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  Back to Orlando 2003 Orlando 2003 Parent Survey

Questions for Parents

Answers to this survey are completely anonymous. They will be used during several sessions at the Friends for Life: Orlando 2003 summer conference. Answer as many or as few questions as you like. The more you answer, the more we'll have to help in our discussion sessions in Orlando.

Please answer survey without your spouse or ex (where applicable) present. For this survey, if you are divorced, please take it as "spouse" to mean the biological partner to the child with diabetes. In cases of adoption and you are divorced, take it as the partner at the time of adoption.

This survey is now closed. Thank you to everyone who took the time to complete the survey.



1. What is your relation to your children?







2. How many children do you have?








3. What are the ages of your children?
4. How old is your child with diabetes? (If you have more than one child with diabetes, list all the ages.)
5. Do you remember the date of your child's diagnosis, without asking or looking it up?


6. Who is the primary caretaker of your child (or children) with diabetes?




7. Are you a single parent?


8. If the caretaker of your child were to suddenly be unable to care for your child, how comfortable are you that you could immediately take care of your child?



9. Did you stop work to stay home and care for your child?


10. If your answer to the previous question was yes, what best describes your previous employment?








If You Had to Stop Working, Answer Questions 11-13, Then Skip to Question 17

11. Do you ever feel it was unfair for your spouse to be able to continue to work while you had to stop?


12. Do you ever think about it?


13. Have you discussed your feelings with your spouse?



If Your Spouse Had to Stop Working, Answer Questions 14-16, Then Continue at Question 17

14. Do you ever feel guilty that your spouse gave up their professional life to stay home?


15. Do you ever think about it?


16. Have you discussed your feelings with your spouse?


17. If you work outside the home, do you find yourself working different hours since your child was diagnosed?



18. If your spouse works outside the home, do you find that they are working different hours since your child was diagnosed?



19. For the previous question, if your spouse is working longer or shorter hours, do you feel this is unfair?


20. Do you, because of family genetics or some other reason, feel that you are responsible for your child having diabetes?


21. Do you, because of family genetics or some other reason, feel your spouse is responsible for your child having diabetes?


22. Have you shared your feelings about guilt/blame with your spouse?


23. Have you shared your feelings about guilt/blame with anyone else?


24. If you've shared your feeling about guilt/blame with someone other than your spouse, who was it?
25. If your child had a hypoglycemic reaction and passed out, outside of calling 911, would you know what to do?


26. Do you feel that your spouse would know what to do?



27. Do you and your spouse argue about the care of your child's diabetes?



28. Do you and your spouse argue more, in general, since your child's diagnosis?



29. If your spouse is the primary caretaker, do you feel your spouse should be a little more patient with you when you ask questions about your child's diabetes?



30. If you are the primary caretaker, do you feel your spouse asks you questions about your child's diabetes at appropriate times?





31. If you could say one thing to your spouse about the way they handle your child's diabetes, with the security that no one knew it ever came from you, what would it be?
32. What hurts you the most, inside where no one knows, about your child having diabetes?
33. Have you shared these feelings with your spouse?


34. What is your definition of a cure for your chidl?
35. Do you think your child will one day be cured of diabetes?


36. Do your children without diabetes understand the difficulty your child with diabetes faces every day (only answer this if your child or children are over the age of 7)?






37. How often does your family disucss diabetes and what it is?




38. On a scale of 1-10, with 10 being the stongest understanding, how well does your child with diabetes understand the complications of diabetes?










39. On a scale of 1-10, with 10 being the stongest understanding, how well do your other children understand the complications of diabetes?









40. If you could say anything to your child with diabetes, with the security that they would never know it came from you, what would it be?
41. If you could say anything to your children without diabetes, with the security that they would never know it came from you, what would it be?
42. In your opinion, have you changed since your child's diagnosis? If so, in what way have you changed the most?
43. Has your spouse changed since your child's diagnosis? If so, in what way have they changed the most?
44. Are you angry that your child has diabetes?





45. If you could pinpoint your anger, at whom or at what are you angry?
46. As a family, since your child has been diagnosed, have you grown closer or farther apart?



47. Do you have any comments about your family growing closer or apart?
48. As a couple, since your child has been diagnosed, have you and your spouse grown closer or farther apart?




49. Do you have any comments about you and your spouse growing closer or apart?
50. Since my child was diagnosed, my spouse has, in a positive way, begun to (what?):
51. What would you say hurts your spouse the most when they think of your child's diabetes?
52. For parents who are still together, since your child was diagnosed, the intimacy between you and your spouse has:





53. What is the one thing you think your spouse would do differently, if they could, in dealing with the everyday management of diabetes?
54. Do you think your child feels comfortable with taking care of their diabetes?



55. Do you think your child believes you are too over-protective about their diabetes?



56. Do you think your child plays you against your spouse in dealing with their diabetes?



57. Do you think your child believes you should give them a break and let them handle their diabetes?



58. Answer this question without pondering it or saying, 'but ...' - answer the first thing that pops into your head. Diabetes is my child's disease. True or false?


59. Why did you answer the way you did?
60. If you could add a question to this survey, what would it be?
61. How would you answer it?



                 
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Last Updated: Thursday June 05, 2003 15:37:40
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