Back to Surveys Transition Survey: Parents of Teens

This survey is now closed. Thanks to everyone who shared their experience.

Children with Diabetes is running a survey about issues surrounding transitioning from pediatric to adult care to help the National Diabetes Education Program, a federally-sponsored initiative of the NIH and CDC. We want to help prepare families navigate through the critical phase of transitioning from pediatric to adult diabetes health care, addressing topics such as managing your own health care needs, securing health insurance, finding a new adult health care provider, transferring medical records, and seeking appropriate health care as needed. This survey will help identify the critical issues, challenges (and some solutions), as well as the types of venues and materials to reach the target audience-parents of and teens with diabetes.

1. Do you know the age at which your teen will no longer be covered under your current family health insurance plan?
2. Has your teen's provider discussed with them the complications of diabetes and how to prevent or reduce his or her risk for them?
I don't know
2a. If yes, which ones?
3. Have you talked with your teen's current health care team about the transition to a new adult health care provider?
4. Have you discussed with your teen's current health care team how there can be a smooth transfer of your teen's medical records to an adult care provider?
5. Have you discussed with your teen how to be an advocate for themselves? For example:
Yes No I don't know
Do they know which questions to ask their adult health care team?
Are they familiar with the anti-discrimination laws that protect them?
6. Have you and your teen's provider discussed the importance of seeking appropriate health care regularly - not just during emergencies?
I don't know
7. On a scale from 1 to 10, how prepared is your teen for the transition from pediatric to adult care stage? (with 1 being the least prepared and 10 being the most prepared)
7a. Why did you give your teen that number?
7b. What more would your teen need to be better prepared for the transition?
8. Would a checklist that allows you to add personal information such as your health care, dental care, testing needs/schedule, and general information such as an explanation of the types of doctors and areas of expertise, etc. be helpful?
I'm not sure
9. In what format would you prefer to receive information about transitioning health care?
Hard copy
Tip sheet
Wallet or pocket-sized card


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Last Updated: Tuesday December 08, 2009 12:38:24
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