Children with Diabetes
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Children with Diabetes

The online community for kids, families and adults with diabetes

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        November 22, 2017 Volume 23, Number 47 First Published in June 1995     
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Getting Around
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The IDF Life for a Child Campaign

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Children with Diabetes Foundation


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Living With Diabetes
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Hi, my name is Lauren. I am 14 years old and was diagnosed of type 1 diabetes at 14 months old. As a baby, my mom noticed I was losing weight really fast. She also noticed I was always cranky and hungry, which was weird since I was always a happy baby. Around September 1999, my mom walked in the room I was in and screamed. I was lying on the floor, my eyes rolled into my head, and my whole body shaking like crazy. She knew that I could be dying. My dad was at work with the only car, so my mom called him to leave work for me. He couldn't, so my mom held me, waiting for my dad for hours before we could go to the hospital.

Right when he pulled up, my mom raced out of the house with me in her arms and they raced off to the hospital. When we got there, I was rushed to the emergency room, where the doctors found out my blood sugar was over 1,000! They lowered my blood sugar and came out with me to tell my parents the news. They were shocked, as any parents would be.

-- Visit Lauren's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life Orlando 2018   Friends for Life Anaheim 2018
May 4-6, 2018
Disneyland Hotel
Anaheim, California

Friends for Life Orlando 2018   Friends for Life Orlando 2018
July 10-15, 2018
Disney's Coronado Springs Resort
Orlando, Florida
Family and Individual Scholarships

Reports from recent CWD conferences & events:

-- Orlando 2017, Anaheim 2017, Anaheim 2016, Orlando 2016, Falls Church 2016,
-- More Reports & Upcoming CWD Conferences and Events


Headlines
Newsflash
Animas Corporation intends to exit the insulin pump business and discontinue the manufacturing and sale of Animas® Vibe® and OneTouch Ping® insulin pumps and direct its customers to Medtronic. In response, Insulet and Tandem have set up programs to help Animas pump users.

CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 756 panels. The latest quilt is from Katrina.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
My 5 year old daughter woke one morning low, so I gave her a couple of glucose tabs to suck on while I prepared breakfast. She decided to go upstairs to wake her aunt who was visiting for the weekend. She woke her aunt and showed her the glucose tabs in her mouth. Her aunt asked her jokingly if she had candy for breakfast every morning to which my daughter replied, "Only on the mornings mummy says 'Jesus Christ.'"
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... for Halloween your child dresses up as a sharps box.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin by Caroline Cox. Published by Kaplan Publishing, 2009. ISBN 1607145510. 254 pages, hardcover US$26.95.

Book cover

The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin is the very personal story of Elizabeth Evans Hughes, daughter of Charles Evans Hughes, who served as Governor of New York, US Secretary of State, Associate Justice of the Supreme Court, and Chief Justice of the Supreme Court. Elizabeth was diagnosed with type 1 diabetes in 1919 when she was 11 years old. The only treatment was a brutal starvation diet, which prolonged life -- and in her case, prolonged it enough for her to become one of the first people in the world to receive insulin. Author Caroline Cox takes us back to Elizabeth's life and helps us understand the inner courage of one young girl. If you're interested in learning about the history of diabetes and insulin, The Fight to Survive is for you. Recommended.

Amazon Books Order The Fight to Survive: A Young Girl, Diabetes, and the Discovery of Insulin from Amazon.com

-- Other books for parents and adults with diabetes
-- Recently Featured Books


Ask the Diabetes Team
Both my dad and I have type 1. Though asymptomatic, my toddler daughter seems to have blood sugar spikes with certain foods, such as grapes. She is overweight. Is her weight causing the spikes? Should I be concerned that she is showing signs of type 1? What should I do? (24 Aug 2017)
-- Answers to over 19,400 questions
-- What's your question?


Studies and Surveys
-- Parents of Adolescents with Type 1 Diabetes are invited to participate in a survey on teen risk behaviors being run by researchers at Boston Children's Hospital and Harvard University.

-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

When do you think that type 1 diabetes will be cured?

 
 

The word 'cure' means different things to different people, but think about what it means to you when you answer

 
   

Within the next 5 years

 
   

Within the next 10 years

 
   

Within the next 20 years

 
   

More than 20 years from now

 
   

Never

 
   

I don't know

 



Poll Results

 

When do you think that type 1 diabetes will be cured?

 
 

The word 'cure' means different things to different people, but think about what it means to you when you answer

 
     

Within the next 5 years

 
 

0%

     
     

Within the next 10 years

 
 

20%

 

 
     

Within the next 20 years

 
 

20%

 

 
     

More than 20 years from now

 
 

13%

 

 
     

Never

 
 

43%

 

 
     

I don't know

 
 

3%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 22-Nov-2017 14:09:19 UTC
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