Family Support Network Children with Diabetes
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     August 31, 2008 Volume 14, Number 34 First Published in June 1995     
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Upcoming CWD Conferences and Events
Seattle 2008   CWD Focus on Technology
Marriott Bethesda North
Bethesda, Maryland
September 26-28, 2008

Marco 2009   CWD Focus on Best Practices
Marco Island Marriott Resort
Marco Island, Florida
January 1-4, 2009

Orlando 2009   Friends for Life 2009 Conference and Expo
July 7-12, 2009
Disney's Coronado Springs Resort
Lake Buena Vista, Florida

Reports from recent CWD conferences & events:
-- Quilt D.C. 2008, Orlando, Seattle, Marco Island, Minneapolis, Toronto
-- Upcoming CWD Conferences and Events


Headlines
Our report from the Friends for Life 2008 conference is now online. We'll have more pages of photographs up next week.

We have a brief report from the Quilt for Life Display in Washington, DC.

CWD attended the recent annual meeting of the American Association of Diabetes Educators.

JDRF is now accepting applications for the 2009 Children's Congress.

In vivo reprogramming of adult pancreatic exocrine cells to beta-cells. See also Diabetes researchers convert pancreas cells to produce insulin, New technique finds a faster way to change one cell type into another, and Researchers Create Insulin-Producing Cells from Adult Pancreatic Cells.

Bayer Diabetes Care Partners With Nick Jonas To Encourage Young People To Proactively Manage Their Diabetes; Teen Pop Sensation Shares Personal Story to Inspire Others. (Also available in PDF format.) See also Change for the Children Foundation, Walk in Nick's Shoes, Nick Jonas Launches Type 1 Diabetes Awareness Campaign, Nick Jonas Takes on Diabetes, a video interview with Nick Jonas, his mom, and Dr. David Simmons from Bayer Healthcare - Diabetes Care, and Nick Jonas speaks out about diabetes. You can also download Nick Jonas's song about diabetes, "A Little Bit Longer" from iTunes for $0.99. For every download between Aug 7 and Aug 21, Bayer Healthcare - Diabetes Care will make a donation to Jonas Brothers Change for the Children Foundation.

Vitamin D Supplementation in Early Childhood and Risk of Type 1 Diabetes: a Systematic Review and Meta-analysis. See also Vitamin D Lowers Diabetes Risk and Extra Vitamin D In Early Childhood Cuts Adult Diabetes Risk.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring?

Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

Continuous subcutaneous insulin infusion leads to immediate, stable and long-term changes in metabolic control.

In Type 1 diabetic patients with good glycaemic control, blood glucose variability is lower during continuous subcutaneous insulin infusion than during multiple daily injections with insulin glargine.

Continuous subcutaneous insulin infusion therapy: effects on quality of life. Free full text available in PDF format.

Prediction of Severe Hypoglycemia.

Subcutaneous glucose sensor values closely parallel blood glucose during insulin-induced hypoglycaemia.

Strong association between time watching television and blood glucose control in children and adolescents with type-1 diabetes mellitus.

Every family is encouraged to download a copy of Helping the Student with Diabetes Succeed: A Guide for School Personnel from the web site of the National Diabetes Education Program, a joint program of the National Institutes of Health and the Centers for Disease Control and Prevention. If the 88-page PDF file is too large for you to download, you can request a free copy of the document by printing the order form and faxing or mailing it to the NDEP.

The ADA's Legal Rights of Students with Diabetes is an authoritative and comprehensive tool for families seeking to ensure that their children with diabetes are afforded all of their legal rights while they are at school. This document is indispensable for all families. You can download the complete PDF from the ADA web site or from the Children with Diabetes web site.

The Family Support Network now includes over 3,800 families from 50 states and 76 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 676 panels.

-- Other news and information


Clinic
Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

We offer diabetes care suggestions based on the current state-of-the-art in caring for type 1 diabetes.

Learn about the work of Dr. Denise Faustman.


Chats
Join Crystal Jackson of the American Diabetes Association for a Back to School Chat on Wednesday, September 3 at 9pm Eastern. The that will take place in the Back to School chat room.


Support
-- Sign up for our weekly What's New e-mail newsletter
-- Parents, sign up for our Parents support mailing list
-- Grandparents, sign up for our Grandparents support mailing list
-- Share recipes
-- More mailing lists
-- Support Groups
-- Join the Family Support Network
-- Share your experiences in the CWD Forums
--  Mailing lists for readers from:
Australia New Zealand UK Finland

See our CWD UK Information Section with links to UK-specific information.

See our section of photos of diabetes care in interesting places. Send in your photos to info@childrenwithdiabetes.com.

Parents report that over 3,000 schools across the US support in-classroom blood glucose monitoring. Does your child's school? Check the Schools database and add information about your child's school.
-- Other information about diabetes and school


Featured Book of the Week

[RECOMMENDED!] Diabetes Burnout: What To Do When You Can't Take It Anymore by William Polonsky, American Diabetes Association, 2000. ISBN 1580400337.

Cover  

Many people with diabetes also deal with depression. It's common and understandable. This wonderful book throws a strong and practical light on how the anger, worries and burdens of caring for diabetes day in and day out can effect you. Written in an interactive format, the book the emotional issues that contribute to poor diabetes control and provides guidance to overcoming your barriers to self-care. Worksheets help you assess your current level of motivation and establish a successful plan of action.

Diabetes Burnout addresses such issues as:

  • Ten good reasons to hate blood sugar monitoring (and what to do about them)
  • Worrying about long-term complications: the uses and misuses of fear
  • Depression and diabetes: a tough combination
  • Friends, family and health care providers - the diabetes police
  • How stresses influence diabetes (and what to do about it)
  • More

If you're "fed-up," try reading "Diabetes Burnout" and completing the worksheets. You will not only feel acknowledged, but you'll end up with a plan to do something truly helpful to improve how you're feeling.

Betty Brackenridge

Order from Amazon.com Order Diabetes Burnout: What To Do When You Can't Take It Anymore from Amazon.com
-- Other books for parents, adults, and older kids
-- Recently Featured Books


Ask the Diabetes Team
The school's field hockey coaches have told my daughter she will lose playing time due to the time she spends checking her blood sugars and treating lows during practices. Isn't this discrimination? What should be my next step? (5 Sep 2008)
-- Answers to over 18,450 questions
-- What's your question?


From the Diabetes Dictionary
Dawn Phenomenon
A sudden rise in blood glucose levels in the early morning hours. This condition sometimes occurs in people with insulin-dependent diabetes and (rarely) in people with noninsulin-dependent diabetes. Unlike the Somogyi effect, it is not a result of an insulin reaction. People who have high levels of blood glucose in the mornings before eating may need to monitor their blood glucose during the night. If blood glucose levels are rising, adjustments in evening snacks or insulin dosages may be recommended.

-- More definitions


Surveys and Studies
-- Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

-- Families are Needed Who Have an Infant Under age 5 Months or a Mother in the Last Trimester of Pregnancy and a Family Member with Type 1 Diabetes are highly encouraged to participate in the TrialNet NIP study.

NYU researchers are looking for teens with type 2 diabetes or teens with a BMI over 30, aged 14-19, for a study at the NYU Medical Center. The study involves two visits to the medical center, and includes cognitive testing (memory, etc.), a blood sample, and an MRI scan of the brain. Parental consent is necessary for those under 18. All volunteers will be financially compensated $100 for their time.

Behavioral specialists at the Joslin Diabetes Center and the University of Virginia seek help from parents who have children with diabetes from ages 6 to 11.

The University of California at Irvine has a new Exercise in Teens with Type 1 study.

Clinical Trials for Newly Diagnosed Type 1 Diabetes is seeking people ages 8-30 who have been diagnosed with type 1 diabetes within the past six weeks for the AbATE Trial.

The Type 1 Diabetes Genetics Consortium is seeking families with at least 2 siblings diagnosed with type 1 diabetes prior to age 35. They are also interested in having the parents participate, as well as other siblings without diabetes. In this study, researchers will be trying to identify genes influencing an individuals risk for developing type 1 diabetes. By furthering the knowledge of these genes, the researchers hope to prevent type 1 diabetes in the future.

Adult males with type 1 diabetes are needed for a study about Benfotiamine and Complications in New York.

The University of Florida is running a study about Cord Blood and Diabetes.

A study on Autoantigen Vaccination In Human Type 1 Newly Diagnosed Diabetes Mellitus is seeking adults 18-35 who have been diagnosed with type 1 diabetes mellitus less than three months.

-- Other Studies


Diabetes Humor
One evening, after dinner, our daughter who has diabetes asked me to get her some Hershey's Kisses to eat. I grabbed the bag as her siblings also asked for some. I gave two to her sister, then I gave my daughter two. She said, "Please give me another one; I bolused for three." Her non-diabetic sister quickly chimed it, "Well, I bolused for five."
-- More Humorous Tidbits

You know you're a parent of a child with diabetes when ...
... you go into the bathroom and find your 3-year-old son peeing into a Dixie Cup, and when asked why, he looks up at you and replies, "Well I have to test my peetones."
--More Parent Humor


Living With Diabetes
Photo
Marissa (left) and Sara (right)
-- More children with diabetes
 

Hi! My name is Marissa and I got diabetes when I was two years old. I'm 21 years old, so I've had diabetes for over 19 years. I've been using an insulin pump since October 1998. I like the pump because it gives me more freedom and better control.

I am in nursing school and hope to one day become a diabetes educator. I love to travel, walk dogs, dance and go to the CWD conferences.

Diabetes has helped me choose a career in nursing and has given me the opportunity to help others with diabetes all over the world. It will never stop me from doing anything I want to do. Diabetes does not define who I am, but it has helped make me a better person.

-- Visit Marissa's page

 

Become part of the CWD Quilt for Life
View the Online Quilt Gallery
View Marissa's Quilt
View the Online Quilt Gallery

Current Poll

  Have you or your child ever been checked for thyroid disorders?  
   

Yes, and the results were positive

 
   

Yes, and the results were negative

 
   

No

 
   

I'm not sure

 


 

Poll Results

 

Have you or your child ever been checked for thyroid disorders?

 
     

Yes, and the results were positive

 
 

24%

 

 
     

Yes, and the results were negative

 
 

54%

 

 
     

No

 
 

14%

 

 
     

I'm not sure

 
 

7%

 

 
-- View Results & More Polls

Diabetes Marketplace
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Top E-mailed Pages
1. Information for Teachers
2. Bethesda 2008 Conference
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4. One-Page Care Guide
5. Sample 504 and IEP Plans
6. Quilt for Life - DC 2008 - Photos 4
7. Diabetes Management at School
8. Insuflon
9. 2009 Conference and Expo
10. Quilt for Life - DC 2008
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Recommended Books

Book Cover
Get the
Pink Panther Book
From the Children's Diabetes Foundation at Denver

Book cover
Become an expert in
your own diabetes
Buy at Amazon.com


Book Cover
Living with diabetes
and as a parent
Buy at Amazon.com

Book cover
The Adventure of A Lifetime
Buy at The Diabetes Mall


Book Cover
NFL Veteran Jay Leeuwenberg Tackles Diabetes and Wins.
You can too!
Buy From The Publisher




Always remember that kids with diabetes are still kids
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Last Updated: Mon Sep 01 08:12:13 2008
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