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  Back to Chat Type 1 Support

Type 1 Support from November 1, 2000

Betty Brackenridge and Kris Swenson hosted a Virtual Support Group chat about Type 1 diabetes.

Chat Room Administrator chat@childrenwithdiabetes.com (206.112.197.133) Wed Nov 1 2000 20:33:48 Eastern US
The 'Virtual Support Type 1' chat room is now open. Our special chat begins at 9pm Eastern.

Chat Room Administrator chat@childrenwithdiabetes.com (206.112.197.133) Wed Nov 1 2000 20:47:23 Eastern US
Our special "Virtual Support Group: Type 1" chat will begin at 9pm in the "Virtual Support Type 1" room.

Wed Nov 1 2000 20:59:59 Eastern US
Beth K (!2 dxd@5 minimed pump is coming real soon!!! ) from 64.30.68.92
hello everyone!!!

Wed Nov 1 2000 21:00:32 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Hi, and welcome to the Type 1 Virtual Support Group -- Hi Beth

Wed Nov 1 2000 21:00:40 Eastern US
Kris-support group co-leader from 152.163.195.182
Hi and welcome. We're listening.....

Wed Nov 1 2000 21:00:50 Eastern US
Wendy from 12.78.102.72
hi Beth

Wed Nov 1 2000 21:01:11 Eastern US
Kris-support group co-leader from 152.163.195.182
Hi Beth. Bet you're really excited to start pumpin

Wed Nov 1 2000 21:01:12 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
How exciting.

Wed Nov 1 2000 21:01:46 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Hi Wendy

Wed Nov 1 2000 21:02:18 Eastern US
Beth K (12 dxd@5 minimed pump is coming real soon!!! ) from 64.30.68.92
Hi betty I am excited about starting my minimed BLUE 508 pump!!! (so exciting!!!)

Wed Nov 1 2000 21:02:51 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Anything special you wanted to talk about to tonight?

Wed Nov 1 2000 21:03:01 Eastern US
Kris-support group co-leader from 152.163.195.182
That blue is beautiful! We had a patient start on one just this morning...same color too.

Wed Nov 1 2000 21:04:03 Eastern US
Amy (17, d'xed @5, pumping) from 207.172.11.147
hello!

Wed Nov 1 2000 21:04:21 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
Beth i just started pumping in June have a minimed 508 in Blue...i call it curley blue

Wed Nov 1 2000 21:04:22 Eastern US
susanne MI (Mary 8, dx @4 pumping 4 months) from 207.89.168.48
Hi everyone
The 508 Cool Blue is great.

Wed Nov 1 2000 21:04:38 Eastern US
Beth K (12 dxd@5 minimed pump is coming real soon!!! ) from 64.30.68.92
I do have 1 question thou I have always heard about how badly your BG's mess up when on your minstral cycle ... well I t dosnt mess me up .Why??

Wed Nov 1 2000 21:05:08 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Wow - sounds like pump appreciation night, BLUE division!

Wed Nov 1 2000 21:05:24 Eastern US
Amy (17, d'xed @5, pumping) from 207.172.11.147
they screw me up Beth, just b/c they are so unpredictable. It's not bad if you can adjust basals for it, but if you're like me and have a totally irregular period it's tricky.

Wed Nov 1 2000 21:05:41 Eastern US
Beth K (12 dxd@5 minimed pump is coming real soon!!! ) from 64.30.68.92
I know I cant wait!!! my family is verry supportive!!!

Wed Nov 1 2000 21:05:46 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
Beth my bGs don't fluctuate to badley with my menstral cycle maybe you and i are just weird.

Wed Nov 1 2000 21:06:01 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
That's pretty true for many women -- have you noticed any pattern of changes in your blood sugars right before your period starts?

Wed Nov 1 2000 21:06:01 Eastern US
Beth K (12 dxd@5 minimed pump is coming real soon!!! ) from 64.30.68.92
(That is about the pump)

Wed Nov 1 2000 21:06:42 Eastern US
susanne MI (Mary 8, dx @4 pumping 4 months) from 207.89.168.48
Although I don't want to scare anyone away from tonights chat that is not pumping. Pumping is an option and MDI works very well for some.

Wed Nov 1 2000 21:07:02 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
I have not gotten that far yet...they do cause a slight elevation but not that noticible.

Wed Nov 1 2000 21:07:41 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
If, not, then you are among the lucky ones--- for many women those hormones that rise before the flow starts make them pretty insulin resistant -- their blood sugars go up, up, up -- and then go down again after their period starts and the hormone levels flatten out

Wed Nov 1 2000 21:08:00 Eastern US
Michelle (Steph's mom dx'd at 3yrs ,8) from 170.215.187.109
HELLO!

Wed Nov 1 2000 21:08:06 Eastern US
Kris-support group co-leader from 152.163.195.182
Suzanne. You are absolutely right, there is no one way to manage diabetes. If it works, doesn't matter where or what delivers the insulin.

Wed Nov 1 2000 21:08:32 Eastern US
Kris-support group co-leader from 152.163.195.182
Hello Michelle, welcome

Wed Nov 1 2000 21:09:21 Eastern US
Beth K (12 dxd@5 minimed pump is coming real soon!!! ) from 64.30.68.92
Wendy I agree whats also WIERD about me is that I can be sick as a dog and my bg's are just right!!! then about a week later their 200-500 or thier 25!!!

Wed Nov 1 2000 21:09:30 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
I get the flatten out part but have not noticed the rise of course have not had that good of control yet.

Wed Nov 1 2000 21:09:41 Eastern US
Kris-support group co-leader from 152.163.195.182
Anyone out there tonight using insulin pens?

Wed Nov 1 2000 21:10:16 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
I used to Kris

Wed Nov 1 2000 21:10:16 Eastern US
Jeanine (Mom of Abigail 5 dx 6-23-00) from 24.161.110.156
How old do you have to be to pump?

Wed Nov 1 2000 21:11:13 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Wendy, do you make any changes to your insulin doses when your numbers start to go up before your period? Or do you just compensate shot by shot till the changes are over?

Wed Nov 1 2000 21:11:15 Eastern US
Beth K (12 dxd@5 minimed pump is coming real soon!!! ) from 64.30.68.92
I used to use the insulin pen but for some reason it left BIG brusis !!!

Wed Nov 1 2000 21:11:19 Eastern US
Amy (17, d'xed @5, pumping) from 207.172.11.147
I agree Wendy, I'm in good control, but b/c my period can come every 2 weeks or once every 6 months, I never feel safe adjusting basals, overall my control is good though, but its a hassle wondering if you're getting sick or getting you're period..and almost impossible when it's a double whammy! i'm going on the pill to help regulate it some

Wed Nov 1 2000 21:11:20 Eastern US
Michelle (Steph's mom dx'd at 3yrs ,8) from 170.215.187.109
i HAVE A QUESTION. mY 4yr old 's teacher called to say he was going to the bathroom alot and I noticed too. we did a stick on his sister machine and got 179! he had pizza and birthday cookie . How worried should i be? this all happend today

Wed Nov 1 2000 21:11:23 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
Depends on the doctor Jeanine and the parent....

Wed Nov 1 2000 21:11:35 Eastern US
Kris-support group co-leader from 152.163.195.182
Jeanine- people of all ages can wear a pump.... the younger ones depend on someone elses brain to make the insulin dose decisions.

Wed Nov 1 2000 21:11:37 Eastern US
susanne MI (Mary 8, dx @4 pumping 4 months) from 207.89.168.48
We used a pen sometimes before starting to pump. Since most of her injections were mixing NPH and Humalog or Regular, it was better in my opinion to use the traditional syringe. I know several teens who really like their pens with Humalog to cover pizza, etc.

Wed Nov 1 2000 21:12:32 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
Betty i use the pump so i just take more boluses the day or two before my period.

Wed Nov 1 2000 21:12:56 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
How does your 8 yr old do with pump?

Wed Nov 1 2000 21:13:16 Eastern US
Jeanine (Mom of Abigail 5 dx 6-23-00) from 24.161.110.156
So there is not an age limit? Except if the M.d. is uncomfortable.

Wed Nov 1 2000 21:13:20 Eastern US
Beth K (12 dxd@5 minimed pump is coming real soon!!! ) from 64.30.68.92
I hate to but I got to go 9 weeks test in the mornin ... got to get my Zzzz in!!!
-Bye

Wed Nov 1 2000 21:14:07 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
night Beth K,

Wed Nov 1 2000 21:14:09 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Michelle, that's not the kind of surprise you were hoping for, I'll bet. Although you can't diagnose diabetes on one blood sugar and especially not on a blood sugar done with a hiome meter, it does suggest you ought to get it checked out further. Your docotr should probably consider doing an insulin antibody test.

Wed Nov 1 2000 21:14:13 Eastern US
Kris-support group co-leader from 152.163.195.182
Jeanine, that's right. There are babies that have pumps an our oldest patient is in her late 70's.

Wed Nov 1 2000 21:14:26 Eastern US
susanne MI (Mary 8, dx @4 pumping 4 months) from 207.89.168.48
Mary is doing wonderful. She of course has me change all her sets and I calculate out most of the boluses. I am amazed how much she can figure out on her own as far as estimating the carbs in foods and reading the labels.

Wed Nov 1 2000 21:14:27 Eastern US
Kris-support group co-leader from 152.163.195.182
Good night Beth, good luck on your test.

Wed Nov 1 2000 21:14:41 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Night, Beth. Thnaks for dropping by.

Wed Nov 1 2000 21:15:27 Eastern US
susanne MI (Mary 8, dx @4 pumping 4 months) from 207.89.168.48
Night Beth.

Wed Nov 1 2000 21:15:39 Eastern US
Beth K (12 dxd@5 minimed pump is coming real soon!!! ) from 64.30.68.92
Thanks
good night all!!!

Wed Nov 1 2000 21:15:46 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
I've heard that the glucose watch is coming out early next year...but that's only approved for 18 and older ...is this correct?

Wed Nov 1 2000 21:15:51 Eastern US
Michelle (Steph's mom dx'd at 3yrs ,8) from 170.215.187.109
Thanks Betty

Wed Nov 1 2000 21:17:01 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Doctors are like everyone else -- they are more comfortable with things in which they have experience. If your doctor has never had a very young child on a pump, he or she may not be all that eager. But if they do pumps in older kids and adults and have the skills, you can gather up a lot of information on specific techniques to use with littler kids.

Wed Nov 1 2000 21:17:01 Eastern US
Kris-support group co-leader from 152.163.195.182
Amy- The Glucowatch is still in trials, we will be doing a final one this fall. If and when it is approved, it will have that age limit at the beginning until they get more data and experience.

Wed Nov 1 2000 21:17:31 Eastern US
susanne MI (Mary 8, dx @4 pumping 4 months) from 207.89.168.48
Jeanine Mary is her endo's youngest pumper. She started at 7. Honestly I have a l2 year old son and I think that starting pumping with a 7 year old would be easier than with a l2 year old who thought they knew everything. Don't get me wrong he is a good teen but a teen.

Wed Nov 1 2000 21:18:17 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Looking for info on the honeymoon phase?

Wed Nov 1 2000 21:18:45 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
I would love to start my 6 yr old pumping after we get some more knowledge...but can't imagine her doing it school...adjustments etc.

Wed Nov 1 2000 21:18:46 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Re how much kids pick up, if parents explain what they're doing and why from the time kids are little, they pick up a lot of good diabetes knowledge through "osmosis"

Wed Nov 1 2000 21:18:53 Eastern US
susanne MI (Mary 8, dx @4 pumping 4 months) from 207.89.168.48
I need to run and finish putting kids to bed.

Wed Nov 1 2000 21:20:24 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Phyl - what did you want to know about "honeymoon"?

Wed Nov 1 2000 21:20:40 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Night Suzanne

Wed Nov 1 2000 21:21:03 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
night susanne

Wed Nov 1 2000 21:21:34 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
What kind of ranges do kids run in and the average amount of insulin they require.

Wed Nov 1 2000 21:21:52 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
hello:-)

Wed Nov 1 2000 21:22:09 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Ann, There is at least one pediatric program (in California) that does "nighttime pumps" for school age kids -- they pump at home but lock the pump at school during the day or take it off entirely - so no one is fiddling with the pump who isn't knowledgeable

Wed Nov 1 2000 21:22:37 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
quick question..anyone's kids swimming as a sport?

Wed Nov 1 2000 21:23:04 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
Hi Mary

Wed Nov 1 2000 21:23:23 Eastern US
alicia (21; dxd 6mths ago) from 192.200.134.134
hi everyone

Wed Nov 1 2000 21:23:31 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Ann..chris had just truned 8 and we pumped full-time and it worked out ok

Wed Nov 1 2000 21:23:58 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Hi, Alicia - welcome

Wed Nov 1 2000 21:24:31 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
Hi Alicia

Wed Nov 1 2000 21:24:40 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
That's all encouraging info...thanks

Wed Nov 1 2000 21:25:14 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Pumps are like testing and shots -- kids are ready for different responsibilities at different ages -- it's a pretty individual thing

Wed Nov 1 2000 21:25:34 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
No swimming as a sport..but swim lots in summer...wondering how that will go this summer after being diagnosed...

Wed Nov 1 2000 21:26:08 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Brtty, did you get my question - am I doing this right?

Wed Nov 1 2000 21:26:31 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
Ann, not a real big deal just make sure you test her every hour

Wed Nov 1 2000 21:27:19 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Phyl - we put in an answer but apparently it got lost in cyberspace - Kris is typing it again now.

Wed Nov 1 2000 21:27:38 Eastern US
Kris-support group co-leader from 152.163.195.182
Phy- my answer got lost in cyber space. Most kids take 1/2 to 1 unit of insulin per 2 lbs of bodyweight. This can change with puberty or other stresses.

Wed Nov 1 2000 21:28:03 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Betty..I have on who pumps and one who does MDI, so you're right. and the child needs to be willing. My daugher doesn't want to, so we're waiting until she's ready. Schools can be trained if you give them ample time to learn..we started trainign MONTHS before CHris got his pump..we did teh transition over the summer, so all the first adjustments were made without the stress of school..

Wed Nov 1 2000 21:28:06 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
With lots of testing...how long does it take for their fingers to get all calloused?

Wed Nov 1 2000 21:28:24 Eastern US
Valerie (Scott 9, dx'd at 8) from 209.226.140.180
Good evening everyone!

Wed Nov 1 2000 21:28:25 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
thanks/

Wed Nov 1 2000 21:28:36 Eastern US
Kris-support group co-leader from 152.163.195.182
Welcome Valerie

Wed Nov 1 2000 21:28:47 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
Mary-What is MDI?

Wed Nov 1 2000 21:29:05 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Wendy..that what about competitive..(my daughet wants to be the female gary hall, i think:-) )

Wed Nov 1 2000 21:29:10 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Kris - is this for kids in "Honeymoon?"

Wed Nov 1 2000 21:29:13 Eastern US
alicia (21; dxd 6mths ago) from 192.200.134.134
Wendy- Question, I have been talking with my endo about getting the pump. Any comments on problems you have had with it or how it was getting used to always wearing it..

Wed Nov 1 2000 21:29:34 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Phyl, and as for the range of control, that's variable. Kids on pumps or using multiple injections with Humalog can get pretty close to normal a good percentage of the time -- but nobody gets "perfect" blood sugars -- however, if they're averaging over 150 you need to work with your team to get a more effective plan going

Wed Nov 1 2000 21:29:58 Eastern US
Kris-support group co-leader from 152.163.195.182
Phyl, no this is for kids out of honeymoon. During the honeymoon, they may need no insulin at all or very, very small amounts of long acting insulin.

Wed Nov 1 2000 21:30:27 Eastern US
Kris-support group co-leader from 152.163.195.182
Phyl-once there is a need for mealtime insulin and background insulin, the honeymoon is over.

Wed Nov 1 2000 21:30:44 Eastern US
Valerie (Scott 9, dx'd at 8) from 209.226.140.180
Our honeymoon period is just finishing. And now we are on a combination of Humalog and N, and we are doing great with it, but he had to go on more more needle at bedtime.

Wed Nov 1 2000 21:31:05 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Ann - MDI = multiple daily injections

Wed Nov 1 2000 21:31:08 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
What would the 1hrPP BS of a normal person after consuming say some oreos and milk?

Wed Nov 1 2000 21:31:29 Eastern US
alicia (21; dxd 6mths ago) from 192.200.134.134
brb

Wed Nov 1 2000 21:31:42 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Valerie - how long did youy honeymoon period last?

Wed Nov 1 2000 21:31:51 Eastern US
Kris-support group co-leader from 152.163.195.182
Phyl, for most people the 1 hr bs would be less than 140 no matter what was eaten.

Wed Nov 1 2000 21:32:06 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
Alicia, i've been using the pump since June 9, 2000 and love it will never go back to MDI...was not a real big transition for me...just learning how to care for my D in a different way...my e-mail is w.ort@att.net if you would like to e-mail me questions.

Wed Nov 1 2000 21:33:01 Eastern US
Valerie (Scott 9, dx'd at 8) from 209.226.140.180
We were lucky and it lasted about 7 months, longer would be great, but all good things must come to an end.

Wed Nov 1 2000 21:33:04 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
never had a problem getting used to wearing it constantly actually i hardly notice it.

Wed Nov 1 2000 21:33:51 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
How did you know the honeymoon was over?

Wed Nov 1 2000 21:33:59 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Valerie, how high was he when he was diagnosed and how stable was he through honeymoon? Did he receive any insulin during this time?

Wed Nov 1 2000 21:35:44 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
Phyl-Amy was 400+ whend daig...she has been real stable this 6 weeks since...she takes 10 N in AM and only 2 N at night..still honeymooning...

Wed Nov 1 2000 21:35:45 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Kris..what if teh bg is over 140? should that be monitored?

Wed Nov 1 2000 21:35:56 Eastern US
Charla (Mom, Eric, age 9, dx'd 9/26/96) from 64.132.78.57
Hello everyone! Quick question if approriate for this format. Eric came to me last night saying he was ready for the pump. We've never really discussed it and don't know where to go from here. Any suggestions? I ordered videos and info today from Minimed and Disetronic.

Wed Nov 1 2000 21:36:17 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Ann, is your child in Honeymoon?

Wed Nov 1 2000 21:36:48 Eastern US
Valerie (Scott 9, dx'd at 8) from 209.226.140.180
When he was diagnosed he was 24.5, or 441. ( you see we live in Ontario, and our scale is different). Thru his honeymoon is took as little as 4 units somedays,but we never had a day when he had no insulin. And it just got progressivly highter.

Wed Nov 1 2000 21:36:51 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
Phyl..yes we are assuming she is....

Wed Nov 1 2000 21:37:21 Eastern US
Kris-support group co-leader from 152.163.195.182
Mary-in a person without known diabetes, elevated blood sugars after the meal are very silent and not often picked up early. yes, I woul.d suggest testing after meals and seeing if it is a trend, or was merely a fluke.

Wed Nov 1 2000 21:37:23 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
Charla also get the information from the animas people...then talk to your endo

Wed Nov 1 2000 21:37:23 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Honeymoon varies dramatically -- some people don't have much of one -- just a brief period when little or no insulin is needed to keep blood sugars under control -- honeymoon can last days, weeks or months -- probably depends on how many beta cells were left when something sent the blood sugars through the roof.

Wed Nov 1 2000 21:37:33 Eastern US
alicia (21; dxd 6mths ago) from 192.200.134.134
thanks wendy...I just like to get different perspectives on it. Most are extremely positive, I am just still trying to deal with any of my reservations

Wed Nov 1 2000 21:38:02 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Charla..order the free pumping books for kids, too..let him read those..

Wed Nov 1 2000 21:38:36 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
Alicia...i belong to the insulin pumpers mail list and a girl their started pumping a month after diagnosis

Wed Nov 1 2000 21:39:19 Eastern US
Charla (Mom, Eric, age 9, dx'd 9/26/96) from 64.132.78.57
Seems as if we cannot get below 7.6 on A1C. We've been between 7.6 and 8.1 consistently for the past two years. Ironically three month checkup is scheduled for tomorrow.

Wed Nov 1 2000 21:39:42 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
kris - my son was diagnosed with only a 240 bloodsugar. Is this "high" enough? I hope this doesn't sound too strange

Wed Nov 1 2000 21:39:44 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
good way to test it out is take a pager and wear it around 24/7 for a few days.....see how it feels but the pump makes life so much easier IMHO

Wed Nov 1 2000 21:39:46 Eastern US
Charla (Mom, Eric, age 9, dx'd 9/26/96) from 64.132.78.57
Wendy-"animus people"?????

Wed Nov 1 2000 21:40:21 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Charla, what is the normal range for your lab? 7.6% for a nine year old sounds pretty darn good

Wed Nov 1 2000 21:40:21 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Have Eric ask teh endo about teh pump..so they'll know its his idea and not yours..

Wed Nov 1 2000 21:40:47 Eastern US
Charla (Mom, Eric, age 9, dx'd 9/26/96) from 64.132.78.57
Mary, are the free kids books available thru Minimed and Disetronic or are you talking about some other books?

Wed Nov 1 2000 21:41:02 Eastern US
alicia (21; dxd 6mths ago) from 192.200.134.134
Wendy...And I thought that 6 mths would be early. My control is very poor..my A1c was 9.7 at my last visit and they have me up to three shots a day so..
I will try that wendy...thats a good idea. Any problems with clothes and the tubing?

Wed Nov 1 2000 21:41:27 Eastern US
Kris-support group co-leader from 152.163.195.182
Phyl, yes that's high enough but it was likely caught early. That is good, then he didn't have to become sick and ketotic to be diagnosed.

Wed Nov 1 2000 21:42:13 Eastern US
Charla (Mom, Eric, age 9, dx'd 9/26/96) from 64.132.78.57
Betty, Dr. wants him 8.0 or under so in that aspect we're doing all right. I just didn't know if the pump would help or if we should stay where we're at.

Wed Nov 1 2000 21:42:23 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
No actually no problems with clothing and tubing i usually keep my pump in my pocket

Wed Nov 1 2000 21:42:31 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Their from minimed and disetronic..they're for schools, but they give a pretty simple explanation of insulin pumps..they weren't avaialbe when Chris started pumping, so we bought "teens, pumping it up" which was also great

Wed Nov 1 2000 21:42:46 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
Kris-what is the highest that a normal persons bg would go??

Wed Nov 1 2000 21:43:17 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Kris - this is true. He has been all over the place with his BS and his insulin needs. I guess I am still denying that he has it. I am so fortunate right now. Can a T1 in Honeymoon eat a meal and have no elevation?

Wed Nov 1 2000 21:43:32 Eastern US
Charla (Mom, Eric, age 9, dx'd 9/26/96) from 64.132.78.57
Thanks Mary. I'll ask the pump reps when they return my call.

Wed Nov 1 2000 21:43:52 Eastern US
Kris-support group co-leader from 152.163.195.182
Ann, people without diabetes will have blood sugars less than 110 before breakfast and less than 140 after eating. When I test mine, and I do alot to test equipment, it is always in the 90's before or after eating. And I'm a good little eater, too!!

Wed Nov 1 2000 21:44:22 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Charla, the pump MAY give better BG control -- especially easier to manage foods, unplanned snacks, etc... but I think the bigger issue for most people is the amount of freedom that the pump provides -- able to eat at different times -- "play pancreas" instead of being tied to a schedule and meal plan

Wed Nov 1 2000 21:44:51 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Charla..the beauty of the pump for Chris was the decrease in fluctuations..his A1C's styed in the 7's and 8's but that was an average of crazy numbers..

Wed Nov 1 2000 21:44:54 Eastern US
Kris-support group co-leader from 152.163.195.182
Phyl-yes, during the honeymoon many people have normal blood sugars before and after meals.

Wed Nov 1 2000 21:44:57 Eastern US
Charla (Mom, Eric, age 9, dx'd 9/26/96) from 64.132.78.57
Believe it or not the Guiness Book of World Record has some guy with a blood sugar of around 1170 walking into a hospital without assistance. I told Eric, when he showed me, that he was not going to try to break that record! LOL

Wed Nov 1 2000 21:45:12 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
I checked mine once this summer with my aunt's...before Amy was ever diag and mine was over 200...I did a fasting one the next morning and it was 90????

Wed Nov 1 2000 21:45:26 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
with the pump his bg's are much more stabilized and his A1C's are in the 6's

Wed Nov 1 2000 21:46:15 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Ann, we were in such denial when we got home from the Doctor that we decided to do our own glucose challenge. In the am, after fasting, we all tested Dad 90 mom 70 Matt 110 - then we all drank half a coke (Great mom, huh?) ate 2 oreos and tested 1/2 hour later Dad - 120 mom - 90 and Matt was already 220 - all questions answered.

Wed Nov 1 2000 21:46:41 Eastern US
Kris-support group co-leader from 152.163.195.182
Ann- you might want to keep an eye on this... you could have a 2 hour glucose tolerance done at the doctors office if you are looking for problems after meals-this is called impaired glucose tolerance. Normal fasting blood sugars but elevations after meals.

Wed Nov 1 2000 21:46:53 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Ann..I beleive 200+ bg's are diagnosable

Wed Nov 1 2000 21:47:08 Eastern US
Charla (Mom, Eric, age 9, dx'd 9/26/96) from 64.132.78.57
Scares me having to educate the school on the pump. Will the reps usually help with this? Does anyone here prefer one pump over the other? You can email me at charla@logical123.net if you'd likel.

Wed Nov 1 2000 21:47:13 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Phyl, Einstein would be proud-- nothing like your own exprience to teach you something

Wed Nov 1 2000 21:47:28 Eastern US
Kris-support group co-leader from 152.163.195.182
Phyl-you just proved that you don't need health care providers when patients and their families are so smart!!! Good for you.

Wed Nov 1 2000 21:47:42 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
YIPES! I guess I should be myself checked..

Wed Nov 1 2000 21:48:35 Eastern US
Charla (Mom, Eric, age 9, dx'd 9/26/96) from 64.132.78.57
Eric was tested about 5 days before diagnosis and we were told it was not diabetes. BG was 106. Then, when I insisted he be tested again he was 497.

Wed Nov 1 2000 21:48:38 Eastern US
Kris-support group co-leader from 152.163.195.182
Ann-never hurts to be proactive. Early detection is the best prevention!!

Wed Nov 1 2000 21:48:52 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Thanks everyone, but you don't know how badly I wanted to be wrong. Matt's diagnosis was a really rough thing for me.

Wed Nov 1 2000 21:49:16 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Charla, I don't know about lesewhere in the country, but the Reps in AZ certainly don't get involved in training school personnel ... you need a good diabetes educator in your area to help you with that one. There are some great materials for the schools about diabetes in general, but the pump thing is pretty individual

Wed Nov 1 2000 21:49:31 Eastern US
alicia (21; dxd 6mths ago) from 192.200.134.134
wendy, thanks for the info. I will write you if I have anymore questions. Goodnight everyone :-)

Wed Nov 1 2000 21:49:31 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
Phyl--
Phyl--I have been experiencing the exact same emotions ever since Amy was dxd!

Wed Nov 1 2000 21:49:47 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
Night Alicia

Wed Nov 1 2000 21:50:03 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Charla, that is what almost happened to us. Matt's odd behavior stopped 2 days before his Dr. appt and I almost cancelled. I'm glad I went -- we are out to set the longest honeymoon record!

Wed Nov 1 2000 21:50:43 Eastern US
Amy from 207.172.11.147
Charla, I know a 5 yr old pumper here who got the pump last Feb and this yera started kindergarten..parents called his disetronic rep to get a nurse to train the school adn they did--guess it depends on where you are

Wed Nov 1 2000 21:50:47 Eastern US
Kris-support group co-leader from 152.163.195.182
Good night, Alicia. Thanks for joining us.

Wed Nov 1 2000 21:50:48 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Phyl, it's totally understandable, normal, common to feel the way you did. No parent wants something like diabetes for his or her child. It takes time to accept and adjust. Do you have some someone you can talk to about the feelings -- not just the practical parts of taking care of the diabetes?

Wed Nov 1 2000 21:51:06 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Phyl is Matt still honeymooning?

Wed Nov 1 2000 21:52:23 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Yes Mary - I am one of the luckiest mom's on the planet. My only problem is that I am a "control" freak and I want to know when the rug is going to be pulled out from under me

Wed Nov 1 2000 21:52:32 Eastern US
Charla (Mom, Eric, age 9, dx'd 9/26/96) from 64.132.78.62
Remember when honeymooning meant something else?

Wed Nov 1 2000 21:53:22 Eastern US
Wendy (28/dxed at 13 on the pump) from 12.78.102.72
I need to get going also goodnight everyone.

Wed Nov 1 2000 21:53:42 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Phyl..angela's been in the same boat as Matt..but she's hittign puberty now and the honeymoon's over!..

Wed Nov 1 2000 21:53:49 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Betty - that is why I got online. This has been such an asset for me. What happened is that the school RN started questioning whether Matt truly has Diabetes. Can you imagine what that did to me?

Wed Nov 1 2000 21:53:57 Eastern US
Kris-support group co-leader from 152.163.195.182
Good night Wendy.. Thanks for joining us tonight

Wed Nov 1 2000 21:54:10 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
Phyl-that's been the hardest thing for me too...not being able to control any of this...even the treatment...

Wed Nov 1 2000 21:54:23 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Mary, How long were you blessed?

Wed Nov 1 2000 21:54:25 Eastern US
Charla (Mom, Eric, age 9, dx'd 9/26/96) from 64.132.78.62
Gotta go! Alexandrea finally got home from her meeting. 10 pm and it's a school night. I'm going to wring her dads neck!

Wed Nov 1 2000 21:54:31 Eastern US
BettyB (VSG Co-Host) from 152.163.197.206
Phyl, diabetes is tough on a "control freak" whether you'r a parent or the one directly effected -- there are things within your control and others that definitely aren't -- that can be hard to accept

Wed Nov 1 2000 21:55:37 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
2 years..she still very maangeable though..the endo says its because we caught it so early..

Wed Nov 1 2000 21:55:39 Eastern US
Charla (Mom, Eric, age 9, dx'd 9/26/96) from 64.132.78.62
Oops! Forgot to say thanks to everyone! Goodnight!

Wed Nov 1 2000 21:55:55 Eastern US
Kris-support group co-leader from 152.163.195.182
Charla- good night and don't do anything that will attract witnesses!!! lol

Wed Nov 1 2000 21:56:06 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Ann, when Matt was 1st dx, we had a hard time dealing with the anger. One morning I kicked the kitchen cabinet and almost broke my6 foot! We have since moved onto "screaming thereapy" We both scream "I hate diabetes, pokes, shots, etc at the top of our lungs --- it works

Wed Nov 1 2000 21:56:16 Eastern US
sharon (2 kids with D) from 165.247.45.201
hi everyone, am i too late to chat?

Wed Nov 1 2000 21:56:51 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
Yep...I'm in the anger thing now...

Wed Nov 1 2000 21:57:16 Eastern US
Kris-support group co-leader from 152.163.195.182
Welcome, Sharon. We have a few minutes left here and you can go on after we're done.

Wed Nov 1 2000 21:58:08 Eastern US
sharon (2 kids with D) from 165.247.45.201
hi kris, thx. had a hard time getting kids to snack before bed tonite

Wed Nov 1 2000 21:58:13 Eastern US
Kris-support group co-leader from 152.163.195.182
Phyl-sounds like a pretty healthy approach to the anger.

Wed Nov 1 2000 21:58:51 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
hi sharon:-)

Wed Nov 1 2000 21:58:57 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Amy, if you want to chat sometime, send me an e-mail at qtrcrzy1@aol.com

Wed Nov 1 2000 21:59:34 Eastern US
Kris-support group co-leader from 152.163.195.182
Phyl, it's good that you all work "against the diabetes", not against the person who has it.

Wed Nov 1 2000 21:59:36 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
It's the only time I allow my 8 year old to use the word "sucks"

Wed Nov 1 2000 21:59:45 Eastern US
AnnTX (Amy6,newly dxd) from 24.162.131.184
Thanks to you all for your help...gotta get kids in bed!

Wed Nov 1 2000 22:00:03 Eastern US
sharon (2 kids with D) from 165.247.45.201
hi mary. are you as tired as i am? :-)

Wed Nov 1 2000 22:00:48 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Proabaly..:-)

Wed Nov 1 2000 22:00:51 Eastern US
Kris-support group co-leader from 152.163.195.182
Well, everyone. Thank you for another successful type 1 virtual support group.

Wed Nov 1 2000 22:01:04 Eastern US
Connie(BC) (T ! //pumping) from 207.194.24.150
hello

Wed Nov 1 2000 22:01:10 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
sharon..how are teh kiddos?

Wed Nov 1 2000 22:01:12 Eastern US
sharon (2 kids with D) from 165.247.45.201
nite kris.

Wed Nov 1 2000 22:01:13 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
God bless you mom's of two kids with D - I will keep you in my prayers. I had a friend that had a Hubby (T1) and 1st child T1

Wed Nov 1 2000 22:01:14 Eastern US
Kris-support group co-leader from 152.163.195.182
We will be back next month, same time, same night. Hope to see you then.

Wed Nov 1 2000 22:01:34 Eastern US
BettyB from 205.188.195.48
Night all - thanks for coming and sharing with each other. Hope you have a great week --- hope to see you next month. The room will be open for at least another 15 minutes, so don't feel rushed.

Wed Nov 1 2000 22:01:35 Eastern US
sharon (2 kids with D) from 165.247.45.201
mary-i am thinking about the pump for my 6 yr old. what do you think?

Wed Nov 1 2000 22:01:56 Eastern US
sharon (2 kids with D) from 165.247.45.201
gabi is 12, dx 29 months ago, steve is 6 dx this past july

Wed Nov 1 2000 22:02:15 Eastern US
sharon (2 kids with D) from 165.247.45.201
nite betty

Wed Nov 1 2000 22:02:27 Eastern US
Phyl (Mom of Matt, 8 dx'd at 6yrs) from 152.163.204.78
Thanks Betty and Kris - I will sleep better tonight

Wed Nov 1 2000 22:02:40 Eastern US
BettyB from 205.188.195.48
Nite Sharon -- good to see your smilin "face" up there

Wed Nov 1 2000 22:03:03 Eastern US
sharon (2 kids with D) from 165.247.45.201
lol-smiling cuz the kids are in bed!!!

Wed Nov 1 2000 22:03:21 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
what does your 6 yo think? introduce the idea to him..and the school, so they have time to digest it..

Wed Nov 1 2000 22:03:28 Eastern US
BettyB from 205.188.195.48
And Phyl -- thanks for sharing with ewverybody -- what you've been going through is so common -- it helps others to hear they're not alone

Wed Nov 1 2000 22:04:46 Eastern US
sharon (2 kids with D) from 165.247.45.201
well, havent discussed it with him yet. when he goes to therapy next week, i will show him a pump, the one i played with today. school has been very accomodating, dont think i will have problems with them

Wed Nov 1 2000 22:05:30 Eastern US
sharon (2 kids with D) from 165.247.45.201
may i ask why only oneof your kids is on the pump? gabi so far wants no part of it.

Wed Nov 1 2000 22:06:42 Eastern US
Mary from Ma. (Chris 10, dx'd @ 4 pumping 2 years and Angela 11, dx'd @ 9) from 205.188.197.52
Angela won't wear one..doesn't want it yet, she's 11 , so it really needs to be her decision..

Wed Nov 1 2000 22:06:51 Eastern US
Jeff Hitchcock from 206.112.197.133
I'll be closing this room in about five minutes. I suggest moving on to the Parents room to continue the discussion.

Wed Nov 1 2000 22:07:24 Eastern US
sharon (2 kids with D) from 165.247.45.201
ok jeff

Wed Nov 1 2000 22:08:08 Eastern US
sharon (2 kids with D) from 165.247.45.201
i think i want to get steven on a pump before he becomes opposed to it. especially with all the negative gabi has been saying about it



                 
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