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Children with Diabetes
The online community for kids, families and adults with diabetes

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     May 20, 2015 Volume 21, Number 19 First Published in June 1995     
Chat Forums Conferences Ask the Diabetes Team Care Suggestions School News

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Getting Around
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Diabetes Scholars Foundation

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The IDF Life for a Child Campaign

Insulin for Life USA
The IDF Life for a Child Campaign

Research to Find a Cure
Children with Diabetes Foundation


Around the World

Diabetes-Kids.de
Diabetes-Kids.de




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Living With Diabetes
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My name is Austin. I am five years old and have diabetes. I was just diagnosed on December 3, 2010 (which ws also my birthday!) My mom had a harder time with me being in the hospital than I did because I just played with toys while she cried! I am very brave (that's what my mom says). I test my own blood and don't cry. I don't know what the numbers mean but I tell my mom what I am, and then ask if I am perfect. Of course, she always says yes! I don't love the shots, but my mom and dad are going to a pump class so I guess I will be getting one of those soon. I am a busy boy and love to play with toys, ride my bike, and play the WII. I am going to play T-ball this year. I can't wait.

My name is Lisa, Austin's mom. What a long two months it has been -- but we have learned so much and, most importantly, how to take care of our son. There is a lot to learn, and I am sure more and more each day, but we are getting more comfortable as time goes on. It felt like taking a new baby home when we left the hospital -- a lot of fear, anxiety, sadness -- but it is what it is, and I am a firm believer that things happen for a reason, and that Austin is a very special boy to be given this challenge. We are just hoping for a cure like everyone else, but, in the meantime, we are so glad that it can be managed. All I can say is this takes organized to a whole new level!

-- Visit Austin's page
-- More children with diabetes


CWD Conferences and Events
Friends for Life: Orlando 2015   Friends for Life: Orlando 2015
July 6-12, 2015
Disney's Coronado Springs Resort
Lake Buena Vista, Florida
Family and Individual Scholarships

Anaheim 2015   CWD Focus on Technology
September 18 - 20, 2015
Disneyland Hotel
Anaheim, California

Friends for Life Canada 2015   Friends for Life Canada 2015
October 23-25, 2015
Marriott Gateway on the Falls
Niagara Falls, Ontario, Canada
This Conference is Sold Out

Friends for Life UK: Old Windsor 2015   Friends for Life UK: Old Windsor 2015
30 October - 1 November, 2015
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England
This Conference is Sold Out

Reports from recent CWD conferences & events:
-- Anaheim, UK 2014, Orlando 2014, Cincinnati, Orlando 2013, UK, Toronto, DC
-- More Reports & Upcoming CWD Conferences and Events


Headlines
CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,600 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 751 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Join the Family Support Network
-- Share your experiences in the CWD Forums


Diabetes Humor
The day after my daughter started pumping, she experienced a low, so I decided to pick her up from school. Imagine my surprise when the nurse told me "She's suspended." As she realized my eyes had widened, she corrected herself, saying, "Oh, I meant her pump."
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... your child never gets the broken crackers from the box -- it's too hard to count carbs on those broken pieces!
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Balancing Diabetes: Conversations about finding happiness and living well by Kerri Sparling. Published by Spry Publishing, 2014. ISBN 1938170377. Paperback, 200 pages. $16.95.

Book Cover

There are many medical books about how to manage type 1 diabetes, but there are precious few books on what is much more important -- how to live a full, happy life with type 1 diabetes. With Balancing Diabetes, Kerri Sparling reaches out to the real experts -- people living with type 1 diabetes -- to bring perspective to the challenges of living well with type 1. It is in the wisdom of these experts that we come to realize, as Kerri so eloquently reminds us, "Life with diabetes isn't about the diabetes itself, but about the life of which it's a part." Balancing Diabetes belongs in the home of everyone with type 1. Highly recommended.

Order from Amazon.com Order Balancing Diabetes: Conversations about finding happiness and living well

-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
The endocrinologist recommended my son use mini-glucagon to help maintain his blood sugars during a 3 mile run. Is this the best way to prevent a low? He usually reduces his basal insulin and consumes extra carbohydrates, but still goes low. (20 May 2015)
-- Answers to over 19,350 questions
-- What's your question?


Studies and Surveys
-- PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Other Studies



 
Poll

Current Poll

 

Do you have a diabetes emergency kit prepared?

 
   

Yes, and I check it regularly

 
   

Yes, but I haven't checked it in a while

 
   

No, but I know I should

 
   

What's a diabetes emergency kit?

 



Poll Results

 

Do you have a diabetes emergency kit prepared?

 
     

Yes, and I check it regularly

 
 

32%

 

 
     

Yes, but I haven't checked it in a while

 
 

8%

 

 
     

No, but I know I should

 
 

36%

 

 
     

What's a diabetes emergency kit?

 
 

24%

 

 
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 20-May-2015 16:50:54 UTC
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