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  Back to Chat Disney 2001 Chat
Chat Room Administrator Fri Jun 22 2001 20:15:00 Eastern US
The 'Disney 2001' chat room is now open.


Fri Jun 22 2001 20:48:38 Eastern US
Billetdeaux from 63.48.17.13
Good evening! :) I'm here - early - if anyone wants to chime in. Just let me know when you're on and we can talk Disney!!!

Fri Jun 22 2001 20:52:27 Eastern US
Lauren (Volunteer Coordinator) from 12.81.160.167
Hi Laura!

Fri Jun 22 2001 20:54:26 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Thanks for all you too have done to make this such a GREAT trip.

Fri Jun 22 2001 20:54:33 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
two

Fri Jun 22 2001 20:55:59 Eastern US
Lauren from 12.81.160.167
Hi Ellen!

Fri Jun 22 2001 20:56:42 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Hi Lauren.

Fri Jun 22 2001 20:56:46 Eastern US
Billetdeaux from 63.48.17.13
Hey you guys! Sorry... I bleeped off for a minute to answer one of my mom's friend's emails. Mom is back in assisted living, out of the hospital, and very, very confused. :(

Fri Jun 22 2001 20:57:18 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
I wonder if you should send out another email reminding the list that there's a chat NOW.

Fri Jun 22 2001 20:57:53 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Sorry about your mom :-(

Fri Jun 22 2001 20:58:08 Eastern US
Billetdeaux from 63.48.17.13
Lauren - What is your family doing on Tuesday before the dive? Do you think Steve might want to bring the girls to one of the parks with Carolyn, our sitter (Danielle), and Sonia's daughter, Caroline? We could meet up before the Epcot dive...

Fri Jun 22 2001 20:58:09 Eastern US
Lauren from 12.81.160.167
Sorry to hear about your Mom :^( That has to be hard.

Fri Jun 22 2001 20:58:47 Eastern US
Billetdeaux from 63.48.17.13
Ellen, an automatic message comes on 5 minutes before the chat... goes to every CWD chat room announcing that this one is opening... we're just a bit early. :) Is your family getting excited?

Fri Jun 22 2001 20:59:02 Eastern US
Lauren from 12.81.160.167
Steve is planning on doing a park on Tuesday, I bet he'd LOVE to have Carolyn and Caroline!

Fri Jun 22 2001 20:59:29 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Hi Laura and everyone!

Fri Jun 22 2001 21:00:00 Eastern US
Billetdeaux from 63.48.17.13
And the sitter. She's 18 and has been with our family forever it seems. She's never been to Disney, but Carolyn has been enough times that she could be tour guide!

Hi Roxanne :)

Fri Jun 22 2001 21:00:04 Eastern US
Lauren from 12.81.160.167
What are Neal and Sam doing on Tuesday?

Fri Jun 22 2001 21:00:42 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Hi Roxann...where are you coming from?

Fri Jun 22 2001 21:01:47 Eastern US
Billetdeaux from 63.48.17.13
I don't think your kids and Caroline would enjoy Epcot all day, though. That's for the older kids. I'd suggest either MGM or one of the water parks. At MGM they could see the fun shows...
Little Mermaid is STILL my favorite and I don't know how many times I've seen it...

Neal, Sam, Phil, Matt, and Ben will likely be parking it, too... also, I'm sure Marissa will be along with Carolyn and the other girls... not sure what Brenda will be doing... you guys should talk!!!

Fri Jun 22 2001 21:01:48 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
I'm coming from East Liverpool, OH about 45 minutes from Pittsburgh, PA

Fri Jun 22 2001 21:01:53 Eastern US
graciela (mom of alecsai) from 209.86.182.38
Hi Laura! This is really amazing...checking my emails just in time!!! Really wish to be able to join a group for lunch on Sat at the park. See ya! I'm now in Miami.

Fri Jun 22 2001 21:02:14 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Laura i am here but i can't see my messages
this is Julia

Fri Jun 22 2001 21:02:30 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
ok i see it now

Fri Jun 22 2001 21:02:41 Eastern US
Lauren from 12.81.160.167
Hey Laura, I just asked Steve and he is ok with this.

Fri Jun 22 2001 21:03:03 Eastern US
Lauren from 12.81.160.167
Hi Julia, Graciela, and Roxanne!!

Fri Jun 22 2001 21:03:30 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Hi Julia. If you are on an old version of AOL, you may want to log in using the alternate log in

Fri Jun 22 2001 21:03:47 Eastern US
Lauren from 12.81.160.167
When is everyone arriving?

Fri Jun 22 2001 21:03:53 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Hi Graciela. Where in Miami are you?

Fri Jun 22 2001 21:03:56 Eastern US
Billetdeaux from 63.48.17.13
There will be a LOT of us at lunch in the Crystal Palace Saturday. Have you called yet for reservations? 407-WDW-DINE, and ask for what openings they have at lunch at the Crystal Palace. I think the earliest I've heard for our group is 11:30... my family is at 11:40... so we'll all be showing up through the noon hour or later...

Fri Jun 22 2001 21:04:09 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
We're arriving Wednesday the 18th

Fri Jun 22 2001 21:04:24 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Hi, Lauren, I can't wait to see everyone. I am really looking forward to the sessions.

Fri Jun 22 2001 21:04:49 Eastern US
Billetdeaux from 63.48.17.13
We'll get in Monday around noon... aren't you coming in really early, Lauren?

Fri Jun 22 2001 21:04:54 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
i think there are 9 of us at the Crystal Palace at 11:30

Fri Jun 22 2001 21:05:00 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
We are also arriving on Wednesday.

Fri Jun 22 2001 21:05:14 Eastern US
Brenda H. from 216.23.56.171
Hi all. Can't stay too long. Have one to get in bed--Timothy has a cold and keeps feeling chilled, although he has no fever YET! He likes to get high fevers that hang around for a week or more and drive me nuts. Marissa's off skating and I have to pick up a sitter to watch the others while I go pick her up. She wanted to catch a ride with some 17-yr. old boy she knows! NO WAY.

Anyway, we arrive on Tues. afternoon and probably won't do much but swim until we go to Epcot around 4ish.

Fri Jun 22 2001 21:05:30 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
We are hoping to arrive Tues noonish

Fri Jun 22 2001 21:05:32 Eastern US
Lauren from 12.81.160.167
We're arriving the 14th. We have reservations for Cinderella's castle at 8am Saturday and 11:45 at the Crystal Palace

Fri Jun 22 2001 21:06:05 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Will there be any NEW products that are being announced this weekend at ADA?

Fri Jun 22 2001 21:06:21 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
Hi everyone. Looking forward to finally putting a face to names.

Fri Jun 22 2001 21:06:30 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
WE are doing breakfast at the Grand Floridian on Wed at 10a

Fri Jun 22 2001 21:06:44 Eastern US
Brenda H. from 216.23.56.171
Jeff is in Philly at the ADA and sends his greetings. He has a slow internet connection and is only reading critical e-mail. Couldn't connect for this chat.

Fri Jun 22 2001 21:06:46 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
btw, how many empty suitcases does each family need for the goody bags? Last year it was a lot of stuff :-)!

Fri Jun 22 2001 21:07:11 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Hi Brenda. You finished painting the house?

Fri Jun 22 2001 21:07:14 Eastern US
Billetdeaux from 63.48.17.13
Brenda - I know Carolyn and Marissa have been talking by email... they are going to sell t-shirts Weds from noon till 4 or 5. I've ordered double t-shirts and about 200 extra tank tops. When they're gone, they're gone!

Fri Jun 22 2001 21:07:28 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
what sort of goodies are there going to be?

Fri Jun 22 2001 21:07:38 Eastern US
Brenda H. from 216.23.56.171
Ellen, I'm sure Jeff will bring home tons of stuff, as usual, but I don't know of anything in particular that is coming out.

Fri Jun 22 2001 21:08:04 Eastern US
Brenda H. from 216.23.56.171
Gee Ellen, how did you know about that? And, there's still a lot more to be done.

Fri Jun 22 2001 21:08:09 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Laura:
I called and registered Stephen to try the CGMS and she said she would send information about it but I have not received yet. This is about 2 or 3 weeks now. Anyone else receive anything?

Fri Jun 22 2001 21:08:09 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
I want a Tank so i need to get it quick huh

Fri Jun 22 2001 21:08:44 Eastern US
Billetdeaux from 63.48.17.13
Doing the goodie bags differently this year. We have a real Exhibit Hall with real corporate reps inside with LOTS of stuff to give away... I'm not leaking any secrets, though (I promised)... but, yes, an empty suitcase would be in order.

Fri Jun 22 2001 21:08:45 Eastern US
Lauren from 12.81.160.167
The goodie bags won't be nearly as big, but the vendors will have tables and I'm sure they will be giving stuff away

Fri Jun 22 2001 21:09:01 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Brenda, Jeff sent out the pic of you UP there...you are one brave woman!

Fri Jun 22 2001 21:09:15 Eastern US
Brenda H. from 216.23.56.171
Laura, I was just thinking today that someone (YOU) should send an e-mail suggesting that all attendees bring along an empty or almost empty suitcase or tote bag to take home all the goodies. I had to buy a bag last year.

Fri Jun 22 2001 21:09:31 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
Roxann, I had the same trouble. Lisa said they are busy with ADA but she is trying to get caught up. She emailed me with ideas for the doctor's script for the CGMS

Fri Jun 22 2001 21:09:37 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Or get a big box and mail it all back!

Fri Jun 22 2001 21:10:24 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Too late to get some vendor to comp nylon duffle bags with CWD printed on it eh?

Fri Jun 22 2001 21:10:26 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Good idea Brenda, I did too and I am bringing an
empty one this year. Also, I definitely want the tank tops. I hope they aren't gone by the time I get there.

Fri Jun 22 2001 21:10:36 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
What picture of Brenda???

Fri Jun 22 2001 21:11:24 Eastern US
Billetdeaux from 63.48.17.13
Yes... the tanks are Hanes Her Way, so they have a good cut. I'm wearing mine now!!! I love it. Very cool design this year.

Re: CGMS, MiniMed IS really busy with ADA right now. If you spoke with someone and got on the schedule, you're all set, I'm sure. If you're worried about it, try phoning them again later next week. ADA doesn't end until Tuesday or so. Then ours is the next big event for these folks. Many of the sponsors are sending their VIP's - seriously. Their head marketing folks and whole contingents of staff. Animas is sending a dozen CDE's to help us.

Fri Jun 22 2001 21:11:25 Eastern US
Brenda H. from 216.23.56.171
Oh, I knew he took some pics, but I haven't seen them yet. We'd really hoped to have a mobile lift so "WE" could paint the back of the house, but it was so big, we could only do the side--you could see bare wood. I'm going to do more next week while Kathryn is at camp.

Fri Jun 22 2001 21:13:05 Eastern US
Billetdeaux from 63.48.17.13
I talked with Mark Rovner from Pfizer and begged for more gum. I knew you all were almost out!

Fri Jun 22 2001 21:13:15 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
I love the Hanes brand, i always wear their undies

Fri Jun 22 2001 21:13:57 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
I still have some gum left LOL!!!!

Fri Jun 22 2001 21:14:08 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Are we getting MORE gum than last year - eegads!

Fri Jun 22 2001 21:14:09 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
I love the idea of having the teenagers help with babysitting. I'm afraid that my little one won't be still during the sessions.

Fri Jun 22 2001 21:14:19 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
I just opened the second tube of neosporin from last year

Fri Jun 22 2001 21:15:05 Eastern US
graciela (mom of alecsai) from 209.86.182.38
HI Ellen, I'm staying in Kendall, I came with Alecsai to a camp in Coral Springs for 2weeks...it's great! I'll stay here till Orlando july 15.

Fri Jun 22 2001 21:15:13 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
It sounds like the goodies are well worth it.

Fri Jun 22 2001 21:15:23 Eastern US
Billetdeaux from 63.48.17.13
Reminder - if you want a frig for your room, call and request one. This is only at the Coronado and only for our group (otherwise they charge $10 per day). You also will have a sharps container for your room courtesy of BD Consumer Healthcare... Lauren, we'll need to distribute these at registration.

Fri Jun 22 2001 21:16:14 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
I called and requested one months ago adn they
told me they would only note my file and I would have to ask for it when I got there.

Fri Jun 22 2001 21:16:17 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Oh I need to call about the refrig. thanks.

Fri Jun 22 2001 21:16:30 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Not a problem!

Fri Jun 22 2001 21:16:48 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Graciela, she's going to Camp Koral Kids?

Fri Jun 22 2001 21:16:59 Eastern US
Billetdeaux from 63.48.17.13
And listerine and rolaids and neosporin... what else? I was so surprised when I walked in and saw Lauren and crew in that huge ballroom with about 250 huge boxes of STUFF. This year, the exhibitors are responsible for bringing their own stuff and handing it out... so Tuesday volunteers will be busy sorting t-shirts and stuffing tickets!!!

Fri Jun 22 2001 21:17:07 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
They told me it wasn't a problem about the frig but maybe i better call again

Fri Jun 22 2001 21:17:07 Eastern US
graciela (mom of alecsai) from 209.86.182.38
Laura, will everyone be getting the sharps container, eventhough not staying at the Coronado?

Fri Jun 22 2001 21:17:48 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
BTW any volunteers for 12-2 on Wednesday for the registration table??

Fri Jun 22 2001 21:17:58 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
Is there a little convenience store anywhere near the hotel to get items like juice and milk or do we have to get them from the resturants?

Fri Jun 22 2001 21:18:26 Eastern US
graciela (mom of alecsai) from 209.86.182.38
Ellen, yes HE is going to this camp. Do you know about it. I think it was once run by Dr Nemery's asst.

Fri Jun 22 2001 21:18:26 Eastern US
Billetdeaux from 63.48.17.13
As long as they've noted it in your file, you're ok. I had to beg and plead for this... they wanted us all to keep our insulin in one common place. I painted the scenario for them... mealtime... 300 parents all trying to get to one refrigerator in one room... 300 bottles of insulin in one big frig that all looked the same... They saw our point. :)

Fri Jun 22 2001 21:18:27 Eastern US
Brenda H. from 216.23.56.171
Lauren, see
http://www.jeffh.com/boom3.jpg There's boom1, 2 and 3 of me painting the trim at the top of the second story. Jeff got part way up and decided he was "height aware." Nice way of saying a bit chicken to go up that high. Now, I didn't enjoy the shaking when I moved positions and I rarely looked straight down, but I got the job done!

We gave away much of gum last year or my kids would have consumed it all in a week.

Fri Jun 22 2001 21:19:12 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Laura:
You deserve a medal.

Fri Jun 22 2001 21:19:12 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Lauren, if I get there early, I'll be happy to help. Just can't be sure what time I'll get there.

Fri Jun 22 2001 21:19:55 Eastern US
Billetdeaux from 63.48.17.13
There are quite a few stores - even some big grocery stores - right around Disney. You do have to go off property, though, to get to them. Not far, but it wouldn't be a fun walk. There is a convenience marketplace right in the Coronado... expensive, but everything is there. Also... like last year... I have ordered a ton of food and I'm bringing foil and baggies. We're not throwing anything away... (remember that???)

Fri Jun 22 2001 21:19:58 Eastern US
Brenda H. from 216.23.56.171
One final comment about my painting: those who attended Orlando 2000 will see that I was wearing my Humpty Dumbrowski hat that day.

Fri Jun 22 2001 21:20:08 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
I wish I could help but I'm driving starting monday from San Antonio so I won't be there early.

Fri Jun 22 2001 21:20:27 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Graciela, I believe you are right about the person who used to run it. Does she still run it? My son never went to that camp, but I heard nice things about it from other parents.

Fri Jun 22 2001 21:20:42 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Lauren i will be available too. thought i would see where you needed me at the time

Fri Jun 22 2001 21:20:46 Eastern US
Billetdeaux from 63.48.17.13
Good use for it, Brenda. I hope you got paint all over it.

Fri Jun 22 2001 21:20:49 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Are there still more of those hats?

Fri Jun 22 2001 21:20:58 Eastern US
Brenda H. from 216.23.56.171
I guess we could load tote bags or so with snacks we intend to consume and then they will be empty to bring things home.

Fri Jun 22 2001 21:21:30 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Wow Brenda!! What a woman!! I could have never done that!

Fri Jun 22 2001 21:21:35 Eastern US
Brenda H. from 216.23.56.171
Ellen, I am pleased to report they are all gone. Someone at the BDC, I think, took them off our hands.

Fri Jun 22 2001 21:21:45 Eastern US
Billetdeaux from 63.48.17.13
Thanks, Roxann. Actually, my dad gave my husband his Purple Heart from WWII for marrying me!

Fri Jun 22 2001 21:21:58 Eastern US
graciela (mom of alecsai) from 209.86.182.38
Ellen, I just noticed you're also here in FL...where about? no she's not anymore,now whe's only with dr. nemery. It's really nice

Fri Jun 22 2001 21:22:19 Eastern US
Brenda H. from 216.23.56.171
Gotta go for now. Have fun chatting. BYE and see you in FL!

Fri Jun 22 2001 21:22:35 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Thanks Julia and Ellen!! This is the one spot that I didn't have a volunteer for. You guys are great!

Fri Jun 22 2001 21:23:05 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
I would personally give up going to any/all of the parks, if someone else will take my kids (we already have tickets). Then I could work full time for the event!

Graciela, I'm in Boca Raton, and my son sees Dr. Nemery.

Fri Jun 22 2001 21:23:11 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Laura should we all bring zip lock bags???

Fri Jun 22 2001 21:23:20 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Laura,
He got a good deal.

Fri Jun 22 2001 21:23:41 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Looking forward to seeing you Brenda.

Fri Jun 22 2001 21:23:45 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Bye Brenda! See you in Orlando!

Fri Jun 22 2001 21:23:56 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Lauren what is the time again i want to write it down.

Fri Jun 22 2001 21:24:16 Eastern US
Billetdeaux from 63.48.17.13
If anyone is interested, I do know that Gary Hall, Jr. will be at the hotel (Coronado) on Weds. If you have a kiddo who is dying to meet him, the pool might be the place to be on Weds.... If I hear anything formal about this, I'll let you all know.

Fri Jun 22 2001 21:24:36 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Julia, 12-2 on Wednesday

Fri Jun 22 2001 21:24:42 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Graciela do you live in Miami?

Fri Jun 22 2001 21:24:56 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
HEY i am dying to meet him Hee hee hee

Fri Jun 22 2001 21:25:11 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
See you soon Brenda

Fri Jun 22 2001 21:25:17 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Lauren Got it!!!

Fri Jun 22 2001 21:25:43 Eastern US
Billetdeaux from 63.48.17.13
Sorry, Julia. No dirty old ladies allowed....

Fri Jun 22 2001 21:25:53 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Did anyone invite CNN, or MSNBC or any other tv stations to come and film? There's one health show that's filmed in Orlando

Fri Jun 22 2001 21:26:08 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
I know i told you i would be a lady or at least try

Fri Jun 22 2001 21:26:13 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
How cool!! (Gary Hall at the pool)

Fri Jun 22 2001 21:26:14 Eastern US
graciela (mom of alecsai) from 209.86.182.38
Gerat! This Monday I'll be staying in Boca at the TownePlace Suites in Yamato Rd, to avoid all this travelling every day..the # there is 561-994-7232.. No I live in the Dominican Rep. but I consider myself a Miamian...(I come a lot!!)

Fri Jun 22 2001 21:26:24 Eastern US
Billetdeaux from 63.48.17.13
G'night Brenda. Hope Tim feels better. Don't let anyone else catch the bug...

Fri Jun 22 2001 21:27:56 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Graciela, does your child see Dr. Nemery?

Fri Jun 22 2001 21:28:17 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
did most of you meet at the convention or know each other more from being in chat groups here? I'm still fairly new to the scene.

Fri Jun 22 2001 21:28:43 Eastern US
Billetdeaux from 63.48.17.13
I downplayed the PR this year. We do have press passes and some people have asked for them... whether they come or not is a different story. Last year, Connie Miller sent out literally thousands of press releases and MSNBC was the only coverage we received after ALL that hard work she did. I decided that this year, I'd rather focus my energy on putting on a great conference and getting the details covered for families. So I did not send any press releases at all. Some of the sponsors have, though. Animas has a PR firm doing some work, as does LifeScan (promoting Gary Hall, Jr's involvement). Hopefully, the Pump Girls will be a draw for the media as well.

Fri Jun 22 2001 21:28:52 Eastern US
graciela (mom of alecsai) from 209.86.182.38
Laura, I thought this guy G. Hall was a formal participant in our conference...? Will he give out autographs?

Fri Jun 22 2001 21:29:07 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
I met everyone on the CWD email list then at Orlando last year

Fri Jun 22 2001 21:29:41 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
I chat often in the parents room at this website.

Fri Jun 22 2001 21:29:42 Eastern US
graciela (mom of alecsai) from 209.86.182.38
Ellen, yes. I take him to Dr. Nemery here in the DRI whenever I'm here.

Fri Jun 22 2001 21:29:58 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
I met everyone on the email and then Orlando also,

Fri Jun 22 2001 21:30:11 Eastern US
Billetdeaux from 63.48.17.13
Gary will be opening the Exhibit Hall on Weds night, and will be available for autographs, photos, hugs (go, Julia!!!), from 5:30 - 8:30. LifeScan is sponsoring Gary's appearance. He is leaving on Thursday.

Fri Jun 22 2001 21:30:14 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Laura is connie coming this year

Fri Jun 22 2001 21:30:21 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Laura, I APPRECIATE everything you've done!

Fri Jun 22 2001 21:31:10 Eastern US
graciela (mom of alecsai) from 209.86.182.38
Ellen, what part of Boca do you live in? How old is your son? I'll be in Boca next week for the week

Fri Jun 22 2001 21:31:13 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Graciela, I'm an ardent supporter of DRI - I love those researchers. Have you toured and met the researchers?

Fri Jun 22 2001 21:31:22 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Laura so do i, i am just so happy to be coming back. YOu have done a smashing job

Fri Jun 22 2001 21:31:25 Eastern US
Billetdeaux from 63.48.17.13
No, Connie has a family reunion this year. She was going to try to come for just a night or two, without the kids, but it didn't work out. Next year, hopefully!

Fri Jun 22 2001 21:31:53 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
My son is 13 and I'm in west Boca. I do work during the day and go to school at night.

Fri Jun 22 2001 21:31:54 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
I know I'm getting ahead of myself, but for planning purposes for next year, will the convention be in Orlando again or somewhere else? I seem to be the only person from my area and our dr's office would like info for next year to pass on to other families.

Fri Jun 22 2001 21:31:58 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Laura you are doing a GREAT job!!! I can't wait to buy you a margarita at the pool!

Fri Jun 22 2001 21:32:07 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
We will definitely miss her!

Fri Jun 22 2001 21:32:14 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Can't wait for Tom's game to start, it sounds like fun he is a mess

Fri Jun 22 2001 21:32:16 Eastern US
Billetdeaux from 63.48.17.13
Thanks, Ellen! I think of ALL of you guys as family. It feels that way, doesn't it?

Fri Jun 22 2001 21:33:03 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
We are all in this together - thanks to the Hitchcocks!

Fri Jun 22 2001 21:33:12 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Yes it does! And I am soo looking forward to this convention.

Fri Jun 22 2001 21:33:34 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Hey you all are my family. I spend more time with you all on line than some of my family in person

Fri Jun 22 2001 21:34:01 Eastern US
Billetdeaux from 63.48.17.13
Next year will be July 17-21 in Pasadena, California. We have more than doubled in size this year (from last)... it will be interesting to see what happens when we move to the west coast! It will be a tremendous conference as well... lots of fun stuff that I've already started to plan. In terms of getting brochures, I will send one to each participant of this year's conference (and the year before)... and I'll ask if you'd like a stack to bring to your endo's office. Will probably do that in January or so. Too much earlier and people lose them.

Fri Jun 22 2001 21:34:28 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Wow ellen how do you do it??? Working and school, I'm tired thinking about it. You have to veg by the pool, girl.

Fri Jun 22 2001 21:34:44 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
And we understand each other too.

Fri Jun 22 2001 21:35:28 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Pasadena - a long way from home for me !

Fri Jun 22 2001 21:36:03 Eastern US
Billetdeaux from 63.48.17.13
Good, Ellen. You need a vacation!!! Shall we book your tickets now?

Fri Jun 22 2001 21:36:07 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Lauren, I have a pool in my back yard - 6 feet from my sliding glass door - and I never go in it.

Fri Jun 22 2001 21:37:20 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
How far in advance do you plan your site? Any chance to bring it to Texas? I would love for everyone to see San Antonio.

Fri Jun 22 2001 21:37:28 Eastern US
Billetdeaux from 63.48.17.13
I just want to mention that the DRI (Dr. Nemery and Dr. Kenyon) are both coming to staff the Children's Interactive Sessions. I've heard that one of the things they're going to do is an islet cell transplantation - kids level, so our kiddos understand what we're talking about when we discuss this type of research for a cure...

Fri Jun 22 2001 21:38:16 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Dr. Kenyon has a FABULOUS presentation on islet cell transplantation for kids. Have you met her? She's an AMAZING woman.

Fri Jun 22 2001 21:38:18 Eastern US
graciela (mom of alecsai) from 209.86.182.38
Well, sweet dreams to all! Gob bless you all and put us soon together in Mickey's land!!! See ya!

Fri Jun 22 2001 21:38:28 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
That is absolutely fascinating!

Fri Jun 22 2001 21:38:31 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Ellen - We're going to make sure you have a nice cool drink with a little umbrella in it as you veg out at the pool.

Fri Jun 22 2001 21:39:00 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
And Dr. Nemery is the most wonderful ped endo!

Fri Jun 22 2001 21:39:25 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Hey i need to see that, maybe i will understand it on a kids level

Fri Jun 22 2001 21:39:33 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Good night Graciella and thanks for volunteering!!

Fri Jun 22 2001 21:39:36 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Graciela, email me CamelsRFun@aol.com and I'll give you my phone number. Maybe we can meet next week.

Fri Jun 22 2001 21:40:16 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Need to brush Ethans teeth be right back

Fri Jun 22 2001 21:40:22 Eastern US
Billetdeaux from 63.48.17.13
Site planning is YEARS in advance. Last fall, I toured a bunch of places after doing extensive interviewing of potential spots. There are a lot of pretty stringent criteria - you should have seen me picking Pasadena over L.A. I was at a hotel in L.A., and they were looking good... and then I found mold all over my strawberries in a fruit cup. If they would serve that to me, knowing I was a conference planner, what might we find on our kids' food??? Yuk. I didn't even want to think about it.

I have thought about San Antonio. Also someone suggested Austin, but I've never been there. The next 4 years are already pretty well planned, though.

Fri Jun 22 2001 21:40:54 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
If anyone can contact the Disetronic rep who is coming, I'd love to try a sample of the UltraFlex

Fri Jun 22 2001 21:41:24 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
I've always wanted to see San Antonio.

Fri Jun 22 2001 21:41:47 Eastern US
Billetdeaux from 63.48.17.13
That's Craig Crease from Disetronic... Lauren, can you talk with him?

Fri Jun 22 2001 21:42:00 Eastern US
maggie (brian14dxd10) from 205.188.199.42
hello all!

Fri Jun 22 2001 21:42:32 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Hello Maggie

Fri Jun 22 2001 21:42:38 Eastern US
Billetdeaux from 63.48.17.13
San Antonio is great. The Alamo is heart-stopping, especially if you see the IMAX production of the history of the Alamo. I sat there in tears thinking what it must have been like for the families then...

Hi Maggie!

Fri Jun 22 2001 21:42:39 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
I'll talk to Craig. The ultraFlex is great. I'm thinking of getting some until Minimed can get some QuikSets in.

Fri Jun 22 2001 21:42:41 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Is his email c.crease@disetronic-usa.com?

Fri Jun 22 2001 21:42:53 Eastern US
maggie (brian14dxd10) from 205.188.199.42
funny I just found out that all of you are going to disney the week I planned my family vacation!!!

Fri Jun 22 2001 21:43:40 Eastern US
Billetdeaux from 63.48.17.13
No period... just ccrease@disetronic-usa.com

Fri Jun 22 2001 21:43:42 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Maggie, and you're going to be there? :-)!

Fri Jun 22 2001 21:43:53 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Hi Maggie, Well isn't that cool! So are you staying at the Coronado?

Fri Jun 22 2001 21:43:54 Eastern US
maggie (brian14dxd10) from 205.188.199.42
we are staying at the all sports

Fri Jun 22 2001 21:44:07 Eastern US
Billetdeaux from 63.48.17.13
Maggie - Will you be at Disney for your vacation? Or are you eavesdropping!!!

Fri Jun 22 2001 21:44:10 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
I can't wait to meet some of these great pedi endos. I want some ammo to use to encourage ours to let my son use a pump. He doesn't like to put little ones on it. Not until they are about 10-12 years old.

Fri Jun 22 2001 21:44:27 Eastern US
maggie (brian14dxd10) from 205.188.199.42
yes, july 16 thru the 22

Fri Jun 22 2001 21:44:57 Eastern US
Billetdeaux from 63.48.17.13
I think about 6-8 families will be at the All Star Resorts - not sure which hotels, though... there are 3 of them.

Fri Jun 22 2001 21:44:59 Eastern US
maggie (brian14dxd10) from 205.188.199.42
had no idea that this d thing was going on

Fri Jun 22 2001 21:45:24 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Danielle, I have an email full of links to help you with your ammo :-). Write to me at CamelsRFun@aol.com

Fri Jun 22 2001 21:45:56 Eastern US
maggie (brian14dxd10) from 205.188.199.42
tell me do our children have to stand on the regular lines? this will be our first trip since brian was dxd

Fri Jun 22 2001 21:46:12 Eastern US
Billetdeaux from 63.48.17.13
Danielle - Make SURE you meet Peter Chase, and go to the session he's doing on Management of the Child with Diabetes (Thursday morning). Also, come to the Meet the Experts Reception Friday afternoon... you can ask questions during the forum and then meet him in person! He's a great guy...

Fri Jun 22 2001 21:46:21 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Also, Danielle, write to Kelly at Kelly02000@aol.com to find out - her 3 year old has been on the pump over a year now.

Fri Jun 22 2001 21:46:52 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Danielle,
You must FIGHT. This is your child. If necessary find someplace that will help you. The pump is great! It has made a real difference in Stephen and our lives. My nurse helped me with the doctor. Stephen is 9 and has been pumping since Sept.

Fri Jun 22 2001 21:47:08 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Maggie, learn to use the Fast Pass at Disney - you get tickets ahead of time so you move quickly through the lines.

Fri Jun 22 2001 21:47:20 Eastern US
maggie (brian14dxd10) from 205.188.199.42
sharon from staten island said something about it awhile ago to me and it went over my head

Fri Jun 22 2001 21:47:35 Eastern US
Billetdeaux from 63.48.17.13
You will need to get a Special Assistance Pass to deal with the lines. You can get this at the Coronado Weds/Thurs (not sure of times yet, but probably during registration hours). You can also get a pass at Guest Relations in ANY of the Disney parks.

Also, you can use the Fast Pass (as Ellen just stated)... sometimes this is enough.

Fri Jun 22 2001 21:47:37 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Oh I'm looking forward to meeting Peter Chase. Will he have his Pink Panther book there for sale?

Fri Jun 22 2001 21:47:42 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Dr. Chase isn't big on pumping little ones, we started seeing him after we started pumping, maybe we're changing his mind a bit.

Fri Jun 22 2001 21:47:55 Eastern US
maggie (brian14dxd10) from 205.188.199.42
hi ellen sorry did'nt see you, fast pass?

Fri Jun 22 2001 21:48:14 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
Our doctor's concern is in having the school administer the insulin. How do your schools handle the pump?

Fri Jun 22 2001 21:48:49 Eastern US
maggie (brian14dxd10) from 205.188.199.42
so there is something, thanks, was worried about standing on long lines

Fri Jun 22 2001 21:49:04 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Ethan started pumping in Nov. So this fall he will start preschool.

Fri Jun 22 2001 21:49:13 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
But they only have FastPass on the big rides. Use the SAP on the little ones.

Fri Jun 22 2001 21:49:35 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
I took Stephen out of School in January and now homeschool. Our school has no nurse and they refused to do anything for him no matter how much information I gave them. Don't get me started on that.

Fri Jun 22 2001 21:49:44 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
I think preschool will be fine but kindergarten next year will be the test

Fri Jun 22 2001 21:49:58 Eastern US
Mary(RI) (9 year old twins, pumping) from 64.12.102.182
hi everyone

Fri Jun 22 2001 21:50:01 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Danielle, there are books written by the pump companies specifically to help school personnel get over their fears. Minimed's is called Pumper in the School, Insulin Pump Guide for School Nurses, School Personnel and Parents.

The Fast Pass is a concept where you go to the ride, put your pass through a machine and you get a ticket with a time -- you come back at THAT time and get in the fast line.

Fri Jun 22 2001 21:50:22 Eastern US
Billetdeaux from 63.48.17.13
Ellen - You explain the fast pass. I'll explain the Special Assistance Pass (SAP). The SAP is a card that your whole family gets... it's for families who have some kind of medical concern. When you apply for the SAP, you tell them what it is you'd like to happen... i.e., you don't want to wait in long, hot lines in the sun because your child might become hypoglycemic and sick. So, in response to that, they might let you come to the front of the line, or they might let you wait in air conditioning, or they might make you wait in the Fast Pass line, in which case the wait is no more than 10 minutes.

We actually had a SAP last year and used it maybe 3 or 4 times. The rest of the time, the lines weren't that bad or we just used the Fast Pass.

Fri Jun 22 2001 21:50:28 Eastern US
maggie (brian14dxd10) from 205.188.199.42
sap?

Fri Jun 22 2001 21:50:44 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
Roxann, maybe we can talk about that sometime. I would like to have an idea of what we might encounter.

Fri Jun 22 2001 21:50:57 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Will there be a break out session on empowering parents to get what they need from their schools?

Fri Jun 22 2001 21:51:24 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Danielle, I think the pump is easier than injections at school. They just have to push buttons. We've never had a problem administering insulin

Fri Jun 22 2001 21:51:31 Eastern US
maggie (brian14dxd10) from 205.188.199.42
thank you, should I call in advance for these passes or can I get them when I get there?

Fri Jun 22 2001 21:51:48 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Danielle,
I would be glad to help you!

Fri Jun 22 2001 21:52:00 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Hi Mary

Fri Jun 22 2001 21:52:38 Eastern US
maggie (brian14dxd10) from 205.188.199.42
ellen are you going to be there?

Fri Jun 22 2001 21:52:40 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Lauren
You are right. The pump is easier!

Fri Jun 22 2001 21:52:56 Eastern US
Billetdeaux from 63.48.17.13
Yes!!! There is a session on Friday from 1 - 2:30 called Managing Diabetes at School. Steph Schwartz, CDE and Associate Editor of CWD will be presenting with Crystal Jackson, a CWD mom and advocate who works with the ADA.

Fri Jun 22 2001 21:53:22 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Oh that is EXCELLENT Laura!

Fri Jun 22 2001 21:53:35 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Yes I'll be there.

Fri Jun 22 2001 21:53:41 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
Lauren,
At present, we only inject in the moring and before dinner so we wouldn't have to worry about insulin injections at schools. I think our endo is trying to keep the control on us and away from the schools.

Fri Jun 22 2001 21:54:25 Eastern US
Billetdeaux from 63.48.17.13
You can't get Special Assistance Passes ahead of time. You can only get them right there at Guest Relations. Disney is doing us a favor by having someone at the Coronado Weds and Thurs facilitating this. It will NOT be fun standing in a long line at Guest Relations Saturday morning, so I suggest everyone take care of this early! Also, the SAP is good for multiple days... tell them how many days you will be in the park. That way you don't have to keep re-applying for one.

Fri Jun 22 2001 21:54:45 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
When Stephen was in school, I was called 4 to 5 times a day and expected to come each time plus be there at lunch to check him and bolus him

Fri Jun 22 2001 21:55:43 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
See Laura,
I am still having a conflict on which class to attend because I think that one would be useful. I have to get a full time job soon and will have to trust the daycares to protect and treat my son. It is scary to think about.

Fri Jun 22 2001 21:55:44 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Danielle, I have many letters i got from some of the moms on the CWD list when we were wanting to put Ethan on the pump and our CDE was not willing. I will be glad to send copies for your doctor to read

Fri Jun 22 2001 21:56:56 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Danielle, we have to talk. You will still have control if he is pumping. And you are not at the mercy of some dingbat teacher who can't seem to remember to give the snack on time. my email is llanning@att.net

Fri Jun 22 2001 21:57:08 Eastern US
Billetdeaux from 63.48.17.13
Danielle - You should go to the parents discussion group and have your mom go to the Schools session. Skip the 3rd one. These two are more relevant for you.

Fri Jun 22 2001 21:57:58 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Remember, that you can also get lots of support in the parents room at this website, so whatever you miss at the conference, know that this wonderful resource exists.

Fri Jun 22 2001 21:58:08 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Lauren:
You go girl!

Fri Jun 22 2001 21:58:32 Eastern US
Billetdeaux from 63.48.17.13
Also, before I forget to tell you all... we are working with an Orlando CDE, Mike Schurig (he will be volunteering with our teens at Epcot)... and he is trying to get carb counts for all the food that will be served at our various meals and snacks...

Fri Jun 22 2001 21:58:34 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Roxanne, no wonder you home school!

Fri Jun 22 2001 21:59:13 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
You have no idea. We must talk!

Fri Jun 22 2001 21:59:17 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
I think my problem with the teachers will be his low sugars. He doesn't show symptoms and they are always swamped by all the other kids

Fri Jun 22 2001 21:59:53 Eastern US
Billetdeaux from 63.48.17.13
Danielle - At the Parents of Toddlers group, bring this up... it's a good topic for discussion. Nancy Crease is one of the facilitators... send her an email this week at crease@earthlink.net She is collecting topics for discussion.

Fri Jun 22 2001 22:01:01 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Danielle, you may need to get Jordan a watch that alarms and has a read out of "test bg" or "snack now"...(Timex DataLink Watch)...at least then the teachers will be alerted every couple of hours at a minimum.

Fri Jun 22 2001 22:01:39 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Danielle, my email is llanning@att.net.

Just curious... is everyone here on the parents amiling list?

Fri Jun 22 2001 22:01:55 Eastern US
Billetdeaux from 63.48.17.13
Well, folks... it's 10:00 and Carolyn and I are on the road at 7:00 a.m. for a basketball tournament all weekend... I'll see you in 3 weeks... we may have another chat before then, maybe not... If you have any questions, call or email! G'night! (the chat room stays open for another hour, I think, if you guys want to keep talking)

Fri Jun 22 2001 22:02:01 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
We are definitely looking forward to meeting all of you. I have only been aware of this for 2 months and have tried to absorb gobs of books, sometimes by osmosis...I fall asleep on them.
Just having a support group like this will make life easier.

Fri Jun 22 2001 22:02:08 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
whoops that was supposed to be mailing not amiling ;^)

Fri Jun 22 2001 22:02:59 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Danielle, have you read Sweet Kids by Brackenridge and Rubin
or
Coping With Your Child's Chronic Illness by Alecia T. Barrett Singer?

Fri Jun 22 2001 22:03:06 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
See you soon Laura

Fri Jun 22 2001 22:03:16 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
good night Laura, Thanks!

Fri Jun 22 2001 22:03:28 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
I need to check on that watch...thanks. Sounds like a great idea.

Fri Jun 22 2001 22:03:36 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Laura, thank you again for everything!

Fri Jun 22 2001 22:03:47 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Danielle, email me anytime to a2angelmom@aol.com things can be such a blur at times

Fri Jun 22 2001 22:03:48 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
Good night Laura. Thanks for everything

Fri Jun 22 2001 22:03:56 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Nite nite Laura

Fri Jun 22 2001 22:04:49 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
It's a great watch Danielle, although quite large for a little one's arm. You download all the information into the computer and then hold the watch up in front of the monitor and it downloads all the info into the watch via infrared

Fri Jun 22 2001 22:05:11 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
Tell me about it. I still can't believe the stress this has put me under. THis was my final straw too. I had a bad year before my son was diagnosed.

Fri Jun 22 2001 22:06:05 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Danielle, you are NOT alone.

Fri Jun 22 2001 22:06:24 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Danielle,
It is very hard but the only thing I can tell you is it will get a little easier the more you learn about it. Hang in there.

Fri Jun 22 2001 22:06:29 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Oh before you all go, don't forget to send me pictures for the collage

Fri Jun 22 2001 22:06:48 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
I hope to get started cutting and pasting tomorrow

Fri Jun 22 2001 22:07:08 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
I finally have a photo for you. I will mail it tomorrow. Sorry I took so long.

Fri Jun 22 2001 22:07:20 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Arrgg the collage. I forgot.

Fri Jun 22 2001 22:07:27 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Danielle, at two months after dx, I was a basket case. It does get easier, I promise

Fri Jun 22 2001 22:07:32 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Wish we could email it.

Fri Jun 22 2001 22:08:58 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
I hope so. My dad was diagnosed with type 2 about 10 years ago and told me last night that he is giving up. He hasn't been having any luck with control so he won't try. It is going to be hard to watch him go blind and such, but I can't force him and he lives far away ...in Nevada

Fri Jun 22 2001 22:09:04 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
You can send you picture to Ofoto.com and they will mail it for you. That's what I did.

Fri Jun 22 2001 22:09:26 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Julia, can you please send me one more collage reminder? I deleted over 350 emails tonight and I'm afraid they were in there.

Fri Jun 22 2001 22:09:43 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
I know sorry i don't have a color copier, stone age here

Fri Jun 22 2001 22:10:21 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Hey i am sending them weekly every Sunday but i will send you one in a few minutes

Fri Jun 22 2001 22:10:28 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Hey I like black and white photography :-)!

Fri Jun 22 2001 22:10:49 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Julia:
You do a beautiful job. It is a lot of work

Fri Jun 22 2001 22:10:56 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Oh yes the Ofoto.com thing was great

Fri Jun 22 2001 22:11:15 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Thanks. I'm such a procrastinator.

Fri Jun 22 2001 22:12:05 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
is there any way to get a copy of the collage?

Fri Jun 22 2001 22:12:31 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
And I never had to walk to the mailbox, just downliad the picture and they will print and mail it for $1.50

Fri Jun 22 2001 22:13:07 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
I've got to run. See you all in Orlando!!!

Fri Jun 22 2001 22:13:21 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Danielle, last year jeff took a pic and put it on the CWD page

Fri Jun 22 2001 22:13:44 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
I have never heard of this. Will they do any picutre and send anywhere?

Fri Jun 22 2001 22:13:55 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
One of the moms has it as her screen saver

Fri Jun 22 2001 22:13:57 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
see you Lauren!

Fri Jun 22 2001 22:14:16 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
Roxanne, yes i think they will

Fri Jun 22 2001 22:14:41 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
cool. Anyone know how to get a copy of the song
Promise to remember me? I am a graphics student and want to do a video with the kids as a project for a future website I want to do.

Fri Jun 22 2001 22:14:58 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
ok gang i need to go, Hannah will never get to bed email me if you want those letters Danielle

Fri Jun 22 2001 22:15:11 Eastern US
Lauren (mom of Monica 7, dx 8/96) from 12.81.160.167
Danielle, Yes, for a price. But they give you 10 free prints just for signing up. My husband is going to kill me, gotta run! llanning@att.net

Fri Jun 22 2001 22:15:53 Eastern US
Roxann (Mom of Stephen,9, dx'd at 6) from 208.154.218.39
Take care Julia,
I must go too. Stephen won't stop eating. One of those nites

Fri Jun 22 2001 22:16:00 Eastern US
a2angelmom (Momma to Ethan 3½ dx at 10mo. Pumping 6mo) from 205.188.192.57
nite nite a2angelmom@aol.com

Fri Jun 22 2001 22:16:17 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Danielle, you can write to JDRF and ask for the lyrics..

Fri Jun 22 2001 22:16:45 Eastern US
Danielle (mom of Jordan, 2 1/2, dx'd 2 months ago) from 64.154.228.224
goodnight all. It was fun talking to you. And I will send emails out....got lots to learn. Can't wait to see you all .Bye

Fri Jun 22 2001 22:17:04 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Or Danielle, give me your email address and I'll send it to the wife of the person who wrote it.

Fri Jun 22 2001 22:18:16 Eastern US
Ellen (FL) (Mom of Zachary 13, dx'd 2/89, pump 6 yrs) from 152.163.213.63
Danielle, you would need permission to use it because it's copyrighted.

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