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Back to School chat with Crystal Jackson

On August 6, 2002, Crystal Jackson from the ADA joined us for the first of two back-to-school chats.

Chat Room Administrator Tue Aug 6 2002 20:15:00 Eastern US
The 'Back to School' chat room is now open.


Tue Aug 6 2002 20:59:29 Eastern US
Hunter (I am the game and i've come 2 play) from 162.33.219.113
how do you do that in diffrent colors

Tue Aug 6 2002 21:01:48 Eastern US
Jeff Hitchcock from 216.68.227.14
Hunter ... it's all in the programming :-)

Tue Aug 6 2002 21:02:07 Eastern US
HPLOVER (Dx'd @ 5 Type 1) from 216.221.111.44
I don't know how they do it Hunter!

Tue Aug 6 2002 21:02:11 Eastern US
Hunter (I am the game and i've come 2 play) from 162.33.219.113
oh cool

Tue Aug 6 2002 21:02:21 Eastern US
Hunter (I am the game and i've come 2 play) from 162.33.219.113
i gotta learn

Tue Aug 6 2002 21:02:31 Eastern US
Jeff Hitchcock from 216.68.227.14
Hunter, do you have diabetes?

Tue Aug 6 2002 21:03:14 Eastern US
Hunter (I am the game and i've come 2 play) from 162.33.219.113
maybe who is this

Tue Aug 6 2002 21:03:24 Eastern US
HPLOVER (Dx'd @ 5 Type 1) from 216.221.111.44
Jeff Hitchcock...I've got diabetes! Do you?

Tue Aug 6 2002 21:03:35 Eastern US
Crystal from 152.163.195.176
Crystal from the ADA here. Hunter, do you have a school related question or issue?

Tue Aug 6 2002 21:04:01 Eastern US
Jeff Hitchcock from 216.68.227.14
Welcome Crystal. I'm going to pop over to the parents room and invite everyone over.

Tue Aug 6 2002 21:04:26 Eastern US
Crystal from 152.163.195.176
Sounds good Jeff.

Tue Aug 6 2002 21:04:56 Eastern US
Lyn (NC), Grandmother of (Jessica 12, dxd '90, pumping) from 208.63.180.71
Hi folks. Just checking in. Jessica started school today.

Tue Aug 6 2002 21:05:25 Eastern US
Crystal from 152.163.195.176
How did it go Lyn?

Tue Aug 6 2002 21:06:13 Eastern US
Lyn (NC), Grandmother of (Jessica 12, dxd '90, pumping) from 208.63.180.71
Pretty well, Crystal. She did find out she cannot carry her bookbag from class to class, as she has in the past. That's where she would keep her supplies/snacks. So, she'll have to carry a larger purse :-)

Tue Aug 6 2002 21:07:02 Eastern US
Jeff Hitchcock from 216.68.227.14
Lyn, what grade is Jessica in now?

Tue Aug 6 2002 21:07:17 Eastern US
HPLOVER (Dx'd @ 5 Type 1) from 216.221.111.44
I thought this was a chat for kid and teens to discuse things about school! Not for parents and adults.

Tue Aug 6 2002 21:07:25 Eastern US
Lyn (NC), Grandmother of (Jessica 12, dxd '90, pumping) from 208.63.180.71
She's in 7th grade, Jeff. Can you believe that!? How about Marissa?

Tue Aug 6 2002 21:07:58 Eastern US
HPLOVER (Dx'd @ 5 Type 1) from 216.221.111.44
I'm not aloud to carry my backpack to class either.

Tue Aug 6 2002 21:08:11 Eastern US
Lyn (NC), Grandmother of (Jessica 12, dxd '90, pumping) from 208.63.180.71
HPLover, I'm sure it's for everyone interested in back to school issues, dealing with diabetes. What grade are you in?

Tue Aug 6 2002 21:08:20 Eastern US
Jeff Hitchcock from 216.68.227.14
HPLOVER .. it's a chat about diabetes and school. You're welcome to stay and let us know your thoughts about diabetes at school.

Tue Aug 6 2002 21:08:52 Eastern US
Jeff Hitchcock from 216.68.227.14
Lyn: Marissa will be in 10th grade -- and she gets her driver's learner's permit in just over six months. :-o

Tue Aug 6 2002 21:08:57 Eastern US
Hunter (I am the game and i've come 2 play) from 162.33.219.113
Yeah i'm sure all parents are into back to school times

Tue Aug 6 2002 21:09:04 Eastern US
Lyn (NC), Grandmother of (Jessica 12, dxd '90, pumping) from 208.63.180.71
HPLover, I don't have a problem with the backpack restriction..given the problems in some schools. How will you carry your supplies, test kit, snacks..? Are you male or female?

Tue Aug 6 2002 21:09:05 Eastern US
Crystal from 152.163.195.176
Lyn, the fact that she can carry her supplies with her is what's important. My daughter carries her supplies in a small purse as the school doesn't permit the kids to carry bookbags and that works out fine. She's in 7th grade too.

Tue Aug 6 2002 21:09:11 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
Why do I always hate the whole Back To School routine, educating the schools etc, even after dealing with this for 13 years? New this year...first year of HIGH SCHOOL

Tue Aug 6 2002 21:10:11 Eastern US
Lyn (NC), Grandmother of (Jessica 12, dxd '90, pumping) from 208.63.180.71
OH MY, Jeff...they certainly do grow up fast! The pump has made things easier for J at school. Hunter, do you have diabetes?

Tue Aug 6 2002 21:10:11 Eastern US
HPLOVER (Dx'd @ 5 Type 1) from 216.221.111.44
I'm going to 7th again(sec time in 7th grade!

Tue Aug 6 2002 21:10:21 Eastern US
Crystal from 152.163.195.176
Hi Ellen! High school - whoah! Any new strategies or concerns?

Tue Aug 6 2002 21:10:48 Eastern US
Jeff Hitchcock from 216.68.227.14
HPLOVER -- are there any issues that you've had with diabetes at school? Also, where do you do blood tests -- classroom, nurse's office, etc?

Tue Aug 6 2002 21:10:49 Eastern US
Lisa in Utah (mom to Jace, 6, dx'd 8/28/98) from 32.102.122.116
Evening all.

Tue Aug 6 2002 21:11:27 Eastern US
Lyn (NC), Grandmother of (Jessica 12, dxd '90, pumping) from 208.63.180.71
Ellen, I think we all dread the return to school! Crystal, J has had a 504 in place from day one..they have to allow her to keep her supplies with her. Does your daughter do injections or pump?

Tue Aug 6 2002 21:11:47 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
Yes, lots of concerns Crystal :-). But it's always a challenge. He gets the bus this year at 6:10 a.m. and school starts at 7:30 so there's lots of transportation time...I've never alerted the bus driver before...

Tue Aug 6 2002 21:11:56 Eastern US
Crystal from 152.163.195.176
HI All! Does anyone have any particular concerns or issues you'd like to discuss?

Tue Aug 6 2002 21:12:18 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
Zack keeps everything in his cargo pants pockets and we keep back up supplies at the nurse's office

Tue Aug 6 2002 21:12:36 Eastern US
Lyn (NC), Grandmother of (Jessica 12, dxd '90, pumping) from 208.63.180.71
Hi Lisa. Is Jace in first grade?

Tue Aug 6 2002 21:12:47 Eastern US
HPLOVER (Dx'd @ 5 Type 1) from 216.221.111.44
Jeff Hitchcock-- I have no questions I've been doing this sence I was five! I at the front office they don't have a nurses office that I know of!

Tue Aug 6 2002 21:13:14 Eastern US
Crystal from 152.163.195.176
Lyn, my daughter is on pump. She keeps her meter and tabs with her and if she does need pump supplies or anything else she goes to school nurse. Very rare for her to go to clinic - maybe 2x during 6th grade last year.

Tue Aug 6 2002 21:13:23 Eastern US
Jeff Hitchcock from 216.68.227.14
HPLOVER -- are you allowed to test in the classroom if you wanted to, or do you have to go to the office?

Tue Aug 6 2002 21:13:27 Eastern US
Lisa in Utah (mom to Jace, 6, dx'd 9/28/98) from 32.102.122.116
Lyn: He will be starting 1st grade on the 20th.

Tue Aug 6 2002 21:13:39 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
What's recommended for kids with diabetes re standardized tests mentioned in the 504?

Tue Aug 6 2002 21:13:47 Eastern US
Crystal from 152.163.195.176
Love those cargo pants Ellen!

Tue Aug 6 2002 21:14:23 Eastern US
Lyn (NC), Grandmother of (Jessica 12, dxd '90, pumping) from 208.63.180.71
Ellen, we still won't let J ride the bus. I think you'd better have a chat with the driver.

Tue Aug 6 2002 21:14:29 Eastern US
Jeff Hitchcock from 216.68.227.14
The challenge we have with Marissa is that she doesn't carry much with her and doesn't carry a purse.

Tue Aug 6 2002 21:14:44 Eastern US
HPLOVER (Dx'd @ 5 Type 1) from 216.221.111.44
In every class but math and social studys I'm aloud to test! But I'd rather do it in the office.

Tue Aug 6 2002 21:15:06 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
It's worth the price at Abercrombie LOL

Tue Aug 6 2002 21:15:06 Eastern US
Crystal from 152.163.195.176
Ellen, that they be able to take these tests at alternate times without penalty if experiencing hyper or hypo, to have a snack and meter accessible at all times.

Tue Aug 6 2002 21:15:14 Eastern US
Lyn (NC), Grandmother of (Jessica 12, dxd '90, pumping) from 208.63.180.71
brb phone

Tue Aug 6 2002 21:15:48 Eastern US
Jeff Hitchcock from 216.68.227.14
HPLOVER -- my daughter Marissa is the same -- she can test in the classroom but prefers to go to the nurse's office. It's her choice.

Tue Aug 6 2002 21:16:09 Eastern US
Crystal from 152.163.195.176
Jeff, does Marissa want to self-test in the classroom or wherever she happens to be or does she prefer the nurse's office?

Tue Aug 6 2002 21:16:15 Eastern US
Jeff Hitchcock from 216.68.227.14
Crystal, are there any general accommodations being provided when kids with diabetes take SATs and ACTs?

Tue Aug 6 2002 21:16:24 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
Thanks Crystal.

Tue Aug 6 2002 21:16:45 Eastern US
Jeff Hitchcock from 216.68.227.14
Crystal -- Marissa prefers the nurse, or she has in the past. We'll see what happens this year. She's had excellent nurses the past couple of years.

Tue Aug 6 2002 21:18:17 Eastern US
Crystal from 152.163.195.176
Jeff, then if M's preference is nurses office, then that's fine. What about "low" supplies?" At a minimum she should keep some tabs in her binder or maybe with a teacher. Devin is getting to a point where she wants to be discreet as possible - carry around little baggage and not let anyone see her test. She does it inside of her desk - whatever it takes to fit in and not be different from her classmates.

Tue Aug 6 2002 21:18:46 Eastern US
Jeff Hitchcock from 216.68.227.14
We have a small collection of sample 504 plans for parents to use:
http://www.childrenwithdiabetes.com/504/

I'll add any others that people send.

Tue Aug 6 2002 21:19:25 Eastern US
Jeff Hitchcock from 216.68.227.14
Crystal: Marissa carries glucose tablets in her backpack at all times. Also, she always takes a friend to the nurse's office to test, which is why I think she prefers that approach.

Tue Aug 6 2002 21:19:26 Eastern US
Crystal from 152.163.195.176
SAT & ACT - accommodations should be provided with prior request - meter, snack, excused for br, water bottle accessible, etc. Just contact the testing folks in advance.

Tue Aug 6 2002 21:20:12 Eastern US
Crystal from 152.163.195.176
The ADA also has sample plans and a wealth of information on school issues. Go to www.diabetes.org and search "school."

Tue Aug 6 2002 21:21:12 Eastern US
Crystal from 152.163.195.176
Do everyone have 504 and/or Diabetes Health Care Plans in place?

Tue Aug 6 2002 21:21:28 Eastern US
Jeff Hitchcock from 216.68.227.14
Yes

Tue Aug 6 2002 21:21:28 Eastern US
Jeff Hitchcock from 216.68.227.14
Yes

Tue Aug 6 2002 21:21:35 Eastern US
Jeff Hitchcock from 216.68.227.14
wow ... an echo

Tue Aug 6 2002 21:22:27 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
I have to work on the 504 for this year, this Friday.

Tue Aug 6 2002 21:22:52 Eastern US
Jeff Hitchcock from 216.68.227.14
Crystal, have you found the number of schools being supportive increasing across the US?

Tue Aug 6 2002 21:22:53 Eastern US
Crystal from 152.163.195.176
Jeff, what are some of the accommodations you have included in Marissa's plans? Have you ever requested an accommodation and had trouble getting the school to agree?

Tue Aug 6 2002 21:23:53 Eastern US
Crystal from 152.163.195.176
Jeff, I usually only hear about the schools where there are problems - unfortunately. But yes, there are many, many schools out there that are doing an excellent job of taking care of our kids.

Tue Aug 6 2002 21:24:20 Eastern US
Jeff Hitchcock from 216.68.227.14
We basically spell out testing, access to water and the bathroom, and the right to participate in all school activities. The schools here have been extremely supportive.

Tue Aug 6 2002 21:24:45 Eastern US
Lisa in Utah (mom to Jace, 6, dx'd 9/28/98) from 32.102.122.116
I am really nervous about Jace going to school for a full day this year.

Tue Aug 6 2002 21:26:17 Eastern US
Crystal from 152.163.195.176
It is preferred that parents meet with school staff members before the beginning of the school year. I recommend having a health care plan signed by your child's health care provider in hand and also a 504. We did Devin's 2002-2003 plan before the end of the last school year - just to avoid the back-to-school craziness - but there will be some changes form what we did in June.

Tue Aug 6 2002 21:26:33 Eastern US
Crystal from 152.163.195.176
Lisa, have you met with school staff members?

Tue Aug 6 2002 21:26:56 Eastern US
Jeff Hitchcock from 216.68.227.14
Sorry to run, but I need to pack -- heading to Philadelphia for the AADE conference in the morning.

Thanks Crystal, and goodnight all.

Tue Aug 6 2002 21:27:32 Eastern US
Crystal from 152.163.195.176
Safe travels Jeff. Thanks.

Tue Aug 6 2002 21:28:53 Eastern US
Lisa in Utah (mom to Jace, 6, dx'd 9/28/98) from 32.102.122.116
Crystal, we justgot the cardin the mail today telling us who the teacher will be. I am going to call this week to find out about his schedule for lunches and recess, etc.

Tue Aug 6 2002 21:29:19 Eastern US
Lisa in Utah (mom to Jace, 6, dx'd 9/28/98) from 32.102.122.116
I do know that there is no full time nurse though.

Tue Aug 6 2002 21:29:32 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
Come back with lots of info Jeff :-)!

Tue Aug 6 2002 21:29:58 Eastern US
Julia (a2angelmom/Ethan 4 ) from 64.12.96.107
hi all...Jeff have a good trip.

Tue Aug 6 2002 21:30:09 Eastern US
Crystal from 152.163.195.176
That's good,but I would recommend that you log onto the ADA's and CWD's website to educate yourself about school management issues. Call 1-800-DIABETES and ask for our school discrimination packet - that will get you started.

Tue Aug 6 2002 21:30:16 Eastern US
Julia (a2angelmom/Ethan 4 ) from 64.12.96.107
i am running late tonite and still need to get the kids in for bed

Tue Aug 6 2002 21:31:06 Eastern US
Crystal from 152.163.195.176
Lisa, non-medical school staff members can be trained to perform diabetes care tasks in your situation. Even if there was a f/t nurse, back-up personnel are still critical.

Tue Aug 6 2002 21:31:16 Eastern US
Crystal from 152.163.195.176
Hi Julia!

Tue Aug 6 2002 21:32:02 Eastern US
Julia (a2angelmom/Ethan 4 ) from 64.12.96.107
Hi Crystal sorry so late

Tue Aug 6 2002 21:32:09 Eastern US
Nancy (Mom of Audrey, 7, dx'd at 6) from 207.89.168.87
I know private schools do not need to follow a 504 and all that unless they receive federal money. Does Title 1 money and participation in the public school lunch program qualify as Federal money?

Tue Aug 6 2002 21:32:11 Eastern US
Sue (Evan,12 dx'97;Casey,7 dx'97) from 152.163.189.201
Hi all. I find August and September the most stressful because of all the meetings with their new teachers/coaches, etc.

Tue Aug 6 2002 21:32:28 Eastern US
Crystal from 152.163.195.176
Lisa, review the materials I've mentioned and set up a meeting with your principal, school nurse, teacher and other staff members who will have primary responsibility for your child.

Tue Aug 6 2002 21:33:42 Eastern US
Crystal from 152.163.195.176
Nancy, no not under 504, but you may be protected under the Americans with Disabilities Act if not a religious supported school.

Tue Aug 6 2002 21:35:19 Eastern US
Nancy (Mom of Matthew, 4, dx'd 6/11/02) from 12.82.72.83
Hi all. My son Matthew is 4-1/2 and will be starting pre-school in a few weeks. How much of this do I need to be concerned about for 2-1/2 hours/2 days a week? I do have a Health Care Plan form to fill out. This is a Christian school, but they seem to be very supportive.

Tue Aug 6 2002 21:36:20 Eastern US
Crystal from 152.163.195.176
504 applies to all public schools and private schools that receive federal financial assistance.ADA covers all public and private schools and day care center, except those run by religious institutions.

Tue Aug 6 2002 21:37:40 Eastern US
Lisa in Utah (mom to Jace, 6, dx'd 9/28/98) from 32.102.122.116
Thanks Crystal.

Tue Aug 6 2002 21:38:19 Eastern US
Nancy (Mom of Matthew, 4, dx'd 6/11/02) from 12.82.72.83
Thanks Crystal.

Tue Aug 6 2002 21:38:20 Eastern US
Crystal from 152.163.195.176
Nancy, I would develop a health care plan with your child's health care provider at a minimum. Even if he doesn't test, eat lunch or administer insulin at school, school staff members still must know how to recognize and treat a low. However, if a religious supported school that doesn't receive ff, then you probably are not protected under 504 or ADA - but still put together a health care plan.

Tue Aug 6 2002 21:38:51 Eastern US
Crystal from 152.163.195.176
Good luck Lisa & Nancy!

Tue Aug 6 2002 21:39:38 Eastern US
Crystal from 152.163.195.176
Has anyone had problems in getting your school to program, troubleshoot, otherwise handle the pump?

Tue Aug 6 2002 21:39:58 Eastern US
Sue (Evan,12 dx'97;Casey,7 dx'97) from 152.163.189.201
Our elementary school did a 504 but the middle school said my son didn't need it. I spoke to our CDE and she asked me if there was a problem with Evan's care at school. There wasn't, i just needed to be more sure that all the new teachers each quarter were duely informed and provided with information. We ended up with a Care Plan instead which seemed to do the trick since they weren't resisting any of the requests/provisions. it seemed a good compromise that may work in "friendlier" circumstances.

Tue Aug 6 2002 21:40:36 Eastern US
Nancy (Mom of Audrey, 7, dx'd at 6) from 207.89.168.181
Audrey attends a Catholic school that receives some Federal funds. I am fortunate that I teach at that school, and this year I will be her teacher. Next year we will be moving and I just want to plan ahead a little.

Tue Aug 6 2002 21:41:31 Eastern US
Crystal from 152.163.195.176
Sue, you need to do what works best for your situation. However, the ADA recommends that you document accommodations in both a 504 and HCP - just so that everyone is on the same page should questions arise.

Tue Aug 6 2002 21:42:01 Eastern US
Crystal from 152.163.195.176
Will Audrey attend Catholic school next year as well?

Tue Aug 6 2002 21:42:43 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
Sue, we had a 504 in place and met with all my son's teachers thru middle school, also never had a problem even in grammar school, but I think it's VITAL that everyone understands the rules

Tue Aug 6 2002 21:43:20 Eastern US
Nancy (Mom of Audrey, 7, dx'd at 6) from 207.89.168.181
We haven't decided that yet.

Tue Aug 6 2002 21:44:56 Eastern US
Sue (Evan,12 dx'97;Casey,7 dx'97) from 152.163.189.201
I would have pushed harder if needed The Care Plan contained everything i would have wanted in a 504 anyway. it was distributed to all necessary staff, and me. so i figure that is serves the same purpose.

Tue Aug 6 2002 21:45:00 Eastern US
Nancy (Mom of Matthew, 4, dx'd 6/11/02) from 12.82.72.83
Good Night everyone. Time to put kids to bed.

Tue Aug 6 2002 21:45:48 Eastern US
Crystal from 152.163.195.176
Good night Nancy!

Tue Aug 6 2002 21:46:07 Eastern US
Sue (Evan,12 dx'97;Casey,7 dx'97) from 152.163.189.201
Goodnight

Tue Aug 6 2002 21:46:45 Eastern US
Kathy (chris(m),17,pumper) from 66.185.84.206
just popped in for a few minutes. Just to let you know we do not have a 504 plan here in Ontario. I wish we did.

Tue Aug 6 2002 21:47:14 Eastern US
Crystal from 152.163.195.176
Does anyone else have questions, concerns, suggestions?

Tue Aug 6 2002 21:47:42 Eastern US
Crystal from 152.163.195.176
Kathy, how is your school situation? Is there a law/process comparable to our 504?

Tue Aug 6 2002 21:48:14 Eastern US
Sue (Evan,12 dx'97;Casey,7 dx'97) from 152.163.189.201
Crystal, do you work in the school setting?

Tue Aug 6 2002 21:48:30 Eastern US
Kathy (chris(m),17,pumper) from 66.185.84.206
My son who is 17 will not let me talk to his teachers. He assures me that he tells them about his "D" and what needs to be done.

Tue Aug 6 2002 21:49:25 Eastern US
Sue (Evan,12 dx'97;Casey,7 dx'97) from 152.163.189.201
Kathy - scary. very scary.

Tue Aug 6 2002 21:49:36 Eastern US
Crystal from 152.163.195.176
Sue, I am on the advocacy staff of the American Diabetes Association's National office and focus on school issues. I also have a 12 year old daughter with diabetes and have fought her school system and helped to push through diabetes school care legislation in VA.

Tue Aug 6 2002 21:50:16 Eastern US
Kathy (chris(m),17,pumper) from 66.185.84.206
No I do not belive there is a law and every school is different about testing and giving shots. When Chris was 1st diagnosed I met with his prinicapal, 2 teachers and the school secretary. I told them he was not coming back to class until we went through everthing. They were great but now in high school things are different.

Tue Aug 6 2002 21:50:20 Eastern US
rhonda ( Megan, 8, pumping) from 205.188.208.41
Does anyone keep pump supplies at the school or have any plans for disaster-type emergency?

Tue Aug 6 2002 21:50:58 Eastern US
Crystal from 152.163.195.176
What are the issues in high school? I hear more about elementary school issues in the context of lack of care and knowledge about diabetes.

Tue Aug 6 2002 21:51:12 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
Rhonda, we keep pump supplies in the school nurse's office.

Tue Aug 6 2002 21:51:21 Eastern US
Sue (Evan,12 dx'97;Casey,7 dx'97) from 152.163.189.201
wow. what is your opinion of what i said below about the school wanting to do a HCP instead of 504? like i said, as long as we're getting the results we need.

Tue Aug 6 2002 21:52:03 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
btw, I think disaster emergency is a great topic.

Tue Aug 6 2002 21:52:28 Eastern US
Sue (Evan,12 dx'97;Casey,7 dx'97) from 152.163.189.201
I'm lucky to be fairly close to the school and will go and change the set. i only keep emla there so the nurse can let her put it on while i drive there.

Tue Aug 6 2002 21:52:51 Eastern US
Kathy (chris(m),17,pumper) from 66.185.84.206
We keep supplies, even bought an extra inserter. Chris goes to school out of our district and the first time he had trouble he went to the vise principal who was the husband of our pharmaist. He made arrangements to get supplies right away, so now we keep everything at school, but in his locker not the office.

Tue Aug 6 2002 21:53:13 Eastern US
rhonda ( Megan, 8, pumping) from 205.188.208.41
I suggested keeping pump supplies in the health room. The school nurse did not think that was a good idea. She said someone would need to be trained.

Tue Aug 6 2002 21:53:37 Eastern US
Crystal from 152.163.195.176
Sue, a HCP doesn't replace a 504. However, the development of an actual 504 plan is not required in order to be covered by law. I do recommend writing a 504. If you do not have one, make sure all accommodations are included in the HCP. HCP is a document developed by you and your child's doctor. 504 is the document/mechanism through which the HCP is implemented.

Tue Aug 6 2002 21:54:33 Eastern US
Crystal from 152.163.195.176
Rhonda, your nurse and a few other school staff members should be trained on the pump. To the best of my knowledge, all of the pump companies are willing to provide on-site training to school personnel.

Tue Aug 6 2002 21:54:51 Eastern US
Kathy (chris(m),17,pumper) from 66.185.84.206
Here in Ontario we do not have school nurses at all, thats one issue and all schools have different policies. Chris just does his own thing and no one has questioned or bothered him. He is at the school of the arts in Music and his music teachers keep up and inform other teachers of problems.e

Tue Aug 6 2002 21:55:28 Eastern US
Crystal from 152.163.195.176
The training of personnel and the availability of trained personnel at all times should be included in your child's 504.

Tue Aug 6 2002 21:55:47 Eastern US
Sue (Evan,12 dx'97;Casey,7 dx'97) from 152.163.189.201
if the pump is minimed, call them and ask for the book for school staff. it's great and i let the nurse borrow it for as long as she wants.

Tue Aug 6 2002 21:56:18 Eastern US
Crystal from 152.163.195.176
Kathy, do you have a plan in place if Chris goes low and not physically able to self-treat?

Tue Aug 6 2002 21:57:23 Eastern US
rhonda ( Megan, 8, pumping) from 205.188.208.41
The nurse, teacher, assistant teacher and principal were trained on the basics of the pump. They were not trained on insertion procedures.

Tue Aug 6 2002 21:57:28 Eastern US
Crystal from 152.163.195.176
Pump companies have excellent videos that our school staff members have watched and obtained a lot of helpful info - in additional to hands-on training provided by Mini-Med.

Tue Aug 6 2002 21:58:09 Eastern US
Sue (Evan,12 dx'97;Casey,7 dx'97) from 152.163.189.201
thank you Crystal and goodnight all.

Tue Aug 6 2002 21:58:22 Eastern US
Crystal from 152.163.195.176
Pump training of school personnel should include insertion.

Tue Aug 6 2002 21:58:28 Eastern US
Kathy (chris(m),17,pumper) from 66.185.84.206
He has a few friends in each class who know about his diabeties and know to get help if he needs it. We trained a few kids due to school trips over night.

Tue Aug 6 2002 21:58:35 Eastern US
Crystal from 152.163.195.176
Good night Sue.

Tue Aug 6 2002 21:59:39 Eastern US
Crystal from 152.163.195.176
I have about 5 more minutes. Any other questions, issues, concerns, suggestions? Again, please log onto the ADA and CWD websites and call 1-800-DIABETES for school diabetes care and discrimination information.

Tue Aug 6 2002 22:00:18 Eastern US
Kathy (chris(m),17,pumper) from 66.185.84.206
Night all - good luck with beginning of school.

Tue Aug 6 2002 22:00:39 Eastern US
Crystal from 152.163.195.176
Anybody still there?

Tue Aug 6 2002 22:00:56 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
Hi all, since this is Jesses first year of full day school, I cannot decide if I am going to train him or his teacher, as far as when to test. Am thinking of a watch with alarms for him.

Tue Aug 6 2002 22:01:04 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
That's your home number, right Crystal ;-)?

Tue Aug 6 2002 22:01:16 Eastern US
Crystal from 152.163.195.176
Good night all.

Tue Aug 6 2002 22:01:27 Eastern US
rhonda ( Megan, 8, pumping) from 205.188.208.41
Megan currently has a healthcare plan. However we will be making a IEP due to a learning disability and I want to include Diabetes Management in this plan? Is it unreasonable to include insertion. The nurse has continuously said it was not a good idea.

Tue Aug 6 2002 22:02:12 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
taht would alleviate the issue of wondering if the subs, ect. Oops, looks like Im a day late and a unit short again...

Tue Aug 6 2002 22:03:06 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
You East Coast people .....Im always late. : )

Tue Aug 6 2002 22:03:20 Eastern US
Ellen (Zach 14, dx'd 2/89) from 64.12.96.107
Thanks Crystal you've been a GREAT help.

Tue Aug 6 2002 22:03:39 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
Hi all

Tue Aug 6 2002 22:04:13 Eastern US
rhonda ( Megan, 8, pumping) from 205.188.208.41
YOu answered my question earlier about insertion training. I will just have to stand firm on having staff learn insertion procedure. I will not approach it as an disaster-type situation. Thanks for your help. Have a good night.

Tue Aug 6 2002 22:04:20 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
I missed the whole thing rats

Tue Aug 6 2002 22:04:45 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
Hi Sandra, think we missed the party here. Is Colleen going into first grade?

Tue Aug 6 2002 22:05:19 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
Hi Dee, we used a watch but we have an aid

Tue Aug 6 2002 22:05:31 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
This will go into to the archives at some point so we can go back and read it Sandra.

Tue Aug 6 2002 22:05:58 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
she was all day kindergarten last year and her aid went to summer camp and will go on to 1st

Tue Aug 6 2002 22:06:03 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
There were plenty of aids in Kind. but none for first grade..

Tue Aug 6 2002 22:06:25 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
Boy, you have it made Sandra...

Tue Aug 6 2002 22:06:37 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
Dee will you be going into the parent chat now?

Tue Aug 6 2002 22:06:47 Eastern US
lmf (Mom of Rachel, 12, dx'd at 9) from 152.163.195.183
Has anyone found a watch with multiple alarms to remind BG check time?

Tue Aug 6 2002 22:06:51 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
Is the aid just for Colleen?

Tue Aug 6 2002 22:07:03 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
yes it was groundbreaking

Tue Aug 6 2002 22:07:15 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
yes

Tue Aug 6 2002 22:07:39 Eastern US
lmf (Mom of Rachel, 12, dx'd at 8) from 152.163.195.183
Where?

Tue Aug 6 2002 22:08:10 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
There is an expensive one on the market lmf...cald the medose, around 100$, made just for kids with Diabetes. You can find it under products on this site.

Tue Aug 6 2002 22:08:39 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
Ironman watch at walmart under 40 dollars alarms set through data link on computer ...it can take a rough time and keep going ...

Tue Aug 6 2002 22:09:28 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
we taped it to her fanny pack which she wears all the time... and it survived...

Tue Aug 6 2002 22:09:49 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
I have found anothr for 50$ think it is a Casio. The iron man had to many bells and whistles for a 6 year old. He needs something without so many buttons, and smaller.

Tue Aug 6 2002 22:10:15 Eastern US
lmf (Mom of Rachel, 12, dx'd at 8) from 152.163.195.183
Does it have metal on it? Rachel is alergic to metal.

Tue Aug 6 2002 22:11:33 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
Colleen doesn't wear hers as it is a man's and huge.... so the metal not an issue

Tue Aug 6 2002 22:11:41 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
I e-mailed the medose people and told them they were taking advantage of kids with D for charging such a high cost for an item that would likely get lost...hoped they would comp me one but didnt get the watch or any sympathy for that matter either...lol

Tue Aug 6 2002 22:12:36 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
LOL

Tue Aug 6 2002 22:12:50 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
The medose also had a vibrating function that I thought would be nice...

Tue Aug 6 2002 22:13:37 Eastern US
A Friend (A Friend) from 24.48.155.220
Anyone know Dave Marshall?

Tue Aug 6 2002 22:13:51 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
my friends 6 yr old hated the vibrating feature...

Tue Aug 6 2002 22:14:14 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
Jesse did pretty well on half days last year, just new he had to test after recess and fell into the habit.

Tue Aug 6 2002 22:14:23 Eastern US
lmf (Mom of Rachel, 12, dx'd at 8) from 152.163.195.183
The vibrating function would be nice. The schools are so sensitive about alarms (afraid a kid may be caring a pager).

Tue Aug 6 2002 22:15:31 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
I would think the vibrating would be less conspicuous than the alarm and Jesse does not like to draw attention to himself..

Tue Aug 6 2002 22:16:32 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
Well forget about the noise, with one teacher, 20 kids and no aids, I will be setting a big a$$ alarm clock right up on his teachers desk...lol

Tue Aug 6 2002 22:16:50 Eastern US
lmf (Mom of Rachel, 12, dx'd at 8) from 152.163.195.183
Rachel uses the vibrating on her pump for school. Drives me crazy at home since I can't hear the alarms.

Tue Aug 6 2002 22:16:58 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
LOL rolling on the floor

Tue Aug 6 2002 22:18:24 Eastern US
Dee (Jesse 9 dxd 9-99) from 209.166.65.139
Well, the never ending pile of laundry is calling me, the upside is Jesse is going into a looping class, meaning he will have the same teacher for first and second grade, will give them time to learn a little more...I hope. Take care all.

Tue Aug 6 2002 22:19:31 Eastern US
lmf (Mom of Rachel, 12, dx'd at 8) from 152.163.195.183
Good night.

Tue Aug 6 2002 22:19:34 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
my nephew did that looping it was terrific good luck

Tue Aug 6 2002 22:20:00 Eastern US
Sandra, Colleen 6 (gotinsulin@aol.com,Massachusetts) from 205.188.208.41
good night

Tue Aug 6 2002 22:32:04 Eastern US
cyndyt (mom of Ben) from 209.226.132.8
Hi I'm new at this

Tue Aug 6 2002 22:32:22 Eastern US
cyndyt (mom of Ben) from 209.226.132.8
is anyone still on

Tue Aug 6 2002 22:33:47 Eastern US
cyndyt (mom of Ben) from 209.226.132.8
Hi I'm new at this
How is everyon tonight

Tue Aug 6 2002 22:35:22 Eastern US
cookie (mom of Rafy 13 dxed at 11) from 64.12.96.107
hello

Tue Aug 6 2002 22:50:15 Eastern US
Dawn (Mom of Lisa dx'd at7) from 66.177.160.64
hi everyone

Tue Aug 6 2002 22:52:19 Eastern US
Dawn (Mom of Lisa dx'd at7) from 66.177.160.64
is anyone in room that child is using a pump
i want to know the best way to wear it, and should i be buying cases for it now. She is getting one on sept. 23



                 
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Last Updated: Thursday August 29, 2002 21:04:32
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