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  Back to Chat Transcripts Feelings Matter: Avoiding Diabetes Burnout

Feelings Matter: Avoiding Diabetes Burnout

Hosted by Dr. William Polonsky, author of Diabetes Burnout: What To Do When You Can't Take it Anymore.

Chat Room Administrator chat@childrenwithdiabetes.com (206.112.197.133) Tue Sep 26 2000 20:42:02 Eastern US
Our special chat about "Avoiding Diabetes Burnout" will begin at 9:00pm EDT.


Tue Sep 26 2000 20:58:15 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
you here yet, jeff?

Tue Sep 26 2000 20:58:30 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 206.112.197.133
I'm here

Tue Sep 26 2000 20:58:59 Eastern US
Judy from NY (Elissa..age19..2nd year of college...pumping 15 years) from 24.161.8.110
hi

Tue Sep 26 2000 20:59:28 Eastern US
Wanda from 24.218.184.227
HELLO!!!!

Tue Sep 26 2000 21:00:25 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Good evening =)

Tue Sep 26 2000 21:00:53 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Hello, all!

Tue Sep 26 2000 21:00:55 Eastern US
Nicky (19, dx'd at 11.) from 210.215.8.8
Hello!!!

Tue Sep 26 2000 21:01:03 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
Hello

Tue Sep 26 2000 21:01:07 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
Emily - VERY GLAD to see you here -

Tue Sep 26 2000 21:01:33 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Steve, I think I need to be here, seeing how I've been doing lately...LOL

Tue Sep 26 2000 21:01:43 Eastern US
Kathy (mom of Courtney 13,dx@age14mos.) from 142.177.93.68
I think i belong here too

Tue Sep 26 2000 21:02:06 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 206.112.197.133
Good evening Bill. Glad you could take the time to hose our special chat about "Avoiding Diabetes Burnout."

Tue Sep 26 2000 21:02:19 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
Lots of us here thinking about you

Tue Sep 26 2000 21:02:44 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
I'm glad to be here; I'm looking forward to hearing everyone'd stories and expertise about burnout, as well as questions.

Tue Sep 26 2000 21:02:49 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Steve, today I went to the doctors and had a 2 hour talk with them. They refered me to someone else to talk to, so we'll see how that goes.

Tue Sep 26 2000 21:02:53 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 206.112.197.133
Bill, you've got an eager audience of parents here.

Tue Sep 26 2000 21:03:26 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Well Bill, I am rather burnt out right now. This chat was great timing for what I've been feeling.

Tue Sep 26 2000 21:03:35 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
good for you Emily...it's sure hard to stay Up all the time with D

Tue Sep 26 2000 21:03:39 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
and not just parents i see

Tue Sep 26 2000 21:03:45 Eastern US
Judy from NY (Elissa..age19..2nd year of college...pumping 15 years) from 24.161.8.110
Bill - do you feel everyone will experience burnout at some time or another?

Tue Sep 26 2000 21:03:56 Eastern US
Nicky (19, dx'd at 11.) from 210.215.8.8
Bill why do so many of us burnout

Tue Sep 26 2000 21:04:00 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
emily, let's hear about it!

Tue Sep 26 2000 21:04:01 Eastern US
Wanda~Mass~ (Kaitlyn age 6 dx'd 12-23-98) from 24.218.184.227
My biggest question is How do you get out of that "burn out" stage, When you think you can't take it anymore????

Tue Sep 26 2000 21:04:47 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Oh my, I'm not sure who to answer first.

Tue Sep 26 2000 21:05:18 Eastern US
Kathy (mom of Courtney 13,dx@age14mos.) from 142.177.93.68
I thought toddler years were a problem,puberty has me burnt out.

Tue Sep 26 2000 21:05:49 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Wanda, it seems that the most powerful way to escape burnout is when you get some support from others. There's nothing worse than feeling alone with all this. what do you think?

Tue Sep 26 2000 21:06:03 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Bill, I am just so sick of taking care of myself every day for the past almost 16 years. Today my a1c was 6.7 which is nothing to complain about. But I am tired of feeling high, low, worrying about it, pricking my finger, wearing my pump (which I know is better than shots, for me atleast). I am just so unhappy in general. I believe it is affecting my school work. I was a very good student until this year.

Tue Sep 26 2000 21:06:21 Eastern US
Judy from NY (Elissa..age19..2nd year of college...pumping 15 years) from 24.161.8.110
my daughter has had a super attitude all these years and I am waiting for something to happen

Tue Sep 26 2000 21:06:55 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
And, Nicky, I think so many people burnout on diabetes because the disease can be so tough-- especially that wacky things happen despite your very best efforts. But that doesnt mean you need to stay burned out!

Tue Sep 26 2000 21:07:51 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
You think you are burnout with puberty. I was diagnosed in my puberty and I am sick of the injections, the finger pricks and just everything to do with and the behavoiour of other people towards me because of the disease. I have been through the hole lot and magically survived it all.

Tue Sep 26 2000 21:08:15 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
I am so involved in school, work, and many diabetes activites. I am the Youth Chair for the ADA here in CT. I love all I do and have never felt this way before which is what makes it scary. I've always accepted my diabetes and did well.

Tue Sep 26 2000 21:08:30 Eastern US
sharon (2 kids with D) from 165.247.29.251
hi everyone. this seems to be a popular topic

Tue Sep 26 2000 21:08:31 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Emily's message makes me think about depression. when you have diabetes ,your risk of becoming severely depressed is much, much greater. So maybe its not the diabetes per se, Emily.... Maybe...what else?

Tue Sep 26 2000 21:09:17 Eastern US
Jamie from 152.163.207.49
Hi Emily and everyone!!

Tue Sep 26 2000 21:09:23 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Yeah but I did for years then I got to a point and though that was it I didn't want things to be this way but through support and friends I survived and are doing great now.

Tue Sep 26 2000 21:09:33 Eastern US
Linda (nurse for diabetic boy) from 205.188.193.47
Ever hear the song by Mark Schultz, "He's my son"? I find it comforting and plan to give it to my "patient's" Mom. I can't imagine going through all the emotional worries as parent of a diabetic child.

Tue Sep 26 2000 21:09:36 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
emily, another common reason for burnout (and depression) is when you get locked into being a perfectionist. Your expectations just get too high and unreasonable... A possibility perhaps?

Tue Sep 26 2000 21:10:24 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
I'd like to hear from some parents as well. What's parent burnout like?

Tue Sep 26 2000 21:11:05 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
But see my diabetes has never being perfect so I think that makes my burnout harder.

Tue Sep 26 2000 21:11:18 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Nicky, how do you deal with all when you just feel fed up?

Tue Sep 26 2000 21:12:07 Eastern US
sharon (2 kids with D) from 165.247.29.251
lol-no takers on that one bill.

Tue Sep 26 2000 21:12:24 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 10.0.1.6
Bill, I know many parents who test their kids during the middle of the night each night. It's very tiring.

Tue Sep 26 2000 21:12:25 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Bill, I dont know what it is, or what would make me happy again. I talked to my doctor today, I have a great support at home and friends to talk to it about. But for some reason I just can not help but getting frustrated. My doctor suggested it could be because my whole life I have had to play the role of the "poster child" in all aspects that I do.

Tue Sep 26 2000 21:12:33 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
oh well...

Tue Sep 26 2000 21:13:01 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
I would just like to ask my girls questions that don't involve, have you tested, what was your bgs, how much insulin did you take, and worrying that their major organs are burning out because their bgs are high and if we were just better their bgs would stay in range (even though we know that there is no one that can keep their bgs under control all the time)

Tue Sep 26 2000 21:13:25 Eastern US
sharon (2 kids with D) from 165.247.29.251
of course, i could talk for hours

Tue Sep 26 2000 21:13:43 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
A lot of support from friends and just doing other things that take my mind of it I have a list of self nuturing activities to do if I need them

Tue Sep 26 2000 21:13:46 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Linda, it seems that guilt is the toughest thing for parents-- am i ever doing enough? it can drive you nuts!

Tue Sep 26 2000 21:13:52 Eastern US
Gene (Seth 5 yrs. dxd @ 14 mnths.) from 152.163.194.181
What exactly are you considering,"burnout"? I do know that it is physically,mentally, emotionally tiring..but does being exhausted mean that you are "burnedout" or does burnout involve something other than that...

Tue Sep 26 2000 21:13:59 Eastern US
scotty girl (12 / pump assesment class tomorow!!!!) from 64.30.68.204
Hello

Tue Sep 26 2000 21:14:31 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
I'm up to my arm pits in diabetes and I'm feeling pretty burned out too. But then I know if I'm burned out how are the girls doing. I try to do as much as I can for them without taking away their opportunity (?) to learn responsibility

Tue Sep 26 2000 21:14:39 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 10.0.1.6
Sharon: having one child with diabetes is quite challenging. Two must be even more so.

Tue Sep 26 2000 21:14:46 Eastern US
sharon (2 kids with D) from 165.247.29.251
i know i am burnt out right now, i feel like crap from a cold i am sure i would have fought off if i wasnt burnt

Tue Sep 26 2000 21:15:08 Eastern US
Kathy (mom of Courtney 13,dx@age14mos.) from 142.177.93.68
For the past 12 years we have lived with diabetes and I think my expectations were for things to get a little easier as the years went by,but in reality the worries and fears are all still there and as I give her more responsibity and independence it is more frightening for me as a parent.

Tue Sep 26 2000 21:15:18 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
emily, one of the toughest jobs you have is finding the right balance. On the one hand , taking care of diabetes as well as you can. On the other hand, still having a life day to day. Its tough to find that balance...

Tue Sep 26 2000 21:15:25 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
It can consume not only the child, the parent but the entire family. It's easy to let the others get lost in the shuffle.

Tue Sep 26 2000 21:15:26 Eastern US
sharon (2 kids with D) from 165.247.29.251
well, it is challenging, but in some respects it might be easier. no fighting over who can eat what & who cant, for instance

Tue Sep 26 2000 21:15:46 Eastern US
Jamie (19, diabetes 5 years, insulin pump 10 months) from 152.163.207.49
Emily, I think you hit it right there.. You have been a role model figure for youth with diabetes.. That can be pressure on a person who everyone expects to have things so together and under control.

Tue Sep 26 2000 21:15:54 Eastern US
sharon (2 kids with D) from 165.247.29.251
i hear that kathy

Tue Sep 26 2000 21:15:55 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Yeah my parents still worry and I don't live at home anymore I think they find that hard.

Tue Sep 26 2000 21:15:56 Eastern US
Linda (nurse for diabetic boy) from 205.188.193.47
I take care of a boy at school and I feel I fail if I don't "catch" his bgs before they get too low. You're right, we can't fully control bgs

Tue Sep 26 2000 21:16:33 Eastern US
sharon (2 kids with D) from 165.247.29.251
linda is right. i feel very consumed by diabetes right now, as well

Tue Sep 26 2000 21:16:41 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Bill, right now my biggest issue is knowing that I have had to deal with diabetes for almost 16 years and just am sick of it in general. Talking about it on my "off" bad days use to help but somehow this time around talking isnt getting me anywhere but crying more.

Tue Sep 26 2000 21:16:45 Eastern US
Judy from NY (Elissa..age19..2nd year of college...pumping 15 years) from 24.161.8.110
Nicky - I can't help but worry about my daughter every day........so I understand your parents' feelings

Tue Sep 26 2000 21:17:08 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Gene, good point! We're all probably being a bit broad here. formally speaking , being burned out doesn't just mean you're having feelings about diabetes, but that you are truly fed up, feel out of control, and feel close to quitting your job.

Tue Sep 26 2000 21:17:13 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
I think most of us parents have spent nights wondering how our children are doing... especially when they are first dx'd. We hope that we're training them to take care of themselves.

Tue Sep 26 2000 21:17:54 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 10.0.1.6
Bill, do you have any advice for newly diagnosed parents as they feel overwhelmed?

Tue Sep 26 2000 21:18:18 Eastern US
Wanda~Mass~ (Kaitlyn age 6 dx'd 12-23-98) from 24.218.184.227
I gotta run for a while, I hope to be back in a while

Tue Sep 26 2000 21:18:22 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
No one can fully control bgs but don't ever try.
Yeah I think parents find it hard but they will learn to let there children take care of them selves eventually.

Tue Sep 26 2000 21:18:27 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
I'm ready to hand over my motherhood badge...does that count? LOL

Tue Sep 26 2000 21:18:45 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
I feel bad for what I am putting my parents through right now. I know it hurts my mom to see me like this, almost as much as it hurts me to feel this way.

Tue Sep 26 2000 21:19:05 Eastern US
sharon (2 kids with D) from 165.247.29.251
who would take over linda?

Tue Sep 26 2000 21:19:07 Eastern US
Jamie (19, diabetes 5 years, insulin pump 10 months) from 152.163.207.49
Emily, do you think that you felt less "burnout" while at camp with your diabetes care?

Tue Sep 26 2000 21:19:24 Eastern US
Shannon (Mom of Jordan, almost 3 ,dx. 7/00) from 205.188.197.29
Hi everyone, just looking on because my son has only been dx. for 2 mo., but there's already alot of emotions & frustrations going on!

Tue Sep 26 2000 21:19:57 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Jeff, I am humbled by the expertise here. I suspect many here could give better advice than me. for the newly diagnosed parent, what I first think is-- hope (your child can live and grow and have a healthy life), confidence (you and the family can do all this, but be patient, it will take time). I'd want them to meet other parents!

Tue Sep 26 2000 21:19:59 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
You don't have to hand over the motherhood badge you just have to give them the freedom to do what they wont and pick them up when they fall.

Tue Sep 26 2000 21:20:06 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Jamie, yes because testing and insulin was a part of everyones routine while there. It wasnt as big of a deal.

Tue Sep 26 2000 21:20:20 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
One thing that I've found very frustrating is that our girls are at the age where they would like to be more independent from Mom and Dad and start cutting the apron strings but because of the D it really isn't possible and so they are particularly frustrated.
Sharon, I'll stay...but it sure was easier when Kim was younger...now that we have Alla (we adopted her with D in April) it's like a new dx all over again.

Tue Sep 26 2000 21:20:23 Eastern US
BettyB (Tempe, AZ) from 205.188.199.209
Do you ever talk to your mom about that, Emily? Can you talk together about how this effects both of you?

Tue Sep 26 2000 21:20:56 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 10.0.1.6
Shannon, I always recommend that parents get a baby sitter trained right away and learn to go out and relax once in a while.

Tue Sep 26 2000 21:21:57 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
BettyB, I talk to my mom about how I am feeling and then we both wind up crying and I appologize for putting her through this too and she says she'd do anything for me, and it is ok, etc.

Tue Sep 26 2000 21:22:12 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
I think being burnout is different for everyone. Betty it is hard to tell parents about how you are feeling when burnt out in the end the psychologist and me told mum and dad but it still didn't help I don't think she knew how to cope with it.

Tue Sep 26 2000 21:22:31 Eastern US
sharon (2 kids with D) from 165.247.29.251
well linda, my son was just dx in july, so i have a new dx all over again too. luckily for me, i am not the type to just give gabi her freedom all in one big gulp anyway, so as she eases into pre-adolescence we work on D issues as well as other typical things. gabi is 12 too

Tue Sep 26 2000 21:22:33 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
DITTO THAT Jeff - in fact....Allie sits for a couple of other D kids whose parents hadn't gone out for more than a year since dx

Tue Sep 26 2000 21:22:33 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
that's a nice thought jeff but sometimes it's just not possible to get a sitter that you trust

Tue Sep 26 2000 21:22:37 Eastern US
Jamie (19, diabetes 5 years, insulin pump 10 months) from 152.163.207.49
I definitely feel more burnout and like actually think more about the depressing sides of diabetes now that I am home from 9 weeks of camp. I felt like I didn't have diabetes at camp since it was just so normal and routine there!! It is a slap in the face coming back to reality!!

Tue Sep 26 2000 21:22:48 Eastern US
sharon (2 kids with D) from 165.247.29.251
good advice for shannon, jeff

Tue Sep 26 2000 21:23:14 Eastern US
Rae (Mom of college girls) from 208.34.89.163
Mind if I listen in?

Tue Sep 26 2000 21:23:15 Eastern US
Shannon (Mom of Jordan, almost 3 ,dx. 7/00) from 205.188.197.29
Yeah, I have to work on that. I really have no choice though because I'm due in Dec. with my 3rd child. I plan on training my parents & my sister.

Tue Sep 26 2000 21:23:17 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
paula are you from Connecticut?

Tue Sep 26 2000 21:23:33 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Emily, if you were sitting here in my office, I'd make a list of all the things about diabetes that are driving you crazy (it might be long!) and then you and I would pick one to try and work on. Maybe that's a good place to start. Can you think of one thing about all this that is driving you nuts?

Tue Sep 26 2000 21:24:16 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
yes i am emily

Tue Sep 26 2000 21:24:21 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
I'm just very grateful that these girls aren't our first daughters, so we know what to expect from girls this age...but we also see frustrations

Tue Sep 26 2000 21:24:50 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Bill, the fact of waking up every morning and knowing its another day with diabetes. It kills me because I use to LIKE diabetes...call me crazy...

Tue Sep 26 2000 21:25:48 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Yeah but everyone has different experience with burn outs and I think it just depends on how you take it. Mine doesn't control my life. I do what I want and the diabetes is just there.

Tue Sep 26 2000 21:25:49 Eastern US
sharon (2 kids with D) from 165.247.29.251
well, gabi is my first born, she is a great kid, but at THAT age, she knows more than i do.... about everything, not just D. so i know its a normal thing.

Tue Sep 26 2000 21:26:00 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Paula, I am from Wallingford,CT

Tue Sep 26 2000 21:26:19 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Emily, it sounds like you may be in that situation where it feels like diabetes is controlling your life, rather than the other way around. no wonder you feel so bad.

Tue Sep 26 2000 21:26:23 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
i felt like that when my daughter was first diagnosed emily it was like this big dread of facing the day

Tue Sep 26 2000 21:26:36 Eastern US
sharon (2 kids with D) from 165.247.29.251
nicky, that is exactly how i am trying to raise my children. i think that is a beautiful attitude

Tue Sep 26 2000 21:26:53 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
i am from hebron emily not so far away

Tue Sep 26 2000 21:27:49 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Yeah but trying to convince people of that is hard. I have only taken that attitude in the last threee years or so and I am enjoy it.

Tue Sep 26 2000 21:28:13 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Emily, Maybe Nicky has some thoughts on this, but-- its important to re-think all the stuff you do and find one way you can begin to feel that YOU are running the show, not diabetes. Any thoughts?

Tue Sep 26 2000 21:28:38 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
how do you make that change, bill?

Tue Sep 26 2000 21:28:38 Eastern US
Bangkok from 12.79.6.42
Hey everyone. Sorry to get here late.

Tue Sep 26 2000 21:28:41 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
I find that when I think about diabetes it makes me cry sometimes. If I'm not thinking about it I am ok for the most part. Teacher in school have commented to me how I dont look like the happy kid I use to be. I have never let diabetes control my life. The pump has been such a blessing for me. I was told about 16 yrs ago there would be a cure for diabetes within 5 to 10 years. That was not true....LOL

Tue Sep 26 2000 21:29:02 Eastern US
Kathy (mom of Courtney 13,dx@age14mos.) from 142.177.93.68
Linda,puberty is bad enough, but put diabetes with it.I also have an older daughter( non-diabetic so i know what to expect.

Tue Sep 26 2000 21:29:33 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
emily, so much for that idea!

Tue Sep 26 2000 21:29:43 Eastern US
sharon (2 kids with D) from 165.247.29.251
i know nicky, i have encountered alot of flack from people because of the way i view raising children with diabetes. but i do believe, they are regular children, who happen to have diabetes to contend with. period.

Tue Sep 26 2000 21:29:58 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
I have a diabetes webpage and I get so many emails from people coming to me asking me for help and I am able to help them, but not myself.

Tue Sep 26 2000 21:30:00 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
steve, what was your question again?

Tue Sep 26 2000 21:30:32 Eastern US
Bangkok from 12.79.6.42
Is that Sharon from Crooklyn?

Tue Sep 26 2000 21:31:04 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
Are there any strategies for 'taking control' of your D - to feel that you control your D instead of the other way around?

Tue Sep 26 2000 21:31:06 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
We try to keep the girls involved in sports and other activities so they can focus on other stuff...
I've been so burned out lately and not just because of D. I've decided to start tole painting again. 15 yrs ago I quite when I had a very hard pregnancy. Never got back to it and I REALLY need something for me!

Tue Sep 26 2000 21:31:11 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
i find as my daughter is getting older she's realizing how different her life is from her friends. It never really fazed her in the beginning

Tue Sep 26 2000 21:31:14 Eastern US
sharon (2 kids with D) from 165.247.29.251
i think that is not uncommon emily. maybe you need to start putting yourself before other people for a change.

Tue Sep 26 2000 21:31:39 Eastern US
sharon (2 kids with D) from 165.247.29.251
lol, bankok, do you mean brooklyn?

Tue Sep 26 2000 21:31:42 Eastern US
Allie (age 14, diabetes 3.5 years, pumping since Dec.) from 24.189.117.171
hi everyone

Tue Sep 26 2000 21:32:10 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Yeah but emily you can always help someone else until it come to helping yourself. My doctor tryed to convince me I was depressed I had nothing of it. It wasn't until I excepted that things will improve.
My feeling on it if people don't except that you are normall or your children are they are the ones that miss out on watching what great kids they turn into.

Tue Sep 26 2000 21:32:30 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
GOOD FOR YOU lINDA!!!

Tue Sep 26 2000 21:32:31 Eastern US
Bangkok from 12.79.6.42
Hi Allie, and yes, I mean Brooklyn. Did your little guy just get his 504?

Tue Sep 26 2000 21:33:08 Eastern US
sharon (2 kids with D) from 165.247.29.251
i agree nicky!!!!!!

Tue Sep 26 2000 21:33:26 Eastern US
sharon (2 kids with D) from 165.247.29.251
yes bankok!!! hooray!!!!!!!!! 504 approved this week, finally!!!!!!!!!

Tue Sep 26 2000 21:33:39 Eastern US
sharon (2 kids with D) from 165.247.29.251
hi allie, how are you?

Tue Sep 26 2000 21:33:54 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
I've literally seen people's reaction's to Laura change once they find out she has diabetes.

Tue Sep 26 2000 21:33:54 Eastern US
Allie (age 14, diabetes 3.5 years, pumping since Dec.) from 24.189.117.171
Emily, u have helped me a lot. If u ever need anyone to talk to or anything, I would love to help u in return

Tue Sep 26 2000 21:34:05 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
No get children or you something you love to do and when you think you are burning out do that instead it helps a lot I cross stich and long stitch and that keeps me get through anything.

Tue Sep 26 2000 21:34:08 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Nicky and Paula, Good points about being different and yet feeling normal. That is pretty darn key!

Tue Sep 26 2000 21:34:13 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
I have always been taught I am just like everyone else. I was on the cover of diabetes forecast in march of '98 and have always taken things well. I am very involved in things and keep busy. I work 5 days a week, go to school and have about 4 extracurricular activities other than that going on right now.

Tue Sep 26 2000 21:34:19 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
Sharon how old are your kids

Tue Sep 26 2000 21:34:19 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 10.0.1.6
Paula, what do you mean that people change?

Tue Sep 26 2000 21:34:56 Eastern US
sharon (2 kids with D) from 165.247.29.251
well paula, i am so sorry that has happened to your daughter, and you. people really are ignorant sometimes

Tue Sep 26 2000 21:34:56 Eastern US
Shannon (Mom of Jordan, almost 3 ,dx. 7/00) from 205.188.197.29
Paula, what kind of reactions?

Tue Sep 26 2000 21:35:00 Eastern US
sharon (2 kids with D) from 165.247.29.251
gabi is 12 & steve is 6

Tue Sep 26 2000 21:35:00 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Thank you Allie, I appreciate it =)

Tue Sep 26 2000 21:35:24 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
okay Emily I know who you are. You go to Yale too so do we. Can't you talk to any of them there , they might help. How about Liz?

Tue Sep 26 2000 21:35:38 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
Emily, maybe you just need to step back from everything for a minute and take a deep breath. I saw that kind of burn out with 2 of our daughters now 21 and 18...you are such a wonderful example but give yourself a break!

Tue Sep 26 2000 21:35:52 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
when were they diagnosed sharon?

Tue Sep 26 2000 21:35:55 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Paula, yup I go to Yale. Today I talked to Liz and Silvia.

Tue Sep 26 2000 21:36:15 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Emily things do improve I am talking from experience. I have done some silly things when I have been down and I am still here because find some one you trust and talk to them and things do improve even through emails.

Tue Sep 26 2000 21:36:20 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Linda, what do you think helped your daughters?

Tue Sep 26 2000 21:36:30 Eastern US
sharon (2 kids with D) from 165.247.29.251
gabi was dx 28 months ago & steve just 8 weeks ago

Tue Sep 26 2000 21:36:44 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Linda, that is what people keep telling me but the thing is I can't take a break as silly as that sounds. I love all I do, but perhaps it is overwhelming at times.

Tue Sep 26 2000 21:37:17 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
wow double whammy, Sharon that's one of my fears that my son will get the big D

Tue Sep 26 2000 21:38:08 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Emily, Well maybe working out a way so that you can take a little break ever so often it doesn't have to be all the time just when you need it.

Tue Sep 26 2000 21:38:19 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
our older girls without D? It depended on the girl. One of them just needed to step back and get more sleep for a couple of days and then she could attack her "stuff" again. The other thing is starting to realize that they didn't HAVE to be perfect! (At least not all the time...it was basically giving themselves permission to be human)

Tue Sep 26 2000 21:38:44 Eastern US
sharon (2 kids with D) from 165.247.29.251
you know emily, a few years ago i was the volunteer queen. i let everythingin my personal life get pushed aside in my quest to help others. then when gabi was dx, i was completely overwhelmed & definitely burnted out. i dropped everything & focused on my family, and it did us so much good. just now i am getting my feet wet again by thinking about doing somevolunteer work at our hospital. soemtimes we all need that break.

Tue Sep 26 2000 21:38:56 Eastern US
sharon (2 kids with D) from 165.247.29.251
paula, did you test him in the dpt1?

Tue Sep 26 2000 21:39:16 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Nicky, I sure appreciate your points. How have you been able to take a bit of a break-- without going too far?

Tue Sep 26 2000 21:40:14 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
no my husband did the dpt1 and he was neg but my son also has a wicked fear of needles

Tue Sep 26 2000 21:40:31 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
Emily here's something I spend 6mo in bed learning. (I had two very tough pregnancies and was in bed for 3 mo. each.) There are very few things that someone else can't do. You don't have to do everything. Do what is absolutely necessary for you...let someone else pick up the slack on the other things. You may think that's selfish but believe me it's true. If you were to die tomorrow, the world would go on! (I know that you contribute so much, but really you can take a break)

Tue Sep 26 2000 21:40:31 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Sharon, oh god, I am volunteer queen times 10...LOL

Tue Sep 26 2000 21:40:33 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Linda, This need to be perfect can truly drive you nuts. Perhaps that's the toughest thing for many, especially if you're new to diabetes.

Tue Sep 26 2000 21:41:18 Eastern US
sharon (2 kids with D) from 165.247.29.251
mine does too :-(
hubby refused to be tested. forced steve to test, he was positive. i guess somewhere in the back of my mind i knew it was a matter of time

Tue Sep 26 2000 21:41:40 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
lol emily

Tue Sep 26 2000 21:41:43 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
(By the way, I've been the volunteer queen too! LOL)

Tue Sep 26 2000 21:41:44 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Will I go for walks, have a long hot bath, cross stitch long stitch anything i love to do I do.

Tue Sep 26 2000 21:41:50 Eastern US
Allie (age 14, diabetes 3.5 years, pumping since Dec.) from 24.189.117.171
I do know what Emily means. I just started hs and there are days when i am at school for 13 hours. BUt I am doing things I love and it is hard to give up these things but it can get overwhelming

Tue Sep 26 2000 21:42:17 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
I have been a volunter queen too but know only do what absolutely needed.

Tue Sep 26 2000 21:42:20 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
does the big D run in your family Sharon?

Tue Sep 26 2000 21:42:26 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Emily, maybe I used the wrong words before. But you do sound so very busy and involved that its easy to imagine that you might feel pretty pooped out by all this (especialy the diabetes). What do you think of all these ideas you're getting?

Tue Sep 26 2000 21:42:42 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
To me, getting involved was a way of forgetting about diabetes and everything. But perhaps I am doing too much at times. I dont know though...

Tue Sep 26 2000 21:42:54 Eastern US
Allie (age 14, diabetes 3.5 years, pumping since Dec.) from 24.189.117.171

Tue Sep 26 2000 21:43:04 Eastern US
sharon (2 kids with D) from 165.247.29.251
but do you know what, emily & allie? there is no guarantee, that even if you didnt have diabetes, you wouldnt still be doing all that you do and then sometimes feel that it is too much.

Tue Sep 26 2000 21:43:16 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
so, nicky, you make time for yourself...

Tue Sep 26 2000 21:43:26 Eastern US
sharon (2 kids with D) from 165.247.29.251
paula-NO

Tue Sep 26 2000 21:43:51 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
Emily, learn to put your feet up and eat bonbons like us moms! LOL

Tue Sep 26 2000 21:43:51 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
and to echo what the most beautiful 14-year old in the world just said (did I embarrass you enough, Allie) - High school and college can be quite overwhelming - and add D on top of that........OY

Tue Sep 26 2000 21:44:30 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
me either Sharon

Tue Sep 26 2000 21:44:54 Eastern US
Shannon (Mom of Jordan, almost 3 ,dx. 7/00) from 205.188.197.29
Emily, I'm burned out just by knowing all that you do. You deserve alot of credit!

Tue Sep 26 2000 21:44:56 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Yeah I make time for myself and I make sure that I rest if I need it because other wise i wouldn't be surviving studying to be a nurse that can some days burn me up expecially when sick.

Tue Sep 26 2000 21:45:00 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
Steve and I think high school is the worst! Only because everyone wants to be so involved and there are so many opportunies. I think for some kids it actually settles down (well maybe a little) when they're in college.

Tue Sep 26 2000 21:45:05 Eastern US
sharon (2 kids with D) from 165.247.29.251
right steve, but it may have been overwhelming anyway. that's my point. d certainly adds to it, but life is tough sometimes without it

Tue Sep 26 2000 21:45:20 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Bill, I think its great that everyone has suggestions. The thing about seeing a doctor is that they dont personally know what it is like to deal with diabetes day to day and sometimes chatting w/ other people with diabetes helps. I have been doing a lot of that lately. I am going to talk to another doc. about my unhappyness soon though because I am not convinced that diabetes is the cause of other problems I am having.

Tue Sep 26 2000 21:46:26 Eastern US
Allie (age 14, diabetes 3.5 years, pumping since Dec.) from 24.189.117.171
I don't think that is possible in hs....every one who talked to thfrshen this year said "get involved" between school, hw, and extracurrcular stuff there is little time to sit back and eat bonbons

Tue Sep 26 2000 21:46:26 Eastern US
sharon (2 kids with D) from 165.247.29.251
emily, do you go to support groups?

Tue Sep 26 2000 21:46:48 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Diabetes doesn't have to be the cause it can just be a factor in it emily. just think things improve and that helps.

Tue Sep 26 2000 21:46:54 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
ESPECIALLY Senior Year, Linda - i mean for a lot of kids the pressure of the college app is totally overwhelming, too.......

Tue Sep 26 2000 21:47:04 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
LOL Allie I know the feeling!!! =)
Sharon, no I dont...

Tue Sep 26 2000 21:47:18 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
There are some truly great folks at the Yale pediatric diabetes clinic. if you don't know them, meet them! (and, no, you're not too old)

Tue Sep 26 2000 21:47:43 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
I agree Bill

Tue Sep 26 2000 21:47:50 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
Emily, don't you think that part of it could be that you feel you have to do everything right because you have been such a good example of someone with D, been on the cover of Forecast etc.? (that's a tough responsibility and image to have to live with!)

Tue Sep 26 2000 21:48:02 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Nicky, I am having concentration and attention span problems in school.

Tue Sep 26 2000 21:48:08 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Bill, that is where I go, Yale.

Tue Sep 26 2000 21:48:10 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
but even if everyone says get involved remember your own health is more importatnt than anything else.
Yeah school effects everything but plan everything and things go allright.

Tue Sep 26 2000 21:48:23 Eastern US
sharon (2 kids with D) from 165.247.29.251
it may be worth looking into. there you would meet people who may be experiencing what you are experiencing...

Tue Sep 26 2000 21:48:25 Eastern US
Shannon (Mom of Jordan, almost 3 ,dx. 7/00) from 205.188.197.29
You know what Emily that's my frustrations. People who don't have to deal or relate to what it's like to have a child with D is frustrating! Some brush it off because thay don't know the details of it & the time it consumes!!!

Tue Sep 26 2000 21:48:26 Eastern US
Becky from 205.188.192.36
Hello everyone! What are we all talking about?

Tue Sep 26 2000 21:48:53 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Yes, I know (from earlier)
(and its where I spent my graduate school years as well). Ahh, New Haven!

Tue Sep 26 2000 21:49:17 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
very true Shannon.

Tue Sep 26 2000 21:49:22 Eastern US
sharon (2 kids with D) from 165.247.29.251
emily, sounds like you need such a hot bath & a good mindless novel to escape for a bit....

Tue Sep 26 2000 21:49:36 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Don't worry I have a very short attention span and I have just learnt if i get involved it is eaier to pay attention.

Tue Sep 26 2000 21:50:14 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
I went to the other school in New haven bill I bet my memories are much different

Tue Sep 26 2000 21:51:05 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Yeah but people who don't have the time eventually miss out on a lot because you can learn a lot from children with D because i think we learn to grow up quicker because we have to take care of this disease.

Tue Sep 26 2000 21:51:16 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Paula-- possibly, but New Haven is still New Haven (not the world's greatest place to live)...

Tue Sep 26 2000 21:51:24 Eastern US
Shannon (Mom of Jordan, almost 3 ,dx. 7/00) from 205.188.197.29
Paula, how do you deal?

Tue Sep 26 2000 21:52:01 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Emily is there something that interest you at school

Tue Sep 26 2000 21:52:18 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
Except for Anna's White Clam Pizza....

Tue Sep 26 2000 21:52:26 Eastern US
Shannon (Mom of Jordan, almost 3 ,dx. 7/00) from 205.188.197.29
Very true Nicky!

Tue Sep 26 2000 21:52:58 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
the big D Shannon?

Tue Sep 26 2000 21:52:59 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Nicky, this year not really...LOL I use to like Spanish but I can not sit long enough to concentrate on it.

Tue Sep 26 2000 21:53:08 Eastern US
Allie (age 14, diabetes 3.5 years, pumping since Dec.) from 24.189.117.171
def. Nicky....when I hear some of the things my friends obsess about I think it is ridiculous but then I realize that these minute things r important to them, because they don't deal with what I deal with and don't see what is really important

Tue Sep 26 2000 21:53:26 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
Emily - here;'s another suggestion - take a 'mental health' day - sort of a Ferris Bueller kind of thing - find a few things that make you happy - and just DO IT

Tue Sep 26 2000 21:53:58 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Steve, if my mom would just let me skip a day of school I would be SO happy. But that never happens.

Tue Sep 26 2000 21:54:01 Eastern US
Shannon (Mom of Jordan, almost 3 ,dx. 7/00) from 205.188.197.29
Yes & with other people not being able to relate, especially friends?

Tue Sep 26 2000 21:54:19 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
allie, nicky and others-- yep, diabetes can sure give you perspective. although it can be hard to share that with others at times...

Tue Sep 26 2000 21:54:22 Eastern US
kruscher7 from 131.128.132.53
Bill, Im 18 and I have a friend with diabetes. She has been having trouble lately dealing with all of the crap that she has to put up with. I was just wondering what I can do as a friend that would make things easier for her? Or if not easier, just less emotionaly taxing

Tue Sep 26 2000 21:54:22 Eastern US
Judith from 63.162.254.46
Hello....
Emily, saw Shelly this weekend and told her to say "hi" to you for me! Now I can say it myself. I know you are involved in SO many things. Your concentration problems could reflect some depression.....

Tue Sep 26 2000 21:54:28 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Yeah will the way to do it is find something you enjoy and concentrate the most on that and then that helps with everything.

Tue Sep 26 2000 21:54:35 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
Allie - you didn't hear me say this (and no, you can't) - but ask her again.....

Tue Sep 26 2000 21:54:42 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
I would think another thing that would be difficult for kids with D (especially girls) is that the parents and doc know where there "hormones" are at all times. No privacy from things that many kids like to keep private

Tue Sep 26 2000 21:54:50 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Hi Judith!! Oh, how is she?

Tue Sep 26 2000 21:54:57 Eastern US
sharon (2 kids with D) from 165.247.29.251
lolol@ steve

Tue Sep 26 2000 21:55:14 Eastern US
Allie (age 14, diabetes 3.5 years, pumping since Dec.) from 24.189.117.171
lol

Tue Sep 26 2000 21:55:27 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Steve-- LOL I'll have to ask again....

Tue Sep 26 2000 21:55:43 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Ok so she won't let you have anyday of maybe when you are sick one day take the day really slowely.

Tue Sep 26 2000 21:55:48 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
Emily, sometimes I have given my girls that (The older ones when they were in HS just exactly for a mental health day...they didn't abuse the privilege and they always had good grades.)

Tue Sep 26 2000 21:55:51 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Shelly is fine...busy, too.

Tue Sep 26 2000 21:55:53 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
krusch, the very best way to help is to just ask-- how can i help? everon'es needs are so different.

Tue Sep 26 2000 21:55:57 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
well it's been a tough road, I was so green about diabetes in the beginning, we were with another med center not Yale. I learned so much in that 2 years after Laura was diagnosed

Tue Sep 26 2000 21:56:51 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
It is hard being female and talking to doc and parents about things my only advantage is that my doctor will listern when I hae problems and they do as I want which is good.

Tue Sep 26 2000 21:56:59 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
tell her I said it was OK

Tue Sep 26 2000 21:57:28 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
I just take people's reactions in stride and the people who are interested I give them my quick science lesson about diabetes. Plus I have a close friend that has a couple of kids with a chronic med condition

Tue Sep 26 2000 21:57:44 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Nicky, a doc that listens? there are some, but never enough. that must really help!

Tue Sep 26 2000 21:57:47 Eastern US
Becky (Mom of Caleb 5, dx'd 4yrs) from 205.188.192.36
Bill, My son was dx's last year he is only 5 now but he still screams with every insulin shot can you tell how long this last or what should I do?

Tue Sep 26 2000 21:57:49 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Emily, is your mother having a hard time letting you take charge of your d yourself? I know it's hard for me to let go here, and have heard from many others that those dx'd at an early age have "mom problems" re: independence issues. In fact, a 21 y/o Russian girl was telling me that her mother is still having separation problems.

Tue Sep 26 2000 21:58:07 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Yeah you don't have to share you persepctive you just have to put down how you are feeling even in a diary just some where it helps.

Tue Sep 26 2000 21:58:54 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Judith, my mom is ok with me taking care of myself. She is here for me if I need help but she has been good about respecting the fact I want to grow up.

Tue Sep 26 2000 21:58:57 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
But Shannnon It took me years to get to this point . All of our experiences helped shaped us and believe me they have been many

Tue Sep 26 2000 21:59:16 Eastern US
sharon (2 kids with D) from 165.247.29.251
becky-that must be horrible for you!!

Tue Sep 26 2000 21:59:38 Eastern US
Rae (Mom of 2 college girls dx'd at 4 & 13) from 208.34.89.163
One of my girls deals with stress overload by "zoning out" (catching up on sleep, listening to music, watching comedies, spending time with fun friends. The other quilts, does cross stitch, catches up on sleep, dances, spends time with good friends.

Tue Sep 26 2000 21:59:45 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Yeah a doc that listerns is great and one day I turned and spoke my mind to him so that helped even though it was a bit crazy but I wasn't being listerned to so spoke my mind and that helped.

Tue Sep 26 2000 21:59:53 Eastern US
sharon (2 kids with D) from 165.247.29.251
have you tried counseling for him? my son was dx only 8 weeks ago, and he had a horrible fear of needles. he is so much better now with them, due to therapy

Tue Sep 26 2000 22:00:27 Eastern US
kruscher7 from 131.128.132.53
bill... I agree totaly, but sometimes people dont want to share things for a fear that they wont be understood. At least that is the vibe I have been getting. I mean I dont have diabetes. And I would never presume to understand what people (especially young people who have had to deal with it their entire lives) are feeling.

Tue Sep 26 2000 22:00:28 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Paula it will still take you longer to let go because it is hard my mum still finds it have.

Tue Sep 26 2000 22:01:19 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Kruscher just be there for the friend and support them and that will help your friend a lot that is the main thing I needed.

Tue Sep 26 2000 22:02:11 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
probably Nicky but Laura is stubborned red headed independent girl and will fight me all the way!

Tue Sep 26 2000 22:02:12 Eastern US
Becky (Mom of Caleb 5, dx'd 4yrs) from 205.188.192.36
It is terrible Sharon I have tried to ignore him, I have tried everything and all he does is push me away and tell me I am bad. Can anyone help?

Tue Sep 26 2000 22:02:19 Eastern US
kruscher7 from 131.128.132.53
thanks nicky

Tue Sep 26 2000 22:02:19 Eastern US
Allie (age 14, diabetes 3.5 years, pumping since Dec.) from 24.189.117.171
my mom and dad have basically let me take control of it, but I talk to them if I need anything and always tell them if I am high or low or whatever

Tue Sep 26 2000 22:02:25 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Is that Rae from OK?

Tue Sep 26 2000 22:02:56 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Everyone, I know we're just about done (at least, I know have to go)and I just wanted to thank you for letting me join you. I want to take almost all of you out for a cup of coffee and just chat all night. There's so much still to do.... I congratulate all of you for hanging in there-- and being here with each other. I have a feeling that everyone is going to do pretty darned well with this tough disease. I hope to "see" you all again.

Tue Sep 26 2000 22:03:16 Eastern US
Rae (Mom of 2 college girls dx'd at 4 & 13) from 208.34.89.163
Hi Judith. Yes

Tue Sep 26 2000 22:03:37 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Yeah will I am a stubborn red head to but if you support her in everything she does and that helps.

Tue Sep 26 2000 22:03:44 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 206.112.197.133
Thanks Bill for joining us. It was a great chat!

Tue Sep 26 2000 22:03:48 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Thanks Bill

Tue Sep 26 2000 22:03:57 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
bill - where is your practice located - give us a brief bio before you leave

Tue Sep 26 2000 22:04:15 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
bye Bill

Tue Sep 26 2000 22:04:17 Eastern US
sharon (2 kids with D) from 165.247.29.251
did my post get lost? becky, i asked if he could try to give himself injections. that may help him feel more in control

Tue Sep 26 2000 22:04:19 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Allie you are lucky that the are so helpful. It makes life easier.

Tue Sep 26 2000 22:04:31 Eastern US
sharon (2 kids with D) from 165.247.29.251
bye bill & thanks

Tue Sep 26 2000 22:04:44 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 206.112.197.133
Steve: Bill's bio can be found at:
http://www.childrenwithdiabetes.com/chat/feelingsmatter_20000926.htm

Tue Sep 26 2000 22:04:45 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Becky, perhaps someone else...his doctor?....needs to explain things to him. He's old enough to understand a bit about why you have to poke him...to keep him healthy. He probably senses you feel bad, sympathetic, perhaps even guilty (though there is no reason to be). Best to be very firm, matter of fact about what needs to be done. At this point, you probably do need some outside help.

Tue Sep 26 2000 22:05:02 Eastern US
Shannon (Mom of Jordan, almost 3 ,dx. 7/00) from 205.188.197.29
Thanks Bill

Tue Sep 26 2000 22:05:10 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
I'm in San Diego. I'm a clinical psychologist and CDE, a professor at UCSD, I used to be the psychologist at Joslin in Boston

Tue Sep 26 2000 22:05:27 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Great to "see" you again, Rae! I have been thinking of you. Perhaps we can continue to visit in the parent room?

Tue Sep 26 2000 22:05:32 Eastern US
Bill Polonsky (Chat Host) from 24.0.36.28
Gotta run. Best wishes all!

Tue Sep 26 2000 22:05:56 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Ah, Bill. So I imagine you know Paul M at Joslin.

Tue Sep 26 2000 22:06:05 Eastern US
Steve (Allie - 14 - dx 6/97 pump 12/99) from 12.23.69.83
thanks - very informative and insightful session

Tue Sep 26 2000 22:06:15 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 206.112.197.133
Goodnight all, and thanks again Bill.

Tue Sep 26 2000 22:06:30 Eastern US
Becky (Mom of Caleb 5, dx'd 4yrs) from 205.188.192.36
Sharon, sometimes he does give his own injections but some days he don't want any part of it. I am the only one he wants to inject him so of course I am the bad guy. I have him in a support group.

Tue Sep 26 2000 22:06:33 Eastern US
paula_ct (mom of laura 9, dx'd at 3 yrs) from 204.60.241.130
night all, I have to get up early maybe we'll chat again soon

Tue Sep 26 2000 22:06:35 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Judith Paul Madden??

Tue Sep 26 2000 22:06:55 Eastern US
Rae (Mom of 2 college girls dx'd at 4 & 13) from 208.34.89.163
My youngest cried a lot about getting the injections, also. Being matter of fact about it and spending fun time together at other times helped. Camp was wonderful!

Tue Sep 26 2000 22:07:02 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Yes, Emily. He was in IN this weekend too. Such a funny guy.

Tue Sep 26 2000 22:07:38 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Bye Paula

Tue Sep 26 2000 22:07:51 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Judith, was Kassie with him too?

Tue Sep 26 2000 22:07:51 Eastern US
Jamie (19, diabetes 5 years, insulin pump 10 months) from 64.12.105.164
Yeah Joslin and CBC!! *smile*

Tue Sep 26 2000 22:08:09 Eastern US
sharon (2 kids with D) from 165.247.29.251
becky, what about therapy? i started steve with art therapy & now its basic play-therapy, and it has really done wonders. he went from running & hiding from me at injection time, to dropping his pants & "mooning" me to take a shot.

Tue Sep 26 2000 22:08:12 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
No Kassie ??

Tue Sep 26 2000 22:08:14 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 206.112.197.133
I'm going to close this room in about 10 minutes. May I suggest that everyone head to the Parents room to continue the discussion.

Tue Sep 26 2000 22:08:21 Eastern US
Allie (age 14, diabetes 3.5 years, pumping since Dec.) from 24.189.117.171
Dad, I should take Farfel out and then go to sleep....have to wake up at 5:45 for school tommorrow and I have been exausted a day. EMily, I mean what I said before, if u ever need to talk IM me or e-mail me. I hope that everything works out ok. Goodnight everyone else.

Tue Sep 26 2000 22:08:46 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Thanks Allie, good night =)

Tue Sep 26 2000 22:09:12 Eastern US
sharon (2 kids with D) from 165.247.29.251
goodnite allie :-)

Tue Sep 26 2000 22:09:21 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
BYE Allie.
Good night there

Tue Sep 26 2000 22:09:25 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Judith, Kassie is his wife

Tue Sep 26 2000 22:09:26 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Thanks, Jeff.
Expressive therapy can be very helpful for kids. It allows them a safe way to express fear and anger.

Tue Sep 26 2000 22:09:55 Eastern US
Becky (Mom of Caleb 5, dx'd 4yrs) from 205.188.192.36
Sharon that is the funniest thing I am glad it worked for you I will have to try it.

Tue Sep 26 2000 22:10:02 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Have not met her, Emily, but have seen him on many occasions.

Tue Sep 26 2000 22:10:33 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
jamie where did you go on camp

Tue Sep 26 2000 22:11:06 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Jamie and I go to Clara Barton Camp together!! =)

Tue Sep 26 2000 22:11:15 Eastern US
Jamie (19, diabetes 5 years, insulin pump 10 months) from 64.12.105.164
Clara Barton Camp in North Oxford, Mass. Emily and I were camp counselors there this summer *smile*

Tue Sep 26 2000 22:11:28 Eastern US
Jamie (19, diabetes 5 years, insulin pump 10 months) from 64.12.105.164
Joslin is the boys camp 3 miles away.

Tue Sep 26 2000 22:11:31 Eastern US
sharon (2 kids with D) from 165.247.29.251
its worth a try, isnt it? someone else told me their kid gave a hard time with finger-pokes, until he was allowed to give mom the finger when it was time to poke the middle finger. hey-use whatever works

Tue Sep 26 2000 22:11:38 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Where is it seeing I am from Australia

Tue Sep 26 2000 22:11:50 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Camp is a great place for kids to share feelings, find out that others are dealing with the same issues. I had a 10 y/o boy this summer who, on the first day, looked around the basketball court in amazement and said "I never knew there were other kids like me. I thought I was the only one with diabetes."

Tue Sep 26 2000 22:12:11 Eastern US
Jeff Hitchcock (Marissa, 13, dx'd at 24 months, pump) from 206.112.197.133
Hm ... I guess I can leave the room open if people are going to use it. I'll check back in about 15 minutes.

Tue Sep 26 2000 22:12:16 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
It is in Massachusetts (USA). There was a person from Australia there this summer!!

Tue Sep 26 2000 22:12:54 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Camp has always meant so much to me... I cant wait for next summer!! Right Jaime?? hehe

Tue Sep 26 2000 22:13:03 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
We had a counselor from Australia, too...as part of the "Camp Counselors USA" program.

Tue Sep 26 2000 22:13:14 Eastern US
sharon (2 kids with D) from 165.247.29.251
jeff-this was a great chat tonite, thanks!

Tue Sep 26 2000 22:13:15 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
yeah I love going on Camps and I have been on that many they are always so much fun. I enjoy them. Yeah was his name Ryan the australian.

Tue Sep 26 2000 22:13:37 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
Judith, Alla is saying she wants to go to camp in Indiana next summer...

Tue Sep 26 2000 22:13:41 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
Nicky, yup!

Tue Sep 26 2000 22:13:42 Eastern US
Becky (Mom of Caleb 5, dx'd 4yrs) from 205.188.192.36
I am going to the parents room now I hope to chat with you all there

Tue Sep 26 2000 22:14:02 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
By chance are you Ryan under cover???

Tue Sep 26 2000 22:14:17 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Nicky, have you ever considered being a camp counselor for the summer?

Tue Sep 26 2000 22:14:31 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Cool. Ryan is a great friend

Tue Sep 26 2000 22:14:52 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
How do you know him??

Tue Sep 26 2000 22:14:59 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
No he is back in aus but I haven't spoken to him yet but.

Tue Sep 26 2000 22:15:05 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
WONDERFUL, Linda!! I know we'd love to have her...and Kim too. Sam is thinking about various things...perhaps even a summer camp in Russia....

Tue Sep 26 2000 22:15:19 Eastern US
Jamie (19, diabetes 5 years, insulin pump 10 months) from 64.12.105.164
Where in Aus are you Nicky?

Tue Sep 26 2000 22:15:25 Eastern US
Rae (Mom of 2 college girls dx'd at 4 & 13) from 208.34.89.163
Parent's room, OK, Judith. Got about 10 minutes before I have to leave.

Tue Sep 26 2000 22:15:35 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Bye Becky

Tue Sep 26 2000 22:15:40 Eastern US
Linda/UT (Kim 12, Alla 12) from 216.190.28.33
Gee. can I go help with that one? I'd bring my own interpreter! LOL

Tue Sep 26 2000 22:15:45 Eastern US
Emily (age 17, diabetes 15.5 yrs, pumping 4.5 yrs) from 204.60.198.119
ohhh PLEASE tell him to email me or Jamie because we're dying to hear from him since he's arrived back home!!

Tue Sep 26 2000 22:15:56 Eastern US
Judith (David, 14, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.46
Ok, I'm moving to parents. See you there, all.

Tue Sep 26 2000 22:16:05 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Would love to be but not at the moment why I am studying to be a nurse. Meet him through chilren with diabetes. I am in Canberra.

Tue Sep 26 2000 22:16:46 Eastern US
sharon (2 kids with D) from 165.247.29.251
ok, i am beat, have a great nite everyone!

Tue Sep 26 2000 22:16:53 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Bye judith.
Yeah I will tell him to email you. When I hear from him myself.

Tue Sep 26 2000 22:17:02 Eastern US
Jamie (19, diabetes 5 years, insulin pump 10 months) from 64.12.105.164
Nicole LeCornu???? HI!!!!!

Tue Sep 26 2000 22:17:15 Eastern US
Jamie (19, diabetes 5 years, insulin pump 10 months) from 64.12.105.164
It is Jamie from the Sharing page!!!

Tue Sep 26 2000 22:17:42 Eastern US
Jamie (19, diabetes 5 years, insulin pump 10 months) from 64.12.105.164
Should we move to parents? hehe

Tue Sep 26 2000 22:18:02 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
yeah I now know who you are. Good friends with ryan.

Tue Sep 26 2000 22:18:29 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Yeah real parents.

Tue Sep 26 2000 22:21:12 Eastern US
Nicky From AUS (19, dx'd at 11..2nd year of college.) from 210.215.8.8
Jamie you still here

Chat Room Administrator chat@childrenwithdiabetes.com (206.112.197.133) Tue Sep 26 2000 22:21:19 Eastern US
This room will close in 5 minutes. Please move on to another chat room.




                 
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Last Updated: Thursday August 29, 2002 21:04:28
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