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  Back to Chat School Chat

Back to School chat with Steph Schwartz and David Holtzman

On September 9, 2002, Steph Schwartz, Pediatric Diabetes Nurse Specialist and Editor of the Ask the Diabetes Team section, along with David Holtzman, JD, joined us for a special chat about diabetes at school.

Chat Room Administrator Mon Sep 9 2002 20:15:00 Eastern US
The 'Back to School' chat room is now open.


Mon Sep 9 2002 20:50:05 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
so has school started for everyone?

Mon Sep 9 2002 20:59:02 Eastern US
Judith from 198.7.199.159
Hi nwf. I don't think the chat has started here yet..but will soon.

Mon Sep 9 2002 20:59:38 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
o ok

Mon Sep 9 2002 20:59:51 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
i definitely have a few things to ask and say

Mon Sep 9 2002 21:01:46 Eastern US
Steph (Moderator) from 207.172.148.236
GE all

Mon Sep 9 2002 21:03:15 Eastern US
Steph (Moderator) from 207.172.148.236
Does anoyone have anything to share?

Mon Sep 9 2002 21:04:28 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
Oh do i ever

Mon Sep 9 2002 21:05:06 Eastern US
Steph (Moderator) from 207.172.148.236
shoot

Mon Sep 9 2002 21:05:14 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
but I wonder how many people are here in the chat

Mon Sep 9 2002 21:05:30 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
ok....Robert my son is on the pump

Mon Sep 9 2002 21:06:07 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
modifications at school are not even a problem he can carry everything he needs to

Mon Sep 9 2002 21:06:17 Eastern US
Steph (Moderator) from 207.172.148.236
and...............

Mon Sep 9 2002 21:06:40 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
our problem is.... he is in the gifted class and they are going to space camp at Cape Kennedy in November

Mon Sep 9 2002 21:06:55 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
I was told that there is not room for me to go

Mon Sep 9 2002 21:07:22 Eastern US
Steph (Moderator) from 207.172.148.236
Do you want to wait for a few more people?

Mon Sep 9 2002 21:07:29 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
Now since this is a "school"field trip what should they be responsible for?

Mon Sep 9 2002 21:07:32 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Are any parents going as chaperones?

Mon Sep 9 2002 21:07:47 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
I can

Mon Sep 9 2002 21:07:59 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Did you want to go? Who will be available to help kids with medical issues?

Mon Sep 9 2002 21:08:10 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
Yes 2 other parents who children have no health care concerns

Mon Sep 9 2002 21:08:26 Eastern US
Steph (Moderator) from 207.172.148.236
Does the school have someone trained who can take of him at Space CAmp?

Mon Sep 9 2002 21:09:08 Eastern US
David from 65.129.30.54
Hi, Steph and everybody. I am glad to be able to join you this evening

Mon Sep 9 2002 21:09:34 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
oh yes i asked if I could please go, and he told my son that I would be unable to go, then when I confronted him about it, he avoided it all around and said he'd see what he could do, which means sorry, nope you cant go

Mon Sep 9 2002 21:09:41 Eastern US
Steph (Moderator) from 207.172.148.236
Great -- David is an EXPERT in these things jump in David

Mon Sep 9 2002 21:10:40 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
they have their nurse which is a diabetes educator herself and I talked to her about it today, and well she seems to think she can tel this teacher everything he needs to know and do for my son

Mon Sep 9 2002 21:10:45 Eastern US
David from 65.129.30.54
Schools do not have to allow parents to attend out of town field trips.

Mon Sep 9 2002 21:11:13 Eastern US
Steph (Moderator) from 207.172.148.236
As I understand the school's responsibility is to make sure your child has someone to care for him. That does not mean you are entutled to go.

Mon Sep 9 2002 21:11:14 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
but, my child has never been away from meexcept for diabetes camp

Mon Sep 9 2002 21:11:18 Eastern US
David from 65.129.30.54
However, if the trip is compulsory, kids with special needs must be accomodated.

Mon Sep 9 2002 21:11:42 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
I know Ellen went to DC on Zach's class trip :-)

Mon Sep 9 2002 21:11:51 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
but is a regular ed teacher who is not "certified" liable?

Mon Sep 9 2002 21:12:11 Eastern US
David from 65.129.30.54
This can include school personnel attending to the kids with special needs or contracted personnel at the location available to provide services to the kids.

Mon Sep 9 2002 21:12:45 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
When my son's 5th grade class went on the Washington DC class trip, I made every effort to be able to go and succeeded

Mon Sep 9 2002 21:12:45 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
certified as in diabetes

Mon Sep 9 2002 21:12:55 Eastern US
David from 65.129.30.54
Liability is a legal issue and that is not appropriate for this discussion. The question is who is going to provide services to the kids.

Mon Sep 9 2002 21:12:55 Eastern US
Steph (Moderator) from 207.172.148.236
Your only choice would be to ask a parent chaperone if you can go in his/her place.

Mon Sep 9 2002 21:13:26 Eastern US
Steph (Moderator) from 207.172.148.236
David the school nurse is a CDE did you see that?

Mon Sep 9 2002 21:13:30 Eastern US
David from 65.129.30.54
There is no requirement that persons administering care to kids be certified in diabetes.

Mon Sep 9 2002 21:13:46 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
nwf, you have to go to the top - the person who makes the decisions about the trips - Maybe even to the superintendent of schools for the county or higher

Mon Sep 9 2002 21:14:33 Eastern US
David from 65.129.30.54
I think it is great the usual school nurse is a CDE but that goes well beyond what is required.

Mon Sep 9 2002 21:14:37 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
ahhhhh well that what I was thinking as well

Mon Sep 9 2002 21:15:06 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
she has a son who is dx'ed there as well

Mon Sep 9 2002 21:15:13 Eastern US
Steph (Moderator) from 207.172.148.236
What about the people at NASA? I'm sure there are doctors and nurses there.

Mon Sep 9 2002 21:16:48 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
I have no information on the this, at least nothing the school has given to me, I suppose I could call Nasa and find out myself

Mon Sep 9 2002 21:16:56 Eastern US
David from 65.129.30.54
I think the bottom line is for you to meet with the school administrators and learn from them how they intend to meet their responsibilities for care for your kids.

Mon Sep 9 2002 21:17:38 Eastern US
Steph (Moderator) from 207.172.148.236
It's hard sending your kids off, but if there's a competent person to help with the diabetes stuff, that's what the law calls for.

Mon Sep 9 2002 21:17:57 Eastern US
David from 65.129.30.54
If theye have no answers, contact the state education department and ask them to help you understand your rights and responsibilities.

Mon Sep 9 2002 21:18:06 Eastern US
nwfFlorida (Mom of Robert, 10, dx'ed at 6) from 205.188.208.41
okie dokie thanks for your time!

Mon Sep 9 2002 21:18:23 Eastern US
sue (kylies mom) from 64.108.80.244
we go to a private school i'm in charege of my daughter care

Mon Sep 9 2002 21:18:36 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
How long will your son be gone? What help does he need, under normal circumstances? Does he insert his own sets? Can he change basals if needed? Does he count carbs, figure his own boluses?

Mon Sep 9 2002 21:18:41 Eastern US
Steph (Moderator) from 207.172.148.236
Sure -- that's the idea!! Call Space Camp and let them know your concern.

Mon Sep 9 2002 21:18:57 Eastern US
sue (kylies mom) from 64.108.80.244
we don't have a nurse, but the school is our choice

Mon Sep 9 2002 21:19:02 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Is this for space camp? I don't think there are doctors or nurses there

Mon Sep 9 2002 21:19:11 Eastern US
David from 65.129.30.54
How can we help you?

Mon Sep 9 2002 21:19:23 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
I've been to space camp too.

Mon Sep 9 2002 21:19:31 Eastern US
David from 65.129.30.54
What state do you live in?

Mon Sep 9 2002 21:19:55 Eastern US
sue (kylies mom) from 64.108.80.244
michigan

Mon Sep 9 2002 21:19:59 Eastern US
Steph (Moderator) from 207.172.148.236
How can we help you further NWFla mom? you sound upset with what's been suggested

Mon Sep 9 2002 21:20:37 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
hi

Mon Sep 9 2002 21:20:48 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
NWF, I would work hard to be able to go.

Mon Sep 9 2002 21:20:55 Eastern US
Steph (Moderator) from 207.172.148.236
I think she left

Mon Sep 9 2002 21:21:31 Eastern US
David from 65.129.30.54
Sue, how can we help?

Mon Sep 9 2002 21:21:53 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Hi Tori. How are things for you at school?

Mon Sep 9 2002 21:21:57 Eastern US
Steph (Moderator) from 207.172.148.236
Welcome to those just joining -- anyone want to share?

Mon Sep 9 2002 21:22:39 Eastern US
sue (kylies mom) from 64.108.80.244
i'm fine were doing well.......kylies is making good choices, she knows i'm a phone call away.

Mon Sep 9 2002 21:22:47 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
My 6 grade son just entered a new school in 1st grade. He has a new pump (3 mos). We have an aide in the classroom. Is this how most parents have handled the situation?

Mon Sep 9 2002 21:22:48 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
I missed David's introduction - could you tell us about your credentials David. Sorry for being late

Mon Sep 9 2002 21:23:11 Eastern US
sue (kylies mom) from 64.108.80.244
our school is working with us, it's very small only 70 kids

Mon Sep 9 2002 21:23:11 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
I'm doing good @ school, just a little new to everything because i was just diagnosed in july

Mon Sep 9 2002 21:23:18 Eastern US
Steph (Moderator) from 207.172.148.236
Ellen hoe r things with Zack this year?

Mon Sep 9 2002 21:23:38 Eastern US
David from 65.129.30.54
I am an attorney and have been working in the area of reimbursement of diabetes care and school issues for several years.

Mon Sep 9 2002 21:23:50 Eastern US
sue (kylies mom) from 64.108.80.244
an aid for what?

Mon Sep 9 2002 21:23:55 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
I'm sorry, my soon is 6 years old in 1st grade, not 6th.

Mon Sep 9 2002 21:24:07 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Thanks. Do you know Loring Spolter?

Mon Sep 9 2002 21:24:32 Eastern US
Steph (Moderator) from 207.172.148.236
Tori --was it hard going back to school?

Mon Sep 9 2002 21:24:41 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Zack's doing great - the transition to high school was very smooth thankfully. I had a 504 meeting last week and believe everything is in place.

Mon Sep 9 2002 21:24:51 Eastern US
Tina (Type 1, dx'd at 18mths, Mum of Luc, 4, dx'd at 2) from 210.54.118.210
hello all

Mon Sep 9 2002 21:24:53 Eastern US
David from 65.129.30.54
No.

Mon Sep 9 2002 21:25:14 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
An aide to assist him when he has to test and get a snack if he is low. To program pump for insulin doses and highs.

Mon Sep 9 2002 21:25:24 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
i have an aid at recess just watching me from a distance

Mon Sep 9 2002 21:25:24 Eastern US
jamie from 64.12.96.107
david r u judiths boy

Mon Sep 9 2002 21:25:48 Eastern US
Steph (Moderator) from 207.172.148.236
Good job Ellen!! :) Does everyone know what a 504 plan is?

Mon Sep 9 2002 21:26:26 Eastern US
Steph (Moderator) from 207.172.148.236
So how's school going Tori --ok?

Mon Sep 9 2002 21:26:26 Eastern US
sue (kylies mom) from 64.108.80.244
really, does that borther your kids?

Mon Sep 9 2002 21:26:38 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
Torie,
Do you have a pump?

Mon Sep 9 2002 21:27:18 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
no...but im hoing to get one soon

Mon Sep 9 2002 21:27:45 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
pretty good so far

Mon Sep 9 2002 21:28:03 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
David, what about kids who have for years tested their own blood sugar and taken insulin in school in elementary school, and suddenly are told they can't do the same in middle school. How does a parent go about to make it clear that their child must have access at all times to their life sustaining equipment?

Mon Sep 9 2002 21:28:26 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump) from 24.194.99.225
Dave - what right do college students have - any?

Mon Sep 9 2002 21:28:34 Eastern US
Steph (Moderator) from 207.172.148.236
Tori was just dignosed - she's got a bunch of stuff to kearn b4 a pump

Mon Sep 9 2002 21:28:51 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Hello! We have Tyler in a private school but if I understand this right, because the school recieves federal funding, we are covered by Section 504?!

Mon Sep 9 2002 21:28:59 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
i have a game on a cd-rom about managing diabetes

Mon Sep 9 2002 21:29:08 Eastern US
David from 65.129.30.54
The first step is meeting with the school and setting up a 504 plan. That puts everything on the record.

Mon Sep 9 2002 21:29:16 Eastern US
sue (kylies mom) from 64.108.80.244
kylie would never want that , she wouldn't want to feel different

Mon Sep 9 2002 21:29:24 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
It seems that once a child has a pump, things at school get a litle more complex for younger children. for example, my 6 year old son has to test and bolus insulin everytime he eats and he cannot do the math to calculat the doses-so an aide is necessary. It takes too much time from the teacher.

Mon Sep 9 2002 21:29:34 Eastern US
Steph (Moderator) from 207.172.148.236
Which game?

Mon Sep 9 2002 21:29:52 Eastern US
sue (kylies mom) from 64.108.80.244
is it a catholic school?

Mon Sep 9 2002 21:30:29 Eastern US
David from 65.129.30.54
With a 504 plan in place parents, students and the school have an opportunity to establish and understand the rights and responsibilities of each.

Mon Sep 9 2002 21:30:47 Eastern US
Steph (Moderator) from 207.172.148.236
You could make chartor look into the new pump that calculates the doses

Mon Sep 9 2002 21:31:13 Eastern US
jamie from 64.12.96.107
daivd are u judihs boy?

Mon Sep 9 2002 21:31:19 Eastern US
sue (kylies mom) from 64.108.80.244
thats a reason why my doc won't put them on a PUMP TILL THEY CAN TAKE care of it themself,,,,

Mon Sep 9 2002 21:31:41 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
it's about a guy who crashed his space ship and he has diabetes and you have to guide him through his day and make sure he does everything correctly... such as taking his shot and testing his blood sugar...it's made by starlight

Mon Sep 9 2002 21:31:44 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Yes, Sue, it is a catholic school. They have all been awesome and I don't forsee any future problems but I thought maybe I should have one in place, just in case.

Mon Sep 9 2002 21:31:45 Eastern US
sue (kylies mom) from 64.108.80.244
sorry about the caps.wrong key

Mon Sep 9 2002 21:31:57 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
The aide helps the whole class, but is there to assist my son in these circumstances and to observe at recess. I don't think the kids or my son even realize that she is really there for him. No it is not a catholic school. Public.

Mon Sep 9 2002 21:32:04 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
i got it 2day and i already finished it

Mon Sep 9 2002 21:32:08 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Starbright Foundation CD?

Mon Sep 9 2002 21:32:13 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Many feel that way, Sue.

Mon Sep 9 2002 21:32:20 Eastern US
sue (kylies mom) from 64.108.80.244
we go to catholic school too....i think there are different rules for then

Mon Sep 9 2002 21:32:35 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump) from 24.194.99.225
but what if the child needs a lunch injection? I don't see much difference

Mon Sep 9 2002 21:32:49 Eastern US
Steph (Moderator) from 207.172.148.236
That's a gret game Tori --played with your friends?

Mon Sep 9 2002 21:33:04 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
yes

Mon Sep 9 2002 21:33:21 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
And if the child's blood glucose levels tend to drop with long acting insulin on board, they also need to check blood sugar

Mon Sep 9 2002 21:33:26 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
not yet but ill make sure i will

Mon Sep 9 2002 21:33:28 Eastern US
Steph (Moderator) from 207.172.148.236
If a parochial school recieves ANY Federal funding they are mandated by the same laws, as I understand it.

Mon Sep 9 2002 21:33:44 Eastern US
David from 65.129.30.54
You should investigate if the public district needs to supply services to your child at parochial school.

Mon Sep 9 2002 21:33:50 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Sue- I was told that if the school receives any federal funding we are covered by Section 504. I spoke with our principal who said we receive federal funding for two different programs.

Mon Sep 9 2002 21:34:13 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
my dad is going to play it with me agagin

Mon Sep 9 2002 21:34:16 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
Philosophies on this differ widely. If you have a child with very poor control and the pump improves complications down the road-it may be the thing to do. Our Drs. are from UCLA and USC and at the pump class we attended there were 4 other 6 year olds starting pumps. My son's control has improved drastically!

Mon Sep 9 2002 21:34:33 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
That's my understanding, but there is also something in the laws that exempt programs run by religious institutions. May only apply to daycare.....

Mon Sep 9 2002 21:34:34 Eastern US
sue (kylies mom) from 64.108.80.244
i'm unsure.......i don't have that plan.

Mon Sep 9 2002 21:35:55 Eastern US
Tina (Type 1, dx'd at 18mths, Mum of Luc, 4, dx'd at 2) from 210.54.118.210
My children also attend a Catholic school here in New Zealand, and whilst we don't have 504's over here, it is still against the law for them to withhold any treatment or care necessary to control D.

Mon Sep 9 2002 21:35:56 Eastern US
Steph (Moderator) from 207.172.148.236
They are not exempt if they recieve public monies.

Mon Sep 9 2002 21:36:04 Eastern US
Steph (Moderator) from 207.172.148.236
David?

Mon Sep 9 2002 21:36:09 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
the game is LOADS of fun!

Mon Sep 9 2002 21:36:51 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
David, what code of the law do parents cite for the ADA with respect to having needs met in school?

Mon Sep 9 2002 21:37:01 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
I've just received the ADA's packet on school issues. Have only skimmed it....

Mon Sep 9 2002 21:37:02 Eastern US
pumpmom (Mom of Charles,12, dx'd at 7) from 12.213.7.106
Tori-where did you get the game and what is it called

Mon Sep 9 2002 21:37:11 Eastern US
sue (kylies mom) from 64.108.80.244
to each there own, i'm just waiting till ky's better at carb counting

Mon Sep 9 2002 21:37:17 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Can a college student have a 504 plan in place?

Mon Sep 9 2002 21:37:18 Eastern US
David from 65.129.30.54
You should contact the local district official who assists with special needs children.

Mon Sep 9 2002 21:37:58 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
pumpmom - www.starbright.org - the cd is free. Know that there's nothing on it about the pump unfortunately, but it's still very cute.

Mon Sep 9 2002 21:38:00 Eastern US
David from 65.129.30.54
No, 504 plans only apply to elementary and secondary schools--not institutions of higher learning.

Mon Sep 9 2002 21:38:03 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
I found the 504 very helpful in setting up my child's services. The school must provide services thatr medically necessary.

Mon Sep 9 2002 21:38:04 Eastern US
Heidyn (type 1) from 64.4.123.69
Hello

Mon Sep 9 2002 21:38:18 Eastern US
sue (kylies mom) from 64.108.80.244
my daughter is in good control on 4-5 shots a day

Mon Sep 9 2002 21:38:28 Eastern US
bballstar (14/f, diagnosed at 2 and pumping) from 65.135.140.225
hello

Mon Sep 9 2002 21:38:45 Eastern US
Steph (Moderator) from 207.172.148.236
Yup it is -- Tori -- you'rre doing great -- let me know how you are doing at stephs@childrenwithdiabetes.com. I need to taalk to the grown-ups about school know, but I'd love to hear from you. What don't you go the kids room and chat with other kids? OK?

Mon Sep 9 2002 21:38:47 Eastern US
David from 65.129.30.54
Hello!

Mon Sep 9 2002 21:39:24 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
What is in place for institutions of higher learning to prevent discrimination and ensure equal learning ?

Mon Sep 9 2002 21:39:38 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
Sue, good luck with it. I know we all struggle with these issues, but in the end we need to do what is best for our children and each child's needs vary .

Mon Sep 9 2002 21:39:53 Eastern US
Steph (Moderator) from 207.172.148.236
Disetronics, Animas, and MiniMed have EXCELLENT publications to bring to the school

Mon Sep 9 2002 21:40:15 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
ADA and Civil Rights Act should apply at any age.

Mon Sep 9 2002 21:40:22 Eastern US
sue (kylies mom) from 64.108.80.244
i don't understand why most find it hard to deal with school, my daughter has been in 4 school in 3 years and they all have been great

Mon Sep 9 2002 21:40:43 Eastern US
David from 65.129.30.54
Judith is correct.

Mon Sep 9 2002 21:40:47 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
i didn't realize that back to school wasn't for kids

Mon Sep 9 2002 21:40:57 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
My son had a VERY DIFFICULT time with the injections. Life is much better for us now.

Mon Sep 9 2002 21:41:11 Eastern US
sue (kylies mom) from 64.108.80.244
we have moved from IL to michigan, then to denver and now back to michigan.all work related move

Mon Sep 9 2002 21:41:30 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
What sections under those acts?

Mon Sep 9 2002 21:41:36 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Steph- is there someone I should get in touch with to find out about private school/Section 504 issues?

Mon Sep 9 2002 21:41:37 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump) from 24.194.99.225
Sue, if you are lucky, things will always continue that smoothly.....however, it may also change and you need to be prepared for that possibility

Mon Sep 9 2002 21:42:10 Eastern US
Steph (Moderator) from 207.172.148.236
If you go our school section, there are link to several organizations. Indeed, many of the State Universities DO have guideline for people with diabetes. I would check with your daughter;s school and find out what their's are. If they don't have them -- make it happen!!

Mon Sep 9 2002 21:42:13 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
you can get the cd from the starbright life adventure series @ starbright.com

Mon Sep 9 2002 21:42:32 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
According to Dr. Fran Kaufman in ADA's Diabetes Advocate, Sept 2001, re: Americans with Disabilities Act "protects all studenst in private schools, unless the school is run by a religious entity."

Mon Sep 9 2002 21:42:40 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Pam, great to hear your son is doing so well and that you are able to have his needs met at school. Bravo. Where do you live?

Mon Sep 9 2002 21:42:43 Eastern US
Tori (Type one, 10 yrs. old) from 64.12.96.202
bye bye

Mon Sep 9 2002 21:42:51 Eastern US
Steph (Moderator) from 207.172.148.236
Contact Crystal Jackson at the National ADA HQ

Mon Sep 9 2002 21:42:57 Eastern US
sue (kylies mom) from 64.108.80.244
i found if you in with a good attiude people treat you fairly are always willing to help

Mon Sep 9 2002 21:43:09 Eastern US
Steph (Moderator) from 207.172.148.236
Bye Tori -- write me!!

Mon Sep 9 2002 21:43:16 Eastern US
David from 65.129.30.54
Sorry, your questions are very difficult to answer in the abstract. You can view summaries of the ADA and the Civil Rights Act at Findlaw.com

Mon Sep 9 2002 21:43:42 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Judith- Thanks so much for that info! Interesting being that we are at a Catholic School.

Mon Sep 9 2002 21:43:50 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
Ellen, thanks for the support. I am in California.

Mon Sep 9 2002 21:43:58 Eastern US
Tina (Type 1, dx'd at 18mths, Mum of Luc, 4, dx'd at 2) from 210.54.118.210
that is not necessarily true unfortunately Sue. While Luc is looked after wonderfully by his daycare, his kindergarten refuse point blank to do anything - in fact they were going to refuse to accept his enrollemnt until I pointed out they can't refuse!

Mon Sep 9 2002 21:44:08 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump) from 24.194.99.225
I'm sure most of these people who HAVE had difficulty with their schools didn't have a bad attitude

Mon Sep 9 2002 21:44:08 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
David, why do we have to continue to fight these same issues in every school system around the country? Why if it's codified, does this continue to be an individual battle ? What can be done to make it less so?

Mon Sep 9 2002 21:44:25 Eastern US
Steph (Moderator) from 207.172.148.236
We aldo have summaries in our school section

Mon Sep 9 2002 21:44:38 Eastern US
Tina (Type 1, dx'd at 18mths, Mum of Luc, 4, dx'd at 2) from 210.54.118.210
I think that there are just some people out there who are unfortuantely very ignorant of D. And this makes them scared of it.

Mon Sep 9 2002 21:45:04 Eastern US
David from 65.129.30.54
The state and federal laws regarding these issues would have to be changed. Talk to your elected officials.

Mon Sep 9 2002 21:45:19 Eastern US
Steph (Moderator) from 207.172.148.236
The ADA is currently working on iy. Fran Kaufman is a Peds Endo and current ADA President

Mon Sep 9 2002 21:45:26 Eastern US
sue (kylies mom) from 64.108.80.244
i saying what has worked for me

Mon Sep 9 2002 21:46:07 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
If a parent cannot get through to the school system to make the "reasonable accomodations" , what type attorney should they seek and how do they go about finding one who is reputable? How do they find one who will do the work pro bono?

Mon Sep 9 2002 21:46:09 Eastern US
sue (kylies mom) from 64.108.80.244
i'm can't speak for others

Mon Sep 9 2002 21:47:07 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
I think it is also our responsibility to continue to educate. I had no idea how in depth diabetes management in children was until I was faced with it myself. I think people just don't know.

Mon Sep 9 2002 21:47:38 Eastern US
Steph (Moderator) from 207.172.148.236
The Civil Liberties union, David?

Mon Sep 9 2002 21:47:58 Eastern US
Steph (Moderator) from 207.172.148.236
Right on--Pam

Mon Sep 9 2002 21:48:27 Eastern US
sue (kylies mom) from 64.108.80.244
i agree people are scared, you can't blame them.it's a frighting thing

Mon Sep 9 2002 21:49:24 Eastern US
sue (kylies mom) from 64.108.80.244
granted it dosen't give them the right to treat your child badly

Mon Sep 9 2002 21:49:34 Eastern US
Steph (Moderator) from 207.172.148.236
WrightsLaw offers legal information for parents of kids with special needs, including kids with diabetes, regarding eduation and schooling. Section 504 and IDEA: Basic Similarities and Differences is particularly good.

Mon Sep 9 2002 21:50:03 Eastern US
sue (kylies mom) from 64.108.80.244
but some people need a little more or help to understand

Mon Sep 9 2002 21:50:06 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
phone....

Mon Sep 9 2002 21:50:08 Eastern US
Heidyn (type 1) from 64.4.123.69
Ellen,at the community college I attend-to have accomadation RE lows,and tests I had to fill out a disability form(with supporting documentation from my physician)

Mon Sep 9 2002 21:51:12 Eastern US
Steph (Moderator) from 207.172.148.236
Also see http://www.childrenwithdiabetes.com/d_0j_323.htm

Settlement Reached in Board of Education Lawsuit
School Children with Diabetes Nationwide May Benefit

Mon Sep 9 2002 21:51:13 Eastern US
David from 65.129.30.54
You need to find an attorney who has experience in education law or disability law. Pro bono is a decision left to the attorney.

Mon Sep 9 2002 21:51:16 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump) from 24.194.99.225
Heidyn - fortunately, Elissa has not come across anyone who has given her a hard time...she tests, injects, eats in class

Mon Sep 9 2002 21:51:26 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Can you also tell us what a professional Advocate for disabled children does , and how that differs from what an Attorney can do for these types of cases?

Thanks Heidyn. Was that a Federal Form or just unique to your college?

Mon Sep 9 2002 21:51:51 Eastern US
sue (kylies mom) from 64.108.80.244
why diabetes is a diease not a disabitity

Mon Sep 9 2002 21:52:53 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
We have been at 2 different schools and I have gone to the schools and given inservices to all of the teachers. Not only have they been educated, but have greatly appreciated the new information.

Mon Sep 9 2002 21:52:54 Eastern US
David from 65.129.30.54
But the rights sought by some with diabetes involves an area of legal expertise touches on the ADA--disability law.

Mon Sep 9 2002 21:53:01 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
For lots of info re: schools and the laws, contact the American Diabetes Assoc

Mon Sep 9 2002 21:53:22 Eastern US
Steph (Moderator) from 207.172.148.236
the diability laws are what protect people with ANY disoorder--including diabetes

Mon Sep 9 2002 21:53:39 Eastern US
Heidyn (type 1) from 64.4.123.69
A college form
Judy,thats good,I did it to make sure(though most of my instructers are accomadating,they still like paperwork on file.)

Mon Sep 9 2002 21:54:18 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Pam- I also have done the same and the office staff, PE teacher and new teacher are so appreciative to have me come in and educate them.

Mon Sep 9 2002 21:54:32 Eastern US
sue (kylies mom) from 64.108.80.244
i still don't consdider my child disabled........

Mon Sep 9 2002 21:54:39 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Because when our children are impaired as a result of the diabetes , such as a severe low blood glucose or dropping, or a severe high blood glucose level, they are impaired and also disabled. That possibility exists for every child with diabetes...and they sometimes cannot help themselves out of that situation without accomodation and help - that's why I see it as a disability.

Mon Sep 9 2002 21:55:16 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Dave has been in the same school system since kindergarten - and I've had kids in the system continuously since 1971!!! Only one year have we had problems, with a particular teacher and the principal. I was helpful, patient, educating...but to no avail. It took contact with the superintendent's office, and standing up to a threat to me by the principal, before Dave got the help he needed.

Mon Sep 9 2002 21:55:38 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
Hi all, I am feeling fortunate to know that in our State, (Washington St) the superintendent of Public Instruction has a complete guide for the care of children with diabetes. Spells it all out clearly. Some may want to look at it and attempt to get their own legislature to adopt something similiar. It is not perfect but childrens endos were involved in creating the plan.Will attempt to find a link....however, it does not allow for the administration of glucagon.

Mon Sep 9 2002 21:55:48 Eastern US
sue (kylies mom) from 64.108.80.244
you'll never convince me of that...........my daughter isn't disabled...she has a diease

Mon Sep 9 2002 21:56:18 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Hello

Mon Sep 9 2002 21:56:29 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
And some would not want to be labeled as having a "disease" - calling diabetes a "condition"... WOrds are very powerful.

Mon Sep 9 2002 21:56:56 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Sue, I hope Kylie will never be impaired by the diabetes.

Mon Sep 9 2002 21:57:00 Eastern US
sue (kylies mom) from 64.108.80.244
i know childeren who are disabled and kylie isn't one of them

Mon Sep 9 2002 21:57:04 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
I believe North Carolina recently passed legislation re: kids with diabetes in school.

Mon Sep 9 2002 21:57:31 Eastern US
Steph (Moderator) from 207.172.148.236
Dee the link is on our school page

Mon Sep 9 2002 21:57:39 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Hi Susan. I know you've had school problems. How is it going now?

Mon Sep 9 2002 21:57:43 Eastern US
sue (kylies mom) from 64.108.80.244
lets call it what it is a disease

Mon Sep 9 2002 21:57:45 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
Sue,
It's a matter of semantics. If you want the best sevices provided to your child some times you need to agree to the terms.

Mon Sep 9 2002 21:58:07 Eastern US
Steph (Moderator) from 207.172.148.236
yes it did, JUdith

Mon Sep 9 2002 21:58:34 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
It's always a constant struggle - we still don't have an agreed upon health care plan for this year.

Mon Sep 9 2002 21:58:49 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
http://www.k12.wa.us/LearnTeachSupp/healthservices/

Mon Sep 9 2002 21:58:59 Eastern US
sue (kylies mom) from 64.108.80.244
never, thats a cop out to me

Mon Sep 9 2002 21:59:19 Eastern US
Steph (Moderator) from 207.172.148.236
where r u Susan?

Mon Sep 9 2002 21:59:24 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
Thanks Steve, that would have been too easy..lol

Mon Sep 9 2002 21:59:40 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Hi Dee! Thanks for that link! I need to print it and read it.

Mon Sep 9 2002 22:00:06 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Our school nurses - 4.5 of them for ~12,000 students! - are very receptive to learning about d. However, they just don't have much time.

Mon Sep 9 2002 22:00:17 Eastern US
David from 65.129.30.54
Dee, thank you !! for the link to the Washington guidelines. http://www.k12.wa.us/LearnTeachSupp/healthservices/

Mon Sep 9 2002 22:00:34 Eastern US
sue (kylies mom) from 64.108.80.244
so my son has allergy's is he diabled because he has troulbe breathing 5mth a year?

Mon Sep 9 2002 22:00:52 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
The schools in Virginia have passed legislation to administer Glucagon

Mon Sep 9 2002 22:01:08 Eastern US
sue (kylies mom) from 64.108.80.244
i don't understand..........they are both medical conditions

Mon Sep 9 2002 22:01:14 Eastern US
David from 65.129.30.54
I urge every parent to show these to there school administrators as examples of what is posible.

Mon Sep 9 2002 22:01:15 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
He might well qualify under the laws, Sue...under the same section as diabetes: "other health impairments"

Mon Sep 9 2002 22:01:24 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump) from 24.194.99.225
Sue - heaven forbid someday Kylie is passed out at school and needs glucagon. Without a plan, who would give it?

Mon Sep 9 2002 22:01:32 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Columbus OH - Dr. signed a plan but the nurse doesn't like it - she only wants a 1 page with wide margins - not enough info can be put in that amount of space.

Mon Sep 9 2002 22:01:54 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
Sherra, I think Seattle Childrens had some input into the plan as well. dont count your endo out as an invaluable source of information....

Mon Sep 9 2002 22:02:32 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Sue I hate the word "diability" also, but children with diabetes do have limitations and need assistance at times, that's where the disability comes in.

Mon Sep 9 2002 22:02:34 Eastern US
David from 65.129.30.54
Well, thanks for inviting me. Good luck!

Mon Sep 9 2002 22:02:41 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
Sue, the 504 plan that is the best thing you can set up for your child in school to assure they get all the services and help they need is based on section 504 of the Rehabilitation Act of 1973, the Americans with diasabilities Act and the Indidviduals with disabilities Act. Maybe we need to change the wording, but if you want the best care that is where it is.

Mon Sep 9 2002 22:02:48 Eastern US
Steph (Moderator) from 207.172.148.236
If your son needs accommodatons because of his breathing (e.g. inhaler) that is also classified as a disability

Mon Sep 9 2002 22:02:50 Eastern US
sue (kylies mom) from 64.108.80.244
911

Mon Sep 9 2002 22:02:59 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
I have to have 3 pages filled out each year re: Dave's diabetes plan. It's a standard school form, not a 504 - though I could (and once did) have one of those.

Mon Sep 9 2002 22:03:05 Eastern US
Steph (Moderator) from 207.172.148.236
Thanks for coming David

Mon Sep 9 2002 22:03:30 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
A lot of diabetes educators see what we go through and are willing to go to bat if neccesary.

Mon Sep 9 2002 22:03:58 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump) from 24.194.99.225
could be quite a while for an ambulance....are you willing to take that risk?

Mon Sep 9 2002 22:04:07 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Our appt at Children's has finally been scheduled for October~ Any suggestions on how to put together the comfort kit required at schools for diabetics?

Mon Sep 9 2002 22:04:16 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Bye David (who is not "my David", despite what Jamie thinks)

Mon Sep 9 2002 22:04:30 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Our ped endo completes a county form authorizing my son to manage his own diabetes care in the class, on trips, anywhere necessary and to carry all items necessary on his person. In addition to that, we have the 504, which emphasizes that if my son cannot take an exam due to a low etc., he will not be penalized. The sample 504 plans on the www.childrenwithdiabetes.com/504 page was very helpful.

Mon Sep 9 2002 22:04:39 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump) from 24.194.99.225
comfort kit - what's that?
thank you, David

Mon Sep 9 2002 22:04:44 Eastern US
Steph (Moderator) from 207.172.148.236
What's 911 Sue?

Mon Sep 9 2002 22:04:59 Eastern US
sue (kylies mom) from 64.108.80.244
i just differ from you ladies, you're entilited your idea's mine just differ.....

Mon Sep 9 2002 22:05:04 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Cory has a 504 and a health care plan but neither has been signed this year and the nurse had the meeting with the teachers without informing me of the date.

Mon Sep 9 2002 22:05:21 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
Sherra, is the comfort kit for disaster?

Mon Sep 9 2002 22:05:28 Eastern US
pam (Mom of Niko, 6, dx'd 4) from 68.6.116.73
Don't limit your resources and help for your child because of semantics.

Mon Sep 9 2002 22:05:58 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
BTW find out just what happens when 911 is called. At least in Indiana, an ambulance with an EMT is dispatched. That person can only give orange juice by mouth for a low. If there is an advanced EMT, she/he can start an IV - but only with 5% glucose - useless in treating a low. Only an advanced life support ambulance with a paramedic can give the help that's needed - an IV of concentrated glucose.

Mon Sep 9 2002 22:06:09 Eastern US
sue (kylies mom) from 64.108.80.244
her teacher we don't have a 504 just a understanding she will take care of kylie when shes in school,

Mon Sep 9 2002 22:06:18 Eastern US
Steph (Moderator) from 207.172.148.236
Susan you are ntitled to be at such a meeting amd can request another b4 u sign off on the plan

Mon Sep 9 2002 22:06:52 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
So our plan specifies called for an advanced life support ambulance if one is needed. There is only ONE in our county BTW, so repsonse time may not be great. I don't want to depend on that.

Mon Sep 9 2002 22:07:08 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Sue, what's in place for a substitute teacher?

Mon Sep 9 2002 22:07:15 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
called=calling

Mon Sep 9 2002 22:07:33 Eastern US
sue (kylies mom) from 64.108.80.244
my children always come 1st, i put them in safe and loving school, i have no fears for them

Mon Sep 9 2002 22:08:15 Eastern US
sue (kylies mom) from 64.108.80.244
everyone at school knows about kylie and what to do for her .

Mon Sep 9 2002 22:08:21 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
I have made sure the school calls me right after 911. I have the glucagon and will most likely get there before anyone that can do more than glucose gel. Its a shame, but its life for now. How many here have ever used glucagon?

Mon Sep 9 2002 22:08:25 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
We are required to put together a "comfort kit" for our children in case of a natural disaster, earthquake etc. I just wonder how I should put mine together differently, if at differently at all. Kinda scary when I think about it.

Mon Sep 9 2002 22:08:29 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
last summer our diabetes team held a Back to School meeting and gave us all the forms and info we needed for the school year. I sent those to the school nurse 2 weeks prior to school beginning. I wrote Cory's health care plan based on those forms and it was only 2 1/2 pages - the doctor's NP signed it but school refuses to accept it. They say it is too long.

Mon Sep 9 2002 22:09:03 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump) from 24.194.99.225
used glucagon about 4 times

Mon Sep 9 2002 22:09:35 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump) from 24.194.99.225
Susan - do they have that right?

Mon Sep 9 2002 22:09:40 Eastern US
sue (kylies mom) from 64.108.80.244
that's the difference our school is like a second family, i don't have a 504 at home...

Mon Sep 9 2002 22:09:49 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
we keep glucagon on hand and school has orders to use it, but thus far we haven't had to use it

Mon Sep 9 2002 22:10:12 Eastern US
sue (kylies mom) from 64.108.80.244
i live 2 doors down i can be there in 20 seconds

Mon Sep 9 2002 22:10:28 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Sherra, very important topic you have raised. yes of course Tyler will need extra things - diabetes supplies

Mon Sep 9 2002 22:10:32 Eastern US
Karen from 205.245.188.196
Hey Everyone!!!, I can't believe it of all the nights, there is a chat about Back to School and I check on here!
I can tell you, in the State of IL, Your child with diabetes had better have a Section 504, because the Health Care Plan is not accetable in this chool district! Doesn't matter how well your child is, it is just thee best protection in the world for them while they are in school!!!!!

Mon Sep 9 2002 22:10:51 Eastern US
sue (kylies mom) from 64.108.80.244
i'm home or her stepdad, during school hours

Mon Sep 9 2002 22:11:07 Eastern US
Karen from 205.245.188.196
tsk! acceptable sorry

Mon Sep 9 2002 22:11:11 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Judy, I don't know if they have that right. If they insist upon writing one that does not meet his needs, I hope I can at least attach the one I wrote with a comment - "see attached"

Mon Sep 9 2002 22:11:15 Eastern US
Steph (Moderator) from 207.172.148.236
Susan request a 504 meeting. If those are Cory's doctors orders the school must accept them

Mon Sep 9 2002 22:11:37 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
Sherra, I am not even sending insulin. If we only have a nurse 1/2 day per week that can give insulin, whats the point in leaving 3 different bottles there. Im only 20 minutes running, from the school so I WILL GET THERE SOMEHOW. I am putting extra food for lows in the kit Sherra..

Mon Sep 9 2002 22:11:43 Eastern US
adecker (mom of 1st grader) from 152.163.189.201
Question of pumpers...do you have a different basal profile on school days?

Mon Sep 9 2002 22:12:06 Eastern US
sue (kylies mom) from 64.108.80.244
gotta run , nice chatting

Mon Sep 9 2002 22:12:10 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Ellen- yes, interesting. But, how would I ever know what to tell them to give him as far as insulin dose. I guess I could give a scenario. I need to speak with his endo I guess.

Mon Sep 9 2002 22:12:13 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Susan, the laws say that you have the right to specify what is needed, and to sign ONLY those parts with which you agree.

Mon Sep 9 2002 22:12:43 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
We don't have a different basal profile on school days, but every person's profiles are unique.

Mon Sep 9 2002 22:12:59 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Our fire dept/EMT is about 1/4 mile from the school - but I still want the school to have trained people for glucagon emergency - phones could be out - emergency squads do have wrecks, etc.

Mon Sep 9 2002 22:13:22 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Good idea Dee! I feel the same way and will get there come "heck or hi water". I think I will also pack the extra snacks and make good choice for him. We don't have a school nurse. I AM IT! :-)

Mon Sep 9 2002 22:13:27 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
Your endo knows that stuff Sherra. You reduce the amount of insulin because of the possible short food supply.

Mon Sep 9 2002 22:13:29 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Sherra, perhaps an insulin pen would be easier for them to dose with - just dial and inject rather than draw up....?

Mon Sep 9 2002 22:13:42 Eastern US
Karen from 205.245.188.196
This May be a first here, but Judith, PLEASE where are the laws that state what you can and can not specify, I REALLY need to have those Laws!!!

Mon Sep 9 2002 22:13:58 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Re: disasters, think about simple things, too. Two years ago, there was a fire at our high school, right before lunch. Everyone was evacuated, eventually put on buses in the parking lot for several hours. There were about 6 kids with diabetes. Vanya called me on a teacher's cell phone. I came to school with jc and crackers. The health aid had "saved" all the files, but had no carb. She also did not know which buses had kids with d!!

Mon Sep 9 2002 22:14:07 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Sherra, Cory has a vial of insulin at school, with syringes and pump supplies, his dosage is in his health care plan as well as corrction dose.

Mon Sep 9 2002 22:14:26 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Karen, contact the American Diabetes Assoc and ask for their school rights package.

Mon Sep 9 2002 22:15:35 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Dave VERY BRIEFLY had a vial of insulin at elementary school, for him to use. The secretary, the one who knew MOST about diabetes, said to me "Now this is what I give if he goes low, right?" I took the insulin home the same day!!!! (BTW he never had glucagon at school, as he is allergic to it)

Mon Sep 9 2002 22:16:17 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
My son's buses were delayed last week due to tornado warnings and he had taken his extra emergency pack of food and batteries etc. out of his back pack to make room for books. Good idea to make sure the kids have lots of backup stuff on them if possible too.

Mon Sep 9 2002 22:16:28 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
He does have a pen, back up pump supplies, gel, glucose tabs, jc, crackers, etc in the health office, as well as some in his locker. He's a junior in HS

Mon Sep 9 2002 22:16:43 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
I guess I am basically trying to work with our school on what our usual daily needs are and will tackle the glucagon issue and others one at a time as time goes on. Jesse has only been at full day school for 3 days so am at the beginning point and feel just great that his teacher is glady learning to count carbs for snacks.

Mon Sep 9 2002 22:16:57 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
He also carries his test kit and some form of sugar with him at ALL times (gym is a possible exception). I figure at least he can get started working on a low if he has sugar with him.

Mon Sep 9 2002 22:17:17 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Dee, great start :-)

Mon Sep 9 2002 22:17:31 Eastern US
Karen from 205.245.188.196
okay, I did, but the specifics, they don't mention, they only state that if you are in disagreemnt with anything in the Section 504 you don't have to sign....it is Okay though, I shall return to My reading,...and READ ON!!!! PLEASE inform any parent to PLEASE consider and put forth a Section 504 on thier diabetic in school, that is as important as INSULIN to their Life!!! Thank You, Goodnight.

Mon Sep 9 2002 22:17:32 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
I do keep extra juice and snack in Tyler's backpack everyday, extra in the classroom and school office.

Mon Sep 9 2002 22:17:40 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Wish Dave was that cooperative. He rarely carries any carb source.

Mon Sep 9 2002 22:18:17 Eastern US
Steph (Moderator) from 207.172.148.236
Great approach, DEE. ;)

Mon Sep 9 2002 22:18:24 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
Do be sure Sherra that one of those things are going out the door for drills ect...

Mon Sep 9 2002 22:18:39 Eastern US
Karen from 205.245.188.196
tsk! I can't type, better off reading! I meant..."their" not thier

Mon Sep 9 2002 22:19:03 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Has anyone used gel on a child when they were unconscious or having seizures? We were told there is too great a risk of aspirating it into the lungs and that's why glucagon needs to be used.

Mon Sep 9 2002 22:19:57 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Great point Dee. I know that the kindergarten teacher always carried his snack out at fire drills but I am not sure of the first grade teacher being aware of this.

Mon Sep 9 2002 22:20:01 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Susan, I don't have a choice. Dave is allergic to glucagon. I would use it very carefully. He was apparently near seizures - twitching, very out of it - last summer on our teen bike trip - and had gel.

Mon Sep 9 2002 22:20:32 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
Ive been told the gel is safe if rubbed into the gum and cheek area...anyone else?

Mon Sep 9 2002 22:20:43 Eastern US
Karen from 205.245.188.196
Whoa Whoa Whoa....AH yes Susan, they will choke to death when they are seizuring or unconscious! Get won't work, only when they are 27 and shaking and half talking, it works real good!

Mon Sep 9 2002 22:21:10 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Can use a small amount - tsp at a time - rubbed into the lining of the inner cheek and gums. As I told the uncooperative teacher in 4th grade, I'd rather have a kid with a good brain and gel in his lungs than a brain dead one with clear lungs!

Mon Sep 9 2002 22:21:20 Eastern US
Steph (Moderator) from 207.172.148.236
You can rub the gel onto the gums so it doesn't get aspirated. I've used in kids who are out but not seizing

Mon Sep 9 2002 22:21:39 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Judith, David would have to be an exception to that rule.

Mon Sep 9 2002 22:21:57 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
We rarely use glucagon at camp. It's gel or an IV of D50

Mon Sep 9 2002 22:22:46 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Perhaps the bike trip doctors should carry IV of D50

Mon Sep 9 2002 22:22:53 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Certainly would not want to squirt a full tube of gel down the throat of an unconscious person, but rubbing small amounts is effective and safe.

Mon Sep 9 2002 22:22:59 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump) from 24.194.99.225
did they carry D50 on the bike trip?

Mon Sep 9 2002 22:23:05 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
We have some of the small tubes of gel that have 24 carbs - better than the larger tubes that have only 15 when a child is super low.

Mon Sep 9 2002 22:23:11 Eastern US
Steph (Moderator) from 207.172.148.236
I used Glucagon omce in over 15 years st camp

Mon Sep 9 2002 22:23:15 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
They do, Ellen... Have used it 3 times in 19 yrs. Dave did not require it.

Mon Sep 9 2002 22:23:17 Eastern US
Karen from 205.245.188.196
Hey Judith, I think you might just start a controvery over that ....unconcious....gel....hummmm, I will ask the endo on that one!!!! Goodnight All, Please obtain a Section 504 if your child is in school!

Mon Sep 9 2002 22:23:31 Eastern US
Steph (Moderator) from 207.172.148.236
always used gel just as I explained

Mon Sep 9 2002 22:23:50 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
what is D50? dextrose?

Mon Sep 9 2002 22:23:56 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
I wouldnt mind a little experience with the IV Drip myself. Why cant they teach that to us parents for severe lows and sick days? Save a lot of us ER money and stress on the kids. But I guess I will save that for a sick day chat.

Mon Sep 9 2002 22:24:25 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Judith- will you come out our way and run a camp? I just love your knowledge and would trust my child in your care anyday! Just had to say that! :-)

Mon Sep 9 2002 22:24:26 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
They can suture, splint, give IVs for rehydration, etc on the road. They are never very far from civilization. When the man died this year, they were 4 miles from a hospital. The ambulance came quickly.

Mon Sep 9 2002 22:24:27 Eastern US
Steph (Moderator) from 207.172.148.236
Time to call it a night ladies -- thanx for coming. E-mail me if I can be of help

Mon Sep 9 2002 22:24:40 Eastern US
Michi from 67.32.49.195
Good evening everyone!

Mon Sep 9 2002 22:24:57 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Thanks for the advise Steph

Mon Sep 9 2002 22:24:59 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
D50 is VERY tricky to give, not something for beginners. If it leaks out of the vein, it causes terrible tissue damage..sometimes requiring skin grafts!

Mon Sep 9 2002 22:25:07 Eastern US
Ellen (FL) (Zack 14, dx'd 2/89, pump) from 205.188.208.41
Thank you Steph!

Mon Sep 9 2002 22:25:23 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
D50 is a 50% solution of dextrose (glucose) in water

Mon Sep 9 2002 22:25:30 Eastern US
Steph (Moderator) from 207.172.148.236
50 Dextrose can be dangerous you can lose a limb if it's not given correctly

Mon Sep 9 2002 22:25:37 Eastern US
Dee (Jesse 6 dxd 9-99) from 209.166.66.85
Well Thank You!

Mon Sep 9 2002 22:25:57 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Thanks, Steph... Night

Mon Sep 9 2002 22:26:10 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump) from 24.194.99.225
I was just going to say that, Steph

Mon Sep 9 2002 22:26:15 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Thanks for the kind words, Sherra :-)

Mon Sep 9 2002 22:26:53 Eastern US
Karen from 205.245.188.196
hold on, Steph, what is your email address???

Mon Sep 9 2002 22:27:00 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Thanks Steph!

Mon Sep 9 2002 22:27:16 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
And I beat you both! :-)

Mon Sep 9 2002 22:27:26 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Guess the danger involved is why parents aren't instructed on how to give a glucose IV

Mon Sep 9 2002 22:28:11 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Exactly, Susan

Mon Sep 9 2002 22:28:29 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
And why only paramedics - not EMTs, etc - can give it.

Mon Sep 9 2002 22:29:28 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Fine - we'll stick to juice, glucose gel or if all else fails - glucagon injection

Mon Sep 9 2002 22:30:29 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Judith- is your medical background experience or nursing also? You definately have the 16 years experience! The nosey side of me is coming out! LOL

Mon Sep 9 2002 22:30:44 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Right...

Mon Sep 9 2002 22:31:02 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Cory just started wearing a retainer - one night his blood sugar dropped to 60 - when I went in to do his night check he was asleep but had spit out his retainer. Now I am thinking - could he choke on his retainer if he was having a seizure?

Mon Sep 9 2002 22:32:09 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Possible, Susan....depends on how it's shaped. Talk to the orhtodontist about your concerns.

Mon Sep 9 2002 22:33:11 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Lost a post...
I am a pediatric nurse practitioner (since 1981). I've been a peds nurse for over 40 yrs. I am certified in advanced diabetes management, and am also a certified pump trainer. :-)

Mon Sep 9 2002 22:34:14 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
I've been volunteer medical staff at camp for 10 yrs. But the biggest learning experience is the same one you've had: being a parent of a child with diabetes.

Mon Sep 9 2002 22:34:43 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Since Cory's dx I've worried about all the "what if"s" and especially those connected with school - then this year a boy from Cory's camp died from an auto accident on the way home from camp - makes you realize how "normal" the kids still are. There are dangers they face besides diabetes - just like all other kids.

Mon Sep 9 2002 22:35:18 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Judith- that is terrific! Do you need to be a nurse to become a Diabetes Educator? I am a medical assistant, did my extern in an Endo office. I am no longer certified due to my "career change" to mom!

Mon Sep 9 2002 22:35:26 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Right, Susan :-( We too have lost some of our camp kids to "normal" things.

Mon Sep 9 2002 22:36:27 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Afraid medical assistants don't qualify to take the exams for CDE or BC-ADM. I know the MA in our endo's office would do well on it if she was allowed to take it.

Mon Sep 9 2002 22:37:40 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
CDEs can be nurses, dieticians, docs, pharmacists, therapists of various kinds, etc. Read more at www.aadenet.org

Mon Sep 9 2002 22:38:05 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
That is what I thought. Oh well, bummer. But maybe someday I could volunteer at a camp to help out. Use some of my learned knowledge somehow.

Mon Sep 9 2002 22:38:47 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
That would be great, Sherra

Mon Sep 9 2002 22:39:03 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Thanks for the site. I will definately look at it.

Mon Sep 9 2002 22:39:06 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
I feel that I know more about how to manage the day to day diabetic care of my child than his peditrician and possibly even than his endo or CDE. The endo and CDE could do a fine job EXCEPT they don't live with him and see the activity changes, etc.

Mon Sep 9 2002 22:39:31 Eastern US
becky (spencers mom) from 152.163.189.201
hi

Mon Sep 9 2002 22:40:05 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Hi Becky

Mon Sep 9 2002 22:40:24 Eastern US
becky (spencers mom) from 152.163.189.201
hi susan

Mon Sep 9 2002 22:40:31 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
I agree, Susan. Each child is different. You know him best. They could probably catch on pretty quickly, however.

Mon Sep 9 2002 22:40:42 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Hey Becky! How are you and your crew?

Mon Sep 9 2002 22:41:25 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Oh yes, Judith - if they were with him, they could do a great job and I have a lot of confidence in them.

Mon Sep 9 2002 22:41:37 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
What's Spencer up to? Dave has just gotten the largest part in the production of the rock opera "Tommy". He's the dad; has lots of singing (but not too much dancing!)

Mon Sep 9 2002 22:43:54 Eastern US
becky (spencers mom) from 152.163.189.201
just mostly school and hanging out with his friends

Mon Sep 9 2002 22:44:18 Eastern US
becky (spencers mom) from 152.163.189.201
david is so talented, what a good part!!!

Mon Sep 9 2002 22:44:20 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
Congrats to Dave on his part

Mon Sep 9 2002 22:45:32 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
He's not much of a dancer; hard with size 14 feet!

Mon Sep 9 2002 22:46:12 Eastern US
Susan (GMa of Cory, age 13 pumping) from 152.163.189.201
WOW - that's a lot of feet!
Gotta run along now so goodnight.

Mon Sep 9 2002 22:46:24 Eastern US
becky (spencers mom) from 152.163.189.201
he can learn i am sure, he is enthusiastic

Mon Sep 9 2002 22:46:50 Eastern US
becky (spencers mom) from 152.163.189.201
that would be dancing with boats on your feet though night susan

Mon Sep 9 2002 22:47:03 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
Night, Susan. Good luck with everything....

Mon Sep 9 2002 22:47:18 Eastern US
becky (spencers mom) from 152.163.189.201
i have to go too, spencer has to get on the computer

Mon Sep 9 2002 22:47:22 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
I wouldn't want to be his dance partner! :-)

Mon Sep 9 2002 22:47:37 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.159
I think they'll be closing this room soon anyway. Night, all.

Mon Sep 9 2002 22:48:22 Eastern US
becky (spencers mom) from 152.163.189.201
nighty night

Mon Sep 9 2002 22:48:41 Eastern US
Sherra (Mom of Tyler, 6, dx'd 12-13-01) from 4.41.168.154
Good Nite! See you in the Parent's Room!



                 
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