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1
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2
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- Diagnosis
- Family Life
- Daily Management
- Staying up on latest & greatest stuff
- Friends
- School
- Siblings
- Juggling it all!
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3
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- Education
- Meeting others
- Support Groups
- Camps
- CWD
- Health Care Team
- Massage
- Scheduled/unscheduled “falling apart”
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4
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- Larger focus, to reduce stress, is on the Family
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5
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- Family emotional supportiveness
- Between parents -- are mother and father emotionally available to each
other?
- Availability -- is there flexibility with daily schedules?
- Family organization
- Joint decision making -- between spouses
- Value congruence -- between spouses
- Communications patterns -- are messages about rules clear or confusing?
- Competence/effectiveness
- Response to initial symptoms
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6
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7
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- Joe Solowiejczyk, RN MSW CDE
- (484) 467-0173
- jsolowie@its.jnj.com
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