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  Back to Chat School Chat

Back to School chat with Crystal Jackson

On August 22, 2002, Crystal Jackson from the ADA joined us for the second of two back-to-school chats.

Chat Room Administrator Thu Aug 22 2002 20:15:00 Eastern US
The 'Back to School' chat room is now open.


Thu Aug 22 2002 20:53:44 Eastern US
Annapolis (Mom, newly dx'd son, 10) from 68.52.171.166
Is anyone here yet?

Thu Aug 22 2002 20:54:39 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Hi there....I'm here!

Thu Aug 22 2002 20:55:04 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
so your son is newly dx? when?

Thu Aug 22 2002 20:55:25 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
Hello

Thu Aug 22 2002 20:55:49 Eastern US
Heidyn (type 1 college student) from 164.106.22.59
Hello

Thu Aug 22 2002 20:55:51 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Hi Michelle!

Thu Aug 22 2002 20:55:57 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
hi all

Thu Aug 22 2002 20:56:04 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Hi Heidyn!

Thu Aug 22 2002 20:56:22 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
hello Chanie

Thu Aug 22 2002 20:58:05 Eastern US
Michelle(RI) (Adam 8 dx'd 2/00) from 68.9.4.48
Hi Chanie

Thu Aug 22 2002 20:58:14 Eastern US
Lisamb (Mom of Taylor, 4, dx'd 6 months ago) from 24.24.104.50
Hi to all

Thu Aug 22 2002 20:58:40 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
Hi everyone

Thu Aug 22 2002 20:58:58 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Good evening everyone. Ready for school to start?

Thu Aug 22 2002 20:59:05 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Looks like we're early.....

Thu Aug 22 2002 20:59:22 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Hi Lisa, Cyndy!

Thu Aug 22 2002 20:59:24 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Better be; started here 8 days ago :-)

Thu Aug 22 2002 20:59:43 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Hi Jeff!

Thu Aug 22 2002 20:59:46 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
not in the least

Thu Aug 22 2002 20:59:54 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Wow! How did Marissa get to be so old???

Thu Aug 22 2002 21:00:03 Eastern US
Michelle(RI) (Adam 8 dx'd 2/00) from 68.9.4.48
We start Tuesday

Thu Aug 22 2002 21:00:04 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Yeah, we started last week, too....

Thu Aug 22 2002 21:00:06 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Brenda and I are sooooo ready for the kids to go back to school!

Thu Aug 22 2002 21:00:18 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
(early, judith, it is 4 am here!!)

Thu Aug 22 2002 21:00:21 Eastern US
Heidyn (type 1 college student) from 164.106.22.59
No..

Thu Aug 22 2002 21:00:38 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Judith, Marissa turns 15 in nine days. :-o

Thu Aug 22 2002 21:00:38 Eastern US
Lisamb (Mom of Taylor, 4, dx'd 6 months ago) from 24.24.104.50
Has anyone started school yet? We started this week and boy has it been hard.

Thu Aug 22 2002 21:00:54 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
I've never done the chat thing before please be patient with me

Thu Aug 22 2002 21:01:35 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
we all started out here at some point cyndy :-)

Thu Aug 22 2002 21:02:04 Eastern US
Connie (MI) (Mike, 16 dx 12/97) from 64.12.96.107
Good evening :-)

Thu Aug 22 2002 21:02:07 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
I tried to call today to arrange to meet with Ben's teacher but no one is in the school until next week.

Thu Aug 22 2002 21:02:48 Eastern US
Michelle(RI) (Adam 8 dx'd 2/00) from 68.9.4.48
Cyndy you will be fine. This is easy compared to diabetes

Thu Aug 22 2002 21:02:57 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Hi Connie

Thu Aug 22 2002 21:03:08 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
Ben will have the same teacher as last year. I just want to tell her what we have learned over the summer and what she will need to watch for.

Thu Aug 22 2002 21:03:22 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Dave and I were anxious for school to start. Only complication so far is that the health aide who's been around for his previous 4 yrs (and who does a decent job) broke her ankle and is out for 4 weeks. Don't know what this new aide knows. Will have to find out tomorrow.

Thu Aug 22 2002 21:03:27 Eastern US
Lisamb (Mom of Taylor, 4, dx'd 6 months ago) from 24.24.104.50
Our school has been great. It's ou r numbers all over the board that is stressing me out.

Thu Aug 22 2002 21:03:28 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
I have a 504 meeting scheduled for Monday afternoon....I think I have all my ducks in a row! lol

Thu Aug 22 2002 21:03:50 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
What's been hard, Lisa?

Thu Aug 22 2002 21:04:03 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Has everyone written a 504? We have several examples online at:
http://www.childrenwithdiabetes.com/504/

Thu Aug 22 2002 21:04:05 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
Having half my stomach removed and a year long recovery is easier than D

Thu Aug 22 2002 21:04:20 Eastern US
Diane (Mom of Brian, 12, dx'd @11) from 209.112.93.123
Hi, first time chatter. Brian starts school 9/3. This year the bus picks him up at 6:20am, he eats lunch at 10:40, dismissal is 2:40 and then he stays for sports until 4:30. I'm a little nervous as to how his numbers are going to look that first week since lunch is so much earlier than normal.

Thu Aug 22 2002 21:04:41 Eastern US
Connie (MI) (Mike, 16 dx 12/97) from 64.12.96.107
Mike started back this week... where did summer go? Hi Judith... how are you?

Thu Aug 22 2002 21:05:16 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Teachers are so stressed out the first few days that it's hard to get their attention re: diabetes. However, we also don't want our kids at school until we're assured that folks there can care for them.

Thu Aug 22 2002 21:05:21 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Thanks, Jeff for posting those 504's....they've really helped....once I get ours approved and signed, I'll send it to you to post.

Thu Aug 22 2002 21:05:36 Eastern US
Lisamb (Mom of Taylor, 4, dx'd 6 months ago) from 24.24.104.50
We are trying to adjust to a new schedule which means different insulin times and injections. The juggling act will take a while to get used to.

Thu Aug 22 2002 21:05:42 Eastern US
Diane (Mom of Brian, 12, dx'd @11) from 209.112.93.123
We don't have a 504 but we do have a school plan written up by the school nurse. Is it necessary to have a 504 if the plan specifies his needs?

Thu Aug 22 2002 21:05:51 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
JakesMom -- thanks! The more examples we have online the better.

Thu Aug 22 2002 21:06:01 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Hi everyone

Thu Aug 22 2002 21:06:07 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
Did you all find it hard to send them to school after dx. Ben didn't really go back after he was dxed in June

Thu Aug 22 2002 21:06:50 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
That will take some adjustments, Diane - esp school days vs weekends. Doubt you'll want to keep to the same schedule on Sat and Sunday

Thu Aug 22 2002 21:06:51 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Anyone having a problem getting to speak to the teachers?

Thu Aug 22 2002 21:07:07 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Cyndy: Our daugther was diagnosed when she was 24 months old. Sending her to daycare after diagnosis was very hard. Sending her to school after that was relatively easy.

Thu Aug 22 2002 21:07:09 Eastern US
Michelle(RI) (Adam 8 dx'd 2/00) from 68.9.4.48
I am but the nurse took care of it for me

Thu Aug 22 2002 21:07:24 Eastern US
Connie (MI) (Mike, 16 dx 12/97) from 64.12.96.107
I have a question for the pumpers.... Mike is going back on the pump beginning of sept :-) What do you do differently then.... I hand out a Med sheet to each teacher every year... I have a meeting with the principal.

Thu Aug 22 2002 21:07:37 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Cyndy, great that Ben is having the same teacher again. She knows what his normal behavior is, so is more likely to quickly pick up on changes that might reflect bg problems.

Thu Aug 22 2002 21:07:43 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
How do insulin needs cahnge with school?

Thu Aug 22 2002 21:07:53 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
i didnt realize marissa was diagnosed so young, jeff. what type of care were you able to get for her in the day care/preschool setting at that point?

Thu Aug 22 2002 21:08:11 Eastern US
BrianGood from 64.12.96.107
is your name rose michelle(RI)

Thu Aug 22 2002 21:08:23 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Connie, Minimed and Disetronic each have good pump booklets for use by school personnel....

Thu Aug 22 2002 21:08:26 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Michelle, the nurse won't be at school until the first day, and the principal appears to be avoiding me

Thu Aug 22 2002 21:08:32 Eastern US
BrianGood from 64.12.96.107
i am going into 7 grade

Thu Aug 22 2002 21:08:49 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
The teacher is part of the reason I am happy that they retained

Thu Aug 22 2002 21:09:05 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
I have home numbers for most of them. They definitely know who I am

Thu Aug 22 2002 21:09:09 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Cyndy: Many kids aren't as active at school, so their insulin need go up a bit.

Chanie: Marissa was in in-home daycare and the provider came to our house to learn how to take care of Marissa. The provider was awesome -- we were very fortunate.

Thu Aug 22 2002 21:09:19 Eastern US
BrianGood from 64.12.96.107
so michelle(RI) is a nuse at a school

Thu Aug 22 2002 21:09:26 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
The stress of starting school may send numbers up. Kids may be more or less active at school than they were at home during the summer. Meals may be at different times, different kinds and amounts of food. Lots of factors to consider!

Thu Aug 22 2002 21:09:43 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Hi Brian.....

Thu Aug 22 2002 21:10:11 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
judith - how can i get the minimed book for school personnel?

Thu Aug 22 2002 21:10:18 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Hi - Crystal Jackson here. Sorry to be joining you late.

Thu Aug 22 2002 21:10:43 Eastern US
Connie (MI) (Mike, 16 dx 12/97) from 64.12.96.107
Judith... thanks I'll check into that! Do you keep an insulin pen at school in case of pump problem? Mike's school is between 20 min to 45 min away depending on time of day.

Thu Aug 22 2002 21:10:46 Eastern US
Lisamb (Mom of Taylor, 4, dx'd 6 months ago) from 24.24.104.50
Judith you hit the nail on the head!!!

Thu Aug 22 2002 21:10:49 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
we've been very lucky too, jeff. i'm nervous every year, and so far, it has worked out better than we could have hoped!

Thu Aug 22 2002 21:10:55 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Should be able to order it from their website, Chanie - www.minimed.com - but see if you can get a free copy from your rep.

Thu Aug 22 2002 21:10:59 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Does everyone have 504 and Health Care Plans squared away for the school year?

Thu Aug 22 2002 21:10:59 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
Kelly in our area they have a professional day the day before school begins. You might just want to stop in

Thu Aug 22 2002 21:11:02 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
How do you get the teachers home numbers? This year Jillian will be in 7th grade and has 11 teachers, not including lunch monitors. I'd be on the phone forever!

Thu Aug 22 2002 21:11:19 Eastern US
Shannon (Friends) from 207.94.147.87
hello everyone

Thu Aug 22 2002 21:11:42 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Hi everyone - School starts for Sam on Monday, and I just dropped off a letter at school - to the principal - reminding him to give a copy of Sam's 504 and an excel guidesheet that we use to each and every teacher who will have Sam this year. He has some of the same teachers, but not all of them are familiar with him.

Thu Aug 22 2002 21:11:51 Eastern US
Shannon (Friends) from 207.94.147.87
does anyone in here have msn or hotmail

Thu Aug 22 2002 21:11:53 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
I am not sure how long I will be able to sit and chat my roughing up still has me in pain

Thu Aug 22 2002 21:11:55 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Yes, I have a box of stuff in the health office: extra insulin, sets, reservoirs, pen, needles, syringes, meter and strips, ketone strips, juice, crackers, glucose tabs, gel..... :-)

Thu Aug 22 2002 21:12:05 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Crystal....we have a 504 meeting scheduled for Monday after school...

Thu Aug 22 2002 21:12:17 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Crystal, I can't even get the principal to call me back, let alone finalize a 504 plan

Thu Aug 22 2002 21:12:25 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
Kelly phone book and outside activities. The secreatary I know from scouts, principal from church, nurse I got from the phone book LOL

Thu Aug 22 2002 21:12:30 Eastern US
Diane (Mom of Brian, 12, dx'd @11) from 209.112.93.123
Crystal I posted earlier but will repeat. We have a health plan written by the school nurse for our son's needs. Is it really necessary to have a 504 or will this other document be sufficient? He is in middle school.

Thu Aug 22 2002 21:12:47 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
I've actually turned in the school's forms for d already. Often takes me until May to get them in! :-)

Thu Aug 22 2002 21:12:57 Eastern US
Annapolis from 68.52.171.166
Can anyone recommend an easy reference for my son's 5th grade teachers?

Thu Aug 22 2002 21:13:00 Eastern US
BrianGood from 64.12.96.107
are we allowed to give out phone numbers

Thu Aug 22 2002 21:13:16 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
kelly - someone once mentioned in here that they made up a file with a PICTURE of their kid on it to make sure the teachers will recognize who they are talking about, especially at the begining

Thu Aug 22 2002 21:13:17 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Kelly, what we normally do for my 7th grade daughter is meet with key staff members (school nurse, dean, guidance counselor) and then school nurse meets with rest of staff. It worked very well for Devin's first year of middle school.

Thu Aug 22 2002 21:13:38 Eastern US
Shannon (Friends) from 207.94.147.87
does anyone in here have msn or hotmail

Thu Aug 22 2002 21:13:58 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Sam has instructions (from me) that if anyone questions him taking care of himself, he is to just leave the classroom, go down to the office, and the principal and admin assistant will take care of things. He's worried that these first few days of school, one of the teachers might question him when he needs to test or needs a drink, or to call me...

Thu Aug 22 2002 21:14:01 Eastern US
hockeyrules from 64.12.96.107
i do

Thu Aug 22 2002 21:14:03 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
However, I usually make up a 1-2 page sheet with a few generalities about d, specifics about Dave, esp how to recognize and treat lows. I include his picture, make enough for each teacher, health aide, school secretaries, lunch ladies, (bus drivers), coaches, etc

Thu Aug 22 2002 21:14:23 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Shannon - why are you asking?

Thu Aug 22 2002 21:14:25 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
judith - will the school change reseviors/sites or give injections? or does david have that stuff so he can do it himself?

Thu Aug 22 2002 21:14:26 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
Shannon I have it but I don't use it

Thu Aug 22 2002 21:14:30 Eastern US
Shannon (Friends) from 207.94.147.87
hey hockey r u on it right now

Thu Aug 22 2002 21:14:37 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
crystal, shouldn't the 504 be in place before school actually starts? Same with informing the teachers?

Thu Aug 22 2002 21:14:40 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
I have msn

Thu Aug 22 2002 21:14:46 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Lots of good info here at the "Diabetes at School" section
http://www.childrenwithdiabetes.com/d_0q_000.htm

Thu Aug 22 2002 21:14:54 Eastern US
Shannon (Friends) from 207.94.147.87
because i do and i need some one to talk to

Thu Aug 22 2002 21:15:11 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Hey, kids - why not move over to the teen room now?

Thu Aug 22 2002 21:15:18 Eastern US
Shannon (Friends) from 207.94.147.87
could yall give me ur email addresses please

Thu Aug 22 2002 21:15:25 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Diane, a health care plan is normally a document developed by your and your doctor. A 504 contains provisions to implement the hcp. No, a separate document isn't necessary to be protected under 504, but recommended. HCP address the medical needs (target range, how to treat lows, etc) and the 504 includes provisions for excessive absence, access to bathroom, classroom testing. I'd highly recommend it.

Thu Aug 22 2002 21:15:25 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Shannon and hockeyrules ... perhaps you want to jump to the teens room ...

Thu Aug 22 2002 21:15:27 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
what's wrong shannon?

Thu Aug 22 2002 21:15:31 Eastern US
Shannon (Friends) from 207.94.147.87
ok

Thu Aug 22 2002 21:15:54 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
We don't have 504's here. Do I need to work on an iep for ben

Thu Aug 22 2002 21:16:07 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Dave does all that himself at 16 :-) Schools would not do any of it; will not give glucagon. I'm working on that! (Though not for Dave, as he's allergic)

Thu Aug 22 2002 21:16:12 Eastern US
hockeyrules from 64.12.96.107
my email address is skateboardergood@aol.com

Thu Aug 22 2002 21:16:37 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
we have an IEP but I will be changing it shortly due to issues at the end of this year

Thu Aug 22 2002 21:16:39 Eastern US
Shannon (Friends) from 207.94.147.87
could all the teens go to the teens chat rooom please

Thu Aug 22 2002 21:17:05 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Kelly, it's preferable to have the 504 in place before the beginning of the school year, but sometimes the reality of it is difficult. Kids' needs change during the summer and staff usually aren't available until the week before school starts. My kids' school starts on Monday, but we won't be able to meet to sign the 504 until Thurs. which is fine in our case because we have no issues.

Thu Aug 22 2002 21:17:16 Eastern US
Annapolis from 68.52.171.166
Anyone - is your child permitted to test at his/her desk?

Thu Aug 22 2002 21:17:42 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
We really needed the "excessive absence" part of the 504 plan last year. The school preferred to send Sam home when he was high and not feeling well - which was at least once a week. His grades didn't suffer, but he missed a LOT of school. We kept getting the routine notices about not passing classes for "x number" of absences, but we were protected with the 504.

Thu Aug 22 2002 21:17:55 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
I have forms from the school and Have to give then 5 colour pichures of Ben. the cde will be going in to the school and giving them an inservice on caring for Ben

Thu Aug 22 2002 21:17:59 Eastern US
Shannon (Friends) from 207.94.147.87
does anyone in here have msn or hotmail

Thu Aug 22 2002 21:18:00 Eastern US
BrianGood from 64.12.96.107
do the 8th graders have food fights at the end of the school year judith

Thu Aug 22 2002 21:18:06 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Am I asking too much to meet with Jillian's teachers? I don't feel comfortable leaving it up to the nurse.

Thu Aug 22 2002 21:18:08 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Cyndy, does been have special needs that impact his academic performance and thus the IEP rather than 504?

Thu Aug 22 2002 21:18:34 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Dave (and Vanya, when he was here) is permitted to test wherever/whenever. I find the best policy is to be polite but firm, TELL the school what you'll be doing - rather than ask.

Thu Aug 22 2002 21:18:41 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
allergic to glucagon?!
i'm just trying to gauge how much we should teach the aide we will have this year. last year she was an 18 year old volunteer, this year, paid. plus, i'm getting more 'pushy' so maybe i'll ask for more!

Thu Aug 22 2002 21:18:42 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
We have the same problem. They send him home everytime he is high. Can we fight that?

Thu Aug 22 2002 21:18:47 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
One other resource we have online here is the schools database, which parents have updated to reflect blood testing rules and nurse status by school. The database is searchable in many ways and begins at:

http://www.childrenwithdiabetes.com/schools/

Thu Aug 22 2002 21:18:49 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
The absence issue is the MAIN reason I'm pushing for the 504 this year.....last year Jake had 5 absences on his record that shouldn't have been counted.

Thu Aug 22 2002 21:19:00 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Kelly, you are not asking too much, but it is difficult to meet with all middle school teachers at the same time. If you feel you need to meet with them, then perhaps you could set up separate meeting times for eachone.

Thu Aug 22 2002 21:19:01 Eastern US
Shannon (Friends) from 207.94.147.87
does anyone in here have msn or hotmail

Thu Aug 22 2002 21:19:05 Eastern US
BrianGood from 64.12.96.107
do all of you people just talk about back to school

Thu Aug 22 2002 21:19:19 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Jillian checks in class.

Thu Aug 22 2002 21:19:23 Eastern US
Shannon (Friends) from 207.94.147.87
does anyone in here have msn or hotmail

Thu Aug 22 2002 21:19:37 Eastern US
BrianGood from 64.12.96.107
when i have a high blood sugar i do not go home

Thu Aug 22 2002 21:19:38 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
polite but firm works for us. they dont know what most kids do, so if you are authoritative about what your kid -needs- then they accept it (without being too intimidating, of course)

Thu Aug 22 2002 21:19:46 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Kelly - Meet with the teachers if you can. What if the nurse isn't there? It may be that they really want to meet with YOU because they have questions that the nurse can't answer!

Thu Aug 22 2002 21:19:52 Eastern US
Shannon (Friends) from 207.94.147.87
does anyone in here have msn or hotmail

Thu Aug 22 2002 21:19:55 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
School district near our endo sends kids home if bg is out of range!! That meant a teen with a low had to drive himself home to an empty house!!! CRAZY!! Find out what your school does....

Thu Aug 22 2002 21:20:03 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
We don't hav e 504's here.

Thu Aug 22 2002 21:20:13 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Teens, please move to another room or I will be forced to make you leave ...

Thu Aug 22 2002 21:20:33 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Your child should not be sent home if high - as long as s/he is not vomitting, nauseous and unable to participate in class. If Devin has large ketones then I think it appropriate that she comes home because something else is probably going on - ear infection, strep, etc.

Thu Aug 22 2002 21:20:36 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Also, if you have problems, get a letter from your doc "ordering" what you need. Few schools want to take the legal risks of disobeying doctors' orders.

Thu Aug 22 2002 21:20:38 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Brian - I know. Lots of kids with high bg don't go home. Sam gets migraines when his bg's go high, and he is pretty miserable. So, I have him lie down on the couch at home (we live a block from school), and when he's back in range, he goes back to class.

Thu Aug 22 2002 21:20:47 Eastern US
Shannon (Friends) from 207.94.147.87
i will if anyone eles does

Thu Aug 22 2002 21:20:47 Eastern US
BrianGood from 64.12.96.107
how old are you Jeff Hitchcock

Thu Aug 22 2002 21:20:59 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Cyndy, 504s are developed and implemented pursuant to federal law. Do you live in the US?

Thu Aug 22 2002 21:21:02 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Jeff....do it

Thu Aug 22 2002 21:21:05 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Brian ... too old :-) I run this site.

Thu Aug 22 2002 21:21:06 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Brian ... too old :-) I run this site.

Thu Aug 22 2002 21:21:07 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
oh, smart. put a teen with a low into a car..
why do they send home if high?

Thu Aug 22 2002 21:21:54 Eastern US
BrianGood from 64.12.96.107
at the end of the year do kids have food fights

Thu Aug 22 2002 21:22:00 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
504s should clearly set out when parents should be called - which means kids shouldn't be coming home for every bg out of range.

Thu Aug 22 2002 21:22:00 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Oh, Brian. Do NOT mess with Jeff. YOu have no idea...

Thu Aug 22 2002 21:22:15 Eastern US
Shannon (Friends) from 207.94.147.87
hello

Thu Aug 22 2002 21:22:16 Eastern US
Annapolis from 68.52.171.166
So...I'm new to this - son just diagnosed in June - you mean they'll send him home when he gets to high? He's without symptoms when he's high (so far).

Thu Aug 22 2002 21:22:24 Eastern US
Shannon (Friends) from 207.94.147.87
does anyone in here have msn or hotmail

Thu Aug 22 2002 21:22:28 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
Do they need to come home if Low

Thu Aug 22 2002 21:22:31 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Sad, sad situation here a few years ago: a 14y/o girl went home vomiting. Apparently went to bed, without getting any help. Never waked. Died in DKA. :-(

Thu Aug 22 2002 21:23:13 Eastern US
Patrick from 207.94.147.87
does anyone in here have msn or hotmail

Thu Aug 22 2002 21:23:14 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Jillian was never sent home for highs, but I have taken her out of school for them because she gets very emotional. If she's crying and can't seem to stop, I go get her.

Thu Aug 22 2002 21:23:17 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
You need to decide (with your health care team) when you need to be notified, what you want done at various numbers. I'd certainly want my child home if he had large ketones.....

Thu Aug 22 2002 21:23:17 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Jeff, can you please escort Shannon and Brian out of the room?

Thu Aug 22 2002 21:23:32 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
That is horrible Judith! Did the school send the girl home without anyone home? inexcusable.

Thu Aug 22 2002 21:23:35 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
I should clarify so you all don't think we're really strange here in Michigan (or at least not for this reason!). We don't have a school nurse. I work from home (for CWD). School is a block away - Sam could lean out the window and call his bg to me. I PREFER that he comes home because he feels horrible when he is high, and his bg is over 300 at least once a week. Very unpredictable, and I personally want to deal with it - I don't want a school administrator treating him.

Thu Aug 22 2002 21:23:38 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
we actually once dealt with dka in school/nursery. she wanted to stay with her friends, and the endo said if we could be on top of it, why not. so i stayed in the room, checked her bg, ketones, gave water, etc. and called the endo about every 40 minutes. we kept her out of the hospital, and the staff was great about helping.

Thu Aug 22 2002 21:23:40 Eastern US
Patrick from 207.94.147.87
does anyone in here have msn or hotmail

Thu Aug 22 2002 21:23:42 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Yes, teens, let's move to the teens room ...

Thu Aug 22 2002 21:23:43 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Please push the buttons, Jeff :-)

Thu Aug 22 2002 21:23:51 Eastern US
BrianGood from 64.12.96.107
i am not getting out of here

Thu Aug 22 2002 21:24:11 Eastern US
BrianGood from 64.12.96.107
why do we need to leave

Thu Aug 22 2002 21:24:27 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Do you have provisions for your kids to take academic tests at alternate times if their bg are out of range?

Thu Aug 22 2002 21:24:29 Eastern US
Patrick from 207.94.147.87
if u answer my question ill leave

Thu Aug 22 2002 21:24:38 Eastern US
Patrick from 207.94.147.87
does anyone in here have msn or hotmail

Thu Aug 22 2002 21:24:45 Eastern US
BrianGood from 64.12.96.107
this is a chat room everyone is allowed to chat in here

Thu Aug 22 2002 21:24:56 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
Ben is hitting at least one 36 to 54 a day.

Thu Aug 22 2002 21:24:57 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
Judith they send Adam home with Trace ketones and I have trouble getting them to understand that I want him to drink water to flush them out

Thu Aug 22 2002 21:25:00 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Glad you are here to experience all this, Jeff... :-) It's become a daily ritual, I'm afraid.

Thu Aug 22 2002 21:25:03 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Crystal....that's one of the things in my 504....I hope I'm ready...

Thu Aug 22 2002 21:25:13 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
BrianGood and Shannon, this room is for parents to discuss back-to-school issues. If you have something contructive to add, you are welcome. If you're just here to chit-chat, please move to another room. I don't want to ban you, but I can and will.

Thu Aug 22 2002 21:25:38 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
:-( Cyndy. Have you talked to your team about adjusting his insulin?

Thu Aug 22 2002 21:25:39 Eastern US
Annapolis from 68.52.171.166
Our school nurse suggested that he test before he gets on the bus in the afternoon for the first couple of weeks, and she'll hang onto him and call me for pickup if he is low. I thought this was agreat idea. I

Thu Aug 22 2002 21:25:41 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Crystal, can you discuss the issue of kids taking standardized tests... and what if bg is high or low before or during the test, etc.? What is your take on this? What do you do for Devin as a standard?

Thu Aug 22 2002 21:25:50 Eastern US
Patrick from 207.94.147.87
ok

Thu Aug 22 2002 21:25:58 Eastern US
BrianGood from 64.12.96.107
i am now leaving now

Thu Aug 22 2002 21:26:11 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
JakesMom, sounds like you are ready! Make sure you include a provision that requires the teacher to spend time with your child for missed instruction due to time missed from class for diabetes care, illness, etc.

Thu Aug 22 2002 21:26:16 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Standardized tests (PSAT) is an issue for Marissa this year. How do we deal with that from an accommodation perspective?

Thu Aug 22 2002 21:26:19 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Great idea, Annapolis.

Thu Aug 22 2002 21:26:40 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
we also live about 2 blocks from the school, so i can be there quickly if need be and when things are 'off' i can go and hang out there to take care of things. we've found our cellphone to be invaluable.

Thu Aug 22 2002 21:26:40 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Oh! I'll add that before the meeting on Monday....

Thu Aug 22 2002 21:26:49 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
good idea about the bus, annapolis

Thu Aug 22 2002 21:27:00 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Does anyone have a provision in their 504 for pump storage in the event of a disconnect? Is it your school's responsibility to safeguard or your child's?

Thu Aug 22 2002 21:27:38 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Crystal ... never thought of that. Marissa keeps site stuff at school and has put new sites in many times.

Thu Aug 22 2002 21:28:09 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
I never thought that would be an issue...

Thu Aug 22 2002 21:28:10 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
why disconnect?

Thu Aug 22 2002 21:28:14 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Guess that would depend on the age of the child, Crystal.... Hadn't considered it.

Thu Aug 22 2002 21:28:32 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
I am just going to write a letter and meet with his teachers to explain what to watch for.

Thu Aug 22 2002 21:28:40 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
We switch to injection mode if the pump snafus. Sam just tucks it in his pocket and disconnects everything. I think younger kids might have a provision for giving it to an adult. What do you advise?

Thu Aug 22 2002 21:28:57 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Standardized tests - need to write this into your 504. If Devin feels high or low she can check bg before test and elect to take it at another time - without penalty. We have a provision in her plan that she may have a snack and water at her desk during stand. testing. It has never, ever been an issue for us.

Thu Aug 22 2002 21:29:14 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
I do suggest that you tell school personnel that if they'd ever need to "stop" the pump, during an emergency low, that the easiest/best thing to do is simply cut the tubing. No damage to the kid or the pump.

Thu Aug 22 2002 21:29:18 Eastern US
Michelle(RI) (Adam 8 dx'd 2/00) from 68.9.4.48
Does anyone have a cellphone for their child to use during school?

Thu Aug 22 2002 21:30:05 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Vanya took the PSAT and SAT. He took glucose tabs in his pocket. That was his only "accommodation"

Thu Aug 22 2002 21:30:11 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Michelle - I was just going to ask that! :-)
We got Sam a cell phone this summer and he's used it a lot, but I think we'll just let him use the office phone from school. I think a cell would be an attractive thing to steal.

Thu Aug 22 2002 21:30:13 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
With the PSAT, I'd recommend contacting their disability administration up front and going from there. Kids should be able to take in their bg meters, snack, water. What may be more of a problem is getting a break for the bathroom, but you should be able to work that out up front.

Thu Aug 22 2002 21:30:22 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Michelle -- sadly, yes, Marissa has her own cell phone (an old one of mine).

Thu Aug 22 2002 21:30:26 Eastern US
Annapolis from 68.52.171.166
Michelle, we're considering it.

Thu Aug 22 2002 21:30:41 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
we ussed to give a cellphone to her when she was in a family daycare enviornment and the woman running it didnt have one, in case they went to the park, etc.

Thu Aug 22 2002 21:31:24 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
we're considering a cell phone also

Thu Aug 22 2002 21:31:42 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
do you regularly disconnect on a low? we always leave it, figuring the insulin she is getting now (if any) wont kick in until later anyway

Thu Aug 22 2002 21:31:58 Eastern US
Michelle(RI) (Adam 8 dx'd 2/00) from 68.9.4.48
Adam is only 8 but I want to get one just for field trips and stuff. This way they can't give us any grief. I could actually walk him through over the phone

Thu Aug 22 2002 21:32:06 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Cell phones around here (Cincinnati) are pretty cheap. It costs me $10 a month to add Marissa's phones to my account and share the minutes.

Thu Aug 22 2002 21:32:18 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Does anyone have kids doing sports after school this fall? Those days get pretty long - lots of opportunities for highs and lows.

Thu Aug 22 2002 21:32:31 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
A lot of parents ask about cell phones and encounter resistance from the school. I do not a parent would be able to file a claim with OCR successfully via denial of cell phone usage. I recommend the normal channels of using the office phone.I want to encourage independence in my daughter and think letting her have a cell phone would have the opposite effect. Just being honest here.

Thu Aug 22 2002 21:32:34 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Would only suggest disconnecting for a very serious low....

Thu Aug 22 2002 21:32:37 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
When my 13 yr old goes out with her firends I give them my cell phone in case Sarah seizures

Thu Aug 22 2002 21:32:47 Eastern US
Michelle(RI) (Adam 8 dx'd 2/00) from 68.9.4.48
Laura we have soccer afterschool

Thu Aug 22 2002 21:32:58 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6.5 yrs) from 205.188.208.41
Crystal - do you find yourself fighting the same battles over & over in neighboring districts?? Why

Thu Aug 22 2002 21:33:14 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Jake starts soccer practice tomorrow.

Thu Aug 22 2002 21:33:18 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Write a provision in your 504 that the school must provide coverage for all school sponsored extracurricular activities - sports included!

Thu Aug 22 2002 21:33:18 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Crystal: For Marissa, the cell phone is used far more often to arrange her personal schedule than it is to keep in touch with us :-)

Thu Aug 22 2002 21:33:32 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
We disconnect if REALLY low. Otherwise, Sam may crank down the basal just a bit (he is at 1.6 per hour anyway, so 1.5 just makes a smidge of a difference).

Thu Aug 22 2002 21:33:59 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
crystal - what about for when they leave school grounds?

Thu Aug 22 2002 21:34:01 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Renee, we are fighting the same battles all over the country - neighboring school district included.

Thu Aug 22 2002 21:34:05 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Last year when I requested a 504, I wrote up a 504 plan, met with the school to go over it, and then they mailed me their version (one paragraph long). It was the end of the year and I let it go. What do I do if they don't take me seriously this year? Last year they didn't want one at all. Said Jillian isn't "disabled"

Thu Aug 22 2002 21:34:12 Eastern US
Diane (Mom of Brian, 12, dx'd @11) from 209.112.93.123
Brian is in sports. He keeps a test kit in the first aid kit that is carried onto the field. He also has a pocket sewed into his shorts for glucose tabs. If the event runs into his dinner time, I will bring him a sack dinnner and his insulin so things can remain on a schedule.

Thu Aug 22 2002 21:34:36 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Chanie, coverage must be provided for school-sponsored field trips and off-site activities. No ifs, ands or buts!

Thu Aug 22 2002 21:34:39 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
ah, see, at 0.1 or 0.2 per hour, she only gets the insulin every 1/2hr-1 hr anyway!! so disconnecting is somewhat of a moot point

Thu Aug 22 2002 21:34:48 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
BTW do find out what your school's plan is in case of medical emergency. Many think they can just call 911 and have no responsibility. Find out repsonse time of your ambulance service. Find out what responders can do when they get there! Eg, in Indiana at least, EMTs can only give orange juice. Advanced EMTs can start an IV, but only give 5% glucose - worthless treating a low. A paramedic can give concentrated glucose (D25 or D50) IV. In our county, there is only one paramedic-equipped advanced life support ambulance.

Thu Aug 22 2002 21:35:03 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6.5 yrs) from 205.188.208.41
I've heard stories of families in the same district having opposite experiences because one unfortunately decided to "go through channels" & the TOP adminis. for school nurses refused to allow what the individual teacher/nurse/principal had no problem with....

Thu Aug 22 2002 21:35:05 Eastern US
Annapolis from 68.52.171.166
Just want to say to Crystal that we sent the ADA sample 504 to the school ahead of our meeting and they loved it!

Thu Aug 22 2002 21:35:34 Eastern US
Michelle(RI) (Adam 8 dx'd 2/00) from 68.9.4.48
Judith our school will use the glucagon. 3 are trained to use it

Thu Aug 22 2002 21:35:34 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
obviously crystal. i meant wouldnt a cellphone be helpful there? if using the school office only at other times..

Thu Aug 22 2002 21:35:40 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Diane, my daughter dances 7 hours/wk and also rides and she keeps bg meter and tabs with her at all times. Has worked very well.

Thu Aug 22 2002 21:35:53 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Chanie - Just wait until Shifra is a teenager and way bigger than you are! :-)

Thu Aug 22 2002 21:36:03 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Crystal, you said coverage must be provided even after school. What exactly is coverage?

Thu Aug 22 2002 21:36:12 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Annapolis, glad to hear it. Working on doing a revision so check back for a new and improved version in a couple weeks.

Thu Aug 22 2002 21:36:55 Eastern US
Diane (Mom of Brian, 12, dx'd @11) from 209.112.93.123
Michelle you are lucky. We have health clerks. One nurse supervises 4 schools. Therefore, they don't even want the glucagon at school.

Thu Aug 22 2002 21:36:58 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
Does anyone have a child just starting school (newly dx) with D

Thu Aug 22 2002 21:37:03 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
seriously billetdeaux! we recently raised a basal to 0.3 and i was calling the endo to make sure it wasnt too much!

Thu Aug 22 2002 21:37:08 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Great, Michelle. "Can't" do it here; "against school policy". I'm trying to get them to accept that school policy cannot run counter to federal law!

Thu Aug 22 2002 21:37:21 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Kelly, coverage meaned that a staff member (not necessarily the school nurse) who has received training in diabetes management and care and knows how to perform diabetes care tasks must be available on-site at all times when your child is a participant.

Thu Aug 22 2002 21:37:28 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
I live in NY and my understanding is that only a nurse can administer glucagon. Is this true?

Thu Aug 22 2002 21:37:56 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
Can the school deny my son Feild trips because he is D?

Thu Aug 22 2002 21:38:08 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Anyone can be trained to give glucagon.

Thu Aug 22 2002 21:38:27 Eastern US
Diane (Mom of Brian, 12, dx'd @11) from 209.112.93.123
Crystal who pays for the training of this staff member?

Thu Aug 22 2002 21:38:32 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Kelly, NY regs have changed recently. Non-medical staff members may administer glucagon.

Thu Aug 22 2002 21:38:32 Eastern US
Michelle(RI) (Adam 8 dx'd 2/00) from 68.9.4.48
cyndy they have tried that here numerous times

Thu Aug 22 2002 21:38:34 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
a parent i know suggested saving expired glucagon to have staff (in his case, scouts staff) practice mixing and injecting on an orange or sponge or something. he claimes they might freeze up in case of a severe low. anyone ever do this?

Thu Aug 22 2002 21:38:38 Eastern US
Annapolis from 68.52.171.166
Our nurse is split between 2 schools and she has assistants with some medical training at both that can administer glucagon.

Thu Aug 22 2002 21:38:49 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
So Cyrstal, someone at the school MUST be trained to care for Jillian? I don't have that now. If the nurse is out, Jillian and I are on the phone alot.

Thu Aug 22 2002 21:38:54 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Our "office lady" at the middle school is an old army nurse - looks very crusty at first glance. But she just loves taking care of kids. She went to a pump training class so she would know what we were talking about last year with Sam. I wish we could bring her to high school next year. Actually, I wonder if I could designate her as the person to call if they can't reach my husband or me and a question arises!

Thu Aug 22 2002 21:38:54 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
May be school policy that only a nurse can do it.... Interestingly, schools CAN give adrenalin via EpiPens for severe allergic reactions. Wish making a glucagon pen was cost effective.

Thu Aug 22 2002 21:39:07 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Cyndy, does your child attend public school? If so, he cannot be denied participating in field trips.

Thu Aug 22 2002 21:39:17 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Chanie, we always use up our expired glucagon doing just that, but here at home. Doing it at school is a great idea.

Thu Aug 22 2002 21:39:18 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Hi all, the last 3 yrs there were 3 teachers at Rea'sschool able to give the glucagon, one of them has a son with type 1

Thu Aug 22 2002 21:40:20 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6.5 yrs) from 205.188.208.41
Crystal: so how successful has the ADA been in battling these difficult schools?...and how do you handle "individual egos" that view parental requests as an affront to their authority???...parents can't battle daily...one mom thought she had everything covered, yet her son's teacher was annoyed when he came up & said he was low, so she handed him ONE glucose tab & told him to let her ifnish her lesson...30 mins later she sent him alone to the nurse..his bgs were in the 40s

Thu Aug 22 2002 21:40:21 Eastern US
Annapolis from 68.52.171.166
We have a teacher with Type 1 son AND husband!

Thu Aug 22 2002 21:40:28 Eastern US
Diane (Mom of Brian, 12, dx'd @11) from 209.112.93.123
Judith, as a teacher, I am required to give an epi-pen shot if one of my students needs it but no one will give my son a glucagon shot if he needs it. I tried to argue my point but got no where.

Thu Aug 22 2002 21:40:38 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Lay people can easily be trained to do glucagon. There are very few states where ONLY medically licensed professionals can do it.

Thu Aug 22 2002 21:40:53 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
why would a pen be different than an injection?

Thu Aug 22 2002 21:41:11 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Crystal, how about overnight trips that are optional (i.e., the parents have to pay for the trip, but it is offered by the school system)?

Thu Aug 22 2002 21:41:11 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
When Dave was in elementary school, one teacher offered to even give insulin if needed, though he was no longer in his class. I was very grateful that she'd make the effort...and her husband was legal counsel for the school district.

Thu Aug 22 2002 21:41:28 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Crystal where can I get a copy of the NYS regs?

Thu Aug 22 2002 21:41:32 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Diane, what state are you from? Your son is being discriminated against if the school will give epi, but not glucagon. You may want to consider filing a complaint with OCR.

Thu Aug 22 2002 21:41:56 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
No drawing up with an EpiPen; no exposed needle. No dose to figure. It's just a matter of removing a cap, putting the thing on the leg and pushing down.

Thu Aug 22 2002 21:42:23 Eastern US
Diane (Mom of Brian, 12, dx'd @11) from 209.112.93.123
I live in Illinois

Thu Aug 22 2002 21:42:41 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Kelly, go on NYDOH website. Also, there is a link from the ADA's website (www.diabetes.org). If you don't find what you are looking for then e-mail me at CJackson@diabetes.org and I'll get them for you.

Thu Aug 22 2002 21:42:54 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Frustrating, Diane.

Thu Aug 22 2002 21:42:55 Eastern US
Diane (Mom of Brian, 12, dx'd @11) from 209.112.93.123
What is the OCR?

Thu Aug 22 2002 21:43:19 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Diane, sorry I'm not sure if IL has a law which prevents lay people from giving glucagon & insulin, but you need to find out the basis for the objection.

Thu Aug 22 2002 21:43:38 Eastern US
Ellen (FL) (Zack 14, first year of high school) from 152.163.204.53
Hi.

Thu Aug 22 2002 21:43:40 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
Have any of you thought of teaching an older child ie my older daughter to give the glucagon

Thu Aug 22 2002 21:44:00 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Thanks Crystal.

Thu Aug 22 2002 21:44:25 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
Judith what if you use those contacts of yours and have someone make us a glucagon pen. BD, Eli Lilly

Thu Aug 22 2002 21:44:33 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
I have taught Rea's younger sister to do it. she is 16 now

Thu Aug 22 2002 21:44:34 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
i suppose, judith. but i tried arguing this point with someone here who said they thought that school should give insulin by pump and maybe pen, but not injection. pump is dosing. pen is sharp. why is injection different? currently, i think it is officially illeagal for even a school nurse here to give insulin. but some do (as would my child's preschool teacher)
hi ellen :-)

Thu Aug 22 2002 21:44:35 Eastern US
Annapolis from 68.52.171.166
Crystal - How do you influence a school board to allow in-class testing?

Thu Aug 22 2002 21:44:35 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
Hi Ellen

Thu Aug 22 2002 21:44:46 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Judith, I understand your point, but in the scheme of 504, IDEA & ADA, the mechanism is relevant. What is relevant is that our kids need to have someone on-site who can do glucagon in order to maintain them in a healthy school environment without jeopardizing their safety.

Thu Aug 22 2002 21:44:46 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
wow, michelle...that's a GREAT idea!

Thu Aug 22 2002 21:45:13 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Anyone here afraid of making such a big deal at school that their kids are going to suffer for it?

Thu Aug 22 2002 21:45:20 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
but you cant have the other child be unlitmately responsible. that has to be the school.

Thu Aug 22 2002 21:45:33 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Oh, I agree, Crystal. Just explaining how schools justify it.

Thu Aug 22 2002 21:45:53 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
not me Kelly I live for causing trouble the sad thing is that my kids expect it LOL

Thu Aug 22 2002 21:46:02 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
I can tell you that Eli Lilly has no plans to make a glucagon pen - unfortunately.

Thu Aug 22 2002 21:46:37 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
LOL Michelle

Thu Aug 22 2002 21:46:57 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Kelly, the approach I take and I recommend others to take is to get involved with your child's school 110% - I am good to them and they are good to my kid.

Thu Aug 22 2002 21:47:05 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
yes kelly, but that is how we found such a great school -- i saw how different administrators reacted to the information i gave them. so far, the place we are at has done more D in school advocacy than our local JDF!

Thu Aug 22 2002 21:47:26 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Lilly makes the only glucagon I've seen in the US, and it's not profitable to make it in pen form.

Thu Aug 22 2002 21:47:45 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
also, as mentioned previously, if you are firm but polite, that makes a differnce. ultimately, you are all trying to do what is best for the child.

Thu Aug 22 2002 21:47:48 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
My son's teacher has a hyoglycemic child. Do you think that will help her at all in dealing with Ben?

Thu Aug 22 2002 21:48:43 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Judith, EL told me it is scientifically impossible to make a glucagon pen. It loses its potency after just a few minutes after mixing.

Thu Aug 22 2002 21:49:10 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
cyndy - she might know more about dealing with lows

Thu Aug 22 2002 21:49:11 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
We have been very lucky re:school. the attitude of both schools has been: What can we do to help Reann

Thu Aug 22 2002 21:49:32 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Dave had a problem teacher in 4th grade. She was afraid of d (according to the counselor) but it came through to Dave as anger. She refused to learn anything, refused to even care for him if he went low. We had serious problems. I ended up going to the superintendent to get him into another class, with a teacher whose wife has type 1.

Thu Aug 22 2002 21:49:38 Eastern US
Heather (13-F-ND Type1 dx'd @ 5) from 216.221.113.245
Hello

Thu Aug 22 2002 21:49:48 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
Can someone tell me how to get a medic allert chain lengthened

Thu Aug 22 2002 21:49:53 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
Judith maybe if enough of us send notes and emails they might change there mind. It might be worth a shot. How hard can it be. There are tons of pens out there. They just need to figure out the glucagon

Thu Aug 22 2002 21:50:04 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
There are ways to make a pen with 2 chambers, that would mix diluent and dry glucagon just before use....

Thu Aug 22 2002 21:50:09 Eastern US
Billetdeaux (Sam's mom (12, 8th grade)) from 67.25.204.205
Boy, are we ever multi-talented in this household. I'm chatting with you all... changing Sam's infusion set... hmmmm. What are all these bubbles? I wonder if I just put 7 Up in his cartridge? Sorry... I digress...

Thu Aug 22 2002 21:50:46 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
There have been meds (eg Solu-Cortef) packaged that way for decades. I don't think it's impossible.

Thu Aug 22 2002 21:51:02 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
crystal - i saw an article recently about minidosing glucagon,and it seemed it would last longer than just a few minutes after donsing. but maybe not as long as you'd need for a pen

Thu Aug 22 2002 21:51:18 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Judith, you should contact EL with your idea. Lots of parents already have called to beg them for a single pen.

Thu Aug 22 2002 21:51:18 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
Judith now I am really impressed LOL

Thu Aug 22 2002 21:51:33 Eastern US
Kristin from 205.188.208.41
Hello, i am 18 years old, and have had diabetes for 12 years, I will be starting my first year at a community college. Do i have any rights under the disabilities act for my diabetes in college?

Thu Aug 22 2002 21:51:43 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Cyndy, sometimes you are better off with folks who don't know ANYTHING but are willing to learn. Beware of the teacher/etc who says "I know all aobut diabetes". Probably has an old granny with type 2.....

Thu Aug 22 2002 21:51:57 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
Judith I'll help what can I do

Thu Aug 22 2002 21:52:01 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
:) Laura

Thu Aug 22 2002 21:52:09 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Kristin -- great question. Our kids are all going to college eventually.

Crystal?

Thu Aug 22 2002 21:52:10 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
Kristin -- great question. Our kids are all going to college eventually.

Crystal?

Thu Aug 22 2002 21:52:51 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Kristin, you are covered under 504 & ADA.

Thu Aug 22 2002 21:53:04 Eastern US
Kristin from 205.188.208.41
no, i'm not

Thu Aug 22 2002 21:53:34 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Hoping to focus on college concerns and put some information together later this year as it's a growing issue.

Thu Aug 22 2002 21:53:58 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
college....oh my god

Thu Aug 22 2002 21:54:35 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
on a different note, does anyone ever educate the other kids in the class/or even their parents? we're at a different stage of life, but shifra explained to the whole group last year, and the teacher mentioned that this is part of the class routine and that if anyone had any questions to ask us at a parents meeting. some did come to me to help explain to their child (all of whom were great about it) anyone else doing this?

Thu Aug 22 2002 21:54:37 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
(Solu-Cortef is not in a pen, but in a double vial, with a stopper between the diluent and dry material. COuld do that in a pen, I'm sure...)

Thu Aug 22 2002 21:54:47 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Rea will be going to college in another year, and I am concerned about that too

Thu Aug 22 2002 21:54:56 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6.5 yrs) from 205.188.208.41
Melissa went low before a bio lab & couldn't get to class...prof took off 50% for the bal being late & it affected her grade...but she had no recourse since she never "registered" with the Office of Student Disabilities...this fall she will...."just in case"...

Thu Aug 22 2002 21:55:08 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Kristin, why do you not think you are covered? Has a college administrator indicated this to you? I've seen one case in the office where a college tried to kick a student out because of a severe hypo. He filed a complaint with OCR under 504 and prevailed. Do you attend a religious based university?

Thu Aug 22 2002 21:55:46 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
My son's teacher and aids say they know nothing about d but want to learn. Ben's teacher is very good at picking up on minor things and making sure that things are checked out to make sure the child is okay.

Thu Aug 22 2002 21:56:11 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
I spoke to Jillian's class when she was first diagnosed. Told them it's not contagious, she'll be checking her bs, what to do if she acts funny. It was great and they had lots of questions. They all look out for her.

Thu Aug 22 2002 21:56:36 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Chanie, I've talked to Dave's classmates, about 2-5 grade. Excellent resource (at least in the US) is "It's Time to Learn About Diabetes" video.

Thu Aug 22 2002 21:56:44 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
The elementary aged kids tend to want to share and I used to always go into Devin's classroom and do a "diabetes lesson." The kids and teacher loved it. Could never get away with that in middle school - my daughter would be mortified!

Thu Aug 22 2002 21:56:52 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
cyndy - that is most important. if they are willing to learn and are on top of things in general, it can be a good indicator of how they will deal with D issues

Thu Aug 22 2002 21:57:09 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
It's Time to Learn About Diabetes by Jean Betschart, MN, RN, CDE. Illustrations by Nancy Songer, RN, MSN, CPNP. 1995. ISBN
0471347434.

Subtitled A Workbook on Diabetes for Children, this 110 page paperback book was revised in 1995 and is a superb
teaching tool for professional diabetes educators and parents alike. Children will learn all about diabetes from Cindy and
Mike, two kids who also have diabetes. Simple biology lessons teach children about the pancreas and the function of insulin,
so they understand why they must perform blood tests and take insulin injections. Full of drawing, matching, fill-in-the-blank
and word search activities, this book provides a fun way to teach children about diabetes. Highly Recommended.

Both the video and workbook are available free from Lilly to families in the US by calling 1-800-545-5979.
Order It's Time to Learn About Diabetes from Amazon.com

Thu Aug 22 2002 21:57:31 Eastern US
Kristin from 205.188.208.41
I'm not sure if i am covered, its a community college, and i don't even think the college knows i have diabetes, unless they looked at my medical forms. We did check off about speacking to someione about my diabetes on one of my forms, but no one ever called.

Thu Aug 22 2002 21:57:31 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6.5 yrs) from 205.188.208.41
right Crystal...just what I was gong to add- as the kids get older, they get "weirder" about being as "open"..of course teens get "weirder" even without D!!!

Thu Aug 22 2002 21:57:35 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
our endo translated that workbook into hebrew here judith :-) dont think they've done the video yet, though i did just speak to him about translating more materials

Thu Aug 22 2002 21:57:37 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Another good resource for young ele. aged students is "Even Little Kids Get Diabetes." Used to read it all the time to the 1-3 graders as part of my diabetes lesson.

Thu Aug 22 2002 21:57:57 Eastern US
Kristin from 205.188.208.41
sorry if what i just trypes is confusing

Thu Aug 22 2002 21:58:06 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Kristin, you need to follow up. Both verbally and in writing.

Thu Aug 22 2002 21:58:45 Eastern US
Kristin from 205.188.208.41
ok, we will, thanks

Thu Aug 22 2002 21:59:00 Eastern US
Michelle(RI) (Adam 8) from 68.9.4.48
well good night everyone I need sleep. I wish I could stay but I am having trouble keeping the eyes open. Judith email me please.

Thu Aug 22 2002 21:59:08 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
i know she wont have the same attitude about it, but now she goes around explaining to everybody!
i also like 'taking D to school' as a little kids book. nothing on the pump though. maybe i'll write one

Thu Aug 22 2002 21:59:36 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
I have never spoken to Rea's class as a whole, but have talked to her friends that she is with a lot, just tell them what to watch for and never be afraid to call 911 if she is acting real funny

Thu Aug 22 2002 21:59:41 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
good night Michelle

Thu Aug 22 2002 22:00:19 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6.5 yrs) from 205.188.208.41
Crystal - has the ADA advocacy staff been fielding more "issues" now that more & more younger kids are using pumps???..the question of kids bolusing on their own seems to be a major stumbling block, of course along with blood sugar testing too

Thu Aug 22 2002 22:00:33 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Ok, Michelle...if/when I get a briliant idea :-)

Thu Aug 22 2002 22:00:48 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
night Michelle

Thu Aug 22 2002 22:01:03 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
I need to sign off in a few minutes. Please call 1-800 DIABETES and ask for the ADA's school discrimination packet or log onto www.diabetes.org for a wealth of information. Hope to have college oriented materials available in the near future, as well as more on standardized testing (PSAT, LSAT, etc.).

Thu Aug 22 2002 22:01:11 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
I plan to give a mini thing on Ben in class. I also hope to get a copy of the ADA dragon book for her to read to the class.

Thu Aug 22 2002 22:01:27 Eastern US
cyndy t (mom of ben soon to be 7) from 209.226.138.43
I need to go. thanks for the advise.

Thu Aug 22 2002 22:01:29 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
The pump companies do have good books for school use, as I mentioned earlier. However, they may be longer than most teachers would want.

Thu Aug 22 2002 22:01:40 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6.5 yrs) from 205.188.208.41
thanks for all your hard work Crystal...

Thu Aug 22 2002 22:02:22 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
good luck cyndy
thanks again crystal

Thu Aug 22 2002 22:02:27 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Thanks Crystal

Thu Aug 22 2002 22:02:29 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Thanks Renee. It's all about our kids and I don't view as work - it's my cause and passion.

Thu Aug 22 2002 22:02:49 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Another good resource is the PADRE Foundation, in Orange Co. California. www.peds.ws or peds@padrefoundation.org

Thu Aug 22 2002 22:03:11 Eastern US
Kelly (Mom of Jillian, 12, dx'd 2/01) from 205.188.208.41
Thanks Crystal

Thu Aug 22 2002 22:03:23 Eastern US
Crystal (ADA advocacy staff) from 64.12.96.107
Good-night all and good luck with the upcoming school year. Be sensitive to your school's concerns, but stand firm. CJ

Thu Aug 22 2002 22:03:54 Eastern US
Jeff Hitchcock (Marissa, almost 15, 10th grade, pump) from 216.68.227.14
we also have a complete school plan for use at:
http://www.childrenwithdiabetes.com/d_0q_500.htm

Thu Aug 22 2002 22:04:02 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
My school nurse just went through the PADRE training material...it is AWESOME. Now she's giving an inservice to the teachers...

Thu Aug 22 2002 22:04:08 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
what is that, judith?

Thu Aug 22 2002 22:04:43 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
Hello everyone. First time on.

Thu Aug 22 2002 22:05:01 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
Hello TeePee

Thu Aug 22 2002 22:05:11 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Pediatric Adolescent Diabetes Research Education (PADRE).

Thu Aug 22 2002 22:05:18 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
hi teepee. where are you?

Thu Aug 22 2002 22:05:31 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
Chanie I read your bio. My son is 21 months. Been diagnosed 6 months

Thu Aug 22 2002 22:05:33 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Welcome, TeePee. How are you and Yael doing?

Thu Aug 22 2002 22:05:42 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
i'll check it out judith. maybe i can get them to fly here ;-)

Thu Aug 22 2002 22:05:44 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
check it out, Chanie....www.peds.ws or peds@padrefoundation.org

Thu Aug 22 2002 22:05:46 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
Detroit

Thu Aug 22 2002 22:06:16 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
i saw on yours. how is he doing? and you?

Thu Aug 22 2002 22:06:49 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
He's doing great. I'm still adjusting

Thu Aug 22 2002 22:07:15 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
me too :-)

Thu Aug 22 2002 22:07:34 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
One last thing to consider: How would your school manage your child's diabetes in case of disaster? We had a fire at school a couple years ago, just before lunch. Kids were herded outside quickly. No carb.......

Thu Aug 22 2002 22:07:44 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
how has your child adjusted through these years?

Thu Aug 22 2002 22:08:08 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
...hmmm...another item to add to the 504....thanks, Judith

Thu Aug 22 2002 22:08:40 Eastern US
JakesMom (Mom of Jake, 9, dx 07/01, pumping 01/02) from 4.63.99.233
okay....bedtime here....Thanks everybody! Good night!

Thu Aug 22 2002 22:08:52 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Yes, that PADRE manual covers most everything. Of course, any written material is quickly outdated - new insulins, etc. Their website is handy for the latest info. Manual costs $100, but well worth it.

Thu Aug 22 2002 22:09:02 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
good point judith.

Thu Aug 22 2002 22:09:17 Eastern US
Laura (am 20 yrs old dx'd in 95 ... .. . Pumping) from 12.90.109.86
Hi All

Thu Aug 22 2002 22:09:28 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Bye to all who are leaving.

Thu Aug 22 2002 22:10:24 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
teepee- she's doing great. she does have more of an awareness that she does not want to have D, whereas she used to think that everybody has it. overall, she is really has a great attitude about it. of course, the pump has helped with that.
hi laura :-)

Thu Aug 22 2002 22:11:14 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
judith - their stuff looks great! i'llhave to take a closer look at it when i am more awake.
if the aide we get can read english, i'll definitely have to look into it.

Thu Aug 22 2002 22:11:43 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
:-) Chanie

Thu Aug 22 2002 22:12:06 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
I'm hoping diagnosis at such a young age will make it easier for his adjustment as he gets older...the only lifestyle he's ever known, etc.

Thu Aug 22 2002 22:13:10 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
teepee- we've found that keeping her involved and explaining things helps a lot, but that is also her personality
right. everyone is always amazed when she checks herself and doesnt flinch, etc.

Thu Aug 22 2002 22:13:20 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
That's true to a certain extent, TeePee...but it doesn't mean he'll necessarily sail through adolescence without rebelling against it.

Thu Aug 22 2002 22:13:55 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
I'm certain we'll hit those bumps regardless

Thu Aug 22 2002 22:14:01 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
(wow! they have everything on this site judith!! now i'll just have to work on translating it all...)

Thu Aug 22 2002 22:14:24 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
yeah, but by then there'll be a cure, right judith ;-)

Thu Aug 22 2002 22:14:26 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
Not looking forward to it...atleast now I have most of the control

Thu Aug 22 2002 22:14:36 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
And Judith certainly knows about that!

Thu Aug 22 2002 22:14:43 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Most others I've talked with whose kids were dx'd very young have also found the kids did have angry times during the teen years. Very hard when the most important thing is being just like everyone else, and d makes you different.

Thu Aug 22 2002 22:14:46 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
RIGHT!!!

Thu Aug 22 2002 22:14:50 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
do schools test ketones?

Thu Aug 22 2002 22:15:12 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Right, Chanie!

Thu Aug 22 2002 22:15:24 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Thanks, Beth :-)

Thu Aug 22 2002 22:15:43 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
That is a very tough time

Thu Aug 22 2002 22:15:44 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Tricky, Chanie, with the concerns about "good touch" etc....

Thu Aug 22 2002 22:15:51 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
i just noticed PEDS has a file on disaster preparedness

Thu Aug 22 2002 22:16:17 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
You're welcome LOL

Thu Aug 22 2002 22:16:18 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
i know, that's why i'm asking

Thu Aug 22 2002 22:16:40 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Many sympathize with how hard it must have been to care for an infant and toddler with d. I tell them those were the EASY years :-)

Thu Aug 22 2002 22:17:04 Eastern US
Kriss (Mom of Paige, 9, dxd at 3) from 205.133.16.102
Hello all

Thu Aug 22 2002 22:17:19 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
hey, dont tell me that judith!! :-)

Thu Aug 22 2002 22:17:29 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
PEDS is based in California; have to be ready for earthquakes, etc.

Thu Aug 22 2002 22:17:37 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Hi Kriss.

Thu Aug 22 2002 22:17:45 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
HI Kriss

Thu Aug 22 2002 22:17:56 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
Yeah, they're with you all the time and you basically run the show...outside of the tantrums and picky eating :)

Thu Aug 22 2002 22:18:20 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
At 2 months/10 lbs, Dave ate what I gave him, stayed where I put him!! No such control now!

Thu Aug 22 2002 22:18:50 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
I bet

Thu Aug 22 2002 22:18:53 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Hardest thing is handing over control to him. He doesn't do nearly as good a job as I did! :-)

Thu Aug 22 2002 22:19:12 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
picky eating is not a D concern anymore with the pump :-)

Thu Aug 22 2002 22:19:31 Eastern US
Nancy (Mom of Nikhil, 5, dx'd 8/2/02) from 68.100.60.113
Hello. This is my first message here. Does anyone have any helpful things to make the passage easier for a 5 year old, very angry little boy who is afraid of his shots. I've gotten an inject-ease and am spending extra time with him to balance the unfairness, but he is mad. His sibs don't have d. And he hates the shots.

Thu Aug 22 2002 22:19:32 Eastern US
Kriss (Mom of Paige, 9, dxd at 3) from 205.133.16.102
Are you saying that the challenges are still ahead of us in the teenage years!

Thu Aug 22 2002 22:19:32 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
He's starting a new daycare next week. I will share the books I picked up off of this chat earlier. Thanks

Thu Aug 22 2002 22:19:59 Eastern US
Carol (Nicole, 2 1/2, dx @ 17 mo.) from 64.252.134.37
TeePee--
Nicole was dx 1 yr ago. I find the hardest part is the eating. I constantly find I have to give her junk food to get carbs into her one minute and the next I have to hold back to not give her too many carbs.

Thu Aug 22 2002 22:20:01 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Welcome, Nancy. Sorry to hear about your hard times.

Thu Aug 22 2002 22:20:25 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
i'm sure. i'm even feeling that a little bit now as she is becoming more independant with school and all. how to let her go to friends, etc. when she will need to be checked, insulin, etc.

Thu Aug 22 2002 22:20:43 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Hi Nancy

Thu Aug 22 2002 22:20:44 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
Sounds EXTREMELY familiar Carol

Thu Aug 22 2002 22:20:55 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Some suggestions: letting him give "shots" to a doll or teddy bear, encouraging him to draw pictures about having diabetes. May want to consider counseling if it continues. YOur endo team should be able to refer you....

Thu Aug 22 2002 22:21:06 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Yes Kriss, most definitely!@

Thu Aug 22 2002 22:21:10 Eastern US
Kriss (Mom of Paige, 9, dxd at 3) from 205.133.16.102
Hi Nancy, I read a lot of picture books and found a really good video that helped my young daughter get a better handle on what was happening to her.

Thu Aug 22 2002 22:21:21 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
Hi Nancy

Thu Aug 22 2002 22:21:21 Eastern US
Carol (Nicole, 2 1/2, dx @ 17 mo.) from 64.252.134.37
I cant wait till she gets older and can choose what she'll eat or will sit in a chair long enough to get a few bites in before going off to play.

Thu Aug 22 2002 22:21:25 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Afraid so, Kriss. In fact, 9 was the age at which Dave (and many others) started sneaking food, etc

Thu Aug 22 2002 22:21:26 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
show him pictures of other kids with D on this website nancy. my daughter likes seeing she isnt alone

Thu Aug 22 2002 22:21:49 Eastern US
Nancy (Mom of Nikhil, 5, dx'd 8/2/02) from 68.100.60.113
Kriss - do you know the names of the books or video? I've been looking for materials and counselors.

Thu Aug 22 2002 22:22:00 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
There are some books about d that are appropriate for age 5 too, Nancy.

Thu Aug 22 2002 22:22:06 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
was he on the pump then judith?

Thu Aug 22 2002 22:22:28 Eastern US
TeePee (Mom of Yael, 21 mos, dx'd at 15 mos) from 64.12.96.107
Got to run...it's been great talking to you guys. I'll be back on for sure.

Thu Aug 22 2002 22:22:34 Eastern US
Kriss (Mom of Paige, 9, dxd at 3) from 205.133.16.102
I am having a hard time watching my baby become a young lady. I don't know if I am ready for the teenage thing.Can't we dtop time somehow?!?!?

Thu Aug 22 2002 22:22:35 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Here on the Products page you can find reviews of most every book about kids and d
http://www.childrenwithdiabetes.com/d_06_000.htm

Thu Aug 22 2002 22:22:56 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
TeePee, hope to see you in the Parent chat room soon.

Thu Aug 22 2002 22:23:12 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
bye teepee, good luck!

Thu Aug 22 2002 22:23:46 Eastern US
Ellen from 205.188.208.41
Chanie, are you still here?

Thu Aug 22 2002 22:23:53 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
No, Chanie, not on the pump until age 14, but he STILL sneaks food. Has made no difference at all. Have to say my older son (without d) did the same thing....but he had other issues.

Thu Aug 22 2002 22:23:59 Eastern US
Nancy (Mom of Nikhil, 5, dx'd 8/2/02) from 68.100.60.113
Judith - I'm going to look at the products page now. I've very new to all of this. My little guy needs support in areas that I don't understand!

Thu Aug 22 2002 22:24:19 Eastern US
Kriss (Mom of Paige, 9, dxd at 3) from 205.133.16.102
There are the Rufus books and the video is "Learning About Diabetes" that my brother who is a pharmacist got from the Lilly rep who came into his store. Maybe you could contact Lilly and see what they have.

Thu Aug 22 2002 22:24:31 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
yes ellen, not sure why :-)

Thu Aug 22 2002 22:24:44 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Other suggestion is camp. See if there is a family camp near you. Where are you located, Nancy?

Thu Aug 22 2002 22:24:49 Eastern US
Ellen from 205.188.208.41
I meant in the U.S. LOL...

Thu Aug 22 2002 22:24:57 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
good for you for trying to get him that support nancy!

Thu Aug 22 2002 22:25:37 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
:-) nope ellen, which is why i'm not sure why i'm still on here -- it is 5:20 am!!! jet lag...

Thu Aug 22 2002 22:25:43 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Nancy, it's normal for him to be angry at this stage. It's a major shock to the whole family.

Thu Aug 22 2002 22:25:46 Eastern US
Kriss (Mom of Paige, 9, dxd at 3) from 205.133.16.102
Nancy, the best advice I can give is to let him know now more than ever that you love him and are taking care of him because you love him

Thu Aug 22 2002 22:25:59 Eastern US
Ellen (FL) (Zack 14, dx'd Feb '89, pump 7 yrs) from 205.188.208.41
Nancy, you need support too, and you have it at this website.

Thu Aug 22 2002 22:26:19 Eastern US
Nancy (Mom of Nikhil, 5, dx'd 8/2/02) from 68.100.60.113
Judith - I'm in Northern Virginia.

Thu Aug 22 2002 22:26:36 Eastern US
Carol (Nicole, 2 1/2, dx @ 17 mo.) from 64.252.134.37
Has anyone heard from Chad on parents site lately (has 2 year old starting on pump soon) Want to talk about is experiences.

Thu Aug 22 2002 22:27:10 Eastern US
Nancy (Mom of Nikhil, 5, dx'd 8/2/02) from 68.100.60.113
I was told this was a good place to look for advice. It's taken me til now to take a few minutes to go look. I know it'll all be ok in a few months, but I want it ok NOW!

Thu Aug 22 2002 22:27:17 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Nancy, I'd also suggest that you be as matter of fact about the testing and injecting as possible. Don't be too sympathetic. Just do what has to be done, then give him praise, a hug...and on with life.

Thu Aug 22 2002 22:27:30 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Camp Glyndon in Maryland is probably your closest....BRB

Thu Aug 22 2002 22:28:29 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
nancy - it is frustrating. but eventually, things will calm down. it does get 'easier' though i never thought i'd say that

Thu Aug 22 2002 22:28:33 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Read about Gyndon here
http://www.childrenwithdiabetes.com/camps/d_07_290.htm

Thu Aug 22 2002 22:28:47 Eastern US
Kriss (Mom of Paige, 9, dxd at 3) from 205.133.16.102
I am meeting with my daughters teachers on Monday and am going to implement a 504 plan because of some problems with the principal last year. She will be going into 3rd grade and will be switching teachers for a few classes. Any advice?

Thu Aug 22 2002 22:29:46 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
ok all, i'm going to sleep!! if you want, be in touch through email -- kadden@actcom.co.il

Thu Aug 22 2002 22:29:53 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Nancy, you will go through a whole grief process, like mourning a death. First comes shock, then denial, anger, depression - finally acceptance. You may bounce back and forth between stages. Other members of the family may be in different stages, and/or express them differently.

Thu Aug 22 2002 22:30:02 Eastern US
Ellen (FL) (Zack 14, dx'd Feb '89, pump 7 yrs) from 205.188.208.41
Kriss, there are some sample 504 plans on this website, you may want to look at them to get ideas to include in Paige's.

Thu Aug 22 2002 22:30:14 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Sleep well, Chanie.

Thu Aug 22 2002 22:30:26 Eastern US
Ellen (FL) (Zack 14, dx'd Feb '89, pump 7 yrs) from 205.188.208.41
Chanie, it's time to get up, not time to go to sleep. Isn't the sun rising just about now? :-)

Thu Aug 22 2002 22:30:48 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
shhhh ellen! dont remind me

Thu Aug 22 2002 22:30:58 Eastern US
chanie (shifra, 4 1/2, pump, dx'd 12 mos. old) from 192.115.22.88
:-)
bye all

Thu Aug 22 2002 22:31:04 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
night chanie

Thu Aug 22 2002 22:31:20 Eastern US
Kriss (Mom of Paige, 9, dxd at 3) from 205.133.16.102
Ellen, I did pull up those plans and incorporated a few together to meet paige's needs. They were a wonderful resource for me.

Thu Aug 22 2002 22:31:36 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
Diabetes at school
http://www.childrenwithdiabetes.com/d_0q_500.htm

Thu Aug 22 2002 22:32:22 Eastern US
Nancy (Mom of Nikhil, 5, dx'd 8/2/02) from 68.100.60.113
Judith - more grief than you know. We are also grieving. His last push was an accident which cost the life of a very close 4 year old friend. I'm not entirely sure who I'm crying for. Or who he is. I just know we're all scared and he's the littlest of the bunch. The shots don't bother me. His rages scare me.

Thu Aug 22 2002 22:33:31 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
:-( Nancy. So very sorry. Does sound like professional counseling is needed......

Thu Aug 22 2002 22:33:41 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Nancy, so sorry to hear about his friend

Thu Aug 22 2002 22:35:04 Eastern US
Nancy (Mom of Nikhil, 5, dx'd 8/2/02) from 68.100.60.113
Thanks for the advice folks. It's a starting point. I'll take the book reviews to the bookstore tomorrow. Maybe I can find the tape. It feels a little less lonely here.
His friend. My friend's daughter. My other son's best friend's little sister. Life is amazing in it's ability to shift on us.

Thu Aug 22 2002 22:35:08 Eastern US
Ellen (FL) (Zack 14, dx'd Feb '89, pump 7 yrs) from 205.188.208.41
Are you all in counseling as a family and individually? Was Nikhil angry before the diabetes?

Thu Aug 22 2002 22:35:17 Eastern US
Kriss (Mom of Paige, 9, dxd at 3) from 205.133.16.102
Nancy, Have you asked if there are other parents or children near you that your son might be able to talk to another child? We had many parents reach out. There was no one that we knew previously just acquaitances of friends of our. Above all they were parents who understood how it felt!

Thu Aug 22 2002 22:36:22 Eastern US
Carol (Nicole, 2 1/2, dx @ 17 mo.) from 64.252.134.37
Nancy--
You do get through this. My daughter was diagnosed 7/31/01. Two months before my father had a fatal heart attack in my home while caring for Nicole. He died. (I was on bedrest at a nearby hospital. The same day he died I delivered a 3 lb. 6 oz. baby. When Nicole was diagnosed the baby was still in the NICU at another hospital.

Thu Aug 22 2002 22:36:28 Eastern US
Nancy (Mom of Nikhil, 5, dx'd 8/2/02) from 68.100.60.113
On a better note, my grateful list. We're coping with all this in the summer. We are getting organized for school. We will be ready and my kids will have a great year. I'd rather it be in the summer.

Thu Aug 22 2002 22:37:32 Eastern US
Nancy (Mom of Nikhil, 5, dx'd 8/2/02) from 68.100.60.113
Ellen - it varied. It is an approach to life, but had calmed down. I need to tuck in my kids. Thanks for the advice for now. . .

Thu Aug 22 2002 22:37:34 Eastern US
Kriss (Mom of Paige, 9, dxd at 3) from 205.133.16.102
Nancy if you can't find the tape I will gladly make you a copy and mail it to you. It is narrated by 2 children and my daughter finds it very reassuring and will pull it out and watch it often.

Thu Aug 22 2002 22:37:44 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Carol, you had a lot to deal with also :-(

Thu Aug 22 2002 22:38:28 Eastern US
Ellen (FL) (Zack 14, dx'd Feb '89, pump 7 yrs) from 205.188.208.41
Carol, wow. And you're here to tell that even with the toughest times, you can pull through

Thu Aug 22 2002 22:38:34 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
goodnight Nancy, do come back, you will get lots of advice and most importanly support from the chat

Thu Aug 22 2002 22:38:49 Eastern US
Kriss (Mom of Paige, 9, dxd at 3) from 205.133.16.102
Nancy, good luck and I will send good thoughts your way.

Thu Aug 22 2002 22:38:57 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
:-( Carol.....

Thu Aug 22 2002 22:39:08 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
The tape is free from Lilly to those in the US....

Thu Aug 22 2002 22:39:23 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
t's Time to Learn About Diabetes by Jean Betschart, MN, RN, CDE. Illustrations by Nancy Songer, RN, MSN, CPNP. 1995. ISBN
0471347434.

Subtitled A Workbook on Diabetes for Children, this 110 page paperback book was revised in 1995 and is a superb
teaching tool for professional diabetes educators and parents alike. Children will learn all about diabetes from Cindy and
Mike, two kids who also have diabetes. Simple biology lessons teach children about the pancreas and the function of insulin,
so they understand why they must perform blood tests and take insulin injections. Full of drawing, matching, fill-in-the-blank
and word search activities, this book provides a fun way to teach children about diabetes. Highly Recommended.

Both the video and workbook are available free from Lilly to families in the US by calling 1-800-545-5979.
Order It's Time to Learn About Diabetes from Amazon.com

Thu Aug 22 2002 22:39:27 Eastern US
Ellen (FL) (Zack 14, dx'd Feb '89, pump 7 yrs) from 205.188.208.41
What tape is that Judith?

Thu Aug 22 2002 22:39:53 Eastern US
Carol (Nicole, 2 1/2, dx @ 17 mo.) from 64.252.134.37
It is very difficult. I tried to talk to the most parents I can with children closest to my daughters age. Also, if there's a support group at the hospital, join it. It helps to discuss when things come up--i,e. daycare, preschool, different meters, camp, etc. It saves a lot of your time starting from square one.

Thu Aug 22 2002 22:39:55 Eastern US
Ellen (FL) (Zack 14, dx'd Feb '89, pump 7 yrs) from 205.188.208.41
Our endo's office still gives that out and the workbook.

Thu Aug 22 2002 22:39:56 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.232
BBL Dave wants to check his email. I should never have let him get his own address! :-)

Thu Aug 22 2002 22:41:29 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
LOL Judith, see you later maybe

Thu Aug 22 2002 22:41:46 Eastern US
Kriss (Mom of Paige, 9, dxd at 3) from 205.133.16.102
YES! That is the tape Judith. It is good.

Thu Aug 22 2002 22:43:54 Eastern US
Ellen (FL) (Zack 14, dx'd Feb '89, pump 7 yrs) from 205.188.208.41
Beth, is Rea a senior now?

Thu Aug 22 2002 22:49:04 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
yes, she is, Ellen

Thu Aug 22 2002 22:52:09 Eastern US
Kriss (Mom) from 205.133.16.102
Good Night all. Thanks for chatting.

Thu Aug 22 2002 22:52:40 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
night Kriss

Thu Aug 22 2002 22:54:12 Eastern US
Judith from 198.7.199.232
What did I miss? :-)

Thu Aug 22 2002 22:57:49 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
not much Judith

Thu Aug 22 2002 22:58:33 Eastern US
Judith from 198.7.199.232
Got quiet in here. Imagine this room will close soon. We'll be bounced to the parent room.

Thu Aug 22 2002 22:59:13 Eastern US
Cindy (Mom of Rebecca, 6) from 63.232.193.18
Who at a elementary school can give insulin injections legally? And, is there any reason a child with diabetes would not qualify for a 504 plan?

Thu Aug 22 2002 22:59:42 Eastern US
Judith from 198.7.199.232
How are you tonight? Still sore from your falls?

Thu Aug 22 2002 23:01:01 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
yes, but the basement family room is finished , and the dining room except for the table

Thu Aug 22 2002 23:02:07 Eastern US
Judith from 198.7.199.232
Hi Cindy. That varies from state to state, district to district. Technically, anyone could be trained to do it. Kids with diabetes are definitely included in the federal disability laws.

Thu Aug 22 2002 23:02:18 Eastern US
Judith from 198.7.199.232
Good job, Beth!

Thu Aug 22 2002 23:02:34 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Hi Cindy

Thu Aug 22 2002 23:02:54 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
The table I pretty much have to do myself

Thu Aug 22 2002 23:03:31 Eastern US
Judith from 198.7.199.232
Any school which receives federal monies in any form - including school lunch program, etc - must abide by all the regulations of the various disability laws. Diabetes is included in "other health impairments"

Thu Aug 22 2002 23:04:19 Eastern US
Judith from 198.7.199.232
Lots of paperwork there, Beth? The mail and papers that come in here drive me crazy! Seems to be a ton of it a day.

Thu Aug 22 2002 23:04:40 Eastern US
Cindy (Mom of Rebecca, 6) from 63.232.193.18
Hi Judith and Beth. We live in California. Our school claims that diabetes does not affect her education function therefore she does not qualify for a 504. Where can I find, in writing, that she does qualify? THnaks.

Thu Aug 22 2002 23:05:43 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Tons of paperwork, all the Medicare and DHS stuff besides the regular bills, and all the junk mail

Thu Aug 22 2002 23:06:40 Eastern US
Judith from 198.7.199.232
Cindy, a group in Orange Co. has done great things re: d in schools. Look at www.peds.ws and/or email peds@padrefoundation.org

Thu Aug 22 2002 23:07:08 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Cindy, diabetes can very much affect her education function if she would go high or low

Thu Aug 22 2002 23:08:17 Eastern US
Cindy (Mom of Rebecca, 6) from 63.232.193.18
Thank you both for your help!

Thu Aug 22 2002 23:09:58 Eastern US
Judith from 198.7.199.232
Most all the info you would ever need at this site
http://www.childrenwithdiabetes.com/d_0q_500.htm

Thu Aug 22 2002 23:10:13 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
We have it in writing that the school cannot make Rea take a test if she is under 65 or over 300

Thu Aug 22 2002 23:10:34 Eastern US
Judith from 198.7.199.232
http://www.childrenwithdiabetes.com/d_0q_500.htm

Thu Aug 22 2002 23:10:55 Eastern US
Judith from 198.7.199.232
Sorry; having computer problems. VERY slow with the posts.....

Thu Aug 22 2002 23:11:53 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
mine too Judith, plus computer is eating some of them`

Thu Aug 22 2002 23:12:19 Eastern US
Judith from 198.7.199.232
Talk with the director of special education for your district. She/he should know the laws. If not, may need to contact PADRE, ADA or JDRF for help.

Thu Aug 22 2002 23:13:36 Eastern US
tret (mother of 12 year old. dx. @ 7) from 216.180.80.2
hi, sorry to join late. My child is 504 and has an aide for her help.

Thu Aug 22 2002 23:14:34 Eastern US
tret (mother of 12 year old. dx. @ 7) from 216.180.80.2
what is PADRE ?

Thu Aug 22 2002 23:14:47 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
you mean she has her own personal aide?

Thu Aug 22 2002 23:15:07 Eastern US
Judith from 198.7.199.232
Hi Tret. Afraid the official school chat is over, but we'll help if we can. We may get thrown out of this room anytime...but we'll land in the parent room. :-)

Thu Aug 22 2002 23:15:44 Eastern US
Judith from 198.7.199.232
Why does your 12y/o need an aide? Does she have other problems?

Thu Aug 22 2002 23:15:46 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Hi Tret

Thu Aug 22 2002 23:16:11 Eastern US
Sandy (son, age 12, dx'd 12 23 97, pumping humalog/injecting Lantus) from 66.19.28.138
Hi all :-)

Thu Aug 22 2002 23:16:42 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Hi Sandy

Thu Aug 22 2002 23:16:42 Eastern US
Judith from 198.7.199.232
PADRE is a group in Orange Co. California that has come up with very complete d educational materials for school personnel. www.peds.ws peds@padrefoundation.org

Thu Aug 22 2002 23:17:10 Eastern US
Sandy (son, age 12, dx'd 12 23 97, pumping humalog/injecting Lantus) from 66.19.28.138
Hi Beth :-) Is Rea going to be Junior this year?

Thu Aug 22 2002 23:17:58 Eastern US
Sandy (son, age 12, dx'd 12 23 97, pumping humalog/injecting Lantus) from 66.19.28.138
We have one teacher that has already told the school nurse that he will not allow Brian to test in his classroom... how would you seasoned parents handle that one?

Thu Aug 22 2002 23:18:23 Eastern US
Judith from 198.7.199.232
peds@padrefoundation.org
www.peds.ws
Sorry those ran together before

Thu Aug 22 2002 23:18:31 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Rea will be a senior and Rheta a junior

Thu Aug 22 2002 23:19:35 Eastern US
tret (mother of 12 year old. dx. @ 7) from 216.180.80.2
As usual, day late and dollar short. Yes she has her own aide. ME. At the time she was diagnosed, there was no nurse. She was on shots and took them at school also. Each day, several times they would call me to come up there, blood sugar would be 20's or 500's. I ask the county board to hire a nusre, NOWAY. No money. So I came home looked the laws up and went from there. They decided to hire me instead of nurse.

Thu Aug 22 2002 23:19:36 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
I would talk to that teacher and tell him Brian will be testing in the classroom if necessary and there is nothing he can do about it

Thu Aug 22 2002 23:19:43 Eastern US
Sandy (son, age 12, dx'd 12 23 97, pumping humalog/injecting Lantus) from 66.19.28.138
We meet with the 4 core teachers next week... I have been saving articles to give to him...because I'd like him to concede nicely... but, I don't think he really has a choice.

Beth, the girls are in the glory years of high school... :-)

Thu Aug 22 2002 23:20:59 Eastern US
Sandy (son, age 12, dx'd 12 23 97, pumping humalog/injecting Lantus) from 66.19.28.138
Beth, have you had teachers that balked before about eating in classroom, use of bathroom/water, testing in classroom, etc... before?

Thu Aug 22 2002 23:21:29 Eastern US
Judith from 198.7.199.232
But by now couldn't she get along without you? I'd imagine it's embarrassing for a 12y/o to have her mother around all the time. Has she ever gone away - eg to camp?

Thu Aug 22 2002 23:21:46 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
Tret have you been in the parents chat before, I remember a couple of years ago talking to a parent who did just that

Thu Aug 22 2002 23:22:41 Eastern US
Sandy (son, age 12, dx'd 12 23 97, pumping humalog/injecting Lantus) from 66.19.28.138
Tret, what things do you do for your daughter at school now? Does she give her shots on her own yet? Do you do dosing together or do you still figure out dosing without her help? I am trying to gauge my involvement with my son at school this year... I have supported him by phone for all of these years... when the school has let us down. IT has worked nicely.

Thu Aug 22 2002 23:24:12 Eastern US
Sandy (son, age 12, dx'd 12 23 97, pumping humalog/injecting Lantus) from 66.19.28.138
Tret, my son still requests that I sit on the soccer sideline with him so we can handle diabetes together quickly...if he needs a shot or if he is on the low side when he tests at the half time. He is not embarassed a bit. He likes the support alot... He has been doing more dosing this summer though...

Thu Aug 22 2002 23:25:29 Eastern US
tret (mother of 12 year old. dx. @ 7) from 216.180.80.2
I do not stay right with her. I have other duties, office and another child with diabetes and a child with MD. She is on a pump now, can figure her insulin and do the bolous, only needs help when it is bad, which is very often. We can not get it good. It is very unstable. She is not embarassed at all. Yes Beth it is me.

Thu Aug 22 2002 23:26:11 Eastern US
tret (mother of 12 year old. dx. @ 7) from 216.180.80.2
parents room?

Thu Aug 22 2002 23:26:31 Eastern US
Sandy (son, age 12, dx'd 12 23 97, pumping humalog/injecting Lantus) from 66.19.28.138
My son also asks that I explain diabetes to his soccer team each year and every year thus far, we have explained diabetes to his class at school too, last year we did 1/3 of his class 75 kids, made then understand, opened up for questions... and kids volunteered to help him anytime he needed legs when his felt wobbly... to grab his snack bin for him...

Thu Aug 22 2002 23:26:32 Eastern US
Judith from 198.7.199.232
Uh oh. Better move....

Thu Aug 22 2002 23:26:47 Eastern US
Sandy (son, age 12, dx'd 12 23 97, pumping humalog/injecting Lantus) from 66.19.28.138
Yeah, let's go to parents... :-)

Thu Aug 22 2002 23:26:52 Eastern US
Beth (IA) (Rea 17, dx'd 7/98, pumping) from 209.255.91.86
I remember telling Rea about that at the time, she just gave me a look, and said DON'T EVEN THINK ABOUT IT

Thu Aug 22 2002 23:28:13 Eastern US
Sandy (son, age 12, dx'd 12 23 97, pumping humalog/injecting Lantus) from 66.19.28.138
I guess I have been lucky. Brian has been quite open about everything...only shuts down when people don't know and stare... he hates that...



                 
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