From a nurse in Marietta, Georgia, USA:
My 40 year sister has had type 1 diabetes for 37 years. At the time she was diagnosed our local pediatrician worked closely with a nationally-known Clinic concerning management of her care. She has end-stage retinopathy in one eye, paresthesias [uncomfortable feelings] in all extremities, and has recently experienced serum creatinine levels of 2 mg/dl. As a nurse, I want to be sure she is availing herself of the most progressive complication management possible. Her care is coordinated by an internist nearby. She also sees a neurologist, endocrinologist, nephrologist and an ophthalmologist. I referred her to a nearby School of Medicine for a consult, but she was not satisfied with access to the physicians. Do large centers provide consultations to adults like my sister? She has two children, 14 and 6 and so complication management, coordination of care and quality of life are major concerns.
Presumably, as in the UK, a patient has a right to a 2nd opinion, and could be referred to an alternative centre. With the patient having multiple problems, the care needs to be carefully coordinated by a competent diabetologist, and be able to involve the appropriate specialists experienced in dealing with diabetic complications. In the UK, if a patient was unhappy with their care, they would be referred for another opinion.
Original posting 2 Oct 1999
Posted to Daily Care
Last Updated: Tuesday April 06, 2010 15:09:06
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.
This site is published by T-1 Today, Inc. (d/b/a Children with Diabetes), a 501c3 not-for-profit organization, which is responsible for its contents. Our mission is to provide education and support to families living with type 1 diabetes.
© Children with Diabetes, Inc. 1995-2016. Comments and Feedback.