children with DIABETES - Transition Survey: Young Adults

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		Transition Survey: Young Adults

This survey is now closed. Thanks to everyone who shared their experience.

Children with Diabetes is running a survey about issues surrounding transitioning from pediatric to adult care to help the National Diabetes Education Program, a federally-sponsored initiative of the NIH and CDC. We want to help prepare families navigate through the critical phase of transitioning from pediatric to adult diabetes health care, addressing topics such as managing your own health care needs, securing health insurance, finding a new adult health care provider, transferring medical records, and seeking appropriate health care as needed. This survey will help identify the critical issues, challenges (and some solutions), as well as the types of venues and materials to reach the target audience-parents of and teens with diabetes.

1. What are some of your concerns about being a young adult with diabetes?
Learning to manage your diabetes on your own
Scheduling/remembering doctor's appointment
Knowing and understanding the medications you take
Filling prescriptions
Knowing what to do or who to call when you get sick
Finding a new adult care team
Obtaining insurance if coverage is lost
Familiarity and comfort level with your new adult care team
Being an advocate for yourself (i.e., knowing the types of questions to ask your new health care team)
Other

2. What are some of the experiences, obstacles, and challenges you faced as you entered the transition stage?
Lack of understanding of diabetes
Lack of parental support and guidance
Poor understanding of adult diabetes management
An abrupt, non-gradual transfer of the responsibility for diabetes care from your parents to you
Inadequate interaction and follow-up between you and your new adult care team
Lack of awareness of anti-discrimination laws that protect you
Other

3. Do you currently see an adult care team for your diabetes?
Yes
No

3a. If not, why not?

3b. If yes, what kind of doctor do you see?
Endocrinologist
Primary care physician
Nurse practitioner
Other

4. On a scale from 1 to 10, how well prepared were you for the transition from pediatric to adult care stage? (with 1 being the least prepared and 10 being the most prepared)
1
2
3
4
5
6
7
8
9
10

4a. Also, please tell us why you gave yourself that score

5. What kind of information/resources would have been beneficial and empowering to help you through the transition stage?

6. Do you still discuss your diabetes care with your parents?
Yes
No

6a. Please elaborate (why, why not, etc.)

7. Would a checklist that allows you to add personal information such as your health care, dental care, testing needs/schedule, and general information such as an explanation of the types of doctors and areas of expertise, etc. be helpful?
Yes
No
I'm not sure

8. In what format would you prefer to receive information about transitioning health care?
Online
Hard copy
Guidebook
Tip sheet
Checklist
Wallet or pocket-sized card
Other

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Last Updated: Tuesday December 08, 2009 11:38:23
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	1. What are some of your concerns about being a young adult with diabetes? Learning to manage your diabetes on your own Scheduling/remembering doctor's appointment Knowing and understanding the medications you take Filling prescriptions Knowing what to do or who to call when you get sick Finding a new adult care team Obtaining insurance if coverage is lost Familiarity and comfort level with your new adult care team Being an advocate for yourself (i.e., knowing the types of questions to ask your new health care team) Other 2. What are some of the experiences, obstacles, and challenges you faced as you entered the transition stage? Lack of understanding of diabetes Lack of parental support and guidance Poor understanding of adult diabetes management An abrupt, non-gradual transfer of the responsibility for diabetes care from your parents to you Inadequate interaction and follow-up between you and your new adult care team Lack of awareness of anti-discrimination laws that protect you Other 3. Do you currently see an adult care team for your diabetes? Yes No 3a. If not, why not? 3b. If yes, what kind of doctor do you see? Endocrinologist Primary care physician Nurse practitioner Other 4. On a scale from 1 to 10, how well prepared were you for the transition from pediatric to adult care stage? (with 1 being the least prepared and 10 being the most prepared) 1 2 3 4 5 6 7 8 9 10 4a. Also, please tell us why you gave yourself that score 5. What kind of information/resources would have been beneficial and empowering to help you through the transition stage? 6. Do you still discuss your diabetes care with your parents? Yes No 6a. Please elaborate (why, why not, etc.) 7. Would a checklist that allows you to add personal information such as your health care, dental care, testing needs/schedule, and general information such as an explanation of the types of doctors and areas of expertise, etc. be helpful? Yes No I'm not sure 8. In what format would you prefer to receive information about transitioning health care? Online Hard copy Guidebook Tip sheet Checklist Wallet or pocket-sized card Other