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Transcript of Chat with Mandy Gardner, reporter from the New York Daily News, from September 8, 1999

On September 8, 1999, Mandy Gardner, reporter from the New York Daily News, chatted with parents and adults with diabetes about the challenges people with diabetes face. Ms. Gardner is working on an article about diabetes that will appear in the November 15, 1999 edition of the paper. Mandy can be reached via e-mail at mandyji@aol.com.

Wed Sep 8 1999 20:34:14 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
The special chat with Mandy Gardner begins at 21:00 Eastern Time.

Wed Sep 8 1999 20:56:07 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
Howdy

Wed Sep 8 1999 20:56:50 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Hi Julie

Wed Sep 8 1999 20:57:41 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
Hi Mandy , How are you tonight?

Wed Sep 8 1999 20:57:58 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Does Shane have Type I diabetes? I guess you know I'm writing a newspaper article on diabetes - mostly Type II but will be including I as well. I'm interested in the special concerns that all parents of children with diabetes have. Any special ones for you?

Wed Sep 8 1999 20:58:33 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Hi Mandy, thanks for coming.

Wed Sep 8 1999 20:58:57 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Hi Jeff,
Thanks for setting this up and I guess I kind of jumped in there!

Wed Sep 8 1999 20:59:00 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
yes.. shane is type 1, and have a problem right now with my sons School

Wed Sep 8 1999 20:59:54 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
what kind of problem? what grade is he in?

Wed Sep 8 1999 21:00:05 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy, there are many parents who are interested in sharing their experiences related to diabetes at school. As I mentioned, kids with diabetes -- Type 1 or Type 2 -- face the same challenges at school related to discrimination.

Wed Sep 8 1999 21:00:19 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
ok.. he is currently in 3rd grade

Wed Sep 8 1999 21:00:34 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
wow thios could take awhile to explain

Wed Sep 8 1999 21:00:47 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
evening, all.

Wed Sep 8 1999 21:00:53 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
tell as much or as little as you want . . .

Wed Sep 8 1999 21:01:05 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Hi Kathy

Wed Sep 8 1999 21:01:13 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
this school he attends is a school of choice school we live in another distric and chose to send him here because of the education and class limits

Wed Sep 8 1999 21:01:44 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Kathy - we were talking about special concerns you have regarding your child's school life. Do you have any?

Wed Sep 8 1999 21:01:52 Eastern US
Susanne (Michigan Mary 7 dx. 12/96) from 207.89.137.231
Seems like a Michigan crowd so far.

Wed Sep 8 1999 21:01:56 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
the year he was diagnosed , which was in april of 98 .. i decided to take care of him when he returned to his school after 2 weeks

Wed Sep 8 1999 21:02:46 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
I had my first concern when i scheduled a meeting with his teacher, the principle and a diabetes educator nurse to teach them about his glucagon

Wed Sep 8 1999 21:03:14 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Hi Susanne. I'm asking about special concerns re school. Does your child have type I?

Wed Sep 8 1999 21:03:33 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
this principle after approx 5 min into the meeting got up and said he was late for an important meetinging, he asked us to leave him paperwork and left

Wed Sep 8 1999 21:03:39 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
Not really, Mandy, my kids go to a Catholic school, and they have been great. Just here for moral support.

Wed Sep 8 1999 21:03:43 Eastern US
Karen (IL) (Christie 12, dx. 12/97) from 205.188.197.186
Hello

Wed Sep 8 1999 21:04:04 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
we let it go and trained his teacher since she was with him all day then that year ended

Wed Sep 8 1999 21:04:34 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
his second grade year i studied my butt off that summer and learned of a few things i knew the school had to help with his care

Wed Sep 8 1999 21:04:38 Eastern US
Susanne (Michigan Mary 7 dx. 12/96) from 207.89.137.231
My child is type l and has just started first grade. She is in school full time. We have had several meeting with the schools since diagnosis. She has attended 4 different schools since diagnosis.

Wed Sep 8 1999 21:04:54 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
They had a little trouble this year because she is now on a lunch shot, but once they realized they wouldn't have to administer it, they were ok.

Wed Sep 8 1999 21:05:19 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Susanne - Wow. The four different schools were as a result of the diabetes? What happened?

Wed Sep 8 1999 21:05:48 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Kath/MI - do they deal ok with her administering her own shot? where does she do it?

Wed Sep 8 1999 21:07:05 Eastern US
Susanne (Michigan Mary 7 dx. 12/96) from 207.89.137.231
Right now the staff, teachers, aids, secretary are so busy with all the other kids it has been difficult for them to focus on her needs. I went in the first 2 weeks of school and ate lunch with her and helped her check her bg. at lunch.

Wed Sep 8 1999 21:07:30 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
so far I have been going in to administer it, the pen is back ordered, so I don't have an extra one to leave at school yet; she does it in the office/lounge.

Wed Sep 8 1999 21:08:13 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
how do the other kids deal? is there any effort to help them understand?

Wed Sep 8 1999 21:08:27 Eastern US
Susanne (Michigan Mary 7 dx. 12/96) from 207.89.137.231
l. Preschool as a 4 year old
2. Public kindergarten
3. Private kindergarten-Mom did not think she was mature enough to handle first grade.
4. Another public school first-third grade.

Wed Sep 8 1999 21:08:53 Eastern US
Karen (IL) (Christie 12, dx. 12/97) from 205.188.197.186
I think the hardest part is getting them to understand that D is serious. They think because you take insulin that everything is all right.

Wed Sep 8 1999 21:09:01 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
Sigh.. this just bums me out that these kids are treated like this

Wed Sep 8 1999 21:09:12 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
I have always sent in a couple of diabetes books for the teacher to read, but in the Catholic school, there is only one class per grade, so they all know her.

Wed Sep 8 1999 21:09:24 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Susanne - so these weren't a result of diabetes? How have the schools been in accepting her diabetes and helping her?

Wed Sep 8 1999 21:09:39 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Kathy/MI - which diabetes books do you send in?

Wed Sep 8 1999 21:10:01 Eastern US
Susanne (Michigan Mary 7 dx. 12/96) from 207.89.137.231
The other kids do wonderful. So many of the kids in the class have so many needs, as inhalers for their asthma, Ritalin for the ADD, ADHD, glasses, etc. that diabetes is just one more thing.

Wed Sep 8 1999 21:10:04 Eastern US
Wanda from 152.163.207.208
Hello All

Wed Sep 8 1999 21:10:25 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
the kids must mature very quickly when they have this responsibility (your kids)

Wed Sep 8 1999 21:10:41 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
big time know what i was told, on the phone, just yesterday from an Asst Superintendant.. I asked for a IEP for my son, and this lady veered from that, she then said she was only concerned about Shanes care and that we should watch what kind of Disability programs we ask for because in the future it would give him a bad label :(

Wed Sep 8 1999 21:10:52 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
what about gym class/phys ed?

Wed Sep 8 1999 21:10:57 Eastern US
Susanne (Michigan Mary 7 dx. 12/96) from 207.89.137.231
The schools were not the results of diabetes. Its just the way our community is set up. It did take a lot of education on my part to teach 4 different staffs in 4 years how to take care of her.

Wed Sep 8 1999 21:11:00 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Hi Wanda

Wed Sep 8 1999 21:11:31 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
what's IEP?

Wed Sep 8 1999 21:11:36 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
Hello. Mandy, thanks for writing an article about the challenges of living with diabetes. My son, an 8th grader, is in his 11th year of school! Nearly all of those have gone well. One aspect that needs to be mentioned is extracurricular activities, esp sports.

Wed Sep 8 1999 21:11:56 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Susanne- how did you go about educating the staffs?

Wed Sep 8 1999 21:11:57 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
"Taking Diabetes to School", and another one (I would have to go look at to remember the title)that deals with a little girl when she was diagnosed.

Wed Sep 8 1999 21:12:06 Eastern US
Linda/So. Utah from 216.190.28.33
Hi. How is everyone tonight...

Wed Sep 8 1999 21:12:14 Eastern US
mary kay from 205.188.198.41
I have a four year old with Diabetes, diagnosed at 16 months. I am scared stiff sending her to public school next year!

Wed Sep 8 1999 21:12:21 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Judith - tell me about sports.

Wed Sep 8 1999 21:12:37 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
mary kay - how are you preparing?

Wed Sep 8 1999 21:12:42 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.59
Hello

Wed Sep 8 1999 21:12:54 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Hi Linda

Wed Sep 8 1999 21:13:15 Eastern US
mary kay from 205.188.198.41
What is the law concerning how much the school is responsible for in helping with diabetic needs?

Wed Sep 8 1999 21:13:15 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Does everyone here have a child with Type I? Any Type II?

Wed Sep 8 1999 21:13:16 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
Individualized Evaluation Program

Wed Sep 8 1999 21:13:22 Eastern US
Wanda (Kaitlyn 5..dx'd 12-98) from 152.163.207.208
I am trying to write a "care plan" for Kaitlyn's for school, What should be a correct b.s. for not doing gym class? What is to high for activity?

Wed Sep 8 1999 21:13:32 Eastern US
Linda/So. Utah from 216.190.28.33
while some school districts are hard to work with, some are wonderful...ours has been wonderful!

Wed Sep 8 1999 21:14:09 Eastern US
mary kay from 205.188.198.41
I'm preparing to go in every day and test before lunch and sit with her to be sure she eats her lunch

Wed Sep 8 1999 21:14:18 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
Ok Mandy, I went and looked, it's called "Even Little Kids Get Diabetes".

Wed Sep 8 1999 21:14:27 Eastern US
Mary Pat from 209.19.195.162
Hi! Don't be scared. All schools aren't difficult dealing with diabetes. My son's school nurse educates all his teachers about diabetes. The school also has a great policy about letting the kids leave class whenever they need to take a shot. They also are allowed to snack in class.

Wed Sep 8 1999 21:14:32 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
yes , That is WONDERFUL.. I think those are the schools that truely care about the children

Wed Sep 8 1999 21:14:43 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
For example, many sports are scheduled at meal times. Tonight my son had a tennis match, starting at 6, but the coach wanted the boys there by 5. He didn't actually play until 6:45...but we had no way of knowoing that ahead of time. Since insulin works at a specific time, it's hard to plan when to take it, when to eat, etc. He had to test his blood before we got there, before he played, and afterward. Today, it was not necessary for him to eat or take insulin during that time, but often it is.

Wed Sep 8 1999 21:15:30 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
we have no nurse, no on call.. and last year at a meeting we set up to train 2 individulas this principle chose, one almost got fired because she couldnt handle blood or needles

Wed Sep 8 1999 21:15:39 Eastern US
Linda/So. Utah (Kim 11, dx'd @ 9) from 216.190.28.33
Judith...he really needs a pump! LOL :-)

Wed Sep 8 1999 21:16:06 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
the principle told her.. she would do as he said, if not, there were other schools... I stood up and cancelled the meeting!

Wed Sep 8 1999 21:16:08 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
Some coaches are better than others about accommodating special needs. Some just decide it's not worth the hassle, and don't give the kids a fair chance.

Wed Sep 8 1999 21:16:49 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
We have a meeting before school starts with all the parents (who have kids with D), all the staff, and a CDE.

Wed Sep 8 1999 21:16:57 Eastern US
Linda/So. Utah (Kim 11, dx'd @ 9) from 216.190.28.33
Wow Julie... Was this a public school?

Wed Sep 8 1999 21:17:05 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
that scares me to think I have to settle for whom is chosen to help our little ones who need assistance

Wed Sep 8 1999 21:17:24 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
Our school system doesn't have nurses, either.

Wed Sep 8 1999 21:17:44 Eastern US
Wanda (Kaitlyn 5..dx'd 12-98) from 152.163.207.208
I thought I would be O.K. sending her, but tonight I am so nervous, I have butterflies in my tummy...:-(

Wed Sep 8 1999 21:17:45 Eastern US
Mary Pat from 209.19.195.162
My son was diagnosed a few days before his 17th birthday last March. His doctor just changed his insulin regime to ultralente at breakfast and dinner, and humalog for each meal. This affords him tremendous flexibility with sports and meals and schedule changes. This works SOOOO much better for us than the regular acting insulin had.

Wed Sep 8 1999 21:17:49 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
this school district is high class too

Wed Sep 8 1999 21:17:59 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
any concerns that your child won't take shots or eat at the appropriate time?

Wed Sep 8 1999 21:18:05 Eastern US
Susanne (Michigan Mary 7 dx. 12/96) from 207.89.137.231
I meet with the staff at least once before school starts and take them lots of printed information to review later. This site had some wonderful things to take to use with the schools. Then I touch base with the staff on a regular basis. Actually the teaching of the staff never ends (but they don't know that._ Our system does not have school nurses. We have one CDE in our county and when she deals with adults only.

Wed Sep 8 1999 21:18:18 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy, I hope we're not overwhelming you.

Wed Sep 8 1999 21:18:25 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
I dont know what to do..

Wed Sep 8 1999 21:18:55 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Jeff - this is wonderful for me. but i'm sorry about the obstacles people face.

Wed Sep 8 1999 21:19:12 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Julie - is it a small school? lpublic?

Wed Sep 8 1999 21:19:27 Eastern US
judy from 207.101.87.65
mary pat, your son is probabally like my son who is 17, he would rather not make a scene. that makes it very hard to make special arrangements.

Wed Sep 8 1999 21:19:28 Eastern US
Linda/So. Utah (Kim 11, dx'd @ 9) from 216.190.28.33
It may be a ritzy school district but they sound pretty scummy to me!

Wed Sep 8 1999 21:19:29 Eastern US
Wanda (Kaitlyn 5..dx'd 12-98) from 152.163.207.208
I am afraid the teachers wont realize when she is high or low, being low is what really scares me

Wed Sep 8 1999 21:19:58 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
this school is small compared to some it goes up to 5th grade

Wed Sep 8 1999 21:19:59 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.59
Mandy, Darriane is 5 and in kindergarten, I got her a watch with an alarm to go off when it's time for her snacks. She can eat in the class but chooses to go to the nurses office to eat her snack. I think because there's another cute little boy who goes there as well to eat his snack! :-)

Wed Sep 8 1999 21:20:23 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
do the schools have glucagon on hand? do the teachers have sugar? are there preparations that way?

Wed Sep 8 1999 21:20:37 Eastern US
mary kay from 205.188.198.41
I live in South Florida, and there is no school nurse at our public school. The secretary administers all the drugs.

Wed Sep 8 1999 21:21:07 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Karen/IN - that's a great story!

Wed Sep 8 1999 21:21:08 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
In Indiana, teachers have in their contracts that they do NOT have to do any medical treatments, etc. so cannot be forced to! However, the school DOES have to provide someone who WILL do what's necessary - everything except a doctor's care.

Wed Sep 8 1999 21:21:15 Eastern US
Wanda (Kaitlyn 5..dx'd 12-98) from 152.163.207.208
Karen..Thats a good idea about the watch..:-)

Wed Sep 8 1999 21:21:19 Eastern US
judy from 207.101.87.65
our school does not allow the glucagon. says they will call an ambulance. no nurse either.

Wed Sep 8 1999 21:22:08 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
why no glucagon? did they give a reason? is an ambulance acceptable to you?

Wed Sep 8 1999 21:22:09 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
Judy.. public or private?

Wed Sep 8 1999 21:22:11 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.59
I supplied the school with the glucagon kits, snacks, "emergency kits"... unfortunately, our insurance doesn't cover her diabetic supplies so we had to pay full price for it all and still do... still fighting them right now!

Wed Sep 8 1999 21:22:18 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy: We provide all of Marissa's teachers with emergency glucose at a meeting before school starts. Glucagon is kept at the nurses office.

Wed Sep 8 1999 21:22:19 Eastern US
Wanda (Kaitlyn 5..dx'd 12-98) from 152.163.207.208
I am going to send Kaitlyn's glucagon with her

Wed Sep 8 1999 21:22:39 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
people are gonna hear about me.. kids do not deserve to have thier lives tampered with because of the ignorance out there

Wed Sep 8 1999 21:22:48 Eastern US
judy from 207.101.87.65
no one to administer the shot since there is no nurse. i felt i really did not have any other choice.

Wed Sep 8 1999 21:22:55 Eastern US
mary kay from 205.188.198.41
My little one goes to a pre-school 3 hours a day. I have a emergency zip-lock with gummies, and candy. I told her teacher to give her some if she says she's hungry.

Wed Sep 8 1999 21:22:58 Eastern US
Linda/So. Utah (Kim 11, dx'd @ 9) from 216.190.28.33
We keep food in the office and Kim keeps glucose tabs or juice in her back pack. Plus, the school says they have juice any time they need it and the teachers have jolly ranchers in the class room if she needs those...

Wed Sep 8 1999 21:23:07 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
We have glucagon there, but this is the first year they would allow it.

Wed Sep 8 1999 21:23:08 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
usually are there other kids with diabetes?

Wed Sep 8 1999 21:23:11 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
that is wrong..

Wed Sep 8 1999 21:23:23 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
we have none!

Wed Sep 8 1999 21:23:29 Eastern US
judy from 207.101.87.65
public school.

Wed Sep 8 1999 21:23:43 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
they figure 1 in 700 will meet a child with diabetes in teaching

Wed Sep 8 1999 21:23:56 Eastern US
Mary Pat from 209.19.195.162
Judy..my son let everyone know that he has diabetes. That way all his friends and acquaintances know what to expect..they have all seen him test his sugar level and give himself shots (in the belly).

Wed Sep 8 1999 21:24:01 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
My son was the only child with it in his grade school of 650 for 5.5 of his 7 years there.

Wed Sep 8 1999 21:24:02 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.59
in Darriane's school she is the 5th child with Diabetes this year

Wed Sep 8 1999 21:24:07 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
I send in a lot of little juice boxes, they prefer those to treat a low.

Wed Sep 8 1999 21:24:26 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
i'm amazed that children so young know how to take care of themselves this way. how do they manage?

Wed Sep 8 1999 21:24:39 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy: At Marissa's school there are three kids with diabetes.

Wed Sep 8 1999 21:24:57 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
there are three in Allie's school this year, two in second grade, one in kindergarten.

Wed Sep 8 1999 21:25:09 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
they have no choice but to manage

Wed Sep 8 1999 21:25:24 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy: Kids learn quickly, and diabetes becomes part of their normal routine. There really is no alternative.

Wed Sep 8 1999 21:25:30 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
They've never been given much of a choice, Mandy.

Wed Sep 8 1999 21:25:48 Eastern US
Susanne from 207.89.137.231
I supply the school with lots of juice and other food. She has glucose gel in the office. The principal agreed to keep the glucogyn in a locked cuboard so if they were an emergency, when my husband or I got there to give it we would have it. Her school has a teacher that takes insulin who might give it to her in emergency out of the goodness of her heart, but her contract would not allow her to do that.

Wed Sep 8 1999 21:26:02 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
what are the biggest problems/concerns you as parents face regarding school? or just regarding growing up?

Wed Sep 8 1999 21:26:06 Eastern US
Wanda (Kaitlyn 5..dx'd 12-98) from 152.163.207.208
Kaitlyn manages quite well (most of the times) she realizes that having diabetes, is so important so she can remain healthy..It's me with the problem

Wed Sep 8 1999 21:26:08 Eastern US
Susanne from 207.89.137.231
Wow Kathy. that's a lot of kids in a small school.

Wed Sep 8 1999 21:26:14 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
and when they take a step on thier own forward.. it is a wonderful feeling :)

Wed Sep 8 1999 21:26:14 Eastern US
judy from 207.101.87.65
All of my son's friends know and watch, but he does not like to make a "big deal" out of anything.

Wed Sep 8 1999 21:26:16 Eastern US
Mary Pat from 209.19.195.162
The kids really are extra responsible and in tune with their bodies much more than non-diabetics.

Wed Sep 8 1999 21:26:30 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.59
Darriane is very mature for her age, she gives herself shots in her belly 3 times a day. It's like she doesn't remember not having Diabetes, and we make sure she has as "normal" a childhood as possible

Wed Sep 8 1999 21:26:42 Eastern US
mary kay from 205.188.198.41
My four year old tells her teacher if she forgets and gives her the wrong snack or regular juice, "That's not my snack. Remember, I have diabetes."

Wed Sep 8 1999 21:26:49 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
That's another issue. In nearly every case, the CHILD is much more knowledgeable than any adult at the school...but some adults have a hard time accepting that. The flip side is that they come to depend on the child to take care of himself...which is fine until he has a low, when the brain is not working right and he can't make good decisions.

Wed Sep 8 1999 21:26:56 Eastern US
Linda/So. Utah (Kim 11, dx'd @ 9) from 216.190.28.33
Wellll, at least until their preteen-teen....LOL

Wed Sep 8 1999 21:27:06 Eastern US
mary kay from 205.188.198.41
My biggest fear is that Rebecca (four) will go low and pass out.

Wed Sep 8 1999 21:27:23 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
We do have a school nurse that will admin glucagon if neccessary. All supplies are kept in her office to treat lows. Marisa can carry quick fix in her backpack with her meter.

Wed Sep 8 1999 21:27:48 Eastern US
Judy from 24.2.9.37
Hello,
This is Judy in Toronto.
I am not a parent of a child with diabetes
but, I do have juvenile onset Type I since the age of 2.

Wed Sep 8 1999 21:28:02 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
do you worry during the day when they're at school?

Wed Sep 8 1999 21:28:21 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Judy in Toronto - you yourself have Type I?

Wed Sep 8 1999 21:28:39 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
Mandy, can I email you a story about why I came here?

Wed Sep 8 1999 21:28:55 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy: We worry about our kids with diabetes 24 hours a day. School is no exception. Many parents get up each night, during the middle of the night, to test their kids' blood sugars to be sure they're not too low or too high.

Wed Sep 8 1999 21:29:00 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
i cry while mine is away because i feel they wont take care of him if he needs themfast

Wed Sep 8 1999 21:29:00 Eastern US
Judy from 24.2.9.37
Yes.
I am 37.

Wed Sep 8 1999 21:29:01 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.59
my biggest fear is that I'm so controlling when it comes to her diabetes, that when it's time for her to take over, she won't tell me when she missed a shot or meal, whatever..... I tend to "go off" when hubby makes a mistake! :-)

Wed Sep 8 1999 21:29:18 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
would love it. you have my email, right? actually, send it to mandyji@bellatlantic.net

Wed Sep 8 1999 21:29:19 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
everyday.. and until I have this settled.. I wont back off

Wed Sep 8 1999 21:29:23 Eastern US
mary kay from 205.188.198.41
I also worry about Rebecca getting a stomach virus, because she probably will end up in the hospital.

Wed Sep 8 1999 21:29:24 Eastern US
Wanda (Kaitlyn 5..dx'd 12-98) from 152.163.207.208
Mandy: Worry during the day? I'm worried now and she hasn't even started yet..cant wait until Friday

Wed Sep 8 1999 21:29:40 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
Hi. Wish I got here on time :-(

Wed Sep 8 1999 21:30:13 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
how do you feel the healthcare professionals prepared you for diabetes?

Wed Sep 8 1999 21:30:22 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
Yes, it is, Susanne, but there are a lot of kids at the public school, all the D kids go to the Catholic elementary.

Wed Sep 8 1999 21:30:37 Eastern US
Susanne from 207.89.137.231
I do worry. I am in the process of getting a cell phone so the school can reach me anytime.
I was up twice last night testing-the school didn't check if she ate her snack yesterday afternoon.

Wed Sep 8 1999 21:30:53 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
ok fair warning its a long story

Wed Sep 8 1999 21:30:56 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.59
I try not to worry when Darriane is in school... her nurse calls me with any problems.... today she went to the nurse 20 minutes before her snack time cuz she felt low, sure enough she was..... but I'm in constant contact with the nurse!

Wed Sep 8 1999 21:31:12 Eastern US
Linda/So. Utah (Kim 11, dx'd @ 9) from 216.190.28.33
I got a cell phone when Kim was dx'd. That way she can get a hold of me any time she needs to. Luckily, it's only happened a couple time since dx and it was because she was high

Wed Sep 8 1999 21:31:15 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
I spend A LOT of time at the school.

Wed Sep 8 1999 21:31:43 Eastern US
mary kay from 205.188.198.41
They packed alot of information into 4 days into the hospital and expected us to remember it.

Wed Sep 8 1999 21:31:57 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
do any of the kids have cell phones? or pumps?

Wed Sep 8 1999 21:32:00 Eastern US
Susanne from 207.89.137.231
We have a wonderful pediatric endo team. I was fortunate to have a family dr. that said openly that he did not treat kids with d and I must see a team. We're on our second team since dx.

Wed Sep 8 1999 21:32:06 Eastern US
Mary Pat from 209.19.195.162
We bought our son a watch with timers on it that went off during his school day at snacktime...it really gave us peace of mind!

Wed Sep 8 1999 21:32:30 Eastern US
mary kay from 205.188.198.41
The biggest problem was emotional support from others in our same shoes. Thank God for web sites like this one you can turn to!

Wed Sep 8 1999 21:32:35 Eastern US
Wanda (Kaitlyn 5..dx'd 12-98) from 152.163.207.208
Mandy: Kaitlyn goes to Childrens Hospital in Boston, I couldn't ask for a better diabetes Team, They are GREAT.:-)

Wed Sep 8 1999 21:32:58 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy: My daughter Marissa wears a pump. We give her a cell phone if she's going to be away for a day, such as on a field trip.

Wed Sep 8 1999 21:33:22 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.59
Darriane will be trained at the end of this month for her pump. As will we of course! lol

Wed Sep 8 1999 21:33:28 Eastern US
Mary Pat from 209.19.195.162
Pumps....are they worth the $$$$$ ?

Wed Sep 8 1999 21:33:33 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Julie C - oops, could you send it to the aol address?

Wed Sep 8 1999 21:34:03 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
I have a pager if they need to reach me.

Wed Sep 8 1999 21:34:04 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mary Pat: The pump is worth every cent.

Wed Sep 8 1999 21:34:19 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
sure what about the other address?

Wed Sep 8 1999 21:34:31 Eastern US
ms from 152.163.204.182
Better late than never?

Wed Sep 8 1999 21:34:53 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
julie c - just got it and don't know how to access it

Wed Sep 8 1999 21:35:28 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
ms - definitely

Wed Sep 8 1999 21:35:36 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
lol ok

Wed Sep 8 1999 21:35:47 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
They prepare you for the care, but not what roads are ahead of us and it can be frustrating at times.

Wed Sep 8 1999 21:36:12 Eastern US
mary kay from 205.188.198.41
Mandy - enjoyed the chatting. I wish more would take interest!

Wed Sep 8 1999 21:36:14 Eastern US
Susanne from 207.89.137.231
I expect that Mary will be using a pump in the next three years. We have to wait till the honeymoon ends. Anyone know of an endo who will pump during the honeymoon? She still makes some of her own insulin-thats what the honeymoon is

Wed Sep 8 1999 21:36:16 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
I have a pager and cell phone. Unfortunately, despite ALL my instructions, Dave would invariably call me from the office saying "My blood sugar is 37. What should I do?"! The secretaries had been told MANY times what to do...and calling me was NOT first on the list!!!

Wed Sep 8 1999 21:36:17 Eastern US
Mary Pat from 209.19.195.162
Does the pump afford the kids more freedom in their routine? Does it give them easy control of their numbers?

Wed Sep 8 1999 21:36:20 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Lucia - what are biggest frustrations?

Wed Sep 8 1999 21:36:55 Eastern US
Linda/So. Utah (Kim 11, dx'd @ 9) from 216.190.28.33
Kim's had a pump for a year and wouldn't go back to shots... But it's a very individual choice. It doesn't matter which is preferred, shots or pump, the object is to keep the D in check.

Wed Sep 8 1999 21:36:59 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
Shane's nurses and educators were nice and dropped alot on us the 3rd day

Wed Sep 8 1999 21:37:12 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
thanks mary kay. any type 2's here? anyone ever had to use glucagon?

Wed Sep 8 1999 21:37:16 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
My son has been on the pump over 4 years. He doesn't have a cell phone. Good idea Jeff to send it when they are on a field trip. Do you buy cell phone insurance ? :-)

Wed Sep 8 1999 21:37:47 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
lol

Wed Sep 8 1999 21:37:48 Eastern US
ms from 152.163.204.182
Mary Pat, the pump has definately made day to day activities more doable. With proper care, the pump can really help with routine/lack thereof

Wed Sep 8 1999 21:38:13 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
we havent had too use ours ..

Wed Sep 8 1999 21:38:15 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
Marisa'a is in a private Catholic high school & no cell phones are allowed under any circumstances.

Wed Sep 8 1999 21:38:15 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Ellen: We don't have cell phone insurance. We give her Brenda's old analog Nokia, and if we lose it, I'll get Brenda a new digital one.

Wed Sep 8 1999 21:38:23 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
I had to use glucagon once when my son was a toddler. He woke from a nap hallucinatory, sheer terror in his eyes, he couldn't see us, had involuntary tremors - it was very frightening - took a good 15 minutes or so before he came around after the shot.

Wed Sep 8 1999 21:38:27 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
but have practiced

Wed Sep 8 1999 21:38:45 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
oh my

Wed Sep 8 1999 21:39:45 Eastern US
ms from 152.163.204.182
Mandy, I dont think ther are any type 2 around, but... I am probably the oldest type 1 in the room - never used glucagon! hope never to have to

Wed Sep 8 1999 21:39:50 Eastern US
Mary Pat from 209.19.195.162
No glucagon yet...it's on top of the fridge just in case.

Wed Sep 8 1999 21:39:57 Eastern US
Wanda (Kaitlyn 5..dx'd 12-98) from 152.163.207.208
All you guys have wonderful stories about the pump, I can't understand why I am not interested in getting one for Kaitlyn

Wed Sep 8 1999 21:40:13 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
Worst part about diabetes is that even with the best of intentions there are still horrific chances of complications. This is an insidious disease that must be cured. And the public needs education about what a dreadful disease this is, relentless, 24 hours a day, 7 days a week.

Wed Sep 8 1999 21:40:18 Eastern US
ms from 152.163.204.182
i believe that people have mixed feelings about the use of glucagon?

Wed Sep 8 1999 21:40:19 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
Our biggest problem is that Marisa has to go down to nurse for all testing, even when she feels low.
They don't seem to understand sometimes they don't have that much time.

Wed Sep 8 1999 21:40:29 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
has anyone encountered any kids with type 2 in your diabetes travels?

Wed Sep 8 1999 21:40:44 Eastern US
Mary Pat from 209.19.195.162
MS..my son is having trouble coming to terms with the long-term complications of diabetes. Can you tell him anything to put his mind at ease?

Wed Sep 8 1999 21:41:21 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
Wanda, I had 6 years of getting used to injections before I was ready to make a transition. It's not the cure, you can feel comfortable learning to care for your daughter with injections. The pump isn't for everyone. You're still learning about diabetes.

Wed Sep 8 1999 21:41:35 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
no.. I know a few type 2 but they are adults

Wed Sep 8 1999 21:42:02 Eastern US
ms from 152.163.204.182
Mandy, have not encountered any type 2 kids, but know that there are a couple of children with MODY (maturity onset) who chat in this room

Wed Sep 8 1999 21:42:13 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mary Pat: The best thing you can tell your son is that good control reduces the risk of complications. Also, start taking Vitamin E.

Wed Sep 8 1999 21:42:25 Eastern US
Kathy from 199.183.198.151
Hello.....I do not have a "D" child I am type 1 for almost 40 yrs.... I have used glucagon a number of times...

Wed Sep 8 1999 21:42:38 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
Mandy, Iam a type II since 11/97.

Wed Sep 8 1999 21:42:48 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
how does the rest of the family cope - fathers, siblings etc.?

Wed Sep 8 1999 21:42:50 Eastern US
Mary Pat from 209.19.195.162
Mandy...we only know of kids with TypeI. It seems like there have been so many breakthroughs in diabetes treatment..we soon hope to say we know NONE!!!

Wed Sep 8 1999 21:42:57 Eastern US
Wanda (Kaitlyn 5..dx'd 12-98) from 152.163.207.208
I realize all that Ellen, But if the pump is so good why dont I want something better for my child? Oh well maybe someday I will figure it out

Wed Sep 8 1999 21:43:01 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy: I coped by starting this web site.

Wed Sep 8 1999 21:43:03 Eastern US
Susanne from 207.89.137.231
I need to run. Mandy good luck with your article. There are a number of VERY involved parents here tonight. We all want to see a cure for this. and insurance coverage until then.

Wed Sep 8 1999 21:43:08 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Lucia - you were diagnosed a month before your daughter?

Wed Sep 8 1999 21:43:13 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
Never had to use glucagon :-). Hope I never do!!

Wed Sep 8 1999 21:43:36 Eastern US
ms from 152.163.204.182
well, i am 22 - have had diabetes for 18 years... Complication is definately a prevelent fear!! I have been lucky thus far to have not major complications! One of the main things I tell people is to stay educated and try to stay in the best control possible

Wed Sep 8 1999 21:43:45 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
My friend's daughter was diagnosed as Type 1 and treated as Type 1 for 2 years. Only recently they've discovered she's really a form of Type 2 known as MODY. If you want to contact her, and hear how FRUSTRATING that is, please write me at camelsrfun@aol.com. MODY is maturity onset of diabetes in youth - they are generally lean adolescents exhibiting signs of type 2 diabetes.

Wed Sep 8 1999 21:43:57 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
thanks susanne!

Wed Sep 8 1999 21:43:57 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
My son had glucagon once, just before his third birthday. He had an allergic reaction to it, so can't use it again.

Wed Sep 8 1999 21:44:08 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
what about insurance coverage?

Wed Sep 8 1999 21:44:20 Eastern US
Mary Pat from 209.19.195.162
What does Vitamin E do to help?

Wed Sep 8 1999 21:44:43 Eastern US
Wanda (Kaitlyn 5..dx'd 12-98) from 152.163.207.208
Kaitlyns dad doesnt do well with treating her diabetes..He just doesnt understand

Wed Sep 8 1999 21:44:44 Eastern US
Kathy from 199.183.198.151
I have been on the pump a little over 1 year... YES it has made a BIG difference for me...

Wed Sep 8 1999 21:45:08 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
ok, thanks ellen

Wed Sep 8 1999 21:45:19 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
Yes, It wasn't a shock for me, it runs in my family. But I have to admit we were devasted when Marisa was dx'd. She was borderline Hypoglycemic in March 97.

Wed Sep 8 1999 21:45:23 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
How do you get sugars in him when he needs it immediatly? what do you do to replace the glucagon

Wed Sep 8 1999 21:45:33 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Kathy - what differences from the pump?

Wed Sep 8 1999 21:45:50 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.57
Mandy.... our insurance does not cover ANY of her diabetic supplies... we pay full price for EVERYTHING..... oh no, that's right, they pay $2.36 for each vile of insulin every 3 months, but we pay $25 for each every 3 months... glucagon, $70, test strips $40 every other week.... it's terrible!!!

Wed Sep 8 1999 21:45:54 Eastern US
ms from 152.163.204.182
Often family members have a difficult time coping/ accepting responsibility and understanding. From chatting, overall it seems as if the mothers are the ones who hold the diabetes fort together a bit more than the rest

Wed Sep 8 1999 21:46:01 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
My daughter is often complaining that things aren't "fair" because my son gets attention at times when she wants it....Life isn't fair, chronic illness isn't fair.

I handle 90% of my son's diabetes. My husband does 10%. He doesn't make any dose changes or decisions, only handles minimal aspects of the pump.

Wed Sep 8 1999 21:46:22 Eastern US
Kathy from 199.183.198.151
Mandy, my insurance pays 100% for pump supplies... and a portion for insulin...

Wed Sep 8 1999 21:46:59 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
I would never hesitate to give a glucagon injection if my child was seizing.

Wed Sep 8 1999 21:47:03 Eastern US
Mary Pat from 209.19.195.162
Our doctor told us to use little packets of McDonalds sugar when needed...much better and safer than using Lifesavers (our previous choice).

Wed Sep 8 1999 21:47:18 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Kathy, Karen who are your insurance carriers?

Wed Sep 8 1999 21:47:20 Eastern US
Mary Pat from 209.19.195.162
And what about the Vitamin E?

Wed Sep 8 1999 21:47:21 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mary Pat: Preliminary research shows that Vitamin E can help prevent complications.

Wed Sep 8 1999 21:47:29 Eastern US
Linda/So. Utah (Kim 11, dx'd @ 9) from 216.190.28.33
Oh Ellen, my husband is very good to say "Kim, do what your mother tells you!" LOL

Wed Sep 8 1999 21:47:53 Eastern US
Wanda (Kaitlyn 5..dx'd 12-98) from 152.163.207.208
Well, it was great talking to everyone, Take Care...Good Bye

Wed Sep 8 1999 21:48:10 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
bye Wanda

Wed Sep 8 1999 21:48:17 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
My parents live 10 miles down the road and have NEVER offered for my son to sleep at their apartment. This has been very difficult and disappointing. We rarely get a break from the disease - and even extended family here have taken no part in offering help.

Wed Sep 8 1999 21:48:25 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Re Vitamin E: see:
High-Dose Vitamin E Supplementation Normalizes Retinal Blood Flow and Creatinine Clearance in Patients with Type 1 Diabetes
http://www.childrenwithdiabetes.com/d_0j_10z.htm

Wed Sep 8 1999 21:48:31 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.57
Mandy, Sagamore Plus/American Comm.

Wed Sep 8 1999 21:48:40 Eastern US
Kathy from 199.183.198.151
Mandy, my BGs are in a better range. before the pump I was any where from the low 20s to over 400 in any given day.. More freedom...

Wed Sep 8 1999 21:48:44 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
bye wanda and thank you.

Wed Sep 8 1999 21:48:56 Eastern US
ms from 152.163.204.182
my insurance is hard to figure out...bills me for both durable medical equiptment and medical supplies - can never figure it out.. all I know is that despite having coverage, I am still dishing out much money for supplies - There are just soo many that are needed daily!

Wed Sep 8 1999 21:49:06 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Ellen: We are in the same situation. Neither of Marissa's grand parents have any interest in helping with her diabetes care.

Wed Sep 8 1999 21:49:08 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
Mandy : I sent the email.. was nice meeting you and all of you out there take care and bless ya

Wed Sep 8 1999 21:49:23 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
Our medical insurance for supplies is great. Don't have to pay anything. But our doctor was not on our plan so we have deductibles to reach. My biggest problem is they won't pay for couseling for these kids, especially teens. They are dealing with D and puberty.

Wed Sep 8 1999 21:49:58 Eastern US
Judy from 24.2.9.37
Ellen (Florida)
Perhaps your husband could spend extra time
with your daughter. Although life isn't fair it's
still hurts when you're a kid. My sister had to deal with this all her life as I was the diabetic,
and I know she often felt left out even though she
was trying to understand the reasons why.

Wed Sep 8 1999 21:50:02 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
thanks julie. tell me about what kind of supplies you go through

Wed Sep 8 1999 21:50:13 Eastern US
Kathy from 199.183.198.151
Mandy I have Aetna insurance.. The glucagon costs zero for me...

Wed Sep 8 1999 21:50:21 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
Linda LOL ugh!

Wed Sep 8 1999 21:51:45 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
Our insurance covers all of her supplies.
I also wish my in-laws could handle this. I know my mom could, she is good with this stuff, but she lives in Florida.

Wed Sep 8 1999 21:51:48 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
special issues regarding puberty?

Wed Sep 8 1999 21:51:48 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
we update our supplies every 2 months, we get 2 boxes of needles, 2 boxes of alcohol pads, a new box of needles for his insulin pen, all 3 bottles of his insulins x 2 each, lancets .. Food TONS of food expensive good for you food :)

Wed Sep 8 1999 21:51:50 Eastern US
Mary Pat from 209.19.195.162
Hormones definitely play a BIG part in diabetes!
Our hospital has a Diabetes Center and we are going to check out the counseling section. Our son is still having trouble coming to terms with having this disease forever.

Wed Sep 8 1999 21:52:21 Eastern US
ms from 152.163.204.182
test strips, infusion sets, resovoir syringes, regular syringes, medical tape, insulin, glucose tablets, alcohol (for some), lancets, blood sugar meters, pumps, hm... im sure there are more

Wed Sep 8 1999 21:52:44 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
Have a good night everyone..

Wed Sep 8 1999 21:52:45 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Julie C - what kinds of food?

Wed Sep 8 1999 21:53:07 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
the list can go on and on

Wed Sep 8 1999 21:53:11 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
Karen, have you checked into the state disablity insurance? It has been wonderful for us, picks up where our insurance won't.

Wed Sep 8 1999 21:53:12 Eastern US
MaryAnn(Mich) (Jill 14) from 63.23.175.91
Hi everyone, Julie, what side of the state are you on?

Wed Sep 8 1999 21:53:25 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
Test strips cost about $125-150 a month (he tests often), insulin about $75/mon, other supplies another $25 or so. In our case, insurance pays 100%; most are not so lucky. He will not have that kind of coverage when he turns 18, which is already concerning him.

Wed Sep 8 1999 21:53:37 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
Kathy, can I adopt your grandma since my parents aren't interested in helping my son? LOL

Wed Sep 8 1999 21:53:43 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.57
Kathy, my mother in law is Type 2 diabetic and still will NOT watch Darriane due to the fact that she watched her one night and gave her a shot when she didn't need it, and if she did need it, she gave her the wrong insulin dosage..... I know my mom could and does handle it all with me when she visits from California!!!

Wed Sep 8 1999 21:53:49 Eastern US
ms from 152.163.204.182
There are a lot of issues regarding puberty and that age! Especially the feelings and fears of acceptance/ being different.

Wed Sep 8 1999 21:53:59 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
Im near Saginaw

Wed Sep 8 1999 21:54:25 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
fruits, veggies, total stict meal planning, low fat foods..

Wed Sep 8 1999 21:54:29 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy: Insurance coverage, or lack thereof, is a major concern. Estimates are that supplies alone cost upwards of $3,000 a year.

Wed Sep 8 1999 21:54:34 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.57
Kathy, I have and hubby makes to much for us to qualify for it

Wed Sep 8 1999 21:54:38 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
Puberty does affect their bg's because of hormones & they get very erractic readings and also I know my daughter feels different & doesn't want to. And dating!!

Wed Sep 8 1999 21:54:55 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
where does disability come in?

Wed Sep 8 1999 21:54:56 Eastern US
Judy from NY (Elissa. age 18, pumping almost 15 years) from 24.29.95.172
Hi everyone

Wed Sep 8 1999 21:55:18 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
Hormones of growth and puberty are anti-insulin. Keeping numbers in range would be a major challenge even without all the emotional/social issues of being "different"

Wed Sep 8 1999 21:55:21 Eastern US
Kathy from 199.183.198.151
Emotions also effect bgs....

Wed Sep 8 1999 21:55:21 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
wow with type 1?

Wed Sep 8 1999 21:55:23 Eastern US
MaryAnn(Mich) (Jill 14) from 63.23.175.91
Julie where do you get all those supplies from? I hate going to k-mart or at trying to get the right stuff. We are supposed to mailorder to caremark too

Wed Sep 8 1999 21:55:34 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
2 and where work.. school?

Wed Sep 8 1999 21:55:38 Eastern US
Sue from IL (Amy, 13, dx'd @ 9, pump) from 152.163.232.24
Puberty? What is that? LOL Dealing with it on a daily basis here!
Evening everyone :-)

Wed Sep 8 1999 21:56:08 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
we have a local pharmacy that is 2 blocks from us, they keep steady stock for us especially

Wed Sep 8 1999 21:56:21 Eastern US
Kathy/MI (Allie, almost 7, dx'd @ 2) from 216.93.41.173
Karen, we qualify medically here, not just financially. Too bad you can't get it.

Wed Sep 8 1999 21:56:27 Eastern US
ms from 152.163.204.182
Judith, the expense concerning him now?? wow!! It concerns me. Thankfully I have a fine job, but... if I continue to dish out money im not so sure... I do fear the expenses getting larger due to complications and additional expenses as time goes on an possible complications set in - oh... and then there are the eye doctor visits - which in my case are covered thank goodness

Wed Sep 8 1999 21:56:35 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
its hard finding everything we need anywhere else, if they dont have it they order it

Wed Sep 8 1999 21:56:50 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
Boy, Jeff, our estimates came in exactly the same!

Wed Sep 8 1999 21:57:02 Eastern US
Mary Pat from 209.19.195.162
ms Our son seems to be more concerned with how his body will be holding up in a few years. His original doc had us believing that he would drop instantly if he EVER let his numbers go out of range...our new doc let us know that it would take MANY years of horrible control to cause complications.

Wed Sep 8 1999 21:57:36 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
We always here "your like any normal child" except you have to take a step back. Thats normal!!!!!

Wed Sep 8 1999 21:57:57 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.57
Kathy..... you're telling me!! lol

Wed Sep 8 1999 21:58:05 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
Mandy, I'm so glad you want to present the real side of diabetes to the public. May I ask what got you interested in the subject? I came late and am sorry if you already answered this.

Wed Sep 8 1999 21:58:29 Eastern US
Judy from NY (Elissa. age 18, pumping almost 15 years) from 24.29.95.172
Mary Pat - Elissa wants very much to be in good shape when something more innovative comes along. She tries really hard to keep good control...some days are harder than others

Wed Sep 8 1999 21:59:06 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
wow

Wed Sep 8 1999 21:59:17 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Ellen - I'm a medical and features reporter so the article came about naturally - diabetes, particularly type 2 is epidemic. in your opinion, what is the "real side"?

Wed Sep 8 1999 21:59:20 Eastern US
Kathy from 199.183.198.151
We all have our BAD days... I try NOT to live by the numbers...

Wed Sep 8 1999 21:59:29 Eastern US
ms from 152.163.204.182
Mary Pat, how long has he had diabetes, and how old is he? It may take YEARS of poor control. There is so much good information out there showing that the better the numbers, the better longevity etc... but... thats easier said than done!

Wed Sep 8 1999 22:00:04 Eastern US
MaryAnn(Mich) (Jill 14) from 63.23.175.91
I am so sick to death of people knowing so little about type one that they don't even know how or what to ask you. They feel uncomfortable too.

Wed Sep 8 1999 22:00:22 Eastern US
Sue from IL (Amy, 13, dx'd @ 9, pump) from 152.163.232.24
Do any of you find that your kids with d actually try to overdo, trying so hard to be 'normal'? I think that is part of what Amy does, getting so active in every sport she can, like she has to prove it to herself that she can do it.

Wed Sep 8 1999 22:00:24 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
AMEN

Wed Sep 8 1999 22:00:24 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
where do the kids tend to "slip up" - have less than good control?

Wed Sep 8 1999 22:00:35 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
I second that Mary Ann

Wed Sep 8 1999 22:00:43 Eastern US
ms from 152.163.204.182
To me the real side is that type 1 rarely gets the coverage. I understand that type 2 effects more people, but... sometimes it feels like we are the forgotten ones - ive been hearing for 18 years that a cure is around the corner.

Wed Sep 8 1999 22:01:14 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
Mandy, the "real" story is that type 1 diahetes in particular is a 24hr/day, 7day/week issue for the whole family when one member has diabetes. EVERYTHING is impacted..
Sorry, I need to leave. Thanks for helping spread awareness.

Wed Sep 8 1999 22:01:18 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
Im tired of the schools getting away with hurting the children and parents of a health disables child.. the children nor the parents are at fault

Wed Sep 8 1999 22:01:21 Eastern US
Mary Pat from 209.19.195.162
ms He is 17 and was diagnosed last March. He is in good control when he is healthy; testing four or five times daily. Eating right and giving injections. But when he is sick...ouch!!! The numbers have gotten wayyyy up there!

Wed Sep 8 1999 22:01:23 Eastern US
Kathy from 199.183.198.151
We can all inform people.... educate

Wed Sep 8 1999 22:02:03 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
The real side of diabetes is a myriad of expletives Mandy. It's an insidious disease that doesn't let us rest even for a moment. If our child is giddy, we wonder if his bg is low, if he's feeling grumpy we wonder if his bg is high, if he's going to the bathroom frequently we make him check for ketones, the first thing he has to do when he wakes up is lance his finger and draw blood, it's walking a tightrope all the time. At the same time we have to raise them to believe they are normal happy go lucky kids who will live their dreams....

Wed Sep 8 1999 22:02:09 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
sigh but what if they are not willing to learn ??

Wed Sep 8 1999 22:02:27 Eastern US
Judy from NY (Elissa. age 18, pumping almost 15 years) from 24.29.95.172
Mary Pat - ilness usually sends the bg's skyrocketing.....sometimes they needs twice their normal dose of insulin

Wed Sep 8 1999 22:02:38 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
because Im hear to say, we have hit some cold hearted people at my sons school.. and they just met the wrong momma to mess with

Wed Sep 8 1999 22:02:44 Eastern US
Brenda Hitchcock from 10.0.1.3
Many, one thing that bothers me is that there is so much publicity these days about kids with type 2, which is indeed a problem. However, I worry that people with see all the news stories/articles and assume that is what our kids have and make fun of them. I think none of our kids need to hear people snickering about them and that diabetes is caused by overeating and lack of exercise. Our kids in particular did absolutely nothing to cause their disease.

Wed Sep 8 1999 22:02:56 Eastern US
MaryAnn(Mich) (Jill 14) from 63.23.175.91
Most people think that the only difference with type 1 is that they have to take shots!! Not true in my opinion.

Wed Sep 8 1999 22:03:02 Eastern US
Sue from IL (Amy, 13, dx'd @ 9, pump) from 152.163.232.24
I think part of the problem of type 2 being more talked about is due to the fact that there is, in many, many cases, a person to blame, or at least a reason why they have it. In type 1, no one to blame, and not as many answers to give. That's why we NEED a cure!!!

Wed Sep 8 1999 22:03:14 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
Alot of people don't realize you don't take a pill with type I. Myself being type II is alot easier that type I. I applaude these kids for what they go thru.

Wed Sep 8 1999 22:03:15 Eastern US
Mary Pat from 209.19.195.162
We are still learning so much! We take out the Joslin or ADA books daily.

Wed Sep 8 1999 22:03:24 Eastern US
Kathy from 199.183.198.151
Julie.. keep trying.... I have done this for many years... I know what you are saying...

Wed Sep 8 1999 22:03:35 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
My son "learned" in health class that diabetes is classed as an eating disorder!!! He got that "wrong" on a test!!!

Wed Sep 8 1999 22:03:47 Eastern US
ms from 152.163.204.182
Often those of us with diabetes work hard to appear normal - void of disease and the emotional impacts of it.. but... there are feelings beneath the surface... Should we really have to try so hard to fit in and maintain a sense of what others perceive to be the norm?

Wed Sep 8 1999 22:03:47 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
Mandy so you know, that email i sent you was also sent to every talk show host .. including the news channels.. there are a few folks in my shoes and some are lucky to never have experienced what we have at my sons school

Wed Sep 8 1999 22:03:56 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
but even type 2 is not "caused" by overeating and lack of exercise. i think that's a problem for the type 2's as well - being snickered at.

Wed Sep 8 1999 22:05:12 Eastern US
ms from 152.163.204.182
mandy, I believe that it is more controllable, however.

Wed Sep 8 1999 22:05:16 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
any type.. any child or person with no control over a disease they have are treated so unfairly and to make thier lives comfortable is a non stop fight thats not right!

Wed Sep 8 1999 22:05:17 Eastern US
Brenda Hitchcock from 10.0.1.3
Technically, that is correct Mandy, but kids who eat nutritiously and exercise are less prone to develop the disease until later in life.

Wed Sep 8 1999 22:05:25 Eastern US
Kathy from 199.183.198.151
I need to run have a nice evening... Nite...

Wed Sep 8 1999 22:05:46 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.196
No, that's not the "cause" of type 2...but some can in effect be "cured" by weight loss. Both my father and maternal grandmother had type 2, so I've lived with both. My mother was a CDE
Now I'm REALLY gone! LOL Bye!

Wed Sep 8 1999 22:05:56 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
And worse Mandy, is that people with Type 1 don't really understand Type 2 very well. I'm trying to learn more. It's also a horrible disease that needs to be cured. Many "couch potatoes" never end up with Type 2 either. Enough of the blaming by media and doctors.

Wed Sep 8 1999 22:06:06 Eastern US
Judy from NY (Elissa. age 18, pumping almost 15 years) from 24.29.95.172
Mandy - Elissa just atarted college & I often get very angry that this KID never gets a break!! When she went to diabetes camp, I got some relief, but diabetes is ALWAYS in her face! Wouldn't it be nice to get up some morning & NOT have to check your bg or give insulin or a bolus or plan for exercise or count your carbs & hope you don't miscalculate, etc. etc. etc.

Wed Sep 8 1999 22:06:20 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
lol I think i said farewell once too

Wed Sep 8 1999 22:06:24 Eastern US
MaryAnn(Mich) (Jill 14) from 63.23.175.91
I think most type 2's have so much company in the same boat they are in that they just fit in with their peers unless they contract it young.

Wed Sep 8 1999 22:06:37 Eastern US
Julie C (Michigan, (Shane almost 8 dx 4/98)) from 216.192.149.34
now is my quality time with my hubby so good night everyone

Wed Sep 8 1999 22:07:07 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.57
Mandy..... I need to run, if you don't mind.... I'll e-mail you with our story of what it's been like for us.. daily activities,shots, insurance coverage, so on

Wed Sep 8 1999 22:07:15 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Judy from NY - yes, i think it sounds absolutely exhausting.

Wed Sep 8 1999 22:07:29 Eastern US
Brenda Hitchcock from 10.0.1.3
There is a distinct group of young people with

Wed Sep 8 1999 22:07:36 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Karen/IN that would be great and thank you

Wed Sep 8 1999 22:07:40 Eastern US
Brenda Hitchcock from 10.0.1.3
ooops, have to go test Marissa....

Wed Sep 8 1999 22:08:12 Eastern US
Mary Pat from 209.19.195.162
Wow..it's after 9 here. Thank you for all the help and information! Bye.........

Wed Sep 8 1999 22:08:15 Eastern US
ms from 152.163.204.182
The question is... what is it like to live a day without disease??? To not be tied down by testing, eating, looming fears?

Wed Sep 8 1999 22:08:34 Eastern US
Karen/IN (Darriane 5 dx'd 8/97) from 205.188.198.57
Good Night all! May we all have normal #'s and a great nights sleep! Bye all

Wed Sep 8 1999 22:08:51 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
Very sad about doctors treating Type 2 and not advising their patients to test blood sugar regularly. They advise their patients to just take a pill, when in fact that doesn't properly treat Type 2 at all. They require much the same vigilance to control their bgs with various oral medications and require regular blood glucose testing....just try to convince the ignorant medical community of that!

Wed Sep 8 1999 22:09:08 Eastern US
Sue from IL (Amy, 13, dx'd @ 9, pump) from 152.163.232.24
In our case, Amy hasn't been treated unfairly in school or anything like that, but she had to grow up way too quickly, and to me, that just isn't fair. Besides what I know it's doing to her body, this is what I hate most about her having D. I can handle the site changes, the hormones, the getting up 2 - 3 times a night to test, but watching her go from a happy, carefree child to one that struggled with every inch of her body to inject herself with a fluid she knew was saving her life -- that did me in!

Wed Sep 8 1999 22:10:02 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
people not too happy about the medical community?

Wed Sep 8 1999 22:10:24 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
Ellen that's why Iam changing doctors.

Wed Sep 8 1999 22:10:53 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
And children with Type 1 are at much higher risk of devloping a myriad of other autoimmune diseases. Some of the other mothers here can better expound upon their experiences

Wed Sep 8 1999 22:11:15 Eastern US
MaryAnn(Mich) (Jill 14) from 63.23.175.91
There are a lot of really bad Drs. out there.

Wed Sep 8 1999 22:11:36 Eastern US
ms from 152.163.204.182
To me it is not the medical community who will make all the diference... it is the public - the education... the research

Wed Sep 8 1999 22:12:03 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Life with diabetes: Marissa's blood sugar is now 48. Just gave her two glucose tablets, Brenda's getting her food.

Wed Sep 8 1999 22:12:22 Eastern US
Sue from IL (Amy, 13, dx'd @ 9, pump) from 152.163.232.24
Fortunatley though MaryAnn, there are some really good ones.....now if we all could just find them in our area!!

Wed Sep 8 1999 22:12:31 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Jeff - Did Marissa "feel" low?

Wed Sep 8 1999 22:12:47 Eastern US
Judy from NY (Elissa. age 18, pumping almost 15 years) from 24.29.95.172
yes - Elissa also developed Graves Disease (hyperthyroidism) and was treated with radioactive iodine; now she has positive antiadrenal antibodies - we're on tenterhhoks wondering if/when she will develop Addison's Disease

Wed Sep 8 1999 22:12:57 Eastern US
ms from 152.163.204.182
I think one of the issues is that people in general want quality care - diabetes effects not only the pyhsical but also mental aspects of a person. Doctors need to tap into this and help people in both regards

Wed Sep 8 1999 22:13:01 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy: Yes, she said, "Dad, I feel low." We tested (she's in bed now) and discovered she's 48. That's definitely low.

Wed Sep 8 1999 22:13:15 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
Regular MD's or pediatricans are not good at treating D. They have knowledge. I am glad my pediatrician knew that a recommended an excellent endo.

Wed Sep 8 1999 22:13:23 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
what does low feel like?

Wed Sep 8 1999 22:13:59 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
Surprisingly , every pediatric endocrinologist has a different philosophy to treat diabetes - we are on our 4th ped endo in 10+ years. I think we have the most proactive, confident, empowering wonderful endo ....but I can't say the same for the previous ones!

Wed Sep 8 1999 22:14:10 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy: Marissa said she felt very, very hungry.

Wed Sep 8 1999 22:14:21 Eastern US
Sue from IL (Amy, 13, dx'd @ 9, pump) from 152.163.232.24
In a metro area the size of the Quad Cities here, you would think there would be at least 1 ped endo - NOT. Everyone either goes to their family Dr., or travels 1 1/2 hours to Iowa City, or 2 hours to Peoria. When I talked to the head of the diabetes center at the hospital in Iowa about HOW to get a ped endo here, she didn't really know where to begin. Suggested maybe placing an ad in the ADA newsletter....

Wed Sep 8 1999 22:14:34 Eastern US
MaryAnn(Mich) (Jill 14) from 63.23.175.91
We have a really great Dr. too. And I agree the general population is what is agravatingly dumb. I was just as dumb before Jill got this though. And I wouldn't watch a kid test his blood!!

Wed Sep 8 1999 22:15:15 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy: I agree with the comments about the medical community. There are good diabetes teams and there are mediocre teams. We take our daughter to a clinic in Denver (the Barbara Davis Center), though we live in Ohio.

Wed Sep 8 1999 22:15:26 Eastern US
ms from 152.163.204.182
first hand... it feels shaky, not clear minded, not able to speed through things with accuracy - kind of hard to tap into -

Wed Sep 8 1999 22:15:53 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
Zachary took a bit too much insulin for chinese food dinner, his bg was 58 - he was hyper and giddy. He just had a large glass of milk and a couple of cookies and took less insulin than he usually would. Now I need to check his bg in an hour or two or both. We have a hard time estimating insulin for chinese food. He can't fall asleep when his bg is low. Others get sleepy.

Wed Sep 8 1999 22:15:57 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
does high feel like anything?

Wed Sep 8 1999 22:16:18 Eastern US
ms from 152.163.204.182
very sick

Wed Sep 8 1999 22:16:29 Eastern US
Connie (FMwebDesign@aol.com) from 205.188.198.49
Greetings from the Yee Haw State! : )

Wed Sep 8 1999 22:16:39 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy: When Marissa is high, she is cranky and very irritable.

Wed Sep 8 1999 22:16:42 Eastern US
Sue from IL (Amy, 13, dx'd @ 9, pump) from 152.163.232.24
ms, and the insurance companies that will pay to care for a person with diabetes, but NOT pay to educate them to keep themselves healthy!! That gets me! We have had to pay for all educational aspects of Amy's disease.

Wed Sep 8 1999 22:16:48 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
what else is it hard to estimate for? (types of food)

Wed Sep 8 1999 22:17:00 Eastern US
ms from 152.163.204.182
for me ... it is as though I cant move fast - everything is slow mo - tired - sluggish .. sometimes nausious

Wed Sep 8 1999 22:17:12 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Sue _ can you give me an example of an educational aspect?

Wed Sep 8 1999 22:17:20 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
Some adults have told me a high bg feels like a hangover or a migraine. My son is very intolerant of noise and others when his bg is high.

Wed Sep 8 1999 22:17:33 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
MS, Those definetly desribe Marisa's symptoms. Her lips also lose color.

Wed Sep 8 1999 22:17:48 Eastern US
Connie (FMwebDesign@aol.com) from 205.188.198.49
Just got the kids to bed. Dd home sick again for 7th day in only 3 weeks of school

Wed Sep 8 1999 22:18:14 Eastern US
ms from 152.163.204.182
when im high my heart rate often is quickened and i get tired more quickly

Wed Sep 8 1999 22:18:20 Eastern US
Maureen from 24.31.186.61
Good evening. Highs for me I'm very tired and sluggish. Very fuzzy...

Wed Sep 8 1999 22:18:36 Eastern US
Connie (FMwebDesign@aol.com) from 205.188.198.49
With Highs my dd is FISTY, and bossy, very out of her charecter.

Wed Sep 8 1999 22:18:41 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Connie - what kind of sick?

Wed Sep 8 1999 22:18:48 Eastern US
MaryAnn(Mich) (Jill 14) from 63.23.175.91
our insurance didn't have to pay to have Jill admitted to the hospital, because we were able to care for her, but they didn't cover the cost of the learning tape and booklet stuff from the hospital. they got off cheap in her case!!!

Wed Sep 8 1999 22:19:12 Eastern US
ms from 152.163.204.182
Ellen... bing.... hit it on the nose - i always tell people that i dont need to drink to feel a hangover! and i dont need to do drugs to feel the high and low :-)

Wed Sep 8 1999 22:19:50 Eastern US
ms from 152.163.204.182
Hi maureen

Wed Sep 8 1999 22:20:15 Eastern US
Connie (FMwebDesign@aol.com) from 205.188.198.49
Mandy - severe headaches and stomachs -- she has had a LOT of severe highs and lows with the start of school and the onset of early puberty.

Wed Sep 8 1999 22:20:19 Eastern US
Sue from IL (Amy, 13, dx'd @ 9, pump) from 152.163.232.24
Mandy, learning about d when you are diagnosed. Many are in the hospital and that is where you learn to care for yourself or your child. CDE's usually perform this training, if you are lucky. Amy wasn't in the hospital and thus it required a 3 hour educational session to learn about foods and exercise and giving shots and testing bgs....

Wed Sep 8 1999 22:20:48 Eastern US
Lucia, NJ (Marisa, 15, dx'd12/97) from 152.163.201.58
Night All. Teenagers has to check her E-Mail before bedtime & check bg. :-).

Mandy thanks for doing an article on D. It will help educated people more & maybe understand what we really go thru.

Wed Sep 8 1999 22:20:55 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
ms, ever check your ketones when your heart rate feels so rapid?

Wed Sep 8 1999 22:21:00 Eastern US
MaryAnn(Mich) (Jill 14) from 63.23.175.91
we have to nag our kids CONSTANTLY which isn't fair either. We have to ask them everything they ate, so we can adjust insulin. We have to ask them every time they go out the door if they have their glucose in their pocket, it goes on and on and on

Wed Sep 8 1999 22:21:07 Eastern US
Connie (FMwebDesign@aol.com) from 205.188.198.49
plus we switched insulins and I'm wondering if that is causing the stomach cramps? noone can be sure

Wed Sep 8 1999 22:21:10 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
thanks lucia and good night.

Wed Sep 8 1999 22:21:20 Eastern US
Maureen from 24.31.186.61
One of the interesting things I just found with lows (just since this spring), is that I can't focus on moving things (i.e. if I'm riding in a car, I can't read the signs by the road, or if I'm sitting by a busy street I feel sick watching the cars go by because I can't focus right)

Wed Sep 8 1999 22:22:12 Eastern US
Connie (FMwebDesign@aol.com) from 205.188.198.49
MaryAnn -- this is hard on us parents.. i feel awful doing the same but there NO OPTIONS :(

Wed Sep 8 1999 22:22:18 Eastern US
ms from 152.163.204.182
lightheadedness when low or high sometimes - often the symptoms can overlap - causing it to be difficult to distinguish at times - for instance... today i thought i was low and grabbed some candy and juice - tested later and bs was way too high

Wed Sep 8 1999 22:22:34 Eastern US
Maureen from 24.31.186.61
Hi ms :-)

Wed Sep 8 1999 22:23:09 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
Managed care is cutting way back and now often not allowing kids to be hospitalized unless they are in diabetic ketoacidosis. DKA. No one , IMHO, should have to learn to manage all there is to learn about diabetes care of a child, as an outpatient, unless the patients family specifically requests it to be done outpatient. We were in nearly 7 days, but my then toddler was in severe DKA initially.

Wed Sep 8 1999 22:23:58 Eastern US
ms from 152.163.204.182
Ellen, if i am at home , definately!!! If I am at work - I am sure to check the bs!! Thats something i dont play with - I can tell when i have ketones!!! and the heart rate quickening with other symptoms is a definate sign

Wed Sep 8 1999 22:24:05 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
Jeff: I think I need to start winding down. I have an early morning tomorrow. I want to thank everyone. I've gotten an enormous amount of information and I think an understanding I just couldn't have gotten anywhere else.

Wed Sep 8 1999 22:24:25 Eastern US
Ellen (Florida) (Zachary 11, dx'd 2/89) from 205.188.197.39
Mandy - is there a projected date for when this article will be in print? How many inches are they giving you?

Wed Sep 8 1999 22:24:48 Eastern US
Sara in Seattle (Sam, age 16, dx'd 5/96) from 63.23.255.218
My son was hospitalized for 3 days at dx and about 6 months later we attended a 3 day class.

Wed Sep 8 1999 22:24:52 Eastern US
ms from 152.163.204.182
Ellen, no one should be forced to do so also from the perspective that the initial understanding and support is sooo crucial

Wed Sep 8 1999 22:25:00 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Mandy: Thanks for coming. I'll keep this room open until 22:30. Watch for a transcript tomorrow.

Thanks to everyone who came and shared with Mandy.

Wed Sep 8 1999 22:25:00 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
the article is scheduled for november 15 and it's 8 pages of editorial, tabloid size pages, so it's sizable.

Wed Sep 8 1999 22:25:09 Eastern US
MaryAnn(Mich) (Jill 14) from 63.23.175.91
what other kids have to be begged to pee on a stick every once in a while to test for ketones!!

Wed Sep 8 1999 22:25:09 Eastern US
Maureen from 24.31.186.61
Especially if it is extremely hot or cold out I have a hard time picking up highs/lows and telling them apart. Or if I have a fever. THen going in and out of air conditioning/heating it gets to be next to impossible.

Wed Sep 8 1999 22:25:19 Eastern US
Mandy Gardner (mandyji@aol.com) from 141.150.94.168
thank you, jeff and everyone!!

Wed Sep 8 1999 22:26:00 Eastern US
Tracey...Idaho (Ashley 4 dx'd 7/99) from 209.19.143.135
what paper will it be in Mandy

Wed Sep 8 1999 22:26:02 Eastern US
ms from 152.163.204.182
Mandy, thank you for your time and your great effort! It is people like yourself who are making the difference!

Wed Sep 8 1999 22:26:11 Eastern US
Connie (FMwebDesign@aol.com) from 205.188.198.49
It's also sad to me that we are not assured to have the latest in management care ie: pump, because of the difference philosophies of clinics and insurance companies.. it should be our right

Wed Sep 8 1999 22:26:30 Eastern US
Sue from IL (Amy, 13, dx'd @ 9, pump) from 152.163.232.24
Which paper?

Wed Sep 8 1999 22:26:57 Eastern US
Connie (FMwebDesign@aol.com) from 205.188.198.49
Yes Mandy! THANKS for heightening awareness!

Wed Sep 8 1999 22:27:10 Eastern US
ms from 152.163.204.182
Is it possible for us to get a copy of the article some way?

Wed Sep 8 1999 22:27:19 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
The paper is the New York Daily News

Wed Sep 8 1999 22:27:50 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
New York Daily News web site:
http://www.nydailynews.com/

Wed Sep 8 1999 22:28:06 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
I'll be in contact with Mandy to see about getting reprints.

Wed Sep 8 1999 22:28:14 Eastern US
Connie (FMwebDesign@aol.com) from 205.188.198.49
Jeff! your awesome as usual for providing us this great FORUM ! :*

Wed Sep 8 1999 22:28:27 Eastern US
ms from 152.163.204.182
will it be possible to make a link for it once it comes out?

Wed Sep 8 1999 22:29:01 Eastern US
MaryAnn(Mich) (Jill 14) from 63.23.175.91
yes , thanks Jeff!!

Wed Sep 8 1999 22:29:08 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
ms: If they have the story online, I'll link to it.

Wed Sep 8 1999 22:29:09 Eastern US
Connie (FMwebDesign@aol.com) from 205.188.198.49
g'nite all!

Wed Sep 8 1999 22:29:25 Eastern US
ms from 152.163.204.182
Thanks Jeff - for all you do - have a good night everyone!

Wed Sep 8 1999 22:29:39 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Thanks to everyone for joining in. I think Mandy got a lot of good insight here.

Wed Sep 8 1999 22:29:56 Eastern US
Ellen from 205.188.197.39
Thanks Mandy!!!!!! :-).

Wed Sep 8 1999 22:30:37 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Closing down. Please head to another room.

Wed Sep 8 1999 22:30:47 Eastern US
Maureen from 24.31.186.61
Thanks Jeff and Mandy!

Wed Sep 8 1999 22:30:57 Eastern US
Ellen from 205.188.197.39
I wish Mandy could have seen me sitting here wearing my Children With Diabetes T-shirt.

Thanks Jeff , for everything.

Wed Sep 8 1999 22:31:50 Eastern US
Jeff Hitchcock (Marissa, 12, dx'd 9/89) from 206.112.197.133
Thanks Ellen. I'll have to mail her one!



                 
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