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Transcript of Pump Chat from September 23, 1999

On September 23, 1999, Diabetes Nurse Specialist Stephanie Schwartz hosted a special chat session about pumps. The transcript of that session is shown below.

Thu Sep 23 1999 20:48:43 Eastern US
Jeff Hitchcock from 206.112.197.133
Good evening. Our special chat on Advanced Pumping starts at 21:00.

Thu Sep 23 1999 20:51:14 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
OK - Here I am

Thu Sep 23 1999 20:53:58 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
where's stephanie?

Thu Sep 23 1999 20:54:15 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
oops - I'm early - sorry

Thu Sep 23 1999 20:55:44 Eastern US
Jeff Hitchcock from 206.112.197.133
I'll be back in a minute or two ... need to put out a small "child fire" upstairs. :-)

Thu Sep 23 1999 20:58:23 Eastern US
susanne from 207.89.137.248
evening.

Thu Sep 23 1999 20:58:38 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
Hi Susanne

Thu Sep 23 1999 20:58:47 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
Hi everyone, i am Caitlin, i ahve been on the pump for 6 mo

Thu Sep 23 1999 20:59:06 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
how do you like it, Caitlin?

Thu Sep 23 1999 20:59:56 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
I love it! The only problems I have ahd so far is with volleyball..........................

Thu Sep 23 1999 20:59:58 Eastern US
Roy Sikkink (roy.sikkink@hypertherm.com) from 206.231.24.233
Hello!!!

Thu Sep 23 1999 21:00:13 Eastern US
susanne (Mary age 7, dx. 12/96 pumping someday) from 207.89.137.248
Judy -crisis of the day. She left her meter at school in her locker. Fortunately we have a spare at home

Thu Sep 23 1999 21:00:14 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
Hi...

Thu Sep 23 1999 21:00:14 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Hi.

Thu Sep 23 1999 21:00:17 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
why? Do you disconnect?

Thu Sep 23 1999 21:00:40 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
it is not an active sport (like bbal or soccer) so when i disconnect i go high- but i am not allowed to wear it during the game

Thu Sep 23 1999 21:00:48 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
Hi Roy

Thu Sep 23 1999 21:00:48 Eastern US
susanne (Mary age 7, dx. 12/96 pumping someday) from 207.89.137.248
Hi Roy and Caitlin

Thu Sep 23 1999 21:00:57 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
Hello Roy
Elissa has left her meter in her locker also....even left her pump there

Thu Sep 23 1999 21:01:14 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
caitlin - do give a bolus before you disconnect?

Thu Sep 23 1999 21:01:23 Eastern US
Moira (Lauren, 8, dx @ 6) from 209.156.0.133
Hello. Hope it's okay for a "beginner" and even "pre beginner" on pumps to join an "advanced pumping" chat!!

Thu Sep 23 1999 21:01:32 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
Judy- yes, it is a required rule that you can;t where ANYTHING- not even barretts!

Thu Sep 23 1999 21:01:36 Eastern US
Jeff Hitchcock from 206.112.197.133
Good evening everyone. Looks like we've got a quorum, so we can officially begin. The topic tonight is Advanced Pumping, and Steph Schwartz, Diabetes Nurse Specialist and pump trainer for both Disetronic and MiniMed, is our host.

Thu Sep 23 1999 21:01:42 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
susanne, I see our daughters were dx'd the same month. I took Kim to the doc on Dec. 23 (while in the middle of making the biggest, bestest gingerbread castle ever--lots of frosting and candy!)

Thu Sep 23 1999 21:01:50 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
it seems rediculous to me

Thu Sep 23 1999 21:01:54 Eastern US
Jeff Hitchcock from 206.112.197.133
Moira: everyone is welcome!

Thu Sep 23 1999 21:02:43 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
i tried- and even 1 unit made me go low, .5 didn't do a thing!

Thu Sep 23 1999 21:02:49 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
what are we actually discussing tonight?

Thu Sep 23 1999 21:03:07 Eastern US
Cajel from 63.68.133.127
I dont have a pumping question but yall all left parents can i ask here?

Thu Sep 23 1999 21:03:07 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
Caitlin, two of my daughters played varsity volleyball and basketball. I think it's to keep every from getting hurt any more than necessary

Thu Sep 23 1999 21:03:09 Eastern US
susanne (Mary age 7, dx. 12/96 pumping someday) from 207.89.137.248
Linda-you and I got the same Christmas present that year. LOL ours came early 12/12/96

Thu Sep 23 1999 21:03:23 Eastern US
Jeff Hitchcock from 206.112.197.133
Judy, I'll wait for Steph to show up. She should be here soon.

Thu Sep 23 1999 21:03:36 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
caitlin - elissa would give about 1 unit - disconnect & have a 15 gms CHO snack. Seem weird, but it worked

Thu Sep 23 1999 21:03:49 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
i decided that i would try in the middle fo the game, but today i payed the whole thing- i don't see what is so dangerous abotu wearing the pump, it is not a contact sort

Thu Sep 23 1999 21:03:54 Eastern US
Moira (Lauren, 8, dx @ 6) from 209.156.0.133
I have happy news: Children's Hospital in Boston has agreed FOR THE FIRST TIME to put a little kind (Lauren) on the pump. They are hiring staff just for this -- BUT yesterday they told me they are worried that I don't have enough support -- do you folks find you need more support with a pumping kid? My husband is a doll but is not the best at diabetes care, so when I travel on business I just let it slide a bit. They said with the pump you CANNOT relax -- ever

Thu Sep 23 1999 21:04:03 Eastern US
Roy Sikkink (roy.sikkink@hypertherm.com) from 206.231.24.233
Caitlin, what problems did you have with volleyball?

Thu Sep 23 1999 21:04:19 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
o good idea! i ahev a game on mon and i will try it!

Thu Sep 23 1999 21:04:26 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
That's what Kim has to do Judy or she's really high. So that's two weird ones! LOL

Thu Sep 23 1999 21:04:55 Eastern US
ms from 205.188.192.46
Caitlin, i never played volleyball with the pump, but have played tennis and racketball with it

Thu Sep 23 1999 21:05:05 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
LOL Caitlin...it's not SUPPOSED to be a contact sport but quite often is! LOL

Thu Sep 23 1999 21:05:09 Eastern US
Cajel from 63.68.133.127
Hello?

Thu Sep 23 1999 21:05:28 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
true! lol

Thu Sep 23 1999 21:06:02 Eastern US
ms from 205.188.192.46
moira, in some ways its easier to relax when on the pump - more stability overall if things are set right

Thu Sep 23 1999 21:06:21 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Steph?

Thu Sep 23 1999 21:06:27 Eastern US
susanne (Mary age 7, dx. 12/96 pumping someday) from 207.89.137.248
For soccer we are doing the best taking an extra carb for breakfast before the game, taking extra Humalog and cutting the NPH. Oh the joys in MDI

Thu Sep 23 1999 21:06:28 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
yes, i do wear it while i play tennsi but take it off for basketball- i don't seem to have a problem there, i guess becasue of all the running

Thu Sep 23 1999 21:06:32 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
what ?? cajel?

Thu Sep 23 1999 21:07:02 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
IMHO you can't slack at all with a kid on the pump. Someone needs to be aware of how to change the site, and know what to look for as far as high bgs and ketones at all times. Even in the middle of the night.

Thu Sep 23 1999 21:07:27 Eastern US
Allana (Jessica 6, pumping 6 mos.) from 207.87.196.10
Hello everyone

Thu Sep 23 1999 21:07:34 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
You really can't let it slide when there's a problem like a set needing to be replaced or a syringe filled...Or the time I pushed abazillion units of H into Kim when I thought she was disconnected because I was trying to get rid of a bubble and she didn't realize it... She drank more oj than she thought possible while I worried about what to tell the paramedics if they were called. Luckily, she never dropped too low.

Thu Sep 23 1999 21:07:42 Eastern US
Cajel from 63.68.133.127
Judy cassie is 220 and is asleep can i skip her snack or should i wake her?

Thu Sep 23 1999 21:07:56 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Ellen: I agree. We've had a few nights during which we've done a site change because of problems.

Thu Sep 23 1999 21:08:34 Eastern US
Moira (Lauren, 8, dx @ 6) from 209.156.0.133
Ellen, that's what they are saying -- after two years my husband doesn't even know how to make insulin adjustments and slacks all the time. They are afraid I'll end up giving up my career (which as you all know I LOVE) because of the pump. But then I feel selfish == she should be on the pump. It's the best. Who am I to keep her from it?? Argh!

Thu Sep 23 1999 21:08:39 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
Those problems always come up about 3 am don't they? LOL

Thu Sep 23 1999 21:08:48 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
cajel - I wouldn't wake her, but test her about midnight

Thu Sep 23 1999 21:08:49 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
Hi Allana

Thu Sep 23 1999 21:09:16 Eastern US
Cajel from 63.68.133.127
Judy ok thanks soryr to bother you have a nice night

Thu Sep 23 1999 21:09:25 Eastern US
Moira (Lauren, 8, dx @ 6) from 209.156.0.133
LOL Linda!

Thu Sep 23 1999 21:09:35 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Cajel I would check her again after the chat

Thu Sep 23 1999 21:09:41 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
ok cajel

Thu Sep 23 1999 21:09:49 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
hi everyone !!!

Thu Sep 23 1999 21:10:02 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Welcome Steph.

Thu Sep 23 1999 21:10:05 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
It's a real problem Moira. I'm lucky because Kim changes her sets and knows what to look for and I've told my husband to give me a call so I can walk him through things in case of an emergency when I'm out of town.

Thu Sep 23 1999 21:10:12 Eastern US
Moira (Lauren, 8, dx @ 6) from 209.156.0.133
Hi Steph!

Thu Sep 23 1999 21:10:42 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
Hi Stpeh

Thu Sep 23 1999 21:10:45 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
hi

Thu Sep 23 1999 21:10:55 Eastern US
Moira (Lauren, 8, dx @ 6) from 209.156.0.133
They seem to think unless I can get someone as commtted as me to come on board, I need to wait a few years. Lauren wants the pump SO MUCH now and so do I

Thu Sep 23 1999 21:11:08 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Steph, we had a question earlier about the subject of tonight's chat. Perhaps you can offer some suggestions.

Thu Sep 23 1999 21:11:17 Eastern US
susanne (Mary age 7, dx. 12/96 pumping someday) from 207.89.137.248
Hi Steph

Thu Sep 23 1999 21:11:18 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
I also have two friends in town with daughters who pump adn they've both told me to have my hubby call them in case of an emergency.

Thu Sep 23 1999 21:11:43 Eastern US
Moira (Lauren, 8, dx @ 6) from 209.156.0.133
And the funny thing is, so does my husband but he was not with me at endo yesterday when this was said -- and I don't even know how to tell him without hurting him "Oh, honey? The hospital thinks you're useless!"

Thu Sep 23 1999 21:11:44 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
what was the question ?

Thu Sep 23 1999 21:12:04 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
LOL MOira!!!

Thu Sep 23 1999 21:12:08 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Moria, your husband is just going to have to get involved. Time to empower him.

Thu Sep 23 1999 21:12:21 Eastern US
Moira (Lauren, 8, dx @ 6) from 209.156.0.133
There are no other children in my town on the pump. There are a couple of adults

Thu Sep 23 1999 21:12:26 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
I agree with Ellen, Moira

Thu Sep 23 1999 21:12:33 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Jeff???

Thu Sep 23 1999 21:13:05 Eastern US
Moira (Lauren, 8, dx @ 6) from 209.156.0.133
Ellen find a way and I'll give you my next book advance LOL

Thu Sep 23 1999 21:13:16 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24
So. Moira--Would your husband be willing to take the Pump Training with you and your daughter?

Thu Sep 23 1999 21:13:16 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
steph - we wondering if there was going to be a particular subject tonight?

Thu Sep 23 1999 21:13:44 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
I think we moms take over too much of the time. I do think the dads need to be empowered.

Thu Sep 23 1999 21:13:48 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
My husband became very involved when Steve started pumping. Maybe because he's mechanically inclined and liked the "mechanics" of the pump. He's very good with it. Still needs some work at carb counting, but he's getting better.

Thu Sep 23 1999 21:14:36 Eastern US
Moira (Lauren, 8, dx @ 6) from 209.156.0.133
Oooh,. Connie, your daughter is Lauren's age . . . he'd take training but I think there's a missing link there. He is STILL in denial after two years. But he does really want the pump. Maybe this could force him to face up to it

Thu Sep 23 1999 21:14:45 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
last time we did a pump chat people wanted an advanced one. I think to help you use the pump more effectively.

Thu Sep 23 1999 21:15:08 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Moira, there are certain things no man will refuse LOL...shall I send you my address for that advanced copy NOW?

Thu Sep 23 1999 21:15:30 Eastern US
Moira (Lauren, 8, dx @ 6) from 209.156.0.133
Too too funny Ellen . . . !!

Thu Sep 23 1999 21:15:34 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24
Right on, Ellen--- But you know , sometimes it is our problem--We moms take over and want control-- and then expect our husbands to step in when we need a break-- and they feel out-of-it.

Thu Sep 23 1999 21:15:35 Eastern US
Sue from IL from 152.163.232.21
Evening all!

Thu Sep 23 1999 21:15:52 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
so you guys need to tell me what you'd like to talk about

Thu Sep 23 1999 21:15:59 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
Steph: Question came up here tonight about using a dual wave bolus vs. square wave and how do you know how long to time the bolus? We're just starting to "experiment" with those features.

Thu Sep 23 1999 21:16:15 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
has anyone tried the sofset minis? I've heard mixed reviews

Thu Sep 23 1999 21:16:27 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
i agree Linda- my mom has always been much mroe involved with D than my dad- especially when it comes to school

Thu Sep 23 1999 21:17:35 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Judy: Marissa has a Disetronic pump and uses the Tenders. She's never used a Sofset mini.

Thu Sep 23 1999 21:17:44 Eastern US
Maureen from 204.210.252.200
Hi everyone.

I've tried the micro sof-sets for MiniMed. I like my sils better, but like the micros better than the regular.

Thu Sep 23 1999 21:17:45 Eastern US
susanne (Mary age 7, dx. 12/96 pumping someday) from 207.89.137.248
Sorry I can't stay tonight. I need to get kids to bed.

Thu Sep 23 1999 21:17:51 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Amy is testing them now Judy -- had 1 day of absolutely wonderful #'s -- ALL between something like 103 and 117. Then I quit knocking on wood and she had a site problem. :-)

Thu Sep 23 1999 21:18:13 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
a dual wave bolus is if you're eating something in pieces eg. 2 carbs now and 4 2 hours from now to avoid having to take another bols. A square wave bolus is used for a high fat meal eg pizza when you want to delay the absorption of insulin to correspond with the delay in carb absorbtion.

Thu Sep 23 1999 21:18:20 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
I didn't mean to call them mini's - LOL!

Thu Sep 23 1999 21:18:29 Eastern US
Roy Sikkink (roy.sikkink@hypertherm.com) from 206.231.24.233
Has anyone found a software package that works really well with a pump and the Accu-Chek Complete? Accutilty left a lot to be desired.

Thu Sep 23 1999 21:18:49 Eastern US
Renee (Melissa, 16 1/2, dx'd at 9, pump 3 1/2 yrs) from 152.163.213.46
Greetings all...sorry I'm late..was having an "instant message chat" with my college daughter- IN FRENCH!!!

Thu Sep 23 1999 21:19:06 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
sue - can you still use the sofserter with them?

Thu Sep 23 1999 21:19:19 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
that software is just being beta-tested minimed is working on it

Thu Sep 23 1999 21:19:27 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Honestly, I haven't seen much difference in them than the reg. sof-sets, looking at numbers. Amy says they don't feel any different going in, but then again, she's not had many problems with the reg. sets.

Thu Sep 23 1999 21:19:39 Eastern US
Stephers from 12.65.0.150
Hello! I am 15 years old and considyering the pump. I know all the good things it can bring but, I want to hear the not so good side of it too if there is one.

Thu Sep 23 1999 21:20:00 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
u can use the soft serter with the new mini

Thu Sep 23 1999 21:20:16 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Absolutely Judy. The only difference in them is that the canula is shorter and the "tabs" are a little different.

Thu Sep 23 1999 21:20:35 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Stephers you have to watch things a LOT more closely than you did b4

Thu Sep 23 1999 21:20:41 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
Elisa tried the sils for a change, but didn't like them

Thu Sep 23 1999 21:20:43 Eastern US
Maureen from 204.210.252.200
I used the sof-serter with them and it worked fine. I think it is really just more of a preference to Silouettes.

Thu Sep 23 1999 21:20:52 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
When using a square wave bolus, is there a "rule of thumb" about how much, when, for how long? Or do you just experiment until you get it right?

Thu Sep 23 1999 21:21:10 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
i know this is probably a stupid question, but what is the differecne between the mini and the regular? is it the needle size? I use the regular and so far i really like them

Thu Sep 23 1999 21:21:38 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Hi Stephers -- down side, if you can call it that, is the extra testing to keep on top of any problems that could arise, and the initial record keeping.

Thu Sep 23 1999 21:22:24 Eastern US
Cajel from 63.68.133.127
Steph..is it a good thing for a toddler to use it Cassie is almost three and i would like to put her on one, just didnt know if it is safe

Thu Sep 23 1999 21:22:38 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
you need to experiment with it. I would use your same insaulin/carb ratio and deliver the bolus over about 2 hours. It is also very useful on a sick day instead of giving a whole blast of insulin at once.

Thu Sep 23 1999 21:22:50 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
There is LOTS of testing initially. In the first 5 days, Steve did almost 100 tests. We stayed overnight in the hospital, so they put a hep lock in to draw blood every hour.

Thu Sep 23 1999 21:22:51 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
I don't think you have to watch things more closely than before on the pump. I think you learn that in retrospect you should have been watching things more closely on injections. Just my opinion.

Thu Sep 23 1999 21:22:55 Eastern US
Renee (Melissa, 16 1/2, dx'd at 9, pump 3 1/2 yrs) from 152.163.213.46
Sharon..LOTS of variation I've found...for Melissa, what works better than a square wave is to do a regular bolus & then do a temporary basal, increasing from her .6 to a full 1.0 for about 4 hours...that prevents the rise from the fat/protein in a meal like pizza, chinese, etc...For her, a square wave didn't give her enough initially & she rose into the 300s by 3 a.m.

Thu Sep 23 1999 21:23:27 Eastern US
Carol from 12.74.137.195
Has anyone found a way to keep the sofset in when swimming for a long time. Mine just slide out which means I then have to change the whole site.

Thu Sep 23 1999 21:23:30 Eastern US
Stephers from 12.65.0.150
hhmmmm... just more testing?? I don't know if my fingers could take that! hehe! they get so hard! Is there any way it could get infected or anything???

Thu Sep 23 1999 21:23:54 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
Thanks, Steph.

Thu Sep 23 1999 21:24:08 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Cajel -- i can't make that decision for you. There are lots of little kids on pumps, but the studies have yet to be published. You need to carefully consider all the factors in consult with your diabetes team. LOL

Thu Sep 23 1999 21:24:19 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Renee, did you try the dual wave? That works best for Amy

Thu Sep 23 1999 21:24:36 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
Stephers- have you tried the fingers cream? it really helps!

Thu Sep 23 1999 21:25:02 Eastern US
Maureen from 204.210.252.200
I guess another down side would be the increase risk of DKA/ketones. I'm not "prone" to ketones, but shot up really high (like my meter didn't read me for 3 hours, so above 600) because a site got pulled out without my knowledge. I didn't have any ketones, but that could have been a lot worse than it was. Something that I thought would be a negative is wearing something 24/7, but it is so "part" of me, I don't really think of it anymore.

Thu Sep 23 1999 21:25:04 Eastern US
Renee (Melissa, 16 1/2, dx'd at 9, pump 3 1/2 yrs) from 152.163.213.46
But then again, that "downside" is actually an "upside" since the frequent testing enables you to identify potential problems BEFORE they become really serious....I also find Melissa checks A LOT more often because (usually) it's a corroboration that her "troubleshooting" was accurate- which makes her feel good...

Thu Sep 23 1999 21:25:04 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
We have the old Disetronic - no s or d-w bolus. Can't even temporarily increase basal - what do you suggest for a late night high carb meal - so that bgs don't soar many hours later?

Thu Sep 23 1999 21:25:08 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
yes Stephers, your insertion site can easily get infected if not taken care of properly.

Thu Sep 23 1999 21:25:45 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Ellen you can do a temp basal increase on the Disetronics

Thu Sep 23 1999 21:25:50 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
Carol- i am on a swin team during the summer and I have yet to have a problem- i accualyy put 2 extra peices of tape when swimming- u can't tell the differecne and it seems to do the trick

Thu Sep 23 1999 21:26:01 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
I concur with Ellen: Vigilence is required for diabetes, regardless of insulin regimen. For Marissa, the pump has meant greater freedom and spontaneity.

Thu Sep 23 1999 21:26:20 Eastern US
Cajel from 63.68.133.127
Steph.. ok i just didnt know if there was pros and cons to her having it. since she is so little.. but thanks i will read up and talk to her doc :-)

Thu Sep 23 1999 21:27:14 Eastern US
Stephers from 12.65.0.150
i try the cream 3 times a day! they still are really hard though! Sometimes I have to prick them 5 TIMES for them to bleed enough!!!

What happens if the pump drops on the floor?? could the tubing come out of your body???

Thu Sep 23 1999 21:27:20 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
The spontaneity and the freedom are the best things about the pump Kim can be an 11 yr old..just like all the other 11 yr old!

Thu Sep 23 1999 21:27:29 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
Steph-what si all the talk about the new MiniMed 200 they are making? is it really that different?

Thu Sep 23 1999 21:27:35 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
Ellen put it very well when she reminded me (ever SO gently :-) ) - "Even with the pump, it's STILL diabetes". I think of that EVERY day.

Thu Sep 23 1999 21:27:43 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Cajel e-mail us if you have specific qustions

Thu Sep 23 1999 21:27:49 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
oops, i mean 2000

Thu Sep 23 1999 21:28:27 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
Elissa has been on the pump FOREVER, but I can't imagine her easing into college life without it

Thu Sep 23 1999 21:29:11 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
I think that was the biggest disappointment I had when Kim started pumping...she still had D and she still had highs and lows. But all I have to do is think about the days before pumping and I realize that the pump is really a blessing

Thu Sep 23 1999 21:29:16 Eastern US
Maureen from 204.210.252.200
I've dropped my pump, even had it stepped on (long story), but it has always been fine, just a few scratches to give me a few memories!

Thu Sep 23 1999 21:29:17 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
I'm not sure the new Mini-med is all that different but you will be able to download the data from it and integrate it with data froma Accucheck. The pump with sensor is about 5 years away

Thu Sep 23 1999 21:29:21 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Can only do a temp decrease on the HTronV100. Can't do a temp basal increase. We need a new pump but I'm waiting for the next generation. Last time we bought the HTronV100 it was just before the Plus came out :-(. I still think they make a fine precise product.

Thu Sep 23 1999 21:29:25 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
Steve puts down IV3000, inserts the set through the hole in the tape, then sticks the sof-set to the IV3000 and holds the set to the IV3000 with the other stickier tape that comes with his sof-sets. When he swims a lot, he covers the entire thing with polyskin or tegaderm. We use no skin prep except for soap and water and alcohol.

Thu Sep 23 1999 21:30:25 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Caitlin, I haven't heard about a Minimed 2000, but at a pump program Amy was involved in this summer, the rep said they were already working on a 511 that will include the glucose sensor in it.

Thu Sep 23 1999 21:30:29 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24
Yes, Stephers-- it can be dropped and once my daughter's cracked (replaced with no questions) and yes, the site can pull out-- rarely for Marisa and she is very active-- Then you just put in a new site--

Thu Sep 23 1999 21:30:40 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Ellen you should be ready to upgrade Disetronics will work with ypu

Thu Sep 23 1999 21:31:08 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
Kim uses a little dab of antibacterial gel on a cotton ball and rubs it on her skin before she does her set change

Thu Sep 23 1999 21:31:10 Eastern US
Maureen from 204.210.252.200
Judy, I was thinking about that this morning as I was going to class. I have no idea how I pulled off especially the first few months as well as I did... the first Saturday was quite a rude awakening when I found out the food courts didn't open until 11am.

Thu Sep 23 1999 21:31:17 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
Hello.

Thu Sep 23 1999 21:31:31 Eastern US
Stephers (StephersStuff@hotmail.com) from 12.65.0.150
I have a hard time with eating bedtime snacks!!! I'm never hungry because I just ate dinner but, my sugar is too low to not have a snack. Is it true that with a pump I wouldn't HAVE to eat a bedtime snack???

Thu Sep 23 1999 21:31:39 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
cool! i hope it comes out

Thu Sep 23 1999 21:31:50 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24
We just received a letter today asking if Marisa wants to test the continuous sensor-- interesting....

Thu Sep 23 1999 21:31:51 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
Has anyone known of a pump that hasn't gone swimming in the toilet? LOL They do take a certain amount of abuse.

Thu Sep 23 1999 21:32:38 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Linda, Amy's went swimming for the 1st time this summer. Came out just fine -- good thing it was a clean bowl!! lol

Thu Sep 23 1999 21:32:51 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Linda: Marissa's pump went in a river, but not a toliet. At least not yet.

Thu Sep 23 1999 21:33:02 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
not necesdsarily Stephers. If your sugar is too low at bedtime you need to adjust your supper short-acting insulin.

Thu Sep 23 1999 21:33:03 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
Steve dove into a pool this summer with his Minimed in the pocket of his swim trunks. He realized it right away and disconnected. It got wet but nothing happened to it.

Thu Sep 23 1999 21:33:10 Eastern US
Maureen from 204.210.252.200
Mine hasn't taken a swim in the toliet, yet! But it has taken a shower (I have a MM so, yes it was a mistake).

Thu Sep 23 1999 21:33:30 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
I wish the MM sensor tested Blood glucose instead of interstitial fluid glucose...kids drop pretty rapidly - I worry about the lag time.

Thu Sep 23 1999 21:33:49 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
i really want to be part of those studioes, but i go to an independant endo, so i haven't really gotten the opprtunity

Thu Sep 23 1999 21:34:11 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Ellen the lag is about 5 min what did you do before you could check BS?

Thu Sep 23 1999 21:34:23 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Ellen: According to MiniMed's test data, interstitial fluid drops before blood glucose, so you'll get a 5-10 minute warning.

Thu Sep 23 1999 21:34:24 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
is there any other way to get involved

Thu Sep 23 1999 21:34:49 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
i like near Yale and they do a lot of them butthat is really on a patient basis

Thu Sep 23 1999 21:35:04 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
thanks Jeff

Thu Sep 23 1999 21:35:05 Eastern US
Maureen from 204.210.252.200
If anyone is wondering, no I don't normally shower with my clothes on but I was so muddy that I wanted to "prewash" my clothes, forgot about my pump until I lathering that part of my body...

Thu Sep 23 1999 21:35:10 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
Speaking of set changes, time for ours!! He's down to his last few units - that's his usual trick, reminding me just before bedtime that he's about to run dry. Not the best time to change, but what's a mother to do? Thanks, all - and Happy Pumping!

Thu Sep 23 1999 21:35:20 Eastern US
Beth (IA) (Reann 14, dx'd 7/98soon to be pumping) from 206.72.22.148
Hi, reann just got her pump and will start pumping on Monday.

Thu Sep 23 1999 21:35:35 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Ellen and Steph: See:
MiniMed Continuous Glucose Monitoring System Recommended by FDA Panel
http://www.childrenwithdiabetes.com/d_0j_20d.htm

Thu Sep 23 1999 21:35:38 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Disetronic will give me a discount for upgrading? But when is their next generation coming out? I have to say, I am sooooo comfortable with the pump that Z has, I have anxiety about changing.

Thu Sep 23 1999 21:36:01 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Caitlin try contacting Dr. Tamborlane at Yale or Mini-med directly

Thu Sep 23 1999 21:36:23 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
Caitlin - I live near Yale, too. Do you go to Dr. Etkind?

Thu Sep 23 1999 21:36:45 Eastern US
Stephers (StephersStuff@hotmail.com) from 12.65.0.150
Ummm... I know this is a little off the subject but, are there any teens here (or parents that think thier teens would be interested) that would be interested in joining my "TEENS WITH DIABETES" e-mail list??? If so, e-mail me or send an e-mail to teenswithdiabetes@onelist.com (there are already 35 people from all over the world on it too!!!

Thu Sep 23 1999 21:36:50 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Ellen I think so they'll probably have a new pump out next year

Thu Sep 23 1999 21:36:57 Eastern US
Caitlin (CaitM34@aol.com) from 152.163.195.207
I gotta go- nice talk to all of you! and thanx again

Thu Sep 23 1999 21:37:08 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24
Are any of you in the test programfor the sensor?

Thu Sep 23 1999 21:37:09 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Zachary's been testing bg since dx.
Our endo said that ISF lags up to 15 minutes behind bgs.

Thu Sep 23 1999 21:37:11 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
I'm wondering, if it tests interstitial fluid, how, when the sensor doesn't move any, can it test fluid accurately? Wouldn't some of the "old" fluid it already tested still remain in the area?

Thu Sep 23 1999 21:38:46 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Sue: MiniMed's test data is quite good. I was at their FDA hearing. The sensor works as advertised.

Thu Sep 23 1999 21:39:01 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
It averages out the readings over a five min time period

Thu Sep 23 1999 21:40:34 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Are we still here ????

Thu Sep 23 1999 21:41:05 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
I was just wondering the same thing. Everyone awake????

Thu Sep 23 1999 21:41:07 Eastern US
Maureen from 204.210.252.200
I think I would like to have MM new sensor than the periodic reading that I do now, even if it does lag behind I could still get a better picture of what is happening.

Thu Sep 23 1999 21:41:13 Eastern US
Stephers (StephersStuff@hotmail.com) from 12.65.0.150
i'm here!

Thu Sep 23 1999 21:41:16 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Ellen, I find it interesting (hehe) that you hesitate to upgrade! But I understand your reason...

Thu Sep 23 1999 21:41:25 Eastern US
Dawn from 207.161.236.18
Our clinic doesn't use the pump on anyone....where could I find good info?

Thu Sep 23 1999 21:41:26 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Steph, what do you advise kids who play contact sports, such as football, and who wear a pump?

Thu Sep 23 1999 21:41:30 Eastern US
Karen (IL) (Christie 12, dx. 12/97) from 205.188.197.24
Hello...do you have any advice for someone whos daughter will be getting the pump in about a month?

Thu Sep 23 1999 21:42:05 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
Get lots of sleep now, Karen. Those 3 a.m. blood sugars are a killer!! :-)

Thu Sep 23 1999 21:42:10 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
I don't think Amy would go for having another "set" in her to test bgs, but I haven't asked her opinion on it either! She may surprise me.

Thu Sep 23 1999 21:42:14 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
Has anyone else wondered why they don't package the tubing with the syringe reservoir instead of the infusion set? We waste more sets and tubings.. never seem to need the tubing when she puts in a new set but always has to open a set to get tubing when her syringe runs dry!!

Thu Sep 23 1999 21:42:19 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
get the pump now and "play with it" watch the video at least three times with pump in hand.

Thu Sep 23 1999 21:42:50 Eastern US
Maureen from 204.210.252.200
Does anyone else have their sites turn red after swimming in chlorine? No matter how new or old it is, it is always red, and the site takes longer to heal. I've swam in lakes (some of them not that clean) and been fine. I try to rinse off after, but other than that, I don't have a clue.

Thu Sep 23 1999 21:42:57 Eastern US
Cajel from 63.68.133.127
where do u get a video?

Thu Sep 23 1999 21:43:27 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Karen: My advice is to start kids right away on insulin, and not to start with saline. When you pump saline, you get none of the advantages of the pump and all of the disadvantages.

Thu Sep 23 1999 21:43:30 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
a lot of kids I know who play soccer and football put the pump under a pad --and, or for boys tucked in their jock strap. Some other kids disconnnect

Thu Sep 23 1999 21:43:40 Eastern US
Stephers (StephersStuff@hotmail.com) from 12.65.0.150
What about what the pump/infusion site looks like??? Is it really unatrractive???

Thu Sep 23 1999 21:43:43 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
the video comes with the pump

Thu Sep 23 1999 21:44:03 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Stephers --- your belly!!!

Thu Sep 23 1999 21:44:13 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
Marcia, we were told by the MM trainer to change everything at once, so that's what we always do. We fill the syringe with 3 days worth and change the site on the 3rd day, changing reservoir, and infusion set.

Thu Sep 23 1999 21:44:47 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
I was answering an email - a woman with diabetes has an 8 month old with diabetes. I recently read about a German endo who is using the pump with diluted humalog in neonates with diabetes and directed her to him. He has offered his protocol for anyone interested.

Thu Sep 23 1999 21:45:17 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Karen, where in IL are you?
Jeff, for the 1st time since pumping, Amy ran into a snag with sports last week. One of the refs at her volleyball game was not going to allow her to play with it on! Said it might get broken! Her coach said, "Look, she plays volleyball, soccer, highjumps, basketball and track and has never had a problem before!" Coach is suggesting we get a letter to the "head of Illinois High School Athletics" for next year -- just in case!

Thu Sep 23 1999 21:45:19 Eastern US
Maureen from 204.210.252.200
Most contact sports I've worn it on my back on my spine or under my arm in my bra (which is the "better" of the two for me)

Thu Sep 23 1999 21:45:21 Eastern US
Linda/So. Utah (Kim, age 11, pumping 1.3 yrs.) from 216.190.28.33
I agree with you Jeff. Kim had to wear a pump for a few days without insulin and had a hard time udnerstand what the benefits were.

Thu Sep 23 1999 21:45:21 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Ellen: Please send me contact information.

Thu Sep 23 1999 21:45:22 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
Cajel - try the pump websites (Minimed and Disetronic) and they will send you videos and all kinds of info on their products. Free of charge.

Thu Sep 23 1999 21:45:56 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
makes perfect sense to dilute the insulin if you're using a pump with little kids

Thu Sep 23 1999 21:46:22 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
Jeff, Steph started with saline and I thought it gave her a good opportunity to work out some of the bugs of mechanics safely.. we switched to insulin on a Friday morning.. spent a couple hours at the endo's and I dropped her off at school that afternoon.. no need to hospitalize..we then had a long weekend to finish up.

Thu Sep 23 1999 21:46:46 Eastern US
Karen (IL) (Christie 12, dx. 12/97) from 205.188.197.24
Sue I live in Calumet City...near Hammond, IN..where are you?

Thu Sep 23 1999 21:46:50 Eastern US
Cajel from 63.68.133.127
sharon, ok thanks i will look it up

Thu Sep 23 1999 21:46:58 Eastern US
Stephers (StephersStuff@hotmail.com) from 12.65.0.150
Maureen, doesn't it feel funny under your bra????

Thu Sep 23 1999 21:47:06 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Marcia: Your daughter was older when she started and could understand intellectually what was happening. Marissa was 11 and really wouldn't have been able to.

Thu Sep 23 1999 21:47:21 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
I thought my son trying the pump on saline before buying the pump was a great thing for him. He didn't feel pressured that we already owned it and he had to go through with it.

Thu Sep 23 1999 21:47:31 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
when elissa was a toddler, we diluted the insulin, because, if I recall, the pump did only .5 unit boluses

Thu Sep 23 1999 21:47:53 Eastern US
Maureen from 204.210.252.200
I use arm sites (which work really well for me, but only can do them if I have help) and then have worn tank tops. I also have used my legs.

Thu Sep 23 1999 21:48:19 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Karen, other side of the state -- Quad City area.

Thu Sep 23 1999 21:48:27 Eastern US
Renee (Melissa. 16 1/2, dx'd at 9/pump 3 1/2 yrs) from 152.163.213.61
Sharon...Melissa fills the syringe with 300 units..lasts a full week..changes just the Silhouette infusion set mid-week....and for the survey purpose, her pump hasn't gone in the toilet -YET! ( of course Sue knows what happens when you say things like that - right?)

Thu Sep 23 1999 21:48:29 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
Sharon, but if the site comes out on day 2 you have to replace it.. the syringe is still full.. then the next day the syringe is empty but the site is still good!! would solve everything if the tubing came with the syringe.

Thu Sep 23 1999 21:48:30 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24
We've found that it's better if Marisa disconnects for volleyball matches and tennis matches. For one thing, it's hard to find a good place for it--- ockets in sports shorts are too flimsy and the officials get real nervous when she wears it on clipped to her waist-- Plus she doesn't need the insulin when she has that kind of activity.

Thu Sep 23 1999 21:48:46 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
thats right Judy and Disetronics is till .5 U increments

Thu Sep 23 1999 21:49:07 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
Steve pumped saline for a few days, I think it was helpful in that he inserted a couple of sets, played with the buttons, learned to sleep with it. The "go live" day was rather anti-climactic, except that he kept on going really low because the initial basal rate they set was too high! But mechanically he had everything down pat.

Thu Sep 23 1999 21:49:33 Eastern US
Maureen from 204.210.252.200
Nope, don't really notice it. If it is in the center, I don't, if it is under my arm it has to be a little to the front or back otherwise I can sometimes feel it when I move my arm in some ways.

Thu Sep 23 1999 21:49:47 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
yes, stephanie, but can't the disetronic be reprogrammed for 0.1 unit increments?

Thu Sep 23 1999 21:49:53 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Karen, do you mind if I ask what Dr. is putting your daughter on a pump? We had to look around a lot, but didn't look to Chicago.

Thu Sep 23 1999 21:50:07 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24
Marisa's Dis. has a custom bolus of .1 units

Thu Sep 23 1999 21:50:09 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
yes Judy at the manufacturer

Thu Sep 23 1999 21:50:22 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
maureen - you must use the longer tubing, then?

Thu Sep 23 1999 21:51:01 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Disetronic can be set to whatever you want the bolus to be - I'm ok with the .5 for my son but for a little one I might have it set at .2

Thu Sep 23 1999 21:51:04 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Right Renee!! lol

Thu Sep 23 1999 21:51:15 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
We've just always changed everything, guess we've wasted some perfectly good insulin, but I'm really chicken when it comes to changing what the trainer told us.

Thu Sep 23 1999 21:51:27 Eastern US
Karen (IL) (Christie 12, dx. 12/97) from 205.188.197.24
Sue...I learned everything about the pump I could..I called Minimed...they called her doctor..He is at the Hammond Clinic...Dr. Jabri

Thu Sep 23 1999 21:52:25 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24
A full syringe of insulin lasts Marisa about 9 days-- no problems

Thu Sep 23 1999 21:52:29 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Good for you Karen!! Sounds similar to our experience -- does Dr. Jabri have other pump patients, or will she be his 1st?

Thu Sep 23 1999 21:52:45 Eastern US
Maureen from 204.210.252.200
Yes, I like it anyhow (the long tubing). I started with my using different sites thing when a man I worked with was perpetually pulling out sites no matter how much I tried to plaster them to me (one day he got three sites out...), one of my CDE's suggestions was to try different areas.

Thu Sep 23 1999 21:53:20 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
Sharon, hasn't he ever put in a new site and had it come out the same day even.. we had a terrible time finding something to stick in the beginning.. thanks again everyone for all the good advice those first few weeks.

Thu Sep 23 1999 21:53:42 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
Elissa's never tried her arms - not sure I could convince her

Thu Sep 23 1999 21:53:53 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Maureen, you mean he was pulling them out of you?

Thu Sep 23 1999 21:53:56 Eastern US
Karen (IL) (Christie 12, dx. 12/97) from 205.188.197.24
He has others...at first he didn't want to put her on the pump...but we made up our mind and he went along after finding out that we were able to handle it...she already does her bg. at least 4 times a day.

Thu Sep 23 1999 21:54:16 Eastern US
Renee (Melissa. 16 1/2, dx'd at 9/pump 3 1/2 yrs) from 152.163.213.61
HOWEVER- cautionary note...when we were in Florida in December, Melissa kept getting no delivery alarms..called Minimed at midnight...walked her through every conceivable "test"- changed her set..kept happening..FINALLY resolved the problem by changing out EVERYTHING, including the reservoir....whatever was causing the problem, it wasn't going to go away until everything had been replaced...

Thu Sep 23 1999 21:55:27 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
The one time that happened, we just changed the infusion set, and did keep the reservoir that was full. Other than that, no falling out problems - KNOCK ON WOOD, Sue!!!

Thu Sep 23 1999 21:55:49 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Amy has no problems with sites sticking usually. This summer, in fact, just a few weeks ago, she actually had a site fall out and the tape was still in place. All we could think of was during the course of volleyball practice, she must have "wound" the tubing up too tight and pulled it during a dive.

Thu Sep 23 1999 21:55:58 Eastern US
Maureen from 204.210.252.200
Yes, he pulled them (silouettes) out of me. I still can't figure out how he could manage to get a site pulled out through my clothing without actually touching the tubing itself so quickly.

Thu Sep 23 1999 21:56:09 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
Cavilon cream has been highly recommended at the Insulin-Pumpers web site for sticking problems

Thu Sep 23 1999 21:56:24 Eastern US
Renee (Melissa. 16 1/2, dx'd at 9/pump 3 1/2 yrs) from 152.163.213.61
Nor Melissa, Judy..when I mentioned Maureen was using her arms, she gave me one of those "teenaged faces"!

Thu Sep 23 1999 21:56:39 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
my friend also uses her upper back - of course she has to have someone else put them in. She's had some pooling problems - the insulin seemed to collect in pockets and then release whenever it felt like it in the ab area after so many years of injecting and sites there.

Thu Sep 23 1999 21:56:49 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
We find it very important to prime the syringe to lubricate it.. otherwise you can get a no delivery alarm because the syringe sticks.. I also wish the MM had a "low insulin" alarm.. Steph has had to fill syringes at 0300am!! (doesn't take that happening too often before you learn to check before you go to bed!)

Thu Sep 23 1999 21:57:04 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
CAUTION -- with the MiniMed cartridges be sure you slowly push the plunger back and forth at least 3 times (while twiting otherwise the silicon will not lubricate the cartride properly and you'll get a no delivery alarm

Thu Sep 23 1999 21:57:08 Eastern US
Sharon (Steven, 13, pumping since 7/99) from 204.60.201.108
Well, folks, it's site change time. Catch you all later. Thanks to you ALL for your support these past few months. We never would have made the transition so smoothly without ALL of you wonderful people!!

Thu Sep 23 1999 21:57:25 Eastern US
Renee (Melissa. 16 1/2, dx'd at 9/pump 3 1/2 yrs) from 152.163.213.61
Stpeh..are you finding more parents coming into the practice asking to put their kids on pumps than say a year ago?

Thu Sep 23 1999 21:57:38 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
good night, sharon

Thu Sep 23 1999 21:58:00 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
Where do you get cavilon cream.?

Thu Sep 23 1999 21:58:01 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Was it a game? Or was he just perverted?? lol

Thu Sep 23 1999 21:58:25 Eastern US
Maureen from 204.210.252.200
I was very against my arms as well, but extremely annoyed at that point so willing to try anything, I put it in, and it was great. Now I use it when I have the opportunity. I do get some strange questions when I wear tank top/sleeveless shirts with an arm site in.

Thu Sep 23 1999 21:58:50 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
Marcia - I'd have to check. It's from 3m & people were saying your pharmacy could order it....oh, wait....I think someone said they ordered it from mypharmacy.com

Thu Sep 23 1999 21:58:55 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
One of my biggest frustrations is loading up the cartridges. I wish someone would make them prefilled with Humalog.

Thu Sep 23 1999 21:58:59 Eastern US
peter from 209.246.214.243
Is my seven year old to young for the pump?

Thu Sep 23 1999 21:59:05 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
REnee
I'm not in practice per se anymore but lots of questins for the d-team and from parents here in A2

Thu Sep 23 1999 21:59:34 Eastern US
Renee (Melissa. 16 1/2, dx'd at 9/pump 3 1/2 yrs) from 152.163.213.61
Marcia: "doesn't take that happening too often before you learn to check before you go to bed!"...you said the "magic words"....No matter how much I COULD nag at Melissa, the BEST "teacher" for her is experience....if she forgets to do something pump-wise & her bgs soar into the high 200s or 300s, she feels so lousy now that SHE doesn't want it to recur....the onus for being responsible is shifting from me to her

Thu Sep 23 1999 21:59:41 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
Jeff..what a great idea!!

Thu Sep 23 1999 21:59:44 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
prefilled cartridges for both pumps are pending FDA approval as we chat

Thu Sep 23 1999 21:59:55 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
(with tubing attached!)LOL

Thu Sep 23 1999 22:00:24 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Bye Sharon -- take care!

Thu Sep 23 1999 22:00:26 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
I've seen others say that too Jeff. I've always wondered what the big deal is about loading them. Most of the time I load them while I'm chatting in the parents room. Of course I'm almost always there. Trick is to fill the cartridges with room temp insulin. I prefill 3 at a time - and keep them on hand in the refrig. Then I let it get to room temp before priming a new cartridge also - less bubbles that way.

Thu Sep 23 1999 22:00:37 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Steph, will they be prefilled with Humalog?

Thu Sep 23 1999 22:00:43 Eastern US
Maureen from 204.210.252.200
No, it wasn'ta a game. There were lots of problems with him (it is a very long strange story), he has mental retardation and is always grabbing for people's hands, but misses alot and grabs shirts instead, and felt I had something under my shirt and kept trying to "get" it...

Thu Sep 23 1999 22:01:20 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
I believe both Humalog and Regular willbe available but the Humalog first

Thu Sep 23 1999 22:01:24 Eastern US
Stephers (StephersStuff@hotmail.com) from 12.65.0.150
M

Thu Sep 23 1999 22:01:34 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Peter, my son was 7 when he started pumping -

Thu Sep 23 1999 22:01:37 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24
Ellen-- I fill 3 also, but the 3rd is always short-- figure?

Thu Sep 23 1999 22:01:48 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Ellen: room temp insulin must be the trick, because I try with cold and getting rid of the bubbles is a challenge.

Thu Sep 23 1999 22:01:56 Eastern US
Stephers (StephersStuff@hotmail.com) from 12.65.0.150
ooops! sorry!!! :-)
Maureen- how old are you???

Thu Sep 23 1999 22:02:17 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Ellen I think the glass cartriges are easier to fill

Thu Sep 23 1999 22:02:18 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Wouldn't the humalog need to be approved for pump use first ? LOL

Thu Sep 23 1999 22:02:39 Eastern US
Maureen from 204.210.252.200
I'm 20

Thu Sep 23 1999 22:02:40
Connie (pump since may'98) from 209.53.87.108
hello

Thu Sep 23 1999 22:02:59 Eastern US
Maureen from 204.210.252.200
Okay, my turn for a ooops. I'm 21.

Thu Sep 23 1999 22:03:32 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24
The glass ones are easier-- that's all we use now-- Marisa usually fills them and has never complained of problems

Thu Sep 23 1999 22:03:34 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Ellen I believe its all in one pkg

Thu Sep 23 1999 22:03:38 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
Thanks, Judy.. I'll try pharmacy.com

Thu Sep 23 1999 22:03:42 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Connie, when Z first got his pump , I got more than 3 cartridges full. Now I get less than 3 and it annoys me to no end. If each cartridge holds 315 units - where is the other 55 units? I wonder if Humalog really has 1000 units in a bottle!!!!

Thu Sep 23 1999 22:04:03 Eastern US
Karen (IL) (Christie 12, dx. 12/97) from 205.188.197.24
Do you carry other insulin with you, like the pen, in case the pump won't work?

Thu Sep 23 1999 22:04:20 Eastern US
debbie from 209.213.148.223
hello - just joining chat for the first time

Thu Sep 23 1999 22:04:24 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
yourpharmacy.com

Thu Sep 23 1999 22:04:43 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Ellen: Do you use glass or plastic cartriges?

Thu Sep 23 1999 22:04:56 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
I thought it was "MY"pharmacy.com!! LOL

Thu Sep 23 1999 22:05:09 Eastern US
Renee (Melissa. 16 1/2, dx'd at 9/pump 3 1/2 yrs) from 152.163.213.61
Our aboluste weirdest pump incident happened the first week & then never again- Melissa apparently twsited so while sleeping that the tubing wrapped around her body & actually snapped in 2 - perfectly clean break!...she awoke to find the sheets wet -from the insulin that had dripped out!!! Minimed said they'd NEVER heard that one before!

Thu Sep 23 1999 22:05:10 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Jeff there was a whole discussion at insulin-pumpers about where people warm up the insulin....it was funny.

Thu Sep 23 1999 22:05:13 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
karen - elissa keeps a novopen with her

Thu Sep 23 1999 22:05:13 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
you should always carry a syringe and vial or a pen

Thu Sep 23 1999 22:05:35 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Ellen I'll bet!!!!

Thu Sep 23 1999 22:05:48 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Glass.

Thu Sep 23 1999 22:06:46 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Ellen: We use plastic, which is no doubt part of the problem. I'll get some glass and give them a try.

Thu Sep 23 1999 22:07:29 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Do they make glass for MM??

Thu Sep 23 1999 22:07:29
Connie (pump since may'98) from 209.53.87.108
are the glass resevoirs available for the minimed?

Thu Sep 23 1999 22:07:38 Eastern US
Karen (IL) (Christie 12, dx. 12/97) from 205.188.197.24
Is it hard to change from the shots to the pump?

Thu Sep 23 1999 22:07:41 Eastern US
Renee (Melissa. 16 1/2, dx'd at 9/pump 3 1/2 yrs) from 152.163.213.61
Karen...yes, Novo insulin pen with Humalog cartridge...Melissa carries it in her bag...rarely uses it, but makes ME feel better in the event of a pump problem or even if she's inexplicably high & there MIGHT be a problem...she'll bolus from the pen to avoid climbing higher were the pump bolus not to "take"

Thu Sep 23 1999 22:07:49 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
the glass ones are a LOT easier

Thu Sep 23 1999 22:08:13 Eastern US
peter from 209.246.214.243
How much better will blood sugars be? Less highs and lows? How much decrease to expect in HA1C?

Thu Sep 23 1999 22:08:20 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Connie I don't thnk so

Thu Sep 23 1999 22:08:57 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Karen: My daughter Marissa said she'd try the pump for a month, for me. After the month, she said I couldn't have it back.

Thu Sep 23 1999 22:09:05 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Peter the pump is only a tool --- control will be much better if it is used correctly

Thu Sep 23 1999 22:09:14 Eastern US
Sue from IL (Amy, 13, pumping 15 months) from 152.163.232.21
Isn't that expensive Renee? Doesn't that pen only last 7 days once it's opened? Has she ever drawn insulin out from her tubing with a syringe?

Thu Sep 23 1999 22:09:55 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Peter: In my mind, the biggest advantage to the pump is freedom, especially freedom from eating when your NPH requires. Eating when you want also means not eating when you don't want, which means sleeping late.

Thu Sep 23 1999 22:10:06 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
Stephanie's A1c actually went up on the pump.. 6.9 up to 8.9..last one was 8.6 ("headed in the right direction at least" per the endo).. but she is at THAT age.. probably would have gone up anyway.. and she likes the flexibility.

Thu Sep 23 1999 22:10:17 Eastern US
debbie from 209.213.148.223
Never heard of drawing insulin out of the tubing. How is it done?

Thu Sep 23 1999 22:10:31
Connie (pump since may'98) from 209.53.87.108
Peter, my A1c is still up and down with the pump, but my over all management is much better, but D still controls me.

Thu Sep 23 1999 22:10:37 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Renee: We too keep a pen handy. We use the BD Pen Mini because it can do 1/2 units.

Thu Sep 23 1999 22:10:40 Eastern US
Maureen from 204.210.252.200
For the first week I had many "panic" attacks, "Oh no, I haven't had a shot in a LONG time!" A couple times friends saw the complete panic on my face and after the first time would remind me (it would take a few seconds of thought). It slowed down, then stopped after a while :-) I love my pump.

Thu Sep 23 1999 22:11:30 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
debbie -- I don't that's a good idea makes it more of a risk for infection at the insertion site

Thu Sep 23 1999 22:11:32 Eastern US
Renee (Melissa. 16 1/2, dx'd at 9/pump 3 1/2 yrs) from 152.163.213.61
Melissa has the silver pen Sue - Novo rep told me it could be used for a month...she's probably had cartridges in there longer than that & then finally thrown them out 90% unused...comparable to the Glucagon or car insurance or life insurance or anything else you pay for & hope you don't really NEED to use!

Thu Sep 23 1999 22:12:30 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
elissa keeps her novopen cartridge for a month also

Thu Sep 23 1999 22:13:09 Eastern US
peter from 209.246.214.243
If the pump is used correctly, how much of an improvement on the average can one expect in the HA1C result? In general, are there less highs and lows?

Thu Sep 23 1999 22:13:24 Eastern US
Karen (IL) (Christie 12, dx. 12/97) from 205.188.197.24
Is it better to have the rep from the pump company get you started or the doctor?

Thu Sep 23 1999 22:14:02 Eastern US
Renee (Melissa. 16 1/2, dx'd at 9/pump 3 1/2 yrs) from 152.163.213.61
Marcia- Melissa's went up too after initially going down to 6.8....most recent was 7.7....she was disappointed but I told her it's not an SAT score!..I agree: can't put a "price tag" ( or an A1C score)on a teen being able to be spontaneous & flexible.....

Thu Sep 23 1999 22:14:09 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
I don't think there's as much a problem with H or R carridges as there wowas with 70/30 or NPH

Thu Sep 23 1999 22:14:37 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Karen A pump trainer WILL train U not the doctor

Thu Sep 23 1999 22:15:09 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Karen: You'll need an Rx from the doc, but the pump company has trainers, like Steph, who can do the rest.

Thu Sep 23 1999 22:15:39 Eastern US
debbie from 209.213.148.223
Did any of you do a 5 hour fast at breakfast, lunch and dinner over a 3 day period to fine tune your basel rate?

Thu Sep 23 1999 22:15:41 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Anyone reuse cartridges or tubing?

Thu Sep 23 1999 22:16:11 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Peter --
there's no way of quantifying that.

Thu Sep 23 1999 22:16:14 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
when elissa was a the disetronic, they told me the cartridge was meant to be used 3 times

Thu Sep 23 1999 22:16:29 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
I heard through the grapevine that Larry Deeb put a 3 year old on the pump :-). It was nice to hear, btw.

Thu Sep 23 1999 22:16:30 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
With a 3rd company coming onto the market do you think it will drive down prices? At the price of supplies they should give the pumps away!!

Thu Sep 23 1999 22:16:52 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Ellen: Really? I'll have to write him a note.

Thu Sep 23 1999 22:17:03 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Ellen not a good idea I've seen many BAD infections from that

Thu Sep 23 1999 22:17:18 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Ellen: We never reuse the supplies.

Thu Sep 23 1999 22:17:31 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24











Are you kidding, debbie? Not with an 8 year old!

Thu Sep 23 1999 22:17:39 Eastern US
Renee (Melissa. 16 1/2, dx'd at 9/pump 3 1/2 yrs) from 152.163.213.61
Debbie - yes, more than once..in fact, Melissa just re-did hers recently because she was having lots of lows & her CDE adjusted her basals down...I think she's done growing....whenever things aren't "working", her CDE's immediate response is always to re-do basal fasts..that's his "starting point"

Thu Sep 23 1999 22:17:41 Eastern US
debbie from 209.213.148.223
we use a 6 day supply of Humalog in our reservoir and tubing and change the pig tail every 3 days.

Thu Sep 23 1999 22:17:48
Connie (pump since may'98) from 209.53.87.108
debbie, I fine tuned my basals with 3 months of normal activity. My endo set my 1st 4 rates, and told me to work with them slowly, I now have 9 basals, that work great.

Thu Sep 23 1999 22:18:21 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24
So Judy, has she always used it 3 times?

Thu Sep 23 1999 22:18:23 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Our endo's office provided all the training and support and education.

Thu Sep 23 1999 22:18:32 Eastern US
debbie from 209.213.148.223
My daughter is only 9 and that is what our doctor wants me to do.

Thu Sep 23 1999 22:19:00 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
connie - no, she didn't.....now she's on the minimed anyway

Thu Sep 23 1999 22:19:33 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
We do fasting basals whenever we need to figure out what's going on. I rent lots of video games from blockbuster to take Z's mind off of food. You can eat a little protein if ravenous.

Thu Sep 23 1999 22:20:09
Connie (pump since may'98) from 209.53.87.108
Aren't the glass cartriges re-useable? Can't they be sterilized, like the glass syringes in the old days?

Thu Sep 23 1999 22:20:22 Eastern US
Karen (IL) (Christie 12, dx. 12/97) from 205.188.197.24
They have you fast to set your basal rate?

Thu Sep 23 1999 22:20:42 Eastern US
Judy from NY (Elissa, age 18, pumping almost 15 yrs) from 24.29.95.162
connie - I don't think so, because they have rubber seals

Thu Sep 23 1999 22:20:47 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
yes Ellen but the nurses were trained trainers there's a test and everything you need to do to get certified to be pump trainer not every CDE knows how to use a pump

Thu Sep 23 1999 22:21:09 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
Breakfast is easy..just do it on a weekend when she sleeps until noon anyway.

Thu Sep 23 1999 22:21:26 Eastern US
Renee (Melissa. 16 1/2, dx'd at 9/pump 3 1/2 yrs) from 152.163.213.61
Well, it's getting late & I'm exhausted from my hour walk today ( got inspired by Ellen's exercising)so it's off to bed..GREAT chat once again & GREAT work from all you pump-moms, pump-dads and "real time" pumpers!!

Thu Sep 23 1999 22:22:03 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
Night, Renee.

Thu Sep 23 1999 22:22:47 Eastern US
Connie (Marisa,age8,pumping since 6-98) from 152.163.205.24
Need to go help Marisa pack for an overnight tomorrow night---2hrs. away up in the mountains! I'd probably never had let her go if she wasn't on her pump-- not that it still doesn't make me a bit nervous!

Thu Sep 23 1999 22:22:54 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Goodnight Renee.

It's getting late here too, so I'll keep the room open until 22:30 and then close it down so I can prepare the archive.

Thu Sep 23 1999 22:23:02 Eastern US
Renee (Melissa. 16 1/2, dx'd at 9/pump 3 1/2 yrs) from 152.163.213.61
Steph - just to clarify: Melissa's CDE wears a pump & is also an exercise physiologist

Thu Sep 23 1999 22:23:06 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Correct Steph , my son's endo has many many many patients on the pump -

Thu Sep 23 1999 22:24:09 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
Thanks Ellen I thiunk that's an important point forpeople to know

Thu Sep 23 1999 22:25:07
Connie (pump since may'98) from 209.53.87.108
my endo does too, but the diabetic clinics around here don't seem to know any thing about them, luckily, there's cwd and melissa's to learn.

Thu Sep 23 1999 22:25:10 Eastern US
Ellen (FL) Zachary 11, dx'd 2/89, pump 4 yrs (CamelsRFun@aol.com) from 152.163.204.33
Thanks for the chat all- I'm headed to bed too. Good night.

Thu Sep 23 1999 22:26:04 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Goodnight Ellen.

Thu Sep 23 1999 22:26:16
Connie (pump since may'98) from 209.53.87.108
night Ellen

Thu Sep 23 1999 22:26:31 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
night Ellen and thanks

Thu Sep 23 1999 22:27:12 Eastern US
Marcia...WA (Stephanie, 16..pumping 1 1/2 years) from 206.190.132.21
Steph had a CDE/pump trainer (certified and very experienced) she had just been hired.. Steph was her endo's first kid on a pump.. we felt very lucky.. Joannie was great.

Thu Sep 23 1999 22:28:33 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
Goodnight everyone. Room closing in two minutes.

Thu Sep 23 1999 22:29:13 Eastern US
Steph Schwartz, RN, MPH, CDE (steph@childrenwithdiabetes.com) from 24.131.12.204
night Jeff

Thu Sep 23 1999 22:29:26 Eastern US
Jeff Hitchcock (Marissa, 12, pumping 1 year) from 206.112.197.133
night Steph.

Thu Sep 23 1999 22:29:44 Eastern US
debbie from 209.213.148.223
Good night and thank you



                 
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