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International Diabetes Youth Ambassador Chat

On Saturday, June 26, 2003, CWD's International Diabetes Youth Ambassadors gathered for a chat. This transcript has been edited to remove post from a disruptive chatter.

Moderator   (server) Sat Jul 26 11:30:00 AM EDT 2003
Our IDYA chat starts at 12 noon Eastern.


GeekGuyAndy   (24.50.149.87) Sat Jul 26 11:30:28 AM EDT 2003
Hello

Jeff Hitchcock   (216.68.227.14) Sat Jul 26 11:30:50 AM EDT 2003
Hi ... this room is all set. People should start arriving within the next 10-15 minutes.

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:34:02 AM EDT 2003
Hi both of you, I'm here. How are you?

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 11:34:05 AM EDT 2003
hi geekguy!

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 11:34:22 AM EDT 2003
and Clare!!! I'm fine and you?

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 11:34:39 AM EDT 2003
Hello all

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:35:45 AM EDT 2003
I'm doing great. It's good to see you! Do you know if Marie is joining in?

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 11:36:08 AM EDT 2003
I think Marie might still be on the diabetes camp cruise-thing... dunno...

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:36:52 AM EDT 2003
I hope she's having fun. She said she would try and get more IDYA recruits from Europe.

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 11:37:21 AM EDT 2003
So what exactly is IDYA?

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:37:43 AM EDT 2003
Anja? Why don't you take this question.

Jeff Hitchcock   (216.68.227.14) Sat Jul 26 11:38:38 AM EDT 2003
The cruise sounds like a lot of fun. Wish they had something like that here in the states.

This room (IDYA) is programmed to close at 1:30pm Eastern (13:30 on the line above). You'll get a notice 5 minutes before. That should give you all about two hours to chat.

I'm heading out now to take care of some errands. Have a great chat everyone.

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 11:39:12 AM EDT 2003
IDYA is a group of young (and a bit older!) people, many with diabetes, siblings etc. who help each other and others with diabetes

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:39:47 AM EDT 2003
Thanks Jeff! You know us too well...teens like to talk and it's hard to put a one hour limit on us! Grin 

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 11:40:08 AM EDT 2003
we try to get to speak at the UN and making Nov 14 official diabetes awareness day worldwide, sending supplies to orphans in Honduras and lots of other stuff!

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 11:40:39 AM EDT 2003
What kind of help do they/you provide? I've been helping people with the information I can in these chat rooms Smile 

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:40:42 AM EDT 2003
Hi all!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:40:58 AM EDT 2003
Where are you from GeekGuyAndy? Welcome to the IDYA chat!

Lianna IDYA,12  (152.163.252.2) Sat Jul 26 11:41:02 AM EDT 2003
Hey everyone

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:41:13 AM EDT 2003
Hey Marissa!

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 11:41:15 AM EDT 2003
New Hampshire

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 11:41:22 AM EDT 2003
hey Marissa!

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:41:28 AM EDT 2003
How is everyone?

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:41:41 AM EDT 2003
Anja-did you like the conference?

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:42:00 AM EDT 2003
I Lianna! How was your trip home after the conference? It was so neat to finally meet you in person!

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 11:42:30 AM EDT 2003
we support in many ways - like one-to-one on specific questions, I know Clare has a contact in Eastern Europe (don't remember the exact country) where we'll try to give some generel information on diabetes

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 11:43:03 AM EDT 2003
Marissa - I loved the conference! Though it seemed really big, I really didn't have as much time as I'd like to, to talk to all you great people!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:43:23 AM EDT 2003
hey guys!

Lianna IDYA,12  (152.163.252.2) Sat Jul 26 11:43:31 AM EDT 2003
The trip was ok I guess, I would much prefer to stay in Orlando than come home here, I agreee it was cool to meet you and everyone else

Lianna IDYA,12  (152.163.252.2) Sat Jul 26 11:43:41 AM EDT 2003
Hi elizabeth

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:43:59 AM EDT 2003
That's good you had fun! I thought it was HUGE too!!

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:44:14 AM EDT 2003
HEY ELIZABETH!! WHAT THE FRAK IS UP?

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:44:23 AM EDT 2003
lol  Razz 

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:44:25 AM EDT 2003
As a group we have a lot of contacts all over Europe, Africa, South and North America, and now several Eastern countries.

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:44:53 AM EDT 2003
not much marissa! haha

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 11:45:04 AM EDT 2003
and hey Elizabeth and Lianna - great meeting you!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:45:33 AM EDT 2003
Hi Elizabeth! Anja & Marz...I'm amazed at how much it has grown!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:45:44 AM EDT 2003
Clare, I was wondering if like this week would be a good time to turn in the France project?

Cali Girl Sister of diabetic Rachel, 15  (67.161.5.48) Sat Jul 26 11:45:52 AM EDT 2003
hey everyone sry i could not make it to the confrence this year but i am sure u all had a great time.

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:46:06 AM EDT 2003
I know Clare! It's crazy.

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 11:46:09 AM EDT 2003
What do they do at conferences?

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:46:09 AM EDT 2003
Hey GeekGuyAndy- How did you come across this chat?

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 11:46:39 AM EDT 2003
I saw it on the schedule. I've been in the CWD chat for 2 weeks, since Dx.

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:47:21 AM EDT 2003
There are sessions where you learn about tons of stuff and then there's a banquet and a teen dance and the teens kind of do their own thang! Like we went golfing and swimming a bunch!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:47:47 AM EDT 2003
Hi Cali Girl! It was a lot of fun...I hope you get to come to the next one! Actually, as a general topic for today, it seems everyone wanted to get updates on what we talked about in the IDYA sessions.

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:48:10 AM EDT 2003
GeekGuyAndy, You were diagnosed 2 weeks ago?

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:48:28 AM EDT 2003
Marz, and we came up with a new word!

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:48:49 AM EDT 2003
Of course!! FRAKIN YEAH!!

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 11:48:54 AM EDT 2003
Yup 7/9/03

Duckluck6 Kara dx'd 2000  (205.188.208.6) Sat Jul 26 11:49:03 AM EDT 2003
hi

Lianna IDYA,12  (152.163.252.2) Sat Jul 26 11:49:06 AM EDT 2003
oh clare I almost forgot Mr.Foulton wants me to send him a link to the transcript on the chat today!

Sam 13, IDYA, MI  (67.25.211.26) Sat Jul 26 11:49:22 AM EDT 2003
Hey everybody!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:49:56 AM EDT 2003
Hi Duckluck6! It's good to see you here!

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:49:56 AM EDT 2003
Hey Sam!

Lianna IDYA,12  (152.163.252.2) Sat Jul 26 11:49:59 AM EDT 2003
hey sam

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:50:17 AM EDT 2003
Sam did you hear that someone mailed my sister your hat?

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:50:18 AM EDT 2003
hey Sam

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:50:24 AM EDT 2003
Hi to Sam too! Your mom says you had a didge jam last night. Grin 

Sam 13, IDYA, MI  (67.25.211.26) Sat Jul 26 11:50:38 AM EDT 2003
Yeah we did.

Kara 11, IDYA, dx'd 2000  (205.188.208.6) Sat Jul 26 11:50:41 AM EDT 2003
hi everyone

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 11:50:53 AM EDT 2003
Hi Everyone - Wow, you guys are early birds today!  Wink 

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:51:05 AM EDT 2003
Do you know who mailed it?

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 11:51:15 AM EDT 2003
Didge jam? Every dog in the neighborhood now loves our house...

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:51:20 AM EDT 2003
Hey Clare, is this week a good week to turn in the country projects?

Cali Girl Sister of diabetic Rachel, 15  (67.161.5.48) Sat Jul 26 11:51:30 AM EDT 2003
hey laura

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:51:33 AM EDT 2003
How GeekGuyAndy! It's so cool you are involved right away! I think that's the best way to intergrate diabetes into the life YOU want, instead of changing all your dreams to accomidate diabetes.

Kaitlyn 13 New York dx'd at 2 1/2  (24.187.33.163) Sat Jul 26 11:52:04 AM EDT 2003
hey

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:52:08 AM EDT 2003
Hey Laura!

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 11:52:15 AM EDT 2003
my didge didn't survive the trip home, unfortunately!

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 11:52:21 AM EDT 2003
I've spent the last few weeks reading/researching about everything. I think I've got a good understnading now, except for the experiance of a few years

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 11:53:01 AM EDT 2003
Before we get going on the chat, I'd like to ask a favor. As I keep the 'formal records' for CWD (as a corporation), I'd like to have paper copy of minutes for the chat meetings (as they really do serve as the formal meetings for IDYA on a monthly basis). Would someone please volunteer to write up a paragraph or two (or bullet points?)? Just to say the items discussed, and any action plan as far as who is doing what. Volunteer? (someone can do it this meeting, someone else the next, etc.)

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:53:07 AM EDT 2003
Aw that stinks Anja...when I got home I added rhinestones and glitter to mine!!  Razz 

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:53:28 AM EDT 2003
Hi Kara and Laura and Kaitlyn!
Elizabeth- I was talking with Jeff, and one thing we would like to do with the projects is, instead of just looking up more info, we could try contacting people IN that country and getting first hand info. Which country were you doing again?

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:53:44 AM EDT 2003
I will do that!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:53:55 AM EDT 2003
France

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 11:53:56 AM EDT 2003
Hi Elizabeth! I'm serving as 'voice of Carolyn' today - she's at basketball camp all weekend.

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:54:10 AM EDT 2003
I know a friend of a friends' family that lives in France Elizabeth, I'll try and contact him.

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:54:21 AM EDT 2003
If no one else wants to do the minutes

Sam 13, IDYA, MI  (67.25.211.26) Sat Jul 26 11:54:40 AM EDT 2003
Before we start, I'd like to extend a warm welcome to all of the new IDYA on the chat. Thank you for coming, we're all glad that you're here.

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:55:09 AM EDT 2003
Elizabeth...I know there are a lot of active people in the diabetes community in France. As an addition to what you have already done, could you try contacting IDYA and/or organizations over there?

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 11:55:21 AM EDT 2003
Elizabeth, the minutes are yours to do today. Thank you. Grin 

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:55:35 AM EDT 2003
your welcome

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:55:52 AM EDT 2003
yea I would be glad to do that!

Lianna IDYA,12  (152.163.252.2) Sat Jul 26 11:55:52 AM EDT 2003
k I'm back my parents are leaving for house hunting- there doing it all weekend  Rolling Eyes 

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 11:56:37 AM EDT 2003
I'll be back in a little while...I feel low cuz I haven't eaten yet.

Lianna IDYA,12  (152.163.252.2) Sat Jul 26 11:57:06 AM EDT 2003
Bye Marissa

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 11:57:25 AM EDT 2003
I also want to thank ALL of you who participated in the conference a couple of weeks ago. The teens had an awesome presence at the conference. Just imagine how you will grow over the next year!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 11:58:19 AM EDT 2003
Jeff said we might be able to have two IDYA sessions in a row, so we can keep up the conversation. Cool 

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 11:58:21 AM EDT 2003
Did anyone, by chance, take the LifeScan "pin the strip on the meter" game home? Or ship it somewhere? It didn't make it back to my house or Clare's, and we're trying to hunt it down. It was expensive for LifeSCan to make, and we'd like to use it again if we can find it!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 11:58:50 AM EDT 2003
Yes I would like to thank all of the IDYAs who helped out at the booth!

Glyki 38, Germany, dx'd at 16, lead support group for ADULTS with D in Neunkirchen (Saarland)  (80.131.99.143) Sat Jul 26 11:59:14 AM EDT 2003
Wow, am I late?

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 11:59:37 AM EDT 2003
Or maybe an IDYA lunch next year, where you all can take your boxed lunches to a room, listen to some music, talk, brainstorm, etc.

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:00:14 PM EDT 2003
thats a good idea, Laura!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:00:14 PM EDT 2003
Hi Glyki! No, you are on time...we just log on early. Wink 

Lianna IDYA,12  (152.163.252.2) Sat Jul 26 12:00:16 PM EDT 2003
Hi Gylki, no your not late we all showed up early actually!

Lianna IDYA,12  (152.163.252.2) Sat Jul 26 12:00:45 PM EDT 2003
Yeah I like that idea Laura

Cali Girl Sister of diabetic Rachel, 15  (67.161.5.48) Sat Jul 26 12:00:58 PM EDT 2003
me too

Lianna IDYA,12  (152.163.252.2) Sat Jul 26 12:01:17 PM EDT 2003
Clare I found out tons of stuff on the screenvision thing

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:01:24 PM EDT 2003
That would be awsome Laura. We could have it be just a casual lunch conversation, and at the end everyone could share what they were talking about...so everyone gets to join in that way.

Kara 11, IDYA, dx'd 2000  (205.188.208.6) Sat Jul 26 12:01:29 PM EDT 2003
I like the idea too.

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:01:44 PM EDT 2003
Cool Lianna! What's the news?

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:02:00 PM EDT 2003
I also have another suggestion (as the CWD coordinator of the IDYA group). Clare and I have been discussing how to take some of the work and responsibility of IDYA off her shoulders (fine place initially, but she is getting busy with school and other things - as you all are) and distribute it among other IDYA leaders.

One of the things we discussed was having each of you take a turn at moderating the session (with my help). Sam has volunteered to do the August chat. Can someone else volunteer to do September? October? I promise I'll help you (and tell you what to do). Clare will help you as well.

Lianna IDYA,12  (152.163.252.2) Sat Jul 26 12:02:43 PM EDT 2003
Hold on let me get my notebook I have everything it it!

Lianna IDYA,12  (152.163.252.2) Sat Jul 26 12:03:20 PM EDT 2003
I'll do the one in September

Glyki 38, Germany, dx'd at 16, lead support group for ADULTS with D in Neunkirchen (Saarland)  (80.131.99.143) Sat Jul 26 12:03:48 PM EDT 2003
Hi Clare! Hi all you people who I don't even know whether they're here or not (btw - couldn't we have a list of who IS here?)

Hey, I want to discuss Paris:
1. Who's going?
2. Any plans / How do we meet?
3. What events do you find of greatest value?
4. ____________ (fill in the blank)

;-)

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:04:30 PM EDT 2003
I will do September

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:04:39 PM EDT 2003
or any other month!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:05:10 PM EDT 2003
I can do Oct. I didnt see that Lianna had pt Sept.

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 12:05:27 PM EDT 2003
The first thing I would want to see happen but don't know how to do myself, is get people to know the symptoms of Diabetes. I went months with drinking excessive amounts of water, depression, and loosing weight. I had no clue why at the time, but now I wished I knew more about Diabtetes BEFORE I got it.

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:06:27 PM EDT 2003
Fine on the lunch idea. I'll see what I can do. I'm heading to Los Angeles in September (with Clare's mom and Lauren Lanning) to look at the space and finalize what we have at the Sheraton Universal. You have a VERY cool space for the Teen Dance. Top floor of the Sheraton, enclosed in glass windows floor to ceiling. It feels like dancing in the sky...

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:07:14 PM EDT 2003
Hi Glyki! I will be in Paris. We can email privately about meeting up. I will actually be presenting on behalf of IDYA and CWD at the conference. It would be neat to meet and discuss ways to increase overseas communication and coordination. You in?

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 12:07:33 PM EDT 2003
Laura, you really make me wanna go now! Have to find a sponsor so I can be chaperone at the teen dance again!

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:07:41 PM EDT 2003
When is Paris?

Lianna IDYA 12  (152.163.252.2) Sat Jul 26 12:08:07 PM EDT 2003
the girl that will help us is a diabetic too!

Glyki 38, Germany, dx'd at 16, lead support group for ADULTS with D in Neunkirchen (Saarland)  (80.131.99.143) Sat Jul 26 12:08:47 PM EDT 2003
Laura B: to tell you the truth - I think alot happens in other channels (e-mail / IM) -- how effective would it be to keep "formal records" of (only) the chat?

Jeff 13,VA  (152.163.252.2) Sat Jul 26 12:09:32 PM EDT 2003
Hi every body!!!! Grin 

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:09:33 PM EDT 2003
Thanks, Lianna and Elizabeth! It really makes IDYA run so much smoother if lots of people volunteer and keep it moving forward.

Elizabeth, as the coordinator of staffing at the conference for the IDYAs, how do you think the table went? Were there gaps? Any concerns? I saw some slow times and also some completely mobbed times. What would be more helpful for next year? Also interested in this feedback from other IDYAs who were there (fine to email me privately if you'd rather).

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:09:34 PM EDT 2003
GeekGuyAndy- you are absolutely correct about the need to increase awareness! Would you be interested in joining IDYA? We all work on projects involving advocacy, anti-discrimination, and/or helping others...then we support each other and educate each other about what is happening. I think your ideas would be a great part of IDYA!

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 12:10:48 PM EDT 2003
I'd like to check it out a little more. Like I said, I've only had this for 2 weeks and don't know how much help I can be at the moment.

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:11:11 PM EDT 2003
Laura, at the conference the first night was mobbed more than the others, but I think thsat next year if more people would sign up and maybe have about 3 working each time session instead of 2

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:11:26 PM EDT 2003
Glyki - That is true and I agree. However, IDYA is sponsored by two corporations (Novo Nordisk and LifeScan) who ask for periodic reports on the 'doings' of IDYA. Formal documents will help, along with transcripts of chats and other backup information that everyone is working on (for example, the reports the people write about diabetes in other countries, reports on advocacy projects everyone is doing, etc.). IDYA always needs to be aware of where the support comes from, and give them back the information they need to continue the support.

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:11:36 PM EDT 2003
GeekGuyAndy- you should consider going to the conference in Baltimore-it's at the end of August

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 12:12:22 PM EDT 2003
What all happens at conferences? Going to Baltimore costs $$ that I don't quite have

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:12:45 PM EDT 2003
That would be much better Elizabeth...and hopefully we'll have whatever our little entertainment thing is there on the first night.. Rolling Eyes 

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:13:04 PM EDT 2003
Yea that would have been good

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:13:34 PM EDT 2003
GeekGuyAndy- at the conferences you go to different sessions about different things for example pumping and carb counting are some you might go to.

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:13:47 PM EDT 2003
Then there are fun things to do along the sides

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:14:10 PM EDT 2003
Here is another thing one of you might like to do:
I think it was Anja's idea originally, so she can have first shot for it, if she wont be too busy with work.
Laura and I were talking about getting someone to collect paragraphs describing each of the projects IDYA have worked on/ are working on. These can then be posted on the IDYA page, so we can have a record of what we have done, other IDYA can get ideas, and/ or they can join in to a project they are interested in. This "collector" position would last for about 5 months, then get handed off to a new IDYA. If you are interesed, you job would be to harass everyone into sending you the info, then sending them to Laura.

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:14:14 PM EDT 2003
You learn from the first time. We'll know next year that we have to plan the game/contest well ahead of time and follow up on the shipping! That one was my fault. I didn't make a call a week ahead of time to make sure it was being shipped at the right time. Sorry.  Frown 

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:14:29 PM EDT 2003
But I've never been to a regional conference (like Baltimore) so it might be a little different..Whoever has gone can you help?

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:14:46 PM EDT 2003
That's ok Laura!!!

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:14:53 PM EDT 2003
At least you thought of it!!  Wink 

Glyki 38, Germany, dx'd at 16, lead support group for ADULTS with D in Neunkirchen (Saarland)  (80.131.99.143) Sat Jul 26 12:15:07 PM EDT 2003
Yes, Clare!

Let me take this opportunity to say it is/was a FANTASTIC idea to schedule the chat's so Europeans, Africans, Arabians (and maybe even some Asians) can take part!

This was a very big step.

It might also help to give regular updates (by e-mail) of what's going on (formalized, a little like Laura B indicated). I know that is WORK (no solution on that one, yet).

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 12:15:37 PM EDT 2003
I already know about pumping from videos and carb counting from my dietician. It sounds like fun, but I just don't have money to travel

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:15:49 PM EDT 2003
Its alright Laura!

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:16:33 PM EDT 2003
Maybe you can go to the conference in L.A. next summer..talk to your parents and maybe start saving up now.

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:16:47 PM EDT 2003
It's definitely worth it I promise you!

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:17:04 PM EDT 2003
And it would especially benefit you because you are newly diagnosed

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:17:48 PM EDT 2003
I try to send out updates often. I would like to extend the offer for other IDYA to also update the list on what they are doing. Elizabeth? You said you would take minutes for this chat? Could you possibly send out the points to the list as an IDYA Update on what transpired? You might want to check it with Laura first, but I think everyone who couldn't make this chat would like to hear about it. Smile 

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:17:50 PM EDT 2003
The Baltimore info is listed online www.childrenwithdiabetes.com/activities/Baltimore2003
There is an entire teen track, and Natalie Bellini will be there with the teens. Evenings are left open to do fun stuff with Natalie.

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:18:22 PM EDT 2003
Great idea. The more info we share with each other, the better!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:18:58 PM EDT 2003
Yea I would be happy to...It might be a little later today when i send it but I will get it out today

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 12:19:06 PM EDT 2003
Maybe next year then

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:19:12 PM EDT 2003
Anja? I'll ask you first. Would you like to gather the paragraphs, or are you going to be very busy with work starting soon?

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:19:37 PM EDT 2003
Thanks Elizabeth!

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 12:19:56 PM EDT 2003
Clare, I'll do that - since I'll actually get a much better (and free!) internet connection when I move (in a week! can't wait!)

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:20:43 PM EDT 2003
Great Anja! You're in charge then.

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:21:00 PM EDT 2003
GO ANJA AND ELIZABETH!!!!  Smile 

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:21:04 PM EDT 2003
Clare - speaking of Natalie - I saw her a few days ago, and Erin volunteered to help with the write-ups of new IDYAs. So did Carolyn and Elizabeth... and I believe Marissa did as well. I know the applications are coming in quickly now, so this assistance should help quite a bit! Anyone else care to help with this? I think Clare has something like 60 or so new IDYAs to process - a brave venture trying to get it done herself, but this is something we all could be helping with. Hint hint hint hint....

Cali Girl Sister of diabetic Rachel, 15  (67.161.5.48) Sat Jul 26 12:21:04 PM EDT 2003
GeekGuyAndy- you would have a ton of fun an d also learn alot if you were able to come to the conference next year!!!

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:22:14 PM EDT 2003
I'll definitely help with that! Just e-mail me the info Clare

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 12:22:40 PM EDT 2003
I'm sure I would, I've learned a lot here on my own, and from talking to the parents and kids in CWD chat. I met a few kids in my area with very similar interests and plan to meet them eventually. Traveling is just something I can't do for a little while.

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:22:45 PM EDT 2003
I know Lianna and Allison Blass said they'd help too. I appreciate it everyone! Laura...I'm sending a big stack off to you to be distributed.

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 12:23:42 PM EDT 2003
There's so much information online, and I've spent many hours reading about diabetes. I actually answer a lot of question from people that have had diabetic kids for years. I think everyone jjust needs to read a little and understand it.

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:23:50 PM EDT 2003
Marz- I'm forwarding the handwritten to Laura so she can send those out. Also, I'm sending her some of the online sign ups...I don't want both Laura and me to send them to one person and overload them.

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:24:01 PM EDT 2003
Laura, are you just going to send mine by Carolyn or email?

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:24:11 PM EDT 2003
That's cool

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:24:15 PM EDT 2003
Thanks for volunteering, Anja! You can send the write-ups to me, and I'll make sure they get online.

Also, Carolyn (my daughter) sent out an email last week asking people to send photos from the conference or any other CWD/IDYA venture. She is putting together a scrapbook for 2003. I can take this to our conferences (CWD has a booth at ADA and AADE conferences) and share with the diabetes professionals, distribute info about IDYA, and hopefully get the word out about IDYA. Clare's mom, Kari, helps me with conferences - she'll be there, too. It's nice to have something in hand to actually show people, faces to names, etc. So, if you have photos or stories, please send them along to CB.

Glyki 38, Germany, dx'd at 16, lead support group for ADULTS with D in Neunkirchen (Saarland)  (80.131.99.143) Sat Jul 26 12:24:45 PM EDT 2003
Laura B and Clare (and Jeff?):

I understand too well where you are all coming from with the moderation of chats and stuff like that. Let me add a couple ideas.

1. Have an agenda to send out by email.
2. Have a bulletin board to collect ideas (for agenda)
3. come prepared
4. in a similar vein, perhaps committees could be set up for particular topics and/or regions (e.g. school, europe, etc.)

What d'y'all think?

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:24:58 PM EDT 2003
Will do Laura!

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:24:59 PM EDT 2003
I'll try and send some pictures but my camera that I used is broked so most of the pictures came out blurry..sorry  Frown 

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:26:35 PM EDT 2003
Lianna- as you learn more about the movie slide show possibility for adds...could you email the list?

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:26:50 PM EDT 2003
Glyki - The chats are set up to be that - 'chats.' I'd like minutes with bullet points just so I can have a formal record for the sponsors of the business items that we actually do talk about. But these chats really are an opportunity for the teens to talk to each other. While it should be IDYA-related, it's really fine if it isn't. This is a support mechanism.

Kara IDYA, dx'd 2000  (205.188.208.6) Sat Jul 26 12:27:04 PM EDT 2003
I'll be right back I think I'm going low.

sydney new to idya  (66.177.187.63) Sat Jul 26 12:27:31 PM EDT 2003
Hi!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:28:08 PM EDT 2003
Hi Sydney and welcome! Glad you came! Grin 

Cali Girl Sister of diabetic Rachel, 15  (67.161.5.48) Sat Jul 26 12:28:15 PM EDT 2003
welcome sydney!!!

Kara IDYA, dx'd 2000  (205.188.208.6) Sat Jul 26 12:29:00 PM EDT 2003
I'm new to IDYA how can i help?

bebe   (205.188.208.6) Sat Jul 26 12:29:28 PM EDT 2003
hi everyone

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:29:47 PM EDT 2003
Well, I want to report on one item - Sam is too humble to say anything about it. He and Carolyn raised enough money this year to bring Anja and Marie from Denmark to the conference in Orlando. Maersk (now Unomedical) helped with the airfare, but CB and SB raised money through bake sales, a promotion at the video place in town, and pop can returns to pay for the conference for our 'two new family members' (and they truly became that - poor Sam, he now has three sisters). I wanted to share that because it's a great example of how fund-raising, even a little at a time, can add up to something really big that is very meaningful to other people. If anyone wants details, I'm sure Sam and Carolyn would be happy to share with you.

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:29:59 PM EDT 2003
Elizabeth- as you take notes for the update later, could you ask everyone else doing a country research project to do the same as you, and try to contact IDYA amd/or national organizations to get that first hand info included?

Jeff 13,VA  (64.12.96.46) Sat Jul 26 12:30:44 PM EDT 2003
Hi how could i help out like do things.. Confused 

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:30:46 PM EDT 2003
consider it done! Wink 

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:31:10 PM EDT 2003
Sam and Caroly...I never recognized you formally at the conference for this outstanding work. You guys are awsome and put a lot of work into making that trip happen! My hat's off to you both!

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:32:00 PM EDT 2003
Hey Jeff - How close do you live to Baltimore? (I see Virginia, but that's a big place). We'd love to have your help at the conference. Teen volunteers are the best!  Smile 

sydney new to idya  (66.177.187.63) Sat Jul 26 12:32:07 PM EDT 2003
I was at the expo 2003. Me and a friend were thinking of doing a news report for the schools.

Sam 13, IDYA, MI  (67.25.211.26) Sat Jul 26 12:32:11 PM EDT 2003
Thanks, Clare.

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 12:32:33 PM EDT 2003
And I surely appreciate the work Sam and Carolyn did - it was a pleasure to stay with them...

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:33:03 PM EDT 2003
jeff where in VA are you?

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:33:23 PM EDT 2003
Even with all the dog hair (which I'm sure you are STILL pulling out of your suitcase and off your clothing...)

Glyki 38, Germany, dx'd at 16, lead support group for ADULTS with D in Neunkirchen (Saarland)  (80.131.99.143) Sat Jul 26 12:33:24 PM EDT 2003
I, myself, feel that the chat DOESN'T function as a SUPPORT mechanism. I feel there are things being planned/done, and an agenda would only support that. Perhaps these two functions and/or levels of communication should be more clearly separated. Thoughts?

Jeff 13,VA  (64.12.96.46) Sat Jul 26 12:33:27 PM EDT 2003
ummmmmmm
i live in charoletsville

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:34:37 PM EDT 2003
Hey!

sydney New to IDYA 11 Dx'd @ 7  (66.177.187.63) Sat Jul 26 12:34:38 PM EDT 2003
..

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:34:45 PM EDT 2003
HEY ERIN!!!!!!

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:34:45 PM EDT 2003
Hey Erin!!

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 12:34:59 PM EDT 2003
Laura, I think most of the dog hair was taken by the maids at Disney Grin 

Sam 13, IDYA, MI  (67.25.211.26) Sat Jul 26 12:35:15 PM EDT 2003
Howdy doody Erin

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 12:35:17 PM EDT 2003
hi Erin!

sydney New to IDYA 11 Dx'd @ 7  (66.177.187.63) Sat Jul 26 12:35:27 PM EDT 2003
 Razz 

sydney New to IDYA 11 Dx'd @ 7  (66.177.187.63) Sat Jul 26 12:35:43 PM EDT 2003
Hey Howdy Hey Erin!

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:35:47 PM EDT 2003
Some of the best plans and projects come from chatty discussion. You and I might feel differently because we are of similar ages. The teens on this list are teens. We appear to be the only adults here. Adult meetings are quite different. I'd be happy to chat with you privately in an email discussion. Laura.Billetdeaux@childrenwithdiabetes.com
I am the CWD contact point for IDYA, so suggestions should come through me.  Smile 

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:35:47 PM EDT 2003
Kara and Jeff...you both want to get involved and that is truly wonderful. One thing we encourage every IDYA to do is find something that they would enjoy doing, then if your project requires support or backing from other IDYA, we will help you! Some examples...Jay has been sending educational letters and emails to celebraties for three years now (he's sent about 3,300). Other among us do things like Carolyn and Sam. Marissa created a petition to end the discrimination against one of our IDYA, Karen Murphy, because of her diabetes. Some of us are collecting supplies to send diabetes management tools and education materials to kids in need. Basicly, the projects can be anything, and we use IDYA as our means of connecting to each other and discussing them. IDYA is our support network, for diabetes and our projects, and we use it to also learn about diabetes management in other places. The question is, what sort of advocacy interests you?

Jeff 13,VA  (64.12.96.46) Sat Jul 26 12:35:54 PM EDT 2003
Well when is the next confrence Confused 

Kara IDYA, dx'd 2000  (205.188.208.6) Sat Jul 26 12:36:04 PM EDT 2003
 Confused 

GeekGuyAndy @cwdmail.com | 17/m/nh | dx: 7/03  (24.50.149.87) Sat Jul 26 12:36:14 PM EDT 2003
Well I'm leaving to get lunch. I probably wont be back. Seeya and good luck advocating

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:36:41 PM EDT 2003
bye!

Jeff 13,VA  (64.12.96.46) Sat Jul 26 12:36:50 PM EDT 2003
hmmmmm i c thanks Grin 

sydney New to IDYA 11 Dx'd @ 7  (66.177.187.63) Sat Jul 26 12:36:57 PM EDT 2003
I really want to get into traveling when i get older....  Grin 

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:37:00 PM EDT 2003
Hi Erin! See you soon GeekGuyAndy...please check out the IDYA web area.

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:37:05 PM EDT 2003
Jeff. there is a conference labor day weekend in Baltimore!

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:37:59 PM EDT 2003
Elizabeth- How many more days? Cool 

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:38:17 PM EDT 2003
Erin- 34!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:38:23 PM EDT 2003
Sorry if that was an overload Kara and Jeff...it sounds like a ton of work, but the goal is to find something you WANT to do, that you would enjoy, then you put in the energy and direction YOu want. It's lots of fun!!!!!!

sydney New to IDYA 11 Dx'd @ 7  (66.177.187.63) Sat Jul 26 12:38:27 PM EDT 2003
I have tried to persuade my friend to join IDYA.. but she thinks its only for diabetics... how do i tell her?

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:38:49 PM EDT 2003
Does anyone have any plans for doing fundraisers this summer for the boy in Hondorus?

Michelle   (205.188.208.6) Sat Jul 26 12:39:01 PM EDT 2003
how do you join the idya?

Kara IDYA, dx'd 2000  (205.188.208.6) Sat Jul 26 12:39:20 PM EDT 2003
it's ok Clare, thanks for telling me about it.

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:39:23 PM EDT 2003
All CWD events are listed at:
www.childrenwithdiabetes.com/activities

Just as an aside, we have had some very limited preliminary discussion about trying some teen 'outdoor' trips, like river-rafting, or camping, or - whatever. I'm open to suggestions. It won't happen this year, but there is a core group of adults who would like to work with and chaperone groups of teens on some outdoor fun trips. More on this later, but I'm open to your suggestions. Ok to email me privately.

sydney New to IDYA 11 Dx'd @ 7  (66.177.187.63) Sat Jul 26 12:39:23 PM EDT 2003
Is the next diabetes expo gonna be at conanado springs resort again? It was fun! LOL  LOL 

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:39:30 PM EDT 2003
Lots of Idya don't have diabeteS

Kara IDYA, dx'd 2000  (205.188.208.6) Sat Jul 26 12:39:41 PM EDT 2003
I have to go get lunch, bye everyone

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:39:58 PM EDT 2003
sydney-tell her that one of the most importand IDYA's is Sam's sister Carolyn an she doesn't have diabetes

sydney New to IDYA 11 Dx'd @ 7  (66.177.187.63) Sat Jul 26 12:40:01 PM EDT 2003
Michlle- go to the idya main page.. it says "join us" clickie and fill out the form

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:40:04 PM EDT 2003
Erin doesn't have diabetes

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:40:04 PM EDT 2003
Glyki...before the chat we send important issues to address to the moderator and they make sure everything gets mentioned and discussed at some point. However, by keeping it open to change, we give ourselves the freedom to brainstorm and support new members who aren't aware of what is happening.

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:40:12 PM EDT 2003
lucky duck!  Razz 

Cali Girl Sister of diabetic Rachel, 15  (67.161.5.48) Sat Jul 26 12:40:17 PM EDT 2003
i dont have diabetes

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:40:29 PM EDT 2003
Erin doesn't have diabetes. Her mom does!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:40:46 PM EDT 2003
By Kara! It was good to see you!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:41:40 PM EDT 2003
thanks erin!

sydney New to IDYA 11 Dx'd @ 7  (66.177.187.63) Sat Jul 26 12:41:48 PM EDT 2003
Clare- At the expo, i handed in a form to join idya... i'm not sure if you got it yet.. but i haven't recived a letter... I know you have a lot... but whats the estimate in time.

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:41:53 PM EDT 2003
is anyone going to do fundraisers for the boy in Honduras this summer?

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:42:11 PM EDT 2003
last time i asked no one answererd...sry!

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 12:42:30 PM EDT 2003
Laura, if you'd like to hear some experiences about outdoor teen diabetes events, we've done some in Denmark. We'll have a canoe trip one weekend in September actually

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:42:35 PM EDT 2003
I got an email from an amazing teen yesterday. Her grandfather passed away because of diabetes, and while she doesn't have it hereself, she is incredibly passionate about educating others and finding a cure. If you are affected by diabetes, even through a family member or friend, you can still be an awsome ambassador.

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:43:14 PM EDT 2003
Clare-do you need help typing biography things?

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:43:27 PM EDT 2003
Alright I'm going to leave now I have to go to this ceremony thing for my friend's brother. Talk to you all later!

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:43:36 PM EDT 2003
Marissa
Are you coming to visit?

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:43:50 PM EDT 2003
Yeah I dont know when yet tho

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:43:53 PM EDT 2003
Sydney...I intend to send those out soon. Sorry it has taken so long. We are currently sending bios to many IDYA who can help type them up, since there were so many. Rest assured you are an IDYA and we'll have your bio up ASAP!

Glyki 38, Germany, dx'd at 16, lead support group for ADULTS with D in Neunkirchen (Saarland)  (80.131.99.143) Sat Jul 26 12:43:54 PM EDT 2003
okee dokee (got it loud and clear)

Another idea: how about if the moderator "interviews" one of our IDYAs -- kind of like a talk show?

Maybe you have seen such chat forms with "prominent" people. That might be another twist. But in order to raise the "support" idea, perhaps a kind of "waiting list" could be set up with people who are experiencing problems (like that guy from UAE), and then maybe part of a chat could be devoted to such a discussion. From that point of view, perhaps such topics should be raised anonymously and then simply "chatted about" withou pinning them down on any particular person.

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:44:07 PM EDT 2003
my mom has to talk to your mom...is she home?

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:44:11 PM EDT 2003
Erin - Clare is sending me a bunch of them to distribute to the folks who have volunteered. You're on the hit list. I'll send yours shortly. Rolling Eyes 

Sam 13, IDYA, MI  (67.25.211.26) Sat Jul 26 12:44:15 PM EDT 2003
Bye Marissa

Jeff 13,VA  (64.12.96.46) Sat Jul 26 12:44:18 PM EDT 2003
 Smile 

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:44:35 PM EDT 2003
clare-Do you need help typing the bios?

Marissa IDYA, almost 16, dx'd at 2  (216.68.227.14) Sat Jul 26 12:44:37 PM EDT 2003
C ya sam

Cali Girl Sister of diabetic Rachel, 15  (67.161.5.48) Sat Jul 26 12:44:41 PM EDT 2003
sorry guys, i have to go to work now but it was great talking to all of you and i hope to do so again

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:44:45 PM EDT 2003
Take care Marz!!!

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:45:05 PM EDT 2003
by Marz!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:45:17 PM EDT 2003
Erin- I'd love your help typing them. Laura will be distributing them fairly very soon.

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:45:36 PM EDT 2003
ok

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:45:40 PM EDT 2003
See you soon Cali Girl!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:45:40 PM EDT 2003
Frakin Bye Marz...haha

Sara McNeeley   (205.186.133.22) Sat Jul 26 12:45:49 PM EDT 2003
hey Clare- its sara Wink  Grin 

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:46:19 PM EDT 2003
HEY SARA!!!!!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:46:42 PM EDT 2003
Hi Sara!!!!!!!! How are you?! Grin  Grin  Cool 

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:46:45 PM EDT 2003
hey Sara

Sydney New to IDYA 11 Dx'd @ 7  (66.177.187.63) Sat Jul 26 12:46:59 PM EDT 2003
okay.. thanks.. i have to go. i hope i see you guys at the next confrence!

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:47:26 PM EDT 2003
Or how about the opposite - instead of having an IDYA be the center of attention, we could have someone really interesting to all of them lead a chat WITH them about a teen-oriented topic. It would be much more focused than this free-form discussion (although, as Clare pointed out, the moderator always does start with a list of things to be covered during the chat, whenever that may happen).

IDYAs, if we were to have chats on specific topics, what would interest you? One that pops into my mind, especially with school coming up, is sports, weird school schedules (lunch at 10:30?), etc. Other ideas? These chats would be entirely separate from the normal chats. And we could try to schedule them on Saturday's mid-day so our European folks can join. ???

Jeff 13,VA  (64.12.96.46) Sat Jul 26 12:47:27 PM EDT 2003
 Confused 

Sara McNeeley   (205.186.133.22) Sat Jul 26 12:47:44 PM EDT 2003
HEY YALL

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:47:49 PM EDT 2003
Elizabeth- I got dance info i will send it to u

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:47:59 PM EDT 2003
By Sydney! You can email me later if you want to talk about projects you want to do.

Sara McNeeley   (205.186.133.22) Sat Jul 26 12:48:06 PM EDT 2003
How is everyon?
 Confused 

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:48:17 PM EDT 2003
K ...yayy...send it by email

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:48:35 PM EDT 2003
I'm great sara, how about you?

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:48:37 PM EDT 2003
I will

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:48:41 PM EDT 2003
Hey Sara - Really good to see you.

Sara McNeeley   (205.186.133.22) Sat Jul 26 12:49:25 PM EDT 2003
um, im actully low! im 42

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:49:42 PM EDT 2003
I personally would love to have "focus group chats" more often. We could arrange the topics as important issues come up. Or for example, if a group of us want to talk about a specific project we could have a chat and get it done. Thoughts?

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:49:54 PM EDT 2003
Sam- Did you get a white tuxs? Cool 

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:50:28 PM EDT 2003
AAAckkk...go take care of it Sara! We'll be here for a while.

Sara McNeeley   (205.186.133.22) Sat Jul 26 12:50:46 PM EDT 2003
i have to go guys, i have soccer tryouts

Sara McNeeley   (205.186.133.22) Sat Jul 26 12:50:53 PM EDT 2003
bye, guys, tak to ya soon!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:51:04 PM EDT 2003
GREAT IDEA CLARE! Smile 

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:51:06 PM EDT 2003
Anja, please send me an email about some of the very cool trips being done by the teens in Denmark. Marie mentioned some to me, but I don't remember the details.

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:51:08 PM EDT 2003
bye

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:51:17 PM EDT 2003
By Sara! Have fun!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:51:26 PM EDT 2003
bye Sara

Sara McNeeley   (205.186.133.22) Sat Jul 26 12:51:42 PM EDT 2003
thanks!

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 12:51:54 PM EDT 2003
I will, Laura.

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:52:07 PM EDT 2003
Anja and Laura...could we even post something about Anja and Marie's trip to the U.S. and the other travels Marie is talking about?

Glyki 38, Germany, dx'd at 16, lead support group for ADULTS with D in Neunkirchen (Saarland)  (80.131.99.143) Sat Jul 26 12:52:08 PM EDT 2003
Laura B:

you yourself just said the whole world (may be) watching ...

So: I think it would be better to collect such ideas in peace and quiet and anonymously -- bulletin board?

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:52:22 PM EDT 2003
Jeff can set up a chat any time you all feel a need for one. Very easy to do. Even if it's a focused chat - for example if one of the IDYA needs some help problem-solving a particular situation. Or needs input on a project or something. I know a lot of you have instant messenger, but a lot of you don't. This would be a more formal way of doing it.

Jeff 13,VA  (64.12.96.46) Sat Jul 26 12:53:34 PM EDT 2003
i see
ok
thanks Cool 

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:53:53 PM EDT 2003
Glyki - I'm not sure what you're talking about. Please email me privately.

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:54:02 PM EDT 2003
That way other people that couldn't join in the chat would also be able to get updated by the transcript...and maybe we could make sure to have someone appointed to send out an update after every chat. Thoughts?

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 12:54:14 PM EDT 2003
Marie and I could probably write something (suppose we're doing something for Unomedical anyway... dunno really) about the trip - and the differences between Denmark and the US (like laaarge milk shakes)

Jeff 13,VA  (64.12.96.46) Sat Jul 26 12:54:45 PM EDT 2003
i have IM

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:54:51 PM EDT 2003
Once again Great Idea Clare

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:54:55 PM EDT 2003
Elizabeth...please mention this in the update as well. the IDYA need to know they have the ability to call a "chat meeting."

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:55:31 PM EDT 2003
Great idea, Clare. This is all about sharing information and support. Not everyone can make it to the chats at a specific time.

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:55:40 PM EDT 2003
your writing an upodate Elizabeth?

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:55:57 PM EDT 2003
update*

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:56:00 PM EDT 2003
Clare- I just wrote that down to put in the email..You can read my mind

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:56:09 PM EDT 2003
yes I am

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:56:09 PM EDT 2003
Anja...good idea. I think sharing cultural differences is a good thing. Especially the interesting bolusing experiences...? What do you think Laura...we could write about the potatos in Denmark? Wink 

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:56:48 PM EDT 2003
is it going out to everyone on e mail or should we read it on the web?

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:57:22 PM EDT 2003
I don't know why I bother...you are sooo on top of it Elizabeth! You do great work! Cool 

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:57:29 PM EDT 2003
It is ging by email to every IDYA

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:57:44 PM EDT 2003
ok

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:57:54 PM EDT 2003
I love it! As we speak, I just received another IDYA application. From Louisiana. You IDYAs are just an incredible group. I am very proud to work with you all! Grin 

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:58:00 PM EDT 2003
Thanks Clare, Same to you!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:58:11 PM EDT 2003
That's an interesting idea Erin. Laura...could we creat a new section of the IDYA page where updates that go out in emails are also posted?

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:58:22 PM EDT 2003
Thanks Laura we are proud to ahve you work with us! Wink 

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:58:22 PM EDT 2003
gtg i am on vacation in Cape Cod!

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 12:58:54 PM EDT 2003
bye everybody

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 12:59:03 PM EDT 2003
Bye Erin

Sam 13, IDYA, MI  (67.25.211.26) Sat Jul 26 12:59:07 PM EDT 2003
Bye Erin

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 12:59:36 PM EDT 2003
Laura and I saw an application from Ghana yesterday. He didn't fill it all out, so we're seeing if he can resubmit it...but we may be adding a new country to IDYA!

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 12:59:39 PM EDT 2003
Have a great vacation, Erin. Make sure your mom spends SOME time with her toes in the sand, looking out at the ocean. Steal her cell phone.

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:00:12 PM EDT 2003
Bye Erin! I love your ideas... Smile 

Sam 13, IDYA, MI  (67.25.211.26) Sat Jul 26 01:00:31 PM EDT 2003
How many countries would that make it then?

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 01:00:37 PM EDT 2003
Let's talk about what the bulletins would look like (Erin/Clare). I'm not sure I understand entirely what you'd like. But you know Jeff - he can make anything happen online.

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 01:00:47 PM EDT 2003
32 I think

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 01:00:51 PM EDT 2003
i will try! i am praying there is no service!

Jeff 13,VA  (64.12.96.46) Sat Jul 26 01:00:58 PM EDT 2003
4 the chat they go on IDYA site and get other peoples email and email them

Erin Bellini Natalie's daughter  (24.91.206.61) Sat Jul 26 01:01:01 PM EDT 2003
bye

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:01:24 PM EDT 2003
Sounds good Laura...I'll email you and Elizabeth after the chat. The three of us can talk.

Jeff 13,VA  (64.12.96.46) Sat Jul 26 01:01:49 PM EDT 2003
right

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:01:53 PM EDT 2003
I'm actually not sure about the number...it is something about 30.

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:02:04 PM EDT 2003
I'll have to check!

xoangel143   (205.188.208.6) Sat Jul 26 01:02:18 PM EDT 2003
hey

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 01:02:44 PM EDT 2003
Laura and Clare- Is it alright that I send the email a little later today because I have to go in a few!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:03:07 PM EDT 2003
Hi xoangel143! Are you an IDYA?

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:03:34 PM EDT 2003
That's fine Elizabeth. Thanks for doing it!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 01:03:58 PM EDT 2003
Your Welcome

Jeff 13,VA  (64.12.96.46) Sat Jul 26 01:04:39 PM EDT 2003
I GTG BYE!!!! Evil Grin 

Sam 13, IDYA, MI  (67.25.211.26) Sat Jul 26 01:05:18 PM EDT 2003
bye jeff

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 01:05:20 PM EDT 2003
bye jeff!

Glyki 38, Germany, dx'd at 16, lead support group for ADULTS with D in Neunkirchen (Saarland)  (80.131.99.143) Sat Jul 26 01:05:21 PM EDT 2003
Clare and Laura B:

I hope you can wait on e-mails from me (father of 3 cute kids myself) -- otherwise you send one first!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:05:26 PM EDT 2003
Thanks for coming Jeff! See you soon!

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 01:06:25 PM EDT 2003
Elizabeth - It's fine. Tomorrow or Monday would be fine, too.
Thanks everyone for being here on a Saturday afternoon/evening! It's always great to chat with you!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 01:07:17 PM EDT 2003
ok I will aim for tonight!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 01:07:27 PM EDT 2003
So are we summing this up?

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 01:07:30 PM EDT 2003
Glyki - please feel free to share your comments with me: Laura.Billetdeaux@childrenwithdiabetes.com I can pass them along to Clare and the other IDYA leaders. We love input and new ideas. Have fun with the kids!  Smile 

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:07:33 PM EDT 2003
Thanks for those on the west coast too...we can all go have breakfast now. Grin 

Anja IDYA, 18 - Denmark  (195.82.220.216) Sat Jul 26 01:07:37 PM EDT 2003
gotta go too, need to get some rest before going out tonight! Talk to you all later Cool 

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:07:54 PM EDT 2003
THanks Glyki!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:08:17 PM EDT 2003
Anja...I'll email you soon. Have fun!

Glyki 38, Germany, dx'd at 16, lead support group for ADULTS with D in Neunkirchen (Saarland)  (80.131.99.143) Sat Jul 26 01:08:43 PM EDT 2003
See ya later alligators!

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 01:08:55 PM EDT 2003
ok Well I am going to go Clare and Laura I will email you all (y'all) later!`

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:09:12 PM EDT 2003
Later Glyki!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:09:42 PM EDT 2003
 Grin I look forward to it Elizabeth

Elizabeth IDYA 15 dx'd @ 3  (216.24.65.178) Sat Jul 26 01:10:05 PM EDT 2003
Bye Guys!

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:10:48 PM EDT 2003
Laura...I'm going to send the bios I typed last night out to you in a few minutes.

Laura B CWD events, Sam's mom  (68.41.54.181) Sat Jul 26 01:11:52 PM EDT 2003
Ok, bye everyone! Have a great day. Thanks for being here. Smile 

Clare Rosenfeld IDYA; 17 years old  (67.250.105.65) Sat Jul 26 01:12:24 PM EDT 2003
Thanks Laura! I'll see you all soon. I'm going to head out too. Smile 



                 
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