Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes
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     May 22, 2013 Volume 19, Number 20 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Living With Diabetes
Photo  

My name is Charlie and I am three years old and live in Houston, Texas. I was diagnosed with diabetes when I was ten months old. I felt kind of bad one day and went to bed early. When I got up I felt really, really bad and had trouble breathing. My mommy took me to Texas Children’s Hospital where they gave me insulin and made me feel better.

When I turned one, I got my insulin pump. It is an Animas Ping and you can see it in the picture of me in the wedding. It sits in a black belt that is tied around my waist. My mommy and daddy and all four of my grandparents know how to work the pump to make it give me insulin. When I was two, I got my continuous glucose meter. His name is "Dex." Dex tells me what my blood glucose is and whether it is dropping or getting higher. It even tells me how fast it is dropping.

-- Visit Charlie's page
-- More children with diabetes


Upcoming CWD Conferences and Events
Friends for Life: Orlando 2013   Friends for Life: Orlando 2013
July 9 - 14, 2013
Disney's Coronado Springs Resort
Lake Buena Vista, Florida

Reports from recent CWD conferences & events:
-- UK, Toronto, DC, UK, Sugar Land, Vancouver, Orlando, Philadelphia
-- More Reports & Upcoming CWD Conferences and Events


Headlines
We report on CWD's Friends for Life UK 2013 conference.

We report on CWD's Friends for Life Canada: Toronto 2013 conference.

We report on CWD's Focus on Technology: DC 2013 conference.

CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

Reversal of type 1 diabetes via islet beta cell regeneration following immune modulation by cord blood-derived multipotent stem cells. Free full text available in PDF format. See also Novel Stem Cell Treatment May Hold Promise for Type 1 Diabetes and Type 1 Diabetes Reversed With Stem Cells From Cord Blood.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Author Dan Hurley answers, What Do We Really Know About Why Type 1 Is Rising?

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,400 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 741 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Chats
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Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
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-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Scotland Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.


Diabetes Humor
Last week, Scott took Daniel and Jesse to Raceway Park in New Jersey to see drag racing, funny car races, etc. The other night, at about 11:15 pm, the house phone rings. I picked it up to hear Daniel say, "389." I said, "What did Jesse eat? Didn't the Navigator alarm? What's wrong?" I'm kind of panicky. Daniel laughed and said, "Ma, what are you talking about?" I said, "A blood sugar of 389 is nothing to laugh about!" My brilliant son said, "Ma, I don't know what you're talking about. But Dad just filled up your gas tank at $3.89 a gallon."
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... you go to tell the person in front of you that their pump tubing is hanging out, only to realize that it's the headphone wire connected to their iPod.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] My Life as a Pancreas: Reflections on Raising a Child with Diabetes by Priscilla Call Essert. Published by LuLu.com, 2006. ISBN 978-1-84728-156-2. US$15.00.

Book Cover  

For me, the most amusing part of My Life as a Pancreas was the story of Priscilla's son running around at a parent/child gathering, playing with the other kids. He stopped for some food to prevent a low but left half his cookie in her hand. She yelled out to her son, "Byron, get back here now and finish this cookie. You can't play unless you finish this cookie. You must have this sugar." As other parents sat jaws agape, a little girl came up and asked, "Would you be my mommy? My mommy won't let me have sugar."

That moment, and dozens more, are what we as parents of kids with diabetes live, everyday, as we pretend to be our children's pancreas. My Life as a Pancreas isn't a medical book, it's therapy for parents. And you'll love every page, even if some of the stories hit rather close to home. Highly Recommended.

-- Jeff Hitchcock

  Order My Life as a Pancreas from Lulu.com (the publisher)
Order from Amazon.com Order My Life as a Pancreas from Amazon.com
-- Other books for kids and teens with diabetes
-- Recently Featured Books


Ask the Diabetes Team
Do you know anyone using the T-slim pump and do they like it? Since our endocrinologist is not pump savvy, should I look for one who also as an educator and nurse? (16 May 2013)
-- Answers to over 19,290 questions
-- What's your question?


From the Diabetes Dictionary
C-Peptide
A substance that the pancreas releases into the bloodstream in equal amounts to insulin. A test of C-peptide levels will show how much insulin the body is making. See also Proinsulin.
-- More definitions


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

Women between 12 and 20 who use an insulin pump are needed for a study to understand the experiences of female adolescents with type 1 diabetes being treated with an insulin pump and assess any commonalities between them.

Kids between the ages of 12 and 17 with type 1 diabetes are needed for studies on the artificial pancreas project.

Researchers from Palo Alto University are conducting a study to learn about the impact of various forms of support on quality of life for parents and siblings of children and adolescents with diabetes as well as the psychosocial effect felt by the siblings.

-- Other Studies



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Current Poll
  Do you have a diabetes emergency kit prepared?  
    Yes, and I check it regularly  
    Yes, but I haven't checked it in a while  
    No, but I know I should  
    What's a diabetes emergency kit?  


-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


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Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 22-May-2013 14:20:07 Eastern Daylight Time
This Internet site provides information of a general nature and is designed for educational purposes only. If you have any concerns about your own health or the health of your child, you should always consult with a physician or other health care professional.

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