advertisement
 

  Back to Chat Transcripts Parenting Very Young Children with Diabetes

Parenting Very Young Children with Diabetes
With Barbara Anderson

Chat Room Administrator Tue May 22 2001 20:15:00 Eastern US
The 'Feelings Matter' chat room is now open.

Tue May 22 2001 20:39:23 Eastern US
Mike (type 1) from 216.126.162.141
hi

Tue May 22 2001 20:39:44 Eastern US
Mike (type 1) from 216.126.162.141
and Im feeling all alone!!

Tue May 22 2001 20:41:15 Eastern US
Mike (type 1) from 216.126.162.141
Im an adult type 1 diabetic and I'm going to the adult type one chat room

Tue May 22 2001 20:51:09 Eastern US
emcee (mom of jing, 2 1/2, dx'd at 2) from 152.163.204.197
hi

Tue May 22 2001 20:53:44 Eastern US
Mike (type 1) from 216.126.162.141
Hi emcee!

Tue May 22 2001 20:54:29 Eastern US
emcee (mom of jing, 2 1/2, dx'd at 2) from 152.163.204.197
how are you doing?

Tue May 22 2001 20:55:12 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Hi

Tue May 22 2001 20:55:21 Eastern US
Mike (type 1) from 216.126.162.141
ok

Tue May 22 2001 20:55:30 Eastern US
Mike (type 1) from 216.126.162.141
Hi Judith!

Tue May 22 2001 20:57:14 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
You are "fell off the scaffold" Mike, right? How are you getting along?
emcee, how are things going with jing? (boy or girl?)

Tue May 22 2001 20:57:18 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Good Evening Everyone, Tonight we focus on our youngest children with diabetes, those under 8 years

Tue May 22 2001 20:58:07 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Hi, Barbara. I no longer have a young child with d, but "been there, done that".

Tue May 22 2001 20:58:30 Eastern US
Mike (type 1) from 216.126.162.141
OK judith started walking a bit without cane this week

Tue May 22 2001 20:58:31 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Hi Barb, Thanks so much for joining us tonight!

Tue May 22 2001 20:58:55 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Hi, I've never done this before, and I'm not sure I'm really doing it now! How does this work?

Tue May 22 2001 20:59:23 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
Hi

Tue May 22 2001 20:59:30 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Hi, emcee, Judith and Mike --

Tue May 22 2001 20:59:35 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Judith, then you have the experience we need!

Tue May 22 2001 20:59:51 Eastern US
emcee (mom of jing, 2 1/2, dx'd at 2) from 152.163.204.197
hi judith, jing (she's) fine. how are yours doing?

Tue May 22 2001 21:00:22 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Hi Terri, a 3-year-old!how is your family doing?

Tue May 22 2001 21:00:25 Eastern US
emcee (mom of jing, 2 1/2, dx'd at 2) from 152.163.204.197
hi barbara!

Tue May 22 2001 21:01:28 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
To Everyone: How do, you all, as parents of young children with diabetes get the support you need?

Tue May 22 2001 21:01:33 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
hi barbara, we're doing pretty well, thanks.

Tue May 22 2001 21:02:13 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Mine are ok - driving me nuts, as teens are wont to do.

Tue May 22 2001 21:02:29 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Kim, looks like you're doing justfine. Just type in your questions and comments as you think of them and hot "Send/Get Messages"

Tue May 22 2001 21:02:50 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Kim, you're doing fine. Just type in your messages, hit "Send/Get Msgs" for updates

Tue May 22 2001 21:03:01 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
support? I am pretty much doing it all on my own. My husband works 20 hrs a day, 6 days a week. We don't have family close by.

Tue May 22 2001 21:03:06 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Hi Emcee, how is jing doing?

Tue May 22 2001 21:03:11 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
I've gotten support through CWD website, e-mails in response to monica's profile. made great friends with kids same age.

Tue May 22 2001 21:03:20 Eastern US
emcee (mom of jing, 2 1/2, dx'd at 2) from 152.163.204.197
are they on pumps????

Tue May 22 2001 21:03:36 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Kim, sounds like you really need this chat site!

Tue May 22 2001 21:04:23 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Yes, both are on pumps now.

Tue May 22 2001 21:04:24 Eastern US
emcee (mom of jing, 2 1/2, dx'd at 2) from 152.163.204.197
she's still giving us a hard time with her shots. it'd pretty traumatic for her.

Tue May 22 2001 21:04:28 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Yikes, Kim, you must be pretty exhausted.

Tue May 22 2001 21:04:55 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Kim: That is such a set up for burn-out for you....have you asked your child's doctor about other being connected to other parents or can you contact your local ADA or JDF for a support group for parents in your area?

Tue May 22 2001 21:05:03 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Oops. Shouldn't have been so quick to hold a pity-party! I get tremendous support (emotional) from the CWD website, and intensive reading. No physical support though.

Tue May 22 2001 21:06:03 Eastern US
emcee (mom of jing, 2 1/2, dx'd at 2) from 152.163.204.197
judith- when did they start. jing is 2 1/2, do you think she's too young?

Tue May 22 2001 21:06:14 Eastern US
Pam (IN) (John, 3-1/2, dx'd at 14 mos.) from 63.38.148.54
Hello everyone!

Tue May 22 2001 21:06:30 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Hi. This is my first time here.

Tue May 22 2001 21:06:31 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Wow, this is moving fast, excuse me please if I don't address you all by name. I do attend a JDRF support group that meets once per month, on the occasions that my husband is here to watch the children.

Tue May 22 2001 21:07:04 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Emcee, Dave started last June, Vanya in August. There are lots of things to consider re: pumping, esp for a very young child. My personal feeling is that it should be a last resort.

Tue May 22 2001 21:07:05 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
emcee, does jing use pen or syringe?

Tue May 22 2001 21:07:18 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Hey Pam!
Hi Kelly, welcome

Tue May 22 2001 21:07:38 Eastern US
Pam (IN) (John, 3-1/2, dx'd at 14 mos.) from 63.38.148.54
Welcome, Kelly.

Tue May 22 2001 21:07:50 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Emcee--Some young children have a temperament (behavioral style) that means diabetes and shots bring trauma (intense responding) several times a day, no one will last.....I'm sure you have tried distraction to make is smoother......does anything you do help?

Tue May 22 2001 21:07:56 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
BettyB, yes I am very exhausted. I joke that I function on adrenalin and the grace of God, but I gues it's not very funny.

Tue May 22 2001 21:08:01 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
I mean, last resort for a very young child. I think it's often a good choice for a teen, and usually a fine choice for an adult.

Tue May 22 2001 21:08:09 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Hi, Kelly and Pam - welcome - whatever questions you have on support, parenting, coping regarding young kids with diabetes are fair game tonight.

Tue May 22 2001 21:08:23 Eastern US
Pam (IN) (John, 3-1/2, dx'd at 14 mos.) from 63.38.148.54
Hi Judith! Thanks again for the pictures.

Tue May 22 2001 21:09:11 Eastern US
Judy from NY (Elissa..college sophmore..pumping 16 years) from 66.66.252.43
Pumping in a small child should be a decision made by the parents. You MUST have the support of your endo. Good education is the key. Do all the research you can in order to make an informed decision

Tue May 22 2001 21:09:17 Eastern US
emcee (mom of jing, 2 1/2, dx'd at 2) from 152.163.204.197
syringe, it's really hard when we take her out to eat coz i have to take her to the ladies room to give her the shot.

Tue May 22 2001 21:09:20 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Welcome, Pam
Hey, Betty. Pam and I met at camp several weeks ago. Very cool! John is a sweet child!

Tue May 22 2001 21:09:23 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Judith, I appreciate your experienced view on pumps in young children.

Tue May 22 2001 21:09:44 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
No doubt. Kim, even though you have found yourself some emotional support, the day to day grind is a lot of work for one - even when a child doesn't have diabetes.

Tue May 22 2001 21:09:56 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Hi Everyone, I see you're talking about pumping with young ones.

Tue May 22 2001 21:09:58 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
any suggestions for when monica starts nursery school for the first time in the fall?

Tue May 22 2001 21:10:40 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Judith, I agree with your comment on the pump for young children. I expect Alex to use a pump someday, but cannot fathom it now; much to the dismay of our D team.

Tue May 22 2001 21:10:46 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
emcee, has your educator or doctor suggested a pen? That might be less scary looking for both you and jing --

Tue May 22 2001 21:11:06 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Terri, I have the same concerns for Tyler. The pre-school isn't willing to test, so I am unsure of how to handle it all.

Tue May 22 2001 21:11:07 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Emcee, have you tried using an Inject-Ease, which hides the needle and injects it with a push of the button? That helps some kids with needle phobia.

Tue May 22 2001 21:11:23 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
I'd love to put Ben on a pump now if it would mean better control and more freedom. but our endo doesn't really support it for young kids.

Tue May 22 2001 21:11:24 Eastern US
emcee (mom of jing, 2 1/2, dx'd at 2) from 152.163.204.197
not really, when i prepare food for her, whe hides under the table coz she knows the shot is coming next

Tue May 22 2001 21:11:29 Eastern US
Judy from NY (Elissa..college sophmore..pumping 16 years) from 66.66.252.43
We started our daughter pumping at age 3 - MANY years ago...we have never regretted the decision

Tue May 22 2001 21:11:37 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Terri, the key thing is to simplify what you want the teachers/school to do: know Sx hypoglycemia, know how to contact you or your partner, and understand the importance of snacks and exercise

Tue May 22 2001 21:11:56 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
We use Inject-Ease and LOVE it!!

Tue May 22 2001 21:12:31 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Daycares/preschools - if they receive ANY federal monies, including surplus food, etc - must comply with the disabilities laws, and test etc if needed.

Tue May 22 2001 21:12:53 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
We use inject-ease also and Tyler almost does it all himself. Much less intimidating.

Tue May 22 2001 21:12:53 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
BettB, I find that what wears me out the most is the sleep deprivation. I have not slept for more than 4 hours straight in 3 years. I have an enormous fear of nighttime hypoglycemia!

Tue May 22 2001 21:13:04 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Liz,
Tyler may do better in a private preschool that will cooperate with the glucose monitoring.....a private school is not under federal law to engage in diabetes management that the child needs.....

Tue May 22 2001 21:13:14 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
emcee, I'll bet that effects her eating too if she's very upset from a struggle over the shot when you sit down to eat.

Tue May 22 2001 21:13:33 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Judith, they have said that they cannot turn anyone away, but they are not required to test. It is a liability. I am very concerned.

Tue May 22 2001 21:13:46 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Wow, kim! I've been getting up the last couple nights and I'm exhausted! I can't imagine 3 years!!

Tue May 22 2001 21:13:51 Eastern US
Mary (Kira's 3) from 65.28.165.119
Hello everyone

Tue May 22 2001 21:14:02 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
kim, that's a reasonable fear and such a common one... has Alex ever had a bad low in the night?

Tue May 22 2001 21:14:03 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
liz, also see if your state has additional laws about how schools must deal with children with special situations.

Tue May 22 2001 21:14:16 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Kim, do you check Alex's BG during the night? If he tends to run low at 1 am or 3 am contact your health care team for how to adjust his insulin regimen....

Tue May 22 2001 21:14:30 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Barbara, unfortunatley, there aren't any around here, at least that we can afford. My d team believes that Tyler really should be in pre-school.

Tue May 22 2001 21:14:46 Eastern US
emcee (mom of jing, 2 1/2, dx'd at 2) from 152.163.204.197
what's inject ease?

Tue May 22 2001 21:14:53 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
barbara, thanks for the advice. i meet with the teacher & nurse in august, and i'll try to keep it simple. i'm fortunate that the teacher i chose has a diabetic child in her class right now

Tue May 22 2001 21:14:59 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Hi Mary
Liz, see http://www.usdoj.gov/crt/ada/kinder1.htm

Tue May 22 2001 21:15:36 Eastern US
Mary (Kira's 3) from 65.28.165.119
Are we talking about KinderCare?

Tue May 22 2001 21:15:40 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Kim and Kelly, you are highlighting the importance of taking care of yourself and getting your basic needs met....who can help you? I find this is the most important questions when a very young child has dm...

Tue May 22 2001 21:15:42 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Hi Kelly, it started with an overactive bladder while pregnant, then breastfeeding throughout the night, followed by D.

Tue May 22 2001 21:15:48 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
emcee, it is made by a company called pumps it, at least here in Houston. You load the pre-loaded syringe in and then push a button which injects the needle. It is great.

Tue May 22 2001 21:16:31 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Yes, that reference is to the Kindercare case in CA several years ago

Tue May 22 2001 21:16:33 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
My Inject-Ease is made by B-D

Tue May 22 2001 21:16:41 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
For those with the need to communicate diabetes issues to school personnel, keep an eye on the site. We are planning on having a couple of sceduled chats specifically geared to school personnel -- so you can send people who need good info to the chats if you think it will be helpful.

Tue May 22 2001 21:16:43 Eastern US
Mary (Kira's 3) from 65.28.165.119
Liz, is it expensive?

Tue May 22 2001 21:17:04 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Kim, I can relate. I had a newborn right before Tyler was diagnosed. Now, he doesn't require insulin after dinner, which gets rid of getting up at night, but the baby keeps us up.

Tue May 22 2001 21:17:16 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Barbara, we are doing everything we can to stop the night-time testing. Ben's only diagnosed for 4 months, so we're still playing around with doses. My husband helps, but I'm home all day.

Tue May 22 2001 21:17:17 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Terri,
Please do not assume that because your child's teacher has a youngster with DM that means your teacher knows how your unique child will respond to low BG, etc. So sometimes its a help, and sometimes not.....Sounds like you have prepared her well though...

Tue May 22 2001 21:17:22 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Mary, $25

Tue May 22 2001 21:17:36 Eastern US
Mary (Kira's 3) from 65.28.165.119
If it helps anyone, the KinderCare Kira goes to is WONDERFUL.

Tue May 22 2001 21:17:37 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Inject-Ease
http://www.childrenwithdiabetes.com/d_06_310.htm

Tue May 22 2001 21:18:14 Eastern US
rea from 206.72.22.154
hi

Tue May 22 2001 21:18:22 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
BettyB and Barb, yes, Alex has had a very bad low at night, shortly after coming home from the hospital, bgl of 23, no seizure, but close. I do test him during the night, sometimes several times. Our D team wants me to be much more aggressive with his insulin doses, but he almost always drops 100 points between 2am and 7am.

Tue May 22 2001 21:18:39 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Hi Rea. How are you doing?

Tue May 22 2001 21:18:40 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
We don't have any family nearby and no one we really trust to leave Ben with yet.

Tue May 22 2001 21:18:53 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
i'll keep that in mind, barbara.

Tue May 22 2001 21:19:08 Eastern US
Judy from NY (Elissa..college sophmore..pumping 16 years) from 66.66.252.43
kim - has alex been placed on the continuous glucose sensor yet?

Tue May 22 2001 21:19:17 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Kim, do they find the 100 point drop acceptable? I'd be asking for a change of insulin types or something.

Tue May 22 2001 21:19:23 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
This is our major problem, we have no one that we can leave Tyler with. Family is very far, and I'm not sure I would even trust them. My hubby and I really need to get away. We haven't been out in a year.

Tue May 22 2001 21:19:29 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Kim, is that a PED endo? Most of them aim for 100-200 for little ones. Young brains are more sensitive to lows.

Tue May 22 2001 21:19:31 Eastern US
rea from 206.72.22.154
no too well ... a junior boy at our school committed suicide last nite.

Tue May 22 2001 21:19:46 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Kim, this is a clinical question and not a support one exactly, but is Alex taking his evening insulin before supper or at bedtime?

Tue May 22 2001 21:20:02 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Kelly, have you contacted the ADA or JDF in your area. I've lived all around the country and have found that there are "local" groups almost everywhere.....another suggestion is to ask your child's doctor or health care team for other families who might have some ideas on sitters, relief care, etc.

Tue May 22 2001 21:20:07 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Judy, what is the continuous glucose sensor. I would love to put Tyler on it to get better control

Tue May 22 2001 21:20:07 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Kelly, if your endo is willing, try finding some teen girls with d in the practice who might be willing to babysit.

Tue May 22 2001 21:20:38 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Ben has had many night-time lows too, but they always lead to a change in schedule. We just went to a bed-time shot and it's seeming to help.

Tue May 22 2001 21:20:54 Eastern US
Judy from NY (Elissa..college sophmore..pumping 16 years) from 66.66.252.43
Liz - the person is on it for 3 days and then the readings are downloaded at the endo's office....let me see if I can find the site

Tue May 22 2001 21:20:54 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Oh no, Rea! Let's move to side room 1.... Ok? Meet you there.

Tue May 22 2001 21:20:58 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Judith, yes it is a ped endo, a team that prides itself on "having the lowest HbA1c's in the country", they felt that Alex's 7.6 was on the high end of their scale.

Tue May 22 2001 21:21:06 Eastern US
rea from 206.72.22.154
k

Tue May 22 2001 21:21:21 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
I have met some other mothers through JDF. I should ask for some babysitter referrals.

Tue May 22 2001 21:21:31 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
Liz, a friend of mine called the local high school nurse and asked her if there were any teens in her school with diabetes who would be interested in babysitting, and she had success that way.

Tue May 22 2001 21:21:50 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Kim, our pedi endos want children between 7-9 and are thrilled with Tyler's 8.2. I think they sound like they might be a little too aggressive.

Tue May 22 2001 21:22:10 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Terri, thanks. That sounds like a great idea.

Tue May 22 2001 21:22:18 Eastern US
melissa (mom to jacob 8 dx'd 3/01) from 209.51.192.9
Kelly do you figure out the doses or does your endo?

Tue May 22 2001 21:22:20 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Kim, DON'T let your docs' egos affect what you think is best for your child!!

Tue May 22 2001 21:22:24 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Kim, our endo has said 7 is great. Ben hasn't had an A1c yet since he's newly diagnosed.

Tue May 22 2001 21:22:34 Eastern US
Mary (Kira's 3) from 65.28.165.119
Wow Kim, our endo says 1 point higher for kids Kira's age (so 8 or 9)

Tue May 22 2001 21:22:37 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
I'll bbl

Tue May 22 2001 21:22:57 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs ) from 205.188.195.48
Kelly - another option might be offering to watch one of those moms' child with yours & then she could watch yours & hers another time...good also for the kids to spend some time together...

Tue May 22 2001 21:23:04 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
melissa, sometimes we do it ourselves, but usually I talk to the nurse first.

Tue May 22 2001 21:23:28 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Liz, the continuous glucose sensor has not yet been approved by the FDA for children. There are currently 2 FDA approved versions for adults--the Glucowatch and the Mini-Med Continuous Glucose Monitoring System (CGMS). The good news is that the NIH will begin a clinical trial of these devices in pediatric patients this year...so soon we will know more about how and if these new devices will help kids optimize their control

Tue May 22 2001 21:24:12 Eastern US
Mary (Kira's 3) from 65.28.165.119
Has anyone tried Lantus? I'm not very pleased with NPH.

Tue May 22 2001 21:24:28 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Kim, how much insulin is Alex on at night and what kind of snack?

Tue May 22 2001 21:24:34 Eastern US
Judy from NY (Elissa..college sophmore..pumping 16 years) from 66.66.252.43
here is the site about the sensor:
http://www.minimed.com/patientfam/pf_products_cgms_ov_completepic.shtml

Tue May 22 2001 21:24:42 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Hi, Renee, great idea.

Tue May 22 2001 21:24:43 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Mary, I agree about NPH. Way too unpredictable.

Tue May 22 2001 21:24:58 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
As you can see, I don't get support from our D group either. BettyB, Alex gets his shot at supper, I suggested later to our D team, they said it wouldn't make a difference. He presentlt gets 8 units of NPH in the morning and 1/4 unit of H with !/4 unit Nph at supper if over 100, if under 100, hen just 1/2 unit NPH

Tue May 22 2001 21:25:15 Eastern US
Judy from NY (Elissa..college sophmore..pumping 16 years) from 66.66.252.43
Barbara - but I know of many kids who have used the sensor

Tue May 22 2001 21:25:28 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Speaking of snacks, does anyone else have lots of trouble getting their kids to eat when they need to? Ben just turned 2 last month and eating is fast becoming one HUGE issue.

Tue May 22 2001 21:25:37 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Kim, please listen to these other Moms! Sounds like your family is being tyrannized by numbers...and this is not the best approach for you or for your child....

Tue May 22 2001 21:25:52 Eastern US
Pam (IN) (John, 3-1/2, dx'd at 14 mos.) from 63.38.148.54
Kim, I believe that a1c range is totally unrealistic for such a little one. I would be more concerned about the lows .

Tue May 22 2001 21:26:17 Eastern US
melissa (mom to jacob 8 dx'd 3/01) from 209.51.192.9
Jacob is on nph .. what is unpredictable about it?

Tue May 22 2001 21:26:50 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Kelly, I had big problems with tyler up until the last few months. I felt like I was giving him junk to get his carbs in. Now things seem to have evened out and he eats pretty healthy. Worst case scenario is if it's really bad, I give him something I wouldn't normally.

Tue May 22 2001 21:27:02 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
kim, does he go low during the day? 8 units seems large to me.

Tue May 22 2001 21:27:28 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Kim, in our practice we have had great success in cutting trouble with overnight lows by moving NPH from before supper until about 10pm. This can be given to the sleeping child if this is well past his bedtime. Not sure why your team feels it wouldn't be helpful. It is based on the peak action of NPH and taking the shot later moves the peak away from that 2-3am high risk time for lows. Perhaps you could talk to them about an experiment to see if it helps.

Tue May 22 2001 21:27:28 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Liz, that's exactly what's happening. I'm giving him junk all the time to keep him up. I hate it.

Tue May 22 2001 21:27:28 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs ) from 205.188.195.48
thanks Betty....could also expand upon that idea later & invite the other mom and her hubby and kids over for a family evening....although it's not truly "away", simply being in adult company for an evening can help dispel a lot of the tension when you're all dealing with the same issues...especially good for the dads who rarely "vent" about just how frustrating it is NOT to be able to "fix it"!!

Tue May 22 2001 21:27:52 Eastern US
Judy from NY (Elissa..college sophmore..pumping 16 years) from 66.66.252.43
here is a news article about kids and pumping:
http://www.4utah.tv/news/health/story.asp?content_id=422792

Tue May 22 2001 21:27:55 Eastern US
Mary (Kira's 3) from 65.28.165.119
Kelly. YES! We let Kira eat what she wants (not whenever she wants) but the big one for us is dinner. If she's not hungery, she still has to have something so I can give her H. Sometimes she get oreos...

Tue May 22 2001 21:28:00 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Judy, yes, on an experimental basis we have used the sensor at Joslin with about 50 kids, but not in a closely evaluated study. We have done this to gain experience as a health care team, and to learn how to help families with the information, but there is not evidence yet to base any decisions on...We need the careful research which will be begun this year, funded by NIH....Importantly the NIH is asking that the studies include continuous glucose sensors with kids without dm

Tue May 22 2001 21:28:00 Eastern US
Pam (IN) (John, 3-1/2, dx'd at 14 mos.) from 63.38.148.54
We recently switched from nph to ultralente. Find we have fewer large swings from highs to lows. Downside for us is now three shots a day from two.

Tue May 22 2001 21:28:19 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
We just added a third shot at bed time and it's really seemed to help Ben's night time numbers and especially his morning number.

Tue May 22 2001 21:28:55 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Renee, you hit it right on the head for me. The dad issue. My husband cannot talk about Tyler's diabetes at all. We are in a support group study right now and he won't talk at all. He gets too emotional. It is getting tough for us as I am handling it all.

Tue May 22 2001 21:29:06 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Alex's bedtime snack is 15-20g of carb,which includes ice-cream and whole milk. When he has had a mid-day low, followed by a supper low, I have on occasion overfed him with a bedtime snack of 30g, resulting in a high! I've done this twice now, but I am so afraid of lows!

Tue May 22 2001 21:29:36 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Pam, that's funny. I just talked to our endo today about switching to ultralente to end the night-time lows. She said it can be very unpredictable!

Tue May 22 2001 21:29:42 Eastern US
Steve (Allie - 15 - dx 6/97 pump 12/99) from 24.216.218.10
Evening all - allie's a bit older than the subject - but always glad to lend perspective

Tue May 22 2001 21:30:01 Eastern US
Mary (Kira's 3) from 65.28.165.119
Kim, we dealt with a lot of lows when newly diagnosed. I know how you feel.

Tue May 22 2001 21:30:15 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs ) from 205.188.195.48
Kelly - does Ben fight you about the shots? Because if not, giving the extra shot & getting much better control & a more LIVEABLE schedule for you & your family is what matters...

Tue May 22 2001 21:30:22 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
UL can last up to 36 hrs in some cases, esp in young kids, leading to overlapping doses and unexpected lows. Will be interesting to see if Lantus is better

Tue May 22 2001 21:30:28 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
as far as night lows, on the rare occasions monica has one, i can't get her to eat a snack. i can get the juice or glucose tabs in her, but after that she fights me. then her BG drops again before the night is out. any suggestions about how to get some protien in her?

Tue May 22 2001 21:30:34 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Kim, does he have a lot of day time lows too?

Tue May 22 2001 21:30:44 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Mary, it sounds like you're giving a set dose of Humalog. Is that right? Has your team suggested learning how to just give less when Kira isn't hungry?

Tue May 22 2001 21:30:44 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
The studies I've seen compared Lantus to NPH - which is apples and oranges.

Tue May 22 2001 21:31:07 Eastern US
Kristy (Drew 8yrs dx @3) from 199.174.147.102
Hello

Tue May 22 2001 21:31:25 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Renee, no Ben doesn't fight us. That's why I agreed. It's totally worth it to get better control.

Tue May 22 2001 21:31:44 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old) from 152.163.194.207
hi

Tue May 22 2001 21:31:45 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Liz: "The Dad Issue" is a universal dilemma for families....does he go to medical appointments? Has he had any education about dm from your team? Has he met any other dads with young sons with dm....In my experience, some men grieve longer and more silently (and at their wife's expense) than other parents do..... you may need to recuit the help of your son's physician to pull your husband on to the family team....

Tue May 22 2001 21:32:02 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Hi Kristy - welcome to the chat - topic is coping, support, parenting issues in young kids with D. Jump right in!

Tue May 22 2001 21:32:04 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
terri, no suggestions. We just use juice in the night. Sometimes every couple hours!

Tue May 22 2001 21:32:16 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs ) from 205.188.195.48
probably THE single most common "vent" I hear from other moms Liz- took me years to realize where it stems from...the old Mars/Venus thing...males tend to want to "hunt down" a solution & that doesn't work with the unpredictability of diabetes...Steve's a rare exception! LOL.....

Tue May 22 2001 21:32:22 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Kim, my d team is very supporting of keeping Tyler off a bedtime shot as long as his A1c is in range. Tyler only gets 4 units of insulin in the morning right now. Sometimes he is higher at bedtime, but straightens out by am. Actually wakes up 80-100 without night time shot. The summer means longer days and more action at night. If Tyler is high at dinner, I encourage a lot of running around and by bedtime he is in a normal range, sometimes even a little bit low. I think that your d-team is putting Alex in a dangerous situation.

Tue May 22 2001 21:32:32 Eastern US
Mary from Ma. (Chris11,dx'd @4 and Angela11, dx'd @ 9) from 24.91.154.23
hello:-)

Tue May 22 2001 21:32:36 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Hey, Ellen, good to see you.

Tue May 22 2001 21:33:07 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Judith, you are right Lantus and NPH are too different to compare!

Tue May 22 2001 21:33:22 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Hello

Tue May 22 2001 21:33:23 Eastern US
Judy from NY (Elissa..college sophmore..pumping 16 years) from 66.66.252.43
Kelly - if you have lows, do you add some protein and a more complex carb after the juice?

Tue May 22 2001 21:33:34 Eastern US
Steve (Allie - 15 - dx 6/97 pump 12/99) from 24.216.218.10
Thanks for the compliment, renee - but I would love to hunt down a solution............if only there was one there

Tue May 22 2001 21:33:43 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old) from 152.163.194.207
I just want to tell the parents of the little ones, my son is growing beautifully and is very healthy....know that your child will do well too.

Tue May 22 2001 21:33:45 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Is Lantus new? I haven't heard of it.

Tue May 22 2001 21:33:46 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
kelly, that's what ends up happening. juice at least twice. lucky it's not too often.

Tue May 22 2001 21:33:48 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Ray doesn't want to hunt down a solution, he just is in total denial about it all, especially since Tyler has been honeymooning so strongly. He also has some issues with the tests run on Tyler at diagnosis and some things that aren't typically seen in a diabetic child. I have moved beyond the denial, at least most of the time, but he hasn't yet.

Tue May 22 2001 21:33:52 Eastern US
Kristy (Drew 8yrs dx @3) from 199.174.147.102
Still think of Drew as a baby as far as his diabetes is concerned. Guess that comes with being dx so young. Moms with really small ones, it does get better..

Tue May 22 2001 21:34:13 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Betty, moving the shot makes sense to me. How should it affect the dosage? And regarding the 8 units of NPH, it's supposed to be 8 and 1/2, I've chosen to cut it back. Alex stays well within range at this dose during the day, sometimes too low (60-70) before lunch, mid-day, and supper. Yikes, I'm re-reading my posts, I really do need help, don't I?!

Tue May 22 2001 21:34:26 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Judy, no. It's all I can do to get juice in him. He just about refuses to wake up.

Tue May 22 2001 21:34:34 Eastern US
Mary (Kira's 3) from 65.28.165.119
BettyB, no we adjust for H to what she eats. If she eats 1 carb unit, I can't dose up 3/4 unit of insulin (which is the ratio we use now). So I have to get her to 1 1/2 carb units to do 1 unit of insulin.

Tue May 22 2001 21:34:37 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Liz andKim, you both are highlighting the importance of individual differences in young children and insulin regimen.....what works for one 3 year old will not work for another, and the seasons do make a difference!

Tue May 22 2001 21:35:01 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Liz,it's possible that Tyler is still honeymoning. In kids who are extremely insulin deficient, running aound actually will make the blood sugar go up. Insulin regimens need to be very individualized, based on the child. The "best" regimen can very tremendously from child to child.

Tue May 22 2001 21:35:07 Eastern US
Steve (Allie - 15 - dx 6/97 pump 12/99) from 24.216.218.10
Kelly and the others: I read back a bit and you were talking about feeling trapped at home. A suggestion (as the father of a 15-year old)...see if you can find a responsible teen with diabetes (and if you are anywhere near Westborough, MA, Allie's available) through your endo, JDRF or ADA - many have 'babysitter referral' programs, in fact, there are postings of babysitters available in our endo's office

Tue May 22 2001 21:35:08 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
(And then it gets worse, Kristy! :-) LOL)

Tue May 22 2001 21:35:14 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
We use WAY less insulin in the summers

Tue May 22 2001 21:35:17 Eastern US
Joanne (Dakota, 4, dx'd at 3 1/2) from 205.188.192.56
Hi! Liz - we are under the same situation with our son. He doesn't always need an evening shot since he is so active and his numbers have been so low. We also encourage running around after dinner to burn up the carbs.

Tue May 22 2001 21:35:58 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs ) from 205.188.195.48
Barbara - I tell parents to think of diabetes like snowflakes: no 2 kids are alike!!!...also important to remember so that when docs make the parents feel like they've "failed" if things aren't working, that their child just might not "fit" the doc's prescribed regimen...LOTs of trial & error & guesswork we found...

Tue May 22 2001 21:36:06 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Mary, do you know about ReliOn syringes, which are marked in half units in the 30u size?

Tue May 22 2001 21:36:09 Eastern US
Judy from NY (Elissa..college sophmore..pumping 16 years) from 66.66.252.43
Kelly - what about before bed???

Tue May 22 2001 21:36:14 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Madeline likes to jump on the trampoline after dinner.

Tue May 22 2001 21:36:22 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
ellen, that's so nice, thanks for the support

Tue May 22 2001 21:36:29 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Kelly, lantus is a super long-acting insulin that is not supposed to peak. Think of it as the basal insulin that a pump continuously pumps in or that the pancreas ususally pumps into the body

Tue May 22 2001 21:36:43 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
For those of you who get to skip the evening shot sometimes....what kind of morning dose do your kids get??

Tue May 22 2001 21:36:53 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Mary, there are 1/2 unit pens -- the BD mini - mightthat help matters some?

Tue May 22 2001 21:37:03 Eastern US
Mary from Ma. (Chris11,dx'd @4 and Angela11, dx'd @ 9) from 24.91.154.23
Renee..that's sotrue..what works for Angela doesn't always work for Chris...that was atoughy to learn when Angelawas dx'd

Tue May 22 2001 21:37:21 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Renee, that is a good point. Our meal and snack schedule is different from most, because Madeline doesn't like to eat until she's been up a while.

Tue May 22 2001 21:37:36 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Renee, what a great image, snowflakes, I have said kids are as individual and unique as their fingerprints (but snowflakes sounds more calming...) Anyway none of us can emphasize Individual Differences enought!!

Tue May 22 2001 21:37:53 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Judy, oh he always drinks milk before bed...sometimes ice cream.

Tue May 22 2001 21:38:16 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Kelly, Tyler gets 3N, 1H in the am. We have problems with lunch lows, but have found that NPH seems to last really long for him. Plus we swim almost every evening, which keeps him low during the night.

Tue May 22 2001 21:38:19 Eastern US
Mary (Kira's 3) from 65.28.165.119
Judith, the only ones we can find that have 1/2 units are the ones that you have to inject at a 90 degree angle. Kira doesn't have enough fat for that.

Tue May 22 2001 21:38:25 Eastern US
Joanne (Dakota, 4, dx'd at 3 1/2) from 205.188.192.56
Our morning shot is 3 units of NPH and 1 unit of Humalog.

Tue May 22 2001 21:38:35 Eastern US
Steve (Allie - 15 - dx 6/97 pump 12/99) from 24.216.218.10
judith - i can feel it in my bones.....here comes the "99 factors" - I can hardly wait

Tue May 22 2001 21:38:53 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Liz, wow that's so cool! One shot per day!

Tue May 22 2001 21:38:57 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs ) from 205.188.195.48
I was flabbergasted to hear a mom of a toddler tell me her doc said he "doubted" one unit dropped her child's bgs 100 pts when she'd seen that effect repeatedly...

Tue May 22 2001 21:39:31 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
We do 3H/13N in the morning and 1 or 2 H/2N in the evening.

Tue May 22 2001 21:39:43 Eastern US
Mary (Kira's 3) from 65.28.165.119
You are lucky Liz. We find that NPH poops out around 9-10 hours. Not long enough to even get her through the night.

Tue May 22 2001 21:39:54 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Kelly, it is awesome, but just came with the time change. I don't look forward to putting it back, as dinner can be a little more relaxed withoout it. No force feeding.

Tue May 22 2001 21:39:55 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Mary, that's why I suggested the BD pen mini -- they can be used with the short needle. Look for the day very soon when an even SHORTER pen needle (now available in Canada) comes on the market here in the US.

Tue May 22 2001 21:39:58 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
??? Mary???? Actually, insulin should be given at a 30-45 degree angle, rather than straight in. The latter means it often ends up in muscle. It should be injected into the fatty layer just under the skin.

Tue May 22 2001 21:40:15 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
1 unit of H drops Madeline 100 pts consistently (for now!). And it will cover 15 grams of carbs.

Tue May 22 2001 21:40:31 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Lantus has JUST been released in the US, within the last week or two most places. It's clear, cannot be mixed with any other insulin.

Tue May 22 2001 21:40:57 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Joanne, it sounds like our little guys are too much alike, dosage and all.

Tue May 22 2001 21:41:00 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs ) from 205.188.195.48
Thwe insulin-pumpers e-mail group has a popular phrase: YMMV - your mileage may vary....and that's fine as long as you find what works for you...

Tue May 22 2001 21:41:06 Eastern US
melissa (mom to jacob 8 dx'd 3/01) from 209.51.192.9
Betty, what is insulin deficient. Jacob goes up alot after baseball games not down. He can go to the 200's.

Tue May 22 2001 21:41:07 Eastern US
Pam (IN) (John, 3-1/2, dx'd at 14 mos.) from 63.38.148.54
We just switched syringes to Precision sure dose which measures in 1/2 units. LOVE THEM. Think this will help since all John's shots involve 1/2 units.

Tue May 22 2001 21:41:08 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Mona and Liz: I suggest we move away from insulin doses and numbers to the major issue of you all as caring parents working very hard to help your children have a regular childhood and with good health too!

Tue May 22 2001 21:41:14 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
I have read about that, Judith.

Tue May 22 2001 21:41:16 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
morning NPH wouldn't make it through the night with us either.

Tue May 22 2001 21:41:44 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Yes, it certainly is individual..1/8 unit of H drops Alex 50 points!

Tue May 22 2001 21:41:58 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
I try to let Madeline do whatever she wants. I don't want to limit her at all.

Tue May 22 2001 21:42:00 Eastern US
Mary (Kira's 3) from 65.28.165.119
BettyB, tell me about the pens. We got some from Lilly, but took them back because they didn't dose in 1/2 units.

Tue May 22 2001 21:42:16 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Judith, with the inject ease, we have used the space bar which means it doesn't inject too deep. It has worked really well and pretty much perfect injection technique for me.

Tue May 22 2001 21:42:16 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Kim, how do you measure 1/8 unit? I can remember measuring 1/4 units when my son was little.

Tue May 22 2001 21:42:28 Eastern US
Mary (Kira's 3) from 65.28.165.119
Kim, how do you do 1/8 unit??????????

Tue May 22 2001 21:42:30 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
My mom was shocked that I am going to let her play soccer.

Tue May 22 2001 21:42:39 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
How much the insulin affects is not only individual but is related to the weight of the person. One unit makes MUCH more of a difference in a 20 lb person than in one weighing 200 lbs

Tue May 22 2001 21:42:50 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Have any of your kids gotten old enough to tell you when they feel low, or are you constantly hovering over them, watching their every move and expression?

Tue May 22 2001 21:43:02 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Must be using diluted insulin? Did that when Dave was an infant

Tue May 22 2001 21:43:04 Eastern US
Judy from NY (Elissa..college sophmore..pumping 16 years) from 66.66.252.43
Having a daughter who is now 20, diagnosed at 15 months.....I (hope) I never made her feel there wasn't anything she couldn't do. she's one of the happiest, most well-adjusted people I know

Tue May 22 2001 21:43:26 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Good point, Barb. We can really get rolling on the insulin thing!

Tue May 22 2001 21:43:34 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Hi Ellen, it's diluted insulin in syringes with 1/2 unit markings.

Tue May 22 2001 21:43:48 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Madeline tells me when she feels low. It's such a relief to know that she is realizing what it means and what she should do. She will go and get some fruit off the table and say, "Mommy, I have to eat NOW!"

Tue May 22 2001 21:44:17 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Mona, Your Mom may be "out of date". Remember in the days before glucose monitoring children with diabetes were discouraged from exercising...Could your Mom go with you to a diabetes medical appointment and learn more about the vital role of exercise for the health of young children, with or without diabetes

Tue May 22 2001 21:44:18 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Kelly, bet you've already picked up on signs Ben shows when he's low: looking pale, a different kind of cry, etc

Tue May 22 2001 21:44:20 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
kelly, monica has told me only twice when she was low. but if i ask, she can usually tell now. it's coming soon, i can tell!

Tue May 22 2001 21:44:22 Eastern US
Mary from Ma. (Chris11,dx'd @4 and Angela11, dx'd @ 9) from 24.91.154.23
Mona...she needs to be a kid...

Betty...Angela's swimming..swim team and lessons on two seperate days...we're having trouble with lows...

Tue May 22 2001 21:44:25 Eastern US
Galina (Mom of Edward, 2, dx May, 2000) from 208.210.222.68
Judith, we were able to find short syringes with 1/2 unit increment. It's MediSense Precision Sure-Dose.

Tue May 22 2001 21:44:32 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Kelly, I think we have finally gotten TYler to connect being really hungry with being low. I do hover, though, and still can't send him anywhere without a heavy heart.

Tue May 22 2001 21:44:33 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Mona, when did she start? Ben just turned 2 last month so I think I have a while to go!

Tue May 22 2001 21:44:49 Eastern US
Karen (Matthew, 6, dx'd at 3) from 63.65.190.242
Hi everyone! Hi Judith, nice to "see" you again!

Tue May 22 2001 21:45:15 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Hey Karen!

Tue May 22 2001 21:45:31 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
She is taking dance and gymnastics right now. I want her to do EVERYTHING she wants to do. My mom is just nutz sometimes!

Tue May 22 2001 21:45:41 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Those are my first signs....crying for no apparant reason and asking for juice or cookies.

Tue May 22 2001 21:45:46 Eastern US
Galina (Mom of Edward, 2, dx May, 2000) from 208.210.222.68
Does anybody in this chat have a small child (2-3 years old or younger) on pump?

Tue May 22 2001 21:45:55 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Thanks, Galina. Imagine they are the same as the ReliOns sold at WalMart.

Tue May 22 2001 21:46:11 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs ) from 205.188.195.48
Kelly - we have a local Parents support group & one of the suggestions made for young kids is to try to give them key signals for when they're going low..things they may experience regularly but not necessarily associate verbally with a low...such as their lips or eyes feeling "funny"....

Tue May 22 2001 21:46:31 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
I don't have the guts to put Tyler in anything yet where I can't be there. I even agreed to teach his bible school this summer. I am just too afraid.

Tue May 22 2001 21:46:32 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
I know some people with really little ones on the pump. They are very happy with it.

Tue May 22 2001 21:47:06 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Dave has done/is doing everything: marching band, tennis, baseball, basketball, track. Thursday he will compete in the state regionals in the high hurdles - pretty heady stuff for a HS freshman.

Tue May 22 2001 21:47:15 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
I will stay during soccer practice and games. I did for Sam and he's not even D!

Tue May 22 2001 21:47:16 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Galina, we are looking into the pump now, but haven't quite gotten there yet.

Tue May 22 2001 21:47:21 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Can anyone relate to what I am beginning to really worry about with myself; this "hypogylcemia fear". Our D team tells me that if Alex siezes to treat it, and get on with it. I am paralyzed by the notion, although I think I'll probably function, it's my emotional stability afterwards that I'm worried about! I've seen my baby go through enough!

Tue May 22 2001 21:47:33 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Kelly and Liz, kids are so different in when and how reliably they can identify the Sx of low BG. Remember that this snowflake idea fits with symptom recognition also! Some children and adults do not get clear internal feedback about blood sugar levels, so their recognition is not 100%.....this is one of the most important roles for the adults(parents, teachers, babysitters) in the life of a young child with diabetes.

Tue May 22 2001 21:47:40 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Here's a quote from an article in a Utah paper that Steve sent me today:
But instead of injections, Sierra's parents found out about a relatively new insulin pump just for kids and preschoolers. Pediatric endocrinologist Dr. Mike Swinyard explains the device "is designed more for preschoolers because of the size, because of the precision of giving insulin, becuase of the ability to lock out some of the functions that the pump isn't inadvertently activated when a child is playing."

http://www.4utah.tv/news/health/story.asp?content_id=422792

If anyone here wants lots of information about children on the pump, you can write to me at CamelsRFun@aol.com

Tue May 22 2001 21:47:50 Eastern US
Joanne (Dakota, 4, dx'd at 3 1/2) from 205.188.192.56
Is anyone having problem with the emotional end of Diabetes? - specifically being the constant target of your childs anger.

Tue May 22 2001 21:47:57 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
As far as being able to tell when low, whenever we test I have monica guess. so does her brother & i, and monica is right almost everytime! soon she'll be able to tell me when low before i test.

Tue May 22 2001 21:48:01 Eastern US
Galina (Mom of Edward, 2, dx May, 2000) from 208.210.222.68
Don't know (about syringes), never tried WalMart version. But I like MediSense- they are VERY precise. A lot of our problems are gone now.

Tue May 22 2001 21:48:06 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Judith, that is so encouraging. I look forward to the day when Tyler will be able to manage himself a little bit and know signals, etc. so I can breathe a little.

Tue May 22 2001 21:48:16 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
When Dave was very young, not only was his cry different with a low - higher in pitch, more irritating - but he felt "softer" when I held him, due to decreased muscle tone.

Tue May 22 2001 21:48:16 Eastern US
Mary from Ma. (Chris11,dx'd @4 and Angela11, dx'd @ 9) from 24.91.154.23
Kelly...when Chrs was first dx'd we used to play a little game when he tested..."try to guess the number on the meter"...our local day camp adopted tehidea for the littler kids to help them learn how to judge when they're low

Tue May 22 2001 21:48:17 Eastern US
Pam (IN) (John, 3-1/2, dx'd at 14 mos.) from 63.38.148.54
John's cues for lows are extreme hunger and also a cry that is "different" in sound and for no apparent reason. Hard to explain the sound of his cry to someone else. Makes it difficult to leave him.

Tue May 22 2001 21:48:17 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
It was very traumatic for me to leave her in her little Sunday School class at church, for the first time. But then give you beepers that vibrate if something goes wrong. I have had a hard time letting her be away from me.

Tue May 22 2001 21:48:42 Eastern US
SlideRule(CA) (Type 1; dx 1955) from 63.93.102.66
G'day everyone, and, "good morning".
Just wanted to let everyone here know, that, after 'celebrating' my 45th year of injecting insulin, I can still say: "complication free". And, with that, insulin and diabetes, is just a 'part' of my life, and, 'normal' for me.

Hoping everyone else is also, cup half full attitude.

Tue May 22 2001 21:48:52 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Liz...you have lots of company here...how many, many Moms have volunteered in schools, gone on school bus trips, Bible School etc. to protect their children with dm....Hopefully next summer you can "train" a member of your congregation to help with dm management...?

Tue May 22 2001 21:49:26 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Liz, he went off to nursery school at age 3 - 2 mornings a week that year. He did fine, had a great time.

Tue May 22 2001 21:49:37 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Mary, rest assured that you can figure it out. Kids and adults with diabetes do it all the time - but it takes some trial and error. it's like playing the violin - you have to be willing to bed for a while before you find the right notes. I don't know any way to do it except for some extra records and blood sugars for a while - so you and she can look for the patterns and relationships.

Tue May 22 2001 21:50:07 Eastern US
Mary from Ma. (Chris11,dx'd @4 and Angela11, dx'd @ 9) from 24.91.154.23
Barbara..My husband or I go on any field trips that are far away...if it's local, we let the teachers handle it..

Tue May 22 2001 21:50:15 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
oops! There goes my famous/typing/spelling again!! LOL - you have to be willing to be BAD!! not bed

Tue May 22 2001 21:50:20 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Hi Sliderule: You are giving an important view from the patient's perspective. I hope the Moms who are burdened here can hear the hope in your words!

Tue May 22 2001 21:50:38 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Thanks SlideRule, I am always encouraged by numbers like yours!

Tue May 22 2001 21:50:41 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Kim, I can relate somewhat. I simply cannot imagine Ben having a seizure. But I also can't worry about it every second of every day and so I tell myself that I'd be able to handle it. I seriously think that your endo is trying to keep your son too low, though. That's my personal opinion!

Tue May 22 2001 21:50:45 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Mary, great solution! and very realistic...

Tue May 22 2001 21:51:10 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Hi SlideRule. Always great to hear success stories.

Tue May 22 2001 21:51:38 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
THanks for sharing, SlideRule

Tue May 22 2001 21:51:41 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Madeline has never had a seizure, the thought terrifies me.

Tue May 22 2001 21:51:55 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Joanne, how does Dakota express her anger about the diabetes? And how do you respond?

Tue May 22 2001 21:51:55 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
I do encourage you to talk about the numbers withh your child. That will help him/her associate certain feelings with lows.

Tue May 22 2001 21:52:06 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
I have used the emergency shot though, when she's passed out.

Tue May 22 2001 21:52:11 Eastern US
Judy from NY (Elissa..college sophmore..pumping 16 years) from 66.66.252.43
do you all have Glucagon in the house "just in case?"

Tue May 22 2001 21:52:29 Eastern US
Karen (Matthew, 6, dx'd at 3) from 63.65.190.242
Kim, my nurse told me that even if Matthew were to go into a seizure at school, he would be okay. Try not to worry yourself too much about it. I know it is also easier said than done.

Tue May 22 2001 21:52:46 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
You know Kelly, I think you're right, and maybe my fear will lessen if we find a D team that works better for our family. We're looking into it now, and have some wonderful recommendations, maybe it's time to start breathing.

Tue May 22 2001 21:52:47 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Yes, we have Glucagon.

Tue May 22 2001 21:52:52 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
I recently went back to my health club, being less nervous since I was right across the way. Boy was I surprised when one of the babysitting staff told me she too had diabetes. It made me feel so much better. No problems so far, but once again, I'm right there.

Tue May 22 2001 21:53:06 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Liz, further encouragement? Diabetes has NOT stunted Dave's growth: he's 6'2", 180 lbs, size 14 feet...and not finished growing yet!

Tue May 22 2001 21:53:06 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
We carry it with us everywhere.

Tue May 22 2001 21:53:09 Eastern US
RobynS (Mom of Jacob - 3 1/2, dx'd 12/00) from 24.4.255.46
Hi room! Jacob has never had any seizures either...I do not look forward to the day! I hope I can do what I need to when it does happen!

Tue May 22 2001 21:53:15 Eastern US
Karen (Matthew, 6, dx'd at 3) from 63.65.190.242
Good advice Judith. We do that with Matthew quite a bit and it's amazing how close he can get to the actual number on the meter!

Tue May 22 2001 21:53:34 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Judy, I have 4 glucagon, all in different places just in case.

Tue May 22 2001 21:53:35 Eastern US
Joanne (Dakota, 4, dx'd at 3 1/2) from 205.188.192.56
Dakota lashes out at me by telling me he doesn't like me, but of course, I am the one who manages his care and gives all the shots. I respond by telling him that makes me sad.

Tue May 22 2001 21:53:43 Eastern US
RobynS (Mom of Jacob - 3 1/2, dx'd 12/00) from 24.4.255.46
Glucagon is always with us along with the "rest" of the essentials!

Tue May 22 2001 21:53:48 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Kim, I think you're on the right track. YOu need to fight diabetes into your lives, not mold your lives around it.

Tue May 22 2001 21:53:55 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
The lady who is over the Sunday School classes is a nurse, so that was reassuring.

Tue May 22 2001 21:53:55 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
I just wonder what number it takes to have a seizure...we have been as low as 26 without realizing it!!

Tue May 22 2001 21:54:20 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Judith, great advice!

Tue May 22 2001 21:54:21 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Kelly and Kim, Seizures are a part of most
young children's experience with dm...despite the most careful parents and the best health care team, sometimes seizures can not be prevented. This does not automatically mean brain damage or death...very important to understand what to do. Such as having glucagon (not expired) on hand and know how to use it, know what Emergency Service you would call if needed....

Tue May 22 2001 21:54:22 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
If you haven't already read it, you should read Sweet Kids by Brackenridge and Rubin. It absolutely teaches you to respect your child, to avoid food battles, to feed your child and give insulin accordingly and not the other way around....yada yada yada. I look forward to the next version covering more about pumps and kids.

Tue May 22 2001 21:54:40 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
hi robyn!

Tue May 22 2001 21:54:48 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Karen, I wish I could understand this...how could he be okay after going into a seizure if it isn't treated correctly, or on time? Sorry about the ddom and gloom, gang, but I really need to vent.

Tue May 22 2001 21:54:52 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Those of you with older children, have you experienced seizures. Tyler has been as low as 28, but without seizure. I can't imagine. I really don't even think about it since it hasn't happened. I am prepared, though, just in case.

Tue May 22 2001 21:54:52 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Hi Robyn.
Seizures are NOT inevitable. Some seem more prone to them than others. Dave has been less than 20 on several occasions - pretty groggy, but not unconscious.

Tue May 22 2001 21:55:02 Eastern US
SlideRule(CA) (Type 1; dx 1955) from 63.93.102.66
And, for those with Glucagon, please do me a favour, AFTER this session, check the expiration date.

Glucagon expiration dates are important.

Tue May 22 2001 21:55:11 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
ellen - fabulous book!

Tue May 22 2001 21:55:43 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
My son has had one seizure since diagnosis - when he was a toddler.

Tue May 22 2001 21:55:45 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
I check the expiration date FREQUENTLY.

Tue May 22 2001 21:56:01 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Thanks SlideRule!! You are right! Also important for parents to understand that they can inject glucagon using an insulin syringe as well as the larger one provided with the glucagon kit.

Tue May 22 2001 21:56:22 Eastern US
RobynS (Mom of Jacob - 3 1/2, dx'd 12/00) from 24.4.255.46
Liz, Jacob has had the same where he is especially low and sometimes not showing it until I happen to check him

Tue May 22 2001 21:56:22 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Kim, the body has emergency defenses: the liver kicks out stored glucose. Problem is not predictable when and how much. Our doc, with 30yrs of experience, says he's NEVER lost a pt to a low, except when that pt had consumed alcohol, which paralyzes the liver's ability to respond

Tue May 22 2001 21:56:27 Eastern US
Karen (Matthew, 6, dx'd at 3) from 63.65.190.242
Sorry Kim, I didn't put the whole story in there. I was worried about someone not giving Matthew glucagon right away. My nurse said that Matthew should be okay until emergency help would arrive.

Tue May 22 2001 21:56:30 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Have you guys had trouble with your pharmacy not wanting to give you exactly what you need, like the SMALL lancets and needles?

Tue May 22 2001 21:56:33 Eastern US
Mary from Ma. (Chris11,dx'd @4 and Angela11, dx'd @ 9) from 24.91.154.23
Liz..on teh line of further encouragement..both Chris and Angela are very happy active kids...
Chris pitches and catches for his baseball team, plays basketball and soccer..
Angela pitches for her softball team, swims on her schools swim team and plays soccer...

Tue May 22 2001 21:56:34 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
I'll have to check out that book because we have food battles at every meal!

Tue May 22 2001 21:56:42 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
I understand that even an expired glucagon can work - just may be less efficacious. Of course it's better to have one that has not expired.

Tue May 22 2001 21:56:53 Eastern US
RobynS (Mom of Jacob - 3 1/2, dx'd 12/00) from 24.4.255.46
Hi Terri...sorry I missed you earlier!

Tue May 22 2001 21:56:55 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
How do those of you with young ones talk about feelings about diabetes with your children. Tyler is so laid back and easy about it all, pretty much accepts it as part of his life. I am wondering when that will go away.

Tue May 22 2001 21:57:12 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
The muscle activity of the seizure itself also brings up bg.

Tue May 22 2001 21:57:37 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
I have had several confrontations with the pharmacy. I had one pharmacist fired.

Tue May 22 2001 21:57:41 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Ellen, I agree. Sweet Kids by Brackenridge (our Betty B) and Rubin is an excellent resource for handling food dilemmas with young children with DM. It can be ordered from the ADA website...

Tue May 22 2001 21:57:46 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Liz, Ben as diagnosed at 20 months and I'm wondering when he'll go through some feelings too.

Tue May 22 2001 21:57:55 Eastern US
RobynS (Mom of Jacob - 3 1/2, dx'd 12/00) from 24.4.255.46
Mona, do not get me started about problems with the pharmacy!!!

Tue May 22 2001 21:58:13 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Madeline is pretty okay with it right now. I just explain as we go along and answer what questions she has.

Tue May 22 2001 21:58:17 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Thanks Judith, but does this always happen?

Tue May 22 2001 21:58:24 Eastern US
RobynS (Mom of Jacob - 3 1/2, dx'd 12/00) from 24.4.255.46
Sweet Kids has proven to be especially helpful for me...still reading though!!!

Tue May 22 2001 21:58:24 Eastern US
Mary (Kira's 3) from 65.28.165.119
Kira has been fighting the shots for about 2 months now. We've tried everything we can think of, so now we just give the shot even if we have to hold her down. Someone please tell me this won't last until she's 10!

Tue May 22 2001 21:58:29 Eastern US
JoAnn (Mom of Patrick 21 months, dx at 17 months) from 12.90.175.189
I had to return the last needles we got because they were not short. They looked HUGE! They exchange them though.

Tue May 22 2001 21:58:32 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
So, I'm not alone in that?

Tue May 22 2001 21:58:54 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
We don't have any problems with pharmacy as we mail order everything. It is much easier and 1/3 the price.

Tue May 22 2001 21:59:08 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
as far as the pharmacy, try getting pork based insulin today! i could have smacked more than one pharmacist, but now we have a great one.

Tue May 22 2001 21:59:12 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
We changed pharmacies a couple of times. The one we have now is WONDERFUL. They even deliver!

Tue May 22 2001 21:59:26 Eastern US
Karen (Matthew, 6, dx'd at 3) from 63.65.190.242
Judith, the kids are going to bed and they both wanted me to tell you "Hi!"

Tue May 22 2001 21:59:26 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Liz, enjoy that! He may stay that way, though he may be less accepting as he approaches the teen years, when it's so important to be just like everyone else

Tue May 22 2001 21:59:47 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Liz, maybe it won't....He may be absorbing your attitudes, he may be a youngster with an "adaptable" temperament. So this may continue. Most important with kids like this to appreciate that even if they never complain or protest, it is hard for a young child or a growing child to have diabetes. Never underestimate the courage it takes these kids.

Tue May 22 2001 21:59:53 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Mary, how old was Kira at diagnosis?

Tue May 22 2001 21:59:58 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
liz, what mailorder do you use? I have found them to be more expensive.

Tue May 22 2001 22:00:04 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Mary, were you in here earlier when we talked about the inject-ease. Although TYler never fought us, it certainly is less daunting and still somewhat of a novelty to Tyler.

Tue May 22 2001 22:00:46 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Kim, the liver kicks in unless there have been repeated, serious lows over a short period of time, and it's not had an opportunity to "recharge" Think of it like a bank account: If you make all withdrawals, no deposits, after a while you won't get anything from that ATM machine.

Tue May 22 2001 22:01:05 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
When Madeline was first diagnosed, they kept trying to give me the BIG, HUGE, generic CHEAP lancets. I would take them back everytime. Finally, one day, I took Madeline with me. I held up her little pudgy hand and yelled, "DO YOU KNOW WHAT THOSE CHEAP LANCETS DO TO HER FINGERS! LOOK AT THESE AND TELL ME WE DON'T NEED THE TINY ONES!" I never had a problem after that.

Tue May 22 2001 22:01:18 Eastern US
Maggie (Mom of Ricci she is 4 and was diagnosed at 15 months old.) from 64.12.103.176
hello everyone, I just found this room. I know I missed most of the chat, but do they have these chats often?

Tue May 22 2001 22:01:19 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Liz you are pointing out the importance of Change. Sometimes novelty or a new approach (place, etc.) will distract a child from their anxiety...

Tue May 22 2001 22:01:24 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Mary, it won't last until she's 10. Have you tried letting her hold an ice cube on the injection site before injecting - it'll numb the skin and she'll feel like she has a bit of control over the whole process.

Tue May 22 2001 22:01:25 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs ) from 205.188.195.48
thanks for that insight Barbara....VERY true....I consider all of these kids my heroes for all they deal with....

Tue May 22 2001 22:01:30 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Tell them "hi" for me, Karen. We did have lots of fun at Happy Hollow!

Tue May 22 2001 22:01:31 Eastern US
JoAnn (Mom of Patrick 21 months, dx at 17 months) from 12.90.175.189
What is inject-ease? Does anyone use the insulin pens?

Tue May 22 2001 22:01:52 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
She was 2.

Tue May 22 2001 22:01:52 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Barbara, I agree and we certainly focus on that courage with each injection. Plus, I think I have had a very healthy attitude since diagnosis and never talked negatively about it around him. Always highlighted the good points, although there aren't that many. Made sure he knew he wasn't "sick". Remind him of how bad he feels when he doesn't eat, or when he was diagnosed, etc.

Tue May 22 2001 22:01:52 Eastern US
Mary from Ma. (Chris11,dx'd @4 and Angela11, dx'd @ 9) from 24.91.154.23
Liz..angela still uses an injectease...she doesn't like to watch the needle going in..and it allows her the independence to go to sleepovers without me having to embarrass her by showing up:-)

Tue May 22 2001 22:01:58 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Mona, you are a great advocate!!

Tue May 22 2001 22:01:59 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Courage. I think that is the other thing that keeps me going; everytime I look at my beautiful little biy and see how brave, happy, trusting, loving, and well-adjusted he is; I now that things are going to be okay. It's just sometimes that my heart gets heavy, tonight happens to be one of those nights (lucky you!)

Tue May 22 2001 22:02:07 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
Mary, in Sweet Kids we give some ideas about helping defuse that kind of situation. It's improtant to find a way to break the cycle. Forcing usually makes for more struggling and fear which creates a vicious circle. An inject-ease so she can't see the needle, letting her pick the needle, the spot, push the plunger -- anything so the child can feel a bit less like soomething awful is being DONE to them - may help. Have you tried giving her a doll to whom she can give shots? or one of the Bayer Bears?

Tue May 22 2001 22:02:10 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Hi Maggie!

Tue May 22 2001 22:02:20 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
Yes, we tried ice.

Tue May 22 2001 22:02:33 Eastern US
Karen (Matthew, 6, dx'd at 3) from 63.65.190.242
Good night all! I'm going to join the kids in an early night to bed!

Tue May 22 2001 22:02:38 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Liz, sounds like you are on a great track!

Tue May 22 2001 22:02:39 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
Judith, I think you are the first I have seen in here who also has two w/diabetes! My 8 year old was diagnosed 2 years ago, my 5 yr. old in jan.

Tue May 22 2001 22:02:47 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
I don't take anything from anybody when it comes to my kids.

Tue May 22 2001 22:02:57 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Good timing, Kim. This is the right place to bring those feelings.

Tue May 22 2001 22:03:25 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Kim, I totally understand. Sometimes it just hits me and I cry myself to sleep!

Tue May 22 2001 22:03:45 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Kim, how important that you can express this sadness here with a group of folks who really know what you are saying about heaviness of heart

Tue May 22 2001 22:03:50 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Hi Nancy - but I cheated. Vanya is a Russian boy, living with us because he can't get the care and supplies he needs in his city. Mary/MA DOES have 2 with d

Tue May 22 2001 22:03:51 Eastern US
Mary from Ma. (Chris11,dx'd @4 and Angela11, dx'd @ 9) from 24.91.154.23
Mary..Chris did the same thing for a while..we'd ice the site(I'd let him hold the ice on the spot) and sing the alphabet song or count to 20 to pass the time...

Tue May 22 2001 22:04:12 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Mary, have you tried rewards. I know people might not agree, but when Tyler was first diagnosed, we bought him a binder with places to put football cards and gave him one with each shot, each finger prick, and each time we were just plain proud of him. Soon enough, he didn't even ask about them anymore. Inexpensive way to distract them. Does she like stickers, or anything like that?

Tue May 22 2001 22:04:29 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
You were hit hard in a short time, Nancy! How are things going?

Tue May 22 2001 22:04:31 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
You have to learn to go with the flow...we will have good days and bad, just hope that the good are more frequent!

Tue May 22 2001 22:04:34 Eastern US
BettyB (Feelings Matter Chat Moderator) from 198.81.16.56
What a great bunch you are, as always!! We are over time for the chat. I want to thank Barbara Anderson for joinging us and sharing her epxertise. And many thanks also to all of you who help each other so generously and warmly! Night to all!

Tue May 22 2001 22:04:49 Eastern US
Barbara Anderson (child behavior specialist, parent advocate) from 205.188.199.21
Thanks for a terrific discussion everyone!Good Night to all, Barbara Anderson

Tue May 22 2001 22:04:49 Eastern US
kim (mother of Alex, 2 yrs old, dx 2/01) from 64.252.64.172
Thanks Judith, you have been a wonderful help tonight, you all have! I have to try and get some sleep, my spelling errors are getting really bad! Good Night!

Tue May 22 2001 22:04:50 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
Read Sweet Kids about a month after diagnosis. I even let her use a real needle to give her 'babyies' shots. I will look into Inject-ease. She laughs as she wiggles, so at least she's not crying...

Tue May 22 2001 22:04:55 Eastern US
terri (mom of monica, 3, dx'd at 2) from 24.4.252.129
good night, i've learned a lot tonight. thanks!

Tue May 22 2001 22:05:08 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Madeline insists on "pinching up" herself. She pokes her own fingers too. I don't push her. SHe just wants to be independent.

Tue May 22 2001 22:05:13 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Barbara, thanks. Everyone keeps telling me, including my doctor, that I will soon hit bottom with this all, but so far I feel pretty good about it. Of course, TYler has been easy to manage, which helps. As for the husband issue, that is the hard part.

Tue May 22 2001 22:05:18 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Parents - come regularly to the Parents room too - know that we are all in this together and you are NOT alone. Thanks Betty and Barbara.

Tue May 22 2001 22:05:19 Eastern US
RobynS (Mom of Jacob - 3 1/2, dx'd 12/00) from 24.4.255.46
Kim, I get the same thing...heavy heart

Tue May 22 2001 22:05:21 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Bye Terri. Hope to see you again soon.

Tue May 22 2001 22:05:32 Eastern US
RobynS (Mom of Jacob - 3 1/2, dx'd 12/00) from 24.4.255.46
Good night Terri! Talk to you soon!

Tue May 22 2001 22:05:32 Eastern US
Kelly (mom of Ben, 2, dx'd 1/01) from 205.188.196.52
Thanks everyone!

Tue May 22 2001 22:06:00 Eastern US
Renee (Melissa, 18, dx'd at 9, pump 5 yrs ) from 205.188.195.48
great idea Liz...whatever works! My mom was appalled that I potty-trained my girls with M&Ms..I assured her that they wouldn't still be getting M&Ms by the time they started school!!!....Night all...thanks Barbara & Betty....we all can use "strokes" for all we do!

Tue May 22 2001 22:06:06 Eastern US
SlideRule(CA) (Type 1; dx 1955) from 63.93.102.66
And, from all YOUR KIDS, even if they don't say it:

THANKS MOM!!!!!

Tue May 22 2001 22:06:33 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
Things have been fine...I laugh that they compare their bg now.. Brett's HA1c started out at 11.1 and was down to 5.3!!! Pat on the back to mom...Robert was less than 7 when he was last checked too! It just gets to be tiring somedays.

Tue May 22 2001 22:06:40 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
Liz, yes we tried that. Chocolate, stickers, Chuck E Cheeses. Nothing works longer than a few days. Even tried every distraction we could think of.

Tue May 22 2001 22:06:50 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Thanks Barbara and Betty. When this room closes in a while, the "chat" will move to the parent room.

Tue May 22 2001 22:07:27 Eastern US
Mary from Ma. (Chris11,dx'd @4 and Angela11, dx'd @ 9) from 24.91.154.23
Goodnight all...Thanks Barbara and Betty...

Tue May 22 2001 22:07:40 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Thanks everyone. I wish all of you were right here. I could go on and on. See you in the parents chat.

Tue May 22 2001 22:07:57 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Is there something Kira would like to collect? Perhaps a collection of something small - one for every 5 times she cooperates ....she can still say 1,2,3 ouch ouch...but has to cooperate to earn a check.

Tue May 22 2001 22:08:31 Eastern US
Galina (Mom of Edward, 2, dx May, 2000) from 208.210.222.68
Nancy, you mentioned that Brett's A1c is 5.3- Edward's now is 5.1 and our doctor is ready to kill us saying that we keep him too low all the time. What about your doctor?

Tue May 22 2001 22:08:31 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
VERY tiring! Is Robert going to camp this year? WHere are you located?

Tue May 22 2001 22:08:36 Eastern US
RobynS (Mom of Jacob - 3 1/2, dx'd 12/00) from 24.4.255.46
Goodnight

Tue May 22 2001 22:08:46 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Mary, have you tried an inject ease?

Tue May 22 2001 22:09:09 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
Decided Kira had the upper hand and she knew it so decided to not make it a big deal and just do the shots anyway we can so long as it's quickly.

Tue May 22 2001 22:09:28 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
I was wondering about those low A1c's also. My endo thinks kids should be between 7-9. How do you keep them that low without serious lows?

Tue May 22 2001 22:09:32 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Madeline has that Diabetes Bear that she gives "shots" to and "tests" it's paws.

Tue May 22 2001 22:09:53 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
Judith I think most of the camps around here are for kids 10 and up...Iam working with the local JDRF chapter andputting together a support directory which should be out next month if I get my act together...Has put me in touch with a lot of parents which has been great!

Tue May 22 2001 22:11:01 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Mary, I feel for you. I hear a lot of parents talk about troubles with injections. I can imagine that it's tough, but probably a phase and hopefully she'll outgrow it.

Tue May 22 2001 22:11:09 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
Liz, unfortunately we have had more lows than I would like...I do carb counting, but do alot of estimating...plus the boys have been involved with soccer and now baseball this spring which we are trying to work around.

Tue May 22 2001 22:11:15 Eastern US
Galina (Mom of Edward, 2, dx May, 2000) from 208.210.222.68
We are trying to keep him in the 80-120 interval. Cannot say that we don't have anything loer than that, but not very often. Almost never had severe lows. we test him every two hours, even at night.

Tue May 22 2001 22:11:16 Eastern US
Mary from Ma. (Chris11,dx'd @4 and Angela11, dx'd @ 9) from 24.91.154.23
before I go..we foudn Chris was better about it when we let him do it..first he would just put the lancet on his finger and I'd do the rest then he pricked his own finger and I put the blood on the strip...eventually he just took over>>ofcourse we were ALWAYS tellings him what a BIG BOY he was for doing whatever part of the task he did..we also snapped off the needle and he could give me or his dad or any family member(even my in-laws played along) a shot..some sort of "payback" i guess??

Tue May 22 2001 22:11:17 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
How do you guys deal with people who say rude/stupid things to you?

Tue May 22 2001 22:11:18 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Liz, some kids/people are easier to manage than others. If the low A1c is at the expense of lots of low bgs, then it's NOT a good thing.

Tue May 22 2001 22:11:48 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Nancy and Judith, I am encouraged to hear you talk about getting support groups together. I was very discouraged when my JDRF chapter told me that they don't deal in any of that and wouldn't help me out. I really want to start one in my area, but don't know how to go about it.

Tue May 22 2001 22:12:25 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Galina, that seems to be unreasonably tight control for a young child. Most docs aim for a range of 100-200 for kids that age, realizing that there will be numbers above 200, too.

Tue May 22 2001 22:13:14 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
I finally contacted them when brett was diag. in Jan. more for me than them....I am in NC...we have had about 15o families respond, and hope to get more at the walk this fall.

Tue May 22 2001 22:13:39 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
Mona, like what?

Tue May 22 2001 22:13:50 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Galina, my endo aims for 100-200, which was tough for me to accept at first. 80-120 is normal for an adult, but I'm not sure about a child. Too much risk for lows. We aim 100-200 and Tyler has few lows.

Tue May 22 2001 22:14:00 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
That's very discouraging, Liz! I know their focus is on research $$$$, but many chapters have support groups too. Might want to see about putting up notices in your endo's office seeking others who want to form a group. Could take an ad in a local paper... Meet in a public place - even McD's - at first.

Tue May 22 2001 22:14:01 Eastern US
Pam (IN) (John, 3-1/2, dx'd at 14 mos.) from 63.38.148.54
Our target range is 100-200.

Tue May 22 2001 22:14:17 Eastern US
Galina (Mom of Edward, 2, dx May, 2000) from 208.210.222.68
This is true, a lot of lows is not good, but I cannot beleive that 200 is normal for my child (like our endo says).

Tue May 22 2001 22:14:24 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Oh, gosh! All sorts of things. "I could NEVER give MY child a shot and poke their fingers all the time. What a pain!"

Tue May 22 2001 22:14:39 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
80-120 is "normal" for a person WITHOUT diabetes. Diabetes means abnormal bgs.... always up and down, no matter how hard you try.

Tue May 22 2001 22:15:01 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Our range is 100 - 170

Tue May 22 2001 22:15:02 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Judith, my cde insists that kids have a "buffer" as far as complications go. That running a little bit higher doesn't seem to have the negative effects as when they're older. Have you ever heard that.

Tue May 22 2001 22:15:04 Eastern US
Galina (Mom of Edward, 2, dx May, 2000) from 208.210.222.68
Liz, few lows- how many, approximately in a week lower than 70?

Tue May 22 2001 22:15:18 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Liz, contact Renee (rmhb1126@aol.com). She has created a wonderful Moms Lunch Bunch and she is VERY active in JDRF....she's super supportive and would love to help you.

Tue May 22 2001 22:15:47 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Mona, I suggest that you ask them whether they would rather see their child die. Explain to them that you are doing everything you can to keep your child healthy. That is very insensitive "what a pain".

Tue May 22 2001 22:15:53 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
LOL. I said 'I can't believe you would let you child die!'.

Tue May 22 2001 22:16:00 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
"Does she have THAT because you fed her too much sugar?"

Tue May 22 2001 22:16:01 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Liz, I'd say that's boloney about the buffer.

Tue May 22 2001 22:16:06 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
doesn't everyone wonder if that number you get iwth the finger prick is going up or down...we base our food intake and insulin on those readings...will be glad when the watch monitor is approved for kids.

Tue May 22 2001 22:16:07 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Thanks ellen.

Tue May 22 2001 22:16:38 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
Yes, that's usually how I respond. "If I don't do this, she will die. I do what I have to to keep her healthy."

Tue May 22 2001 22:16:50 Eastern US
Pam (IN) (John, 3-1/2, dx'd at 14 mos.) from 63.38.148.54
Judith, it's taken me a long time to accept that John's numbers will be up and down. Diabetes was the first time I've encountered something that I couldn't do no matter how hard I tried. It's been very frustrating and also very humbling.

Tue May 22 2001 22:17:38 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Yes, that idea's been around for many years - that
"the clock" does not start ticking on complications until after puberty. That has less support now, but it IS known that lows are hard on growing brains - up to age 7 or so. Good article in the new Diabetes Self-Management magazine, by David Goldstein of the Univ of MO.

Tue May 22 2001 22:17:47 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
Mona, it does make me wonder what goes through a person's mind when they say that. (Obviously not much)

Tue May 22 2001 22:17:52 Eastern US
Galina (Mom of Edward, 2, dx May, 2000) from 208.210.222.68
Yes, I heard that from my endo, and next day, when we visited eye doctor, he said that he sees a lot of small kids with diabetes complications- with bad control, of course. That made me think twice. Yes, kids have less complications than adults, but still have. What If I'm the unlucky one?

Tue May 22 2001 22:18:04 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Judith, if you remember, I had a tough time with Tyler's numbers also. I just now can relax, even with highs. I know now that they won't kill him and a few are going to happen now and then. Thanks to these chats.

Tue May 22 2001 22:18:14 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
I know a couple who REFUSED to test their child, give her shots, or monitor her food intake. They got their child taken away from them.

Tue May 22 2001 22:18:32 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
For many parents of little ones, they have found it easier to control the blood sugars with the insulin pump. Have your doctors offered it to you?

Tue May 22 2001 22:18:48 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
Mona, was it for religous reasons?

Tue May 22 2001 22:18:50 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Mona, that's frightening!

Tue May 22 2001 22:19:12 Eastern US
SlideRule(CA) (Type 1; dx 1955) from 63.93.102.66
For what it is worth, this dinosaur, with diabetes since age 3 . . .

Diabetes has helped to make me the STRONG person, not the other way around . . .

That is, Diabetes is a PART of my life, NOT my life. Hope that makes sense.

Tue May 22 2001 22:19:34 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Galina, Tyler used to have a bunch of lows, almost once a day, always. Now he only goes low maybe 1-2 times a week, but never below 70. because I know that the monitor can be a little bit off, I will treat him if he's below 80. As for 200, it may not be normal, and Tyler certainly doesn't feel good when he's there, but it happens. Because of his ups and downs, I am looking into a pump. RIght now isn't the right time for him, but when it is, I will be prepared.

Tue May 22 2001 22:19:36 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
It's extremely rare for kids to have any complications before puberty, before at least 5 years of d.

Tue May 22 2001 22:19:36 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
No, they just refused to accept that there was something "wrong" with their little girl. The dad was a dentist. The grandma had to take custody of her.

Tue May 22 2001 22:19:49 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
Sometimes I feel guilty when I talk with other moms of diabetics and tell them that I don't feel like my kids are deprived at all...They eat pizza and ice cream and have special treats everyday...it's just in the timing! and there will be days when you just can't explain those high's either...it's not what they ate or their insulin...it's their emotions/hormones/so many other things that affect bs

Tue May 22 2001 22:19:59 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
SlideRule, just curious, do you still use a SlideRule, or do you use a CalcUlator now? :-)

Tue May 22 2001 22:20:05 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
It took me 3 yrs to finally realize there is no magic formula that will reliably produce "good" numbers.

Tue May 22 2001 22:20:22 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
They seemed really nice and intellegent, until that happened. I don't see that dentist anymore!

Tue May 22 2001 22:20:43 Eastern US
Galina (Mom of Edward, 2, dx May, 2000) from 208.210.222.68
Ellen, our doctor did not offer pump, we requested It. First the doctor was reluctant (Edward is very small), but now we are in the middle of pump training. I repeat my question:
IS ANYONE IN THIS ROOM WITH VERY SMALL CHILDREN ON PUMP????

Tue May 22 2001 22:20:51 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Nancy, sounds like you have a great attitude! I predict your boys will do very well.

Tue May 22 2001 22:21:08 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Nancy, sounds like you are doing a WONDERFUL job.

Tue May 22 2001 22:21:32 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Thank you slide rule. The thing I worry about the most with TYler is how to make him "proud" of his disease. Maybe not proud, but not embarrassed or wanting to hide it. I want him to be able to stand up and explain to others what it's all about. I often wonder how I will instill that in him. I guess by example.

Tue May 22 2001 22:21:35 Eastern US
SlideRule(CA) (Type 1; dx 1955) from 63.93.102.66
Ellen: I use all of the above, a calculator, AND, a sliderule, and, sometime, both fingers and toes. L:-)L

Tue May 22 2001 22:21:39 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Galina, if you write to me at CamelsRFun@aol.com I will give you some email addresses of parents of little ones on the pump and you can write to them.

Tue May 22 2001 22:22:12 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
A week after Madeline was diagnosed, a friend of my husband's ask him, "So, your baby's got Diabetes. What is her life expectancy now? You know they don't live as long as healthy people." The urge to kill....

Tue May 22 2001 22:22:14 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
We don't, but I'll be looking into it for Kira's 4 birthday. She would be the youngest at our clinic. They aren't opposed to it, just a little nervous.

Tue May 22 2001 22:22:27 Eastern US
Galina (Mom of Edward, 2, dx May, 2000) from 208.210.222.68
I will, I already copied your address from some previous message. Thank you.

Tue May 22 2001 22:22:46 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
I lost it the other day though...you just can't stop to dwell on the fact...We work through school and sleepovers and do the best we can. I know I can handle it better than some I have spoken with in the last several months, but who gives me the break I so desperately need?!

Tue May 22 2001 22:23:00 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Liz, I think a kid dx'd at a very young age will still go through a period of rebellion/denial/unhappiness in the teen years, but I do think it's likely to be less severe than for one who's dx'd then.

Tue May 22 2001 22:23:09 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Galina, try the parents room. There are sometimes people with small kids on pumps. Also try the CamelsRFun web site where there are tons of kids on pumps and e-mails to contact the parents. It was great help to me.

Tue May 22 2001 22:23:12 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Nancy , rather than feeling guilty, you should feel proud to EMPOWER other parents to do the same.

Tue May 22 2001 22:23:12 Eastern US
gary (...(visit the 'Diabetes Poetry Room' at) geocities.com/gmhco) from 63.26.65.204
...just been lurking...:-)

Tue May 22 2001 22:24:14 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
Oh, I think I do that...I never let on to the parents I speak with locally other than those I know well that it gets to me too...

Tue May 22 2001 22:24:22 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Nancy, are there any other parents in your area who would be willing to swap weekends with you - so you could have some time to yourself?

Tue May 22 2001 22:24:26 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
On the track team at our HS are 3 kids with d: Dave, Vanya, and a senior named Matt, dx'd at age 2. He's managing very well on shots.

Tue May 22 2001 22:24:45 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
I don't dwell at all on people who make negative comments. I feel that it is my responsibility, somehow, to explain to them what d is all about and the advances that they have come to today. I find that I am constantly talking about it, but it helps me to feel positive too. If they don't want to listen, then tough for them.

Tue May 22 2001 22:25:05 Eastern US
Mona (Madeline,4,dx'd@13months) from 24.144.55.101
I have to put my son to bed. He is going to be mad. He loves "The Weakest Link." I'll chat with you all later - ta!

Tue May 22 2001 22:25:13 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
Judith, where are you located?

Tue May 22 2001 22:25:21 Eastern US
Pam (IN) (John, 3-1/2, dx'd at 14 mos.) from 63.38.148.54
Hi Gary! Hi Slide!

Tue May 22 2001 22:25:46 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Okay, someone told me an email before about someone who might be able to give me ideas about a support group, but I lost it.

Tue May 22 2001 22:25:57 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Good night Mona.

Tue May 22 2001 22:26:16 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Liz, write to Renee - rmhb1126@aol.com

Tue May 22 2001 22:26:33 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Hey, any of you near Houston. I would love to swap weekends. Of course, you have to take my 5 year old and 8 month old also (haha)

Tue May 22 2001 22:26:50 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
Ellen, I am hoping that the support directory will solve some of those situations for myself and other parents!! Only time will tell. I don't have family nearby, and my parents are in their 70's and are afraid

Tue May 22 2001 22:27:01 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Thanks, Ellen.

Tue May 22 2001 22:27:26 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Another great place for support is family diabetes weekends. Have you attended any of those?

Tue May 22 2001 22:27:26 Eastern US
Galina (Mom of Edward, 2, dx May, 2000) from 208.210.222.68
Liz, you said (Ok, wrote) that I should visit CamelsRFun web site. What's the full address? (sorry, never heard of It)

Tue May 22 2001 22:27:36 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Do all of you worry about your other kids getting d. That is a big one for me. What is the likelyhood.

Tue May 22 2001 22:27:56 Eastern US
sarah (mom of Ethan, 5, dx'd 4, pumper) from 205.188.199.173
Hi Ellen... I know Renee..she is great person to offer info on starting a support group!!

Tue May 22 2001 22:28:20 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Liz, I know 2 women who've been very active in JDRF in the Houston area.

Tue May 22 2001 22:28:33 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Galina, I think its www.CamelsRFun.com. Try your search engine if that's not it. Are you reading "pumping insulin".

Tue May 22 2001 22:28:47 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Have you met Judy H or Diane?

Tue May 22 2001 22:29:06 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
Liz, I didn't worry about it...when robert was diag. they said brett had a 95% chance he would not be diabetic....so much for statistics...neither my husband nor i have diabetes in family!!

Tue May 22 2001 22:29:14 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Ellen, what are family diabetes weekends. I don't think we have that around here.

Tue May 22 2001 22:29:23 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Hi Sarah...are you part of the Moms Lunch Bunch?

Liz, I do worry about it. I also had my daughter tested in the DPT and wish I never did that...My daughter tested ICA+ but negative for other antibodies. It really is a difficult thing to learn. I urge any parent who is contemplating having their child tested, to first decide what they will do with the information if it comes back positive.

Tue May 22 2001 22:29:38 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Lifetime odds for a sibling, with no other family history, is only about 6%

Tue May 22 2001 22:30:09 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Nancy, go figure. I don't have family history, either. I just am so paranoid about my kids getting ill because I am convinced that my sons meningitis was the straw that broke the camels back.

Tue May 22 2001 22:30:13 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Liz, some camps host those.

Tue May 22 2001 22:30:18 Eastern US
Pam (IN) (John, 3-1/2, dx'd at 14 mos.) from 63.38.148.54
Nancy I agree with you on snacks, treats, etc. Timing is the key. I often wonder if our families think we just let him eat anything because we're always together for birthdays and holidays where there's always cake, cookies, ice cream. I just try to fit the goodies in to our schedule, make adjustments. Plus I don't have time to worry what other people think about it. It's exhausting enough just to get through each day.

Tue May 22 2001 22:30:47 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
of all the parents i have been in touch with ,it is also was the case of no family history...that's scary!

Tue May 22 2001 22:30:51 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Ellen, I don't trust the antibody tests as my son was antibody negative. So what does that say?

Tue May 22 2001 22:31:04 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
My email address is CamelsRFun@aol.com and I have a prepared email full of links about kids on the pump. Or you can go to the following:
http://members.aol.com/camelsrfun
or
http://www.kidsrpumping.com

Tue May 22 2001 22:31:08 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
I'm in southern IN, near Louisville, KY

Tue May 22 2001 22:31:34 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
Judith, I must have misunderstood what our CDE said about short needles (it was in the hospital). Can you tell me why a person would use one over the other?

Tue May 22 2001 22:31:42 Eastern US
sarah (mom of Ethan, 5, dx'd 4, pumper) from 205.188.199.173
Ellen, yes I am part of the Brunch Bunch....Renee has put together a list of 150+ names of moms in my area of PA.

Tue May 22 2001 22:31:46 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Negative antibody tests do NOT guarantee that d won't develop. They can become positive at any time.

Tue May 22 2001 22:31:53 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
Shot vs longer, that is.

Tue May 22 2001 22:32:20 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
That's why I don't feel the need to have my kids tested for antibodies.

Tue May 22 2001 22:32:25 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
today at brett's preschool, they had pizza and cake...the teacher called me and said that brett wanted a 2nd pc of pizza and that his bs was 200+ before he ate...i told her to let him decide between the two, and we'd deal with the high later...

Tue May 22 2001 22:32:34 Eastern US
gary (...(visit the 'Diabetes Poetry Room' at) geocities.com/gmhco) from 63.26.65.204
Ellen...I thought your addy was www.ellen@e-bay.com?? :-)

Tue May 22 2001 22:32:42 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
And positive ICA doesn't mean they will develop diabetes either.

Tue May 22 2001 22:32:49 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
Short needles are fine for little kids, other thin people. For those with a thick skin, they may not go deep enough to deposit insulin in the subcutaneous tissue, where it belongs.

Tue May 22 2001 22:33:15 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Sarah, where are you in PA. I'm from there originally.

Tue May 22 2001 22:33:34 Eastern US
Galina (Mom of Edward, 2, dx May, 2000) from 208.210.222.68
Ellen, thanks! I just opened the site. Great work!

Tue May 22 2001 22:33:42 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
I also think too much money has been spent on the DPT without releasing results...money that may have been better spent on CURING diabetes. But yes I am very opinionated.

Tue May 22 2001 22:33:57 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 137.118.30.47
If you find you're having lots of problems with "leak back" - losing a bit with each injection - might want to try the longer needles.

Tue May 22 2001 22:34:20 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Have any of you ever had quarter sized round, raised, hot spots develop where you inject your child?

Tue May 22 2001 22:34:24 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Thanks Galina, but it's all the parents who contributed that made it great.

Tue May 22 2001 22:34:26 Eastern US
sarah (mom of Ethan, 5, dx'd 4, pumper) from 205.188.199.173
Ellen, I am from the Valley Forge area.

Tue May 22 2001 22:35:11 Eastern US
Pam (IN) (John, 3-1/2, dx'd at 14 mos.) from 63.38.148.54
Good night everyone! Great chat!

Tue May 22 2001 22:35:16 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
I graduated from PSU a million years ago...

Tue May 22 2001 22:35:26 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Good night Pam.

Tue May 22 2001 22:35:38 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
sarah, how is ethan doing with the pump? which one did you pick?

Tue May 22 2001 22:36:06 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
My sister went to PSU also. We are from Pittsburgh.

Tue May 22 2001 22:36:37 Eastern US
Kate (Brendan 15, dx 10) from 209.165.20.24
Hi! I wondered where you all were

Tue May 22 2001 22:36:56 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
Has anyone heard of using a grey ribbon pin to remind people of D? (Like the pink ribbon pin for breast cancer). I'm trying to talk my company into selling the pins in conjuction with the walk.

Tue May 22 2001 22:37:12 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Oops...am typing with the lights out to save electricity

Tue May 22 2001 22:37:20 Eastern US
sarah (mom of Ethan, 5, dx'd 4, pumper) from 205.188.199.173
Ellen, Ethan has been on the pump for 6 days!!! He is doing great so far....really good sugars and lots of energy that we haven't seen since before he was diagnosed! His rosy cheeks are back! We chose Animas.

Tue May 22 2001 22:37:52 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
I think after a while there are so many different ribbons that no one "sees" them

Tue May 22 2001 22:38:02 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Yes Mary...it's been around for a few years now.

Tue May 22 2001 22:38:23 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Kate, do you have a windmill in your backyard driving the electricity for the monitor :-)?

Tue May 22 2001 22:38:35 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
MaryS,,,,my JDRF office has the multicolored sneaker lapel pins...I got some for my son's class last year because they helped with the fundraising they go a kick out of them...they gave them to me for free, and did a certificate for the class which is in the office!

Tue May 22 2001 22:39:09 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
LOL Ellen, according to the chart the Edison CO sent us, my computer uses less than the lights

Tue May 22 2001 22:39:11 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
I have never heard of that brand is it new?

Tue May 22 2001 22:39:14 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.118
Night, Pam. (I keep getting disconnected)

Tue May 22 2001 22:39:33 Eastern US
Liz (TX) (Mom of Tyler, 3, dx'd at 2 yrs 11 mos.) from 63.39.153.26
Goodnight all. Thanks for the chat. See you soon.

Tue May 22 2001 22:39:51 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
At my job if they purchased a ribbon, they would get to wear jeans on a certain day. Any idea of a web site for it?

Tue May 22 2001 22:39:58 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Good night Judith.

Tue May 22 2001 22:39:59 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
We have had 6 days over 100 in May. Today was 105. Tomorrow will be over also, and Friday :-(

Tue May 22 2001 22:40:20 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Night Judith and Pam

Tue May 22 2001 22:40:43 Eastern US
MaryS (Kira's 3 (dx'd 12-00)) from 65.28.165.119
Thanks for the idea Nancy!

Tue May 22 2001 22:41:11 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Liz, those can be from hitting a small blood vessel on the way in. No big deal, no way to predict/prevent. May just want to put some ice on it if painful.

Tue May 22 2001 22:41:28 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Didn't say I was leaving!! LOL

Tue May 22 2001 22:41:30 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
I don't know if Ron Brenners has anymore of the pins:
http://www.childrenwithdiabetes.com/services/robbrennersletter.htm

Tue May 22 2001 22:42:07 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Once, in all these years, Brendan hit a vessel that REALLY bled. We had blood everywhere.

Tue May 22 2001 22:42:16 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
If they happen with every injection, possibility of allergy - to the rubber of the stopper (try a pen), to some of the "stuff" in the cloudy insulin

Tue May 22 2001 22:42:27 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
I wondered...

Tue May 22 2001 22:42:40 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Oh, hit an artery then - a "gusher" as the kids call it.

Tue May 22 2001 22:43:24 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Temp here will be a HIGH of 55 on Thursday, low in the 30s!!!!! Crazy!!

Tue May 22 2001 22:43:28 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
The first time and last, that robert tried to give his shot in the leg, he hit a blood vessel and had a huge bruise! I told him if he wanted to do sleep overs, he had to learn to do it himself!

Tue May 22 2001 22:43:42 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
So we HAVE arteries so close to the surface of the abdomen? I never knew.

Tue May 22 2001 22:44:47 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
The weather here can be weird in May. we had a foal born one May 5 at 2 am. It was 36 degrees. By 2 pm it was 101

Tue May 22 2001 22:44:58 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
where did ethan's mom go? I was curious about that brand of pump!

Tue May 22 2001 22:45:33 Eastern US
sarah (mom of Ethan, 5, dx'd 4, pumper) from 205.188.199.173
Goodnight all...I find that my best defense against "diabetes burnout" is to get enough sleep each night to be able to handle whatever happens the next day!!! :-)

Tue May 22 2001 22:45:41 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
I'm angry because the insurance denied Brendan a new pump...we have to appeal :-(

Tue May 22 2001 22:45:42 Eastern US
Lori (Mom of Savannah, 4, dx'd at 19 months) from 4.18.141.14
Hello

Tue May 22 2001 22:45:54 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Mother of that foal must have thought she was having hot flashes by mid afternoon Kate.

Tue May 22 2001 22:45:54 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Night Sarah

Tue May 22 2001 22:46:11 Eastern US
sarah (mom of Ethan, 5, dx'd 4, pumper) from 205.188.199.173
Sorry Nancy....it's called Animas...sounds like animal....

Tue May 22 2001 22:46:15 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Kate, how old is his pump?

Tue May 22 2001 22:46:32 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
The problem is the foals get pneumonia when the temp swings like that.
Hi Lori

Tue May 22 2001 22:46:34 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Scanning V's prom pics...

Tue May 22 2001 22:47:00 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
Sarah, if you haven't left do they have a web site?

Tue May 22 2001 22:47:16 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Did you have to bring the foal into the a/c house?

Tue May 22 2001 22:47:35 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Nancy their website is http://www.animascorp.com

Tue May 22 2001 22:47:51 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
plus years. It has all sorts of glitches developing. They wrote "there is no advantage to the new pump over the model he currently has" Our doc will appeal, and he'll get it, but it makes me crazy. It took one month to get this far.

Tue May 22 2001 22:48:04 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Four plus

Tue May 22 2001 22:48:16 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Hi Lori

Tue May 22 2001 22:48:33 Eastern US
Laura (19 yrs old Dx'd in 95) from 64.12.103.179
hello
9

Tue May 22 2001 22:48:42 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
thanks Ellen!

Tue May 22 2001 22:48:49 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
What AC? This is dry country. We have a swamp cooler )evaporative)

Tue May 22 2001 22:48:53 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
hi :-)

Tue May 22 2001 22:49:08 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Kate, have you heard about all the foal/fetal losses in Thoroughbreds in KY? It's hundred of millions of $$$ lost

Tue May 22 2001 22:49:12 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
That's outrageous Kate! I still think we need to start legislation that requires patients to have 2 pumps, just like they do in Europe.

Tue May 22 2001 22:49:24 Eastern US
sarah (mom of Ethan, 5, dx'd 4, pumper) from 205.188.199.173
Nancy, you could visit their website....they have a "virtual pump" you can explore...thanks, Ellen for posting the website...

Tue May 22 2001 22:49:27 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Hi Mary/MD

Tue May 22 2001 22:49:56 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Yes, Judith...it is really bas., especially as they hadn't pinpointed the cause, last I heard.

Tue May 22 2001 22:50:18 Eastern US
sarah (mom of Ethan, 5, dx'd 4, pumper) from 205.188.199.173
goodnight!

Tue May 22 2001 22:50:20 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Hi Judith- I am thinking of sending Megan to DYF camp this summer.

Tue May 22 2001 22:50:21 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
Let's just find a cure, and we won't have to worry about pumps and pens that wear out after a few years...syringes,lancets etc.!

Tue May 22 2001 22:50:40 Eastern US
Ellen (FL) (Zachary 13, dx'd @ 15 months old, pump 5.5 yrs) from 152.163.194.207
Good night all.
Judith, write to Nethercutt!!!!! :-)

Tue May 22 2001 22:50:41 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Well, really, he has never had a problem with his old pump til now, and so far it is minor, he just needs a new one.

Tue May 22 2001 22:50:58 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
REALLY, Mary??? That would be great, but I think we have a waiting list now, at least for week one. Have you applied?

Tue May 22 2001 22:51:08 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Night Ellen

Tue May 22 2001 22:51:19 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Yes ma'am, Ellen! LOL

Tue May 22 2001 22:51:38 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
goodnight sarah!, I'm fixing to head there too...got to go check bg so i can sleep thru the night without worrying!

Tue May 22 2001 22:51:41 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
We have a boy that comes every year from MD. He's been in my group

Tue May 22 2001 22:51:45 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
I just did.
It looks like the 2nd week is open

Tue May 22 2001 22:51:59 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
These boys are still up...horsing around!

Tue May 22 2001 22:52:00 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Mary, Brendan went to the DYF camp here when he was 11 (6 months after diagnosis) Best money we ever spent. He went 3 years

Tue May 22 2001 22:52:32 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Judith that would be interesting to find out who. Maybe he & Megan could travel together

Tue May 22 2001 22:53:26 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Kate- our local camp is over $600 for a week. I thought that she might like a little adventure & save some money too.

Tue May 22 2001 22:53:28 Eastern US
Nancy (Mom of Brett(5),Robert(8)) from 63.28.37.139
Good night folks! Thanks for the chat!

Tue May 22 2001 22:54:18 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Night Nancy

Tue May 22 2001 22:54:28 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Night Nancy

Tue May 22 2001 22:54:48 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
His name is Matt. He has a wonderful singing voice! I think his mother drives him here each year, then stays with relatives in Louisville.

Tue May 22 2001 22:55:04 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Happy Hollow/DYF is $95/week!!

Tue May 22 2001 22:55:06 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
DYF camp here is expensive. (more than $750 last time Brendan went)

Tue May 22 2001 22:55:30 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Megan is registered for a non-diabetes camp, but doesn't want to go this year.

Tue May 22 2001 22:56:05 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
$95 a week??? I can't believe it

Tue May 22 2001 22:56:08 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Judith camp & the air fare is a real bargin. How does the MD boy get to camp? Drive? Air?

Tue May 22 2001 22:56:34 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
They are different organizations. Ours is DiabetES Youth Foundation of IN. Theirs is DiabetIC Youth Foundation (CA)

Tue May 22 2001 22:57:08 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Now I understand!

Tue May 22 2001 22:57:08 Eastern US
Moira from 24.48.181.11
Hi, we are paying $1,600 for two weeks of D camp

Tue May 22 2001 22:57:08 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Yep...different

Tue May 22 2001 22:57:20 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
It actually costs at least 3-4x that, but the rest is paid by donations, for every kid. Some kids pay nothing. No child is turned away.

Tue May 22 2001 22:58:09 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Judith, is your camp an overnite camp? also, I think the camp here is 10 days

Tue May 22 2001 22:58:37 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
They have lots of camperships here, too. All can go, if there is room

Tue May 22 2001 22:58:54 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
After 6 years with Diabetes, the expenses really start to add up. Although we can afford the local camp, I am a bit frugal!

Tue May 22 2001 22:59:30 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Yes, it's a residential camp. Gorgeous location - 776 acres of wooded hills, big lake....new cabins.

Tue May 22 2001 22:59:55 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Judith, will you take good care of My Megan if she comes? You know she needs a kick in the *** once in a while!

Tue May 22 2001 23:00:08 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
We go for one or two weeks...camper's choice.

Tue May 22 2001 23:01:10 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
The one Brendan went to is terrific. It is in the mountains, in what is now the Giant sequioa National Monument. The kids can go on a 7 day back packing trip. they have 3 day hikes, day hikes, rock climbing, swimming, etc...also an endo in residence, nurses, etc...

Tue May 22 2001 23:01:10 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
I'd like to do two weeks if we can swing it. I think she is old enough & would like to be on her own. Are they up on pumpers?

Tue May 22 2001 23:01:47 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Well, I'm going to be the pump coordinator this year, so I'll be seeing girls as well as boys. We're up to 50 pumpers!!! I told Sam he needs to triple my salary!! LOL )3x0 still = 0)

Tue May 22 2001 23:02:29 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Judith, you know that I am only considering it because of you...really! ;-)

Tue May 22 2001 23:02:50 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Scary, Mary!

Tue May 22 2001 23:03:02 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Also, almost all the couselors have D. Good role models, Seeing his couselor with a pump 5 years ago is what really made Brendan want one

Tue May 22 2001 23:03:49 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Is that Bearskin, Kate?

Tue May 22 2001 23:04:06 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Megan is still having difficulty excepting diabetes as part of her life. I don't know what else I can do, but put her with others that deal with each day.

Tue May 22 2001 23:05:03 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
May not work miracles, but seeing others dealing with it can help.

Tue May 22 2001 23:05:14 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Yes, it is Bearskin...great place. wish I could go. Mary, you have hit on what I think is the best part of camp...they are normal citizens there

Tue May 22 2001 23:06:07 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Both my kids are going to catholic school next year. Middle school was not fun. I hope that the smaller school will help Megan and Tim focus more.

Tue May 22 2001 23:06:11 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Brendan's endo is the endo in residence there, too. We call her his "diabetes mom"

Tue May 22 2001 23:06:56 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Yes, having d makes you part of the "in" crowd at camp. I've met several folks from Bearskin: Mo McGrath, Mary Simon,

Tue May 22 2001 23:07:17 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
The catholic school here is 25 miles from us, so mine went to the public school closer. Thank heavens a good one

Tue May 22 2001 23:07:41 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Mary is Brendan's endo. We love her

Tue May 22 2001 23:08:29 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Of course, she is the role model to end all as she has d herself

Tue May 22 2001 23:08:35 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
We have lots of changes going on this year. I'd like to think that everything will fall into place.

Tue May 22 2001 23:09:07 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
I've met her at several conferences of the D Camping Assoc

Tue May 22 2001 23:09:50 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
She has a great sense of humor, and a lot of empathy

Tue May 22 2001 23:09:53 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Judith what airport should we fly into?

Tue May 22 2001 23:11:44 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Brendan is sleeping. I am going to have to go get him up in a few minutes to make up some physics work. Boy, seniors are "short-timers" at this time of year

Tue May 22 2001 23:12:31 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
uh oh, Mary...maybe Judith got cut off again

Tue May 22 2001 23:12:40 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
I have to run too. Chat with you all soon!

Tue May 22 2001 23:12:58 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
nows the time to talk about her, LOL

Tue May 22 2001 23:13:00 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Looks that way to me. I think it is Columbus, OH

Tue May 22 2001 23:13:09 Eastern US
Kate (Brendan 18, dx 10) from 209.165.20.24
Bye Mary

Tue May 22 2001 23:13:39 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Bye Kate- good luck with the physics!

Tue May 22 2001 23:13:51 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Indianapolis would be closest - about an hour away

Tue May 22 2001 23:14:12 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Talking with V about visas :-(

Tue May 22 2001 23:14:21 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Well hello Judith

Tue May 22 2001 23:14:56 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Thanks Judith

Tue May 22 2001 23:15:27 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
I am going to check out some flight options.

Tue May 22 2001 23:16:42 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Great, Mary!!!

Tue May 22 2001 23:17:22 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Maybe closer to an hour and a half, from the airport, which is west of Indy

Tue May 22 2001 23:17:48 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Columbus, IN would be closest, but would be a tiny plane, I think

Tue May 22 2001 23:17:54 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
I am scared about this you know!

Tue May 22 2001 23:18:20 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
I thought it was Colubus, OH....see what I know! lol

Tue May 22 2001 23:20:39 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
We are in Indiana!! LOL :-)

Tue May 22 2001 23:22:29 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Airfare is under $200 P/P I think she will be there.

Tue May 22 2001 23:24:28 Eastern US
Judith (David, 15, dx'd at age 2 months; Vanya, 16, dx'd at 6) from 63.162.254.74
Super!! Get that application in!! Now I'll ask Sam to quadruple my salary! LOL

Chat Room Administrator Tue May 22 2001 23:25:00 Eastern US
This room will close in five minutes

Tue May 22 2001 23:25:33 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
You will deserve it after my kid!

Tue May 22 2001 23:26:01 Eastern US
Mary from MD (Mom of Megan age 11.5, pumping ) from 24.182.149.88
Last call of the room. first time I have closed a chat room. Chat soon!

Tue May 22 2001 23:29:13 Eastern US
Ranae (Mom of Nathan, 7, dx'd at 6) from 206.72.36.5
hello, this is my first time in the chat room



                 
  Home Return to Top

Last Updated: Thursday August 29, 2002 21:04:30
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.

This site is published by T-1 Today, Inc. (d/b/a Children with Diabetes), a 501c3 not-for-profit organization, which is responsible for its contents.
By using this site, you agree to our Terms of Use, Legal Notice, and Privacy Policy.
© Children with Diabetes, Inc. 1995-2015. Comments and Feedback.