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  Back to Home Special Tight Control Chat
On Wednesday, April 16, 1997, Dr. Tessa Lebinger joined a special chat session entitled The struggle for tight control, where does it lead you?.


Links Related to Tight Control
Being Flexible, Being Human What are the tools for good control? Implications of the DCCT
Stop the Roller Coaster Tightest Control Ever DTeam Tight Control Questions


Wed Apr 16 1997 20:27:15 Eastern US
Cathy () from 203.2.193.69
Hi anyone here??

Wed Apr 16 1997 20:36:00 Eastern US
Debbie () from 169.132.100.167
Hello?

Wed Apr 16 1997 20:39:28 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
anyone here yet?

Wed Apr 16 1997 20:43:19 Eastern US
Debbie () from 169.132.100.167
Hi Ellen1

Wed Apr 16 1997 20:43:20 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
HI!! I can't believe I'm actually early!!! LOL!!

Wed Apr 16 1997 20:44:11 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Hi Debbie!! How are you?

Wed Apr 16 1997 20:45:34 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
Hi Debbie and Melissa.

Wed Apr 16 1997 20:45:45 Eastern US
Debbie () from 169.132.100.167
Hi Melissa! I'm ok.

Wed Apr 16 1997 20:45:49 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Hmmmmm..... I'm stalling so bad, I expect to get the boot any minute!!!

Wed Apr 16 1997 20:46:40 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
Are you both from Texas?

Wed Apr 16 1997 20:47:13 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Hi Ellen!! Just ok Debbie?? :-)

I just sent the kiddos out for one last 1/2 hour of play in the daylight!!

Uh oh!! one of the kitties got out!! BRB

Wed Apr 16 1997 20:47:33 Eastern US
Ken () from 207.76.64.124
Let the show begin! :-)

Wed Apr 16 1997 20:48:46 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
LOL I just got the kitties fixed and they really need to stay in the house for 3 days!!

Wed Apr 16 1997 20:49:14 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
Hi Ken. How's the pump?

Wed Apr 16 1997 20:50:12 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Hi Ken!! Still got a few minutes!! Ellen, I'm in Texas, about 1 and 1/2 hours SW of Dallas!

Wed Apr 16 1997 20:50:33 Eastern US
Debbie () from 169.132.100.167
I'm trying to get my kids in bed!

Wed Apr 16 1997 20:50:40 Eastern US
Ken () from 207.76.64.124
GREAT!!! Finally good control.

Wed Apr 16 1997 20:52:37 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
LOL!! Oh boy, can I relate Debbie!! ALWAYS a chore!! If mine are good I think I'll let them stay up late!! I have about 4 hours of Barney on tape and I'll let them watch that!! It kept them out of trouble all afternoon!! couldn't believe it!!

Wed Apr 16 1997 20:54:38 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
Admit it Melissa, you put the kids to sleep and then you watched 4 hours straight of Barney. :-)

Wed Apr 16 1997 20:55:18 Eastern US
Debbie S (dschaal@cityscope.net) from 206.222.183.99
Hello everyone.

Wed Apr 16 1997 20:55:29 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
**choke, cough, cough* Excuse me Ellen??? LOL hehehehehe

Wed Apr 16 1997 20:55:38 Eastern US
Ken () from 207.76.64.124
Cindy had her lunch stolen today at school.

Wed Apr 16 1997 20:56:26 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Hello Debbie S!

Wed Apr 16 1997 20:56:28 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
Ken, did it happen BEFORE she bolused?

Wed Apr 16 1997 20:57:46 Eastern US
Sue from Ma () from 152.163.231.145
Hello to everyone. I'm here for the forum.......

Wed Apr 16 1997 20:58:40 Eastern US
Paula from Mt () from 152.163.206.151
Hi all

Wed Apr 16 1997 20:58:43 Eastern US
Ken () from 207.76.64.124
Yes she always bolues at the table when she starts to eat.

Wed Apr 16 1997 20:58:52 Eastern US
Debbie () from 169.132.100.167
Hello Sue, I sent in the application for TJ to go to Joslin.

Wed Apr 16 1997 20:59:03 Eastern US
Debbie S (dschaal@cityscope.net) from 206.222.183.99
Hello Melissa and everyone else. How is everyone tonight? I am really excited about tonights forum. Tight control. Stephanie has not had tight control since she was dx'd in 95. They say it's because of her hormones. I don't know. How is everyone else's kiddos doing?

Wed Apr 16 1997 20:59:32 Eastern US
Charlene () from 205.238.244.51
Hi,everyone.

Wed Apr 16 1997 21:00:03 Eastern US
Sue from Ma () from 152.163.231.145
Hi Debbie-have you heard. I was listening one day and saw that you had sent it in. I didn't talk because I had no time and I knew if I started, I'd never stop....

Wed Apr 16 1997 21:00:24 Eastern US
LA DONNA (maarting@3lefties.com) from 206.101.24.159
Hi Melissa! I made it. How long does the forums usually last? I have two teenage kids that think they need to go to the mall for new shoes! It is 6:55 my time.

Wed Apr 16 1997 21:00:28 Eastern US
Ken () from 207.76.64.124
Cindy is doing very well now that she's on a pump.

Wed Apr 16 1997 21:00:37 Eastern US
Barb from Nova Scotia () from 142.177.12.96
Good evening everybody, looking forward to this.

Wed Apr 16 1997 21:01:18 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Hi, I'm here. I guess we have about 2 minutes to go! Tessa Lebinger

Wed Apr 16 1997 21:01:24 Eastern US
Sue from Ma () from 152.163.231.145
Hi Debbie s. My question is " what is tight control for a 12 year old. It's not going to be A1Cs under 7, i'll tell you that !!

Wed Apr 16 1997 21:01:25 Eastern US
Debbie () from 169.132.100.167
No Sue, I haven't heard a thing. How long does it usually take?

Wed Apr 16 1997 21:01:57 Eastern US
LA DONNA (marting@3lefties.com) from 206.101.24.159
oops!!! Typed in my email wrong. This is the right one

Wed Apr 16 1997 21:02:02 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
My 9-1/2 year old just tested his bg (1-1/2 hours after a huge vegetarian chinese dinner). It was 65. He actually measured his own cereal, fruit and milk and remembered to subtract 1/2 unit from his bolus. Hip, hip hooray. He's finally able to get his own snack. (This after only 8 years of diabetes. :-}

Wed Apr 16 1997 21:02:17 Eastern US
Sue from Ma () from 152.163.231.145
Hello Tessa Lebinger, Welcome.....

Wed Apr 16 1997 21:02:25 Eastern US
Debbie () from 169.132.100.167
Hello DR. Lebinger!!!TJ says Hi too!!!

Wed Apr 16 1997 21:02:25 Eastern US
Lori () from 207.0.254.70
Hi everyone!

Wed Apr 16 1997 21:03:12 Eastern US
Debbie S (dschaal@cityscope.net) from 206.222.183.99
Ken, How long hasd she been on the pump? We asked the doctor about Steph maybe getting on it but her doctor said not right now so we are still waiting.

Wed Apr 16 1997 21:03:17 Eastern US
Lyn () from 199.72.96.80
Hello folks :)

Wed Apr 16 1997 21:03:22 Eastern US
lisa () from 150.131.25.181
have we started yet?

Wed Apr 16 1997 21:03:48 Eastern US
Debbie () from 169.132.100.167
Hi Lyn!

Wed Apr 16 1997 21:03:58 Eastern US
Beth () from 206.253.34.236
Good evening.

Wed Apr 16 1997 21:04:00 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Hi everyone!! La Donna, the more people that show up, the longer they go!! I've never put a set time on these, just allowing everyone to discuss things as long as they like!! Normally they average about 2 hours! Then people start discussing other things and after about 3 hours, everyone is gone!!

Wed Apr 16 1997 21:04:05 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Good evening everyone. Please be patient. I haven't chatted much, but will try to be on top of the questions. I think the first question was what is tight control in a 12 year old. Answer to come. I'm going to send this so you know I'm here.

Wed Apr 16 1997 21:04:11 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
Hello Dr. Lebinger. Thank you for making yourself available to us. It is sooooo appreciated!

Wed Apr 16 1997 21:04:25 Eastern US
Sue from Ma () from 152.163.231.145
Debbie-I don't know how long Joslin is, Clara Barton was real fast. 1-2 wks

Wed Apr 16 1997 21:04:53 Eastern US
Ellen Klawans (rmeal@aol.com) from 152.163.233.65
Hi everyone. Melissa this is a great topic to discuss

Wed Apr 16 1997 21:04:55 Eastern US
Debbie S (dschaal@cityscope.net) from 206.222.183.99
Hello Dr. Lebinger.

Wed Apr 16 1997 21:05:42 Eastern US
LA DONNA (marting@3lefties.com) from 206.101.24.159
Debbie S my daughter was dx's ten months ago and her control is terrible. She runs between 200 and 400 every night at supper.

Wed Apr 16 1997 21:06:10 Eastern US
Debbie () from 169.132.100.167
Sue, then maybe I will hear shortly.

Wed Apr 16 1997 21:06:18 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Second try at answering what is tight control. I think i have the pause on. Tight control at any age is as close to normal blood sugars as possible. Unfortunately in 1997, we still don't have the means for perfect control no matter how hard you try. I think the "best control" is as close to normal as possible without severe lows. That is very different for each kid.

Wed Apr 16 1997 21:06:32 Eastern US
Sue from Ma () from 152.163.231.145
LA DONNA-how old is your daughter?

Wed Apr 16 1997 21:06:50 Eastern US
Maureen (mo@connect.ab.ca) from 206.75.40.10
Hello everyone.

Wed Apr 16 1997 21:07:01 Eastern US
Karen from Ohio (jkla@ncweb.com) from 206.84.2.239
Good evening, everyone.

Wed Apr 16 1997 21:07:06 Eastern US
laura from fl () from 207.146.220.238 Hi Everyone :-)

Wed Apr 16 1997 21:07:07 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Hi Dr. Lebinger!! I'd like to introduce everyone to Dr. Lebinger, our special guest!! Thank you Dr. Lebinger for coming tonight!! I really appreciate that you could do this tonight!! I think there will be ALOT of people here tonight!! :-)

Wed Apr 16 1997 21:07:46 Eastern US
Debbie S (dschaal@cityscope.net) from 206.222.183.99
LaDonna...Stephanie's does too. Well..in the 200's alot. Her lunches are high and her evening one is high. Her insulin has been adjusted and adjusted and adjusted but they are still high. Although I can say they have come down from what they were ...around 400.

Wed Apr 16 1997 21:08:04 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Thanks for inviting me!

Wed Apr 16 1997 21:08:05 Eastern US
Barb from Nova Scotia () from 142.177.12.96
Dr Lebinger, My daughter fluctuates quite often, high to low, but it is a very rare occurrence to see keytones when she is high. Is that common? Her last A1C was 8.7, the best yet, she is almost 9.

Wed Apr 16 1997 21:08:32 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
Do you think the lows cause permanent damage over time?

Wed Apr 16 1997 21:08:52 Eastern US
Maureen () from 153.35.3.213
Hello Dr. Lebinger! Is the topic for this evening's forum mostly geareed toward children?

Wed Apr 16 1997 21:09:31 Eastern US
LA DONNA (marting@3lefties.com) from 206.101.24.159
Sue from Ma my daughter is 16 will be 17 this year

Wed Apr 16 1997 21:10:11 Eastern US
Beth () from 206.253.34.236
Dr. Lebinger - our team so stressed sugars not over 140 two hrs after a meal that we ran into the problem of my 14 yr old daughter giving herself extra shots in the fear of going too high and caused many lows. What exactly is too high 2 hrs after a meal?

Wed Apr 16 1997 21:10:46 Eastern US
Sue from Ma () from 152.163.231.145
LA DONNA- very tough age for her to get this. tooo many other things going on in her life.....

Wed Apr 16 1997 21:11:56 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Sorry, I'm having trouble with the pauses.

As regards ketones: Some kids produce ketones very quickly with a high blood sugar, others rarely do. Ketones make control harder. Ketones are made more quickly when the child is sick or on too little insulin. Rebound hyperglycemia after a low can cause ketones. Sometimes kids will wake up with ketones after a low during the night that they slept through and the blood sugar is normal or only a little high.

Wed Apr 16 1997 21:12:06 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Barb, Kristina rarely has ketones either and she fluctuates like that alot too!

Wed Apr 16 1997 21:13:02 Eastern US
Ellen from IL. (rmeal@aol.com) from 152.163.231.145
My 4 year old is under what we consider tight control. She has her highs & lows. When does it become dangereous.

Wed Apr 16 1997 21:13:11 Eastern US
Charlene () from 205.238.244.51
My son's last A1C was 5.9. I know this is a good number, but is it too good? He does have alot of lows. What is a safe A1C for an 8 year old?

Wed Apr 16 1997 21:14:01 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Regarding lows and the brain and blood glucose after meals:

There is a lot of debate whether severe lows especially in young kids may cause learning disabilities or changes in EEG (brain wave test). It is VERY HARD to sort this out scientifically. Most kids who have had severe lows have also had ketoacidosis which can cause brain damage. I do feel personally, that severe lows should be avoided as much as possible.

Wed Apr 16 1997 21:14:06 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Dr. Lebinger, click on the pause and then take out the number that is in the autoreload box!! Then you should be able to type as long as you want and click on send whenever you want!

Wed Apr 16 1997 21:14:27 Eastern US
Barb from Nova Scotia () from 142.177.12.96
Thanks Dr. Lebinger & Melissa

Wed Apr 16 1997 21:14:28 Eastern US
Debbie S (dschaal@cityscope.net) from 206.222.183.99
Barb, Same here also. Stephanie hardly ever has ketones but it still worries me so that each time she gets high then low I get her to check ketones all day long. Just to be sure.

Wed Apr 16 1997 21:14:49 Eastern US
Beth () from 206.253.34.236
Charlene - my 14 year old's A1C was 5.5 three months ago. Our endo thought it was great. This was before she had a period of lows.

Wed Apr 16 1997 21:14:50 Eastern US
Debbie () from 169.132.100.167
Dr. Lebinger, take the number out or Autoreload, then just be sure to click the Update button to view messages. Then you don't have to worry about the Pause.

Wed Apr 16 1997 21:15:29 Eastern US
Maureen (mo@connect.ab.ca) from 206.75.40.10
What would be considered an average number of lows in a month. Nicole has never seized, or been so low she couldn't treat herself and averages about 3 or 4 lows a month. Her HbA1c's have averaged 7.5 to 8.5%

Wed Apr 16 1997 21:17:09 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Malissa I took your suggestion:

Regarding lows after meals: in kids without diabetes, blood sugar is usually less than 140 after meals. As you have found, if you try to give enough insulin to make the blood sugar normal 2 hours after you eat, the blood sugar is often low 4 hours after eating, especially with regular. With Humalog, you may get better blood sugars 2 hours after eating, but higher ones 4 hours after eating. Sometimes mixing the 2 helps. Only trial and error will help you find the best dose that minimizes lows and highs.

Wed Apr 16 1997 21:19:16 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Maureen, I don't think there is anything such as an average number of lows. 4-5 mild lows a month without rebounding high sounds pretty good to me! Keep up the good work.

Wed Apr 16 1997 21:19:34 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
What would be too high of an A1c?? Kristina has been steadily in the 9's for 2 years! Is this too high for a 5 and 6 year old?

Wed Apr 16 1997 21:20:21 Eastern US
laura from fl () from 207.146.220.238
Is a severe low a reading below 35 or are specific symptoms involved to be considered severe?

Wed Apr 16 1997 21:20:44 Eastern US
LA DONNA (marting@3lefties.com) from 206.101.24.159
Dr. Lebinger my daughter runs 200 to 400 every night at supper and has not had ketones since dx. She will only check her bg at breakfast and supper so her endo. doesn't want to make insulin changes. Is she damaging her body? Her fingers are terribly dry and soar is the reason she only checks twice daily. She is due for her 3rd hemoglobin may 15 last one was 7.5

Wed Apr 16 1997 21:21:02 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Just a comment - you really can't compare HegA1C's from 1 lab to another. Non diabetic ranges may vary from one lab to another, and how fast the value increases with highs may vary from labs. You can only compare changes in HgbA1c done in the same lab using the same method (labs frequently change methods)

Wed Apr 16 1997 21:21:05 Eastern US
Charlene () from 205.238.244.51
My son tends to go low shortly after eating his morning snack in school (2-3x a week). We use Humalog and NPH in the AM. I can't understand why the snack seems to trigger a low. I'd appreciate any ideas.

Wed Apr 16 1997 21:21:31 Eastern US
Karen from Ohio (jkla@ncweb.com) from 206.84.2.239
Does a diabetic child always rebound after a low? Is there any way to avoid that? Sometimes it sets us up on that rollercoaster effect and its difficult to get blood sugars stablized.

Wed Apr 16 1997 21:24:06 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
If your daughter is running 200 to 400 before supper every night, you probably want to try and change the insulin. I try to explain to kids that you have to check at different times of the day because different insulins are working at diffent times. Which insulin needs to be changed will depend on whether she is only high at supper or whether she is also high at lunch and or bed. If your daughter will only test twice a day, she may be willing to test twice a day at different times so occassionally you get a reading at lunch and bedtime. If she won't test at lunch in school, she may be willing to test 4 times a day on a weekend day, but you have to try and make that weekend day schedule as similar to a school day as possible.

Wed Apr 16 1997 21:24:33 Eastern US
Charlene () from 205.238.244.51
Why can't labs standardize things so A1Cs could be compared?

Wed Apr 16 1997 21:26:11 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Charlene - I doubt the snack is triggering the low. The balance between the insulin and the food is off. Possibilities to discuss with your MD include: Humalog working too quickly - maybe you need less or part humalog and part regular. Another possibility is that the NPH is already working before lunch and you may need to lower that. Best to work with your MD

Wed Apr 16 1997 21:26:34 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
I've heard that the higher numbers don't hurt the small children and only begin to harm their bodies when they become teenagers! Is this true?

Wed Apr 16 1997 21:26:49 Eastern US
Charlene () from 205.238.244.51
LADONNA-A friend of mine tried a product called "Fingers" for her son and it helped relieve the soreness. Vitamin E cream helped my son.

Wed Apr 16 1997 21:28:10 Eastern US
Beth () from 206.253.34.236
What's your opinion on blood sugars during exercise or sports? Start higher and let it go down or try to keep it as level as possible all the way through. Sometimes Sara drops too quickly while running.

Wed Apr 16 1997 21:28:49 Eastern US
LA DONNA (marting@3lefties.com) from 206.101.24.159
Has anyone heard of a blood glucose monitor that checks without a stick. I heard there was one but very expensive.

Wed Apr 16 1997 21:29:31 Eastern US
Charlene () from 205.238.244.51
Melissa- I heard the same thing.

Wed Apr 16 1997 21:29:31 Eastern US
Ann () from 207.34.41.23
Good evening. If I may slip in a question....any comments on the "watch" that will tell one's blood glucose level?

Wed Apr 16 1997 21:29:39 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Karen rebound high blood sugar after a low can be VERY frustrating (and difficult to study scientifically). Some kids tend to rebound faster than others. Some kids rebound if their blood sugar drops quickly, say from 400 to 150, even though it didn't actually go low. It is my impression, that trying to avoid rapid drops in blood sugar decreases rebound slightly. There was just an article in Diabetes Care this month that claimed in Sweden they had fewer lows and better HgbA1C's when they didn't use a sliding scale and try to change to insulin for individual high blood sugars. (they didn't prove this is why they had better control, but they suggest this may be one reason)

Wed Apr 16 1997 21:29:47 Eastern US
Debbie () from 169.132.100.167
I use a lotion called Melalucca. It has Austrailian tea tree oil in it and it seems to help TJ's fingers.

Wed Apr 16 1997 21:31:11 Eastern US
Beth () from 206.253.34.236
Try doing a search under Cygnus. They had info on the watch.

Wed Apr 16 1997 21:32:37 Eastern US
Paula from Mt () from 152.163.206.151
Good question Ann

Wed Apr 16 1997 21:32:49 Eastern US
Ellen from IL (rmeal@aol.com) from 152.163.237.147
Charlene: What types of food does your son have for morning snack at school

Wed Apr 16 1997 21:33:14 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
re sports:

Ideally, you keep the blood sugar as level as possible all the way through. If the blood sugar is too high at the start, the child may have to go to the bathroom and be uncomfortable. On the other hand, if you don't start off a little high, you may go low quickly. Depending on the length of the exercise and the intensity, you may want to experiment with either few snacks that work slowly and last long like mixtures of carb, prot, and fat or the new uncooked cornstarch products like nite bite or Z-bar. Another approach is the opposite, frequent small amounts of concentrated, fast acting carbs, say every 110 to 30 minutes as needed.

Wed Apr 16 1997 21:34:13 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
There are now several lancet devices on the market that allow you to adjust the depth of penetration of the lancet. You can also get samples of different kinds of lancets. For kids with sore fingers, try some different products.

Wed Apr 16 1997 21:34:38 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Ann, I was reading somewhere about the watch!! Wish I'd bookmarked it now!! It's not certain it really does what it says it does!! There seems to be a court battle going on over it... one company claiming the other faked the test results or something like that!!

Wed Apr 16 1997 21:35:34 Eastern US
Maureen (mo@connect.ab.ca) from 206.75.40.10
Any Canadians on tonight? Can we buy Z-bar and nite bite?

Wed Apr 16 1997 21:36:02 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
regarding highs before and after puberty.

For years, it is been felt that poor control before puberty doesn't affect the risk of complications very much. It is extremely rare to see complications occurring before 5 years after the onset of puberty regardless of age of onset of diab. Recently there have been some reports that this is not entirely correct, that control before puberty does affect risk of complications. The answers aren't really out yet and are still being studied.

Wed Apr 16 1997 21:36:15 Eastern US
Charlene () from 205.238.244.51
Ellen from Il- Michael has 1 1/2 starches at 10 AM. He usually has crackers of some kind.

Wed Apr 16 1997 21:36:17 Eastern US
Ellen from IL (rmeal@aol.com) from 152.163.237.147
Debbie, where do you get Melalucca lotion

Wed Apr 16 1997 21:36:39 Eastern US
lisa () from 150.131.25.181
try the lancet device called: soft clix by mannheim boehringer...it works like a charm!

Wed Apr 16 1997 21:37:03 Eastern US
Barb from Nova Scotia () from 142.177.12.96
Hi Maureen, I haven't seen Zbar or nite-bite yet, but I haven't really looked.

Wed Apr 16 1997 21:37:08 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
CWD has info about the glucowatch. I think it's in the research section.

Wed Apr 16 1997 21:37:57 Eastern US
Judith () from 206.112.27.166
Dr. Lebinger - Any comments on what seems to be intermittent insulin sensitivity? My 11 year old son, dx'd at age 2 months, had been relatively stable at 0.6u/kg most of his life, until fall, '95 when he began having sudden, profound drops - from 300's to 20's - with as little as 1u R for supper. Insulin was eventually decreased to circa 0.3u/kg for several months, then requirements started climbing again, reaching 1.2u/kg until a week or so ago. He again started having sudden drops (only to the 40's) and I've had to reduce insulin about 30%. Increased activity is only part of the answer.

Wed Apr 16 1997 21:38:14 Eastern US
Brenda Hitchcock (brenda@castleweb.com) from 206.112.197.131
Maureen--check under the site's Specialty Foods section for the Z-bars and Nite Bites.

Wed Apr 16 1997 21:38:42 Eastern US
Karen from Ohio (jkla@ncweb.com) from 206.84.2.239
What is CWD?

Wed Apr 16 1997 21:38:54 Eastern US
Ann () from 207.34.41.23
Beth- I have the Cygnus page on another browser. Where abouts would I find it?

Melissa-if you ever find the page again, please let me know. Thanks.

Wed Apr 16 1997 21:38:56 Eastern US
Debbie () from 169.132.100.167
Ellen from Il...I got it through a friend of mine in Hawaii. I believe it's kind of like Avon. You have to fond someone who sells it. If you like I can ask my friend for more info.

Wed Apr 16 1997 21:38:58 Eastern US
Charlene () from 205.238.244.51
There was an article about the watch in the Diabetes Interview. I can't remember the month. They are at www.diabetesworld.com

Wed Apr 16 1997 21:39:02 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Dr. Lebinger, I read somewhere today that onset of complications usually start after about 5 years after dx! Is that more common in adults than children? Kristina was diagnosed at 6 months old!! Should I be looking for complications now, especially considering she's had A1c's in the 9's for so long?

Wed Apr 16 1997 21:39:11 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
regarding hgbA1C's: I also wish we could get the diabetes community to agree on one method. This is why I do personally do not find HgBAiC's as useful as frequent home blood glucose monitoring. Every time I find a lab and method I like, they decide to change it.

Wed Apr 16 1997 21:39:41 Eastern US
Ellen from IL (rmeal@aol.com) from 152.163.237.147
Charlene, seems like he may be getting too much H or that it is too potent for him. We have found that H is very potent for our 4 year old.

Wed Apr 16 1997 21:40:35 Eastern US
Sue from Ma () from 152.163.231.145
Dr. Lebinger- I have a daughter reaching 12 and puberty. I hear it's hard and there have been 2-3 occassions of high sugars (300's) for no reason and that I can't get down. It lasts for about 1-2 wks then sugars go back to a normal range. Even when I increase insulin, it doesn't help. What can I expect in the next few years with regards to puberty, growth hormones etc. and sugars. Moods are another topic too.

Wed Apr 16 1997 21:40:38 Eastern US
Brenda Hitchcock () from 206.112.197.131
CWD is children with Diabetes.

Also, Z-Bars are made in Canada. Scroll to the bottom of your screen and click onFood and Diet, then Spec. Foods.

Wed Apr 16 1997 21:41:16 Eastern US
Paula from Mt () from 152.163.206.151
Melissa. I think they were having trouble with the Dream Beam not the watch. Please correct me if wrong.

Wed Apr 16 1997 21:41:18 Eastern US
Maureen (mo@connect.ab.ca) from 206.75.40.10
Brenda, thanks. I've been looking for this...

Wed Apr 16 1997 21:43:15 Eastern US
Charlene () from 205.238.244.51
Ellen- If you can't find a Melaluca dealer, the ad for Fingers says that it is made with tea tree oil. In case your interested, they have a toll free 1-800-461-7448. I never called it, but sometimes you can get free samples??

Wed Apr 16 1997 21:43:32 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Ok Ann!! I'll look for that again!!

Wed Apr 16 1997 21:44:16 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Hi everyone. Am I at the right place?

Wed Apr 16 1997 21:44:16 Eastern US
Ellen from IL (rmeal@aol.com) from 152.163.231.145
Debbie- I would appreciate it, if it's not too much trouble. You could e-mail me with the info whenever, no rush

Wed Apr 16 1997 21:44:50 Eastern US
Barb from Nova Scotia () from 142.177.12.96
There is a product avail in Canada now, called a Hypolarm. It works on the theory of excess perspiration caused by lows and is worn at night. there is a pad which is good for approx 6 months that is worn next to the skin. I believe it runs on batteries. If there is excess perspiration, the alarm sounds. Would this type of product work on children? My daughter has never had a severe low, but with any she has had, there has been no sign of a lot of sweating, is this more a symptom in adults? Is it avail in the States, and if so, does anyone have any info on it. The sales rep for the medical company does not know too much about it yet.

Wed Apr 16 1997 21:44:56 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
Dr. Lebinger: After a child is diagnosed with IDDM, how often do you ask the child to collect a 24 hour urine specimen?

Wed Apr 16 1997 21:45:19 Eastern US
Beth () from 206.253.34.236
Ann - can't find it. I had some info that they sent me but I can't locate that right now either. Had a system crash last night so am rather disorganized. Sorry.

Wed Apr 16 1997 21:45:30 Eastern US
() from 204.178.220.33
sorry, i just got disconnected after a long answer. will try again

Wed Apr 16 1997 21:45:34 Eastern US
Debbie () from 169.132.100.167
No problem Ellen from IL. I'll let you know asap!

Wed Apr 16 1997 21:45:41 Eastern US
lisa () from 150.131.25.181
i'm a 25 yr old diabetic (only for 1yr now) and i work at a retirement home, where Alice (one of our residents) who also is a diabetic for 40yrs-she tells me that when her blood sugars are high to give her protein and this will bring her right down. Is a coincidence that it works or is there really an association with protein and high blood sugars?

Wed Apr 16 1997 21:46:08 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Just logged in again after being disconnected. Try again

Wed Apr 16 1997 21:46:21 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
It may be Paula!! I don't remember too well cause I was looking for something else at the time and just ran across it! 2 of the major companies that make diabetes supplies were in court over SOMETHING like that!!

Wed Apr 16 1997 21:46:36 Eastern US
Ellen from IL (rmeal@aol.com) from 152.163.231.145
Charlene- thanks for the phone number I will try & call it tomorrow.

Wed Apr 16 1997 21:46:37 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
Barb: Do you have a web site for that HypoAlarm?

Wed Apr 16 1997 21:47:38 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
lisa, I've heard that also from a friend... Is it true?

Wed Apr 16 1997 21:47:42 Eastern US
Beth () from 206.253.34.236
My daughter's sugars are in pretty good control however she always seems to have a trace of protein in her urine when we go for 3 month cks. Why is this and is it a sign of trouble??

Wed Apr 16 1997 21:47:50 Eastern US
Brenda Hitchcock () from 206.112.197.131
Dr. L--most os us are concerned about our children 15 or so yrs down the road. For any adults who may be around--of course, good control is impt for them as well, but what is the timeframe for poss. complications, 2 yrs., 15 yrs, 25 yrs? Is this known?

Wed Apr 16 1997 21:48:04 Eastern US
Sue from Ma () from 152.163.231.145
lisa-very interesting question huummmmm

Wed Apr 16 1997 21:48:12 Eastern US
Ann () from 207.34.41.23
Beth-no problem. :)

Wed Apr 16 1997 21:48:57 Eastern US
Barb from Nova Scotia () from 142.177.12.96
Ellen, yes, you can browse through - www.autocontrol.com There is some information there.

Wed Apr 16 1997 21:49:23 Eastern US
Charlene () from 205.238.244.51
I would really like more info on the Hypoalarm. My son does not recognize lows during the night. We've had episodes of paralysis in the morning. We do a 2am and 6am test every night to avoid the bad lows.Haven't had any in 8 months or so.Thank you for the lead.

Wed Apr 16 1997 21:49:41 Eastern US
Sue from Ma () from 152.163.231.145
that's ok Dr. Lebinger...we will wait for you....

Wed Apr 16 1997 21:49:50 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
YEP!! This is it Jeff!! Welcome!!

Dr. Lebinger, our lab only needs to do a small finger stick on Kristina now and they use a new machine that will give an answer in 7 minutes (I think)!! Kristina is always glad they don't have to poke her arm anymore and draw out a vial of blood!! Is that fast machine pretty reliable?? (wish I knew the name of it... sorry!)

Wed Apr 16 1997 21:49:57 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
Thanks Barb. I'll check it out now. Is there an equivalent of the FDA in Canada? Has this device been approved there?

Wed Apr 16 1997 21:50:18 Eastern US
Brenda Hitchcock () from 206.112.197.131
Barb and everyone--Jeff says there was a product liked Hypoalarm, but it didn't really work. He merely reminded me of how much our daughter, Marissa, perspires at night, regardless of her blood sugar.

Wed Apr 16 1997 21:50:40 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
My daughter just recently began to have lows at about 10PM. She recognizes it right away, but I wonder if it happened later. Will she wake up?

Wed Apr 16 1997 21:52:17 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
I've been diabetic for 22 years - diagnosed at age 5 - recently I was also diagnosed with carpal tunnel syndrome - all the Doctors I spoke to advised me that my diabetes was a major contibutor to it. I'm also showing some signs of nerve damage in my legs - how much damage can I expect to receive in my lifetime and aside from tight control/exercise - what else can I do, if anything?

Wed Apr 16 1997 21:52:38 Eastern US
Anne () from 207.115.231.58 I agree with Brenda. Being in Florida my kids perspire every night I know it wouldn't work for my Shannon who is four. When I hear people check Blood sugar at night at 2 and 6 I wonder if I am doing enough and am getting "tight control" when I am only checking 3 times a day. Any thoughts?

Wed Apr 16 1997 21:53:27 Eastern US
Barb from Nova Scotia () from 142.177.12.96
Ellen, yes it would have to be approved in Canada. usually we find that things are approved much faster in the States, then we have to wait a while for them to be available here. That is why I thought there might be some people who may have heard of it there. It is a NEW product here, but may have been in use other places for awhile

Wed Apr 16 1997 21:53:48 Eastern US
Maureen (kmorgan35@msn.com) from 153.35.3.213
Brenda, that makes alot of sense. I wonder if the glucowatch works on the same premise ie., persperation.

Wed Apr 16 1997 21:54:23 Eastern US
Maureen (mo@connect.ab.ca) from 206.75.40.10
Ann, I'm no expert, but we only get up to test Nicole's blood sugars in the middle of the night if she has been running low, or after a really busy day.

Wed Apr 16 1997 21:54:30 Eastern US
Debbie () from 169.132.100.167
Anne, we only check 3-4 times a day. If the bedtime number is low, I will get up to do a 3am check.

Wed Apr 16 1997 21:54:41 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Check out this page for non-invasive meters ~ http://www.childrenwithdiabetes.com/d_06_e00.htm Paula, you're right!! It is the Dream Beam they're in court over!!

Wed Apr 16 1997 21:55:02 Eastern US
Sue from Ma () from 152.163.231.145
Did we lose Dr. L again?????

Wed Apr 16 1997 21:55:15 Eastern US
Beth () from 206.253.34.236
Maureen - it was my understanding that the gluco-watch was an infra-red principle of some sort, not perspiration.

Wed Apr 16 1997 21:55:24 Eastern US
Ellen from IL (rmeal@aol.com) from 152.163.231.145
Dr. Lebinger- With my 4 yr olds A1C's in the mid-6's. We get our share of highs & lows. When do we begin to worry that our control is too tight

Wed Apr 16 1997 21:55:29 Eastern US
lisa () from 150.131.25.181
did we lose Dr. Lebinger?....

Wed Apr 16 1997 21:55:42 Eastern US
Anne () from 207.115.231.58
We check two hours after bedtime snack and if she is over 100 then we do nothing. If under we wake her up and give her a snack. We have only been at this for 4 months...

Wed Apr 16 1997 21:55:50 Eastern US
Maureen (mo@connect.ab.ca) from 206.75.40.10
Ann, I'm no expert, but we only get up to test Nicole's blood sugars in the middle of the night if she has been running low, or after a really busy day.

Wed Apr 16 1997 21:56:42 Eastern US
Brenda Hitchcock () from 206.112.197.131
Anne, the number of times you test your child depend on a variety of factors. We test Marissa quite often, but she will say or do something to us for us to decide. Like today, she hadn't need any tests at school, but wanted to bicycle to her friend's house. As I always do, I insisted she test before leaving. She was 62, so she had 2 glucose tablets and some dry cereal. Clearly, this was still not enough as she was 52 before dinner. We test during the night because we have seen her sugars swing both ways, high and low and this is the best plan we have devised.

Wed Apr 16 1997 21:56:59 Eastern US
Charlene () from 205.238.244.51
Anne- We only check Michael at 2 and 6 am because of the problems he has had during the night. Even we feel it is excessive! Checking 3x per day may be great for your daughter!

Wed Apr 16 1997 21:56:59 Eastern US
Paula from Mt () from 152.163.206.151
Thankyou Melissa, I thought maybe I got that wrong:-)

Wed Apr 16 1997 21:57:26 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Kristina perspires alot at night too!! She always has slept hot at night!!

Wed Apr 16 1997 21:57:30 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
There used to be a watch type alarm that worked similarly. I'm going to look into this hypolarm some more but it looks BIG and with my son already on the pump, how much can one kid have hooked up to him and feel like a normal kid?

Wed Apr 16 1997 21:58:01 Eastern US
Maureen (mo@connect.ab.ca) from 206.75.40.10
Beth, I think your comment was aimed at the other Maureen, but I think we are talking about two different things here. The hypoalarm is something worn at bed time for lows, and the glucowatch is to read blood sugar levels.

Wed Apr 16 1997 21:58:27 Eastern US
Sue from Ma () from 152.163.231.145
Hey guys.....we have lost the Dr.

Wed Apr 16 1997 21:58:31 Eastern US
Judith () from 206.112.27.166
Glucowatch does not depend on perspiration. It sends a very small electrical current through the skin and then measures glucose level.

Wed Apr 16 1997 21:59:04 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
How many pump users are here? My daughter is interested, and she has asked if it hurts, how long it stays on, and basically what you need to do . Our clinic is just beginning to start recommending it.. Thanks

Wed Apr 16 1997 21:59:18 Eastern US
Brenda Hitchcock () from 206.112.197.131
Anne, we were also told, some time ago, not to let her go to bed with a BS less than 150. We've loosened that a bit to under 120 or so (trial and error!) Also, Anne, testing during the night gives us peace of mind!

Wed Apr 16 1997 21:59:24 Eastern US
Tom (Westland, Mi) () from 199.183.194.108
Hi Melissa. Sorry I'm late.

Wed Apr 16 1997 21:59:30 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Hello Doc?

Wed Apr 16 1997 21:59:34 Eastern US
Maureen (mo@connect.ab.ca) from 206.75.40.10
Beth, I think your comment was aimed at the other Maureen, but I think we are talking about two different things here. The hypoalarm is something worn at bed time for lows, and the glucowatch is to read blood sugar levels.

Wed Apr 16 1997 21:59:46 Eastern US
Anne () from 207.115.231.58
Wow Brenda 52 seems so low to me. What is tight control? Shannon runs from 70 to 300.

Wed Apr 16 1997 21:59:49 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
How accurate is the Glucowatch compared to a meter?

Wed Apr 16 1997 22:00:04 Eastern US
Maureen (mo@connect.ab.ca) from 206.75.40.10
sorry I'm being repetitive...

Wed Apr 16 1997 22:00:08 Eastern US
Judith () from 206.112.27.166
Glucowatch is designed to measure bg every 30 minutes, record it for later downloading, and also has high/low alarms. It will GREAT if it works and is accurate.

Wed Apr 16 1997 22:01:05 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Anne. I'm happy when Heather is under 240! If she approaches 70 she feels shaky.

Wed Apr 16 1997 22:01:06 Eastern US
Paula from Mt () from 152.163.206.151
Has anyone heard if the watch is being tested yet?

Wed Apr 16 1997 22:01:24 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Everyone be sure to check out the links I found for you!! "Stop the Roller Coaster" is a really good book that my father inlaw let me borrow! He ordered it right from that site and found it easy to do! It's a great book!! "Tightest Control Ever" is a great site at Diabetes.com and it has LOTS of links to articles about tight control!! It's a great site!!! "Implications of the DCCT" was the best and most detailed article about the DCCT that I could find! There were many others but this one had the most details!!

Wed Apr 16 1997 22:01:37 Eastern US
Judith () from 206.112.27.166
Candace, accuracy of the watch vs. meters is now being studied in trials.

Wed Apr 16 1997 22:01:38 Eastern US
lisa () from 150.131.25.181
jeff...i just started the pump today (tell your daughter i'ld love to chat with her any time (no it doesn't hurt, but i have to admit i was nervous putting the needle in at first- but then you pull it out and all that's left is this little soft canula type thing.) im in love with the pump already and gosh if it's only been on for 3 hours!!!

email: lisaswed@selway.umt.edu

Wed Apr 16 1997 22:01:39 Eastern US
Maureen (mo@connect.ab.ca) from 206.75.40.10
sorry I'm being repetitive...

Wed Apr 16 1997 22:01:39 Eastern US
Sue from Ma () from 152.163.231.145
I have not tested Laurens blood in the middle of the night for years, maybe 4yrs. What ever you are comfortable with and how the child is doing? !

Wed Apr 16 1997 22:01:48 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
This isn't working..

Wed Apr 16 1997 22:01:50 Eastern US
Barb from Nova Scotia () from 142.177.12.96
Good night everyone, it is almost 11pm here and I am getting tired. Thanks to all the information I have received over the past year on CWD and Melissa's page, I now have the autoject for my daughter and am using Humalog for highs. Like I said, we are sometimes slower off the mark here in Nova Scotia with new products, and I was glad to have the information to bring to my diabetic team so I could get better control and have easier injections. They were surprised at the information I had. Hats off to the internet!

Thanks again for everything!

Barb

Wed Apr 16 1997 22:01:55 Eastern US
Ellen (CamelsRFun@aol.com) from 129.37.193.94
My son's 9-1/2 and has been on the pump almost 2 years now. It's been the best 1.75 years since diagnosis 8 years ago. He actually keeps the infusion set in almost a week now, but at first it was changed approx. every other or every three days. We use EMLA topical numbing cream for inserting the site in a virtual painless manner. Our ped endo has over 50 kids on the pump so I know I'm in good hands.

Wed Apr 16 1997 22:01:57 Eastern US
Cindy Tice (WZZK10B@PRODIGY.COM) from 198.83.19.106
Is tight control of a 16 year old boy even possible?

Wed Apr 16 1997 22:01:58 Eastern US
Brenda Hitchcock () from 206.112.197.131
52 was pretty low, but Marissa was at her friend's house and I have no clue if she was playing Barbies or tag. We also test more frequently during periods of exercise, esp. out in the snow and cold or at the pool.

Wed Apr 16 1997 22:02:09 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
Can you download at anytime with the Glucowatch - I'm on MDI and test my blood anywhere from 4-6 times a day (depending on how I'm feeling etc.) - I wonder if this would benefit me?

Wed Apr 16 1997 22:02:10 Eastern US
Cindy Tice (WZZK10B@PRODIGY.COM) from 198.83.19.106
Is tight control of a 16 year old boy even possible?

Wed Apr 16 1997 22:02:13 Eastern US
Beth () from 206.253.34.236
I understood they were to start testing the watch this year.

Wed Apr 16 1997 22:02:27 Eastern US
Cindy Tice (WZZK10B@PRODIGY.COM) from 198.83.19.106
Is tight control of a 16 year old boy even possible?

Wed Apr 16 1997 22:02:35 Eastern US
Anne () from 207.115.231.58
Are they going to leave the links up here for a few days? Or how can I get to them again?

Wed Apr 16 1997 22:02:56 Eastern US
Cindy Tice (WZZK10B@PRODIGY.COM) from 198.83.19.106
Is tight control of a 16 year old boy even possible?

Wed Apr 16 1997 22:03:01 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Help, Jeff, Marissa, I keep getting disconnected, Proxy problems. Any suggestions?

Wed Apr 16 1997 22:03:11 Eastern US
Cindy Tice (WZZK10B@PRODIGY.COM) from 198.83.19.106
Is tight control of a 16 year old boy even possible?

Wed Apr 16 1997 22:03:32 Eastern US
Cindy Tice (WZZK10B@PRODIGY.COM) from 198.83.19.106
sorry I was repeating myself

Wed Apr 16 1997 22:03:39 Eastern US
Maureen (mo@connect.ab.ca) from 206.75.40.10
Thanks for your help everyone. I'm off to treat a low now...believe it or not! The weather has warmed up here considerably and the kids were out playing. Goodnight everyone and thank Dr. Lebinger if she makes it back!

Wed Apr 16 1997 22:03:46 Eastern US
Carole () from 207.61.147.167
Hi Everybody!

Wed Apr 16 1997 22:03:58 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
lisa,... would you mind sending me an email aimed at Heather? Maybe you could summarize what you had to do to get it and what you do daily. She is 12 and is asking questions about it...

Wed Apr 16 1997 22:04:05 Eastern US
Cindy Tice (WZZK10B@PRODIGY.COM) from 198.83.19.106
Is tight control of a 16 year old boy even possible?

Wed Apr 16 1997 22:04:07 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.131
Tessa: If your proxy is kicking you out, there is nothing I can do from here.

Wed Apr 16 1997 22:04:15 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
I'm going to try for 4th time to answer Judith about "intermittent insulin insensitivity"

what you describe is very difficult. Blood sugars is some kids seem to change without relation to food, exercise, insulin.

To be continued

Wed Apr 16 1997 22:04:25 Eastern US
Cindy Tice (WZZK10B@PRODIGY.COM) from 198.83.19.106
sorry I was repeating myself

Wed Apr 16 1997 22:04:27 Eastern US
Cindy Tice (WZZK10B@PRODIGY.COM) from 198.83.19.106
Is tight control of a 16 year old boy even possible?

Wed Apr 16 1997 22:04:42 Eastern US
Cindy Tice (WZZK10B@PRODIGY.COM) from 198.83.19.106
sorry I was repeating myself

Wed Apr 16 1997 22:05:07 Eastern US
Cindy Tice (WZZK10B@PRODIGY.COM) from 198.83.19.106
Is tight control of a 16 year old boy even possible?

Wed Apr 16 1997 22:05:13 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
HI TOM!!! It's so good to see you!! Thanks for coming!!! :-)

Wed Apr 16 1997 22:05:19 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Tessa.. Do you have call waiting? Are you using Netscape or IE?

Wed Apr 16 1997 22:05:30 Eastern US
() from 207.2.197.131
Hello from Arkansas!

Wed Apr 16 1997 22:05:36 Eastern US
Judy from NY () from 206.83.77.42
Jeff - my sixteen-yr-old daughter has been on the pump since age 3

Wed Apr 16 1997 22:05:50 Eastern US
Cindy Tice (WZZK10B@PRODIGY.COM) from 198.83.19.106
Is tight control of a 16 year old boy even possible?

Wed Apr 16 1997 22:05:58 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Judith Part 2

Possible reasons, not proven:

1. insulin is not absorbed right away from injection site, but stays there for hours or days and then is absorbed eratically later on.

2. After insulin is absorbed, it is bound to protein in blood and inactive. Days later, it may be released and work when you don't expect it.

3. Rebound hyperglycemia following low blood sugar.

4. Other hormones changing day to day.

To be continued.

Wed Apr 16 1997 22:06:01 Eastern US
Anne () from 207.115.231.58
I at this point don't feel like I have control over this disease. It has been a tough four months since diagnosis. I feel it is controlling a lot of what we do.

Wed Apr 16 1997 22:06:18 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Say that again Cindy!

Wed Apr 16 1997 22:06:41 Eastern US
Tom (Westland, Mi) () from 199.183.194.108
My Pleasure Melissa. Very interresting and informative as usual!!

Wed Apr 16 1997 22:07:02 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Judith part 3.

In these kids their blood sugar seems not only related to what they do that day, but also related to insulin dose the day before or days before. Sometimes trying not to change insulin to frequently but play around with food helps a little. Very difficult and frustrating for child, parents, and MD

Wed Apr 16 1997 22:07:44 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Judy... How did you manage that? Does she like it?

Wed Apr 16 1997 22:07:49 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Jeff, No call waiting. I'm using Netscape 3.0

Wed Apr 16 1997 22:08:31 Eastern US
Jan Carlin (jcarlin@bigfoot.com) from 192.86.155.88
Hi

This is Jan Carlin from Melbourne, Australia checking in. I've been here once before and have a 4 year old son who was diagnosed a year ago.

Our doctor here has said that tight control is off course very desirable but not critical until after 10 years of age. Is there consensus about this today?

Wed Apr 16 1997 22:09:27 Eastern US
MOTHER OF 6! () from 152.163.237.61
THE OLDEST OF MY CHILDREN IS A DIABETIC. SHE HAS BEEN FOR 6 YEARS. SHE HAD HER FIRST SEIZURE TWO WEEKS AGO. SHE HAS RECOVERED MUCH BETTER THAN WE HAVE.

Wed Apr 16 1997 22:10:18 Eastern US
Sue from Ma () from 152.163.231.145
Anne-it is not easy. Hang in there. It will become part of your life . 4mths is not a long time.

Welcome back Dr.

Wed Apr 16 1997 22:10:23 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Sorry to here that mom! I am deathly afraid of Heather getting to that point!!

Wed Apr 16 1997 22:10:31 Eastern US
Judy from NY () from 206.83.77.42
jeff - naturally, when she was little, i had total control. we have gradually switched to making it her responsibility. she likes the flexibility of the pump very much

Wed Apr 16 1997 22:10:33 Eastern US
Maureen (kmorgan35@msn.com) from 153.35.3.213
Candace

What is MDI?

Wed Apr 16 1997 22:10:46 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Regarding tight control in 16 year old - There are kids who can obtain near normal or even normal blood sugar. Although without a doubt these kids and their families work hard at it, they do not necessarily work harder than those with poorer control. I am always amazed as a physician how some kids are easier to control than others. I personally think we need to do more research to understand why some kids are harder to control even though they try very hard. I think we all want great control. sometimes, however, the more you try for normal blood sugar, the more problems you get.

Wed Apr 16 1997 22:10:47 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Cindy, you only need to click the send bar once and then just wait for it to come up! Then scroll down to read it all!

Wed Apr 16 1997 22:11:43 Eastern US
Sue from Ma () from 152.163.231.145
Hi Jan.

Hi Carole.

Wed Apr 16 1997 22:11:45 Eastern US
MOTHER OF 6! () from 152.163.237.61
HAS ANYONE ELSE EXPERIENCED SEIZURES DUE TO LOW SUGARS?

Wed Apr 16 1997 22:11:45 Eastern US
Maureen (kmorgan35@msn.com) from 153.35.3.213
Candace - I feel so stupid, it just sounded like some other kind of insulin the way you wrote it. It must be getting late!!!

Wed Apr 16 1997 22:11:56 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
This isn't working to well for me.. If ANYONE can email me ANY information about their personal experience with the pump, PLEASE DO! You can address it to Heather. I am going to check out some of these links. Thanks again.. !

Wed Apr 16 1997 22:12:03 Eastern US
Charlene () from 205.238.244.51
Anne- 4 months is such a short time! You will get into a pattern and it will be easier.

Wed Apr 16 1997 22:12:14 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
MDI is multiple dose injections

Wed Apr 16 1997 22:13:07 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
mom... No but Heather has caught herself at about 10PM feeling so shaky she can barely test herself. So far thats as close as we have gotten, but I am worried..

Wed Apr 16 1997 22:13:13 Eastern US
Anne () from 207.115.231.58
No siezures for us. Must have been scary. Its everyones nightmare!

Wed Apr 16 1997 22:13:38 Eastern US
Judy from NY () from 206.83.77.42
Mom of 6 - my daughter experienced seizures when she was in fifth grade. None since then. I suspect it was the onset of puberty in her case.

Wed Apr 16 1997 22:13:58 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
These started after we switched from 2 shots to 3 . In the PM she takes her R at supper and her NPH at bedtime.

Wed Apr 16 1997 22:14:02 Eastern US
Joyce Riske (jriske@eerc.und.nodak.edu) from 207.146.192.125
Hello from the flooding Red River in North Dakota. My son is 8 and has had diabetes for 4 years. Today his numbers ranged from 64 to 114, but we don't know what we did right!

Wed Apr 16 1997 22:14:06 Eastern US
Sue from Ma () from 152.163.231.145
Mother of 6-i have not yet. We have had it for 5 years and she is 12 now. I hope we never have a seisure and i'm sorry you experienced it.

Wed Apr 16 1997 22:14:25 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
I find stress sends my control for a real swing - no matter what I do, stress management courses, relaxation techniques - I can't get away from it - if I know my day is going to be stressful, I can usually compensate with adjustments in insulin and diet, but sometimes it's not possible - I feel like I'm at the end of my rope as one week my control is amazing and the next I'm riding the roller coaster. Any suggestions?

Wed Apr 16 1997 22:14:40 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Mother of 6: It is not uncommon after several years with diabetes to have the first seizure. I think kids and parents sometimes start to think it just won't happen to them. Also, as kids get older, their routines sometimes get more complicated. It would be important to try and go back and figure out what precipitated the seizure so you can try and prevent it in the future. Kids usually do recover faster than parents.

Wed Apr 16 1997 22:15:10 Eastern US
Anne () from 207.115.231.58
Congratulations Joyce. I feel guilty and beat my self up emotionally when Shannons readings are high.

Wed Apr 16 1997 22:15:25 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
One thing I am learning from this...

Nobody really knows what the heck is going on, or how to really keep

tight control. Your either too high or too low, but its a guess!

Wed Apr 16 1997 22:16:02 Eastern US
MOTHER OF 6! () from 152.163.237.61
MY MOTHER IN LAW DOESN'T UNDERSTAND ENOUGH TO KNOW THAT IT WASN'T NEGLECT ON OUR PART.

Wed Apr 16 1997 22:16:16 Eastern US
Sue from Ma () from 152.163.231.145
Joyce-are you staying above the water?

Wed Apr 16 1997 22:16:56 Eastern US
Paula from Mt () from 152.163.206.151
Mother of 6, Yes our son passed out when he was 4 I was trying to keep him to tight. Must admit we were keeping him in good control but at what expence?

Wed Apr 16 1997 22:17:23 Eastern US
Anne () from 207.115.231.58
I agree Jeff. ?Thats why it hard for me to use control in the same sentence with Diabetes...

Wed Apr 16 1997 22:17:27 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Wow mother of 6. What do you mean? Is she blaming you? Thats awfull!

Joyce... Staying dry?!

Wed Apr 16 1997 22:17:40 Eastern US
() from 150.131.25.181
Dr.L- I've been practicing tight control since i was diagnosed 16mo ago...how often do you see people "burn out" from tight control?....

Wed Apr 16 1997 22:17:55 Eastern US
Charlene () from 205.238.244.51
Mother of 6- My son had a few seizures from lows during the night (paralysis also). It is something that is so hard to forget. The kids go on and we worry. I wish I could help you feel better. It eventually gets stored in the back of your mind.

Wed Apr 16 1997 22:18:44 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Thank you Tom!! I appreciate it!!

Dr. Lebinger, what would you say "perfect control" is??

Wed Apr 16 1997 22:18:53 Eastern US
Paula from Mt () from 152.163.206.151
Jeff you are right !!!

Wed Apr 16 1997 22:19:17 Eastern US
Sue from Ma () from 152.163.231.145
Mother of 6-she needs to be educated. Don't let her get you down. 6 kids alone is enough for one mom but then to have diabetes. We are with you...

Wed Apr 16 1997 22:19:32 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Anne. This is really frustrating. Its a no win situation. I have brother in law who was diagnosed at 16 and is now 50 something. He says he purposely puts himself high on days when he will be driving alot, etc. He doesnt care about tight control and says its too risky. He is beginning to have problems with his feet, but thats all I know.

Wed Apr 16 1997 22:20:01 Eastern US
Lori () from 207.0.254.70
The Dr. just changed Jarrod from Humalog and Nph to Ultralente, lente, and Humalog in the morning and Humalog at dinner. He has been no higher than 79 all day even after eating a bag of skittles. I think it might be a long night.

Wed Apr 16 1997 22:20:17 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
Maureen - sorry for the confusion (just saw ur post) - I take one shot of R before each meal - testing first and adjusting accordingly - I take a final shot of NPH at bedtime followed with my snack - 1 starch and 1 protein - I find the protein gets me through the night without lows.

Wed Apr 16 1997 22:20:32 Eastern US
Charlene () from 205.238.244.51
Mother of 6- IT WAS NOT NEGLECT!!! Family members can be the toughest critics. Only those of us who actually live with this can fully understand how complicated it is.

Wed Apr 16 1997 22:20:46 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
mother of 6 should be mom of the year!

Wed Apr 16 1997 22:21:18 Eastern US
Timmy () from 169.132.96.23
Hi Everyone! Hi Dr.!

Jeff..I would tend to agree with your statement..However my opinion is that the guesses are getting better all the time........Goodnight..

Wed Apr 16 1997 22:21:24 Eastern US
Joyce Riske (jriske@eerc.und.nodak.edu) from 207.146.192.125
We survived 65 hours without power, and now the river is rising. :) It's 20 ft above flood level and hasn't crested. So far, we're dry.

Wed Apr 16 1997 22:21:47 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Hang in there Lori!

Wed Apr 16 1997 22:22:55 Eastern US
MOTHER OF 6! () from 152.163.231.155
SARA USED TO BE ON A SUGER FREE DIET, COUNTING CALORIES. HER SUGARS WERE ALMOST ALWAYS STABLE, BUT SINCE WE STARTED COUNTING CARBOHYDRATES AND USING LOW FAT, LOW SUGAR FOODS SHE IS HARDER TO CONTROL.

Wed Apr 16 1997 22:24:00 Eastern US
Beth () from 206.253.34.236
Thank you Melissa for having this and thank you Dr. Lebinger for answering the questions. Good night all.

Wed Apr 16 1997 22:24:26 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Thats interesting mother of 6. We've known nothing but carb counting...Who is in charge of this area? Melissa? Are the links above going to remain for a few days so I can get at them later?

Wed Apr 16 1997 22:24:28 Eastern US
Sue from Ma () from 152.163.231.145
mother of 6-is she happier? Feel like a normal kid? Did she feel normal on the sugar free diet?

Wed Apr 16 1997 22:25:09 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Jeff, I think children are so different that it mainly depends on the kid!! Whatever works best for you might not be best for someone else!! Blood sugars are too unpredictable from child to child!!

Wed Apr 16 1997 22:25:15 Eastern US
Debbie () from 169.132.96.23
Goodnight Beth!

Wed Apr 16 1997 22:25:40 Eastern US
Sue from Ma () from 152.163.231.145
The Dr. must be getting frustrated with her link.....hope she doesn't mind if we keep chatting while we wait for her.?

Wed Apr 16 1997 22:26:02 Eastern US
DeAnn () from 206.26.226.39 Hi Everyone, I am Sam's Mom. He is 9 and has had diabetes for four years. He is also on R and N in the morning and Humalog and Ultralente in the p.m. Pretty good control so far.

Wed Apr 16 1997 22:26:02 Eastern US
laura from fl () from 207.146.220.238
Good night Beth!

Have a good night at work Timmy :-)

Wed Apr 16 1997 22:26:24 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
Melissa - even from adult to adult - so many things affect so many diabetics differently.

Wed Apr 16 1997 22:26:25 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Someone sign up the doc with a different ISP!

Wed Apr 16 1997 22:26:30 Eastern US
Jan Carlin (jcarlin@bigfoot.com) from 192.86.155.88
As I understand it there are over 40 factors determining the blood sugar levels. If if it was possible to keep track of them all it would take all day.

Wed Apr 16 1997 22:26:32 Eastern US
Debbie () from 169.132.96.23
She won't mind. I hope she can get back.

Wed Apr 16 1997 22:27:11 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Hi Timmy!! Figured you'd be gone by now!! Is Debbie still there??

Wed Apr 16 1997 22:27:13 Eastern US
Anne () from 207.115.231.58
Just did Shannon bg check and she is 108!!! Should make for a good night.

Wed Apr 16 1997 22:27:37 Eastern US
Susan KW (rwlms@ipa.net) from 207.2.197.131
While we're waiting for the doctor to get back to us, would someone explain what brittle diabetic means? We're new to this lifestyle.

Wed Apr 16 1997 22:27:57 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Alright Anne!

Wed Apr 16 1997 22:28:15 Eastern US
Sue from Ma () from 152.163.231.145
Jan-40 factors...???? I knew there were alot but.........wonder how we get thru the days with that many strikes to work with.

Wed Apr 16 1997 22:28:26 Eastern US
Debbie () from 169.132.96.23
I'm here! He had to get his "two cents" in!!! LOL

Wed Apr 16 1997 22:28:34 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Night Beth!! Did you get my email yesterday??? :-)

Wed Apr 16 1997 22:28:59 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Ive heard that term also Susan....

Anybody??

Wed Apr 16 1997 22:29:13 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
LOL Debbie!! Should have known!!! hehehe

Wed Apr 16 1997 22:29:55 Eastern US
Debbie () from 169.132.96.23
I believe that "brittle diabetic" is just a term for someone who is harder to control. It doesn't mean a more severe form of Type 1 diabetes.

Wed Apr 16 1997 22:30:11 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.131
Susan KW: From the Diabetes Dictionary (link at bottom):

Brittle Diabetes

A term used when a person's blood glucose (sugar) level often swings quickly from high to low and from low to high. Also called labile and unstable diabetes.

Wed Apr 16 1997 22:30:22 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Jeff, I keep getting an error message when I send my reply.

"requested item could not be loaded by the proxy. Document contains no data"

Wed Apr 16 1997 22:30:28 Eastern US
Sue from Ma () from 152.163.231.145
Susan KW- How new to the lifestyle? I have no experience with brittle. Sorry

Wed Apr 16 1997 22:30:28 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Heather still refuses to talk to anyone about her diabetes. She won't do these chat rooms, or the camps. We recently went to a group day at the clinic and she hated it.

Wed Apr 16 1997 22:30:59 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
Can someone help me with the conversion of millimols to what the U.S. range is?

Wed Apr 16 1997 22:31:00 Eastern US
Susan KW (rwlms@ipa.net) from 207.2.197.131
Thanks, Debbie. I imagined all sorts of definitions: a diabetic who breaks easily?!

Wed Apr 16 1997 22:31:47 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.131
Candace: 18 mg/dl = 1 mmol/l. Thus 100 mg/dl is 5.5 mmol/l.

Wed Apr 16 1997 22:32:31 Eastern US
Debbie () from 169.132.96.23
My son TJ probably fits that description. But he also has asthma to complicate things.

Wed Apr 16 1997 22:32:50 Eastern US
Susan KW (rwlms@ipa.net) from 207.2.197.131
Sue, New to the lifestyle as in a diagnosis on 2/27/97, for my 9 year old son, Matt.

Wed Apr 16 1997 22:33:03 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
Thanks Jeff - I was inundated with numbers :o)

Wed Apr 16 1997 22:33:41 Eastern US
Jan Carlin (jcarlin@bigfoot.com) from 192.86.155.88
I read about the 40 factors in a book by a Swedish physician. Sweden has the third largest frequency of juvenile diabetes after Sicily and Finland. I can believe it. Sometimes you think that this day very similar to yesterday but this day his sugars were very different.

Wed Apr 16 1997 22:33:48 Eastern US
Sue from Ma () from 152.163.231.145
Dr. Lebinger. I am sorry you had trouble tonight. It was great having you when we did.

I have to go now, it's getting late.

Thanks again......

Wed Apr 16 1997 22:33:54 Eastern US
DeAnn () from 206.26.226.39
Jeff, How old is Heather? Has she had diabetes long? How about camps?

Wed Apr 16 1997 22:34:08 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Jeff, is Heather interested in emailing other people??

Wed Apr 16 1997 22:34:24 Eastern US
Maureen (kmorgan35@msn.com) from 153.35.3.213
Jeff

How long has Heather been a diabetic?

Wed Apr 16 1997 22:34:43 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Tessa.. have you been completely disconnected (had to redial)?

Wed Apr 16 1997 22:35:28 Eastern US
Charlene () from 205.238.244.51
Susan KW- This really is a "lifestyle", isn't it?? My son was dx at 3 so this is the only lifestyle that he knows. I think that makes it easier for him to accept, eventhough he hates it!!

Wed Apr 16 1997 22:35:38 Eastern US
DeAnn () from 206.26.226.39
Susan KW, My son Sam just turned nine. Maybe they could e-mail once in a while.

Wed Apr 16 1997 22:35:47 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Jeff, once I get that error message, the only thing I can do is disconnect myself and redial

Wed Apr 16 1997 22:36:02 Eastern US
MOTHER OF 6! () from 152.163.237.157
I WANT TO SEND OUT A WARNING TO ALL PARENTS. WE FOUND OUT THE HARD WAY THAT 911 WILL NOT ADVISE YOU TO USE YOUR GLUCOGON KIT, BECAUSE IT IS A RX. BUT THEY CAN ADVISE YOU TO NOT USE IT AND TO WAIT FOR THE AMBULANCE. SHE TOLD US TO GIVE HER ORANGE JUICE WHILE SHE WAS UNCONCIOUS. WHEN HER EYES STARTED TO ROLL BACK INTO HER HEAD, WE COATED HER MOUTH WITH SUGAR. WHEN THE PARAMETICS CAME, THEY GAVE HER THE GLUCOGON. WE KNEW WHAT TO DO,BUT THE 911 TOLD US NOT TO DO IT.

Wed Apr 16 1997 22:36:09 Eastern US
Sue from Ma () from 152.163.231.145
Susan KW-you are verrrrryyyyyy new...are you Susan Williams with Matt and Annie?????? Hello, it's me Sue...

Wed Apr 16 1997 22:37:11 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Heather is 12 and was dxd last August. She's not really interested in any of that. Its like she doesn't want to talk with other diabetics. Its weird..

Wed Apr 16 1997 22:37:22 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.131
Tessa: I wish there was something I could do on my end. We'll talk off-line about getting you a real Internet connection.

Wed Apr 16 1997 22:37:26 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
Charlene - You're right - I was diagnosed at 5 and am 27 now - I know no other lifestyle. I always wonder how I would adjust when they find the cure.

Wed Apr 16 1997 22:37:39 Eastern US
Debbie () from 169.132.96.23
Jeff, everyone handles things differently. When my aunt was diagnosed with ovarian cancer she refused to go to a support group or even to talk about it with the family. It was fustrating for everyone else but that was the way she wanted it. Maybe Heather will be more open to sharing with others later on. I wouldn't worry about it too much.

Wed Apr 16 1997 22:38:29 Eastern US
Joyce Riske (jriske@eerc.und.nodak.edu) from 207.146.192.125
We're sorry for your family and son Matt. Diabetes is such a horrid awakening. All we can do is maintain our sanity and try our best. It's a struggle and a challenge, but certainly worth the effort.

Wed Apr 16 1997 22:38:53 Eastern US
Sue from Ma () from 152.163.231.145
Jeff-girls of 12 are more interested in painting their mails, reading teen magazines, flirting with boys and not dealing with diabetes.

Wed Apr 16 1997 22:39:04 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
mother of 6... I will NEVER wait for 911... If Heather is not able to take anything orally, or if I cant communicate with her... shes getting the damn shot!!! I'll take the risk!

Wed Apr 16 1997 22:39:16 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Mother of 6 - I would strongly advise you to contact the supervisor of emergency services in your town. As you seem to know, it can be VERY DANGEROUS TO GIVE SOMEONE JUICE WHO IS UNCONSCIOUS OR HAVING A SEIZURE! You are correct, they should have talked you through giving the glucagon injection while you were waiting for the ambulance

Wed Apr 16 1997 22:39:46 Eastern US
DeAnn () from 206.26.226.39
Jeff, I have a daughter Katie who is eleven that has not been diagonosed. Just a good understanding big sister to her little brother. Our e-mail is dmg@cyberhighway.net if she ever feel like sending a message. Just about normal stuff.

Wed Apr 16 1997 22:40:43 Eastern US
Sue from Ma () from 152.163.231.145
Welcome back Dr.

Wed Apr 16 1997 22:40:47 Eastern US
Debbie () from 169.132.96.23
Dr. Lebinger, next time you do one of these, do you want to come over and use my computer?....LOL

Wed Apr 16 1997 22:40:58 Eastern US
Maureen (kmorgan35@msn.com) from 153.35.3.213
Jeff, she's probably very scared and in a bit of denial, which is o'kay. A stage she will get through. Keep putting out the feelers and letting her know you're there for her, but don't push her to much to get with the program or she's liable to push you and the subject if diabetes away even further.

Wed Apr 16 1997 22:41:22 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Sue.. yeah, thats Heather! I think she wants to be normal..

tessa... you've got a configuration problem. What kind of computer?

I would have a chat with your ISP!

Wed Apr 16 1997 22:42:32 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Wow Mother of 6!!! And all this time, I've been telling babysitters if anything ever happened, to dial 911 and they would help her give the glucagon!!!!!! I can't believe 911 wouldn't give those instructions!!! I'll make sure my babysitter knows alittle more about glucagon from now on!!!

Wed Apr 16 1997 22:42:36 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Thanks Deanne!

Wed Apr 16 1997 22:43:22 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
You'd think that tessa was on AOL or something...!

Wed Apr 16 1997 22:43:42 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
Jeff - when I was Heather's age, I almost never spoke to anyone about my diabetes - my friends ostricized me constantly - if I didn't speak about my condition, I wasn't bothered - do other kids tease Heather? - just a thought.

Wed Apr 16 1997 22:44:08 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Jeff,(father of Heather), I agree with Debbie, everyone handles things differently. Some kids really don't want to be with other kids with diabetes, and don't want to talk about it. Some kids who don't have diabetes just don't want to go to camp. I think the real issue is whether or not the diabetes is interfering with her daily life. It is important to let her know, even is she doesn't want to talk about the diabetes now, she can any time she wants. I try to get patients in my office to complain about what is the hardest thing for them about diabetes. I ask if diabetes is getting in the way with school, friends, family. Sometimes kids will hardly say a word for years, but if I can get them to continue to come in, not be judgemental, at some point they usually start talking.

Wed Apr 16 1997 22:44:22 Eastern US
Susan KW (rwlms@ipa.net) from 207.2.197.131
I just got back after doing Matt's bedtime test an making him a snack. Thanks for all the kind words.

Wed Apr 16 1997 22:44:42 Eastern US
Ellen from IL (rmeal@aol.com) from 152.163.233.65
Mother of 6- what state do you live in?

Wed Apr 16 1997 22:44:45 Eastern US
Sue from Ma () from 152.163.231.145
No jeff-I am on AOL and I am having better luck than she is tonight. LOL

Wed Apr 16 1997 22:45:06 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
I'm so sorry you're having computer problems Dr. Lebinger!!

Wed Apr 16 1997 22:45:07 Eastern US
DeAnn () from 206.26.226.39
Goodnight all, time for me to remind my son for finger poke and snack. Just got the response. 119. Definately a count I will live with. Take care.

Wed Apr 16 1997 22:45:22 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
I'm gonna go to bed.. Thanks alot everyone.!

Melissa, Jeff Thanks..

Dr. Lebinger. Wish it could be longer.... (get a knew provider) just kidding..

Night all! If anyone wants to email Heather at my address above, I cant promise she'll return it, but who knows. Especially if it involves info on the pump. Please do! Night!

Wed Apr 16 1997 22:46:40 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Don't laugh, Debbie, I may take you up on your offer if you invite me to do this again.

Jeff, father of Heather, I have an everex and use physician on line. They were upgrading again this week, and I spent several hours on the phone trying to straighten things out. They promised me I'd have no problems tonight.

Wed Apr 16 1997 22:46:52 Eastern US
Charlene () from 205.238.244.51
It's strange, but when we had the early morning problems, I called Michael's doctor instead of 911. I'm glad I did! The first time I used the glucagon, I was so scared that I pulled the plunger right our of the syringe. Those episodes are the pits.

Wed Apr 16 1997 22:46:57 Eastern US
stasia (bachrach@mindspring.com) from 207.69.176.117
both of our kids have been really low before but we wouldn't wait for 911 either. When our son, Bart, was diagnosed we had appointments with a nurse educator who gave instructions how to give glucagon and told us never to go anywhere without it. So far we haven't had to use it but wouldn't hesitate to if necessary. They've been so low the machine just said "lo" and no numbers

Wed Apr 16 1997 22:47:38 Eastern US
sue (sheeshb@aol.com) from 204.213.250.181
Candance & jeff...Becca is 13 now, was dx at 4...and she is "proud" to be "different" and certainly informs everyone of her medical condition...espcially those that need to know...ie teachers, instructors, etc. Her friends are very supportive.

Wed Apr 16 1997 22:47:45 Eastern US
Debbie () from 169.132.96.23
Anytime Dr. Lebinger! TJ would love it!!!!!

Wed Apr 16 1997 22:47:54 Eastern US
Maureen (kmorgan35@msn.com) from 153.35.3.213
Jeff - if you're still here, is the pump something you've looked into enough to know whether you want her to have it at this point? Cost is definitley a factor for some!!

Wed Apr 16 1997 22:47:54 Eastern US
Sue from Ma () from 152.163.231.145
Dr L. what can I expect from puberty. My daughters 12 and I wonder how " bad " sugars can get when growth and other hormones go crazy...?

Wed Apr 16 1997 22:47:58 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
Looks like everyone is leaving. Thanks for inviting me. Sorry I wasn't online the whole time. Keep on trying all of you!

Wed Apr 16 1997 22:47:59 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
tessa... Oh boy , when someones says.. "dont worry" I worry. You can bet you were bound to have trouble then!

Wed Apr 16 1997 22:50:10 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Oh but watch out for the Schoonmaker's computer, Dr Lebinger!!! I think it has a mind of it's own and enjoys booting them off!! LOL

Wed Apr 16 1997 22:50:15 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Maureen.. Heather has expressed an interest and asked me if it hurt, and exactly how it worked, what she had to do, etc. I wanted someone who uses it to email her and kind of explain that...

Wed Apr 16 1997 22:50:45 Eastern US
Susan KW (rwlms@ipa.net) from 207.2.197.131
While my son was in the hospital after being diagnosed, I read the Pink Panther book. I asked the nurse educator about Glucagon, and she said no way. She said we didn't need it because we live within 30 minutes of a hospital. Does this make sense to you?

Wed Apr 16 1997 22:50:47 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
Sue - 22 years ago - my "friends" we not so understanding - I envy your daughter - Now, I tell everyone I'm diabetic - I've finally accepted the diabetes - unfortunately it's taken 22 years but I'm doing well :o)

Wed Apr 16 1997 22:51:07 Eastern US
Debbie () from 169.132.96.23
Thanks, Melissa. I only got booted once tonight!!!LOL

Wed Apr 16 1997 22:51:07 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
to Sue from Ma

Puberty is a hard time to control diabetes. As your daughter grows and develops, she will make more hormones that fight insulin. She will need more food and more insulin while growing, then usually less food and less insulin after the growth (in height) stops, otherwise she may grow in width. There is no magic trick to control. Keeping open the channels of communication is important and frequent blood sugar. Encourage her to see the doctor frequently, even if she doesn't want to to keep open the avenues of communication there. Some girls find that their blood sugars change with the menstrual cycle, others don't

Wed Apr 16 1997 22:53:03 Eastern US
Robynn (medalero@senet.com.au) from 203.34.35.20
Melissa, many thanks for inviting me, sorry I couldn't make it earlier, too many things to be done at 10.30 am here especially as it is school holidays - can't even stay long now. Looking back of entries, it looks like you had an interesting discussion.

Wed Apr 16 1997 22:53:06 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
LOL Debbie!! I think that must be a record!! hehehehe (just kidding, you know!) :-)

Wed Apr 16 1997 22:53:08 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
I might also add....I'm engaged to someone who WANTS to know everything about my diabetes. I couldn't be happier.

Wed Apr 16 1997 22:53:29 Eastern US
Tessa Lebinger (LebingerT@pol.net) from 204.178.220.33
I think everyone should have glucagon, even if they live next door to a hospital. It is also good to take with you when you travel and are more apt to make a mistake and take the wrong dose of insulin. It is also good if you get diarrhea, are low, can't eat enough, are still awake and alert and can give it before you pass out. Why shouldn't the patient and family have the ability to take care of an emergency?

Wed Apr 16 1997 22:53:31 Eastern US
Jan Carlin (jcarlin@bigfoot.com) from 192.86.155.88
Dr Lebinger. My sons doctor here in Australia told us that tight control is desirable but not critical when a child is under 10 years of age. What are your thought on that?

Wed Apr 16 1997 22:53:33 Eastern US
Sue from Ma () from 152.163.231.145
Thanks Dr Lebinger. She is a wonderful kid so I'm sure we'll make it thru as we have the last 5 years ** together and support *

Wed Apr 16 1997 22:53:44 Eastern US
Charlene () from 205.238.244.51
Susan KW - that makes no sense to me. If a child is having a seizure and it can be stopped, why wait 30 minutes? Besides, the drive to the hospital would be horrible.

Wed Apr 16 1997 22:53:45 Eastern US
Maureen (kmorgan35@msn.com) from 153.35.3.213
Jeff

I've used a pump for 2 yrs. and love it, but if she's reluctant to share her diabetes with everyone, I would imagine wearing a pump would be hard for her.

Wed Apr 16 1997 22:54:43 Eastern US
Judith () from 206.112.27.154
Dr. L. - any experience with patients allergic to glucagon?

Wed Apr 16 1997 22:55:16 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Hi Robynn!! It's so nice to see you! I'm glad you could stop in!! I have it all saved and I'm sure Jeff does too!! He'll probably get the entire chat up pretty quickly!

Wed Apr 16 1997 22:55:56 Eastern US
Sue from Ma () from 152.163.231.145
good night. Thanks melissa and Dr. Lebinger. Hope we can have you again.

Wed Apr 16 1997 22:55:58 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.131
Melissa: I'll have the chat transcript us first thing in the morning. Hope that's early enough.

Wed Apr 16 1997 22:56:58 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
Dr. Lebinger - the problem I have is when I get the flu - I get so weak I'm on the liquid diet - would Glucagon be a benefit at this time? How would I ensure I didn't DKA? I was under the impression that Glucagon should only be used for hypoglycemic reactions.

Wed Apr 16 1997 22:57:14 Eastern US
sue (sheeshb@aol.com) from 204.213.250.181
Had to give our daughther glucagon once...she appeared to be allergic, BUT it saved her, and we still go no where with out it.

Wed Apr 16 1997 22:57:15 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Maureen... Could you email me some info? Or better yet, would you mind emailing to my daughter, Heather? Just write what your experience with it has been , what you do with it... etc... ??

Wed Apr 16 1997 22:58:15 Eastern US
lisa () from 150.131.25.181
thank you Dr. Lebinger and to all of you out there....this has been the closest i've gotten to a support group. It feels so nice to be around so many people who really "understand"...thank you and good night to all...

Wed Apr 16 1997 22:58:24 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.131
Jeff: You might want to send an e-mail to Brittany. She's 13 and got a pump recently. You can read her story in the Kids' Voices section. The URL is:

http://www.castleweb.com/diabetes/d_02_1b0.htm

Wed Apr 16 1997 22:58:41 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
nite lisa!

Wed Apr 16 1997 22:58:48 Eastern US
Susan KW (rwlms@ipa.net) from 207.2.197.131
Charlene, I agree with you. Matt has his first appointment with a pediatric endo on 4/23/97, and I plan on asked for a Glucagon rx.

Wed Apr 16 1997 22:58:51 Eastern US
Maureen (kmorgan35@msn.com) from 153.35.3.213
I'd be happy to e-mail Heather Jeff. Good luck!

Wed Apr 16 1997 22:59:41 Eastern US
Robynn () from 203.34.35.20
Thanks Melissa & Jeff - I will look that up later. I can't stop now, having a few computer problems etc, will be most interested to see the whole transcript

Wed Apr 16 1997 22:59:47 Eastern US
Judith () from 206.112.27.154
Sue, what were your daughter's sypmptoms after glucagon? My son had copious, thin, clear nasal drainage and sneezed about every 15 seconds for 20 minutes. Don't know if he had a rash, as it was dark and he had a coat on (we were in the car, on the way to the ER).

Wed Apr 16 1997 22:59:48 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Jeff, that will be great!!! I'm afraid I won't be on line again till Saturday!! The computer is going in for upgrades!! :-) But send me the URL of the page you make and I'll send it out to everyone on Saturday!!

Wed Apr 16 1997 22:59:52 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Jeff... Thanks! Heather will be 13 in about 1.5 months. Maybe she can relate to that..!

Wed Apr 16 1997 23:01:04 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.131
Melissa: The URL for the transcript will be on the main chat page in CWD. (just link to it--it's easier). It will be up tomorrow morning sometime.

Wed Apr 16 1997 23:02:26 Eastern US
Jeff (jscharpf@nconnect.net) from 206.54.227.72
Thanks Maureen!

I'm going to bed for sure this time!

Thanks again all!

Nite!

Wed Apr 16 1997 23:02:33 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
My kids have about hit their limit on patience and need to go to bed!! So I have to say goodnight!! Please feel free to stay and chat some more!!

Dr. Lebinger, thank you so much for doing this tonight, even with all your computer problems!!! There was so much information given out tonight!! It was a BIG help!!

Wed Apr 16 1997 23:03:02 Eastern US
Jeff Hitchcock (jeffh@castleweb.com) from 206.112.197.131
Me too -- goodnight all, and thanks for visiting.

Wed Apr 16 1997 23:03:44 Eastern US
Debbie () from 169.132.96.23
Goodnight Melissa, thanks for setting this up!

Wed Apr 16 1997 23:04:51 Eastern US
Jan Carlin (jcarlin@bigfoot.com) from 192.86.155.88
G'nite Melissa. Jeff.

Wed Apr 16 1997 23:04:51 Eastern US
Debbie () from 169.132.96.23
Dr. Lebinger, are you still here?

Wed Apr 16 1997 23:05:11 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Oh good!! That'll be so easy for everyone to find Jeff!! Maybe I can get notes out tonight about it then!!! There are very many people overseas who just can't make it to these because of the time difference and they really depend on the transcripts!!! I've just got to get around to doing a daytime one!!!

Wed Apr 16 1997 23:06:45 Eastern US
sue (sheeshb@aol.com) from 204.213.250.181
Judith, Becca threw up non stop, after she came out of her near coma (very scary), we were in an abulance on the way to ER as she came out of it, and then they had to give her meds to stop her from upchucking. very LOOOOONg night...but it all worked out okay. Would still do the glucagon...before that she appeared to have stopped breathing.

Wed Apr 16 1997 23:07:37 Eastern US
Melissa (jrnysend@itexas.net) from 207.22.198.63
Thanks for coming everyone!! And Jeff, thanks for setting up the room and everything! I enjoyed doing this alot!!! Goodnight Everyone!!!

Wed Apr 16 1997 23:08:19 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
Goodnight Melissa and thanks!

Wed Apr 16 1997 23:08:36 Eastern US
Debbie () from 169.132.96.23
That sounds terribly scary sue! Luckily I have never had to use the glucagon yet. But I always keep some on hand.

Wed Apr 16 1997 23:08:47 Eastern US
Judith () from 206.112.27.154
Sue, severe vomiting is a common side effect of glucagon - wouldn't really call that an allergic reaction. I agree that it would be worth giving it to her again, if necessary.

Wed Apr 16 1997 23:09:39 Eastern US
laura from fl () from 207.146.85.206
Disconnected...and then a phone call...

Good night All. Thanks Dr. Lebinger, Jeff and Melissa. Hope you know how much you're appreciated :-)

Wed Apr 16 1997 23:10:02 Eastern US
Debbie () from 169.132.96.23
Goodnight and thanks again Melissa!

Wed Apr 16 1997 23:13:26 Eastern US
Candace (nilloc@execulink.com) from 207.216.161.98
thank you all - it's been informative - must do bg and insulin.

Good Night!

Wed Apr 16 1997 23:18:46 Eastern US
() from 169.132.98.175
A very special thanks to Dr. Lebinger for coming tonight. Don't forget I'd be happy to help you out when you want to do another one!!

Wed Apr 16 1997 23:19:26 Eastern US
Debbie () from 169.132.98.175
The last post was mine!

Wed Apr 16 1997 23:23:09 Eastern US
Jean () from 205.139.56.7
Melissa: I am new to this. I have obviously just missed the forum. Was it only on for one hour?

Thu Apr 17 1997 1:27:03 Eastern US
Meg () from 204.178.191.230
Is the chat over?



                 
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