Name: The Congenital Hyperinsulinism Conference Date: June 20-21, 2003 Location: The Leonard and Madlyn Abramson Pediatric Research Center at the Children's Hospital of Philadelphia, Philadelphia, PA Sponsor: The Congenital Hyperinsulinism Center of the Children's Hospital of Philadelphia Contact: Linda Sreinkrauss NP
The Conference, hosted by The Children's Hospital of Philadelphia Endocrine Division, will give parents and doctors an opportunity to broaden their knowledge of Congenital Hyperinsulinism (HI), while meeting specialists from around the world who conduct research and provide treatment for this condition. At this conference, parents and doctors will learn about the science behind the various defects that cause HI, diagnosis of the disease, and the most advanced and effective treatments. Doctors from some of the leading treatment and research centers around the world will also discuss the various auxiliary issues that often result from HI.
Some of the topics to be discussed include:
- The history of the diagnosis and treatment of Hyperinsulinism
- Normal beta cell function and how defects in function cause various forms of HI
- HI diagnosis and the importance of early diagnosis
- Treatment of HI (medical treatment and surgery)
- Clinical outcomes for HI patients
- A look into the future of HI research, diagnosis and treatments including benefits of DNA analysis, improved treatments, cures and prevention
- Nutrition and feeding issues
- Cognitive development issues
- The impact of chronic illness and developmental delay on behavior and family life
- Stress management techniques
Posted 8 March 2003
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