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  Back to Chat Transcripts Parenting Teens with Diabetes

Parenting Teens with Diabetes
With Barbara Anderson

Chat Room Administrator chat@childrenwithdiabetes.com Tue Jan 23 2001 20:15:00 Eastern US
The 'Feelings Matter' chat room is now open.


Tue Jan 23 2001 20:22:00 Eastern US
Barbara Anderson (Chat Host) from 152.163.204.199
Hello, I'm looking forward to this evening and perhaps meeting some old friends!

Tue Jan 23 2001 20:37:38 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Hi Barbara,I'm a little early.

Tue Jan 23 2001 20:38:01 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
hi, where is everyone tonight?

Tue Jan 23 2001 20:38:55 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Welcome Robin, so you are in the crisis stage of diabetes, with 5 months of diabetes?

Tue Jan 23 2001 20:39:49 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
No I think we're o.k. now

Tue Jan 23 2001 20:40:01 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Hi Maryann, the chat officially starts in 20 minutes so those of us here are early birds.....

Tue Jan 23 2001 20:40:21 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Hi Maryann

Tue Jan 23 2001 20:40:49 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Robin, Is Jay in High School?

Tue Jan 23 2001 20:41:01 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
I know someone else who's 17 yr old son got it about the same time and I introduced Jill to him and they are like best buddies now!!

Tue Jan 23 2001 20:41:06 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.96.134
Spent 1st 3 Mos. in crisis ,better now but I am very SAD!

Tue Jan 23 2001 20:41:39 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Yes Jay is a Jr. at Tech School

Tue Jan 23 2001 20:41:59 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
I mean he got it the same time as your son, not Jill.... They are still trying to figure out increasing doses too

Tue Jan 23 2001 20:42:46 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
How is Jay's attitude? Jill and this friend are very positive.

Tue Jan 23 2001 20:43:04 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Just went to Endo yesterday. Jays' A1C is 5.4

Tue Jan 23 2001 20:44:23 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
wow that is low for a teen!! has he had many lows? did you catch the diabetes early?

Tue Jan 23 2001 20:44:34 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
He is still "just deal with it & forget it"

Tue Jan 23 2001 20:46:25 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
Robin, are you on his case a lot? It is so hard not to be continually asking, and also worrying about driving etc.

Tue Jan 23 2001 20:46:45 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Maryann, you are on the right track. An A1c of 5.4 is not characteristic of adolescence, but rather the "honeymoon period"

Tue Jan 23 2001 20:47:58 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
well this other kid doesn't have anything near that low!! His have crept higher than Jill's

Tue Jan 23 2001 20:48:02 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
caught it fairly early, never hit DKA thank goodness I try not to nag & he is doing well at remembering when to test etc. A1C in Nov. was 4( he was throwing lows like confetti!) Doc says "honeymoon"

Tue Jan 23 2001 20:48:54 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
so what is an average level for a teen so I won't panic if he gets there!

Tue Jan 23 2001 20:49:08 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
I don't think most normal peoples is down to 5.4 are they? close, but I think our tests show normal up to about 6.2 without diabetes.

Tue Jan 23 2001 20:50:07 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
jill didn't go into DKA and have to be hospitalized either but paper work said she had hit 17. I like to think that was an error!! But don't know for sure

Tue Jan 23 2001 20:50:55 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Maryann and Robin, one thing to keep in mind is that labs can have different assays for determining HbAlc and so it is hard to compare across labs (or doctors)

Tue Jan 23 2001 20:51:32 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
some labs may vary on their numbers, but most try to aim for high 6's and up to 8 before drs and parents start to get nervous, in our experience

Tue Jan 23 2001 20:52:15 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Oh Jay was hospitalized in Aug. when diagnosed my mom checked him on her meter BG 500

Tue Jan 23 2001 20:53:24 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
lab sheets say what the range of "normal" is

Tue Jan 23 2001 20:53:56 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Robin and Maryann, Maybe is it important to walk away from the numbers for a moment and sit with the rollercoaster feelings in parenting teens?

Tue Jan 23 2001 20:54:03 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
Did Jay give up all sweets?

Tue Jan 23 2001 20:54:27 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Still...... we caught it early and yes I do worry about him driving but I would anyway! There are some real nuts on the roads these days!

Tue Jan 23 2001 20:55:04 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
yes it is hard to ask them how OTHER stuff went without asking what their bg reading was when you see them

Tue Jan 23 2001 20:55:34 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
you can say that again!

Tue Jan 23 2001 20:55:58 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
Many crazy drivers here and Jill got hit sat before last by a guy backing out of his driveway without looking! she was a basket case but her sugar was fine!!

Tue Jan 23 2001 20:55:59 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Hi.

Tue Jan 23 2001 20:56:22 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Welcome Ellen

Tue Jan 23 2001 20:56:33 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Jay still eats everything we just carb count now

Tue Jan 23 2001 20:56:55 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
but still, we have to teach them about diabetes and good habits before they are out on their own, so it is a constant nagging thing. there seems to be no way around it

Tue Jan 23 2001 20:57:04 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Hi Ellen! o.k. Barbara I will repeat I am SAD!

Tue Jan 23 2001 20:57:10 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Thanks :-)

Tue Jan 23 2001 20:57:45 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barb, did you introduce yourself and tell about yourself already - did I miss it?

Tue Jan 23 2001 20:57:48 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
hi Ellen,

Tue Jan 23 2001 20:57:59 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
I take it Jill was uninjured?

Tue Jan 23 2001 20:58:09 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Goodness, folks, What a bunch of eager beavers! Welcome to all - and thanks so much, Barbara, for joining us tonight to talk about Parenting Teens with Diabetes.

Tue Jan 23 2001 20:58:19 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Maryann, I have seen that the teen's engagement with their diabetes care provider can be one of the most important variables for older teens

Tue Jan 23 2001 20:58:59 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Obviously this is a topic we could discuss ALL NIGHT!!!!

Tue Jan 23 2001 20:59:22 Eastern US
Daniel / Florida (?) from 65.32.152.250
what topic?

Tue Jan 23 2001 20:59:27 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
I knew this chat would be well attended!

Tue Jan 23 2001 20:59:30 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
For those who don't already know Barbara through her work an books, she is a psychologust with the Joslin Diabetes Center who has specialized in kids with diabetes to everyone's benefit. Thanks again for coming, Barb

Tue Jan 23 2001 20:59:43 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Ellen, Hi, I'm a pediatric psychologist with about 25 years of experience is working with families and kids with dm, and have learned the most from my patients!

Tue Jan 23 2001 20:59:57 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
We could discuss this at least until the kids turn 20!

Tue Jan 23 2001 21:00:01 Eastern US
Doreen (Type I, Pumping) from 63.160.17.173
Hello... can I join? I'm a Parent, but not of a diabetic. I was however, a child & teenager with diabetes.

Tue Jan 23 2001 21:00:22 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Betty, thanks!

Tue Jan 23 2001 21:01:21 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Welcome Doreen!:-)

Tue Jan 23 2001 21:01:25 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Welcome Judith and Doreen, every perspective is valuable, no one has the single answer about this compound-complex topic we are facing tonight!

Tue Jan 23 2001 21:01:35 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Welcome, Doreen - and Hi Judith and all!

Tue Jan 23 2001 21:01:45 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
Hello all

Tue Jan 23 2001 21:01:53 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Ah. I was hoping you were from another part of the country. Only d psychogist I know that I can refer people to is Paul at Joslin!

Tue Jan 23 2001 21:02:22 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barbara are there ever cases of kids who pretty much continue to take fairly good control of their diabetes thru their teens ???? and into adulthood without going through a severe rebellious stage? Do you think because the pump gives kids freedom from the rigid meal plans, that it's easier to not rebel?

Tue Jan 23 2001 21:02:35 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Hi Lori :-)

Tue Jan 23 2001 21:02:36 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
Just a small dent....and yes Jill does interact with a Dr she loves..but I have to keep quiet and not complain to them about her lack of involvement

Tue Jan 23 2001 21:02:44 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Welcome, Lori

Tue Jan 23 2001 21:02:49 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
(I'll put my glasses on so I can type ALL the letters!)

Tue Jan 23 2001 21:03:25 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
(Ellen believes in Santa, too!)

Tue Jan 23 2001 21:03:43 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Hi Judith, well I have worked in 3 states (all start with an "M")at superb diabetes centers in Missouri, Michigan, Mass. Paul M. is a good friend and wonderful advocate for kids with dm.

Tue Jan 23 2001 21:04:38 Eastern US
Doreen (Type I, Pumping) from 63.160.17.173
I was "good". I guess I was SCARED into being good. I didn't drink, but I did cheat on candy and food more than I should have.

Tue Jan 23 2001 21:05:14 Eastern US
Daniel / Florida (Pump User (and former diab teen)) from 65.32.152.250
I have a friend who is having such a hard time with her 15 yr old diab. that she is sending him to live with his grandmother for the rest of the school year.

Tue Jan 23 2001 21:05:17 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barbara do you know Wendy Satin-Rapaport PhD? She's been a guiding light for me for years.

Tue Jan 23 2001 21:05:19 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
What advice do you have for those of us whose kids were dx'd very young? I think we have a harder time letting go, since we've invested so much in these kids.

Tue Jan 23 2001 21:06:08 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Barbara what is the "mellitis" part for? What does it signify?

Tue Jan 23 2001 21:06:44 Eastern US
Doreen (Type I, Pumping) from 63.160.17.173
I remember being in the hospital and the nurse was teaching me to draw back on the syringe to check for blood. Here is an 11 year old asking her: "What if you accidently saw blood and pushed the insulin in anyway?" She said to me: "That's a good way of committing suicide" .... I was so scared from that moment on.

Tue Jan 23 2001 21:07:28 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Ellen, a teen's temperament (personality) has a lot to do with the rebelliousness in any area--dm or body piercing or school, etc...... I do believe there are youth who make it through and my clinical hunch is that these are the kids who feel supported, either by family, parents, friends, health care providers,......Yes Wendy is a wonderful friend and her new book is great!

Tue Jan 23 2001 21:07:37 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
Barbara - we just switched endos after moving from NY to MA - and at Allie's appointment yesterday, the doctor spent about a half hour with her alone - and then about 10 minutes with my husband and me filling us in on what they talked about. We felt like we had 'lost touch' a bit...what do you think about that?

Tue Jan 23 2001 21:07:50 Eastern US
Brenda H. (Marissa, 13, dx'd 9/89) from 10.0.1.3
That is horrible.

Tue Jan 23 2001 21:07:56 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Daniel, that poor woman! Maybe a D camp would help?

Tue Jan 23 2001 21:08:33 Eastern US
Daniel / FL (Pumper) from 65.32.152.250
what advise do you have to a parent whose teen refuses to give himself his shot. If mom is not around . . no shot :-( Robin it did last summer but . . .

Tue Jan 23 2001 21:08:34 Eastern US
Sally/MI (Nora 7, pumping) from 207.75.176.241
Hello Barbara. Nugget says "hi!"

Tue Jan 23 2001 21:08:56 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Doreen, many medical specialists have spoken this toxic type of message...yet they have no idea how damaging it can be to a sensitive child....

Tue Jan 23 2001 21:09:04 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Oh, Dorren - what a thoughtless not to mention totally ignorant and untrue thing for that nurse to say to say!

Tue Jan 23 2001 21:09:47 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Sally, hello, Nugget is a wonderful diabetes professional. Give her my regards too.

Tue Jan 23 2001 21:10:08 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Lori Hi! Are you married to Steve? Welcome to Ma!

Tue Jan 23 2001 21:10:49 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
Hi Robin - and it's my first time here so Steve is right next to me

Tue Jan 23 2001 21:11:02 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Robin - as I remember the greek derivation, "mellitus" means Honey and diabets means siphon -- it was referring to the large amounts of sweet urine passed

Tue Jan 23 2001 21:11:03 Eastern US
Doreen (Type I, Pumping) from 63.160.17.173
I've since been a volunteer up at our hospital to new kids diagnosed. I go up there and talk with them. I would always bring my babies up there to show them that diabetes is not the end... there is a future. But, I honestly feel that those first reactions people have do have a lasting impression on the child.

Tue Jan 23 2001 21:11:40 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Hi Lori! Glad Steve finally let us meet you!

Tue Jan 23 2001 21:11:47 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Daniel, this is a serious concern.....one that calls for broad ranging help. It could be a true phobia of needles, which in my experience is rare, or denial, or attention seeking, or sheer pain, that is why a multi-disciplinary team will need to help you with your son's refusal of injections

Tue Jan 23 2001 21:12:50 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Doreen, I agree, the time around diagnosis is so critical and words said leave life-long legacies....

Tue Jan 23 2001 21:13:03 Eastern US
Daniel / FL (Pumper) from 65.32.152.250
(not my son but i will pass on the info. :-) I had phobia for about a year after diag. glad to be over it.

Tue Jan 23 2001 21:13:49 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Hello to both! & Allie too! O.k. Betty but is the word just a medical term that stuck around? I mean most people just say diabetes don't they? Or does it mean another KIND of D?

Tue Jan 23 2001 21:14:52 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
Barbara: how about the 'letting go' as our D kids get older - as I said, Steve and I felt a little bit like outsiders after Allie and the doctor spent all that time together.....do you think that's a good thing with a 15 year old?

Tue Jan 23 2001 21:15:06 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Robin, there IS another kind of d.... d insipidus...that does not involve sugar metabolism, but results in large amounts of urine and great thirst

Tue Jan 23 2001 21:15:16 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Robin, most people dealing with diabetes just refer to it as "Diabetes," but the full term is retained in professional writing for accuracy sicne there is another type of diabetes "Diabetes insipidus" that has no relation to blood sugars but in which a large volume is passed for other reasons.

Tue Jan 23 2001 21:15:31 Eastern US
Sally/MI (Nora 7, pumping) from 207.75.176.241
Robin - there's also diabetes insipidus (sp?) I don't know much about it...

Tue Jan 23 2001 21:15:51 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
LOL - ya beat me, Judith!

Tue Jan 23 2001 21:16:18 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Ya gotta type faster, Betty! LOL

Tue Jan 23 2001 21:16:21 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Lori, No in my experience parents are the most important resource for a 15 year-old with dm, and you and Steve need to consult with the health care provider also, however in your child's presence....Boundaries are so crucial for teens and parents!

Tue Jan 23 2001 21:16:53 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Do you want speed or spelling?

Tue Jan 23 2001 21:17:06 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Lori, did the doc talk with you and Steve WITH Allie present?

Tue Jan 23 2001 21:17:20 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
We spent about 10 minutes or so with the two of them at the end - and basically the endo summed up what they had discussed.....

Tue Jan 23 2001 21:17:40 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
yes, tbe endo, allie, steve and me

Tue Jan 23 2001 21:18:32 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
We can do it either way with our endo. If parent or kid wants time alone with the doc, can do that - or all meet together. In fact, both boys have been in the room these last visits.

Tue Jan 23 2001 21:18:39 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Your health care team can help you define roles and if they don't, please ask!! This is so important with teens (as mine have taught me)

Tue Jan 23 2001 21:18:40 Eastern US
Doreen (Type I, Pumping) from 63.160.17.173
Well... my input is: Love your kids for every part about them. Tell them they CAN achieve anything & everything, they just need to be more in control with their lifestyle than others. Don't let them use the diabetes as an excuse (I tried it... it doesn't work.. LOL), but mostly: Tell them that everyone has their own cross to bare in life, diabetes is theirs. It could be worse! Right? With that I must go. I have 2 kids bugging me to play cards. Good Night and Have a Great Night Everyone :-)

Tue Jan 23 2001 21:18:46 Eastern US
Tam (, mom of Brennan, 17, dxd @15) from 64.12.102.159
Hello everyone :)

Tue Jan 23 2001 21:19:14 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Lori, did they mention whether this will be the usual routine of a visit, or whether it was a technique for the doc and your daughter to get acquainted. And did you ask her what she thought abut it? WAs she comfortable?

Tue Jan 23 2001 21:19:25 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Here's my Real problem tonight We went to Endo yesterday. Nurse Educator pretty much told me they wouldn't do Islet or Beta cell transplants on anyone unless they were very ill. Like kidneys going etc. So......what am I supposed to hope for for the future?

Tue Jan 23 2001 21:19:33 Eastern US
Daniel / FL (Pumper) from 65.32.152.250
bye Doreen

Tue Jan 23 2001 21:19:35 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Have fun Doreen!

Tue Jan 23 2001 21:19:38 Eastern US
Linda (Mom to preteen daughter, new pumper) from 216.126.188.88
My daughter went on her first sleepover last Friday. She was elated, but I don't think she realized how scared I was. (Hi Tammy)

Tue Jan 23 2001 21:19:39 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Hi Tam

Tue Jan 23 2001 21:19:51 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Hi, Tam. We,lcome - the topic is parenting teens with Diabetes

Tue Jan 23 2001 21:20:00 Eastern US
Joyce (Justin 16 dx'd at 13) from 152.163.207.181
Hello everyone:)

Tue Jan 23 2001 21:20:08 Eastern US
Sally/MI (Nora 7, pumping) from 207.75.176.241
Roles? As in how much involvement the teen wants the parents to have?

Tue Jan 23 2001 21:20:13 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
I guess the question is as they get older - how do you manage the transition so they will be able to handle, fopr example,going to college

Tue Jan 23 2001 21:20:28 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Goodnight Doreen, sage advice, and very on target with respect to love and encouragement.

Tue Jan 23 2001 21:20:40 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
Betty: This was just our second appt with this endo. We meet with the CDE in six weeks, and we'll see how that goes

Tue Jan 23 2001 21:20:45 Eastern US
ms from 205.188.198.56
Hi everyone - saw the "special chat" - thought I would pop in for a few

Tue Jan 23 2001 21:20:45 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
We find a lot to laugh about and try to keep a sense of humor about the diabetes too. When I
brought this up on another message board, many parents felt there was no room for humor - that diabetes is serious...etc.. Thoughts?

Tue Jan 23 2001 21:20:49 Eastern US
Daniel / FL (Pumper) from 65.32.152.250
bye Doreen

Tue Jan 23 2001 21:21:15 Eastern US
Daniel / FL (Pumper) from 65.32.152.250
good Q. Robin

Tue Jan 23 2001 21:21:30 Eastern US
Joyce (Justin 16 dx'd at 13) from 152.163.207.181
How did Allie feel that you wern't there with her and the endo?

Tue Jan 23 2001 21:21:45 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Robin, the nurse educator was misinformed. The islet transplant sites have a variety of criteria but being on your "last legs" is surely not among them - however, I don't think any of them are taking young teens because of the experimental nature of the treatment.

Tue Jan 23 2001 21:22:01 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
You have to laugh!! We make LOTS of jokes it helps

Tue Jan 23 2001 21:22:17 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
Good question, joyce - she didn't have much to say about it and didn't say much about what the endo said to her -

Tue Jan 23 2001 21:22:45 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Lori, there are specific pieces of diabetes management that a parent can take that will help and feel supportive to a kid...depends on the kid. I think problem-solving around college should be the agenda at the med visit for every high school senior who has dm and is goind to leave home. There are some specifics around sick days, handling emergencies, etc. that can really save a kid's experience from disaster....

Tue Jan 23 2001 21:23:44 Eastern US
ms from 205.188.198.56
Lori, I am not quite sure how you/your daughter deal with diabetes ( difficulties, compliance etc) but... in a sense you need to take things as they come - I went away for part of college. It was manageable -though difficult at times - At some point children need to given a chance - knowing that if they need help, youll be around the corner or at least a phone call away for support

Tue Jan 23 2001 21:24:06 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Lori, does she Feel comfortable with her endo, feel that she can get help in "making the diabetes more managable" which is the goal....?

Tue Jan 23 2001 21:24:18 Eastern US
ms from 205.188.198.56
Also important to consider the eating plan!

Tue Jan 23 2001 21:24:30 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Lori, if she WERE uncomfortable would she tell you? Or keep it to herself? And how is school going for her?

Tue Jan 23 2001 21:25:15 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
She's really a terrific kid - very compliant - seems to handle it very well - and I do think she would tell us if she were uncomfortable

Tue Jan 23 2001 21:26:16 Eastern US
ms from 205.188.198.56
Ellen, I think if we did not find humor in our daily lives, we'd all be living more difficult lives. Thinks can get tough and its importnat to realize its ok to feel upset etc., but... finding humor in situations is important as well

Tue Jan 23 2001 21:26:32 Eastern US
Joyce (Justin 16 dx'd at 13) from 152.163.207.181
LoriI know that when the doctor asks me to leave the room Justin calls me back in as soon she is done checking hi.

Tue Jan 23 2001 21:27:47 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Lori, you are bringing up an important issue... do you tell her when you are uncomfortable? Many kids need permission to speak about negative emotions.

Tue Jan 23 2001 21:28:10 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
I do know that kids worry that there are bad secrets when parents talk alone with docs. Dave had that concern once, when actually the subject was not about him but some issues at camp (where endo and I work)

Tue Jan 23 2001 21:28:28 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
My ? is really that as she does go through these teen years, it is better to be right there with the support as we have been, or to allow her to begin being independent from us at her visits so soon that we are not there to support her and ask the ?s as they come up, not just in summary.

Tue Jan 23 2001 21:28:32 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Lori, I'm a great believer that all those transitions are part of continuum that starts when a little one first gives his own shot or learns that an apple is one carb. If the passing off of information, responsibility and skills is continuoous and done in little bits appropriate to the child's age and willingness, in my experience there will be less panic when college is around the corner -- but if mom's still doing all the tests and controlling all the food at 17, there just isn't time for a smooth transition.

Tue Jan 23 2001 21:28:43 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
He was concerned that there was something wrong with him that we weren't telling him.

Tue Jan 23 2001 21:28:53 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
ms, You are so right about the power of humor (which is really the power of being able to back up and get some perspective on the situation)

Tue Jan 23 2001 21:30:15 Eastern US
Tam (, mom of Brennan, 17, dxd @15) from 64.12.102.159
Lori~do you feel ready to be out of that doctors room??? If not, ask your daughter if SHE minds you being there, why not have this be between you and the doctor should comply

Tue Jan 23 2001 21:30:19 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Lori, that's an issue not only re: d care, but health care in general during the teen years. Kids need to learn to take care of their own health, not just be passive.

Tue Jan 23 2001 21:30:38 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Lori, possibly it would help to make a difference between independence and autonomy.....Diabetes is never a "do it yourself" disease, as Joan Hoover advised. Support is always critical, yet it must change as kids mature.

Tue Jan 23 2001 21:30:48 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Glad to hear the support about the humor...I can't imagine life without it.

Tue Jan 23 2001 21:31:02 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
I was reading back and can see the necessity of the Dr talking to the teen alone. they have to see if they can find out about drugs, sex and alchol and depression without the parent. what if the kid would open up to the dr, but not in front of the parents?

Tue Jan 23 2001 21:31:12 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
I told her that I was not comfortable with the amount of time they were together and that the endo went over things with her alone and then told us what they had talked about, but I don't know if I'm being too controlling, or at 15 if we should be very involved.

Tue Jan 23 2001 21:31:19 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
And there are definitely things they want to ask a health care provider, but would be embarrassed to bring up with parents around.

Tue Jan 23 2001 21:31:46 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Barbara, you mentioned "specific aprts of management" that a parent can help with - can you give some insight into ientifying those things -- and NOT the ones where helping just seems to make a teen angry?

Tue Jan 23 2001 21:32:33 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
What did she say to that Lori?

Tue Jan 23 2001 21:32:46 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
I understand all of that and have always encouraged her to talk to Dr. and CDE about her feelings sometimes without us around.

Tue Jan 23 2001 21:33:50 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Betty, this is tough to generalize. Because support is a 2-way street. I've had some college-age patients who appreicated their parents sending supplies and keeping insulin, strips up to date, and other college kids don't want this type of help. The important point is that too many kids feel alone with their dm and would be glad to tell their parents how to help, if they were asked.....

Tue Jan 23 2001 21:34:18 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
She didn't say much about the whole visit except that she was upset about some changes that the endo made. She is still adjusting to all the changes, as are we and we all miss the old endo and CDE.

Tue Jan 23 2001 21:34:55 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
I wouldn't want to be left out much by the dr either! they used to ask me to look away when they asked Jill personal questions.

Tue Jan 23 2001 21:35:15 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Lori, so you've done what you can do, provided the opportunity for her to connect and engage with her health care team.....That's all you can do, and this is tough for all of us as parents of teens to realize that there are limits to what we can do to help our kids.

Tue Jan 23 2001 21:35:30 Eastern US
Tam (, mom of Brennan, 17, dxd @15) from 64.12.102.159
Those are the questions I think I would ask my son, if he felt he needed to talk to the doctor about things he couldn't tell me, I would have to assure him I could deal with that, but I think the doctor shouldn't just assume that all teens can't talk to their parents

Tue Jan 23 2001 21:35:46 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Did you have to stick your fingers in your ears, too, MaryAnn?? LOL

Tue Jan 23 2001 21:36:01 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
I have to step out of the room for the "turn your head and cough" exam. I have no problem with that...it's a first start in letting go right? :-)

Tue Jan 23 2001 21:36:48 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Tam, I'm not sure many kids would admit that they needed/wanted to talk alone. That would immediately make you wonder WHAT?, right?

Tue Jan 23 2001 21:36:51 Eastern US
Tam (, mom of Brennan, 17, dxd @15) from 64.12.102.159
well, some things we DON"T need to know Ellen! lol

Tue Jan 23 2001 21:37:16 Eastern US
vivgraceful (grandmoter of jay 17) from 152.163.201.179
i'm jay's interested bama

Tue Jan 23 2001 21:37:58 Eastern US
Joyce (Justin 16 dx'd at 13) from 152.163.207.181
I have no problem with that either Ellen. But I want to be there because Justin doesn't have much to say to the doctor

Tue Jan 23 2001 21:38:19 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Tam, Many teens with dm protect their parents from any negative feelings. That is why I believe an important structure for teens in health care is automatic private time with their providers.

Tue Jan 23 2001 21:38:21 Eastern US
vivgraceful (grandmoter of jay 17) from 152.163.201.179
this is so exciting to me i am crying

Tue Jan 23 2001 21:38:22 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Can an endo prescribe birth control pills to their patients without the parents of the minor knowing?

Tue Jan 23 2001 21:38:22 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
sorry to be arriving late....

Tue Jan 23 2001 21:38:28 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Hi MOm! People this is my mainstay of support Bama

Tue Jan 23 2001 21:38:30 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
The endo just called her in alone first and then Allie came to get us about a half an hour later. They had discussed her numbers, changes in insulin, recording specific meals and changing her sites more frequently, or so that's what we were told they talked about.

Tue Jan 23 2001 21:39:03 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Lori, I think it's also reasonable and appropriate to bring the doctor in on this discussion - ask him about his policy about teens, parents in the room etc and explain that you felt uncomfortable because it was such an abrupt change for you. Sounds like he just forges (excuse me for assuming a male physician!) ahead - both clinical and process wise - you may have to take the initiative in getting heard.

Tue Jan 23 2001 21:39:03 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Hi Viv

Tue Jan 23 2001 21:39:39 Eastern US
rea from 199.120.105.12
hi

Tue Jan 23 2001 21:39:44 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Welcome Bama -- every family should have a Bama!

Tue Jan 23 2001 21:40:04 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Hi Rea. Where's your mom?

Tue Jan 23 2001 21:40:11 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
you assumed wrong re: gender of endo TW

Tue Jan 23 2001 21:40:17 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Hi Renee - welcome

Tue Jan 23 2001 21:40:25 Eastern US
vivgraceful (grandmoter of jay 17) from 152.163.201.179
i dont know any of you except rob but ilove and applaud your efforts to help one another

Tue Jan 23 2001 21:40:30 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
BTW

Tue Jan 23 2001 21:40:32 Eastern US
Tam (, mom of Brennan, 17, dxd @15) from 64.12.102.159
I guess my problem with that right now is that Brennan does NOT Like his endo, I think once we get a new one I hope it will be one he would have no trouble talking too

Tue Jan 23 2001 21:40:32 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Lori, Sounds appropriate. And remember that all of your teens are life-time consumers of health care so need to be learning about negotiating the system themselves.....I've had many parents tell me "H. will not talk with you" and when 18 yr old H comes into my office s/he has a lot to say...

Tue Jan 23 2001 21:40:57 Eastern US
rea from 199.120.105.12
hi judith.. shes at BINGO.. again!

Tue Jan 23 2001 21:41:05 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
I agree with some private time for discussion and bonding

Tue Jan 23 2001 21:41:15 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
I've seen this from the other side...as a health care provider. As a mom, it's hard for me to let my kid assume control of his d, esp after I've put in SO many years. But I do know that kids want/need to be able to discuss things without parents knowing.

Tue Jan 23 2001 21:41:36 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Tam, if you have a choice, then listen to your kid. It is vital that kids like (respect, trust) their health care providers...

Tue Jan 23 2001 21:41:50 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
Barbara- very valid point about teens wanting to protect their parents from the negativity & guilt associated with D....hard for us to mask our feelings & reactions

Tue Jan 23 2001 21:41:51 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
fortunately I have been through the teen thing before, but Jill is a lot different and more senstitive. I just have to hope she will be open with me.

Tue Jan 23 2001 21:42:50 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
I sit across from my kids so I can roll my eyes at the DR, at how they answer the questions....LOL

Tue Jan 23 2001 21:43:02 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
also, 2 friends from JDRF just sent kids off to college & both of them had their A1Cs go up significantly...different lifestyle, not to mention absence of checking before driving a car or before sports practices like in high school...just more for us parents to worry about!

Tue Jan 23 2001 21:43:24 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Tam a teen who doesn't like their Endo is a bad situation! If poss. get a new one!!

Tue Jan 23 2001 21:43:50 Eastern US
Tam (, mom of Brennan, 17, dxd @15) from 64.12.102.159
I am listening to him Barbara, I agree, it's important for him to like going to the doctor now, so he will always feel right about going

Tue Jan 23 2001 21:44:17 Eastern US
Brenda from 63.27.191.127
I have a 18 year old in college. She has been control now than when she lived at home.

Tue Jan 23 2001 21:44:31 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Maryann, remember that our kids mirror our own comfort with discussing feelings. An excellent book on this is cazlled The Heart of Parenting: Raining an Emotionally Intelligent Children by John Gottman--not about chronic illness and kids, but focus on the issue of being emotionally open and yet limit setting with our kids, very helpful book I think.

Tue Jan 23 2001 21:44:52 Eastern US
rea from 199.120.105.12
i roll my eyes at some of the questions the nurses and dr. asks me.:-)

Tue Jan 23 2001 21:44:54 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
Lori - on the + side, a friend who uses your same practice feels that because of that bond established between the child & endo, now thatthe daughter is almost 18, she will listen to the endo better than the mother!!....I think it really helps to have an "intermediary" when dealing with D-related issues with teens...

Tue Jan 23 2001 21:45:02 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
I failed the spelling bee.....

Tue Jan 23 2001 21:45:39 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Renee, I have seen this so many times! Thanks for this comment

Tue Jan 23 2001 21:45:45 Eastern US
Chris, KY (Father of Sara, 18mo. dxd 11mo.) from 148.74.251.170
Hello all.

Tue Jan 23 2001 21:46:06 Eastern US
Brenda H. (Marissa, 13, dx'd 9/89) from 10.0.1.3
Hi all. Been trying to settle some kids in bed. Marissa has been her usual challenging self lately. She usually pleads to do things, says she will be responsible for her D care while out and about. Sometimes she is, but she will forget to bolus for food eaten. Tonight, for the third or fourth time, she didn't test half way through a 2 hr. tumbling class (must disconnect her pump). She did give herself some insulin though, half a unit. That's better than the first time when she gave herself 1.5 and was low. On the other hand, she remembered to change her pump site late Fri. night while Jeff and I were at the ER (I shut one of my fingers in the van door--pretty stupid).

Tue Jan 23 2001 21:46:13 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
yes!! with a dr they like they will listen to them a lot better than a parent!!

Tue Jan 23 2001 21:46:53 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
I think my daughter does as well as she does thanks to her excellent CDE whom she used to meet with monthly for the first 2 yrs on the pump..they share a bond from all those appts, most of which I attended initially, but eventually she went alone

Tue Jan 23 2001 21:47:05 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
I have to admit that the endo did come down on her about a few issues and reinforced what Steve and I have been trying to encourage.

Tue Jan 23 2001 21:47:07 Eastern US
Chris, KY (Father of Sara, 18mo. dxd 11mo.) from 148.74.251.181
ouch, Brenda

Tue Jan 23 2001 21:47:13 Eastern US
Joyce (Justin 16 dx'd at 13) from 152.163.207.181
don't you think we need to talk about feeling with kids when that are young and it grows as they mature

Tue Jan 23 2001 21:47:16 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Ouch, Brenda!

Tue Jan 23 2001 21:48:11 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
sorry about your fingers Brenda...we also had an issue with Melissa about re-hooking her pump when she played field hockey..finally had to threaten to take her off the team if she continued to do that..was coming home in the high 300s, unable to eat dinner or focus on homework

Tue Jan 23 2001 21:48:13 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Sorry we're late, and apologies in advance if this is off track or already covered. When your teen refuses to allow you involvement w/ her treatment, how do you manage communication with the dr? If she knows we're communicating together, she won't be honest with the dr.!

Tue Jan 23 2001 21:48:20 Eastern US
Chris, KY (Father of Sara, 18mo. dxd 11mo.) from 148.74.251.170
Howdy Judith, havent seen you in a while, how are the kids?

Tue Jan 23 2001 21:48:22 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
OH, Brenda - another eventful week at the "H" house!

Tue Jan 23 2001 21:48:25 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Brenda, how great that you are balancing your kid's healthy choices with her less healthy ones. It is so seductive to focus on the negatives in diabetes, there is so much for these youngsters to remember, and so many areas for error. Focusing on the management done correctly will go a long way toward producing more of the same!

Tue Jan 23 2001 21:48:34 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Many teens are much more likely to take advice from a trusted adult friend than from a parent.

Tue Jan 23 2001 21:48:46 Eastern US
Brenda H. (Marissa, 13, dx'd 9/89) from 10.0.1.3
Sometimes I wonder if Marissa is the problem or it's me. Often I feel so obsessed with her diabetes that I can't sleep for worrying if she's going to be low or high with ketones, etc. I try to let go by allowing her to sleep at friend's, but now I call her to make her check (takes my cell phone; she was low the other night so I was right to worry--she eats later snacks, then overboluses sometimes.)

Tue Jan 23 2001 21:49:25 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
Lori - that same endo interceded when my friend had a problem with the daughter & the doc told the daughter she would have to check in with her weekly and she did!!!...if the MOM had suggested that, forget it! LOl

Tue Jan 23 2001 21:49:42 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
too true Judith

Tue Jan 23 2001 21:51:23 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Brenda, the problem is dm, not you or Marissa. Good for you for allowing age-appropraite sleep-overs and for trusting her as much as you do.....remember what is the worst that can happen, a low bg is not fatal.....and yet not participating in age-appropriate activities can be

Tue Jan 23 2001 21:51:29 Eastern US
Brenda H. (Marissa, 13, dx'd 9/89) from 10.0.1.3
We had a small disagreement earlier about a snack. She ate dinner around 7:45, then wanted ice cream an hour later. I reminded her that she'd had a relatively higher fat dinner and suggested fat free pudding. She opted for Swiss Miss hot cocoa, kind of a compromise. Some times I have to force her to eat more, other times beg her to stop! Guess that's part of being a young teen.

Tue Jan 23 2001 21:51:56 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Barbara, many people don't have the luxury of a d team. If they have a good ped endo (as we do) it's ok, but many are getting very little in the way of emotional care and support.

Tue Jan 23 2001 21:52:16 Eastern US
Tim (CA) (Dad of Sara, 5, dxd 1/3/01) from 63.208.244.47
Judith would it be great if the trusted adult friend was a parent

Tue Jan 23 2001 21:52:27 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
We did choose her because we had heard such wonderful things about her, so it's good to hear all of your comments about the endo/child relationship. perhaps it's a good thing. We're just used to having a relationship as a family with the ped endo and the CDE, not as just the patient's parents.

Tue Jan 23 2001 21:52:42 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Perhaps we're in the wrong chat room. Does anyone else out there have a teen who refuses to cooperate?

Tue Jan 23 2001 21:53:02 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Not always, Tim. Sometimes outside perspective is better.

Tue Jan 23 2001 21:53:05 Eastern US
Chris, KY (Father of Sara, 18mo. dxd 11mo.) from 148.74.251.170
Tim, I must say that your daughter has a beautiful name.

Tue Jan 23 2001 21:53:06 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Robin, this is true. As a psychologist, I must tell you that one of my most humbling moments was when my l7-yr old daughter said she wanted someone to talk to "outside the family".....and it was such a blessing. WE are all in the same boat with teens, but the waters are more rocky when you add in dm.

Tue Jan 23 2001 21:53:26 Eastern US
rea (15yrs.old.) from 199.120.105.12
*that me sometimes* barry and annie

Tue Jan 23 2001 21:53:26 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
another good point Barbara..in our quest to "protect" our kids, we can wind up doing more harm than good by denying them a more normal adolescence...very very difficult to know where to draw the parameters in parenting a child with d.

Tue Jan 23 2001 21:53:41 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barry and Annie, I'm SURE you're in the right room and you're not alone.

Tue Jan 23 2001 21:53:46 Eastern US
Brenda H. (Marissa, 13, dx'd 9/89) from 10.0.1.3
Barry, I think many of our kids refuse to cooperate to some degree. Are you saying yours won't do anything related to his/her diabetes?

Tue Jan 23 2001 21:54:08 Eastern US
Daniel / FL (Pump User) from 65.32.152.250
You rea??????? thats hard to believe :-o

Tue Jan 23 2001 21:54:21 Eastern US
Chris, KY (Father of Sara, 18mo. dxd 11mo.) from 148.74.251.170
try having a 11month old who refuses to eat when shes 49, man...

Tue Jan 23 2001 21:54:45 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Welcome Barrie and Annie, you are in the right spot. Refusing to cooperate describes many teens on many occasions. What is your issue specifically?

Tue Jan 23 2001 21:54:47 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
Barry and Annie - not at all!! we've all had problems with our kids to differeing degrees...I'm a firm believer in outside counseling because these kids have a really difficult road to follow....

Tue Jan 23 2001 21:55:23 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Been there, too, Chris. Hate to tell you but those are the EASY years! LOL

Tue Jan 23 2001 21:55:23 Eastern US
rea (15yrs.old.) from 199.120.105.12
yup thats me daniel.. ican get ornary too.

Tue Jan 23 2001 21:55:37 Eastern US
Brenda H. (Marissa, 13, dx'd 9/89) from 10.0.1.3
I guess I shouldn't complain too much since Marissa does test at school (I'm sure the nurse would have told me otherwise) and does try to correct her high BG's. As for remember to bolus...that's another story, along with "Oh, I forgot about that cookie I got in math" etc.

Tue Jan 23 2001 21:55:39 Eastern US
ellen (mom of hayden, 2, dx'd 5/12/00) from 209.109.225.248
chris, we have had great success with fig newtons for our 2 year old when he's low. he never refuses

Tue Jan 23 2001 21:55:57 Eastern US
Robin (son, Jay, 17, dx'd 8/00) from 64.12.102.51
Well I gtg people! Thanks to all and g'nite!

Tue Jan 23 2001 21:56:11 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Chris, wow, toddlers are much tougher than teens, *'m sure. some recommend that anantidote to a toddler that won't eat is to short-term give insulin after meals, Betty can you comment?

Tue Jan 23 2001 21:56:51 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Strained baby food bananas always worked well for us for treating lows. Dave ate those until he was 12!

Tue Jan 23 2001 21:56:52 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Trying to get a child of any age to eat when they don't want to is a pretty frustrating and unproductive undertaking, Chris

Tue Jan 23 2001 21:56:57 Eastern US
Chris, KY (Father of Sara, 18mo. dxd 11mo.) from 148.74.251.170
ellen, ya know I think Judith said something about fig newtons one time , and I have totaly forgotten, Im going to buy a pack tomorrow.!

Tue Jan 23 2001 21:57:20 Eastern US
Tim (CA) (Dad of Sara, 5, dxd 1/3/01) from 63.208.244.47
chris thanks in and out of the chat it is bath time

Tue Jan 23 2001 21:57:22 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
We are walking on eggshells, because she is t medical risk, does not want to talk to a dietician, etc. now eats only "pastries and proteins," and the more we inquire, the worse it seems to get.

Tue Jan 23 2001 21:57:48 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
My son could always sip something from a juice box or a chocolate milk box when low with some coaxing.

Tue Jan 23 2001 21:57:55 Eastern US
Chris, KY (Father of Sara, 18mo. dxd 11mo.) from 148.74.251.181
We treat MOST of our lows with some type of baby food, mostly.

Tue Jan 23 2001 21:57:59 Eastern US
Brenda H. (Marissa, 13, dx'd 9/89) from 10.0.1.3
B and A: do you know if she is testing her BG and taking insulin?

Tue Jan 23 2001 21:58:26 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barry and Annie, what ind of meal plan is expected of her? Does she have a sliding scale to take insulin for those sweets etc?

Tue Jan 23 2001 21:58:55 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Strained bananas give you lots of carb for the volume (15g for the small starter size jars)

Tue Jan 23 2001 21:58:58 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
A couple of people have offered good advice, Barbara, if the child is already low -- something that the chld really likes removes the struggle most of the time -- and giving Humalog after meals is a gift from god to eliminate food fights at mealtime

Tue Jan 23 2001 21:59:25 Eastern US
Beth (Sara, 17) from 206.253.61.229
Better late than never???

Tue Jan 23 2001 21:59:39 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Barry and Annie, sounds really like you need concentrated help from your nurse, doctor, psychosocial provider if available. This likely isn't about food , but something else? (weight? peers? freedom?)so I wouldn't worry about a nutritionist . What about other teens with dm, any contact or experience with other teens and parents?

Tue Jan 23 2001 21:59:52 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Hi, Beth, right under the wire! welcome

Tue Jan 23 2001 22:00:00 Eastern US
Tam (, mom of Brennan, 17, dxd @15) from 64.12.102.159
Barry and Annie, have you thought about family counseling? Something you all 3 can go to~would she be willing to go?

Tue Jan 23 2001 22:00:09 Eastern US
Daniel / FL (Pump User) from 65.32.152.250
mmmmmmmm strained bananas :-o

Tue Jan 23 2001 22:00:16 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Hi Beth :-)

Tue Jan 23 2001 22:00:18 Eastern US
Chris, KY (Father of Sara, 18mo. dxd 11mo.) from 148.74.251.170
wow, Sara is a popular baby name these days, 3 already tonight.

Tue Jan 23 2001 22:00:33 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Brenda: yes, because it's on the meter and she must submit it to the hospital. How much insuling, etc. is only a guess, altho she's writing down numbers for the hospital. -- Since this is our first time here, is there any way to foolow up with ppl with similar problems?

Tue Jan 23 2001 22:00:49 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Betty, yes, fig newtons, strained bananas, cake frosting, any "guaranteed" food is the best choice when a kid is dangerously low

Tue Jan 23 2001 22:01:02 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
She refuses counseling

Tue Jan 23 2001 22:01:04 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barry and Annie there are some psychologists around the country who specialize in families with diabetes....Barbara could probably recommend someone in your area.

Tue Jan 23 2001 22:01:12 Eastern US
Beth (Sara, 17) from 206.253.61.229
Mine Sara is a teen. Almost 18 to be exact.

Tue Jan 23 2001 22:01:29 Eastern US
Beth (Sara, 17) from 206.253.61.229
That's my, not mine. :-)

Tue Jan 23 2001 22:01:37 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Chris, make that 4!

Tue Jan 23 2001 22:01:57 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
B&A..where are you 2 located? there may be resources in your area that you're not even aware of???

Tue Jan 23 2001 22:02:10 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
eating has not been a problem with me and Jill, she eats what she wants and has always been healthy

Tue Jan 23 2001 22:02:11 Eastern US
Daniel / FL (Pump User) from 65.32.152.250
This is a great site B & A a lot of people in the same boat frequent the paretn room. stop back any time.

Tue Jan 23 2001 22:02:28 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
hey Ellen - great minds again!

Tue Jan 23 2001 22:02:37 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Most healthy teens refuse counselling. So your health care team is vital here.....nurse educator? and support from other families living with dm.

Tue Jan 23 2001 22:02:43 Eastern US
Chris, KY (Father of Sara, 18mo. dxd 11mo.) from 148.74.251.181
Barbara, I came in late and didnt catch it all, but as being the Chat Host, what exactly is your connection with D?

Tue Jan 23 2001 22:02:55 Eastern US
Brenda H. (Marissa, 13, dx'd 9/89) from 10.0.1.3
How are her BG's? Although she's not eating the healthiest foods, I guess it isn't as bad IF her BG's are ok. Has she always eaten this way or is it a phase? Marissa craved French fries for several months a couple of yrs ago--almost drove me nuts.

Tue Jan 23 2001 22:03:05 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Barbara, where can people find names of qualified counselors? I've tried our local ped CDE. She had no one specific to suggest. One name she gave will see ONLY pts going to the local Joslin franchise docs. Our endo is nearly 3 hrs away.

Tue Jan 23 2001 22:03:11 Eastern US
Joyce (Justin 16 dx'd at 13) from 152.163.207.181
B&A does she let her friends know that she is a diabetic

Tue Jan 23 2001 22:03:21 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Montreal. If there are any psychologists who could help, please let us know. At least they could guide us. She wants no part of the nurse educator, etc.

Tue Jan 23 2001 22:03:23 Eastern US
Jim250 (retired in wheelchair) from 24.41.0.131
ok got a ? my blood sugar is 310 but doctor tells me its not Diabetes

Tue Jan 23 2001 22:03:43 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
my daughter & her CDE started a Teen group which eventually fizzled out..but the CDE & I felt that if the kids wouldn't come for the hlep & support, that we should still offer it to the parents, so now he runs an evening series - first one last week drew about 25 parents sharing stories....

Tue Jan 23 2001 22:03:57 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Joyce: some of them, but she kept it secret for a long time, and still doesn't want it known openly

Tue Jan 23 2001 22:04:13 Eastern US
Daniel / FL (Pump User) from 65.32.152.250
I would get a second oppinion Jim

Tue Jan 23 2001 22:04:36 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
Oh I gotta tell you. our dietitian was Cool when Jill told her what she had for supper the night before. JUST gummy bears!! I was a bit ashamed

Tue Jan 23 2001 22:04:55 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Judith, a great question. Please contact the national ADA, Council of Behavioral Medicine and Psychology can help locate counsellors. Yet the nurse, RD or MD can be tremendous support, and remember many teens do not want to even admit to talking with a "shrink" much less do it....

Tue Jan 23 2001 22:04:56 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Jim, it sounds as though your doctor could be mistaken - did he offer another explanation?

Tue Jan 23 2001 22:05:32 Eastern US
Jim250 (retired in wheelchair) from 24.41.0.131
ok are there doctors that just specailize in Diabets if so what are they called

Tue Jan 23 2001 22:05:38 Eastern US
Sally/MI from 207.75.176.241
My older 2 went through a whole bag of gummy bears this afternoon while home with colds and I was out running errands. What do they like about those things???

Tue Jan 23 2001 22:05:50 Eastern US
Jim250 (retired in wheelchair) from 24.41.0.131
My doctor is scared of the HMO

Tue Jan 23 2001 22:05:56 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Ellen: how could we find therapists who specialize in diabetes... anywhere!

Tue Jan 23 2001 22:06:25 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
MAryann, yu have a gift from God - a dietitian who doesn't default to "food police" when faced with reall food choices that people sometimes make!

Tue Jan 23 2001 22:06:27 Eastern US
Connie (Colorado Springs--Yikes!) (Marisa, 11, pumps) from 64.12.105.23
Marisa is only 11, but she is in the 6th grade and youngest of 5 and ACTS like a teenager--MY ? is: How much should we be talking with her about complications and risks associated with Diabetes? We've really soft-shoed this because in the last few years 2 teens she has known and my cousin(41) and a friend of ours last month(45) have all died of diabetic-related causes.

Tue Jan 23 2001 22:06:28 Eastern US
Tam (, mom of Brennan, 17, dxd @15) from 64.12.102.159
Aren't there some chats here for teens? Would she attend an online one? I know there is also a teen mailing list here at CWD-if she could start to open up in some way

Tue Jan 23 2001 22:06:29 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Jim, M.D.'s who specialize in diabetes are called either endocrinologists (adult or pediatric) or diabetologists

Tue Jan 23 2001 22:07:04 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barbara do you know any psychologists who specialize in diabetes in the Montreal area?

Tue Jan 23 2001 22:07:10 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
when I said the dietician was cool, I meant she wasn't flustered or mad, not cool as in frigid. She just wanted to know from Jill, how well she read the label and counted the carbs and bolused right, then she was satisfied. It was at the movies

Tue Jan 23 2001 22:07:21 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Jim, look in the yellow pages for a "diabetologist" or an "endocrinologist."

Tue Jan 23 2001 22:07:37 Eastern US
Sally/MI from 207.75.176.241
Nora and I went to a therapist in the early days to help with her adjustment. In our case, knowledge about diabetes wasn't as important as knowledge about the age child, and her specific issues...

Tue Jan 23 2001 22:07:45 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
The teen chats here mostly attract pre teens and the talk is rarely about d.

Tue Jan 23 2001 22:07:47 Eastern US
Beth (Sara, 17) from 206.253.61.229
We were fortunate recently in that we put Sara in the hospital to get things lined out sugar-wise, food-wise, body chemical wise and there was a woman dr there who not only specialized in diabetes but was diabetic herself and had been as a teen so was able to talk at length with Sara. Knew where she was coming from. It was a big help.

Tue Jan 23 2001 22:07:59 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Connie are your doors locked?
Good question re the complications and risks...I think I'm pretty open with Z about it but don't dwell on it.

Tue Jan 23 2001 22:08:00 Eastern US
Jim250 (retired in wheelchair) from 24.41.0.131
Thank you everyone, have a great night

Tue Jan 23 2001 22:08:02 Eastern US
rea (15yrs.old.) from 199.120.105.12
gummy bears.. are squishy and they slide down easily. yum

Tue Jan 23 2001 22:08:28 Eastern US
Tam (, mom of Brennan, 17, dxd @15) from 64.12.102.159
too bad Judith, but understandable

Tue Jan 23 2001 22:08:33 Eastern US
Joyce (Justin 16 dx'd at 13) from 152.163.207.181
MaryAnn: when on the pump can you skip meals?

Tue Jan 23 2001 22:08:45 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
and our NY support group was led by a couple of adults who were dx'd in their teens - made a good connection with the kids

Tue Jan 23 2001 22:08:59 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs) from 64.12.102.183
night all..time to share the AOL with Melissa...thanks for having this chat...obviously a topic we could chat about for days!!

Tue Jan 23 2001 22:09:03 Eastern US
Sally/MI from 207.75.176.241
Thanks, Rea, for that perspective :-)

Tue Jan 23 2001 22:09:11 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Connie, a very important question. Complications are best handled by the family in the presence of a health care provider who is not committed to the scare tactics of many providers of the past. A child in 2001 with dm should be quite optimistic about the future and confident that they are doing what they can to control BG, and this is why parents worry so much and try so hard. Optimism is very vital to continuing engagement with dm management to avoid "diabetes burnout"

Tue Jan 23 2001 22:09:12 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Joyce, one of the things my son loves about the pump is that he can skip meals.

Tue Jan 23 2001 22:09:13 Eastern US
Beth (Sara, 17) from 206.253.61.229
Connie! Are you the one that's a friend of Jan's????

Tue Jan 23 2001 22:09:23 Eastern US
Chris, KY (Father of Sara, 18mo. dxd 11mo.) from 148.74.251.170
Does anyone have a opinion to the future use of Nasal Spray Insulin, or know anything specific about its advantages or disadavantages.

Tue Jan 23 2001 22:09:32 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
yes Jill has been pumping for about 16 months and it works excellent for a teen that will do what they should. can eat when they want, go when they want places. sleep in

Tue Jan 23 2001 22:09:38 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Local ped CDE was dx'd at 13, VERY non-compliant, she says

Tue Jan 23 2001 22:10:14 Eastern US
Connie (Colorado Springs--Yikes!) (Marisa, 11, pumps) from 64.12.105.23
Yes to our doors are double bolted and I she is my dear friend

Tue Jan 23 2001 22:11:03 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Chris, I'm wondering if you mean "inhaled" insulin which is in clinical trials now vs. nasal spray insulin. Check the ADA website and the JDF website.

Tue Jan 23 2001 22:11:05 Eastern US
Beth (Sara, 17) from 206.253.61.229
*lol* What a small world. Which reminds me that I need to call her tonight. She told me that I'd talked with a good friend of hers. You're the only one I could think of.

Tue Jan 23 2001 22:11:46 Eastern US
Barbara Anderson (Chat Host) from 205.188.192.169
Good-night to all , and I appreciate such a rich interchange!

Tue Jan 23 2001 22:11:48 Eastern US
Joyce (Justin 16 dx'd at 13) from 152.163.207.181
We have been trying to get the pump for about 1 year now. And the endo tells us he needs to be in control before she will let him get it

Tue Jan 23 2001 22:11:51 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Barbara, are there any therapists who specialize in diabetes in Montreal or New York?

Tue Jan 23 2001 22:12:05 Eastern US
Beth (Sara, 17) from 206.253.61.229
We're still in the process of going to the pump.

Tue Jan 23 2001 22:12:11 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barbara and Betty - any other special recommend books for our teens to read and for us to read?

Tue Jan 23 2001 22:12:21 Eastern US
Maryann (michigan) (Jill 16, pumping) from 63.29.208.8
Connie, two teens died? that is quite unusual isn't it? please I hope it is! We do not worry much

Tue Jan 23 2001 22:12:48 Eastern US
Lori (Mom to Allie - almost 15 - dx 6/97 - pump 12/99) from 24.240.72.118
thank you all. Good night and good luck!

Tue Jan 23 2001 22:13:18 Eastern US
rea (15yrs.old.) from 199.120.105.12
bye lori

Tue Jan 23 2001 22:13:22 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Barbara, thanks for a great chat and for staying over!!

Tue Jan 23 2001 22:13:25 Eastern US
Tam (, mom of Brennan, 17, dxd @15) from 64.12.102.159
Connie, if I told my 11 year old son with diabetes about complications, he probably would not sleep at night, he is good about being D, so I see no reason to fill him in on all that stuff just yet

Tue Jan 23 2001 22:13:39 Eastern US
Mandy (mum of Brooke) from 202.167.27.75
hello

Tue Jan 23 2001 22:13:40 Eastern US
Tam (, mom of Brennan, 17, dxd @15) from 64.12.102.159
thanks Barbara :)

Tue Jan 23 2001 22:13:42 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Thanks, Barbara and Betty.
(Barbara, where did you work in MO, if you're still here....)

Tue Jan 23 2001 22:14:20 Eastern US
Mandy (mum of Brooke) from 202.167.27.75
sorry i missed the chat forgot about the time difference

Tue Jan 23 2001 22:14:26 Eastern US
Connie (Colorado Springs--Yikes!) (Marisa, 11, pumps) from 64.12.105.23
And that's why I have seldom mentioned it

Tue Jan 23 2001 22:14:28 Eastern US
Beth (Sara, 17) from 206.253.61.229
Well I must run. Need to get a few things done. Nite all. Connie - we'll have to get together and visit one of these days before long.

Tue Jan 23 2001 22:14:40 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barry and Annie, I can ask a therapist in my area if she knows anyone in Montreal or NY. Write to me at CamelsRFun@aol.com

Tue Jan 23 2001 22:14:47 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Ellen, there are a couple of books especially for teens - one is brand new, just out from the ADA called something like "Get a Grip on Diabtes" written by two brothers with type 1 -- I haven't finished it yeat but it looks pretty good so far

Tue Jan 23 2001 22:15:29 Eastern US
rea (15yrs.old.) from 199.120.105.12
bye beth

Tue Jan 23 2001 22:15:49 Eastern US
Connie (Colorado Springs--Yikes!) (Marisa, 11, pumps) from 64.12.105.23
Yes, beth-- I'd like that--

Tue Jan 23 2001 22:15:52 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barry and Annie, there's a terrific one in south Florida if you're headed this way.

Tue Jan 23 2001 22:16:15 Eastern US
Tam (, mom of Brennan, 17, dxd @15) from 64.12.102.159
nite all, take care

Tue Jan 23 2001 22:16:31 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Thanks Betty B.
btw, Betty, even though it's NOT FOR CHILDREN, have you seen the Two Guys with Diabetes video now out from ADA? Just curious about it.

Tue Jan 23 2001 22:16:32 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Thanks all for a great chat -- feel free to keep it up for a while - the room should remain open for another 20 minutes or so

Tue Jan 23 2001 22:16:47 Eastern US
Brenda H. (Marissa, 13, dx'd 9/89) from 10.0.1.3
Night everyone. See you next time. Thanks again, Betty.

Tue Jan 23 2001 22:16:51 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Ellen, thank you very much. We appreciate your concern. Where in south Fl? There are grandparents in the Ft. Laud area

Tue Jan 23 2001 22:16:59 Eastern US
Chris, KY (Father of Sara, 18mo. dxd 11mo.) from 148.74.251.170
night.

Tue Jan 23 2001 22:17:00 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
I think teens feel invincible and fatalistic - sometimes both at the same time.

Tue Jan 23 2001 22:17:01 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Betty B. do those brothers mention pump therapy at all in their book?

Tue Jan 23 2001 22:17:16 Eastern US
Jeff Hitchcock from 206.112.197.133
FYI ... this room will automatically close at 22:30 (about 13 minutes).

Tue Jan 23 2001 22:17:20 Eastern US
rea (15yrs.old.) from 199.120.105.12
bye brenda

Tue Jan 23 2001 22:17:22 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
I just saw the cover when I was at the PostGrad last weekend in new York -- but they weren't showing it --

Tue Jan 23 2001 22:17:25 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
hi everyone how r u

Tue Jan 23 2001 22:17:27 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barry and Annie in Boca Raton, a little north of Ft. Lauderdale.

Tue Jan 23 2001 22:17:41 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
is anyone here

Tue Jan 23 2001 22:18:00 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
hi everyone

Tue Jan 23 2001 22:18:07 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
Seems i missed you all was it a good chat

Tue Jan 23 2001 22:18:08 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
is anyone here

Tue Jan 23 2001 22:18:15 Eastern US
Connie (Colorado Springs--Yikes!) (Marisa, 11, pumps) from 64.12.105.23
I'm gone, too--- nice chat

Tue Jan 23 2001 22:18:21 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
hi mandy how r u

Tue Jan 23 2001 22:18:24 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
hi jac

Tue Jan 23 2001 22:18:25 Eastern US
rea (15yrs.old.) from 199.120.105.12
hi jac... ur right judith...

Tue Jan 23 2001 22:18:38 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
good thanks and you

Tue Jan 23 2001 22:18:42 Eastern US
rea (15yrs.old.) from 199.120.105.12
bye connie

Tue Jan 23 2001 22:18:42 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Hi jac - this chat is just winding down but will remain open for about 10 more minutes. Night All!

Tue Jan 23 2001 22:18:48 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
hello

Tue Jan 23 2001 22:19:19 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
hi everyone wanna chat everyone a/s/l/
mine 9/f/canada

Tue Jan 23 2001 22:19:38 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
hi

Tue Jan 23 2001 22:19:46 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
he he he he he

Tue Jan 23 2001 22:19:48 Eastern US
BettyB (Chat Moderator) from 152.163.205.72
Ellen - I haven't seen anything about pumps yet but they'r both athletes and very active -- I'll try to finish the book up and we'll put a review on the site

Tue Jan 23 2001 22:19:54 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
anyone here

Tue Jan 23 2001 22:19:59 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Thanks Betty good night.

Tue Jan 23 2001 22:20:09 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
jac: where in canada are you?

Tue Jan 23 2001 22:20:14 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
is this a new room

Tue Jan 23 2001 22:20:19 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
r u 9years old jac

Tue Jan 23 2001 22:20:21 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Jac, that's not appropriate when chatting with adults..remember???

Tue Jan 23 2001 22:20:34 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
me well B.C

Tue Jan 23 2001 22:20:43 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Ellen: thanks again; we'll contact you for more info

Tue Jan 23 2001 22:21:00 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
is this a parints chat ??????????

Tue Jan 23 2001 22:21:25 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
is it

Tue Jan 23 2001 22:21:32 Eastern US
Jeff Hitchcock from 206.112.197.133
jac ... parents chat is in the 'parents' room -- select it from the Room list, upper right.

Tue Jan 23 2001 22:21:36 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
hello

Tue Jan 23 2001 22:21:47 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barry and Annie, we have a pump support group meeting with that psychologist on February 8, want to join us? :-)

Tue Jan 23 2001 22:22:17 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
is it a parents chat ???????????????????????

Tue Jan 23 2001 22:22:41 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Yes, jac, and please be more patient. Wait a bit for a reply before making another post.

Tue Jan 23 2001 22:22:51 Eastern US
Jeff Hitchcock from 206.112.197.133
jac, this chat is winding down. I suggest you find a new room.

Tue Jan 23 2001 22:22:58 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
there are only about 13 kids on the pump in australia

Tue Jan 23 2001 22:23:26 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
ok bye everyone have a great night

Tue Jan 23 2001 22:23:38 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
i find it very frustrating that brooke is the youngest and there are no support groups here

Tue Jan 23 2001 22:23:50 Eastern US
jac (jacquiege@hotmail.com ) from 209.52.199.108
~~~~~~~~~g:-)ne bye ~~~~~~~~~~~gone to teens ok

Tue Jan 23 2001 22:24:18 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Ellen: it's hard to resist an excuse to escape the snow to FL. but she's not on the pump. Do you know of any suport resources you've found useful? When is this chat open?

Chat Room Administrator chat@childrenwithdiabetes.com Tue Jan 23 2001 22:25:00 Eastern US
This room will close in five minutes.


Tue Jan 23 2001 22:25:01 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barry and Annie, I attended that pump group for over 6 months before putting my son on the pump.

Tue Jan 23 2001 22:25:13 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
The parents chat room is open around the clock.

Tue Jan 23 2001 22:25:19 Eastern US
Jeff Hitchcock from 206.112.197.133
Mandy: Any chance you can make it to our Disney 2001 event? You'll meet lots of other kids with pumps.

Tue Jan 23 2001 22:25:37 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
well i guess i am being ignored in here so i will leave take care everyone

Tue Jan 23 2001 22:26:21 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
sorry Jeff. no not really we went to disneyland just after brooke was dxd 3 years ago not financial enough to go again

Tue Jan 23 2001 22:26:21 Eastern US
Jeff Hitchcock from 206.112.197.133
Mandy: You're not being ignored. What can we do to help?

Tue Jan 23 2001 22:26:51 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Ellen: can a rebellious teen be put on the pump.

Tue Jan 23 2001 22:27:44 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
nothing really just feeling frustrated by brookes readings and my lack of sleep, i didnt mean to be rude

Tue Jan 23 2001 22:28:09 Eastern US
Jeff Hitchcock from 206.112.197.133
Lack of sleep comes with being a parent of a child with diabetes ...

Tue Jan 23 2001 22:28:18 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Barry and Annie, it depends upon the rapport she can establish with the endo and the team. Is she rebelling because she feels restricted by what she "can't eat" and by the time she's supposed to eat? Eating disorders, however, can be a problem with the pump.

Tue Jan 23 2001 22:28:26 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
it would be hard Barry because you need alot of cooperation on the pump and they need to do alot more testing

Tue Jan 23 2001 22:28:33 Eastern US
Jeff Hitchcock from 206.112.197.133
I just reprogrammed this room to remain open until 23:30 (another hour). I have to go though -- goodnight all.

Tue Jan 23 2001 22:28:43 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Barry/Annie, I would be very very hesitant to put a rebellious teen on a pump. It would give her more control, you less. Frequent testing is required. DKA is a real risk.

Tue Jan 23 2001 22:28:52 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
have been doing 1am 3am and some 4am readings for over a week now

Tue Jan 23 2001 22:28:58 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Mandy after Brooke's low a couple of days ago, how's she been?

Tue Jan 23 2001 22:29:06 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Thanks, Jeff

Tue Jan 23 2001 22:29:21 Eastern US
Daniel/FL (Pump User) from 65.32.152.250
A pump may be just the incentive that causes a teen to cooperate.

Tue Jan 23 2001 22:29:28 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
night Jeff and thanks

Tue Jan 23 2001 22:29:57 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
terrible, hypoing everyday at different times then high for the rest of the day

Tue Jan 23 2001 22:30:38 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Thanks everyone for the feedback. She's testing (or at least supposed to be) quite often since she's on multiple injection. Does the pump require more cooperation?

Tue Jan 23 2001 22:30:47 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Daniel: why is that?

Tue Jan 23 2001 22:30:59 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
thought i would go to bed alittle early last night 11.30pm instead of 2am did a test first and she was hypoing so i fed her and couldnt sleep at all then

Tue Jan 23 2001 22:31:30 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
yes Barry and the child really needs to want the pump for it to work

Tue Jan 23 2001 22:31:58 Eastern US
Daniel/FL (Pump User) from 65.32.152.250
If a teen is not cooperating and taking care of there diab. . . .anything that could change that attitude should be looked into.

Tue Jan 23 2001 22:31:58 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
The pump requires more frequent testing, but less rigidity re diet and sleep and mealtimes etc.

Tue Jan 23 2001 22:31:59 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Teen girls in particular may use a pump to eat whatever without weight gain. They are at great risk for DKA when they do that. Has she been hospitalized for DKA?

Tue Jan 23 2001 22:32:07 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
Judith how is Vany today

Tue Jan 23 2001 22:32:17 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
sorry Vanya

Tue Jan 23 2001 22:32:20 Eastern US
Daniel/FL (Pump User) from 65.32.152.250
there = their

Tue Jan 23 2001 22:32:24 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Read what the endo says about the pump and kids at http://www.kidsrpumping.com

Tue Jan 23 2001 22:32:57 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Thanks for asking, Mandy. Still running a bit of fever, but bgs better. Checking ketones now. Stil feels pretty rotten

Tue Jan 23 2001 22:33:34 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Judith what is DKA? (ketones?) If so,no.

Tue Jan 23 2001 22:33:41 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Poor Vanya :-( - did you make him soup?

Tue Jan 23 2001 22:34:12 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
sounds a bit more hopeful though Judith

Tue Jan 23 2001 22:34:23 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
keytones

Tue Jan 23 2001 22:34:46 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Judith, how does one eat whatever one wants w/o weight gain? Right now, she feels she can eat whatever she wants w/ multiple injections.

Tue Jan 23 2001 22:35:11 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
Brookes is a bit of colour today but i think its because of the unsettled nights she needs her sleep

Tue Jan 23 2001 22:35:42 Eastern US
ms from 152.163.205.26
Barry and Annie, do you have a good endo who explains things to her and works with her?

Tue Jan 23 2001 22:35:53 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
I need to go to bed. Barry and Annie, the psychologist who is down here, is only here part of the year...so she'll be here just a couple more months this year. Hope you'll consider coming down to visit the folks Feb. 8.

Tue Jan 23 2001 22:36:10 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Yes, Mandy. I'm encouraged. He insisted on going to school today, does not want to miss.
No soup, Ellen. I'm a terrible mother!

Tue Jan 23 2001 22:36:39 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
bye Ellen take care, lol its only 2.40pm here

Tue Jan 23 2001 22:36:48 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
ms - she tries, but our daughter is not terribly interested.

Tue Jan 23 2001 22:36:51 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
DKA - diabetic ketoacidosis....yes, ketones and high bgs

Tue Jan 23 2001 22:36:58 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Ellen, thanks again. Good night

Tue Jan 23 2001 22:37:00 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
lol soup is the cureall

Tue Jan 23 2001 22:37:13 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Bye Mandy.
Judith, MAKE SOUP!!!!!

Tue Jan 23 2001 22:37:37 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
If she's taking insulin to cover her food, B&A, then she's doing better than many teens. What are your expectations for her self-care?

Tue Jan 23 2001 22:37:41 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Judith: thanks, but we didn't understand about the weight gain

Tue Jan 23 2001 22:37:42 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
at least he is still keen on school Judith alot arent at that age, how much longer is he here for

Tue Jan 23 2001 22:37:59 Eastern US
Ellen (FL) (Zachary 13, dx 2/89, pump 5.5 yrs) from 64.12.105.183
Soup made with kosher chickens work best - but not sure you have them where you live. LOL Good night.

Tue Jan 23 2001 22:38:06 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
I did make him some apricot tea last night. He said it was good and helped him

Tue Jan 23 2001 22:38:58 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Actually, don't want to explain that online....

Tue Jan 23 2001 22:39:11 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Send me a kosher chicken! LOL

Tue Jan 23 2001 22:40:00 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
see so u r a good mum then Judith LOL

Tue Jan 23 2001 22:40:25 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Judith: we don't have the knack of "chat" - our last message was written b4 your answer. Her hemoglobin is sky high, and she was hospitalized a few wks ago w/ hypo

Tue Jan 23 2001 22:40:48 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
And I'm giving him Tylenol and Claritin.....taking his temp....

Tue Jan 23 2001 22:41:02 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Judith, if the line of not explaining online was to us, cd we discuss it offline? :-)

Tue Jan 23 2001 22:41:15 Eastern US
Daniel/FL (Pump User) from 65.32.152.250
B & A, has the endo discussed a pump with her?

Tue Jan 23 2001 22:41:30 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Vanya's visa is good until Aug 7

Tue Jan 23 2001 22:42:24 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
B&A, what does your endo say about her?

Tue Jan 23 2001 22:42:39 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
oh ok so he still has awhile then

Tue Jan 23 2001 22:42:42 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Daniel: no, but there is a support grp in NY which she once attended, where it was suggested

Tue Jan 23 2001 22:43:09 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Most teens have figured out how to eat without wt gain, but in case there are some who haven't, I'm not going to post directions here.

Tue Jan 23 2001 22:43:59 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
I suspect your daughter is one who HAS figured it out. It results in very high A1cs and may lead to DKA

Tue Jan 23 2001 22:44:07 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Judith, that she doesn't know what to do to motivate her to cooperate (we've been thru many drs. and this one is by far the best)

Tue Jan 23 2001 22:44:48 Eastern US
ms from 152.163.205.26
Barry and Annie, has she ever had "good" control? Do you think it is a matter of her not being informed/understanding of the various aspects of diabetes/care? Do you think it is rebellion from strictness? Or frustration/ feeling of hopelessness regarding diabetes?

Tue Jan 23 2001 22:45:45 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
you must be feeling very frustrated B&A

Tue Jan 23 2001 22:46:24 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
ms - no, no, yes, yes. what can we do about the hpoelessness?

Tue Jan 23 2001 22:46:28 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Excellent points, MS
Has she ever gone to camp? Does she know other teens or young adults living successfully with d?

Tue Jan 23 2001 22:46:35 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Judith: she's gaining weight.

Tue Jan 23 2001 22:47:49 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Judith: never been to diabetic camp, just regular camp. She knows of others living well w/ it, but is not interested in communication. there's some denial

Tue Jan 23 2001 22:47:56 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Have you tried bribes, B&A? Caring for herself for a specific period will result in a reward, something she wants?

Tue Jan 23 2001 22:47:58 Eastern US
ms from 152.163.205.26
B and A, at what point do you think her attitude began to change? Is she doing testing at all?

Tue Jan 23 2001 22:48:52 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Meeting other kids her age with d might be the most effective thing. Might want to investigate Clara Barton Camp, outside Boston.

Tue Jan 23 2001 22:49:24 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Barton has various teen programs throughout the year...many of them co-ed

Tue Jan 23 2001 22:49:40 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
judith: the biggest thing she wants is a driver's permit, which she needs good control by law to get. It seems to hard for her.

Tue Jan 23 2001 22:49:41 Eastern US
ms from 152.163.205.26
Judith, honestly, I'm not sure that is the way to go. If she is strong willed and feeling strongly against d, Im not so sure it would not make her feel more negative. ]B and A, has she ever seen a psychologist, social worker, or even attended a support group?

Tue Jan 23 2001 22:50:28 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
ms - she hasn't changed. from her diagnosis at age 9 her hg has been sky high, and her eating out of control. Multiple injection has brought it down somewhat

Tue Jan 23 2001 22:51:48 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
Brooke has never been in control either but thats the d not her thankgoodness we have not had too much trouble with her co operation

Tue Jan 23 2001 22:52:26 Eastern US
ms from 152.163.205.26
B and A, I dont know if shed be receptive to it, but... if you would like I can chat/ email - I lived through the teens - went through a lot regarding care - but my background was such that I did not have a supportive/competent doctor until around 16 - It is important to find someone who will work with you - I have to say that after years of little education and poor bgs, at times it is still difficult for me, but... I think we all need to focus on taking little steps sometimes

Tue Jan 23 2001 22:52:55 Eastern US
Wendy from 12.89.146.61
Hi Everyone

Tue Jan 23 2001 22:53:31 Eastern US
Cathy (Chelcie, 9, dx 3/99) from 152.163.207.196
Hello everyone

Tue Jan 23 2001 22:53:32 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Large issues there, B&A. Not something that can be cured at the chat, I'm afraid. Sounds like long term counseling is needed, since it's such a long standing problem.

Tue Jan 23 2001 22:53:51 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Hi Wendy and Cathy

Tue Jan 23 2001 22:55:07 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Judith: this info itself is helpful. Does noone else see this level of non-cooperation?

Tue Jan 23 2001 22:55:15 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
hi wendy and cathy

Tue Jan 23 2001 22:55:34 Eastern US
Tim (CA) (Dad of Sara, 5, dxd 1/3/01) from 64.156.159.179
Hello, I'm back.

Tue Jan 23 2001 22:55:34 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
not yet Barry but brooke is only 9

Tue Jan 23 2001 22:55:59 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
LOL Tim how r u

Tue Jan 23 2001 22:56:13 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
At our drs/ dx, we rec'd little guidance, and in retrospect, realize that she need much more compassion. Any suggestions for rectifying this now?

Tue Jan 23 2001 22:56:23 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
All too common in teens, B&A. I worked peds ICU for many years, saw lots of "frequent flyers"...mostly girls....who were admitted in DKA about once a month or so.

Tue Jan 23 2001 22:56:28 Eastern US
Cathy (Chelcie, 9, dx 3/99) from 152.163.207.196
We went to the endo today, he changed her Lente, hoping to get better control.

Tue Jan 23 2001 22:56:43 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Family counseling.....

Tue Jan 23 2001 22:56:57 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
it is hard when they are in denial, all you want is in their best interest but they think u r interfering

Tue Jan 23 2001 22:57:26 Eastern US
ms from 152.163.205.26
Barry and Annie, I definately went through what you are describing - like i said, mine was more due to my not understanding the ins and outs of diabetes and the importance of care - that lead to what I now perceive as possible resentment toward diabetes and people involved. Thank goodness I think much more clearly now :-)

Tue Jan 23 2001 22:57:38 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
r u having control probs too Cathy?

Tue Jan 23 2001 22:58:16 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
you sound very sensible ms

Tue Jan 23 2001 22:58:35 Eastern US
Cathy (Chelcie, 9, dx 3/99) from 152.163.207.196
It's really hard when your child says that you don't have to live with this, she does, and that we can't ever know how it feels, pretty heavy for a kid who just turned 9

Tue Jan 23 2001 22:59:02 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
all you can do is be there for her B&A let her know how you feel and encourage her in her control

Tue Jan 23 2001 22:59:22 Eastern US
Cathy (Chelcie, 9, dx 3/99) from 152.163.207.196
Chelcie has been great when she wakes up and it gets worse as the day goes on, by dinner she is 400

Tue Jan 23 2001 22:59:23 Eastern US
ms from 152.163.205.26
how is your current doctor? does he/she lend an ear? i think if she is really in denial, the first step is getting a doc who will listen first - not change anything drastically, and work with the child and family - I think that having a CDE or other support person can be helpful

Tue Jan 23 2001 22:59:27 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
Brooke has said the same to me and it hurts doesnt it

Tue Jan 23 2001 23:00:16 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Judith: your comment on the ICU puts things in perspective. Our daughter, for all her high hg, has never had DKA - only hypo. I guess we shd be thankful.

Tue Jan 23 2001 23:00:18 Eastern US
ms from 152.163.205.26
actually, I should say... that I think I think more clearly now :-) LOL

Tue Jan 23 2001 23:00:23 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
Brooke is all over the place she hypos then is high for the rest of the day

Tue Jan 23 2001 23:00:40 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Cathy, Marcia's daughter Steph has told her "Get your own diabetes!!!"

Tue Jan 23 2001 23:01:22 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
LOL whichever ms at least u r now thinking the right way

Tue Jan 23 2001 23:01:24 Eastern US
Wendy from 12.89.146.61
Bary and Anne, i was the "evil diabetic" i never tested my sugars.......never was in DKA either....can't remember what my A1C were during those teen years

Tue Jan 23 2001 23:01:37 Eastern US
ms from 152.163.205.26
Cathy, I'd agree. All you can really do is validate her feelings and tell her that though you dont have diabetes and dont know how it feels, you care about her and how she is feeling

Tue Jan 23 2001 23:01:54 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Cathy, sounds like increasing the morning L may help with that.

Tue Jan 23 2001 23:01:58 Eastern US
Stacie (IN) (Jacob, age 5, diagnosed 1/4/01) from 152.163.213.69
Hi Judith

Tue Jan 23 2001 23:02:03 Eastern US
Cathy (Chelcie, 9, dx 3/99) from 152.163.207.196
I told her that if I could take it away from her I would, she knows that I can only do so much and is really good at hadnling questions and peers.

Tue Jan 23 2001 23:02:09 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
LOL Judith i think all mums would if they could, without their kids having it too of course

Tue Jan 23 2001 23:02:53 Eastern US
amy from 209.240.220.146
hello everyone

Tue Jan 23 2001 23:02:58 Eastern US
Tina (Gabby,7yrs. old dx'd Oct 2000) from 209.4.40.63
Hi everyone! What do I do when my little 7yrs. old daughter is shutting down at school and many tears? We cuddle A Lot! She is really shutting down. D team and support group hasn't been much help. What is confusing to me is SHE is the one that always wants to go to the support group.

Tue Jan 23 2001 23:03:03 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Hi Stacie How are things going? Did you see the endo at Riley?

Tue Jan 23 2001 23:03:06 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
i have low blood sugar occassionally so i tell Brooke i can at least understand her hypos

Tue Jan 23 2001 23:03:10 Eastern US
Cathy (Chelcie, 9, dx 3/99) from 152.163.207.196
I hope the Lente helps, I am not the most patient person, want results right away...

Tue Jan 23 2001 23:03:39 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
hi amy and Tina

Tue Jan 23 2001 23:03:40 Eastern US
ms from 152.163.205.26
Cathy, I think it is great that she handles peers etc., Being self confident about herself with or without diabetes is important

Tue Jan 23 2001 23:03:51 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Hi Tina. A meltdown several weeks or months after dx is pretty normal. The reality that this is forever has set in....

Tue Jan 23 2001 23:04:10 Eastern US
ms from 152.163.205.26
shutting down in what regard?

Tue Jan 23 2001 23:04:13 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
D will be very frustrating for you, Cathy.

Tue Jan 23 2001 23:04:16 Eastern US
Stacie (IN) (Jacob, age 5, diagnosed 1/4/01) from 152.163.213.69
No, not yet....we are still "interviewing endos. Like Dr. Sam the best so far. I have a question for you. Last time I was on, someone gave me a website for the Pink Panther book. Do you have that website?

Tue Jan 23 2001 23:04:28 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
i think self confidence with d is probably one of the most important things

Tue Jan 23 2001 23:04:36 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Hi amy

Tue Jan 23 2001 23:05:02 Eastern US
Wendy from 12.89.146.61
Hi amy and Tina

Tue Jan 23 2001 23:05:05 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Yes, http://www.uchsc.edu/misc/diabetes/UIDDM.html

Tue Jan 23 2001 23:05:08 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
same here cathy we change her basals one by one every couple of days and i want it fixed NOW

Tue Jan 23 2001 23:05:18 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Wendy-that is very comforting.We know we shoould do our best, but should we at the same time feel satisfied, knowing that as she matures she'll get in better control?

Tue Jan 23 2001 23:05:19 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
You've seen Sam? He IS the best.

Tue Jan 23 2001 23:05:36 Eastern US
Cathy (Chelcie, 9, dx 3/99) from 152.163.207.196
Tina, it takes alot of time. Some days are easier than others, just help her one day at a time. Has she gotten the Wizdom Kit? It's great for kids her age.

Tue Jan 23 2001 23:05:45 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Sam W, in Danville?

Tue Jan 23 2001 23:06:36 Eastern US
Wendy from 12.89.146.61
Barry and Annie, it took me 10 yrs, to accept diabetes and start taking control.....prior to that.....well i won't tell you

Tue Jan 23 2001 23:06:50 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
What is the wizdom kit and the pinkpanther book?

Tue Jan 23 2001 23:07:01 Eastern US
Stacie (IN) (Jacob, age 5, diagnosed 1/4/01) from 152.163.213.69
Sam in Danville. Only talked to the office. Heard of a diabotologist in Vincennes. Also, found two adult endos in our town that treat peds. We'll see. No decision yet.

Tue Jan 23 2001 23:07:17 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
u must have been HELL for your parents Wendy

Tue Jan 23 2001 23:07:21 Eastern US
Wendy from 12.89.146.61
if you would like you can e-mail me at w.ort@att.net....i will try to offer some suggestions...none of which worked for me

Tue Jan 23 2001 23:07:22 Eastern US
ms from 152.163.205.26
She can get in better control, but I would say it may be a matter of finding the right doctor and continuously supporting her. My thought is that maybe it would help to talk to someone - whether it be a professional in you area, or a "chat member"? - Where do you live if I may ask?

Tue Jan 23 2001 23:07:37 Eastern US
Tina (Gabby,7yrs. old dx'd Oct 2000) from 209.4.40.63
Any suggestions on handling the 180 she is pulling on me? She is usually a very responsible and happy go lucky kid. She refused to have her pm snack last night only to awaken at 2am shaking w/ a bl.g. 37!!!

Tue Jan 23 2001 23:07:43 Eastern US
amy from 209.240.220.146
Wendy, are U feeling any better??

Tue Jan 23 2001 23:08:13 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
MUCH better to go with a ped endo. They are first trained as pediatricians, do know all the growth and development issues, normal childhood illnesses, etc. Adult endos are internists (adult medicine) docs first

Tue Jan 23 2001 23:08:16 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
ms - Montreal

Tue Jan 23 2001 23:08:53 Eastern US
Stacie (IN) (Jacob, age 5, diagnosed 1/4/01) from 152.163.213.69
Thanks Judith....I'll be back after I order the book!

Tue Jan 23 2001 23:09:03 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
He's in Russia at the moment, Staci. Left Sunday, gone for 16 days.

Tue Jan 23 2001 23:09:24 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Stacie, entire text is available online at that site, and/or can order it.

Tue Jan 23 2001 23:09:39 Eastern US
ms from 152.163.205.26
Wendy,Ann,Barry - I guess my concern is that if she is feeling hopeless about diabetes and continues to feel this way, it will be more difficult to come around - guidance now would be a good option - with the right team and support

Tue Jan 23 2001 23:09:43 Eastern US
Wendy from 12.89.146.61
Amy, don't ask....that is a great debate here....have to go for a kidney ultrasound and abdominal ultrasound tommorow...because they think i may have kidney stones.....not sure...why i am not going...like i should

Tue Jan 23 2001 23:10:10 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Tina, the experience itself may help teach her why she needs to eat. How was she tonight?

Tue Jan 23 2001 23:10:52 Eastern US
Wendy from 12.89.146.61
right thats what i think also ms, i also wonder if a pump with a contract would be a good idea i know how great i felt after switching

Tue Jan 23 2001 23:12:05 Eastern US
Tina (Gabby,7yrs. old dx'd Oct 2000) from 209.4.40.63
We have been through Hell and back with a stomach flu since last Weds. She is finally back to school. Her bl.g. have been very low from 20 to 60. I put her to bed tonight with a 90 only due to juice. I have to do night checks.

Tue Jan 23 2001 23:12:10 Eastern US
amy from 209.240.220.146
Wendy, sorry to bring it up, I'm starting feel like that w/my pump, but not as much trouble as your having w/everything else.

Tue Jan 23 2001 23:12:19 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
oh yuk Wendy good luck do they say it may be because of your earlie rebelion

Tue Jan 23 2001 23:12:30 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Thanks everyone. You've been wonderfully helpful, but we have to go. Good night!

Tue Jan 23 2001 23:12:41 Eastern US
Cathy (Chelcie, 9, dx 3/99) from 152.163.207.196
Tina, I found that it is important to let Chelcie know that every action may have a consequence. If she really want pizza(which makes her skyhigh) she may need additional shot, that way she can try to learn and make choices. Sometimes she makes good ones, and sometimes I let her learn for herself. Sometimes I just have to put my foot down and be her Mom..

Tue Jan 23 2001 23:13:18 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Good luck, B&A. This room will be closing in 17 minutes. Can adjourn to parents or adults or ??

Tue Jan 23 2001 23:13:24 Eastern US
Barry and Annie (Parents of 16 yo, dx at 9) from 205.188.193.164
Wendy, we hope the results are good.

Tue Jan 23 2001 23:13:25 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
i have been doing night checks too Tina they are very tiring. the trick is not too over feed it is a fine line

Tue Jan 23 2001 23:13:25 Eastern US
Ann(Mi) (Philip,11,Dxd@13mths) from 4.54.142.176
Hi everyone! Is there a full moon coming! Sounds like we all had trying days with our kids!

Tue Jan 23 2001 23:13:43 Eastern US
Wendy from 12.89.146.61
Mandy, i hope not....I have been battling highs for about 2 months now...think they caught up with me

Tue Jan 23 2001 23:13:47 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
good luck Barry and Annie you are in our prayers

Tue Jan 23 2001 23:14:44 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
lol Ann isnt that just life with d though

Tue Jan 23 2001 23:14:45 Eastern US
Cathy (Chelcie, 9, dx 3/99) from 152.163.207.196
Well, good night to all, and good luck.....

Tue Jan 23 2001 23:14:45 Eastern US
Ann(Mi) (Philip,11,Dxd@13mths) from 4.54.142.176
Tina - proteins seem to keep Philip's sugar up better than juices. Last night we made Duncan Hines brownies. A square of brownie and a slice of ham and he woke up at 84. No night check for the first time in a while!

Tue Jan 23 2001 23:14:49 Eastern US
Wendy from 12.89.146.61
Barry and Annie, Good luck

Tue Jan 23 2001 23:15:11 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
my fingers are crossed for you Wendy

Tue Jan 23 2001 23:15:42 Eastern US
Tina (Gabby,7yrs. old dx'd Oct 2000) from 209.4.40.63
Cathy, I agree with you on that point. I have been trying not to hover over her. I have stayed in very close contact with her dr. He gave me a list of foods and juices.

Tue Jan 23 2001 23:15:45 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
night Cathy take care and good luck with Chelsie, I know exactly what u r feeling

Tue Jan 23 2001 23:16:23 Eastern US
Wendy from 12.89.146.61
thanks Mandy

Tue Jan 23 2001 23:16:50 Eastern US
Tina (Gabby,7yrs. old dx'd Oct 2000) from 209.4.40.63
I have to say, I have had a major meltdown of my own. I was down with the flu and just lost it emotionally. I didn't even know I had that much emotion about this condition. I thought I was in control? duh...

Tue Jan 23 2001 23:18:05 Eastern US
Tina (Gabby,7yrs. old dx'd Oct 2000) from 209.4.40.63
good night Cathy

Tue Jan 23 2001 23:18:06 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
we have all been ther Tina at some point it is such a day to day battle that it wears away at u sometimes

Tue Jan 23 2001 23:18:08 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Tina, you might want to point out to her, in a non-punishing way, that the low she had was because she didn't have her snack. Tell her you know she felt bad, and that you don't want her to have to feel that way, so she needs her snacks. Need to keep it pretty simple. At 7, she does not have adult logical thinking yet.

Tue Jan 23 2001 23:18:40 Eastern US
Ann(Mi) (Philip,11,Dxd@13mths) from 4.54.142.176
Judith, we had our pump evaluation.
Philip could have had a better attitude about it.
Was interested on the one hand,but did not want to try a site injection. So, I had to tell her we would go to a friend's house use the numbing cream, watch her child change his sight and do one for Philip that she gave us to practice with.
Always compromising. As soon as we accomplish this feat, then she will order a pump! He asked lots of questions. SHe asked him what he knew about the pump - he told her that it would give him insulin all the time. I was thankful he didn't say "NOTHING!" He go a little emotional too!

Tue Jan 23 2001 23:18:48 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Sounds like you are right on schedule, Tina....

Tue Jan 23 2001 23:18:56 Eastern US
ms from 152.163.197.79
Well, I have to get some work done before hitting the sack - good night everyone - hang in there - we are all human - take care

Tue Jan 23 2001 23:19:17 Eastern US
Ann(Mi) (Philip,11,Dxd@13mths) from 4.54.142.176
go=got

Tue Jan 23 2001 23:19:22 Eastern US
Wendy from 12.89.146.61
bye ms

Tue Jan 23 2001 23:19:51 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Night, MS. Good input!

Tue Jan 23 2001 23:20:27 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Ann, any decisions on brand? One your doc/educator is most familiar with may be the best choice.

Tue Jan 23 2001 23:20:31 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
nite ms keep ;up the good work

Tue Jan 23 2001 23:21:15 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
at least he asked plenty of questions Ann that is a good sign

Tue Jan 23 2001 23:21:44 Eastern US
Ann(Mi) (Philip,11,Dxd@13mths) from 4.54.142.176
Definately the minimed 508. As far as the static goes, she said if the kids would wear the case it comes with, that would avoid the static and alarms

Tue Jan 23 2001 23:22:35 Eastern US
Wendy from 12.89.146.61
Ann, i have the 508 and have had no problems

Tue Jan 23 2001 23:23:00 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
brooke has the 507

Tue Jan 23 2001 23:23:04 Eastern US
Ann(Mi) (Philip,11,Dxd@13mths) from 4.54.142.176
I asked about putting him on Humalog prior to. She said they don't usually do that and have had other NPH/R injectors go to humalog with the pump and have had no problems

Tue Jan 23 2001 23:23:04 Eastern US
Tina (Gabby,7yrs. old dx'd Oct 2000) from 209.4.40.63
Judith, Gabby catches on so quickly and adapts to whatever comes at her with ease that this is just throwing me off for a minute. We had a heart to heart. Later she gave me a note that said 'Thanks for Loving me!" Wow!!! I just hugged her. Then came 47 low and homework. We gave her a snack and did as much as we could before she became too frustrated.

Tue Jan 23 2001 23:23:47 Eastern US
Ann(Mi) (Philip,11,Dxd@13mths) from 4.54.142.176
She said disetronic is coming out with a new model too but she has not been sent one yet.
The minimed instructor is a pumping D too.

Tue Jan 23 2001 23:24:00 Eastern US
Tina (Gabby,7yrs. old dx'd Oct 2000) from 209.4.40.63
That would be so wonderful to have the pump. Gabby likes gadgets too much that I think she would try mess with it too much. Maybe later.

Tue Jan 23 2001 23:24:36 Eastern US
Linda/UT from 208.186.108.4
Hello

Tue Jan 23 2001 23:24:45 Eastern US
Marsha (Kylee, 9, dx'd 1/10/00) from 24.181.215.15
Good evening all.

Tue Jan 23 2001 23:24:48 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Wow re: Gabby!

Tue Jan 23 2001 23:25:02 Eastern US
Tina (Gabby,7yrs. old dx'd Oct 2000) from 209.4.40.63
Hi Linda

Tue Jan 23 2001 23:25:06 Eastern US
Wendy from 12.89.146.61
Ann both my trainers were pumpers....both with D...one was a girl and the other was real cute

Tue Jan 23 2001 23:25:38 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Bianca's dau in Holland has the new D-Tron pump
Hi Marsha and Linda. This room closes in 5 minutes, BTW

Tue Jan 23 2001 23:25:42 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
sounds like she is a star Tina. Brooke wrote us a note after she was dxd thanking us for all our help. made me cry

Tue Jan 23 2001 23:26:29 Eastern US
Linda/UT from 208.186.108.4
That's fine, I need to finish doing stuff anyway...but it's just good to say hello

Tue Jan 23 2001 23:26:29 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Can't concentrate with the numbers bouncing all over. Poor kid! Poor mom!

Tue Jan 23 2001 23:26:39 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
LOL Wendy lucky u

Tue Jan 23 2001 23:26:40 Eastern US
Ann(Mi) (Philip,11,Dxd@13mths) from 4.54.142.176
We talked about the many lows occuring lately, just a lot going on. She asked him if he got headaches, he said yes, and she told him that with the pump that would go away. SHe helped me, but you could tell I was the one who wanted it more. He is chicken to try new things, but as long as I give the nudge, he is usually glad for the good changes!

Tue Jan 23 2001 23:26:52 Eastern US
Tina (Gabby,7yrs. old dx'd Oct 2000) from 209.4.40.63
Little Angels every one of these kids!:0)

Tue Jan 23 2001 23:26:53 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Oh, doubt we're leaving, just changing rooms!

Tue Jan 23 2001 23:27:24 Eastern US
Linda/UT from 208.186.108.4
LOL Judith

Tue Jan 23 2001 23:27:27 Eastern US
Wendy from 12.89.146.61
Mandy made the second trainging worth it

Tue Jan 23 2001 23:27:34 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
hi Linda

Tue Jan 23 2001 23:27:50 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Wedding plans not complete yet, Linda????

Tue Jan 23 2001 23:27:52 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
got his phone number then Wendy?

Tue Jan 23 2001 23:28:28 Eastern US
Wendy from 12.89.146.61
got his business card...does that count Mandy

Tue Jan 23 2001 23:28:53 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
yes i agree with u Tina they have to put up with alot and they grow up so quickly because of it.

Tue Jan 23 2001 23:29:08 Eastern US
Mandy (Brooke 9 and pumping in australia) from 202.167.27.75
of course Wendy every little bit helps LOL

Tue Jan 23 2001 23:29:32 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.101
Mail, Linda



                 
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Last Updated: Thursday August 29, 2002 21:04:28
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