My friends have a wee 21 month old boy who has been diagnosed with nesidioblastosis and is neutropenic. They have had a terrible time -- he is on diazoxide and chlorothiazide, is covered from head to toe in hair, and is in hospital at least once a month as he catches every virus there is. They are talking to doctors about partial removal of the pancreas as he has recently started taking fits. Are they doing the right thing? What is the success rate of this operation?
Nesidioblastosis is a rare but serious disease which is not directly related to diabetes. The basic problem is hypoglycaemia because of too much insulin production by the pancreas. Sometimes it can be alleviated by the use of the drugs you mention, but very often surgery is required to remove the offending tissue. Because around 90% of the pancreas has to be removed to reduce insulin production enough, there is a risk of diabetes in later life.
Original posting 8 Apr 2002
Posted to Nesidioblastosis
Last Updated: Tuesday April 06, 2010 15:09:34
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.
This site is published by T-1 Today, Inc. (d/b/a Children with Diabetes), a 501c3 not-for-profit organization, which is responsible for its contents.
© Children with Diabetes, Inc. 1995-2015. Comments and Feedback.