From Lewistown, Montana, USA:
My step-daughter's four month infant recently had seizures and blood sugars of 13-15 mg/dl [0.7-0.8 mmol/L), and she is currently in ICU with numerous tests being performed. Although she is on medications to prevent seizures, her brain waves indicate that seizure activity is still there. Currently, the doctors are looking at hyperinsulinemia and nesidioblastosis. Without medications, her blood sugars bottom out. What is the chances that she will be brain damaged? What is the treatment and outcome of this illness? Where can we find out more, in layman's terms?
Nesidioblastosis is a rare condition, but we do see it from time to time. I don't have statistics, but it is remarkable how well these children tolerate hypoglycaemia, provided it is recognised and managed swiftly.
Rather than my suggesting where you should get information, your step-daughter should ask her paediatrician for material then it will accord with her specific treatment. Surgery is often required to remove the 'overactive' pancreatic tissue. As a consequence, a high proportion of patients later have diabetes requiring insulin treatment. Alternatively, a search of the Internet would, I am sure, produce quite a lot of material.
Original posting 30 Aug 2001
Posted to Nesidioblastosis
Last Updated: Tuesday April 06, 2010 15:09:26
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.
This site is published by T-1 Today, Inc. (d/b/a Children with Diabetes), a 501c3 not-for-profit organization, which is responsible for its contents.
© Children with Diabetes, Inc. 1995-2016. Comments and Feedback.