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  Back to Chat School Chat

Back to School For Parents

On Wednesday, August 3, 2005, Crystal Jackson of the ADA joined parents for a "back to school" chat.

Registered User Moderator   (server) Wed Aug 03 08:00:04 PM EDT 2005
Our Back to School chat with Crystal Jackson from the ADA starts at 9pm Eastern.

Registered User slpmom mom of michelle, 12, dx'd 4 mths ago  (68.123.28.149) Wed Aug 03 08:40:06 PM EDT 2005
is there a room max?

Registered User Moderator   (server) Wed Aug 03 08:50:05 PM EDT 2005
Our Back to School chat with Crystal Jackson from the ADA starts in 10 min in the 'Back to School' room.

Registered User stace   (63.18.45.235) Wed Aug 03 08:52:53 PM EDT 2005
hi all

Registered User slpmom mom of michelle, 12, dx'd 4 mths ago  (68.123.28.149) Wed Aug 03 08:53:40 PM EDT 2005
Hi stace--long time no see Smile 

Registered User Rlynn (MD) mom to Drew 15, dx'd 5/99  (68.49.85.171) Wed Aug 03 08:54:11 PM EDT 2005
hello everyone

Registered User stace   (63.18.45.235) Wed Aug 03 08:54:37 PM EDT 2005
slpmom sure thing Smile told ya i'd be back for the chat

Registered User Lizzie Lizzie2@Aggies.com  (64.12.116.5) Wed Aug 03 08:55:47 PM EDT 2005
hi every one

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 08:57:43 PM EDT 2005
Good evening everyone! How's your summers going? Ready for bac-to-school?

Registered User slpmom mom of michelle, 12, dx'd 4 mths ago  (68.123.28.149) Wed Aug 03 08:58:58 PM EDT 2005
Good Evening Ms. Jackson! Thank you for doing this chat

Registered User Rlynn (MD) mom to Drew 15, dx'd 5/99  (68.49.85.171) Wed Aug 03 08:59:27 PM EDT 2005
Can't wait to see school start - to see how many times the nurse complains about orders written by doc.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 08:59:36 PM EDT 2005
Sure. Glad you could join us. I'm anxious to hear about concerns this school year.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:00:19 PM EDT 2005
What are your nurse's specific complaints about doc's orders?

Registered User Daneille mum of Lizzie, dxd 10  (64.12.116.5) Wed Aug 03 09:01:37 PM EDT 2005
Hello Crystal what is this new rule they have for diabeic kids in school?

Registered User Brenda H. mom of Marissa, 17, dx'd 9/89  (216.68.227.251) Wed Aug 03 09:02:18 PM EDT 2005
Good evening all.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:02:36 PM EDT 2005
Danielle, I am not sure what you are referring to. Please explain. Are you talking about the recently passed legislation in TX, HI, KY, SC?

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:02:49 PM EDT 2005
Hey Brenda.

Registered User Daneille mum of Lizzie, dxd 10  (64.12.116.5) Wed Aug 03 09:02:58 PM EDT 2005
in TX

Registered User Rlynn (MD) mom to Drew 15, dx'd 5/99  (68.49.85.171) Wed Aug 03 09:03:04 PM EDT 2005
You name it they found a problem w/it.

Registered User Lisa (KS) Mom of Jaron, 5, dx'd 08/17/04, lantus, novolog  (65.167.140.226) Wed Aug 03 09:03:54 PM EDT 2005
Evening all!

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:04:18 PM EDT 2005
TX Diabetes Care Act - requires schools to have a minimum number of trained personnel who can provide both routine and emergency care. There's a link from the ADA's website. Check it out. Kids in TX will be well-protected ow.

Registered User slpmom mom of michelle, 12, dx'd 4 mths ago  (68.123.28.149) Wed Aug 03 09:04:24 PM EDT 2005
I was hoping you could discuss 504 specifics (testing, shots, glucagon) in the school site and what modifications the district has to support

Registered User Lisa (KS) Mom of Jaron, 5, dx'd 08/17/04, lantus, novolog  (65.167.140.226) Wed Aug 03 09:05:05 PM EDT 2005
Any advice for a mom of a future kindergartener? I have my 504 ready to go, medical plan and a meeting set with the school....anything I am missing?

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:05:17 PM EDT 2005
Re: Doc's orders. Recommend lots of specificity. Also, flexible to enable parents to make diabetes care decisions such as insulin dose adjustments.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:06:23 PM EDT 2005
Re: 504 - where care is going to occur, who provides care, level of child's ability to provide self-care, who has been trained to provide care. The foudation of a 504.

Registered User Danielle mum of Lizzie, dxd 10  (64.12.116.5) Wed Aug 03 09:06:31 PM EDT 2005
Thank you Crystal very much. Now I must go good bye all.

Registered User stace   (63.18.45.235) Wed Aug 03 09:06:56 PM EDT 2005
what really is the schools responibilty doesn't this vary from state to state?

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:07:00 PM EDT 2005
Lisa, go into meeting in spirit of cooperation. Know the laws. Read info on ADA's and CWD's website. Education is the key.

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 09:07:07 PM EDT 2005
Tennessee passed a law allowing sugar testing and insulin administration anywhere on campus and the local schools reaction was to be more restrictive then ever last year. Hoping for more this year.

Registered User slpmom mom of michelle, 12, dx'd 4 mths ago  (68.123.28.149) Wed Aug 03 09:07:36 PM EDT 2005
Crystal--say school states won't do glucagon in an emergency and my daughter goes dangerously low. They say they'll call 911. By the time a volunteer fire dept shows up at our school--who knows how long that'll take

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:08:28 PM EDT 2005
Under Section 504, public schools and private schools who receive federal funding must meet our child's medical needs to ensure safety and the ability of our children to participate in all school activities. State nurse practice acts have an impact on who can perform which task.

Registered User Rlynn (MD) mom to Drew 15, dx'd 5/99  (68.49.85.171) Wed Aug 03 09:08:50 PM EDT 2005
We do not use sliding scale - they called the doc's office everyday until he finally wrote them one - I was informed by the nurse after the fact. I sense some dislike of my son's doc from them and that could be part of the problem.

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 09:09:09 PM EDT 2005
Why does this room keep closing?

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:09:27 PM EDT 2005
TN - law is structured in a way that does not require non-medical personnel back-up. It's up to each school district to decide. TAlk to your school board members to impact policy.

Registered User Brenda H. mom of Marissa, 17, dx'd 9/89  (216.68.227.251) Wed Aug 03 09:09:45 PM EDT 2005
Doesn't appear to be closing from here. Who is your host IP?

Registered User slpmom mom of michelle, 12, dx'd 4 mths ago  (68.123.28.149) Wed Aug 03 09:09:55 PM EDT 2005
True--but when we have 1 nurse for 7 schools ---how do we help get things to happen without threatening a lawsuit Smile 

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:10:05 PM EDT 2005
Unfortunately, personality concerns can be an obstacle, but it should not and cannot limit appropriate care.

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 09:10:43 PM EDT 2005
Netscape and I am on MAC.

Registered User Marlene (BC), Amber 7, dx'd @3  (209.145.109.2) Wed Aug 03 09:11:11 PM EDT 2005
Hi

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:11:36 PM EDT 2005
In order to provide a safe environment for your child, schools must have someone available on-site to provide both routine and emergency care - including glucagon. Calling 911 is not an acceptable back-up plan.

Registered User Jeff Hitchcock Marissa, 17, dx'd 9/1989  (216.68.227.251) Wed Aug 03 09:11:39 PM EDT 2005
SugarCube ... for Mac, we have only tested using Safari

Registered User tasha i have blac hair  (68.222.31.136) Wed Aug 03 09:12:05 PM EDT 2005
hey

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:12:59 PM EDT 2005
Unfotunately, most schools do not have a f/t nurse or any nurse all. This does not relieve the school district from its obligation to provide care. ADA takes the position that non-medical school staff members should and can be trained to supplement care provided by a school nurse.

Registered User Jeff Hitchcock Marissa, 17, dx'd 9/1989  (216.68.227.251) Wed Aug 03 09:13:11 PM EDT 2005
Tasha, this is a Back to School chat. Do you have diabetes?

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:13:58 PM EDT 2005
Hello...
Crystal, you know that and I know that, but how do we convince school corps of it, short of legal action?

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:14:02 PM EDT 2005
Has everyone at this point met with appropriate school personnel to review your child's health care plan or physician's order and to begin work on a 504 plan? Now is the time if you haven't already done so.

Registered User stace   (63.18.45.235) Wed Aug 03 09:14:32 PM EDT 2005
who would/should provide the instructions to other personal than a nurse?

Registered User Rlynn (MD) mom to Drew 15, dx'd 5/99  (68.49.85.171) Wed Aug 03 09:15:06 PM EDT 2005
Do you have to have an LPN for a school aged child who cannot give themselves insulin or test blood sugar or could the health assistant do this? I am referring to the elementary school level of children.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:15:10 PM EDT 2005
Judith, education is the key. Educate about school legal responsibilities, educate about diabetes, help your school to understand that good diabetes care benefits both the student and the school.

Registered User slpmom mom of michelle, 12, dx'd 4 mths ago  (68.123.28.149) Wed Aug 03 09:15:16 PM EDT 2005
Cryastla---so a non-medical person who agrees , can administer glucagon, injections if agreed upon without risk of liability ? Liability is the token word here... it is a great idea to say the school district has the obligation..reality is different

Registered User Marlene (BC), Amber 7, dx'd @3  (209.145.109.2) Wed Aug 03 09:15:25 PM EDT 2005
In Canada we have no school nurses..but Amber's teacher, principal, childcare worker and the school childcare worker supervisor are all trained in recognizing signs, supervising testing, treating lows/highs, and also the use of glucagon.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:15:25 PM EDT 2005
Our district has 3 nurses (down from 4) for 11,000 kids in 12 schools. I will do some inservice on diabetes care for those nurses, but the "policy" is very definite: No one can give injections at school. (Oh wait, they'll give EpiPens in case of anaphylaxis)

Registered User Brenda H. mom of Marissa, 17, dx'd 9/89  (216.68.227.251) Wed Aug 03 09:16:26 PM EDT 2005
Marlene, have you had any problems at school with this system?

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:16:31 PM EDT 2005
I feel that I can now freely advocate, without fear of any reprisals, since (after 33 years!) all my kids are out of public schools.

Registered User slpmom mom of michelle, 12, dx'd 4 mths ago  (68.123.28.149) Wed Aug 03 09:16:31 PM EDT 2005
same in our district--they'll use an epipen, not a syringe

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:16:46 PM EDT 2005
School nurse should coordinate care, help to train personnel, monitor those who have been trained, etc.It's a good idea and actually necessary that the parent sit down with appropriate personnel to talk about your individual child's needs because our children are so different from one another in their symptoms, regimens and abilities.

Registered User Marlene (BC), Amber 7, dx'd @3  (209.145.109.2) Wed Aug 03 09:17:05 PM EDT 2005
No injections in Canada also...except for Glucagon as it is considered First Aid not medication.

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 09:17:19 PM EDT 2005
My school district says that a doctor's order that states my child needs to keep her meter with her is not clear so they cannot honor it.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:17:55 PM EDT 2005
Many states permit non-medical personnel to provide diabetes care and also have immunity provisions on the books. It is not unreasonable for a school to require a consent and liability waiver.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:18:41 PM EDT 2005
Marlene, it sound like you have a good, working system of back-up lay personnel.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:19:47 PM EDT 2005
Judith, what state are you from? What is the source/authority/policy of no injections? I recommend that parents work to change it.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:20:23 PM EDT 2005
One big challenge is that state nurse practice acts have not kept up with the pace of diabetes care. Laws are archiac and not practical.

Registered User Marlene (BC), Amber 7, dx'd @3  (209.145.109.2) Wed Aug 03 09:20:27 PM EDT 2005
No problem with the system....however I also daily check in with the teacher and childcare worker via a communication book, keep the "team" advised of insulin changes, illness,etc and also have a "team" meeting every three months to review Amber's file and to work on goals to help Amber be a self advocate(hope that makes sense)

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:21:35 PM EDT 2005
It is a good idea to have your child's health care provider include in the order that your child must have access to insulin, equipment, and supplies - as maturity and age appropriate of course.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:21:57 PM EDT 2005
I'm in Indiana. The state teachers' contracts say they do not have to do any medical stuff. There are no nurses in the schools. Medications such at Ritalin!, antidepressants, antibiotics, etc is handed out by school secretaries.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:22:13 PM EDT 2005
Marlene, sounds wonderful. Just to clarify - there are folks available who have been trained to administer glucagon?

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:23:17 PM EDT 2005
I was able, when my son was in 4th grade, to get his previous teacher (2nd grade) to agree to give cake frosting gel if he got low. We did have to sign a waiver of liability; her husband was legal counsel for the schools.  Smile 

Registered User Jen(MA) Mom of Allyson age 10 dx 3-24-03  (68.160.33.232) Wed Aug 03 09:23:26 PM EDT 2005
hi

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:23:30 PM EDT 2005
Judith - teachers cannot be required to provide medical services in any state to the best of my knowledge. It cannot be a condition of employment. However, in states like VA where I live we have a very comprehensive legislatively mandated system that requires a minimum number of personnel for each school, but these personnel must be volunteers.

Registered User Marlene (BC), Amber 7, dx'd @3  (209.145.109.2) Wed Aug 03 09:23:31 PM EDT 2005
Yes there are 4 who have had hands on training...I just save up expired glucagons.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:24:15 PM EDT 2005
With the ANA saying that all diabetes care should be done by nurses, and AFT saying teachers will not do diabetes care, our kids are left up a creek!

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 09:24:21 PM EDT 2005
What do you think about nursing home hepatitis outbreaks caused by infection control breaks by health care personnel? The CDC now recommends that blood glucose meters NOT be centrally stored in long term care facilities. They should be stored with the resident when possible. Any thoughts about how that applies to schools.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:24:56 PM EDT 2005
Important thing to remember is to develop a written agreement like a 504 plan so that everyone's responsibilities are clear and it is absolutely clear as to what services will be provided to meet your child's needs. Even if everything is going well, still write a plan to prevent future misunderstandings.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:25:57 PM EDT 2005
Not familiar with this CDC recommendation, but I will look into it as I think it may very well benefit our kids' ability to keep meters with them.

Registered User slpmom mom of michelle, 12, dx'd 4 mths ago  (68.123.28.149) Wed Aug 03 09:27:24 PM EDT 2005
Crystal--I think another important point to mention is that a 504 plan is different from an IEP. It is an agreed upon contract in that place and time and not automatically transferred from one year to the next or between another school in the same year.

Registered User Jen(MA) Mom of Allyson age 10 dx 3-24-03  (68.160.33.232) Wed Aug 03 09:27:39 PM EDT 2005
allys school has been pretty good with everything

Registered User Rlynn (MD) mom to Drew 15, dx'd 5/99  (68.49.85.171) Wed Aug 03 09:27:52 PM EDT 2005
Can parents write their own 504 Plan? Our school system has 504 Plan Forms, but they don't cover much.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:28:04 PM EDT 2005
ANA and AFT have taken positions that are oppositional to ADA. Have not heard of any instances thus far where diabetes care has been impacted because of these positions, but it is very unfortunate that this groups have responded in this fashion.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:29:03 PM EDT 2005
Recommend that you come into a meeting very prepared. Have provisions written out. Don't get caught up on whose form is going to be used. The important thing is to make sure that everything has been included - including by reference is fine.

Registered User stace   (63.18.45.235) Wed Aug 03 09:29:48 PM EDT 2005
is it enough to have a school plan or do you need a 504 plan too?

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:29:48 PM EDT 2005
I'd also suggest you decide ahead of time which things might be negotiable, and which are not. You may have to do a bit of give and take....

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:30:49 PM EDT 2005
Differences between 504 and IEP. First a 504 plan is developed under a federal anti-discrimination law known as Section 504 and it need not be shown that diabetes impacts academic performance. IEPs are developed under IDEA - a special ed law under which some kids with diabetes qualify if it can be demonstrated that diabetes or another disbility adversely impacts learning or academic performance.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:31:09 PM EDT 2005
Ask for the universe and expect the world.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:31:36 PM EDT 2005
Great quote, Crystal Smile 

Registered User Brenda H. mom of Marissa, 17, dx'd 9/89  (216.68.227.251) Wed Aug 03 09:31:49 PM EDT 2005
Last year, the school told us we did not need a 504, just a school plan and we didn't have any issues. Of course, it could be because Marissa was a high school senior and has had diabetes since a toddler.

Registered User Tina Mom of Kinsey,Dx,d at 4  (66.19.71.43) Wed Aug 03 09:31:53 PM EDT 2005
Hello

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:32:46 PM EDT 2005
Recommend a written plan - like a 504 - in addition to health care plan/dr's orders. 504 is the implementation tool for your child's health care plan and will address academic accommodations that are needed such as alternate times to take a math exam if your child's bg is out of range.

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 09:32:52 PM EDT 2005
Definitely look into it. Apparently the hepatitis virus lives a very long time on inanimate surfaces. The spring loaded stickers state in their instructions that they should never be shared. Nurses passed infection even though lancets were changed etc. Nurses and other residents did not get infected, the diabetecs got infected. It is in March 2005 MMWR.

Registered User Jen(MA) Mom of Allyson age 10 dx 3-24-03  (68.160.33.232) Wed Aug 03 09:33:23 PM EDT 2005
hi tina

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:33:32 PM EDT 2005
I agree that it's better to have a 504 in place and not need it rather than not have one and then deal with problems.....

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:33:43 PM EDT 2005
Important that you have a written plan - no matter what the school chooses to call it. Doesn't relieve school's responsibilities under 504.

Registered User slpmom mom of michelle, 12, dx'd 4 mths ago  (68.123.28.149) Wed Aug 03 09:33:55 PM EDT 2005
We are entering junior high school-- my concerns regarding her 504 plan are pretty specific but ones I can fight ( I'm in the special ed field already). However, we have new kinders coming in that don't do own shots. Parents have to work and can't hang out all day--what do they do?

Registered User stace   (63.18.45.235) Wed Aug 03 09:34:03 PM EDT 2005
where do you get this 504 plan?

Registered User Jen(MA) Mom of Allyson age 10 dx 3-24-03  (68.160.33.232) Wed Aug 03 09:35:09 PM EDT 2005
3-24-03

Registered User Jen(MA) Mom of Allyson age 10 dx 3-24-03  (68.160.33.232) Wed Aug 03 09:35:16 PM EDT 2005
at age 8

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:35:30 PM EDT 2005
ADA has a sample on its website and CWD has many actual plans. A wealth of information out there. Also, you can call ADA at 1-800-diabetes and we'll send you a school packet containing a sample plan. Pick and choose the provisions that are appropriate for your child.

Registered User Jen(MA) Mom of Allyson age 10 dx 3-24-03  (68.160.33.232) Wed Aug 03 09:35:46 PM EDT 2005
yeah i noticed they had same number next to name

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:36:16 PM EDT 2005
School must provide trained personnel to administer insulin. Bottom line.

Registered User slpmom mom of michelle, 12, dx'd 4 mths ago  (68.123.28.149) Wed Aug 03 09:36:17 PM EDT 2005
Boy Judith--your good Grin 

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:37:56 PM EDT 2005
What other concerns or questions? Any other challenges anticipated?

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:38:14 PM EDT 2005
Again, Crystal.... other than educating them about federal laws, how can that be implemented? What if they continue to refuse? What's the next step? I know "Educate, Litigate, Legislate" .... but what in the short term?

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:38:40 PM EDT 2005
Is everyone aware of states that have passed school diabetes care legislation?

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:39:05 PM EDT 2005
Is there a handy list of those, Crystal?

Registered User stace   (63.18.45.235) Wed Aug 03 09:39:16 PM EDT 2005
what states wuold that be?

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 09:40:07 PM EDT 2005
Do you know anything about filing due process? I tried an OCR complaint last year and they told me to file due process. hopefull things will go better this year.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:40:14 PM EDT 2005
Unfortunately, change does not occur overnight. Work your way up the chain of command. Talk to your school board members. You'd be surprised at how many folks have a personal connection to diabetes and will understand. If negotiation fails, then consider filing a complaint with U.S. Dept of Education/Office of Civil Rights. That's usually the next step. You could also file a claim in state or federal court.

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 09:41:02 PM EDT 2005
Nashville TN so far has refused to honor their state law.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:41:04 PM EDT 2005
Due process. Which state are you in? I would like to talk to you more off-line about your OCR complaint and its directive. Can be reached at CJackson@diabetes.org.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:41:10 PM EDT 2005
Are class action suits appropriate there, assuming you can gather a group of affected families?

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:41:50 PM EDT 2005
Nashville has blatantly refused? On what basis? TN has been a challenge.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:42:38 PM EDT 2005
The biggest concern about going the lawsuit route is that your child will have probably graduated before it is resolved.

Registered User Stephanie(CA) Mom of Kristen,10,dx'd at 8,pumping  (68.8.62.39) Wed Aug 03 09:43:05 PM EDT 2005
Hi. I just came on. My problem is Kristen walks home with her 13 y/o sister and she can't carry a meter because they won't allow sharps outside of the nurses office. Is there any law that would allow her to carry her meter/lancets in her backpack?

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:43:05 PM EDT 2005
Right....and/or face problems at school because of the suit.....

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:43:45 PM EDT 2005
Each school district is required to inform you about its due process procedure. You should have received some type of pre-printed form from your school that will explain due process filing procedure. Be alert to filing deadlines.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:44:07 PM EDT 2005
There are one time use lancing devices that are not a hazard except in the moment of use. BTW does that school allow push pins, compasses, thumb tacks, etc?

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:44:31 PM EDT 2005
Let Kristen carry a safety pin to prick her finger. Smile 

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:45:02 PM EDT 2005
Stephanie, there is a CA law that permits kids - with parent and physician consent - to self-treat wherever they happen to be. In order to provide self-care meters and supplies must be in possession of student. There's a link to law on ADA website.

Registered User Marlene (BC), Amber 7, dx'd @3  (209.145.109.2) Wed Aug 03 09:45:13 PM EDT 2005
Judith LOL 

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 09:45:15 PM EDT 2005
The basis was that they said they could not interpret the law until they rewrote the state guidelines. The new guidelines came out about two weeks and they did not address much. I think my OCR complaint may have pushed the writing of those guidelines along.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:46:35 PM EDT 2005
Your child should be allowed to use the lancet and insulin delivery system of choice and not be restricted to single-use lancets (ouch!), insulin pens, etc. Key thing is have it included in doc's order or your child's health care plan and also write it into your 504.

Registered User Stephanie(CA) Mom of Kristen,10,dx'd at 8,pumping  (68.8.62.39) Wed Aug 03 09:46:36 PM EDT 2005
I will check that link! Thank you so much.

Registered User Brenda H. mom of Marissa, 17, dx'd 9/89  (216.68.227.251) Wed Aug 03 09:46:49 PM EDT 2005
Stephanie, Crystal may be referring to
http://www.leginfo.ca.gov/pub/03-04/bill/asm/ab_0901-0950/ab_942_bill_20031009_chaptered.html

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:47:39 PM EDT 2005
TN guidelines have been in the works for a couple of years. I saw an early draft, but not final. Will take a look at these and alert our TN advocacy director about continuing challenges in TN.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:47:58 PM EDT 2005
Thanks Brenda.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:49:12 PM EDT 2005
Anybody from TX, HI, KY, SC? These states passed school diabetes care laws in last legislative sessions.

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 09:50:33 PM EDT 2005
I love the safety pin idea. Have you ever used a safety pin?

Registered User Rlynn (MD) mom to Drew 15, dx'd 5/99  (68.49.85.171) Wed Aug 03 09:50:38 PM EDT 2005
Are these the only states that have done that?

Registered User Stephanie(CA) Mom of Kristen,10,dx'd at 8,pumping  (68.8.62.39) Wed Aug 03 09:51:05 PM EDT 2005
BTW Judith, we did use a safety pin once when we were at an airport and packed all her lancets!

Registered User Stephanie(CA) Mom of Kristen,10,dx'd at 8,pumping  (68.8.62.39) Wed Aug 03 09:51:26 PM EDT 2005
She said it hurt Frown 

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:51:38 PM EDT 2005
No, just the most recent. Other states include VA, WA, NC, TN, CA, MT, WI.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:52:37 PM EDT 2005
Also, MA & CT have laws that state that a school cannot prohibit a child (who has parent and doc consent) from self-bgm.

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 09:52:43 PM EDT 2005
Excellent. From what my child's high school assistant principal has told me so far, the TN schools have doing our children a great diservice by not allowing them self care and treating them like diseases. No respect.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:53:55 PM EDT 2005
Sounds like you may have an ally in your asst. principal. Would s/he go to bat for kids with diabetes?

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:54:59 PM EDT 2005
Are there other students with diabetes in your school? How do they address their diabetes care at school?

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:57:46 PM EDT 2005
Anyone have any other concerns? Recommend that you become familiar with the info on the ADA's and CWD's websites. Be prepared and know what you need to ask for in order to meet your child's needs. Also, ADA will send you its free school packet if you call 1-800-diabetes.

Registered User Rlynn (MD) mom to Drew 15, dx'd 5/99  (68.49.85.171) Wed Aug 03 09:57:55 PM EDT 2005
What plan of action can we that do not have these laws take?

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 09:58:02 PM EDT 2005
Crystal, you obviously have a very high profile now (and have done GREAT things for kids with diabetes!). Did you ever feel that there were any negative consequences for your child as a result of your advocacy?

Registered User Ellen (FL) Zack 17, dx'd 1989, pump  (205.188.116.139) Wed Aug 03 09:58:11 PM EDT 2005
Crystal, you are truly a goddess and mother for all of us. You help us pave the way to get what we need for our children. THANK YOU for your strong efforts on everyone's behalf.

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 09:58:25 PM EDT 2005
I am hopeful things will go better this year. My child was allowed to self treat for the first four years. Then we met our first school nurse and the rest is a long story.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 09:59:01 PM EDT 2005
Schools must accommodate under federal laws. Become familiar with this laws.

Registered User Marlene (BC), Amber 7, dx'd @3  (209.145.109.2) Wed Aug 03 09:59:54 PM EDT 2005
Amber would like to say hi....she says the best thing about being diabetic at school is she doesn't have to participate in the ethnic food sampling because mommy doesn't know how to figure out how many carbs. She also likes that she is the only one Smile 

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 10:00:16 PM EDT 2005
Devin never ever experienced any negative consequences. Actually, teachers and school administration wanted to provide care. It was school district administration and school district interpretation of VA Drug Control Act that started the problems. We have always been treated with dignity, respect, and fairness.

Registered User Stephanie(CA) Mom of Kristen,10,dx'd at 8,pumping  (68.8.62.39) Wed Aug 03 10:00:36 PM EDT 2005
 LOL Marlene, can't blame her there!

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 10:01:11 PM EDT 2005
Good to hear, Crystal.... Our problems started with a particular teacher and principal. Had to go to the ass't superintendent to get any relief.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 10:01:18 PM EDT 2005
Ellen, I have been called a lot of things, but never a goddess. Smile  You have made my night and thanks for all that you do for kids with diabetes.

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 10:01:31 PM EDT 2005
The asst principal told me that my child's new school (high school) has five DB students and that the nurses lines them up and does all their sugars for them. This is TN, one of the states with the law.

Registered User Marlene (BC), Amber 7, dx'd @3  (209.145.109.2) Wed Aug 03 10:01:53 PM EDT 2005
Amber is reminding me that it is 7 and her turn on the computer so I had better go. Night everyone...thank-you Crystal for your time tonight.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 10:02:57 PM EDT 2005
What you are telling me about TN is making me very concerned. Please, please ask these parents to call ADA. We need to hear from folks in order to identify TN as continuing to be a problematic state. Absolutely critical.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 10:03:10 PM EDT 2005
Night Marlene and Amber.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 10:03:59 PM EDT 2005
Certainly does not seem appropriate, esp for HS age students, SugarCube. We had good (older nurses) until Dave's senior year. Then 2 of the 4 retired, and only 1 - a new grad - was hired to replace them. The young nurse knows EVERYTHING!  Grin  (but then so did I at her age, I guess.)

Registered User Jeff Hitchcock Marissa, 17, dx'd 9/1989  (216.68.227.251) Wed Aug 03 10:04:09 PM EDT 2005
Crystal, thanks for taking the time to chat tonight. This room will remain open until 11pm Eastern, and you're all welcome to stay and chat about school issues.

Registered User Jeff Hitchcock Marissa, 17, dx'd 9/1989  (216.68.227.251) Wed Aug 03 10:04:29 PM EDT 2005
Time for me to head to bed though.  Smile 

Registered User Rlynn (MD) mom to Drew 15, dx'd 5/99  (68.49.85.171) Wed Aug 03 10:04:36 PM EDT 2005
Crystal, thank you for all you do and your time this evening. Night everyone.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 10:04:45 PM EDT 2005
Great info, Crystal! Thanks for all you do.....

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 10:04:46 PM EDT 2005
Thanks for allowing me to share info Jeff. I can stay on for another 10 or so minutes.

Registered User SugarCube Mom of Michelle, 14, dx'd at 9  (68.53.91.99) Wed Aug 03 10:05:21 PM EDT 2005
Goodnight all. Thanks Crystal.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 10:05:45 PM EDT 2005
Seems such a shame that every family has to fight the same battles..... Should not have to be this way.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 10:06:14 PM EDT 2005
Our schools also feel that calling 911 immediately resolves them of any responsibility to deal with medical issues.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 10:06:20 PM EDT 2005
Remind everyone to stay informed about school developments and the ADA's Safe at School Campaign.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 10:07:17 PM EDT 2005
Crystal, have you been able to apply the US Supreme Court case "Cedar Rapids vs Garrett F" to diabetes care?

Registered User Lisa (KS) Mom of Jaron, 5, dx'd 08/17/04, lantus, novolog  (65.167.140.226) Wed Aug 03 10:07:25 PM EDT 2005
Thanks Crystal and good night!

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 10:07:30 PM EDT 2005
911 is not an acceptable back-up plan. Many EMTs are not even able to start an IV drip. And what happens if rescue vehicle gets stuck in traffic or cannot attend right away?

Registered User stace   (63.18.45.235) Wed Aug 03 10:07:53 PM EDT 2005
learned much from this hopefully will never have to face some of it Thanks all.THANKS Crystal.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 10:08:24 PM EDT 2005
Exactly..... Many parents/schools have a false sense of security thinking an EMT will administer glucagon. Won't usually happen. They don't carry it and would be very unusual for them to use a pt's medicines.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 10:08:27 PM EDT 2005
We are working on a key attorney tool right now utilizing relevant case law, statutes, regulations, and OCR settlement agreements. Stay tuned.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 10:09:35 PM EDT 2005
Where will that tool eventually appear?

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 10:09:47 PM EDT 2005
The other thing I have to say is that many,many schools are doing a fabulous job of providing care. Unfortunately, I usually only hear from situations where it's not working.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 10:10:20 PM EDT 2005
Distribution plan is being developed. Check the ADA's website in a few months.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 10:11:07 PM EDT 2005
When Dave was in elementary, his (there only on Tuesday afternoons) school nurse herself had type 1, from childhood. However, her knowledge of current treatment was WOEFULLY inadequate.

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 10:11:33 PM EDT 2005
She was understanding and helpful, however.

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 10:12:23 PM EDT 2005
Our kids' diabetes is not the school nurses or our Aunt Wilma's. Very different, but then I don't need to tell you guys this!

Registered User Judith David, 19, dx'd at age 8 weeks  (64.184.81.227) Wed Aug 03 10:12:25 PM EDT 2005
Again Crystal: thanks so much!

Registered User Crystal Jackson ADA advocacy staff member, Mom of Devin, 15, dx'd at 1  (70.35.84.160) Wed Aug 03 10:13:17 PM EDT 2005
Have a good night everyone. Time to turn in.

Registered User julie lucas' mom..dx'd 5/13/05  (207.144.180.110) Wed Aug 03 10:24:26 PM EDT 2005
good evening all!

Registered User julie lucas' mom..dx'd 5/13/05  (207.144.180.110) Wed Aug 03 10:26:02 PM EDT 2005
anyone around?

Registered User Moderator   (server) Wed Aug 03 11:25:05 PM EDT 2005
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