Children with Diabetes
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Children with Diabetes
The online community for kids, families and adults with diabetes

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        January 18, 2017 Volume 23, Number 3 First Published in June 1995     
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Getting Around
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Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de



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Living With Diabetes
Photo  

Hey! My name is Katie. I'm from Indiana. I love playing tennis and swimming. I have an 18 year old brother and an 8 year old brother. I am 16 years old and I was diagnosed with type 1 diabetes when I was 15 on January 19, 2010. I have had it for about 5 months.

During the winter of 2010, I was not feeling well. It wasn't like I had the flu, I just was exhausted, and it had been going on for weeks. I was going to the bathroom often, drinking water nonstop, and getting leg cramps during exercise. I was crying a lot and I was very emotional. Also, my vision got increasingly worse. My eye doctor recommended that I see a doctor.

I went to the pediatrician and she checked my blood sugar. It was in the 400's. Then I was driven to Riley Hospital, and they told me I had type 1 diabetes. I stayed there for 3 days. I learned all about it and all the things I would need to do to take care of myself.

-- Visit Katie's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Anaheim 2017   Friends for Life Anaheim 2017
May 5-7, 2017
Disneyland Hotel
Anaheim, California

Friends for Life Orlando 2017   Friends for Life Orlando 2017
July 4 - 9, 2017
Disney's Coronado Springs Resort
Orlando, Florida
DSF Family and Individual Scholarships

Reports from recent CWD conferences & events:

-- Anaheim, Orlando, Falls Church, UK, Canada
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 756 panels. The latest quilt is from Katrina.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
My six year old son was diagnosed with type 1 on April 1 (of all days!). He is an avid Pokemon fan. We were teaching him how to read the nutrition labels and find out how many carbs are in various foods. One day he picked up a can of light lemonade and said "Mom, this does 2 points damage, can I drink this?" So now we track our carbs by how many "hit points" or how much "damage" a food will do.
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your child learns to count backwards before learning to count forwards--they learn this from watching their meter countdown.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Typecast: Amazing People Overcoming the Chronic Disease of Type 1 Diabetes by Andrew Deutscher. Published by Humbition Entertainment, 2014. ISBN 0578123118. US$18.95..

Book Cover  

Typecast is a book about people in the type 1 diabetes community -- Phil Southerland and Tom Karlya, for example. I'm in there too. But it's so much more than that. Andrew Deutscher's journey in the world of type 1 began when his young son was diagnosed. Andrew sought to understand what that meant for his son and his family, so he began to reach out to others to learn their stories. Those stories are what makes Typecast so unique, and so uplifting. This is a book about thriving with type 1 diabetes, and it is empowering. Highly recommended.

-- JH

Order from Amazon.com Order Typecast from Amazon.com
-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
At the hospital, my young daughter's blood sugar was 11 mmol/L [200 mg/dl] with 0.5 ketones. The nurse was not concerned about diabetes, but I am. Can dehydration cause a high blood glucose with ketones? (10 Jan 2017)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- Teens with Type 1 Diabetes and their Parents are needed for a shared decision making study about the use of insulin pumps and continuous glucose monitoring systems.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

How often do you worry about nighttime hypoglycemia?

 
   

Always

 
   

Usually

 
   

Sometimes

 
   

Rarely

 
   

Never

 



Poll Results

 

How often do you worry about nighttime hypoglycemia?

 
     

Always

 
 

72%

 

 
     

Usually

 
 

13%

 

 
     

Sometimes

 
 

5%

 

 
     

Rarely

 
 

8%

 

 
     

Never

 
 

0%

     
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Saturday, 21-Jan-2017 11:29:17 UTC
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