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Chat Room Administrator Mon Jul 9 2001 20:15:00 Eastern US
The 'School Chat' chat room is now open.


Mon Jul 9 2001 21:00:25 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Is anyone in here? Is everyone still in Parents room/

Mon Jul 9 2001 21:00:52 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Hi Jill

Mon Jul 9 2001 21:01:04 Eastern US
Gail (Mother of Abby, 9, dx'd at 4) from 24.8.94.145
Hi Jill

Mon Jul 9 2001 21:01:10 Eastern US
Debby (mom of Josh, 10, dx'd at 6) from 216.128.179.227
I'm here.

Mon Jul 9 2001 21:01:11 Eastern US
Anne (mom of Nick dx2 3/4, now 4 yrs. old) from 204.32.200.90
Hi everyone.

Mon Jul 9 2001 21:02:37 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
Hi Lisa,Jill, Debby & Gail. This is Crystal from the ADA.

Mon Jul 9 2001 21:02:43 Eastern US
Phyllis (Mom to Jason, 12 dx'd 12/2000) from 66.108.68.138
Hi everyone

Mon Jul 9 2001 21:03:05 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Lisa, looks like you you've been doing thid school stuff awhile so we'll look to you or does and don'ts:)

Mon Jul 9 2001 21:03:33 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
What questions do you have about school issues?

Mon Jul 9 2001 21:03:45 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Hi Crystal!

Mon Jul 9 2001 21:04:03 Eastern US
Debby (mom of Josh, 10, dx'd at 6) from 216.128.179.227
Hi Crystl

Mon Jul 9 2001 21:04:18 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Well..I have been doing this a while but only with a private school...but I am a member of the pupil appraisal team in a public school.

Mon Jul 9 2001 21:05:00 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Hello everyone.
Crystal,I work as a district manager for ADA in Montgomery, Alabama.

Mon Jul 9 2001 21:05:01 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Do pur children have the right to test in class or can the principal tell us it has to be in office?

Mon Jul 9 2001 21:05:09 Eastern US
Debby (mom of Josh, 10, dx'd at 6) from 216.128.179.227
Any help for private school? We have homeschooled for the past 2 years. Josh is going to a private school this year, and they do not receive federal funding!

Mon Jul 9 2001 21:05:20 Eastern US
Anne (mom of Nick dx2 3/4, now 4 yrs. old) from 204.32.200.90
As the mother of a preschooler with type-1, what responsibility to learn/treat does Nick's school have. I don't believe they are funded by the state (Ohio), but are regulated by the state.

Mon Jul 9 2001 21:05:28 Eastern US
Steph Schwartz, RN, MPH, CDE (Host ) from 207.172.120.233
Good evening everyone

Mon Jul 9 2001 21:06:06 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
Hello everyone! I work as a legal advocate with the American Diabetes Association with a focus on school discrimination issues. I also have a daughter who was dx almost 10 yrs ago and have resolved school issues here in VA through legislation and OCR involvement. Hi Steph!

Mon Jul 9 2001 21:06:16 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Only that you catch more flies with honey Debby...our school has been pretty cooperative...

Mon Jul 9 2001 21:06:25 Eastern US
Steph Schwartz, RN, MPH, CDE (Host ) from 207.172.120.233
Mike are you here yet??

Mon Jul 9 2001 21:07:22 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
Anne, if Nick's is afforded protections under Title III of the Americans with Disabilities Act as long as the pre-school is not run by a religious entity.

Mon Jul 9 2001 21:07:48 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
What are the circumstances that would need to happen to help in getting an aide for my daughter? I know a family whose daught finally passed out, 911 etc, now htey have an aide for her. What are chances if nothing bad happens to get an aide?

Mon Jul 9 2001 21:08:36 Eastern US
milo (momofjonathandxdat4) from 209.45.185.30
My little boy is starting kindergarten in a month and they aren't even interested in talking to me. They have never had a diabetic there before. What do I do?

Mon Jul 9 2001 21:08:52 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Crystal..I need advice on how to file a complaint with OCR. I don't know where to start. We have a great school situation (public). They allow testing in class, provide an aide to assist. However, we are out odds regarding glucagon. They simply are not bending.

Mon Jul 9 2001 21:09:15 Eastern US
Anne (mom of Nick dx2 3/4, now 4 yrs. old) from 204.32.200.90
Crystal, it is a cooperative preschool, owned by the parents, I guess. They have two paid teachers, and the parents also assist one day/month.

Mon Jul 9 2001 21:09:40 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Tell them they have to talk with you. He has a right to be there and they need to learn it. Our school was the same way .

Mon Jul 9 2001 21:09:57 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
As long as there is a trained staff member on-site and available to help, the school is doing its job pretty well. The assignment of an aid might only serve to single out your daughter, which will become as big issue as she gets older.

Mon Jul 9 2001 21:10:35 Eastern US
Steph Schwartz, RN, MPH, CDE (Host ) from 207.172.120.233
Kristy what is your compliant?

Mon Jul 9 2001 21:11:36 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
Kristy, call OCR at 800-421-3481. However, before you file a complaint you should educate your school about the benefits of training a staff member on the administration of glucagon and show them the Loudoun County, Va OCR agreement which is available on the ADA's website at www.diabetes.org.

Mon Jul 9 2001 21:11:37 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
My son has done very well with an aide's assistance. He is not singled out as this aide does not hover over him. She simply monitors testing and helps with carb counting.

Mon Jul 9 2001 21:12:17 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
Anne, even though it's a cooperative it is still a place of "public accommodation" and falls into the Title III category.

Mon Jul 9 2001 21:13:50 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Crystal..I did show them all the materials. Pauline E. in Maitland helped me gather them. When i presented the materials to the Supt. of Edu. he told me that if I got my way, it would be at the expense of another child. I told him that I didn't expect that an RN give glucagon. But, he insists that only an RN can do that.

Mon Jul 9 2001 21:14:22 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Can the school tell us where to test or is it the child's right to test in the classroom?

Mon Jul 9 2001 21:14:39 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
Kristy, if this works for your son - great!

Mon Jul 9 2001 21:15:13 Eastern US
Anne (mom of Nick dx2 3/4, now 4 yrs. old) from 204.32.200.90
Kristy, I had a friend with a similar situation in Dublin, Ohio. She spoke at a scheduled monthly district meeting with the school board and superintendant present. She found that, once she explained why 911 won't cut it, and gave them more info. about diabetes, they understood more and approved in district-wide. Every school with a type-1 child has two people trained with glucagon.

Mon Jul 9 2001 21:15:25 Eastern US
Mary from Ma. (mom to Chris 11,dx'd @ 4 and Angela 12,dx'd @ 9) from 24.91.152.214
good evening:-)

Mon Jul 9 2001 21:15:56 Eastern US
Steph Schwartz, RN, MPH, CDE (Host ) from 207.172.120.233
Jill -- they have to allow him to test at school -- not necessarily the classroom

Mon Jul 9 2001 21:15:57 Eastern US
NormaJean (Samantha, 7, dx'd 12/99, Pumping) from 152.163.197.83
Hi everyone.

Mon Jul 9 2001 21:16:15 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
Arguments for classroom testing - minimizes time away from instruction which in turn provides the child with equal access to educational opportunties and ensures that the student's health will not be jeopardized by running the risk of hypo on his or her way down to the clinic.

Mon Jul 9 2001 21:16:48 Eastern US
Steph Schwartz, RN, MPH, CDE (Host ) from 207.172.120.233
Great job Anne :)

Mon Jul 9 2001 21:17:11 Eastern US
Mary from Ma. (mom to Chris 11,dx'd @ 4 and Angela 12,dx'd @ 9) from 24.91.152.214
Steph..I have a question...do 504's written in one school district carry over to another?

Mon Jul 9 2001 21:17:19 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
The Association (the AMerican Diabetes Association) supports classroom testing to be determined on an individual basis in accordance with the child's level of self-care and individual classroom situation.

Mon Jul 9 2001 21:17:23 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
I think our schools are feeling some pressure by the state nursing bd to enforce this stupid rule that ONLY an RN can administer glucagon. This rule is not in my son's best interest. I have had several staff members tell me that they would be willing to be trained to give glucagon.

Mon Jul 9 2001 21:17:57 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Thankyou- last year she missed alot of class tsting. It's even on her report card. So I have it inwriting to back me up

Mon Jul 9 2001 21:18:01 Eastern US
Mary from Ma. (mom to Chris 11,dx'd @ 4 and Angela 12,dx'd @ 9) from 24.91.152.214
Crystal...Chris tests in the class, Angela doesn't..that's what their most comfortable doing

Mon Jul 9 2001 21:18:29 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
Great Anne! Most of the time is just "ignorant" as opposed to "evil" school districts that we are dealing with. We really need to strive to educate the educators - makes a world of difference and so much less stressful for all involved.

Mon Jul 9 2001 21:18:30 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Hello, sorry about the delay. Had to download a chat client and install!

Mon Jul 9 2001 21:18:54 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Welcome MIke :-)

Mon Jul 9 2001 21:19:16 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
Mary - exactly - my daughter did not want to test in the classroom until this past school year (5th grade) and now she won't have it any other way.

Mon Jul 9 2001 21:19:17 Eastern US
Ginger (Mom of Logan, 6 dx,d at 6) from 166.102.26.168
HI1 This is my first time in achat room. We are thinking about putting Logan on a pump . Are public schools required to train someone to help him.

Mon Jul 9 2001 21:19:22 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
Hi Mike!

Mon Jul 9 2001 21:19:27 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
I have also heard that push from nurses, so that way there are more employed in schools, etc,

Mon Jul 9 2001 21:19:59 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Jill, it does seem that rule is in their favor.

Mon Jul 9 2001 21:20:07 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Mary I don't think so you need a new one -- even a new one every school year I think Crystal? Mike?

Mon Jul 9 2001 21:20:32 Eastern US
Anne (mom of Nick dx2 3/4, now 4 yrs. old) from 204.32.200.90
Welcome, ginger. The parents' chat room here is also wonderful on a day-to-day basis. No scheduled topic.

Mon Jul 9 2001 21:20:33 Eastern US
Debby (mom of Josh, 10, dx'd at 6) from 216.128.179.227
There are no nurses in the schools here...public or private....south GA.

Mon Jul 9 2001 21:21:05 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Ginger - It's doubtful, but your school should have a nurse who can be trained.

Mon Jul 9 2001 21:21:16 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Ginger -- the short answer is yes

Mon Jul 9 2001 21:21:21 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
Ginger, schools must accommodate children with disabilities and providing personnel trained on insulin pump programming, troubleshooting is one of those accommodations if the child qualifies under 504 and I've never heard of a student with diabetes not qualifying. Devin started pumping last year and Mini-Med came out and did both a school and district wide training as she was one of the first pumpers in our district.

Mon Jul 9 2001 21:21:31 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
We have one on Wed. afternoons.

Mon Jul 9 2001 21:21:54 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Steph, I missed the question from Mary.

Mon Jul 9 2001 21:22:08 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Debby -- of there are no nurses, the school must delegate people to learn and help

Mon Jul 9 2001 21:22:13 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
I disagree Steph...a 504 plan is a legal, binding document that represents the agreement between the school and the child...to be safe, I would get a new 504 that is specific to the school system the child is attending.

Mon Jul 9 2001 21:22:35 Eastern US
Mary from Ma. (mom to Chris 11,dx'd @ 4 and Angela 12,dx'd @ 9) from 24.91.152.214
We did ours mid-year..our sped director(who also does 504's) said that that way it'llstillbe in effect when they change school systems when they get to high school..I'm just wondering if he's right aboutthat...I KNOW we're going to have afight onour hands when they get there in a couple of years..

Mon Jul 9 2001 21:22:39 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Mary asked about a 504 carrying over from one school district to another

Mon Jul 9 2001 21:22:48 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
My son has had an IEP in place that he qualified for under OHI. Doesn't a school get federal funding for children with disabilites? How can they justify not hiring a nurse, if the IEP team deams that nursing care is needed. Drew's IEP team stated that he needed this care in the IEP. If that is the case, are they breaking the law, so to speak?

Mon Jul 9 2001 21:22:56 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
The Association's position is that lay people can be trained and a nurse is not necessary. Also, what happens if the nurse is absent or can't go on a field trip. Trained lay people are essential!

Mon Jul 9 2001 21:23:00 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Mary..are they changing school districts or just schools?

Mon Jul 9 2001 21:23:33 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
I thought that's what I said Lisa

Mon Jul 9 2001 21:23:53 Eastern US
Mary from Ma. (mom to Chris 11,dx'd @ 4 and Angela 12,dx'd @ 9) from 24.91.152.214
LIsa...we have no high school here in town, they are sent to one of 3 other school districts...

Mon Jul 9 2001 21:24:13 Eastern US
Crystal (ADA, Mom of Devin, 11, dx. 10.91) from 205.188.199.188
Kristy - why is the nurse needed? To take care of Drew's diabetes or to help with other issues?

Mon Jul 9 2001 21:24:17 Eastern US
Anne (mom of Nick dx2 3/4, now 4 yrs. old) from 204.32.200.90
as a former counselor myself, I can tell you that each year you should have a new 504 written up. I'd also recommend a meeting with all teachers/staff who work with your child----sometimes info. isn't passed on and I have found that most of the "real" world doesn't understand the implications of diabetes on our kids.

Mon Jul 9 2001 21:25:04 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Unless there is a specific interagency agreement between the school systems that covers the 504 plans..I would do a new one...

Mon Jul 9 2001 21:25:36 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
I think the key is you want to be sure your child is safe at school, AND you want your child to be like any other kids --except that he.she diabetes -0 THAT's the tricky part!! A lot of people have misconceptions and difficulty understanding that concept

Mon Jul 9 2001 21:25:50 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Steph/Mary - I agree with Anne. The plan carries over, but it should be altered to fit the requirements at the new school. PLsu, it's always helpful to meet face-to-face with the new school staff to make sure everyone is on the same page

Mon Jul 9 2001 21:25:52 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
A nurse is not needed to manage his daily care. I am strictly speaking about the glucagon issue. Again, they want to follow the rules that the state nursing bd insists on. I don't think an RN is necessary.

Mon Jul 9 2001 21:25:54 Eastern US
Mary from Ma. (mom to Chris 11,dx'd @ 4 and Angela 12,dx'd @ 9) from 24.91.152.214
Anne..we do 504's each year, but the director set it up mid-year because he said it'll still be in effect for that year, regardless of the school system...

Mon Jul 9 2001 21:25:58 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Mary..you can always use the 504 plan you have to draft the new one...

Mon Jul 9 2001 21:26:48 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
What is liklihood of needing Glucagon?

Mon Jul 9 2001 21:26:53 Eastern US
Mary from Ma. (mom to Chris 11,dx'd @ 4 and Angela 12,dx'd @ 9) from 24.91.152.214
so they'll already be inthe high school with a working plan for several months before we have to write a new one...he said that they would have to comply with the one we wrote

Mon Jul 9 2001 21:27:14 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Kristy..are these people who are willing to be trained willing to administer the glucagon as if it were the same as CPR..with or without the blessing of the principal?

Mon Jul 9 2001 21:27:49 Eastern US
Anne (mom of Nick dx2 3/4, now 4 yrs. old) from 204.32.200.90
Steph--who knows? There are lows that are simply unexplainable....

Mon Jul 9 2001 21:28:00 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Mary..I would get that in writing..even if it were just having him initial and date the old one.

Mon Jul 9 2001 21:28:14 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Lisa I don't that can happen -- there's iability involved

Mon Jul 9 2001 21:29:02 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Yes, teachers on campus have told me they would be willing to be trained. Howver, I find this ethically questionable to put their jobs at risk. I really just want to make some changes statewide for our kids.

Mon Jul 9 2001 21:29:04 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
There's liability involved with administering CPR too but I, as a teacher, would never let a child die before trying it.

Mon Jul 9 2001 21:29:34 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Mary, It's true that they have to require, BUT I wouldn't leave it up to the school to implement the plan and track how it's going. Meet with the principal BEFORE the start of the year and set up a 504 meeting to discuss the plan

Mon Jul 9 2001 21:29:44 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Sounds like you need to quarrel with the nursing board then too Kristy...

Mon Jul 9 2001 21:29:48 Eastern US
Beth (mom of jonathan 6 dxd at 4) from 209.45.185.30
I know this is a little off the subject but how old is old enough for a pump? Jonathan is 6 next month and his doctor says he is too young. I have read about other kids his age using them.

Mon Jul 9 2001 21:29:56 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
I meant that they are required to honor the plan

Mon Jul 9 2001 21:30:41 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
The ONLY time Glucagon should be used is if a child is having a seizure. In my more than 25 years of experience with over 1,000 kids and diabetes I have only seen it used ONCE and even then gkuckose gel would have suffcied. The KEy here is EDUCATION in recognizing the EARLY warning symptoms. And forethought to prevent the hypos in the first place.

Mon Jul 9 2001 21:30:47 Eastern US
Mary from Ma. (mom to Chris 11,dx'd @ 4 and Angela 12,dx'd @ 9) from 24.91.152.214
Mike...I plan on meeting with the other school before the kids get there...I was just wondering of ourcurrent 504's would bear any weight...

Mon Jul 9 2001 21:31:07 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Steph...I believe that while the risk of a severe low at school can be low, I still believe that every school should be prepared for this emergency. Drew has had severe lows before that totally came out of the blue when I least expected it.

Mon Jul 9 2001 21:31:15 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Beth please bring that issue to a general chat room

Mon Jul 9 2001 21:31:50 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Sorry everyone - my computer timed out on me and had to re-enter.

Mon Jul 9 2001 21:32:26 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Mary. yes they certainly do. Similar to an IEP. However, I know ony too well how easily it is for a school to lose track of something like that. 504 plans, especially, since a lot of districts have only been taking them seriously the last few years.

Mon Jul 9 2001 21:32:26 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Does that mean a child cannot go to a friend's house or on a field trip -- unless someone knows how to give glucagon?

Mon Jul 9 2001 21:32:50 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
I'm just trying to be a devil's advocate:-)

Mon Jul 9 2001 21:32:54 Eastern US
Mary from Ma. (mom to Chris 11,dx'd @ 4 and Angela 12,dx'd @ 9) from 24.91.152.214
the people who are fighting this in the other school are the nurses more than anyone else...our current school nurse has already spoken with them about this, she's very much advocating forthe kids doing things where they're most comfortable with them

Mon Jul 9 2001 21:33:00 Eastern US
Anne (mom of Nick dx2 3/4, now 4 yrs. old) from 204.32.200.90
Steph, I have had several friends whose children were unconscious and not seizing, but who had to have the glucagon. The gel wouldn't have worked if jaws are locked...

Mon Jul 9 2001 21:33:16 Eastern US
NormaJean (FL) (Samantha, 7, dx'd 12/99, Pumping) from 205.188.192.47
I agree w/ Kristy, Samantha only recently began recognizing her lows, so she had several readings this past year in the 30s & 40s.

Mon Jul 9 2001 21:33:20 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
BTW, I'm a schOOl psychologist, not a schOOOl psychologist

Mon Jul 9 2001 21:33:58 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Steph - with all due respect, going to a friend's house is very different from being at school everyday. Staff members must be trained on glucagon administration, no if, ands or buts.

Mon Jul 9 2001 21:34:39 Eastern US
Anne (mom of Nick dx2 3/4, now 4 yrs. old) from 204.32.200.90
My Nick is only 4, and often has no obvious symptoms of lows and can't recognize them.

Mon Jul 9 2001 21:34:41 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Glucagon should be used when a child low and convulsing or unconscious, can't swallow or combative and uncooperative.

Mon Jul 9 2001 21:34:51 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Steph, I think glucagon is UNDER used. Especially in small children.

Mon Jul 9 2001 21:34:55 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Anne If the jaws are locked you rub rub the gel on the gums

Mon Jul 9 2001 21:35:00 Eastern US
Beth (mom of jonathan 6 dxd at 4) from 209.45.185.30
I'm sorry. You didn't have to be rude. It wouldn't have killed someone to answer. It wouldn't take 30 seconds. I thought you people were here to help. In all truth, it would affect him in school too

Mon Jul 9 2001 21:35:09 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
That's where it should be given anyway

Mon Jul 9 2001 21:35:28 Eastern US
NormaJean (FL) (Samantha, 7, dx'd 12/99, Pumping) from 205.188.192.47
We had to go before the school board and it was just this past March/April that glucagon was approved for use and volunteers were trained.

Mon Jul 9 2001 21:35:40 Eastern US
Debby (mom of Josh, 10, dx'd at 6) from 216.128.179.227
I had to give glucagon to my son, and I hope to never have to again...very scarey, and I'm an RN. He was unconscious but not seizing, jaws clamp0ed tight and lips forcefully closed. I now carry it everywhere.

Mon Jul 9 2001 21:36:03 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Beth -- I didbn't mean to be rude at all -- I'll be happy to answer your question at the end of the chat

Mon Jul 9 2001 21:36:20 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Crystal/Steph - If there is a possibility that a child would need a more emergent level of care and a school nurse isn't always available (many schools don't have full time aides), then I would make sure that's communicated to the school asministration and a plan of action is wrked outin the 504

Mon Jul 9 2001 21:36:36 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
(I meant full timre nurses)

Mon Jul 9 2001 21:37:04 Eastern US
Anne (mom of Nick dx2 3/4, now 4 yrs. old) from 204.32.200.90
Beth, try the parents chat room. They could take a lot more time with the issue, and probably have experience to draw from for you.

Mon Jul 9 2001 21:37:16 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
STEPH/ANYONE - CAN ANYONE GIVE ME SOME ADVICE ON WRITING UP A 504/?? i'M NEW AT THIS AS ADAM'S TEACHER LAST YEAR WAS DIABETIC AND HE ALSO HAS A NEW SCHOOL HEALTH ASST. THIS YEAR.

Mon Jul 9 2001 21:37:19 Eastern US
Ginger (Mom of Logan, 6 dx,d at 6) from 166.102.26.168
Logan is the first diabetic in his school. The nurse and his teacher worked well with him last year, but I do,t think his principal realizes how serious this disease can be. I wanted him to meet with his teacher for this upcoming year but he did not want me to do this. How can I make sure Logan gets all he needs without coming across as wanting my child to have special attention?

Mon Jul 9 2001 21:37:23 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Glucagon should be carried on field trips, on the bus to and from school and everywhere the child goes. I've been doing this for 10 years and thank goodness I had glucagon.

Mon Jul 9 2001 21:37:36 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
NormaJean - Do you have Samantha on a 504 plan?

Mon Jul 9 2001 21:37:43 Eastern US
Gail (Mother of Abby, 9, dx'd at 4) from 24.8.94.145
In your experience, do schools usually have any problem with a child carrying sugar tabs and taking them if they feel low?

Mon Jul 9 2001 21:37:54 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Mike, the 504 should include an accommodation/provision for trained personnel who know how to administer glucagon - absolutely.

Mon Jul 9 2001 21:38:11 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Steph..I believe that it is the school's responsiblity to have someone on staff to at least be familiar with glucagon should their ever be a need. Gel simply would not have worked for the 2 seizure situations that Drew had.

Mon Jul 9 2001 21:38:21 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
JPETO we have a sample 504 on line

Mon Jul 9 2001 21:38:58 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Schools generally do not have a problem with student carrying a quick acting source of glucose such as tabs. However, I have heard of a few instances. Again, a matter of ignorance.

Mon Jul 9 2001 21:39:08 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Mike How do Do I make my daughter feel better(or less different) about having to leave class to test when she liked to stay in class and do it? Principal very adamant about blood, lancets, etc. So what can I do make her feel better about it all?

Mon Jul 9 2001 21:39:39 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Gail -- unfortunately, sometimes they do -- a kid was suspened for giving a glucose tab to a friend last year

Mon Jul 9 2001 21:39:58 Eastern US
NormaJean (FL) (Samantha, 7, dx'd 12/99, Pumping) from 205.188.192.47
No, Mike, we don't have a 504. When Sam was dx'd I thought the Health care plan WAS the 504, because that's what the school lead me to believe. We plan on doing a 504 this year.

Mon Jul 9 2001 21:40:15 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Check out the ADA/DREDF's & Health Care Plan on-line at www.diabetes.org or call 1-800-DIABETES to get a copy.

Mon Jul 9 2001 21:40:36 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Ginger - Dealing with administrator egos can be a problem. I try to work with them, but if they get in the way you need to cite the law and go over his head if necessary

Mon Jul 9 2001 21:41:39 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Jill - Children don't like to feel different, but many children leave the classroom all day long for all sorts of reasons. Do her classmates know why she leaves? How does her teacher handle it?

Mon Jul 9 2001 21:42:07 Eastern US
NormaJean (FL) (Samantha, 7, dx'd 12/99, Pumping) from 205.188.192.47
It's very difficult when the school does not have a full time nurse, nor does your child have a classroom aid.

Mon Jul 9 2001 21:42:14 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
KRISTY, ADAM'S SCHOOL ONLY ALLOWS HIM TO GO ON FIELD TRIPS IF HIS FATHER OR I CAN COME ALONG.

Mon Jul 9 2001 21:42:47 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
NormaJean - Good idea. It is basically a contract, backed by federal law, that obligates the schoo to provide specific services and accomodations. Very valuable

Mon Jul 9 2001 21:42:59 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
JPETYO - this is illegal! School must provide coverage in the event the parent does not come.

Mon Jul 9 2001 21:43:21 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
JPETYO..he can NOT be denied access to field trips or other school activities.

Mon Jul 9 2001 21:43:35 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
JPETYO!! That is illegal!!

Mon Jul 9 2001 21:43:56 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
JPETYO - Well it seems that they are setting themselves up for a discrimination lawsuit. Not very smart of them. What have you done so far?

Mon Jul 9 2001 21:44:00 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
IF the school is a PUBLIC school or receives PUBLIC funding.

Mon Jul 9 2001 21:44:09 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
JPETYO..where are you from?

Mon Jul 9 2001 21:44:23 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Mike-We talk to the class every year, and the teacher will pick someone to go with her to hte office. So I think its handled well.The kids liked to be the one picked.

Mon Jul 9 2001 21:44:27 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
So what do i do?? I'm in Indiana

Mon Jul 9 2001 21:44:38 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
JPETYP - does your child have a 504 plan? Include a field trip, extracurricular event coverage provision.

Mon Jul 9 2001 21:45:05 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Jill, How does your daughter feel about it, then? Is it that she has to leave the room, or that she has to deal with her diabetes?

Mon Jul 9 2001 21:45:15 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Thanks -- you're absolutely correctt Lisa

Mon Jul 9 2001 21:45:23 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
504 applies to all public school and to private schools that receive federal financial assistance.

Mon Jul 9 2001 21:45:50 Eastern US
NormaJean (FL) (Samantha, 7, dx'd 12/99, Pumping) from 205.188.192.47
When I meet with the teachers/staff when Sam got her pump, the principal said that she wanted us to chaperone all field trips also. Not mandatory, but explained that no one trained to use glucagon would be available to go. Sam went on the pump the same time some of us parents were fighting the school board on the glucagon issue.

Mon Jul 9 2001 21:45:58 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
All privat school do not, however, receive public funding

Mon Jul 9 2001 21:46:08 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Jill if that works for your daughter, that is great! Drew is a pumper and tests 3 x at school. I just don't find that acceptable for him to miss possibly 30 minutes of class time. He is TOO easily distracted.

Mon Jul 9 2001 21:46:40 Eastern US
Debby (mom of Josh, 10, dx'd at 6) from 216.128.179.227
So it's a trade off. The public schools here are terrible, but the private receives no funding!

Mon Jul 9 2001 21:46:41 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
I'm not stupid, but would someone who has done this volunteer to walk me thru this at a later time?

Mon Jul 9 2001 21:46:44 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
JPEYTO = Tell the school that you want to set up a meeting to discuss a 504 plan for your son. Bring a letter from his physician, which shoud establish eligibility. Maybe talk to your MD, CDE etc. beforehand to determine what the needs are.

Mon Jul 9 2001 21:47:10 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Now you've got it Debby:-(

Mon Jul 9 2001 21:47:14 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
In reality, the new ULTRA meter, tests in 5 seconds. I have to endorse this meter for school. It is SO fast, he is back on track in seconds!!!

Mon Jul 9 2001 21:47:17 Eastern US
Ginger (Mom of Logan, 6 dx,d at 6) from 166.102.26.168
I taught in a private Catholic school for several years and I know that they received money from the state for every child on 504 plan. I don,t know if that is true in every state, but that is why ishould push the school to provide everything they need to make Logan,s year asgood as possible.

Mon Jul 9 2001 21:47:23 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
True - not all private school receive federal funding and laws are not usually applicable to those run by religious institutions.

Mon Jul 9 2001 21:47:47 Eastern US
NormaJean (FL) (Samantha, 7, dx'd 12/99, Pumping) from 205.188.192.47
Kristy, does Drew contact you w/ his BS readings while at school?

Mon Jul 9 2001 21:47:50 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Tha't the whole problem She can't get back on task when she gets back. She says she wants to test inclass because otherwise she misses stuff and doesn't know what to do and then has homework to bring home and everyone else got it done in class.

Mon Jul 9 2001 21:48:18 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Ultra meter is awesome - quick, quiet and accurate.

Mon Jul 9 2001 21:49:07 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
JPETYP - call the ADA and we'd be happy to help you through it.

Mon Jul 9 2001 21:49:13 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
No he doesn't. The aide and teacher have been trained in trouble shooting, etc. They only call me for emergencies. ( ran out of insulin twice this past year, and one set fell off:-( )

Mon Jul 9 2001 21:49:43 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
Crystal - Thanks

Mon Jul 9 2001 21:49:53 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Jill, that's one of the arguments for classroom testing. The kids miss so much when they have to leave to test their bg.

Mon Jul 9 2001 21:50:20 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Jill, sounds like an issue for the 504 plan. You can ask to revisit the plan at any time if you feel something needs to be changed. It would be helpful to have some backup for your recommendations other than school staff (I'd be surprised if you found any backing, given that principals rule their domains).

Mon Jul 9 2001 21:50:38 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Crystal..how does the ADA help with school issues when the nearest chapter is in another state?

Mon Jul 9 2001 21:50:47 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Jill, you can fight for this. Just tell her principal and 504 team that this arrangement is NOT accomodating her least restrictive environment. They will listen when you start tossing that term around:-)

Mon Jul 9 2001 21:51:15 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
I agree that kids should be allowed to test in the classroom, unfornuately, in reality, this does not happen.

Mon Jul 9 2001 21:51:26 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
JPETYO - While waiting for assistance from ADA, get the letter from your MD (you have to document your child's eligibility) and request a meeting

Mon Jul 9 2001 21:51:39 Eastern US
Laura (i am 19 yrs old Dx'd in 95) from 172.144.216.198
hi

Mon Jul 9 2001 21:51:43 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Mike -- Classroom testing?

Mon Jul 9 2001 21:52:15 Eastern US
Eileen (CT) (Mom of 7 year old twins Dx'd @ 14 months pumping since 11-99) from 64.12.102.51
Steph, what do you feel is the % of kids with D that test in class?

Mon Jul 9 2001 21:52:21 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
I think more and more school districts are realizing the benefits of classroom bg testing - we still have a lot of work to do, but we're getting there!

Mon Jul 9 2001 21:52:59 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Jill/Kristy - Least restrictive environment is an IDEA concept, not ADA. However, you could certainly use it as a bluff (a lot of school staff don't know what they're when it comes to 504s) or a threat to move to an IEP

Mon Jul 9 2001 21:54:01 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Good point Mike...but you can always ask for a complete evaluation to rule out Other Health Impairments if they are extremely resisitant.

Mon Jul 9 2001 21:54:01 Eastern US
Ginger (Mom of Logan, 6 dx,d at 6) from 166.102.26.168
h how often should the school send home a child's bloodsugers? Mine send hom every 2 weeks,but they contact me if he is over 400. Do youhave the nurse check his keetones?

Mon Jul 9 2001 21:54:14 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Steph - Why not, but you may need to do a walk through to show the principal/teacher/etc that the risk of blood spill is minimal

Mon Jul 9 2001 21:54:36 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
My son has an IEP in place Mike. So they do listen when I talk of LRE.

Mon Jul 9 2001 21:55:12 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Lisa - yup. Sometimes you have to hit them with a stick to get them to pay attention. IDEA has more protections and requires more services than a 504

Mon Jul 9 2001 21:55:50 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
The minority. I think the big problem is geeting school personnel over the "myths" and fear of diabetes. If we can get out kids "safe" and win the BIG battles -- (even though I know classroom testing is BIG to a lot of kids) -- we stand a better chance of change later on. I usually suggest a quiet classroom corner ven cpvered with sran (to get around the blood issue) and a two week to 1 month trial. Once they see it CAN work, schoold tend to bend a little more.

Mon Jul 9 2001 21:55:54 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Kristy - good. Everyone clear on the distinction between an IEP and 504 plan?

Mon Jul 9 2001 21:55:58 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
That's because they know you know what you're talking about! Kristy..how does the school system stand on kids who have to be suctioned..do they need an RN to do this? How about those kids who have to be fed blended meals..must a speech path do this?

Mon Jul 9 2001 21:56:25 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
We have My daughter's lunch bg reading sent home every day They keep track on a notebook every test or call to me.

Mon Jul 9 2001 21:57:13 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Why do some schools allow a child with diabetes to have an IEP and other use a 504. My son does not have any other disablilties. I understood he qualified because of OHI.

Mon Jul 9 2001 21:57:19 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
School should maintain a log sent home upon request.

Mon Jul 9 2001 21:57:35 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
I like to get them everyday, but it didn't always work that way last year.

Mon Jul 9 2001 21:57:41 Eastern US
CrazyCajun (www.rajincajun.cjb.net -----go there if you wish) from 207.172.11.147
I think that it would be very embarrassing to test my blood sugar in class personally, and I think many others would find it somewhat embarrassing as well.
On the other hand, if you absolutely have to, I think some teachers just don't understand no matter how many times you explain.

Mon Jul 9 2001 21:57:55 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Kristy..mostly because the parents didn't push for accomodations that couldn't be met through a 504.

Mon Jul 9 2001 21:58:14 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Lisa - Schools would typically train an aide for feeding needs. If a child required suctioning then the school would be required to provide a person qulaified to do so

Mon Jul 9 2001 21:58:29 Eastern US
Eileen (CT) (Mom of 7 year old twins Dx'd @ 14 months pumping since 11-99) from 64.12.102.51
In CT it is required that the nurse also keeps a log of the bs

Mon Jul 9 2001 21:58:30 Eastern US
Gail (Mother of Abby, 9, dx'd at 4) from 24.8.94.145
I have taped a log inside of lunch box along with a pen. My daughter records bg on it.

Mon Jul 9 2001 21:58:45 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Lisa, I also have a 13 yr old multihandicapped daughter. There are kids in her class who get trach care from the aides in the room. Not RNs. Now, why in the heck can an aide do trach care and cath children, and can't give an injection of glucagon.. SAME COUNTY.

Mon Jul 9 2001 21:58:51 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
IEP = need for specialized instruction
504 = Need for accomodations

Mon Jul 9 2001 21:58:58 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
In some schools, the problem is the school nurse's lack of understanding all the issues and the need to be in control. Just think if she allowed kids with diabetes to check BS in class she'd be freer to help the kids who need it!

Mon Jul 9 2001 21:59:09 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
My point exactly MIke..these skills were typically held only by RN's? BUT now aides can do it why not glucagon?

Mon Jul 9 2001 21:59:42 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Doesn't make sense does it Kristy??

Mon Jul 9 2001 22:00:33 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Do you need a log or just a memory meter? Or is there a different meter at school?

Mon Jul 9 2001 22:00:42 Eastern US
wendy ny (jessica 1/01) from 64.12.103.162
i am concerned about the work my daughter misses while she is in the nurses office testing, who is responsible for teacheting her the work she misses

Mon Jul 9 2001 22:01:11 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Lisa - I really dont know. Does it require a higher level of training/knowledge? Schools are extremely sensitive to issues of liability (although after the paperwork is done, what actually happens may not be what's on paper)

Mon Jul 9 2001 22:01:17 Eastern US
Gail (Mother of Abby, 9, dx'd at 4) from 24.8.94.145
Steph, she isn't allowed to carry the meter home with her. We have to keep it at school.

Mon Jul 9 2001 22:01:18 Eastern US
NormaJean (FL) (Samantha, 7, dx'd 12/99, Pumping) from 205.188.192.47
The Clinic Asst. either pages me w/ Sam's BS or calls me every time he checks her BS. This way I know she checks her BS on time (and many times I've had to call the school)

Mon Jul 9 2001 22:01:21 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
I stand behind my argument that diabetes could potentially affect learning on a day to day basis. That is why I insisted on an IEP.

Mon Jul 9 2001 22:01:32 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
In our school system, the elem schools don't even have a nurse, it's a Health Asst (Iknow bcause I'm a sub for them) We have Red Cross training in 1st Aid and CPR only. No specialized training.

Mon Jul 9 2001 22:01:37 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
We have a written log, but if there isn't something written or a sub was there and forgot I check the memory on hte meter

Mon Jul 9 2001 22:01:53 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Mike..in a word..NO

Mon Jul 9 2001 22:01:57 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Wendy -- The school is responsible to make sure she gets what she misses!!

Mon Jul 9 2001 22:02:04 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Trained lay people can do glucagon and provide all other assistance to students with diabetes.

Mon Jul 9 2001 22:02:17 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Wendy - your daughter is unless you have the backing of ADA or IDEA (ie., 504 or IEP)

Mon Jul 9 2001 22:02:47 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
First AId and CPR ARE specialized traing? Why not train in treatment of hypos??

Mon Jul 9 2001 22:02:52 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Lisa - Probably just fear, then. Maybe they need to be enlightened

Mon Jul 9 2001 22:03:04 Eastern US
wendy ny (jessica 1/01) from 64.12.103.162
even a private school? i have seen her be in the office for 5-25 minutes testing?

Mon Jul 9 2001 22:03:09 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Kristy..specialized instruction is not always warranted by an IEP..sometimes only special accomodations are needed...it must impact their education though.

Mon Jul 9 2001 22:03:13 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Wendy - I meant practically speaking, not legally

Mon Jul 9 2001 22:03:29 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Wendy, write the instruction for missed schoolwork, tests, etc. into the 504 plan.

Mon Jul 9 2001 22:03:36 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Crsytal is that a national or state issue?

Mon Jul 9 2001 22:04:01 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Wendy - Private schools are not bound by ADA or IDEA unless they accept federal funds

Mon Jul 9 2001 22:04:10 Eastern US
Laura (i am 19 yrs old Dx'd in 95) from 172.144.216.198
I had Problems when I it was time to leave to test , Teacher went to the door and told me I was not allowed to go. They Allowed to do that?

Mon Jul 9 2001 22:04:39 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Wendy -- why does it ake so long? With the new meter it should take less than a minute or two?

Mon Jul 9 2001 22:05:09 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
No Laura -- they are not IF you have written plan

Mon Jul 9 2001 22:05:19 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Laura - Nope

Mon Jul 9 2001 22:05:21 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Under IDEA, the disability must impact academic performance/ability. Under 504, disability must interfere with a major life activity such as learning, eating, caring for one's self.

Mon Jul 9 2001 22:05:28 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Steph..sometimes the nurse's office or designated testing area is across campus..that can be quite a hike on a large campus.

Mon Jul 9 2001 22:05:35 Eastern US
Ginger (Mom of Logan, 6 dx,d at 6) from 166.102.26.168
ithink it should be up to the child where he test because know matter if he does it in the class or in the office he still stands out. The problem I had with Logan was that he missed part of his lunch o go get checked and so he did not get to finish lunch. Does anyone else have this problem?

Mon Jul 9 2001 22:05:49 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
1st Aid and CPR are the only requirements. Next year if there are not any kids newly diagnosed or Kindergarteners with D, Adam will be the only one in his school. And as far as I've seen subbing, there are no other diabetics in the elem. system. Isn't that odd?

Mon Jul 9 2001 22:06:11 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Crystal/Wendy - Yes, set up a 504 and write the requirements in as Crystal suggests

Mon Jul 9 2001 22:06:14 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Laura - no, written plan or no written plan.

Mon Jul 9 2001 22:06:22 Eastern US
Eileen (CT) (Mom of 7 year old twins Dx'd @ 14 months pumping since 11-99) from 64.12.102.51
Sometimes it takes 20 minutes for my girls to be tested at the nurses office. Many children come at lunch time for their meds and cuts and they have to wait.

Mon Jul 9 2001 22:06:56 Eastern US
wendy ny (jessica 1/01) from 64.12.103.162
if the nurese is busy with other kids it can take a while the glucometer for my daughter and the other child with d isd kept in a top cupbouared

Mon Jul 9 2001 22:07:07 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
JPETYO perhaps you could offer to help facilitate a training - get your child's health care team involved.

Mon Jul 9 2001 22:07:11 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Laura - Are you in a high school or college? Section 504 was originally written specifically to address colleges.

Mon Jul 9 2001 22:07:23 Eastern US
NormaJean (FL) (Samantha, 7, dx'd 12/99, Pumping) from 205.188.192.47
Ginger, we had the lunch problem too. We pack her lunch and after lunch she would return to the clinic and if she didn't finish her lunch she would stay in the clinic until she did. After that she always completed her lunch before returning to class.

Mon Jul 9 2001 22:07:44 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
My daughter was the first one in her school of 500 there are two ohter children in two other c=schools. This year there will be three in our school.

Mon Jul 9 2001 22:07:45 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
Ginger- We had this problem when Adam was 1st dx - then they sent him down 1/2 hour earlier than lunch to test, so he gets back in time to go to linch with his class.

Mon Jul 9 2001 22:07:51 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Eileen is that acceptable to you that testing can take up to 20 minutes?

Mon Jul 9 2001 22:07:55 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Kids should not have to wait in the office/clinic for to be tested. Takes away from classroom time and jeopardizes their health - especially if low.

Mon Jul 9 2001 22:07:56 Eastern US
Laura (i am 19 yrs old Dx'd in 95) from 172.144.216.198
It got to the point i quit testing, afraid to leave his class, untill my Parents threthened to get a a Lawyer

Mon Jul 9 2001 22:08:15 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Maybe the kids with diabetes could have another designated area other than the nurse's area if it's too busy

Mon Jul 9 2001 22:08:35 Eastern US
CrazyCajun (www.rajincajun.cjb.net -----go there if you wish) from 207.172.11.147
As I said, many teachers and even school nurses don't understand diabetes as well as they say they do.
LOL Laura, be nice to sue them wouldnt it? :-)

Mon Jul 9 2001 22:08:57 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Laura, Sometimes that's what it takes. The level of knowledge about 504 plans, IEPs etc. among regular educators is very low

Mon Jul 9 2001 22:09:03 Eastern US
Laura (i am 19 yrs old Dx'd in 95) from 172.144.216.198
Mike im in college, This was when I was in HS. in college i can leave whenever i feel like testin or just test in the room

Mon Jul 9 2001 22:09:17 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Kids should be able to test wherever, whenever, not just in a designated area.

Mon Jul 9 2001 22:09:27 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
I agree Crystal

Mon Jul 9 2001 22:09:29 Eastern US
Eileen (CT) (Mom of 7 year old twins Dx'd @ 14 months pumping since 11-99) from 64.12.102.51
Kristy, no! But I didn't know this until one day I was there and saw it for myself so I just grabbed the meter and did them myself and bolused them and sent them off. The nurse stated that sometimes it gets real busy.

Mon Jul 9 2001 22:10:14 Eastern US
CrazyCajun (www.rajincajun.cjb.net -----go there if you wish) from 207.172.11.147
Yep, Crystal, totally agreed upon

Mon Jul 9 2001 22:10:28 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
But Crstal -- how do we make this happen without alinating the school personnel?

Mon Jul 9 2001 22:10:42 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Yikes Eileen..hope you can work something different out. If Drew was let out of the room to test, he would take he sweet time. (no pun intended:-) _

Mon Jul 9 2001 22:11:00 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
The school nurses and clinic aides are always swamped which is why need to train lay people.

Mon Jul 9 2001 22:11:07 Eastern US
wendy ny (jessica 1/01) from 64.12.103.162
when i go in aug i will see about having it lowered . they have 2 nurses that i need to work with. do other parents have the nurse call everyday with the readins?

Mon Jul 9 2001 22:11:15 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
Eileen/Kristy, This is true at our schoools, also. Lunch time is meds time for most of the kids.

Mon Jul 9 2001 22:11:20 Eastern US
Eileen (CT) (Mom of 7 year old twins Dx'd @ 14 months pumping since 11-99) from 64.12.102.51
That's another problem, they LOVE their nurse!

Mon Jul 9 2001 22:11:32 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Sounds like there are a lot of logistical issues. Taking too long to test, missing classtime. If it's more than an occasional problem then alterations should be made to the 504 plan. It helps to get everyone around the table to brainstorm Communication in schools can be very poor

Mon Jul 9 2001 22:12:22 Eastern US
Eileen (CT) (Mom of 7 year old twins Dx'd @ 14 months pumping since 11-99) from 64.12.102.51
This coming year I will bring in 2 meters and they both can do themselves at the same time and then get out of there!

Mon Jul 9 2001 22:12:24 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Steph - Most teachers I know have a wicked sweet tooth :)

Mon Jul 9 2001 22:12:51 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Alienating them? We ahve educated and educated personnel and still things get forgotten or delayed. I know they are busy that is why I think it would be great to have ONE persoonwatch out for my child until she is older.( an aide) Because no matter how many people are informed I still don't think they get the seriousness of it all.

Mon Jul 9 2001 22:12:59 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
It's a matter of education. Once they understand the necessity and so how easy it is, then there's no reason they'd be alienated. We've got to do what's best for our kids and that's the risk we take. Retaliation is prohibited under 504.

Mon Jul 9 2001 22:13:46 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
I know Adam has taken his time either to or from the office on days he didn't want to do what the class was doing.

Mon Jul 9 2001 22:13:57 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
My computer is acting up so I may have to leave. Please give the ADA a call if anyone needs any help with school issues. Happy to help.

Mon Jul 9 2001 22:14:01 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Jill you can email me at kmeanor@diabetes.org I will share with you how the aide thing has worked for us and some tips to help you with this.

Mon Jul 9 2001 22:14:08 Eastern US
Eileen (CT) (Mom of 7 year old twins Dx'd @ 14 months pumping since 11-99) from 64.12.102.51
In our school the teachers and staff have been wonderful BUT that still doesn't make up for the time missed from class.

Mon Jul 9 2001 22:14:14 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Very true Jill

Mon Jul 9 2001 22:14:50 Eastern US
Eileen (CT) (Mom of 7 year old twins Dx'd @ 14 months pumping since 11-99) from 64.12.102.51
Crystal, what state do you live in?

Mon Jul 9 2001 22:15:01 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Crytal, should they call the national office and ask for you? Or call their local office?

Mon Jul 9 2001 22:15:13 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
We have special education local here for kids with diabilities, but would the school hire someone as an aide for one of our children??

Mon Jul 9 2001 22:15:16 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Bye Crystal see you in ORlando!

Mon Jul 9 2001 22:16:03 Eastern US
Lisa (La) (Taylor, 14, d'xd 3/93 pumping) from 208.143.114.58
Enjoyed the chat but time to change a cartridge.

Mon Jul 9 2001 22:16:04 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Thank you Kristy. You'll be hearing from me!

Mon Jul 9 2001 22:16:04 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Trying to hang in there Steph. See you in Orlando if I time out again.

Mon Jul 9 2001 22:16:29 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
JPETYO, your school likely already has inclusion aides on staff. That is who takes care of Drew. This aide floats during the day to several rooms on his hall to attend to other children as well.

Mon Jul 9 2001 22:17:03 Eastern US
Ginger (Mom of Logan, 6 dx,d at 6) from 166.102.26.168
Do your chidren have problems when it comes to special parties or treats at school? Doesn't it always seem everyting is sweet? I just want to cry because I don't want him to stand out in the class.

Mon Jul 9 2001 22:17:26 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
I think we should close this chat in 10 minutes

Mon Jul 9 2001 22:17:27 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
JPETYO - If it can be documented that it is a medical necessity and necessary to make the appropriate accomodations, then the school would be obligated to provide an aide.

Mon Jul 9 2001 22:17:53 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
Kristy, I'm going to ask about that - Thanks a bunch

Mon Jul 9 2001 22:17:54 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Kristy, folks should call 1-8800-DIABETES, ask for our school discrimination packet and ask for the name of the ADA's state discrimination staff member. You may also e-mail me at CJackson@diabetes.org, but better to work with your local ADA contact. I'm at the National office.

Mon Jul 9 2001 22:18:06 Eastern US
Eileen (CT) (Mom of 7 year old twins Dx'd @ 14 months pumping since 11-99) from 64.12.102.51
Well, I got to go, hope to see you in Orlando.

Mon Jul 9 2001 22:18:28 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
That's what I was wondering. Would the chance of an aide be better if there will now be three choldren w/ diabetes. This person could move from room to room to watch/perform tests?

Mon Jul 9 2001 22:18:31 Eastern US
Rita (Mom of Colleen, 8, dx'd at 4.5) from 64.12.106.43
Hi - I intended to attend this chat but had a site problem - any suggestions for private school parents?

Mon Jul 9 2001 22:18:36 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
We will be rhavinf many more chats in the Fall INCLUDING special ones for school personeel -- so please tay tuned to CWD!!

Mon Jul 9 2001 22:19:04 Eastern US
NormaJean (FL) (Samantha, 7, dx'd 12/99, Pumping) from 205.188.192.47
I agree Ginger. Then the teacher tries to help by buying sugar free candy, loaded w/ carbs

Mon Jul 9 2001 22:19:23 Eastern US
Kristy (Drew 8yrs dx @ 3) from 165.121.236.101
Bye all...thanks Steph and Crystal!!
Jill email me!

Mon Jul 9 2001 22:19:30 Eastern US
Rita (Mom of Colleen, 8, dx'd at 4.5) from 64.12.106.43
thanks

Mon Jul 9 2001 22:19:54 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Private schools may be covered under 504, ADA & IDEA if they receive federal financial assistance. If your school is not covered, then work to educate staff members and work out a plan.

Mon Jul 9 2001 22:20:30 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
We have my daughter bring home whatever doesn't fit into her carb. plan foir that snack or if no snack is scheduled then. We work it in the next day or later that day at home.

Mon Jul 9 2001 22:20:42 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
Ginger- I sent several bags of sugar free candy (a variety of choc/licorice/hard) last year to his teacher to give him when she gave out candy for incentives or as prizes and that worked well, also diet pop for when everyone else had something and he couldn't.

Mon Jul 9 2001 22:20:53 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Bye Kristy!

Mon Jul 9 2001 22:21:16 Eastern US
Rita (Mom of Colleen, 8, dx'd at 4.5) from 64.12.106.43
The school has been helpful to date but now colleen will be taking NYS standardized tests

Mon Jul 9 2001 22:21:28 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Rita - As Crystal described. It's up to your school. Good relationships and communications are keys

Mon Jul 9 2001 22:21:44 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
One of the accommodations you could write into the 504 plan is about snacks - to the extent the teachers have advance knowledge of special treats, ask them to notify you so that you can work it into your child's meal plan.

Mon Jul 9 2001 22:22:29 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Good idea about sudar free incentives. My daughters teacher did that and just gave it to her, telling her to wait until she got home. WELL... she ate the 2 or 3 peces of candy. GOOD TIP

Mon Jul 9 2001 22:22:29 Eastern US
Rita (Mom of Colleen, 8, dx'd at 4.5) from 64.12.106.43
I was going to write up something using both the 504 and IEP so she could get more time if she needs it - and not call it a 504 - I just don't know if the school will honor it.

Mon Jul 9 2001 22:22:38 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Teachers will typically know when birthdays are

Mon Jul 9 2001 22:23:15 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Standardized tests - write a provision that if Colleen is out of her target range, then she may take the test at an alternate time. That is, if she feels high or low. I don't mean for her to necessarily confirm her bg level before every test - just if she's feeling symptomatic.

Mon Jul 9 2001 22:24:04 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Sometimes it's helpful to have teachers give a lesson on the food guide pyramid and ask that the class as a whole try to follow it. Meal plans for kids with diabetes these days use this sytem too and then everyone is the same and learns.

Mon Jul 9 2001 22:24:07 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Or, include a provision that she can interrupt testing if she is out of the target range, or cantake the test untimed

Mon Jul 9 2001 22:24:46 Eastern US
Rita (Mom of Colleen, 8, dx'd at 4.5) from 64.12.106.43
I thought she'd ahve to confirm the bgl - not to have to test would be great - she often feels "not right" and is in range -

Mon Jul 9 2001 22:24:58 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Exactly Mike.

Mon Jul 9 2001 22:25:33 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Rita, if she's in range, could she simply just get butterflies like other kids?

Mon Jul 9 2001 22:26:21 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
Standardized tests - they wer doing those when Adam was diagnosed last year. They're really stressfull.

Mon Jul 9 2001 22:26:30 Eastern US
Rita (Mom of Colleen, 8, dx'd at 4.5) from 64.12.106.43
She thought she was low tonite and was 237 - but I think the coming down still hits her - even on the pump

Mon Jul 9 2001 22:26:47 Eastern US
Crystal (ADA, Mom of Devin, 11, dx 10/91) from 152.163.205.62
Good night all!

Mon Jul 9 2001 22:26:47 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Rita - They only thing I would worry about with that scenario is the combination of test anxiety and testing anxiety. 8 year olds are pretty young to sort that out for themselves. A good teacher could help her through it

Mon Jul 9 2001 22:27:25 Eastern US
Ginger (Mom of Logan, 6 dx,d at 6) from 166.102.26.168
Crystal you seem like a pro at this. I hope Iwill be like that some day. Istill feel like it is a dream I wll wake up from.

Mon Jul 9 2001 22:27:28 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
NIte Crystal. Nice talking to you

Mon Jul 9 2001 22:27:30 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
BYE CRYSTAL

Mon Jul 9 2001 22:28:10 Eastern US
Rita (Mom of Colleen, 8, dx'd at 4.5) from 64.12.106.43
Thanks Mike - luckily we have a great teacher - her brother in law is Type 1 and had my other daughter (12) when Colleen was dx'd and was so helpful so it should work (fingers crossed)

Mon Jul 9 2001 22:28:12 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Ginger will you be in Orlando?

Mon Jul 9 2001 22:28:32 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
Ginger, it wont always feel so overwhelming. There's never a dull moment, but you learn to deal with it all

Mon Jul 9 2001 22:29:25 Eastern US
Rita (Mom of Colleen, 8, dx'd at 4.5) from 64.12.106.43
Ginger - you'll be amazed how much you learn and remember - hang in there -

Mon Jul 9 2001 22:29:47 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Rita - That's great that your daughter was able to have a teacher who was not afraid of the issues and could be supportive without overdoing it. She'll be a great resource for other teachers your daughter will have in the future

Mon Jul 9 2001 22:30:28 Eastern US
NormaJean (FL) (Samantha, 7, dx'd 12/99, Pumping) from 205.188.192.47
Thanks everyone.

Mon Jul 9 2001 22:30:48 Eastern US
Rita (Mom of Colleen, 8, dx'd at 4.5) from 64.12.106.43
Mike - so far so good - it is a catholic school k-8 and only 1 class per grade so each year I do an Inservice for all of them..

Mon Jul 9 2001 22:30:56 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Ginger - You're still going through major adjustments as a parent. Are you still in the "emotional fog" state?

Mon Jul 9 2001 22:31:15 Eastern US
Ginger (Mom of Logan, 6 dx,d at 6) from 166.102.26.168
No I will not be in Orlando this year we have 2 other children. One being a 5 month old and I am just now finding extra time in my schedule to learn more about diabetes.

Mon Jul 9 2001 22:31:25 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Rita- That's great. Makes it a lot easier. One of the advantages of a smaller private school

Mon Jul 9 2001 22:32:31 Eastern US
Connie(BC) (type 1) from 207.194.16.17
I totally avoid starchy carbs, the delayed reaction is too much for me

Mon Jul 9 2001 22:32:38 Eastern US
Rita (Mom of Colleen, 8, dx'd at 4.5) from 64.12.106.43
Thanks Mike and Steph - good night and see you in Orlando!!!

Mon Jul 9 2001 22:32:41 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Ginger - I meant "as a parent of a newly diagnosed child with diabetes". Hae you read much yet about parenting a child with a chronic medical condition?

Mon Jul 9 2001 22:32:53 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Bye Rita

Mon Jul 9 2001 22:32:54 Eastern US
Ginger (Mom of Logan, 6 dx,d at 6) from 166.102.26.168
Mike I guess that is what you call it. I call it denial.

Mon Jul 9 2001 22:32:57 Eastern US
Connie(BC) (type 1) from 207.194.16.17
oops wrong room sorry

Mon Jul 9 2001 22:32:59 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Ginger E-mail me stephs@childrenwithdiabetes.com if you need help . You can also ASK the Diabetes

Mon Jul 9 2001 22:33:54 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Ginger - Totally normal. Denial isn't all bad, either. Helps you get through the day.

Mon Jul 9 2001 22:34:29 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Tme to say good night and summarazie: We all have a lot of work to do with the schools!!

Mon Jul 9 2001 22:34:46 Eastern US
hillary (horse) from 63.205.185.202
hi ever1, is this a room for people that go to school??(for example, elementry school???)

Mon Jul 9 2001 22:34:48 Eastern US
Gail (Mother of Abby, 9, dx'd at 4) from 24.8.94.145
Goodnight all. Thanks!

Mon Jul 9 2001 22:34:51 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
bye steph

Mon Jul 9 2001 22:35:19 Eastern US
Ginger (Mom of Logan, 6 dx,d at 6) from 166.102.26.168
I don't get much time to read these days because it all seems overwhelming to me at times.

Mon Jul 9 2001 22:35:42 Eastern US
JPETYO (MOM TO ADAM,8 D-10/00) from 208.137.15.39
Thanks

Mon Jul 9 2001 22:35:45 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Goodnight. Good chatting with you all. Take care

Mon Jul 9 2001 22:35:46 Eastern US
Jill (daughter 6, dx'd @2) from 216.138.150.53
We've been chatting for about an hour an a half about school issue. WELCOME

Mon Jul 9 2001 22:35:48 Eastern US
hillary (horse) from 63.205.185.202
hello?

Mon Jul 9 2001 22:36:15 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Ginger - MAke sure you have people to talk to about it.

Mon Jul 9 2001 22:36:18 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Hillary are you looking for the kids room or are you an adult?

Mon Jul 9 2001 22:36:41 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Hillary - We're closing up for tonight, but it's been mostly parents andproferssionals

Mon Jul 9 2001 22:36:45 Eastern US
hillary (horse) from 63.205.185.202
i am 9 years old, and so i guess i will just go back to the kids room and wait for any1 to get there.

Mon Jul 9 2001 22:36:52 Eastern US
Steph Schwartz, RN, MPH, CDE (Host) from 207.172.120.233
Good night Mike and thanks!! Come back again I hope

Mon Jul 9 2001 22:37:17 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Sure thing, just let me know when

Mon Jul 9 2001 22:38:39 Eastern US
Mike Hohn (Schoool Psychologist/Clinical Psychologist) from 63.224.227.23
Going now. Goodnight (still daylight here in the Pacific NW!)

Mon Jul 9 2001 22:39:30 Eastern US
Ginger (Mom of Logan, 6 dx,d at 6) from 166.102.26.168
Thanks for listening to me.

Mon Jul 9 2001 23:00:28 Eastern US
hillary (horse) from 63.205.185.202
hello, there was noone in the other rooms.

Mon Jul 9 2001 23:00:59 Eastern US
tara (mom of k.a. ,5, newly dx'd) from 205.188.199.42
I think I maybe too late. Is anyone still able to help me with school issues.

Mon Jul 9 2001 23:05:44 Eastern US
hillary (horse) from 63.205.185.202
im bored. is anyone else bored?

Mon Jul 9 2001 23:07:22 Eastern US
Jenna from 66.38.41.146
hi everyone

Mon Jul 9 2001 23:08:46 Eastern US
Jenna from 66.38.41.146
anyone still in here

Chat Room Administrator Mon Jul 9 2001 23:25:00 Eastern US
This room will close in five minutes. Please move to a new room.




                 
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