From Indiana, USA:
My son is 24 years old. He was diagnosed at age four and has been on insulin (R and L). Last year his retina detached in his left eye. He had two operations and lost a lot of his sight and now sees smudges when he looks at things. He also had operations on the right eye and now they say it isn't working. He has a oil bubble in now and the white of the eye is still red after seven months. He had the lens removed and the oil and buckle to keep the retina in place and now they want to remove the oil and say there is a big chance that the retina will detach again and nothing can be done.
I need to know if there is a clinic we can take him to for a second opinion before any more hope is gone. He is very upset and we are a bit worried that we should have never gone this route to begin with!
Any ophthalmologist who specializes in retinal disease (called a "retinal ophthalmologist") would be able to give your son a second opinion. Your son should ask the doctors who are planning to do the surgery to give him some names of other eye doctors who specialize in retinal disorders. The doctor doing the second opinion should be given copies of all the reports (such as operative reports) that have been done to help analyze the case better. He should not feel embarrassed about asking for a second opinion.
By the way, if the doctor giving the second opinion agrees with the recommendations of the original doctors, it is usually agreed that the second opinion doctor will refuse to do the procedure, and send the patient back to the first doctor to do the procedure.
Finally, your son should be aware that some insurance plans sometimes refuse to pay for second opinions, so he might have to pay for the second opinion himself. (Other insurance plans have no problem with paying for a second opinion.) He may want to call his insurance company, so he knows whether he may have to pay for the second opinion.
Original posting 26 Oct 97
Last Updated: Tuesday April 06, 2010 15:08:53
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