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  Back to Chat Special Pump Chat
On December 17, 1997, Tim and Deb -- representatives of insulin pump maker Disetronic -- hosted a special chat session about insulin pumps. This is the transcript of that session. The first message is at the top and the last message is at the bottom.

Wed Dec 17 1997 21:00:23 Eastern US
Brenda H. () from 206.112.197.131
This is where we are to discuss the pump.

Wed Dec 17 1997 21:02:14 Eastern US
Cindi () from 128.148.19.144
Hi Brenda & thanks!

Wed Dec 17 1997 21:02:16 Eastern US
Tim and Deb at Disetronic (twenner@ix.netcom.com) from 204.30.69.172
Tim and Deb are now here from Disetronic!

Wed Dec 17 1997 21:02:47 Eastern US
Tim and Deb at Disetronic (twenner@ix.netcom.com) from 204.30.69.172
Good evening everybody.

Wed Dec 17 1997 21:02:49 Eastern US
Judy from NY () from 206.83.77.57
Hi

Wed Dec 17 1997 21:03:03 Eastern US
Brenda H. () from 206.112.197.131
Hi Tim and Deb. I think there are some people in the parents room who should be wandering over here in a little bit.

Wed Dec 17 1997 21:03:27 Eastern US
Brenda H. () from 206.112.197.131
Judy, which pump does Elissa use?

Wed Dec 17 1997 21:03:47 Eastern US
Tim and Deb at Disetronic (twenner@ix.netcom.com) from 204.30.69.172
Ok. Thanks! Any questions from the few people that are here already?

Wed Dec 17 1997 21:03:50 Eastern US
Judy from NY () from 206.83.77.57
Tim & Deb - I have a 16-yr-old daughter on the pump.. Best I not say which brand

Wed Dec 17 1997 21:04:10 Eastern US
Judy from NY () from 206.83.77.57
the other one

Wed Dec 17 1997 21:04:17 Eastern US
Brenda H. () from 206.112.197.131
guess you answered my question, Judy.

Wed Dec 17 1997 21:05:43 Eastern US
Brenda H. () from 206.112.197.131
Are there any special features about your pump which make it different from the other brand?

Wed Dec 17 1997 21:05:50 Eastern US
Tim and Deb at Disetronic (twenner@ix.netcom.com) from 204.30.69.172
It's great to hear that your daughter is on pump therapy, is she enjoying better control?

Wed Dec 17 1997 21:06:34 Eastern US
Judy from NY () from 206.83.77.57
she has been on a pump since age 3

Wed Dec 17 1997 21:07:10 Eastern US
Julia fr NB Canada () from 24.231.2.84
Are parents of non pumpers welcome to listen and learn.

Wed Dec 17 1997 21:07:14 Eastern US
Tim and Deb at Disetronic (twenner@ix.netcom.com) from 204.30.69.172
The main differences with the Disetronic pump is that it is waterproof, has a quiet delivery system, and comes with a second pump at no extra cost.

Wed Dec 17 1997 21:07:56 Eastern US
Brenda H. () from 206.112.197.131
waterproof in that you can shower with it, or can you swim while wearing it?

Wed Dec 17 1997 21:08:03 Eastern US
Ernest Hayman (haypops@earthlink.net) from 207.217.244.183
Can we ask questions about insurance and HMO coverages

Wed Dec 17 1997 21:08:04 Eastern US
Renee () from 152.163.205.235
Hi Tim & Deb..my almost 15 yr old daughter is on a Minimed 507..has had diabetes over 5 yrs..started pumping 21 months ago..it's made an incredible difference for her...

Wed Dec 17 1997 21:08:49 Eastern US
Tim and Deb at Disetronic (twenner@ix.netcom.com) from 204.30.69.172
To Brenda H:
The pump is waterproof both in the shower and also while swimming.

Wed Dec 17 1997 21:09:21 Eastern US
Tim and Deb at Disetronic (twenner@ix.netcom.com) from 204.30.69.172
To Ernest:
Sure, ask away!

Wed Dec 17 1997 21:09:29 Eastern US
Renee () from 152.163.205.235
What is Distronic doing as far as marketing & education to "spread the word" about the benefits of insulin pump therapy for kids?..We've heard a lot of resistance in this Chat Room from parents whose kids endos vetoed the idea...

Wed Dec 17 1997 21:10:17 Eastern US
Brenda H. () from 206.112.197.131
This may sound like a stupid question, but as a non-pumper I've been curious to know why there is so much tubing with it. I thought I saw someone once say it was something like 40 ft. long. Did I misunderstand? Either way, is this a ref. to the tubing between the insertion point (don't know if it has a technical name) and the pump inself?

Wed Dec 17 1997 21:10:58 Eastern US
Cindi () from 128.148.19.144
Tim & Deb, please explain to me (in addition to the extra pump i.e., two for the price of one) makes your pump better than the competitors - we are researching currently, for the best buy.

Wed Dec 17 1997 21:11:31 Eastern US
Renee () from 152.163.205.235
40 INCHES Brenda!!! LOL..but Melissa prefers to use the 24" tubing...

Wed Dec 17 1997 21:11:31 Eastern US
Ernest Hayman (haypops@earthlink.net) from 207.217.244.183
How large of a dawn phenomen would you guess is necessary to get the pump from the HMO

Wed Dec 17 1997 21:12:15 Eastern US
Brenda H. () from 206.112.197.131
Renee--it must've been very late one night and I was so tired I misread the chat! LOL

Wed Dec 17 1997 21:12:29 Eastern US
Elaine E. (jime@megsinet.net) from 209.81.172.150
I have had diabetes for 26 years and am now thinking about getting a pump. I e-mailed your co. the other day and a sales rep contacted me today-he says information is on the way. Everyone I talk to that has a pump really likes them and say they could never do without it again.

Wed Dec 17 1997 21:12:45 Eastern US
Mary3 () from 209.130.142.56
I have three kids with diabetes and am interested in the pump for 2 of them. What are the very real dangers with the pump and should kids with chemical depression be advised to use pumps?

Wed Dec 17 1997 21:13:40 Eastern US
Brenda H. () from 206.112.197.131
For the tubing, insulin cartridges, whatever else--do you have to get this stuff directly from Disetronic or is there another method, like Fifty-50 pharmacy?

Wed Dec 17 1997 21:13:57 Eastern US
Tim and Deb at Disetronic (twenner@ix.netcom.com) from 204.30.69.172
To Renee:
Basically we are explaining that based on studies that have been conducted, that intensive therapy, which includes pump therapy, has been shown to diminish the probability of long term complications resulting from diabetes. The better the control, the better results.

Wed Dec 17 1997 21:14:08 Eastern US
Renee () from 152.163.205.235
Tim & Deb: are you still there??? Hope all of our questions didn't scare you off!!!LOL...

Wed Dec 17 1997 21:15:24 Eastern US
Judy from NY () from 206.83.77.57
Tim & Deb - what you say is true, but ped endos are still not getting the message. Most are very resistant to the idea of putting kids on pumps

Wed Dec 17 1997 21:15:32 Eastern US
Tim and Deb at Disetronic (twenner@ix.netcom.com) from 204.30.69.172
To Brenda H:
Regarding the tubing, the longest tubing available is 43" the shortest, 21". The length of the tubing corresponds to where the pump is being worn on the body and the amount of flexability that the user wishes to enjoy.

Wed Dec 17 1997 21:16:22 Eastern US
Renee () from 152.163.205.235
sorry Tim & Deb..tell your bosses that's not enough!!! The DCCT study said the same thing..We need cold hard facts, research, stats whatever to offer as proof that kids CAN successfully do this & dramatically improve their quality of life....AND the entire family benefits by no longer being "tied" to the child with diabetes' strict regimen...

Wed Dec 17 1997 21:18:48 Eastern US
JohnSalt () from 204.31.248.71
Hi Deb & Tim!! Looks like you-all are off to a fast start. I've got a quick question: what's the youngest age that is practical for a child to use a pump?

Wed Dec 17 1997 21:19:45 Eastern US
Judy from NY () from 206.83.77.57
John - my daughter was three, but that may not be practical for some

Wed Dec 17 1997 21:20:22 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Ernest:
Basically, an HMO is looking mostly at the # of injections, A1C level, patient compliance, and previous complications more so than a dawn phemenon when contemplating the medical necessity of a pump.

Wed Dec 17 1997 21:20:56 Eastern US
Mary3 () from 209.130.142.56
Renee, How long has Melissa had D and when did she start on the pump?

Wed Dec 17 1997 21:22:14 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To BrendaH:
The supplies that are used with the pump can either be purchased directly from Disetronic or through one of our many distributors such as Fifty50. The source of supplies many times is decided by your insurance company.

Wed Dec 17 1997 21:22:18 Eastern US
Ernest Hayman (haypops@earthlink.net) from 207.217.244.183
is patient compliance a + or a minus in getting thier approval?

Wed Dec 17 1997 21:22:31 Eastern US
Melissa Davis (jrnysend@itexas.net) from 207.22.198.43
I've just started telling my 7 year old daughter about the pump! She's had diabetes since she was 6 months old! She's suddenly become very worried about how many highs and lows she's been having and I think a pump would be able to help her with those! What do you think of an active 7 year old who plays soccer using the pump??

Wed Dec 17 1997 21:23:16 Eastern US
Peter Schaaf (peter_79@hotmail.com) from 206.99.16.100
I was wondering. I currently use a pump and have used one for the last 11 years. Is there any new things coming out.

Wed Dec 17 1997 21:23:54 Eastern US
Julia fr NB Canada () from 24.231.2.84
Deb & Tim: DO you have much of a canadian children or teen clientel?

Wed Dec 17 1997 21:24:46 Eastern US
Renee () from 152.163.205.235
Melissa has had diabetes 5 1/4 years..extremely compliant but nonetheless A1Cs rose steadily through puberty to a pre-pump high of 8.8...immediately dropped to 7.8, then 7.5 & has continued downward to the last 3 being 6.8,6.5 and a 6.4 in November..started pumping March '96 (age 13)

Wed Dec 17 1997 21:25:27 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Renee:
Fortunately, with more and more children using a pump everyday with highly successful results, we are being supplied with the ammunition that we require in the form of real life case studies which is necessary to convince the Ped. Endos. that there are real documented advantages for children and pump therapy. There is documentation in medical literature that supports these facts.

Wed Dec 17 1997 21:25:40 Eastern US
Peter Schaaf (peter_79@hotmail.com) from 206.99.16.100
I have a little situation I am in. I am a research guinea pig for a pharmacutical company. I test drugs that are not on the general market,and need to know if I should go off the pump or not?
My doctors have no idea what these drugs can do and neither do I.

Wed Dec 17 1997 21:26:29 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Ernest:
Patient compliance is definitely a plus and is essential, regardless of age, for successful pump therapy!

Wed Dec 17 1997 21:28:15 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Melissa Davis:
Active people are usually the most successful, and the fact that your daughter is showing an interest in her therapy are indicators that she may be an ideal candidate for a pump.

Wed Dec 17 1997 21:28:18 Eastern US
Melissa Davis (jrnysend@itexas.net) from 207.22.198.43
Do HMO's require the A1c's to be good ones?? less than 7.0 or something like that?

Wed Dec 17 1997 21:29:28 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Peter:
What new things were you wondering about?

Wed Dec 17 1997 21:30:08 Eastern US
Renee () from 152.163.205.235
glad to hear that Tim & Deb..has any thought been given to gathering successul kids & "showing them off" to reluctant endos?? (obviously NOT my daughter since she's on the "other" pump- LOL)..Seriously, there's still too much resistance...

Wed Dec 17 1997 21:30:41 Eastern US
Judy from NY () from 206.83.77.57
Melissa - sometimes an elevated A1C is a help in getting someone on the pump

Wed Dec 17 1997 21:30:48 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Julia:
In Canada we sell all of our pumps through a distributor by the name of Auto Control Medical. I do not have current data regarding their patient demographics, but I could certainly help you get in contact with them.

Wed Dec 17 1997 21:31:41 Eastern US
Brenda H. () from 206.112.197.131
I have heard the following: you/your child can get a pump when you/child has lower A1C's or you/child can get a pump in order to lower the A1C's. Is this just a physician controlled decision? Insurance? What? Conflicting info doesn't help us parents decide what to do.

Wed Dec 17 1997 21:32:00 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Melissa Davis:
The insurance companies are usually looking for a HIGH A1C which would indicate poor glucose control.

Wed Dec 17 1997 21:32:32 Eastern US
Mary3 zooey@frontiernet.net () from 209.130.142.56
Seems not to be an answer to my question!

Wed Dec 17 1997 21:33:08 Eastern US
Peter Schaaf (peter_79@hotmail.com) from 206.99.16.100
The more money you have
The more you can afford
to better keep control.

Wed Dec 17 1997 21:33:11 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
Tim & Deb: Could you simply pass them my e-mail and ask them to forward the deomgraphic and product info?

Wed Dec 17 1997 21:33:32 Eastern US
Renee () from 152.163.205.235
From what we've heard at Melissa's pump support group, the problem with HMOs is a matter of persistence & education..An A1C refelcting an average bg of 140 could be the result of far too many 50s balancing out too many 230s (if my math is right!!)..but to an insurance clerk who's just looking at a # this concept is unfamiliar

Wed Dec 17 1997 21:33:39 Eastern US
Craig G (cgagnon@earthlink.net) from 153.36.178.155
How high would indicate poor control?

Wed Dec 17 1997 21:34:03 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Renee:
We obviously love to "show off" our customers who are enjoying a better life since starting on pump therapy. We try to put doctors who are unsure about children using pumps in contact with those doctors who have seen the success that it can bring.

Wed Dec 17 1997 21:35:25 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Julia:
We would be glad to!

Wed Dec 17 1997 21:35:39 Eastern US
Cindi () from 128.148.19.144
Tim & Deb, gotta ask you, do you deal with Champus - or the military? Do you support dependents of the military (kinda like an HMO or insurance)?

Wed Dec 17 1997 21:35:50 Eastern US
Renee () from 152.163.205.235
Mary - ask it again..think it got lost in the flood of questions at the start...

Wed Dec 17 1997 21:36:02 Eastern US
Peter Schaaf (peter_79@hotmail.com) from 206.99.16.100
Goodbye!

Wed Dec 17 1997 21:36:19 Eastern US
Judy from NY () from 206.83.77.57
How many kids is Europe are placed on pumps compared to kids in North America?

Wed Dec 17 1997 21:36:55 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Craig G:
The insurance companies are typically looking at the ADA's recommendations which indicate that anything over 7.0 is too high.

Wed Dec 17 1997 21:37:06 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
Tim & Deb: We sure could use some showing off of pumps here in Eastern Canada. Its practically a foreign concept for kids here. Nobody talks about it!

Wed Dec 17 1997 21:37:18 Eastern US
Brenda H. () from 206.112.197.131
I think Mary wanted to know if she could get a pump for 2 of her kids who also have chemical depression. Hope that is right. I lost track, too.

Wed Dec 17 1997 21:37:54 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Cindi:
We have excellent results in dealing with both Champus and TriCare. They have been very supportive of pump therapy!

Wed Dec 17 1997 21:38:08 Eastern US
Mary3 zooey@frontiernet.net () from 209.130.142.56
Judy, We lived in Swizerland for 4 years and never once did the endo mention a pump!

Wed Dec 17 1997 21:38:25 Eastern US
Melissa Davis (jrnysend@itexas.net) from 207.22.198.43
I would love to receive product info too! This is only just something we've started talking about since this discussion was planned!

Wed Dec 17 1997 21:39:24 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Judy in NY:
The numbers are unknown to me at this time, but in Europe, the idea of pump therapy is by far more accepted.

Wed Dec 17 1997 21:39:32 Eastern US
Brenda H. () from 206.112.197.131
Tim/Deb: do you know when the Disetronic web site will be on-line. I saw that it is partly finished.

Wed Dec 17 1997 21:40:24 Eastern US
Brenda H. () from 206.112.197.131
Tim/Deb: do you have an 800 nr. we could call to request info, such as the vido on your pump?

Wed Dec 17 1997 21:40:25 Eastern US
Mary3 zooey@frontiernet.net () from 209.130.142.56
Brenda, that's right.

Wed Dec 17 1997 21:40:27 Eastern US
Renee () from 152.163.205.235
OK - all the great things about pumping are often mentioned..just curious: any idea of what percentage of clients "drop out" of pump therapy???..more likely to be children or adults?..Do you offer a "trial" period arrangement for people who aren't totally convinced?..(I know the car dealers don't give you a "trial period" with their product!!!LOL)

Wed Dec 17 1997 21:40:55 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
A simple question perhaps anyone can answer, not just Deb & Tim. What is Dawn phenomenon?

Wed Dec 17 1997 21:41:24 Eastern US
Melissa Davis (jrnysend@itexas.net) from 207.22.198.43
We've been going to the same clinic for 7 years and never did we hear anything about the pump! And Kristina has been steadily in the 9's for 2 1/2 years! No one ever mentioned that this was seriously NOT GOOD or that a pump could help!

Wed Dec 17 1997 21:41:35 Eastern US
Brenda H. () from 206.112.197.131
Julia--scroll to the bottom on this screen and click on Search. You should find an answer.

Wed Dec 17 1997 21:41:43 Eastern US
Sandra () from 207.79.35.39
What is the cost of your pump?

Wed Dec 17 1997 21:41:56 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Mary3:
Any person, child or adult, who is struggling with clinical depression probably would not make the best candidate for pump therapy. There are responsibility issues which are involved with pump therapy which may not be manageable. It really depends on the level of control with the depression.

Wed Dec 17 1997 21:42:17 Eastern US
Cindi () from 128.148.19.144
Tim & Deb, this IS such a relief to know you work with these (Champus & TriCare) - Thank You!! I needed to be assured of support! You've just answered a question that's been tearing at my heart for several weeks now!

Wed Dec 17 1997 21:42:51 Eastern US
Renee () from 152.163.205.235
Tim & Deb..I've already suggested to Minimed that they should consider making a new video geared to kids/teens exclusively focusing in on kids playing sports, in a school cafeteria, swimming, etc...typical lifestyle issues that are often of concern to sceptical parents..maybe Disetronic should follow up on that too?...harder for parents to relate to a video primarily showing adults "pumping"

Wed Dec 17 1997 21:43:05 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Melissa Davis:
For Melissa and anyone else, if you would like to receive an information packet and video in the mail, simply e-mail me an address!

Wed Dec 17 1997 21:44:01 Eastern US
Mary3 zooey@frontiernet.net () from 209.130.142.56
Thank you for the answer.

Wed Dec 17 1997 21:44:30 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Brenda H:
I'm glad you asked. We are planning for the website to be fully operational by January 1, 1998. I think it will be very much worth the wait!

Wed Dec 17 1997 21:44:58 Eastern US
Brenda H. () from 206.112.197.131
Julia--also check the Diabetes Dictionary at the bottom.

Wed Dec 17 1997 21:45:05 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Brenda H.:
Our 800 # is 1-800-280-7801

Wed Dec 17 1997 21:45:56 Eastern US
John&Nick () from 152.163.207.139
My first set of HTRONs is still working perfectly after nearly six years, but when should I consider an upgrade?

Wed Dec 17 1997 21:46:40 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
Brenda H: I should have guessed the answer. At least some things about D are simple to understand, a name! LOL thanks!

Wed Dec 17 1997 21:46:41 Eastern US
Melissa Davis (jrnysend@itexas.net) from 207.22.198.43
Renee, I love your idea of a video geared for kids! Kristina would love that and be able to understand better about the pump and what it would be like to use one!

Wed Dec 17 1997 21:47:05 Eastern US
Brenda H. () from 206.112.197.131
Thanks Tim and Deb. We may already have the video (if you didn't know, I am Jeff's wife and just trying to keep things flowing), but haven't seen it yet. We have so many things sent to us for this site. Found a video on pen injectors today; it's still in its shrink wrap!

Wed Dec 17 1997 21:47:11 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Renee:
We find that very "few" people drop out of pump therapy when they know what to expect. When troubles occur it is usually do to the lack of knowledge on the part of the patient. As far as the trial period goes, we offer a 30 day trial period from the date that you are trained on the pump.

Wed Dec 17 1997 21:49:25 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Julia:
Dawn Phenomenon occurs when your blood sugar naturally rises during the early morning hours. It happens with everybody, but with diabetics, because there is no natural production of insulin to counteract this phenomenon, blood sugars usually remain elevated for many hours in the morning.

Wed Dec 17 1997 21:50:22 Eastern US
Brenda H. () from 206.112.197.131
I think someone mentioned earlier that pump therapy isn't really discussed by ped. endos. I suspect that it might be, by some, but most parents are so overwhelmed at diagnosis that they think only of what needs to be done near-term, like shots, blood tests, etc., that any mention of a pump may get sent to some other part of the brain for later recall. (I'm not trying to be funny, but didn't know how else to word it!)

Wed Dec 17 1997 21:50:33 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Sandra:
The $10,000 question!
The cost of the pump is $4,495.00, of which most insurance companies will pay a portion of.

Wed Dec 17 1997 21:50:49 Eastern US
Judy from NY () from 206.83.77.57
When do you expect Humalog to be "officially" approved for the pump?
Also, have you heard about the "cocktail" - ratio of H & R?

Wed Dec 17 1997 21:51:04 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
Tim & Deb: My son, almost 6, doesn't have a problem with finger stick blood testing but is absolutely petrified of the needle. No wonder, he has bruises all over him. Would pump be less frightning or more so? I have no mental image of how it is applied.

Wed Dec 17 1997 21:53:02 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
Tim & Deb: Wow, what a price tag! This is American $$, correct?

Wed Dec 17 1997 21:53:43 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To John&d to hear that your pumps are working perfectly! The reason for upgrading is twofold. First of all the cost of an upgrade to the HTronplus is usually at no cost to the user do to our trade-in program. Secondly, since your pumps are six years old, they are no longer covered under your warranty. Therefore, if you should drop your pump or otherwise cause it damage, you would possibly incur a repair fee. An upgraded pump will be covered by a new four year warranty!

Wed Dec 17 1997 21:54:21 Eastern US
Melissa Davis (jrnysend@itexas.net) from 207.22.198.43
YIKES!!!! Even with insurance help, that price tag would keep us from using it!

Wed Dec 17 1997 21:54:26 Eastern US
Renee () from 152.163.205.235
Part of the problem may be that medicine is advancing faster than many docs can keep up with it & since the majority of diabetics are (sorry to say) non-compliant, the docs get overwhelmed with trying to get them to do the most basic absolutely essental care..They lose sight of pro-active, motivated parents who WILL monitor their child's care to optimize their health long-term...That's why I believe the 2 pump companies need to do even more "pro-bono" work in "spreading the word" that success begets success ..Sometimes just regaining a more "normalized" life can reduce a child(teeen's) resistance

Wed Dec 17 1997 21:55:43 Eastern US
Judy from NY () from 206.83.77.57
why, Melissa?

Wed Dec 17 1997 21:55:49 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Judy from NY:
The approval of Humalog with the insulin pump is strictly in the hands of Eli Lilly, the manufacturer. You should contact them for the most recent, up to date, information.

Wed Dec 17 1997 21:57:18 Eastern US
Judy from NY () from 206.83.77.57
OK, but do you know of any pump patients using the "cocktail?"

Wed Dec 17 1997 21:57:35 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Julia:
The difference between a needle and an infusion set is that with the infusion set there are many different types available. One of which is a teflon cannula instead of a needle which remains in the skin.

Wed Dec 17 1997 21:58:04 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Julia:
Yes, American Dollars.

Wed Dec 17 1997 21:58:15 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
Tim & Deb: Have there any been any reports of pump malfunction whereby the user is given far too much insulin? Scarry thought but practical. There is always a malfunction or failure rate to every manufactured good. What's yours?

Wed Dec 17 1997 21:58:15 Eastern US
Melissa Davis (jrnysend@itexas.net) from 207.22.198.43
Judy, even if I only had to pay 10% of that, I couldn't afford it! 5 kids, 2 falling apart cars, 1 income... there's no way! Right now, I'm getting all the supplies I need for Kristina at $12 for a 3 month supply!

Wed Dec 17 1997 21:59:12 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Melissa Davis:
The out of pocket expense can also be distributed via a payment plan or other arrangements to help you meet your budget.

Wed Dec 17 1997 21:59:58 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Judy:
No.

Wed Dec 17 1997 22:02:08 Eastern US
Renee () from 152.163.205.235
Melissa- doesn't hurt to keep up on all the info nonethless- prices do tend to drop over the years..just look at computers, etc...

Wed Dec 17 1997 22:02:23 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Julia:
There is not a possibility of mechanical malfunction. It is important that the user, however, be properly trained on the uses of the pump. The pump performs safety checks on itself and will alarm if it detects a problem.

Wed Dec 17 1997 22:02:39 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
Tim & Deb: How long does the teflon cannula stay in the skin. I assume you must have to rotate the site? How often and how complex, time consuming or painful is the process? How old would a child have to be before they could begin to independently manage this aspect of the pump regime?

Wed Dec 17 1997 22:03:26 Eastern US
Renee () from 152.163.205.235
I've also heard "talk" of a 3rd pump company on the horizon...competition should lower the price, right Tim & Deb???? (hint, hint)

Wed Dec 17 1997 22:05:36 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Julia:
Recommendations for most infusion sets are to change your site every two to three days. However this varies from individual to individual. As far as time consumption and pain is concerned, this also varies from person to person. Most pump users are able to change their site in a matter of minutes with little or no pain. Many users state that the infusion set is so comfortable that they are unaware of it's existence.

Wed Dec 17 1997 22:05:49 Eastern US
Ernest Hayman (haypops@earthlink.net) from 207.217.244.183
Do HMOs that cover the pump also cover the infusion sets, etc.

Wed Dec 17 1997 22:06:42 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Renee:
Yes, there is "talk" of a third pump company. It is hard to say how this will impact pricing, managed care, etc...

Wed Dec 17 1997 22:06:52 Eastern US
Melissa Davis (jrnysend@itexas.net) from 207.22.198.43
Yes Renee... I'm going to gather all the info I can now that Kristina has shown an interest, and take it all to her endo next month and see what he has to say about it!

Wed Dec 17 1997 22:07:41 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
Tim & Deb: I hate to push the question, but "is not a possibility" does not answer, have there been any reports. Can we dig deeper or is this beyond the scope of the chat and should be posed 1/1 to the company?

Wed Dec 17 1997 22:07:43 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Ernest:
Most insurance companies upon determining medical necessity for the pump will also cover the supplies that are needed as well.

Wed Dec 17 1997 22:08:59 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Julia:
To be more specific, there have not been any reports of a device malfunction when it is being used properly.

Wed Dec 17 1997 22:10:17 Eastern US
Ernest Hayman (haypops@earthlink.net) from 207.217.244.183
Thanks to "children with diabetes" association for inviting diabetics with out children

Wed Dec 17 1997 22:10:25 Eastern US
Melissa Davis (jrnysend@itexas.net) from 207.22.198.43
I need to get my children to bed now! Thanks Tim and Deb for the information! I'll be sending you my email address!

Goodnight all!!

Wed Dec 17 1997 22:10:43 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
Tim & Deb: Thanks for being more specific.

Wed Dec 17 1997 22:11:01 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Melissa:
Thank you for participating, goodnight!

Wed Dec 17 1997 22:11:53 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Ernest:
I agree, thank you very much to Children with Diabetes for hosting this chat session!

Wed Dec 17 1997 22:12:03 Eastern US
Brenda H. () from 206.112.197.131
Ernest--on behalf of my husband, who runs this site, thanks for visiting. Come back again. We try to provide as much information as we can about Type 1 diabetes. The Diabetes Team docs also try to answer questions about Type 2. I even saw them answer questions about cats and dogs with diabetes!

Wed Dec 17 1997 22:12:13 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
Tim & Deb: Just one final house keeping Q from me. Do we need to "send" you our e-mail if we want more info or is the posted e-mail here tonight enough?

Wed Dec 17 1997 22:12:54 Eastern US
Patrik () from 152.163.204.136
Thanks Deb and Tim .Great Job.

Wed Dec 17 1997 22:12:57 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Julia:
The address provided tonight will allow me to contact you further.

Wed Dec 17 1997 22:13:27 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Patrik:
You're welcome, thank you for stopping by!

Wed Dec 17 1997 22:13:46 Eastern US
Brenda H. () from 206.112.197.131
Thanks to you Deb and Tim for being available to answer all our questions.

Wed Dec 17 1997 22:14:26 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Brenda H:
You're welcome, thank you for your GREAT questions!

Wed Dec 17 1997 22:14:46 Eastern US
Renee () from 152.163.205.235
Thanks Tim & Deb..good answers!!!..Hectic time of year..Be interesting to re-do a similar chat in the spring & see how much more interest has been generated by then????..Good night & thanks again

Wed Dec 17 1997 22:15:30 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Renee:
Goodnight! Be sure to check out our website in a couple of weeks!

Wed Dec 17 1997 22:17:14 Eastern US
Kim () from 152.163.204.136
Renee, what is your E-mail adress please.

Wed Dec 17 1997 22:17:43 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
If that is it, then goodnight everybody!
Thank you again Jeff and Brenda for allowing for the chat this evening, I think it went very well!

Wed Dec 17 1997 22:17:45 Eastern US
Ernest Hayman (haypops@earthlink.net) from 207.217.244.183

Goodnight and thanks!

Wed Dec 17 1997 22:18:46 Eastern US
Tim and Deb from Disetronic (twenner@ix.netcom.com) from 207.93.153.84
To Ernest:
Goodbye!

Wed Dec 17 1997 22:19:51 Eastern US
JohnSalt () from 152.163.207.139
Great job guys!!

Wed Dec 17 1997 22:20:09 Eastern US
Brenda H. (brenda@castleweb.com) from 206.112.197.131
Kim--send me your e-mail addy and I will tell you Renee's. Not sure she'd want it posted for all to see.

Wed Dec 17 1997 22:56:46 Eastern US
Bill King ( (bkingb@aol.com) from 152.163.206.105
Hi, is anyone still hanging around?

Wed Dec 17 1997 22:58:21 Eastern US
Bill King ( (bkingb@aol.com) from 152.163.206.105
I thought this started at 9pm

Wed Dec 17 1997 23:02:34 Eastern US
Estes ( () from 152.163.201.10
Is the chat still going on?

Wed Dec 17 1997 23:03:32 Eastern US
Estes ( () from 152.163.201.10
Looks like it is over, will have to see the transcript

Wed Dec 17 1997 23:09:28 Eastern US
Bill () from 152.163.206.105
Estes (..are you still there?

Wed Dec 17 1997 23:22:01 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
Tim & Deb: Just one final house keeping Q from me. Do we need to "send" you our e-mail if we want more info or is the posted e-mail here tonight enough?

Wed Dec 17 1997 23:22:21 Eastern US
Julia fr NB Canada (bcjbann@fundy.net) from 24.231.2.84
Tim & Deb: Thanks for being more specific.

(end of chat session)



                 
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