 is adult . how do you chaperone adults??
Make sure they don't hurt each other?
Mike I was going to ask that question also..i would glad to be a chaperone..but kind of hard to chaperone an adult...
Well, maybe "accompany" is a better word. Who knows where some of these young adults may come from. If they're Kansas farmers, they may get lost in the big city.
hi wendy.. I gotta go. time is tight now.; gotta focus.. good luck withthe conference . bye (for the last time)
so you mean Referee....okay now i got it...
Mike- you could be the bartender??
Bye Mike. Have a great weekend at the festival.
How do celiacs fare at conferences..
Stacey, my 18 year old doesn't need a bartender unless he's serving Diet Coke!
The guys don't have to do a big dress-up thing (although Sam wants to wear a white tux). Anything but jeans and cut-offs and tees is ok. The girls are really the ones who like to go all-out, and I think we should let them.
I need to send in the paperwork for the philly conferance but have the room reserved...
Hi Sue - We have an entire gluten free menu for the conference. A separate buffet table and separate cooking vessels/utensils so no cross-contamination. CWD's dietitian Mike Schurig is in charge of it for all conferences.
Sue, Laura has arranged for separate tables of gluten-free foods for the past several conferences. And, she always has the carb counts listed, too.
Wendy - Single person is half price. I don't think it says that on the form. You liked Wicked? I can't wait!
I loved Wicked..was awesome show....actually think lion king was a little better...
No way! I'm thinking Steve and I want to go to Pliladelphia..any room left?
Sarah knows every word of the score to Wicked.
Missed it when it was in town last year.
I sat in the back for Lion King. Have orchestra seats for Wicked.
Re the Young Adult program. We do not have chaperones. We have staff accompanying and leading the program. Medical staff as well. The purpose is to have a fun weekend wherever we are - sightsee, do active things outdoors if the weather permits, eat at some great places, see some shows if that's what people want to do.
Laura- are the teen girls going to be doing the make-up stuff before the dance?? I still have those mirrors in my basement...
Nice thing about Wicked..is you aren't "crunched in" and they let you in early...
That is our green and jealous face at the end of your statement!
Sue - very little room left. Today, I had space for about 10 families, and I know three mailed forms. The hotel still has a few rooms left. Please fax me your registration this weekend if you are certain you want to come. And make sure you note on the form that you require gf diet (there's a place for it - lots of people have special diets).
No... the teens are going to be at Islands of Adventure all day Friday! The Teen Dinner Dance is Friday night! How many mirrors do you have? I wonder if we could do something with them at a regional...
Laura if you need help with the kids at the Philly conferance i would be willing to help out....
Hi all...i finally made it...had to study spelling and help finish up a report
Gee Julia, I'm glad you studied for this chat.
Hi Julia!
Wendy - You're on. Bring a swimsuit. Or shorts that you don't mind getting splashed in. We need pool helpers for the elementary and tweener pool times!
i have 6 or 8... and can always get more...
yeah i will spell every word wrong
A mother was in the chat last night asking about someone with a older child..like 14 who was going to ffl...i told her that when they registered...they might end up with a family who has an older kid...to help them through the conferance..was I wrong?
Hey Pam how are you
No problem I am okay with that...LOL
Pam - I'm excited about Wicked. I read the book and loved it, and have been trying to get tickets every time I go to visit Carolyn. They are so darned expensive.
Laura...Can I take Bernadette to Montreal?
I got lucky we went with girl scouts...so didn't cost the full price of a normal Wicked ticket...
Meghan- NO!!!
Fine here! Ben had his stress test today. Find out the results tomorow. He is feeling fine. Hopefully will receive a clean bill of health tomorrow!
hehe!
you are getting a cold weekend in the City Laura..we were there the first weekend in February and was nice...
We aren't doing the matching up of families this year - but we are doing a personal welcome when a new family registers, and we follow up to see if they have questions and how we might help. The First-Timers session on Weds afternoon is going to be much better organized this year. I'm expecting about 400 people (I learned from last year). Lots of food. Tables around the perimeter with the kids program staff so families can match faces to names, etc.
Enjoy the show! I love the music and the story line.
Pam hopefully nothing shows on the stress test...
Julia- when are you going to send out your annoying letter??
Maybe he just needs to iron...that helps with my stress
Stacy look for it any time now...i can't tell you for sure that wouldn't be fun
I was just going to ask Julia the same thing. Except I was not going to use the A word. It's about time, isn't it?
shoot...I should have told her to e-mail you...
laura will i be the one doing the personal welcome when the family registers...i will practice my Hi ya'lls
Ben and Keith are headed to Boston on Saturday. College trip. I don't do cold or go upside down on roller coasters. Sarah and I are headed to Palm Springs to visit my folks and take them Bat Mitzvah pictures.
It's ok. I'll be in touch with her, if I haven't already. It's hard for someone to fall through the cracks with so many people watching out for them! I'm just the first line... lots more 'welcomers' behind me!
Good idea Julia! I should have told him that when he was talking about lowering his stress levels.
Yes it is about time. Maybe i will look that up tomorrow...do you want the same one or a new one???
Thanks Laura
Julia - You will be at the registration 24/7. We will set up a cot for you. Practice your greetings and your "Julia Wave." Except I thought it was "Hi All Y'All"
Bernadette Tull and Adriana Rodenheiser will be with you all the time in registration as well. You're in charge, though, so yes, you get the first greet.
I am sure the test results we be good. No more pain since Friday!
Julia, are you coming to Philly?
That's great, Pam. I'm glad he's ok. Neal went back to work today, too.
Julia- I dont think you should be welcoming the newcomers... you "talk" funny..
Glad to hear that Neal is feeling better as well.
Hi Meghan...no we can't make it AGAIN...school for one thing and a really good friends daughter is getting married that same day.
What's been wrong with Neal?
That stinks, Julia...see you in Orlando...
Stacy...i talk funny???
Sarah thinks we should go because we had to miss San Diego because of her commitments.
Oh absolutely Orlando...i am counting already
No you don't Julia. Just.... different. Kind of musical. Yep that 's the ticket!
Pam- Jesse agrees with Sarah..
I don't have much of an accent, in my opinion, so I guess I can help out. I might start saying Y'ALL though hanging around with Julia.
I'm not the only one counting? Yay! Everyone thinks it is weird how I count the days to things...
Uh - he hurt his back changing the kitty litter on Saturday. Leaned over the wrong way and tried to pick up that 25 lb bag - and pop went his back. Ended up in the ER. Just a strain, though. A few day of meds and he's much better. Just in time to change the kitty litter again.
Meghan- how many days til Orlando?
Oh my...musical...that is the nicest compliment i have ever got.
152...about
WAIT! We have Philadelphia and Colorado... and showing the Quilt on the DC Mall at ADA before Orlando!
Till the 16th, when I leave for Orlando....155 till wednesday the 19th
Ever got...or is that gotten...see i didn't study english
I know Laura...I am just excited for Orlando
Oh shoot - my satellite is blipping at me - if I lose you, I don't really mean it - I'll be back on dial-up...
Well, it's a long flight from California to Philadelphia... but I have to tell you that one family is coming over from FRANCE.
cool Laura..fro the Philly conferance...i know a couple of families from the DC area who are coming..
hi
Laura any word from Louise Cloute from was it South Africa...she was such a wonderful person
Hi Ellen
Hi Ellen.. hows everything??
HI Ellen
How's everyone? Is Chanie coming again from Israel?
Well, I finally sign on for a chat for more than the last 5 minutes (Thank You Stacey) and now I have to go to a meeting for teens here. I can't wait for Orlando.
It's quite spread out (for Philly), although most are from the eastern corridor. As I said earlier, there are lots of families who I don't recognize. I'm very happy that they have found us.
Hi Ellen
bye Pam!
How about Barbro and her family? Are they coming from Sweden?
I'm glad you could come, Pam. Give Sarah a smooch for me.
bye Meghan
Night Pam
Laura- I heard from Jennie Klein- she said they'll be in Orlando this summer.. Has she registered yet?? Jess was thrilled to hear that Max will be back..
Smooches will be passed on to recipients! Bye bye for real!
I have not heard from Barbro - although it is still quite early. Early registration ends at the end of this month. Most people register in the regular registration period. Haven't heard from Chanie's family either. The first family to register were the Carr's from Scotland!
How old is Martyn? I remember him hanging out with Marissa and some of the Italians last yr.
That's wonderful news about the Kleins! I'll bet Max is 6' tall now. Nope, haven't registered yet.
Hows the Quilt for Life going?? Has Jeff been getting any new ones?? I think we have to push it... to make a big statement at Junes ADA showing..
Sometimes I'd like to "unregister." I seem to have the worst luck at the Conferences. And, Ellen, I still have my appendix. Maybe this year.
Martyn is 18. He'll be leading the young adult group with Marissa. They are already planning the Friday night shindig at City Walk. As 18+ participants register, I am sending Marissa their email contacts so she can write to them about the program this summer and make sure they all feel welcome and know what is going on. We will have a LOT of young adults over the next few years as our teens grow up!
We have two new quilts to put on-line. They arrive while Jeff was out of town. And, we got about 8 more blanks from his mom this week.
Mine is almost finished, Stacey....Hoping to be able to give it to Jeff in Philly!
Well, we're going to have a quilt-decorating session at the Philly conference for all those who haven't made them yet. Iron on photo transfers... where are Benny and Julia when we need them?
someone was asking about blank quilt squares in the parents chat..who do we tell them to e-mail Laura or Jeff
Hey I might do mine at the Philly conferance then.....LOL
Jeff has the blanks, quilt squares that is.
Laura, is it really possible that the Hotel for Orlando has already reserved all the non smoking Double rooms (the ones with the 2 double beds?) There will be at least three of us, perhaps four...I am just wondering
I was looking at pics from last summer , and came across the one of Benny ironing Pams dress....It made me laugh...
There really aren't too many smokers in our group, ahem, Stacey (we need to bug you and get you to quit
Jeff always has a stash of blank squares for people who want to decorate them at home. In Philly, we're aiming to have several dozen blank squares for families to decorate right on site. I've emailed the Philly list explaining this, and asking people to bring iron on transfers to move things along. Of course, you may bring your quilt square home to finish it. The point is to have a wonderful square that reflects your child and your family, and that tells a story to all those who view it. It's a powerful thing.
I guess in my naivete, Brenda, I would like to beleive almost all or all hotels are smoke free at this point...guessing not, eh?
okay..then I think mine needs to include the animals what do you think Ellen?
NO! The hotel is having a great deal of trouble with their reservation systems when you call the 800 number. Call the 407 number and you will talk directly with the hotel, and they will give you a reservation. There are 400 double/double rooms in our block, and as of this weekend, about a third of them are reserved.
YES Wendy!
Good...do you have the 407 number?
you would have been proud of me today Ellen..i was campaigning for the PA at my endo's office to make a square for her son....
She must be looking for it. I don't know it.
How's this: 1-407-351-5555?
We are going to get lots of people to make quilts...we're campaigning heavily at the CWD Chat and last night at the DTF Chat too
The Renaissance Orlando Resort: 407-351-5555. If you have trouble, request Carol Martin. She is in charge of our group reservations. The problem is that the hotel took all the double double rooms offline, so no one else but our group can reserve them. That doesn't show up when someone calls the 800 number - the doubles just all look taken (which they are, by CWD). It's a stupid glitch in the system which they know about, but can't seem to fix. Very frustrating. I hope that people will call me if they have difficulty with reservations.
Perhaps Laura has lost her internet connection. Happens when it rains, snows, is windy, etc.
407-351-5555
Ellen- Can I assume that you and Zack will be in Orlando?? Jesse bonded with him and cant wait to see him again..
Thanks Brenda!
Laura just called and said that she lost her Internet connection. I guess it's as good a time as any to wind down the chat.
hi Jeff...
Zack starts college June 28 so I don't now if he'll be able to go Stacey. I still hope to attend
Hi Jeff
Good night, everyone....exam prep is calling!
Any other questions/comments/etc.? Since Jeff is now here, we can try to help.
Hi Jeff- Jesse and I were wondering if we would be allowed to "update" his quilt?? he's embarrased that its an old picture...
Night Meghan
...hey need some help...
Hi Chefmom..what's up...
I'm back - don't know for how long. It's lightning and thundering - bad news for satellite. I can't wait to get DSL... The chat is officially over, but the room will stay open for a bit. Thanks, everyone, for being here!
Ugh Laura...about the Satellite...
has 1st bad stomach bug since dxd. Nothing staying down...was 94--104 with some lemon ice...now asleep...how often do we have to check bs??
Stacey ... Marissa has also asked to update her quilt. I guess it will be OK.
Oooh, I know that one Stacey. No, he's stuck with the old one. "There are no provisions to update your quilt." That's exactly what he told Marissa about a week ago. Not even Marissa can switch her quilt ("mine's ugly" Yep, I made it, not Marissa.)
I'm signing off ... tired from a week of being out of town.
Stacey - Make a new quilt square! I'm going to for Sam. His photo is really, really old. That's part of the beauty of it!
Geez, we need to communicate around here.
chefmom..i would say ever hour or so..and give her small sips of soda..or lemon ice...
heh ... I guess Brenda and I should get our stories straight.
I'd prefer no updates to quilts -- they represent a point in time.
how fast can she go down? she had a violent bout....both ends...sorry so blunt..
Check the BG every 2 hours or so, esp. if there are ketones. You need to check for them, even if Emily is in range or low.
My neighbor is a quilting pro... she said she'd teach me how to do a "real" one..
is the concern going low with no food....or hi from sick?
one sec..where is the mini glucagon dose link
Depends on when she last had NovoLog and when she last ate.
chefmom, often as you can and you have to check for ketones. Do you have a precision xtra meter? dehydration and ketones can come on fast and furious. Have you spoken with her doctor? She can have normal or low blood sugar and ketones.
one or the other..also dehydration..make sure you check ketones chefmom
See http://www.childrenwithdiabetes.com/d_0j_20w.htm
too late jeff... you already said yes.. I have it in writing ..
Stacey..jeepers your son was diagnosed on my birthday..
ok try to check kt..but shes so miserable.....1st time cried since dxd...
With a stomach bug, I'd check Sam every hour through the night. If bg drops and you can't keep carbs down, consider a glucagon minidose. Also, check for ketones. They can happen with illness, in the absence of high bgs. If there are ketones present, you need to give insulin and fluid to counteract.
Has she already gotten her Lantus this evening?
didnt call endo...what can they tell me? I should call?
Chefmom, it's very important that you phone the ped endo - this can be considered an emergency.
They can tell you if they want you to go to the ER to get her hooked up with an IV.
I would call the endo...after checking ketones..they would help you with the insulin doses ...
no omg didnt even realize so late....and no dinner...will call endo now...
I'd call if you see no improvement in the next couple of hours. They don't really seem to care until your child has mod. or large ketones, is still puking, etc.
lollipos are also a good way to get carbs into her... either that or a teaspoon of real soda every 10 minutes.. it doesnt really hit her stomach, but will keep BS up..
Don't they often recommend flat or room temp. soda?
yep they do Brenda..actually my endo said even when high and fighting ketones almost better to go with diet soda over water....she claimed less chance of it coming back up..
Hmm, just realized I have neither lollipops or reg. soda anywhere. Trying to get the kids to drink less soda. I do have one bottle of Powerade left from Timothy's stomach bug over the weekend. I will go hide it asap for the next emergency.
That's interesting because Zack hardly drinks soda but absolutely craves Diet Coke when bg is high.
With vomiting and diarrhea - especially repeatedly - the concern really is dehydration, which can lead to DKA very quickly. It's nothing to fool with. If the vomiting and diarrhea have stopped, see if you can get some fluids back into her. If they haven't stopped, definitely call the endo, who might consider the ER for IV hydration. I hope you are able to test blood ketones - that is a key piece of information right now.
Well we don't keep it in the house
lucky for you ellen...
There was an article in the latest issue of Diabetic Medicine about the importance of blood glucose testing.
http://www.blackwell-synergy.com/doi/abs/10.1111/j.1464-5491.2005.01771.x
I'm surprised more doctors don't push the use of the Precision Xtra for that purpose
Ok. Bedtime - and thunderstorm time - here in Michigan. Weird weather. It's supposed to turn to snow tomorrow. I'm signing off. 'Night
I mean blood ketone testing
Night Laura
Goddnight Laura. I think I'm signing off, too. See you all next time.
Hope chef mom's daughte is okay soon.
oooops that's daughter
hello
hi
hiya
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