Children with Diabetes
Education. Support. Community.

Children with Diabetes
The online community for kids, families and adults with diabetes

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View the Online Quilt Gallery

        May 25, 2016 Volume 22, Number 21 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
What's New
About CWD
Our Board
Privacy Policy
People
Family Support Network
Adults with Diabetes
Care Photos
Chat Rooms
CWD Conferences
-- Kids with Diabetes
Parents
Parent Humor
Scholarships and Financial Aid
Grandparents
Humorous Tidbits
CWD Forums
Poetry and Art
Videos
Polls
Quilt for Life
Surveys
Rufus
Blogs
Clinic
Ask the Diabetes Team
Alternate Site Testing
Alternative Treatments
-- Care Suggestions
Diabetes Basics
Type 2 and Double Diabetes
Diabetes at School
504 Plans
Diabetes Camps
Diabetes Dictionary
Insulin Pumps
Food and Nutrition
Presentations
Products
Sports
Studies
Warning Signs
Sources
News and Information
Diabetes Advocacy
Links to Other Web Sites
Press Releases
Blogs about Diabetes
Regional Information
Diabetes Events
Services
Support Groups
Feedback
About CWD
Advertise
Awards
Contribute Your Experiences
Disclaimer
Letters to the Editor
Logos and Linking
-- Share our Brochures
History of CWD

Making a Difference

Conference and College Scholarships for
Kids with Diabetes
Diabetes Scholars Foundation

Insulin & Supplies
For a Child
The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
Photo  

My name is Charlie and I am three years old and live in Houston, Texas. I was diagnosed with diabetes when I was ten months old. I felt kind of bad one day and went to bed early. When I got up I felt really, really bad and had trouble breathing. My mommy took me to Texas Children's Hospital where they gave me insulin and made me feel better.

When I turned one, I got my insulin pump. It is an Animas Ping and you can see it in the picture of me in the wedding. It sits in a black belt that is tied around my waist. My mommy and daddy and all four of my grandparents know how to work the pump to make it give me insulin. When I was two, I got my continuous glucose meter. His name is "Dex." Dex tells me what my blood glucose is and whether it is dropping or getting higher. It even tells me how fast it is dropping.

-- Visit Charlie's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Orlando 2016   Friends for Life Orlando 2016
July 5-10, 2016
Orlando World Center Marriott
Orlando, Florida
Fourth of July with CWD Fundraiser
You're a CWD Star!
Docu-Diabetes II Call for Movies
DSF Family and Individual Scholarships

Friends for Life Falls Church 2016   Friends for Life Anaheim 2016
September 16-18, 2016
Disneyland Hotel
Anaheim, California

Reports from recent CWD conferences & events:
-- Falls Church, UK, Canada, Anaheim, Orlando
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 755 panels. The latest quilt is from Brianna.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
Our youngest group of campers at Camp Koral Kids in Coral Springs, Florida are 5 and 6 years old, but have the wit and wisdom of adults. Diabetes education is an important component of camp and we try to incorporate it in all we do. When quizzing the little ones on diabetes concepts we get all kinds of great responses, but the best one by far was their response to the question of what we check for when our blood sugar is above 240. Their group response was "PEE-tones"! Kind of sums it all up, huh?
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... while driving in the car with your diabetic child, a radio show asks listeners to call in with the answer to the question, "What do parents most often say at their kids?" and your daughter answers, "Did you bolus?"
--More Parent Humor


Featured Book of the Week

!-- start book --> [RECOMMENDED!] The Discovery of Insulin by Michael Bliss. Published by University of Chicago Press, 1982. ISBN 0-226-05898-0. US$18.00.

Book cover   Telling the story of the discovery of insulin and its first use in human patients, The Discovery of Insulin is a worthy addition to anyone's library. It's especially poignant for parents of children with diabetes. The detail is extraordinary, with notes from Dr. Banting and others involved in the discovery and first use of insulin. Be prepared for a level of emotional involvement unlike any you have experienced before with a book. Note that the photographs of children taken prior to the availability of insulin may be difficult for younger kids to view.

Order from Amazon.com Order The Discovery of Insulin from Amazon.com

-- Other books for kids and teens with diabetes
-- Recently Featured Books


Ask the Diabetes Team
My nephew's blood sugar drops very low for a couple of days, then goes up, so he needs insulin. Tests have not explained why he has this repeating pattern. What are your thoughts? (5 May 2016)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- Teens with Type 1 Diabetes and their Parents are needed for a shared decision making study about the use of insulin pumps and continuous glucose monitoring systems.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Have you or your child been screened for monogenic diabetes?

 
   

Yes, and it was negative

 
   

Yes, and it was positive

 
   

No

 
   

I don't know what monogenic diabetes is

 



Poll Results

 

Have you or your child been screened for monogenic diabetes?

 
     

Yes, and it was negative

 
 

0%

     
     

Yes, and it was positive

 
 

0%

     
     

No

 
 

47%

 

 
     

I don't know what monogenic diabetes is

 
 

52%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 25-May-2016 15:44:50 UTC
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