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  Back to Chat School Chat with Steph Schwartz
Thu Jul 6 2000 20:45:47 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
The special chat about school and diabetes with Diabetes Nurse Specialist Steph Schwartz will begin at 9:00 pm Eastern.

Thu Jul 6 2000 20:49:35 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
Hey there

Thu Jul 6 2000 20:50:53 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Hi Steph. I'll let parents know that you're here.

Thu Jul 6 2000 20:52:26 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
hello.

Thu Jul 6 2000 20:53:20 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Good evening Wendy.

Thu Jul 6 2000 20:53:24 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
The recent poll of our membership showed that people are not satisfied with care of their children while at school. The purpose of this evening's chat is to try to pinpoint what the issues are. In addition, we have forms and a school manual on-line now for your use. I hope that you have reviwed them so that you can assist us in providing an additional materials you need. Thanks for coming.

Thu Jul 6 2000 20:53:49 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
Hi Wendy

Thu Jul 6 2000 20:54:35 Eastern US
Liz (Laura, age 4, dx Oct 99) from 24.42.111.181
Hello

Thu Jul 6 2000 20:54:55 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Steph, the poll you mentioned can be found at:
http://www.childrenwithdiabetes.com/poll/poll20000507.htm

Thu Jul 6 2000 20:55:27 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
Hello Liz

Thu Jul 6 2000 20:55:55 Eastern US
Liz (Laura, age 4, dx Oct 99) from 24.42.111.181
Steph, the school manual... is that the "Information for Teachers" on this website?

Thu Jul 6 2000 20:56:23 Eastern US
Sherri (Keisha,4,dx'd 5/00) from 208.186.35.251
Hello all

Thu Jul 6 2000 20:56:54 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
Hi. I'm pretty satisfied with my daughter's care at school because she does most of it. She has a 504 and an aide for P.E. because of the amount of kids out there at once with one person. My question is for a friend. Her son is 5 and will be starting kindergarten this fall. He doesn't do any testing or anything by himself. Could he get an aide to assist him in doing this and learning how to do it and learn more about himself in the school setting. Is this warranted under the 504?

Thu Jul 6 2000 20:57:04 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Liz, we have a large collection of content about diabetes at school, beginning at:
http://www.childrenwithdiabetes.com/d_0q_000.htm

Steph wrote a complete "Diabetes Management at School" guide, which begins at:
http://www.childrenwithdiabetes.com/d_0q_500.htm

Thu Jul 6 2000 20:57:47 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
It's called, " Diabetes Management at School"

Thu Jul 6 2000 20:58:58 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Wendy: I've never heard of a special aide for a child with diabetes. Steph, have you?

Thu Jul 6 2000 20:59:28 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
yes -- when your friend meets with the school to devlop the 504 plan, they should identify who will be responsible for checking blood sugars, etc. Ideally, more than 1 person is trained

Thu Jul 6 2000 20:59:52 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
When we went to camp last year, a couple of parents had aides for their kids up to 2nd grade.

Thu Jul 6 2000 21:00:30 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
Hello

Thu Jul 6 2000 21:00:43 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Good evening San. Welcome to the School Chat.

Thu Jul 6 2000 21:00:57 Eastern US
Liz (Laura, age 4, dx Oct 99) from 24.42.111.181
Hi San

Thu Jul 6 2000 21:01:03 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
So that could be a special one on one aide just for him if that is what she wants. She says she will hold off sending him to kindergarten if she can't be assured that he could have one.

Thu Jul 6 2000 21:01:35 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
there is not a special "aide" rather someone needs to be identified to help him. According to the law, everyone who interacts with that child is responsible for assuring the 504 is carried out.

Thu Jul 6 2000 21:01:46 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
discreetly @ Liz

Thu Jul 6 2000 21:02:41 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
San, does Colleen start school in the fall?

Thu Jul 6 2000 21:03:28 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
No not eligible for K until 2001

Thu Jul 6 2000 21:03:35 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
So they wouldn't have to hire a special aid just to do that. That is what she wants. I don't want her to keep him from going to school because of his diabetes. This is my last question. Sorry for clogging it up.

Thu Jul 6 2000 21:04:09 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
San, does she go to day care yet or are you just getting a jump ahead. Smart idea.

Thu Jul 6 2000 21:04:19 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
We've been fortunate to have schools that have been very helpful with Marissa.

Thu Jul 6 2000 21:04:35 Eastern US
Liz (Laura, age 4, dx Oct 99) from 24.42.111.181
Last year Laura was in "Junior Kindergarten". I tried to train the teacher myself, but the teacher never really grasped the basics of diabetes. Now I am anxious about training a new teacher.

Thu Jul 6 2000 21:04:37 Eastern US
Jen (Mom of Chelsea, 8, dx'd 1 yr ago this week) from 169.207.95.14
Hi. I, too, am very satisfied with the care Chelsea has received at school. We have a wonderful full-time health room worker who is very familiar with diabetes (her dad has it). Luckily for me, too, Chelsea does most of the care herself. What I'd like to know is whether anyone has a good way to have school communicate lunchtime bg readings to me and then me communicate insulin needs back to them--Chelsea is on MDI and takes Humalog at lunch. Last year I spent most of my days tied to the phone, and was wondering if anybody allowed school personnel to help determine insulin doses.

Thu Jul 6 2000 21:04:49 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
The major day care chains are all falling in line with diabetes care, as a result of the ADA lawsuit against KinderKare.

Thu Jul 6 2000 21:04:50 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
no they don't need to hire a special aide. I guess they might if a doctor's order says so.

Thu Jul 6 2000 21:05:11 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I approached school re preschool and they were not helpful so I figure I have a lot to learn before I give her to others to care for

Thu Jul 6 2000 21:05:28 Eastern US
Susan (Gregory, 11, dx'd at 2 yrs) from 209.53.81.49
Are we just talking U.S. or does this apply to Canada?

Thu Jul 6 2000 21:05:55 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Jen: Good question. Marissa wears a pump, and Brenda writes her lunch-time bolus on her lunch bag each day. Buying lunch is a challenge, but Marissa was generally good about remembering to bolus.

Thu Jul 6 2000 21:06:20 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Susan: I'm unfamiliar with Canadian laws regarding diabetes care in schools. Are you from Canada?

Thu Jul 6 2000 21:06:25 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
Liz it might be helpful if someone from your diabates team will help you. Or --- we link to several books and videos that are excellent.

Thu Jul 6 2000 21:06:49 Eastern US
Mich (mom of Adam 6 dx'd 5 months ago) from 24.18.142.149
This will be my son's first time in school all day & I am looking into an insulin pump, I know the school is going to give me grief.

Thu Jul 6 2000 21:07:40 Eastern US
Liz (Laura, age 4, dx Oct 99) from 24.42.111.181
A video might be a good idea. Can you recommend a good one?

Thu Jul 6 2000 21:07:45 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
Minimed has a new publication --"Pumping at School" that is a bit overwhelming but thorough

Thu Jul 6 2000 21:07:49 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
My son just completed K and had an IEP for SID and it is paving the way for my learning but I have been told well she "only has diabetes" ....ouch

Thu Jul 6 2000 21:08:02 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
Some kids are ready to try and figure there doses by themselves if they have help from a very knowledgable health clerk. That's what Elyssa does. That is one setback at our Elementary school is that the health clerk is only there for 3 or 4 hours.

Thu Jul 6 2000 21:08:06 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Liz: Do you mean a video for the teacher and school staff?

Thu Jul 6 2000 21:08:25 Eastern US
Jen (Mom of Chelsea, 8, dx'd 1 yr ago this week) from 169.207.95.14
Jeff, you bring up my second question: We're considering a pump, hopefully, sometime within the next year. Do you have any good resources for helping school personnel learn about the pump? Did you find that Marissa needed help with bolusing when she was at school?

Thu Jul 6 2000 21:08:32 Eastern US
Liz (Laura, age 4, dx Oct 99) from 24.42.111.181
Jeff: Yes

Thu Jul 6 2000 21:08:40 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
The International Diabetes Center in Minneapolis has a good one

Thu Jul 6 2000 21:08:47 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Liz: I like "It's Time to Learn About Diabetes":
http://www.childrenwithdiabetes.com/d_06_a00.htm#learnabout

There's a book and video.

Thu Jul 6 2000 21:09:03 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I was told "she ONLY has diabetes" so I think it is not going to be easy for IEP

Thu Jul 6 2000 21:09:35 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
San: Them's fighting words!

Thu Jul 6 2000 21:10:08 Eastern US
Susan (Gregory, 11, dx'd at 2 yrs) from 209.53.81.49
yes - we're from Canada - I believe CDA is working on a position statement about Children in School but not adopted yet. We don't seem to get much support at the moment.

Thu Jul 6 2000 21:10:21 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
children with diabetes are covered under 504 because diabtes limits major life activities unless taken care of properly

Thu Jul 6 2000 21:10:40 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Jen: Marissa starting pumping when she was 11 and was able to pick up bolusing quite easily. If Chelsea can count up carbs and divide by her insulin-to-carb ratio, she can handle the pump at school by herself (in my opinion).

Thu Jul 6 2000 21:11:08 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
I agree.

Thu Jul 6 2000 21:11:42 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
"it's Time to Learn about Diabetes" is an excellent way to help the child with diabets explain things to classmates. It works from about 2nd Grade up.

Thu Jul 6 2000 21:11:46 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
Of all people it was said my a Master Teacher giving a seminar on inclusion...she had a phd, doctorate etc. and I enlightened a little regarding diabetes and the effects on cognitive thinking ie like my daughter not recognising me or being able to speak.. Her chin dropped...

Thu Jul 6 2000 21:12:09 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
Elyssa counts her carbs and takes 1 unit for every 15 grms of carbs she eats. It's very easy.

Thu Jul 6 2000 21:12:19 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
I agree completely too Jeff

Thu Jul 6 2000 21:13:29 Eastern US
Jen (Mom of Chelsea, 8, dx'd 1 yr ago this week) from 169.207.95.14
Jeff and Wendy: Thanks for your input. I have to say that this website's information on Diabetes at School was wonderful! I took copies of most of the pages into school last year, and even though I wasn't necessarily sure about what I was doing, I at least looked like I did and nobody gave me any grief. Thank you!

Thu Jul 6 2000 21:13:52 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I would love to see Colleen pumping next yr she will need supervision and the callulations done but I think it would be ideal.

Thu Jul 6 2000 21:14:38 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
i have noticed in our support group that the parents who at least seem to know what they are talking about get less grief from the school than those who do whatever the school tells them to do.

Thu Jul 6 2000 21:14:51 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I will probably be hiding in her backpack anyway, LOL

Thu Jul 6 2000 21:15:33 Eastern US
Liz (Laura, age 4, dx Oct 99) from 24.42.111.181
San: LOL!

Thu Jul 6 2000 21:15:54 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I think the schools are confused by H or am I making an assumptions?

Thu Jul 6 2000 21:15:56 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Sending a child with diabetes off to school for the first time is very stressful for parents.

Thu Jul 6 2000 21:16:15 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
Pumps when you aren't familiar with them seem really complicated but they really aren't once you get the hang of them. Diabetes is really the Thinking Person's disease and these kids catch on so well. They should all be in honors math classes.

Thu Jul 6 2000 21:16:37 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I know a few older D kids that are still on 2 shots of N and R and don't even test at our schools

Thu Jul 6 2000 21:16:40 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
what seems to confuse them?

Thu Jul 6 2000 21:16:56 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
That's scary

Thu Jul 6 2000 21:16:59 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Having diabetes helped Marissa master fractions and decimals before first grade. She's always been a wiz at math since.

Thu Jul 6 2000 21:18:32 Eastern US
Liz (Laura, age 4, dx Oct 99) from 24.42.111.181
San: That is similar to our school. There is one boy with D, and he does not test at lunch. Laura will be clearing new ground.

Thu Jul 6 2000 21:18:39 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
when I introduced Colleens regime of 3 to 4 injections they told me oh she's that serious.....so needless to say it wasn't to encouraging

Thu Jul 6 2000 21:19:29 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
San: Marissa has a Humalog pen at school in case of problems with her pump. While I like to think that the nurse knows one insulin from another, I think she really just knows that if Marissa needs a shot, it's from the pen in her box.

Thu Jul 6 2000 21:19:41 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
It's crazy. We're trying to achieve tight control and they're trying to tell us our children are really sick.

Thu Jul 6 2000 21:20:13 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
There's a lot of misinformation out there about diabetes. You guys need to direct school personnel to our website. Maybe we can help.

Thu Jul 6 2000 21:21:08 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
they did not understand the use of shorter acting insulins, I don't think they have updated the changes in treatment options for diabetic children

Thu Jul 6 2000 21:21:12 Eastern US
Sherri (Keisha,4,dx'd 5/00) from 208.186.35.251
The nurses at our diabetes center also go to schools and teach so maybe someone in your area will go to the school and teach

Thu Jul 6 2000 21:21:12 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Steph, in your experience, is one area of diabetes care more difficult at school than any other?

Thu Jul 6 2000 21:21:15 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
If we can find enough willing school personell we could do a chat for them

Thu Jul 6 2000 21:21:57 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
School nurses seem to be deathly afraid of high blood sugars for some reason or another.

Thu Jul 6 2000 21:22:15 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Steph: great idea! We schedule a special "School Staff Chat" right around the beginning of school.

Thu Jul 6 2000 21:22:29 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
The lunch duty aides at my daughters school try to force her to eat lunch at a ridiculous time of 10:50 am when she knows when she needs to eat. They are going to give her an eating disorder.

Thu Jul 6 2000 21:23:11 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
YES I agree thousands of pages of information how can they not be impressed! I am going to require some proof of their efforts to update. Maybe Jeff, in all your spare time LOL you should make up a test for educators and they have to get a passing grade

Thu Jul 6 2000 21:23:36 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Wendy: We've had difficulties with lunch times too, because the schools here are so crowded (lots of growth)

Thu Jul 6 2000 21:24:11 Eastern US
Jen (Mom of Chelsea, 8, dx'd 1 yr ago this week) from 169.207.95.14
I agree, Steph. I think we have to remember, too, that while it's frightening for us to send our kids into the care of someone else, the school personnel are scared, too, because they are dealing not just with our kids, but with a whole lot of kids. Frankly, a year ago I'd have found it very scary to help manage the diabetes of someone else's child. Even now, it's scary to manage Chelsea's D.

Thu Jul 6 2000 21:24:21 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
San: Actually, that's not a bad idea -- a "test" for school staff. I imagine something easier, with the answer and a link to a page on the site that answers it. A great idea!

Thu Jul 6 2000 21:24:26 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
Great Idea. The school staff chat would be great. I don't know how well the test would go over. Where are you Jeff?

Thu Jul 6 2000 21:24:51 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
Hello -- Just joining and sure like the idea of a test for the educators

Thu Jul 6 2000 21:24:54 Eastern US
pam (mom of Justin 13 dx jan 99) from 63.95.121.20
HI, everyone, At our School Justins lunch is at 1:00 and they don't change it or let him eat early

Thu Jul 6 2000 21:24:57 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
Nightmare here too. growth has caused so much revamping kids are going to 6 schools instead of 3 or 4 .

Thu Jul 6 2000 21:25:09 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
Yup -- we start letting people know now that we'll be doing it. Perhaps, we could have several sessions during the first few weeks of school at different times of the day to accomodate everyone who wants to participate. I would like preregistration if possible.

Thu Jul 6 2000 21:25:25 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I like that idea Jeff

Thu Jul 6 2000 21:25:28 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Wendy: I live near Cincinnati, Ohio.

For the "test", it would be more a "Challenge Your Knowledge of Diabetes at School" kind of page

Thu Jul 6 2000 21:26:23 Eastern US
Jen (Mom of Chelsea, 8, dx'd 1 yr ago this week) from 169.207.95.14
I think that the LifeScan website already has a kind of basic diabetes quiz. Or maybe it was the ADA site.

Thu Jul 6 2000 21:26:25 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
Jeff, I live in Columbus, but just changed to an endo in Cincinnati - partly to get help with school related issues

Thu Jul 6 2000 21:26:43 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
Some of our schools started today so anytime you could start that it would be great. I'll spread the word at support group and in our newsletter too.

Thu Jul 6 2000 21:26:44 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Steph: We'll definitely set up special chats for educators. We can work on it in the next couple weeks.

Thu Jul 6 2000 21:26:49 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
It can give common scenerios and multiple choice course of action

Thu Jul 6 2000 21:27:42 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Hap2cu55: We've been unimpressed with the team at Cincinnati's Children's Hospital, so we take Marissa to Denver to the Barbara Davis Center. Cincinnati has gotten better in the last couple years though.

Thu Jul 6 2000 21:27:53 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
Send us ideas

Thu Jul 6 2000 21:28:32 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
Columbus wasn't too great either -- they are even down to 1 fulltime and one part time ped endo at the hospital

Thu Jul 6 2000 21:28:40 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I was wondering about infiltrating some of the diabetic software at our schools wonder if I could get it free, games so kids could learn. teachers would have to learn to or they would look silly LOL

Thu Jul 6 2000 21:28:55 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
There is a US-wide shortage of pediatric endocrinologists. It's a serious problem.

Thu Jul 6 2000 21:29:25 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
What is the recommendation for taking academic tests when blood sugars are high or low?

Thu Jul 6 2000 21:29:31 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
San: STARBRIGHT has an excellent, and free, CD-ROM game about diabetes. I'm sure they would send copies to schools. I can call my friend there and ask.

Thu Jul 6 2000 21:30:09 Eastern US
pam (mom of Justin 13 dx jan 99) from 63.95.121.20
In Va where I live we have no endocrinologists.We drive 2 hours for Justin to see his doctor..So I agree there is definately a shortage of doctors and Justins doctors is covering VIrginia, Tennessee and North Carolina

Thu Jul 6 2000 21:30:54 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I live in Marlborough and travel to Waltham am lucky to have NEDEC so close. Yes I think the Starbright was 1 to a customer though....and we don't want to give up ours

Thu Jul 6 2000 21:30:58 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
Do mean like college entrance exams?

Thu Jul 6 2000 21:31:15 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
Hi to STU

Thu Jul 6 2000 21:31:20 Eastern US
Jen (Mom of Chelsea, 8, dx'd 1 yr ago this week) from 169.207.95.14
Do most of your kids test in the classroom or are they required to keep their monitor in the health room? I was wondering about test situations, too, and thought that Chels could just poke before a test IF her monitor could be kept in the classroom.

Thu Jul 6 2000 21:32:03 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
pam: We lived in suburban DC (Maryland) when Marissa was diagnosed and went to DC Childrens. Her endo retired several years ago. Don't know who's taken his place.

Thu Jul 6 2000 21:32:09 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
Hap2:We stated in Elyssa's 504 that she gets to test about 1/2 hour before any standerdized tests so she will have time to either bolus her pump or have a snack and start to feel better. If she doesn't feel better, she gets to take the test when she does.

Thu Jul 6 2000 21:32:13 Eastern US
Love from 209.240.0.17
Hi all. I think the shortage may in part be due to the fact that regular ped's treat their D patients.

Thu Jul 6 2000 21:32:23 Eastern US
pam (mom of Justin 13 dx jan 99) from 63.95.121.20
Is there a video on instruction for treating lows and high blood sugars and what to do that the school could have and go over with all of the teachers so they would be familiar with what to do in case a situation arises. At our school Justin has to go down to the office to test he cant test in the class room

Thu Jul 6 2000 21:32:32 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
Have someone from the school request it

Thu Jul 6 2000 21:32:34 Eastern US
Kathy/Ohio (Tom - 15, dx'd at age 9) from 63.27.69.221
Hello..

Thu Jul 6 2000 21:32:36 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Jen: Marissa is allowed to test in class but prefers to go to the nurses office. (She hated two teachers last year and didn't mind being away.)

Thu Jul 6 2000 21:33:03 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
Pam yes the international Diabetes Center has a good one

Thu Jul 6 2000 21:33:22 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
With the increase of children and technology changes you would think their would be more they have seen this coming .

Thu Jul 6 2000 21:33:55 Eastern US
pam (mom of Justin 13 dx jan 99) from 63.95.121.20
where do you get it or order it and I will and take it to the school and suggest they watch it.

Thu Jul 6 2000 21:34:03 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
Cory is going to middle school this year -- we sort of have permission for him to test in classroom

Thu Jul 6 2000 21:34:12 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
You GO MARISSA smart girl like her parents LOL

Thu Jul 6 2000 21:34:20 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
Elyssa tests in the classroom and I think there was some family recently that sued their school district so they could test in the classroom. I think it was somewhere on CWD.

Thu Jul 6 2000 21:34:40 Eastern US
Kathy/Ohio (Tom - 15, dx'd at age 9) from 63.27.69.221
We take Tom to Children's in Dayton..they do a good job where the school are concerned...will even send their CDE out to talk to your child's school staff PLUS one of the endos dx'd his 3 year old 1 1/2 years ago....so this will make him an even better endo..

Thu Jul 6 2000 21:34:53 Eastern US
Carolyn from 24.27.107.70
whats this chat room mean?

Thu Jul 6 2000 21:35:06 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
from the Inernational Diabetes Center in Minneaopolis. I think Amazon has it as well.

Thu Jul 6 2000 21:35:12 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
cory missed a lot of class time last year with emergency testing and so we are trying to work something out

Thu Jul 6 2000 21:35:52 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Carolyn: We're having a special chat with Diabetes Nurse Specialist Steph Schwartz about diabetes at school.

Thu Jul 6 2000 21:36:07 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
Hap he needs to test in the classroom. They have to let him. Get a 504!

Thu Jul 6 2000 21:36:09 Eastern US
Carolyn from 24.27.107.70
ohhhhhhh

Thu Jul 6 2000 21:36:23 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
get a written policy

Thu Jul 6 2000 21:36:48 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Hap: I agree. Get Cory testing in the classroom.

Thu Jul 6 2000 21:37:18 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
they have denied it but due to that and other problems we got an attorney and are involved in a state review

Thu Jul 6 2000 21:37:36 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
Good for you!

Thu Jul 6 2000 21:37:46 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I am going to encourage our school system to register its policy now they say its individual consideration in each classroom I think they push no testing in classroom as long as they can.

Thu Jul 6 2000 21:38:40 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
they say they are concerned about the blood and sharps

Thu Jul 6 2000 21:38:46 Eastern US
pam (mom of Justin 13 dx jan 99) from 63.95.121.20
Justin will be entering high school next year and if they miss more than 5 days of school they have to take the exams so Justin knows he will have to take the exams..Last year he missed 10 days..

Thu Jul 6 2000 21:39:29 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
I just want to say that if you have a problem with a school and decide not to do something about it because your child isn't going to go there next year or something. Do it anyway. I didn't and now there is a mom in my support group who isn't as outspoken as my daughter and I and now doesn't have those services for her son. So do something.

Thu Jul 6 2000 21:39:36 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I couldn't believe how many schools in MA that were not registered on CWD how long has that been up Jeff

Thu Jul 6 2000 21:39:54 Eastern US
pam (mom of Justin 13 dx jan 99) from 63.95.121.20
does other schools have this policy on missed days

Thu Jul 6 2000 21:40:01 Eastern US
Kathy/Ohio (Tom - 15, dx'd at age 9) from 63.27.69.221
Sometimes the kids don't want to test in the classroom...in elem. school Tom tested in the classroom, but in middle school he wanted to go to the office...didn't want the other kids to see, I guess...I'm sure it had to do with the middle school age thing..

Thu Jul 6 2000 21:40:31 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
Take what exams?

Thu Jul 6 2000 21:41:13 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
San: The schools database has been up about eight months. The data is from the US government.

Thu Jul 6 2000 21:41:15 Eastern US
pam (mom of Justin 13 dx jan 99) from 63.95.121.20
We live in a small town and there is no support group here either..So the only support I get is here on the diabetes center..So I am VERY THANKFUL FOR FINDING EVERYONE>>

Thu Jul 6 2000 21:42:05 Eastern US
Amy from 208.58.193.68
Pam, I'm in VA too with the same exam policy (only its >3 days and you MUST take the exam), I fought the division director of special ed and he gave in. Teh principal refused to, but when I called the superintendent and am like the only one with the special permission..IN my 504!

Thu Jul 6 2000 21:42:06 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
I think that when kids are comfortable testing anywhere, it makes there diabetes easier to handle. I don't want my daughter to not test because her friends are watching and then not do something about a low she didn't know was coming on.

Thu Jul 6 2000 21:42:23 Eastern US
Jen (Mom of Chelsea, 8, dx'd 1 yr ago this week) from 169.207.95.14
How can we access the schools database?

Thu Jul 6 2000 21:42:30 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Pam: I'm glad to hear that CWD has helped you.

Thu Jul 6 2000 21:42:42 Eastern US
pam (mom of Justin 13 dx jan 99) from 63.95.121.20
Wendy his school exams they take at Christmas break and at the end of the year..And their policy is if you dont miss more than 5 days then you dont kave to take the exams but if you miss more than 5 days you have to take the exams

Thu Jul 6 2000 21:42:49 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Schools database:
http://www.childrenwithdiabetes.com/schools/

Thu Jul 6 2000 21:42:52 Eastern US
Charisse (Garrett 15 dx 3/98) from 205.188.197.174
Sorry I missed it What exam?

Thu Jul 6 2000 21:43:02 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
Well I am going to challenge all schools to register information in a Fall news article we are planning

Thu Jul 6 2000 21:43:22 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
In the database are 669 schools that parents report allowing in-classroom testing.

Thu Jul 6 2000 21:43:27 Eastern US
Charisse (Garrett 15 dx 3/98) from 205.188.197.174
Wow here everyone has to take these final exams they call them does not matter one way or another.

Thu Jul 6 2000 21:44:46 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I think it will be a great eyeopener for some of these school systems to come out of the dark ages

Thu Jul 6 2000 21:45:53 Eastern US
Jen (Mom of Chelsea, 8, dx'd 1 yr ago this week) from 169.207.95.14
Have to go re-tuck in my kids. thanks, everyone, for your input and good luck when school starts!

Thu Jul 6 2000 21:45:59 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
We need to get data on more schools. There are 95,000 schools in the database.

Thu Jul 6 2000 21:45:59 Eastern US
carolyn (joy 13 dz'd 3/00) from 216.116.117.120
Hi, interesting topics. I had a mess of a time with Joy's school. she couldn't see well because of the diabetes and the teachers REFUSED to excuse her poor grades because of it. I am going to the district office to get more assistance

Thu Jul 6 2000 21:46:11 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
Cory has taken exams with blood sugars over 300 and under 70 one time he vomitted afterwards and was 40!

Thu Jul 6 2000 21:46:13 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
bye jen

Thu Jul 6 2000 21:46:39 Eastern US
Charisse (Garrett 15 dx 3/98, Maryland) from 205.188.197.174
Truth fully the school nurse at my sons high school said though that there a several diabetics in the school some kids she does not even know about becasue the parents never even contact the school and she finds out by chance

Thu Jul 6 2000 21:47:22 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
Is there anything we're missing in the forms we have on-line?

Thu Jul 6 2000 21:47:26 Eastern US
pam (mom of Justin 13 dx jan 99) from 63.95.121.20
Jeff, It has helped me tremendously .When I thought My world had fell to the bottom when Justin was diagnosed I found people here to help for when first diagnosed you dont know what to do and where to turn but on here I met doctors that were willing to help me with any question I asked and friends that I have met that can never be replaced.

Thu Jul 6 2000 21:47:30 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Charisse: That is a problem. We always let Marissa's teachers know.

Thu Jul 6 2000 21:47:41 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
that's scarey but true I'm sure

Thu Jul 6 2000 21:48:03 Eastern US
wendy86 (elyssa,12,dx'd7,pump10) from 63.20.42.180
Cory definately needs to have a 504 written. Put in there about him testing whenever and whereever he needs to, eat whenever and whereever he needs to and that he will test 1/2 hour before exams. That is just ridiculous.

Thu Jul 6 2000 21:48:21 Eastern US
Charisse (Garrett 15 dx 3/98, Maryland) from 205.188.197.174
Wow our 504 states that Garrett does not have to take tests within two hours ofd a low blood sugar or a high blood sugar although he had a science teacher last year that got an attitude and said that he should leave class then because if he could not take the test he could not particiapte in class.

Thu Jul 6 2000 21:49:44 Eastern US
carolyn (joy 13 dz'd 3/00) from 216.116.117.120
HI Jeff, YOu are spoken very highly at Childrens Hospital of Orange here in Calif. We had a Diabetes Fun Fair last month and alot of parents got to find out for the first time about this web site. You have been a life saver for so many of us by founding this site.

Thu Jul 6 2000 21:49:51 Eastern US
Kathy/Ohio (Tom - 15, dx'd at age 9) from 63.27.69.221
Charisse, our school nurse knew about another diabetic in the bulding and knew she was using an insulin pump...called her Mom and encouraged them to meet with her so she could learn about the pump and they never did...imagine!!

Thu Jul 6 2000 21:49:56 Eastern US
Charisse (Garrett 15 dx 3/98, Maryland) from 205.188.197.174
I can not imagine a parent not going to the school at letting the powers that be at least know of the child diagnosis and what it is about though. I do know the nurse said that the kids that are going to local docs are the ones this tends to happen with.

Thu Jul 6 2000 21:50:11 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Charisse, Brenda here for Jeff who is saying goodnight to our son: why 2 hours? Seems like a long time and that it could mess up his entire day. Does he stay after school to make up tests he has missed?

Thu Jul 6 2000 21:50:22 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
We can't agree on a 504 -- had one when he was first dx'd can't get a new one

Thu Jul 6 2000 21:50:41 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
OK, I'll check the archives for my answer. Jeff is back. BYE

Thu Jul 6 2000 21:50:58 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
Charisse couldn't you just have "slapped him" lol just kidding but you would think a science teacher would have some conception of the complexities

Thu Jul 6 2000 21:51:59 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
the school is required to review a 504 annually

Thu Jul 6 2000 21:52:24 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Steph asked a good question about the forms we have online at:
http://www.childrenwithdiabetes.com/d_0q_500.htm

Does anyone have a suggestion for anything that should be added?

Thu Jul 6 2000 21:52:57 Eastern US
pam (mom of Justin 13 dx jan 99) from 63.95.121.20
I think they review the 504 plan but then the next week forget it for it is not their child..

Thu Jul 6 2000 21:53:23 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
They reviewed and handed me a copy of one they had written without any imput from me - it was very vague and did not cover his needs so I wouldn't sign it.

Thu Jul 6 2000 21:53:47 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
sccording to the law, you and your child are part of the review team

Thu Jul 6 2000 21:54:11 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
At the beginning of school the teacher told me she would not follow it until she decided for herself what he needed -- is that legal?

Thu Jul 6 2000 21:54:55 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
no it is not Jeff please post the links to the websites I gave you today

Thu Jul 6 2000 21:55:40 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
there are several good webistes about 504 plans on-line

Thu Jul 6 2000 21:55:52 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
I found the pictures of symptoms very helpful on the Novo site for younger children to learn Cute Ziggy character getting all sweaty etc. It also has pictures of how to treat the symptoms ie insulin or milk and a sandwich. I keep it on the fridge but plan on using it at school. For Hypo & Hyper signs &symptoms and treatments...just a thought for the tots and little ones

Thu Jul 6 2000 21:55:52 Eastern US
Charisse (Garrett 15 dx 3/98, Maryland) from 205.188.197.174
He would just make the test up on a nother day. I do not think the brain works well for a couple of hours after a low for Garrett that is below 60 0r 55 . In high school the finalS are often real important to your grade and GPA and all that so we decided two hours, he has only had to do it once as sometimes he would be in the fifties and still just eat and test. I just want him to have the option as he really got messed up in 8th grade taking a Spainish Cres after a blood sugar of 40 and he flunked and was unable to get the high school credit for it and he got an A in Spainish, we did not have a 504 then,

Thu Jul 6 2000 21:56:28 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Earlier today, Steph sent me these URLs:

http://www.iepware.com/504SD.html
http://mejac.palo-alto.ca.us/orgs/pta/council/504_grp/faq.html

Both are interesting to review. The first is a company that sells 504 and IEP software (expensive!).

Thu Jul 6 2000 21:56:55 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
Actually I credit it with Colleen learning as much as she has ...

Thu Jul 6 2000 21:57:25 Eastern US
Charisse (Garrett 15 dx 3/98, Maryland) from 205.188.197.174
Gooness Hap2 that sounds crazy although I know certain teachers even in high school have their own opinions based on their own limited experiences.

Thu Jul 6 2000 21:58:09 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
San: We have the Novo coloring book online at:
http://www.childrenwithdiabetes.com/coloringbook/

Thu Jul 6 2000 21:58:30 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
we battled and battled with the school -- then called OCR and ADA but finally got an attorney who specialies in special ed

Thu Jul 6 2000 21:58:37 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
there's 1 more: http://denver.digitalcity.com/can

Thu Jul 6 2000 21:59:05 Eastern US
Gene (Seth almost 5 yrs. dxd @ 14 mnths.) from 205.188.200.174
Hi all. Could you please very briefly explain what a 504 is/insures?

Thu Jul 6 2000 21:59:19 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
You do mine is like a poster but its already colored ?

Thu Jul 6 2000 22:01:33 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Steph, can you give an overview of what a 504 is for Gene?

Thu Jul 6 2000 22:02:38 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
That site has excellent 8 page explanation too lengthy to discuss here. In general though, a 504 is a legally binding document that assures that children with special needs can fully participate in a regular school program.

Thu Jul 6 2000 22:02:53 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Following that last link from Steph leads to:
http://www.coloradoadvisory.org/504.htm

Thu Jul 6 2000 22:04:25 Eastern US
Gene (Seth almost 5 yrs. dxd @ 14 mnths.) from 205.188.200.174
Seth will be attending a private school in the fall so would it be at all applicable w/ a private school. The school has a number of D children and we personally know that they are very good in regards to recognizing the special needs of a D child.

Thu Jul 6 2000 22:04:38 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
brb

Thu Jul 6 2000 22:04:46 Eastern US
Hap2cu55@aol.com (Grandmom of Cory, 10 dx'd @ 9) from 152.163.204.27
Does having diabetes qualify a student for an IEP and is there an advantage of having an IEP over a 504?

Thu Jul 6 2000 22:04:58 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Gene: If the private school receives any Federal funding at all, all the laws apply to them.

Thu Jul 6 2000 22:06:59 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
Does anyone have any more questions of Steph?

Thu Jul 6 2000 22:07:20 Eastern US
Gene (Seth almost 5 yrs. dxd @ 14 mnths.) from 205.188.200.174
We aren't sure about the federal funding....but think that there is no federal funding. It is a parochial school.

Thu Jul 6 2000 22:09:43 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
OK, it's time to wind down our chat. Thanks to Steph for joining us.

Thu Jul 6 2000 22:10:09 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
Just had 24 hrs of great #s 77 to 183 YEAH!

Thu Jul 6 2000 22:10:38 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
San: outstanding!

Thu Jul 6 2000 22:11:00 Eastern US
Gene (Seth almost 5 yrs. dxd @ 14 mnths.) from 205.188.200.174
Steph and all; thanks for the info

Thu Jul 6 2000 22:11:13 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
Love these days!

Thu Jul 6 2000 22:11:33 Eastern US
pam (mom of Justin 13 dx jan 99) from 63.95.121.20
Hope you all have a good evening and thanks Jeff and Steph for all your help..Our prayer is that a cure for diabetes is soon....

Thu Jul 6 2000 22:12:04 Eastern US
San (momma to Colleen 4 dx 10/99, Marlborough, Massachusetts) from 152.163.197.56
Thanks Jeff & Steph for all the info and I have work to do

Thu Jul 6 2000 22:12:14 Eastern US
Jeff Hitchcock (Marissa, age 12, dx'd at 24 months) from 206.112.197.133
I'll have a transcript posted by early tomorrow. Goodnight everyone.

I'll keep this room open for a couple minutes. If you want to keep chatting, I suggest you move to the Parents room.

Thu Jul 6 2000 22:12:59 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
They are different.an IEP is an education plan. a 504 is an accomodation plan for kids in the school's regular education program.

Thu Jul 6 2000 22:13:28 Eastern US
Steph Schwartz, RN, MPH, CDE (Diabetes Nurse Specialist ) from 64.79.80.159
good night all -- let us know what u need



                 
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