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  Back to Chat Teens and Pumps Chat

Natalie Bellini, diabetes nurse educator, pump trainer, and pump user from Animas Corporation, joined us for a special chat about Teens and Pump Management on November 14, 2002.

Chat Room Administrator Thu Nov 14 2002 20:00:00 Eastern US
The 'Teens and Pumps' chat room is now open.


Thu Nov 14 2002 20:42:25 Eastern US
mel B (mom of 14 yr old dx'd at 10 yrs old) from 64.89.160.30
hello

Thu Nov 14 2002 20:47:35 Eastern US
Derrick (21 m) from 152.163.189.201
hi

Thu Nov 14 2002 20:48:44 Eastern US
Derrick (21 m) from 152.163.189.201
how are you today

Thu Nov 14 2002 20:56:21 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
Hi .. is this the room they will be having the Animas chat in ?

Thu Nov 14 2002 20:59:20 Eastern US
Jeff Hitchcock from 216.68.227.14
Rochelle, yes, this is the room ... should be starting any moment.

Thu Nov 14 2002 21:00:10 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
ok ty Jeff.. do you want the parent in here or the teen?

Thu Nov 14 2002 21:01:10 Eastern US
Jeff Hitchcock from 216.68.227.14
Rochelle ... my daughter Marissa, now 15, uses a pump. I'm just here to make sure the chat gets off to a good start.

Thu Nov 14 2002 21:01:34 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
yes i know who you are lol :)

Thu Nov 14 2002 21:01:51 Eastern US
Jeff Hitchcock from 216.68.227.14
oh ... OK ...

Thu Nov 14 2002 21:02:31 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
i'm the one that replied to your harley pic saying my hubby was drooling lol..

Thu Nov 14 2002 21:03:07 Eastern US
Jeff Hitchcock from 216.68.227.14
Oh yeah ... sorry, it's late and I'm kind of tired.

Thu Nov 14 2002 21:03:58 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
I understand

Thu Nov 14 2002 21:04:00 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
hellooo!!

Thu Nov 14 2002 21:04:12 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Hi!

Thu Nov 14 2002 21:04:21 Eastern US
Jeff Hitchcock from 216.68.227.14
How does Heather like her pump? Marissa loves hers (Animas too).

Thu Nov 14 2002 21:04:50 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
she loves it..

Thu Nov 14 2002 21:05:44 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
we had our first occlusion (sp) alarm the other night after she went to bed.. but we think its just because canula was wrapped around the pump..

Thu Nov 14 2002 21:06:06 Eastern US
LauraB (moderator) from 68.43.234.122
Hi Natalie - Welcome, Everyone! Just want to say hello and thank Natalie right up front for participating as our "expert" tonight!

Thu Nov 14 2002 21:06:37 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
Hi there Laura :) Hi Natalie

Thu Nov 14 2002 21:07:05 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Jeff, good to be with you. I want to introduce myself. I am a nurse and diabetes educator. I have had diabetes almost 35 years and been pumping since 1978.

Thu Nov 14 2002 21:07:30 Eastern US
Tim (Dad of Sara, 7, dx'd at 5) from 63.196.57.244
Hi, Natalie. ;-)

Thu Nov 14 2002 21:07:54 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
Hi Natalie! Were you at the Focus on Technology conference in Michigan?

Thu Nov 14 2002 21:07:55 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Anyone having teen pumping questions/challenges?

Thu Nov 14 2002 21:08:12 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Hi all. We're hoping Marissa joins us from her computer.

Thu Nov 14 2002 21:08:30 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
yes i do.. we had our first occlusion alarm two nights ago

Thu Nov 14 2002 21:09:00 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
we called Animas.. because her blood sugar wasn't high and site looked fine

Thu Nov 14 2002 21:09:22 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Natalie, we just converted to the new Animas pump and I have been somewhat negligent. I programmed the time, date, and basals. Is there anything critical that I should do asap? Marissa said she programmed it to alarm at 20 units.

Thu Nov 14 2002 21:09:28 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
I was not at MI. I was at Pasadena and will be at AZ and FL...

Thu Nov 14 2002 21:09:33 Eastern US
Buffy from 65.144.206.127
Hi all

Thu Nov 14 2002 21:09:39 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
manual said we had to change the site.. i didnt want to at 11pm at night ..

Thu Nov 14 2002 21:10:53 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
You need to set and verify basals and do time and date. You should also go through the set up..

Thu Nov 14 2002 21:10:54 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
I remember meeting someone who was from Animas and used a pump, she just pulled up her shirt to show us her infusion set...LOL I thought you might have been her!
Is there a 'better' time for site changes??

Thu Nov 14 2002 21:11:17 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Rochelle, it is a rare occasion when there are problems during daytime hours. :-)

Thu Nov 14 2002 21:11:45 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Site does not need to be changed if it is not time.

Thu Nov 14 2002 21:12:00 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
That is reassuring Brenda! LOL

Thu Nov 14 2002 21:12:09 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
I will look at the set up tomorrow or so. Basals are all set and verified.

Thu Nov 14 2002 21:12:22 Eastern US
Buffy from 65.144.206.127
Guess everyone in here is a parent

Thu Nov 14 2002 21:12:24 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
yep i guess we just have to stay sleep deprived lol

Thu Nov 14 2002 21:12:45 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
MB- Site changes during daytime are recommended so you can verify by checking sugars that you are really infusing properly.

Thu Nov 14 2002 21:12:51 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Mary Beth, I'd ask you to drive down here Sat. to review the pump, but we have to go out of town this weekend.

Thu Nov 14 2002 21:12:58 Eastern US
Buffy from 65.144.206.127
LOL I'm 17...not quite a parent yet

Thu Nov 14 2002 21:13:50 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
If you have to change a site at night you should set the alarm and check sugars in 2-3 hours after. I like after school or before dinner...

Thu Nov 14 2002 21:13:52 Eastern US
LauraB (moderator) from 68.43.234.122
Buffy, Sam is looking over my shoulder. We just have one computer going right now. :-)

Thu Nov 14 2002 21:13:57 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Buffy, are you the same Buffy from NY who has been using this site practically since the beginning?

Thu Nov 14 2002 21:14:09 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Buffy-Do you pump?

Thu Nov 14 2002 21:14:16 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
Catie is 12 and has had diabetes for 7 months...she does her own shots and is pretty certain that she will change her own infusion sets....should a 12 year old be able to do it fairly easily??

Thu Nov 14 2002 21:14:37 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
Heather is looking over my shoulder as well

Thu Nov 14 2002 21:14:42 Eastern US
Buffy from 65.144.206.127
*waves hi to sam* Brenda, how did you know that? Hehe yes It's me:-)

Thu Nov 14 2002 21:14:48 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Natalie, I don't know what older teens and adults do, but most of us parents test every night, site change or not.

Thu Nov 14 2002 21:14:55 Eastern US
Buffy from 65.144.206.127
*waves hi to heather*

Thu Nov 14 2002 21:14:58 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
Thanks Brenda, that is sweet of you!! I will yell if I have any questions...I know where to find Laura too!

Thu Nov 14 2002 21:15:21 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
Mary Beth.. i've changed maybe 1 site since August..

Thu Nov 14 2002 21:15:28 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Buffy, just trying to remember your name (Nicole)! Do you pump?

Thu Nov 14 2002 21:15:31 Eastern US
Buffy from 65.144.206.127
Yes Natalie, I've been pumping for 3 years

Thu Nov 14 2002 21:15:37 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
after school...that is a good idea.

Thu Nov 14 2002 21:15:46 Eastern US
LauraB (moderator) from 68.43.234.122
Question from Sam (who is 12 and using the Animas IR) - How come when the occlusion alarm sounds at night and he presses the enter button to confirm it, then re-primes, it works like a charm. What's with the occlusion thingie and why does it seem so sensitive? We've had the setting at high and low, and not much difference. You'd think if it was truly occluded, just acknowledgeing it and repriming wouldn't make much difference. Would it???

Thu Nov 14 2002 21:16:08 Eastern US
Buffy from 65.144.206.127
:-) You got it. Yes I do pump Brenda.

Thu Nov 14 2002 21:16:13 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Marissa often changes her site after she showers.

Thu Nov 14 2002 21:16:27 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
Really Rochelle?? That is great.... but I am afraid that if I don't learn, I won't be able to help Catie if she needs help. She seems to be pretty certain that she wants to do this on her own though.

Thu Nov 14 2002 21:17:00 Eastern US
Buffy from 65.144.206.127
Brenda, I'm a highschool senior now:-)

Thu Nov 14 2002 21:17:05 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
MB- Every 12 year old is different. I tell my kids that they have to do it before they leave for college. Do NOT put too much pressure on her. This is not going away and the chronic side of it will effect her mental health if you push. She will want to do it on her own soon enough.

Thu Nov 14 2002 21:17:40 Eastern US
Buffy from 65.144.206.127
I usually change my pump every 2-3 days

Thu Nov 14 2002 21:17:51 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
hey trust me .. the one time i had to change it was on way to branson and her site fell out.. she was scared to put one back in.. i was shaking putting it in

Thu Nov 14 2002 21:18:14 Eastern US
LauraB (moderator) from 68.43.234.122
Wow, Buffy. You must have a lot of money! :-)

Thu Nov 14 2002 21:18:43 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
lol @Laura

Thu Nov 14 2002 21:18:45 Eastern US
Buffy from 65.144.206.127
LOL I wish

Thu Nov 14 2002 21:18:59 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
She wants to do it, but I will be sure not to push her if she backs away when we get started. I am pretty sure she will do great though.
I bet Rochelle.... always happens at the worst time doesn't it? When Catie was first diagnosed and had lots of lows, it was always at the craziest times!!

Thu Nov 14 2002 21:19:12 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Natalie, which set do teens seem to prefer? Marissa uses Tenders/Comforts.

Thu Nov 14 2002 21:19:34 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Yes the occlusion can be primed out. The pump is VERY sensitive abd he may be getting them when he is resting directly on the site. I get them when I wear jeans at the wrong level..

Thu Nov 14 2002 21:19:42 Eastern US
Tim (Dad of Sara, 7, dx'd at 5) from 63.196.57.244
Hi Laura! How often do you change the set? I am assuming that is what you ment about the $$$$

Thu Nov 14 2002 21:19:58 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
i have 4 boxes of unopened comforts ..heather refuses to use them

Thu Nov 14 2002 21:20:26 Eastern US
LauraB (moderator) from 68.43.234.122
Sam has never changed his own set. He could set it all up if he had to (and he sometimes does if I'm really swamped), but he really LIKES me to do it. If he was 20 and wanted me to change his sites, I'd think it was a little immature, but I'm ok with my 12 year old wanting Mom to still do the "ouchie" part.

Thu Nov 14 2002 21:21:06 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Natalie, Marissa will put her site on her derriere for certain outfits, even if it means changing the site sooner than is necessary.

Thu Nov 14 2002 21:21:20 Eastern US
LauraB (moderator) from 68.43.234.122
Tim - I was making a joke. Buffy said she changed her "pump" every 2-3 days. Not her set. We change Sam every 2 days, like clockwork. His absorption starts to decline after that, and bgs hop into the 200s pretty quickly.

Thu Nov 14 2002 21:21:38 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
I like the comforts for several clinical and personal reasons. You can see the site. You can disconnect at the site. But most of all it STAYS IN and doesn't crimp often.

Thu Nov 14 2002 21:21:48 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
I don't have any idea what type of sets Catie will use...the comforts came with the pump, I am assuming we will start with those.

Thu Nov 14 2002 21:22:02 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Tim, since she started using Novolog in her pump in March, Marissa changes her set every 3-4 days. With H, she always ran high after 2 days.

Thu Nov 14 2002 21:22:41 Eastern US
LauraB (moderator) from 68.43.234.122
Natalie, yes it is ALWAYS during the night. In fact, he had 3 the other night and I think it was because - with his cold- he was sleeping in just one position, and probably right on the tubing. The set is in his leg. He wears it on his outer thigh, right about where the bottom of his boxer shorts are.

Thu Nov 14 2002 21:22:47 Eastern US
Tim (Dad of Sara, 7, dx'd at 5) from 63.196.57.244
sorry Laura I'm a little slow... and I have one hand on the keyboard and on the stove

Thu Nov 14 2002 21:23:02 Eastern US
Derrick (21 m) from 152.163.189.201
hi

Thu Nov 14 2002 21:23:18 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
we'd like to use novolog.. but our insurance wont cover it

Thu Nov 14 2002 21:23:24 Eastern US
LauraB (moderator) from 68.43.234.122
Natalie, can you tell us about the new sets that are being developed by Animas?

Thu Nov 14 2002 21:23:43 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Brenda- The reason we change every 2-3 days is that we are tryiong to prevent scar tissue. Remember that we need good absorption 5 years from now too. The increaser in scar tissue goes up astromically after the first 72 hours.

Thu Nov 14 2002 21:23:45 Eastern US
LauraB (moderator) from 68.43.234.122
Send some dinner over here....

Thu Nov 14 2002 21:24:16 Eastern US
Derrick (21 m) from 152.163.189.201
i have been on the pump for about a year now

Thu Nov 14 2002 21:24:32 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
doesn't Animas have an inserter too??

Thu Nov 14 2002 21:24:51 Eastern US
LauraB (moderator) from 68.43.234.122
Hi Derrick. Which pump and which sets do you use?

Thu Nov 14 2002 21:25:27 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Natalie, I understand that. I think I read in a previous chat transcript (don't know which one) that some adults were using the same site for 7 days! I would worry about infections.

Thu Nov 14 2002 21:25:31 Eastern US
mush mouth from 209.153.8.64
hi my name is elizabeth i am going to be getting a pump in 2 or 3 weeks

Thu Nov 14 2002 21:25:34 Eastern US
Derrick (21 m) from 152.163.189.201
exsuse me

Thu Nov 14 2002 21:25:42 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Animas is in the process of producing our EZ Set. It is an angled set that will come in 2 catheter lengths for the little ones, 3 tubing lengthe and have bioth a window to see the site and an inserter

Thu Nov 14 2002 21:26:40 Eastern US
Derrick (21 m) from 152.163.189.201
hope you like the pump when you get it elisebeth

Thu Nov 14 2002 21:26:43 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
So, the inserter isn't available now??

Thu Nov 14 2002 21:27:31 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
People using sites for 7 days are not optimising there absorption over time. I have only scar tissue for beef insulin. None from pumping since 1078, but I change EVERY 2 days

Thu Nov 14 2002 21:27:31 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Natalie, I was pleased to see that the needle for filling cartridges was shorter in the ones I got a couple of months ago. The initial ones had a long needle and it was hard to fill a third cartridge from a vial.

Thu Nov 14 2002 21:28:00 Eastern US
LauraB (moderator) from 68.43.234.122
Definitely need an inserter. I can do a lot of things, but pushing a needle into Sam's tush with my own fingers isn't one of them. I've watched others do it, and it makes me want to faint...

Thu Nov 14 2002 21:28:07 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Gee Natalie, you must be as old as me!

Thu Nov 14 2002 21:28:42 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Laura, has Sam tried Comforts?

Thu Nov 14 2002 21:28:43 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
the insertwer is not available yet. You can use any brand pump supplies with a Leur Lock connection with the Animas pump. I recommend different sets based on peoples medical needs

Thu Nov 14 2002 21:30:01 Eastern US
LauraB (moderator) from 68.43.234.122
Natalie - Since the topic of this is Teens and Pumping (and we don't really seem to be talking about Teens per se, but that's ok)... are there any issues that you think we parents of teens should be thinking about or discussing?

Thu Nov 14 2002 21:30:05 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
we had too many tears with heather on the comforts.. she would just shake. now we use disetronic ultraflex.. much better

Thu Nov 14 2002 21:30:06 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
I actually use Novolog Cartridges to draw from. I use half a vial at a time. It keeps insulin fresh and is EASY

Thu Nov 14 2002 21:30:14 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
what length of tubing works best??

Thu Nov 14 2002 21:30:39 Eastern US
LauraB (moderator) from 68.43.234.122
Brenda, no... does it have a serter?

Thu Nov 14 2002 21:31:21 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
No, the Comforts just go in at an angle. Have Marissa show you them in 2 weeks when you see her.

Thu Nov 14 2002 21:32:00 Eastern US
LauraB (moderator) from 68.43.234.122
We've ONLY used the sof-sets and Quick-Sets. Sam likes the quick-sets but hates how many crimped cannulas he gets.
Every time I write that word, I think of a cannoli. Is it dessert time yet??? :-)

Thu Nov 14 2002 21:32:29 Eastern US
LauraB (moderator) from 68.43.234.122
Ugh, no serter, no Billetdeaux. :-(

Thu Nov 14 2002 21:32:32 Eastern US
Tim (Dad of Sara, 7, dx'd at 5) from 63.196.57.244
Sara is very active and she uses the comforts. We made a deal early on that I only put the sets in while she sleeps.

Thu Nov 14 2002 21:32:34 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
Laura.. change of subject momentarily.. i had signed heather up for the youth thing.. she never got email confirmation on it

Thu Nov 14 2002 21:32:41 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Natalie, do many teens use the pump, then give up on it after a few yrs? Or, do most seem to stick with it?

Thu Nov 14 2002 21:32:47 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Hello..
Brenda, you can back the needle out of the vial, leaving just the tip in, as you drawn to the end of the insulin.

Thu Nov 14 2002 21:33:00 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
I can get nearly every drop out of a vial :-)

Thu Nov 14 2002 21:33:00 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
I think we get back to teens and what their needs at this age are..Freedom, trust and tolerance. We have to remember that being normal is important and some teens need to not pump because people will see it and will comment. We need to be honest with them and hear thier needs. D stinks as a teen...being a teen is hard enough

Thu Nov 14 2002 21:33:13 Eastern US
LauraB (moderator) from 68.43.234.122
Elizabeth, are you still with us? What kind of a pump are you going to get? And what made you decide to get a pump?

Thu Nov 14 2002 21:33:45 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Judith, that's what I was doing. It's just easier with the shorter needle.

Thu Nov 14 2002 21:34:08 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
A problem I see with teens and pumps is that it makes it easier to pretend you don't have diabetes.

Thu Nov 14 2002 21:34:28 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Most stick with it. Most need a lot of support in general and those that get it do well. Watch for sigh=ns that your teen needs an adult doc or a change in CDE/ MD teams...

Thu Nov 14 2002 21:35:28 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
On the other hand, Judith, I can see teens on MDI skipping shots so their peers don't see them. But, they can skip the bolus, too.

Thu Nov 14 2002 21:35:35 Eastern US
LauraB (moderator) from 68.43.234.122
One thing that has been challenging for Sam - he just reminded me - is that all of a sudden what worked last month no longer works this month. It used to be with Humalog that he got a peak in the first half hour, and that worked well for him. Took care of his meal with one bolus. Good control. Now it seems that it doesn't "peak" until the third hour, if at all. We definitely have to wait that entire 3 hours for all of the insulin to work, and that was NEVER the case before the last month or so.

Thu Nov 14 2002 21:36:05 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Judith,
I think all teens HAVE to pretend they don't have D. It is like all the other emotional exploring they have to do...Dress, hair, friends.

Thu Nov 14 2002 21:36:59 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Natalie, I think most of us don't have the ability to change endos. There are so few of them and far between.

Thu Nov 14 2002 21:37:07 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Laura, sounds like he may be having delayed absorption. Is he getting lumps or scars? Does he rotate well?

Thu Nov 14 2002 21:37:32 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Laura, could that have been related to the insulin delivery method of his previous pump?

Thu Nov 14 2002 21:38:08 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Laura-Is he growing

Thu Nov 14 2002 21:39:25 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump X 17 yrs) from 24.194.99.225
Hi everyone

Thu Nov 14 2002 21:39:52 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Judy, is Elissa pumping again?

Thu Nov 14 2002 21:40:49 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump X 17 yrs) from 24.194.99.225
Brenda - she injects days - pumps at night - also pumps during the day sometimes depending on what she's doing

Thu Nov 14 2002 21:41:20 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Hormones. They make our teens nuts before D. We need realize that part of the misery teens suffer is due to hormones. We become insulin resistant when growth hormones kick in and that will play into teen bs levels a lot.

Thu Nov 14 2002 21:41:24 Eastern US
Chris (Mom of Bob age 11) from 205.188.208.41
Hi everyone. I am new to the game. My son was diagnosed 3 months ago but we are jumping right on the pump as he is so terribly needle phobic adn we have been having alot of trouble, but this seems scary too

Thu Nov 14 2002 21:41:50 Eastern US
Tim (Dad of Sara, 7, dx'd at 5) from 63.196.57.244
Judy that sounds like a lot of work...why does she switch back and forth???

Thu Nov 14 2002 21:42:13 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Yeah, those hormones. May make the teens nuts, but we go nuts, too!

Thu Nov 14 2002 21:42:47 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
Hi Chris! Welcome. My daughter was just diagnosed in April, we are fairly new to all of this too.
It is scary...all of it!!

Thu Nov 14 2002 21:43:26 Eastern US
LauraB (moderator) from 68.43.234.122
We're using a lot of new sites. Legs, tush. None of the old spots. Those WERE having absorption problems (upper hip). We have some unopened Novolog and Sam asked if we could try that next week to see what happened. Last time he tried it, it was too smooth. He wanted the immediate peak to match the immediate high bg after eating. One thing he's done differently, though, since these highs started happening is bolusing 30 minutes before the meal. It's helping some.

Thu Nov 14 2002 21:43:30 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Chris-You can do his site changes until he is ready. You will need to be able to go to school to do it there if the need arises during the day. He will do it on his own eventually

Thu Nov 14 2002 21:44:07 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Laura
Is Sam growing?

Thu Nov 14 2002 21:44:07 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Chris, hope your son realizes that he'll not be avoiding needles by using a pump. They are involved with the site insertions, and regular syringes/needles may be needed at times for back up.

Thu Nov 14 2002 21:45:13 Eastern US
Chris (Mom of Bob age 11) from 205.188.208.41
I realize that there will still be needles involved, but is it a little more friendlier than what he is doing now?

Thu Nov 14 2002 21:45:20 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump X 17 yrs) from 24.194.99.225
Tim - I think after 17 years, she's experimenting. she tried lantus over the summer but it didn't work well for her - when she went back to the pump, that was the decision she made

Thu Nov 14 2002 21:45:23 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
I think pumps are great, but don't like to have anyone misled re: "no more shots"

Thu Nov 14 2002 21:45:37 Eastern US
LauraB (moderator) from 68.43.234.122
Natalie - 6 inches last year. He's taller than me now.

Thu Nov 14 2002 21:46:23 Eastern US
LauraB (moderator) from 68.43.234.122
Judith - We use a LOT of shots in conjunction with pumping. In fact, for most corrections over 300 (the really high ones where you feel terrible), Sam wants a shot because it works faster.

Thu Nov 14 2002 21:46:24 Eastern US
Tim (Dad of Sara, 7, dx'd at 5) from 63.196.57.244
Judith thats true but Sara likes pumping because she gets one shot every 2 days and while she is sleeping

Thu Nov 14 2002 21:47:14 Eastern US
Sara in Seattle (Sam, 19, D-Tron) from 216.160.65.17
Hi

Thu Nov 14 2002 21:47:42 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Laura-the hormones ar having a lot to do with it. He is insulin resistant now because of the growth...if it were only consistent. You may see a spurt here shortly.

Thu Nov 14 2002 21:48:25 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
When Dave has highs during the night, I'm giving injections. He won't let me touch his pump, and I'm never sure he's awake enough to do the right thing.

Thu Nov 14 2002 21:48:28 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
I think you use a lot of shots because of catheter ssues. Many of my pts take less than 5 a year.

Thu Nov 14 2002 21:48:57 Eastern US
Tim (Dad of Sara, 7, dx'd at 5) from 63.196.57.244
I was one of those people that thought no more shots. I even kept the 'final' shot to remember the old days of shots.... Well we have many final shots :)

Thu Nov 14 2002 21:49:34 Eastern US
LauraB (moderator) from 68.43.234.122
Are you SERIOUS? Less than 5 a year? We do about 5 (or more) a week!!!

Thu Nov 14 2002 21:49:38 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
I've heard people on pumps say they don't even have syringes or pens in the house any more. I think that's very dangerous.....

Thu Nov 14 2002 21:49:48 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
Heather hasn't had a shot in almost 4 months..

Thu Nov 14 2002 21:49:57 Eastern US
Sara in Seattle (Sam, 19, D-Tron) from 216.160.65.17
I don't think Sam has used a syringe since he started over a year ago.

Thu Nov 14 2002 21:50:22 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
I am all for treating a high with an injection. We need to realize pumping is not perfect. Just the best we have.

Thu Nov 14 2002 21:50:50 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Marissa uses a pen when high with ketones (rarely happens) or when she chooses to disconnect for swimming.

Thu Nov 14 2002 21:51:20 Eastern US
Sara in Seattle (Sam, 19, D-Tron) from 216.160.65.17
Can I assume that the highs you treat with an injection are due to a site going bad?

Thu Nov 14 2002 21:51:21 Eastern US
LauraB (moderator) from 68.43.234.122
Wow. Sam prefers shots during hockey, too (if he needs one for an adrenaline high in the middle of the game). He doesn't think the pump is comfortable to wear with his hockey equipment. Haven't found anywhere to appropriately and safely hook it.

Thu Nov 14 2002 21:51:42 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Pump protocol, of course, is to treat by injection if a high does not come down significantly after one bolus.

Thu Nov 14 2002 21:51:56 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
in fact we've got 5 humalog pens in the refrigerator because the Dr said we had to have them.. heather wont use them at all..

Thu Nov 14 2002 21:51:56 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Laura
We need to talk. Fax me bs tomorrow. he is only sort of pumping..

Thu Nov 14 2002 21:52:38 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Dave tends to take his pump off for things like theater and track....and just leave it off for 4 or 5 hrs! That's part of the "pretend I don't have diabetes"

Thu Nov 14 2002 21:52:57 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
I have a question about disconnecting...I am trying to figure this out... if you disconnect, for say, a half an hour.... do you need to do anything 'special' when you reconnect?? like priming again, or I thought I read something about pushing air bubbles out... so mmuch to learn!!

Thu Nov 14 2002 21:53:16 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Natalie, we were just discussing this on Sun. night. If Marissa's BG is 380 with no or trace ketones, I usually do a bolus (3 units for ex). I then recheck her in 90 min. If she's just as high or higher, I do a shot (1 or 2 units), check again in 90 min. Jeff says that I should be doing the shot every time she's over 300. I use the pump first to see if the darned thing is functioning properly. What is the best in this type of situation?

Thu Nov 14 2002 21:53:34 Eastern US
LauraB (moderator) from 68.43.234.122
Sara - Not necessarily. The point is, that sometimes we just don't know. So we treat the high first with the injection (because he doesn't mind) and then we try to figure out if it's a set issue. He gets a lot of bent cannulas.
Yes, Natalie, I agree. He is pumping and injecting. Injecting because there's no rhyme or reason to it on many days, and his body's response to the pump is too slow.

Thu Nov 14 2002 21:54:23 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Judith
We do the act like an adult and get priveledges like an adult reward system.

Thu Nov 14 2002 21:54:57 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
MaryBeth, it's a good idea to "prime" until a few drops come out the end before re-connecting.

Thu Nov 14 2002 21:55:17 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Judith
Does David drive?

Thu Nov 14 2002 21:55:23 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Still working on that here, Natalie...and he's my 6th teen!

Thu Nov 14 2002 21:55:28 Eastern US
LauraB (moderator) from 68.43.234.122
Judith - If it takes 3 hours, though, for a bolus to have an effect, that is way too long to let a high be sustained.

Thu Nov 14 2002 21:55:41 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
No....because that's an adult privilege he has not earned.

Thu Nov 14 2002 21:55:45 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump X 17 yrs) from 24.194.99.225
when Elissa disconnects, she leaves the pump tubing hanging over an edge.........that way, there's almost always a drop at the end

Thu Nov 14 2002 21:55:49 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
Do you 'suspend' the pump when you disconnect??

Thu Nov 14 2002 21:56:00 Eastern US
Sara in Seattle (Sam, 19, D-Tron) from 216.160.65.17
Laura, what kind of sets does he use. Sam doesn't like the short/straight into the skin ones. He uses the ones that go in at an angle.

Thu Nov 14 2002 21:56:05 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
I check again in an hour to see if the bg is coming down from the bolus. If not, then give an injection.

Thu Nov 14 2002 21:56:30 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
If ketones or mod or large, I skip the bolus step, give the correction immediately by syringe.

Thu Nov 14 2002 21:56:59 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump X 17 yrs) from 24.194.99.225
I believe pump protocol also is if the bg is high WITH ketones, skip the bolus and go straight to an injection

Thu Nov 14 2002 21:57:09 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Let the pump run. Do not suspend. We want to keep the insulin flowing to prevent crystalization

Thu Nov 14 2002 21:57:27 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Some teach never to put the pump into suspend, so there's no chance of forgetting to turn it back on.

Thu Nov 14 2002 21:57:41 Eastern US
LauraB (moderator) from 68.43.234.122
btw, with all these things I'm complaining about, Sam's bgs are quite good. A1c of 7, which we're happy with. We just have a strange way of getting there. And it's mystifying many days.

My Sam uses the quick-sets.

Thu Nov 14 2002 21:57:52 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
I don't know if this is the right forum or not but I have a quick question. Eric's pumping but has become very sensitive to insulin. Basals have decreased by 70% daily (1.0 units per hour to 0.3 units per hour) and 1 unit went from dropping his 30 points to dropping him 70 points. Anyone else have this situation?

Thu Nov 14 2002 21:58:04 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Ketones mean INJECTION. Do not mess around.

Thu Nov 14 2002 21:58:06 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
that is what I thought...I need to read the manual again. We watched the video as soon as the pump arrived!

Thu Nov 14 2002 21:58:19 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
We all agree on that :-)

Thu Nov 14 2002 21:59:00 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Charla Did he just have a growth spurt?

Thu Nov 14 2002 21:59:06 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
What does his endo say, Charla? :-)

Thu Nov 14 2002 22:00:12 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Judy, even trace ketones? That's what happened with Mariss on Sun. She was 397, bolused 2.1 and did a 20% basal increase for an hour. 30 min. after the bolus, she gave herself .5 via pen. Well, the bolus was at 9:15 and her BG was down to 97 at 12:30, a clear indication, to me, at least, that the pump was doing its job. Marissa's highest nighttime BG is midnight-2:30, so I had to treat her twice with glucose tablets!

Thu Nov 14 2002 22:01:25 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
He hasn't had any growth spurt and we've ruled out celiac, thyroid, liver and kidney diseases. Endo's talking about it being an antibody problem. He's on the CGMS right now.

Thu Nov 14 2002 22:01:43 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Is Eric exercising? That increases insulin sensitivity

Thu Nov 14 2002 22:02:35 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
No to exercising either. Just the normal everyday stuff. Wrestling and basketball haven't started yet.

Thu Nov 14 2002 22:02:46 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Is he using new sites, getting better absorption?

Thu Nov 14 2002 22:02:52 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Judith
Not by 2/3. Not for this long

Thu Nov 14 2002 22:03:03 Eastern US
Judy from NY (Elissa..college senior..diabetes X 20 yrs..pump X 17 yrs) from 24.194.99.225
Brenda - sounds like you did a combo that worked well for marissa

Thu Nov 14 2002 22:04:08 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
This all started at the end of May. At that time his basal was 1.0, July 0.8, August 0.5, now 0.3.
No change in sites, insulin, anything. Just his reactions hav changed. It's like a honeymoon all over again.

Thu Nov 14 2002 22:04:29 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Maybe it's just one of those mysteries of diabetes. Dave went through something like that at age 10. Insulin requirements went down, and he had sudden profound lows. Was tested for adrenal problems. All ok. Docs said they'd seen it before, had no explanation, but that it would go away in a few weeks, and it did (after a couple months)

Thu Nov 14 2002 22:05:02 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Does Eric still go to Sam?

Thu Nov 14 2002 22:05:14 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Charla
You need to do a few things:
Check BS very frequently until this has resolved.
record foods and exercise. If you need a sheet email me and I will send you a great one nataliebe@animascorp.com

Thu Nov 14 2002 22:05:34 Eastern US
LauraB (moderator) from 68.43.234.122
Natalie - I don't know if you turn into a pumpkin at 10:00, or if you'd like to continue chatting. This room will stay open for another 20 minutes or so. Please feel free to stay and chat. Natalie, if you need to sign off, that is fine.
Thank you, Everyone, for participating tonight! The transcript will be online shortly.

Thu Nov 14 2002 22:06:11 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
Eric's still seeing Sam. We've been there twice this week and have another appt. on Monday. We're all baffled. He wants to try Novolog and see if it helps. We start that tomorrow night.

Thu Nov 14 2002 22:06:47 Eastern US
Tim (Dad of Sara, 7, dx'd at 5) from 63.196.57.244
Novolog was a dream for Sara!

Thu Nov 14 2002 22:07:13 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
I can stay on for any additional questions.
Charla
Novolog has been great for a lot of my patients.

Thu Nov 14 2002 22:07:22 Eastern US
Rochelle (mom of Heather, 13 dxd 11/2/01 pumping Animas 8/1/02) from 67.98.105.44
night everyone.. thanks for the chat

Thu Nov 14 2002 22:08:33 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
Thanks Natalie! I'll take you up on the offer of the sheet. We're checking 8-10 times a day, logging everything, including exercise and food item by item. It's just so frustrating!

Thu Nov 14 2002 22:08:40 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6 1/2 yrs) from 64.12.96.107
Hi all...sorry to have missed this..scrolled back & just wanted to say that Melissa uses her pen for almost all bgs over 300...Her CDE is a pumper & asked her why since that way she can't tell is it's a pump problem....Her reply: because my goal is to bring it down ASAP & then deal with the pump later...CDE hadn't thought of it that way...

Thu Nov 14 2002 22:09:19 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
The CWD site shows that Novolog works the same as Humalog but many say it works much quicker. What is your experience?

Thu Nov 14 2002 22:09:55 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Sounds like Melissa has the right idea: treat the diabetes, THEN worry about the pump.

Thu Nov 14 2002 22:10:13 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6 1/2 yrs) from 64.12.96.107
Novolog works "smoother" for my daughter..also sites seem to be more consistent through the 3rd day instead of seeing that rise on day 3 that Humalog gave her

Thu Nov 14 2002 22:10:27 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
For most, I've heard that NovoLog has a slightly later onset, a bit longer duration ("tail")

Thu Nov 14 2002 22:10:54 Eastern US
MaryBeth-Oh (mom to Catie, 12-who just got her Animas pump yesterday! Saline start Nov.25) from 68.67.3.213
Thanks for the chat Natalie-and everyone! I am sure I will have loads more questions once we get started! Thanks again!!

Thu Nov 14 2002 22:11:10 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Novolog seems to work faster in a lot of people. It also is Stable at higher temperstures and I have pts tell me their sites last longer.

Thu Nov 14 2002 22:11:22 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6 1/2 yrs) from 64.12.96.107
her point too Judith was that IF it's a site that needs changing, etc...she can deal with that when she gets back to her room, but the IMMEDIATE concern is bringing down the bgs & shortening the duration of being high...

Thu Nov 14 2002 22:12:22 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
It will be interesting to see if folks who are getting better results now with NovoLog will start to have the same issues they had with Humalog after a few years on NovoLog. It may be that antibodies build up.

Thu Nov 14 2002 22:12:56 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
that 44 minute tail seems to stablize postprandial #'s and basals as well. I switched over a year ago and would never go back

Thu Nov 14 2002 22:13:48 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
Judith! You just hit the nail on the head. If it's an antibody problem and we switch him to Novolog what's to say that we won't find ourself in the same situation? I'm not trying to borrow trouble but it is a very serious concern that I have.

Thu Nov 14 2002 22:15:23 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Charla, the antibody problems usually result in less effective use of insulin. But even if his problem is antibodies to H, probably by the time he'd build up significant resistance to NovoLog, there'd be another new "designer" insulin available.

Thu Nov 14 2002 22:15:29 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
I just keep thinking if he's built up antibodies to Humalog and then he does that same with Novolog what do we do next!?

Thu Nov 14 2002 22:16:11 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
If that happens, you use the next new insulin....or can always go back to R.

Thu Nov 14 2002 22:16:19 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Well, I am much happier with Novolog. I am sure something different will come along in a few yrs and we will see how it goes.

Thu Nov 14 2002 22:16:20 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
The key word there is "probably". I hope it's just a pre-puberty thing.

Thu Nov 14 2002 22:16:40 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6 1/2 yrs) from 64.12.96.107
I agree with Judith...rather than antibodies, it alsmost seems as if he's producing endogenous insulin & not needing the same amount of exogenous insulin...which would make him of GREAT interest to the researchers after having D for 6 yrs.....

Thu Nov 14 2002 22:16:53 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
Does anyone pump R?

Thu Nov 14 2002 22:17:01 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
Most pts are not getting worse control over the years with Humalog due to antibody issues, they are using sites repaetedly and get more lax in their care. Also, Novolog is the only insulin approved by FDA for pumping. Do not worry. There are better insulins in the pipeline now...

Thu Nov 14 2002 22:17:40 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6 1/2 yrs) from 64.12.96.107
I just saw Novo Nordisk is coming out with a new 24 hr insuliin like Aventis's Lantus...so I'd agree there will be more "-logs" on the way too

Thu Nov 14 2002 22:17:49 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
Yes, some do still use Velosulin (the buffered R for pumps)

Thu Nov 14 2002 22:18:11 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
Charla, I am sure it has been a difficult few months for you, but I would think it's better than needing 150 units a day instead of the usual 50! I do hope you get some kind of answer soon.

Thu Nov 14 2002 22:18:12 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
His endo is very interested in seeing what the CGMS will reveal. Three days on Humalog and then three on Novolog. We get the results on Monday. Needless to say, I wish it was already Monday!

Thu Nov 14 2002 22:18:18 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
I would never go back to R. You will suffer horrible post prandial #'s and severe hypoglycemic events without VERY careful monitoring. It lasts up to 8 hours in the body

Thu Nov 14 2002 22:18:23 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
That new basal insulin from Novo is called detemir.

Thu Nov 14 2002 22:18:50 Eastern US
Judith (David, 16, dx'd at age 2 months) from 198.7.199.204
They also have at least one other new one in the works - an NPH-like insulin

Thu Nov 14 2002 22:18:55 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
The only log I want is cure-log! LOL

Thu Nov 14 2002 22:19:46 Eastern US
Tim (Dad of Sara, 7, dx'd at 5) from 63.196.57.244
Charla D will make you do crazy things even wish it was monday!

Thu Nov 14 2002 22:20:11 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
The benefit of the Novo basal insulin is that you can mix it with other insulins. Lantus you cannot mix and manty of my pts have to give it twice a day for total coverage. That is a lot of injections

Thu Nov 14 2002 22:20:26 Eastern US
Brenda H. (mom of Marissa, 15, dx'd 9/89) from 216.68.227.14
I think this room will be closing soon. Not sure how Jeff has it programmed. Guess everyone can switch to Parents, if you are interested.
Natalie, thanks for all your valuable information.

Thu Nov 14 2002 22:20:34 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
Thanks Brenda. Needless to say, it's harder on Eric but I'm proactive by nature so this is really going against my grain. No matter how much I've made a point to learn about diabetes I can't get a handle on this. Thank God Sam is helping us figure it out.

Thu Nov 14 2002 22:21:17 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
That's right Tim. I'm so crazy I'm willing to skip a weekend!

Thu Nov 14 2002 22:21:49 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
Thanks so much Natalie! I really appreciate your insight. I think I'll switch to the parents room now. Night all!

Thu Nov 14 2002 22:21:50 Eastern US
Renee (Melissa, 19, dx'd at 9, pump 6 1/2 yrs) from 64.12.96.107
good luck Charla..hope you get some answers! Night all....

Thu Nov 14 2002 22:22:22 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
charla
good luck amd keep asking questions
I want you all to know you are doing the best for your kids by just trying to keep informed. Talk to you soon

Thu Nov 14 2002 22:22:46 Eastern US
Charla (Mom of Eric, 11, dx'd at 5, MM508 ) from 216.37.35.27
Thanks all!

Thu Nov 14 2002 22:24:00 Eastern US
Natalie (Nurse, educator, person with diabetes) from 66.7.139.98
good night



                 
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Last Updated: Friday November 15, 2002 17:09:52
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