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CWD Conferences and CWD Adventures Chat - March 28, 2006
Moderator (server) Tue Mar 28 08:00:00 PM EST 2006
Our chat about CWD Conferences and Events starts at 9pm Eastern.
hi
Hello raplhied
hell meghan and ralphied
Hi Mandie
so where do u live Meghan
Maine
far eastern corner of the USA
im in australia
its llunchtime here so id better go and eat....take care
Our chat about CWD Conferences and Events starts in 10 min in the 'Conferences' room.
Hi Meghan - How are you feeling?
hi im back
okay
hi mandy may i ask u a question
still have a nasty cough, but my energy levels are returning to normal...went to the gym here for the first time in 2 weeks
hello? wuts this all about?
Meghan i think i met you at the conference in philadelphia last weekend
I think so, Renee
Hi Shannon - This is a chat specifically to discuss the upcoming Children with Diabetes conferences and events. You can see a list of what's happening at this link:
http://www.childrenwithdiabetes.com/activities/
The conferences are great fun - for parents and kids.
Renee, isn't Meghan wonderful? She's a part of our family!
renee or someone else can i would like to ask if its strange my daughter is urinating a lot tonigjt but her blood levels are fine.is that common in diabetes or just a fluke
i was the lady with 3 boys
Did she drink a lot today Ralphied?
dillon urinates a lot too even when his sugars are normal
she is Ellen
Renee - You were the lady without three boys! They were all busy, right?
I remember you now...
maybe not a ton though
i thik im overanalyzing this
ok
only been 3 weeks im not sure of everything yet
Well, it's 9:00, so let me officially open the chat and welcome anyone and everyone who would like to have a conversation about CWD events (past and future). Did you all have a good time in Philly last week?
Yeah laura, so much so that I am still enjoying the aftermath...
seriously, i loved it
that was me with the 3 boys and they were busy allright
my husband joe says hello Laura and he hopes to see you in Orlando
hellooooooooooo
Hi Stacey
Laura, we were going to drive in on Wens. and get there around 3-4 p.m. Do you recommend that we come tues so we can be there for wens morning activities?
sorry, meant should come tues.
Hi Joe
T - Lots of stuff happens on Wednesday, particularly the Focus Groups. There are a lot of them posted right now - they each take about 20-30 participants, and it is some wonderful discussion. Here's the link:
http://www.childrenwithdiabetes.com/activities/orlando2006/focusgroups.htm
Also, if you are going to volunteer during the conference, Tuesday evening is the Volunteer Family Reception (ice cream sundaes poolside - you get your volunteer assignment and t-shirt). It's fun. I suggest coming in late Tuesday if you can swing it.
I think I'm finally recuperated from Philly...It was really great.. but, Jess has had the Flu since last thurs....
Laura- is this hotel walking distance to stuff, or is a car necessary??
hi all
Oh, I'm sorry that Jesse has been sick. Lots of kids had the flu. Lots of big kids, too (Meghan).
You were a great help in Philly, Stacey. Thanks! And Jesse did a great job on the teen panel. (And Scott did a good job driving)...
We will have to leave early Sat morn. My 25th high school reuniuon dance is Sat night. I hope to get back in time to go!
Sorry to hear about Jess/flu
Hello everyone!
Laura would you like to tell everyone about the Quilt?
Depends what you want to walk to. Sea World? Right across the parking lot. Other parks? Rent a car. We're going to rent one just so we don't have to bother with worrying about that aspect.
Hi Bernie!
When the teens go to Island of adventure, do the parents go, or do we have meetings or just go do whatever? And Hello to everyone!
Hi all...made it...still getting kids to bed
Hey Bernie
I just sent you all the info to welcome the first group of first-timers! We have about 120 families registered right now, and about 25 are first-timers. For those who don't know, Bernie is the 'welcoming committee' for those families joining us for the first time - it can seem pretty big (2,000 people) - and a little scary if you've never been to one. Bernie's job is to help you figure out how to navigate the conference.
Jess really enjoyed the teen panel.. He was sooo nervous before it started.. Do you have the panel in Florida, or just at the regionals??
hi Julia... got ur picture email this week...
I once went on the Behind the Scenes tour at Sea World and it was fascinating, we saw the baby penguins in the very cold areas. Some of you may want to arrange to do that. And for the little ones, if you read Mr. Poppers Penguins before going...it's even more fun :-)
Hi, Ellen. We're neighbors. We are in Al.
Hey, Megan.
Thanks for the intro, Laura! I got your email... will let you know when I get the stuff you mailed.
Hey Bernie, this is our first time to come. So looking forward to meeting everyone.
HI Stacey...glad you got it...i will remind you a couple hundred times
The teens go with a group of chaperones. Parents stay at the convention center and attend their own sessions. We have a dozen chaperones and staff all set. Transportation will be provided by Mears (bus), and entrance tickets and lunch vouchers will be provided for the kids. We'll have a check-in area where kids will need to come (check and report bg) before lunch in order to get their vouchers... and also we'll have 'wandering' staff with meters, glucose, phones, etc. to keep an eye on things. It will be a fun day.
Laura, can we get info into packages for canadians to meet sometime/somewhere?
Hi T.
Julia, our pics are in the mail
Laura- is Scott included in the teen chaperones for the park?? Cause if he isnt, I volunteer him... lol...
Ellen - Can you post the link for the Quilt info? The Quilt will be displayed in the Exhibit Hall throughout the conference... better yet, if you get your quilt square in Jeff Hitchcock's hands by May 8, it will be part of a huge display in front of the U.S. Capitol building on June 8 as part of ADA's Call to Congress (we had a wonderful invitation from them to show the quilt during this event).
What about their pumps while they are at the Island? Is there alot of water activities where they will need to take their pumps off?
Stacey, I must say, I was pretty impressed w/ Jessy's performance on the teen panel. He's becoming more confident. We're proud of him!
Heather i will be watching for them...got the first picturres yesterday...that means July will be here before we know it
Scott is a chaperone (you volunteered him already and he said yes!).
Heather - yep, we'll find someplace for the Canadian group to meet on Weds afternoon,
My son Craig is really looking forward to making some new friends. He's alittle shy tho.
Quilt for Life
http://www.childrenwithdiabetes.com/activities/quilt/
Laura- Jesse wants to know if the teens will have DDR time.. and if you ate all the fudge??
Hi, Julia! Thanks for the email you sent everyone. I will send Trevor's picture soon.
I'll chaperone Islands on Friday....
Not a lot of big water attractions at the park, so kids should keep their pumps on. There is one real soaker of a ride, and with that one, we'll have a CWD staff person sitting at a shaded table with a cooler, and we'll ask the kids to leave their pumps and meters (in marked plastic bags) so that it doesn't get drenched. There is also one electromagnetic ride - it's a kiddie roller coaster and we'll ask the teens not to go on it.
We have annual passes to Universal and Islands. Alex wears his pump. There are a couple rides that they will get hosed on, but not too many.
Hey Bernie...i will be watching for it
Laura, thanks for that information.
Fudge is all gone! (what - you thought it might last a whole week?)
No DDR time unless the tween/teen faculty are arranging something I don't know about!
Laura - which ride is that, cuz Alex rides the rides
how many days until FFL? I am getting excited
Since i have a tweener this time...what is DDR???
Don't worry about shy. Most kids are shy when they walk in - it doesn't take long before that is over and done with.
Oh - I don't remember (because it's a little kids ride, and the group we're bringing are teens). It's the mini-coaster.
I lost count of the days, Ellen
What a strange question, Julia! You want to know what DDR is so that you can find out what your tweener won't be doing? It's Dance Dance Revolution!
is it the unicorn one? Alex is 3 almost 4
I think it is about 113 days
laura my husband wants to volunteer for orlando , how do we go about that
OMG...i am so not into all the initial talk...i still write out all my words...can't figure out what the kids are talking about.
BUT...Hannah will love the DDR
Also want to remind everyone that the young adults (ages 18-25 or so) will be going out on FRIDAY evening to CityWalk. They're going to dinner and whatever entertainment venue they'd like at CityWalk - we're providing a shuttle over and back (leaving at 7, returning at 1). Marissa Hitchcock and Martyn Carr are coordinating the group's activities.
As far as pumps go, if you own a Frio cooling pouch, you could put your pump in it while still carrying it on you. We've tried it w/ Trevor for hot days dirtbiking.
Anyone interested in volunteering, please send me a private email: laura.billetdeaux@childrenwithdiabetes.com I have lots of jobs I need help with - everything from helping Julia at registration for a couple hours (you get to meet lots of people) to standing guard over the Fun Run course on Thursday morning to make sure no one goes the wrong way... to chaperoning the Tweener Karaoke Night on Friday (I need 6 chaperones for that... any takers?)!
Is there anytime left over in the evenings to go to one of those dinner shows, like medival times? And are they close to where we will be?
Laura, should Mike be ready to work on FFL for food now? he was working on another conf.
Hi
Bernie, where do you find a Frio cooling pouch?
i'll do the karaoke thingy friday with the tweeners
That was the Philadelphia conference last week, Heather. He should have his head above water, now. It's fine to contact him. btw, the gluten free table went really, really well last weekend. Best we've ever done it, imo. Mike did a great job.
Karaoke would be great too. Well for the tweeners...not for me...you don't want a microphone in my hand to sing
Bernie, which size pac did you buy?
Meghan - Aren't you joining the young adults on Friday night?
i don't know...i'm a little old...
OLD???
T - Lots of people come for an entire week- they arrive Saturday or Sunday and stay a full week. That's the only time available - before or after the conference - to do the 'other Orlando' activities. We keep everyone pretty darned busy from Tuesday evening through Saturday night.
yes, Julia...
It's up to you. I'd love your help with the Tweeners.
Julia, compared to you, no one is old.
No Meghan
T, good question... I got my Frio at the conference in Orlando, but they must have a web site. I'm looking at the instuction sheet it came in and I just see a mailing address. Laura might have more info if you contact her later.
Hi Deb
Maybe we can send Meghan some gray/blue hair dye so she can see what it looks like to be old LOL
I know...what can i say
Will Dexcom be a vendor at FFL?
frio http://www.friouk.biz/us/
Grey and Blue?
http://www.friousa.com/
Oh My...i have to tell you...just colored my hair and it has gotten so gray...that the color is totally different this time. Have to find a darker color...OLD is not good
i think i'd rather help with the tweeners...
Blue is because some older ladies hair looks blue instead of gray
Heather, I bought one for the pump and an elongated one which we use for his insulin pens (+ an extra vial-though it's a tight squeeze. You can't over soak them... or nothing will fit!
We also tried something in Philly which we are going to carry forward to Orlando. We'll have the kids in Tyvek bracelets Thurs/Fri/Sat. Bright green for those with type 1 (adults can wear them, too, so the kids can see what cool role models you are), bright orange for sibs and friends without type 1, and Mike (CWD dietitian) has suggested that those who need a gluten free diet have a yellow wristband as well - that helps us keep everyone safe. We'll be taking the kids swimming again, and we need to know at a glance which ones have type 1 and which don't. As I said, it worked great in Philly.
Thanks Ellen and Heather. I will check it out.
Like my old neighbir lady...from many years ago...
Hi Everyone...I believe the frio people make a pump side pouch....
I liked the bracelet thing...it worked really well!
tell me,,,,I just learned a friend's 10 year old son has been recently diagnosed with juvenile diabetes,,,is this something that they are born with or did it just develop like now??
Laura...my only suggestion on the bracelets is if you can get the plastic ones..that would be great...some of those kids removed those suckers so darn fast at the pool...
Ellen - Not sure about Dexcom. I've been talking with them, and they don't have an indication for pediatrics, so they aren't sure they can be with us, even though we do have lots and lots of adults with type 1 at the conference. We'll see. Exhibit space is just about sold out - I have all of two booths left.
I think the colored bracelets sound great...and the kids will wear them
Sorry - already bought 10,000 Tyveks. They'll have to do.
That's it Meghan!! Until you can show me at least one gray hair you can not use the O word (as in OLD)...that makes us feel like fossils!
Gee the Medtronic Guardian RT isn't approved for pediatrics either but parents are buying it for their children
i pluck my grey hairs.
I figured as a suggestion for the 2007 conferance..was just funny to watch some of the kids rip those suckers off...
does anyone know about juvenile diabetes,,,are they born with the disease of did it just recently develop??
I use my grey hair to my advantage..tell the girl scouts they are there because of them...
Meghan.. if I plucked my gray hairs... I'd be bald...
OMG, I so get a weave and cut every 6 weeks. I don't even know for sure if I'm gray yet.
Yes they say if you pluck a gray hair 8 more will grow in
i think the braclet in philly was a great idea
Hi toof - Please send your friend and her family to the CWD website. I'm glad you found us. There are 26,000+ pages of content on the www.childrenwithdiabetes.com website - and all of us have been in your friend's shoes. You're a good friend to be reading up. In answer to your question, when type 1 diabetes rears its head, the symptoms happen pretty quickly. And if untreated, kids will die without insulin.
This is a chat about CWD conferences... if you're looking to chat about diabetes in general, you might want to switch next door to the parents list.
Stacey was Jesse at the conference in philly?
How do we sign up for the focus groups? Which ones are more kid friendly?
yes.. he was hanging out with Dillon... and the "girls"...
and I read that that was a myth...can we have a "getting rid of grey session, LB?
ok i thought that was him... dillon cant' wait to go to Orlando
thanks,,,billetdeaux,,,but how do I switch to the parents list??
Laura, is this summer's conf going to be at the Century Plaza?
I heard that drinking Margaritas.. gets rid of gray hairs...
I like that idea Stacey!
You may sign up for the focus groups by looking at the schedule, deciding which ones the different people in your family want to attend, and then emailing me. I keep the master list for each group. The max number per group is 30. Some are already nearly full... and still others haven't listed a topic yet, so more good groups will be opening. Here's the link to the schedule: http://www.childrenwithdiabetes.com/activities/orlando2006/ParentsSchedule.htm
If that is true I am headed for the bar
Laura, the bracelets were a BIG help... we just have to remember not to tie them on too tight because they shrink in the water and I had a lot of kids come back for new ones because they were too snug!
Allison - No, the conference is at the Renaissance Orlando Resort in Orlando (by Sea World). We cancelled the Century Plaza venue almost a year ago - not enough space for how we have grown.
That's why I bought 10,000!
thanks
can I have a green one on each wrist?
Toof - See the box off to the right where it says 'room'? There's a drop-down menu. Click on it, parents will be one of the choices. It's always open - usually a few people in there to chat with; sometimes a bunch!
I hope the teen sessions are not full... I still didn't register
Laura- any idea on the #'s for the kids /tweeners/ teens yet??
Also - in answer to Ellen's question - there are a few focus groups that are specifically targeted for kids. The companies want their input on a variety of topics. Read the blurbs that go with the schedule... they each say if a particular group is specifically for kids, teens, or parents. Focus groups are very worthwhile. You can sign up for 1 or keep your entire day busy with 4. Plus... the companies feed you, which is always nice.
You don't register for specific sessions... just send in your registration (to me) and I sign up the kids for their particular age groups. Childcare closes at 100 kids. We're at about 25 right now. We're expecting about 200 teens again this year!
i love drug/product reps!
i better get with the program then
Also... about 200 in the elementary and tweener groups as well. That will be SOME scavenger hunt!
Laura -- are there any scholarships offered for adults with T1? Or only for families of children with T1?
Hi all. Just coming in a little late.
While I'm thinking of it... it would be nice if each of us could encourage at least 1 family w/ type 1 to make a quilt in honor of their loved one and help us make a huge statement when it's displayed at the ADA conference in June.
I'm still trying to figure out how to get to DC.. where to stay etc...
Also - and I can't stress this enough - if you have not made your hotel reservations... do it now. The room block is nearly two-thirds full. When the hotel is sold out, it's sold out. Please go online to the conference website for info about how to make hotel reservations. You can't access our conference room block via the regular Marriott phone numbers or website - we have a special reservations system, and you do need to use it.
Hi Michelle...
Stacey..i think I am taking the train...
Hi, Michelle! How's Trent doing on the new pump? I bet it feels as light as a feather after carry the 'beast' around for so many years!
hi Michelle.. how's trent feeling??
do we have the whole hotel, Laura?
Hi Deb, right now we are just offing the scholarships for families with children with diabetes
Deb - The only scholarships I know of are through the Education for CWD Foundation, website www.ecwdf.org The deadline for applying has been extended to April 15. That may just be for families with kids, though - I'm not sure. Julia?
True, Bernie. Though I hope that we will have a quilt- making session at future conferences like we did recently at the PA regional.
We have most of the hotel, not all of it. The Renaissance has ongoing contracts with airlines, etc. So some rooms are being held for them. We have over 2000 room nights being held, and we've reserved about 1300 of them as of today. So - don't wait to make a reservation.
Hi Michelle!
i might actually get the pictures taken for my quilt square this week
Laura and Deb...that is correct...
Ok - cause I would LOVE to go to a conference SOMEWHERE! Cause there never seem to be any close to me! I've never seen one in St. Louis.
Trent was trained on a new pump in Conshohocken. He hasn't commented on it being smaller than that brick of a D-tron he had. But he is very interested in the Insulin on board feature. His numbers have been for sh*t though. I think he's getting sick.
Hi Michelle
Deb - We're holding a conference in Chicago in September. That's closer to St. Louis than Orlando. Why don't you come to both?
I really enjoyed watching the kids and parents design their quilts... it was a nice way for us volunteers to wind down (though clean up was a drag!)
what pump is Trent on?
Hey Laura. Did you see my plug for a quilt-making session at future conferences?
Michelle - Watch for flu and strep. Those are the bugs I've been hearing about post-Philly.
I did! I did! Did you see it written in the schedule?
Renee, he just started on an Animas. He was on a large D-tron.
Laura - if I could afford to, I would. Unfortunately, I can't afford it.
Michelle... werent you the one who was against it???
What is the dates for the Chicago conference?
I have to look at the schedules. Where is quilt-making?
okay so now your telling me what i have could be strp...
Dillon just started pumping 2 weeks ago and he is on the animas too
... and did you see your name by it as 'session leader'...??? Just teasing you. We do need some crafts-minded parents to watch over the Quilt-decorating room at FFL. We'll have one room dedicated to decorating blank quilt squares. Kids need to bring a parent in order to work on their square in that room. If you're interested in staffing this, email me!
Stacey, I was against quilt-making. I thought you couldn't make one in one session. But, you can. Or you can start one and get a good start with input from others.
Chicago is Sept 29 thru Oct. 1... i do believe
Michelle, Trevor's numbers were outrageous up until yesterday... he had chest and sinus congestion and was miserable. Don't be surprised if Trent comes down w/ something like that.
My niece has strep right now.
going to Michaels was so much fun!!
I would lead it again! I loved helping parents. But if someone else does, I'll still be there.
Wendsy - if you've had a sore throat since last week, do get checked. I know of 3 positive strep cases... which probably isn't any more than in a general population of 400 people, but we know they had it and were among us... so check it out if you are still sick.
Michelle- are we going to make the beed tag necklaces with the kids???
Trent's throat has two large, swollen glands in the back. Are those tonsils?
We've all had it Bernie....I am still hoarse...
It's during the day, though, Michelle. You'll be busy with the elementary kids.
Yes, Michelle...are they deeper in the throat, as if they are sort of half hidden by the tongue?
wendy, are you going to orlando??
Stacey, I will look for beads for the lanyard making session.
Shoot, I'll miss the quilt-making. It was a nice way for parents to unwind too, though. If they don't want to go to the bar or don't drink. I did both. . . .
not sure Yets Stacey...still trying to figure it out...Michelle..i have a lot of beads..believe me being a girl scout leader whose girls have out grown crafts have lots of left overs
Correct on the dates for Chicago. Sept 29 - Oct 1.
I'll keep my eyes out for cool ones too..
I've got to run. Its been nice chatting with everyone.
Thanks for joining us, T. Looking forward to seeing you!
Bye T.
Did I leave anyone's question unanswered? I tried to keep up - but sometimes the conversation goes so darned fast!
Night T
I should put out the word that we take all craft supplies. The kids are so handy; they make use of anything.
Good night T. See you in Orlando?
that was the best session with them.. they really loved it so..
The lineup with the guest athletes is very exciting.
Michelle...i also have some markers and crayons....lots of stuff..actually two boxes of stuff...
I'd still like to see those men in kilts again
Yes, Bernie we are planning to come. Bye.
We'll take it all!!
i'm with Ellen on the men in Kilts
Ellen, the kids love the guest athletes.
So do the moms. . .
Is Nicole Baker coming this year?
Stacey does jesse have an email addy?
Let me add one thing because someone emailed me today about it. Dress code. There isn't one. The conference is very informal. Shorts and t-shirts are fine. Obviously the kids need swimsuits for their pool time with the group. Banquet is a little dressier, but shorts and tees are still fine (some people wear slacks and dresses, but - um - I don't). The one exception is the Teen Dinner Dance on FRIDAY night. That is a dressier event. I know some of the girls will be quite fancy... Sam has a new suit... and on the other end of the spectrum, nice pants and a polo shirt are fine as well. Just no shorts, jeans, or cut-offs. Please share that with your teens.
Yes, Nicole Baker just confirmed that she is coming this year. She'll be speaking in the Young Women's session (led by Fran Kaufman).
thats gonna be a hard one for jess... How about a nice polo with nice shorts??
For women, bring a scarf. A scarf makes anything look good. That is my rule!
One thing about the quilt making on site is that we need to stress the importance of securing all the items on permanently (w/ long term use in mind)...
Laura- are the teens gonna do the makeup again?? I have all those mirrors..lol..
Fran Kaufman is great!
YAY!
Yes, the athletic line-up is wonderful this year! And we haven't finished adding our athletes yet - we're waiting on bios and photos! Kris Freeman will likely be with us, and several others who you'll see online shortly!
Stacey just wait mom is so salivating to get rid of this stuff...you are lucky the box isn't packed and sent already...maybe should tell her i need to deliver it to Orlando...
Stacey - Let's use the mirrors in a regional - Chicago?
Yes, Bernie. And things can't be too bulky. And the quilts get folded in thirds. So, things shouldn't be at the folding points.
Michelle - Even a wave runner.
a wave runner??
a wave runner? we can do that in Cayman...do they have those in the Orlando area?
Nice polo and nice shorts are fine. As long as he feels comfortable. It's a 'dress up as much as you want' affair... but definitely don't dress down. I'm a bouncer for that evening - and I'll ask kids to go change! (seriously, it's the teens special evening, fancy dinner, etc.)
Laura? a bouncer?
Stacey, Jesse can wear slacks.
He's right here.. said he'll wear a pretty dress... lol..
I'm teasing Michelle. We're doing some work in May on the Marco Island conference next January. We're going to rent wave-runners for a little R&R. I want to ride next to Michelle. And see her scarf blowing in the wind.
I can see Jesse looking like Don Johnson in Miami.
Speaking of clothes and shorts....Laura i love those shorts you wear with all the pockets...where did you get them
Yep - you haven't seen my MEAN face...
I always need pockets working the desk
the plaid ones??
J Crew, about 2 years ago. I love all the pockets.
Jess can wear a kilt!
julia- how about one of those cloth belts with pockets, sorta like a short apron.. that they wear at flea markets..
the brown plaid ones?
JCrew...great... i will get on line in minute
It'll be kind of Grace Kelly-like. Me on a wave runner with a scarf.
i bet there is a j crew here somewhere
Stacey, the dress code for teens is a good learning experience for the kids... it's a way for them to show that they know their etiquette and can fit in w/ any decorum... tout that to Jessy and see what he has to say. I'm sure he'll be o.k. w/ it.
Okey dokey - it's past 10 and I'm old and need to go to bed. Thank you so much for chatting tonight. Just think - four more chats and we're there! G'night everyone.
NO...no apron looking things.. i am already southern enough
Stacey Dillon has been asking about jesse , how is he doing?
good night Laura!
Night Laura....
It is a way to practice for all those interviews, etc.
Of course, my Mennonite father in law had to buy a suit for our wedding. Didn't own one.
nite all
Sleep well Laura.
Nite Julia.
Night Julia
Renee- he has the flu, but otherwise is fine..can't wait til orlando..
gotta go...Got an early day tomorrow
Night Meghan
i'm outta here too.. cya soon!!
Night Meghan. Night John-boy.
Good night everyone! Michelle hang in there w/ Trent... I hope he doesn't get sick for too long. I used Mucinex and sudaphed... and Trev's much better now. 'Night!
Night Stacey
and Michelle and Bernie...
Michelle, is that from the Walton's?
Thanks Bernie. Taking him to the doc tomorrow.
'Night Julia... miss you. We don't get to see enough of you!
Yes, Meghan.
Guess I'll start winding things down here. . .
G'Night.
aloha
anyone around?
Hello
guess everyone found something more interesting to do than to come chat - can't imagine what could be better -
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Last Updated: Wednesday March 29, 2006 08:08:34
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