Our Diabetes Story
Written by Anne MacCabe
Rory is the eldest of our 3 children. He was born on 7/3/1997 in The Royal Berks Hospital Reading. His brother Kieran was also born there on 5/4/1999. We moved back to Southern Ireland in Feb 2000. Ellie was born on 17 May 2002. Life was perfect.
Easter weekend 2003, Eddies sister Mary took Rory and Kieran for their annual holiday staying with her in Dublin. When they came back after the weekend, Mary said that Rory had been drinking a lot and going to the toilet a lot. She said that everywhere they went he had to go to the loo. Maybe he was just curious to use the loo in each place he visited? She also said that he kept wanting a drink but she didn't want to keep giving him more fluid as he would then need to go to the loo AGAIN!
Over the next few weeks, Rory was drinking a lot and weeing a lot. He would be up maybe 3or 4 times at night and sometimes wet the bed because he was so tired that he didn't wake up! Each morning I would clean the floor in the bathroom (thank god we didn't have carpet!). It was as if I was cleaning up powdered crystals. Rory was getting thinner but his Dad has been quite skinny as a boy and we thought that he was just going through a growth spurt.
Around this time, my Mums cousin had been diagnosed with Type 2 diabetes. My Mum was interested to learn about it, so I said I would look up some info on the Web for her. As I read about both Type 1 and Type 2 something clicked. However, the mind has a great way of fooling you into not really accepting what you read.
On 6th May 2003 (11 days before Ellie's 1st birthday) I took Rory the G.P. In my heart I knew what he was going to say but I kept hoping I was wrong. I had brought a urine sample (!) and he checked this with a urine stick. The diagnosis of course was Diabetes!. I wasn't surprised and went into autopilot. I phoned Eddie at work and he came home. We arranged for someone to look after the other 2 kids and drove Rory to Wexford General Hospital with a referral letter. We were admitted to the ward. I cant remember what he blood sugar reading was. Rory seems to think it was about 28.
Rory stayed in hospital for 7 days. (he said it was great because he could stay in bed all day and have food brought to him and it didn't cost him anything!!) 2 days before he was discharged, the DSN told us to take Rory out for an hour or so for lunch. I can honestly say that I was petrified! How were we going to stop him from having a hypo, what can he have to eat, what happens if he passes out….what if!!!!
I can still remember the table we sat at in the café but I cant remember what we had to eat! I probably had nothing!
Before Rory was discharged, I came home and went through our cupboards. I gave away every packet of sweets, every bar of chocolate and everything that I THOUGHT he couldn't have.
I don't remember much about the next few months. There was so much to learn and so many adjustments to make. There were 2 other kids who needed my attention and to top it all, we had 2 German students for 4 weeks. There was also the summer to contend with. All that outdoor activity, all those trips to the beach… Sounds ideal but all the planning needed, even for a trip to the beach was murder. All I know is that in August it hit me with a bang! I remember phoning a friend in tears and not knowing what was wrong with me.
So, here we are today. A few weeks away from his 3rd diabetes anniversary. After trying out various insulins thru syringes and pens, Rory finally started pumping on 6/3/06. Starting on a pump was really like starting all over again for us. The emotions were all brought back again. It was hard work for us as parents, but Rory is so happy. He says that there is no way he is giving back his pump. He is working on a comic about pumping for his DSN.
Eddie's sister Mary, took all 3 kids again this year for Easter. They had a great time and Rory ate so much chocolate!!!!
We have met a lot of new people because Rory has diabetes. We have made a lot of new friends, both adults and children. Every parent agrees that it is so important to have someone to talk to who understands diabetes.
I only 'found' the CWD website recently and so far have found it invaluable. It is so good to know that if I don't know something about diabetes, I can email my question and receive answers from the best diabetes specialist ... other parents.
Anne & Rory dx 6/5/2003 (age 6) pumping MiniMed Paradigm 512 since 6/3/06
April 25, 2006
Last Updated: Tuesday April 25, 2006 11:43:02
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