I was diagnosed a day before New Year's Eve at the end of 2009, when I was twenty months old. I had been wetting my bed, soaking my diapers all day, and constantly asking for more drinks in my sippie cup. One morning, my mom had the thought to test my blood sugars because of these things going on and they turned out to be around 325.
You see, my daddy has Type 1 diabetes, too, but he didn't get it until he was nineteen years old. Lucky. I am the 5th and youngest child in my family and hopefully the only one who will have to go through this. Mom and Dad have always known that it was possible that one of us could get it, too, but were shocked, especially Dad, when I was diagnosed so young. They took me to the doctors later that day where I was tested again (around 250, this time), who then sent us to the children's hospital. Luckily, the doctors said we caught it early and no damage had occurred. Mom stayed with me for two days and dad came the last day to learn how to take care of me as well as himself. We rocked in the New Year right there in my hospital room. Well, Mom slept through it.
Mom actually got to give herself a shot for the first time to see what it was like even though she had given Dad shots before. She says that taking care of me so young is like having diabetes herself. She feels sorry for me, feels that I probably won't know life any different because I got it so young but says maybe that's a good thing. She was used to what came with diabetes from Dad but had to really pay attention and learn once I was diagnosed.
I just experienced my first post-diabetes Halloween and my family now knows we'll have to change what we do with treats. Mom gets frustrated because she doesn't feel she puts enough thought and time into taking care of me (which is why she found this website). But she's always happy when the test meter shows “good” numbers. My dad got his first insulin pump 4 and a half years ago and has had a lot better luck keeping his sugars under control. It is expensive to maintain the supplies, let alone buying the pump in the first place. $5000 out of pocket. My parents now pay about $250 a month, out-of-pocket -a good-sized car payment- for both of our expenses each month. But they hope to get me a pump someday because they want to see my children one day, their grand-children, and then want me to live to see my grandchildren one day.
You can email my mom at .
Published January 19, 2011
Last Updated: Wednesday January 19, 2011 11:41:08
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