Family Support Network Children with Diabetes
The online community for kids, families and adults with diabetes
     February 1, 2012 Volume 18, Number 5 First Published in June 1995     
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Visit the Diabetes Marketplace

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Diabetes Scholars Foundation


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Children with Diabetes Foundation


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For a Child
The IDF Life for a Child Campaign

Friends of CWD from
Around the World


Diabetes Juvenil
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Diabetes-Kids.de
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Living With Diabetes
Photo  

Hi, my name is Maria Jose. I was born in La Paz - Bolivia (South America) and was diagnosed with type 1 diabetes at the age of 1 1/2 years. At first my doctor thought I had an infection and not even noticed my blood sugar, my dad let him know that my glucose was high (500 mg / dl). My doctor was not intended to diagnose diabetes in young children and thought it was a laboratory error, that meant that it took 2 weeks to diagnose correctly. I finally admitted to a hospital and luckily I was treated immediately. It was a difficult period for me and my parents.

I've been using Regular insulin and NPH for one year and I'm doing relatively well. In my country, health insurance does not cover other types of insulin, or an insulin pump or meter.

-- Visit Maria Jose's page
-- More children with diabetes


Upcoming CWD Conferences and Events
Seattle 2011   CWD Focus on Technology
February 25-26, 2012
Philadelphia Marriott West
West Conshohocken, Pennsylvania
This Conference is Sold Out

Friends for Life: Orlando 2012   Friends for Life: Orlando 2012
July 3 - 8, 2012
Marriott World Center Resort
Orlando, Florida
Family Scholarships
Young Adult Scholarships

Friends for Life Canada: Vancouver 2012   Friends for Life Canada: Vancouver 2012
August 24-26, 2012
Renaissance Vancouver Hotel Harbourside
Vancouver, BC, Canada

Friends for Life UK: Old Windsor 2012   Friends for Life UK: Old Windsor 2012
2-4 November, 2012
Beaumont House Hotel and Conference Venue
Old Windsor, Berkshire, England
This Conference is Sold Out
Family Scholarships

Reports from recent CWD conferences & events:
-- Harbor Beach, Seattle, UK, Toronto, Orlando, Cincinnati, Marco Island
-- More Reports & Upcoming CWD Conferences and Events


Headlines
We report on CWD's Family Support Weekend: Harbor Beach 2012 conference.

We report on CWD's Focus on Technology: Seattle 2011 conference.

We report on CWD's Friends for Life UK 2011 conference.

CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

Reversal of type 1 diabetes via islet beta cell regeneration following immune modulation by cord blood-derived multipotent stem cells. Free full text available in PDF format. See also Novel Stem Cell Treatment May Hold Promise for Type 1 Diabetes and Type 1 Diabetes Reversed With Stem Cells From Cord Blood.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Author Dan Hurley answers, What Do We Really Know About Why Type 1 Is Rising?

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.



The Family Support Network now includes over 5,000 families from 50 states and 86 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 728 panels.

-- Other news and information


Clinic
We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.


Chats
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Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Scotland Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.


Diabetes Humor
We were getting our puppy certified to be a therapy dog and we had to get a letter from the vet saying that she was healthy. This includes taking a stool sample to the vet. So after I "gathered" the sample and put it into a plastic baggy I noticed something black. After taking a look, it noticed what it was -- the dog had eaten a test strip!
-- More Humorous Tidbits

You know you're the parent of a child with diabetes when ...
... you realize the saying "Don't cry over spilt milk" was said by someone who never had to look at that milky puddle and try and guess how many carbs it contains.
--More Parent Humor


Featured Book of the Week

[RECOMMENDED!] Mommy, What is Type 1 Diabetes?, written and illustrated by Irene Mallano and Madison Rose Mallano. Published by Author House, 2010. ISBN 978-1-4490-7370-1.

Book Cover   Madison Rose was diagnosed with type 1 when she was four years old. Mommy, What is Type 1 Diabetes?, written by Madison Rose and her mom Irene, is her story. Colorfully illustrated and written from a child's perspective, Mommy, What is Type 1 Diabetes? offers younger kids a chance to share their diagnosis experience with someone else. Mom shares her family's tips at the end, offering newly diagnosed parents words of advice and comfort as they begin their diabetes journey. Recommended for families with young kids.

Order from Amazon.com Order Mommy, What is Type 1 Diabetes? from Amazon.com
  Order directly from the publisher and receive a 20% discount

-- Other books for kids and teens with diabetes
-- Recently Featured Books


Ask the Diabetes Team
Are headaches brought on by low blood sugar common? How can they be prevented? (31 Jan 2012)
-- Answers to over 19,220 questions
-- What's your question?


From the Diabetes Dictionary
Injection Site Rotation
Changing the places on the body where a person injects insulin. Changing the injection site keeps lumps or small dents from forming in the skin. These lumps or dents are called lipodystrophies. However, people should try to use the same body area for injections that are given at the same time each day-for example, always using the stomach for the morning injection or an arm for the evening injection. Using the same body area for these routine injections lessens the possibility of changes in the timing and action of insulin.
-- More definitions


Studies and Surveys
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

Women between 12 and 20 who use an insulin pump are needed for a study to understand the experiences of female adolescents with type 1 diabetes being treated with an insulin pump and assess any commonalities between them.

Kids between the ages of 12 and 17 with type 1 diabetes are needed for studies on the artificial pancreas project.

Researchers from Palo Alto University are conducting a study to learn about the impact of various forms of support on quality of life for parents and siblings of children and adolescents with diabetes as well as the psychosocial effect felt by the siblings.

-- Other Studies

 

Become part of the CWD Quilt for Life
View the Online Quilt Gallery
View Blake's Quilt
View the Online Quilt Gallery

Current Poll
  Has diabetes changed how well you sleep?  
  Parents or caregivers  
    Yes, I don't sleep as well as I did before diabetes  
    No, I sleep as well as I did before diabetes  
    I'm not sure  
  People with diabetes  
    Yes, I don't sleep as well as I did before diabetes  
    No, I sleep as well as I did before diabetes  
    I'm not sure  


 
Poll Results
  Has diabetes changed how well you sleep?  
  Parents or caregivers  
      Yes, I don't sleep as well as I did before diabetes  
  65%     102  
      No, I sleep as well as I did before diabetes  
  4%     7  
      I'm not sure  
  1%     2  
  People with diabetes  
      Yes, I don't sleep as well as I did before diabetes  
  18%     29  
      No, I sleep as well as I did before diabetes  
  8%     12  
      I'm not sure  
  3%     5  

Total votes: 157
-- View Results & More Polls

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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com





Always remember that kids with diabetes are still kids
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Last Updated: Wednesday, 01-Feb-2012 13:40:08 Eastern Standard Time
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