Back to Surveys Transition Survey: Teens

This survey is now closed. Thanks to everyone who shared their experience.

Children with Diabetes is running a survey about issues surrounding transitioning from pediatric to adult care to help the National Diabetes Education Program, a federally-sponsored initiative of the NIH and CDC. We want to help prepare families navigate through the critical phase of transitioning from pediatric to adult diabetes health care, addressing topics such as managing your own health care needs, securing health insurance, finding a new adult health care provider, transferring medical records, and seeking appropriate health care as needed. This survey will help identify the critical issues, challenges (and some solutions), as well as the types of venues and materials to reach the target audience-parents of and teens with diabetes.

1. Currently, do you know your doctor's name and how to contact him or her?
2. If you were a young adult living with diabetes on your own, would you know how to:
Yes No I'm not sure
Find a new doctor/adult care team
Understand/find insurance coverage
Schedule/remember doctor's appointment
Fill prescriptions
Ensure medical records have been transferred to the adult care team
Being an advocate for yourself; for example:
Do you know which questions to ask your adult health care team?
Are you familiar with the anti-discrimination laws that protect you?
3. Do you regularly discuss your diabetes care with your parents?
3a. Why or why not?
4. If you were in need of emergency care related to your diabetes, would you know what to do?
4a. If yes, what? If no, why not?
5. On a scale from 1 to 10, how prepared are you for the transition from pediatric to adult care stage? (with 1 being the least prepared and 10 being the most prepared)
5a. Tell us why you gave that number
5b. What more would you need to be better prepared for the transition?
6. What information and resources do you feel would be helpful for you and for other teens in making the transition from pediatric to adult health care?
7. Would a checklist that allows you to add personal information such as your health care, dental care, testing needs/schedule, and general information such as an explanation of the types of doctors and areas of expertise, etc. be helpful?
I'm not sure
8. In what format would you prefer to receive information about transitioning health care?
Hard copy
Tip sheet
Wallet or pocket-sized card


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Last Updated: Tuesday December 08, 2009 12:38:24
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