Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes
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     November 4, 2009 Volume 15, Number 44 First Published in June 1995     
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Living With Diabetes
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My name is Gillian and I am 8 years old. I was diagnosed with Type 1 Diabetes in May, 2006. Before I was diagnosed, I had some bad symptoms. I was angry a lot, hungry and thirsty. At night, I would sleepwalk to the kitchen. We think it was because I was starving. My body just couldn't use the sugar from my food and I was always hungry, but I kept losing weight. I lost 7 pounds. I was put in the hospital for 2 days and I had DKA, which means that I had toxic acid in my body. I had to have an IV put into my arm. I was scared at first, but it didn't hurt. We got to practice giving shots in the hospital and later on, we attended diabetes classes. I am on NovoLog and Lantus. I take 4 shots a day and 4-5 finger pricks. I have pretty good control now.

-- Visit Gillian's page
-- More children with diabetes


Upcoming CWD Conferences and Events
Seattle 2009   CWD Focus on Technology
November 20-22, 2009
Renaissance Seattle
Seattle, Washington
Family Scholarships from
Diabetes Scholars Foundation

Marco Island 2010   CWD Family Support Weekend
December 31, 2009 - January 3, 2010
Marriott Marco Island Resort
Marco Island, Florida

Houston 2010   CWD Focus on Technology
February 19-21, 2010
JW Marriott
Houston, Texas
Family Scholarships from
Diabetes Scholars Foundation

Houston 2010   CWD Focus on Technology
April 16-18, 2010
Renaissance Charlotte Suites Hotel
Charlotte, North Carolina

Friends for Life: Orlando 2010   Friends for Life: Orlando 2010
June 29 – July 4, 2010
Orlando World Center Marriott
Orlando, Florida

Friends for Life Canada: Vancouver 2010   Friends for Life Canada: Vancouver 2010
August 27-29, 2010
Renaissance Vancouver Hotel Harbourside
Vancouver, BC, Canada

Reports from recent CWD conferences & events:
-- La Jolla, UK, Orlando, Chicago, Toronto, Marco Island, Bethesda, Quilt D.C. 2008
-- More Reports & Upcoming CWD Conferences and Events


Headlines
Thousands Take The Big Blue Test On World Diabetes Day. See also The Big Blue Test on World Diabetes Day.

Confirmation of Hypoglycemia in the 'Dead-in-Bed' Syndrome as Captured by a Retrospective Continuous Glucose Monitoring System.

Modern-Day Clinical Course of Type 1 Diabetes Mellitus After 30 Years' Duration. See also Clinical Course of Type 1 Diabetes Called Much Improved.



Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.

Prediction of Severe Hypoglycemia.

Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.



The Family Support Network now includes over 4,330 families from 50 states and 82 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 710 panels.

-- Other news and information


Clinic
Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn about the work of Dr. Denise Faustman.


Chats
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Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
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-- Share recipes
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-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.

Parents report that over 3,000 schools across the US support in-classroom blood glucose monitoring. Does your child's school? Check the Schools database and add information about your child's school.
-- Other information about diabetes and school


Diabetes Humor
Our son, Bryce is 2 1/2 and was diagnosed at 9 months. Bryce has three friends in the neighborhood that all get together and play throughout the week. When Bryce needs a check, I go to him with the kit and he stops for a minute while we do our business. One day while waiting for the meter reading, I glanced up and his three friend were all standing their with their fingers out to be checked too! Talk about moral support!
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your child practices her math facts using MultiClix as counters!
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] My Life as a Pancreas: Reflections on Raising a Child with Diabetes by Priscilla Call Essert. Published by LuLu.com, 2006. ISBN 978-1-84728-156-2. US$15.00.

Book Cover  

For me, the most amusing part of My Life as a Pancreas was the story of Priscilla's son running around at a parent/child gathering, playing with the other kids. He stopped for some food to prevent a low but left half his cookie in her hand. She yelled out to her son, "Byron, get back here now and finish this cookie. You can't play unless you finish this cookie. You must have this sugar." As other parents sat jaws agape, a little girl came up and asked, "Would you be my mommy? My mommy won't let me have sugar."

That moment, and dozens more, are what we as parents of kids with diabetes live, everyday, as we pretend to be our children's pancreas. My Life as a Pancreas isn't a medical book, it's therapy for parents. And you'll love every page, even if some of the stories hit rather close to home. Highly Recommended.

-- Jeff Hitchcock

  Order My Life as a Pancreas from Lulu.com (the publisher)
Order from Amazon.com Order My Life as a Pancreas from Amazon.com
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
Can someone with type 1 or type 2 diabetes have an early ability to self regulate their blood sugar prior to presenting fully with the disease? (6 Nov 2009)
-- Answers to over 18,860 questions
-- What's your question?


From the Diabetes Dictionary
Unit of Insulin
The basic measure of insulin. U-100 insulin means 100 units of insulin per milliliter (mL) or cubic centimeter (cc) of solution. Most insulin made today in the United States is U-100.
-- More definitions


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- DEFEND is a global study seeking newly diagnosed patients aged 12 to 45 to test an islet preserving medication.

Randomized Trial to Assess Efficacy and Safety of Continuous Glucose Monitoring in Children 4-<8 Years With T1DM

Researchers at Northwestern University are seeking participants in a study called Prevent Risks by Early interVEntion at Nighttime in Type 1 diabetes for Kidney Disease (PREVENTKD).

The University of Florida is studying Neulasta in patients with new onset type 1 diabetes.

Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.

NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.

Behavioral specialists at the Joslin Diabetes Center and the University of Virginia seek help from parents who have children with diabetes from ages 6 to 11.

The University of California at Irvine has a new Exercise in Teens with Type 1 study.

Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.

The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.

-- Other Studies

 

Become part of the CWD Quilt for Life
View the Online Quilt Gallery
View Dylan Elizabeth's Quilt
View the Online Quilt Gallery

Current Poll

  In the past year, how many times have you checked for ketones?  
   

Never

 
   

A few times

 
   

Almost every month

 
   

Almost every week

 
   

More than once a week

 
   

Almost everyday

 
   

I don't know what ketones are

 


 

Poll Results

 

In the past year, how many times have you checked for ketones?

 
     

Never

 
 

15%

 

 
     

A few times

 
 

51%

 

 
     

Almost every month

 
 

15%

 

 
     

Almost every week

 
 

9%

 

 
     

More than once a week

 
 

3%

 

 
     

Almost everyday

 
 

1%

 

 
     

I don't know what ketones are

 
 

3%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com

Book cover
The Adventure of A Lifetime
Buy at The Diabetes Mall


Book Cover
NFL Veteran Jay Leeuwenberg Tackles Diabetes and Wins.
You can too!
Buy From The Publisher




Always remember that kids with diabetes are still kids
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Last Updated: Wed Nov 04 14:42:33 2009
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