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  Back to Chat School and Section 504
On May 12, 1999, we held a special chat session about diabetes at school and Section 504.

Wed May 12 1999 20:50:30 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.133
The special chat about diabetes at school and Section 504 will begin in 10 minutes (21:00).

Wed May 12 1999 20:56:08 Eastern US
k9 from 4.18.136.15
4ey54u

Wed May 12 1999 20:56:22 Eastern US
k9 from 4.18.136.15
hello

Wed May 12 1999 20:57:46 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.133
Hello. Who is k9?

Wed May 12 1999 20:58:22 Eastern US
carol from 204.141.216.20
Hello,joining the chat Carol,Mom of a Diabetic 7 year old Kristi 1st Grade

Wed May 12 1999 20:59:03 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.133
Hello Carol. We're waiting for Suzie, our host, a mom who has experience with Section 504.

Wed May 12 1999 21:00:14 Eastern US
gina (tracy) from 207.91.31.69
hi everyone

Wed May 12 1999 21:00:53 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.133
Hi Gina.

Wed May 12 1999 21:02:03 Eastern US
gina (tracy) from 207.91.31.69
thanks for putting this on jeff. It came at a great time. I have been talking to the school for the last month about what we needed to do to meet Tracy's needs - she is having a heck of a time

Wed May 12 1999 21:02:16 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.133
Well, I'm not sure if Suzie is going to make it tonight. I spoke with her 15 minutes ago though.

Wed May 12 1999 21:02:55 Eastern US
Ellen (Zachary 11, dx'd 2/89) from 152.163.207.82
We just wrote our first 504 last week - in preparation for middle school.

Wed May 12 1999 21:03:00 Eastern US
Charisse from 152.163.201.51
hello

Wed May 12 1999 21:03:28 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.133
Ellen, since you have some experience with a Section 504, can you start us off by sharing what you did?

Wed May 12 1999 21:04:35 Eastern US
Lora from 152.163.197.74
Hi all, just joining. Son, Frankie is 7, 1st grade, and our first 504 meeting is next Tuesday!

Wed May 12 1999 21:05:20 Eastern US
Ellen (Zachary 11, dx'd 2/89) from 152.163.207.82
Basically I had the pediatric endo write orders for Zachary to be able to do everything himself as far as eat in class if necessary, use the bathroom and water fountain as he saw fit, take insulin (he uses the pump), test blood in class....also included if his bg was low and couldn't take a test he could make it up...

Wed May 12 1999 21:06:17 Eastern US
gina (tracy) from 207.91.31.69
who decides in the school if a 504 needs to be written?

Wed May 12 1999 21:06:26 Eastern US
Lora from 152.163.197.74
Does the dr need to write these orders, or can they be included by the parent in the IEP?

Wed May 12 1999 21:07:30 Eastern US
carol from 204.141.216.20
Does everyone here have a full time nurse in their school?

Wed May 12 1999 21:07:36 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Hi
I'm Steph Schwartz, RN, MPH, CDE -- Diabetes Nurse Specialist for Children with Diabetes

Wed May 12 1999 21:07:53 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.141.142
Hi, I'm here... sorry it took so long... I'm hooked up very slooow..

Wed May 12 1999 21:08:19 Eastern US
Ellen (Zachary 11, dx'd 2/89) from 152.163.207.82
The school nurse advised me to have the doctor write it in orders. We also included that all substitute teachers would be advised about Z's diabetes, that if he went on a field trip the teachers would be responsible to carry extra food and sugar that the I would provide....

Wed May 12 1999 21:08:39 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
All kids with diabtes schould have an IEP developed with school personnel, parents, diabtes team and of course the child who has diabetes

Wed May 12 1999 21:08:51 Eastern US
Lora from 152.163.197.74
Yes, we have a wonderful nurse who set up this 504 mtg.

Wed May 12 1999 21:09:02 Eastern US
Ellen (Zachary 11, dx'd 2/89) from 152.163.207.82
Our county now has a full time nurse in every school - this is the first year.

Wed May 12 1999 21:09:08 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
Suzie--Welcome! May I introduce our guest host, Suzie.

Wed May 12 1999 21:09:20 Eastern US
gina (tracy) from 207.91.31.69
we have a wonderful nurse too, but no one has said anything about a 504

Wed May 12 1999 21:09:45 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
We have to fill out special forms for Marissa's supplies to be taken on her field trip next week. Is this the same with other schools?

Wed May 12 1999 21:10:09 Eastern US
Ellen (Zachary 11, dx'd 2/89) from 152.163.207.82
Hi Suzie.
Hi Steph.

Wed May 12 1999 21:10:12 Eastern US
Charisse (garrett 13) from 152.163.201.51
we do not have a full time nurse we have techs
we have a nursing care plan not a 504 it does include eating whenever he wants checking blood whenever he wants (except he has to go to the health room to do it) next year it will include not taking tests withing two hours of a blood sugar less then 65 and a few other things I am working on for high school
they do not give insulin or glucagon in this county no matter what one says

Wed May 12 1999 21:10:15 Eastern US
carol from 204.141.216.20
When you say IEP do you mean your child is classified?

Wed May 12 1999 21:10:43 Eastern US
Lora from 152.163.197.74
Well so far, I've gone on all field trips, so it hasn't been an issue

Wed May 12 1999 21:10:53 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
If there is an IEP in place it will include how to handle field trips and avoid that hassle, Brenda

Wed May 12 1999 21:11:43 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
It identifies the child with diabetes as one who has special which are required by law for the school to accomodate

Wed May 12 1999 21:11:50 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.141.142
Brenda: Most 504 have included that a nurse go with the child on a field trip.... My daughter is of jr high age.

Wed May 12 1999 21:11:55 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
We don't have an IEP and it's a little late in the year to do one now.

Wed May 12 1999 21:11:56 Eastern US
Lora from 152.163.197.74
Does an IEP go hand in hand with 504?

Wed May 12 1999 21:12:14 Eastern US
carol from 204.141.216.20
I go on field trips also when it involves being away especially lunch time who else would be responsible for my daughter?

Wed May 12 1999 21:12:14 Eastern US
Ellen (Zachary 11, dx'd 2/89) from 152.163.207.82
In our school we were told the IEP was only if there were other educational difficulties such as ADD, ADHD, etc... and since Z wasn't having those problems, they felt an IEP wasn't necessary...comments?

Wed May 12 1999 21:12:22 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
The IEP that is -- most schools now require them

Wed May 12 1999 21:12:49 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
the IEP protects you and your child

Wed May 12 1999 21:12:59 Eastern US
Charisse (garrett 13) from 152.163.201.51
that is the same here Ellen

Wed May 12 1999 21:13:27 Eastern US
Mary from Ma. from 205.188.193.34
hello...just a quick comment here..you cna't ahve an IEP without SPECIFIC eduactional goals...they've changed the regulations

Wed May 12 1999 21:13:40 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
children with diabetes do have special needs
The IEP identifies what those are and how the school needs to accomodate those needs

Wed May 12 1999 21:13:43 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
I have attended all other field trips, but I can't go this time. The last I heard, the nurse was looking for another nurse to attend. I think they aren't too concerned about Marissa testing, but are worried that there might be a prob. with her pump. I told them to take the manual I gave them, a spare set of batteries, the insulin pen, and meter. I don't anticipate any probs.

Wed May 12 1999 21:14:25 Eastern US
gina (tracy) from 207.91.31.69
and what would be specific goals for my 17 year old??

Wed May 12 1999 21:14:28 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
the educational goal is to have the child with diabetes participate fully in ALL school activities while managing his/her diabetes

Wed May 12 1999 21:14:57 Eastern US
Ellen (Zachary 11, dx'd 2/89) from 152.163.207.82
Can someone please clarify then specifically what the 504 does and specifically what the IEP does?

Wed May 12 1999 21:15:40 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Brenda, I know Marissa will do fine -- she knows that pump inside out and backwards from what I hear

Wed May 12 1999 21:16:05 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
they are essentially the same

Wed May 12 1999 21:16:27 Eastern US
carol from 204.141.216.20
I don't have an IEP I just meet with all personal in contact with my daughter and tell them what has to be done like I said we have a full time nurse the problem is when she is out they have not bothered to look for subs but I'am pushing that issue now with the superintendent if there is no nurse in for the day then I want them to tell me who is responsibe for my daughter when she needs assistance

Wed May 12 1999 21:17:04 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
So, Steph, as we start the next school year, should we parents automatically write an IEP?

Wed May 12 1999 21:17:39 Eastern US
Ellen (Zachary 11, dx'd 2/89) from 152.163.207.82
I don't believe they are the same Steph IMHO and according to the person I spoke with from our county.

Wed May 12 1999 21:17:40 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
I'm surprised the nurse doesn't require an IEP to protect herself

Wed May 12 1999 21:17:43 Eastern US
Lora from 152.163.197.74
I'm having the nutrionalist from the district attend our 504 mtg. to address school lunch issues. Anyone else do this?

Wed May 12 1999 21:18:11 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
IMHO?

Wed May 12 1999 21:18:32 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Lora, that's a great idea

Wed May 12 1999 21:19:00 Eastern US
Ellen (Zachary 11, dx'd 2/89) from 152.163.207.82
in my humble opinion

Wed May 12 1999 21:19:15 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
IMHO = In My Humble Opinion

Wed May 12 1999 21:19:36 Eastern US
Darlene from 207.206.99.162
Hi everyone, our school does not require on IEP either- how about testing in the classroom- do they have to allow it if the physician writes an order?

Wed May 12 1999 21:19:39 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
ok

Wed May 12 1999 21:20:19 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
Lora, do you have specific probs with the food served at your school? I know that the "meals" aren't always the most nutritious, but I can't imagine planning lunches for thousands of students, esp. given what I see as more serious (with respect to food), that being food allergies.

Wed May 12 1999 21:20:20 Eastern US
Lora from 152.163.197.74
My son is only 7, and still afraid of speaking up, so we usually don't buy lunch. I thought it would help if I could tell him ahead exactly what was available. Packing lunches can get old

Wed May 12 1999 21:20:20 Eastern US
carol from 204.141.216.20
THe nurse has told me she would administer Glucagon and insulin if necessary, Now my endo gave me papers to give her permission to do this and all sorts of info kind of a school packet

Wed May 12 1999 21:20:38 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
that depends on the school -- I personally think it's a great idea, but you may need to fight for it

Wed May 12 1999 21:20:43 Eastern US
Stephanie from 24.92.185.24
hi guys! my daughers IEP says - Glucagon shot is available and administerd by trained staff in case of an emergency - yet school board policy says they won't train school staff! I am delivering a letter and info to the superintendent tomorrow.

Wed May 12 1999 21:20:48 Eastern US
joey in kentucky (Lindsey, age 9, dx mar97, I'm her Dad) from 208.252.118.141
Hi Steph...Any comments on school starting times and the effects they have on diabetes...I know this is a stretch, but my daughter has to be at school at 7:30 (as of this school year) and ever since the start if school, our numbers have been poor and she has had to add a shot...Would this fit in under ADA or 504?

Wed May 12 1999 21:21:13 Eastern US
Mary from Ma. from 205.188.193.34
Steph..an IEP is an individual education plan put together by the special needs departmetn in your school, it addresses educational goals, and medical coditions in and of themselves are not usually covered. A 504 plan is from section 504 of the individuals with disabilites act that requires school distrcit to accomodate children with special needs or lose federal funding

Wed May 12 1999 21:21:43 Eastern US
joey in kentucky (Lindsey, age 9, dx mar97, I'm her Dad) from 208.252.118.141
We have no nurse and no glucagon at school...Our school says paramedics could be there quicker than they could react...

Wed May 12 1999 21:22:34 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
I would talk with your diabtes team to adjust your daughter's treatment plan to fit the school schedule

Wed May 12 1999 21:22:44 Eastern US
Mary from Ma. from 205.188.193.34
my school system is now using individual health care plans in conjunction with 504 plans for their children with health care needs who fall inot that category..the only time a child with diabetes had an I eP is if there are educatioanl issues, such as a learning disability that need to be addressed..

Wed May 12 1999 21:22:58 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
Joey: A mom in Virginia just got the state law changed regarding glucagon in schools -- now all schools have glucagon and anyone can inject it, not just the nurse.

Wed May 12 1999 21:23:04 Eastern US
Stephanie from 24.92.185.24
I also filled out a care plan that says if she passes out they need to call 911 and administer glucagon - signed by our endo, the school nurse, the principal and me - ye they still say a school nurse is the only qualified person - and she has never seen a glucagon kit used before! Nurse is only there one day per week

Wed May 12 1999 21:23:11 Eastern US
Charisse (garrett 13) from 152.163.201.51
our school nurses do not give or train for glucagon either not do they give insulin they are under the board of health in this county and they say it is against the nurse practice act, but i am a nurse and I know that they can train people so I am going to the state dept of health
to see what I can do about this as our doc (I just spoke with her today ) feels it sholuld be given immediatley and that will be her order.

Wed May 12 1999 21:23:29 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
Lora, we usually know the meal in advance, via the monthly menu the school provides. The cafeteria does have "snacks," but you could make sure the staff knows your son and steers him aways from the snacks.

Wed May 12 1999 21:24:09 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
I've never ecommended Glucagon at school -- its very expensive, the chances of needing it are rare.
I'd rather havre a school calll 911
I have seen instances when Glucagon has been given inappropriately

Wed May 12 1999 21:24:36 Eastern US
Charisse (garrett 13) from 152.163.201.51
same here mary we do meet with al the teachers though and the school nurse said garrett can meet with them all as well if he likes to tell them what he expects of them.....

Wed May 12 1999 21:24:41 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Lora, how old is your son ?

Wed May 12 1999 21:24:53 Eastern US
Mary from Ma. from 205.188.193.34
charisse. if your endo sends an order, the nurse has to comply...

Wed May 12 1999 21:25:14 Eastern US
carol from 204.141.216.20
Lora, when the school year started I went into the cafateria and looked at the nutrition guides of different things they serve chix nuggets,pizza,
what ever I could find then I just look at the menu and count carbs mostley she buys once a week the pizza 45 carbs exactly her intake for lunch

Wed May 12 1999 21:25:25 Eastern US
Stephanie from 24.92.185.24
Luckily my HMO covers the fullcost of glucagon - so cost is not an issue. - There is no fire dept/ambulance closer than 5-10 min. for her school

Wed May 12 1999 21:25:29 Eastern US
DARLENE (ASSETS100@AOL.COM) from 205.188.200.49
WHO HAD THE GUIDELINES FROM ADA CONCERNING TESTING AND BLOOD SUGAR LEVELS

Wed May 12 1999 21:25:40 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
StephS--no glucagon at school, even if the closest emerg crew is 15 min. away?

Wed May 12 1999 21:25:53 Eastern US
Mary from Ma. from 205.188.193.34
our health care plan is very specific as to who does what and when...

Wed May 12 1999 21:26:04 Eastern US
Lora from 152.163.197.74
I agree Steph- I had an ambulance at my house for my husband, who would not sit still for a glucagon shot. Frankie is 7yrs old. Diagnosed at 5

Wed May 12 1999 21:26:09 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
I agree, Mary -- but some don't

Wed May 12 1999 21:26:50 Eastern US
Stephanie from 24.92.185.24
Call me StephB so we won't get confused

Wed May 12 1999 21:26:56 Eastern US
carol from 204.141.216.20
I bought the gluacon for the school,insurance covers it the nurse has a meter and strips.

Wed May 12 1999 21:27:31 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
can you work with the school to let them knoe which "treats" you feel are ok and have then substitue at other times ?

Wed May 12 1999 21:27:38 Eastern US
Stephanie from 24.92.185.24
Blood testing has not been a problem for us.

Wed May 12 1999 21:27:48 Eastern US
Lora from 152.163.197.74
I thought the nutrional guidelines would help, which is why I asked the "lunch lady"

Wed May 12 1999 21:28:12 Eastern US
gina (tracy) from 207.91.31.69
if I say that I dont want my daughter to take a test within 2 hours of a sugar of 65 or 300 - is that something that is realistic on a IEP??

Wed May 12 1999 21:28:15 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
good idea

Wed May 12 1999 21:28:15 Eastern US
Kristy from 206.31.99.221
If I may comment on IEP vs a health plan..an IEP holds more weight legally...if you are dealing with a school tht is noncompliant about meeting your child's needs..then an IEP might be the way to go..

Wed May 12 1999 21:28:31 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
Personally, I have not yet had to administer glucagon and don't know if I'd panic or not, home or school!

Wed May 12 1999 21:28:46 Eastern US
Charisse (garrett 13) from 152.163.201.58
I orefer glucagon be given immediatley for unconsciousness or seizures as well as a 911 call 15 minutes is too long to wait in my opinion

Wed May 12 1999 21:29:03 Eastern US
Kristy (Drew 6yrs dx @ 3) from 206.31.99.221
I just sat through an IEP re my son on Monday..

Wed May 12 1999 21:29:11 Eastern US
Ellen from 152.163.207.82
Darlene, you changed your email address?

Wed May 12 1999 21:29:35 Eastern US
Charisse (garrett 13) from 152.163.201.58
that is on our nursing care plan no testing for hi or low and they have to follow it

Wed May 12 1999 21:29:43 Eastern US
Stephanie from 24.92.185.24
Brenda, neither have I - but I don't want to take the chance with megan's health. I plan on continuing my "battle" till i get same results the state of VA did

Wed May 12 1999 21:29:55 Eastern US
Mary from Ma. from 205.188.193.34
steph S..that's why we also have a 504 in place that even the superintindent sat in on(we were doing something novel in letting our son test in teh classroom this year, along with his getting an ingulin pump, so we did have to chage some school policies)

Wed May 12 1999 21:30:25 Eastern US
DARLENE (ASSETS100@AOL.COM) from 205.188.200.49
tracy - do you have that in writing somewhere from ada or your endo - that is what i am looking for

Wed May 12 1999 21:30:46 Eastern US
Stephanie from 24.92.185.24
Mary from Ma - was it easy to change school policy

Wed May 12 1999 21:31:01 Eastern US
gina (tracy) from 207.91.31.69
but who determines hi or low?? Tracys nurse told me that other day that she didnt want to "enable" her from not being in class when Tracy's sugar was 300 and she was not feeling well

Wed May 12 1999 21:31:40 Eastern US
carol from 204.141.216.20
Kristi test at the nurse before lunch,but I can walk in her class any time and do a test I happen to work in the school a couple of hours the staff knows me well and they know I will do whats best for my daughter I also insist there is a low box in the class and Gym many times the the gym teacher has said Oh I hope I remember to take it outside I said you have too remember!

Wed May 12 1999 21:31:46 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
guidelines should be set as to what constitues high and low

Wed May 12 1999 21:31:51 Eastern US
Charisse (garrett 13) from 152.163.201.58
well that nurse obviously does not know what it feels like to be 300, my son feels awful at 250

Wed May 12 1999 21:32:15 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
There are links to information about Section 504 and other school-related information at:
http://www.childrenwithdiabetes.com/d_0q_000.htm

Wed May 12 1999 21:32:25 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
great ideas Karol

Wed May 12 1999 21:33:06 Eastern US
Mary from Ma. from 205.188.193.34
stephanie, knowing how resistant people are to change we gave them stuff in small doses...this is a school system that 4 years ago wouldn't even allow our son to keep glucose in the classroom to treat a low...

Wed May 12 1999 21:34:11 Eastern US
Stephanie from 24.92.185.24
Mary from Ma - the only problem I have encountered so far is the glucagon - but I want the policy changed

Wed May 12 1999 21:34:46 Eastern US
Lora from 152.163.197.74
I also want to get training to NEXT YEAR's teacher THIS year. They've also let me work with them in what teacher may be best suited to care for him, along with his eductional needs

Wed May 12 1999 21:34:46 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
This year Marissa has had gym after recess, which is after lunch and she tests before lunch and has time to compensate for a high or low.

Wed May 12 1999 21:34:47 Eastern US
DARLENE (ASSETS100@AOL.COM) from 205.188.200.49
trying to get teachers to remind son to go to nurse for testing before gym - he was 56 aftr it today - he didnt go by for test - he is too often low - shouldnt school not allow gym until testing

Wed May 12 1999 21:35:06 Eastern US
gina (tracy) from 207.91.31.69
so, how do I approach this. call up my principal and tell him that I would like a team meeting to develop a IEP??

Wed May 12 1999 21:35:13 Eastern US
Stephanie from 24.92.185.24
the county health care plan includes an authorization for In-School Treatment - It says that the school nurse can train non-medically personnel but they refuse to do it.

Wed May 12 1999 21:35:39 Eastern US
carol from 204.141.216.20
IN kindegarten and now in 1st grade I have gone in and explained to the children about Krist's diabetes which is helpful

Wed May 12 1999 21:36:01 Eastern US
crystal from 205.188.199.31
Sandi and I are the parents who fought our school system here in VA. It took an amendment to state legislation and involvement from the OCR, but our kids will finally not have to suffer from discrimination and will be protected during the school day. My advice to you all is to get a 504 in place, and contact the OCR asap if you experience any refusal on the part of the school system to provide accomodations to your kids.

Wed May 12 1999 21:36:07 Eastern US
Marcia...WA (Stephanie..15) from 206.190.132.150
Hello..

Wed May 12 1999 21:36:16 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
I'm back... sorry the server disc me for some dumb reason...

Wed May 12 1999 21:36:42 Eastern US
Mary from Ma. from 205.188.193.34
i recommed that you go through your school's chain of command...explain it to your school nurse first, she's more likely to "get" the medical stuff...then talk to your school's principal and just work your way up the chain..i made a very strong ally in our school nurse and its really paid off..

Wed May 12 1999 21:37:03 Eastern US
gina (tracy) from 207.91.31.69
crystal- I am still unclear about the difference of IEP and 504

Wed May 12 1999 21:37:08 Eastern US
Stephanie from 24.92.185.24
crystal - waht is OCR

Wed May 12 1999 21:37:18 Eastern US
Lora from 152.163.197.74
OCR?

Wed May 12 1999 21:37:18 Eastern US
Charisse (garrett 13) from 152.163.201.58
Steph it is the same here they will not train but
I think that if the doc writes theorder they may have to ...esp since that recent supreme court
decision

Wed May 12 1999 21:37:30 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
If they refuse to carry out the physician ordered plan, you should talk to the principal first and if that doesn't work -- the school board
Schools are mandated by Federal law to accomodate children with diabetes

Wed May 12 1999 21:37:37 Eastern US
Ellen from 152.163.207.82
Darlene your son shouldn't be walking alone to the nurse. Can he wear an alarm watch to remind him. Have you seen the Timex DataLink Watch - you can program in messages with the alarms

Wed May 12 1999 21:37:54 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
Gina: I would tell him you want a 504, not an IEP... IEP in school terms is an Individual Education Plan... for children with a learning prob. 504 covers other disablities not related to learning

Wed May 12 1999 21:38:09 Eastern US
carol from 204.141.216.20
Darlene my daughter wears a watch which has 5 alarms on it it beeps for snack and anytime I might want her to go to the nurse for and extra test Casio 5 alarms Service Merchandise

Wed May 12 1999 21:38:34 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
OCR is Office for Civil Rights

Wed May 12 1999 21:38:37 Eastern US
Mary from Ma. from 205.188.193.34
if you write out a 504 accomodation plan, that states they have to comply with the health plan, most school systems will comply because if they don't they risk losing their federal funding...

Wed May 12 1999 21:38:41 Eastern US
crystal from 205.188.199.31
We did not have school nurses in all of the schools at the time of the initial problem and asked that school personnel be trained. After both OCR and legislative intervention, the school district has done both - hired nurses and trained school personnel in glucagon administration.

Wed May 12 1999 21:38:54 Eastern US
Stephanie from 24.92.185.24
gina - an IEP is an Individual Education Plan that provides for special educational needs a child has (specific learning disabilities, gifted, etc.) A 504 plan is not needed if you have an IEP because medical conditions can be included on an IEP

Wed May 12 1999 21:39:24 Eastern US
Kristy (Drew 6yrs dx @ 3) from 206.31.99.221
Suzie..IEP's are NOT just for learning disabled children..children with diabetes qualify for IEP services under "other health impairments"

Wed May 12 1999 21:39:32 Eastern US
DARLENE (ASSETS100@AOL.COM) from 205.188.200.49
thanks - going to buy one tomorrow

Wed May 12 1999 21:39:33 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
That is corrrect, Mary
they can lose federal funding

Wed May 12 1999 21:40:14 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
good for you, Crystal

Wed May 12 1999 21:40:38 Eastern US
carol from 204.141.216.20
If the nurse is absent for the day is one of the school personal mabey the principal leagally responsible to be there for my daughter I'am in New Jersey.

Wed May 12 1999 21:40:39 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
For those of you that don't have a 504 in place, write a letter to your school's principal or call the district office and ask to speak to the school's 504 coordinator.

Wed May 12 1999 21:41:26 Eastern US
DARLENE (ASSETS100@AOL.COM) from 205.188.200.49
i have wrote up the one page plan based on blood sugar reading - what will need to be done w/ highs or lows - it has helped those who dont know what #s mean

Wed May 12 1999 21:42:05 Eastern US
Mary from Ma. from 205.188.193.34
kristy..you may watn to recheck the IEP regulations, they do vary somewhat from state to state, but most states are revising tehm now or in the very near future to be eduacation-specific

Wed May 12 1999 21:43:17 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24

Wed May 12 1999 21:44:02 Eastern US
Kristy (Drew 6yrs dx @ 3) from 206.31.99.221
Hope it doesn't change here Mary..I need the weight an IEP holds to make sure his needs are met!

Wed May 12 1999 21:44:02 Eastern US
gina (tracy) from 207.91.31.69
my school has been pretty cooperative to this point I am afraid that i will put them all on the defense by demanding a 504 and things will go downhill

Wed May 12 1999 21:44:03 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
Darlene: I would sit down with your 504 team, and the teachers/staff that have contact with your child, and explain it too them. The hospital near us offers diabetes care info for teachers.. maybe yours does too?

Wed May 12 1999 21:44:15 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
Will those of you from VA, orothers that have made sure glucagon can be adninsiterd by non-medical personnel please contact me later, via e-mail - I have some specific questions to ask you.

Wed May 12 1999 21:44:27 Eastern US
Mary from MD from 207.172.116.6
Hi there. We just did a 504 for Megan in February. We began with a IEP but thought the 504 was better, due to her changing needs.

Wed May 12 1999 21:44:58 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
I think Stepanie works for Children's Mercy... she was my daughters nurse when she was in the hospital... and a great one at that!

Wed May 12 1999 21:45:18 Eastern US
Ellen from 152.163.207.82
I am accompanying my son on a field trip to EPCOT tomorrow morning - leaves from the school at 5:45 a.m. - have to pack the diabetes supplies and snacks...good night all. Thanks to the moms who share so much great info and thanks Steph too.

Wed May 12 1999 21:45:18 Eastern US
carol from 204.141.216.20
Last year when I met with the superintendent because there was a chance they were going to go with a part time nurse and I said I know I could have my daughter classified and get an aide for her because diabetes is covered under the disabilities act and she said oh no its not and then I pulled out somepaper work to show her and boy did she feel silly.

Wed May 12 1999 21:45:40 Eastern US
Lora from 152.163.197.74
Gina,
If the school has been cooperative before, the should continue to be. This won't be their first 504

Wed May 12 1999 21:45:55 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Thanks Suzie nice to chat
I'm now living in Ann Arbor, MI

Wed May 12 1999 21:46:00 Eastern US
from 208.225.28.228
Hi. I'm from s.c. and we live in the sticks. Our principal would probably just look at me funny if asked about a 504 coordinator.

Wed May 12 1999 21:46:01 Eastern US
Mary from Ma. from 205.188.193.34
gina: if it isn't broken, then don't fix it...

Wed May 12 1999 21:46:24 Eastern US
Ellen from 152.163.207.82
and dads - oops...thanks Jeff and Joey :-)

Wed May 12 1999 21:46:36 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
Great Job Carol... Sometimes you have to "beat" the school upside the head with the law!

Wed May 12 1999 21:47:08 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
Hi s.c. - in my school the AP is the 504 coordinator - usually it is an administrator in the school

Wed May 12 1999 21:47:33 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Hi S. C>
He should be aware of the law if he's a school principal

Wed May 12 1999 21:47:49 Eastern US
Lora from 152.163.197.74
Our school psychologist was the one to contact.

Wed May 12 1999 21:48:00 Eastern US
Darlene from 207.206.99.162
Is there a specific 504 form available???

Wed May 12 1999 21:48:26 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
The 504 coordinator is suppose to be a superintendent (per Kansas 504 book)

Wed May 12 1999 21:48:51 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
sorry I should of said NOT the superintendent

Wed May 12 1999 21:49:00 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Jeff have we put one on line
If we haven't, I will in the next few weeks

Wed May 12 1999 21:49:01 Eastern US
gina (tracy) from 207.91.31.69
are there people outside the school who we can rely on for assistance in knowing that we are correct in what we are asking for??

Wed May 12 1999 21:49:14 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
Darlene: Do you mean a form to request? Or a form that the school and you fill out?

Wed May 12 1999 21:49:21 Eastern US
Dawn(IN) (Nolan almost 6 dx'd 2/98) from 204.189.92.223
Hi everyone. Just stepped in for a minute. My son will be starting Kindergarten this fall. What is a 504?

Wed May 12 1999 21:49:49 Eastern US
Mary from Ma. from 205.188.193.34
Darlene..what you want to ask for is an accomodation plan...your school system should set up a meeting with you, the teachers, school nurse, principal to write it...the 504 coordiantor in our district is not the superintendent, but he is administration...

Wed May 12 1999 21:50:06 Eastern US
gina (tracy) from 207.91.31.69
How would I get a nebraska 504 book??

Wed May 12 1999 21:50:22 Eastern US
carol from 204.141.216.20
Gina the same with my school,just the situation with them not looking to hard for sub nurses when the nurse is out.Like I said I just basically brought a school pack from out doctors Joslin Center and all my instruction I do have paperwork that another mom gave me explaning what my child is entitled to and I will not hesitate to use it if necessary.Kristi will be in this school one more there then it is on to another school for 4th and 5th then another for 6,7,8 so Ill be dealing with new nurses etc.

Wed May 12 1999 21:50:29 Eastern US
Darlene from 207.206.99.162
Thanks

Wed May 12 1999 21:50:35 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Gina contact you local civil rights authorities

Wed May 12 1999 21:50:43 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
If you have a 504 now... or are working one out. Call your states education dept... and ask for a 504 handbook for educators. It has a wealth of information in there.

Wed May 12 1999 21:50:52 Eastern US
Amy from 207.172.76.51
Hi all. Curious is a 504 plan really necessary? I asked a nurse about it, and she said it was basically just a bunch of paperwork. Is that true?

Wed May 12 1999 21:50:57 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
gina - call the county administration building - this is public info -

Wed May 12 1999 21:51:37 Eastern US
from 208.225.28.228
Carol, you said something about being classified, what does that mean? We also have a problem with class size (28-29 per class), I'm really concerned that he won't be looked after. He is only 5 and does not always recognize lows.

Wed May 12 1999 21:51:58 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
The 504 protects you, your child, and the school

Wed May 12 1999 21:52:21 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
Dawn: a 504 is a plan to mandate that the school accomodates your child, and their disability

Wed May 12 1999 21:52:26 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
"It's just a bunch of paperwork" to people who don't want to deal with it and making sure it is enforced.

Wed May 12 1999 21:52:54 Eastern US
Marcia...WA (Stephanie..15) from 206.190.132.150
Both the states of Oregon and Washington have formed task forces to address the issues of diabetes in the schools( committees include parents, Drs, school officials.legislatures, etc.).. they are both making state policies so it is the same everywhere.. Oregon allows glucagon.. Washington does not at this point.. I agree with Steph S... I would rather they just call 911 since we live in town.. but there are many very remote rural areas.. Stephanie went to outdoor school where the nearsest medical help was 45 minutes away.. no nurse sent.. I felt like I had no choice but to go (it was fun) or not let her go..

Wed May 12 1999 21:53:00 Eastern US
Dawn(IN) (Nolan almost 6 dx'd 2/98) from 204.189.92.223
Is it some kind of law, or written plan between you and the school.

Wed May 12 1999 21:53:17 Eastern US
susanne from 207.89.137.198
Evening all
Steph Schwartz do you know what the law is in MI about the school administering glucogon. We have no school nurse in our school system.

Wed May 12 1999 21:53:19 Eastern US
Amy from 207.172.76.51
Stephanie, what exactly does having a 504plan improve or guarantee?

Wed May 12 1999 21:53:29 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.140.118
Amy: I would tell the nurse you want one! Especially if she said that! It is a bunch of paperwork, but very important paper work.

Wed May 12 1999 21:53:29 Eastern US
Mary from Ma. from 205.188.193.34
all you have to do is go to your local school system and request a copy of section 504, they should ahve on available for you to read, it includes your rights, along with a sample accomodation form...and if you don't feel comfortable doing that, your local library will have a copy

Wed May 12 1999 21:53:53 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
even if it is "just a bunch of paprwork", it gives you the right to pursue the law if it is not implemented

Wed May 12 1999 21:53:55 Eastern US
DARLENE (ASSETS100@AOL.COM) from 205.188.200.49
correct me if i am wrong but isnt 504 the law that lets u have an iep for diabetes or other health problems

Wed May 12 1999 21:54:15 Eastern US
Leann/IN from 216.176.150.137
if you have a 504 do they then have to let them test in class if it is in there, even if sharps are not allowed in the classroom?

Wed May 12 1999 21:54:48 Eastern US
Dawn(IN) (Nolan almost 6 dx'd 2/98) from 204.189.92.223
Do all schools have this? Do I need to fill one out? this is the first I've heard of this.

Wed May 12 1999 21:55:04 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
susanne, I'm sorry just moved here and haven't learned the ropes yet

Wed May 12 1999 21:55:06 Eastern US
Amy from 207.172.76.51
does a 504 make basically all the staff, or at least administration, aware of the diabetes and what they MUST do ?

Wed May 12 1999 21:55:22 Eastern US
carol from 204.141.216.20
Usually when a child is classified they are entitled to an aide I know a woman that did this she had a full time aide with her child that the school had to pay for this aide also helped the teacher with other things in class so she didn't seem so obvious but she Knew how to take care of her daughters diabetes made sure she had her snack went on class trips even gave insulin

Wed May 12 1999 21:55:38 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
testing in classrooms may be in violation of other regs

Wed May 12 1999 21:56:20 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
I don't have a 504 plan for Megan because she already had an IEP written (for gifted studies) - i included all medical info on this - but they still won't administer glucagon (this is included)

Wed May 12 1999 21:56:35 Eastern US
Dawn(IN) (Nolan almost 6 dx'd 2/98) from 204.189.92.223
Leann, Can they test in the classroom? My school has all ready told me Nolan has to go to the office.

Wed May 12 1999 21:56:42 Eastern US
Lora from 152.163.197.74
Dawn, it is good to have. I went through K and 1st w/o one, and all was fine. I'm doing this to ensure that all continues fine

Wed May 12 1999 21:56:59 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
She can test in classroom, but I think this is mainly because she has wonderful teachers

Wed May 12 1999 21:57:02 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
stephanie y not ?

Wed May 12 1999 21:57:08 Eastern US
Mary from Ma. from 205.188.193.34
steph..our son tests in the classroom..children should be encouraged to keep their supplies with them and feel comfortable testing wheneveer they have to...

Wed May 12 1999 21:57:15 Eastern US
Leann/IN from 216.176.150.137
Alex school is very good that's why we never did a 504, yes he tests and injects in the classroom now.

Wed May 12 1999 21:57:21 Eastern US
Marcia...WA (Stephanie..15) from 206.190.132.150
I would not want my child labeled as so "disabled" they needed a full time aide.. I think that is so expensive for the school district.. we have never had a problem with Stephanie's needs being met by the teachers.

Wed May 12 1999 21:57:26 Eastern US
Kristy (Drew 6yrs dx @ 3) from 206.31.99.221
Steph S..what are your feelings about testing in the classroom?

Wed May 12 1999 21:58:03 Eastern US
Leann/IN from 216.176.150.137
i think it is a medical necessity to be able to test whenever/wherever, expecially since Alex will be pumping next school year

Wed May 12 1999 21:58:21 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
I don't know what our county policies are, but the principal at my school (not the same one my daughter goes to) has type II diabetes and is very accomodating for the three type I we have.

Wed May 12 1999 21:58:24 Eastern US
Amy from 207.172.76.51
teachers have never been a prob, except for ones in the halls that don't know me. The principal and administration has been the prob, even after my parents talking with them

Wed May 12 1999 21:58:40 Eastern US
Mary from Ma. from 205.188.193.34
Marcia..I agree about teh full time aide..it would make the child feel more disabled then they actually are, IMHO..

Wed May 12 1999 21:58:43 Eastern US
Lora from 152.163.197.74
Kristy, I think it depends on if the child is comfortable doing this

Wed May 12 1999 21:58:46 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
I think it's a great idea, if it's ok with the child and you can work it out with the school

Wed May 12 1999 21:59:20 Eastern US
carol from 204.141.216.20
Dawn if your son has to go to the office for a test I Woudl insist that if he feels low someone go with him .My daughters teachers know that if she was very shakey that the nurse is to come up to her with the meter she will not walk downstairs

Wed May 12 1999 22:00:18 Eastern US
Lora from 152.163.197.74
Carol, that can be included in the 504

Wed May 12 1999 22:00:29 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
some schools state that sharps are the problem -- but that shouldn't be the case if you reuse the lancet

Wed May 12 1999 22:00:33 Eastern US
Marcia...WA (Stephanie..15) from 206.190.132.150
kids can test anywhere they want in this district.. they tried to stop it one year but a group of parents got together with the school board and the health dept MD. health officer, who agreed it was not an infectious concern..(I asked what they did with the students who were menstuating!!?)..

Wed May 12 1999 22:01:36 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
WTG Marcia

Wed May 12 1999 22:01:41 Eastern US
Dawn(IN) (Nolan almost 6 dx'd 2/98) from 204.189.92.223
I don't see why he can't test in the classroom. Especially if low, he needn't be walking the halls. Is there a law against testing in the class? What about treating the lows? Or is every school different?

Wed May 12 1999 22:01:50 Eastern US
carol from 204.141.216.20
My daughter does not have an aide this is just an option since your son is young and he might not know if he is low you might want to explain to his teacher and his classmates some of the symtoms he has when low this way they can watch out for hime

Wed May 12 1999 22:01:51 Eastern US
Leann/IN from 216.176.150.137
Alex always reuses the lancet, i think it only gets changed when i do his test at night.LOL

Wed May 12 1999 22:02:31 Eastern US
Amy from 207.172.76.51
We've made teachers aware for years to send an escort with me to the clinic, only 1 has ever done so.

Wed May 12 1999 22:02:53 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
lows should be treated in the classroom

Wed May 12 1999 22:03:01 Eastern US
Mary from Ma. from 205.188.193.34
Marcia..when i was trying to get testing in the classroom for our son, my big question to teh adminstration was that the teachers were exposed to more blood on the playgroudn with scraped knees then they would ever be in the class while he tested because teh test was a controlled thing..

Wed May 12 1999 22:03:06 Eastern US
Linda/So. Utah from 216.190.28.33
LOL Marcia! Way to Go!!!

Wed May 12 1999 22:03:06 Eastern US
Leann/IN from 216.176.150.137
every school is different Dawn, he should be allowed to have glucose tabs in the classroom though and give some to the recess monitor too

Wed May 12 1999 22:03:14 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
We have only insisted on classroom testing when Marissa's room was far from the clinic. We have always asked that she be accompanied on all clinic visits.

Wed May 12 1999 22:03:17 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
Amy - how old are you and what state are you in?

Wed May 12 1999 22:03:30 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
great idea carol

Wed May 12 1999 22:03:59 Eastern US
Amy from 207.172.76.51
15 Virginia. Steph..I keep food in every room, but almost always eat in clinic, I have to test to be sure I am low, and to know how much to eat

Wed May 12 1999 22:04:10 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
We have Marissa carry tabs in her backpack in case she feels low on the bus. Anyone have bus-related problems?

Wed May 12 1999 22:04:15 Eastern US
Marcia...WA (Stephanie..15) from 206.190.132.150
Mary, next time just get going on the menstruation thing.. it gets them so embarassed they don't know quite what to do!! LOL...I'm so bad..

Wed May 12 1999 22:04:21 Eastern US
Dawn(IN) (Nolan almost 6 dx'd 2/98) from 204.189.92.223
Is there a article on this I can read about on the Internet?

Wed May 12 1999 22:04:28 Eastern US
Leann/IN from 216.176.150.137
so Brenda does she go to the nurses before lunch to test and then bolus in the lunchroom?

Wed May 12 1999 22:04:48 Eastern US
Linda/So. Utah from 216.190.28.33
Kim has a set of supplies in the back of the classroom..including insulin, needs and infusion sets. The insulin is in a small refridgerator the teacher has. The school is DELIGHTED that Kim takes care of herself

Wed May 12 1999 22:05:29 Eastern US
Leann/IN from 216.176.150.137
Alex's bus driver carries glucose tabs, but once when we were on a 3 hour ride for a field trip the driver almost would not stop to let him go to the bathroom

Wed May 12 1999 22:05:50 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Amy -- can you start with about 10 - 15 Grams of carb before you go to the clinic to tect your blood sugra, that will prevent it from going way too low -- Sounds like you're doing a good job taking care of yourself

Wed May 12 1999 22:05:54 Eastern US
DARLENE (ASSETS100@AOL.COM) from 205.188.200.49
marcia - you got them with that one

Wed May 12 1999 22:06:01 Eastern US
Mary from Ma. from 205.188.193.34
Marcia..LOL...but we've pretty much resolved the issue, and since my daughter now tests in school and has chosen to go to teh nurse, they know i'm not just doing this to make a point..i really do believe that kids shoulc be allowed to have a choice and test where they feel most comfortable..

Wed May 12 1999 22:06:17 Eastern US
Amy from 207.172.76.51
Is the school required to try to help with scheduling and the diabetes routine? We always ask in the summer, but this year what they told us what not the truth, a big disappointment and really complicated trying to manage

Wed May 12 1999 22:06:17 Eastern US
Amy in CT from 205.188.198.47
Hello all - I would like to mention that the 504 plan also provides for special circumstances when the child is taking standardized tests- it can allow for them to take the tests untimed, and allow for them to take the tests at their peak time that they will perform

Wed May 12 1999 22:06:18 Eastern US
Leann/IN from 216.176.150.137
Linda, does every teacher have a frig?

Wed May 12 1999 22:06:29 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
Leann, she tests at the clinic, but I am not sure when she boluses. If high, and I have established certain criteria for amounts to bolus, she does the additional bolus in the clinic. I hope she boluses in the cafe., but I am not there to ensure that she does it immediately or waits until hitting the playground (that stops at jr. high in the fall!).

Wed May 12 1999 22:06:34 Eastern US
Marcia...WA (Stephanie..15) from 206.190.132.150
I gave one bus driver info and she informed me she didn't havve time to deal with it.. (wrong thing to say) the next year in May I mentioned it to the bus driver who had no idea she had not 1 but 2 kids with D who rode her bus.. she was very upset that no one had passed my information on to her.. (luckily it was a very short ride and nothing had ever happpened.)

Wed May 12 1999 22:06:49 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
brenda - in our school district kids are not allowed to carry "any kind of meds, including glucose tabs" with them while at school - should glucose tabs be considered medication?

Wed May 12 1999 22:07:09 Eastern US
Amy from 207.172.76.51
Amy, really? I took the psats, was not allowed to leave the class, so when I finished I found out why I felt so confused---I was 34 (but the rules were clear!)

Wed May 12 1999 22:07:45 Eastern US
Leann/IN from 216.176.150.137
stephanie, can they carry icing?

Wed May 12 1999 22:07:52 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Glucose as a med has become an issue -- let him/her carry lifesavers or raisins

Wed May 12 1999 22:08:19 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
I don't consider tabs medication--if a non-D takes them, what happens??? However, there was a case a few yrs ago where a boy got suspended or something more severe for giving a tablet to a non-D.

Wed May 12 1999 22:08:25 Eastern US
Linda/So. Utah from 216.190.28.33
I think it is the teachers of fridge however, We were told it could be stored the teachers lounge refridgerator. The teachers have been delighted when I've volunteered to go on any bus field trips.

Wed May 12 1999 22:08:57 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Amy
the next time you take a standardized test, there is a form you can fill out so that your needs are met during the testing

Wed May 12 1999 22:09:05 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
For anyone looking for links to information about school and Section 504, start here:
http://www.childrenwithdiabetes.com/d_0q_000.htm

Wed May 12 1999 22:09:08 Eastern US
Lora from 152.163.197.74
Three lifesaver will raise them 15, although glucose tabs should be considered similar

Wed May 12 1999 22:09:11 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
probably - I will be meeting with our Supeintendent within two weeks and will find out for sure

Wed May 12 1999 22:09:13 Eastern US
Mary from Ma. from 205.188.193.34
steph..kids in our school district aren't allowed to keep food on them during the day(except my kids, of course :-) )

Wed May 12 1999 22:09:30 Eastern US
Marcia...WA (Stephanie..15) from 206.190.132.150
and "smarties" candies are made from the same thing as glucose tabs.. lots cheaper, too.

Wed May 12 1999 22:10:02 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
that was front-page news Brenda and I'm not sure the issue has been resolved

Wed May 12 1999 22:10:05 Eastern US
Amy from 207.172.76.51
really? Have had them all week, was 370 before, but couldn't take insulin, because was scared of crashing down. I explain to teachers, but very few really understand. Steph, usually the reason I check too, is if I feel high, I'm low. If I don't feel anything I'm really low, so you can imagine, i practically live in that clinic

Wed May 12 1999 22:10:43 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Good idea Marcia, 3 of the BIG smarties are 1 carb or a thirs of a roll of the smaller ones

Wed May 12 1999 22:10:47 Eastern US
Amy from 207.172.76.51
Steph, who do you deal with with those sorts of forms if school nurse is not interested in helping?

Wed May 12 1999 22:10:56 Eastern US
Lora from 152.163.197.74
Brenda, oh well, my 2 yr old screams if he doesn't get tabs when the older one does. Expensive, but keeps the peace

Wed May 12 1999 22:11:01 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
Do alot of your kids need to have insulin at lunch time? I was informed that I would have to be at the school every day if Megan needed a shot before lunch (she won't do her own shot yet.)

Wed May 12 1999 22:11:10 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Amy have you thought about a pump ??

Wed May 12 1999 22:11:33 Eastern US
Amy from 207.172.76.51
Steph, this summer I am starting one. Scared what else the school can screw up with!

Wed May 12 1999 22:11:43 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
StephB -- someone at school can give and must if thats in her 504

Wed May 12 1999 22:11:55 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Stepanie: The nurse can't give your daughter a shot?

Wed May 12 1999 22:12:00 Eastern US
Leann/IN from 216.176.150.137
Alex does his own injection with a pen pre-lunch in the classroom

Wed May 12 1999 22:12:27 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
Amy - good luck ! You sound like you are doing great with D. I hope my daughter is like you when she is older (she's almost 10)

Wed May 12 1999 22:12:38 Eastern US
carol from 204.141.216.20
So do I need a 504 if I the school is meeting my daughters needs would this help solve the problem of them not going out of their way to find sub nurses when the nurse is out and having someone go on class trips if I could not go?

Wed May 12 1999 22:12:43 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Amy --
you'll haver mush more and better control
there's nothing the school can screw up -- they need to be told to leave it alone and let you do all the adjustments LOL

Wed May 12 1999 22:13:07 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Carol -- perhaps

Wed May 12 1999 22:13:12 Eastern US
Amy from 207.172.76.51
Stephanie, where do you live?

Wed May 12 1999 22:13:12 Eastern US
Mary from Ma. from 205.188.193.34
stephb..i have on child on a insulin pump and another on injections..the one on injectiosn hasn't needed insulin at shcool, bu tthe one on the pump does his boluses supervised by an adult(someitmes the teacher, the school nurse when there's a substitute teacher0

Wed May 12 1999 22:13:21 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
We don't have a full time nurse at her school. - Was informed that non-medical personnel can't give shots.

Wed May 12 1999 22:13:25 Eastern US
Linda/So. Utah from 216.190.28.33
Kim used to give herself shots in school all the time last year prepump with a humalog filled pen.

Wed May 12 1999 22:13:38 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
In Clearwater, FL

Wed May 12 1999 22:13:55 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Carol: Even if the school is doing everything it should now, next year new teachers, new attitude it can all change.

Wed May 12 1999 22:14:31 Eastern US
Amy from 207.172.76.51
Steph, are they required to let me bolus on my own, not just in the clinic?

Wed May 12 1999 22:14:41 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
StephB -- the law requires that someone at the school then take responsibility and learn how to do it if that's in the care plan

Wed May 12 1999 22:15:05 Eastern US
Kristy (Drew 6yrs dx @ 3) from 206.31.99.221
Our school was so excited about Drew's pump..they asked me how often they would need to change his sites...they almost seemed disappointed when I told them I did the changing!:-)

Wed May 12 1999 22:15:09 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.133
As far as we know, Marissa boluses unsupervised. I always write down the number of carbs she is eating and the amount she should bolus. I feel more comfortable with this system.

Wed May 12 1999 22:15:14 Eastern US
Leann/IN from 216.176.150.137
i want Alex to bolus in the cafeteria so he can see what's on the tray and know how much he is going to eat

Wed May 12 1999 22:15:23 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
AMY--
YES if your diabetes team writes the orders that way

Wed May 12 1999 22:15:26 Eastern US
Amy in CT from 205.188.198.54
Amy - my 8 year old can bolus in the classroom if they are having a special snack - at 15, they should be able to let you do that too.

Wed May 12 1999 22:15:34 Eastern US
Linda/So. Utah from 216.190.28.33
At the first of this year, after Kim had started pumping, I called the school district administrator over special needs and asked if I needed a 504...he told me emphatically no, but a few days later the school district nurse called and set up an appt for a 504. She was so impressed with Kim's pump etc. that she called me at home a few weeks later to find out more information for her friend with D.

Wed May 12 1999 22:15:37 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Great idea Leann

Wed May 12 1999 22:15:38 Eastern US
xchpmunkx (momofBryandx'd@9) from 152.163.232.53
going to sons school tomorrow for ed plan review, was planning to ask about starting a 504 how specific can I be?

Wed May 12 1999 22:15:40 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Steph in FL... request a 504 and have it put in the 504.. someone needs to give her a shot. How old is your daughter?

Wed May 12 1999 22:15:43 Eastern US
Dawn(IN) (Nolan almost 6 dx'd 2/98) from 204.189.92.223
Well, thanks for all the advice tonight. It sounds like I need to read up on this. I have an appt. next week with the school, so I'd better learn all I can.

Wed May 12 1999 22:15:53 Eastern US
Leann/IN from 216.176.150.137
LOL Kristy, you are very lucky

Wed May 12 1999 22:15:55 Eastern US
Marcia...WA (Stephanie..15) from 206.190.132.150
No one has ever bothered Stephanie about her pump at school..(must remember the classroom testing discussion)LOL

Wed May 12 1999 22:16:07 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
WTG Linda :)

Wed May 12 1999 22:16:14 Eastern US
susanne from 207.89.137.198
Steph even if our school does not have a nurse, and the plan asks for insulin administration at lunch the school must provide someone to administer it other than me coming to the school in Michigan.

Wed May 12 1999 22:16:36 Eastern US
Amy from 207.172.76.51
why do schools make such a deal out of paperwork? was given a whole handful last year, and it was just sitting in my supplies, they never checked what it said, just that I had it. So, you don't think they'll trust my judjment if it's not written?

Wed May 12 1999 22:16:38 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Xchmunkx: You need to be very specific.. I speak From personal experience

Wed May 12 1999 22:16:58 Eastern US
carol from 204.141.216.20
So since it is the end of the year should I wait till next year and who do I see about this the superintent? Our pricipal is not to bright

Wed May 12 1999 22:17:14 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
Steph - thanks - I am currently in the process of informing our school board of the law. So far I have met nothing but ignorance and brick walls.

Wed May 12 1999 22:17:17 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Suzie
give my love to rachel -- have her e-mail me

Wed May 12 1999 22:17:20 Eastern US
Leann/IN from 216.176.150.137
sometimes they switch things for lunch like sub pears for peaches and alex doesn't like pears so he would not eat them, he will need to calculate his bolus at that time

Wed May 12 1999 22:17:37 Eastern US
Kristy (Drew 6yrs dx @ 3) from 206.31.99.221
carol..don't wait..

Wed May 12 1999 22:17:50 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
Suzie - it is already in her IEP and her health care plan - they still say they can't - that's why the fight.

Wed May 12 1999 22:17:56 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
I will do it. That is so neat that you remember her...

Wed May 12 1999 22:18:04 Eastern US
xchpmunkx (momofBryandx'd@9) from 152.163.232.53
a mom on AOL BB told us that she even put in that her child was not to have a Test within an hour of a high or low, can I do that, or does his doctor have to write a letter?

Wed May 12 1999 22:18:10 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Please keep Children with Diabetes informed as to what's going on so we can update our site

Wed May 12 1999 22:18:24 Eastern US
Amy from 207.172.76.51
is it a good idea to have an educational consultant talk with the school first? do you all usually do it yourselves, or involve your cde?

Wed May 12 1999 22:19:08 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
better to have your diabetes team write the order

Wed May 12 1999 22:19:25 Eastern US
Mary from Ma. from 205.188.193.34
leann..we work out our son's boluses at home in teh morning and he takes a cheat sheet to school with him, then he decides what to eat at lunch and just adds up the amounts for the foods he needs to bolus..al his teacher does it double verify the number on the paper with the number on the pump..

Wed May 12 1999 22:19:36 Eastern US
Lora from 152.163.197.74
Susanne, would you want a non-medical personnel to give a shot though? That thought makes me a little leary

Wed May 12 1999 22:19:48 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Amy
set up a team meeting with you, the school personnel and someone from your diabetes team

Wed May 12 1999 22:20:07 Eastern US
Leann/IN from 216.176.150.137
Amy i usually talk to nurse and teachers at the beginning of the year but next year i am going to have minimed or cde do inservice on the pump with the nurse and secretary(covers for the nurse when she is not in her office)

Wed May 12 1999 22:20:18 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Ok.. then request a 504.. I would call the state ed office and request a 504 handbook for educators. The head 504 person at the ed office can be very helpful.. tell them your probs.. they might have a good suggestion. I have found many times when a school is saying no to something a parent wants... they usually think the parent doesn't know the law. Be prepared

Wed May 12 1999 22:20:26 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Lora
a lot of parents and kids are non-medical people and give shots

Wed May 12 1999 22:20:42 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
Thanks for all the encouragment - my son has been sick all day - and Megan needs to have her foot x-rayed inthe morning - I hope it's not broken. - Lora - anyone trained is better than noone at all!

Wed May 12 1999 22:21:08 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Jeff, Brenda still here ?

Wed May 12 1999 22:21:24 Eastern US
Amy from 207.172.76.51
Leann, really? We've always talked with the nurse or office, and give each teacher an emergency pack with a sheet of info (none read it though!). Steph, if the d team isn't close is that as possible? Leann, getting MM to talk sounds like a good idea

Wed May 12 1999 22:21:27 Eastern US
susanne from 207.89.137.198
Lora this year I've only needed to give "extra" insulin at lunch about 4 times this year. In another year or two she can learn to give her own shots but at 6 she has no interest in learning at the moment.

Wed May 12 1999 22:21:29 Eastern US
Leann/IN from 216.176.150.137
yes Mary I already do that for Alex now since he injects at lunch, will not be much different when he boluses, he will be in 5th grade next year and doesn't need supervision of injections now

Wed May 12 1999 22:21:36 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
Steph, we're still here.

Wed May 12 1999 22:21:43 Eastern US
Amy in CT from 205.188.198.31
Leann - does minimed do that alot? That sounds like a great idea.

Wed May 12 1999 22:21:53 Eastern US
carol from 204.141.216.20
I'am confused I have to look at all my paperwork then talk to my Moms of diabetic children support group and get more info.

Wed May 12 1999 22:22:30 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
Sure seems like a lot of people need more information about IEPs and Section 504. I take that as an action for me to get something written up for inclusion in the web site.

Wed May 12 1999 22:22:39 Eastern US
Linda/So. Utah from 216.190.28.33
At the 6th grade Center where Kim will be next year, there will be 3 kids with D...2 on pumps. The asst principal is very aware of the need for good teachers for these kids. Last year there were at least 3 D kids too

Wed May 12 1999 22:22:39 Eastern US
xchpmunkx (momofBryandx'd@9) from 152.163.232.53
can children test in the classroom if it is stated on the 504? After the next grade my son wil be in high school don't, and on the go more

Wed May 12 1999 22:22:45 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
you can use your pump training video at school

Wed May 12 1999 22:22:55 Eastern US
Stephanie (stephb1@tampabay.rr.com) from 24.92.185.24
Thanks to all - I need to call it a night. if those of you fromVA are still here - plase contact me! Good Nite:-)

Wed May 12 1999 22:23:13 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
My thoughts exactly

Wed May 12 1999 22:23:16 Eastern US
Amy from 207.172.76.51
so the school is not required to do anything w/o having the written 504?

Wed May 12 1999 22:23:30 Eastern US
Leann/IN from 216.176.150.137
Amy, I know they do it for dr.s and such, i know our rep lives near us, i still have to confirm that she will do it.

Wed May 12 1999 22:23:36 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Some one mentioned school lunch. You can request in your 504 a certain # of carbs be in every lunch for your child.

Wed May 12 1999 22:23:36 Eastern US
xchpmunkx (momofBryandx'd@9) from 152.163.232.53
I'm confused now, is the 504 a section on an IEP? My son has an IEP in place due to learning disabilities

Wed May 12 1999 22:23:48 Eastern US
susanne from 207.89.137.198
I need to run. good night all

Wed May 12 1999 22:23:48 Eastern US
carol from 204.141.216.20
Well signing off I have a lot to think about!

Wed May 12 1999 22:24:02 Eastern US
Leann/IN from 216.176.150.137
good idea Steph, about the video

Wed May 12 1999 22:24:21 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
there's a new book coming from MiniMed for grandparents -- it will work for schools too

Wed May 12 1999 22:24:31 Eastern US
Lora from 152.163.197.74
Or should I say an untrained non-medical person?

Wed May 12 1999 22:25:04 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Amy: The school is required to provide a 504 to you. As soon as they know there is a child in need, they need to have a meeting to provide the best education for your child.

Wed May 12 1999 22:25:10 Eastern US
Leann/IN from 216.176.150.137
Suzie, that would mean going over the menu with the lunch ladies every week and hoping they get it right, i would rather teach Alex how to count carbs right

Wed May 12 1999 22:25:12 Eastern US
Darlene from 206.68.196.195
Jeff, will you be posting the transcript from this chat- there is so much info- I'd like to review at a latter time

Wed May 12 1999 22:25:17 Eastern US
xchpmunkx (momofBryandx'd@9) from 152.163.232.53
also, can the child ( mines 13) draw his own insulin if needed at lunchtime? if on the 504?

Wed May 12 1999 22:25:33 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
we all agree whoever is giving shots need to be taught how

Wed May 12 1999 22:25:58 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
xch -- yes

Wed May 12 1999 22:26:01 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
The transcript for this session will be posted shortly after the room is shut down. It's about time to wind this down. How about 5 more minutes.

Wed May 12 1999 22:26:13 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Xchp: no a 504 is seperate from an IEP. You can have both.. or you can have an IHP done to the IEP

Wed May 12 1999 22:26:31 Eastern US
xchpmunkx (momofBryandx'd@9) from 152.163.232.53
Steph - -yes to which one? lol

Wed May 12 1999 22:26:32 Eastern US
Amy from 207.172.76.51
Suzie, thanks. I guess my nurse just didn't want to have to deal with it, had given me the impression it was pointless. Last time I had a prob, I just threatened the principal with the educ. consultant getting involved

Wed May 12 1999 22:27:05 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Leann -- I think it's great -- Alex should learn to count carbs

Wed May 12 1999 22:27:15 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
Before we wind down, I would like to thank Suzie Eads for getting us all together to talk about diabetes at school.

Wed May 12 1999 22:27:20 Eastern US
xchpmunkx (momofBryandx'd@9) from 152.163.232.53
suzie, does the IHP hold as well as the 504?

Wed May 12 1999 22:27:32 Eastern US
Marcia...WA (Stephanie..15) from 206.190.132.150
Thanks so much..Jeff--Brenda--and Stephanie for leading this discussion tonight.. very informative.. Goodnight all!

Wed May 12 1999 22:27:52 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
he can draw his own insulin
sorry, I lost the other one

Wed May 12 1999 22:27:55 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Leann: I agree 100% with your son counting Carbs. But you should remind the lunch ladies that it is required in the school lunch program .. (forgot what it's called) to have a certian # of carbs, calories etc.. in every meal.

Wed May 12 1999 22:28:03 Eastern US
Leann/IN from 216.176.150.137
Jeff, that would be great if you could post some info about 504's and maybe some sample ones.

Wed May 12 1999 22:28:12 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Nite Marcia, and LOL stay in touch

Wed May 12 1999 22:28:28 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Xch: I have found the IHP don't hold much weight as far as the "law" goes. I would really request a 504.

Wed May 12 1999 22:28:32 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
If anyone has 504s that they would like to share, please send them to me.

Wed May 12 1999 22:28:44 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
school lunches have to have 4 carbs by law

Wed May 12 1999 22:29:00 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
And a special thanks to Steph Schwartz for taking time to add her experience and wisdom.

Wed May 12 1999 22:29:06 Eastern US
xchpmunkx (momofBryandx'd@9) from 152.163.232.53
thanks for this chat, wish I had known of it earlier!

Wed May 12 1999 22:29:13 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Jeff,
I have one ready to post

Wed May 12 1999 22:29:16 Eastern US
Amy (amyarm15@hotmail.com) from 207.172.76.51
I better go, night all, great chatting. :-)

Wed May 12 1999 22:29:16 Eastern US
Lora from 152.163.197.74
Thanks for all the info - good night all

Wed May 12 1999 22:29:39 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Amy: I had a school nurse that did the same to me... and she's on the 504 comm.

Wed May 12 1999 22:29:40 Eastern US
xchpmunkx (momofBryandx'd@9) from 152.163.232.53
I plan on printing out the 504 to bring to them tomorrow, just incase they aren't familiar with it, my son is the only diabetic there

Wed May 12 1999 22:29:42 Eastern US
Leann/IN from 216.176.150.137
but Suzie, Alex doesn't need a certain amount right now he injects for what he will be eating and in the fall he will be pumping. But for many others this is an issue, just hard to rely on lunch ladies, our dietician is not on site.

Wed May 12 1999 22:29:45 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
Steph: Great. E-mail it to me and I can include it as a reference to the transcript.

Wed May 12 1999 22:30:08 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
tomorrow

Wed May 12 1999 22:30:27 Eastern US
Leann/IN from 216.176.150.137
Thanks to Steph and Jeff, this was a great forum!

Wed May 12 1999 22:30:31 Eastern US
Amy (amyarm15@hotmail.com) from 207.172.76.51
oh, Suzie, she had given the impression D didn't need to be covered, night

Wed May 12 1999 22:30:54 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
If any of you have any other questions please feel free to e-mail me. COPAA Council of Parents, Attorneys and Advocates has a web site that has advocates in different states that will help you with your 504

Wed May 12 1999 22:31:01 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
Steph: Tomorrow is fine.

Thanks again everyone for stopping by. Watch for a transcript within the hour. I'll keep this room open for a few more minutes, but if you want to keep chatting, perhaps you should move over to the Parents room.

Wed May 12 1999 22:31:23 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
LOL with your pump!!
Holler if you need help

Wed May 12 1999 22:31:42 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Jeff
Phone after this ?

Wed May 12 1999 22:32:00 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.139
Steph -- sure, I'll call you.

Wed May 12 1999 22:32:35 Eastern US
xchpmunkx (momofBryandx'd@9) from 152.163.232.53
can we find the transcript on the main page? sorry new at this

Wed May 12 1999 22:33:08 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.133
The transcript will be on a link off the main chat page.

Wed May 12 1999 22:33:16 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Suzie
Please write ssq@swq.com

Wed May 12 1999 22:33:42 Eastern US
xchpmunkx (momofBryandx'd@9) from 152.163.232.53
thanks again

Wed May 12 1999 22:33:53 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Jeff: sorry I had such a hard time getting on line... wouldn't you know today of all days

Wed May 12 1999 22:34:09 Eastern US
Sharon (hun@townsqr.com) from 208.207.68.40
Jeff, We had a Section 584 Written for our son. I am also a public school teacher in the same school system, but not the same building. Also, the state of MO has a new plan for kids with diabetes in the schools called "Diabetes Management in the School Setting" complete with forms and everything. Stephanie Schwartz helped work on this also as her name appears on it.

Wed May 12 1999 22:34:27 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Suzie
I miss all of you

Wed May 12 1999 22:35:01 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
thanks Sharon

Wed May 12 1999 22:35:05 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.133
Sharon: If you could send me a copy of those documents, I would be grateful.

Suzie: No problem -- it turned out great. Thank you again for getting this organized.

Wed May 12 1999 22:35:14 Eastern US
charisse from 152.163.201.66
I would be interested in those forms sharon

Wed May 12 1999 22:35:26 Eastern US
Jeff Hitchcock (editor@childrenwithdiabetes.com) from 206.112.197.133
OK ... I'll be shutting down this room in two minutes.

Wed May 12 1999 22:36:13 Eastern US
Steph Schwartz, RN, MPH, CDE (StephS@Childrenwithdiabetes.com) from 208.254.39.144
Good night all and thanks for joining us

Wed May 12 1999 22:36:47 Eastern US
Suzie Eads (suzaq@worldnet.att.net) from 12.75.169.92
Good Night all... Miss you steph... CMH is not the same without you... no more smiles...



                 
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