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  Back to Chat Pumps at School Transcript
Tue Aug 18 1998 19:49:37 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.136
Don't Forget:
Pumps at School
An informal chat session about how to prepare the school to handle kids on pumps
Tuesday, August 18, at 8PM Eastern Time
Pump Users Room

Tue Aug 18 1998 20:01:33 Eastern US
Adria (txadv@aol) from 205.188.192.37
Hi Is there anyone out there

Tue Aug 18 1998 20:03:06 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.133
Adria, I'm here but will just be observing

Tue Aug 18 1998 20:03:25 Eastern US
Cindi from 152.207.78.92
Hi everyone!

Tue Aug 18 1998 20:04:30 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.133
Hi Cindy

Tue Aug 18 1998 20:04:46 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.52
My daughter Marisa (8), 4th grade, dxed in 1995, on Disetronic since June 9----Please introduce yourself as you come in!

Tue Aug 18 1998 20:05:22 Eastern US
Judy from NY from 24.92.54.96
good evening

Tue Aug 18 1998 20:05:52 Eastern US
Judy from NY from 24.92.54.96
I have Elissa, age 17, diagnosed at 15 months, on the pump since age 3

Tue Aug 18 1998 20:06:43 Eastern US
Cindi from 152.207.78.92
We have Ashley, age 12, dx'd at 9 mos, on the pump since 4/14/98.......

Tue Aug 18 1998 20:06:52 Eastern US
Adria (txadv@aol) from 205.188.192.39
Hi Im Adria My son Brandon ia 10 Dxed in 1995

Tue Aug 18 1998 20:07:14 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.52
Thanks for comin, Judy--- You must be a pro at preparing the schools!!!

Tue Aug 18 1998 20:08:22 Eastern US
Judy from NY from 24.92.54.96
Connie - we have been very lucky with the school - only a few minor problems over the years

Tue Aug 18 1998 20:09:13 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.52
Public or private school--- Marisa goes to a private school-- only one with diabetes there

Tue Aug 18 1998 20:10:09 Eastern US
Judy from NY from 24.92.54.96
public school. In elementary school she was the only D - a few more in middle and high school

Tue Aug 18 1998 20:10:23 Eastern US
Judy from NY from 24.92.54.96
we have always had a nurse

Tue Aug 18 1998 20:10:40 Eastern US
Cindi from 152.207.78.92
Fortunately, we haven't had to depend on the schools (private or public) for any support w/Ash's d......all part-time or no nurses

Tue Aug 18 1998 20:11:39 Eastern US
Judy from NY from 24.92.54.96
Elissa has tested in class since she has started high school. She carries all her stuff with her

Tue Aug 18 1998 20:12:09 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.42
We don't have a nurse so we have always trained the teacher and office girls to help

Tue Aug 18 1998 20:12:48 Eastern US
Judy from NY from 24.92.54.96
Connie - have they been cooperative???

Tue Aug 18 1998 20:12:55 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.42
I'm sure that is much esier for her, Judy--- Marisa can test at her desk, for which we are thankful

Tue Aug 18 1998 20:13:32 Eastern US
Judy from NY from 24.92.54.96
Adria - have you had any school problems???

Tue Aug 18 1998 20:14:11 Eastern US
Sue from IL from 152.163.232.48
Hi everyone - I knew I'd be late!!! Did I miss anything?

Tue Aug 18 1998 20:15:08 Eastern US
Sue from IL from 152.163.232.48
I have Amy, age 12, dx'd in March of '96 and pumping since June 10 of this year.

Tue Aug 18 1998 20:15:15 Eastern US
Judy from NY from 24.92.54.96
Hi Sue

Tue Aug 18 1998 20:15:21 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.42
Hi Sue--- introduce yourself , please--- Adria, how long has Brandon been on the pump?

Tue Aug 18 1998 20:15:30 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Hi, I have a son Travis who was dx in 90 and went on a minimed 507 pump in January 98.He has not attended school for two years. He is now 15 and a 10th grader. I had a terrible time with the school nurse for the three weeks he did attend school in his 9th grade year.

Tue Aug 18 1998 20:16:20 Eastern US
Judy from NY from 24.92.54.96
betty - is he being homed schooled???

Tue Aug 18 1998 20:17:00 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
I am curious if there are state laws governing kids caring their meters and lancets to the classrooms with them

Tue Aug 18 1998 20:17:01 Eastern US
Sue from IL from 152.163.232.48
Betty, are you home schooling him? We have great support at our school. Our meeting is Thursday, and I'm getting all 'my stuff' ready for the teachers since Amy is going into Jr. High.

Tue Aug 18 1998 20:17:36 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.42
betty, will he be in school this year?

Tue Aug 18 1998 20:18:02 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
He was on homebound. He was in and out of the hospital with dka 14 times in 2 years. The district sent a teacher to the house twice a week for 2 hours a day.

Tue Aug 18 1998 20:19:02 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.42
Yikes! Hope things are better for him now--- wouldn't they let him carry his spplies with him?

Tue Aug 18 1998 20:19:18 Eastern US
Sue from IL from 152.163.232.48
In elementary school, Amy tested in her classroom, had a closet with her snacks, plus snacks at the nurses office. Now in Jr. High, she will have to carry her meter with her, plus glucose tabs (which I know some have had "drug" problems with - I won't know if we will have the same problem until after Thursday)

Tue Aug 18 1998 20:19:54 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Yes, the homebound teachers worked out a 504 plan.
He will attend school 3 hours a day for three classses and then a homebound teacher will instruct the other 3 classes at home. She will be in charge of keeping him caught up if he is out of school for any amount of time.

Tue Aug 18 1998 20:20:06 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.42
Adria, how do you handle Brandon' s lunch boluses? Does he figure them out himself?

Tue Aug 18 1998 20:20:51 Eastern US
Sue from IL from 152.163.232.48
Do any of you have your child keep an extra infusion set and supplies at school, in the nurses office, for emergency set changes? I'm at least 1/2 hour from the school, with the wind blowing, when I'm at work. I would be comfortable with Amy changing a problem site at school. Any feedback?

Tue Aug 18 1998 20:22:07 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
The high scholl nurse was informed that he was extremely brittle by the dr. and was to inject insulin for bs over 200. She had him in the nurses office for over an hour with a bs of 457.
She couldn't find the dr.note for permission to inject so she wouldn't allow him to.

Tue Aug 18 1998 20:22:15 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.46
One of my biggest concerns is that Mariswill bolus properly at lunch--- Lunchtime is so chaotic and rushed and I wonder if she can calculate it right

Tue Aug 18 1998 20:23:00 Eastern US
Sue from IL from 152.163.232.48
Yikes Betty!! Is it not any better at the high school? Does he miss the comradare?

Tue Aug 18 1998 20:23:24 Eastern US
Linda/So. Utah from 207.49.61.17
Hi

Tue Aug 18 1998 20:23:34 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.46
Sometimes we might better offithout a nurse-- just training lay people!

Tue Aug 18 1998 20:23:54 Eastern US
Sue from IL from 152.163.232.48
Hi Linda :-)

Tue Aug 18 1998 20:24:15 Eastern US
Judy from NY from 24.92.54.96
Elissa keeps an extra set & extra betteries at the nurse's office

Tue Aug 18 1998 20:24:55 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
He started school Monday the 18th and is on top of the world. If things go smoothly, maybe after the first semester, he will get to go to school all day!

Tue Aug 18 1998 20:25:31 Eastern US
Judy from NY from 24.92.54.96
Elissa was able to bolus herself in kindergarten, with the nurse looking over her shoulder

Tue Aug 18 1998 20:25:47 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.46
Sue, I see no reaon she shouldn't if she is completely independent with the change at home---She'd probably call first and dicuss it with y ou

Tue Aug 18 1998 20:25:52 Eastern US
Judy from NY from 24.92.54.96
betty - I certainly hope things are better for him on the pump

Tue Aug 18 1998 20:26:07 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
I think that school nurses need to take formal training for kids with different types of medical problems.

Tue Aug 18 1998 20:26:22 Eastern US
Linda/So. Utah from 207.49.61.17
Hmm, I guess I better get some supplies over to the school...the teacher won't let the kids have water bottles at their desks, says he needs one but they don't--they can just use the fountain in the back of the room (5th grade)

Tue Aug 18 1998 20:26:43 Eastern US
Sue from IL from 152.163.232.48
Oh batteries - great idea Judy. See, I knew I'd forget something!
Amy had a low battery, 4 hours away from home and us, with her church group. She had them stop at K-Mart (can you believe it?? Not Wal-Mart) for batteries. I told her she did the right thing, tho her bgs were fine and she would probably have been ok. I think the worry would have been worse for her tho!!

Tue Aug 18 1998 20:26:47 Eastern US
Judy from NY from 24.92.54.96
do you guys also keep syringes & insulin at school in case the pump malfunctions??

Tue Aug 18 1998 20:27:09 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.46
Judy, how old do you think she was when she had no supervision with boluses?

Tue Aug 18 1998 20:27:34 Eastern US
Linda/So. Utah from 207.49.61.17
Kim had her first low battery signal yesterday...guess I really need to start thinking about this stuff! Oh syringes..I hadn't even thought of that

Tue Aug 18 1998 20:28:05 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.46
Gee, hadn't thought of that, Judy---- batteries are a good idea, too

Tue Aug 18 1998 20:28:09 Eastern US
Sue from IL from 152.163.232.48
Betty, MM is (or has) done an in-service with the school nurse on the pump, at my request.

Tue Aug 18 1998 20:28:47 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.46
Linda--- how old is Kim?

Tue Aug 18 1998 20:28:59 Eastern US
Judy from NY from 24.92.54.96
Connie ......maybe 3rd or 4th grade

Tue Aug 18 1998 20:29:04 Eastern US
Linda/So. Utah from 207.49.61.17
You guys are lucky to have school nurses. We have one for the entire district of 20,000

Tue Aug 18 1998 20:29:41 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Sue, that's good to know. I have a high school senior who will also be using a pump in the next month.

Tue Aug 18 1998 20:29:44 Eastern US
Sue from IL from 152.163.232.48
brb

Tue Aug 18 1998 20:29:59 Eastern US
Linda/So. Utah from 207.49.61.17
Kim is 10.5, dx 12-23-96, pumping since July 13. She LOVES the pump but we are definitely still frustrated but learning!

Tue Aug 18 1998 20:29:59 Eastern US
Judy from NY from 24.92.54.96
you can also request an extra manual from the pump manufacturer to keep in the nurse's office

Tue Aug 18 1998 20:30:50 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.46
Marisa is in 4th (skipped 2nd last year) but is just 8--- sheis very bright and independent but I feel she needs some supervision just because of her age

Tue Aug 18 1998 20:31:05 Eastern US
Linda/So. Utah from 207.49.61.17
I went over to school yesterday and tried to guess on the carbs per meal. The lunch lady told me the serving size and then we guessed together. Kim took her lunch today and had better numbers.

Tue Aug 18 1998 20:31:21 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.46
Great idea, Judy---

Tue Aug 18 1998 20:31:33 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Judy, Travis first A1c was 5.6 in April. He has gained 37 lbs and grown 2 inches. He was down to 92 lbs. in January

Tue Aug 18 1998 20:32:00 Eastern US
Judy from NY from 24.92.54.96
betty - that poor kid!!!!

Tue Aug 18 1998 20:32:51 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
He is the picture of health now and we are all elated.

Tue Aug 18 1998 20:33:35 Eastern US
Linda/So. Utah from 207.49.61.17
have any of you had problems with the pumps getting banged up?

Tue Aug 18 1998 20:34:52 Eastern US
Judy from NY (pmpmom@yahoo.com) from 24.92.54.96
Linda - if Kim goes out for recess, you might want to use the sport guard (she has a Minimed, right?)

Tue Aug 18 1998 20:35:21 Eastern US
Judy from NY (pmpmom@yahoo.com) from 24.92.54.96
I have found both pumps to be pretty durable

Tue Aug 18 1998 20:35:33 Eastern US
Linda/So. Utah from 207.49.61.17
that's an idea! So far it's been OK but she is a kid!!!

Tue Aug 18 1998 20:35:48 Eastern US
Linda/So. Utah from 207.49.61.17
Should she disconnect for PE?

Tue Aug 18 1998 20:35:49 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.37
Marisa's Disetronic is in a leather case so I don't think we have to worry about that

Tue Aug 18 1998 20:36:53 Eastern US
Judy from NY (pmpmom@yahoo.com) from 24.92.54.96
Elissa never disconnected for PE - I think it depends on the sport

Tue Aug 18 1998 20:37:05 Eastern US
Judy from NY (pmpmom@yahoo.com) from 24.92.54.96
Elissa won't use the case

Tue Aug 18 1998 20:37:11 Eastern US
Sue from IL from 152.163.232.48
Linda, thanks for reminding me - I need to order a sports guard! Amy's gets very 'dusty' inside - anyone else have this problem? I don't want to have to worry about it during P.E., plus, soccer starts in a few weeks.

Tue Aug 18 1998 20:37:12 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.37
Marisa doesn't disconnect except occ. for swimming

Tue Aug 18 1998 20:37:36 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
she could disconnect, but you may want her to check her bs before hand

Tue Aug 18 1998 20:37:51 Eastern US
Linda/So. Utah from 207.49.61.17
Does Elissa use a sport guard?

Tue Aug 18 1998 20:38:34 Eastern US
Sue from IL from 152.163.232.48
I will have Amy disconnect if she is the least bit low, instead of suspending. I think she would be apt to forget to 'un-suspend' her pump!

Tue Aug 18 1998 20:39:05 Eastern US
Judy from NY (pmpmom@yahoo.com) from 24.92.54.96
Elissa uses the sport guard on occasion

Tue Aug 18 1998 20:39:41 Eastern US
Judy from NY (pmpmom@yahoo.com) from 24.92.54.96
Sue - that's fine, except one day Elissa LOST her pump...........!!!!!!

Tue Aug 18 1998 20:39:48 Eastern US
Sue from IL from 152.163.232.48
Amy got PE for 1st period this year - I'm thankful for that. We will have a better handle on her bg before, and she will test if she has been running 'out of the norm' that morning.

Tue Aug 18 1998 20:40:09 Eastern US
Sue from IL from 152.163.232.48
Lost it? Where???

Tue Aug 18 1998 20:40:55 Eastern US
Judy from NY (pmpmom@yahoo.com) from 24.92.54.96
somewhere in the house

Tue Aug 18 1998 20:41:25 Eastern US
Ellen from 205.188.193.22
I don't want Z to lose his pump by disconnecting. Wonder if he can leave it on the teacher's desk.

Tue Aug 18 1998 20:42:21 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.37
Hi--Ellen --- glad you came in

Tue Aug 18 1998 20:42:22 Eastern US
Sue from IL from 152.163.232.48
Does anyone know where I can get the individually wrapped keto stix? We had them for school last year, but I didn't buy them, and I sure don't know where I got them. Every pharmacist I have talked to doesn't have them in their books. They make it much easier - they don't expire like the reg. bottles do.

Tue Aug 18 1998 20:42:25 Eastern US
Judy from NY (pmpmom@yahoo.com) from 24.92.54.96
if I recall, she once left it in her gym locker & we had to go back to school

Tue Aug 18 1998 20:42:29 Eastern US
Adria (txadv@aol) from 205.188.192.48
Brandons never has needed the sportsguard except for swimming. He keeps it in his pocket and even during camp with all the sports it never got banged up.

Tue Aug 18 1998 20:42:54 Eastern US
Sue from IL from 152.163.232.48
Judy, did she ever find it?

Tue Aug 18 1998 20:43:09 Eastern US
Judy from NY (pmpmom@yahoo.com) from 24.92.54.96
Sue - yes she did

Tue Aug 18 1998 20:43:51 Eastern US
Linda/So. Utah from 207.49.61.17
I looked at the minimed page and they don't have the sportsguard listed, just the sports case...guess I'll have to call them tomorrow

Tue Aug 18 1998 20:44:05 Eastern US
Sue from IL from 152.163.232.48
Adria, I wish Amy would keep hers in her pocket! She usually clips it to her waistband of her pants, except if she wears overalls.

Tue Aug 18 1998 20:44:26 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Sue, have you ever heard of a place called Home medical? They are a diabetic warehouse and they carry the individually wrapped ketodiastics

Tue Aug 18 1998 20:44:51 Eastern US
Linda/So. Utah from 207.49.61.17
Kim uses the clip thing...yesterday she almost lost her pants! luckily her shirt was long! LOL

Tue Aug 18 1998 20:45:00 Eastern US
Ellen from 205.188.193.22
Hi Adria! Are you going to the DRI What's Up Doc event, or is Brandon too old for that?

Tue Aug 18 1998 20:45:03 Eastern US
Judy from NY (pmpmom@yahoo.com) from 24.92.54.96
Linda - I bet if you call your sales rep, you can get it for free

Tue Aug 18 1998 20:46:20 Eastern US
Ellen from 205.188.193.22
Thanks Connie, how's the pet?

Tue Aug 18 1998 20:46:37 Eastern US
Linda/So. Utah from 207.49.61.17
They didn't give us anything free! We didn't even get a meter. hmmmm I'll try

Tue Aug 18 1998 20:47:27 Eastern US
Ellen from 205.188.193.22
Just a reminder, we went out and got two new Glucagon kits, each expire in under a year. You can request a newer one that will give you two years...

Tue Aug 18 1998 20:47:55 Eastern US
Emily from 204.60.15.66
Hello!

Tue Aug 18 1998 20:48:03 Eastern US
Linda/So. Utah from 207.49.61.17
Have you trained the school on how to use Glucagon?

Tue Aug 18 1998 20:49:17 Eastern US
Ellen from 205.188.193.22
I went over it with the flaky nurse today, she said after she'd give it, she'd call 911. I told her if she gave it she wouldn't have to, and if she couldn't give it, then she would. AGGGGG I hate this time of year.

Tue Aug 18 1998 20:49:18 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
In Arizona they do not allow the school nurse to use a glucagon kit

Tue Aug 18 1998 20:49:19 Eastern US
Sue from IL from 152.163.232.48
Thanks Betty - I'll try there. Ah yes, new Glucagon kits. What's with the new one Ellen? Why does it last longer?

Tue Aug 18 1998 20:49:53 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.52
Hi Emily---Introduce yourself, please

Tue Aug 18 1998 20:50:31 Eastern US
Ellen from 205.188.193.22
Another announcement for Disetronic users of the Tender, today's quarterly newsletter now says to give 1 unit to fill the canula. We were originally taught to give 1/2 unit.

Tue Aug 18 1998 20:50:36 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Glad to hear that I'm not the only one with a flaky school nurse.

Tue Aug 18 1998 20:50:40 Eastern US
Emily from 204.60.15.66
Hi Connie! I'm 15, diabetes for 13 1/2 yrs, on pump for 2 yrs., from CT

Tue Aug 18 1998 20:51:19 Eastern US
Linda/So. Utah from 207.49.61.17
We have a paramedic (custodian during the day) at our school--I wonder if I could train him...

Tue Aug 18 1998 20:51:24 Eastern US
Ellen from 205.188.193.22
Sue it's nothing new, just they are usually old hanging around the pharmacy. If you ask them specifically to order you a new one, you'll get one with a longer shelf life.

Tue Aug 18 1998 20:51:51 Eastern US
Sue from IL from 152.163.232.48
The one we have now, we got in July '97, and it doesn't expire until Feb. of '99

Tue Aug 18 1998 20:52:03 Eastern US
Linda/So. Utah from 207.49.61.17
Kim needs to prime 2 units on the silhouette or she is really high in a couple of hours

Tue Aug 18 1998 20:53:00 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.41
Thanks, Ellen-- Hey, I'e never got a D newsletter

Tue Aug 18 1998 20:53:03 Eastern US
Sue from IL from 152.163.232.48
Oh, ok. Thought you meant there was a different one available. lol

Tue Aug 18 1998 20:53:36 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.41
So Ellen-- will the nurse give glucagon?

Tue Aug 18 1998 20:54:12 Eastern US
Ellen from 205.188.193.22
I also encountered one teacher, while handing out milk boxes and candy to be kept in each classroom, who didn't like the idea. She started questioning me. I explained thre was nothing medical in the bag. She started questioning if the principal knew about this. I handed her the sheet the school nurse asked me to hand out with the bags...(EXCUSE ME, Sorry if my son's diabetes may inconvenience her life! I really hate this can you tell?) Fortunately the guidance counselor is right across the hall and her grandfather had diabetes. I asked her to allay the other teacher's fears....

Tue Aug 18 1998 20:54:34 Eastern US
Sue from IL from 152.163.232.48
Is that the norm - different prime for different people? Sets I can understand. I'm thinking Amy probably needs more than the .5 recommended. And Ellen, we are going to try a site change before dinner this time around, and see how the #'s are.

Tue Aug 18 1998 20:56:45 Eastern US
Ellen from 205.188.193.22
Betty, does Arizona allow a nurse who has a Glucagon kit onhand to watch a child seize rather than administer? We women need to enact legislation for our children to have a fair chance in life.

Tue Aug 18 1998 20:57:04 Eastern US
Sue from IL from 152.163.232.48
I hope we don't have that problem at the Jr. High - it's been so easy at school so far. I would hate for that to change. But, I can also see the teachers as taking it as maybe Amy is just hungry, or wanting attention, or a distraction in class. I hope not.

Tue Aug 18 1998 20:57:33 Eastern US
Linda/So. Utah from 207.49.61.17
Ellen, I had the same problem when Kim was first dx with the office ladies--didn't want to keep stuff in the office until I explained it was just food. The lunch lady has told me that Kim can get anything she needs from there

Tue Aug 18 1998 20:58:14 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
I have encountered teachers and the administration who feel the kids use their diabetes as a way to get out of things or as an excuse

Tue Aug 18 1998 20:59:03 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Ellen, they would rather the paramedics be called

Tue Aug 18 1998 20:59:42 Eastern US
Ellen from 205.188.193.22
We did the site change before dinner tonight and used the 1 unit instead of the .5. Right on target!! How many of you have experimented with letting your kids drink an 8 oz glass of juice with a normal bg, and taking the humalog by bolus? Z did it tonight and it worked fine.

Tue Aug 18 1998 20:59:45 Eastern US
Linda/So. Utah from 207.49.61.17
There are 3, 7th grade girls with d this year at the middle school..one of them is pumping, started a few months before Kim. These girls were at the elementary school adn have most of the teachers trained! LOL

Tue Aug 18 1998 20:59:57 Eastern US
Sue from IL from 152.163.232.48
Betty, I am always very clear to all the staff - diabetes is never to be used as an excuse, and if they feel it is, they are to call me immediately. She has not pulled that one yet, and I hope she won't.

Tue Aug 18 1998 21:00:15 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.41
Then you better hope the response time for 911 is rapid

Tue Aug 18 1998 21:01:00 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Ellen, there are few out there in the school system who want to be held accountable.

Tue Aug 18 1998 21:01:02 Eastern US
Linda/So. Utah from 207.49.61.17
I dread the middle school because 1) there are more kids and 2) they don't care as much.

Tue Aug 18 1998 21:01:25 Eastern US
Sue from IL from 152.163.232.48
Linda - that SHOULD make it easier for Kim. Amy is only the 2nd in the school to have d - now there are 4 - older, 2 younger, and only Amy is pumping.

Tue Aug 18 1998 21:01:39 Eastern US
Ellen from 205.188.193.22
That's difficult Betty. I'm sorry. The nurse today was reluctant and I showed her the orders from my doctor that she can administer the glucagon. But I don't know state law. I do know that a doctor would not be allowed to stand by and not treat someone, does a nurse have the same responsibility?

Tue Aug 18 1998 21:03:16 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Sue, Travis and Ryan both attended the same high school for a short time last year. The dean of students told them I made too much out of their illness. Talk about an educated idiot. He had a relative with diabetes and that made him experienced with teens and diabetes?!

Tue Aug 18 1998 21:04:03 Eastern US
Sue from IL from 152.163.232.48
Linda, actually, our middle school is smaller. Being a 'country' school has it's advantages. Our middle school is 7th and 8th only, so we don't have any other school that filter into ours. These kids start out in kindergarten together, and go all the way to graduation.

Tue Aug 18 1998 21:04:45 Eastern US
Linda/So. Utah from 207.49.61.17
In defense of the teachers, I would really worry about what to do...before Kim was dx I was pretty dumb about d. Kim had a downs girl, a child with a liver autoimmune problem and a couple of ADD kids in her class (not to mention the normal stuff) I think that whether we like it or not, teachers are really asked to deal with a lot! I do love those teacher who don't question why my child is testing, just let's it go without making a big deal about it. I make sure that I give the teachers information about lows and highs...I get nervous about 911 because I'm not sure that a glucose IV is the best thing for my child

Tue Aug 18 1998 21:05:10 Eastern US
Ellen (CamelsRFun@aol.com) from 205.188.193.22
Did anyone invite Michael from IP?
Who has a good intro to the pump letter or a child with diabetes on the pump is in your care letter prepared? I'd love a copy.

Tue Aug 18 1998 21:05:19 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Ellen. I have a 17 year old with type1 and crohns disease. Both difficult to manage separately but together, it isn't easy. He has to be close to the door for the bathroom and a drinking fountain and he disrupted the class because he had to use the facilities.

Tue Aug 18 1998 21:06:56 Eastern US
Linda/So. Utah from 207.49.61.17
That's soo hard for a child Betty. Kids hate to be different and this really doesn't seem fair

Tue Aug 18 1998 21:07:15 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Linda, I have had only a few bad encounters with teachers, but the ones that I have had have been enough to make you want to go crazy!

Tue Aug 18 1998 21:07:44 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.59
Michael's letter that he gives to Lily's teachrs is excellent, a bit thechnical---- but I borrowed a bunch of it to revise our booklet we give the teachers about Marisa

Tue Aug 18 1998 21:08:46 Eastern US
Linda/So. Utah from 207.49.61.17
I hear you Betty! a good teacher is worth their weight in gold!!! There are some people that just don't get it. I went with a mom last year to an IEP. It was amazing that the teacher just didn't get it!!! Like Ellen says "Sorry my kid's d is such an inconvenience to you!!!"

Tue Aug 18 1998 21:08:51 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
I also had to fight to get my kids on a chronic illness list at the high school. Did any of you know there was such a thing? I found out about it after \my 17 year old was kicked out of class for exceeding his allowable absences.

Tue Aug 18 1998 21:09:18 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.59
So many problems can be handled over the phone--- seems easier than explaining too much to the teacher or staff--- What did we do before cell phones?

Tue Aug 18 1998 21:09:44 Eastern US
Sue from IL from 152.163.232.18
My biggest fear is P.E. this year - much more competitive, and Amy isn't one to sit back and let someone beat her at anything! Thankfully, her sister Sarah (8th grade) is in the same class! I wonder if the school planned it that way.

Tue Aug 18 1998 21:10:08 Eastern US
Ellen (CamelsRFun@aol.com) from 205.188.193.22
That's really a painful disease, Betty. Do the teachers have any compassion?

Tue Aug 18 1998 21:10:17 Eastern US
Linda/So. Utah from 207.49.61.17
I don't think I'll have that trouble Betty (boy, that makes me angry) my husband is on our school board

Tue Aug 18 1998 21:10:49 Eastern US
Mary from Ma. from 205.188.193.179
good evening all :-)

Tue Aug 18 1998 21:11:44 Eastern US
Linda/So. Utah from 207.49.61.17
Hi Mary...
My husband actually ran for school board because of all the junk I had dealt with on the district level...we're all on a first name basis :-)

Tue Aug 18 1998 21:11:56 Eastern US
Sue from IL from 152.163.232.18
Connie, cell phones? What are those?? lol We don't have one!
I try not to get too technical with the staff. I give them what they HAVE to know, to protect Amy and themselves, then give them plenty of literature, that they can read if and when they want to. Otherwise, they tune you out I think.

Tue Aug 18 1998 21:12:10 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Some, I was lucky enough to get a vice principal at a new high school who had experienced her own dilemna with a daughter who had cancer and went through very similar problems. I am happy to say that her daught is in remission for several years now.

Tue Aug 18 1998 21:12:31 Eastern US
Sue from IL from 152.163.232.18
Hi Mary :-)

Tue Aug 18 1998 21:12:36 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.59
Hi Mary--- introduce yourself and jump in!

Tue Aug 18 1998 21:13:34 Eastern US
Linda/So. Utah from 207.49.61.17
Did you have to change your children's basal rates when school started? we're so messed up ! Today was definitely better

Tue Aug 18 1998 21:13:57 Eastern US
Ellen (CamelsRFun@aol.com) from 205.188.193.22
I wrote Disetronic today and asked for them to prepare a pamphlet for us to be able to give teachers, caretakers, coaches. I think if everyone writes to their pump company maybe they'll provide us with something that looks professional and doesn't look like MOM'S EXAGGERATING

Tue Aug 18 1998 21:14:26 Eastern US
Linda/So. Utah from 207.49.61.17
Good idea

Tue Aug 18 1998 21:14:40 Eastern US
Sue from IL from 152.163.232.18
I was impressed with out middle school principal - he was the one to call me to set up the meeting, even tho I did mention it at registration. They said I could call back and set it up when it was closer to school. He called me at work yesterday, asked who all I wanted there, and when we should meet. He is a very nice man!

Tue Aug 18 1998 21:14:59 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.23
Good idea, Ellen--- did you tell them to put a RUSH on the production

Tue Aug 18 1998 21:15:02 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Good idea, Ellen.

Tue Aug 18 1998 21:15:33 Eastern US
Sue from IL from 152.163.232.18
Good question Linda! I've thought about that....anyone?

Tue Aug 18 1998 21:16:59 Eastern US
Sue from IL from 152.163.232.18
Ellen, I didn't forget about sending you copy of the one I'm doing for Amy - we kinda skipped out on working today (after the 'fun' dentist appt. and went to the mall - got 5 of the 'new' beanies.)

Tue Aug 18 1998 21:17:58 Eastern US
Sue from IL from 152.163.232.18
Judy, Ellen, any thoughts on changing basals? I think I will have to adjust Amy's a.m. one, due to P. E., but I think the others will be ok.

Tue Aug 18 1998 21:18:52 Eastern US
Ellen (CamelsRFun@aol.com) from 205.188.193.22
My son starts tomorrow. I'm going to lower the basals by at least .1 per hour. This summer I increased them up to .2 more per hour because he'd been sitting on the couch watching tv and playing Nintendo. I have to remember to do that tomorrow morning between 6-7 a.m. EEEEGAADS

Tue Aug 18 1998 21:18:58 Eastern US
Judy from NY (pmpmom@yahoo.com) from 24.92.54.96
Sue - I'm guessing you will have to do some adjusting. She may have one set of basals for school & another for the weekend

Tue Aug 18 1998 21:19:29 Eastern US
Sue from IL from 152.163.232.18
Already? My kids start next Monday - for a whole hour!

Tue Aug 18 1998 21:20:23 Eastern US
Sue from IL from 152.163.232.18
Oh no Judy!!! I'll just make her maintain the same activity level and eating lunch at the same time on the weekends!!!! lol - wish I could do that!

Tue Aug 18 1998 21:21:48 Eastern US
Linda/So. Utah from 207.49.61.17
hehehe Sue, don't we wish!!! hehehe

Tue Aug 18 1998 21:24:00 Eastern US
Sue from IL from 152.163.232.18
Anyone have any problems with the teachers not liking the pump because it reminds them of a pager? Or the one tiny little beep after the bolus is given?

Tue Aug 18 1998 21:24:11 Eastern US
Ellen from 205.188.193.22
OK MINIMED OWNERS - you've got me now. I'm going to take a flash light (no backlight on Z's pump) and change his basals for tomorrow right now. BRB

Tue Aug 18 1998 21:24:25 Eastern US
Mary from Ma. from 205.188.193.58
try this again..hello everyone...our phone lines are acting up here so hopefull i can stay awhile this time....

Tue Aug 18 1998 21:24:38 Eastern US
Debbie from 209.96.5.214
hi all, did I miss the whole chat?

Tue Aug 18 1998 21:24:43 Eastern US
Judy from NY (pmpmom@yahoo.com) from 24.92.54.96
Sue - we're talking pumps here - NOT injections !!! Flexible - remember???

Tue Aug 18 1998 21:25:14 Eastern US
Sue from IL from 152.163.232.18
Keep laughing Linda! Pre-pump, we did have to do that!! Amy would totally go out of control on the weekends if we deviated from a routine at all.

Tue Aug 18 1998 21:25:55 Eastern US
Linda/So. Utah from 207.49.61.17
So far I've only heard positive things...from the teacher and the lunch lady and anyone except Kim's last year teacher...

Tue Aug 18 1998 21:25:59 Eastern US
Sue from IL from 152.163.232.18
Hi again Mary, howdy Debbie :-)

Tue Aug 18 1998 21:26:29 Eastern US
Linda/So. Utah from 207.49.61.17
Oh Sure..I doooo remember! I absolutely can not even think about going back to all that rigid stuff..we had dinner last night at 9 pm

Tue Aug 18 1998 21:26:30 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.57
No, Debbie--- join in

Tue Aug 18 1998 21:27:24 Eastern US
Linda/So. Utah from 207.49.61.17
Hi Debbie

Tue Aug 18 1998 21:27:36 Eastern US
Mary from Ma. from 205.188.193.58
k..this is our first school year with a pump what exactly DO i tell chris's teachers???

Tue Aug 18 1998 21:27:39 Eastern US
Debbie from 209.96.5.214
we got our pump in April, so we didn't have much experience at school yet.

Tue Aug 18 1998 21:27:42 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.57
And Marisa woke upat 10:15 today and had breakfast , or was it lunch?, at 11:15! Great numbers all day--- and she even has a URI

Tue Aug 18 1998 21:30:09 Eastern US
Mary from Ma. from 205.188.193.58
.

Tue Aug 18 1998 21:30:12 Eastern US
Sue from IL from 152.163.232.18
DITTO Linda! Vacation was a breeze - #'s were lousey, but meals were easy! (#'s mostly due to using a new meter. Advice - never change meters to go on vacation!!)

Tue Aug 18 1998 21:30:24 Eastern US
Linda/So. Utah from 207.49.61.17
Kim just had her first 2 days of school and pump..so far OK

Tue Aug 18 1998 21:30:53 Eastern US
Sue from IL from 152.163.232.18
Mary, tell them that he is pumping, and it will be sooooo much easier for everyone involved!

Tue Aug 18 1998 21:31:09 Eastern US
Debbie from 209.96.5.214
what grade are your children going into? Mine's going into 5th.

Tue Aug 18 1998 21:31:41 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.57
4th for Marisa

Tue Aug 18 1998 21:32:15 Eastern US
Sue from IL from 152.163.232.18
7th for Amy

Tue Aug 18 1998 21:32:28 Eastern US
Mary from Ma. from 205.188.193.58
3rd for Chris

Tue Aug 18 1998 21:32:48 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Hello

Tue Aug 18 1998 21:32:55 Eastern US
Linda/So. Utah from 207.49.61.17
My mom in law broke her hip Thurs night so we've just been winging it all around...We live across the street from them..Mom's in the rehab for a month and Dad had hip replacement 2 yrs ago and doesn't do too good....they're 84. Anyway, I'm really grateful that Kim's as independent as she has been. I got her a little calculator to take with her to schoo. She carries it with the meter (to add and divide for the carb counting)

Tue Aug 18 1998 21:33:26 Eastern US
Linda/So. Utah from 207.49.61.17
Hello Lisa, how's Spencer doing with school?

Tue Aug 18 1998 21:33:42 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Spencer is 10 and just got his pump in May.

Tue Aug 18 1998 21:33:51 Eastern US
Linda/So. Utah from 207.49.61.17
5th for Kim

Tue Aug 18 1998 21:34:03 Eastern US
Sue from IL from 152.163.232.18
Hi Lisa :-)
Same here Linda - Amy uses hers only occasionally, to check her math - she's a show off! lol

Tue Aug 18 1998 21:34:20 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Linda, he doesn't start until Monday. I meet with the teacher again on Friday. I have decided to do a 504 plan.

Tue Aug 18 1998 21:34:30 Eastern US
Sue from IL from 152.163.232.18
Lisa, how is it going now?

Tue Aug 18 1998 21:34:41 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
I'd like to know how many of you had to fight with your doctor to get a pump.

Tue Aug 18 1998 21:34:49 Eastern US
Sue from IL from 152.163.232.18
Problems with the school Lisa?

Tue Aug 18 1998 21:34:49 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.52
Welcome,Lisa--- is he in 5th?

Tue Aug 18 1998 21:34:53 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
5th what for Kim????

Tue Aug 18 1998 21:35:18 Eastern US
Renee from 152.163.197.179
Hi everyone...I'm on my husband's laptop here in Massachusetts!!!

Tue Aug 18 1998 21:35:18 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Yes, Spencer is going into 5th.

Tue Aug 18 1998 21:35:19 Eastern US
Linda/So. Utah from 207.49.61.17
What happens when you have a 504 ?

Tue Aug 18 1998 21:35:27 Eastern US
Linda/So. Utah from 207.49.61.17
grade

Tue Aug 18 1998 21:35:40 Eastern US
Sue from IL from 152.163.232.18
Not really fight Betty, but it took 8 months of 'discussion', and finally Amy just told her all the good reasons and bad reasons for wanting to go on a pump. That did the trick!

Tue Aug 18 1998 21:35:49 Eastern US
Linda/So. Utah from 207.49.61.17
oooh Renee...I'm envious! I'd love a lap top!

Tue Aug 18 1998 21:35:56 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Renee, your on yours husband's lap??? LOL!!

Tue Aug 18 1998 21:36:50 Eastern US
Sue from IL from 152.163.232.18
Hi Renee - thank goodness for laptops, huh? :-)

Tue Aug 18 1998 21:37:48 Eastern US
Sue from IL from 152.163.232.18
She is their youngest on a pump, but I'm told also the fastest to adjust, #'s wise. They couldn't believe how fast her #'s straightened out.

Tue Aug 18 1998 21:37:52 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
I butted heads for 2 years.But, when Travis was taking 160 units of insulin a day, he finally conceded.

Tue Aug 18 1998 21:38:03 Eastern US
Linda/So. Utah from 207.49.61.17
When I get all of our story and fight together Betty I'll let you know! Our doc had only given one other pump and that was several years ago! He's d also and doesn't think that 6-10 shots a day is a problem

Tue Aug 18 1998 21:38:06 Eastern US
Mary from Ma. from 205.188.193.58
LOL, lisa...renee, that must be some lap!

Tue Aug 18 1998 21:38:10 Eastern US
Sue from IL from 152.163.232.18
Lisa's the one who had to fight!

Tue Aug 18 1998 21:38:22 Eastern US
Renee from 152.163.197.179
This vacation has been SOOOOO much easier with Melissa's pump..going into 10th grade BTW..does tat make me the Senior citizan here?

Tue Aug 18 1998 21:39:03 Eastern US
Mary from Ma. from 205.188.193.58
betty, we had to change endos to get a pump...our old edo wouldn't even consider it..

Tue Aug 18 1998 21:39:14 Eastern US
Linda/So. Utah from 207.49.61.17
uh no...my oldest is 26 and Kim is the youngest at 10...but you have had more d experience!

Tue Aug 18 1998 21:39:16 Eastern US
Sue from IL from 152.163.232.18
What??? 6 - 10 a day? Total human pin cushion, huh?

Tue Aug 18 1998 21:39:40 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
HI Sue, how are you?

Tue Aug 18 1998 21:40:00 Eastern US
Mary from Ma. from 205.188.193.58
renee, what section of Massachusetts are you vacationing in?

Tue Aug 18 1998 21:40:04 Eastern US
Renee from 152.163.197.179
And her bgs have been really good! Must be all the exercise we're getting walking arond thesecollege campuses! I do NOT miss hassling with insulin bottles & syringes & watching clocks!!!....

Tue Aug 18 1998 21:40:07 Eastern US
Sue from IL from 152.163.232.18
Doing good Lisa! And you? How's the pumping going?

Tue Aug 18 1998 21:40:34 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Mary,can you believe there are only 4 ped. endos. in phoenix and I already dealt with the first three when Travis was dx. in 90.

Tue Aug 18 1998 21:41:09 Eastern US
Linda/So. Utah from 207.49.61.17
he's happy and in control--that's great for him BUT I'm really happy that he let Kim try a pump now

Tue Aug 18 1998 21:41:43 Eastern US
Sue from IL from 152.163.232.18
Lisa, whatever became of your friend, looking into going to Amy's endo? Never heard if she did or not.......

Tue Aug 18 1998 21:42:00 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.52
We are still waiting for Marisa's endo to return our calls of June 8 giving us the go-ahead with the pump--- Needless to say, we went without him. I wish he would return that call someday-- I'd like to CHAT with him about how well she is doing.

Tue Aug 18 1998 21:42:02 Eastern US
Mary from Ma. from 205.188.193.58
yes, betty, i can beleive it...this is our third endo...

Tue Aug 18 1998 21:42:18 Eastern US
Renee from 152.163.197.179
Mary - we're in Northampton- looking at Amherst tomorro & then heading to Boston...Melissa was low today, but just gave her some candy I had in my purse....A mom of a new pumper asked me last week if it was normal for her to "almost" feel like her child WASN'T D anymore compared to what she used to deal with!! LOL

Tue Aug 18 1998 21:42:28 Eastern US
MarciaIL from 206.150.123.104
Hi all :-)

Tue Aug 18 1998 21:42:58 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Sue, Laura is waiting for someone to call someone else, but they are wanting to take their daughter there. They had her files transfered.

Tue Aug 18 1998 21:43:25 Eastern US
Linda/So. Utah from 207.49.61.17
We "feel so normal" that we've forgotten a couple of boluses! Oops!

Tue Aug 18 1998 21:44:19 Eastern US
Renee from 152.163.197.179
Betty - how old is Travis? We switched Melissa to an adult endo when sh was 13 & went on the pump..Had to BEG him to take her though!...Now the ped endos are putting more kids on pumps..she was the 10th one 2 1/2 yrs ago at Phila's ain Children's Hospital

Tue Aug 18 1998 21:44:21 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
In Jan of this year, Travis spent 11 days in a care facility so they could monitor him closely.
During that time he was on an insulin drip and taking injections for his meals. The drip was keeping him out of dka, but the injections were not lowering his blood sugars. He finally realized that his skins cells were destroying the insulin before it was reaching the blood stream. So he finally consented and we are all doing great!

Tue Aug 18 1998 21:44:37 Eastern US
Mary from Ma. from 205.188.193.58
so renee..IS it normal....been feeling pretty "normal" here the last few days LOL

Tue Aug 18 1998 21:44:45 Eastern US
Sue from IL from 152.163.232.18
Hi Marcia :-)
Renee, I feel that way more and more each day! But, I also know Amy does too, which is good and bad. She has left the house at times w/o glucose tabs or any sugar whatsoever, and today, she forgot her meter! She is feeling so much better, that it isn't in her mind as much.

Tue Aug 18 1998 21:44:47 Eastern US
Linda/So. Utah from 207.49.61.17
Renee I've surely appreciated all of the information you've given us about early kidney disease. Have more endos been testing more thoroughly?

Tue Aug 18 1998 21:45:33 Eastern US
Renee from 152.163.197.179
did we lose Ellen?

Tue Aug 18 1998 21:46:02 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Travis is 15 and our ped. endo's first pumper. He is now a believer!

Tue Aug 18 1998 21:46:22 Eastern US
Linda/So. Utah from 207.49.61.17
I think Ellen left for a few minutes to change basal rates for tomorrow

Tue Aug 18 1998 21:47:13 Eastern US
Sue from IL from 152.163.232.18
Guess the D isn't as easy to change basals as the MM, huh?? hehe - just kidding all you D users!

Tue Aug 18 1998 21:47:27 Eastern US
Renee from 152.163.197.179
you're sooooo right Sue..Melissa too but I prefer to focus on the GOOD aspects...ultimately she has to be responsible for herself...she'll be able to drive in 109 days ( can you tell she's counting!)...Thanks Linda...I hope they're chekcing but I doubt it...medical community is SOOOOO conservative...

Tue Aug 18 1998 21:48:31 Eastern US
Sue from IL from 152.163.232.18
Our 'local' family dr. doesn't have any patients on a pump, so MM came in a did an in-service with him and his 2 main nurses. He's still on the fence tho. We hope to push him off that fence with Amy's next A1c!!

Tue Aug 18 1998 21:48:58 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.23
Any other D users beside Zachary and Marisa?

Tue Aug 18 1998 21:49:11 Eastern US
Linda/So. Utah from 207.49.61.17
I made up a couple of log books from the info off the pumpers page...I can hardly wait to see what my endo has to say. I've been trying to keep the information in a huge 9x13 note book. This log book is soo much better

Tue Aug 18 1998 21:49:53 Eastern US
Renee from 152.163.197.179
I even suggested to Minimed's head guy in person at the JDF conference that they gather some of these great pumper kids & bring them to an endo convention so these docs could hear it first hand, but he said it woldn't matter...they've heard it all & those that are too stubborn to listen wouldn't be any more impressed by a group presentation....too bad...I'm sure you'd all agree with me that my daughter is NOT the same child she was with erratic bgs....

Tue Aug 18 1998 21:50:11 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Sue, how does a 5.6 A1c sound after 3 months on the pump? Better than that 10,6 we had last November!

Tue Aug 18 1998 21:50:42 Eastern US
Sue from IL from 152.163.232.18
Amy is learning from her mistakes. Not taking her meter today to the mall, she had to guess her bg, and bolus for her meal, that was AFTER she felt really low and had to go to Walgreens and buy glucose tabs with her own $$. She is responsible, but still, only 12. Sometimes I feel I put too much of the responsibility on her.........

Tue Aug 18 1998 21:50:49 Eastern US
Linda/So. Utah from 207.49.61.17
hehehe, now I know that the stubborness is age related not d related! LOL

Tue Aug 18 1998 21:51:09 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Betty thats GREAT!!!
We use a log book made by home medical supplies.

Tue Aug 18 1998 21:51:31 Eastern US
Renee from 152.163.197.202
sorry...couldn't get back in

Tue Aug 18 1998 21:52:14 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Spencer left the house the other day with his tabs, meter, strips and NO lancet. LOL!!

Tue Aug 18 1998 21:52:23 Eastern US
Sue from IL from 152.163.232.18
Betty, that sounds fantastic! Good work! I'm afraid Amy's won't be that good, still likes to bounce. For2 weeks after vacation, her average was 107. Now it's jumped up to 151.

Tue Aug 18 1998 21:52:36 Eastern US
Renee from 152.163.197.202
Betty - that's AMAZING!!!...everyone else feel their child is NOT the same child they knew on MDI with erratic bgs?

Tue Aug 18 1998 21:52:39 Eastern US
Linda/So. Utah from 207.49.61.17
been there, done that, Lisa

Tue Aug 18 1998 21:53:09 Eastern US
Sue from IL from 152.163.232.18
Lisa, so, did you just stab his finger with a knife or what? hehe

Tue Aug 18 1998 21:53:34 Eastern US
Linda/So. Utah from 207.49.61.17
We're having the same problem Sue...I've got to get some numbers together to fax to the doc tonight...the doc and team will meet tomorrow to go over them

Tue Aug 18 1998 21:53:55 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Renee, its nice to have a NICE little boy again. No more mood swings.

Tue Aug 18 1998 21:53:59 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
It is like this kid has a second chance at a happy healthy life.

Tue Aug 18 1998 21:54:30 Eastern US
Renee from 152.163.197.202
after 2 1/2 yrs our record keeping is almost non-existent..recently started tracking just bgs at least..that is, I'M doing it...not an unusual teenaged scenario I've heard....

Tue Aug 18 1998 21:54:34 Eastern US
Linda/So. Utah from 207.49.61.17
I'm actually more comfortable with the CDE than with the Doc...she has much more information...I wish these numbers looked better for the last 2 weeks! There have been a couple of good days but everything is just bouncing!

Tue Aug 18 1998 21:54:36 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Did any of you think about asking the dr. if he has an e-mail address you can sent bs to everyday?

Tue Aug 18 1998 21:54:37 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
He didn't test while he was gone, only a couple of hours.

Tue Aug 18 1998 21:54:58 Eastern US
Sue from IL from 152.163.232.18
Renee, I always wondered, for the last 2 years, where this youngest child of mine came from. Now I know - it was the d. At 1st, I admit, I was skeptical. But she is the sweetest little thing I ever knew!! And moody? Barely, anymore!!! Of course, now it's time for the hormones!! She even gets along better with her brother! That's the best!

Tue Aug 18 1998 21:55:30 Eastern US
Renee from 152.163.197.202
anyone have any specific schol-ralted questions I could help with? (assuming I'm elder stateswoman for now?)

Tue Aug 18 1998 21:56:04 Eastern US
Linda/So. Utah from 207.49.61.17
where did I read just recently that if kids have to take total responsibility too soon, they are more likely to suffer from depression...I decided I could be a secretary

Tue Aug 18 1998 21:56:43 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Is anyone else doing a 504 plan this year?

Tue Aug 18 1998 21:57:01 Eastern US
Renee from 152.163.197.202
sorry about all the typos..not used to this computer...Melissa's much less in the "woe is me" frame of mind..& yes, she too gets along better now with her sister...

Tue Aug 18 1998 21:57:08 Eastern US
Sue from IL from 152.163.232.18
Yes Betty - ours doesn't. And it's long distance for us to call. We haven't needed to, since about 3 weeks after start up. I do think we will do a few nights of 2 hour checks, just to fine tune again. She is waking with #'s in the 200's, and raising the basal hasn't helped. She may be going low.

Tue Aug 18 1998 21:57:13 Eastern US
Linda/So. Utah from 207.49.61.17
I don't think he wanted so really see the numbers al that often! But I do need to send them up weekly...it has been a couple of weeks

Tue Aug 18 1998 21:57:16 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
We are for two high schoolers

Tue Aug 18 1998 21:57:52 Eastern US
Linda/So. Utah from 207.49.61.17
We have done sickness with ketones and then a site infection! I think that the infeciton finally left because the numbers are so much better

Tue Aug 18 1998 21:58:14 Eastern US
Renee from 152.163.197.202
Linda - almost ANY study can be "slanted" negatively....I prefer to think it makes them more mature, responsible & sensitive to others' struggles in life in general

Tue Aug 18 1998 21:58:15 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Betty, what kind of things are you asking for in it?

Tue Aug 18 1998 21:58:47 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Linda, I liked thee-mail simply for the fact it was easier to e-amil him instead of going through the office and hanging around a phone to get a response.

Tue Aug 18 1998 21:59:17 Eastern US
Renee from 152.163.197.202
Sue..could very easily be hormonal influences on Amy too

Tue Aug 18 1998 22:00:53 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Three classes at school, three classes on homebound. That way if they miss too much the homebound teacher will make sure they do not get behind. A perminent pass to use the bathroom and go to the nurses office whenever they need to, to carry their meters with them so they don't have to leave class to check their bs. and to carry their snacks with them.

Tue Aug 18 1998 22:01:03 Eastern US
Sue from IL from 152.163.232.18
Yes Renee, it could. So, how do you adjust for that? Adjust up until it's under control, and then re-adjust when the #'s start going low again?

Tue Aug 18 1998 22:02:13 Eastern US
Sue from IL from 152.163.232.18
Renee, does Melissa carry everything with her? I just assume Amy would, since she is so used to carrying a mini back pack anyway.

Tue Aug 18 1998 22:03:47 Eastern US
Linda/So. Utah from 207.49.61.17
I need to run but I've sure enjoyed this chat (Kim carries her stuff in a fanny pack)

Tue Aug 18 1998 22:04:23 Eastern US
Sue from IL from 152.163.232.18
My concern is this - other kids (you know, the im-mature boys!) who take her pack and play keep away with it. This happened time and time again at church youth functions until I finally told the youth minister that all 3 kids would have to quit coming if we could not make the boys understand that this was not a toy - things in it could save her life! I don't think it will happen at school, since she's very open with all the kids she knows, but it does still concern me.

Tue Aug 18 1998 22:05:07 Eastern US
Sue from IL from 152.163.232.18
Goodnight Linda - good luck with the school year. :-)

Tue Aug 18 1998 22:05:15 Eastern US
Renee from 152.163.197.202
IDEALLY the pump should make the kids' days much easier than MDIs...I just caution everyone NOT to assume the school will comply with your requests even with a 504...Imperative to have a "backup plan"...Melissa carries a Novopen with HUmalog cartridge in her meter case (clips on) in the event of unexplained high bgs

Tue Aug 18 1998 22:06:57 Eastern US
Sue from IL from 152.163.232.18
Does she carry this all over school with her? I don't think our school would allow that.....

Tue Aug 18 1998 22:07:27 Eastern US
Sue from IL from 152.163.232.18
A syringe I mean. Meter, yes, syringe and insulin, no

Tue Aug 18 1998 22:07:27 Eastern US
Renee from 152.163.197.202
valid concerns Sue...Melissa carries a meter in her book bag..checks at the nurse before lunch because she's been doing that for 5 yrs now & they're "buddies"..but she'll check more randomly now I've noticed...so much of this is "maturity" level as far as comfort around peers

Tue Aug 18 1998 22:08:50 Eastern US
Renee from 152.163.197.202
The insulin pen is soooo surreptitious I can't imagine anyone could complain about it (sure they could-LOL)..haven't used syringes in months...

Tue Aug 18 1998 22:09:40 Eastern US
Renee from 152.163.197.202
Betty & Lisa still here?>

Tue Aug 18 1998 22:10:20 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
I'm still here.

Tue Aug 18 1998 22:11:09 Eastern US
Sue from IL from 152.163.232.51
I know what you mean Renee. Amy is really wanting to test on her way to lunch, or in the classroom before lunch, so she will be with her friends. She used to test in the classroom, but then went through a 'phase' of 'fudging' the #'s, so changed to testing in the nurses office. She doesn't want to do that this year, and I can't say I blame her. She wants to be like everyone else, or as close as possible. Plus, she is 'buddies' with the nurse here too, and tends to spend just a bit too much time, chit chatting with her!

Tue Aug 18 1998 22:11:38 Eastern US
Renee from 152.163.197.202
Will Spencer's dad have any involvement at school? Will they automatically call you Lisa if there's a problem?

Tue Aug 18 1998 22:11:50 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
yes, still here

Tue Aug 18 1998 22:12:02 Eastern US
Sue from IL from 152.163.232.51
With the Novopen, do you choose the dose, or is it a set dose?

Tue Aug 18 1998 22:13:03 Eastern US
Renee from 152.163.197.202
Don't underestimate the social impact of NOT getting to the cafeteria in time to have a seat with your friends!! At this age, THAT is much more impt than checking bgs - unfortunately!!

Tue Aug 18 1998 22:13:31 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Spencer's Dad has NEVER had anything to do with his school. Yes, I have had kids at this school for the past 5 years. The secretary is wonderful. I also have a lot of daycare kids there and they call me about them also.

Tue Aug 18 1998 22:14:08 Eastern US
Renee from 152.163.197.202
you choose...cartridge can stay in one month after it's opened..we change it the first of the month...some months it's almost never used

Tue Aug 18 1998 22:14:57 Eastern US
Sue from IL from 152.163.232.51
But with all the problems you've had with him lately Lisa, he won't try to cause more with the school, will he?

Tue Aug 18 1998 22:15:01 Eastern US
Renee from 152.163.197.202
good Lisa..one less worry!!...Betty, how long has Travis been pumping?

Tue Aug 18 1998 22:15:09 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
This year Travis is carrying his meter with him and checking his bs in between classes

Tue Aug 18 1998 22:15:14 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.57
And Renee, when does she use it?

Tue Aug 18 1998 22:15:32 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
He has been pumping since Jan98

Tue Aug 18 1998 22:16:15 Eastern US
Sue from IL from 152.163.232.51
Renee - cost? We have never used a syringe since pumping, so if it's expensive and wasted each month...........
But then, we would have to change the bottle of insulin each month also........

Tue Aug 18 1998 22:16:29 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Sue, he has never shown any interest in school. Who knows maybe this will be his year to be a pain in the rear in that case too.

Tue Aug 18 1998 22:18:21 Eastern US
Sue from IL from 152.163.232.51
We will hope NOT Lisa!!

Tue Aug 18 1998 22:19:12 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
I used to do all the dr. visits, ER visits and school visits until one day I had enough... and made my husband do it

Tue Aug 18 1998 22:19:32 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
Thanks Sue.

Tue Aug 18 1998 22:19:46 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
It opened his eyes to what all I was having to deal with.

Tue Aug 18 1998 22:19:48 Eastern US
Renee from 152.163.197.202
Hi Connie..only if she's very high & thinks there could b a pump problem..gives enough to bring her back down into range until she gets home or wherever..has only done a set change at school once..Had a lot more problems with Sofsets kinking..Silhouettes seem to have ended that issue...the cartridge is covered by insurance like regular insulin bottles..the pen's come with "coupons"..forget the initial cost....

Tue Aug 18 1998 22:20:58 Eastern US
Renee from 152.163.197.202
Good for you Betty!! Ellen & I had a good laugh (on-line) one day when we both related having our husbands ask us what IDDM was, after all these years of our kids having D!!!!

Tue Aug 18 1998 22:21:20 Eastern US
Lisa D. (Spencer's Mom) from 206.155.90.46
The silhouetts are great.

Tue Aug 18 1998 22:22:01 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
I don't know why I had to have all the stress... you should see him now!

Tue Aug 18 1998 22:22:17 Eastern US
Renee from 152.163.197.202
The insulin pen makes ME feel better..since it clips inside her meter case & since (theoretically) she always carries a meter, then I know there's always insulin available IF there's a site problem or if she runs out of insulin (happened once in 30 months)

Tue Aug 18 1998 22:23:39 Eastern US
Renee from 152.163.197.202
Just got an e-mail from an adult pumper whose first post-pump A1C is a 7.7..down from 11-14 range!!!

Tue Aug 18 1998 22:26:21 Eastern US
Renee from 152.163.197.202
ok - time to go..glad I got a chance to join in....hope all your kids school year is a lot easier with the pump!

Tue Aug 18 1998 22:28:45 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.33
I have to talk to Marisa's "special " teachers tomorrow--- art, music, PE, etc.Then on Friday my husband and I will have a session with her primary classroom teacher . I don't know about you folks, but I really dread these sessions.

Tue Aug 18 1998 22:28:56 Eastern US
betty beard (blake@inficad.com) from 208.198.101.109
Thanks everyone, time to go, too. Good luck to all of you!

Tue Aug 18 1998 22:29:53 Eastern US
Connie (Cocon5@aol.com) from 205.188.196.33
Thanks for joining us Renee and Betty--- good nite!

Tue Aug 18 1998 22:33:17 Eastern US
Sue from IL from 152.163.232.51
Just got an IM from RC Space - he and his wife Carol just had their twins!!!!! A boy and a girl, all are doing just fine!!! Their son Cruz is 6, dx'd last June I believe.

Tue Aug 18 1998 22:38:29 Eastern US
Jan Irby (Jirby2@AOL.COM) from 152.163.213.177
I guess I am really lucky-my son tested in class
and no one ever said a work to him about it.



                 
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