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Pumps Chat Transcript from August 2, 1999

Mon Aug 2 1999 21:00:46 Eastern US
Sue from 207.245.239.226
Hi Kate. I didn't know there was a scheduled chat. What is it about?

Mon Aug 2 1999 21:01:35 Eastern US
Amy from 207.172.74.180
isn't it about pumps and kids?

Mon Aug 2 1999 21:01:56 Eastern US
Kate from 209.165.20.71
Kids on pumps, I hope I have the right night

Mon Aug 2 1999 21:02:06 Eastern US
susanne from 207.89.137.167
I'm meeting Weds. with my girlfriend who does many of the 504's for her school. She said that she would help me write one to present to the school.

Mon Aug 2 1999 21:02:34 Eastern US
susanne from 207.89.137.167
Kate, I thought that it was tonight also.

Mon Aug 2 1999 21:02:52 Eastern US
Amy from 207.172.74.180
I want to do a 504, got a call the other day it's not necessary b/c of my grades, but I talked to the nurse earlier and she agreed, I'm not going to put up with any crap again next year

Mon Aug 2 1999 21:02:58 Eastern US
Kate from 209.165.20.71
There is a page at this site about that

Mon Aug 2 1999 21:04:02 Eastern US
Kate from 209.165.20.71
hi Amy...are you the 15 year old who just got a pump?? I've chatted with you before, if so. :-)

Mon Aug 2 1999 21:04:42 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Hey everyone! Is this where the kids on pumps chat is being held?

Mon Aug 2 1999 21:04:55 Eastern US
Sue from 207.245.239.226
I have to go. My daughter is at diabetes camp right now (not interested in the pump yet, maybe later on.) My other daughters is bored and wants me to play chess with her. I'm sure she will beat me (I know the moves, that's about all). Hope you all have a good chat.

Mon Aug 2 1999 21:05:08 Eastern US
susanne from 207.89.137.167
Amy you are a lot older than my daughter and more responsible for your own care. My daughter is only in first grade and still needs a lot of adult guidance. Like she is still learning to tell time, so how can she be responsible for making sure that she gets her snack at the right time.

Mon Aug 2 1999 21:05:14 Eastern US
Kate from 209.165.20.71
We are not sure...we think so :-)

Mon Aug 2 1999 21:05:46 Eastern US
Kate from 209.165.20.71
Bye Sue

Mon Aug 2 1999 21:06:13 Eastern US
Amy (aka Happy Pumper) from 207.172.74.180
Hi Kate, I sure am...how's that? yep, my school thinks I don't need one, but the nurse was great last year but the principal hassled me, I had so many 20s last year and couldn't treat always adn that wasn't good, and I'm just not going to put up with it again. My dad talked to the principal 3 times last year, he paid no attention, tomorrow I'm calling the school lady with my endo to have her talk some sense into the principal..isn't this sad, school is a month away and they're already bugging me about D!

Mon Aug 2 1999 21:06:14 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
hi everyone

Mon Aug 2 1999 21:06:17 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
I'll go check another chat room just to be sure - BRB

Mon Aug 2 1999 21:06:53 Eastern US
Amy (aka Happy Pumper) from 207.172.74.180
Kate..16 next saturday (and driving, which is why I want to eliminate my lows!)

Mon Aug 2 1999 21:07:04 Eastern US
Kate from 209.165.20.71
We're in the right place! Hi!

Mon Aug 2 1999 21:07:17 Eastern US
Amy (aka Happy Pumper) from 207.172.74.180
hi Steph

Mon Aug 2 1999 21:08:04 Eastern US
susanne from 207.89.137.167
Steph is this where the chat is going to be held?

Mon Aug 2 1999 21:08:08 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
I think we're in the right place is Jeff here?

Mon Aug 2 1999 21:08:12 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Hi Steph

Mon Aug 2 1999 21:08:34 Eastern US
Kate from 209.165.20.71
He's not here yet, Steph. But you are!

Mon Aug 2 1999 21:08:56 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
who's here?

Mon Aug 2 1999 21:09:31 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
I am !
What would you like to talk about?

Mon Aug 2 1999 21:09:41 Eastern US
susanne from 207.89.137.167
We have not seen Jeff yet.
I'm Susanne and have Mary who is 7 dx. almost 3 years ago and still honeymooning.

Mon Aug 2 1999 21:09:55 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
Hello....

Mon Aug 2 1999 21:09:57 Eastern US
Amy from 207.172.74.180
I'm here, almost 16, pump a month..and loving it!

Mon Aug 2 1999 21:10:06 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
Hi susanne

Mon Aug 2 1999 21:10:09 Eastern US
Kate from 209.165.20.71
I am the mother of Brendan, 16, dignosed at 10. Pumping for over 3 years now.

Mon Aug 2 1999 21:10:29 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
congrats AMY glad it's going well!!!

Mon Aug 2 1999 21:10:53 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
And Brendan is doing well too I'm sure

Mon Aug 2 1999 21:11:10 Eastern US
Amy from 207.172.74.180
yep Steph, much much better than shots, my parents like it, but (to tell the truth) my mom's not too sure of it b/c i still have lows at night, but I just got back from camp and lowering my basals still...

Mon Aug 2 1999 21:11:19 Eastern US
Kate from 209.165.20.71
Oh, I'm interested in anything new, or old that I may have missed about pumps. My son is on the Minimed 507

Mon Aug 2 1999 21:11:32 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Hi Steph, hi all - I would just like to know in a nutshell your experiences with young kids (7 yr. olds) on pumps.

Mon Aug 2 1999 21:11:34 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
David has expressed mild interest in the pump on several occasions, but doesn't want something attached all the time. He's VERY active and reckless....also forgets his insulin fairly frequently. Don't think he's a good candidate yet.

Mon Aug 2 1999 21:12:03 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
takes time to get things adjusted and camp maybe made it a little tough-- you'll figure it out

Mon Aug 2 1999 21:12:11 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
hi. my daughter is 7 and about 5 weeks on the pump

Mon Aug 2 1999 21:12:32 Eastern US
Kate from 209.165.20.71
Yes, he is doing well. His only trouble is that he really believes part of the time that the pump is as good as a pancreas. i have to remind him to test....not just bolus away blindly when he eats.

Mon Aug 2 1999 21:13:03 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
He does wonder about the possibility of only pumping at night. How does that work (if it does)? The only way he can have decent AM numbers now is if I give his L at MN so the peak corresponds with his growth hormone peak.

Mon Aug 2 1999 21:13:08 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
I have not done any kids younger than 10 on pumps
there are people who have and I think there really is no right age it depends on the child and family

Mon Aug 2 1999 21:13:41 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
probably not Judith

Mon Aug 2 1999 21:13:52 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Boy Judith... of course, he has to want it, but it is SO much easier

Mon Aug 2 1999 21:13:54 Eastern US
Amy from 207.172.74.180
Judith, I sent the insulin today and hope you don't mind included some left over syringes too...

Mon Aug 2 1999 21:14:42 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
Thanks, Amy!

Mon Aug 2 1999 21:14:54 Eastern US
Amy from 207.172.74.180
do your kids do basal checks frequently? is there any special to consider when you do a basal check? i know mine aren't quite set yet

Mon Aug 2 1999 21:15:11 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
last night was the first night I slept 8 hours straight in two months. My daughter left for camp yesterday

Mon Aug 2 1999 21:15:27 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
Dr. Kauffman in CA did a study using pumps at night and it worked very well. There's a lot of evidence that nightine BS are the hardest to control and pump at night helps a lot.

Mon Aug 2 1999 21:15:56 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
we are still working on basals and camp isn't a big help, nor vacations. I was told it ta

Mon Aug 2 1999 21:16:37 Eastern US
Amy from 207.172.74.180
how long did it take to get your kid's nights set? I started june 28, i'm happy with it, but I hear it from my mom every morning...

Mon Aug 2 1999 21:16:56 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
Do you remember in what journal Kauffman published that study? (Guess I can just do a search....)

Mon Aug 2 1999 21:17:04 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
badsal rates need to be checked at least every month and more frequently if things change in lifestyle, etc

Mon Aug 2 1999 21:17:36 Eastern US
Amy from 207.172.74.180
so starve yourself a day a month, hmm..j/k, but I've had my share of chocolate since i got home from camp:-)

Mon Aug 2 1999 21:17:38 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
the study was presented at the ADA meeting in SF they might have the abstact on-line

Mon Aug 2 1999 21:17:56 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
dr. kaufman is our dr. they did the study this year

Mon Aug 2 1999 21:18:26 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
We were lucky. Our endo has type I and all the diabetes educators in her office do too. She had is down to a science...look at over all insulin before, do some calculations, and away we went...but he was on intensive injection therapy from the beginning,

Mon Aug 2 1999 21:18:43 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
thanks

Mon Aug 2 1999 21:19:11 Eastern US
LC from 209.91.26.27
Hi I'm the mother of a 5 yr old pumper

Mon Aug 2 1999 21:19:13 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
One of the main reasons we are interested in the pump is because of the food battles. We go to a picnics, or kid's gathering, or church program or any other social function, and it's all centered around food. If it's not a scheduled snack time or meal time, I have to watch her watch everyone else eating the cantelope, cheese and crackers, chips and dip, etc. Sure, she'll eat celery and carrot sticks too, but she wants what everone else is eating too. And it doesn't take many chips to equal her 15 grams of carb allotted for a snack. My older daughter (9 y/o) is also starting to have an obsession with food because she feels like she's being deprived. Any suggestions?

Mon Aug 2 1999 21:19:24 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Amy...we test basals 1/3 of a day at a time. That way you don't have to starve yourself. Boys aren't big on salads 24 hrs at a time. :-)

Mon Aug 2 1999 21:20:43 Eastern US
Amy from 207.172.74.180
you can eat salads? i tried a morning check once, but i don't think i'm ready yet. too many changes, hormones and tweaking still going on

Mon Aug 2 1999 21:20:46 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
Hi, LC.

Mon Aug 2 1999 21:20:48 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Kim, you could carry a humalog pen around with you. That's what we did just prior to the pump.

Mon Aug 2 1999 21:20:59 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
Kim have you tried using extra H for ectra carbs?

Mon Aug 2 1999 21:21:23 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Yes. You can eat non-carb things. (not too much meat.)

Mon Aug 2 1999 21:21:24 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
Dave "boluses" with the H pen whenever....

Mon Aug 2 1999 21:21:37 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
great idea Kate

Mon Aug 2 1999 21:21:50 Eastern US
LC from 209.91.26.27
Hi Judith

Mon Aug 2 1999 21:21:53 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.133
Good evening everyone. Glad you started without me. I'll archive the Parents room later to serve as the transcript for the special session about pumps. Next time there will be a dedicated room.

Mon Aug 2 1999 21:22:33 Eastern US
susanne from 207.89.137.167
Hi Jeff.
Thank goodness for Humalog.

Mon Aug 2 1999 21:22:38 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
Hi Jeff

Mon Aug 2 1999 21:22:39 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
Hi, Jeff. Thanks for arranging this.

Mon Aug 2 1999 21:23:00 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Yes, we do use extra H, but she really hates to inject at times other that the normal. She'll actually turn down food when I know she'd love to have them, just so she doesn't have to take another injection.

Mon Aug 2 1999 21:23:34 Eastern US
LC from 209.91.26.27
how do you do a basel check

Mon Aug 2 1999 21:23:35 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.133
Sorry that I didn't get here in time to create a special "pump chat" room. Thankfully Steph and everyone started without waiting for me. I'll leave this to Steph, as we are packing to go to the Barbara Davis Center tomorrow.

Mon Aug 2 1999 21:23:36 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Hi Jeff...we thought you threw a party and didn't show up!

Mon Aug 2 1999 21:23:41 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Hi Jeff - Hi LC - what has your experience been with a 5 y/o pumper?

Mon Aug 2 1999 21:24:08 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
to check basdal rates monitor BS very 2 hours

Mon Aug 2 1999 21:24:25 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
How often do you do that now, Jeff?

Mon Aug 2 1999 21:24:39 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Kim, do you have a pen? They seemed much less like an injection to my son.

Mon Aug 2 1999 21:24:41 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
how often can you eat snacks when you have a pump? as often as you like, but leave space for testing for dinner, lunch, etc?

Mon Aug 2 1999 21:25:22 Eastern US
Amy from 207.172.74.180
I'm trying to cut back on my fingersticks. camp was nice, only 6 a day, now it's 12 again, they say i'm doing too many, but my mom is the one doing 3 at night, and i always go low with exercise

Mon Aug 2 1999 21:25:29 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
No Kate, we've never used a pen. Are they different from injections?

Mon Aug 2 1999 21:25:32 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.133
Judith: We try to go to BDC at least once a year. This will be our first trip since Marissa started pumping last October. Pumping has been very good for her. A1c of 5.9, no bad lows, great freedom to eat as she pleases, and she sleeps late.

Mon Aug 2 1999 21:25:40 Eastern US
LC from 209.91.26.27
Ty had a seizure when he was 4 and then we tried everthing to get his #'s back to normal but nothing worked the doc went out on the limb and put him on the pump it was the best thing for him

Mon Aug 2 1999 21:26:50 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
Sounds great, Jeff.

Mon Aug 2 1999 21:27:02 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
There'd a Great Book called Pumping Insulin by John Walsh, PA
(we've reviewed it at CWD)
I think every pump user should get a copy of it.
Soon, I hope to put more pump info on this site too

Mon Aug 2 1999 21:27:05 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
you mean monitor bs without eating right? we used an H pen with Laura (7) before the pump. She used it herself and liked it

Mon Aug 2 1999 21:27:10 Eastern US
LC from 209.91.26.27
do you do BS every 2 hours for 24 hours or just the night?

Mon Aug 2 1999 21:27:54 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
I don't know what Steph will say, but my son is 16 and thin... he eats CONSTANTLY... just counts carbs and boluses accordingly. Doing Basal tests is awful...he thinks he's being killed :-)

Mon Aug 2 1999 21:28:06 Eastern US
Amy from 207.172.74.180
Jeff, who does Marissa see during the year? a pediatrician or anyone?

Mon Aug 2 1999 21:29:10 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
depends when you're trying to adjust you basal rates
I suggest during the day to stick with a meal plan and don't eat a lot of extras between meals

Mon Aug 2 1999 21:29:10 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.133
Amy: During the year, Marissa sees a pediatrician and sometimes a peds endo at our local Children's Hospital. We are not happy with the local hospital's support and methods, hence our trek to Denver.

Mon Aug 2 1999 21:29:17 Eastern US
LC from 209.91.26.27
with out eating a 5 year old oh my

Mon Aug 2 1999 21:29:25 Eastern US
Amy from 207.172.74.180
I'm afraid of the weight gain, so i'm watching it closely. I don't really eat until afternoon or evening, so by skipping food in the am i'm not eating more. I lost ten pounds my first two weeks pumping (got lectured for that!) but so far it's still off

Mon Aug 2 1999 21:29:35 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Alyssa is constantly up and down with her numbers, and I'm pretty strict with her counting carbs. Based on the videos I've seen and the info I've read, it just seems like the pump is the perfect answer - sleeping late, eating more freely, better control, etc.

Mon Aug 2 1999 21:29:46 Eastern US
Ellen (FL) Zachary 11, pump 4 years (CamelsRFun@aol.com) from 152.163.201.69
Sheesh we thought the forum was in the pump room - there's been a whole conversation going on over there!

Mon Aug 2 1999 21:30:02 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
Kate if he's doing well great
Never fiz what isn't broken

Mon Aug 2 1999 21:30:15 Eastern US
Amy from 207.172.74.180
hi Ellen!

Mon Aug 2 1999 21:30:34 Eastern US
LC from 209.91.26.27
when we check it is usually the night stuff that is a mess so we do every two hour at night and then we try to figure it out he tends to have no paterns at all

Mon Aug 2 1999 21:30:35 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
Hey Jeff want to the people in the pump room we're here?

Mon Aug 2 1999 21:31:16 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
hello

Mon Aug 2 1999 21:31:24 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
kim, that is why we got a pump. it takes a while to get used to, but we started right before vacation and it was great. made everything that much easier

Mon Aug 2 1999 21:31:45 Eastern US
LC from 209.91.26.27
Okay how do kids handle the pump at lunch time at school when they are to little to figure out the bolus?

Mon Aug 2 1999 21:31:53 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
Ellen--
guess Jeff is packing want to tell those people in the pump room we're here please
Thanks

Mon Aug 2 1999 21:32:10 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
lc, your nights are still screwed up after 1 year?!

Mon Aug 2 1999 21:32:22 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 10.0.1.4
Steph: I posted the message in the Pump users room.

Mon Aug 2 1999 21:32:30 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
LC - when Elissa was little, the nurse called me with her bg and I told the nurse how much of a bolus....she was very willing to do it

Mon Aug 2 1999 21:33:05 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
you can make up a chart with how much to blous for the # of carbs my guess is a small child won;t eat more than 3- 5 carbs

Mon Aug 2 1999 21:33:29 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
thanks Jeff

Mon Aug 2 1999 21:33:35 Eastern US
Mary from Ma. (Chris 9, dx'd @ 4, pump 1year, Angela 10, dx'd 10/98) from 152.163.213.66
hello!!:-)

Mon Aug 2 1999 21:33:39 Eastern US
LC from 209.91.26.27
well he tends to have no paterns some times he wakes up in the 200's and some time right where we want them. we have such a hard time to decide if it is climbing or what and at what time of night he starts to climb

Mon Aug 2 1999 21:33:44 Eastern US
Ellen (FL) Zachary 11, pump 4 years (CamelsRFun@aol.com) from 152.163.201.69
Jeff you'll have to merge it for the archive :-)

Mon Aug 2 1999 21:34:00 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Katie, I know Alyssa is not old enough to operate her pump without help, but I work at her school, and have easy access to her. I really would like to give it a try - I know it would make her life more "normal"

Mon Aug 2 1999 21:34:02 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
we are planning to keep Laura's lunch the same at school so she gives herself the same bolus everyday to make it easier

Mon Aug 2 1999 21:34:35 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
great idea katie

Mon Aug 2 1999 21:34:44 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
we don't make the little kids on injections be responsible for their care. Why should the pump be any different?

Mon Aug 2 1999 21:34:53 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Katie, how old did you say Laura was?

Mon Aug 2 1999 21:34:57 Eastern US
KC Mikey (schurigs@worldnet.att.net) from 12.75.141.35
Steph...I was in the pump room looking for you...I foound you.. I survived my first day at DM camp today...No changes at Camp Shawnee...are we going to be able to meet up in Orlando at AADE???

Mon Aug 2 1999 21:34:59 Eastern US
LC from 209.91.26.27
The nurse will bolus him but I'm afraid he will throw some of his lunch away and they will think he ate it

Mon Aug 2 1999 21:35:03 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
So this is where you all went while I was checking my mail!! LOL

Mon Aug 2 1999 21:35:09 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
kim, you might be surprised, laura is 7 and she knows how to operate it easily. I just tell her what she needs to do.

Mon Aug 2 1999 21:35:11 Eastern US
Amy from 207.172.74.180
I don't trust my school anymore about lunches, we've always gone in the summer, and last year it was supposed to be the same both days, but i had a surprise the second day of school, lunch was 90 minutes later than the day before

Mon Aug 2 1999 21:35:33 Eastern US
Mary from Ma. (Chris 9, dx'd @ 4, pump 1year, Angela 10, dx'd 10/98) from 152.163.213.66
LC..chris and I figure out teh carbs in what he's chosen for lunch that day on a piece of paper and then figure out the bolus amounts. we do each item sepreately so that if he's not too hungry, he doesn't have to eat everything. then his teacher helps him add it up and double checks the number on the pump before he activates it.

Mon Aug 2 1999 21:35:39 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
There is really no comparison. Without the pump, Diabetes was like boot camp. With the pump, Brendan can have a very nearly normal life

Mon Aug 2 1999 21:36:09 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
make sure you have the support of your diabetes team
HI MIKEY join the conversation
Mike is a dietitian and trains kids on pumps

Mon Aug 2 1999 21:36:27 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Amy, that should not matter if you are on the pump, using Humalog.

Mon Aug 2 1999 21:36:27 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
PS Mikey wears a pump himself

Mon Aug 2 1999 21:36:47 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Judy, that's exactly right! Alyssa can't figure out how much insulin to give herself now, and she doesn't draw it up yet - very rarely even injects herself right now

Mon Aug 2 1999 21:36:57 Eastern US
Ellen (FL) Zachary 11, pump 4 years (CamelsRFun@aol.com) from 152.163.201.69
Zachary chooses what he wants to take to school (he refuses to eat the cafeteria food) and we insert a card indicating the bolus.

Mon Aug 2 1999 21:37:02 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
Kate...we just did basal test on Melissa...dropped 80 pts between 10 pm and 2 am!!!..Her CDE made major adjustments!..that came out of the blue...at 16, I think she STOPPED growing which altered things....

Mon Aug 2 1999 21:37:28 Eastern US
Amy from 207.172.74.180
I hope not Kate, but this year my parents want it to be consistent none the less, last year I was on shots and what a time that was! lunch at school should be fun next year not having to eat and not going sky high

Mon Aug 2 1999 21:37:46 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
Kim - I just happen to think that's a pretty lousy excuse for denying the pump

Mon Aug 2 1999 21:38:38 Eastern US
Amy from 207.172.74.180
but also Kate, I keep going high after dinner even though i'm calculating my carbs carefully, but i guess it's just settling down again. 2 hr pp i'm in the 200s, i do exercise, then i'm in the 50s

Mon Aug 2 1999 21:38:49 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
I haven't even approached our diabetes team with this yet, I'm trying to do all my homework first. We have an appt. at the end of Sept, so I'm trying to learn all I can before then. I'm just afraid they won't be open to the idea.

Mon Aug 2 1999 21:38:50 Eastern US
LC from 209.91.26.27
Ty can do a bolus with some help. Its he is a fussy eater and will probably not eat everything he has in his box

Mon Aug 2 1999 21:39:04 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Renee, Brendan grows every time we go to the endo (every 3 months) So it's exciting, getting the basal right.

Mon Aug 2 1999 21:39:09 Eastern US
Ellen (FL) Zachary 11, pump 4 years (CamelsRFun@aol.com) from 152.163.201.69
Kim, my son never learned to draw up his own shots - he's been pumping for 4 years. We're working on his inserting his own site. He'll learn to use the pen for backup.

Mon Aug 2 1999 21:39:44 Eastern US
KC Mikey (schurigs@worldnet.att.net) from 12.75.141.35
I agree Judy...but remember the kid has to learn sometime...our youngest pumper at the hospital is a "very mature" 10 yo

Mon Aug 2 1999 21:40:41 Eastern US
Ellen (FL) Zachary 11, pump 4 years (CamelsRFun@aol.com) from 152.163.201.69
Steph, what's the age of your youngest pump patient? Have you read about Zephyr Strauss - pumping since 22 months old?

Mon Aug 2 1999 21:40:44 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
I agree Judy. All I want for my daughter is better control and a more normal life! I don't care if I have to pay for it myself!

Mon Aug 2 1999 21:40:57 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
Most kids on injections don't require them during school hours; pumps would require a lunch time bolus.

Mon Aug 2 1999 21:40:59 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
Steph..how many kids are on pumps in the practice you work with?

Mon Aug 2 1999 21:41:00 Eastern US
LC from 209.91.26.27
my son told me today he can't wait to start 1st grade. but I'm scared stiff

Mon Aug 2 1999 21:41:05 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
KC - I agree, but it can be a gradual learning process. Elissa was a very "immature" 3-yr-old, yet we managed quite well

Mon Aug 2 1999 21:41:33 Eastern US
Ellen (FL) Zachary 11, pump 4 years (CamelsRFun@aol.com) from 152.163.201.69
We'll forgive you for now Mike, soon enough you'll let younger kids with diabetes live a closer to normal life on the pump :-)

Mon Aug 2 1999 21:41:33 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
laura can't wait till she's bigger and fatter so she can use a silhoutte an put the site in herself

Mon Aug 2 1999 21:41:38 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Ellen, how has the pump changed Zachary's quality of life?

Mon Aug 2 1999 21:42:13 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
I used to work with KCMIKEY B4 i moved to Ann Arbor
Mike about 50 kids is that right?

Mon Aug 2 1999 21:43:04 Eastern US
Ellen (FL) Zachary 11, pump 4 years (CamelsRFun@aol.com) from 152.163.201.69
Right Judith, they have to press a button at lunch. NOT a big deal.

Mon Aug 2 1999 21:43:31 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
Judith- the problem with that though is that as they get older, in order NOT to feel so "different" at an age when being "different"is a capital sin, kids will simply eat anyway and go high...the pump enables them to eat with their friends, but still easily "cover it" with insulin as needed..I met a mom of 2 teens with D and I said well how do they accomodate sleeping late and eating out with friends, she just laughed and said "oh - they just DO IT! Their endo said their A1Cs of 10 and 11 are typical for teenagers!"...NOT MY TEEN!..6 months post-pump her A1C went from an 8.8 to a 6.8

Mon Aug 2 1999 21:43:46 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Judith... my son took lunchtime injections. The endo puts the kids on intensive therapy. The pump is easier, believe me.

Mon Aug 2 1999 21:44:15 Eastern US
Mary from Ma. (Chris 9, dx'd @ 4, pump 1year, Angela 10, dx'd 10/98) from 152.163.213.66
Kc..what defines "very Mature" in a 10 yo??

Mon Aug 2 1999 21:44:16 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
I would say lunchtime injection is more common than not

Mon Aug 2 1999 21:44:18 Eastern US
Ellen (FL) Zachary 11, pump 4 years (CamelsRFun@aol.com) from 152.163.201.69
Zachary's life is so much more carefree and fun on the pump - he eats when he wants to and DOESN'T eat when he doesn't want to eat. He sleeps late, never has to be called in to eat...never has to eat when sick

Mon Aug 2 1999 21:44:18 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Has anyone heard info about the pump Minimed is working on with a built in gluco-sensor?

Mon Aug 2 1999 21:44:34 Eastern US
KC Mikey (schurigs@worldnet.att.net) from 12.75.141.35
Steph, we have 44 as of Thurs of this week...ages range from 10-26...it's turning into a "full time" job for me and an RN to train and follow...and you know what...we have 4 endos that are all pro-pump now...what do you say about that Steph...you started a good thing...

Mon Aug 2 1999 21:44:35 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
I'm not sure there's a "right Age"
The child, family, and diabetes team need to assess tings and decide together
what works for 1 person may or may not necessarily work for another everyione has different needs and capabilities

Mon Aug 2 1999 21:44:38 Eastern US
Amy from 207.172.74.180
Renee, that's a great drop in a1cs! my a1c was 7.9 in hospital with my start up, 2 weeks later it dropped to 7.4, i bet by october it'll be 6 or 6.5

Mon Aug 2 1999 21:44:40 Eastern US
nanette (nsea40@hotmail.com) from 209.138.13.32
hi everyone

Mon Aug 2 1999 21:45:04 Eastern US
Suzy from 209.143.52.157
WOW Renee, those numbers would be worth it to us!

Mon Aug 2 1999 21:45:41 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
WOW Mikey - that's "music" to my ears!!! The turning of the anti-pump tide!!! LOL

Mon Aug 2 1999 21:45:44 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Yes.. Minimed techs came to my husband's plant to inspect the way they do somehting... it had to do with the new pump. Very exciting.

Mon Aug 2 1999 21:45:54 Eastern US
mag from 205.188.195.28
hello, everyone.

Mon Aug 2 1999 21:46:02 Eastern US
nanette (nsea40@hotmail.com) from 209.138.13.32
my daughter just found out 2 months ago that she has diabetes.

Mon Aug 2 1999 21:46:13 Eastern US
KC Mikey (schurigs@worldnet.att.net) from 12.75.141.35
Kim...our district rep came by last week...it has been FDA approved...initially only going to be lent out by clinics or docs for 3 days of BG readings...reading every 5 min all day long///260 readings a day...pretty remarkable for tracking...

Mon Aug 2 1999 21:46:14 Eastern US
Amy from 207.172.74.180
hi Mag!:-)

Mon Aug 2 1999 21:46:16 Eastern US
Suzy from 209.143.52.157
Hi Nanette

Mon Aug 2 1999 21:46:26 Eastern US
nanette (nsea40@hotmail.com) from 209.138.13.32
any advice

Mon Aug 2 1999 21:46:40 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
how old is your daughter, nanette?

Mon Aug 2 1999 21:46:41 Eastern US
Mary from Ma. (Chris 9, dx'd @ 4, pump 1year, Angela 10, dx'd 10/98) from 152.163.213.66
judith..a lunchtime bolus just requires pushing a few buttons sequentially..as opposed to taking a needle which is a far more invasive thing to do, especially in front of friends..

Mon Aug 2 1999 21:46:49 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
A1c's of 10 or 11 are NOT "normal" for ANYONE
those endos should be shot!

Mon Aug 2 1999 21:46:52 Eastern US
nanette (nsea40@hotmail.com) from 209.138.13.32
hi suzy

Mon Aug 2 1999 21:46:53 Eastern US
mag from 205.188.195.28
hi amy......good conversation going here huh?

Mon Aug 2 1999 21:46:56 Eastern US
jennifer from 208.34.39.209
Hi everyone, I have a friend here who is getting ready to start the pump and is a little scared. Thought you might be able to help ease her mind.

Mon Aug 2 1999 21:47:06 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
hi nanette! We're talking about the insulin pump tonight.

Mon Aug 2 1999 21:47:26 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
My daughter normally needs to have an injection of R at lunch to cover her through the afternoon,

Mon Aug 2 1999 21:47:42 Eastern US
nanette (nsea40@hotmail.com) from 209.138.13.32
ok thanks

Mon Aug 2 1999 21:47:49 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
Amy- they haven't all been that great...last one was 7.9 after a "couch potato" spring season managing the boys baseball team; was 7.3 in the winter ( medium exercise playing basketball occasionally); 6.8 last fall when she was really playinfg field hockey and this next one whould be her best of the yerar after chasing kids all day at day camp...exercise makes a BIG difference

Mon Aug 2 1999 21:47:50 Eastern US
Amy from 207.172.74.180
one question for school age pumpers..do they check bg in classrooms and during lunch do they just test in the cafeteria?

Mon Aug 2 1999 21:47:54 Eastern US
Bree (breetom@chickasaw.com) from 209.140.17.43
My son, Sam will be starting kindergarten soon, and I'm wanting to get him on a pump--the biggest question I have right now is which pump? I don't want any curious kids pushing buttons.

Mon Aug 2 1999 21:47:58 Eastern US
mag from 205.188.195.28
hi kim, my son matt is 10 and he take 4 needles a day,

Mon Aug 2 1999 21:48:06 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Mike - I'm very excited about the new gluco sensor - I'm hoping our endo might want to try it on us!!!

Mon Aug 2 1999 21:48:07 Eastern US
Mary from Ma. (Chris 9, dx'd @ 4, pump 1year, Angela 10, dx'd 10/98) from 152.163.213.66
so, steph..when are you going shooting around here??

Mon Aug 2 1999 21:48:07 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
well, laura loves being on the pump and felt very special at family camp a couple weeks ago, she was one of only two kids on pumps there and thought that everyone would be jealous in fact some went home wanting one too

Mon Aug 2 1999 21:48:15 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
My comment was re: young children who might not be able to bolus themselves at school..esp if it involved calculating a dose.

Mon Aug 2 1999 21:48:32 Eastern US
mag from 205.188.195.28
i'm getting him the pump, i need patience because i know it doesn't happen overnight, but i'm excited

Mon Aug 2 1999 21:48:43 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
I agree Steph...my husband had to kick me under the table to keep me from going ballistic!

Mon Aug 2 1999 21:49:23 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
I test my daughter right in the classroom, and I think she prefers that. I know I do!

Mon Aug 2 1999 21:49:25 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Brendan checks his BG whenever he wants. The school is OK with it, but he doesn't always do it... OK when he was younger, then shy at first at High School. He's getting better now.

Mon Aug 2 1999 21:49:35 Eastern US
Amy from 207.172.74.180
did anyone's endo here actually bring the pump up? mine never mentioned it, a nurse did one time, but I learned about it here

Mon Aug 2 1999 21:49:58 Eastern US
Suzy from 209.143.52.157
My daughter tests in the classroom too.

Mon Aug 2 1999 21:50:10 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
Elissa carried all her stuff with her in high school. I doubt few people were even aware she was testing or bolusing

Mon Aug 2 1999 21:50:15 Eastern US
Kim ((Alyssa's mom, almost 7 y/o, dx 7/98) from 216.12.53.140
Hi Mag - so you guys are getting the pump? You'll have to let me know how it goes.

Mon Aug 2 1999 21:50:30 Eastern US
mag from 205.188.195.28
amy, actually matts rn mentioned that matt was heading toward pump therapy

Mon Aug 2 1999 21:50:35 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
If someon'e A!C is 10 or 11 there's something wrong!!! 9 times out of 10 the treatment plan doesn't fit the teenager. The chikd. family and team need to sit down and figure out what will work.

Mon Aug 2 1999 21:50:43 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
Kate- pretty much the same for Melissa...it's a maturity thing...now that she's driving she knows she's NEVER to get behind the wheel without checking first...

Mon Aug 2 1999 21:50:49 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Sure...our endo wears a pump. SHe always shows Brendan all the newest stuff, because she tries it herself first.

Mon Aug 2 1999 21:51:02 Eastern US
Amy from 207.172.74.180
mag, that's great! i still talk with my pump trainer, more so than my endo or cde, b/c she's worn a pump 13 yrs herself and knows a lot

Mon Aug 2 1999 21:51:07 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
we brought up the pump from seeing others. but they did invite laura to be in the nighttime pump study, but she didn't want to then

Mon Aug 2 1999 21:51:26 Eastern US
Mary from Ma. (Chris 9, dx'd @ 4, pump 1year, Angela 10, dx'd 10/98) from 152.163.213.66
amy..chris tests in the class..and yes our endo ahs brought the subject up with angela, but we all feel that she needs to make the choice for herself to be as successful with it as her brother..

Mon Aug 2 1999 21:51:43 Eastern US
mag from 205.188.195.28
bg testing in school is a good subject, matt used to go to the nurse to test, i think i'd like if he had his meter and supplies right with him in the class, is this a good idea?

Mon Aug 2 1999 21:52:10 Eastern US
Amy from 207.172.74.180
I can drive on my own next week, I know about the checking b4 driving, but it will get annoying

Mon Aug 2 1999 21:52:24 Eastern US
jennifer from 208.34.39.209
Hi everyone. I have a friend here who Might be trying the pump soon. She is a little scared and I thought you might be able to help ease her mind.

Mon Aug 2 1999 21:52:31 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
Yes, kids should be able to test whenever/wherever needed. Same goes for giving insulin...by pump or injection.

Mon Aug 2 1999 21:52:33 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
I recently heard the phrase that the push for pump therapy is "patient driven"....I know that in our JDF chapter, at least 8-10 parents pursued getting their kids on pumps after hearing about my daughter and another family's daughter's pump stories...

Mon Aug 2 1999 21:52:35 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
Amy - annoying, but possibly life-saving

Mon Aug 2 1999 21:52:42 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
good for u Mary

Mon Aug 2 1999 21:52:51 Eastern US
mag from 205.188.195.28
amy.....driving next week......really?

Mon Aug 2 1999 21:53:40 Eastern US
Amy from 207.172.74.180
I talked with my nurse earlier and spent way too much time in the clinic last year, i figure why not just do it in class, have to schedule a talk with my extremely ignorant principal..yep, mag, my license becomes legal on saturday! (of course yesterday my dad told me I need more practice:-) i just want to get rid of these lows so i feel safe)

Mon Aug 2 1999 21:53:48 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
thanks Judy i was going to say that

Mon Aug 2 1999 21:54:14 Eastern US
mag from 205.188.195.28
anybody know about bolus's do they change everyday or pretty regular when you figure it out?

Mon Aug 2 1999 21:54:28 Eastern US
Ellen (Zachary 11, pump 4 years) write to me for more info. on kids and the pump (CamelsRFun@aol.com) from 152.163.201.69
Our endo writes orders that Zachary can test where and when he needs to and eat whenever and wherever he needs to etc. The only time he saw the nurse this year, was when she asked him to come to her office to show her his pump.

Mon Aug 2 1999 21:54:31 Eastern US
KC Mikey (schurigs@worldnet.att.net) from 12.75.141.35
Pt driven is a must...we had three kids that were "parent" driven...and guess what...no pumps now..back to MDI...and not doing very well...

Mon Aug 2 1999 21:54:33 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
i would just like to know before I go how to feel secure about nighttime basals and the easiest way to get right without staying up all night forever

Mon Aug 2 1999 21:54:41 Eastern US
Amy from 207.172.74.180
mag, it's based on carb counting,

Mon Aug 2 1999 21:55:08 Eastern US
mag from 205.188.195.28
would matt beable to do it amy?

Mon Aug 2 1999 21:55:18 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
The bolus depends on how many carbs you are eating, and how high your bg is, etc.

Mon Aug 2 1999 21:55:24 Eastern US
Amy from 207.172.74.180
katie, you sound just like my mom, she had a week off for camp and ever since I came home she was complaining about night lows! my parents weren't sure about the pump, but i persuaded them and they've seen my much better bg #s

Mon Aug 2 1999 21:55:31 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
the insulin/carb ratio at each meal is about the same but the actual # of units in the bolus SHOULD vary according to what the child wants to eat

Mon Aug 2 1999 21:55:51 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
KC - then what you're saying is the kids are doing poorly on MDI also?

Mon Aug 2 1999 21:56:00 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
Amy- my older daughter's boyfriend totalled his car after passing out at the wheel( combination of lack of sleep, too much sun, chlorine etc)...He was lucky to survive but served as a good lesson to Melissa to SHOW her what blacking out from a low would mean in reality!!!!

Mon Aug 2 1999 21:56:12 Eastern US
Amy from 207.172.74.180
Mag, it's not too hard to learn, i was told I over bolus too much and need a calculator..haha, but many people have no probs, personally i prefer lower numbers to highs

Mon Aug 2 1999 21:56:13 Eastern US
mag from 205.188.195.28
thanks ellen, do i need to schedule a meeting w/ the principal to change testing criteria?

Mon Aug 2 1999 21:56:51 Eastern US
KC Mikey (schurigs@worldnet.att.net) from 12.75.141.35
So much insulin for so many carbs...if you're consistent in meals...boluses won't change much...but who's willing to be so consistent with the flexibility of the pump...carb coounting is a natural match for the pump...better than exchanges or points

Mon Aug 2 1999 21:56:57 Eastern US
Bree (breetom@chickasaw.com) from 209.140.17.43
kc--why did the pump fail for those parent driven kids?

Mon Aug 2 1999 21:56:57 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
oh Katie --- cut down on night checks little by little once all the #'s are about 100 at night try sleeping through

Mon Aug 2 1999 21:57:14 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Amy, low numbers are VERY dangerous if you are going to be driving.

Mon Aug 2 1999 21:57:33 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
BRB - it's bedtime snack time

Mon Aug 2 1999 21:58:22 Eastern US
Amy from 207.172.74.180
true Kate, I'm still dropping my basals from camp, i was 60 all day today (don't think i'm driving to the grocery store tomorrow am:-)

Mon Aug 2 1999 21:58:30 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
Judy yes those kids may even be doing poorly on a pump -- we had some of those in KC just did not want to learn how to use it to its best advantage -- right KC?

Mon Aug 2 1999 21:58:51 Eastern US
Renee from 152.163.194.191
My almost twn yr olds is seriouly considering the pump. What encouragement can I give her? She is afraid of the injection into her abdomen.

Mon Aug 2 1999 21:58:56 Eastern US
mag from 205.188.195.28
do they bolus after they eat?

Mon Aug 2 1999 21:59:23 Eastern US
Mary from Ma. (Chris 9, dx'd @ 4, pump 1year, Angela 10, dx'd 10/98) from 152.163.213.66
amy..why did you increase basals while at camp..wouldn't the extra activity make you decrease them?

Mon Aug 2 1999 21:59:38 Eastern US
katie pavlakovich (katievoice) from 205.188.197.47
yes well, that's the prob we aren't at 100 regularly yet. then i get scared if she's in the 70's and feed her. I'm not too clear on that yet. i know Laura get low around 4:30-5:30 a.m. at midnight if she's high I give her exact boluses, if she is high at 3a.m. half boluses. And i'm not sure about how low she can go at any given time.

Mon Aug 2 1999 22:00:18 Eastern US
KC Mikey (schurigs@worldnet.att.net) from 12.75.141.35
The pump failed in these kids because THEY did not want to be on the pump and these weren't the best candidates for CSII...they didn't want to be tied to a machine device for dependence on their insulin...another did not wan't to use it during sports...even guidelines were presented for careful disconnecting...pt driven and desire is key...it's the kids that have to live everyday with their DM.

Mon Aug 2 1999 22:00:24 Eastern US
Amy from 207.172.74.180
Mary, i went high at camp, I was more active and ate twice as much, but i was constantly 140-220, so I upped them all by .2, now they're almost as low as before

Mon Aug 2 1999 22:00:31 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
katie - if elissa is low, she also suspends the pump for 30 minutes

Mon Aug 2 1999 22:00:33 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
I always tell parents that successful pumping requires a cooperative approach betweent he parent and child, as opposed to an adversarial one...if the parent and child are at odds, the pump could become a powerful WEAPON...my daughter knows I am her pump-coach, but I'm quickly headed for retirement since I know almost NOTHING about it any more! LOL

Mon Aug 2 1999 22:00:37 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
I don't know Renee... Brendan always used his abdomen for his shots anyway. The set is scarier, but less often makes up for it.

Mon Aug 2 1999 22:01:10 Eastern US
Amy from 207.172.74.180
I personally don't like the pump in my stomach either. I used sof sets at camp and was so glad to get home to my sils, and now i'm using my behind, it's so comfortable!

Mon Aug 2 1999 22:01:40 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
katie I would not give aANY boluses at night unless she's sky high with ketones
the reason you can;t get the basals stright is that you're shasing those sugars. You need to look for aptterns over 2-3 days and then set your basl taes.

Mon Aug 2 1999 22:02:02 Eastern US
Amy from 207.172.74.180
lows at night, like at camp they gave me a juice do you ever need to bolus for that juice on teh pump or not? i'm not too good with lows, I eat then bolus almost regular amount, now I'm using my subtraction factor

Mon Aug 2 1999 22:02:17 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Brendan's endo tried to get him to use the fat pad at the top of the hip, but he refuses.

Mon Aug 2 1999 22:02:29 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
also found "experience is the best teacher"...my daughter feels sooooooo incredibly lousy now if she is even in the low 200s that that in and of itself becomes a motivating factor...when she's in range, she not only feels better, she acts better ...whole personality changes...

Mon Aug 2 1999 22:02:32 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
Renee - there is also a numbing cream, ELMA, that can be used

Mon Aug 2 1999 22:02:43 Eastern US
Judith (David, 13, diagnosed at age 2 months) from 206.112.27.204
BTW there is a summary of the Kaufman presentation about night-only pumping, at this site:
http://www.childrenwithdiabetes.com/d_0j_10y.htm
Jeff has EVERYTHING here!

Mon Aug 2 1999 22:03:32 Eastern US
Renee (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
Amy...Melissa uses a junior juice box for a low ( usually detected around 60)...without a bolus..then she'll usually eat say 8 animal crackers too and bolus a unit for those 12 carbs..seems to work out ok and she'll awaken in range

Mon Aug 2 1999 22:03:59 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Yes, there is a real personality and "feel-good-feel-bad" difference with both highs and lows.

Mon Aug 2 1999 22:04:15 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
we have just a few more minutes
KC I'll e-mail u tomorrow

Mon Aug 2 1999 22:04:18 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
We have also learned to try not to change a buch of basals at once. You'll just end uo confusing yourself

Mon Aug 2 1999 22:04:21 Eastern US
Amy from 207.172.74.180
i still don't wake up for lows. symptoms didn't come back witht he pump, but since camp I get shaky more, but usually i'm 160 then, my body is just whacko, it used to be so predictable the first 8 years!

Mon Aug 2 1999 22:04:22 Eastern US
Mary from Ma. (Chris 9, dx'd @ 4, pump 1year, Angela 10, dx'd 10/98) from 152.163.213.66
renee..i've noticed the same thing with chris..he became a much nicer little person to be around on the pump

Mon Aug 2 1999 22:05:12 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
very true Judy

Mon Aug 2 1999 22:05:13 Eastern US
Renee from PA (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
uh oh..didn't realize there were 2 of us! LOL..no wonder I didn't understand any of the answers to me!!! LOL

Mon Aug 2 1999 22:05:14 Eastern US
mag from 205.188.195.28
amy, i'm not sure it was a good idea for me to listen in here,,,,,,it's making me think i cannot do this pump thing, sounds soooooo complicated!!!!!

Mon Aug 2 1999 22:05:26 Eastern US
Marianne (Bruggie1) from 152.163.197.206
My daughter is now 10 but was diagnosed when she was 8. She wants to play on a team so were considering a pump. Any recommendations.

Mon Aug 2 1999 22:05:37 Eastern US
Bree (breetom@chickasaw.com) from 209.140.17.43
Amy==what are sils?

Mon Aug 2 1999 22:05:49 Eastern US
Renee from 152.163.194.191
My husband feels that ten might be too young to pump. Any help here?

Mon Aug 2 1999 22:05:51 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
I can usually tell by behavior when Brendan's getting high... the trick is to get him to test. It only happens when he forgets a bolus

Mon Aug 2 1999 22:06:03 Eastern US
KC Mikey (schurigs@worldnet.att.net) from 12.75.141.35
This is Mike's wife...I can tell you he has had better moods since being on the pump for a year!

Mon Aug 2 1999 22:06:25 Eastern US
Renee from PA (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
Thanks Mike's wife!!!

Mon Aug 2 1999 22:06:26 Eastern US
Amy from 207.172.74.180
mag, it's really not that complicated, easy after the first day or two. Bree, silhouettes are an infusion set which goes in manually at an angle and disconnects right at the site.

Mon Aug 2 1999 22:06:27 Eastern US
mag from 205.188.195.28
hi renee, my son matt is 10 and i'm ready to pump! and so is HE!

Mon Aug 2 1999 22:07:11 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
that's the ticket mag

Mon Aug 2 1999 22:07:13 Eastern US
KC Mikey (schurigs@worldnet.att.net) from 12.75.141.35
Sils= silhouttes= MM version of infusion set manually inserted at a 30 degree angle...

Mon Aug 2 1999 22:07:16 Eastern US
Gene (Seth 4 yrs. dxd @ 14 mnths.) from 205.188.197.32
Hi all!

Mon Aug 2 1999 22:07:29 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Steph, thank you so much!

Mon Aug 2 1999 22:07:35 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
any fianl thought b4 we call it a night?

Mon Aug 2 1999 22:07:38 Eastern US
KC Mikey (schurigs@worldnet.att.net) from 12.75.141.35
My wife had to get her .02 in

Mon Aug 2 1999 22:07:43 Eastern US
Renee from PA (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
Steph...I think I've been e-mailing you, but don't even know where I got your e-mail from originally! LOL..I'm Rmhb1126@aol.com....sound familiar?

Mon Aug 2 1999 22:07:51 Eastern US
Ellen (Zachary 11, pumping 4 years) (CamelsRFun@aol.com) from 205.188.193.169
Renee, my son never took an injection in his abdomen - we use EMLA topical numbing creme to numb the site and it works like a charm - he doesn't feel the insertion at all.

Mon Aug 2 1999 22:07:51 Eastern US
mag from 205.188.195.28
i'm pretty sure we like minimed, would our next step be getting endo, to start paperwork? or having a minimed rep to the house?

Mon Aug 2 1999 22:07:55 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Hi Gene!

Mon Aug 2 1999 22:08:03 Eastern US
Mary from Ma. (Chris 9, dx'd @ 4, pump 1year, Angela 10, dx'd 10/98) from 152.163.213.66
well..have a nice chat, ladies, went to the beach with the guys today and i think i got too much sun..everyone have a great evening!

Mon Aug 2 1999 22:08:07 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
e-mail me at CWD if you have questions or naything I can help with

Mon Aug 2 1999 22:08:10 Eastern US
Amy from 207.172.74.180
mag, just from what you've told me, you and Matt will BOTH love the pump:-)

Mon Aug 2 1999 22:08:29 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Mag - does your endo support the pump for your son?

Mon Aug 2 1999 22:08:36 Eastern US
Suzy from 209.143.52.157
You are all great--thanks for all the info!!

Mon Aug 2 1999 22:08:42 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
mag start the paperwork first

Mon Aug 2 1999 22:08:43 Eastern US
mag from 205.188.195.28
yes kim , very much

Mon Aug 2 1999 22:08:54 Eastern US
mag from 205.188.195.28
thanks steph

Mon Aug 2 1999 22:08:56 Eastern US
Renee from PA (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
thanks Steph for such an "empowering" chat!

Mon Aug 2 1999 22:08:58 Eastern US
Connie from 207.194.24.42
Looks like a pump chat???

Mon Aug 2 1999 22:09:05 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
KC MIKEY?

Mon Aug 2 1999 22:09:15 Eastern US
susanne from 207.89.137.167
Thanks Steph and all. Got to run for now.

Mon Aug 2 1999 22:09:15 Eastern US
Ellen (Zachary 11, pumping 4 years) (CamelsRFun@aol.com) from 205.188.193.169
Renee, if you would like more information about pumping I have a very big email about it. Zephyr Strauss started pumping at 22 months of age. 10 is NOT too young! As long as she wants it.

Mon Aug 2 1999 22:09:22 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
Thank you Stephanie

Mon Aug 2 1999 22:09:28 Eastern US
KC Mikey (schurigs@worldnet.att.net) from 12.75.141.35
Yeh??

Mon Aug 2 1999 22:09:33 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
thanks Renee what would u like to talk about next month?

Mon Aug 2 1999 22:09:52 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.133
Connie: Yes, we're having the special "pump chat" here because I showed up late. :-)

Mon Aug 2 1999 22:09:59 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
stay on-line mike I'll e-mail in a minute

Mon Aug 2 1999 22:10:04 Eastern US
Brenda H. from 10.0.1.3
Hi everyone. Looks like I'm late for the show! LOL

Mon Aug 2 1999 22:10:35 Eastern US
Ellen (Zachary 11, pumping 4 years) (CamelsRFun@aol.com) from 205.188.193.169
There's also a chat at the Disetronic website
http://www.disetronic-usa.com/chat
it's quick and free to register - monday nights at 9:00 pm EST - usually goes a couple of hours.

Mon Aug 2 1999 22:10:49 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
suggestins for a chat next month?

Mon Aug 2 1999 22:11:21 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Thanks for having Steph Jeff... it's been great.

Mon Aug 2 1999 22:11:38 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Thanks Steph and Mike, and everyone else for all their help.

Mon Aug 2 1999 22:11:52 Eastern US
Brenda H. (Marissa, 11, dx'd at 2) from 10.0.1.3
We've been having the problem with moderate highs during the night and Marissa would need .5 to 1.5 units to come down to normal. Just adjusted a 3 hr. period to see if it improves the numbers.

Mon Aug 2 1999 22:12:09 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
good luck KIM

Mon Aug 2 1999 22:12:19 Eastern US
Renee from PA (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
not ignoring you Steph...just haven't come up with another topic yet!

Mon Aug 2 1999 22:12:28 Eastern US
Ellen (Zachary 11, pumping 4 years) (CamelsRFun@aol.com) from 205.188.193.169
Next month we'll need ADVANCE PUMP THERAPY because all these kids will be pumping :-).

Mon Aug 2 1999 22:12:56 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Thank you Steph - we;ll try to think of a good topic!

Mon Aug 2 1999 22:12:56 Eastern US
Kate (Brendan, 16, dx 10...pumping 3+ years) from 209.165.20.71
Night all.

Mon Aug 2 1999 22:12:59 Eastern US
Renee from PA (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
Brenda and Jeff..congrats on that GREAT A1C...bet Marissa's feeling a lot better too!

Mon Aug 2 1999 22:13:03 Eastern US
Gene (Seth 4 yrs. dxd @ 14 mnths.) from 205.188.197.32
Brenda H; what do you consider "moderate highs" ??

Mon Aug 2 1999 22:13:09 Eastern US
Judy from NY (Elissa(18), pumping 14 yrs) from 24.29.95.79
how about the effects of exercise?

Mon Aug 2 1999 22:13:24 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Right on Ellen!

Mon Aug 2 1999 22:13:28 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
ok Ellen we can do that in the pump chat room if you'd like

Mon Aug 2 1999 22:13:41 Eastern US
Renee from PA (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
this was GREAT..thanks everyone...soooooo nice to see "Pumperism" catching on!

Mon Aug 2 1999 22:13:42 Eastern US
Renee from 152.163.194.191
Suggestion for a chat next month..how about kids and school rules for field trips.

Mon Aug 2 1999 22:13:50 Eastern US
Ellen (Zachary 11, pumping 4 years) (CamelsRFun@aol.com) from 205.188.193.169
Steph, how about how to deal with school personnel?

Mon Aug 2 1999 22:14:12 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Gene, I consider moderate highs 200-220. What about you?

Mon Aug 2 1999 22:14:40 Eastern US
Amy from 207.172.74.180
yes, school personnel would be a good topic:-)

Mon Aug 2 1999 22:14:45 Eastern US
Brenda H. (Marissa, 11, dx'd at 2) from 10.0.1.3
Gene, 150's to 250's. With the pump, I like her 11-12 p.m. number to be around 100, unless she has spent the evening swimming. She just hasn't been too active.

Mon Aug 2 1999 22:15:06 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
did you see the new stuff I just wrote --- we posted it this week!!
ok ellen that sounds like a good idea for the begiiniing of school

Mon Aug 2 1999 22:15:50 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Good idea Ellen - I haven't had any troubles with school personnel yet (only because I am part of school personnel), and I hope I don't.

Mon Aug 2 1999 22:16:07 Eastern US
Gene (Seth 4 yrs. dxd @ 14 mnths.) from 205.188.197.32
Kim; during the night maybe just a bit lower

Mon Aug 2 1999 22:16:34 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
good night all

Mon Aug 2 1999 22:16:35 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Steph - I saw all the neat forms and stuff - was that you? If so. thanks a lot!

Mon Aug 2 1999 22:17:22 Eastern US
Renee from PA (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
Night Steph.....thanks for all your "good works"!

Mon Aug 2 1999 22:17:33 Eastern US
Brenda H. (Marissa, 11, dx'd at 2) from 10.0.1.3
Gene, on active days, I can let Marissa stay at 180, which is a little high, at 2-3 a.m. and she'll be 85-120 in the a.m. With injections, I never seemed to get her a.m. BS in line very often.

Mon Aug 2 1999 22:17:44 Eastern US
Brenda H. (Marissa, 11, dx'd at 2) from 10.0.1.3
Goodnight Steph.

Mon Aug 2 1999 22:18:17 Eastern US
Steph Schwartz, RN, MPH, CDE from 24.131.13.13
yes it was and of course Jefff for getting all the net formatting done -- glad you like it

Mon Aug 2 1999 22:19:00 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Thanks a bunch, and good night!

Mon Aug 2 1999 22:19:03 Eastern US
Gene (Seth 4 yrs. dxd @ 14 mnths.) from 205.188.197.32
Renee; I grew up in Scranton. Are you anywhere near there?

Mon Aug 2 1999 22:19:47 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.211
hi

Mon Aug 2 1999 22:20:33 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
If kids are on a small amount of insulin by injection (total 10 units daily), does the insulin in the pump have to be diluted?

Mon Aug 2 1999 22:21:03 Eastern US
Renee from PA (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
Gene...outside of Phila, but have friends who grew up there....

Mon Aug 2 1999 22:21:13 Eastern US
Ellen from 205.188.193.169
Kim , not necessarily.

Mon Aug 2 1999 22:21:57 Eastern US
Renee from PA (Melissa (16) dx'd at 9, pumping 3 1/2 yrs) from 152.163.194.186
ok...time to call it a day here...night everyone!

Mon Aug 2 1999 22:22:14 Eastern US
Ellen from 205.188.193.169
Can Humalog be diluted?

Mon Aug 2 1999 22:22:31 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.211
Darriane should be getting her pump in about 3 wks! Can't wait to start it!!

Mon Aug 2 1999 22:22:42 Eastern US
Brenda H. (Marissa, 11, dx'd at 2) from 10.0.1.3
Well, we are heading on a mini vacation tomorrow a.m. and getting the troops up at 6 a.m. so I need to go. Also, got a kid here who has dx'd herself with strep. Aren't kids smart? See you all later.
Kim, Lisa Straus, whom I do not know chats here, but does visit the site, recently said they dilute the insulin in Zephyr's pump (she's about 25 mos old!!). Sorry, but I need to go see about the ill feeling daughter (luckily, not Marissa).

Mon Aug 2 1999 22:22:56 Eastern US
Ellen from 205.188.193.169
Good night Steph. Glad to see you are empowering others to use the pump .

Mon Aug 2 1999 22:23:00 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
How does it work with such a small amount Ellen? That 's one excuse someone gave me when trying to steer me away from the pump. Also, thiis person told me "the psychological effects of pump therapy on small children have not been studied"

Mon Aug 2 1999 22:23:37 Eastern US
Brenda H. (Marissa, 11, dx'd at 2) from 10.0.1.3
Ellen, Jeff says Lilly has no approved diluent for H, but I think Lisa uses some kind of NPH diluent. I'll try to remember to e-mail you about this later. BYE

Mon Aug 2 1999 22:23:52 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Thanks Brenda - happy vacation!

Mon Aug 2 1999 22:24:27 Eastern US
Barry (Brady, 5, dxd 11/98) from 209.252.61.46
Hello everyone!!

Mon Aug 2 1999 22:24:52 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.211
Hi Barry!

Mon Aug 2 1999 22:24:57 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Hi Barry!

Mon Aug 2 1999 22:25:53 Eastern US
Ellen from 205.188.193.169
Kim, have the psychological effects of injection therapy in children been studied? I have abstracts on the psychological ....

Mon Aug 2 1999 22:27:09 Eastern US
Ellen from 205.188.193.169
Kim, have the psychological effects of injection therapy in children been studied? I have abstracts on the psychological ....

Mon Aug 2 1999 22:27:45 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Or Ellen, have the psycho effects of watching everone else eat what they want, or being awakened every morning to an insuling injection been studied? I think not

Mon Aug 2 1999 22:28:01 Eastern US
Ellen from 205.188.193.169
Psychological impact of continuous subcutaneous insulin infusion pump
therapy in non-selected newly diagnosed insulin dependent (type 1)
diabetic children: evaluation after two years of therapy.
Slijper FM, De Beaufort CE, Bruining GJ, De Visser JJ, Aarsen RS, Kicken
DA, Van Strik R
Department of Child Psychiatry, Erasmus University Rotterdam, The
Netherlands.

Thirty type 1 (insulin dependent) diabetic children were treated from
diagnosis onwards in a random order (using a table of random
permutations) with either continuous subcutaneous insulin infusion pump
therapy (CSII), or with conventional injection therapy (CT). After two
years of therapy psychosocial measurements were obtained of fifteen CSII
children (8 boys, 7 girls; mean age: 12+/-4 years) and thirteen CT
children (6 boys, 7 girls; mean age: 10+/-4 years) and their parents.
Two families of the CT group refused to participate.

Mon Aug 2 1999 22:28:19 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.211
Good point Ellen! :-)

Mon Aug 2 1999 22:28:29 Eastern US
Ellen from 205.188.193.169
The examination
consisted of six tests (for the children: junior dutch personality test,
WISC-R intelligence test, family relation test, diabetes questionnaire;
for the parents: family interaction scale and assessment of acceptance
scale). Parents (and pediatricians) rated CSII children higher on
compliance and better on metabolic control. Acceptance of diabetes,
physical and psychological condition was rated equally by parents and
doctors. Except for the diabetes questionnaire, the children of the two
groups scored not significantly different. The CSII group expressed
significantly less physical complaints and physical restrictions. CSII
children showed a tendency to score higher on recalcitrance compared
with CT children. How adequate this coping of CSII children may be, is
discussed.

Mon Aug 2 1999 22:30:23 Eastern US
Barry (Brady, 5, dxd 11/98) from 209.252.61.46
Karen, you're visit to the doctor most have gone well. You said you did your homework!

Mon Aug 2 1999 22:30:34 Eastern US
Gene (Seth 4 yrs. dxd @ 14 mnths) from 205.188.197.32
Back again; got booted!

Mon Aug 2 1999 22:31:33 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.207
Barry... yes I did and had NO problems from her Endo! Just waiting for the insurance, and her pump should be here in about 3wks!!

Mon Aug 2 1999 22:31:38 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Whoa Ellen - you're good, and quick too! Thanks for that info - I had never read that. Will you come to the endo's office with me when I bring up the pump for Alyssa (LOL)!

Mon Aug 2 1999 22:31:56 Eastern US
Ellen from 205.188.193.169
CSII - is the same as pump therapy

Mon Aug 2 1999 22:32:16 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.207
Darriane is REALLY excited about it to! Everytime the mail comes she asks if her pump is here yet!! LOL

Mon Aug 2 1999 22:32:40 Eastern US
Ellen (CamelsRFun@aol.com) from 205.188.193.169
I have a very big prepared email to send you - just write to me and ask for pump info - I have lots of abstracts etc.

Mon Aug 2 1999 22:33:38 Eastern US
Amy from 207.172.74.180
Karen, I did that too..it's a huge box, and fun to open!

Mon Aug 2 1999 22:34:02 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Ellen, please email me any info that would be helpful. I'm at krhummel@cfw.com. Thanks!

Mon Aug 2 1999 22:34:39 Eastern US
Barry (Brady, 5, dxd 11/98) from 209.252.61.46
Karen, Wow! That's fantastic!! Our endo doesn't seem to be for the pump. Any pointers. We don't want to change endos. Good Med team.

Mon Aug 2 1999 22:35:02 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Well guys, gotta go be Srgt. Kim now - it's tooth brushing time for the weary soldiers - I'll check back in a few minutes.

Mon Aug 2 1999 22:35:03 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
evening, all

Mon Aug 2 1999 22:35:38 Eastern US
Barry (Brady, 5, dxd 11/98) from 209.252.61.46
Me to Ellen, My E-mail address is Poohtigger@prodigy.net

Mon Aug 2 1999 22:36:06 Eastern US
Gene (Seth 4 yrs. dxd @ 14 mnths) from 205.188.197.32
Hi Kathy

Mon Aug 2 1999 22:39:49 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.178
Barry, read the prepared e-mail that Ellen has. I used a lot in that, check out those web sites, call Minimed for a tape and info pack, go over it with Brady to make sure he understands it and is up for it

Mon Aug 2 1999 22:40:47 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.178
Barry.... our endo saw that Darriane was very excited and knew all about the pump too, so that helped, I went to some of those web sites and read the stories to her....

Mon Aug 2 1999 22:40:57 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
It's hard to get the endo's to put the younger ones on the pump.

Mon Aug 2 1999 22:42:31 Eastern US
Barry (Brady, 5, dxd 11/98) from 209.252.61.46
I will. Thanks so much!! Please keep us posted on your progress. I need to go but have one more question I hope that you or Kathy/MI can help me with.

Mon Aug 2 1999 22:42:33 Eastern US
Bev from 208.254.209.180
Ellen can you send me that info also? Rdederksen@msn.com

Mon Aug 2 1999 22:43:19 Eastern US
Amy from 207.172.74.180
have to run, ttyl:-)

Mon Aug 2 1999 22:44:08 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.178
sure Barry.....

Bye Amy

Mon Aug 2 1999 22:44:14 Eastern US
Barry (Brady, 5, dxd 11/98) from 209.252.61.46
We want to order a Med bracelet or necklace. Does Darriane or Allie use one. If so, which?

Mon Aug 2 1999 22:44:25 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
Bye, Amy.
What's the ?, Barry?

Mon Aug 2 1999 22:44:58 Eastern US
Ellen from 205.188.193.169
Bev it's on it's way.

Mon Aug 2 1999 22:45:29 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
We have several, a medic-alert bracelet, a necklace that looks like dog-tags, and a web bracelet. I can't keep any of it on her, but we try.

Mon Aug 2 1999 22:46:02 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
Ellen, can you send it to me, too? kathyg@voyager.net

Mon Aug 2 1999 22:46:09 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.178
Barry... we got ours online, Darriane is like her mother and allergic to fake gold, gold plated and even sterling silver. I can e-mail the site to you, they have sterling silver for kids as well as 10K

Mon Aug 2 1999 22:46:10 Eastern US
Bev from 208.254.209.180
Thanks Ellen

Mon Aug 2 1999 22:46:22 Eastern US
Kim (Alyssa's mom, almost 7, dx 7/98) from 216.12.53.140
Thanks Ellen - already got my emails. I'm going to go read them now - hope everyone has a good night! Nice talking to you all.

Mon Aug 2 1999 22:47:13 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.178
Darriane has a 10K anchor link bracelet. It has the medic alert sign on it and Diabetic on the back.... with the anchor link we can add as she grows

Mon Aug 2 1999 22:47:28 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
Barry, they have a lot of stuff listed here on this site, under products. Check them out.

Mon Aug 2 1999 22:47:38 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.178
Bye Kim! Good Luck!

Mon Aug 2 1999 22:48:42 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
bye, Kim

Mon Aug 2 1999 22:48:49 Eastern US
Barry (Brady, 5, dxd 11/98) from 209.252.61.46
Karen, that would be great. Did you get my E-mail address? If not, Poohtigger@prodigy.net I am getting a wealth of information. Being relative new to this, I can't begin to tell you how this means to us.

Mon Aug 2 1999 22:49:13 Eastern US
Sally (SallyJHoff@aol.com) from 63.14.21.115
Hi. Is anyone on line?

Mon Aug 2 1999 22:49:17 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
Karen, what state do you live in?

Mon Aug 2 1999 22:50:24 Eastern US
Angie (Becky, 11, dx 6-96) from 199.8.211.175
Good evening everyone!

Mon Aug 2 1999 22:51:07 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.203
I'm in Indiana

Mon Aug 2 1999 22:51:15 Eastern US
Sally (SallyJHoff@aol.com) from 63.14.21.115
Our daughter was dx one year ago at age 7.

Mon Aug 2 1999 22:52:22 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
Hi, Sally.
I figured you weren't from MI, Karen. They don't put young kids on the pump here. Our endo says when she is 8.

Mon Aug 2 1999 22:52:59 Eastern US
Angie (Becky, 11, dx 6-96) from 199.8.211.175
Karen I'm in IN also

Mon Aug 2 1999 22:53:20 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.203
Barry.... it's no problem! I think we both found this site about the same time and don't know what I did without it! I'll get that address and e-mail you guys with it! Darriane is their youngest customer to date! :-)

Mon Aug 2 1999 22:53:27 Eastern US
Leann/IN (son Alex(10) soon to be pumping) from 216.176.149.34
HI, Karen have i spoken with you before, do you go to Riley's?

Mon Aug 2 1999 22:54:15 Eastern US
Leann/IN (son Alex(10) soon to be pumping) from 216.176.149.34
Angie, where in Indiana? I am from Northwest Indiana, Valparaiso

Mon Aug 2 1999 22:54:35 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.203
Kathy, that's what our endo told us at first! But I did it!! lol

Leann... we may have spoke before... no, we're no longer at Riley's

Mon Aug 2 1999 22:54:40 Eastern US
Sally (SallyJHoff@aol.com) from 63.14.21.115
Hi Kathy. We live in Lockport, NY and our endo told us our daughter coulnd't consider the pump until 10 or 11!

Mon Aug 2 1999 22:55:07 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.203
I'm in East subs. of Indianapolis

Mon Aug 2 1999 22:55:13 Eastern US
Leann/IN (son Alex(10) soon to be pumping) from 216.176.149.34
oh yes, i think we have and you didn't like wentworth either, is that correct?

Mon Aug 2 1999 22:55:32 Eastern US
Angie (Becky, 11, dx 6-96) from 199.8.211.175
Northeast, Fort Wayne

Mon Aug 2 1999 22:55:56 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
Thanks, Ellen, got the e-mail ok.

Mon Aug 2 1999 22:56:05 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.203
Leann.... YEP!! That's right!! lol

Mon Aug 2 1999 22:56:23 Eastern US
Leann/IN (son Alex(10) soon to be pumping) from 216.176.149.34
We were in Ft. Wayne last weekend, quick trip, went to the zoo, science central and stayed at the holidome to swim!

Mon Aug 2 1999 22:56:31 Eastern US
Angie (Becky, 11, dx 6-96) from 199.8.211.175
We are considering pump too

Mon Aug 2 1999 22:56:35 Eastern US
Julie (TJandSons) from 205.188.199.34
Hi. I'm Julie, son Grant Age 2, pumping in Indpls.

Mon Aug 2 1999 22:57:10 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.203
Well... Indiana sure filled this room up fast!! LOL

Mon Aug 2 1999 22:57:25 Eastern US
Angie (Becky, 11, dx 6-96) from 199.8.211.175
Sounds like fun Leann!

Mon Aug 2 1999 22:57:25 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.203
Julie... who's your endo?

Mon Aug 2 1999 22:57:32 Eastern US
Leann/IN (son Alex(10) soon to be pumping) from 216.176.149.34
Hi Julie!! Alex starts pumping Wednesday at Riley's

Mon Aug 2 1999 22:57:44 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
We really like our endo team, and I won't switch, so I will wait. I'm hoping to wear them down. She will be 7 next month, so that only gives me a year. I go to the Univ. of Mich, and they are the only ones here that put kids under the age of 10 on the pump.

Mon Aug 2 1999 22:58:12 Eastern US
Leann/IN (son Alex(10) soon to be pumping) from 216.176.149.34
Dr. Sanchez is soooooo wonderful, of course he is from Miami so he is more progressive with pumps.

Mon Aug 2 1999 22:58:13 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
maybe I should move to Indiana. :-)

Mon Aug 2 1999 22:58:23 Eastern US
Julie (TJandSons) from 205.188.199.34
Hooray! Grant is doing well. How long has Alex been at Riley?

Mon Aug 2 1999 22:59:17 Eastern US
Barry (Brady, 5, dxd, 11/98) from 209.252.61.46
Thanks, Ellen for the E-mail!!
Good night everyone.

Mon Aug 2 1999 22:59:20 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.203
LOL@Kathy

Mon Aug 2 1999 22:59:27 Eastern US
Leann/IN (son Alex(10) soon to be pumping) from 216.176.149.34
Alex has been at riley's since april, when i interviewed dr's until i found one open to pumping, dr's in chicago will not consider younger kids.

Mon Aug 2 1999 23:00:04 Eastern US
Karen (Darriane 5 dx'd 8/97) from 152.163.204.206
Good Night Barry.... I'll keep ya posted on her pump.. and will e-mail you tonight or tomorrow with that address

Mon Aug 2 1999 23:00:30 Eastern US
Leann/IN (son Alex(10) soon to be pumping) from 216.176.149.34
Julie, does dr. sanchez call you each week?

Mon Aug 2 1999 23:00:39 Eastern US
Julie (Grant, Age 2, dx'd at 11 months) from 205.188.199.34
I have counseled a family last week (Sheppard's) in Chicago, and their endois putting the little boy (Billy) on the pump - his first. Not all the endos in the group are happy.

Mon Aug 2 1999 23:00:50 Eastern US
Kathy/MI (Allie, 6 dx'd at age 2) from 216.93.41.51
night, Barry

Transcript end



                 
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